Re: [TMIC] Pain management doctor

2013-01-22 Thread a-ryder
@eskimo.com Sent: Sun, 20 Jan 2013 17:56:10 - (UTC) Subject: Re: [TMIC] Pain management doctor Alton, Don't you have pain? What does the Baclofen do for you? I believe I take it for spasms. Are you taking it for the same thing? If I don't take it my right leg flies out of the bed and if we go

Re: [TMIC] Pain management doctor

2013-01-21 Thread a-ryder
...@chartermi.net Cc: tmic-list@eskimo.com Sent: Sat, 19 Jan 2013 03:56:13 - (UTC) Subject: Re: [TMIC] Pain management doctor What do you mean? I am going to have a pain pump put in. My family Dr. didn't want to be responsible for my pills anymore, so she referred me to a pain clinic and the Dr

Re: [TMIC] Pain management doctor

2013-01-20 Thread a-ryder
: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad

Re: [TMIC] Pain management

2013-01-20 Thread frank
I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ Sativex is sprayed under my tongue. I use it two or three times a day, with little euphoria. It's a legal prescription drug, in Canada and soon to

Re: [TMIC] Pain management

2013-01-20 Thread john snodgrass
, 2013 10:05 AM Subject: Re: [TMIC] Pain management   I have been prescribed 2 oz of pot per month ...the problem is that the legal pot is $450 per oz. But I do agree that pot truly helps!!! Rob in NJ Sativex is sprayed under my tongue.  I use it two or three times a day, with little euphoria

Re: [TMIC] Pain management

2013-01-20 Thread Heyjude48458
purchased an OZ and it was 40 bucks an oz for the good stuff. From: fr...@franksheldon.com fr...@franksheldon.com To: Robert Pall robthe...@aol.com; tmic-list@eskimo.com Sent: Sunday, January 20, 2013 10:05 AM Subject: Re: [TMIC] Pain management I

Re: [TMIC] Pain management doctor

2013-01-20 Thread Heyjude48458
- From: Pat Voorheis pjv1...@chartermi.net To: tmic tmic-list@eskimo.com Sent: Sat, 19 Jan 2013 01:21:21 - (UTC) Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad

Re: [TMIC] Pain management doctor

2013-01-20 Thread john snodgrass
same for me with the baclofen. From: heyjude48...@aol.com heyjude48...@aol.com To: a-ry...@comcast.net; pjv1...@chartermi.net Cc: tmic-list@eskimo.com Sent: Sunday, January 20, 2013 12:56 PM Subject: Re: [TMIC] Pain management doctor Alton,   Don't you

Re: [TMIC] Pain management doctor

2013-01-19 Thread Heyjude48458
- From: Pat Voorheis Sent: Friday, January 18, 2013 7:21 PM To: tmic Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad

Re: [TMIC] Pain management doctor

2013-01-19 Thread Heyjude48458
Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad

Re: [TMIC] Pain management doctor

2013-01-19 Thread Janice Nichols
...@chartermi.net Subject: Re: [TMIC] Pain management doctor Janice, I didn't know that you have an implant for pain. How do the magnets differ from the pain medication pump. You say it is effective for you. That's great! What made you make the choice between the two different types of implants? Love

Re: [TMIC] Pain management

2013-01-19 Thread frank
Hey, Pumps don't allways work. Don't let them talk you out of pain. Consider Cannabis, or Sativex if you live in Canabis Try things Frank Who takes Nortriptolin, Dextromethorphin, Phenobarbitol,Sativex; uses self hypnosis/meditation.

Re: [TMIC] Pain management doctor

2013-01-19 Thread Heyjude48458
@chartermi.net_ (mailto:pv...@chartermi.net) Subject: Re: [TMIC] Pain management doctor Janice, I didn't know that you have an implant for pain. How do the magnets differ from the pain medication pump. You say it is effective for you. That's great! What made you make the choice between the two

Re: [TMIC] Pain management doctor

2013-01-19 Thread Heyjude48458
@chartermi.net_ (mailto:pv...@chartermi.net) Subject: Re: [TMIC] Pain management doctor Janice, I didn't know that you have an implant for pain. How do the magnets differ from the pain medication pump. You say it is effective for you. That's great! What made you make the choice between the two

Re: [TMIC] Pain management doctor

2013-01-19 Thread Heyjude48458
...@aol.com) Sent: Saturday, January 19, 2013 11:23 AM To: _jannic@centurytel.net_ (mailto:jan...@centurytel.net) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Pain management doctor Janice, I didn't realize that you have an implant for pain. Did we discuss

Re: [TMIC] Pain management

2013-01-19 Thread Heyjude48458
Frank, I wondered what had become of you. It's been years since we have talked. What have you been doing? What have you been up to? How have you been feeling? Not much pain I guess, 'cause you smoke cannabis. Are you on Facebook, with Bernie and Kevin? I don't see you post there.

