Re: [TMIC] an update from Dalton
Well folks; I had a bad relapse last Thursday, had pretty good recovery on Friday, then got weak again on Saturday. It is Monday and the strength in my limbs has not returned as it used to all the other times. The limbs ache as if someone has drained me of blood. Even my facial muscles are tired. But at least I am not getting the attack of convulsions this time. Maybe I am in some new phase, even temporarily. I can still lecture and drive a car, thank the Lord!, but walking, even with the big crutches, is very hard now. Hopefully, in a few days I will be back to having some strength again. Meanwhile, I bought a good fountain pen, and at last!, I can write again legiblywell, at least quasi-legibly. Ariel, I wrote you and called you to wish you a very Happy Birthday!, but couldn't get hold of you. I am including you in this list, so that maybe you can get this. --Love 80 Ds Take care, friends, Dalton Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-055-800-6619
Re: [TMIC] an update
Laura, I am so sorry to hear about needing long-term care. Did the doc’s say why this happened or what is causing the decline? I am assuming you will have the computer and will be able to keep in close touch with us.Are you familiar with where you are going? Please keep in constant touch with us – we care. Janice From: Laura Beaudin Sent: Wednesday, March 16, 2011 11:54 AM To: f...@yahoogroups.com ; msersl...@yahoogroups.com ; Transverse Mylitis Group ; transversemyelitissupp...@yahoogroups.com Subject: [TMIC] an update now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Laura Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog!
Re: [TMIC] an update
Dear Laura, I am so sorry about your relapse, but with time, things may change, and you will be able to come home to your girls. Hopefully, they will adjust easily with their father, and he will continue homeschooling them. I will be praying for you and others who have new problems. I wonder when it will be my time to go to long term care. At 68, I could be there soon, considering that I feel weaker every day, and have difficulty in keeping good caregivers. Keep in touch with our group. Wishing you all the best! Peachy --- On Wed, 3/16/11, Laura Beaudin laura.beau...@gmail.com wrote: From: Laura Beaudin laura.beau...@gmail.com Subject: [TMIC] an update To: f...@yahoogroups.com, msersl...@yahoogroups.com, Transverse Mylitis Group tmic-list@eskimo.com, transversemyelitissupp...@yahoogroups.com Date: Wednesday, March 16, 2011, 11:54 AM now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Laura Lifeportunities: transform your home-based life into freedom. Visit the Practical Homeschooling blog!
Re: [TMIC] an update
Dear Laura, My salutations for the problem solving and way making that you have created! You blog is lovely. I regret not knowing about it sooner, so I could follow it. I applaud your work around--- finding the dictation equipment. I followed it to the DisabledShop and read a couple of moving stories there, Thank you! How I wish that the various helping agencies understood the importance of the internet, access to the internet and software! I remember the doctor offering me drugs when I was in the hospital and I said I needed a laptop and a high speed connection! I am sorry to learn of the changes in your circumstance. If you would like to to chat, p-mail me your phone number and I will call. Hugs and well wishes, Akua --
Re: [TMIC] an update
I am putting my comments to Laura on your email.My computer won't let me send to her - she has Yahoo and that is a problem for me. Any, Laura, if you didn't get my first message to you, I wanted you to know how very sorry I am about your circumstances. Are you familiar with the place you will be living? I so hope you really like it and that they can really help you.Also, hope it is just temporary. Please keep in touch with us - we care. Janice --
[TMIC] an update
now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Laura Lifeportunities http://www.lifeportunities.com/: transform your home-based life into freedom. Visit the Practical Homeschooling http://practical-homeschooling.orgblog!
[TMIC] An update
Hi friends, A couple of months ago I left Brasil to try to remember who I was before TM..as you all know. Do you remember the little child I found with TM who changed my life? Well if not, her name is Christa Brumant who also suffer from this disease of ours from Trinidad. She is presently in Kennedy Krieger Institute . finally recieving the treatment she needs after being diagnosed 14 months ago. She is 10 years old and I honestly think she is a lot stronger than me and she taught me so much with just her smile. I know I put you guys through a hell of a lot worrying about me and now it is slightly ridiculous for me to ask you guys for a favour, but I must. Please spend some time to wish her well as she tries to get better. She is such a great kid and I love her so much, it hurts to know she suffers from this thing of ours. I'll update you guys as her treatment comes along. Regards, Jeron
[TMIC] OT - update on our son Daniel
So many of you have offered your support during the time I needed it when our son Daniel was so ill. He has really rallied his way back to feeling really good now. He's worked hard, using my recumbent bike initially for a very short time, and now continues to do so for a nice ride. He rides the bike two times a day, and assisted with the use of an apparatus that looks kind of like a toy. his lung capacity has dramatically improved as well. He even had a nice hike in a local park the other day. It's a really pretty place that he loves the go to and the waterfall is great this time of the year, so he enjoyed that very much. He hardly even coughs any more, which I love, because it really sounded horrible. He's a student at a local university and this happened right at finals, so he was given incompletes at the time he missed the tests. He was able to petition for make-ups and completed those this week, so he's pleased about that, but knows this is going to hurt his GPA as he wasn't in top shape during his studying and paper preparation. At least he didn't waste the entire semester. He hopes he'll still be in good shape for grad school with his grades as this was his junior year. All in all, things are turning out pretty positive for him and we're looking ahead now. It sure feels good. Hugs, Barbara A in Auburn CA Hugs, Barbara A in Auburn CA =
Re: [TMIC] Re: update on our son Daniel
One more miracle, Barbara... So good to read your note. Jeanne in Dayton, WA ---Original Message--- From: Barbara Alma Date: 12/31/2009 8:32:23 PM To: toddtm2...@sbcglobal.net Subject: [TMIC] Re: update on our son Daniel Hello Todd, and TMIC, as I think it's time for an update. Thanks for asking about our son Daniel. Daniel is doing well. He has been very busy keeping up with his exercises which are helping to improve his lung capacity. It's working and he's breathing so much better these days. He's not completely out of the woods, that will take some time, but he is really coming along well. We are very blessed - we know that! The power of prayer is so strong, he was really a very sick man and if he hadn't gone into the hospital when he did and hadn't been so healthy previously, it could have turned out to be a different story. Makes one really stop and take notice, that's for sure. Hugs, Barbara A in Auburn CA Hey Barbara A, So sorry to hear about your son, Daniel. Please keep us posted on his health. We'll be praying for you, your family Daniel. Hope he is doing better today, Hope you have a good Happy New Year, Todd in Corpus Christi, TX SuperStock_1196-107.jpg
[TMIC] Re: update on our son Daniel
Hello Todd, and TMIC, as I think it's time for an update. Thanks for asking about our son Daniel. Daniel is doing well. He has been very busy keeping up with his exercises which are helping to improve his lung capacity. It's working and he's breathing so much better these days. He's not completely out of the woods, that will take some time, but he is really coming along well. We are very blessed - we know that! The power of prayer is so strong, he was really a very sick man and if he hadn't gone into the hospital when he did and hadn't been so healthy previously, it could have turned out to be a different story. Makes one really stop and take notice, that's for sure. Hugs, Barbara A in Auburn CA Hey Barbara A, So sorry to hear about your son, Daniel. Please keep us posted on his health. We'll be praying for you, your family Daniel. Hope he is doing better today, Hope you have a good Happy New Year, Todd in Corpus Christi, TX
Re: [TMIC] Nice update on Jude
