Re: [TMIC] is there a connection between low potassium and TM?
Because if there is brain involvement, it's not TM. Laura The Home(School) Club http://www.thehomeschoolclub.org On Sat, Jan 14, 2012 at 7:39 PM, john snodgrass jcs...@yahoo.com wrote: Janice why are you so concerned that TM has absolutely nothing to do with the brain. you have mentioned this several times. I am just curious,,i could honestly care less what it has to do with anything,,,just wondering. -- *From:* Dalton Garis malugss...@gmail.com *To:* Janice Nichols jan...@centurytel.net; john snodgrass jcs...@yahoo.com; randy rankin rj_ran...@yahoo.com; TM Group tmic-list@eskimo.com *Sent:* Saturday, January 14, 2012 8:39 PM *Subject:* Re: [TMIC] is there a connection between low potassium and TM? Speech was affected! Couldn't talk during attacks, which come less now. I would try to speak and would lose control of arms and legs and would stiffen up like a tin solder. Dalton * * From: Janice Nichols jan...@centurytel.net Date: Sat, 14 Jan 2012 18:59:25 -0600 To: Dalton Garis malugss...@gmail.com, john snodgrass jcs...@yahoo.com, randy rankin rj_ran...@yahoo.com, TM Group tmic-list@eskimo.com Subject: Re: [TMIC] is there a connection between low potassium and TM? And yet your speech was not affected. hm. Janice *From:* Dalton Garis malugss...@gmail.com *Sent:* Saturday, January 14, 2012 5:01 PM *To:* john snodgrass jcs...@yahoo.com ; Janice Nicholsjan...@centurytel.net; randy rankin rj_ran...@yahoo.com ; TM Group tmic-list@eskimo.com *Subject:* Re: [TMIC] is there a connection between low potassium and TM? Brain*stem, *brain*stem;* * * Mine was in the upper brainstem, but not the brain itself, something called the Pons, which is some kind of switching station between brain-* will* and body-*can*. Dalton * * From: john snodgrass jcs...@yahoo.com Reply-To: john snodgrass jcs...@yahoo.com Date: Sat, 14 Jan 2012 13:28:07 -0800 (PST) To: Janice Nichols jan...@centurytel.net, randy rankin rj_ran...@yahoo.com, TM Group tmic-list@eskimo.com Subject: Re: [TMIC] is there a connection between low potassium and TM? Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 14 Jan 2012 13:31:29 -0800 reminds me of something Dalton said before concerning speech,and when I think about it,, speech is a brain thing,,,so them either there's more to TM than what is actually discovered or there are other things going on with the brain that has an effect on speech because speech is a brain thingTM is a spine thing. if we only knew.. then again what would we do about it. perhaps it is a residual thing. body freaks out and brain has no way of realigning it so parts of it malfunctions as well. guessing,practicing medicine without a licenseyikes!!! -- *From:* Janice Nichols jan...@centurytel.net *To:* randy rankin rj_ran...@yahoo.com; TM Group tmic-list@eskimo.com *Sent:* Saturday, January 14, 2012 1:10 PM *Subject:* Re: [TMIC] is there a connection between low potassium and TM? One of the first things the hospital check when I got there was my Potassium level. Sadly, that was not the problem.“Celebrated” my 5th year of TM yesterday. I didn’t know that speech could be affected.Where did her “attack” occur? Janice *From:* randy rankin rj_ran...@yahoo.com *Sent:* Saturday, January 14, 2012 11:02 AM *To:* TM Group tmic-list@eskimo.com *Subject:* [TMIC] is there a connection between low potassium and TM? Mary is not talking or communicating and is able to get to the bathroom with assistance but that side of the family is still clueless. I talked to them about TM, MS, and mylopothy and I might as well been talking about a new island off the coast of Java --- They are mentally fixed on the low potassium situation and not the fact she can't talk and she can't walk. But I did promise that I would ask the group to see if any of you were aware of any connections between low K and the neurological conditions that impacted you - experiencially or diagnostically
Re: [TMIC] Fwd: Actual Craig's List Ad