Re: [TMIC] Pain management doctor

2013-01-19 Thread Heyjude48458
Patti, Thank you. Yes, the Dr. I see is with McLaren. His name is Dr. Sabit, in Lapeer. His home office is in Southfield. His number is: 810-667-7318 if Dr. Hagenstein wants to talk to him, but I don't know if that's such a good idea. Dr Sabit is the pain management Dr. who is

Re: [TMIC] Pain management

2013-01-19 Thread Robert Pall
-list tmic-list@eskimo.com Sent: Sat, Jan 19, 2013 2:32 pm Subject: Re: [TMIC] Pain management Hey, Pumps don't allways work. Don't let them talk you out of pain. Consider Cannabis, or Sativex if you live in Canabis Try things Frank Who takes Nortriptolin, Dextromethorphin

Re: [TMIC] Pain management

2013-01-19 Thread Heyjude48458
-Original Message- From: frank fr...@franksheldon.com To: Heyjude48458 heyjude48...@aol.com; pjv1234 pjv1...@chartermi.net Cc: tmic-list tmic-list@eskimo.com Sent: Sat, Jan 19, 2013 2:32 pm Subject: Re: [TMIC] Pain management Hey, Pumps don't allways work. Don't let them talk you

Re: [TMIC] Pain management doctor

2013-01-19 Thread Heyjude48458
So, how did you hook up with a Physicians Assistant? I now have home nursing and wouldn't want to lose that. In a message dated 1/19/2013 6:59:51 P.M. Eastern Standard Time, pjv1...@chartermi.net writes: I have been to a Physicians Assistant twice. My primary moved, his replacement

Re: [TMIC] Pain management

2013-01-19 Thread john snodgrass
a couple of years ago it didnt help me but it does nowodd From: Robert Pall robthe...@aol.com To: fr...@franksheldon.com; heyjude48...@aol.com; pjv1...@chartermi.net Cc: tmic-list@eskimo.com Sent: Saturday, January 19, 2013 7:42 PM Subject: Re: [TMIC] Pain

[TMIC] Pain management doctor

2013-01-18 Thread Pat Voorheis
Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad

Re: [TMIC] Pain management doctor

2013-01-18 Thread Heyjude48458
What do you mean? I am going to have a pain pump put in. My family Dr. didn't want to be responsible for my pills anymore, so she referred me to a pain clinic and the Dr. there recommended the Matrix pain pump. First they will do a trial somehow and then if it works a permanent pump

Re: [TMIC] Pain management doctor

2013-01-18 Thread Janice Nichols
Subject: [TMIC] Pain management doctor Please tell more about pain management doctors and clinics. Anything would be helpful and good to know. Sent from my iPad

Re: [TMIC] Pain

2012-02-12 Thread Susan Kleinz
' ; 'Janice Nichols' Cc: tmic-list@eskimo.com Subject: RE: [TMIC] Pain My husband is permanently catherized because of the same reason. It just wouldn’t work anymore….to pee with or anything else …LOL From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Thursday, February 09, 2012 7:39 AM

RE: [TMIC] Pain

2012-02-12 Thread Carol E
Try sitting and relaxing! Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. Date: Thu, 9 Feb 2012 07:38:49 -0500 Subject: Re: [TMIC] Pain From: malugss...@gmail.com To: skle...@cox.net; jan...@centurytel.net CC: tmic-list@eskimo.com Don't think

Re: [TMIC] Pain

2012-02-09 Thread Dalton Garis
: Re: [TMIC] Pain Resent-From: tmic-list@eskimo.com Resent-Date: Wed, 8 Feb 2012 20:44:53 -0800 no, but it takes me a long time to pee! On Feb 6, 2012, at 6:12 PM, Janice Nichols wrote: Ladies, Do any of you have burning sensations or spasms around/in your urethra? I do

