Re: [TMIC] OT - Happy & Safe 4th of July

2010-07-07 Thread Janice Nichols
Candis, I really hope the doc's can get to the bottom of what is happening to you. I bet they do and can start treating whatever it is right away. Janice -- From: "CANDISKALLEY" Sent: Sunday, July 04, 2010 5:30 PM To: "TMIC-LI

Re: [TMIC] I'm back!

2010-07-05 Thread Janice Nichols
Jeron, You made my day!!!Ever think you were sent to Trinidad for a reason? Your goodness and caring in reaching out to another has paid off tremendously - both for you and Christa. You are my kind of people! Janice From: j ra Sent: Monday, July 05, 2010 8:40 AM To: Transvers

Re: [TMIC] re walking with a cane

2010-07-05 Thread Janice Nichols
Gerry, are you not allowed enough baclofen to control the spasms? I use that too, and it took a while to get the right amount to work, but I really like it. Of course, I realize we are all different and can tolerate only so much. I would talk to your doc and see what can be done wi

Re: [TMIC] OT - Happy & Safe 4th of July

2010-07-04 Thread Janice Nichols
DITTO ! Janice -- From: "CANDISKALLEY" Sent: Sunday, July 04, 2010 6:51 AM To: "TMIC-LIST" Subject: [TMIC] OT - Happy & Safe 4th of July Wishing everyone a Safe and Happy 4th of July. May we all take a moment and say "TH

Re: [TMIC] 2010 - Here we go again!

2010-07-04 Thread Janice Nichols
I was really happy to hear that you are walking some without your walker - that is always encouraging.I let go of my cane some at home and kind of walk with the walls - sometimes without the walls. It takes so much time to improve - if nothing else hits you. Do you take neurontin

Re: [TMIC] July 2nd, I love this message written by Dalton.

2010-07-03 Thread Janice Nichols
You are right, Carol. These are 2 very valiant fighters.They are also allowed times when they need to vent and we are all here for that too. Janice From: cjb...@aol.com Sent: Friday, July 02, 2010 4:41 PM To: tmic-list@eskimo.com Subject: [TMIC] July 2nd, I love this message written b

Re: [TMIC] Anniversary

2010-07-02 Thread Janice Nichols
Naomi, I really hate what you are going through.Life can get pretty rough. Have they given you any creams, etc., to rub on the sores?My aunt had pressure sores and they gave her a cream to use and it did help some. How are you at lying on your stomach? Janice From: ladyno..

Re: [TMIC] 2010 - Here we go again!

2010-06-29 Thread Janice Nichols
Grace, I have not heard you talk about how you are feeling with the NMO for quite a while.How are you doing? Have you been given anything new that has helped you? Janice From: Grace M. Sent: Tuesday, June 29, 2010 7:49 PM To: Roger Pratt Cc: tmic-list@eskimo.com Subject: Re: [TMI

Re: [TMIC] 2010 - Here we go again!

2010-06-29 Thread Janice Nichols
Boy, you have really been through a lot! Since this is also an autoimmune disease, I assume you got it because of the TM or because of the reason you were hit with TM in the first place. Let us know how you are doing on the new meds. So sorry this happened, but, again, keep post

Re: [TMIC] anyone out there?

2010-06-24 Thread Janice Nichols
I am afraid you two will be our group a bad name! Janice From: L T CHERPESKI Sent: Wednesday, June 23, 2010 4:51 PM To: aca...@aol.com ; fr...@franksheldon.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] anyone out there? We're here, but frank told us to be quiet because we're drunk, went

Re: [TMIC] anyone out there

2010-06-23 Thread Janice Nichols
Nothing personal, just gets quiet sometimes. How are you two doing? Janice From: Dalton Garis Sent: Wednesday, June 23, 2010 7:45 AM To: aca...@aol.com ; tmic-list@eskimo.com Subject: RE: [TMIC] anyone out there I am right here; With TM and day-to-day. How are you doing? Dalto

Re: [TMIC] The "Sweats"

2010-06-19 Thread Janice Nichols
Cheryl, I have never heard of that before - how strange. Janice From: rn11...@yahoo.com Sent: Friday, June 18, 2010 1:14 PM To: Janice Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] The "Sweats" Hi Janice, Since tm,especially in summer,I sweat only on

Re: [TMIC] The "Sweats"

2010-06-19 Thread Janice Nichols
ackBerry® wireless device From: "Barbara H." Date: Fri, 18 Jun 2010 17:53:36 -0400 To: Janice Nichols Cc: Subject: Re: [TMIC] The "Sweats" I can't even go to the grocery store or Wal-Mart

