Greg,
I wish I could help you but I just don't know. I hate to say this but
everyone is different.
Today I just found out I have a stage 4 wound on my butt.
We all shouldn't have to go through all this crap for the rest of our lives.
Bobbie
"Be the change you want to see in the world".
It's a temporary medicine. Not sure what it's called but I kept it around at
one time. You might ask a doctor. It's only for "emergencies".
From: Greg
To: quad-list@eskimo.com
Sent: Wednesday, March 28, 2018 5:28 PM
Subject: Re: [QUAD-L] AD?
It could be
Wednesday, March 28, 2018 12:46 PM
*Subject:* [QUAD-L] AD?
When you get an AD Headache, does the pain stay in your head, or does
your chest cramp too? This morning, for no know reason, just getting
dressed, I thought my head was going to explode out my left eye. But
my chest cramped so hard it hurt
cause of it all has
been eliminated. Could have been gas?
From: Greg
To: quad-list@eskimo.com
Sent: Wednesday, March 28, 2018 12:46 PM
Subject: [QUAD-L] AD?
When you get an AD Headache, does the pain stay in your head, or does your
chest cramp too? This morning, for no know r
When you get an AD Headache, does the pain stay in your head, or does
your chest cramp too? This morning, for no know reason, just getting
dressed, I thought my head was going to explode out my left eye. But my
chest cramped so hard it hurt too. Then my abdomen area starts to groan.
As it groan
Hi all,
After a few bowel movements over a two day period my symptoms have gone
away. I am still going to the urologist but reschedlued it for a later
date.
As for the insurance, at my work I have about 450k of life insurance and am
trying to get another 500k 15-20yr term but my quote from Zande
Velcro J
From: Larry Willis [mailto:lwillis82...@gmail.com]
Sent: Wednesday, July 15, 2015 4:58 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD during urination
I say sew it on and seal it with plumbers putty. Can't feel it.so what the
heck! Worth a shot! :):):):) ha
: "John S."
> Cc: "wheelch...@aol.com" , "todd.daughe...@gmail.com"
> , "quad-list@eskimo.com"
> Subject: Re: [QUAD-L] AD during urination
>
> Umm, perhaps it was just me but I didn't quite understand the directions
> which prevent t
Umm, perhaps it was just me but I didn't quite understand the directions which
prevent the external catheter from blowing off at night.
Could you please repeat the placement procedure for one of those nurses whose
education was deficient in the mechanical and engineering sciences?
Sent from my
M EDT
> To: "John S." , "wheelch...@aol.com"
> , "todd.daughe...@gmail.com" ,
> "quad-list@eskimo.com"
> Subject: Re: [QUAD-L] AD during urination
> Reply-To: Danny Hearn
>
> I'm sorry I read it wrong--thought you had to be cathed. da
[QUAD-L] AD during urination
any abrasion of the internal skin can/would cause that. Perhaps that is why
your Uro wants a look see of your urethra. I hope its clear and nothing
serious.Best Wishes In a message dated 7/15/2015 9:48:20 A.M. Central Daylight
Time, todd.daughe...@gmail.com writes
.
Original message
From: wheelch...@aol.com
Date: 07/15/2015 12:34 PM (GMT-05:00)
To: todd.daughe...@gmail.com, quad-list@eskimo.com
Subject: Re: [QUAD-L] AD during urination
any abrasion of the internal skin can/would cause that. Perhaps that
is why your Uro wants a look
Yep, Wheel is right you can have an abrasion or raw spot inside...I was
cathed 3 times a day, but after about 3 years I started getting ( strichters )
which means blockage inside me, they removed it twice but it kept coming back
so my Urologist told me to get a Supra-pubic indwelling type ca
any abrasion of the internal skin can/would cause that. Perhaps that is
why your Uro wants a look see of your urethra. I hope its clear and nothing
serious.
Best Wishes
In a message dated 7/15/2015 9:48:20 A.M. Central Daylight Time,
todd.daughe...@gmail.com writes:
Hi all,
I am C6
Hi all,
I am C6 inc post 26 years, switched over from cath to external condom cath
about 12 years ago. Recently, during urination I am getting AD symptoms,
headache, bp is going up, and as soon as I am done it goes away.
