Re: [TMIC] So strange
Rob, I count my blessings everyday, and this group is high on my list. Before I became involved, it was like walking in the darkness not knowing what was next. Just learning how many of the little things going on in my body are also going on with many others is like walking into the light. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
[TMIC] Another gloomy day
Dear Sal, You're certainly entitled to vent. I know I've done it big time and this group has been wonderful and supportive. I was diagnosed with TM four years ago and my symptoms are nothing compared to yours, but still, at times, I do feel sorry for myself. I don't think there is anything wrong with that (as long as I don't overdo it and don't drive anyone nuts around me). I always listen to your suggestions and your experiences with interest. You're an interesting young man who has obviously done a lot of research about this awful condition. Vent all you like. You'll always have an ear in me. By the way, your mom must be very proud of you. I wish you well.
[TMIC] time has passed but....this is for Every1 on the TMA list
I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? - Never miss a thing. Make Yahoo your homepage.
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
I truly believe that TM was caused by stress in my life. I believe I had nothing more serious than a summer cold, but due to the stress in my life which was extremely high at that time my immune system was weakened allowing the onset of TM. This is not very scientific, but I believe this was the cause for me. To further your research Sal, I would be interested to know if other TM'rs had a similar stressful period prior or during the onset. Rob in New Jersey From: sal r [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 2:51 PM To: tm Subject: [TMIC] time has passed butthis is for Every1 on the TMA list I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? Never miss a thing. Make Yahoo your homepage. http://us.rd.yahoo.com/evt=51438/*http://www.yahoo.com/r/hs
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
Thank you Rob for pointing that out... i was very stressed to at that time i was a realtor/manager of a group of teelemarketers plus i had bronchitis i wasnt taking care of...thankyou Rob... Robert Pall [EMAIL PROTECTED] wrote: I truly believe that TM was caused by stress in my life. I believe I had nothing more serious than a summer cold, but due to the stress in my life which was extremely high at that time my immune system was weakened allowing the onset of TM. This is not very scientific, but I believe this was the cause for me. To further your research Sal, I would be interested to know if other TM'rs had a similar stressful period prior or during the onset. Rob in New Jersey - From: sal r [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 2:51 PM To: tm Subject: [TMIC] time has passed butthis is for Every1 on the TMA list I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? - Never miss a thing. Make Yahoo your homepage. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
according to the latest info I receive it could be the flu(which is my case) or a reaction to vaccination From: sal r [EMAIL PROTECTED] To: tm tmic-list@eskimo.com Subject: [TMIC] time has passed butthis is for Every1 on the TMA list Date: Tue, 25 Mar 2008 11:51:23 -0700 (PDT) I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? - Never miss a thing. Make Yahoo your homepage.
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
My daughter had an upper respiratory infection, that was treated with an antibiotic, a month before she was inflicted with TM. She was only 11 so the only stress that she had was being a typical 11 year old girl in 5th grade. She hadn't been vaccinated for quite some time before she got it either (probably a few years, I don't have the records on hand). The ER Dr. who treated her immediately after she was inflicted stated that he thought that it came from the infection that she had.. Has anyone else recd the GBS and TM diagnosis instead of just one or the other?? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 3:12 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] time has passed butthis is for Every1 on the TMA list according to the latest info I receive it could be the flu(which is my case) or a reaction to vaccination From: sal r [EMAIL PROTECTED] To: tm tmic-list@eskimo.com Subject: [TMIC] time has passed butthis is for Every1 on the TMA list Date: Tue, 25 Mar 2008 11:51:23 -0700 (PDT) I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? - Never miss a thing. Make Yahoo your homepage.