Re: [TMIC] The "Sweats"

2010-06-19 Thread Janice Nichols
in the mornings rather than any other time of the day. Don't understand it. Janice From: Barbara H. Sent: Friday, June 18, 2010 4:53 PM To: Janice Nichols Cc: tmic-list@eskimo.com Subject: Re: [TMIC] The "Sweats" I can't even go to the grocery store or Wal-Mart

Re: [TMIC] The "Sweats"

2010-06-19 Thread Janice Nichols
ure index is to be 102 degrees. Hate that! Wish us all luck and comfort, Janice From: Janet Dunn Sent: Friday, June 18, 2010 12:56 AM To: 'Janice Nichols' ; tmic-list@eskimo.com Subject: RE: [TMIC] The "Sweats" Hi Janice About the sweats: I had them so bad that the

[TMIC] The "Sweats"

2010-06-17 Thread Janice Nichols
Would like a count of those bothered with "the sweats" - the really hot drippy sweats, even when in a relatively cool atmosphere. My doc calls it "disautonomia". It is the pits.Have it some in the winter, but it is really a problem in the summer. Anyone else, male or female, hav

Re: [TMIC] Anyone Remember Jude?

2010-06-16 Thread Janice Nichols
do besides physical activity. Keep those in mind too. Movies, plays, museums-as you have stated. I hope this works out for you - with the right kid, it sounds great! Janice From: Dalton Garis Sent: Tuesday, June 15, 2010 7:28 PM To: 'Janice Nichols' ; 'Jude Hoops' ;

Re: [TMIC] Wheels in Motion pictures.

2010-06-16 Thread Janice Nichols
Laura, this is very impressive. Well done! Janice From: Pieter and Heather Sent: Monday, June 14, 2010 10:45 PM To: Laura Beaudin ; tmic-l...@eskimo.net ; Transverse Mylitis Group ; msersl...@yahoogroups.com ; f...@yahoogroups.com Subject: Re: [TMIC] Wheels in Motion pictures. Laura, A

Re: [TMIC] Question

2010-06-13 Thread Janice Nichols
Ruben, My advice to anyone that develops something new like that is to see your neurologist as soon as possible. Good luck, Janice -- From: "Towery, Ruben Dale" Sent: Sunday, June 13, 2010 8:14 AM To: Subject: [TMIC] Question Hey everyone, I

Re: [TMIC]

2010-06-11 Thread Janice Nichols
Re: [TMIC]What was the time span between initial TM and MS diagnosis? From: Butcher, Bernie (S&FS) Sent: Friday, June 11, 2010 9:36 AM To: Janice Nichols ; Dalton Garis ; Laura Beaudin ; tmic-l...@eskimo.net Subject: RE: [TMIC] That's what my neuro said. I was diagnosed with TM unti

Re: [TMIC]

2010-06-10 Thread Janice Nichols
Re: [TMIC]Is it possible that with both brain and spine lesions that you have MS rather than TM?Janice From: Dalton Garis Sent: Thursday, June 10, 2010 10:34 PM To: Janice Nichols ; Laura Beaudin ; tmic-l...@eskimo.net Subject: Re: [TMIC] Janice; I can function normally

Re: [TMIC]

2010-06-10 Thread Janice Nichols
Do you mind my asking what are you able to do? Were your arms affected and how did it leave you with walking/not walking? Janice From: Laura Beaudin Sent: Thursday, June 10, 2010 11:43 AM To: Janice Nichols ; tmic-l...@eskimo.net Subject: Re: [TMIC] All my docs and therapists are on the

Re: [TMIC]

2010-06-10 Thread Janice Nichols
Re: [TMIC]Also the baclofen!Good luck and keep in touch in New York. Are you going to live there now? Janice From: Dalton Garis Sent: Wednesday, June 09, 2010 11:44 PM To: Janice Nichols ; tmic-list@eskimo.com ; Leslie Garis ; Garis, Brooks (Darien, CT) Subject: Re: [TMIC

[TMIC]

2010-06-09 Thread Janice Nichols
Got a couple of questions: 1.Have you noticed more bruising on affected areas of TM than you had before TM? 2.Have any of you had problems with your hamstring since TM? Janice

Re: [TMIC] banding

2010-06-07 Thread Janice Nichols
Re: [TMIC] bandingLet's hope that July helps you out a lot. I am assuming you will be seeing doctors in New York and, hopefully, get more help and insurance. Janice From: Dalton Garis Sent: Monday, June 07, 2010 6:34 AM To: Janice Nichols ; Kevin Wolfthal ; Patricia Cooley ; tmic