Culture came back clean, no uti, and I have a urologist appointment next
wee
I was recently in the hospital and they were taking my blood pressure at
least twice a day. While I was in there I was taking regular stole
softeners twice a day and I noticed my blood pressure was almost normal all
the time. Sure it dropped when I got up, but it didn't go high like it does
at home
Greg, as you know, I've preached for daily bowel movement for years. Most
people empty their bladders 5 or more times a day... and urine is almost
sterile. Feces is another matter. Some people go twice a day, because
feces is waste and waste produces... gas.
Best Wishes
In a message
My UTI and Yeast infection are gone, but the high BP and headaches keep coming back. It's just got to be my soft stool. When my body spasms, it must be spasming around my intestines that have some gas in them or something. Once I sit up and my stomach groans a bunch, my headache goes away. I've had
I'm having a similar problem. Sometimes my BP shoots up to 180/100.
On Tuesday, September 2, 2014, Fragile wrote:
> been having the same problem for about 2 years, don't know what is causing
> it, and Drs aren't interested in finding out
>
>
> On Tue, Sep 2, 2014 at 4:26 PM, > wrote:
>
>> I’m s
been having the same problem for about 2 years, don't know what is causing
it, and Drs aren't interested in finding out
On Tue, Sep 2, 2014 at 4:26 PM, wrote:
> I’m still having the A.D. issue. High blood pressure and pounding headache
> when I lay down or when washing my crotch area. While in
I’m still having the A.D. issue. High blood pressure and pounding headache when
I lay down or when washing my crotch area. While in the E.R (i.e. my last
message) they CAT Scanned my head to make sure I didn’t have a stroke. They
also CAT Scanned my groin area again. I just had that done the nig
Hello fellow quads,
I'm just going to throw this one out there and we'll ponder over any
replies.
I am a C-5/6 quad, mostly healthy, but throughout my 48 years of Post SCI
have occasions where my blood pressure will be skyhigh in two minutes later
in the basement.
An example that I can
Hello fellow quads,
I'm just going to throw this one out there and we'll ponder over any
replies.
I am a C-5/6 quad, mostly healthy, but throughout my 48 years of Post SCI
have occasions where my blood pressure will be skyhigh in two minutes later
in the basement.
An example that I can u
[mailto:r.pra...@sbcglobal.net]
Sent: Monday, February 10, 2014 8:47 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
these doctors are guessing at best. they need to read about the definition of
autonomic dysreflexia and maybe they could begin to comprehend. in any case
nurse you hemmroids and
have an appt the 25th J
From: Rene Bullard [mailto:moip...@yahoo.com]
Sent: Monday, February 10, 2014 7:32 PM
To: nichole rohling
Subject: Re: [QUAD-L] AD
I know its going to be time down but you need the the butty fixed then it well
all go back to the old you...
On Monday
sure hope you get it
figured out, be praying for you Nicki. Dan H**
From: nichole rohling
To: quad-list@eskimo.com
Sent: Monday, February 10, 2014 4:36 PM
Subject: RE: [QUAD-L] AD
I’m so frustrated……….went to dr today and they’re putting me on a high
up by taking them
everyday. high blood pressure isn't your problem, the prob is whats triggering
the dysreflexia.
ron
keep From: Danny Hearn
To: nichole rohling ; "quad-list@eskimo.com"
Sent: Monday, February 10, 2014 6:40 PM
Subject: Re: [Q
Yes. Ended up having an urostomy procedure done. I still have some pain, but I
don't have the bouts with AD like I used to.
My recovery was pretty long and difficult, but all in all for me it was the
only option other than continuing on with dysreflexia and other problems.
Q
Sent from my iPad
>
My primary physician mentioned that this might be an alternative for me. Trying
to find something I can use to control spasms. They think my medication for
bladder spasms might be causing spikes in my blood pressure. I'm not sure
anymore. I have ceased taking the medication most of the time and
Check for ingrown toenails, cather placement any broken bones below injury.
Just a few thoughts, hopefully some help.