Thanks for the update on Jude. You will need a two-week vacation after fixing a dinner for 12!!Hope all goes well. It seems that the older we get, and having TM, that we seem to develop other problems too, from cancer to pink eye - which I had last week. Apparently I developed it from the cold I had. All of the 19 years that I worked in the nurse's office of a high school and helped kids with their drops for pink eye, I worried I would contract it. No, I wait until I am coping with TM and a nasty cold - then I get pink eye at 63. What a bite! Janice, Missouri -- From: pjv1...@chartermi.net Sent: Wednesday, November 25, 2009 1:13 PM To: tmic tmic-list@eskimo.com; TM Jan Hargrove jmh1...@sbcglobal.net; TM Jan Hargrove jmh1...@sbcglobal.net Subject: [TMIC] Nice update on Jude I'm guilty of reading the postings without commenting. I'm guilty of spending too much time on the computer - including facebook. However, I really got hit with the guilts when I saw the birthday wish to Judy (Jude). I was supposed to tell everyone that she is well and everything has been fine with her. The only laptop she has is one of those itty bitty ones and she doesn't like using it so she hasn't been reading or posting lately. I could have written about my last doctor visit and our discussion of how I was going to conquer SAD (Seasonal Affective Disorder) this winter. He asked if we had considered going to Arizona for a few months and I asked if he could write an rx so I could use it as a tax write-off! His response was - let me know if you get away with it! So, he suggests exercise, getting outside 20 minutes a day, a full-spectrum light bulb where I spend my most time, 1000 iu vitamin D and 1000 Omega 3 vitamins. Last year I was taking 60mg Cymbalta (combination anti-depressant and pain). I've been on 90mg since April and I'm trying not to increase that medication. Our above normal temps in November have helped so far. I'm having twelve for dinner tomorrow and I sat down to my computer to rest between the cleaning and cooking. Happy Thanksgiving to all! Patti - Michigan
[TMIC] Nice update on Jude
I'm guilty of reading the postings without commenting. I'm guilty of spending too much time on the computer - including facebook. However, I really got hit with the guilts when I saw the birthday wish to Judy (Jude). I was supposed to tell everyone that she is well and everything has been fine with her. The only laptop she has is one of those itty bitty ones and she doesn't like using it so she hasn't been reading or posting lately. I could have written about my last doctor visit and our discussion of how I was going to conquer SAD (Seasonal Affective Disorder) this winter. He asked if we had considered going to Arizona for a few months and I asked if he could write an rx so I could use it as a tax write-off! His response was - let me know if you get away with it! So, he suggests exercise, getting outside 20 minutes a day, a full-spectrum light bulb where I spend my most time, 1000 iu vitamin D and 1000 Omega 3 vitamins. Last year I was taking 60mg Cymbalta (combination anti-depressant and pain). I've been on 90mg since April and I'm trying not to increase that medication. Our above normal temps in November have helped so far. I'm having twelve for dinner tomorrow and I sat down to my computer to rest between the cleaning and cooking. Happy Thanksgiving to all! Patti - Michigan
[TMIC] Re: Update on exciting spinal cord research
Did you see this news from the Reeve Foundation? The Reeve Foundation's North American Clinical Trials Network will begin a Phase 1 safety study of riluzole, a drug that is already FDA-approved for use in ALS patients. Laboratory studies have shown riluzole to be effective in protecting cells from dying immediately after a spinal cord injury. If it's possible to regrow nerves from the brain, is it also possible for those nerves to make the right connections with their target cells in the spinal cord? Regeneration alone isn't sufficient for function: regenerating axons must find their correct address! Reeve Foundation funded scientists Joel Glover and Marie-Claude Perreault are exploring this critical question using new state-of-the-art imaging to follow growing axons and map them as they connect with their targets. New drug therapies offer great promise. Reeve Foundation individual grantee, J. Marc Simard, Ph.D., is exploring whether the drug gibenclamide, long used to treat diabetes, will reduce the initial damage to the nervous system caused by a spinal cord injury. Stem cells are formidable research tools. In the Reeve Foundation Research Consortium, scientist Fred H. Gage, Ph.D., is using human embryonic stem cells to grow working spinal circuits in a dish. In the body, these circuits transmit signals from the brain and spinal cord to the muscles that control walking and other voluntary movements. In the dish, Dr. Gage can see what happens when the axons are cut and he can test drugs to see if they limit the damage to the axons. --
[TMIC] URGENT update
Date changed SUNDAY August 16th 2:30 SOUTHwest Virginia TMA Support Group (Transverse Myelitis,Devics, MS, Optic Neuritis etc. welcome) SUNDAY August 16 2:30 p.m. Shoney's Restaurant Dublin, Va just of I 81 exit 98 Holiday Inn Express, Hampton Inn, Comfort Inn next door if your need to spend the night. Please feel free to come NO MATTER what area you live in!!! Tennessee, North Carolina, West Virginia are all near the crossroads of I 77 and I 81!!! MUST RSVP now to dho.d...@comcast.net or I will cancel for lack of response. Feel free to forward this to anyone who needs to know. Drema Hagee ODell (facebook) 540-230-6402
Re: [TMIC] Short update on Jim 6/24
You are such a special person, Linda..Jeanne ---Original Message--- From: L T CHERPESKI Date: 06/24/09 23:22:03 To: cjb...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] Short update on Jim 6/24 So good to hear that Jim is a bit better. We'll just need to pray that a bed becomes available and that these good doctors wean Jim off the ventilator and he is healed. Carol, calling your grandchildren your 4 little sunshines was so sweet - it put a great big smile on my face! Stopped just now and prayed for Jim, you, and all of your family and will continue to keep all of you in my thoughts and prayers. The bed will be there and much brighter days are on the horizon. Give Jim a gentle hug and please keep us updated. love, Linda - Original Message - From: cjb...@aol.com To: cjb...@aol.com ; tmic-list@eskimo.com Sent: Wednesday, June 24, 2009 8:28 AM Subject: [TMIC] Short update on Jim 6/24 Jim is doing a bit better, but I will be really feel better when he is on his way to the pulmonary fixing place. He has been accepted there but they do not have a bed as yet. We have heard good reports from there and believe they will be able to wean him off of the ventilator there. It is in Kalamazoo and so only 15 min from Cindy and Eric and our 4 little sunshines. I will stay nights at their house and will love it. Keep the prayers flowing. Love carol ps Jodi and Dave will be coming as well. Together our family can keep Jim working towards health, Huge Savings on Popular Laptops only at Dell.com. Shop Now! 01_tile.jpg01_side.gif
[TMIC] Short update on Jim 6/24
Jim is doing a bit better, but I will be really feel better when he is on his way to the pulmonary fixing place. He has been accepted there but they do not have a bed as yet. We have heard good reports from there and believe they will be able to wean him off of the ventilator there. It is in Kalamazoo and so only 15 min from Cindy and Eric and our 4 little sunshines. I will stay nights at their house and will love it. Keep the prayers flowing. Love carol ps Jodi and Dave will be coming as well. Together our family can keep Jim working towards health, **Huge Savings on Popular Laptops only at Dell.com. Shop Now! (http://pr.atwola.com/promoclk/100126575x1221900667x1201409530/aol?redir=http: %2F%2Fad.doubleclick.net%2Fclk%3B215910242%3B38350777%3Bf)
Re: [TMIC] Short update on Jim 6/24
The prayers will still be coming and I'm so happy that you get to be with your family, bless your heart..Jeanne ---Original Message--- From: cjb...@aol.com Date: 6/24/2009 9:29:55 AM To: cjb...@aol.com; tmic-list@eskimo.com Subject: [TMIC] Short update on Jim 6/24 Jim is doing a bit better, but I will be really feel better when he is on his way to the pulmonary fixing place. He has been accepted there but they do not have a bed as yet. We have heard good reports from there and believe they will be able to wean him off of the ventilator there. It is in Kalamazoo and so only 15 min from Cindy and Eric and our 4 little sunshines. I will stay nights at their house and will love it. Keep the prayers flowing. Love carol ps Jodi and Dave will be coming as well. Together our family can keep Jim working towards health, Huge Savings on Popular Laptops only at Dell.com. Shop Now! frog_branch2.gif
Fw: [TMIC] Short update on Jim 6/24
Carol and Jim,Will keep praying for you,and a bed to become open and good health soon.CatherineFrom: "cjb...@aol.com" cjb...@aol.comTo: cjb...@aol.com; tmic-list@eskimo.comSent: Wednesday, June 24, 2009 10:28:06 AMSubject: [TMIC] Short update on Jim 6/24Jim is doing a bit better, but I will be really feel better when he is onhis way to the pulmonary fixing place. He has been accepted there but they donot have a bed as yet. We have heard good reports from there and believe theywill be able to wean him off of the ventilator there. It is in Kalamazoo and soonly 15 min from Cindy and Eric and our 4 little sunshines. I will stay nightsat their house and will love it. Keep the prayers flowing. Lovecarol ps Jodi and Dave will be coming as well. Together our familycan keep Jim working towards health,Huge Savings on Popular Laptops only at Dell.com. Shop Now!
