immune system against the spinal cord.
http://www.myelitis.org/tm.htm
So we're hit with Transverse Myelitis,
but we're left with Transverse Myelopathy.
Todd in CC, TX
--- On Mon, 3/5/12, Carol E wrote:
From: Carol E
Subject: [TMIC] TM Question
To: tmic-list@eskimo.com
Date: Monda
It
may be correct to say that TM struck, just like Polio, and we deal
with the aftermath.
Janice
From: Carol E
Sent: Monday, March 05, 2012 11:39 AM
To: tmic-list@eskimo.com
Subject: [TMIC] TM Question
I curious about the proper way to explain our affliction.
Do we currently have TM or we h
, and we deal with the aftermath.
Janice
From: Carol E
Sent: Monday, March 05, 2012 11:39 AM
To: tmic-list@eskimo.com
Subject: [TMIC] TM Question
I curious about the proper way to explain our affliction.
Do we currently have TM or we had it when we first became ill?
Is it like Polio? It came
; tmic-list@eskimo.com
Subject: Re: [TMIC] TM Question
I have had two attacks of TM - 20 years apart.
Both times there was a lesion on T7 in my spinal cord caused by a
twisting motion while playing tennis.
I do believe my immune system was compromised prior to my injuries.
I do tell people I have TM
I have had two attacks of TM - 20 years apart.
Both times there was a lesion on T7 in my spinal cord caused by a
twisting motion while playing tennis.
I do believe my immune system was compromised prior to my injuries.
I do tell people I have TM, and am still working on my recovvery...
but no
Carol I always say I have TM, and I usually say it is an auto-immune
disease even though my TM was said to be idopathic.
Patti
On Mon, Mar 5, 2012 at 11:39 AM, Carol E wrote:
> I curious about the proper way to explain our affliction.
> Do we currently have TM or we had it when we first became i
Hello Carol
My neurologist told me that I had an attack of transverse myelitis
that damaged my spinal cord, and now I am dealing with the residual
damage. In that case, it is like polio. I think that when we have
flareups then we have "myelitis" which is an inflamm
I curious about the proper way to explain our affliction.Do we currently have
TM or we had it when we first became ill?Is it like Polio? It came, crippled
and you no longer have Polio, but you do have the destruction that it left
behind. Thanks for your help in explaining this to me.
Carol
> Since you are a "fungus farm" do you think you might qualify for
> Farm Aid or Government funding of some sort?
I'd only qualify if I stopped growing fungus.
Alton
In a message dated 4/16/2007 8:58:10 PM Eastern Daylight Time,
[EMAIL PROTECTED] writes:
Alton, a walking fungus farm
Hey Alton,
Since you are a "fungus farm" do you think you might qualify for Farm Aid or
Government funding of some sort?
Feeling Silly,
Jude
***
It's odd that I would see this as I had a small rash from my braces just last
month and my doctor gave me a cream and it cleared in about 4 days, it's
CLOTRIMAZOLE/BETAMETH CREAMTAR.
Ella
** See what's free at http://www.aol.com.
act us in case
your information has not been retained.
-Original Message-
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: Wednesday, April 18, 2007 1:57 PM
To: Tracey L. Black; tmic-list@eskimo.com
Subject: Re: [TMIC] TM question- fungal infection
This might seem far fetched, howeve
This might seem far fetched, however, it might be of help to your daughter.
Our local newspaper carries a sindicated column by Dr Peter Gott MDthat has
carried several letters from people regarding their success in using Vics
VaporRub on various fungal infections with amazing and immediate res
VERED THAT TRICK ABOUT A MONTH AGO, AND IT
WORKED. YOU WILL HAVE TO RECOAT THE METAL ABOUT ONCE A MONTH.
BOB
- Original Message -
From: Tracey L. Black
To: tmic-list@eskimo.com
Sent: 4/16/2007 3:40:31 PM
Subject: [TMIC] TM question
Question for all of you. I just got back from the
The AFO blocks the escape of moisture and heat - the result is warm,
moist skin - enough to delight any fungus or yeast. I wear a knee
high terry stocking every day.