Awesome email! Just want to point out that it's not real though, but ever so fun! http://www.snopes.com/crime/justice/mugger.asp Laura The (Home)School Club http://www.thehomeschoolclub.net -Now Alpha Testing! Practical Homeschooling http://www.practical-homeschooling.org On Wed, Nov 16, 2011 at 6:29 AM, celr...@aol.com wrote: ** I LOVE IT JUST MIGHT STOP SOME CRIME. JANE/SPLENDORA TX In a message dated 11/15/2011 4:08:22 P.M. Central Standard Time, jcs...@yahoo.com writes: though many would beg to differ i find this remarkably therapeutic thanks for sharing Ooh-Rah -- *From:* bgunny7...@aol.com bgunny7...@aol.com *To:* nmbr1stylis...@ymail.com; Tmic-list@eskimo.com; r...@rickporrello.com *Sent:* Tuesday, November 15, 2011 11:21 AM *Subject:* [TMIC] Fwd: Actual Craig's List Ad -- From: ramirezjac...@aol.com To: babygirl22...@gmail.com, brandmyste...@aim.com, chavezmona...@aol.com, cmr51...@hotmail.com, davidlabb...@aol.com, dnny...@aol.com, lizandstepha...@yahoo.com, trinaevenho...@msn.com, gra...@aol.com, bgunny7...@aol.com, weldergirl3...@aol.com, lucaterobre...@yahoo.com, nan...@aol.com, pencho...@aol.com, pennycoll...@sbcglobal.net, sheil...@sbcglobal.net Sent: 11/15/2011 11:04:10 A.M. Eastern Standard Time Subj: Fwd: Actual Craigapos;s List Ad -- From: oleb...@aol.com To: ramirezjac...@aol.com Sent: 11/13/2011 9:06:56 P.M. Pacific Standard Time Subj: Fwd: Actual Craig's List Ad -Original Message- From: Sandy Graham handysand...@aol.com To: yvonne.jett yvonne.j...@aol.com; mamadsangels mamadsang...@aol.com; peekandrascal peekandras...@aol.com; ronnsue ronn...@bellsouth.net; whereizzy wherei...@att.net; olebag3 oleb...@aol.com Sent: Sun, Nov 13, 2011 9:05 pm Subject: Fwd: Actual Craig's List Ad *AN ACTUAL CRAIG'S LIST PERSONALS AD * *To the Guy Who Tried to Mug Me in Downtown Savannahnight before last. * *Date: 2010-09-27, 1:43 a.m. E.S.T. * *I was the guy wearing the black Burberry jacket that you demanded that I hand over, shortly after you pulled the knife on me and my girlfriend, threatening our lives. You also asked for my girlfriend's purse and earrings. I can only hope that you somehow come across this rather important message. * *First, I'd like to apologize for your embarrassment; I didn't expect you to actually crap in your pants when I drew my pistol after you took my jacket.. The evening was not that cold, and I was wearing the jacket for a reason.. my girlfriend was happy that I just returned safely from my 2nd tour as a Combat Marine in Afghanistan .. She had just bought me that Kimber Custom Model 1911 .45 ACP pistol for my birthday, and we had picked up a shoulder holster for it that very evening. Obviously you agree that it is a very intimidating weapon when pointed at your head ... isn't it?!* *I know it probably wasn't fun walking back to wherever you'd come from with crap in your pants. I'm sure it was even worse walking bare-footed since I made you leave your shoes, cell phone, and wallet with me. [That prevented you from calling or running to your buddies to come help mug us again].* *After I called your mother or Momma as you had her listed in your cell, I explained the entire episode of what you'd done. Then I went and filled up my gas tank as well as those of four other people in the gas station, -- on your credit card. The guy with the big motor home took 153 gallons and was extremely grateful!* *I gave your shoes to a homeless guy outside Vinnie Van Go Go's, along with all the cash in your wallet. [That made his day!]* *I then threw your wallet into the big pink pimp mobile that was parked at the curb . after I broke the windshield and side window and keyed the entire driver's side of the car.* *Earlier, I managed to get in two threatening phone calls to the DA's office and one to the FBI, while mentioning President Obama as my possible target.* *The FBI guy seemed really intense and we had a nice long chat (I guess while he traced your number etc.).* ; *In a way, perhaps I should apologize for not killing you ... but I feel this type of retribution is a far more appropriate punishment for your threatened crime. I wish you well as you try to sort through some of these rather immediate pressing issues, and can only hope that you have the opportunity to reflect upon, and perhaps reconsider, the career path you've chosen to pursue in life.. Remember, next time you might not be so lucky. Have a good day!* *Thoughtfully yours, Semper Fi, * *Alex * * I probably don't have to ask you to forward this one..*
Re: [TMIC] Is Living With Illness Choosing to Give In?
