[TMIC] Please take me off of your list
Thank you, Jeanne Rushton
Re: [TMIC] OT bed question
Kevin, I wish the best for you, truly, I do. We have a mattress that has a four inch foam topper that was added and it is the most comfortable bed I've ever slept in. When we go on a trip, I really suffer from the mattresses because they are so hard. TMer's can probably relate to that. I do think it is an individual thing, tho. Good luck in finding one that works for you. It is very, very important because a good rest is imperative. Hugs..Jeanne ---Original Message--- From: Kevin Wolfthal Date: 06/01/10 11:11:06 To: tmic-list@eskimo.com Subject: [TMIC] OT bed question Hi Friends, I'm sorry I haven't been on as much as I'd like. I'm trying to figure out my life now which is very different, and feel a bit lost. I was wondering if anyone could advise me. I need to buy a new bed as mine is caving in and hurting my back. I can't get out to bed shop, but I've heard that Sealy Posturepedic makes the best mattress, and someone on tv recommended medium hard? I'd like to hear your opinions. Thanks, Kevin 01_tile.jpg01_side.gif
Re: Fw: [TMIC] June Birthdays
Happy Birthday all of you June babies!! Have a wonderful month! Jeanne ---Original Message--- From: rn11...@yahoo.com Date: 6/1/2010 12:39:17 PM To: tmic-list@eskimo.com Subject: Fw: [TMIC] June Birthdays Happy Birthday to the June celebrants! Cheryl in Easthampton,MA. --- On Tue, 6/1/10, Barbara H. barbara...@gmail.com wrote: From: Barbara H. barbara...@gmail.com Subject: [TMIC] June Birthdays To: TMIC tmic-list@eskimo.com, jharpe...@aol.com Date: Tuesday, June 1, 2010, 12:37 AM Happy Birthday to the June kids! Please send any additions or corrections to mic-l...@eskimo.com. In addition, this month also contains two birthdays of TMers who have passed on, Tom Carr (6/2) and Dennis Galvin (6/25). If you still know any of their loved ones, I am sure they's apprciate knowing you're still thinking of them 6-1 Akua (a...@artfarm.com) 6-5 Tobe Kanon (spirita...@verizon.net) 6/5 Mindy King (we4king...@verizon.net) 6-11 Irene (ijrl...@aol.com) 6/11 Marabeth (mes...@earthlink.net) 6-11 Sharon Marsden (dorightra...@yahoo.com) 6/11 bobby hennessy (wheeelchairbo...@hotmail.com) 6-17 Cheryl (rn11...@yahoo.com) 6-19 Tom in Delaware (te...@flash.net ) 6-19 Debbie Capen (dca...@earthlink.net) 6-22 Ann Moran (annmo...@gofree.indigo.ie) 6-22 Gerry (suret...@sympatico.ca) 6-24 Lynne (lynnemye...@yahoo.com) 6-25 Errol White (eamjwh...@bigpond.com ) 6-28 Kim Harrison (kimr1...@bellsouth.net) 6-29 Pauline (prha...@aol.com) 6/30 Bobby Jim (elbobber...@earthlink.net) 01_tile.jpg01_side.gif
Re: [TMIC] Update
OHMYGOSH!!! Prayers answered for sure! What wonderful news from our dear friends...Thank you for sharing with us!!! Loves and hugs..Jeanne ---Original Message--- From: Jill Hammond Date: 6/1/2010 6:29:05 PM To: Anna Jim; Annie; Becky Steve; Beth Greg; Bob Beverly; 'Boyd ; Carole Matteson; Char Brower; Cheryl Hammond; Cindy Dunn; Craig Candi; 'Craig Fiore'; fi...@dhs.gov; David Brooks; 'David Gay'; Dennis Pam; 'Earl Fordham'; Elaine Boos; Eric Eri; Fred Susan; Gil Mari; 'James Fulmer'; Jan Hlavaty-LaPosa; Jim and Bobbi; Johanna; Judy Karl; Keenan; Kendra; Lenny Lisa; Lisa; Lynn Jade; Mari Gary; marie swanson; 'Mica Ward'; Mike Nancy; Nancy; Noah; Pat Allegretti; Pat and Corky; Pat Doebele; Pat Massey; Paula; PJ; Ron; 'Sally'; Sarah Bell-Schell; 'Scott Hamilton'; Sharon Steve; 'Sheri Meyer'; Steve Gail; Steve and Jo; Susan Ted Roth; Tmic; Tom Deb; 'vanessa Quinn'; Wayne; Zsolt Patty Subject: [TMIC] Update Hi, everyone, I would like to give you an update on what is happening. Last week I received the results of both my latest PET scan and CAT scan. I am now considered to be in remission. Yahoo!!.All of the prayers that you offered were heard. Now, I can look forward to putting my energy into getting better. I am now volunteering once a week at the Cancer Center where I received treatment. Now, it is as a worker for the American Cancer Society working with new patients. When you have Been there, done that, it is much easier to talk to someone about their concerns or questions. I am contemplating some other volunteer activities and also some work with my last employer as a volunteer. I do not have any more tests for several months, but will keep you informed of any changes. On behalf of all of Team Hammond (Mike, Jill, Joel and Janel) I want to thank you for your thoughts, prayers, emails, calls and cards, they all meant a great deal to us. God bless each of you and well be talking to you soon. All the best, and all our love, Team Hammond 01_tile.jpg01_side.gif
Re: [TMIC] Anyone Remember Jude?
Hello, Jude, dear...so wonderful to have you back, again. Please take care of yourself?? Hugs and loves..Jeanne ---Original Message--- From: Jude Hoops Date: 5/28/2010 11:14:01 PM To: tmic-list@eskimo.com Subject: [TMIC] Anyone Remember Jude? Hello Friends-Old and New, I have missed you all so much! As like most of you, I have been battling TM and other illnesses like MS, with all of the problems that go with it. It is no fun...and that's not what kind of email this is intended to be. Sorry I still have no picture to post, but promise to look for a decent one tomorrow. I know I have one or two decent ones laying around. 01_tile.jpg01_side.gif
[TMIC] Re: [Transverse Myelitis Support] Re: Fw: Rough day yesterday
Rose, I, too, am so sorry for all you and your family are going thru.
Please know that you are in our thoughts and prayers. With this group, you
have many friends that love you very much..Jeanne
---Original Message---
From: LaurieW
Date: 05/28/10 17:50:26
To: transversemyelitissupp...@yahoogroups.com
Subject: [Transverse Myelitis Support] Re: Fw: Rough day yesterday
Rose,
I'm truly sorry you and your family are going through such a hard time now.
I'm praying for you all and that you will have the strength you need to get
through this. Its truly amazing what docs can do these days. The pig parts
are used in heart valve replacements too and worked wonders for a friend of
mine so have faith. I called my aunt whose prayer group is large,strong and
accomplished many wonderful things in the past. They will be praying for you
as well. Please keep us updated. Hugs,Laurie
--- In transversemyelitissupp...@yahoogroups.com, Rose Nedved rosened...@..
wrote:
--- On Thu, 5/27/10, Rose Nedved rosened...@... wrote:
From: Rose Nedved rosened...@...
Subject: Rough day yesterday
To: DEVICS SUPPORT devics-supp...@gogglegroups.com, kathy
kathy1...@..., diane alaskadutch...@...
Date: Thursday, May 27, 2010, 3:48 PM
Hi all,
Yesterday was a tough one. My mom and my husband both had surgeries at the
same hospital yesterday. Hubby had a large tumor on his bach next to his
shoulder blade and my mother had to have her bladder rebuilt. { no Dave we
did not use Lego's or Lincoln logs}
They acually use pig parts. Wow technology has come a ways. Ed had an
outpatient
surgery but had complications so we stayed till after 8 last nite. Mom was
in pre-op room 8 and Ed was in pre-op room 10. Ran back and forth all day.
14 hours on the go. Way to much. Fell into bed at 10:30 last nite and did
not wake up once. Slept 8 hours straight.
Ed has a drain in his shoulder so I have to change his tube every few
hours. Mom has a suspious growth in her bladder. Please pray for them that
it is not the big C-word. Ed's doc thought it would be a simple removal but
had to take alot more out than anticipated. Now I have to pay the piper his
due today. I don't know how the Tm-ers can keep going and going. The
strength must come from within.
Praying for all,
Rose
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Re: [TMIC] Newly Diagnosed and Need Guidance
Hi, Ruben, We do welcome you with arms wide open and at the same time are sorry that old TM hit you. You will find a wonderful group of very caring people that you can share with when you need help. The only thing I can think of is to get right down to the DSHS and talk to them. I think you will get some help and shouldn't have to wait long. They can help with your medical plus food and misc. things, I would think. Please keep us posted on how you are doing. Jeanne ---Original Message--- From: Towery, Ruben Dale Date: 5/28/2010 6:16:21 AM To: tmic-list@eskimo.com Subject: [TMIC] Newly Diagnosed and Need Guidance Hello everyone, I was just wondering if anyone out there knows if there is any foundation or organization that can help people financially with TM. I was diagnosed about 6 weeks ago, and my medical bills are piling up and with 4 children and a wife, it is starting to really take a toll on my family. Just wanted to reach out to everyone and see if there was anything out there to help. Also, I also wanted to ask the question to everyone out there is anyone else has experienced other problems besides TM, ie. chronic upper back pain, memory loss, confusion, etc... The reason I ask is I have been dealing with chronic upper back pain for a couple of years now and I am having a lot of mental problems as well, ie. a lot of anxiety, paranoia, depression, and a lot of emotional outbursts. All of this happened before I had my TM attack. Love this support group, really has given me some hope that I can go on and deal with everything. Thanks everyone in advance for your help. Ruben Mount Olive, AL
[TMIC] Re: [Transverse Myelitis Support] I NEED YOUR PRAYERS TONIGHT!!!!!!!!!!!!