Re: [TMIC] Short update on Jim 6/24
Think how much better he is doing than 2 weeks ago! Hang in there and we will too. janice - Original Message - From: cjb...@aol.com To: cjb...@aol.com ; tmic-list@eskimo.com Sent: Wednesday, June 24, 2009 9:28 AM Subject: [TMIC] Short update on Jim 6/24 Jim is doing a bit better, but I will be really feel better when he is on his way to the pulmonary fixing place. He has been accepted there but they do not have a bed as yet. We have heard good reports from there and believe they will be able to wean him off of the ventilator there. It is in Kalamazoo and so only 15 min from Cindy and Eric and our 4 little sunshines. I will stay nights at their house and will love it. Keep the prayers flowing. Love carol ps Jodi and Dave will be coming as well. Together our family can keep Jim working towards health, -- Huge Savings on Popular Laptops only at Dell.com. Shop Now!
Re: [TMIC] Short update on Jim 6/24
So good to hear that Jim is a bit better. We'll just need to pray that a bed becomes available and that these good doctors wean Jim off the ventilator and he is healed. Carol, calling your grandchildren your 4 little sunshines was so sweet - it put a great big smile on my face! Stopped just now and prayed for Jim, you, and all of your family and will continue to keep all of you in my thoughts and prayers. The bed will be there and much brighter days are on the horizon. Give Jim a gentle hug and please keep us updated. love, Linda - Original Message - From: cjb...@aol.commailto:cjb...@aol.com To: cjb...@aol.commailto:cjb...@aol.com ; tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Wednesday, June 24, 2009 8:28 AM Subject: [TMIC] Short update on Jim 6/24 Jim is doing a bit better, but I will be really feel better when he is on his way to the pulmonary fixing place. He has been accepted there but they do not have a bed as yet. We have heard good reports from there and believe they will be able to wean him off of the ventilator there. It is in Kalamazoo and so only 15 min from Cindy and Eric and our 4 little sunshines. I will stay nights at their house and will love it. Keep the prayers flowing. Love carol ps Jodi and Dave will be coming as well. Together our family can keep Jim working towards health, -- Huge Savings on Popular Laptops only at Dell.com. Shop Now!http://pr.atwola.com/promoclk/100126575x1221900667x1201409530/aol?redir=http:%2F%2Fad.doubleclick.net%2Fclk%3B215910242%3B38350777%3Bf
Re: [TMIC] Judes Update
Janice, I got goose-ubmps reading your note to Jude. This is exactly what the list is about and why we are so glad to have new members who can join in inspiring each other thru the hard times of our TM journeys. Patti - Michigan Janice jan...@centurytel.net wrote: Jude, I am new to this bunch of great people. Have had TM for 2 years.When I joined this webside (about 2 weeks ago), it seemed that on a daily basis people were asking each other if there was any news about Jude.I could tell there was a lot of concern and love from all your friends on the list. Now, I too, am wishing you the very best of luck and may God bless you. Janice - Original Message - From: alle...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 3:58 PM Subject: [TMIC] Judes Update Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping
Re: [TMIC] Judes Update
I AM IN SPLENDORA TX. I HAD TM IN APRIL 1998. I'VE HAD 3 RE OCCURANCES SINCE THEN. FOR ME I THINK STRESS BRINGS IT ON. I AM 62 SOON TO BE 63 ON THE 26TH. I WAS AFFECTED AT T6 DOWN, DID REHAB AND MY FUNCTION IS ALMOST NORMAL. STILL NUMBNESS FROM BREAST DOWN AND PAIN AND BURNING IN MY SPINE. NEURONTIN AND BACLOFEN SEEM TO HELP. I WILL BE PRAYING FOR YOU JUDE. YOU ARE TRULY AN INSPIRATION TO ALL OF US. I'M TYPING THROUGH THE TEARS, JUST SEEING A POST FROM YOU LIGHTENS MY DAY. THANK YOU PATTI FOR BEING THERE FOR HER. LOVE TO ALL JANE **Feeling the pinch at the grocery store? Make dinner for $10 or less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
[TMIC] Judes Update
Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0002)
Re: [TMIC] Judes Update
Hey Jude, We're just quiet right now, I guess..but, be sure everyone is eager for every word about you and your progress!! Think only positive thoughts..it is frequently bad when you go searching for info, I think your best bet is to keep tied to us as we are ALL praying for your sucessful recovery!! Just try to feel our love and you'll be in a positive place!! Hugs, janh Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude
[TMIC] Judes Update
Hi Jude, You write beautiful and inspiring notes. I don't know where everyone is and I also miss having lots of posts to read when I check in. I think there are many of us who read, but sit quietly by while waiting for others to answer the questions that have been asked. March 20th sounded far away when you first told of your surgery date and its hard to believe its just three days away. I want to visit you before Friday and maybe I can bring my Mom this time. I'll give you a call around noon to see how you're doing. Love, Pattti
Re: [TMIC] Judes Update
Dearest Jude, I'm so glad you have written. I have not spoken with Patti for over a week. I see she is planning to visit you before you go to hospital for surgery. I will catch up from her then. Please know you are in my thoughts and prayers as you go into this surgery. We are all here for you always. With Luv 'n Hugs, Heather in Calgary - Original Message - From: alle...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 2:58 PM Subject: [TMIC] Judes Update Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude -- Feeling the pinch at the grocery store? Make meals for under $10.
Re: [TMIC] Judes Update
Jude, I am new to this bunch of great people. Have had TM for 2 years.When I joined this webside (about 2 weeks ago), it seemed that on a daily basis people were asking each other if there was any news about Jude.I could tell there was a lot of concern and love from all your friends on the list.Now, I too, am wishing you the very best of luck and may God bless you. Janice - Original Message - From: alle...@aol.com To: tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 3:58 PM Subject: [TMIC] Judes Update Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping and Praying to wake up after surgery, Jude -- Feeling the pinch at the grocery store? Make meals for under $10.