Re: [TMIC] time has passed but....this is for Every1 on the TMA list
.*Hi,* *I was getting over a case of very mild pneumonia whenever I got hit with NMO. I hadn't even missed work because of it. Had been taking antibiotics and feeling a bit poopy and tired, but no other symptoms to speak of.* ** *Gracie*
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
Rob, I believe what you are saying 100%. It was a very stressful time in my life as well when I was hit with TM. If I remember correctly, I had a cold shortly before also. Nothing major, just the common cold. Wendy in NJ From: Robert Pall [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 2:58 PM To: sal r; tm Subject: RE: [TMIC] time has passed butthis is for Every1 on the TMA list I truly believe that TM was caused by stress in my life. I believe I had nothing more serious than a summer cold, but due to the stress in my life which was extremely high at that time my immune system was weakened allowing the onset of TM. This is not very scientific, but I believe this was the cause for me. To further your research Sal, I would be interested to know if other TM'rs had a similar stressful period prior or during the onset. Rob in New Jersey _ From: sal r [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 2:51 PM To: tm Subject: [TMIC] time has passed butthis is for Every1 on the TMA list I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? _ Never miss a thing. Make Yahoo http://us.rd.yahoo.com/evt=51438/*http:/www.yahoo.com/r/hs your homepage.
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
Hi, I was going through a terrible divorce and raising 3 young children. I also had pneumonia in Nov and the flu in January. I got TM on Jan. 3, 1991. My neuro was so good. He diagnosed me before any testing was done. He told me at the time that this could have been a virus that had been lying dormant in my body for years and the stress activated it. I have always wondered if this virus is somehow related to the polio virus. I was exposed in the 50's when my cousin got polio and a good friend of mine also. I remember their symptoms at the time and thinking back on it, it was a lot like TM. Could it be something in the polio vaccine that everyone gets? Patty Date: Tue, 25 Mar 2008 15:28:23 -0400 From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Subject: Re: [TMIC] time has passed butthis is for Every1 on the TMA list CC: tmic-list@eskimo.com .Hi, I was getting over a case of very mild pneumonia whenever I got hit with NMO. I hadn't even missed work because of it. Had been taking antibiotics and feeling a bit poopy and tired, but no other symptoms to speak of. Gracie _ How well do you know your celebrity gossip? http://originals.msn.com/thebigdebate?ocid=T002MSN03N0707A
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
In 2000 I was diagnosed with cancer, was teaching special needs kids, had 3 teenagers and watched my mom die of lung cancer while I was battling breast cancer. I am absolutely convinced this is why I fell apart with TM less than one year later. Stress! Cindy From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [EMAIL PROTECTED]: RE: [TMIC] time has passed butthis is for Every1 on the TMA listDate: Tue, 25 Mar 2008 17:08:31 -0400 Hi,I was going through a terrible divorce and raising 3 young children. I also had pneumonia in Nov and the flu in January. I got TM on Jan. 3, 1991. My neuro was so good. He diagnosed me before any testing was done. He told me at the time that this could have been a virus that had been lying dormant in my body for years and the stress activated it.I have always wondered if this virus is somehow related to the polio virus. I was exposed in the 50's when my cousin got polio and a good friend of mine also. I remember their symptoms at the time and thinking back on it, it was a lot like TM. Could it be something in the polio vaccine that everyone gets? Patty Date: Tue, 25 Mar 2008 15:28:23 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: Re: [TMIC] time has passed butthis is for Every1 on the TMA listCC: tmic-list@eskimo.com .Hi, I was getting over a case of very mild pneumonia whenever I got hit with NMO. I hadn't even missed work because of it. Had been taking antibiotics and feeling a bit poopy and tired, but no other symptoms to speak of. Gracie How well do you know your celebrity gossip? Talk celebrity smackdowns here.