RE: [TMIC] Pain

2012-02-09 Thread Emily
Subject: Re: [TMIC] Pain Don't think it's just you ladies; I stand in front of the porcelain throne, with my legs aching, waiting, and begging, Please, please .. Dalton From: Susan Kleinz skle...@cox.net Date: Wed, 8 Feb 2012 20:57:45 -0700 To: Janice Nichols jan...@centurytel.net Cc

Re: [TMIC] Pain

2012-02-08 Thread Susan Kleinz
no, but it takes me a long time to pee! On Feb 6, 2012, at 6:12 PM, Janice Nichols wrote: Ladies, Do any of you have burning sensations or spasms around/in your urethra? I do, and have since TM struck. I also feel a spasm in the urethra when I need to urinate.Does any of this sound

Re: [TMIC] Pain Pump

2010-09-05 Thread Alton Ryder
I have. Both were Baclofen, one a replacement for the other to get new batteries. Medtronics, the manufacturer, is the authority on using both meds mixed. Alton On Sep 4, 2010, at 2:30 PM, ladyno...@aol.com wrote: had the pump removed and reinstalled?

Re: [TMIC] Pain Pump

2010-09-04 Thread ladynotes
. So many changes to the body, choices to choose from, and decisions to make Have a Blessed Day, Naomi -Original Message- From: Cindy McLeroy cindymcle...@socal.rr.com To: LadyNotes ladyno...@aol.com Sent: Mon, Aug 30, 2010 4:17 pm Subject: Re: [TMIC] Pain Pump Hi, are you talking

Re: [TMIC] Pain Pump

2010-09-04 Thread ladynotes
Thank you Todd, for the information and the prayers Have a Blessed Day, Naomi -Original Message- From: Todd Tarno toddtm2...@sbcglobal.net To: LadyNotes ladyno...@aol.com Sent: Mon, Aug 30, 2010 2:33 pm Subject: Fw: [TMIC] Pain Pump Hey Naomi, They should be able to replace

[TMIC] Pain Pump

2010-08-30 Thread LadyNotes
I had a baclofen pump removed last September 11, due to complications with it. At the time of removal, I was told that I could not have it put back in. But what I did not know at the time, was that I could get pain medicine put directly into the pump also. Now I'm considering having the pump

Re: [TMIC] pain management ideas

2010-08-15 Thread Janice Nichols
PM To: tmic Subject: [TMIC] pain management ideas hi all. i wanted to ask what pain and nerve med's you all have taken that works. i am always in pain. i am out of options with med's i have taken. can anyone help? dennis/tx

Re: [TMIC] pain management ideas

2010-08-15 Thread frank
Hi All, I'm not going to go over my pain meds ( Nortriptyline, Vitamin D, Dextromethorphan, Cannabinoids, Phenobarbital) again. My pain never really goes away unless I add a couple shots of Bourbon or other high test drinks. I am able to keep my pain at #2 or 3 with meds. What really

Re: [TMIC] pain management ideas

2010-08-15 Thread john snodgrass
hypnosis sounds pretty cool as long as it doesn't take me back to the time i was a paperboy being chased by the crazy dog! --- On Sun, 8/15/10, fr...@franksheldon.com fr...@franksheldon.com wrote: From: fr...@franksheldon.com fr...@franksheldon.com Subject: Re: [TMIC] pain management ideas

Re: [TMIC] pain management ideas

2010-08-15 Thread Akua
hi all. i wanted to ask what pain and nerve med's you all have taken that works. i am always in pain. i am out of options with med's i have taken. can anyone help? dennis/tx What have you taken that doesn't work? ( would save time in answering) --

Fwd: Re: [TMIC] pain management ideas

2010-08-15 Thread Akua
from john snodgrass Dennis, How long have you been struggling with TM? what combinations of meds have you tried? I have been fighting it for 2.5 years, but hydrocodone and Neuronton,Baclofin,and lorazepam seam to be helping me somewhat. doesn't make everything peachy but allows me to

Re: Fwd: [TMIC] pain management ideas

2010-08-15 Thread Akua
Brilliant Betty this is great! 10mg Baclofen (up to 3x/d),Lyrica,Xanax Embeda, Percocet, Tegretol Amantadine 100mg 2X/d, Cymbalta 60mg, Zanaflex 4mg,Tranxene 7.5mg, Darvacet Amatryptaline,Gabapentin,Synthroid,Loratadine,Miralax Amitriptyline (Elavil) 50mg, Tramadol, Lyrica, Wellbutrin