Re: [TMIC] banding

2010-06-06 Thread Janice Nichols
Re: [TMIC] bandingDalton, I was told by my neuro that once you have TM that you are more susceptible to MS. Your April attack sounds like your typical TM initial attack with the back pain, but I have not heard of convulsions going along with it. What does your neuro say about i

Re: [TMIC] banding

2010-06-05 Thread Janice Nichols
Okay, I think I may have seen the light on banding.When Janet mentioned banding after she ate, it triggered in my mind that many times when I go out to eat (not at home) I have a really hard time being able to walk out.I feel huge pressure around my middle and feel like I could faint.

Re: [TMIC] banding

2010-06-05 Thread Janice Nichols
"Tingling" is, I believe, a large part of TM.Mine, after over 4 years, has settled down somewhat.Don't know if that is because of meds or TM is less tingly.I feel it from my rear to me toes. Who knows about the nerves waking up - you never know.Improvements can come at any tim

Re: [TMIC] banding

2010-06-05 Thread Janice Nichols
I have never noticed it.Janice -- From: "Kevin Wolfthal" Sent: Saturday, June 05, 2010 3:28 PM To: Subject: [TMIC] banding Does anyone find that the sensation of banding worsens during times of emotional stress? Kevin

Re: [TMIC] Thanks

2010-06-04 Thread Janice Nichols
Jan, I have the lack of temperature control too. I hate it so much It makes me feel weak and miserable. Do you have anything that you take to try to help the situation? Janice From: Jan Hargrove Sent: Friday, June 04, 2010 6:08 PM To: Towery, Ruben Dale Cc: tmic-l

Re: [TMIC] Thanks

2010-06-04 Thread Janice Nichols
Ruben, That is part of the isolated feeling - not being able to get out like we used to, and having so rare a disease that no one can understand what you are going through. When the doctors get your pain/numbness/discomfort under control, your life will open up more. Just keep bugging the

Re: [TMIC] Thanks

2010-06-04 Thread Janice Nichols
Great reply, Jan.I hope both Ruben and Kelly Jean read this and take it to heart. Janice From: Jan Hargrove Sent: Friday, June 04, 2010 11:04 AM To: Towery, Ruben Dale ; tmic-list@eskimo.com Subject: Re: [TMIC] Thanks WOW!! You've really been put through the 'diagnostic' wringer!! I'm

Re: [TMIC] Thanks

2010-06-04 Thread Janice Nichols
We are just glad you joined us and want to hear from you whenever possible. Also, feel free to jump in at any time to give your advice or opinion of anything. Janice, Missouri -- From: "Towery, Ruben Dale" Sent: Friday, June 04, 2010 8:28 AM To: S

Re: [TMIC] new member

2010-06-04 Thread Janice Nichols
Kelly Jean, I have had TM since January of 2007. I just turned 60 the month before. I was paralyzed from the shoulder blades on down, but with proper meds, much physical therapy, and no one telling me that I would never do "whatever" again, I can walk on my own, sometimes with my cane.T

Re: [TMIC] Fwd: Check out Silver and Gold and Thee Presents ~*~Gi Joe and Lillie~*~

2010-05-31 Thread Janice Nichols
Absolutely beautiful!! Loved it, thank you. Janice From: bgunny7...@aol.com Sent: Monday, May 31, 2010 9:11 AM To: Tmic-list@eskimo.com ; babushka72...@aol.com Subject: [TMIC] Fwd: Check out Silver and Gold and Thee Presents ~*~Gi Joe and Lillie~*~

Re: [TMIC] Anyone Remember Jude?

2010-05-30 Thread Janice Nichols
I am walking, but my legs give way with no warning too.Hate that! Janice -- From: "Laura Beaudin" Sent: Sunday, May 30, 2010 10:57 PM To: "Janice Nichols" ; Subject: Re: [TMIC] Anyone Remember Jude? Nope...I was able to

Re: [TMIC] Anyone Remember Jude?

2010-05-30 Thread Janice Nichols
p://www.practical-homeschooling.org On 30/05/2010 10:48 AM, Janice Nichols wrote: Dalton, Welcome to the club. I have never heard of anyone getting MS first and then TM second. Usually it is the other way around. Doc told me that TM is sort of a cousin to MS. It is all autoimmune. Tell us more

Re: [TMIC] Anyone Remember Jude?