Re: [TMIC] Judes Update
Dear Jude, It does seem a bit quiet today; however, did you know that we have 5 NEW members? I see that one of them, Janice, has already posted to you - wishing you well and praying for you. So I think the list is going to be getting pretty busy again. See what you have to look forward to after your surgery? You will have so many posts to read it will probably take you days to get through all of them. And that's a good thing! You are such a blessing to our TM family, Jude. Please know that we think of you and pray for you each day. As you go into surgery just think of your TM family surrounding you with love and prayer. Nothing but positive thoughts - you are in God's hands. Love Prayers, Linda - Original Message - From: alle...@aol.commailto:alle...@aol.com To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 2:58 PM Subject: [TMIC] Judes Update Hello Dear Ones, Why is there no mail in my mailbox? Have you all gone to that Face place? Are you at Yahoo? Can't I count on anyone any more? All I did was go into the hospital for a few days and when I get back, everyone seems to be gone. The List is like a ghost town... I would like to thank those of you who have taken the time and effort to send me lovely cards and beautiful notes. I will cherish them for a long time. The hospital is a lonely place and a card with well wishes goes a long way towards making the time pass a bit faster. Also, thank you to those of you who have called me to wish me well and to let me know I have been missed. You have no idea what you people mean to me. I hate naming names because I am afraid of leaving someone out, my memory is getting worse by the hour. So, I am not going to do that. You know who you are and how much I appreciate your signs of friendship...you keep me able to look at life as a glass half full, if you know what I mean. As some of you know, I have no family except for my wonderful husband, Dave. We moved miles away from our home town because Dave wanted property and shortly after I was stricken with TM...no chance to make friends with anyone. Like all of us, I was grasping at straws, trying to find something to give me a reason to live, something to hold on to. Finding this site, thanks to Jim Lubin, became my lifeline. You people became my family and I had somewhere to go where people understood what I was going through, how my life had done a 360' and in a heartbeat I didn't know who I was, where I fit in, if I even was worthwhile to life itself. Each and every one of you has given me a reason to continue living. You make me think, you make me lol, you make me feel warm and comforted when I'm in pity party mode. You graciously allow me to make mistakes and don't hold it against me, and I know that I can count on you to hold me up when I get too tired to tread water any longer. This Friday I go in for flap surgery on the ulcers on my behind. The plastic surgeon is not certain where he is going to find extra tissue to create the flap so the outcome is up in the air. He is going to shave the bony protubences of the ischeal tuberosities way down so that there will be less of a chance for them to penetrate the skin in the future. The research I have done online has not been optimistic. It sounds like in many cases the sites open back up in a relatively short period of time. And, I did not realize that complications due to pressure sores is the number one cause of death in paraplegics. In the future, my job will be to force myself to eat lots of protein and learn to move around when I'm sitting to allow freedom of blood flow and maintain oxygenation in the blood. No matter how hard I am being hugged around my abdomen, I have to find a way to eat. I don't know how to do that though. Dave and I are drinking those new fruit flavored protein waters which are supposed to be an excellent source of the good stuff. And they taste great, not all thick and gooey like Ensure and those kinds of drinks. I am overtired and cannot go to sleep. Things keep rolling around in my head...like what has happened to the List. As hard as Jim Lubin works, even though he is a quadriplegic, to keep this thing going and as much gumption it must have taken him to even begin a web site for us forsaken TM'ers, is absolutely amazing and I for one, will not jump ship for some site where supposedly the grass is greener. Maybe I will be here all by myself, though I know better, but that's ok because through you, my friends and family, I have learned to value myself again, know how to reach out for help when I need it, and I even understand how being a paraplegic has made me a better person, put things in the right perspective, humbled me just a bit. So, to those of you who make me laugh and have given life and hope to one lost old woman, thank you again. Hoping
[TMIC] Fwd: Update on Jude
Date: Mon, 9 Mar 2009 11:24:32 -0700 From: pjv1...@chartermi.net To: tmic-l...@eskimo.org Subject: Update on Jude I have an update on Jude, however, sometimes thing move so fast with her that my updates are out-dated and I don't even know it myself. I hope Pam or Ella will post if they have anything new to add. I was able to visit Jude at her home for the first time on Friday the 6th. My past visits have always been at the nursing home or hospital so this was really a treat for both of us. It was a beautiful sunny and Jude finally felt up to a visit when I called and asked. Ella called Jude while I was there and we got to exchange a few words. Jude was excited to get Ella's call although it was cut short and she was eager to share two cards that she had recently from people on the tmic. Jude also appreciates the emails and extends her well-wishes to her TM family. I should have sent my update sooner so everyone knows what her specific prayer needs are. Jude is scheduled to have her bone surgery on March 20th, however, she has a UTI so the surgery might be put on hold. Jude's primary doctor is at a loss as to what oral anitbiotic to give her for the UTI so her home care nurse is seeking help elsewhere to get her started on an IV. Jude and Dave were both concerned that they were waiting too long to get the infection under control. Jude is anxioux about this surgery, because she doesn't know how her TM body will respond to the shock of the surgery and recovery. Dave is in need of hernia surgery, but is putting it off until Jude has her surgery. His red blood count is dropping and the reason has not been determined. Jude is more concerned for Dave than she is for herself. (Isn't that just like her?) I hope Jude is still in good spirits and can get out of bed and into her wheelchair soon. lessings to all Patti- Michigan
[TMIC] Tuesday update (1 to 4 sleep again)
Morning, well here it is 1 to 4 again! I had no clue I would be in this much pain…. Will have to wait on surgeon to see if I get to go home today…. Ready to get out of here. They have a tube in my neck draining and once they look at that they might be able to determine if I can go home today. Other than tired (getting used to 3 hours sleep) feeling ok, of course neck is sore. They have these compression wraps on both of my legs that squeeze my legs intermitly prevent blood clots and let me tell you they feel great, want to see if I can sneak this home! LOL So let’s home Dr Lets me go home today
RE: [TMIC] Tuesday update (1 to 4 sleep again)
re leg wraps: this reminds me of last April when I had a spleneotomy; I woke up wearing these leggings up to my private parts: boy was I scared here I was in recovery wondering if they had done a sex change operation by mistake; the nurse then explained as you said it was to prevent blood cllots; you are right they feel great. but as soon as I got home I immediately took them off. boy those drugs they give you sure make you halucinate; hope you do get to go home; as they say there is no place like home. From: kimr1...@bellsouth.net To: tmic-list@eskimo.com Subject: [TMIC] Tuesday update (1 to 4 sleep again) Date: Tue, 27 Jan 2009 10:56:04 + Morning, well here it is 1 to 4 again! I had no clue I would be in this much painâ¦. Will have to wait on surgeon to see if I get to go home todayâ¦. Ready to get out of here. They have a tube in my neck draining and once they look at that they might be able to determine if I can go home today. Other than tired (getting used to 3 hours sleep) feeling ok, of course neck is sore. They have these compression wraps on both of my legs that squeeze my legs intermitly prevent blood clots and let me tell you they feel great, want to see if I can sneak this home! LOL So letâs home Dr Lets me go home today
RE: [TMIC] Tuesday update (1 to 4 sleep again)