From: nichole rohling
To: 'Danny Hearn' ; quad-list@eskimo.com
Sent: Monday, February 10, 2014 4:34 PM
Subject: RE: [QUAD-L]
we’ve been doing it the night before J once we push it back in I’m good to go
thanks
From: Danny Hearn [mailto:ddh...@sbcglobal.net]
Sent: Monday, February 10, 2014 6:40 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
Nicki, after bowel routine have hemorrohid
2014 6:34 PM
Subject: RE: [QUAD-L] AD
no pressure sores but I have hemorrhoids and believe that is what triggered it
initially. I’m good once I’m up in my chair. Yes, headaches come on very
quickly and go away fairly quick. Thank you for the prayers…….it is scaring me!
Went to ER yesterd
blood pressure was
fine…….wasted trip!
Nicki
From: Danny Hearn [mailto:ddh...@sbcglobal.net]
Sent: Monday, February 10, 2014 5:10 PM
To: nichole rohling; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
I just keep thinking... there has to be something wrong causing the A.D. In
the past
ived close to a SCI
hospital.
From: nichole rohling [mailto:zoocr...@windstream.net]
Sent: Monday, February 10, 2014 12:06 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] AD
Just curious if anyone has had a bad case of AD and then experience
hypersensitivity that causes AD more often. I had
Just curious if anyone has had a bad case of AD and then experience
hypersensitivity that causes AD more often. I had a bad case on Feb 1 and
now just putting the sling under me, unbuttoning my pants, coughing, taking
my shoes off, pulling wedge out from under my feet causes my blood pressure
to
I asked the urologist about botox, he doesn't use it. I'd have to travel
to ABQ, long rough trip. Every bump in the road hurts. Also been having
trouble with AD just from sitting up for a couple of hours.
On Fri, Feb 7, 2014 at 7:58 AM, wrote:
> For some, botex injections, inside the bladde
Ooops. I meant to say BOTOX
Best Wishes
In a message dated 2/7/2014 8:43:24 A.M. Central Standard Time,
swl...@gmail.com writes:
Did you find a solution for bladder atrophy and the bladder wrapping
around the catheter?
On Thu, Feb 6, 2014 at 5:34 PM, Quadius <_quadius@gmail.com_
(
For some, botex injections, inside the bladder, can help with bladder
spasms. Not for everyone, it is best to check with your Uro to determine if
you are a candidate for this procedure. Its also successfully used to
prevent bladder spillage with older/seniors with bladder issues.
Best Wishe
Did you find a solution for bladder atrophy and the bladder wrapping around
the catheter?
On Thu, Feb 6, 2014 at 5:34 PM, Quadius wrote:
> I had some problems with pain and AD whenever I've had my suprapubic. I
> found that a lot of the problems were occurring because the catheter was
> rubbing
Any time the catheter moves it triggers dysreflexia, so I keep it taped
down. Draining the collection bag also triggers a very short episode of
dysreflexia, so I wonder if something is going on inside the bladder. I
started using the duette catheter, so far it hasn't made any difference.
The onl
I had some problems with pain and AD whenever I've had my suprapubic. I found
that a lot of the problems were occurring because the catheter was rubbing
against the back of the bladder. Have you tried tethering the catheter to your
belly so that it doesn't slide into the bladder too far? You mig
PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD episodes
There is a good chance the ad will lessen as time goes on. just make sure
you have meds to lower your bp if you start getting a pounding headache.
Ron
From: Fragile
To: quad-list
Sent: Wednesday, February 5, 2014 8:34 AM
Subjec
There is a good chance the ad will lessen as time goes on. just make sure you
have meds to lower your bp if you start getting a pounding headache.
Ron
From: Fragile
To: quad-list
Sent: Wednesday, February 5, 2014 8:34 AM
Subject: Re: [QUAD-L] AD episodes
I've been having trouble with AD for the past 14 months after having a SP
cath put in. The first few days after the catheter is changed, AD occurs
every 10 minutes or so. Transferring in and out of my chair also sets it
off. When getting dressed, any contact to the groin area also sets it
off.