Re: [TMIC] time has passed but....this is for Every1 on the TMA list
At the time of my onset I was under a huge amount of stress. I also had been sick for a couple of weeks with bronchitis and had just finished up a round of antibiotics and prednisone. My family doctor at the time told me he thought I probably would have been in worse shape had I not been on Prednisone just prior to my onset. Melissa - Original Message - From: Tracey L. Black [EMAIL PROTECTED] To: Gerry Surette [EMAIL PROTECTED]; [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Tuesday, March 25, 2008 3:27 PM Subject: RE: [TMIC] time has passed butthis is for Every1 on the TMA list My daughter had an upper respiratory infection, that was treated with an antibiotic, a month before she was inflicted with TM. She was only 11 so the only stress that she had was being a typical 11 year old girl in 5th grade. She hadn't been vaccinated for quite some time before she got it either (probably a few years, I don't have the records on hand). The ER Dr. who treated her immediately after she was inflicted stated that he thought that it came from the infection that she had.. Has anyone else recd the GBS and TM diagnosis instead of just one or the other?? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 3:12 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] time has passed butthis is for Every1 on the TMA list according to the latest info I receive it could be the flu(which is my case) or a reaction to vaccination From: sal r [EMAIL PROTECTED] To: tm tmic-list@eskimo.com Subject: [TMIC] time has passed butthis is for Every1 on the TMA list Date: Tue, 25 Mar 2008 11:51:23 -0700 (PDT) I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? - Never miss a thing. Make Yahoo your homepage.
[TMIC] How about a card to Judes husband?
I just had a brainstorm after reading a few notes from people asking what they could do for Jude. She is very tender-hearted toward her hubby and is concerned for him. She even said Dave would enjoy a call from me and I haven't met him yet. So, how 'bout we stretch ourselves - for Jude and let Dave know we care about him too. Thanks to all for your support! Their address is in the TMIC book or reply to me and I send it to you. Patti - Michigan
[TMIC] UNBELIEVABLE!
OK...Is this list good or not! So far having approx. 10 responses9 out of 10 state that they had a minor sickness but they were going thru a very stressful time in there lives. I am totally convinced that stress lowered my immume system to the point that TM occurred. I find it unbelievable how many on the list agree! I believe in order to find a cure you must first find the causeperhaps we have!!! Rob in New Jersey
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
Yes. I attribute my TM to the stress I was experiencing while down-sizing a bank branch by eliminating a satelite drive-up building. closing down 18 ATM's, raising the fees on an entire mall of commercial accounts so they would go elsewhere, and eliminating the jobs of 8 of my staff. This was by order of upper management and I couldn't tell my staff the final outcome. I just kept dropping the bomb month after month. My neuro would not agree that stress caused the TM so I fall in the idiopathic category. (I loved most of my 35 years of banking!) Robert Pall [EMAIL PROTECTED] wrote: I truly believe that TM was caused by stress in my life. I believe I had nothing more serious than a summer cold, but due to the stress in my life which was extremely high at that time my immune system was weakened allowing the onset of TM. This is not very scientific, but I believe this was the cause for me. To further your research Sal, I would be interested to know if other TM'rs had a similar stressful period prior or during the onset. Rob in New Jersey From: sal r [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 2:51 PM To: tm Subject: [TMIC] time has passed butthis is for Every1 on the TMA list I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? Never miss a thing. Make Yahoo your homepage. http://us.rd.yahoo.com/evt=51438/*http://www.yahoo.com/r/hs
Re: [TMIC] time has passed but....this is for Every1 on the TMA list