It is done, dear one..Jeanne in Dayton, WA ---Original Message--- From: calltheshots_55 Date: 5/26/2010 8:10:15 PM To: transversemyelitissupp...@yahoogroups.com Subject: [Transverse Myelitis Support] I NEED YOUR PRAYERS TONIGHT I NEED ALL OF YOU TO JOIN TOGETHER AND PRAY FOR ME TONIGHT. I HAD A MRI TAKEN YESTERDAY OF MY CERVICAL AND THORACIC REGION. I HAD A FEW NEW SYMPTOMS---NUMBING OF THE FINGERTIPS. PLEASE REMEMBER ME TONIGHT. I ALWAYS REMEMBER MY FRIENDS ON HERE--GOD BLESS YOU ALL. I GET MY RESULTS BACK TOMMORROW. BLESS YOU, AMY __._,_.___ Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (1) Recent Activity: New Members 1 Visit Your Group MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. Get great advice about dogs and cats. Visit the Dog Cat Answers Center. Hobbies Activities Zone: Find others who share your passions! Explore new interests. Switch to: Text-Only, Daily Digest Unsubscribe Terms of Use. __,_._,___ 01_tile.jpg01_side.gif
Re: [TMIC] alive
Another good one, Bernie!! Well said...Jeanne in Dayton, WA ---Original Message--- From: Bernard Pelow Date: 5/20/2010 7:32:31 PM To: j ra Subject: Re: [TMIC] alive Hi J Ra, My name is Bernie, I don't write often anymore; but I KNOW what you are going through. The pain and all of it. I live at a pain level between 5 and 9 most of the time, unbelievable muscle spasms, the ice picks, the electrical shocks, th ehot and cold, and numerous other sensations, and it has been this way for nearly 20 years now. In the beginning it took me 3 years and the help of my daughter to see what I was doing to myself as well as others. PLEASE don't take that long! I also was a very active person in sports, I was a firefighter and paramedic, took my kids fishing, camping and all of that. TM took all of that away, but with the help of my children, friends, the TM list, and doctors, I have a life now; not just an existance. It all ends up to be that the little things mean the most I have found. If you are ableto scuba, etc. by all means do it! I cannot because of my pump. But I found the little simple things mean so much more now than ever. Just snuggling next to my daughter and watching a movie gives me more joy than jumping out of a plane, or any of the other things I used to do. Pushing people away only hurts you and them, but you need to decide which lifestyle is right for you and invite them to join you in it for you, not for what you think they want or need. When they love you, it doesn't matter what one is doing, as long as it is done togetherand with love. Hope this helps you a little... Namaste, Bernie in Texas 01_tile.jpg01_side.gif
Re: [TMIC] tmic-alive
Thanks for sharing, Cheryl. I went for 4 1/2 years of the constant banding pain from 7 on down. My daughter finally talked me into going to our local chiro who used two different vibrator/machines on me plus laser and when I walked out that first day, the band pain had lessened to where it felt just like the pressure of a bra. I go twice a week and am so thankful to have found him. Because of the way I walk, he also needs to adjust my back off and on. I knew my neck had been out since my twenties and he picked right up on that, too! Medicare plus my supplemental pays for all of it. Jack and I don't ask 'how', we are just thankful our daughter is as stubborn as her mother!!! I haven't given up on the Lyrica and Tramadol for the pain and neuropathy and Ibuprofen for the breakthrough pain but whatever he does is a welcome relief!! Jeanne in Dayton, WA ---Original Message--- From: rn11...@yahoo.com Date: 05/21/10 14:02:15 To: tmic-list@eskimo.com Subject: [TMIC] tmic-alive Hi, I was not fit and not active outside of work,but I still miss my life before tm.Just being without the constant band around my trunk,not being numb (for the most part) from T4 to toes,able to walk more than 50 feet without my strong leg giving out. I worked at a well paid job,drove a car had a life. Now I'm stuck in the house unless someone takes me out. Then I suffer for days after going out. I miss my old life a lot,even after almost 15 yrs. But,I have family that love me,friends and neighbors that care. Plus,I get to read as much as I want-about 4 mystery novels a week. I also can watch tv,eat,and sleep whenever I want. I'd say my life is mostly pretty good. I know it could be a lot worse. Cheryl in Easthampton,MA. 11.jpg
RE: [TMIC] alive
One of my dreams, Jeron, is to learn how to scuba dive!! The water is amazing with TM, isn't it? Jeanne in Dayton, WA ---Original Message--- From: j ra Date: 5/21/2010 4:24:09 PM To: Transverse Myelytis Subject: RE: [TMIC] alive Hey everybody, When I started this post, I sure as hell wasn't expecting the can of worms that I opened up! I got what you all said about me being selfish and trying to go it alonepushing my wife away and all that. When I came to the Caribbean it was for two reasons. 1. I needed to learn to deal with this thing of ours called TM, but away from everyone who knows me. I did this because I wanted to see myself in the mirror again and not the person that everyone feels sorry for because I have TM. So I moved here for a litttle while just to get some me time. I am not pushing my loved ones away, like most of you thought. Truth be told, my wife fully understands why I wanted to be alone. 2. I am trying to relive my past. I am trying to push myself to do the things I loved to do even though I have TM. I know there is no way anyone of my loved ones are approving of this and are all worried about me going off into the deep blue sea or jumping out of a plane like I used to, so it's better if I do it when they can't see me do it and all be worried. So today was my first dive in years and for the first time since I had TM, I forgot all about it. My legs didn't hurt, my back was like brand new and it was amazing. Of course I got a little help from a 6 knot current to do most of the work under water for me (it's called a drift dive), but it was amazing. I did it! Adrenaline pumped through me for 32 amazing minutes and I felt alive again. I'm in all craploads of pain right now, but it was so worth it. Next stop, zip-lining in St. Lucia and Sky diving in Martinique. I know I'm in for some serious pain, but I think I'm slowly remembering the good days. My goal is to remember those days and replace the bad days. I called my wife and told her I loved her and she said she was proud of me for taking the step to regaining some control of my life. So, now.It feels great to be in painthis time it was worth it. Thanks everyone for all the emails and all the support. I love you guys very muchyou are my family! Jeron Hotmail: Trusted email with Microsofts powerful SPAM protection. Sign up now. 01_tile.jpg01_side.gif
Re: [TMIC] alive
Good luck, Gracie!!! Jeanne ---Original Message--- From: Jan Hargrove Date: 5/21/2010 6:22:59 PM To: Grace M.; tmic-l...@eskimo.net Subject: Re: [TMIC] alive Grace, have you looked into therapeutic horseback riding? We've two such stables in our small town. I think it first was shown to help MS patients, but now they're using for many disabilities. Our schools use them for students which shows it must be worthy or schools couldn't afford to send them! One of our members volunteered at a place in Australia, I think! His name will come to me just as I press send!! (I remember his wife is Mavis) TM/SR moment!! janh ***or ride a horse. Have I adjusted? For the most part, yes, but as I mentioned there are still some very dark days. We're all human. Gracie 01_tile.jpg01_side.gif
Re: [TMIC] Cymbalta Lyrica
Could not agree more!! Jeanne ---Original Message--- From: Robert Pall Date: 05/19/10 07:14:21 To: tmic Subject: [TMIC] Cymbalta Lyrica I have officially returned to Cymbalta after stopping it cold turkey (Neuro said no problem) and after 5 days having the banding and pins and needles go off the chart I returned to the Cymbalta and I now feel myself again (not good but at least the same as before). Therefore when a Dr. tells you that Cymbalta Lyrica do the same thing and therefore there is no need to take both .I say..NUTS ..the combo does work ..maybe it is time for many if not all neuro's to admit how little they know about TM. Rob in New Jersey newimage.jpg
Re: [TMIC] a lot of discussions going on
Great info, Patti!! Thanks! Jeanne in Dayton, WA ---Original Message--- From: pjv1...@chartermi.net Date: 05/18/10 07:41:54 To: tmic Subject: [TMIC] a lot of discussions going on Great discussions going on: LYRICA I took 1800mg Neuronton, then 2400mg, then switched to Lyrica because the neurontin took too long to work and stopped before my next dose. The Lyrica works faster and steadier at 100mg / every 8 hrs. My Neuro suggested this switch when I complained of the few hours of relief I was receiving from the Neurontin. CYMBALTA I also take 60mg Cymbalta daily. I need it for it's antidepressant qualities and get the added benefit of additional neuro pain relief. It has given me problems with brain zaps that dissappeared after I tried to stop taking it and then went to back on the regular dose. My Neuro switched me from Effexor to Cymbalta at my request. BACLOFEN 10mg every 8 hours for muscle spasms and banding. This med is what allows me to move. My muscles are too constricted without it, but if I take too much I look like a slobbering drunk. I cn take it at 6 hrs if I;e over exerted and my muscles are tightening too much. MEDICAL MARIJUANA - MERINOL I voted for it in Michigan and the vote passed. I don't expect to ever use it for personal reasons, but I think it should be available for those who need it. Our pharmacist said Medical Marijuana wasn't needed, because Merinol works exactly the same. Well, we all know from our own experiences that nothing works the same for everyone so if you need it, so be it. NEURO VS. PRIMARY DOCTOR I found a doctor who heard of TM so I didn't make a Neruo appointment at my six year anniversary in November. However, I also haven't needed any drug changes. It will all depend on how the PCP works with me if I request a chane in meds. TMIC List Both my Neuro and PCP encourage me to learn all I can from this terrific group and pass that info on to them. They don't claim to be know-it-all's when it comes to how bad the pain can get. Patti - Michigan 01_tile.jpg01_side.gif
Re: [TMIC] Cymbalta Lyrica
Thanks, Rob. I know Cymbalta also helps with the pain but I feel 'dull' when I take it, meaning I feel like I'm dragging and no energy. They now have a generic which helps with the cost but haven't heard anything about how it works compared to the name brand. I use the Lyrica and Tramadol together and that seems to really help with the pain but that 'band' pain sometimes takes over and even those two can't help it. Since I've gone to the chiro, I have had tremendous relief with the banding pain. ??? Jeanne in Dayton, WA (5 years May 20) ---Original Message--- From: Robert Pall Date: 5/18/2010 7:00:20 AM To: tmic-l...@eskimo.net Subject: [TMIC] Cymbalta Lyrica I mentioned last week that I went to a new Neuro in New Jersey and he recommended that I stop Cymbalta (cold turkey) wait a couple of weeks and start on Neurontin. His reason was that I am already on Lyrica and Cymbalta does the same thing so I was just supposedly doubling up. Anyway it has been a week since I stopped the Cymbalta and I have started getting terrible banding in both legs and especially around my trunk area. Doing my own test I took a Cynbalta and within a few minutes I started feeling better again. It now appears obvious to me that somehow or other the combination of Lyrica and Cymbalta was working for me and I plan on going back on it. I would appreciate feedback by members who take both of these drugs and how they have helped them. In addition on top of these 2 drugs should I consider the Neurontin to further reduce the banding? Rob in New jersey 01_tile.jpg01_side.gif
Re: [TMIC] health stuff
I haven't, Kevin. I'm sure glad the SX are gone! :) Jeanne in Dayton ---Original Message--- From: Kevin Wolfthal Date: 05/15/10 22:07:36 To: tmic-list@eskimo.com Subject: [TMIC] health stuff Hi All, Well, this has been a weird week for me re: health. Tuesday night I started getting severe diarrhea. Shortly after that my tongue started tingling and going numb, then my lips. This continued wednesday, but I had a nurse coming to visit me to check on bedsores on wednesday. She looked at my mouth but didn't feel the numbness was an emergency. By thursday the numbness was getting worse so I took an ambulance to the ER. They checked everything, blood, heart, liver, kidneys, ct-scan of brain, found nothing wrong. Said it could be related to my reflux and possible reaction to meds and OTC stomach meds I take. Also suggested it could be exacerbation of TM symptoms. Finally, maybe emotional causes. In any case, the weird numbness is gone and I'm thankful. Has anyone else had their tongue/mouth go numb? Hope everyone is doing well as possible. Kevin 01_tile.jpg01_side.gif
[TMIC] Re: [Transverse Myelitis Support] Anniversary.................
Mine is in 9 days, Bonnie, and it will be 5 years! Jeanne in Dayton, WA ---Original Message--- From: bonnie_17552 Date: 5/11/2010 10:30:24 AM To: transversemyelitissupp...@yahoogroups.com Subject: [Transverse Myelitis Support] Anniversary. Tonight at 9:45 is the 11th Anniversary of my attack, OH BOY something to look forward to... it scares me. Hope you all are doing well. Hugs, Bonnie __._,_.___ Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (1) Recent Activity: Visit Your Group MARKETPLACE Stay on top of your group activity without leaving the page you're on - Get the Yahoo! Toolbar now. Get great advice about dogs and cats. Visit the Dog Cat Answers Center. Hobbies Activities Zone: Find others who share your passions! Explore new interests. Switch to: Text-Only, Daily Digest Unsubscribe Terms of Use. __,_._,___ 01_tile.jpg01_side.gif
[TMIC] Re: [Transverse Myelitis Support] JOHNS HOPKINS
Did Dr. Kerr go to CA? I heard he was leaving JH. Gunny will know!! Jeanne ---Original Message--- From: CANDIS KALLEY Date: 3/28/2010 10:11:58 PM To: transversemyelitissupp...@yahoogroups.com Subject: Re: [Transverse Myelitis Support] JOHNS HOPKINS Amy I went to JH about 10 months after dx'd with TM.I saw Dr. Kerr but he is no longer there. They still have the departent and I'm sure that the people worked many years with Dr. Kerr. Dr. Greenbe rg, who worked with Dr. Kerr, is inTX. Here's the website for JH http://www .hopkinsmedicine org/neurology_neurosurgery/specialty_areas/transverse_myelitis/conditions/ Dr. Greenberg http://www.utsouthwestern edu/patientcare/doctor/findphysician/profile/0,0 105091_Dr_Benjamin_Greenberg_MD,00.html Dr. Kerr ran the same tests as I had here and he checked me and dx'd TM also along with Sjogrens. Dr. Kerr did up my Tizanidine (Zanaflex). Hope the info helps. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: calltheshots_55 calltheshots...@yahoo.com To: transversemyelitissupp...@yahoogroups.com Sent: Sunday, March 28, 2010 10:14:07 PM GMT -05:00 US/Canada Eastern Subject: [Transverse Myelitis Support] JOHNS HOPKINS I need to go to a doctor about a second opinion. Do you think I need to go to Johns Hopkins? Has anyone had any luck going to this hospital? What are the steps in being seen there and what do they do? I need your input. Thank you so much!! Bless you, AMY [Non-text portions of this message have been removed] __._,_.___ Reply to sender | Reply to group | Reply via web post | Start a New Topic Messages in this topic (2) Recent Activity: New Members 1 Visit Your Group Switch to: Text-Only, Daily Digest • Unsubscribe • Terms of Use. __,_._,___ Untitled-1.gif
Re: [TMIC] OT My Mom
Your TM family is here for you. Jeron Thank you, Jeron, for sending your note. It is so true. Jeanne
[TMIC] Re: [Transverse Myelitis Support] Insurance Coverage for Pre-existing conditon TM
Who is this thru, Carol? Is it very expensive monthly? Jeanne in Dayton, WA
Re: [TMIC] OT Hospice
I wish we could take the hurt away, Kevin. Mom's are pretty special. Maybe she is just so tired and that is why she is refusing everything? Jeanne in Dayton, WA
Re: [TMIC] Myelin Regeneration
Welcome, Iris! I think you will find each one of us is different with our TM but we all have one thing in common and that is we have found a wonderful, caring group of new friends that help and support each other. Each of our TM stories are different but many similar in that when it actually 'hit' us, there was a lot of confusion and mismanagement. Many of us have gone past the two year mark and are still making improvements even if it is an inch at a time! Good attitude and 'never give up' are a couple of the most important things to hang on to. Again, welcomeJeanne in Dayton, WA :)
RE: [TMIC] Re: Hope
Do they have Shriner's or have they called them because they will always help when it comes to a child. Also, St. Judes. Gosh, it would be wonderful if one of them would come thru for her!! Jeanne in Dayton, WA ---Original Message--- From: j ra Date: 3/12/2010 3:45:15 PM To: jan...@centurytel.net; j.d...@shaw.ca; Transverse Myelytis Subject: RE: [TMIC] Re: Hope Hi everyone, I have to ask a favour. This is a case that I'm personally getting involved with and I need some help. It's a pediatric case and I need some advice as to the best place for the child to receive care. Please read the article. FULL STORY Paralysed girl needs $1.9m for surgery Julien Neaves jnea...@trinidadexpress.com Monday, March 8th 2010 SERIOUS CONDITION: Christa Brumant at her home in Tunapuna last week. -Photo: ANISTO ALVES ON SEPTEMBER 19 last year then nine-year-old Christa Brumant awoke at about 6 a.m. with terrible abdominal pains and was taken to hospital. Five hours later Christa was paralysed from the waist down. She said mummy I cant walk, her mother, Ramona Eligon, recalled. Christa spent 47 days at Mt Hope Paediatric Hospital where doctors diagnosed her with a condition called transverse myelitis, a rare neurological disorder caused by inflammation of a segment of the spinal cord. Her family is attempting to raise $1.9 million for medical treatment and rehabilitative therapy at the Johns Hopkins Hospital and the Kennedy Krieger Institute in Maryland, USA for May 4. When the Express visited their Tunapuna home last week, Christa, now 10, was sitting in the wheelchair that she has been confined to since September. She was checking out a Barbie Girls website and later raised her hands in triumph that she was a VIP on the site. She was not in any visible pain during the interview. Eligon said her daughter has no feeling from the waist down but suffers from painful muscle spasms daily, at times so severe that she would stiffen and fall off the chair. Her other symptoms include daily headaches, back pain so severe that it keeps her awake for hours, nausea and acute bladder and bowel dysfunction. Eligon is extremely worried that her daughter is unable to defecate for days sometimes, which could lead to a build-up of toxins and further complicate her medical problems. She said if her daughters condition remains untreated paralysis could become permanent and in a few cases transverse myelitis has been fatal, travelling to the upper body and paralysing the heart, lungs and other vital organs. The family has been able to raise $35,000 so far and has applied for the Health Ministry medical grant of US$10,000 for children requiring medical treatment abroad. The Education Ministry has provided a personal aide to assist Christa as she attends classes at Tunapuna Girls RC, and her mother noted she is an A pupil. Eligon has had to take leave from her job as an administrative assistant to help care for her daughter and was thankful for the support of her husband, Evris. To help raise funds the family is hosting a cruise on March 26 aboard the Treasure Queen and An Evening of Elegance on May 1. For more information call 777-5080 or 395-5727. I really convinced that if everyone in the country opens their hearts and makes a small contribution not only my daughter can be helped but others needing assistance can be helped. As the Express left the home, Christa wheeled herself outside, smiled and queenly waved good-bye. From: jan...@centurytel.net To: j.d...@shaw.ca; tmic-list@eskimo.com Date: Thu, 11 Mar 2010 08:50:25 -0600 Subject: [TMIC] Re: Hope Love to hear that stuff!!! Janice From: Janet Dunn Sent: Thursday, March 11, 2010 12:36 AM To: 'Janice Nichols' ; 'tmic' Subject: Hope I did forget to mention something: my right leg/foot has been the afflicted one. The one that I struggle to make move. The one that causes the pain. I thought it would be forever. One day as I was listening to the radio, I had an aha moment. A wonderful catchy song was playing, and I looked down and saw that my foot was tapping in time to the music. I had not been able to do that for a long time. I could have cried. So yes, never give up. The positive changes are sometimes such a part of our life that we fail to recognize them for what they are. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: March 10, 2010 7:28 PM To: Janet Dunn; 'tmic' Subject: Re: [TMIC] Lesions and Myelin Regeneration DITTO, Jan!!! Janice From: Janet Dunn Sent: Wednesday, March 10, 2010 12:06 PM To: 'tmic' Subject: RE: [TMIC] Lesions and Myelin Regeneration I think that the improvement happens. For everybody? Depends. I have found a few improvements in areas, and some worsening in other areas. I take it one day at a time, because as we all know, anything can and usually does happen. But I drag my leg less now, and the intense banding eases up more readily. So I remain
[TMIC] Re: [Transverse Myelitis Support] life sure can bite you in the butt!
