my feet became unanalyzed recently I now experience pins and needles under my
feet. is there anything that can be done to neutralize it?
re baclofen pump; i too inquired about the pump . my neuro recommended not to
have it for two reasons 1) very susceptible to infection and 2) can damage the
liver. instead am taking 30 mg in pill form
Date: Tue, 15 Nov 2011 08:24:12 -0800
From: tmic-digest-requ...@eskimo.com
Subject:
does anyone have her email please?
LinkedIn
gerry surette requested to add you as a connection on LinkedIn:
--
Kevin,
I'd like to add you to my professional network on LinkedIn.
- gerry
Accept invitation from gerry surette
http://www.linkedin.com/e/hmz8rt-gmhvi23c-43
Like most of us we suffer PAIN most of the day and nights. I am fed up with it.
My neuro prescribed hyromorhine. my family dr. says the this drug is highly
addictive. it helps a lot. now Dr. Frank suggested Dextromethorphan as a
substitute. Does anyone take this. ?what are tour side effects?
CALMNESS IN OUR LIVES
I am passing this on to you because it definitely works, and we could all
use a little more calmness in our lives. By following simple advice heard
on the Dr. Phil show, you too can find inner peace. Dr Phil proclaimed,
The way to achieve inner peace is
-digest Digest V2010 #680
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
tmic-digest Digest Volume 2010 : Issue 680
Today's Topics:
[TMIC] RE: tmic-digest Digest V2010 [ Gerry Surette suret...@sympatico.c ]
--Forwarded Message Attachment--
Date
hi Candy here is a suggestion re gabaptentin; after consulting with your neuro
have your dosage increase gradually until you hardly have any pain; together
with the gabapentin also get a prescription for baclofin. be careful though as
baclofin may have adverse affect on your liver. as well
re bladder problems I also had such difficulties voiding; until I went to my
urologist. he prescrice flomax. which has helped. having had chroinc mylelopaty
I know the pain and disscomfort bladder problems can cause
Date: Wed, 10 Nov 2010 08:43:08 -0800
From: tmic-digest-requ...@eskimo.com
I also experiene burning feet pins and needle. what does one use to bring the
swelling down gerry in Montreal
Date: Fri, 17 Sep 2010 17:24:50 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2010 #476
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
symtomsno no ! DAlton. take gabapenten for the muscles spasms; Zanaflex for the
spasticity (that is what it is made for) and baclofin for relaxing the muscles.
as a combination it works wonders. please trust me I experienced the same
symptoms'; for depression I take Wellbutin
. It is an anti
Emily if you have a moment watch youtube/transverse myletis. it might help to
understand more about the challenges. we are all there for you and your husband
olease keeo us informed and please do not hesitate to ask us questions; vent
your frustrations etc. we have all been there. gerry
Janice you are a God sent. very well said re emily gerry in Mtl.
Date: Thu, 16 Sep 2010 09:41:14 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2010 #460
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
tmic-digest Digest
Janice; Zanaflex is used to treat spasticity
From: jan...@centurytel.net
To: suret...@sympatico.ca
Subject: Re: [TMIC] medications for spasms.
Date: Sun, 12 Sep 2010 17:10:18 -0500
Gerry, what does zanaflex do.I also take gabapentin and baclofen.
Janice
From: Gerry Surette
I used to have frequent spasms sometimes quite severe. i am now spasm free. I
know I get spasms but I just don't feel them. i take 800 mg. gabapentin three
times daily; 25 mg. of baclofin twice daily; and 8 mg. zanaflex three times
daily. this combination works for me. it took me about 2 years
been there ; still there although taking 300 mg of quinne-odan helps somewhat.
