Re: [TMIC] Suprapubic catheter

Im sorry, I just don’t have any experience in this. It is nice to hear from someone out there! > On Dec 15, 2015, at 11:12 AM, Jde wrote: > > Hi all, It's me, back from a long stay in the hospital, nursing home, and > finally home for TLC. Because of frequent UTI's

Re: [TMIC] Suprapubic catheter

Hi Jude, I have recently had a suprapubic catheter put in on 24th August after constant UTIs. My urologist previously had me on prophylactic antibiotics to try and reduce the amount of UTIs but these unfortunately did not work. I then decided it was time to get my catheter resited suprapubic.

Re: [TMIC] tmic-list group

the archive is free so it will remain at http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html On Sun, Aug 9, 2015 at 7:32 PM, Barbara H. barbara...@gmail.com wrote: Sounds good. Will the messages at this address be archived somewhere or would that cost something? Every now and

Re: [TMIC] tmic-list group

Sounds good. Will the messages at this address be archived somewhere or would that cost something? Every now and then I still search the archives for a previous conversation. Barbara H. Sent from my iPad On Aug 9, 2015, at 2:57 PM, Jim Lubin jlu...@makoa.org wrote: I started a new email

Re: [TMIC] tmic-list group

Jan, hurry over, it’s a great place to be and you might be surprised just how many of us are there and just how many tm groups there are! Gilly, member since 2001 From: Jan Nichols Sent: Monday, July 06, 2015 10:22 AM To: Robert Hijar ; Gillian Clark ; tmic-list@eskimo.com Subject: Re: [TMIC

Re: [TMIC] tmic-list group

there are! Gilly, member since 2001 From: Jan Nichols mailto:jannic...@gmail.com Sent: Monday, July 06, 2015 10:22 AM To: Robert Hijar mailto:elbobber...@earthlink.net ; Gillian Clark mailto:mingalett...@activ8.net.au ; tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list

Re: [TMIC] tmic-list group

...@gmail.com wrote: Subject: Re: [TMIC] tmic-list group To: Gillian Clark mingalett...@activ8.net.au Cc: tmic-list@eskimo.com Date: Monday, July 6, 2015, 7:57 AM I’m in. On there already, under the name Abdu’l-Hanif Al Wasi. Dalton On Jul 6, 2015, at 3:40 AM, Gillian Clark mingalett...@activ8

Re: [TMIC] tmic-list group

Great place to be where - on Facebook or the old address (Eskimo) Jan From: Gillian Clark Sent: Monday, July 06, 2015 2:40 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group Jan, hurry over, it’s a great place to be and you might be surprised just how many of us

Re: [TMIC] tmic-list group

To: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group Jan, hurry over, it’s a great place to be and you might be surprised just how many of us are there and just how many tm groups there are! Gilly, member since 2001 From: Jan Nichols Sent: Monday, July 06, 2015 10:22 AM

Re: [TMIC] tmic-list group

wondering if it is worth continuing to pay for it. $42 every 6 months. everyone seems to have moved to other groups. I might be able to move all the subscribed email addresses to another, free system using google groups, but the address would change to tmic-l...@myelitis.org. On Sat, Jul 4,

Re: [TMIC] tmic-list group

for almost 14 years. It’s free Jim and everyone is there. I’ll follow you wherever you go. Love you mate, Gilly From: Jim Lubin Sent: Sunday, July 05, 2015 4:18 PM To: tmic-list@eskimo.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group wondering if it is worth continuing to pay

Re: [TMIC] tmic-list group

.From: MalugssuakSent: Sunday, July 5, 2015 7:59 AMTo: Gillian ClarkCc: tmic-list@eskimo.comSubject: Re: [TMIC] tmic-list groupGood to hear from our old friends again.Actually, I could use the activity as I am experiencing new problems and challenges and could use advice.See ya

Re: [TMIC] tmic-list group

is there. I’ll follow you wherever you go. Love you mate, Gilly From: Jim Lubin mailto:jlu...@makoa.org Sent: Sunday, July 05, 2015 4:18 PM To: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group