Re: Fwd: [TMIC] pain management ideas

2010-08-15 Thread john snodgrass
that certainly covers a large amount of property ;) --- On Sun, 8/15/10, Akua a...@artfarm.com wrote: From: Akua a...@artfarm.com Subject: Re: Fwd: [TMIC] pain management ideas To: tmic-list@eskimo.com Date: Sunday, August 15, 2010, 8:47 PM Re: Fwd: [TMIC] pain management ideasBrilliant Betty

Re: [TMIC] pain management ideas

2010-08-15 Thread Janice Nichols
The way things never go right for me, hypnosis scares the hell out of me! Janice From: john snodgrass Sent: Sunday, August 15, 2010 2:58 PM To: fr...@franksheldon.com Cc: transverse myelitis Subject: Re: [TMIC] pain management ideas hypnosis sounds pretty cool as long as it doesn't

Re: [TMIC] pain management ideas

2010-08-14 Thread john snodgrass
find something that makes a difference for you because that's encouraging. --- On Sat, 8/14/10, Dennis Rabalais drabala...@gt.rr.com wrote: From: Dennis Rabalais drabala...@gt.rr.com Subject: [TMIC] pain management ideas To: tmic tmic-list@eskimo.com Date: Saturday, August 14, 2010, 7:52 PM

[TMIC] Pain and Feeling

2009-03-22 Thread Akua
It has progressed as the feeling increased over the past 9 years. h... I'm wondering if increased pain is a sign of increased connectivity? --

Re: [TMIC] Pain

2009-03-18 Thread L T CHERPESKI
(but born raised in Seattle) Message - From: Janicemailto:jan...@centurytel.net To: transverse myelitismailto:tmic-list@eskimo.com Sent: Tuesday, March 17, 2009 10:07 AM Subject: [TMIC] Pain I hate to keep bugging you all with questions, so I hope you don't mind

[TMIC] Pain

2009-03-17 Thread Janice
I hate to keep bugging you all with questions, so I hope you don't mind and will take a minute to answer. Several of you have talked about the pain that you have, apparantly even after several years of TM. I am assuming we are all talking about nerve pain - which I have in my legs and back

Re: [TMIC] Pain

2009-03-17 Thread Trudy Ogilvie
Janice,I take 150mg. of Lyrica 2x a day. I also take 90mg. Cymbalta. I also have been given vicodin if it really gets bad. I have a great deal of nerve pain from the waist down. Fatigue is a huge problem. I'm sure the arthritis doesn't help much! I have just begun a new exercise program to

Re: [TMIC] Pain Drugs

2009-02-28 Thread Trudy Ogilvie
Akua Do you have MS? I am on Lyrica and Cymbalta. So I've got to figure out how to work it all out. I have a prescription for LDN and I have decided to try it. Were you on any drugs before the LDN?? I applaud you. I am not very good about my diet and I know it is essential towards improving my

Re: [TMIC] Pain

2008-12-31 Thread Trudy Ogilvie
Dear Jude,After just reading your e-mail I surfed around on the net about pressure sores and how serious and painful they can be. I found one site I thought informative tho I have a feeling you know all this and are hoping for some new found idea as to how to heal the pain. As for the pain in your

[TMIC] Pain

2008-12-29 Thread Heyjude48458
Have many of you had pressure sores that have become infected and are extremely painful? I know I only post when it's rainy weather but I really need some help. The problem is that there are two major sores, one on each butt cheek. I can find no comfortable position. And my

[TMIC] Pain Med Ultram ER (Tramadol)

2008-08-27 Thread CANDIS KALLEY
I went to my neuro today with my complaints of hurrandous pain from the barometric pressure changes that occurred with Fay and now Guestov (sp?). I'm not the 1st the nurse said. My neuro, Dr Vickers, prescribed Ultram ER 100 mg 1X a day plus a sample for 4 days. Within 30 minutes the pain went

Re: [TMIC] Pain Med Ultram ER (Tramadol)

2008-08-27 Thread Jenna
PROTECTED] To: tmic-list tmic-list@eskimo.com Sent: Wednesday, August 27, 2008 3:07:57 PM Subject: [TMIC] Pain Med Ultram ER (Tramadol) I went to my neuro today with my complaints of hurrandous pain from the barometric pressure changes that occurred with Fay and now Guestov (sp?). I'm not the 1st