i wake up with my toes curled upwards. the pain is awesome. I then rub a535 on
my feet and the pain subsides and my toes become normal. I am usually up for an
hour or so I can get into bed. that is repeated about 4
I have good days and better days. none of this bad and worst days too
negative for my taste. re heat. i am different I am SPECIAL. whether it is
cold or hot. my body can not differentiate. It may be be 101 degrees. and i am
shivering. or minus 20 and I am sweating. ok perspiring; whichever
good afternoon everyone (except those on the west coast where it is still
morning) herein is an article that appeared in the recent Woman' World. yes i
am an avid reader of said magazine for the following reasons 1) I enjoy the
food recipes' why ( because I do all the cooking) I enjoy the
Hear Hear ! I know exactly how you feel. you were able to put into words what
many of us with TM experience every day! gerry montreal
Date: Tue, 27 Jul 2010 17:01:02 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2010 #321
To: tmic-dig...@eskimo.com
--Forwarded
many thanks to all for your infon on banding. gerry in montreal
Iris. I would like to know what banding is and how it relates to the body
thanks gerry montreal
I take 8 mg of zanaflex three times a day. I agree 100 mg seems a lot to me
only side effect is extreme dry mouth
Date: Sun, 11 Jul 2010 04:13:31 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2010 #293
To: tmic-dig...@eskimo.com
--Forwarded Message
what is Dalintin what does it do? never heard of it gerry in montreal still hot
and humid
Date: Sun, 11 Jul 2010 05:11:01 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2010 #294
To: tmic-dig...@eskimo.com
--Forwarded Message Attachment--
tmic-digest Digest
tell me about it. I just recovered from chronic myleopathy felt like passing an
elephant through my penis. I somehow know what you ladies go through giving
birth. anyway prior to that bout i used to go to the bathroom almost every 1
1/2 hours during the night. hardly none during the day. once
I take 30mg of baclofin twice a day. please check with your neuro prior to
increasing dosage; according to my neuro there could be severe damage to the
liver. every case is different.I have noticed however the positive difference
between taking 20 to 30 mg twice a day let us know. Have a great
I take 30 mg of baclofin twice a day. be careful though not to increase the
dosage on your own. Please check with your neuro as it can severely damage your
liver. Ihave noticed a definite positive result going from 20 to mg twice a
day. I asked my neuro re having a baclofin pump installed. he
in. So, we keep the temp low,
and
have ceiling fans in every room. Hope you get
improvement. I had to bug my doc several times for amount changes in meds
to get as comfortable
as I am. Hope you can too - let me know.
Janice
From: Gerry Surette
Sent
I too have severe nerve pain whether I walk do chores or whatever. I take
gabapentin ; for nerve pain xanaflex for spasticity and baclofen the
combination helps ne survive without the zanaflex i have trouble putting one
foot ahead of the other, it feels like i am pulling a 30 lb. ball with
hi there; while I had chronic myletopy; I received many good wishes. thank you
again for your caring and support. I have a question is the chat line still in
operation if so what is the link to it. thanks Gerry in montreal
hi Janet i know how you feel it took the dr.s close to a year to diagnoise tm I
had to wait unti li was paralized to get any help
Date: Wed, 19 May 2010 04:47:54 -0700
From: tmic-digest-requ...@eskimo.com
Subject: tmic-digest Digest V2010 #197
To: tmic-dig...@eskimo.com
--Forwarded
has anyone heard of chronic mylilopathy. i was recently diagagnos with it. I
have had tm the second time since 2001. what is the treatment many thanks gerry
in montreal. if so what is the usual treatment?
I had that problem with my bowels few years ago I mentioned it to my neuro and
he prescribed oxybutynin 5 mg take two tablets at bedtime preperfably the same
time every night. it took about 48 hours for it to take effect just an idea
Gerry in thunderstorms in Montreal
Date: Mon, 10
there is a recent question regarding health care in Canada. although I can not
speak for other provinces I believe the the following is a standard practice
among all Canadians. When One fills out their income tax one is charged $518.00
for medical prescriptions. when one fills out their income
THIS IS PRETTY NEAT. 93% won't forward
A small request.. Just one line
Dear God, I pray for the cure of transverse myletis . Amen
All you are asked to do is keep this circulating.