Re: [TMIC] tmic-list group

Just keep me informed of any address changes. Always glad to hear from my friends. Janice From: Malugssuak Sent: Sunday, July 05, 2015 6:59 AM To: Gillian Clark Cc: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group Good to hear from our old friends again. Actually, I could use

Re: [TMIC] tmic-list group

Jim can save a few bucks.Bobberino, a member since 1997.-Original Message- From: Gillian Clark <mingalett...@activ8.net.au> Sent: Jul 5, 2015 5:10 AM To: tmic-list@eskimo.com Subject: Re: [TMIC] tmic-list group This is the first activity I’ve seen for a long time Jim, I thin

Re: [TMIC] tmic-list group

That makes sense to use a free service, especially with this one not being terribly active. Barbara H. Sent from my iPad On Jul 5, 2015, at 2:48 AM, Jim Lubin jlu...@makoa.org wrote: wondering if it is worth continuing to pay for it. $42 every 6 months. everyone seems to have moved to

Re: [TMIC] tmic-list group

Hi Jim, Yes I am, although I tend to go on Facebook. Nice to hear from someone again. Nikki Durham, UK Sent from my iPad On 4 Jul 2015, at 18:02, Jim Lubin jlu...@makoa.org wrote: is anyone still using the tmic-list@eskimo.com?

Re: [TMIC] tmic-list group

-list@eskimo.com> Subject: Re: [TMIC] tmic-list group Hi Jim,Yes I am, although I tend to go on Facebook. Nice to hear from someone again.NikkiDurham, UKSent from my iPadOn 4 Jul 2015, at 18:02, Jim Lubin jlu...@makoa.org wrote:is anyone still using the tmic-list@eskimo.com?

Re: [TMIC] tmic-list group

Every now and then there's a few emails here but it's mostly quiet. Barbara H. Sent from my iPad On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote: is anyone still using the tmic-list@eskimo.com?

Re: [TMIC] Unidentified subject!

Dalton, I will be having my bone density test soon. I've had osteopenia since before TM and developed jaw bone problems after one of the early osteo drugs given to women years ago. I think that med was removed from the market and I have gently refused any of the new meds since. I'll have to

Re: [TMIC] Unidentified subject!

Baclofen reduces banding greatly for me. I remember Rob's posts when he made the decision to try the Baclofen pump, the operation, and the dosage changes. Rob, I wish it had continued to work for you without having other complications. Continue your group leadership. I know your group has

Re: [TMIC] Unidentified subject!

Some of the neuroleptics (anti-seizure meds), which is what Baclofen is, will help as well. Good luck! Sam from BostonOn Jan 28, 2015 8:55 AM, Pat p...@voorheissigns.com wrote: Baclofen reduces banding greatly for me.  I remember Rob's posts when he made the decision to try the Baclofen

Re: [TMIC]

Your son was very active on here (along with many of us). I couldn't have survived those early days without the information, encourage, and friendship I received from this Email group. I thank God for Jim Lubin's work behind the scenes for this and the old TM Forum. My Neuro was pleased that

Re: [TMIC] Unidentified subject!

; malugss...@me.com ; nmacleo...@yahoo.co.uk Cc: i.whidd...@icloud.com ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! Banding to me does not mean painit means tightness! Like a rubber band being pulled to its limit! The baclofen pump is used to reduce banding and spasticity

Re: [TMIC] Unidentified subject!

: Wednesday, January 28, 2015 7:03 AM To: Nikki Macleod Cc: Iris Whiddett ; tmic-list@eskimo.com Subject: Re: [TMIC] Unidentified subject! It is the same thing MS people get. They call it “the MS Hug”, and for them it can be an almost constant annoyance and discomfort, especially when trying

Re: [TMIC] Unidentified subject!