[TMIC] Pain links

2008-08-25 Thread Krissy Z
http://healing.about.com/od/painmanagement/tp/attitudes_pain.htm?nl=1 http://healing.about.com/od/painmanagement/Pain_Management.htm?nl=1 ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~

Re: [TMIC] Pain

2007-09-28 Thread natalie mizenko
. - From: Kevin Wolfthal [EMAIL PROTECTED] To: Tmic-list@eskimo.com Subject: Re: [TMIC] Pain Date: Wed, 26 Sep 2007 22:56:54 -0400 I tried Cymbalta and didn't tolerate it, same with Lyrica unfortunately. Xanax keeps my heart rate normal and never

Re: [TMIC] Pain

2007-09-28 Thread Natalie Boyles
Rummel [EMAIL PROTECTED]/ To: /tmic-list@eskimo.com/ Subject: /[TMIC] Pain/ Date: /Wed, 26 Sep 2007 12:03:12 -0700 (PDT)/ Best idea is seeing a new neurologist. Zanax (for anxiety and nervousness) and 81mg aspirin? That's it! I'm no doctor, but sounds like you're

Re: [TMIC] Pain

2007-09-27 Thread Natalie Boyles
Hi Kevin, Please be careful if you are sensitive to cymbalta. I became extremely ill when taking it. I too got sick in my stomach from it and felt very ill. Had it been any worse, I would have needed to go to the emergency room. Luckily I was able to wait for its effects to wear off. I do not

Re: [TMIC] Pain

2007-09-27 Thread Trudy OGILVIE
been down that roadLarry Throne, MSW From: /Regina Rummel [EMAIL PROTECTED]/ To: /tmic-list@eskimo.com/ Subject: /[TMIC] Pain/ Date: /Wed, 26 Sep 2007 12:03:12 -0700 (PDT)/ Best idea is seeing a new neurologist. Zanax (for anxiety and n

[TMIC] Pain

2007-09-26 Thread Regina Rummel
Best idea is seeing a new neurologist. Zanax (for anxiety and nervousness) and 81mg aspirin? That's it! I'm no doctor, but sounds like you're not taking anything for pain. Good luck and let us know what the new neuro. has to say. R

RE: [TMIC] Pain

2007-09-26 Thread Larry Throne
And most likely if you get the pain to a tolerable level you won't need the anxiety medication. That's some pretty dangerous stuff. Ask your doctor to put you on cymbalta. It's the best thing I've found besides neurontin. Larry in Oklahoma who's been down that road Larry Throne, MSW From:

Re: [TMIC] Pain

2007-09-26 Thread Kevin Wolfthal
Hi Jeanne, Lyrica made me feel sick. Nauseous and like I was going to pass out. I tried it as long as I could, hoping the side effects would pass, but I couldn't take it. Cymbalta gave me stomach problems, but I might try it one more time. I'm going to ask my doctor about it. Best

[TMIC] Pain

2007-09-25 Thread Regina Rummel
Kevin, Why can't you get a doctor to give you anything for pain? R

Re: [TMIC] Pain or no Pain

2007-06-15 Thread Akua
My personal (very unprofessional) theory is that it's sort of like stopping a small baby from crying and making noises - expecting him to either talk or keep quiet. His crying is part of the development of his lungs and the noises are prerequisite to his learning to talk. If you stop him

RE: [TMIC] Pain Relief

2007-06-14 Thread Sandra Brassil
PROTECTED] Sent: Tuesday, June 12, 2007 4:41 PM To: 'Transverse Myellitis' Subject: [TMIC] Pain Relief Hello to All Like most of you I have the burning, pins and needles, electric shock, tingling feeling in my feet and legs. I am on Gabapentin and Perocodan. I just want to mention a lovely

Re: [TMIC] Pain or no Pain

2007-06-14 Thread [EMAIL PROTECTED]
I didn't have any pain at first, unless you count a little discomfort just below my rght rib. (TM at C6-C8,) But as time goes by, I get more pain, sometimes pretty bad. I realize now that I was numb at first, so I didn't FEEL any pain. As I get more feeling, I get more pain. But on the

Re: [TMIC] pain or no pain

2007-06-12 Thread Heyjude48458
Thanks Bernie, That really cleared things up for me. My brother lost a leg to cancer radiation treatment and he had a terrible time treating the phantom pain. I wonder why there would be such pain at the site of the incision if we cannot feel anything? We don't feel pain on the