Even
Subscribe
I have double shower on on the wall and one hand lelh which shuts on and
off. It is called clark 2200. it is supplied for disabled people who can not
stand while having one for my spouse who can
--
From: Kevin Wolfthal wolft...@optonline.net
I have a clark 2200; just go to google clark2200 it is great. one shower
head for my wife and one for me
From: Kevin Wolfthal wolft...@optonline.net
To: montzma...@aol.com, tmic-list@eskimo.com
Subject: Re: [TMIC] OT: Shower mod questions
Date: Mon, 02 Feb 2009 13:35:55 -0500
Thanks Pam
re leg wraps: this reminds me of last April when I had a spleneotomy; I woke
up wearing these leggings up to my private parts: boy was I scared here I
was in recovery wondering if they had done a sex change operation by
mistake; the nurse then explained as you said it was to prevent blood
I could not agree with you more .Our life says Tom Hanks In Forrest Gump is
like a box of chocolate we never know what tomorrow brings gerry in minus 25
fr in Montreal
From: fr...@franksheldon.com fr...@franksheldon.com
To: Trudy Ogilvie mother...@gmail.com
CC: Tmic-list@eskimo.com
yes I have had that treatment twice; having had ItP this procedure helped
raise my white blood cell count. It didn't help me otherwise; the treament
last 4 to 5 hours intravenously from 3 to 5 days at a strech. If you go to
the hospital to have the trreatments my hemotologist recemmended I have
for
granted. I take 3600mg of gabapentin daily.
From: L T CHERPESKI cherp...@msn.com
To: tmic-list@eskimo.com, Gerry Surette suret...@sympatico.ca
Subject: Re: [TMIC] re gabapitin and Lyrica
Date: Thu, 18 Dec 2008 19:59:55 -0700
Well Gerry, I think you guys up there in Canada are responsible
I could not agree with you more; Rain what is that? Here in Montreal we
call it snow. I'll trade you. have a very healthy xmas and a happy it not
prosperous new year. gerry in Montreal Let it snow Let it ^%*^% snow. I
can't wait for Spring love to all
From: montzma...@aol.com
To:
a day. let us hope this
new medication works thanks for caring then again that is what this tm sight is
all about.
From: L T CHERPESKI
Sent: Thursday, December 11, 2008 11:16 PM
To: Gerry Surette ; Trudy Ogilvie
Cc: patticoo...@wi.rr.com ; tmic-list@eskimo.com
Subject: Re: [TMIC] SNOW
We in Montreal have received 10 inches of snow 3 inches of freezing rain
then another 3 inches of snow. tonight and tomorrow another 8 inches of
snow. I love seeing it on the ground it is beautiful; being housebound it is
a joy to see it I regret the number of people who have to go out in
This is a cute one, had to pass it on!!
---Original Message---
RELAX!!!
TO ALL MY 'NUTTY' FRIENDS
Have a fabulous STRESS FREE Day!
I thought everyone would
Hello to all you out there.
P-pray
Uuntil
Ssomething
Hhappens
I need this back... If you'll do this for me... I'll do it for
you..
When there is nothing left but God, that
Subject: FW: Fw: This is so beautiful. I will never complain again!!
This is awesome!
http://www.youtube.com/watch?v=GF9wo9sVn2c
___
Multimediajokelist mailing list
thanks I was hoping it would help. I know it helped me
From: jrushton [EMAIL PROTECTED]
Reply-To: jrushton [EMAIL PROTECTED]
To: Diane [EMAIL PROTECTED], tmic tmic-list@eskimo.com
Subject: [TMIC] This applies to all of us This is so beautiful. I will
never complain again!!
Date: Fri, 12
it was my pleasure;gerry in Montreal
From: Diane [EMAIL PROTECTED]
To: Gerry Surette [EMAIL PROTECTED],tmic-list@eskimo.com
Subject: Re: [TMIC] Thia applies to all of us This is so beautiful. I will
nevercomplain again!!
Date: Thu, 11 Sep 2008 13:07:33 -0400
Amazing !! Thanks Gerry
A few weeks ago when my physio therapist was here I had a spasm in my right
leg One could see my muscles protruding out of my leg. Anyway she said she
was happy to see it. I certainly didn't share her feelings. She then asked
me if she could correspond with my neuro. I asked her why, It was
Have yiou tried gabapentin; Why are you taking 8 10 other meds. I am not an
md but you should certainly check with your md. re side effects. Why do you
want to try lyrica? gabapentin workes the same way as lyrica with no side
effects. to me and this is my personal opinion the less drugs you
yes ; yes ; no
mine was omitted gerry 06 22 [EMAIL PROTECTED]
I know how you feel; I have experienced the similar symptoms.' Here is what
I do AS painful as it is I force myself to walk at least 15 to 30 minuties
a day. Every stept is agnoizing believe me. but I find at the end I have a
somewhat relief. at nightime I experince painful spasms. But I know
I use gagapentin for neuropathic pain 2 pills (600) mg three times a day.