Hi Sal, My son got married one month to the day that I got TM. I'm very thankful that I got it 'after' the wedding and not before or on the day as it could have been terrible. There was a lot of stress and busy busy times as there were 370 guests. We had tons of family here from out of town. Then at the wedding rehearsal the ring bearer had a terrible cold, passed it on to my hubby. Then I got it but mine only lasted a couple of days. Once all our company left and I was back to work for about 10 days we had a long weekend and were just getting into relax mode. My TM hit me on the Saturday morning of the long weekend. Started with low back pain that I thought was just my same old pain that I had had for years from herniated disc in 1990, a car accident (head on t-bone) in 1991, another car accident where I was rear ended in 1994. So that is my little story. Heather - Original Message - From: sal r To: tm Sent: Tuesday, March 25, 2008 12:51 PM Subject: [TMIC] time has passed butthis is for Every1 on the TMA list I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? -- Never miss a thing. Make Yahoo your homepage. -- No virus found in this incoming message. Checked by AVG. Version: 7.5.519 / Virus Database: 269.22.0/1342 - Release Date: 3/25/2008 10:26 AM
[TMIC] Test
I am having a difficult time with my new e-mail system. I sent an e-mail yesterday. Please let me know if you receive this Thanks! Trudy
Re: [TMIC] Test
On Tue, Mar 25, 2008 at 6:01 PM, Trudy Ogilvie [EMAIL PROTECTED] wrote: I am having a difficult time with my new e-mail system. I sent an e-mail yesterday. Please let me know if you receive this Thanks! Trudy
Re: [TMIC] Test
I got you, Trudy! Jeanne ---Original Message--- From: Grace M. Date: 3/25/2008 5:10:06 PM To: Trudy Ogilvie Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Test On Tue, Mar 25, 2008 at 6:01 PM, Trudy Ogilvie [EMAIL PROTECTED] wrote: I am having a difficult time with my new e-mail system. I sent an e-mail yesterday. Please let me know if you receive this Thanks! Trudy
Re: [TMIC] Fwd: Sweating
In a message dated 3/24/2008 10:55:25 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: We were just talking about the splotches the other day! Another thing we have in common! What is it that your provider gave you? Is it something we can get over the counter? Sometimes the providers have samples they can give out to their patients Hi Jeanne, The cream I get is a prescription called CLOTRIMAZOLE/BETAMETH CREATAR **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] Fwd: Sweating
In a message dated 3/24/2008 11:06:05 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Can someone please explain what the splotches are? I would say they resemble (to me) the shell of a brazil nut but bruisey in color, however they are somewhat smooth **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] Need a little help!!
For a doctor, since there is no directory of doctors knowledgeable in TM, doctors affiliated with the National MS Society are suppose to be familiar with TM. They have a directory on their site. http://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_treatment_locationshttp://www.nationalmssociety.org/site/PageServer?pagename=HOM_LIVE_treatment_locations At 11:43 AM 3/25/2008, Robert Pall wrote: Do any members in the New York City or New Jersey area know of a good Neuro who is familiar with TM and its treatments? For the past 9 years the only neuro I have seen is Dr. Kerr (once annually). I think it might be beneficial to find a local neuro that I can see on a more regular basis or God forbid in case of an emergency. Thanks Rob in New Jersey PS: I am over my very short self pity episode! Thanks to all of the people in the group that never fail to help ! Jim Lubin [EMAIL PROTECTED] Home Page: http://makoa.org/jim disAbility Resources: http://www.makoa.org
RE: [TMIC] UNBELIEVABLE!
If you look in to the archives, probenly you will find a lot of people that think, or almost know for sure, that stress is related to sicknesses by lowering the immune system. This discussion has been done for several times, also blurry vision, cold feet, painfull knees and ancles, sensitivity, no sex , marijuana and more. Follow this group now for over more than 10 years. Wim from Holland Date: Tue, 25 Mar 2008 17:27:47 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] UNBELIEVABLE! OK…Is this list good or not! So far having approx. 10 responses….9 out of 10 state that they had a minor sickness but they were going thru a very stressful time in there lives. I am totally convinced that stress lowered my immume system to the point that TM occurred. I find it unbelievable how many on the list agree! I believe in order to find a cure you must first find the cause….perhaps we have!!! Rob in New Jersey _ De leukste online filmpjes vind je op MSN Video! http://video.msn.com/video.aspx?mkt=nl-nl
Re: [TMIC] UNBELIEVABLE!