Macleod nmacleo...@yahoo.co.uk Cc: Iris Whiddett i.whidd...@icloud.com; tmic-list tmic-list@eskimo.com Sent: Wed, Jan 28, 2015 10:30 am Subject: Re: [TMIC] Unidentified subject! Okay, as long as we are talking about this, when you all talk about banding pain, is it like very sharp pain?Every few

Re: [TMIC] Unidentified subject!

To: Pat p...@voorheissigns.com Cc: robthecfo robthe...@aol.com; tmic tmic-list@eskimo.com; Iris Whiddett i.whidd...@icloud.com Sent: Wed, Jan 28, 2015 1:10 pm Subject: Re: [TMIC] Unidentified subject! Everybody, Pat just reminded pointed out that I miss-spoke in my last post. Please excuse me

Re: [TMIC] Unidentified subject!

. div Original message /divdivFrom: Sam Melville luth...@comcast.net /divdivDate:01/28/2015 9:20 AM (GMT-05:00) /divdivTo: Pat p...@voorheissigns.com /divdivCc: robthe...@aol.com, tmic tmic-list@eskimo.com, Iris Whiddett i.whidd...@icloud.com /divdivSubject: Re: [TMIC

Re: [TMIC] Unidentified subject!

Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my right hip, which just sings a deep pain all up and down my

Re: [TMIC] Unidentified subject!

:03 GMT Subject: Re: [TMIC] Unidentified subject! Friends, I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis. I have cracked a vertebrae—L2—and this causes discomfort. But the real problem is my

Re: [TMIC] Unidentified subject!

Boston -Original Message- From: suerdlagpu...@gmail.com To: i.whidd...@icloud.com Cc: tmic-l...@eskimo.net,vasso...@gmail.com Sent: 2015-01-26 09:17:03 GMT Subject: Re: [TMIC] Unidentified subject! Friends, I am doing alright, but have developed new problems related

Re: [TMIC] Unidentified subject!

: i.whidd...@icloud.comCc: tmic-l...@eskimo.net,vasso...@gmail.comSent: 2015-01-26 09:17:03 GMTSubject: Re: [TMIC] Unidentified subject!Friends,I am doing alright, but have developed new problems related to osteopenia, which is thinning of bones, and one step before osteoporosis.I have cracked a vert

Re: [TMIC] Unidentified subject!

Hi Iris, I also hope it continues. Nikki, UK Sent from my iPhone On 26 Jan 2015, at 20:01, Iris Whiddett i.whidd...@icloud.com wrote: Well done Nikki for triggering this flurry of activity on TMIC. I hope it continues. Iris Sent from my iPad On 26 Jan 2015, at 07:56, Nikki

Re: [TMIC] Unidentified subject!

d that there are always positive things in your life, starting with the people on this mail string, who are here 24hrs per day to support you.Sam from Boston-Original Message-From: suerdlagpunga@gmail.comTo: i.whiddett@icloud.comCc: TMIC-LIST@eskimo.net,vasso9.s@gmail.comSent: 2015-01-26 09:17:0

Re: [TMIC] Unidentified subject!

I have never really been bothered by banding - sometimes I can feel it, but really no problem. My worst problem is spondolosis/arthritis down low in my back that is aggravated by TM. Also, the never going down the backs of my calves. That can knock me to the floor when it hits.

Re: [TMIC] Unidentified subject!

Betty, while in hospital after TM hit, I described this awful discomfort I was experiencing as feeling like having bands of steel under my skin. The neurologist said nothing, just looked at me as though I was deranged!! Of course, I later learned for myself that it was commonly referred to as

Re: [TMIC] Hey everybody,

Subject: Re: [TMIC] Hey everybody, Hi everyone. It has been 17+ years for me and at the beginning you were my only support. As for me things have been lousy for almost 2 years (especially lousyit is always plain lousy) coincidentally this is the period I have had the Baclofen Pump. I am

Re: [TMIC] Hey everybody,

Dalton, maybe TM later on in life? Janice From: Dalton Garis Sent: Friday, January 23, 2015 1:51 PM To: Janice Nichols Cc: Susan Kleinz ; amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Incredible story! I still remember Love Canal and all that. Behind our house and across the street