Still, get her to a doctor for a Rx.
Alton, a walking fungus farm
Question for all of you. I just got back from the Orthotist, with my
daughter, Ashlee, and was just told that my daughter may have a "fungus"
of some sort in her AFO. Have any of you ever dealt with this before???
She has a rash on each side of her leg where the brace touches her. She
took them of
May I just tell all of you how fantastic you all are! Thank you so much!
have had so many of you contact me both on and off the list, and I have just
written this to Cody, which is by way of an update and might make my
thoughts a bit clearer to you guys?
Thank you so much for taking time
over the
years.
Also, three or four pale ales help even more ;>):>):>)
Bobberino in Elvisland.
From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ;
tmic-list@eskimo.com
Sent: Monday, January 22, 2007 11:00 AM
Subject: Re: [TMIC] TM question from Sally!
Jenna
Hello Trudy (and Sally),
Your comments to Sally were very good, and also what I was thinking. I am
the one with TM and I am not always fun to live with. I know my husband gets
very irritated that TM came into our lives and changed it so much. It has
destroyed many of our dreams, but we
22, 2007 5:37 AM
To: tmic-list@eskimo.com
Subject: [TMIC] TM question from Sally!
Hi Guys
I really need to run something by you please. My husband who you may
remember got TM in Dec 2000, and who can walk with a stick, got TM from a
flu jab we are sure. He went to the Doc's on Thursda
I would never call my spouse "stupid."
Alton, who gets a flu shot every year
Sally,
It wasn't against you at all.
He is showing a trust for his doctor and the doctor's opinion.
Sometimes we get so tired of fighting and just want someone else to make a
decision for us. He still needs and wants your love and support or he wouldn't
have shared the fact that he got the s
Jenna & Sally,
My husband has had TM for almost 7 years and Jenna, I agree with you 100%.
Lessen your burdens by hearing (or envisioning), waves crashing on the shore,
the roar of a river or the trickling of a stream, leaves blowing in the wind,
a watercolor sunset, the sound of a child'
Subject: Re: [TMIC] TM question from Sally!
Hi Sally,
I have read mixed reviews on flu and pneumonia shots. As your husband
experienced, some on the list got TM after having one of them, so I
would never have them unless my health were such that I would be in
grave danger without them. On the
Dear Sally,
Being a caregiver is one of the hardest jobs you will have in your life.
Being a caregiver for a husband makes it even harder.
Do something for yourself today...even if it is only for a few minutes. Have
a piece of chocolate, watch the leaves blowing in the wind, what
Subject: [TMIC] TM question from Sally!
Hi Guys
I really need to run something by you please. My husband who you may
remember got TM in Dec 2000, and who can walk with a stick, got TM from
a flu jab we are sure. He went to the Doc's on Thursday and the nurse in
the surgery said he s
Sally,
I can't take the flu shots due to allergies..but I take the pneumonia
shot when due cause I had pneumonia in the weeks prior to onset of tm, and they
told me the virus from that
was what had attacked my spine.Know you have a rough job being his
caretaker, but I think in th
Hi Sally,
I have read mixed reviews on flu and pneumonia shots. As your husband
experienced, some on the list got TM after having one of them, so I would
never
have them unless my health were such that I would be in grave danger without
them. On the other hand, many on the list have been
Hi Guys
I really need to run something by you please. My husband who you may
remember got TM in Dec 2000, and who can walk with a stick, got TM from a
flu jab we are sure. He went to the Doc's on Thursday and the nurse in the
surgery said he should have a jab for pneumonia. He ran that past the
o get. Much to my amazement,
the aquatic therapy helped me even more.
Carol in Culver, IN
- Original Message -
From: Cody Kidwell
To: [EMAIL PROTECTED] ; TMIC ; Sally Wilkinson
Sent: Wednesday, December 06, 2006 10:56 PM
Subject: Re: [TMIC] TM Question
Sally and Debbie...