UNBELIEVABLE!Here's another one. I too was going through some heavy-duty stress in my personal life. TM hit me during a bad flu. It was a really powerful virus. Hubby had it before me and got double pneumonia. I just kept getting sicker and sicker, saw my family doctor twice, went to Emergency twice. I kept saying to everyone Something's wrong. This is more than the flu. All the doctors just kept sending me home saying it was a bad virus. Late in the third week, my bladder shut down and I lost all feeling below the waist - couldn't walk. They finally admitted me to hospital with suspected Guillain-Barre. My wonderful neuro was called in made a quick dx of TM that was later confirmed with all the tests including a spinal tap. I have always suspected that stress had weakened my immune system opened this can of worms. Diane in Canada - Original Message - From: Robert Pall To: tm Sent: Tuesday, March 25, 2008 5:27 PM Subject: [TMIC] UNBELIEVABLE! OK.Is this list good or not! So far having approx. 10 responses..9 out of 10 state that they had a minor sickness but they were going thru a very stressful time in there lives. I am totally convinced that stress lowered my immume system to the point that TM occurred. I find it unbelievable how many on the list agree! I believe in order to find a cure you must first find the cause..perhaps we have!!! Rob in New Jersey
[TMIC] A month before TM -
I have asked this question myself but not as well-worded. I have often asked myself this question. I had been in an auto accident 3-4 years prior that caused damage to my C-6 and C-7 and mid t range. However, the accident has been ruled out as a significant factor. I am going to bone doctor next week because I have now developed athritis throughout my spine. My x-rays and MRI's after the accident showed NO bone problems other than two broken bones in the neck and a lot of tissue damage. Three weeks before the TM - i was in the National Forest and got eaten up by mosqitoes. I counted about 19 bites on my right pinky alone. Three days later, I got a flu-like illness and put me in bed for three days. I basically SLEPT three days of my life away and woke only briefly during that time to a volume of sweat. I had a fever, cold chills, and no energy. I was also in such a fog that I bearly remember those days. I was so sick at school that i could not see to walk and I had horrible blurred vision. My first neurologist believes my TM was caused from a virus that attacked at the lowest areas of my spine. Later, the damage showed up on future MRI proving him right about the damaged area. My first neuro believed that I had/have early MS and that the lumbar puncture didn't reveal this factor because it was taken at a higher area than were the problem might be. He also suggested that the three lesions in the left side of my brain were indicators to early MS and he believed that I was experiencing multiple mylopothy / demylination but that it didn't show on the MRI film and that the treatments stopped it from continuing. The MS dianosis was dropped after future MRI's showed that the lesions were gone and had not left scar tissue in my brain but the TM stuck because the increased signals and evidence of nervous tissue imflamation was still appareant along with the symptoms- eventhough I am improving. Other than this, I had foot drop in 1993, 12 years prior to my presenation of TM. This was A BRIGHT idea!! THis is how we should be using this email communication. Good research. - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
[TMIC] I forgot to mention the STRESS!!!
I had the GReATEST stress of my life!! before TM. My boss was persecuting the hell out of me and making my life incredibly misserable!! I ACTUALLY WAS WRITTEN UP for failure to follow the proceedures when I left the school to get checked out. The neuro. said one more hour and you'd never used either leg or your bladder again. So that bitch (sorry for those of you that don't like bad words) that bitch put me through hell and then punished me even after I lost my ability to walk!!! She said that I had to be able to perform my duties and responsibilities as a teacher - which included - WALKING and PEEING! What a bitch. I'll say again - - Never miss a thing. Make Yahoo your homepage.
RE: [TMIC] UNBELIEVABLE!
i undertstand there is probably tons of research and foums out there but im
pretty sure that people would like to share their own stories and we can
compare between ourselves and conduct our own research...SaL
wim from holland [EMAIL PROTECTED] wrote: .hmmessage P { margin:0px;
padding:0px } body.hmmessage { FONT-SIZE: 10pt; FONT-FAMILY:Tahoma }
If you look in to the archives, probenly you will find a lot of people that
think, or almost know for sure, that stress is related to sicknesses by
lowering the immune system. This discussion has been done for several times,
also blurry vision, cold feet, painfull knees and ancles, sensitivity, no sex ,
marijuana and more.
Follow this group now for over more than 10 years.
Wim from Holland
-
Date: Tue, 25 Mar 2008 17:27:47 -0400
From: [EMAIL PROTECTED]
To: tmic-list@eskimo.com
Subject: [TMIC] UNBELIEVABLE!
OK
Is this list good or not! So far having approx. 10 responses
.9 out of 10
state that they had a minor sickness but they were going thru a very stressful
time in there lives. I am totally convinced that stress lowered my immume
system to the point that TM occurred. I find it unbelievable how many on the
list agree! I believe in order to find a cure you must first find the
cause
.perhaps we have!!!