Re: [TMIC] pain or no pain

2007-06-12 Thread JHarper33
Jude, it has helped me to think of it something like electrical wires. If something happens between the source of power and the outlet I am trying to use, there may be no power -- or, if the damage is not complete, the power may be dimmer or faulty somehow. It may even cause sparks to

Re: [TMIC] pain or no pain

2007-06-12 Thread Akua
I believe that we have, somewhere inside our brains and bodies, the ability to overcome things like TM. We ought to be growing new lines of communication between the brain and our bodies. So do I. I envision the regrowth. I think the pain are nerves regrowing. I am taking naltrexone and

Re: [TMIC] pain or no pain

2007-06-12 Thread Akua
think of it something like electrical wires. If something happens between the source of power and the outlet I am trying to use, there may be no power -- or, if the damage is not complete, the power may be dimmer or faulty somehow. It may even cause sparks to sputter forth. Excellent

[TMIC] Pain Relief

2007-06-12 Thread Janet Dunn
Hello to All Like most of you I have the burning, pins and needles, electric shock, tingling feeling in my feet and legs. I am on Gabapentin and Perocodan. I just want to mention a lovely lovely cream that my Dr. has given me by prescription. I have it made at a compounding pharmacy - and

Re: [TMIC] Pain or no Pain

2007-06-11 Thread cakalley
. Candy K. -Original Message- From: Regina Rummel <[EMAIL PROTECTED]>Sent: Jun 11, 2007 10:34 AM To: tmic-list@eskimo.com Subject: [TMIC] Pain or no Pain Most of us suffer awful pain. But is it possible that some of us do not have any pain? I don't mean little aches here and th

RE: [TMIC] Pain or no Pain

2007-06-11 Thread Tim Holder (Work)
] (501)224-7171 ext. 1454 Fellowship Bible Church 1901 Napa Valley Drive Little Rock, AR 72212-3913 -Original Message- From: Regina Rummel [mailto:[EMAIL PROTECTED] Sent: Monday, June 11, 2007 9:34 AM To: tmic-list@eskimo.com Subject: [TMIC] Pain or no Pain Most of us suffer awful

Re: [TMIC] Pain or no Pain

2007-06-11 Thread Jim Lubin
I had awful pain the first 2 months, so much so that I wanted to die so the pain would end. Decreased pain the next 3 month. Less pain the next 6 months or so, then none since. I haven't had any recovery since the first 5 months either. Jim At 07:34 AM 6/11/2007, Regina Rummel wrote: Most of

Re: [TMIC] Pain or no Pain

2007-06-11 Thread Heyjude48458
In a message dated 6/11/2007 11:02:49 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: OH I WISH IT WAS POSSIBLE TO HAVE TM AND NO PAIN - I have such excruciating pain in my lower back all the time - except when I first wake up and only move my eyelids - when I start moving in the

[TMIC] pain or no pain

2007-06-11 Thread Bernard Pelow
Hey Jude et All, I believe what you are asking about is a radical sympathectomy of the damaged spinal cord. I asked my pain management doctor about this years ago, to do one on me. But he said that in most experiences of people having this done, the pain at the site of the incison was much

RE: [TMIC] Pain

2007-05-14 Thread natalie mizenko
: [TMIC] Pain Date: Sat, 12 May 2007 11:43:54 -0700 (PDT) I have moderate to severe pain in my feet 24 hours a day. They tried tons of drugs while I was at Baylor Rehab. to get it under control. Many nights I couldn't even sleep still up at 8:00 to 4:00 to do all the exercise groups

RE: [TMIC] Pain

2007-05-14 Thread Larry Throne
It depends on who you talk to when you ask what state are you in, my wife might say something like "oh, he lives in Abbynormal land!" I live in S. E. Oklahoma, about 90 miles south east of OKC. It was an internal medicine doctor doing a fellowship from Mayo Clinic who diagnosed TM. All in All I

Re: [TMIC] Pain

2007-05-13 Thread Balmatmic
Anyway, who else has burning pain like this in their feet all the time? It really never, never leaves me. I was checked on an MRI for MS cause my pain was so severe. Dr. said my pain was out of the norm to be as severe as it was but she believed it was real. Natalie Hello Natalie,