I had a very bad AD "episode" back in 1986 before anybody knew what it was and
what he signs are.
I was hospitalized for severe headache's, they ended up putting an elderly
woman who was almost complexly deaf in my room. Every person who came to
communicate with her had to SHOUT!
It ended up hav
Not sure, I'll ask at my next visit.
From: "wheelch...@aol.com"
To: blackwood4...@yahoo.com; quad-list@eskimo.com
Sent: Wednesday, March 13, 2013 8:42 PM
Subject: Re: [QUAD-L] AD
Ok, Understood. That is what I thought but wanted to make
arch 12, 2013 6:49 PM
Subject: Re: [QUAD-L] AD
Interesting challenge Blackwood. What is the condition of your sphincter?
Is it intact and does it flex or rigid?
Best Wishes
In a message dated 3/12/2013 5:42:15 P.M. Central Daylight Time,
blackwood4...@yahoo.com writes:
Onc
sphincterotomy,
unfortunately I still could not void enough, so came the foley.
From: "wheelch...@aol.com"
To: quad-list@eskimo.com
Sent: Tuesday, March 12, 2013 6:49 PM
Subject: Re: [QUAD-L] AD
Interesting challenge Blackwood. What is the co
That happens to me a lot, usually it is an infection. How does one determine if
it is blocked?
- Original Message -
From: "nichole rohling"
To: jume9...@comcast.net, "Quad-List@Eskimo. Com"
Sent: Wednesday, March 13, 2013 8:55:32 AM
Subject: RE: [QUAD-L] AD
Meredith,
I get chills and when there is no urine in my bag we know it’s blocked. The
headache is a result of blood pressure skyrocketing.
Nicki
From: jume9...@comcast.net [mailto:jume9...@comcast.net]
Sent: Tuesday, March 12, 2013 8:22 PM
To: quad-list
Subject: Re: [QUAD-L] AD
forwarded message:
> From: "nichole rohling"
> Date: March 11, 2013, 7:08:32 PM EDT
> To: , "Quad-List@Eskimo. Com"
> Subject: RE: [QUAD-L] AD
>
> I’m tellin’ you, I really was thinking I was going to stroke out! I would get
> severe AD in the first yea
bject: RE: [QUAD-L] AD
my ex also changed my cath when needed but was by far the best hair dresser
ever……….and I’m serious!
Nicki
From: diannal...@aol.com [mailto:diannal...@aol.com]
Sent: Tuesday, March 12, 2013 6:40 PM
To: wheelch...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-
my ex also changed my cath when needed but was by far the best hair dresser
ever……….and I’m serious!
Nicki
From: diannal...@aol.com [mailto:diannal...@aol.com]
Sent: Tuesday, March 12, 2013 6:40 PM
To: wheelch...@aol.com; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
Thank you W. Yes, a
How did you know that you were blocked? Was it headaches? It sounds awful.
Meredith
- Original Message -
From: "Mike Mills"
To: "nichole rohling" , "Quad-List@Eskimo. Com"
Sent: Tuesday, March 12, 2013 3:41:56 PM
Subject: Re: [QUAD-L] AD
Once
r 12, 2013 6:53 pm
Subject: Re: [QUAD-L] AD
Diannal, your husband is also an angel. I hear they come in various shapes,
sizes and sexes. I applaud him for accepting the responsibility to change your
cath. In most areas, only registered nurses are allowed to do that, not health
aides. Just le
heelch...@aol.com)
[_mailto:wheelchair@aol.com_ (mailto:wheelch...@aol.com?) ]
Sent: Monday, March 11, 2013 3:36 PM
To: _quad-list@eskimo.com_ (mailto:quad-list@eskimo.com)
Subject: Re: [QUAD-L] AD
Nicki, I'm glad to read your story ending and hopefully the issue gets
better.
.
From: nichole rohling
To: 'Mike Mills' ; "Quad-List@Eskimo. Com"
Sent: Tuesday, March 12, 2013 3:01 PM
Subject: RE: [QUAD-L] AD
Mike,
How often do you have to change your catheter?