Reading your notes sure does pull some heart strings! We have four dogs and a cat, all spoiled rotten. We live in the woods so it isn't an issue with this many pets and pets they are. Our little one is a Shih-tzu (sp?) which we've have for about 17 years and is healthy as can be other than being deaf and having cataracts but we know the time is coming where we're going to lose him. He goes around the house several times a day always trying to find me and then lays by my feet. The others are labs which are wonderful and do they ever love us!! Yes, they couldn't be love more by us, either. They give us joy and living with TM, they are also a beautiful ray of happiness. Jeanne in Dayton ---Original Message--- From: CANDIS KALLEY Date: 3/10/2010 11:33:24 AM To: transversemyelitissupp...@yahoogroups.com Subject: Re: [Transverse Myelitis Support] life sure can bite you in the butt! Michelle, so sorry about your 4 legged child. I've lost several in my lifetime and it's always so difficult - just like loosing a family member - the empty feeling, the longing to see and hold them, the mourning for life as it was. Each time it has taken me several months, even years, to add back to my life and get another child. Two years before my TM, I lost my cat of 11 years and then the next year my little dog, Maltese, - 8 months before my TM. When I got out of the hospital after my TM attacks, I really mourned for my dog - he always wanted to snuggle and seemed to sense when I needed him to snuggle. It took me 9 months but I got another Maltese puppy. He has been my therapy, physcially and mentally. Regarding your increase in sympto ms, m ine increases with stress, over doing, being too tired, illness, being too cold or too hot and at times for no reason that I can identify! TM life has a life unto its own! When I go to the store for groceries or get prescriptions or what ever, it takes me a day or two to get back to normal. Moving is VERY stressful even though the move is wanted. You are probably doing more physcially than usual and worrying and fret, even though you don t realize it, which will make your body react in ways as never before. Do see your doctor but your symptoms may be your body trying to tell you to take time to smell the roses and spend some time to let it rest and just be ! I do hope that life gets more quiet and more relaxed and better for you real soon. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Ginger Jerez luvznush...@yahoo.com To: transversemyelitissupp...@yahoogroups.com Sent: Tuesday, March 9, 2010 5:33:04 PM GMT -05:00 US/Canada Eastern Subject: Re: [Transverse Myelitis Support] life sure can bite you in the butt! Dearest Michelle, i am sooo sorry to hear about your furry child, i too am mom to a very old companion dog. my heart just breaks for you and your family. i am sure this evening will be rough for all of you. i will say extra prayers for y,all. plz chek yourself over for any signs of infections or anything that could be causing your system to be a bit down...this is when i have the most weakness. i also suffer pain probs w/ collar bone,rt arm both wrists hands...dr says i have injured all these w/arms working too much to compensate for TM legs. this has also caused arthritis in these areas..did not have that b-4 TM. So sorry for your pain (emotional physical). God Bless, your friend, ginger --Original Message-- From: michellehooker66 michellehooke...@yahoo.com To: transversemyelitissupp...@yahoogroups.com Date: Tuesday, March 9, 2010 6:16:54 PM GMT- Subject: [Transverse Myelitis Support] life sure can bite you in the butt! I was just getting ready to go back to Utah to finish up our move and got a late night text from one of my sons. He told me our ten year old dog was unable to walk and could hardly stand. We thought he had a seizure so they crated him and kept him quiet. This morning he is not any better. He either had a stroke or a massive seizure that caused severe damage. My sons are taking him in to the vet at 3:00 to be put to sleep. I had planned to do it after I got back to Ut(I get back Sat.) I feel so bad that this happened before I could take care of him but we did not think he was sick just old. My oldest son(23) is the dogs special person and he is not taking this well at all. My health has ben a little unusuall lately. My hands have gotten weak and I have a hard time opening things and holding on to things. My shoulders also have started bothering me. I will be back in Ohio in 3 weeks and going to see my new Dr. Does anyone else have symptoms with their hands/arms/shoulders. Also My vision has really become blurry. My eyes were just checked 6 weeks ago and we did retinal mapping and they could
[TMIC] Re: [Transverse Myelitis Support] back
Sheila, I hope and pray your pain will go awayJeanne in Dayton
Re: [TMIC] re OT my Mom..update
Oh, Kevin, Please know our thoughts and prayers are with you and your Mom..Jeanne in Dayton
Re: [TMIC] OT Cell Phone
Hi, Candis!! I just read your e-mail about the cell phone, called them and am all set up! Thank you for the info! We've been talking about changing for a long time and just saw this ad a couple days ago but wasn't sure about it so your note encouraged me to call them!! No Contract which is wonderful!! Thank you, again!! Jeanne in Dayton, WA
Re: [TMIC] Lori and Barbara
No 'sorry's' needed, Iris! You are now surrounded with a wonderful group of caring, compassionate, and forgiving people who will do just about anything to help you whether it is small or large. Jeanne in Dayton, WA
Re: [TMIC] TM and Pilates
Well put, Janice Jeanne
Re: [TMIC] My exercise regime
Thanks, Gilly. You are such dear one...
Re: [TMIC] re OT Prayer Request
Kevin, not only will your Mom be in our prayers, you will, also. Hugs..Jeanne
Re: [TMIC] OT Prayer Request
In response to your beautiful words... My prayers will go up as a sweet smelling savor unto the Lord our God. I am praying for a full recovery of your mom. I am also praying that God will strengthen you in this ordeal. Look unto God and you will be ok, God promised He would never leave or forsake us Look up God's word hasn't come back void yet. Have a blessed night There is none so amazing as God Peggy Wilson How beautifully said, Peggy...Jeanne
Re: [TMIC] forwarding from Lynn Rose
Whew! I know I feel better now! Hugs...Jeanne in Dayton
Re: [TMIC] Yooo...hooo....TMIC Members, where are you?
Me, too, Rob. We need to create our own village somewhere there is warmth and sunshine with a nice breeze year round?? :)
Re: [TMIC] Yooo...hooo....TMIC Members, where are you?
Oh, yes...cold brings on the pain and so does the rain..Jeanne in Dayton
Re: [TMIC] Yooo...hooo....TMIC Members, where are you?
Good job you are doing, Janice!!! Jeanne
Re: [TMIC] February Birthdays
Thank you to all my wonderful, special friends!! How blessed I am...Jeanne in Dayton, WA
Re: [TMIC] The cold winter pain.
My gosh, the symptoms are so exact and painful. What a strange thing we all have. Jeanne in Dayton, WA
Re: [TMIC] Fw: Forget all other emails but this one!!!! MOST EFFECTIVE
This is not a political site! I am highly offended that this was posted on this site OT or not and has been going around for years. The dates have all been changed. I thought this site was for TM, OT in itself is bogus, but this is over the line. -Original Message- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, January 24, 2010 11:06 PM To: Ed; tmic-list@eskimo.com; Janice Rehmer Subject: [TMIC] Fw: Forget all other emails but this one MOST EFFECTIVE In response to the above: Actually Jan, we have had issues such as this one and religious issues also and I think a lot of us have come to the same conclusion that no one truly means to offend anyone at all. We also agreed to try to 'alert' us that it does not have anything to do with TM in order that we might delete it right away. We are human. We make mistakes. Most of us try to be kind, considerate, and compassionate people but sometimes we trip up and fail. Our site is not black and white and sometimes we find something that we feel strongly about to the point we want to share with our TM 'friends' and sometimes it is not the right choice but again, we are only human. That is where the 'delete' button comes inplease use it. I have and I'm sure some have very quietly used it when I've sent something they thought inappropriate. Thank you to those that did because I certainly did not mean to hurt or offend anyone at the time... Jeanne Rushton, Dayton, WA
[TMIC] Correction!! Forget all other emails but this one!!!! MOST EFFECTIVE
I guess this should have been addressed to Lori. Sorry, Janice!! Jeanne in Dayton, WA - Original Message - From: jrushton jrush...@columbiaenergyllc.com To: transversemyelitissupp...@yahoogroups.com; tmic tmic-list@eskimo.com Sent: Tuesday, January 26, 2010 12:24 PM Subject: Re: [TMIC] Fw: Forget all other emails but this one MOST EFFECTIVE This is not a political site! I am highly offended that this was posted on this site OT or not and has been going around for years. The dates have all been changed. I thought this site was for TM, OT in itself is bogus, but this is over the line. -Original Message- From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Sunday, January 24, 2010 11:06 PM To: Ed; tmic-list@eskimo.com; Janice Rehmer Subject: [TMIC] Fw: Forget all other emails but this one MOST EFFECTIVE In response to the above: Actually Jan, we have had issues such as this one and religious issues also and I think a lot of us have come to the same conclusion that no one truly means to offend anyone at all. We also agreed to try to 'alert' us that it does not have anything to do with TM in order that we might delete it right away. We are human. We make mistakes. Most of us try to be kind, considerate, and compassionate people but sometimes we trip up and fail. Our site is not black and white and sometimes we find something that we feel strongly about to the point we want to share with our TM 'friends' and sometimes it is not the right choice but again, we are only human. That is where the 'delete' button comes inplease use it. I have and I'm sure some have very quietly used it when I've sent something they thought inappropriate. Thank you to those that did because I certainly did not mean to hurt or offend anyone at the time... Jeanne Rushton, Dayton, WA
[TMIC] Re: [Transverse Myelitis Support] flying with wheelchair
Absolutely! Just check it in when you get to the airport and you can take it with you on the plane (they will store it for you) and any transportation driver will help you. They are all very helpful. Jeanne in Dayton, WA ENJOY!!!
Re: [TMIC] Life is too short
Good Girl...:) Jeanne in Dayton, WA
[TMIC] Chiro
Fiesta I know I have mentioned this before but I cannot believe how much better I feel after going to our chiropractor here in town. I began a couple months ago and it is unbelievable how he has helped me in reducing the pain. I am so blessed and thankful that my daughter almost pushed me to that first appt. or I would probably be curled up on the bed still in pure misery. Jeanne in Dayton, WAfieruled.gifNature Bkgrd.jpg
[TMIC] Re: [Transverse Myelitis Support] surgery after TM
I did, Laurie, and it went just fine and I had no problems afterwards, either. I actually didn't even need the IV pain med following the surgery since I have not feeling in the area where they did the surgery...Jeanne
[TMIC] Re: Transverse Myelitis Network Video
Greg's new video was absolutely wonderful..Thank you, Greg, for all of the hard work you put into it...from my heart...Jeanne
[TMIC] Re: [Transverse Myelitis Support] winter blues candis
One thing you don't have to worry about, Sheila, is appologizing to us for telling us your feelings, about your pains, frustrations, and sadness. If we aren't there right now, we have been. We care...Jeanne in Dayton, WA
Re: [TMIC] Linda's recurrent TM
From what I read and have studied, Barbara, you are right.. Plus the inflammation in the spinal fluid. Jeanne in Dayton, WA
Re: [TMIC] Some really comfortable shoes.