2010-05-30 Thread Janice Nichols
Jude, I agree with Jan. Keep us posted about how you are doing. I posted you a couple of months ago and got no response. Was worried about what was happening with you. So glad to hear from again.Do it as often as possible. Janice From: Jan Hargrove Sent: Saturday, May 29, 2

Re: [TMIC] forgot to say that I'm home

2010-05-30 Thread Janice Nichols
Jeron and Barbara, I am so excited for you guys to be able to do what you do.It shows we just have to keep trying and sometimes we succeed! Janice From: j ra Sent: Saturday, May 29, 2010 7:47 AM To: Transverse Myelytis ; balmat...@aol.com Subject: RE: [TMIC] forgot to say that I'm home

Re: [TMIC] Anyone Remember Jude?

2010-05-30 Thread Janice Nichols
Re: [TMIC] Anyone Remember Jude?Dalton, Welcome to the club. I have never heard of anyone getting MS first and then TM second.Usually it is the other way around.Doc told me that TM is sort of a cousin to MS. It is all autoimmune. Tell us more about yourself - your family, age,

Re: [TMIC] forgot to say that I'm home

2010-05-28 Thread Janice Nichols
Glad you are home and that you had such a fun and successful trip. Will be expecting more from you now! Janice From: Barbara Alma Sent: Friday, May 28, 2010 6:35 PM To: tmic-list@eskimo.com Subject: [TMIC] forgot to say that I'm home I'm sorry that I forgot to tell you all that I arrived

Re: [TMIC] testing

2010-05-26 Thread Janice Nichols
got it. Janice From: aca...@aol.com Sent: Wednesday, May 26, 2010 6:54 AM To: tmic-list@eskimo.com Subject: [TMIC] testing testing

Re: [TMIC] Living life on your own terms - accepting TM???

2010-05-22 Thread Janice Nichols
nce the beach. Hugs, Barbara A in Auburn CA -----Original Message- From: Janice Nichols To: j.d...@shaw.ca; tmic-list@eskimo.com; Barbara Alma Sent: Sat, May 22, 2010 8:58 am Subject: Re: [TMIC] Living life on your own terms - accepting TM??? Janet, you are right on the money.

Re: [TMIC] alive

2010-05-22 Thread Janice Nichols
Barb, I do like you do.If I have a few days that I know are going to be busy, I do it anyway knowing that for a couple of days after I will have to sit a lot and will be sleepy for good ole' vicotin.But, you just have to push and do what you want to do even though you know there will be

Re: [TMIC] Jeron's crisis

2010-05-22 Thread Janice Nichols
Re: [TMIC] Jeron's crisis50 years from now you may be surprised. It has happened to more than one author. Janice From: Dalton Garis Sent: Friday, May 21, 2010 11:03 PM To: Janice Nichols ; Regina Rummel ; tmic-list@eskimo.com Subject: Re: [TMIC] Jeron's crisis Thanks, janice

Re: [TMIC] Living life on your own terms - accepting TM???

2010-05-22 Thread Janice Nichols
Janet, you are right on the money. I, too, used to think "is this really happening?" Life is not the same, but it is life and I am surrounded with a great family and great friends. I am adjusting to the fact that we will not be doing any more beach vacations.Walking on sand wou

Re: [TMIC] $$$$$$$$$$$$$$ holy cow $$$$$$$$$$$$$$$

2010-05-21 Thread Janice Nichols
Life just isn't fair. Janice From: jeff bernier Sent: Friday, May 21, 2010 8:44 PM To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Subject: [TMIC] $$ holy cow $$$ i was the one that left the post a couple weeks ago about if a paraplegic can get an erection,well

Re: [TMIC] alive

2010-05-21 Thread Janice Nichols
What is zip-lining? Janice From: j ra Sent: Friday, May 21, 2010 4:23 PM To: Transverse Myelytis Subject: RE: [TMIC] alive Hey everybody, When I started this post, I sure as hell wasn't expecting the can of worms that I opened up! I got what you all said about me being selfish and trying to

Re: [TMIC] alive

2010-05-21 Thread Janice Nichols
Jeron, You made your dive!!I am sure it was more difficult, but you did it.So proud of you! Janice From: Bernard Pelow Sent: Friday, May 21, 2010 3:47 PM To: j ra ; TMIC Subject: Re: [TMIC] alive Good for you Jeron! And know that there will be days when you will still miss what yo

Re: [TMIC] Jeron's crisis

2010-05-21 Thread Janice Nichols
Re: [TMIC] Jeron's crisisYou are right - we can still be useful people.. After all, we have our brains and if our attitude can be kept in line with the brain, we can be very useful. Janice From: Dalton Garis Sent: Friday, May 21, 2010 3:17 PM To: Regina Rummel ; tmic-list@eskimo.com Sub