Nicki
From: Mike Mills [mailto:bla
Once every 4 weeks. Started about a year ago.
From: nichole rohling
To: 'Mike Mills' ; "Quad-List@Eskimo. Com"
Sent: Tuesday, March 12, 2013 3:01 PM
Subject: RE: [QUAD-L] AD
Mike,
How often do you have to change your catheter?
o and
clean up later J
-Original Message-
From: wheelchair
To: zoocrew1 ; quad-list
Sent: Mon, Mar 11, 2013 4:57 pm
Subject: Re: [QUAD-L] AD
Your Mom is an Angel. That deed was not easy from all sides of the issue. I'm
sure you were barking out orders while she was d
olved!!
Nicki
-Original Message-
From: greg [mailto:g...@eskimo.com]
Sent: Tuesday, March 12, 2013 2:16 PM
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] AD
I only got that bad a few times.
Once when I was intermittent cathing. I was only a few years post injury and
happened to be at the hos
I only got that bad a few times.
Once when I was intermittent cathing. I was only a few years post injury and
happened to be at the hospital visiting my former nurses. I was in the
cafeteria and started sweating. I thought I'd last until we got home, but
within minutes my head was going to expl
Mike,
How often do you have to change your catheter?
Nicki
From: Mike Mills [mailto:blackwood4...@yahoo.com]
Sent: Tuesday, March 12, 2013 8:14 AM
To: nichole rohling; lwillis...@yahoo.com; Quad-List@Eskimo. Com
Subject: Re: [QUAD-L] AD
If I ever get to the point were my Foley
twist,
leaving me bleeding and stinging. Its not as bad as it sounds, but something
else will need to be done.
From: nichole rohling
To: lwillis...@yahoo.com; "Quad-List@Eskimo. Com"
Sent: Monday, March 11, 2013 7:08 PM
Subject: RE: [
[mailto:lwillis...@yahoo.com]
Sent: Monday, March 11, 2013 5:51 PM
To: quad-list@eskimo.com
Subject: Fwd: [QUAD-L] AD
Whew! I can feel your misery, Nikki. There is nothing else in the world like
it. Take care of yourself. Our old puny bodies can't take much of that.
Sent from my iPad
Begin forw
11, 2013, 3:28:18 PM EDT
> To: "Quad-List@Eskimo. Com"
> Subject: [QUAD-L] AD
>
> Wow! Nothing like a big dose of AD to start my week off.
>
> My catheter has been stopping up so I went to dr 8 weeks ago (I’m sure I have
> a bladder stone). He ordered CT s
to:wheelch...@aol.com]
Sent: Monday, March 11, 2013 3:57 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
Your Mom is an Angel. That deed was not easy from all sides of the
issue. I'm sure you were barking out orders while she was doing her best.
thanks Shirley, I was almost in tears my head hurt so badhadn't had that
in probably 14 yrs...only mild dysreflexia.
Nicki
From: shirley bell [mailto:sbell...@cox.net]
Sent: Monday, March 11, 2013 3:48 PM
To: nichole rohling
Subject: Re: [QUAD-L] AD
sorry to hear this. gla
, results, and get whatever done to fix my problem!
Nicki
From: wheelch...@aol.com [mailto:wheelch...@aol.com]
Sent: Monday, March 11, 2013 3:57 PM
To: zoocr...@windstream.net; quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
Your Mom is an Angel. That deed was not easy from all sides of
eskimo.com
Subject: Re: [QUAD-L] AD
Nicki, I'm glad to read your story ending and hopefully the issue gets
better.
Remember, when changing an indwelling cath... even in an emergency..
one has to maintain a sterile or clean area to remove the old cath and allow
urine to pass and
to and
clean up later J
From: wheelch...@aol.com [mailto:wheelch...@aol.com]
Sent: Monday, March 11, 2013 3:36 PM
To: quad-list@eskimo.com
Subject: Re: [QUAD-L] AD
Nicki, I'm glad to read your story ending and hopefully the issue gets better.
Remember, when changing an indwelling
Nicki, I'm glad to read your story ending and hopefully the issue gets
better.