Gosh, Gerry! If they had gotten much closer they may have changed from a Gerry to a Sherry!!! (ohI'msofunny) Jeanne in Dayton, WA ---Original Message--- From: Gerry Surette Date: 1/27/2009 5:44:40 AM To: kimr1...@bellsouth.net Cc: tmic-list@eskimo.com Subject: RE: [TMIC] Tuesday update (1 to 4 sleep again) re leg wraps: this reminds me of last April when I had a spleneotomy; I woke up wearing these leggings up to my private parts: boy was I scared here I was in recovery wondering if they had done a sex change operation by mistake; the nurse then explained as you said it was to prevent blood cllots; you are right they feel great. but as soon as I got home I immediately took them off. boy those drugs they give you sure make you halucinate; hope you do get to go home; as they say there is no place like home. From: kimr1...@bellsouth.net To: tmic-list@eskimo.com Subject: [TMIC] Tuesday update (1 to 4 sleep again) Date: Tue, 27 Jan 2009 10:56:04 + Morning, well here it is 1 to 4 again! I had no clue I would be in this much painâ¦. Will have to wait on surgeon to see if I get to go home todayâ¦. Ready to get out of here. They have a tube in my neck draining and once they look at that they might be able to determine if I can go home today. Other than tired (getting used to 3 hours sleep) feeling ok, of course neck is sore. They have these compression wraps on both of my legs that squeeze my legs intermitly prevent blood clots and let me tell you they feel great, want to see if I can sneak this home! LOL So letâs home Dr Lets me go home today Spiral_notebook.jpgMOST_P~3.GIF
Re: [TMIC] Sunday update on Kim...RELIGIOUS CONTENT
Kim, You are such a doll. I am glad that you are looking forward to your surgery with such a positive attitude. When it becomes my turn, I hope I will be as graceful as you. Come Monday, Heaven will be inundated with Prayers for you to have a safe and successful surgery. God's mailbox will be overflowing with messages of love for you from the TMIC group. How gracious you are to be thinking of me, in this, your time of need. Thank you. But, let's get you taken care of first. It's going to be a while before I am ready for surgery. Get what little rest you can and have sweet, sweet dreams straight from the Holy Spirit in your Heart. Bless you, dear one. Jude In a message dated 1/25/2009 10:54:45 A.M. Eastern Standard Time, kimr1...@bellsouth.net writes: Sunday update on Kim Nero-surgeon just left, they have me scheduled to surgery Monday at 2:00 (figured I am already at hospital, all ready dressed for the occaison might as well go for it!) LOL They are doing the least evasive procedure to relieve the spinal cord compression at C-7, and C-6, surgery should take about 45 minutes and I and scheduled to go home Tuesday!. So all and all had nothing to do with TM but after it’ s all said and done I will still have TM, so get to stay with my TM family for now just be a little different for a few days! Thanks again for the entire one on one support and up lifting emails; I don’ t know what I would do without my extended TM family So all is good, now let’s focus on Jude getting better! PS Atlanta suport group safe to assume I won't be at the meeting today! Thanks again Kim **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola. com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
[TMIC] Surgery Update on Kim
Kim is out of surgery. Everything went really well. Her strength is really good in her arms again. Since she is in a wheel chair and uses a walker that is very important. Depending on how she is feeling she might be able to go home tomorrow afternoon, or the day after for sure. Thanks for all the wonderful thoughts and prayers. If you have any questions let me know I don't she will be online tonight. Jenna
Re: [TMIC] Surgery Update on Kim
Thanks so much for the update, Jenna!! Barbara H. In a message dated 1/26/2009 4:45:12 P.M. Eastern Standard Time, jkste...@yahoo.com writes: Kim is out of surgery. Everything went really well. Her strength is really good in her arms again. Since she is in a wheel chair and uses a walker that is very important. Depending on how she is feeling she might be able to go home tomorrow afternoon, or the day after for sure. Thanks for all the wonderful thoughts and prayers. If you have any questions let me know I don't she will be online tonight. Jenna **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] Surgery Update on Kim
Thanks for the update!! Couldn't be better news!!! Share our love with her..janh --- On Mon, 1/26/09, Jenna jkste...@yahoo.com wrote: Kim is out of surgery. Everything went really well. Her strength is really good in her arms again. Since she is in a wheel chair and uses a walker that is very important. Depending on how she is feeling she might be able to go home tomorrow afternoon, or the day after for sure. Thanks for all the wonderful thoughts and prayers. If you have any questions let me know I don't she will be online tonight. Jenna
[TMIC] Sunday update on Kim
Sunday update on Kim Nero-surgeon just left, they have me scheduled to surgery Monday at 2:00 (figured I am already at hospital,all ready dressed for the occaison might as well go for it!) LOL They are doing the least evasive procedure to relieve the spinal cord compression at C-7, and C-6, surgery should take about 45 minutes and I and scheduled to go home Tuesday!. So all and all had nothing to do with TM but after it’s all said and done I will still have TM, so get to stay with my TM family for now just be a little different for a few days! Thanks again for the entire one on one support and up lifting emails; I don’t know what I would do without my extended TM family So all is good, now let’s focus on Jude getting better! PS Atlanta suport group safe to assume I won't be at the meeting today! Thanks again Kim
Re: [TMIC] Sunday update on Kim
We are just blessed that you went to the ER and that after your surgery, hopefully your pain will be even less!!! You will be in our prayers and in my little Prayer Pot!!! Jeanne ---Original Message--- From: kimr1...@bellsouth.net Date: 1/25/2009 9:54:20 AM To: Jenna Stentz; Martha Fleming; Susan; Randy; Betty-TM Subject: [TMIC] Sunday update on Kim Sunday update on Kim Nero-surgeon just left, they have me scheduled to surgery Monday at 2:00 (figured I am already at hospital, all ready dressed for the occaison might as well go for it!) LOL They are doing the least evasive procedure to relieve the spinal cord compression at C-7, and C-6, surgery should take about 45 minutes and I and scheduled to go home Tuesday!. So all and all had nothing to do with TM but after it’s all said and done I will still have TM, so get to stay with my TM family for now just be a little different for a few days! Thanks again for the entire one on one support and up lifting emails; I don’t know what I would do without my extended TM family So all is good, now let’s focus on Jude getting better! PS Atlanta suport group safe to assume I won't be at the meeting today! Thanks again Kim floral.jpgb_floral.jpg
Re: [TMIC] Health Update
The one good thing that I am getting out of this, is that I am scheduled for some more physical and occupational therapy. Dear Naomi, I wish you the best in all things. I hope your healing is swift and sure. Blessings, Akua --
Re: [TMIC] Health Update
You take care, dear one, and know that you are in our prayers. I hope they have all sorts of new PT/OT to help you. So much depends on who you get. Jack and I are just now packing for the Seattle Symposium and hope to come back with new info. Grace's show was so wonderful and she is truly a beautiful person. I loved seeing the love and care of her kids. I'm so glad she was chosen... Jeanne ---Original Message--- From: [EMAIL PROTECTED] Date: 7/13/2008 7:13:22 PM To: [EMAIL PROTECTED] Subject: [TMIC] Health Update Hello my friend, Just a short note to let you know that I am currently in the hospital. I am having a problem with swelling to my Baclofen pump area. So far I have here to CAT scans and ultrasound and scheduled for an MRI. They still don't know what's causing the swelling. The one good thing that I am getting out of this, is that I am scheduled for some more physical and occupational therapy. Because I haven't been on the computer since Wednesday, the day I was admitted to the hospital, I have a ton of e-mail to read. I probably won't send much e-mail, but I will try to keep up with what's going on. Keep me in your prayers, Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com!
[TMIC] Health Update
Hello my friend, Just a short note to let you know that I am currently in the hospital. I am having a problem with swelling to my Baclofen pump area. So far I have here to CAT scans and ultrasound and scheduled for an MRI. They still don't know what's causing the swelling. The one good thing that I am getting out of this, is that I am scheduled for some more physical and occupational therapy. Because I haven't been on the computer since Wednesday, the day I was admitted to the hospital, I have a ton of e-mail to read. I probably won't send much e-mail, but I will try to keep up with what's going on. Keep me in your prayers, Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus0005000112)
Re: [TMIC] Health Update
How old is the pump? Alton On Jul 13, 2008, at 8:1251 PM, [EMAIL PROTECTED] wrote: Hello my friend, Just a short note to let you know that I am currently in the hospital. I am having a problem with swelling to my Baclofen pump area. So far I have here to CAT scans and ultrasound and scheduled for an MRI. They still don't know what's causing the swelling. The one good thing that I am getting out of this, is that I am scheduled for some more physical and occupational therapy. Because I haven't been on the computer since Wednesday, the day I was admitted to the hospital, I have a ton of e-mail to read. I probably won't send much e-mail, but I will try to keep up with what's going on. Keep me in your prayers, Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com!