I find no side effects and the liturature I have mention it numerous times.
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: Carol [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: Re: [TMIC] Neurontin Pain
Date: Tue, 13
Regina; I take baclofin for spasticity I can not walk without it. re
fatigue; it is a side effect of your medication you are taking; I found that
out the hard way. I asked my pharmacist to list all the side effects of the
medication I was taking. lo and behold three of the8 I take have fatuque
I had my spleen removed on Tuesday. everything went well. I have no pain
from the surgery. A little discomfort but otherwise ok.
just
a little discomfort. I hope this answers your question lol gerry
From: Carol [EMAIL PROTECTED]
To: Gerry Surette [EMAIL PROTECTED]
Subject: Re: [TMIC] operation
Date: Sat, 3 May 2008 16:00:01 -0400
Gerry,
So glad to hear that you are doing well with only a little discomfort. I
probably
Yes I have taking it for 4 or 5 years now in in conjunction with baclofin. I
find it helps alot.
From: Robert Pall [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] New Medication
Date: Wed, 23 Apr 2008 16:04:21 -0400
I just started a new drug to help relieve banding. The drugs
Surette [EMAIL PROTECTED], tmic tmic-list@eskimo.com
Subject: RE: [TMIC] New Medication
Date: Wed, 23 Apr 2008 13:48:38 -0500 (Central Daylight Time)
Gerry, how are you doing??
Jeanne
---Original Message---
From: Gerry Surette
Date: 4/23/2008 3:38:39 PM
To: [EMAIL PROTECTED]
Cc: tmic
*** Bubba
Those of us who spend much time in a doctor's office should appreciate
this! Doesn't it seem more and more that physicians are running their
practices like an assembly line? Here's what happened to Bubba:
Bubba walked into a doctor's office and the receptionist asked him
It is the opposite with me I have been on baclofin for approximately 5
years. I too felt stupid at the begining but taken in conjunction with
zanaflex; I can't walk or function without them. It took approximately five
changes in strengh before my neuro was pleased with the disage. The only
I know; but with with my loving wife beside me who can get a word in anyway:
hahah
From: Butcher, Bernard G (NY80) [EMAIL PROTECTED]
To: Gerry Surette [EMAIL PROTECTED],[EMAIL PROTECTED]
CC: tmic-list@eskimo.com
Subject: RE: [TMIC] med question - meloxicam and baclofen
Date: Tue, 8 Apr 2008
ITP is a disorder of the blood that affects the immune system. ITP stands
for immune thrombocytopenic purpua. It occurs when your body destroys its
own platelets in the same way it would destry harmful invaders susch as
bacteria.Usually when bacteria are dected the body makes antibodies which
thank you for your words of ecouragment ; It is truly helpful. To all of us
who have TM please have your platelet count done. It is part and parcel of
TM I am certainly not saying that you will get ITP my surgeon; who is cute
as a button; informs me that my case is a surprise happening ;
of this
month. Life is full of surprises
From: jrushton [EMAIL PROTECTED]
To: Gerry Surette [EMAIL PROTECTED]
Subject: RE: [TMIC] RE: tmic-digest Digest V2008 #158
Date: Fri, 4 Apr 2008 16:03:42 -0500 (Central Daylight Time)
Gerry, you were also a nurse???
Jeanne
---Original Message
please rember to check with your neuro before discontinuing baclofen. the
side effects could be very dangeous please see the instructions on the
leaflet;
From: [EMAIL PROTECTED]
To: randy rankin [EMAIL PROTECTED], TM Group tmic-list@eskimo.com
Subject: Re: [TMIC] med question - meloxicam and
I too am 60 years young. I too HAD a stiff neck. my solution is an oval
pillow. before I used this I could barely move my neck in the morning..
Scince I got the pillow. I have not had any problems. Talking about venting.