Remember, when changing an indwelling cath... even in an emergency..
one has to maintain a sterile or clean area to remove the old cath and allow
urine to pass and then install a new sterile cath. I'm sure y
Wow! Nothing like a big dose of AD to start my week off.
My catheter has been stopping up so I went to dr 8 weeks ago (I'm sure I
have a bladder stone). He ordered CT scan and I've had to reschedule it 3
times in 6 weeks because of weather, getting it done tomorrow (thank God).
My home healt
Video presentation and information about Autonomic Dysreflexia (AD), what it
is, why it happens, how to treat it, etc.
http://sci.washington.edu/info/forums/reports/autonomic_dysreflexia.asp
Lots of other videos on a variety of SCI topics at:
http://sci.washington.edu/info/forums/forum_v
Good articles on AD, it's hard to believe everyone hasn't had AD. Like everyone
has said the headache you will never forget & sweating profuse ly.
I usually take one vicodin 500 mg during day, not every day.
Lindaf
In a message dated 1/13/2011 6:39:14 PM Eastern Standard Time,
hellodav...@aol.com writes:
she'd hurry - bumped me up ahead of everyone on her schedule. I gotta do
something nice back, any ideas?
I don't think you need to do anything. She was doing her job. Your
condition was serious!
In a message dated 1/13/2011 5:12:06 PM Eastern Standard Time,
lorilivin...@gmail.com writes:
Having said that, if I have missed it before... do you pay for your
caregiver (s) 24 hours a day or???
No,,, a relative.
www.lwgripgloves.com/)
From: hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To: quad-list@eskimo.com
Subject: [QUAD-L] AD - once is enough
I had a plugged Foley a week ago - in about 12 hours I was talking to God
- making arrangements for my departure/arrival. I called my visiting nur
I don't think my whole message made it through. Here tis again.
From: lwillis82...@msn.com
To: quad-list@eskimo.com
Subject: RE: [QUAD-L] AD - once is enough
Date: Thu, 13 Jan 2011 17:17:59 -0500
I have had two very serious episodes of AD that resulted in ambulance rides.
The sa
Anisette Whitehead
_www.lissettesgoaltowalk.synthasite.com_
(http://www.lissettesgoaltowalk.synthasite.com/)
_www.lwgripgloves.com_ (http://www.lwgripgloves.com/)
From: hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To: quad-list@eskimo.com
Subject: [QUAD-L] AD - o
___
From: hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To: quad-list@eskimo.com
Subject: [QUAD-L] AD - once is enough
I had a plugged Foley a week ago - in about 12 hours I was talking to God
- making arrangements for my departure/arrival. I called my visiting nur
27;ll never let that happen
again.
Lissette Whitehead
www.lissettesgoaltowalk.synthasite.com
www.lwgripgloves.com
From: hellodav...@aol.com
Date: Thu, 13 Jan 2011 15:42:20 -0500
To: quad-list@eskimo.com
Subject: [QUAD-L] AD - once is enough
I had a plugged Foley a week ago - in about
And now ya know why they call it waste. Unless you are getting paid
interest, its not worth holding, storing or saving (my sick humor, i know)
WHAT'S IN YOUR BOWEL
Best Wishes
In a message dated 1/13/2011 4:18:34 P.M. Central Standard Time,
lwillis82...@msn.com writes:
I truly thou
. We never found a
direct cause, but our best guess is impacted bowel -- 10 lbs. of poop in a 5
lb. sack. Larry Willis, c-5, 1971
From: diannal...@aol.com
Date: Thu, 13 Jan 2011 16:59:09 -0500
Subject: Re: [QUAD-L] AD - once is enough
To: hellodav...@aol.com; quad-list@eskimo.com
In a
In a message dated 1/13/2011 3:43:05 PM Eastern Standard Time,
hellodav...@aol.com writes:
She was here in about the longest 45 minutes I have ever spent
I didn't know we could survive 45 minutes of that! I've been in A.D. from
plugged foleys and I felt like I was going to stroke out any
...@aol.com wrote:
From: hellodav...@aol.com
Subject: [QUAD-L] AD - once is enough
To: quad-list@eskimo.com
Date: Thursday, January 13, 2011, 12:42 PM
I had a plugged Foley a week ago - in about 12 hours I was talking to God
- making arrangements for my departure/arrival. I called my visiting
I had a plugged Foley a week ago - in about 12 hours I was talking to God -
making arrangements for my departure/arrival. I called my visiting nurse
who does monthly changes for me and she heard the stress in my voice. She
was here in about the longest 45 minutes I have ever spent - well wi
Yes it is- I was afraid I was going to create a heart condition worrying about
it.