Rob in New Jersey
-
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Re: [TMIC] I forgot to mention the STRESS!!!
you can say whatever you want and im sorry to hear that but you know i am pretty sure everyone hs lost someone or something bcause of TM but you know whats great is that maybe it wasnt meant to be...everything happens for a reason...i always think that i got sick becuase i was very immature and never listened to anybody and i kno for a fact that the girlwho left me during my sickness i would of probably got her pregnant or something...and i dont think i would be this well informed about life as i am now... randy rankin [EMAIL PROTECTED] wrote: I had the GReATEST stress of my life!! before TM. My boss was persecuting the hell out of me and making my life incredibly misserable!! I ACTUALLY WAS WRITTEN UP for failure to follow the proceedures when I left the school to get checked out. The neuro. said one more hour and you'd never used either leg or your bladder again. So that bitch (sorry for those of you that don't like bad words) that bitch put me through hell and then punished me even after I lost my ability to walk!!! She said that I had to be able to perform my duties and responsibilities as a teacher - which included - WALKING and PEEING! What a bitch. I'll say again - - Never miss a thing. Make Yahoo your homepage. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [TMIC] UNBELIEVABLE!
UNBELIEVABLE!It is interesting that about 4 have written that they had been on antibiotics at the time of TM onset. I had gone through oral surgeries and had been on antibiotics, first one that didn't work then another. I've suspected this affected my immune system but, of course, can't prove it. Gary in Michigan - Original Message - From: Robert Pall To: tm Sent: Tuesday, March 25, 2008 5:27 PM Subject: [TMIC] UNBELIEVABLE! OK.Is this list good or not! So far having approx. 10 responses..9 out of 10 state that they had a minor sickness but they were going thru a very stressful time in there lives. I am totally convinced that stress lowered my immume system to the point that TM occurred. I find it unbelievable how many on the list agree! I believe in order to find a cure you must first find the cause..perhaps we have!!! Rob in New Jersey
[TMIC] stress and TM onset
My TM got me in the first week of March nine years ago. I had had a nasty case of bronchitis at least two months before TM hit. A miscarriage about 6 weeks prior to TM and a root canal just a week or two before TM. Obviously this was not the best winter for me. I did not take antibiotics for either the bronchitis or the root canal. I had a mild case of TM but with a fairly rapid onset of 24 to 36 hours. Interestingly I have read that an infection with camplyobacteria jejungi (trust me.. I know I am not spelling that right LOL) is connected with GBS. I did get camplyobac blah blah blah some years before TM presumably from some chicken I ate in a restaurant in upstate NY. Laura in NC
RE: [TMIC] UNBELIEVABLE! Thanks, everyone!! jr
I, for one, am SO glad to be reading every single one of these stories! I'm pretty new at TM (5/2005) and am trying to learn every thing I can. I really don't mind hearing the stories repeated because this is just the type of thing that will help us know we ARE NOT ALONE!! I've seen new names appear lately and heard stories and events about TM I would not have heard otherwise. I was all by myself doing the PT/OT and had the hardest time trying to explain what had happened and how the numbness, pain, spasms, heaviness, weird feelings, sensation on the skin on one leg with none at all on the other, trying to explain how I couldn't even feel when I sat on a chair and often would just slide off (still do)all of these things, I now can talk to you all about and be blessed that someone out there truly understands. I have said since the onset of TM, part of me lives with all of the pain and weakness and the knowledge that I probably will not get much better. BUT! I want the world to know that I will NEVER give up hoping for a cure and that maybe someone who is a whole lot wiser than I will learn from all of us and what we say on this site. Part of me as a nurse looks on in wonder and curiosity and so when everyone sends their own stories, I am so thankful. So is the Internest that I worked with pre and post -TM who I just happened to see today, who gave me a great big bear hug and said, Yes, (by golly), I still want to work with you to set up a series of questions (for others with TM) so we can become more knowledgeable on why it occurs. We started talking about doing this way before I ever found you all, my wonderful new friends! Now, for my story!! I, too, had flu-like symptoms for several weeks PLUS a persistent burning itch on my left shoulder that I had been