Same here, Janice...exactly the same!! Jeanne
[TMIC] Birthdays
HAPPY BIRTHDAY ALL OF YOU JANUARY BABIES!!! GOD BLESS YOU ALL! Jeanne in Dayton, WASuperStock_1196-107.jpg
Re: [TMIC] Today is the first day of the rest of our lives
God Bless You, Carol...j ---Original Message--- From: cjb...@aol.com Date: 1/1/2010 2:16:48 PM To: tmic-list@eskimo.com Subject: [TMIC] Today is the first day of the rest of our lives Greg your You tube video was wonderful and just what I needed this morning. I have just made it thru the most wonderful time of the year but without the most wonderful man in the world .I was sitting here on my computer looking at all the many pictures and videos I had taken of my Jim almost daily thru the 4 years he fought so bravely thru his challenge. He never gave up, he just would find a new way and work on it til he managed it. I decided to take a break for a bit and check email. I loved the video and especially the music accompanying it.It went by too fast tho, is there a way to slow it down so old eyes can read each page? I am hoping the New Year is a happy one for us all. Carol Belz SuperStock_1196-107.jpg
Re: [TMIC] Re: update on our son Daniel
One more miracle, Barbara... So good to read your note. Jeanne in Dayton, WA ---Original Message--- From: Barbara Alma Date: 12/31/2009 8:32:23 PM To: toddtm2...@sbcglobal.net Subject: [TMIC] Re: update on our son Daniel Hello Todd, and TMIC, as I think it's time for an update. Thanks for asking about our son Daniel. Daniel is doing well. He has been very busy keeping up with his exercises which are helping to improve his lung capacity. It's working and he's breathing so much better these days. He's not completely out of the woods, that will take some time, but he is really coming along well. We are very blessed - we know that! The power of prayer is so strong, he was really a very sick man and if he hadn't gone into the hospital when he did and hadn't been so healthy previously, it could have turned out to be a different story. Makes one really stop and take notice, that's for sure. Hugs, Barbara A in Auburn CA Hey Barbara A, So sorry to hear about your son, Daniel. Please keep us posted on his health. We'll be praying for you, your family Daniel. Hope he is doing better today, Hope you have a good Happy New Year, Todd in Corpus Christi, TX SuperStock_1196-107.jpg
Re: [TMIC] Merry Christmas
Merry Christmas to all of you dear people! Peggy, I am so glad you are okay and getting better. It is so nice to have you back!! God bless you all..Jeanne in Dayton, WA ---Original Message--- From: pwi1991...@aol.com Date: 12/24/2009 5:23:47 PM To: tmic-list@eskimo.com Subject: [TMIC] Merry Christmas I want to wish all of you a very special Merry Christmas and a blessed and prosperous New Year. I have not signed on in a while. I am recuperating from a Free-Way rear end collision. God truly blessed me, I am doing much better. I had a serious whip lash going to the chiropractor (3) times a week over all doing good.May God bless and keep all of you. There is none so amazing as God Peggy Wilson SuperStock_1196-107.jpg
Re: [TMIC] asking for prayers
It is done, dear Barbara..Jeanne in Dayton, WA ---Original Message--- From: Jan Hargrove Date: 12/20/2009 9:43:43 AM To: Barbara Alma; tmic-list@eskimo.com Subject: Re: [TMIC] asking for prayers Barbara, My prayers go out to your son and all your family, just know he's getting the help he needs. Please keep us updated on his condition. Hugs, janh Stillwater, OK From: Barbara Alma balmat...@aol.com To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:55:18 PM Subject: [TMIC] asking for prayers Our son Daniel was admitted into the Intensive Care Unit of the hosital yesterday with complications of the flu. He has been sick for two weeks, and has had 4 different visits to the E/R and doctor's offices during that time. The first visit to the E/R he was dehydrated and had chest x-rays, and it looked like something was starting in one lung so antibiotics were started then. At that time the doctor said that if he had waited another day it would have been pretty bad, but it looked like they caught it before any complications. After 6 days he went into a doctor's office in town when he was having some difficulty breathing. He now had pneumonia in both lungs, had a breathing treatment and another antibiotic. Then he had a return appt for that Friday He went in on Friday and they administered some oxygen and referred him to a pulmonary specialist at the hospital, so he went there and they did more tests and he now he was dehydrated again which caused blood clots in his lungs and in one leg. He's getting lots of breathing treatments, oxygen, blood thinners and doing a bit better tonight. They had all told him to go to bed, get lots of rest and get lots of fluids. So, he did! He did nothing else. Needless to say I'm scared! I am not an overly religious person, but I am a spiritual person who believes that prayers are very powerful. For those who believe in prayers and who do pray, can you please add my son to yours? I would appreciate it so much. Hugs, Barbara A in Auburn CA SuperStock_1196-107.jpg
Re: [TMIC] Nerve Pain
Yes, Janice, and Kevin, I'm sure most of us can relate exactly to what you both say. The pain never seems to go away but oh, when it gets bad it is really bad.. I explained mine like the pain of the worst burn I've ever had. It gets so bad it almost makes you not want to breathe for fear of making it worse.. Jeanne in Dayton, WA ---Original Message--- From: kevin weilacher Date: 12/20/2009 8:17:50 AM To: Janice Nichols; tmic-list@eskimo.com Subject: Re: [TMIC] Nerve Pain Janice, My nerve pain runs from where my lesion is (L4,L5 and S1 which is right at the tailbone) all the way through my butt and down through the back of both of my legs down to my knees. The pain in the tailbone area is a real bad burning sensation and then when it gets down to the backs of my legs, it feels like my skin is literally being ripped apart. There are times when I will feel the backs of my legs with my fingers, just to check to make sure there isn't an open wound there because the sensation is so strong. The colder the weather also makes the sensation stronger and also in the summer if I have been outside doing any kind of physical activity. There are times that the sensations are so bad that I can't even lay on my back in bed because I can't stand having the backs of my legs or my butt touching the sheets and most times it is hard just to sit in a chair for any longer than a few minutes at a time and when I am sitting I don't sit flat on my butt, I have to sit cocked over to one side or the other. Does it get bad enough to get me down..?Short answeryes. Kevin Weilacher N.E. Ohio (Canton) From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Sat, December 19, 2009 11:14:35 PM Subject: [TMIC] Okay, I have another question. When we talk about nerve pain, are we all talking about from top of back thighs down to bottom of calves? Or do you all have some other areas that are affected?Does it ever get bad enough that it makes you all down? Mine will do that-like a knife tearing down the leg. I just wondered if we all felt the same thing in the same areas. Janice SuperStock_1196-107.jpg
Re: [TMIC] I love you guys
You, your family, and Dan are welcome as sunshine. We may not have the answers but we do have the love and support that has no end. Merry Christmas, dear ones...Jeanne in Dayton, WA ---Original Message--- From: Barbara Alma Date: 12/20/2009 6:50:35 PM To: tmic-list@eskimo.com Subject: [TMIC] I love you guys I just came on to TMIC and am overwhelmed at the show of support by my family here. It is so heartwarming to see how many have came on and offered up support and prayers for our family at this time. We were told this morning that Dan will be in the hospital for about a week, and that he should be fine, but it will take a while for him to recover from this. We can be patient .. although it is hard watching him go through this. Again, thank you all and I cannot express how much this means to me. Hugs, Barbara A in Auburn CA SuperStock_1196-107.jpg
Re: [TMIC] Lynn Rose is in the hospital
Well put, Todd, and Bill, our prayers for Lynn and all of you going thru these tough times. Merry Christmas to you all. Jeanne in Dayton, WA ---Original Message--- From: Todd Tarno Date: 12/16/2009 2:31:59 PM To: roseofr...@aol.com Cc: TMIC Subject: Re: [TMIC] Lynn Rose is in the hospital Hey Bill, Thanks for the update on Lynn. Please let her know that we'll are praying for a speedy recovery feeling better soon. This makes for a new meaning of All I want for Christmas is my two front teeth. to All I want for Christmas is my stint. Hope Ya'll have a wonderful Christmas, Todd in Corpus Christi, TX --- On Wed, 12/16/09, roseofr...@aol.com roseofr...@aol.com wrote: From: roseofr...@aol.com roseofr...@aol.com Subject: [TMIC] Lynn Rose is in the hospital To: tmic-list@eskimo.com Date: Wednesday, December 16, 2009, 12:06 PM Just a quick note to report that Lynn is in the hospital - she had a heart attack on Monday because of blockage in the branch feeding the back of the heart. They did an immediate heart cath and placed a stint. Lynn is doing better and is scheduled to be released Thursday. There was some doubt to a Thursday release because of a rise in her temperature yesterday - now back to normal. Thanks in advance for your prayer support - she loves and appreciates you all. She should be the next one you hear from, the Good Lord Willing. Thank You God Bless ~ Bill 608-1041A.jpg
Re: [TMIC] Question
Hey, but I've been offered all sorts of things from the UK as in all sorts of big money and a girlfriend or boyfriend... Yikes j ---Original Message--- From: Kevin Wolfthal Date: 11/28/2009 10:35:25 PM To: alle...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] Question Thanks all. I would never order drugs overseas. The whole thing sounds like an oddball scheme. Kevin J92-331623.jpg
[TMIC] RE: [Transverse Myelitis Support] Happy Thanksgiving!!!
So funny!!! Thanks for sharing and I've never heard of 'dancing with the turkey' before! Is it an art that you have to learn??? Jeanne in Dayton, WA ---Original Message--- From: Laurie White Date: 11/27/2009 12:08:15 AM To: transversemyelitissupp...@yahoogroups.com Subject: RE: [Transverse Myelitis Support] Happy Thanksgiving!!! Dave, This am I showed my daughter and new daughter-in-law how to stuff the turkey They were of course grossed out by the giblets,handling raw meat in general so I showed them how I make the turkey do a little dance around the kitchen that has become my tradtion to m ake up for 3 days of prep and exhaustion so all the males can lay around and scratch while Grandpa whines for his pie. I guess it could be worse and I could put it on my head and dance around like Mr. Bean, but thought it might become stuck and then who would make the gravy? We just got back from the Dominican Republic where my son got married and met alot of nice Canadians. They sure do love the water polo, but it was a little to taxing for an old bag like me. Ginger, I'm sorry you are in pain but maybe next Thanksgiving your sister will get the turkey stuck on her head and you can tell her to hurry up! When I think back on all the years I worked,cleaned, shopped and cooked the gigantic meal, back to work the next day I realize how Tm has taken so much of my activity level away. Its too bad your sister can't walk a day in your shoes or have the compassion to imagine it. I'm exhausted ever since the wedding and can't imagine coping with Christmas. Maybe I'll convince my family to go out for dinner next yr! Hugs, Laurie --- On Thu, 11/26/09, Dave Evans edgech...@hotmail.com wrote: From: Dave Evans edgech...@hotmail.com Subject: RE: [Transverse Myelitis Support] Happy Thanksgiving!!! To: Transverse Myelitis transversemyelitissupp...@yahoogroups.com Date: Thursday, November 26, 2009, 4:05 PM Happy Thanksgiving to all my TM brothers and sisters in the US of A. If Canada joined you as the 51st state you'd have to say US of eh? I hope everyone has a pain free turkey dinner and all the stuffing you can stuff into yourself. Next week is the time to think about diets and fitting into your pants. I know some of us may not have much to be thankful for and I won't try to sugar coat it except to say if you try to soak up some of the joy from others it may help you and most of you know that getting through today is as far as you want to see. I'll be celebrating vicariously through y'all as we Canucks had our turkey day in October. Please don't get trampled in the pre-Christmas rush tomorrow and I love you all, of course a hug for all the ladies and a manly fist bump for the guys, Ray, Steve and John et al I'll be watching the Lions and the Cowboys and munching on a sliced turkey on rye with some sharp cheddar. Ginger, I know you'd never say this to your sister but I hope the next time she tells you to hurry up, tell her to hurry up and wait, Bitch! Dave Do you think when George W Bush pardoned his last turkey before leaving office, he wondered whether he might be the next turkey who needed pardonig? I'm just sayin. _ _ _ _ _ _ To: transversemyelitiss upp...@yahoogrou ps.com From: luvznushoes@ yahoo.com Date: Thu, 26 Nov 2009 07:36:37 -0800 Subject: [Transverse Myelitis Support] Happy Thanksgiving! !! Happy Thanksgiving! !! I hope all of my TM friends will have a Blessed day and I pray that God will give each of Ya'll a special Blessing today!!! I am in alot of pain today and will be staying home with my husband and youngest child...we'll have a nice small, easy to fix meal. Thanksgiving is after-all, not about the food but about the Thanks!!! We have a large family gathering planned for Friday. One in the late morning, with my folks and my brother and all of his kids and their kids, and all of my kids and grandchildren. Yeah for grandkids!!! ! One sister will be absent but I'll miss her kids more than her--sorry, a tacky moment there--plz forgive me. she thinks this TM is all in my head and tells me to hurry up while I'm walking with my walker :( ..oh well, we are used to that aren't we?)] Back on track now...I do think of you all and pray for you. I hope we can all enjoy the holiday and NOT get over-tired. May God Bless us all, Ginger _ _ _ _ _ _ Eligible CDN College University students can upgrade to Windows 7 before Jan 3 for only $39.99. Upgrade now! http://go.microsoft .com/?linkid= 9691819 [Non-text portions of this message have been removed] [Non-text portions of this message have been removed] __._,_.___ Reply to sender | Reply to group Messages in this topic (3) Recent Activity: New Members 1 Visit Your Group Start a New Topic MARKETPLACE Going Green: Your Yahoo! Groups resource for green living Parenting Zone: Your community resource for family and home