[TMIC] Pain

2007-05-13 Thread Heyjude48458
Once again, my Neurologist recently explained to me that the kind of pain that we with TM deal with, (neuropathic nerve pain) is different than other kinds of pain and extremely difficult to treat. One of the main problems with neuropathic pain is that the pain can be felt at one place on

[TMIC] Pain

2007-05-12 Thread natalie mizenko
I have moderate to severe pain in my feet 24 hours a day. They tried tons of drugs while I was at Baylor Rehab. to get it under control. Many nights I couldn't even sleep still up at 8:00 to 4:00 to do all the exercise groups and training they had. Exhausted I was indeed then...but they

Re: [TMIC] Pain

2007-05-12 Thread ashfordrichard
Myellitis tmic-list@eskimo.com Subject: [TMIC] Pain

RE: [TMIC] Pain

2007-05-12 Thread pjv1234
Larry you're an inspiration! Patti Larry Throne [EMAIL PROTECTED] wrote: =

RE: [TMIC] Pain

2007-05-12 Thread Janet Dunn
time. Thanks Frank for the word picture - I am inclined to agree with you Janet From: natalie mizenko [mailto:[EMAIL PROTECTED] Sent: May 12, 2007 11:44 AM To: Transverse Myellitis Subject: [TMIC] Pain I have moderate to severe pain in my feet 24 hours a day. They tried tons of drugs

Re: [TMIC] Pain vs No pain

2007-03-26 Thread Stacy Harim
bad to have to go through all of that, huh? Stacy - Original Message - From: cwkmailto:[EMAIL PROTECTED] To: Kenneth Olivermailto:[EMAIL PROTECTED] ; Tmic-list@eskimo.commailto:Tmic-list@eskimo.com Sent: Thursday, March 15, 2007 9:57 PM Subject: Re: [TMIC] Pain vs No pain

Re: [TMIC] Pain vs No pain

2007-03-17 Thread Heyjude48458
. I only take anacin when I get a headache, I have not had anything take away the pain for all these years. Ken Yes, Ken...but how do you manage to get through the long days and nights? I am really serious. I'd like to be able to go without all of the medications I take, but the pain

Fwd: [TMIC] Pain vs No pain

2007-03-15 Thread Heyjude48458
. BERNARD BUTCHER From: Kenneth Oliver [mailto:[EMAIL PROTECTED] Sent: Wednesday, March 14, 2007 12:29 AM To: Butcher, Bernie [SFS]; [EMAIL PROTECTED]; Tmic-list@eskimo.com Subject: RE: [TMIC] Pain vs No pain Hi Bernie I am C7 and have normal feelings from just

Re: [TMIC] Pain vs No pain

2007-03-15 Thread Heyjude48458
Hi Ken, My legs and feet swell and turn dark purple when they are in a downward position, but all the tests have come back negative for circulatory problems, even though they sometimes become icy cold to the touch. My new doctor is trying to handle one symptom at a time, then well look

Re: [TMIC] Pain vs No pain

2007-03-15 Thread [EMAIL PROTECTED]
My legs and feet swell and turn dark purple when they are in a downward position, but all the tests have come back negative for circulatory problems, even though they sometimes become icy cold to the touch.\ Hi, It's very simple if you think back to med school: Circulation in the

Re: [TMIC] Pain vs No pain

2007-03-15 Thread cwk
spreadsheet and graph where I tracked my progress if anyone is interested.Cody in Austin - Original Message - From: Kenneth Oliver To: [EMAIL PROTECTED] ; [EMAIL PROTECTED] ; Tmic-list@eskimo.com Sent: Tuesday, March 13, 2007 12:01 AM Subject: Re: [TMIC] Pain vs No pain

RE: [TMIC] Pain vs No pain

2007-03-14 Thread Butcher, Bernie [SFS]
, March 14, 2007 12:29 AM To: Butcher, Bernie [SFS]; [EMAIL PROTECTED]; Tmic-list@eskimo.com Subject: RE: [TMIC] Pain vs No pain Hi Bernie I am C7 and have normal feelings from just above the upper shoulder blade, but the burning stinging pain is from there down, with my feet and lower legs

Re: RE: RE: [TMIC] Pain vs No pain

2007-03-14 Thread Candis Kalley
: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; Bernie [SFS] [EMAIL PROTECTED]; [EMAIL PROTECTED]; Kenneth Oliver [EMAIL PROTECTED]; Tmic-list@eskimo.com Date: 3/13/2007 4:22:41 PM Subject: Re: RE: RE: [TMIC] Pain vs No pain Completely upside down? - I'll try the pillows first