-
From: Sally Wilkinson
To: 'Cody Kidwell'
Sent: Monday, December 04, 2006 3:53 AM
Subject: RE: [TMIC] TM Question
Hi my husband had to come off Lyrica as his whole body became swollen
including his chest which in turn caused him to have breathing difficulties! He
got
Message -
From: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]
Sent: Thursday, November 30, 2006 10:27 PM
Subject: Re: [TMIC] TM Question
In a message dated 11/27/2006 9:13:43 P.M. Eastern Standard Time, [EMAIL
PROTECTED] writes:
Todd and Rogette.I have had a lot of leg swelling
ECTED]>
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Tuesday, November 28, 2006 9:22:11 AM
Subject: Re: [TMIC] TM Question
I guess that is the answer finding your own magic medicine potion that works
for you. Has your Dr's told you what that burning pain is? I didn't have this
before
in
line. ~Ashleigh Brilliant
http://health.groups.yahoo.com/group/MSersLife/
- Original Message
From: Natalie Boyles <[EMAIL PROTECTED]>
To: Sharon Marsden <[EMAIL PROTECTED]>
Cc: [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Tuesday, November 28, 2006 10:11:19 AM
Subject
Yes, I have these sensations and they are stronger in the evening when I'm
trying to relax. I take Neurontin and Baclofen 4 times a day to ease the
symptoms and know they give me a lot of relief. The symptoms are there during
the day also, but they are easier to ignore as I push beyond them to
-LIST@eskimo.com
Sent: Sunday, November 26, 2006 6:06:41 PM
Subject: [TMIC] TM Question
I have had TM for six months. I have it from the waist down and was
initially paralyed from the waist down. I am now walking on a walker
and semi on a heme cane. However, I get these strange sensations from the
ner
om: [EMAIL PROTECTED]
To: [EMAIL PROTECTED]; tmic-list@eskimo.com
Sent: Tue, 28 Nov 2006 12:06 AM
Subject: Re: [TMIC] TM Question
I have burning pain when I lay down too. It's been going on for a year. I
have been on as much as 3200 mgs. of Neurontin a day and it did nothing for
that leg pain. I
.com/group/MSersLife/
- Original Message
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: TMIC-LIST@eskimo.com
Sent: Sunday, November 26, 2006 6:06:41 PM
Subject: [TMIC] TM Question
I have had TM for six months. I have it from the waist down and was
initially paralyed from t
[EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Monday, November 27, 2006 4:03 PM
Subject: Re: [TMIC] TM Question
Yes this is part of TM. I use Lyrica twice a day and Nortriptyline once at night time. It doesn't stop it completely, but it does help a lot.
I never got to go to a pain clinic w
- Original Message -
From: Todd Tarno
To: [EMAIL PROTECTED] ; tmic-list@eskimo.com
Sent: Monday, November 27, 2006 4:03 PM
Subject: Re: [TMIC] TM Question
Yes this is part of TM. I use Lyrica twice a day and Nortriptyline once at
night time. It doesn't stop it completely
Yes this is part of TM. I use Lyrica twice a day and Nortriptyline once at
night time. It doesn't stop it completely, but it does help a lot.
I never got to go to a pain clinic where they could really know what
medications to give me. That would be a great place to start.
Todd in Corpus
If you contact someone at "Translational Pain Research"
which is a department at Brigham and Women's Hospital, a part of Harvard
University in Boston and explain your pain to them, they may have some idea of
what to do to help you.
They do all kinds of Pain Research for chronic pain
Hello and welcome--
Yes, I've had all manner of strange sensations and burning feelings in my
legs and elsewhere. Mine isn't to the point of needing mediciation -- I hope
someone else can give you some helpful suggestions there. But for me just
understanding that it was a normal occurence
I have had TM for six months. I have it from the waist down and was
initially paralyed from the waist down. I am now walking on a walker and semi
on a
heme cane. However, I get these strange sensations from the nerves in my legs
and when I am laying down a burning sensation in my thighs tha
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