Sweet! I SO need this right now! Thanks! Laura Lifeportunities Blog http://www.lifeportunities.net Practical Homeschooling http://www.practical-homeschooling.org On Tue, Sep 6, 2011 at 10:15 PM, jackiedu...@hotmail.com jackiedu...@hotmail.com wrote: U Sent from my iPhone On Sep 6, 2011, at 10:31 PM, Janice Nichols jan...@centurytel.net wrote: I know all of us can identify with this article.Lots of good thoughts and sensibility in it. Janice *From:* Barbara H. barbara...@gmail.com *Sent:* Tuesday, September 06, 2011 5:50 PM *To:* tmic tmic-list@eskimo.com *Subject:* [TMIC] Is Living With Illness Choosing to Give In? Just saw a really neat article on a friend's Facebook: Is Living With Illness Choosing to Give In? http://invisibleillnessweek.com/2011/09/06/is-living-with-illness-choosing-to-give-in/ http://invisibleillnessweek.com/2011/09/06/is-living-with-illness-choosing-to-give-in/ It's not directly TM related but I would guess many can identify with it.. Barbara H. http://barbarah.wordpress.comhttp://barbarah.wordpress.com
Re: [TMIC] OT - Question
Alton, If your voice changed, you would have had to create a new profile and restart the training from scratch. Laura *101 Websites To See Before You Diehttp://www.squidoo.com/101-awesome-webpages * Disability Humor http://www.squidoo.com/disability-humor On Tue, Aug 16, 2011 at 6:06 AM, a-ry...@comcast.net wrote: I've used MacSpeech Dictate, the Mac implementation of the Dragon algorithms. It worked well until my voice became guttural. Alton, who is now 76 - Original Message - From: Bernie bpe...@austin.rr.com To: TMIC tmic-list@eskimo.com, ... Sent: Mon, 15 Aug 2011 21:15:31 - (UTC) Subject: [TMIC] OT - Question Has anyone used the Dragon Speech System for their computer? The one where you talk and the computer types? Or do you know anyone who has used it? I need to find out if it is worth the investment for me to do my biography before I shell out dollars only to find I've wasted them. Thanks folks! Peace, Bernie in Texas (where it's still cooking with no rain in sight!)