Re: [TMIC] Pain vs No pain

2007-03-14 Thread Kevin Wolfthal
this website gives a lifeline. Candy K. [Original Message] From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; Bernie [SFS] [EMAIL PROTECTED]; [EMAIL PROTECTED]; Kenneth Oliver [EMAIL PROTECTED]; Tmic-list@eskimo.com Date: 3/13/2007 4:22:41 PM Subject: Re: RE: RE: [TMIC] Pain vs

Re: RE: RE: [TMIC] Pain vs No pain

2007-03-14 Thread [EMAIL PROTECTED]
I just purchased a HoMedics AntiGravity Recliner with Message and Heat. Aren't they wonderful?? I bought mine several years ago- very plain- no heat, no vibration. cost $100, approx. With the money I saved, I can hire attractive young nursing students to massage my body, and pass me tall

Re: [TMIC] Pain vs No pain

2007-03-14 Thread Candis Kalley
/handling is added with any eby item but you still can save $50 to $150. Hope you are able to get one of the chairs. They are great. Candy K. - Original Message - From: Kevin Wolfthal To: [EMAIL PROTECTED];Tmic-list@eskimo.com Sent: 3/14/2007 3:22:01 PM Subject: Re: [TMIC] Pain vs

Re: RE: RE: [TMIC] Pain vs No pain

2007-03-14 Thread Candis Kalley
PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; [EMAIL PROTECTED]; Bernie [SFS] [EMAIL PROTECTED]; [EMAIL PROTECTED]; Kenneth Oliver [EMAIL PROTECTED]; Tmic-list@eskimo.com Date: 3/14/2007 4:27:29 PM Subject: Re: RE: RE: [TMIC] Pain vs No pain I just purchased a HoMedics AntiGravity Recliner

Re: [TMIC] Pain vs No pain

2007-03-13 Thread JHarper33
Hi Ken, My left hand and right calf and ankle (which were the limbs worst affected by TM) have been a little swollen ever since onset -- no idea why. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/13/2007 1:01:50 AM Eastern Daylight

RE: [TMIC] Pain vs No pain

2007-03-13 Thread Butcher, Bernie [SFS]
:[EMAIL PROTECTED] Sent: Tuesday, March 13, 2007 9:11 AM To: [EMAIL PROTECTED]; Tmic-list@eskimo.com Subject: Re: [TMIC] Pain vs No pain Hi Ken, My left hand and right calf and ankle (which were the limbs worst affected by TM) have been a little swollen ever since onset -- no idea why. Barbara

Re: [TMIC] Pain vs No pain

2007-03-13 Thread [EMAIL PROTECTED]
Ken, I get swelling of my left leg- the leg most affected neurologically. the only thing is to get my feet above my heart. I use an inversion apparatus to flip up and hand by my ankles. It also helps my low back! lying down on your back with tw pillows under your calves woorks too. hope

RE: [TMIC] Pain vs No pain

2007-03-13 Thread Butcher, Bernie [SFS]
Thanks Frank how long do you hold this pose? BERNARD BUTCHER -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 13, 2007 9:30 AM To: Kenneth Oliver; Tmic-list@eskimo.com Subject: Re: [TMIC] Pain vs No pain Ken, I get swelling of my left leg

Re: RE: [TMIC] Pain vs No pain

2007-03-13 Thread [EMAIL PROTECTED]
I hang my ankles 30 minutes, twice a day. my legs/ ankles are locked into a foam filled ankle cuff Cumfy! f

RE: RE: [TMIC] Pain vs No pain

2007-03-13 Thread Butcher, Bernie [SFS]
Completely upside down? - I'll try the pillows first. BERNARD BUTCHER -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 13, 2007 9:47 AM To: Butcher; Butcher, Bernie [SFS]; Kenneth Oliver; Tmic-list@eskimo.com Subject: Re: RE: [TMIC] Pain vs

RE: RE: [TMIC] Pain vs No pain

2007-03-13 Thread Butcher, Bernie [SFS]
Completely upside down? - I'll try the pillows first. BERNARD BUTCHER -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Tuesday, March 13, 2007 9:47 AM To: Butcher; Butcher, Bernie [SFS]; Kenneth Oliver; Tmic-list@eskimo.com Subject: Re: RE: [TMIC] Pain vs

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