Re: [TMIC]
I think we're losing our TMIC family of friends!! Where is everyone??? You are too valuable to me and others and I need you and all of your knowledge. Facebook is good but it does not take the place of our TMIC...Jeanne in Dayton, WA :) ---Original Message--- From: L T CHERPESKI Date: 11/23/2009 11:29:07 PM To: tmic; Janice Nichols Subject: Re: [TMIC] Hi Janice - we missed you too. You're coming through just fine. Isn't it nice to have a new computer... Linda - Original Message - From: Janice Nichols To: tmic Sent: Monday, November 23, 2009 9:15 PM Subject: [TMIC] Hey Guys! We got a new computer and am not sure I am reaching you again. Would you mind sending me an email letting me know I am on with you all again? Sure missed you! Janice 111.gif
Re: [TMIC] pics
I sure don't! Didn't know you could do that! j ---Original Message--- From: alle...@aol.com Date: 11/24/2009 1:05:28 PM To: tmic-list@eskimo.com Subject: [TMIC] pics Does anyone know how to reset your password to post a picture? I want to update mine and the link said it would send me the ne I had but has not. Thank you..Ella J92-331623.jpg
Re: [TMIC]
HA!!! Not unless you have one! We just need to remember that we're in this together and I, for one, sure do need you all.. Jeanne in little old Dayton WA ---Original Message--- From: Ed Nichols Date: 11/24/2009 7:48:04 PM To: jrushton; L T CHERPESKI; tmic Subject: Re: [TMIC] I agree, it seems awful quiet. Do I have to come up with one of my questions? Janice From: jrushton Sent: Tuesday, November 24, 2009 1:08 PM To: L T CHERPESKI ; tmic Subject: Re: [TMIC] I think we're losing our TMIC family of friends!! Where is everyone??? You are too valuable to me and others and I need you and all of your knowledge. Facebook is good but it does not take the place of our TMIC...Jeanne in Dayton, WA :) ---Original Message--- From: L T CHERPESKI Date: 11/23/2009 11:29:07 PM To: tmic; Janice Nichols Subject: Re: [TMIC] Hi Janice - we missed you too. You're coming through just fine. Isn't it nice to have a new computer... Linda - Original Message - From: Janice Nichols To: tmic Sent: Monday, November 23, 2009 9:15 PM Subject: [TMIC] Hey Guys! We got a new computer and am not sure I am reaching you again. Would you mind sending me an email letting me know I am on with you all again? Sure missed you! Janice 111.gifCUCHAR~1.GIF
Re: [TMIC] Topamax
Also like a pot of wet spaghetti, Frank?? :) ---Original Message--- From: pjv1...@chartermi.net Date: 11/17/2009 6:31:04 PM To: Laurie Zissimos; fr...@franksheldon.com; Janice Nichols; tmic-list@eskimo.com Subject: Re: [TMIC] Topamax Great mental visual Frank. My hubby asked me what I was laughing at so I read him your entire post after explaining the discussion. We both have a clear picture of what is going on. Patti - Michigan fr...@franksheldon.com wrote: Greetings, Myeline grows back but in an unorganized manner so the nerves do not function properly. Myelitis refers to INFLAMMATION- as in ITIS. The MRI showed no abnormal signal meaning no inflammation. Think of a nicely folded pile of laundry in the hall, a 5 years old comes a long and pulls the pile over, makes tents out of the sheets then leaves. Photo of hall shows no boy (Inflammation) but does show everything messed up Hope that helps F 01.jpg01_header.gif
Re: [TMIC] chiropractor
Krissy, I'm on disability/Medicare and they cover my visits and the supplemental picks up the rest...if that helps?? Sure good to see your name on FB again! :) j ---Original Message--- From: Krissy Date: 11/15/2009 7:42:00 AM To: Barbara Alma; TM List Subject: Re: [TMIC] chiropractor truthfully I dont even know if they cover it, they cover so many secondary dr's I thought it might be an option tooI will look and find out ! ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Sun, 11/15/09, Barbara Alma balmat...@aol.com wrote: From: Barbara Alma balmat...@aol.com Subject: Re: [TMIC] chiropractor To: tmla...@yahoo.com, adis...@yahoo.com, tmic-list@eskimo.com Date: Sunday, November 15, 2009, 5:28 AM My insurance has never covered Chiropractic, and I didn't know that Medicare covered it. At least that is something to look forward to.. Thanks! Hugs, Barbara A in Auburn CA -Original Message- From: Krissy tmla...@yahoo.com To: Amanda Diskey adis...@yahoo.com; TM List tmic-list@eskimo.com Sent: Sat, Nov 14, 2009 10:11 am Subject: Re: [TMIC] chiropractor I have always loved a chiro, but havent gone in a while due to insurance.. (or lack thereof)...now that my medicare has kicked in it might be a good thing to go back... ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Thu, 11/12/09, Amanda Diskey adis...@yahoo.com wrote: From: Amanda Diskey adis...@yahoo.com Subject: [TMIC] chiropractor To: tmic-list@eskimo.com Date: Thursday, November 12, 2009, 3:14 PM Does anyone here use a chiropractor or know if it is safe? My shoulders and neck hurt so bad, and I was wondering if it might help me. the lady i talked to also does massage which i will definitely do, but i was wondering about the getting adjusted part. it seems a little scary to me though. any advice or thoughts? thanks amanda tiger.gif
[TMIC] The best Ford commercial ever - powerful! - please see my note?
I promise this is not one of those that jump out and scare you. I truly cried and got goose bumps.. Fabulous Ford Commercial It looks like Ford is, perhaps the only U.S. automaker that is not asking for a bailout or a handout at this time. They have now come up with a timely and heartwarming product commercial that would make Henry Ford proud of the company he founded in 1903. To be completely honest you may want a Kleenex tissue nearby while watching this. Very special indeed! http://www.richhumor.com/wp-filez/PerhapstheBestFordCommercia.wmv
Re: [TMIC] Update 5
What a wonderful friend and family you are! Just love hearing from you and you are still in my prayers which couldn't be any better for getting you better. You Hammonds are something else! Jeanne in Dayton, WA ---Original Message--- From: Jill Hammond Date: 11/7/2009 2:30:56 PM To: Anna Jim; Annie; Becky Steve; Beth Greg; Bob Beverly; 'Boyd ; Carole Matteson; Char Brower; Cheryl Hammond; Cindy Dunn; Craig Candi; 'Craig Fiore'; fi...@dhs.gov; David Brooks; 'David Gay'; Denise Pam; 'Earl Fordham'; Elaine Boos; Eric Eri; Fred Susan; Gil Mari; 'James Fulmer'; Jan Hlavaty-LaPosa; Jim and Bobbi; Johanna; Judy Karl; Keenan; Kendra; Lenny Lisa; Lisa; Lynn Jade; Mari Gary; marie swanson; 'Mica Ward'; Mike Nancy; Nancy; Noah; Pat Allegretti; Pat and Corky; Pat Doebele; Pat Massey; Paula; PJ; Ron; Sally; Sarah Bell-Schell; 'Scott Hamilton'; Sharon Steve; 'Sheri Meyer'; Steve Gail; Steve and Jo; Susan Ted Roth; Tmic; Tom Deb; 'vanessa Quinn'; Wayne; Zsolt Patty Subject: [TMIC] Update 5 Hi, Everybody, Here is an update from Team Hammond dog_chase2.gif
[TMIC] More on Facebook Page
Facebook has been one of the most wonderful discoveries ever for me! It's made it possible to get to know many old school friends, old friends I haven t seen nor talked to for years, chat with a good part of my family every day in some cases, and get to know so many of you so much better! I especially like the sharing of the photos. Now, I know who I'm talking to and even get to see your family photos. It is wonderful! I do find we share more of what we feel each day in regards to our TM. That is so important.. I, too, have Farm Town plus Farmville and am thinking I may have to quit one of them because they take up so much time but I love them!! O, what to do... Such important decisions in life. The good thing about these games are they are so fun and they also include so many of you! Just thought I would give my two cents worth..:) Jeanne in Dayton, WA where it is nice out but getting ready to do some heavy duty raining.. ---Original Message--- From: Krissy Z Date: 10/19/2009 11:16:16 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Page I know it defiantly took my time on here...but i love the people and the games, it's fun and social at the same time. And seeing some of my TM friends there and having fun with them is just great! Grace and I share music, Gilly Jim Dave etc and I love mafia wars :) Come on over! ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Fri, 6/26/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: From: Cindy McLeroy cindymcle...@socal.rr.com Subject: Re: [TMIC] Facebook Page To: bradebi brad...@gmail.com, Akua a...@artfarm.com, tmic-list@eskimo.com, Jim Lubin jlu...@eskimo.com Date: Friday, June 26, 2009, 10:01 PM Now when folks wonder why the list is slow, they should go to facebook and check out Farm Town. That must be where everyone disappears sometimes. - Original Message - From: bradebi To: Akua ; tmic-list@eskimo.com ; Jim Lubin Sent: Friday, June 26, 2009 3:29 PM Subject: Re: [TMIC] Facebook Page I am too!!!...I love Farm Town!.I am taking a break... .I am into building my Zoo right now..it is addicting too!. Debi ---Original Message--- From: Jim Lubin Date: 6/25/2009 7:37:10 PM To: Akua; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Page there are several TM-ADEM-NMO groups on Facebook, most are linked here http://www.myelitis.org/support.htm Jim (who has become addicted to the Farm Town game on Facebook) At 06:43 PM 6/24/2009, Akua wrote: I'm digging Facebook--- what about creating a fan page. -- Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] OT- I sing- Gary in MI
I'm so sorry for you and your mother, Gary. I'm glad you found some comfort in Mindy's beautiful song. Jeanne in Dayton, WA ---Original Message--- From: Lawrence King Date: 10/13/2009 7:24:25 AM To: tmic-list@eskimo.com Cc: Lawrence King Subject: Re: [TMIC] OT- I sing- Gary in MI Dear Gary, You moved me to tears. I believe that as this disease robs our loved ones of who they are here on earth they are preserved in wholeness in heaven. God be with you and your mother in the coming days. Mindy the Artisan On Oct 13, 2009, at 12:08 AM, Gary Thomas wrote: Mindy, Thank you for sharing the video of the beautiful hymn. Although she is still with us, my mother today was diagnosed with Alzheimer's and so her life as it has been will, little by little, no longer be. She came to Christ as a young girl and if it were not for she, I probably would not be a Christian. So, your hymn, speaking of saints and their past labors, was a blessing to me today. Gary in Michigan - Original Message - From: Lawrence King To: tmic-list@eskimo.com Cc: Lawrence King Sent: Monday, October 12, 2009 2:34 PM Subject: [TMIC] OT- I sing Hi Guys, I wondered If I should send you this since it has nothing to do with TM but I figured since we have lost a lot of tmic-list saints recently I figured you could remember them while watching it. thats me singing at my debut concert, the traditional hymn for all the saints http://www.youtube.com/watch?v=4Gx2CJuGY18 Mindy the Artisan BackGrnd.gif
Re: [TMIC] OT In-home assisted living
We have Aging and Long Term Care (I worked for them for awhile when I was nursing), Kevin, and basically the same type of care as Debi. If you qualify dollar wise, they will cover home care for so many hours a day and in some cases overnight care. If not, they will still help you go thru an agency that specializes in finding good people for you and would NEVER tolerate anyone like you are talking about. They probably would and should be arrested...truly. Please keep us posted on what is happening. Jeanne in Dayton, WA ---Original Message--- From: Debi Date: 10/11/2009 7:51:59 PM To: tmic-list; 'Kevin Wolfthal' Subject: [TMIC] OT In-home assisted living Hi Kevin..I use the in home care...my husband is my care giver..I don't pay anything for it...it would come out as a share of cost..I am striate medi-cal because I didn't have enough points for SSDI so I get SSI..if you go to your in home health agency and tell them that the people you have now is stealing from you and they lie..they will investigate..and will give you names of people who are in home health care workers...or you can have a family member. We found out the information from our Social Security office worker...give them a call. Debi Wall South Lake Tahoe Ca Not sure if this has come up on the TMIC before. Wondering if anyone uses help in your own home. Looking for Light cooking, laundry and cleaning. How did you find your help? Do any government agencies subsidize the cost? Do you trust your Help? I'm asking because my Mom and I have a couple we pay, but they Lie, often don't show up, and steal. We even give them a car to use And we pay all expenses. But we can't afford $200 a day, which is What I'm told professional help costs. Thanks for all help. Kevin
Re: [TMIC] Neurontin
Just like oxycontin is a a horrible medicine and I just don't understand why they keep prescribing it. I've seen so many patients become addicted to it and turn into someone you wouldn't even know. I'm going to ask my provider about that one, Frank. Right now I'm going thru the good old shingles right on my 'band' and radiating right around the right lateral to my back...not fun. That's OK!!! Could be MUCH worse! :) Jeanne in sunny Dayton where my cat is up in the fir tree and can't come down. Jack is gone until tonight so up there she stays!!! ---Original Message--- From: fr...@franksheldon.com Date: 10/7/2009 1:56:14 PM To: Kevin Wolfthal; tmic-list@eskimo.com Subject: Re: [TMIC] Neurontin I have not tried Neurontin for my pain because every neurologist I've been to refused to give it to me when I asked about it. I don't know why. Neurontin is a BAD MEDICINE. Doctors used to prescribe neurontin because the drug company that made neurontin took them out to dinner, paid the doctor's way on vacations (Symposiums), or any of many different perks. Neurontin does not decrease pain as well as old fashioned Phenobarbital which I take- 15 mg in AM, and 45 mg. before bed. Ask your doctor to put you on Dextromethorphan 60 mg twice a day. Dextro... only needs a prescription because it has to be compounded by a compounding pharmacy- look in the phone book!! good luck f 10_footer.gif
Re: Fw: RE: [TMIC] Comfortable Shoes Anyone?