Re: [TMIC] alive

2010-05-21 Thread Janice Nichols
Rob, you are right on!! Can never quit. Jeron, we all have our nasty areas of the body that give pain or just won't work.But, the important thing, as I said earlier, is to find the right doctor that can and will make your life more acceptable. If one doc doesn't do the trick, try a

Re: [TMIC] Where TM struck

2010-05-20 Thread Janice Nichols
Have a Blessed Day, Naomi -Original Message- From: Janice Nichols To: tmic-list@eskimo.com Sent: Tue, May 18, 2010 12:04 am Subject: [TMIC] Where TM struck I did not get many replies to my as

Re: [TMIC] baclofen pump

2010-05-20 Thread Janice Nichols
Wed, 5/19/10, Janice Nichols wrote: From: Janice Nichols Subject: Re: [TMIC] baclofen pump To: "lynne myers" , "dennis rabalais" , "tmic" Date: Wednesday, May 19, 2010, 12:08 PM I have been very pleased with the amount

Re: [TMIC] alive

2010-05-20 Thread Janice Nichols
Jeron, I honestly don't know what to say to you.I don't have the complications you do, but my life is not independent any more.I panic at the thought that something could happen to my husband - besides his loss to deal with, I know I can not live alone. But, I can not believe you w

Re: [TMIC] baclofen pump

2010-05-19 Thread Janice Nichols
I have been very pleased with the amount of baclofen I take in pill form. It really has helped with knee-jerking spasms. Janice From: lynne myers Sent: Wednesday, May 19, 2010 7:44 AM To: dennis rabalais ; tmic Subject: Re: [TMIC] baclofen pump I have had a Baclofen pump for a 3

Re: [TMIC] Cymbalta & Lyrica

2010-05-19 Thread Janice Nichols
Cymbalta & LyricaI agree that doc's know almost nothing about TM.They realize the nerve problem, but that is it. I would say that about 80% of the time we asked questions about TM, the answer would be "we really don't know much about this disease" and "everybody gets hit with it differen

Re: [TMIC] RE: tmic-digest Digest V2010 #197

2010-05-19 Thread Janice Nichols
Neurontin [ "Janice Nichols" mailto:pieterheat...@shaw.ca] Sent: May 18, 2010 10:09 AM To: Janet Dunn; 'Robert Pall'; tmic-l...@eskimo.net Subject: Re: [TMIC] Neurontin Janet, How did your son make out at the doctors? Are they going to be putting him on s

Re: [TMIC] Neurontin

2010-05-18 Thread Janice Nichols
NeurontinJanet, I hope you get more help from the docs for your son and that he does get off the percocet easily.Please keep us posted on both of you. Janice From: Janet Dunn Sent: Tuesday, May 18, 2010 1:00 PM To: 'Pieter and Heather' ; 'Robert Pall' ; tmic-l...@eskimo.net Subject: RE:

Re: [TMIC] Cymbalta & Lyrica

2010-05-18 Thread Janice Nichols
I don't see how a chiro can help with the banding pain.What does he do? Janice From: jrushton Sent: Tuesday, May 18, 2010 10:11 AM To: Robert Pall ; tmic ; transversemyelitissupp...@yahoogroups.com Subject: Re: [TMIC] Cymbalta & Lyrica Thanks, Rob. I know Cymbalta also help

[TMIC] Where TM struck

2010-05-17 Thread Janice Nichols
I did not get many replies to my asking where people were living when TM struck them. Actually, it was really scattered. Sorry. Janice

Re: [TMIC]I tried Marinol too

2010-05-17 Thread Janice Nichols
[mailto:fr...@franksheldon.com] Sent: May 17, 2010 1:07 PM To: Janet Dunn; 'Janice Nichols'; 'Robert Pall'; tmic-l...@eskimo.net Subject: Re: [TMIC]I tried Marinol too Marinol didn't work, Then I travelled to Montreal, to the McGill University Health Center withi

Re: [TMIC]I tried Marinol too

2010-05-17 Thread Janice Nichols
How expensive was it? Janice From: fr...@franksheldon.com Sent: Monday, May 17, 2010 3:07 PM To: Janet Dunn ; 'Janice Nichols' ; 'Robert Pall' ; tmic-l...@eskimo.net Subject: Re: [TMIC]I tried Marinol too Marinol didn't work, Then I travelled t