I was recently diagnoised with ITP I have to undergo 5 days of five hours
according to the latest info I receive it could be the flu(which is my case)
or a reaction to vaccination
From: sal r [EMAIL PROTECTED]
To: tm tmic-list@eskimo.com
Subject: [TMIC] time has passed butthis is for Every1 on the TMA list
Date: Tue, 25 Mar 2008 11:51:23 -0700 (PDT)
I know for
I know exactly how you feel. I 've had tm since the age 0f 21 have been able
to function until 2001 when I had a relapse. I too am 60 years young. My
plete count has gone way down a side effect of TM after numerous treatments
i now have itp. I have gone through three treatments of
]
To: Gerry Surette [EMAIL PROTECTED], tmic-list@eskimo.com
Subject: RE: [TMIC] So strange
Date: Mon, 24 Mar 2008 09:04:10 -0500 (Central Daylight Time)
Gerry! I was just getting ready to ask if anyone had heard from you! You
have really gone thru some rough times and now they are going to remove
your
WE all feel that way; you are not alone; by the way Please forgive me for
saying this but one aspect of TM is depression; you sound as if you are
experiencing some of this ARE you perhaps taking any depreesive medication;
It is part and parcel of TM We are one family experiencing all that you
the bubbles and as James brown says in his song I feel so good.
From: Heather Pieter [EMAIL PROTECTED]
To: Robert Pall [EMAIL PROTECTED], jrushton
[EMAIL PROTECTED], Gerry Surette [EMAIL PROTECTED],
tmic-list@eskimo.com
Subject: Re: [TMIC] It's okay...
Date: Mon, 24 Mar 2008 13:29:22 -0600
Rob
been there had that; M y experience in ICU was over the xmas holidays. the
ICU nurse was a god send. I was laying in bed. with tons of monitors; a
catater up my penis paralyis from the lung cage down. My heart had stopped
when they had tried to do a milogram. All of a sudden with two intravnous
Hi odile' My name is gerry; I know exatly how you and Frank feel. I f you
read my bio you wiill note the transaction in my life, What I ommited to
mention that apart from TM I also have ITP. This should be rectified this
coming Monday; I have also had prostate Cancer twice. Talk about hell on
CHERPESKI [EMAIL PROTECTED]
To: tmic-list@eskimo.com,Gerry Surette [EMAIL PROTECTED]
Subject: Re: [TMIC] reITP
Date: Thu, 28 Feb 2008 22:06:41 -0700
Hi Gerry, thanks for letting us know that you will be in the hospital. You
will definitely be in my thoughts and prayers. I like your attitude
Hi everyone; I have received numerous questions regarding ITP: My wife is
concerned that since I joined this site; she thinks I am having sex chats;;;
Just kidding here goes; the best sight I found is itpinfo.co.uk hope
this helps
: Gerry Surette [mailto:[EMAIL PROTECTED]
Sent: Friday, February 29, 2008 7:02 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] reITP
Thanks Linda; you will find the correlation of Itp and tm on page4 of
the acticleTransverse myelitis: symtons, causes and diagnosis at at our
own sight www.myelitis.org
: Gerry Surette [mailto:[EMAIL PROTECTED]
Sent: Friday, February 29, 2008 7:02 AM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] reITP
Thanks Linda; you will find the correlation of Itp and tm on page4 of
the acticleTransverse myelitis: symtons, causes and diagnosis at at our
own sight www.myelitis.org
Alton all I can say is AWESOME This is why I joined the tm family. lately
with all the bickering I wasn't sure this was for me. Let others share this
and contribute: I especially need all th e encourgement I can get. I feel
the video is just a part of it. It shows we should all strive to be
Hi everyone' As some of you know I will be entering the hospital next monday
morning for an intravenous gamaglobin including a bone maroow transplant.
Thuis will last five days. To backrack my plelete count is very very low. I
have ITP whereby my white blood cells are killing each other off.
Thank you Frank for sharing your story; Obviously you are worse off than I
am. God bless you; your tenacity with TM is an inspiration to me. please
keep in touch gerry
From: [EMAIL PROTECTED] [EMAIL PROTECTED]
To: Gerry Surette [EMAIL PROTECTED]
Subject: Re: [TMIC] my story
Date: Tue, 26 Feb
Hi Diane you can call me at 514 624 7203 anytime after I come out of the
lakeshore hospital which should be March the tenth. take care neighbour.
enjoy the 30 cm. of snow. let it snow let it snow spring is just around the
corner
From: Diane [EMAIL PROTECTED]
To: Gerry Surette [EMAIL
you are all a breathe of fresh air. Your words are not only enchanting but
encouraging. Here in Montreal we have received over three times the nomal
snowfall. a total of 350cm. so far and another 15 to 25 cm. storm coming
this week. I love the snow but when you have to go the store for the
89 matches
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