Re: [TMIC] Hey everybody,

, Nikki Macleod nmacleo...@yahoo.co.uk, tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Good story. Very instructive. Thanks Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss

Re: [TMIC] Hey everybody,

From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan Kleinz, Phx, AZ. This group was extremely important to me 5 years ago when I relapsed and spent my time in bed or the lazy

Re: [TMIC] Group

Ditto! Sent from my iPhone On Jan 23, 2015, at 12:29 PM, Iris Whiddett i.whidd...@icloud.com wrote: I agree Janice. It has been great this week hearing news of old friends in the group. Iris UK Sent from my iPad On 23 Jan 2015, at 19:05, Janice Nichols jannic...@gmail.com wrote:

Re: [TMIC] Hey everybody,

to go through this, but you were so smart to come up with this testing. Keep up with the good improvement. Janice From: Susan Kleinz Sent: Friday, January 23, 2015 9:30 AM To: Janice Nichols Cc: amy shultz ; Tmic Subject: Re: [TMIC] Hey everybody, Hello ™ friends: This is Susan

Re: [TMIC] Hey everybody,

...@gmail.com ; Janice Nichols ; Nikki Macleod ; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm here and on Face Book. I haven't had any changes in my TM, but I do have an interesting story about a suspected relapse. In December, 2013, I thought I had a TM relapse or a stroke and went

Re: [TMIC] Hey everybody,

Good story. Very instructive.  Thanks Dalton Sent from my BlackBerry 10 smartphone.   Original Message   From: Pat Sent: Wednesday, January 21, 2015 9:23 AM To: Susan Kleinz Cc: malugss...@gmail.com; Janice Nichols; Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, I'm

Re: [TMIC] Hey everybody,

from my iPhone On Jan 17, 2015, at 10:41 AM, malugss...@gmail.com wrote: I'm still here also. Dalton Sent from my BlackBerry 10 smartphone. Original Message From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC

Re: [TMIC] Hey everybody,

Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc. I have had TM for 8 years and there is always something improving. You

Re: [TMIC] Hey everybody,

It was good to see your email, Nikki. Almost like the olden days when I may have 5, 10, 15 or mail messages on email daily. It was good to hear from Janice and Dalton, also. It was over 10 years ago that I was hit with TM. Fortunately I do not have some of the worst lingering symptoms. I

Re: [TMIC] Hey everybody,

Hi Nikki, I remember you! The old group has pretty well disbanded and gone to Facebook , etc.I have had TM for 8 years and there is always something improving. You have to work hard at it and keep moving, but it really pays off. Once in a while the bladder even improves for a

Re: [TMIC] Hey everybody,

I'm  still here also.  Dalton Sent from my BlackBerry 10 smartphone.   Original Message   From: Janice Nichols Sent: Saturday, January 17, 2015 12:33 PM To: Nikki Macleod; tmic-list@eskimo.com Subject: Re: [TMIC] Hey everybody, Hi Nikki, I remember you! The old group has pretty well disbanded

Re: [TMIC] myasthenia gravis

I have ™ but recently I found out I have Lead poisoning, big time and Mercury and several others. I guess it's always going to be something. Best of luck, Susan On Jun 7, 2014, at 5:14 AM, Regina regina...@sbcglobal.net wrote: As if I didn’t have enough problem with the residual stuff from

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

...@gmail.com, Dalton Garis malugss...@gmail.com, Linda Egli le...@sbcglobal.net, transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii Resent-From: tmic-list@eskimo.com Resent-Date: Wed, 12 Mar 2014 15:57:30 -0700 (PDT) James, Please tell me why you want

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

. Dalton From: Pat Voorheis pjv1...@chartermi.net Date: Wed, 12 Mar 2014 20:05:27 -0400 To: James Berg molokai...@gmail.com Cc: Janice Nichols jannic...@gmail.com, Dalton Garis malugss...@gmail.com, Linda Egli le...@sbcglobal.net, transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC

Re: [TMIC]

I did see that he had passed away mentioned on a Facebook page a while back. I was so sorry to hear of it. I do remember him participating here in the past. I can only imagine what you are going through - it was hard to lose my mother several years ago, but I think to lose a son or daughter would

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

, Dalton Garis malugss...@gmail.com, Linda Egli le...@sbcglobal.net, transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii Resent-From: tmic-list@eskimo.com Resent-Date: Wed, 12 Mar 2014 15:57:30 -0700 (PDT) James, Please tell me why you want to reduce

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

You are not alone here. I am still here, but it sure is quiet! Hope you are doing well. Janice – from Missouri From: James Berg Sent: Wednesday, March 12, 2014 1:52 AM To: tmic-l...@eskimo.net Subject: [TMIC] Meiling Caperton, Kanohe, Hawaii Meiling, if you are still in Hawaii,

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

Another TMer still here too. I miss the people that used to use this site. Stay well.Linda - TexasFrom: Janice Nichols jannic...@gmail.com To: James Berg molokai...@gmail.com; tmic-l...@eskimo.net Sent: Wednesday, March 12, 2014 9:39 AM Subject: Re: [TMIC] Meiling Caperton, Kanohe

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

is offended. Love and prayers, Dalton Abdu¹l-Hanif Al-Shukri Dalton Garis Flushing, Queens New York, USA From: Linda Egli le...@sbcglobal.net Reply-To: Linda Egli le...@sbcglobal.net Date: Wed, 12 Mar 2014 07:45:18 -0700 (PDT) To: tmic-list@eskimo.com tmic-list@eskimo.com Subject: Re: [TMIC

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

11:26 AM To: Linda Egli ; tmic-list@eskimo.com Subject: Re: [TMIC] Meiling Caperton, Kanohe, Hawaii Say, Folks! Nice to hear a voice crying in the wilderness. I am still here, also. By the way, someone hacked my Facebook so had to change my name, to Abdu’l-Hanif Al-Shukri – let them try

Re: [TMIC]

So sorry to hear of his passing. May God help you through this - I am sure you have been through so much. Janice -Original Message- From: wrabal...@gt.rr.com Sent: Wednesday, March 12, 2014 3:57 PM To: tmic-list@eskimo.com Subject: [TMIC] I just realized I had not seen much

Re: [TMIC]

My condolences to you. Dennis was loved and appreciated by his TM family and has been and will continue to be missed. I was aware of Dennis' passing thru our TM Facebook page and I'm glad to see that you shared it here on the TMIC. Now, when we remember Dennis, we will remember a Mom who will

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

it strange the things we discover ourselves that help us?Doctors can still be so clueless about some things - on the other hand, they can save our lives! Janice From: Dalton Garis Sent: Wednesday, March 12, 2014 11:26 AM To: Linda Egli ; tmic-list@eskimo.com Subject: Re: [TMIC

Re: [TMIC] Meiling Caperton, Kanohe, Hawaii

: Pat Voorheis pjv1...@chartermi.net Date:03/12/2014 20:05 (GMT-05:00) To: James Berg molokai...@gmail.com Cc: Janice Nichols jannic...@gmail.com,Dalton Garis malugss...@gmail.com,Linda Egli le...@sbcglobal.net,transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] Meiling Caperton

Re: [TMIC]

tmic-list@eskimo.com Sent: Wednesday, March 12, 2014 7:48 PM Subject: Re: [TMIC] My condolences to you.  Dennis was loved and appreciated by his TM family and has been and will continue to be missed. I was aware of Dennis' passing thru our TM Facebook page and I'm glad to see that you

Re: [TMIC] This is amazing and every paraplegic should get one from Medicare!!!

Bernie, I don't use a wheel chair, but I watched the video yesterday and think it is a much needed item for some of our TM friends. Patti - Michigan On Jan 21, 2014, at 4:56 PM, Bernie Pelow bpe...@austin.rr.com wrote: This is amazing and every paraplegic should get one from Medicare!!!