Re: [TMIC] Re: MOM
Hi Tracy, TM is not a progressive condition beyond the initial acute attack. Afterward, either you recover, or you don't. Sounds like something else is attacking her...have they ruled out Guillain-Barree? Malignant MS? Tumors? So many things can cause this. Laura *101 Websites To See Before You Diehttp://www.squidoo.com/101-awesome-webpages * Disability Humor http://www.squidoo.com/disability-humor On Tue, Aug 16, 2011 at 1:52 PM, Todd Tarno toddtm2...@sbcglobal.netwrote: Hey Tracy, TM is usually is a ONE time hit. If it's TM again, there is a name for it, but sorry I don't remember the name before TM. When asking questions on the TM list, TMIC tmic-list@eskimo.com Where did her TM hit on her spinal cord? The higher it hits ( level C ), the more problems with breathing. I don't know anything about the CO 2 being high. Sorry :( Please share her systems with us, so that we may be able to tell if it might be or not TM. We all will be praying for her at this time, Todd in Corpus Christi, TX TM since April 1, 2002 @ T-4 to T-8 --- On *Tue, 8/16/11, Tracy Lea Bell tracyleab...@yahoo.com* wrote: From: Tracy Lea Bell tracyleab...@yahoo.com Subject: Re: [TMIC] Re: To: Blaine Frye blaine_f...@yahoo.com Cc: tmic-list-requ...@eskimo.com tmic-list-requ...@eskimo.com, tmic-list@eskimo.com tmic-list@eskimo.com, lettersfor1g...@rambler.ru lettersfor1g...@rambler.ru Date: Tuesday, August 16, 2011, 9:42 AM I have several things to ask and I hope anyone can help...my mom has been in the hospital for two weeks and now has been moved to ICU. Every day something new pops up. They have no idea what is wrong now her CO 2 is so high she can hardly breath... She has had TM for a year now and they keep saying it's not the TM and I just don't know how TM progresses...I don't know how to send this to the whole group Thank you Tracy
Re: [TMIC] OT - Question
Actually, the initial training is about 10 minutes, then it learns as you dictate and use the software. More mistakes at first, then less and less as it gets to know you. Laura *101 Websites To See Before You Diehttp://www.squidoo.com/101-awesome-webpages * Disability Humor http://www.squidoo.com/disability-humor On Tue, Aug 16, 2011 at 11:57 AM, Todd Tarno toddtm2...@sbcglobal.netwrote: Hey Bernie, I've heard good things about. There is a lot of reading for the program to get to KNOW ya, like 2 full hours. So maybe a bottle of wine dinner might help, A lot of time up front, but could be easy going after that. lol Good Luck always have FUN with it, Todd --- On *Mon, 8/15/11, Bernie bpe...@austin.rr.com* wrote: From: Bernie bpe...@austin.rr.com Subject: [TMIC] OT - Question To: TMIC tmic-list@eskimo.com, Al Pelow redracer112...@yahoo.com, Donna Ipolitti dsunshinegodd...@aol.com, Jeff Placek jpla...@austin.rr.com, Justin Connaker jconnake...@hotmail.com, Matthew Chester txsmurf_78...@yahoo.com, Mike Dufresne mkdufre...@yahoo.com, Richard Biggs woodmi...@aol.com, Robyn Hunter crystal.fi...@gmail.com, T.K. Hillary Flautt thewesley.flau...@gmail.com, Bernard Pelow bpe...@austin.rr.com Date: Monday, August 15, 2011, 4:15 PM Has anyone used the Dragon Speech System for their computer? The one where you talk and the computer types? Or do you know anyone who has used it? I need to find out if it is worth the investment for me to do my biography before I shell out dollars only to find I've wasted them. Thanks folks! Peace, Bernie in Texas (where it's still cooking with no rain in sight!)
Re: [TMIC] OT - Question
I use it and love it. If you have a really old computer though, it won't run very smoothly. I think it was worth every penny. Don't forget though that you have to take time to learn to use it, as there are verbal commands you have to memorize. Laura *101 Websites To See Before You Diehttp://www.squidoo.com/101-awesome-webpages * Disability Humor http://www.squidoo.com/disability-humor On Mon, Aug 15, 2011 at 3:15 PM, Bernie bpe...@austin.rr.com wrote: ** Has anyone used the Dragon Speech System for their computer? The one where you talk and the computer types? Or do you know anyone who has used it? I need to find out if it is worth the investment for me to do my biography before I shell out dollars only to find I've wasted them. Thanks folks! Peace, Bernie in Texas (where it's still cooking with no rain in sight!)