Re: [TMIC] Thank you

2010-05-17 Thread Janice Nichols
Thank youIs that the medical name for marijuana?Janice From: Robert Pall Sent: Monday, May 17, 2010 1:51 PM To: Janet Dunn ; Janice Nichols ; tmic-l...@eskimo.net Subject: RE: [TMIC] Thank you Janice: I assume you are referring to "Marinol"...which I was on for a

Re: [TMIC] Thank you

2010-05-17 Thread Janice Nichols
Thank youIt is really strange the way meds affect us all differently. What works for one, won't work for another. All we can do is try. Janice From: Janet Dunn Sent: Monday, May 17, 2010 1:46 PM To: 'Janice Nichols' ; 'Robert Pall' ; tmic-l...@eskimo.net

Re: [TMIC] Ampyra

2010-05-17 Thread Janice Nichols
My "pins and needles" feeling has settled down quite a bit.Don't know if that is because of neurontin since the beginning of TM or it just faded with time. I am curious about the pro's and con's with Ampyra. Janice From: Robert Pall Sent: Monday, May 17, 2010 12

Re: [TMIC] Thank you

2010-05-17 Thread Janice Nichols
Thank youI need to check this out for Missouri! I take 1800 mgs of neurontin - was taking 2100, but was sleeping too hard at nite. I take 1 with breakfast, 2 at lunch, and 2 at dinner. Then at 8:30, I take 2 baclofen for leg spasms when I go to bed. Works pretty well.

Re: [TMIC] Moving

2010-05-17 Thread Janice Nichols
Good luck and don't end up too worn out. Janice From: Patricia Cooley Sent: Sunday, May 16, 2010 10:09 AM To: tmic-list@eskimo.com Subject: [TMIC] Moving Hi Everyone: This has been in the works for many months, but next Saturday, May 22nd, we are moving to Waupaca in Central Wisconsin.

[TMIC] Ampyra

2010-05-17 Thread Janice Nichols
I am going to talk to my doc about taking Ampyra. Are any of you on it? If so, what do you think of it? I have a friend with MS who is starting to take it. Janice

Re: [TMIC] Neurontin

2010-05-17 Thread Janice Nichols
NeurontinI have been on neurontin for over 3 years and have no side effects. Switched to Lyrica when it came out, and I too became swollen and miserable. Went right off of that! I do not have a severe banding, so not sure if meds take care of it or I was just lucky.

Re: [TMIC] health stuff

2010-05-17 Thread Janice Nichols
Jill, I have taken neurontin for over 3 years and have never had tongue numbness.Janice -- From: "Kevin Wolfthal" Sent: Sunday, May 16, 2010 10:07 PM To: "Jill Posner" ; Subject: Re: [TMIC] health stuff jill, I never took neurontin, my do

Re: [TMIC] health stuff

2010-05-15 Thread Janice Nichols
Have not had that problem, but glad you are doing a lot better now. Janice -- From: "Kevin Wolfthal" Sent: Saturday, May 15, 2010 10:07 PM To: Subject: [TMIC] health stuff Hi All, Well, this has been a weird week for me re: health. Tuesday ni

Re: [TMIC] update of our travels

2010-05-12 Thread Janice Nichols
I think this is absolutely the best thing for you both!! Email again after Los Vegas. Good for you guys! Janice From: Barbara Alma Sent: Wednesday, May 12, 2010 5:07 PM To: tmic-list@eskimo.com Subject: [TMIC] update of our travels We've had our share of everything from a warm 83

Re: [TMIC] Re: [Transverse Myelitis Support] Anniversary.................

2010-05-11 Thread Janice Nichols
In January, it will be 4 years for me.Seems like a lifetime. Janice From: jrushton Sent: Tuesday, May 11, 2010 10:34 AM To: transversemyelitissupp...@yahoogroups.com ; tmic Subject: [TMIC] Re: [Transverse Myelitis Support] Anniversary. Mine is in 9 days, Bonn

Re: [TMIC] TM

2010-05-07 Thread Janice Nichols
sp?) BUT as soon as we moved here in SW FL when she was 2, the attacks stopped. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original M

[TMIC] TM

2010-05-06 Thread Janice Nichols
After the awful news Janet Dunn has given us, I am wondering if where we live in the US has any relevance. I realize that there are those in our group that are from other countries and I am asking them along with our US citizens to just send me your name and the city and state you were livin