bothered with also for several weeks (no marks at all). We (nurses like to diagnose) felt it might be shingles, although I had never been bothered with it before. Once a person has Chicken Pox, the varicella virus stays in your system forever and a person can suffer from shingles from that same virus. One of the theories of TM is that it is related to that virus. (This can be backed up by reading it in the Merck Manual). Our body just goes to war against whatever is fighting inside itself. With TM, evidently it happens to be our spinal cord. The first neurologist that worked with me said it all. He said no one really knows and not enough people are stricken with TM and that is why there just aren't many studies being done. Well, I've yacked enough for awhile... Thank you all for all of the time you've taken to share with us newcomers!!! I sure do appreciate it! Jack and I are planning on going to the Seattle Symposium if we can afford the cost of the hotel room!!! We might pitch a tent in the parking lot! Jeanne in Dayton, WA ---Original Message--- From: sal r Date: 3/25/2008 9:04:48 PM To: wim from holland; Robert Pall; tm Subject: RE: [TMIC] UNBELIEVABLE! i undertstand there is probably tons of research and foums out there but im pretty sure that people would like to share their own stories and we can compare between ourselves and conduct our own research...SaL wim from holland [EMAIL PROTECTED] wrote: If you look in to the archives, probenly you will find a lot of people that think, or almost know for sure, that stress is related to sicknesses by lowering the immune system. This discussion has been done for several times, also blurry vision, cold feet, painfull knees and ancles, sensitivity, no sex , marijuana and more. Follow this group now for over more than 10 years. Wim from Holland Date: Tue, 25 Mar 2008 17:27:47 -0400 From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: [TMIC] UNBELIEVABLE! OK Is this list good or not! So far having approx. 10 responses .9 out of 10 state that they had a minor sickness but they were going thru a very stressful time in there lives. I am totally convinced that stress lowered my immume system to the point that TM occurred. I find it unbelievable how many on the list agree! I believe in order to find a cure you must first find the cause .perhaps we have!!! Rob in New Jersey Chat met al je vrienden. Nodig ze nu uit voor Messenger! Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [TMIC] A month before TM -
Wonderful research, Randy!!! Thanks! Jeanne ---Original Message--- From: randy rankin Date: 3/25/2008 8:42:50 PM To: TM Group Subject: [TMIC] A month before TM - I have asked this question myself but not as well-worded. I have often asked myself this question. I had been in an auto accident 3-4 years prior that caused damage to my C-6 and C-7 and mid t range. However, the accident has been ruled out as a significant factor. I am going to bone doctor next week because I have now developed athritis throughout my spine. My x-rays and MRI's after the accident showed NO bone problems other than two broken bones in the neck and a lot of tissue damage. Three weeks before the TM - i was in the National Forest and got eaten up by mosqitoes. I counted about 19 bites on my right pinky alone. Three days later, I got a flu-like illness and put me in bed for three days. I basically SLEPT three days of my life away and woke only briefly during that time to a volume of sweat. I had a fever, cold chills, and no energy. I was also in such a fog that I bearly remember those days. I was so sick at school that i could not see to walk and I had horrible blurred vision. My first neurologist believes my TM was caused from a virus that attacked at the lowest areas of my spine. Later, the damage showed up on future MRI proving him right about the damaged area. My first neuro believed that I had/have early MS and that the lumbar puncture didn't reveal this factor because it was taken at a higher area than were the problem might be. He also suggested that the three lesions in the left side of my brain were indicators to early MS and he believed that I was experiencing multiple mylopothy / demylination but that it didn't show on the MRI film and that the treatments stopped it from continuing. The MS dianosis was dropped after future MRI's showed that the lesions were gone and had not left scar tissue in my brain but the TM stuck because the increased signals and evidence of nervous tissue imflamation was still appareant along with the symptoms- eventhough I am improving. Other than this, I had foot drop in 1993, 12 years prior to my presenation of TM. This was A BRIGHT idea!! THis is how we should be using this email communication. Good research. Looking for last minute shopping deals? Find them fast with Yahoo! Search.