Re: [TMIC] Hey
Hi everyone, my sincere apologies… My e-mail account was hacked and this e-mail was sent to everyone in my address book. I have nothing to do with this – it was sent out from an IP address in Australia. I wasn't able to respond sooner because apparently I had exceeded my e-mail sending limit. I hope all is well with everyone. Laura Lifeportunities http://www.lifeportunities.com/ http://www.lifeportunities.com/Practical Homeschoolinghttp://practical-homeschooling.org Schooling confuses teaching with learning, grade advancement with education, a diploma with competence, and fluency with the ability to say something new. ~ Wendy Priesnitz How to begin to educate a child. First rule: leave him alone. Second rule: leave him alone. Third rule: leave him alone. That is the whole beginning. ~D.H. Lawrence On Wed, Jun 1, 2011 at 6:29 PM, Janice Nichols jan...@centurytel.netwrote: Hey! Laura Beaudin is a TM member of this website.She is from Canada. Don’t know anything about the money making thing. Janice *From:* James Berg molokai...@gmail.com *Sent:* Wednesday, June 01, 2011 3:48 PM *To:* laura.beau...@gmail.com *Cc:* tmic-l...@eskimo.net *Subject:* Re: [TMIC] Hey This is a bogus item--said there was a Kelly Richards in my town making all this money--she doesn't exist--I'll bet it will say your home town if you open it. Eskimo .net--please dump this item On Tue, May 31, 2011 at 8:59 AM, laura.beau...@gmail.com wrote: Hi I just wanted to share this opportunity with you, I've been making 200-300 dollars a day and I started only a week ago. Check out this news article and it will show you how to get started, it's definitely easy enough for you :)! http://www.news7cnbc.com/money
[TMIC] Hey
Hi I just wanted to share this opportunity with you, I've been making 200-300 dollars a day and I started only a week ago. Check out this news article and it will show you how to get started, it's definitely easy enough for you :)! http://www.news7cnbc.com/money
Re: [TMIC] Re: getting worse
Not a joke--like in the states,from super to horrible. There are some very good doctors in Abbu Dhaby. try here:http://www.americancenteruae.com/ I'm told they have a great reputation. If you can't find anyone there, I can arrange for you to meet an American-educated neurologist in Riyadh. Laura Lifeportunities http://www.lifeportunities.com/: transform your home-based life into freedom. Visit the Practical Homeschooling http://practical-homeschooling.orgblog! School is a place where children learn to be stupid ~ John Holt (the man is a genius)~ How to begin to educate a child. First rule: leave him alone. Second rule: leave him alone. Third rule: leave him alone. That is the whole beginning. ~D.H. Lawrence On Mon, Apr 18, 2011 at 10:26 PM, L T CHERPESKI cherp...@msn.com wrote: Sorry guys - looks like I missed this post. Dalton, I am so happy for you. So glad you are responding to the steroids. Keep us posted on how you're doing. Linda in Eagle, Id - Original Message - *From:* Dalton Garis malugss...@gmail.com *To:* rn11...@yahoo.com *Cc:* tmic tmic-list@eskimo.com *Sent:* Sunday, April 10, 2011 5:38 PM *Subject:* [TMIC] Re: getting worse Hey folks! I got my legs back and most of my coordination! from 1 gram steroid infusion. I will take four days of it and will be ok until the next attack, which hopefully won't be for a while. D. Abu Dhabi, United Arab Emirates Office: +971-02-607-5070/5297 Mobile: +971-50-668-5760 From: rn11...@yahoo.com rn11...@yahoo.com Date: Sun, 10 Apr 2011 07:07:33 -0700 (PDT) To: Dalton Garis malugss...@gmail.com Cc: tmic tmic-list@eskimo.com Subject: Re:getting worse Dalton, You are in my prayers. Just don't go on working if you really aren't up to it.Getting on disability and back to the USA where you can find a good neurologist might be an option. Cheryl in sunny Easthampton,MA --- On *Sat, 4/9/11, Dalton Garis malugss...@gmail.com* wrote: From: Dalton Garis malugss...@gmail.com Subject: Re: [TMIC] Asking group experience To: jack...@att.blackberry.net jack...