RE: [TMIC] End of birthday lists

malugss...@gmail.com Cc: TM List tmic-list@eskimo.com Subject: RE: [TMIC] End of birthday lists Well my goodness hello Dalton,  you are so right.  We have been blessed for many years, Barbara and want to thank you.  I sure do miss this forum (TMIC) and hope that people will keep coming back.  I

RE: [TMIC] End of birthday lists

And remember, Not to put your tongue on the flagpole or the swing! D. Original message From: Linda Cherpeski cherp...@msn.com Date:01/04/2014 02:35 (GMT-05:00) To: Dalton Garis malugss...@gmail.com Cc: TM List tmic-list@eskimo.com Subject: RE: [TMIC] End of birthday lists

Re: [TMIC] End of birthday lists

On Sat, Jan 4, 2014 at 10:43 PM, Dalton malugss...@gmail.com wrote: And remember, Not to put your tongue on the flagpole or the swing! D. Original message From: Linda Cherpeski Date:01/04/2014 02:35 (GMT-05:00) To: Dalton Garis Cc: TM List Subject: RE: [TMIC] End

Re: [TMIC] End of birthday lists

and won’t give up on us. Janice From: Linda Egli Sent: Friday, January 03, 2014 8:45 AM To: Dalton Cc: tmic-list@eskimo.com Subject: Re: [TMIC] End of birthday lists I agree with you Dalton. I always check for posting from this site. I also do not trust Facebook. I have too many concern about

Re: [TMIC] SSDI - Doc

Was It available on Jim Lubin's site? I read the FBk post of the lady who can't get qualified and didn't feel that I had anything to add. It seems like there was something about having two limbs that are effected. I'll look too, however, I know you have so better chance of finding it than I

Re: [TMIC] SSDI - Doc

Thanks Pat and Barbara for getting back to me. I used Doc's instructions along with the section of the disability law # and qualified first time for SSDI. I was hoping to find it to share with some of the facebook people. Doc had it nailed. Gosh, I bet it's been at least 10 years or more

Re: [TMIC] SSDI - Doc

The link Barbara gave is the one I was thinking of. I even had a copy of it in my 5 to 10 year old notebook. The highlighted info is what gave me hope when I applied. It also has a statement about two extremities being impaired. Patti On Jan 4, 2014, at 6:06 PM, Barbara H.

Re: [TMIC] SSDI - Doc

You can find the updated nomenclature on the SSDI site in the Blue Book. You just need to look on the neurology section. Lori Sent from my iPhone On Jan 4, 2014, at 7:42 PM, Pat Voorheis pjv1...@chartermi.net wrote: The link Barbara gave is the one I was thinking of. I even had a copy of

Re: [TMIC] SSDI - Doc

lori, thanks. This info is very close to what Doc had written. I seem to remember some of the #'s. I'm going to post it to facebook. I think some of the people applying for SSDI would find it valuable. Thanks again. Cindy Lori Biehler lbieh...@earthlink.net wrote: = You

RE: [TMIC] End of birthday lists

CC: tmic-list@eskimo.com From: p...@voorheissigns.com Subject: Re: [TMIC] End of birthday lists Date: Tue, 31 Dec 2013 15:03:09 -0500 To: barbara...@gmail.com Thanks Barbara. You are correct in all your reasons. I'm still here on TMIC as well as on FBk and that's where I try to remember to send

RE: [TMIC] End of birthday lists

: 01/03/2014 03:16 (GMT-05:00) To: Pat p...@voorheissigns.com,TM group tmic-list@eskimo.com Subject: RE: [TMIC] End of birthday lists I completely understand Barbara. It seems this has gotten very very quite here. Although I am feeling more and more of an alien amongst the other TM groups

Re: [TMIC] End of birthday lists

shultz mic...@hotmail.com; Pat p...@voorheissigns.com; TM group tmic-list@eskimo.com Sent: Friday, January 3, 2014 6:07 AM Subject: RE: [TMIC] End of birthday lists You've done a great job, Barbara; Actually, the quietude here goes through stages. As for Facebook, or Faceplant, as I have