Re: [TMIC] Re. Update for Janet
AOL EmailKen Oliver's address is in the TMA Membership Directory if you would like to mail him cards. He lives in New Mexico. Because of privacy issues, I will not publicly post his address without his permission. Take care, Debbie [EMAIL PROTECTED] - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Saturday, June 14, 2008 9:06 PM Subject: Re: [TMIC] Re. Update for Janet I have requested hospital address from Ken twice now, but he is either spending most of his time at her bedside, or it keeps slipping his mind with so much to think about. Peace and Prayers, Jude -- Vote for your city's best dining and nightlife. City's Best 2008.
Re: [TMIC] Re. Update for Janet
I couldn't tell you that.but you can send it to his email addressit looks like he's checking that periodically...I guess you could send him an e-mail asking for address???/ Trudy Ogilvie [EMAIL PROTECTED] wrote: Wondering if there is an address where we could send cards etc... to Ken at home or to Janet in the hospital.. Trudy On Sat, Jun 14, 2008 at 11:07 AM, Jan Hargrove [EMAIL PROTECTED] wrote: -Here's my message from Ken..let's keep up our prayers going up for Janet (and) KEN!! janh Dear Friends, Thank all of you who sent e-mail with prayers for Janet. Tonight I believe that our prayers are being answered in a way that gives all joy. All week since Tue. she was kept asleep to rest heart and lungs. This morning about 4am she began to have tempeture I had a call from the nurse telling that she had 104 temp.. When Bruce and I reached the hospital we were pleasantly surprised to find her awake and responding with the tempeture normal. If this continues as is they will remove the breathing tube. She was breathing on her own today, Hopefully she will continue to improve so they can put stents in Monday if that is successful she will make a good recovery. I feel quite optomistic tonight. Your prayers and words of comfort have meant a lot to us. God be praised for all His wonderful love to us poor sinners who saved by His Grace. May God draw very near to each of you. My Thought for Today will be continued next week. Until then I pray each of will blessed by our wonderful Friend and Saviour Jesus Christ. Ken - Search that pays you back! Introducing Live Search cashback. Search Now! = - Get the Moviefone Toolbar. Showtimes, theaters, movie news, more!
[TMIC] Re. Update for Janet
Jan Hargrove [EMAIL PROTECTED] wrote: [EMAIL PROTECTED] Trudy Ogilvie [EMAIL PROTECTED] wrote: I could not find Ken's e-mail, Jan, please forward this for me. Thanks Ken, What wonderful news. Praise God... Jude asked me to write and see if you would want to give us your home address or the hospital where Janet is staying so we can send cards, etc...Do not want to be bothering you at this time just want you to know we are here and praying for Janet and family... Praise, honor and glory to Our Lord Jesus Christ Trudy On Sat, Jun 14, 2008 at 11:07 AM, Jan Hargrove [EMAIL PROTECTED] wrote: -Here's my message from Ken..let's keep up our prayers going up for Janet (and) KEN!! janh Dear Friends, Thank all of you who sent e-mail with prayers for Janet. Tonight I believe that our prayers are being answered in a way that gives all joy. All week since Tue. she was kept asleep to rest heart and lungs. This morning about 4am she began to have tempeture I had a call from the nurse telling that she had 104 temp.. When Bruce and I reached the hospital we were pleasantly surprised to find her awake and responding with the tempeture normal. If this continues as is they will remove the breathing tube. She was breathing on her own today, Hopefully she will continue to improve so they can put stents in Monday if that is successful she will make a good recovery. I feel quite optomistic tonight. Your prayers and words of comfort have meant a lot to us. God be praised for all His wonderful love to us poor sinners who saved by His Grace. May God draw very near to each of you. My Thought for Today will be continued next week. Until then I pray each of will blessed by our wonderful Friend and Saviour Jesus Christ. Ken - Search that pays you back! Introducing Live Search cashback. Search Now! = - Get the Moviefone Toolbar. Showtimes, theaters, movie news, more!
Re: [TMIC] Re. Update for Janet
I have requested hospital address from Ken twice now, but he is either spending most of his time at her bedside, or it keeps slipping his mind with so much to think about. Peace and Prayers, Jude **Vote for your city's best dining and nightlife. City's Best 2008. (http://citysbest.aol.com?ncid=aolacg0005000102)
Re: [TMIC] MRI update
Congratulations! And i too wait, now with HOPE! Akua in dreary southern tier, NY Dr Kerr just e mailed me to let me know that my new MRI shows no new activity, only the damage from 10 years ago! I also asked him about Q cells and he stated that this is the direction he is headed! I of course gave my sales pitch for me to be considered in the initial human trials. Thanks for all of the help the group has provided me and a special thanks for bringing me up to date on Q cells! Rob in New Jersey (hopefully waiting to be cured!) -- http://www.akuadesigns.etsy.com http://www.artfarm.com http://www.absolutearts.com/portfolios/a/akualezli/
[TMIC] MRI update
Dr Kerr just e mailed me to let me know that my new MRI shows no new activity, only the damage from 10 years ago! I also asked him about Q cells and he stated that this is the direction he is headed! I of course gave my sales pitch for me to be considered in the initial human trials. Thanks for all of the help the group has provided me and a special thanks for bringing me up to date on Q cells! Rob in New Jersey (hopefully waiting to be cured!)
[TMIC] Fwd: Update on friend...
Thank You all so much for the prayers. I don't usually put this on the TMIC list but thought it was a good way to get lots of prayers. Thanks again Patti **The year's hottest artists on the red carpet at the Grammy Awards. Go to AOL Music. (http://music.aol.com/grammys?NCID=aolcmp0030002565) ---BeginMessage--- Thank you ALL for your prayers... Just wanted to let you know that the doctors are AMAZED at India's recovery! With the size, location, and severity of the clots, they had told her to expect to be in bed with NO moving, in ICU for at least 10 days. Needless to say, I sent this e-mail out Monday afternoon after calling to check up on her. Nothing had changed, in fact, she was in a LOT of pain so to her it was getting worse. By the time Shawn and I were able to get to the hospital to see her (8pm - 9pm visiting hours), she said she felt 100% better. India said she took a nap after the afternoon visiting hours (they were 330pm - 530pm) and when she woke up, she was feeling very good. She was able to get out of bed and go to the bathroom, with a nurse, but still! That night just after we left, she was moved to a regular room. The following morning the doctors told her the clots were gone and she was to be released later in the day. Shawn and I didn't even get a chance to see her again, we were called at 11am and they told us that she was going to be released to not bother coming by the hospital, and by 4pm she was out! All I have to say is 'NEVER UNDERESTIMATE THE POWER OF PRAYER!' THANK YOU ALL SOO much! She is still restricted at home, but she's home JJJ Traci Confidentiality Notice: The information contained in this message and any attachments may contain confidential or proprietary material and is intended solely for the use of the person or entity to which it is addressed. Any unauthorized review, use, disclosure or distribution of this communication is strictly prohibited. If you have received this communication in error, please immediately notify the sender by reply e-mail and destroy all copies of this communication and any attachments. From: Sietsma, Traci Sent: Monday, February 11, 2008 02:27 PM To: 'Angela Small'; 'Aunt Mae'; '[EMAIL PROTECTED]'; 'Bekah Halls'; 'Ben Sietsma'; 'Bonnie'; 'Cara Porter'; 'CeCe Newton'; 'Cholie Flatt'; 'Christa Angelov'; 'Darlene Bigalow'; 'Dolores Godoy'; 'Hollie Bigbie'; 'Iszler'; 'Jake Mullis'; 'Jean Gogolak'; 'Jessica Pettigrew'; 'Jil Cooley'; 'Julie King'; 'Kim Condes'; 'Kim Korhorn'; 'LaDean Gregory'; 'Laura Tuskan'; 'Lisa Ben'; 'Lisa Raulerson'; 'Lucy LongobardiRaymond'; 'Mark Taylor'; 'Mays Family'; 'Melanie Mays/Steward'; 'Missy Fuller'; 'Mom_Work'; '[EMAIL PROTECTED]'; '[EMAIL PROTECTED]'; '[EMAIL PROTECTED]'; 'Rav Sond'; 'Selina'; 'Shawns Mom'; 'Shirley Blink'; 'Steph Kustka'; '[EMAIL PROTECTED]'; 'Trey Scruggs'; '[EMAIL PROTECTED]'; 'Bonnie'; 'Jean Gogolak'; '[EMAIL PROTECTED]' Subject: Please pray for our friend... Sorry, I guess my hotmail is having issues... Our friend India was taken to the hospital on Saturday afternoon and they have found blood clots on both of her lungs. She is in ICU and is expected to be there for about 10 days. Please keep her in your prayers! Traci Sietsma Savannah/Jacksonville Phone 912/963-1176 Mobile 912/515-4074 Fax 866/399-5332 Confidentiality Notice: The information contained in this message and any attachments may contain confidential or proprietary material and is intended solely for the use of the person or entity to which it is addressed. Any unauthorized review, use, disclosure or distribution of this communication is strictly prohibited. If you have received this communication in error, please immediately notify the sender by reply e-mail and destroy all copies of this communication and any attachments. ---End Message---