@att.blackberry.net, TMIC tmic-list@eskimo.com Date: Saturday, April 9, 2011, 11:08 PM Friends; I seem to be getting worse quite quickly. pain across the back and all the skin iom my arms and legs up to just above the elbows and knees. I am also having whole-body contractions, first on the back, then on the front. Unfortunately, the neuro service here is a joke. I could use some prayers, really. I hope I can still work, but if things continue this way it will be impossible. The pain and weakness is just too tough to overcome. Actually, I am now thinking I must shift to a wheelchair, one where I can use my feet to mve around in, since my arms are now too weak for much more than typing and dresing. Thanks, for keeping me in your tooughts and prayers, Dalton Dalton Garis Abu Dhabi, UAE Mobile: +971-55-800-6619 On 4/8/11 9:35 PM, jack...@att.blackberry.nethttp://mc/compose?to=jack...@att.blackberry.net jack...@att.blackberry.nethttp://mc/compose?to=jack...@att.blackberry.net wrote: Hi Everyone! I have been reading ,haven't posted in a while. I hope Spring time is helping everyone. I would like 2 know what tests - blood work etc your dr's order for you during the year. I am on baclofen ,topamax. Still with pain especially at night. as well as back pain and shrinking in right leg. Am wheelchair bound for most part with exception of toddler table walking (last few months) tm in july 07. I read most know where t this or t that. I didn't know that until I started this group as I was never told the area of where my tm hit. I do know I have to take responsibility for me. What do I need to ask for. In my area and now medical coverage I am limited. I have learned a lot from you guys. Never realized that tm causes clinical depression. Anyone know or have experience with hpt5. Or natural supplements for depression. I was on effexor then prozac now nothing. Feeling DOWN and don't want to spiral down again just as spring is here. May have rambled a bit - thanks 4 being out there!! Sent via BlackBerry by ATT
[TMIC] an update
now that my dictation software is working properly on a laptop with Internet action, I can finally let you guys know what's going on. Sometime in January, I noticed that transfers and rolling around in bed getting difficult. I didn't pay any attention to it since it is normal for things to get difficult, that easier, is difficult to get. It seems to mean the end and flow of people with these kinds of diseases. When I went to see my neurologist for a follow-up appointment I was able to tell that I have been doing much better but for this particular day I felt kind of bad. I chalked it up to just having an off day. Two days later, I found no longer able to mobilize in bed or transferred to my chair using transfer board method. Needless to say, when home care came, I was too difficult to assist so an ambulance was called and was transported to the hospital on February 12. I've been here since under assessment and it was decided last week (and also became my own conclusion) that I be placed in long-term care. The girls will be going to stay with her dad, which I now think works well, since my time with them will be a better quality. His apartment is wheelchair accessible so visiting should not be an issue. My ex also intends on bringing them to me at regular intervals. Laura Lifeportunities http://www.lifeportunities.com/: transform your home-based life into freedom. Visit the Practical Homeschooling http://practical-homeschooling.orgblog!
Re: [TMIC] hyperbaric chamber treatment of wounds
It also works to *CURE* CP if the child is young enough. The study was dropped because the company realized they wouldn't make any money off of it. Laura Lifeportunities http://www.lifeportunities.com/: transform your home-based life into freedom. Visit the Practical Homeschooling http://practical-homeschooling.org blog! On Sat, Jan 15, 2011 at 10:32 AM, Janice Nichols jan...@centurytel.netwrote: Why on earth wouldn’t they, the powers that be, try it on other spinal patients if even 1 did feel improvement? Who knows how many out there could be helped?! Is this such a horribly expensive treatment that it is only used on a few?Am I not understanding something? Janice *From:* kevin weilacher hwyfli...@yahoo.com *Sent:* Saturday, January 15, 2011 10:46 AM *To:* Alton Ryder a-ry...@comcast.net ; tmic-l...@eskimo.net *Subject:* Re: [TMIC] hyperbaric chamber treatment of wounds The rock legend Ronnie Lane used to use a hyperbaric chamber for treatment of his MS and had success with itbut yet the MS Society still says that there is no benefit to it's use reference this great interview that Ronnie did many years ago http://www.the-faces.com/lane/ints/1lane2.htm By the way, Ronnie passed away in 1997 due to pneumonia. -- *From:* Alton Ryder a-ry...