RE: [TMIC] End of birthday lists

to hear.Had to snicker about birthdays as we get older I'm right there with you!! So nice to see all of you on here. Happy New Year! May we all have better health and peace to all! Linda (Boise, ID) Date: Fri, 3 Jan 2014 07:07:36 -0500 Subject: RE: [TMIC] End of birthday lists From: malugss

Re: [TMIC] Happy New Year

Happy new year to all. Tima On Tue, Dec 31, 2013 at 9:00 AM, Nikki Macleod nmacleo...@yahoo.co.ukwrote: Hi everyone just a quick message to wish you all a very happy new year and best wishes for 2014. I hope you all had a lovely Xmas and have managed to avoid any health problems. I've

Re: [TMIC] End of birthday lists

Barbara, Thank you for all the work you went to to supply the birthday list. I fully understand why you are not continuing with it.I also will always have this website open to whatever comes up. Maybe we have all said pretty much how we feel – physically, mentally, and emotionally – on

Re: [TMIC] Happy New Year

eHappy New Year to you. I find the TMIC web site is never real busy anymore. It seem everyone has gone over to the Face Book groups On Tue, Dec 31, 2013 at 9:48 AM, fatimah shehadeh fatimah.sheha...@gmail.com wrote: Happy new year to all. Tima On Tue, Dec 31, 2013 at 9:00 AM, Nikki

Re: [TMIC] End of birthday lists

Thanks Barbara. You are correct in all your reasons. I'm still here on TMIC as well as on FBk and that's where I try to remember to send birthday greetings. Patti - Michigan On Dec 31, 2013, at 8:46 AM, Barbara H. barbara...@gmail.com wrote: Hello all, Some of you may remember how the

Re: [TMIC] December Birthdays

HAPPY BIRTHDAY TO ALL THE CHRISTMAS BABIES. On Mon, Dec 2, 2013 at 7:57 AM, Barbara H. barbara...@gmail.com wrote: Happy birthday to those celebrating in December! 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3 Janice (jannic...@gmail.com) 12-3

Re: [TMIC] December Birthdays

Thank you.  It's nice to be remembered. Roger Pratt in Kennewick, WA From: Pat Cooley patticoole...@gmail.com To: Barbara H. barbara...@gmail.com Cc: tmic tmic-list@eskimo.com Sent: Monday, December 2, 2013 10:52 AM Subject: Re: [TMIC] December Birthdays

Re: [TMIC] December Birthdays

HAPPY BIRTHDAY  to all those born in December.    Cheryl On Monday, December 2, 2013 8:59 AM, Barbara H. barbara...@gmail.com wrote: Happy birthday to those celebrating in December! 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3  Janice

Re: [TMIC] Deb's Medical and Work Status

Deb, Nothing like going through a little “hell”, is there?! So sorry you have been through so much, but, hopefully, you will come out of this facing each day much more comfortably. I am just so glad the medical people are coming through with all they have to find ways to make us have less

Re: [TMIC] Deb's Medical and Work Status

Hi Deb, You have been on quite a journey! Thanks for sharing about your pump experience. My hubby has asked me a few times if I should look into it after I told him about Rob's success. I now refer to my work status as retired due to disability. I'm 63, but like most, I would be much better

RE: [TMIC] Re: Getting a flu shot

PM To: Butcher, Bernie (SFS) Cc: Linda Egli; Pat Voorheis; tmic-list@eskimo.com Subject: Re: [TMIC] Re: Getting a flu shot My Neurologist said better not to risk it. Haven't had one since about 2005... a year before TM. On 10/6/2013 11:18 AM, Butcher, Bernie (SFS) wrote: No flu shots for me

RE: [TMIC] Re: Getting a flu shot

...@sbcglobal.net; heyjude48...@aol.com heyjude48...@aol.com; tmic-list@eskimo.com tmic-list@eskimo.com Sent: Saturday, October 5, 2013 8:22 PM Subject: Re: [TMIC] Re: Getting a flu shot Dalton, I hope this is a short-term problem for you and the pain subsides soon. Thanks for the info and keep us