Thanks so much, Todd. Sure makes sense and I hope it works well for you! Jeanne in Dayton ---Original Message--- From: Todd Tarno Date: 9/28/2009 3:10:49 PM To: TMIC Subject: Fw: RE: [TMIC] Comfortable Shoes Anyone? Just got a new PT and we were talking about my PFO braces. She said that it would help to have a size bigger, 1/2 to full size bigger, and a wide shoe. With the braces taken up space and with the swelling of our feet, this could help ALL of us with comfort of our shoes. Todd in CC, TX --- On Sat, 9/26/09, Patricia Cooley patticoo...@wi.rr.com wrote: From: Patricia Cooley patticoo...@wi.rr.com Subject: RE: [TMIC] Comfortable Shoes Anyone? To: 'L T CHERPESKI' cherp...@msn.com, 'TMIC-LIST' tmic-l...@eskimo net Date: Saturday, September 26, 2009, 11:57 AM Hi Linda: I talked to my friend that has severe neuropathy in her feet and legs about her shoes. The one place she remembers is www.drewshoe.com . She dealt with quite a few different companies and tried on many, many shoes before she found something that fit. She is a tall gal and her feet are very swollen and needs a size 12 extra wide which many places don’t carry. She will check her paper work to see if there were any others and I will let you know. Patti - Wisconsin From: L T CHERPESKI [mailto:cherp...@msn.com] Sent: Wednesday, September 23, 2009 9:04 PM To: 'TMIC-LIST'; Patricia Cooley Subject: Re: [TMIC] Comfortable Shoes Anyone? Oh that sounds great Patti. You guys are just a wealth of knowledge! Thank you. Linda - Idaho - Original Message - From: Patricia Cooley To: 'L T CHERPESKI' ; 'TMIC-LIST' Sent: Wednesday, September 23, 2009 8:42 AM Subject: RE: [TMIC] Comfortable Shoes Anyone? Linda I have a dear friend that has terrible neuropathy in her feet and lower legs Since her feet tend to swell and she wears a large size she couldn’t find shoes that fit. It goggled “shoe for people with neuropathy and found a number of website that do sell shoes for people with problem feet. Check it out. She even found one has free shipping and if the shoe doesn’t fit you can return and they pay the return shipping costs. I will check with her which site that was and let you know. Patti - Wisconsin From: L T CHERPESKI [mailto:cherp...@msn.com] Sent: Tuesday, September 22, 2009 11:15 PM To: TMIC-LIST Subject: [TMIC] Comfortable Shoes Anyone? This topic has come up before, but of course I can't remember what I learned at the time. Has anybody found a pair of shoes that are really comfortable? You know, good ones that can actually touch our nerve burning feet without pulling our hair out. I wore my sandals all last winter in the snow. I just can't stand to have shoes touch the tops of my feet. If you've found good ones, what brand and where do you find them? A big thank you to all Linda - Eagle, ID d.gif
Re: [TMIC] Spiritual perspectives on disabiities
Wow!! Love what she says and couldn't agree more!! Thank you for sharing this, Barbara! j ---Original Message--- From: Barbara H. Date: 9/22/2009 7:50:04 AM To: TMIC Subject: [TMIC] Spiritual perspectives on disabiities I receive a daily e-mail devotional made up of the writings of Elisabeth Elliot (they are posted daily at (http://www.backtothebible org/authors-attic.html) ). The one this morning, dealing with disabilities, was one I thought many TMers could benefit from. It's from her book Keep a Quiet Heart in a chapter entitled There Are No Accidents. The Judy Squier mentioned has a web site at: http://squierfamily.net/judy.html I posted this a couple of years ago, but received it again today and thought it might be helpful to some.Barbara H. Author: Elisabeth Elliot Source: Keep A Quiet Heart Scripture Reference: Psalm 139 James 1:2 There Are No Accidents My friend Judy Squier of Portola Valley, California, is one of the most cheerful and radiant women I know. I met her first in a prayer meeting at the beginning of a conference. She was sitting in a wheel chair, and I noticed something funny about her legs. Later that day I saw her with no legs at all. In the evening she was walking around with crutches. Of course I had to ask her some questions. She was born with no legs; she had artificial ones which she used sometimes, but they were tiresome, she said (laughing) and she often left them behind. When I heard of a little baby boy named Brandon Scott, born without arms or legs, I asked if she would write to his parents. She did: The first thing I would say is that all that this entails is at least one hundred times harder on the parents than the child. A birth defect by God's grace does not rob childhood of its wonder, nor is a child burdened by high expectations. Given a supportive, creative, and loving family, I know personally that I enjoyed not a less-than-average life nor an average life, but as I've told many, my life has been not ordinary but extra-ordinary. I am convinced without a doubt that a loving Heavenly Father oversees the creative miracles in the inner sanctum of each mother's womb (Psalm 139), and that in His sovereignty there are no accidents. 'What the caterpillar calls the end of the world, the Creator calls a butterfly.' As humanity we see only the imperfect, underside of God's tapestry of our lives. What we judge to be 'tragic--the most dreaded thing that could happen,' I expect we'll one day see as the awesome reason for the beauty and uniqueness of our life and our family. I think that's why James 1:2 is a favorite verse of mine. Phillips' translation put it this way: When all kinds of trials and temptations crowd into your lives, my brothers, don't resent them as intruders but welcome them as friends.' I love Joni Eareckson Tada's quote. When I saw it on the front of Moody Monthly, October 1982, I was convinced she'd penned the words for my epitaph Now my husband David is aghast to hear me say I want it on my tombstone! Glory be! People with disabilities are God's best visual aids to demonstrate who He really is. His power shows up best in weakness. And who by the world's standards is weaker than the mentally or physically disabled? As the world watches, these people persevere. They live, love, trust and obey Him. Eventually the world is forced to say, How great their God must be to inspire this kind of loyalty. Being Christian didn't shield my family from the pain and tears that came with my birth defect. In fact, ten years ago when David and I interviewed our parents for a Keepsake Tape, I was stunned to hear my mother's true feelings. I asked her to tell the hardest thing in her life. Her response: the day Judy Ann was born and it still is' And yet when we as a family look back over the years, our reflections are invariably silenced by the wonder of God's handiwork. Someday I hope to put it in a book and I know it will be to the glory of God. Getting married and becoming a mother were dreams I never dared to dream, but God, the doer of all miracles intended that my life be blessed with an incredible husband and three daughters. Emily is nine, Betsy will soon be seven, and Naphtalie Joy is four. I've decided that every handicapped person needs at least one child. They are fantastic helpers and so willing to let me 'borrow their legs' when I need help. You as a family have been chosen in a special way to display His unique Masterwork. I pray that your roots of faith will grow deep down into the faithfulness of God's Loving Plan, that you will exchange your inadequacy for the Adequacy of Jesus' resurrection power, and that you will be awed as you witness the fruits of the Spirit manifested in your family. A ministry of Back to the Bible Jesus Who? | Broadcasts | Interact With Us | Devotions | Online Store 10.gif10_head.gif
Re: [TMIC] Jim
Such a good idea and we can remember Rick at the same time. Thank you. Jeanne in Dayton ---Original Message--- From: Bernard Pelow Date: 9/10/2009 6:38:01 PM To: TMIC; cjb...@aol.com Subject: [TMIC] Jim To All Members, Might I suggest that on the September 12th at 11:00 AM we all take a moment of silence for Jim as his family gathers for his memorial. We all owe a great debt to Jim for all of his work and contributions for us who survive him. Blessings and Peace. Namaste, Bernie and Family parchment.jpg
Re: [TMIC] Fingernail growth ?
Frank, I have always had the majority of pain on the left side even tho it is the strongest but has the least skin sensation. The right side is the weakest but has from the start had hypersensitivity and I have a hard time walking because the right leg wants to drag. If I 'talk' to it, it will always do better...really, it's true! So far I have had no changes like yours in my hands. I have started a very strong vitamin and my nails have gone crazy growing and are becoming super strong. Jeanne ---Original Message--- From: fr...@franksheldon.com Date: 9/9/2009 9:49:30 AM To: tmic-l...@eskimo.net Subject: [TMIC] Fingernail growth ? (This email is serious, like, no kidding) Dear Group, I have partial TM (C6, right side, 6 mm spherical demyelination). I have central pain from my shoulders down, left side has three times as much pain as right side. Recently I became aware that my left hand was slightly swollen, and my fingernail of my left hand were growing faster than on my right hand. Has anyone else noticed anything like what I'm describing? Thanks Frank 01_tile.jpg01_side.gif
Re: [TMIC] Fingernail growth ?
Well, hi, Roger! You are only 60 miles from us!! We live in Dayton! Jeanne ---Original Message--- From: Roger Pratt Date: 9/9/2009 3:24:18 PM To: fr...@franksheldon.com; tmic-l...@eskimo.net Subject: Re: [TMIC] Fingernail growth ? Frank, I was also affected in the C portion of my spine (C2-C4). At first my hands were swollen. I was most affected on my right side, but both arms and hands are affected. Lately I have had more problem with my ankles swelling during the day. They are better after a nights sleep, but swell again during the day. My hands feel swollen, but don't look as swollen as they were for the first few years. I've had TM for over 15 years. I have also noted that my fingernails grow faster and that my toenails are so hard that they are very difficult to cut. (That just might be old age.) All I know is that once you get used to some of the effects of TM others seem to pop up (or is that swell up?) By the way, I also want to join the BM group. I was relieved to hear that I'm not the only one. The doctors just recommend more fiber. I tried Dulcolax, but that almost killed me. Had the runs for over a week from just one dose. Well, my best to you and all my other TMIC friends, Roger in Kennewick WA - Original Message - From: fr...@franksheldon.com To: tmic-l...@eskimo.net Sent: Wednesday, September 09, 2009 7:49 AM Subject: [TMIC] Fingernail growth ? (This email is serious, like, no kidding) Dear Group, I have partial TM (C6, right side, 6 mm spherical demyelination). I have central pain from my shoulders down, left side has three times as much pain as right side. Recently I became aware that my left hand was slightly swollen, and my fingernail of my left hand were growing faster than on my right hand. Has anyone else noticed anything like what I'm describing? Thanks Frank Untitled-1.jpg
RE: [TMIC] BM'ers Club, I'm in.
Barney, we can't get grossed out because most all of us have to go thru some of the most uncomfortable things due to TM but we make it, don't we?? I make it thru laughing and making light of things like this!!! Plus, I made sure all of my family would do the same thing. It really helps!! Laughter is a wonderful healer...Jeanne ---Original Message--- From: Butcher, Bernie (SFS) Date: 9/9/2009 3:15:13 PM To: fr...@franksheldon.com; tmic-l...@eskimo.net Subject: RE: [TMIC] BM'ers Club, I'm in. I want to join, I think I qualify. I take diarrhea pills because I am terrified of getting it. If I do, it's making an appearance, no matter where or when. So, as a result, when I go, it's a brick, it even has the raised letters, like bricks do, you know B M. I don't want to gross you out, but I have to put on a rubber glove break it up, or it won't flush down. Horrible! Do I qualify? Barney -Original Message- From: fr...@franksheldon.com [mailto:fr...@franksheldon.com] Sent: Wednesday, September 09, 2009 10:31 AM To: Grace M.; Janice; tmic-l...@eskimo.net Subject: Re: [TMIC] BM'ers Club *I think that our treasurer should set our club dues at the rate of at least four BM's a month. I was told in Medical school that some people only have one BM a week. so four a month minimum makes sense. Flush, don't Mail to the treasurer. Thank you pH Untitled-1.jpg
Re: [TMIC] BM'ers Club
What are the 'By-Laws'??? I can just imagine :) ---Original Message--- From: Grace M. Date: 9/8/2009 9:00:08 AM To: Janet Dunn Cc: tmic-l...@eskimo.net Subject: Re: [TMIC] BM'ers Club ROFL! Janet, you're a hoot! From: Patricia Cooley [mailto:patticoo...@wi.rr.com] Sent: September 8, 2009 6:53 AM To: 'Janice'; fr...@franksheldon.com Cc: tmic-l...@eskimo.net Subject: RE: [TMIC] BM'ers Club JANICE AS A MEMBER OF THE BMers WELCOME ABOARD. ONE OF OUR BY-LAWS IS THAT THERE IS NO QUESTION TOO EMBARRASSING, ETC. WE CAN ALL FEEL TO ASK WHATEVER CONCERNS US. YOUR RIGHT, NO NE IS PERFECT, LESS OF ALL ME. HAVE A GOOD DAY AND TIAD PATTI - WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Monday, September 07, 2009 9:52 PM To: fr...@franksheldon.com Cc: tmic-l...@eskimo.net Subject: [TMIC] BM'ers Club I would like to belong to the BM'ers club also. I will try very hard not to ask too many questions and will try to keep them fairly intelligent. Of course, no one is perfect! Janice 01_tile.jpg01_side.gif
Re: [TMIC] New Medications
I take both, Rob, and the Cymbalta does help with the pain. The Lyrica 75mg 8AM and noon, I take with Tramadol and together they really help with taking the bad edge of the pain away. I tried taking something different than Cymbalta because it is so horribly expensive $150+/month but it didn't work ridding me of the pain at all. I don't notice any side effects from it. The Lyrica itself is $75/month just for a month's supply. The main side effect I found is weight gain. Adding the Tramadol was one of the best things my doctor did. Where the Lyrica didn't quite make the grade, adding the Tramadol really did help! Hope this helps??? Everyone is different, right?? Jeanne ---Original Message--- From: Robert Pall Date: 9/3/2009 8:35:31 AM To: tmic-list@eskimo.com Subject: [TMIC] New Medications Readers of my postings will remember that I saw Dr Kerr in July and we decided to wean myself off of 2 of my medications. The first one I went off of was 4-Aminopyridine (a Potassium channel blocker) and the second med is Lyrica. Anyway I did not notice any change in my banding going off of the 4-AP however once I reduced the Lyrica from 450 mg per day (3 pills) to 150 mg per day (1 pill) the banding in both legs became much worse. Per Dr. Kerr I went back to 300 mg of Lyrica but the banding is still much worse. The new approach is to go back to my original meds and original dosages .but before Dr Kerr has me go back on the 4-AP he wants me to try adding Cymbalta to the Lyrica and see if that will reduce the banding. Question do any of you take both Lyrica and Cymbalta and if so with what kind of results. If you only take Cymbalta has it helped and if so in what way .lastly what dosage do you take and are there negative side effects. Rob in New Jersey 01_tile.jpg01_side.gif
Re: [TMIC] Update on Mike