Re: [TMIC] Cody Update
This is gotta be short and sweet cause I'm just to tired. I . Doing better and I really appreciated the visit from Cozzy. Thanks for the prayers and well wishesCody Sent from my BlackBerry® wireless device -Original Message- From: Cossy Hough [EMAIL PROTECTED] Date: Sat, 29 Dec 2007 16:55:26 To:TM mailing list tmic-list@eskimo.com Subject: [TMIC] Cody Update Hi all- I stopped by and saw Cody and Judy at the hospital today. They finally got blood work results back today and the docs figured out the types of infections he has. He started new antibiotics today. His kidney function has improved and Judy says he's better today than yesterday. He's sleeping alot but seemed to be in good spirits when he woke for a few minutes while I was there. I let him know how concerned everyone is and that folks are praying for him. Thanks- Cossy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
[TMIC] Cody Update
Hi all- I stopped by and saw Cody and Judy at the hospital today. They finally got blood work results back today and the docs figured out the types of infections he has. He started new antibiotics today. His kidney function has improved and Judy says he's better today than yesterday. He's sleeping alot but seemed to be in good spirits when he woke for a few minutes while I was there. I let him know how concerned everyone is and that folks are praying for him. Thanks- Cossy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [TMIC] Cody Update
That's a 'Thank You God!' Jeanne in Dayton, WA ---Original Message--- From: Cossy Hough Date: 12/29/2007 6:55:49 PM To: TM mailing list Subject: [TMIC] Cody Update Hi all- I stopped by and saw Cody and Judy at the hospital today. They finally got blood work results back today and the docs figured out the types of infections he has. He started new antibiotics today. His kidney function has improved and Judy says he's better today than yesterday. He's sleeping alot but seemed to be in good spirits when he woke for a few minutes while I was there. I let him know how concerned everyone is and that folks are praying for him. Thanks- Cossy _ __ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/ _ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ 01_backg2.jpg01_header2.gif
Re: [TMIC] Cody Update
Thank you for the update Cossy. It's good to hear that his kidney function has improved! Please let him know that we are still praying for him. Linda - Original Message - From: Cossy Houghmailto:[EMAIL PROTECTED] To: TM mailing listmailto:tmic-list@eskimo.com Sent: Saturday, December 29, 2007 5:55 PM Subject: [TMIC] Cody Update Hi all- I stopped by and saw Cody and Judy at the hospital today. They finally got blood work results back today and the docs figured out the types of infections he has. He started new antibiotics today. His kidney function has improved and Judy says he's better today than yesterday. He's sleeping alot but seemed to be in good spirits when he woke for a few minutes while I was there. I let him know how concerned everyone is and that folks are praying for him. Thanks- Cossy Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJhttp://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [TMIC] Cody Update
I agree with Grace, et alThank Goodness Cody's showing improvement!! Prayers continue that this report is repeated tomorrow!! janh Grace M. [EMAIL PROTECTED] wrote: I agree Jeanne. Thank God that Cody is doing so much better. Grace
[TMIC] TMIC-An update on my TM/MS symptoms
Dear TMIC Group, I wanted to say hello and I hope this message finds you well! I know I do not know most of you personally, but I have been on the list since Sept. of 2000. I wanted to pass on some information that has drastically changed my life. History: A number of years ago my I was diagnosed with Transverse Myelitis (TM) and subsequently Multiple Sclerosis (MS). As most of you know these attacks lead to major nerve damage, nerve scarring, and many times some form of paralysis. Along the way a number of debilitating things have affected me due to the nerve damage over the last 8-10 years: Partial paralysis from the initial TM (This came and went as the MS side of the symptoms began to surface) Bladder dysfunction/not working Constant pain shooting throughout her entire body Tremors/shakes- these became very bad Memory loss/recall issues Spent more that 70% of her time in bed trying to recover Walking/balance we had just purchased a walker beginning of 2006 (racing red!) Partial paralysis on parts of her body, this could come and go but each year some damage was left behind in a culminating effect Nerve scarring revealed by the MRI Damage to one of her optic nerves causing a blind spot in one eye So many medications her side effects became worse than the MS symptoms themselves! I was looking forward to a slow and painful decline and an ever-increasing dependence on the drugs! Revelation: In June of 2006 I began taking something new. I had tried everything you possibly could imagine over the last 10 years (and there were some weird ones!) to stave off a decline that doctors had said there was nothing that would solve only delay. After only one month I began feeling better (now you must understand there have been other things that have made me feel better but never really effected the progression of my MS) and I was heartened, but still cautious. Around October 2006 I began to notice something astonishing, most of the symptoms listed above were no longer plaguing me! What finally brought it to the forefront was a virus I caught at about the same time, I prepared myself for another MS attack/relapse and yet another extended stay at the hospital (because that is what happens to MS patients when viruses set off the immune system I was an emergency room/hospital veteran) but nothing happened! You can understand my surprise? I began looking at the symptoms and drugs I had been slowly removing from my body. Over a 6-8 month period I found a slow repair had been underway. This culminated in a visit to my internal medicine doctor and my optomologist and found major improvement in my TM and MS symptoms. I also found my vision in the blind spot had been improving. In September I also had seen enough improvement that my husband began taking it as well. I have seen drastic improvement in his health. And, I have just recently started my children on the same technology and am already noticing positive changes in their health! Solution: This is not anything I can explain directly as I am not a doctor, but I have seen doctors who work with this technology demonstrate how many of our classic unhealable diseases and damage (and I mean all of them!) can be healed by our own bodies if we give it what it needs to do it. I hope this message has encouraged you! I am only passing on information about something that has changed my familys life and I thought you should know about this as it could change yours as well! Feel free to e-mail or call me for more information, or you can check this new science out for yourselves at a good layman site www.vitalcarbs4life.com or you can try www.glycoscience.org (although this is a heavily science website). I would be more than willing to follow up with anyone who needs more information, and you can contact me off the list If you are not interested in this new technology, someone might be! Please pass this note on to anyone that you know that has health challenges and might be interested! Feel free to contact me if any questions arise. Sincerely, Jenna K. Stentz cell (404) 386-3501 or email [EMAIL PROTECTED] - Everyone is raving about the all-new Yahoo! Mail beta.
Re: [TMIC] Newbies, update, etc.