Tim
WhoopieKat.com
--- On Thu, 2/5/09, Dan wrote:
From: Dan
Subject: Re: [QUAD-L] AD and no heart condition
To: quad-list@eskimo.com
Date: Thursday, February 5, 2009, 11:12 AM
That, my friend, is GOOD
That, my friend, is GOOD news!
Dan
At 11:45 AM 2/5/2009, t crook said something that elicited my response:
Last month I posted- "I was just recently diagnosed with inherited
Cardiomyopathy." My diagnosis came when I went to the hospital for
being really short of breath and in atrial fib; I wa
Lol, ats it exactly! aside from killing you, it is damnned uncomfortable!
john
- Original Message
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: quad-list@eskimo.com
Sent: Wednesday, November 7, 2007 11:18:40 PM
Subject: Re: [QUAD-L] AD / Oxygen
I used saline do
I used saline down my trach it a mucus is thick, but I usually take a
breathing treatment also and that will loosen up the mucus with albuterol. Do
you?. I have been up oxygen at night at home, when my oxygen levels were
low ,
but that was usually after bronchitis.I really hate wearin
Yes, I do all the time.
It's like heavy exercise every time I eat...
Greg
---
Does anyone else feel out of breath when eating?... I do really bad.
Hec
Does anyone else feel out of breath when eating?... I do really bad.
Hec
se it, glad to have input on
this subject I thought I was the only one that suffered with this. Oh yea!
I use saline down my track to, it loosens up the secretions.
Silas
From: Greg [mailto:[EMAIL PROTECTED]
Sent: Monday, November 05, 2007 10:46 AM
To: quad-list@eskimo.com
Subject: [QUAD-
Hey Greg (and Dan),
Well, I just spent 15 minutes dictating and correcting an e-mail to
you and the whole computer shut down. Try number two!
I have had asthma since I was very little (hereditary). But it is
only triggered by a three or four things. These are animal dander,
humidity, the pow
Believe me that Oxygen is dispensed by RX only. You a script from a doctor
for even a small amount, so be aware before hand.
Check out this website and let me know what you think.
_www.hqinc.net_ (http://www.hqinc.net)
It's just the tool necessary for any Quad.
Best Wishes
In
Too warm in bed brings this on in me. Also, Mirapex (for restless legs -
spasms) seems to have something to do with it as does Melatonin (for sleep).
Maybe I'll switch back to booze. I REALLY hate the panic attacks. I have to
get up and sit in front of a fan or go outside in the open.
Did you guys ever consider a pulse/ox device? That way you would know if
you truly were short of oxygen.
Dan
Danny Hearn wrote:
*GregI also forgot to mention that I keep a small hand held
Albuteral spray with my meds and usually during summer months , if I
overheat or can't get enough ox
GregI also forgot to mention that I keep a small hand held Albuteral spray
with my meds and usually during summer months , if I overheat or can't get
enough oxygen ... I just inhale a couple of sprays thru my mouth and in a short
time feel much better.Dan H.
t;
To: quad-list@eskimo.com
Sent: Monday, November 5, 2007 11:46:11 AM
Subject: [QUAD-L] AD / Oxygen
I had a bad morning. I got overheated during the night, not much sleep. Then
just as I got up, my nose got stuffed up from allergies. Though I wasn’t in AD
(autonomic Distraflexia), I had that same
Hi, Greg...I know exactly what you mean, this happens to me also at times.
Luckily for me my wife sleeps by me and can help by turning me or getting me a
med to help relax me. Dan H.
Greg <[EMAIL PROTECTED]> wrote:I had a bad morning. I got
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