Bless your hearts, Mike and Jill.. We will all be holding you in our hearts, minds, and prayers. I wish we could be close to help you with other things...Jeanne ---Original Message--- From: Jill Hammond Date: 9/3/2009 6:47:19 PM To: tmic-list@eskimo.com Subject: [TMIC] Update on Mike Well, everyone, here is your first update. Before I begin, however, I would like to thank all of you who have kept me and my family in your prayers, it means a lot. Dont stop, though, as the next 7 weeks or so are going to be a little rough. I especially want to thank my family, without their help and support; I cannot imagine where I would be. For those that like to be very specific, I found out I do not have what I told you last time. What I have is a tumor in the Maxillary Sinus. This tumor is a Neuro-endocrine type (small cell) of cancer. There, that should make it clear as mud. Went in yesterday to the Chemo doc, and when he heard that we had to wait until next Thursday for our radiation Doc appointment, left the room, came back and told us as soon as we were through with him, we could go downstairs and talk to the radiation doctor. The right people and a little help from above just cut off another 8 days of waiting. I can start fighting back. Today I went in to the doctors office and got fitted for my Hannibal Lector mask. This mask ensures that you do not move your head at all while receiving radiation. Radiation for this is received from a Tomography machine which produces the rays electronically. I will tell you that I could not even open my eyes while wearing the mask.. Very claustrophobic, so a little Xanac helped. Now, I go back in for my very first radiation treatment next Thursday. During this 7 week, five day a week treatment, I will receive at least 6,000 RAD (Radiation Absorbed Dose) to the cancer. For those who are not aware, just let me say that 6,000 RAD is a LOT. Unfortunately, my right optic nerve may receive much of this. The optic nerve begins to show damage at 4,500 RAD, So, I may loose some, or all, vision in my right eye. There are a lot of other little complications like loss of salivary glands, loss of taste (Have that already), possible teeth problems, and hair loss (time for a Kojack shave). The Chemotherapy introduction session is tomorrow and I learn what I get, when it will start, if I will need a port and lots of other questions I am sure. So another update in a week or so. Take care and be talking with you soon. God bless us, everyone, Mike and Coach Jill. 01_tile.jpg01_side.gif
Re: [TMIC] BMer's Club and new medication
I'll work in PR... That should be fun??!! Jeanne :D ---Original Message--- From: anndil...@aol.com Date: 9/3/2009 1:27:46 PM To: tmic-list@eskimo.com Subject: [TMIC] BMer's Club and new medication I note no one has said anything about being treasurer I will be glad to serve as same. Please send dues to me. Rob I tried Cymbalta and the only effect it had on me was I could not pee. Decided I sitll had to put up with the banding. Ann in Virginia 01_tile.jpg01_side.gif
RE: [TMIC] BMer's Club and Flu Shots
I totally agree with you, Patti. Jeanne, RN/TM/BM'er ---Original Message--- From: Patricia Cooley Date: 9/2/2009 9:11:58 PM To: pjv1...@chartermi.net; 'tmic' Subject: RE: [TMIC] BMer's Club and Flu Shots PATTI LET ME BE THE FIRST TO WELCOME YOU TO OUR NEW CLUB. I HOPE MORE CONSIDER JOINING. IT IS SO WONDERFUL THAT AS MEMBERS WE CAN FEEL FREE TO DISCUSS THE MANY PROBLEMS, EVEN VERY PERSONAL ONES, WE ALL HAVE WITHOUT BEING EMBARRASSED. AT THIS TIME, I DO NOT THINK I WILL BE GETTING ANY OF THE FLU SHOTS THAT WILL BE OFFERED. I THINK THEY ARE RUSHING TOO FAST TO GET SOMETHING OUT TO THE PUBLIC, AND IT MAY HAVE VERY SERIOUS RESULTS FOR A LOT OF PEOPLE. I WILL PRAY IT DOESN'T. AS I SAID EARLIER, I WILL BE SEEING MY NEURO NEXT WEEK AND WILL DISCUSS IT, BUT I BELIEVE IT ALREADY KNOW WHAT HE WILL ADVISE. PATTI - WISCONSIN -Original Message- From: pjv1...@chartermi.net [mailto:pjv1...@chartermi.net] Sent: Wednesday, September 02, 2009 8:36 PM To: tmic Subject: [TMIC] BMer's Club and Flu Shots I qualify as a member of the TMer BMer club. I hope this is an honor-system membership with no proof requirements. My Neuro and his family get annual flu shots. He advised me to get the shot - yet I haven't done so since TM and likely won't. I didn't have a shot the year I got TM, but every doctor that I saw from ER to my TM diagnosis asked me if I had had the flu shot and all those questions have made me nervous. Patti - Michigan 01_tile.jpg01_side.gif
Re: [TMIC] Digital Removal
Now I KNOW I would have loved being your nurse Jeanne ---Original Message--- From: fr...@franksheldon.com Date: 9/1/2009 10:50:24 AM To: Grace M.; Laurie Zissimos Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Digital Removal *Guys, I was just so happy to see that others have to use the digi-stim method. It gets real lonely out here. We gotta start a club! ;-)* You are never alone. Let's call it the TMIC- BM We'd all be Bowel members or BM. A long time ago. Some person on the playground called me a piece of sh*t, an Ass H*le. I retorted, At least I have a function, a purpose- You're just a swollen Hemorrhoid !! F 01.jpg01_header.gif
Re: [TMIC] AARP Drug Card
Candy, where did you find it? I tried but only could find the Medicare Part D. I know this has been awhile since you wrote this but I kept it just to ask you!!! ---Original Message--- From: CANDIS KALLEY Date: 6/19/2009 10:57:30 AM To: Richard J Boyle; tmic-list Subject: [TMIC] AARP Drug Card Gunny, today I did look into the AARP drug card for $19.95 a year and subscribed to it. THANK YOU for the info. The FL Drug card is zero help in tier 3 meds and Forteo was going to cost me $749.00 a month - I'm already in the doughnut gap. I spent yesterday in tears. I had a glass of wine last night and woke up today and remembered you saying AARP drug card, so I signed on - I've been an AARP member for several years. I found out what you were talking about that the AARP drug card is seperate from Medicare supplement/Part D. So, I signed up after seeing that the Forteo is only $111.91 per month - about the same as I was paying for Boniva a month! I can afford that. THANK YOU again! Maybe next time I will wake up a little sooner or give me a shout back to WAKE UP! Prayers and thoughts for you and yours, Candy K. 01_tile.jpg01_side.gif
Re: [TMIC] OT:My Pattern published!
The patterns are beautifully done and well worth going to the site to view them! What a talent, especially when it comes from the heart, Akua!! I am sending this on to others I know that knit so they can also see what you have done. Jeanne ---Original Message--- From: alle...@aol.com Date: 8/22/2009 8:03:02 PM To: a...@artfarm.com; tmic-list@eskimo.com Subject: Re: [TMIC] OT:My Pattern published! Well congratulations to you Akua! I googled the calendar and found it (they re cute) and I included the link if anyone else wants to see.Ella Zen Crochet by Akua girl_cat.gif
Re: [TMIC]
Oh, Rebecca, You have so many of your TMIC friends just hoping and praying that the answer will come through for you. Not being the provider we cannot tell you or advise you as to what to do. I wish we could. My little niece has Arthrogryposis and they did have to cut her tendons for the same reason. She is just 2. Please take care of yourself, Rebecca, as you are a very, very special person. What is your husband's name? I would like to put his name in my Prayer Pot along with yours and Dennis'. Jeanne ---Original Message--- From: Rebecca Date: 8/25/2009 10:47:27 PM To: tmic-list@eskimo.com Subject: [TMIC] I am here again asking all the people that I trust about this option. Dennis has been in the hospital for the last month. This is after he got back for 8 hours and rushed back to the hospital. His major problem is the 3 wounds that he has. Today we had a discussion with a wound care nurse. She feels his wounds can not heal if we don't find something else to help Dennis. What we were told to think about was tendons being clipped. Last time I asked about amputation and I got many replies. Now I am asking if anyone knows anything about tendons being clipped. I see so many things coming up with Dennis' health. His legs are getting tighter and causing problems now and will get worse. As a mom I am so afraid that he will not get over this. I watched, read and prayed for Jude during her fight with her battle with wounds. I almost don't want to think about what can happen. He is so brave as many of you are. If I could I would get all of you together and wave a magic wand to get you well and be happy, that would be the best dream I've ever had. I know this sounds child like but I am not handling this very well My husband is in the beginning of Alzheimer and is not able to give me support. I am handicapped and try to make it seem effortless in my daily life. WOW, I have not talked like this to anyone. I guess I needed to vent. I also know I will get answers that are thought out and with concern. I thank everyone of you for giving me advice and hope. All of you have a good day, Rebecca 01_tile.jpg01_side.gif
Fw: Re: [TMIC] TM and MS + carecure.org problem
Jim, could you help Laura get set up on here and the TMA site??? Thanks so much! Jeanne ---Original Message--- From: Laura Beaudin Date: 8/14/2009 1:22:16 AM To: jrushton Subject: Re: [TMIC] TM and MS + carecure.org problem Hi Jeanne, I believe that this is the only email I received from you, but thanks. I'm glad that you were able to recover...I keep hoping that something will improve, but so far there is nothing. I have total paralysis (movement-wise) south of T10 and limited feeling. Bladder and bowels also went out the door with the TM. I was in hospital for 4 months, much of that at a leading rehab hospital, but there is only so much they can do unfortunately when the muscles refuse to react to any stimulation. Could you send me some links to TM sites? I am still unfamiliar with most of them. I am also on facebook at the above address, would love it if you added me. Thanks Laura On Fri, Aug 14, 2009 at 8:36 PM, jrushtonjrush...@columbiaenergyllc.com wrote: Hi, Laura, I think I just e-mailed you??? When I was first stricken with TM in 2005, I was paralyzed from the chest down and with lots and lots of PT, I am able to walk actually pretty well. Much better at home than when I go somewhere. Those times I sometimes use my wheelchair and when we travel, I use it quite often. All of this is from stubbornness and pure determination and never, ever giving up. We have a hot tub and I do all of my PT in that and I think that has helped me more than anything else. I really think water therapy is number one in getting you better. I still can't feel from the chest down like I could before but I so have odd sensations but nothing really like normal. I had to retrain myself to go to the bathroom and still have urinary issues but nothing I can't handle. The bowel issue doesn't work without help of herbs but it also works. I hope this helps, Laurie. The TMIC group is so wonderful and it is like a big, caring family of friends. Please join one the TM sites as there are a few. You can find one that 'fits' you the best. I'm also on Facebook and there are a lot of us TMer's on that, also. Please take care..Jeanne ---Original Message--- From: Laura Beaudin Date: 8/13/2009 11:26:41 PM To: tmic-list@eskimo.com Subject: [TMIC] TM and MS + carecure.org problem Hi, I recently joined this list and am happy to have found it. I've had MS symptoms since I was 17 and was diagnosed with MS several years ago (I'm 31). I started getting severe back spasms in March, along with other relapse symptoms, so after emailing my neuro for his input, decided to go to the ER for pain management and steroids. I walked in and never walked since. TM is the cause and I'm wondering if many of you have MS and what kind of recovery you have had? I've had total paraparesis since with no recovery and am pass the three month mark, which kinda depresses me. I was discharged a month ago and am frustrated with life in a wheelchair, especially as a newly-single mother with two preschoolers. I also wanted to ask if someone has a connection with carecure.org (which is where I found out about this list, I believe). I've been trying to register and there's a problem with their captcha software...so I can't even contact them via email about it, since their contact form uses the same software. Could someone kindly contact an admin and ask them to contact me at my email? (laura.beau...@gmail.com). It looks like an awesome site, but I'd rather get the chance to participate. Cheers! Laura -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka
Re: [TMIC] That banding feeling
The banding came on immediately with the TM and has never left. Without the meds, it is excruciatingly painful and just heads south to my toes. Funny how you can hurt so bad and 'not feel'??? Explain that to someone?? ::)) Gosh, I'm so happy you all are in my life..Jeanne ---Original Message--- From: laura.eich...@gmail.com Date: 8/10/2009 10:56:05 PM To: tmic-list@eskimo.com Subject: [TMIC] That banding feeling Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura 01_tile.jpg01_side.gif
[TMIC] When Highlanders get bored with their sheep - AMAZING! NOT TMIC BUT WORTH WATCHING!
If you never look at another email, check this out! Amazing for sure!!! Highlanders get bored with their sheep! No, this is not dirty. your kids, wife, girlfriend, grandmother, grandfather, or whatever can view this. p.s. These guys are not retired electricians either! http://link.brightcove.com/services/player/bcpid1137883380?bctid=17075685001 looks like the dogs had a good time!! No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.392 / Virus Database: 270.13.39/2275 - Release Date: 08/01/09 09:38:00 Get your vacation photos on your phone! Click here. Windows Live: Keep your life in sync. Check it out. No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.392 / Virus Database: 270.13.45/2287 - Release Date: 08/07/09 06:22:00
[TMIC] Ins. Questions - still??
I know we've gone over this before but I sure could use some help. Jack and I are on Medicare (me, Disability but I have my Medicare card) with AARP, Part L, and we really need some help with our prescriptions. I've read a lot of what has been written and don't understand some of it. What I would like is to hear from those of you who have a good RX plan that you feel is fair and that Jack and I might get to go with our other plans. I've checked on the AARP and the one I think might work is the 'middle' plan that is about $30+ a month. I want one that I can get 3 months at a time so I don't have to keep having it refilled. Does all of this make sense??? Jeanne01_tile.jpg01_side.gif
Re: [TMIC] That banding feeling
I can't figure out why I only get some of the TMIC notes??? Anyone else have the same problem? Jeanne ---Original Message--- From: pjv1...@chartermi.net Date: 8/11/2009 6:38:33 PM To: laura.eich...@gmail.com; tmic-list@eskimo.com Subject: Re: [TMIC] That banding feeling I've had TM for five years and don't expect an MS diagnosis. I've had the banding trom the beginning. During one of my steroid IV's (first five days) I rang for help and told the nurse I couldn't breath and something was squeezing my chest. It was painful and I asked her if I could be having a heart attack. I still get banding on a regular basis, however, I don't panic, I work harder at breathing and hope its time for some Baclofin. Patti - Michigan laura.eich...@gmail.com wrote: Those of you who got that banding feeling do you all just have TM or did you also get subsequently diagnosed with MS too? And if you did experience the banding feeling, did you experience it at the beginning of your TM (or MS) journey or somewhere down the road? :-) Just wondering if TM'ers get the banding feeling or is it only those that get MS too. I had it at the start of my TM but it went away after a month or two. I had a very mild case of TM and as of yet not diagnosed with MS. Thanks! -- Laura 01_tile.jpg01_side.gif
Re: [TMIC] Ins. Questions - still??