Hope Terry's surgery goes well with a full and uneventful recovery. Enjoy your trip -- it sounds lovely! Barbara H. http://barbarah.wordpress.com/
[TMIC] Newbies, update, etc.
As Bob Cook said, when some of us first come on to the TM site, we are looking for answers. I had been lurking for a while before I submitted my first question years back, (OK, what 6 years now??) Anyway, you oldies will definitely remember Tom, Big Tom, who could be a smart ars. Well, he slammed me down with one of my first emails about herbs, milk thistle, in particularly. I was appalled at how he made me feel like a moron. The truth is, my theory about milk thistle was right and I stand by it. But, that isn't the point. It's just that HE made me feel like an idiot and I didn't belong and I almost unsubscribed. But, I found out I did belong, and EVERYBODY BELONGS!!! I don't write much these daze, (very busy with work/home/family), but my heart is with all of you that have been kind to me and Terry over the years and we are like old family regardless of what we talk about. Idle chatter is necessary in everyday life. Doesn't it sometimes help to keep us sane? Since I am now chatting, I'll update you on a couple of things. Terry has to have both shoulders replaced due to the osteonecrosis. He DOESNOT have it in his hips, as one Ortho had thought. He had surgery on both shoulders last year and they obviously haven't held up well thanks to the continued prednisone treatment. His first replacement is on the 23rd and he'll stay in the hospital a few days. The Doc has ordered a hospital bed, lift and nursing care, (yes, if Medicare will allow...), and 6 weeks of not using that arm in the least. But, he's looking forward to it as it always pops out of place and is chronically painful. We have to see how his recovery is on this one before we schedule the next. But, we are very optimistic! He's fantastic, otherwise, lost weight, happy and handsome!! So, this weekend will be our last travels for a bit. We are driving to June Lake in the Sierras for a 2 night stay and we’ll fish, take plenty of autumn photos, eat, drink and, and and... And then on to Yosemite for a night at The Ahwahnee Hotel. It's a magnificent trip and for those of you that haven't been to the Sierras, it is a wonderland of beauty! I'll take requests on sending you photos. You know how I like to share my pictures! Baby pictures, anyone??? The babies are fantastic, incidentally. Love them so very much! While I am writing this novel, I would like to comment on some of the topics of late: PAM - WRITE IN CAP ALL YOU LIKE! It's easier on some people. At least she is writing and sharing! ALTON - Your shoulders and driving – sounds like surgery - it's awful, isn't it?Terry slides intothe car, I put in his manual wheelchair and he must use a hand brake because his foot doesn't know how to move over to the brake, like some of you mentioned. I am so glad, tho, to hear your grandson is doing well! Bless you! JUDE - You have NEVER been a beetch! Not to me, at least! VICKI - I hope things are going better... EVERYONE, HOW IS COLE DOING? BARB, NONI, BOBBERINO, CINDY, (WHO DID I FORGET?), I'LL WRITE YOU ALL SON - HOPEFULLY!! And to therest of you that may still be reading this long email - miss you all and hope you and yours are doing well. I have a couple of issue, but very minor and ain't gonna complain! xoxo Sandy Parker
[TMIC] OT - Update on Errol's Baby
Good news from Australia! The baby is doing well and may be coming home soon! If anybody would like a picture of the baby, please let me know and I will send it to you privately. Errol thanks everybody who sent prayers and positive wishes their way. Prayers were answered and the nurses at the hospital call him their "miracle baby". Below is the update: Went down to see him again today, he is off all wiring,lines and plumbing, has three days of antibiotics to go and hopefully on hisway home soon. He is looking quite good now. Ten weeks old today. He isthe same age in days as I am in years. Love and Kind Regards from Errol, South East Queensland, Australia
Re: [TMIC] DIAGNOSIS UPDATE
Hey Jeff, Welcome to the club. I got my Dx of my first brain lesion a week and a half ago. We need to develop a nick name for the TMers with brain lesions. Cuz we are staying! Sandy - Original Message - From: jeff bernier To: tmic-list@eskimo.com Sent: Friday, September 01, 2006 9:24 PM Subject: [TMIC] DIAGNOSIS UPDATE well friday,i got the dx ive been dreading.after 6 and a half years of being jerked around by doctors,insurance companies and being tossed out of one therapy unit to another because of lack of improvment,they found lesions on the brain that were not there before and i was dx with ms,the 2 letters i didnt want to hear,but its going to open a bunch of doors that were not open before as far as meds and treatment,but ive dealt with it this long.no since crying over spilled milk i guess. does anyone know some good net ms sites as far as groups go?,i still plan on staying on the tm site,but im just searching for info. jeff Stay in the know. Pulse on the new Yahoo.com. Check it out.
Re: [TMIC] DIAGNOSIS UPDATE
I propose the 'braised braine brother(sister)hood'. Me missus was dx'd with MS in 99 February, went on Avonex right away and today, 323 shots later, you couldn't tell she's a gimp. Go for it, Jeff. Get on the ABC plan. Sharon Marsden hosts a very good MSers club. Check it out. Bobberino in Elvisland. From: Sandy Heidel To: jeff bernier ; tmic-list@eskimo.com Sent: Saturday, September 02, 2006 8:28 AM Subject: Re: [TMIC] DIAGNOSIS UPDATE Hey Jeff, Welcome to the club. I got my Dx of my first brain lesion a week and a half ago. We need to develop a nick name for the TMers with brain lesions. Cuz we are staying! Sandy - Original Message - From: jeff bernier To: tmic-list@eskimo.com Sent: Friday, September 01, 2006 9:24 PM Subject: [TMIC] DIAGNOSIS UPDATE well friday,i got the dx ive been dreading.after 6 and a half years of being jerked around by doctors,insurance companies and being tossed out of one therapy unit to another because of lack of improvment,they found lesions on the brain that were not there before and i was dx with ms,the 2 letters i didnt want to hear,but its going to open a bunch of doors that were not open before as far as meds and treatment,but ive dealt with it this long.no since crying over spilled milk i guess. does anyone know some good net ms sites as far as groups go?,i still plan on staying on the tm site,but im just searching for info. jeff
[TMIC] OT: Update on Errol
Hello again, Errol in Australia has so many friends on this list, and he wants me to pass on his many thanks for all of your prayers and kind thoughts. As his entire family is consumed by little Dane's health problems, he has not had a chance to thank you all individually, and until all is well, he wishes me to send you periodic updates on what is going on. If you would prefer to receive these updates privately rather than on the list, please let me know, and I will add you to a special mailing list. Below is the latest: Good Evening my friends, The latest on Dane, he came offthe breathing ventilator and indwelling catheter and some other bits andpieces yesterday morning. He is now out of the ICU and in anothermonitoring ward at the hospital. He had some more scans today, have notheard the results of these as yet. There has been several conferences andmeetings regarding the future direction treatment will have to go. Itlooks like he will be in hospital for some time yet and it will be a longroad to travel. He had more head scans on Tuesday and should know theresults of these soon. But things are looking decidely much better thisThursday than they were last Thursday. Mavis has been so busy looking afterthree other grandchildren. More reports as we get the info. Imust thank you all for your kind comments and prayers. It does help all ofus a heck of a lot. Thanks so much.Take care Love and Kind Regards from Errol Mavis Family, South East Queensland,Australia.
[TMIC] another update on Lyrica no shirt yet
Hi everybody I was find till today as the pain goes BUT I had to wear a blouse I hadn't worn in years and what a mistake it was!! My arm got fired up and I need to wait till I get on a full dose before I try that again. I will say my knees and ankles are still great plus my energy still feels good. My arm should be ok come tomorrow, I hope. I hope you all had a good Easter and are feeling ok. Take care, Love to all Sally