Re: [TMIC] just wondering

2010-05-06 Thread Janice Nichols
Your question is not offensive, but I am not able to help you. I am sure the guys can help you. Janice From: jeff bernier Sent: Thursday, May 06, 2010 5:12 PM To: msersl...@yahoogroups.com ; tmic-list@eskimo.com Subject: [TMIC] just wondering im sure some on the list may find this offensiv

Re: [TMIC] My Son

2010-05-06 Thread Janice Nichols
Janet, As a mother, I can not imagine the pain you are going through. I have not heard of this happening, but have asked my neuro if this was possible-thinking of my 36-year old daughter. He said that he has not heard of that happening and saw no reason why it would happen.Wait til I

Re: [TMIC] Travellin' woes (dang weather)

2010-05-02 Thread Janice Nichols
Bobby jim, Please tell her to take good care of herself and quit having "adventures"! I miss her emails, but probably now is not the best time to bug her about it! Janice From: bobby jim Sent: Sunday, May 02, 2010 7:17 PM To: tmic-list@eskimo.com Subject: [TMIC] Travellin' woes (dang w

Re: [TMIC] Mike

2010-04-30 Thread Janice Nichols
DITTO ! Janice From: Jan Hargrove Sent: Friday, April 30, 2010 5:06 PM To: bgunny7...@aol.com ; tmic-l...@eskimo.net Subject: Re: [TMIC] Mike Gunny, I know this has been a heavy heart day...my thoughts are with you and your family. As we age, the losses seem to make a bigger imprin

Re: [TMIC] Mike

2010-04-30 Thread Janice Nichols
Gunny, You are a heck of a guy and special in many ways.You are right, we all are connected with TM and each with their supportive families and friends. It is never easy to have to give up a loved one - like losing a piece of your heart. Hang in there, you are a strong person. Janice

Re: [TMIC] Tm SUPPORT GROUP MEETING

2010-04-30 Thread Janice Nichols
You have a great attitude which will get you through whatever comes, which has been a lot already. I really admire you. Janice, from Missouri From: cjb...@aol.com Sent: Friday, April 30, 2010 12:11 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Tm SUPPORT GROUP MEETING HI I am Carol i

Re: [TMIC] Medication Spreadsheet

2010-04-28 Thread Janice Nichols
cations and/or vitamins? Where would you think a good place to add a date column in front of medication or at the end of Type of Med. ? Thanks for the in put, Todd in CC, TX --- On Tue, 4/27/10, Janice Nichols wrote: From: Janice Nichols Subject:

Re: [TMIC] Honda Inovation

2010-04-27 Thread Janice Nichols
If I may butt in, I feel this machine won't work for anyone who doesn't have strong abdominal muscles. You core really has to do a lot of work.Would like to try it though. Janice -- From: "Laura Beaudin" Sent: Tuesday, April 27, 2010 1:18 AM

Re: OT: [TMIC] Amytretaline (sp)

2010-04-27 Thread Janice Nichols
Okay, guys. We have been doing that for quite a while.Also, the nurses love the fact that we tell them to just keep the copy of meds, etc. I make a list of any questions I may have, but putting that on the spreadsheet too is a good idea.Thanks Janice From: fr...@franksheldon.com S

Re: [TMIC] Amitriptyline

2010-04-26 Thread Janice Nichols
Laura, do you worry about the bladder stretching or would you set an alarm to get up during the nite to cath?I am assuming that you don't have enough feeling in the bladder to know when to go or to wake you up from sleep. Janice -- From: "Laura

Re: [TMIC] Mike

2010-04-26 Thread Janice Nichols
Gunny, I can't tell you how sorry I am.The "sorry" word just doesn't seem strong enough.Please feel free to use us as a venting avenue until feelings get a little easier. I am sure God was ready for him, you just weren't ready to give him up. I am so sorry. Janice From: bgunny7.

Re: [TMIC] REPLY ALL vs REPLY

2010-04-18 Thread Janice Nichols
You guys are such a help.Janice From: bobby jim Sent: Sunday, April 18, 2010 5:25 PM To: Alton Ryder ; tmic list Subject: Re: [TMIC] REPLY ALL vs REPLY Ah yes, maybe the newbies need a couple of lessons on how to reply to our messages. It ain't all that hard, folks.Just pay clo

Re: [TMIC] TMIC Neurontin--does it exhaust you?