Re: [TMIC] Re: Getting a flu shot

Fellow suffers; I can now report on getting a flu shot. So far, it is not good. It is the fifth day and the base pain level, the level of pain experienced all the time without any additional loads, has increased to the extent that even the Lyrica is no longer able to contain it. My body is in a

Re: [TMIC] Re: Getting a flu shot

; heyjude48...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: Getting a flu shot Fellow suffers; I can now report on getting a flu shot. So far, it is not good. It is the fifth day and the base pain level, the level of pain experienced all the time without any additional loads, has

Re: [TMIC] Re: Getting a flu shot

Dalton, I hope this is a short-term problem for you and the pain subsides soon. Thanks for the info and keep us informed. I was planning on getting one this year, because I had no adverse reaction to the shot last year. It was my first shot since TM. We had five deaths in our area last year

Re: [TMIC] Re: Getting a flu shot

; heyjude48...@aol.com heyjude48...@aol.com; tmic-list@eskimo.com tmic-list@eskimo.com Sent: Saturday, October 5, 2013 8:22 PM Subject: Re: [TMIC] Re: Getting a flu shot Dalton, I hope this is a short-term problem for you and the pain subsides soon.  Thanks for the info and keep us informed. I

Re: [TMIC] Fwd: Michigan walk, run, roll

No, I am sorry to say.I will not be going. Janice From: Pat Sent: Wednesday, October 02, 2013 6:14 AM To: tmic Subject: [TMIC] Fwd: Michigan walk, run, roll Begin forwarded message: From: Pat p...@voorheissigns.com Date: October 2, 2013, 7:09:59 AM EDT To: tmic

Re: [TMIC] Unidentified subject!

Iris, What a scare! Did you ever find out what you did to your back?Glad you are doing much better now.I know how you feel about trying to get into a bigger car. We had to do that too after TM struck to make room for wheel chair, walker, etc.It really is hard to get in if you

Re: [TMIC] Re: TM Exhaustion

@eskimo.com Subject: Re: [TMIC] Re: TM Exhaustion Resent-From: tmic-list@eskimo.com Resent-Date: Wed, 18 Sep 2013 16:50:18 -0700 (PDT) Jude, I too have had bad fatigue a miserable summer. The hotter it gets, the worse the fatigue. Sometimes I spend the day in my recliner. I have lost 8

Re: [TMIC] Re: TM Exhaustion

To: heyjude48...@aol.com Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Re: TM Exhaustion Jude, I too have had bad fatigue a miserable summer. The hotter it gets, the worse the fatigue. Sometimes I spend the day in my recliner. I have lost 8 pounds (YEA!) this summer, but it is because of the fatigue

Re: [TMIC] Re: TM Exhaustion

Jude I am with you. I have such fatigue that all I want to do is go to bed. There are times when I know I should go potty but I don't have the strength to go. Or the times I would like a drink of water, but again I don't have the energy. I am not one to nap but lately I find that I am laying

RE: [TMIC] Re: TM Exhaustion

Fatigue is my biggest problem. I try to take a snooze at lunch time, that helps. Cold weather is my nemesis, even in summer I have to have a heater on in my office, with the a/c, it's a chilly 72. BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: heyjude48...@aol.com

Re: [TMIC] Re: TM Exhaustion

Jude,  I too have had bad fatigue a miserable summer.  The hotter it gets, the worse the fatigue.  Sometimes I spend the day in my recliner.  I have lost 8 pounds (YEA!) this summer, but it is because  of the fatigue it has just been too hot to eat.  My PCP started me on a drug called Nuvigil

Re: [TMIC] Long time no chat!

Nikki, You are right - it has been very quiet on this website.I would say your world has turned upside down!What's up with you?!Did you actually feel the UTI or was there other evidence of it? I don't think I could feel one if I had it.I did have one, after a few days,

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