Oh, that would be so good, Gunny! We have them for our supplemental but how and what do I do to sign up for what you have??? Also, my sis-in-law works at a clinic and they are saving the printer cartridges for me. She said she has a lot and I'll be seeing her this next weekend so you'll be getting a package again!! Hooray! Jeanne ---Original Message--- From: bgunny7...@aol.com Date: 8/11/2009 6:02:47 PM To: jrush...@columbiaenergyllc.com Subject: Re: [TMIC] Ins. Questions - still?? I belong to AARP, and all I pay is $4.00 for generic, and $6.00 for name brands no matter what the drug. 01_tile.jpg01_side.gif
Re: [TMIC] Need some help please
Oh, Linda, What a spot you are in, dear one. There has got to be a doctor out there that can and will help you with your knees. The PT certainly won't hurt you and I've really raved about water therapy but when you have bone on bone, especially your knees, I just can't see that taking away the pain. Isn't there somebody out there that has a doctor with enough guts to help Linda? At least lead her in the right direction for the right provider? Quality of life is a goal for us and right now, Linda, you must be in such pain that the quality is pretty tough. I sure wish I had an answer for you. Don't give up...right back into the Prayer Pot you go...Hugs..Jeanne ---Original Message--- From: L T CHERPESKI Date: 8/11/2009 10:41:09 PM To: TM List Subject: [TMIC] Need some help please Hi everybody, I'm hoping you guys can help point me in the right direction. There are so many of us on the TM site there's just got to be someone who knows somebody with the same or similar dilemma. Most of you know that I've had Sjogrens for 20+ years (unfortunately, progressive and aggressive) and 7 yrs ago TM came into my life. I am on heavy chemo meds (Imuran and Rituxan infusions) to suppress my immune system to keep it from attacking my body. Last Sept I had a minor surgery to repair a torn meniscus in my knee, and my body went into the longest, hardest relapse I've ever had. I'm just now getting my arms and hands back - I think this is as much as I'll get this time. Almost everything else has gradually come back. My one huge problem is that my KNEES took the biggest hit - my doctors said it was because they were the weakest part of my body at the time. I have infected knees (right one to the bone) and am walking (trying) on bone on bone knees. They both need to be replaced. And I have TM, so already my walking is not that pretty. I was sent out of state to a surgeon who does a special knee replacement surgery that is less invasive. Long trip, big disappointment. He will NOT do surgery on me either because of the aftermath - said it would be like doing brain surgery due to my autoimmune diseases. Well that's fine - I have always wanted to do anything but the surgery, but was given no OTHER choices. And, I am still being given NO options. So I've done some of my own research. What about physical therapy to get my thigh and quad muscles built up so they can take some of the load off my knee joints? (I'm a fairly small person so we're not talking about losing 50 lbs and that would make things all better) Water therapy? I'm not quite sure how to get these muscles built up when my knees hurt so bad I can hardly bend them, but there has to be a way. My doctors have kind of given up on me, which at first shocked me, now I'm just really mad. Any ideas would be much appreciated. Thanks guys, Linda 01_tile.jpg01_side.gif
Re: [TMIC] hoping and praying for All
You and Dennis are going in my Prayer Pot, Rebecca, and yes, you have a family of friends here that are a blessed group of people. Jeanne in Dayton WA ---Original Message--- From: Rebecca Date: 8/10/2009 9:48:37 AM To: Undisclosed-Recipient:, Subject: [TMIC] hoping and praying for All I received so many e-mails after I asked for opinions and that is what I got After thinking and reading all of the replies I new we were not doing anything in a hurry. As I am writing to you that Dennis is still in the Hospital but improving. Nothing more is being said about amputation. They now have 2 wound vaccs and it is doing the job. I am so proud of Dennis. I feel he is an inspiration to so many. I read all the mail and there are so many of you that are more than a friend on cyberspace. I pray for all of you daily. I will keep you posted . Rebecca 01_tile.jpg01_side.gif
Re: [TMIC] hoping and praying for All
Absolutely! I have used one for many years, now. I write the names on a little piece of paper, some every day and some days there is one special name on it. Sometimes I put more than one in a day. Mine is a basket with a lid that sits on it tipped a little to the side and I just add the paper. It never seems to fill up...strange, huh??? Hugs for now...Jeanne ---Original Message--- From: Catherine Date: 8/10/2009 2:54:21 PM To: jrushton Subject: Re: [TMIC] hoping and praying for All Jeanne, What a great idea, a Prayer pot! I hope you won't mind, today I am going to start one too. Thoughts and Prayers, Catherine From: jrushton jrush...@columbiaenergyllc.com To: Rebecca wrabal...@gt.rr.com; tmic tmic-list@eskimo.com Sent: Monday, August 10, 2009 11:03:26 PM Subject: Re: [TMIC] hoping and praying for All You and Dennis are going in my Prayer Pot, Rebecca, and yes, you have a family of friends here that are a blessed group of people. Jeanne in Dayton WA ---Original Message--- From: Rebecca Date: 8/10/2009 9:48:37 AM To: Undisclosed-Recipient:, Subject: [TMIC] hoping and praying for All I received so many e-mails after I asked for opinions and that is what I got After thinking and reading all of the replies I new we were not doing anything in a hurry. As I am writing to you that Dennis is still in the Hospital but improving. Nothing more is being said about amputation. They now have 2 wound vaccs and it is doing the job. I am so proud of Dennis. I feel he is an inspiration to so many. I read all the mail and there are so many of you that are more than a friend on cyberspace. I pray for all of you daily. I will keep you posted . Rebecca 01_tile.jpg01_side.gif
Re: [TMIC] question
Hi, Ann, I don't know about the pain but I do know that when you become constipated and your stool stays in your bowel, your body will absorb the fluids which makes the stool even harder and more uncomfortable and more difficult to extract. Having the TM aggravates the issue with all of our nerve problems especially for those of us who have no feeling in that area. Each one of us has to find our own answer to the constipation problem or we will continue suffering. It's not healthy to have that stuff stay in our system, either. Not fun, is it? Jeanne ---Original Message--- From: anndil...@aol.com Date: 8/10/2009 4:48:59 PM To: wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin 01_tile.jpg01_side.gif
Re: [TMIC] question
Funny how when you are a nurse you can talk about things like this as if you are talking about the weather! ::)) ---Original Message--- From: Trudy Ogilvie Date: 8/10/2009 9:07:04 PM To: rj_ran...@yahoo.com Cc: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question I am right there with you! I am amazed how everything effects everything... I get terrible shooting pains down my legs when I am constipated!! Prunes, prunes and more prunes. :) Blessings! Trudy On Mon, Aug 10, 2009 at 6:14 PM, rj_ran...@yahoo.com wrote: I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin Sent from my Verizon Wireless BlackBerry -- Everything is possible for one who believes, still more for one who hopes, even more for one who loves 01_tile.jpg01_side.gif
RE: [TMIC] question
When the band starts to hurt and you described it very well, I know that the pain is going to get worse from my breast line on down. It feels like a steel wire just getting tighter and tighter. It hurts so bad and then the pain intensifies from there on down. I usually add Tylenol or Ibuprofen to what I'm already taking to take the edge off but it just makes my whole body drag. It makes me tired just to breathe!! You explained it perfectly. I just don't know what triggers it other than the weather. It does help to do my water therapy in the hot tub, tho. Quite a job, having this TM, isn't it??!! :) ---Original Message--- From: Janet Dunn Date: 8/10/2009 12:13:11 AM To: 'jrushton'; 'tmic' Subject: RE: [TMIC] question Hey Jeanne When you say that the pain starts worsening at T4 (which is where mine is) and you know the rest is coming, what do you mean by that? I am finding lately that the fatigue is awful. I spent yesterday morning garage saleing, and then the afternoon was naptime. Today, I could hardly drag my butt out of bed, and I did a little yard work this afternoon, and then back to bed. The band is like a jagged razor blade, under my breast. I just get so tired, and so sore. That is what frustrates me. And yes, the constant work at keeping the plumbing working. Yikes that makes me crazy. One thing changes in your routine, and you are down for the count for days. Enough of that. Janet 01_tile.jpg01_side.gif
Re: [TMIC] question
Kevin, I think the only thing we can do is just literally treat the symptoms and we have many I will break out in a sweat from above the spinal cord injury where water will just fall off of my face. I think it's past 'sweating' but nothing at all below the T4 level where the TM got me!!! What a study we could be!! Jeanne ---Original Message--- From: Kevin Wolfthal Date: 8/9/2009 11:47:41 PM To: Janet Dunn; tmic-list@eskimo.com Subject: Re: [TMIC] question Janet, Thank you and everyone who answered this. TM has to be one of the oddest afflictions there is. I also can't take extremes of heat or cold. I even have to turn on my AC in the winter if it's too hot in my room. Wierd. Kevin Janet Dunn wrote: Yes, I have noticed that. It also makes the bladder issues worse. Glad I am not alone in this. I also, being a person from a northern climate, do not know how you down in the warmth stand the heat. Too much heat and my burning bands drive me nuts. Too much cold and I have trouble walking. Maybe I need to be in a bubble. Janet -Original Message- From: Kevin Wolfthal [mailto:wolft...@optonline.net] Sent: August 9, 2009 2:16 PM To: tmic-list@eskimo.com Subject: [TMIC] question Has anyone ever noticed that constipation, or not moving your bowels regularly for any reason, can make other symptoms worse, such as spasms? Kevin 01_tile.jpg01_side.gif
RE: [TMIC] Friendships
So many of my friends were the ones I worked with and I find that I haven't lost them from the TM but from actually not working. Where we live is probably the biggest reason so much has changed since I have a tendency to stay home and not go like I used to. BUT!! I know they still love me and my family are also my friends and boy are there a lot of them! ::)) Jeanne ---Original Message--- From: Robert Pall Date: 7/23/2009 12:36:17 PM To: Janice; tmic-l...@eskimo.net Subject: RE: [TMIC] Friendships Before TM hit me I was very athletic and many of our friends were the ones I played ball with. Once TM hit me I lost everyone of these friends...but that being said...I never lost any of my true old friends! Rob in New Jersey From: Janice [mailto:jan...@centurytel.net] Sent: Thursday, July 23, 2009 1:10 PM To: tmic-l...@eskimo.net Subject: [TMIC] Friendships I have another question that has been rolling around in my head. Have any of you lost/gained friendships after developing TM/MS? Are some maybe solicitious about giving you a call periodi-cally, but you don't really see much of them? Or, are some of your friends from before TM becoming even better and closer friends. I am talking about emotional support, visits, outings, etc. I am wondering how many have stuck with you or traveled on after the initial onset and de-hospitalization period. Maybe it has stayed the same. Janice 01_tile.jpg01_side.gif
Re: [TMIC] Friendships
Wonderfully said, Mindy! ---Original Message--- From: Lawrence King Date: 7/23/2009 12:42:01 PM To: tmic-list@eskimo.com Cc: Lawrence King Subject: Re: [TMIC] Friendships I've not lost any friends and in fact, with the addition of all of you and the other groups I have joined on line as a result of this disease, my list of friends has increased tenfold. Major life changes always cause a shift in focus and friends who no longer have similar understandings often fade away. I left the craft word for the Antique restoration world and both lost and gained dozens of friends. As an extreme Introvert my definition of friendship is a little different than many; I find frequent contact taxing even with the people I love most, but I am grateful for the knowledge that there are a great many people who would be there for me should I need them. You encourage each other, You pray for each other; I have seen some of you actually make the effort to meet in person and I have watched as some of you even support each other financially in times of need. The new reality is that best friends can now meet and never see each others face. I meet people all the time who are too busy to consider having a new friend an I bet if we take an inventory of these internet friends many of us can say we have gained more than we have lost. Mindy the Artisan On Jul 23, 2009, at 1:10 PM, Janice wrote: I have another question that has been rolling around in my head. Have any of you lost/gained friendships after developing TM/MS? Are some maybe solicitious about giving you a call periodi-cally, but you don't really see much of them? Or, are some of your friends from before TM becoming even better and closer friends. I am talking about emotional support, visits, outings, etc. I am wondering how many have stuck with you or traveled on after the initial onset and de-hospitalization period. Maybe it has stayed the same. Janice 01_tile.jpg01_side.gif
Re: [TMIC] About Lynne--Our ROSEOFRENO.
What a beautiful note, GracieJeanne ---Original Message--- From: Grace M. Date: 7/26/2009 4:31:15 PM To: roseofr...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] About Lynne--Our ROSEOFRENO. Dearest Lynn, Thank you so much for your most kind words. You know, several months before you helped me, I had totally given up the advocacy effort, leaving it all in the hands of our founder, Tim Mulvihill. (Deceased since March of 2008, and now the angel on my shoulder.) I was so ill back then, both in body and soul, and the often sad stories of other patients and the deaths that the group had experienced, were just too much for me. Tim and I both, spent many hours crying over the telephone to each other. He was an extremely loving and kind man, and the plight of patients affected him deeply. The day that I received that envelope and card from you, I cried like a baby Can you ever imagine how wonderful it was to know that someone who didn't know me from Adam, actually cared? It opened my eyes and helped me to realize that the singular most important thing I could ever do, would be to let others suffering from this *thing* know that that there was someone out there, who cared what happened to them. It's still bittersweet for me, and every now and again, I start to feel overwhelmed and need to withdraw just a bit. I know in my heart that I'll never give it up, and will continue to do the best that I can to reach out to patients, and to spread NMO awareness. (The good and great Lord has blessed me with a very big mouth. ;-) Much love, Gracie 01_tile.jpg01_side.gif