2010-04-17 Thread Janice Nichols
Jill, That is what Lyrica did to me too - bloat, swell, bloat.Hated it. I take Neurontin with no side affects, but I only take 1500 mg's.Hope you find something that works better for you. Janice From: Jill Posner Sent: Saturday, April 17, 2010 5:23 PM To: Janice Nichols ;

Re: [TMIC] Posting

2010-04-15 Thread Janice Nichols
Jan, Not only new computers that can drive you nuts, but we just changed cable TV companies.Naturally, all stations have different numbers now and the remote is entirely different.For a mechanically challenged person like me, it is the pits! Janice From: Jan Hargrove Sent: Thursday,

Re: [TMIC] Suicide Inducing Drugs?

2010-04-14 Thread Janice Nichols
I have used it for 3 years now and have had no side affects from it. Tried Lyrica - hated it.Made me swell up like a toad. Janice From: Neil McNeil Sent: Wednesday, April 14, 2010 11:41 AM To: we4king...@verizon.net ; tmic-list@eskimo.com Subject: RE: [TMIC] Suicide Inducing Drugs?

Re: [TMIC] off for a while, but will be cking in now and then

2010-04-06 Thread Janice Nichols
All trips have a snag - you had yours early, so the rest of the trip will be perfect. Have fun!! Janice From: Barbara Alma Sent: Tuesday, April 06, 2010 2:31 AM To: barbaraal...@aol.com Cc: tmic-list@eskimo.com Subject: [TMIC] off for a while, but will be cking in now and then Hi everyon

Re: [TMIC] Walk Aide

2010-04-05 Thread Janice Nichols
I am showing my ignorance again.What do they do for/to you with physiotherappy?I was doing water aerobics before TM. Haven't started back again yet. Janice From: j ra Sent: Monday, April 05, 2010 7:27 AM To: jan...@centurytel.net ; hwyfli...@yahoo.com ; toddtm2...@sbcglobal.net ; Tr

Re: [TMIC] Walk Aide

2010-04-04 Thread Janice Nichols
Jeron, Can you get into physical therapy? You have probably done that before, but maybe at this point more can be done. Janice From: j ra Sent: Sunday, April 04, 2010 6:55 PM To: hwyfli...@yahoo.com ; toddtm2...@sbcglobal.net ; Transverse Myelytis Subject: RE: [TMIC] Walk Aide Good night

Re: [TMIC] Update

2010-04-02 Thread Janice Nichols
This is certainly good news! Sounds like you want to get active again, which is great.But don't jump into things too fast and take a chance on getting down. Activity is good for you, just don't overdo it. We are so happy for you. Janice From: Jill Hammond Sent: Friday, April 02,

Re: [TMIC] Still in the Hospital

2010-03-31 Thread Janice Nichols
om: kevin weilacher Sent: Wednesday, March 31, 2010 11:36 AM To: Janice Nichols ; Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather Janice, To me, it is an ideal place and as I said, I WILL be moving there someday. It is the desert, so you have to like the desert, which means

Re: [TMIC] Weather

2010-03-31 Thread Janice Nichols
WeatherI am used to definite changes of seasons, but I could really be tempted by a place that I would find "comfortable" physically. Hope you get there soon. Janice From: kevin weilacher Sent: Wednesday, March 31, 2010 11:36 AM To: Janice Nichols ; Robert Pall ; tmic-list@

Re: [TMIC] Weather

2010-03-31 Thread Janice Nichols
010 10:28 AM To: 'Janice Nichols' ; 'Transverse Myelytis' Subject: RE: [TMIC] Weather OK, then, all you “sweat ers” out there. Especially you women – how do you handle the hot flashes with menopause and peri menopause. I find that they are not flashes, but freakin tropica

Re: [TMIC] Chiro

2010-03-31 Thread Janice Nichols
Whatever gets us through this disease, we need to do! I have my implant to help cover nerve pain and shots also.Like I said, whatever works!! From: Janet Dunn Sent: Wednesday, March 31, 2010 10:25 AM To: 'Janice Nichols' ; 'Transverse Myelytis' Subject: RE: [TMI

Re: [TMIC] Weather

2010-03-31 Thread Janice Nichols
Does a chiropractor really help with this disease?I thought the pain came from just the nerves, not any where else.Course, I don't know much about chiropractors, but this struck me as odd. If he can help, that is great. Janice From: Todd Tarno Sent: Tuesday, March 30, 2010 12:05 PM T

Re: [TMIC] Weather

2010-03-31 Thread Janice Nichols
WeatherKevin, Alamogordo sounds wonderful!I didn't know they had places like that. Janice From: kevin weilacher Sent: Tuesday, March 30, 2010 9:42 AM To: Robert Pall ; tmic-list@eskimo.com Subject: Re: [TMIC] Weather One other thing too, I notice that you are in NJ Rob, and as you can se

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