Re: [TMIC] Fwd: Sweating
Thanks so much for the name of the cream! I'm just now catching up to all of my e-mails! I love learning all of these things! j ---Original Message--- From: [EMAIL PROTECTED] Date: 3/25/2008 5:59:59 PM To: [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Sweating In a message dated 3/24/2008 10:55:25 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: We were just talking about the splotches the other day! Another thing we have in common! What is it that your provider gave you? Is it something we can get over the counter? Sometimes the providers have samples they can give out to their patients Hi Jeanne, The cream I get is a prescription called CLOTRIMAZOLE/BETAMETH CREATAR Create a Home Theater Like the Pros. Watch the video on AOL Home.
Re: [TMIC] Fwd: Sweating
I'm not sure if the 'splotches' I have are like yours but mine happened to start on my one foot. They were a reddish brown color and everywhere they were, my skin would just begin to peel off. Of course, I couldn't feel anything and I was given an RX for some cortisone cream which did help. Now, I'm getting it on the same foot only along the outside. The skin just flakes off in big patches. I used some good skin cream and immediately the rash gets better. It's really kind of strange because I've been reading others that have what sounds like the same thing...at least the splotches. I would be interested in knowing if their skin gets flaky and falls off like mine. Jeanne in Dayton ---Original Message--- From: [EMAIL PROTECTED] Date: 3/25/2008 6:05:51 PM To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Sweating In a message dated 3/24/2008 11:06:05 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Can someone please explain what the splotches are? I would say they resemble (to me) the shell of a brazil nut but bruisey in color, however they are somewhat smooth Create a Home Theater Like the Pros. Watch the video on AOL Home.
RE: [TMIC] time has passed but....this is for Every1 on the TMA list
Hi, Tracey! Just a quick note (I hope...I get a little chatty)! When I was first admitted to ICU they did think I had the GBS but quickly ruled it out after doing just a few tests. They could see the damage right away after seeing the spinal cord on an MRI but still didn't know what had caused it. I'm so sorry for your little girl. This site has brought such strength and caring and I feel so blessed to have found it. I hope you do, too. Jeanne in Dayton, WA ---Original Message--- From: Tracey L. Black Date: 3/25/2008 2:27:51 PM To: Gerry Surette; [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] time has passed butthis is for Every1 on the TMA list My daughter had an upper respiratory infection, that was treated with an antibiotic, a month before she was inflicted with TM. She was only 11 so the only stress that she had was being a typical 11 year old girl in 5th grade. She hadn't been vaccinated for quite some time before she got it either (probably a few years, I don't have the records on hand). The ER Dr. who treated her immediately after she was inflicted stated that he thought that it came from the infection that she had.. Has anyone else recd the GBS and TM diagnosis instead of just one or the other?? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 Thank you for providing information to us. Please beware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained. -Original Message- From: Gerry Surette [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 25, 2008 3:12 PM To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: RE: [TMIC] time has passed butthis is for Every1 on the TMA list according to the latest info I receive it could be the flu(which is my case) or a reaction to vaccination From: sal r [EMAIL PROTECTED] To: tm tmic-list@eskimo.com Subject: [TMIC] time has passed butthis is for Every1 on the TMA list Date: Tue, 25 Mar 2008 11:51:23 -0700 (PDT) I know for some of us it has been a lifetime of our TM, ADEM, NMO, MS and so on...but have we ever figured what happened? I know that we all have adapted to it and forgot about it but instead of having doctors and researchers find the reason why, whats a better source then the person who actually got it..What I am getting at is that i wanted everyone on the list to recall what they did 1 month to a year before their illness...ex: vacation, car accident...just something that you think would trigger it...I was in a car accident 8 months before my onset...also i was eating a lot of fast food and red meatjust even if you dont think it was it just put it down...it may not make a difference for us as it has already happened but what if we can prevent it for our future generations? - Never miss a thing. Make Yahoo your homepage.