@comcast.net *To:* tmic-l...@eskimo.net *Sent:* Sat, January 15, 2011 11:06:30 AM *Subject:* Re: [TMIC] hyperbaric chamber treatment of wounds I took this treatment a couple of years ago for a wound that I had had for two decades. The results were astounding; it shrunk from four little toes wide and one high to one wide and a half high. However, instead of continuing until it was healed, the wound specialist followed the protocol and stopped after six weeks (the reason might have been rooted in Medicare's one-size-fits-all coverage. Yesterday we discussed restarting the hyperbaric chamber treatment. The only problem is boredom. You cannot bring flammable paper into a chamber, but you can watch a video through the transparent wall. Alton On Nov 21, 2010, at 11:19 AM, Jan Hargrove wrote: hyperbaric chamber
[TMIC] letter to the Journal
Wow, my rant about that stuck-up lady who decided I had no right to ride the bus actually made it into the paper! http://www.edmontonjournal.com/health/Have+patience+disdain+quadriplegic+single+parent/4074112/story.html Laura http://practical-homeschooling.org
Re: [TMIC] Shingles Vaccine
My first MS symptoms popped up shortly after a Hep B vaccination when I was 17. I've noticed that since my first TM attack, with the exception of bladder infections, I never get sick..no colds, no flues, nada. I'll feel like I'm getting the flue...malaite, general pain, dizziness, etc and I'm fine a few hours later while everyone goes on to develop a full-blown flu. And no, I'm not vaccinated. Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Fri, Nov 12, 2010 at 1:09 PM, Akua a...@artfarm.com wrote: Me three. Akua New York I'm with you, Candy... I've been told as long as I don't get any live virus, it should be okay. That's not good enough for me to risk. I refuse to get* any* now. Betty (in Northern California) In a message dated 11/11/10 15:33:04 Pacific Standard Time, cakal...@embarqmail.com writes: Carol, Shingles is one of the viruses listed as possible causes for TM. I refuse any vaccines only because so many may cause a flair up. That's just my 2 cents. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. --
Re: [TMIC] {TMIC}sweating
Wow, that is so much like me. When I was discharged from the hospital in
2009 after having been there 4 months, I was frantic. I had been discharged
with a rental chair and to a new apartment (previous residence was an
inaccessible townhouse) and newly single.
I remember the desperation of trying to navigate my carpeted new home and
thinking exactly like you: Is this what the rest of my life is going to be
like??? Thank God that feeling was short-lived and I started getting my sea
legs. I learned what worked for me and what didn't and try to look forward
and not back.
It still hurts though when I see something I'd like to try, but can't. Right
now, I'd LOVE to jump in on the Zumba craze and it would have really helped
me drop some weight, then I remember oh yeah, can't move. fml
Laura
www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org
On Wed, Nov 10, 2010 at 9:24 PM, Janice Nichols jan...@centurytel.netwrote:
I remember thinking this is for the rest of my life.I said this
over and over to myself, still in a kind of disbelief that this had
happened to me. It is a constant battle
with the body, new problems developing periodically, but I am still here
and I am the same person that I was before TM, maybe better.I am much
more
tolerant of people now and have more patience in daily life.I
understand things on a much deeper level than before and I feel more. I
am not saying that I don't
vent every once in a while, but I guess I am trying to make lemonade out of
lemons.I realize that I have only had TM for almost 4 years, and
that many of you
have had TM many more years and were left with many more problems than
me. It would be interesting to hear from others on how TM left you on a
mental
or emotional level on a day- to- day basis.What changes you have
noticed about yourself?
Janice
*From:* john snodgrass jcs...@yahoo.com
*Sent:* Wednesday, November 10, 2010 5:10 PM
*To:* transverse myelitis tmic-list@eskimo.com
*Subject:* RE: [TMIC] {TMIC}sweating
i have to watch my emotions when i see the dates many of you have fought
with this thing.
my mind keeps looking for some healing.
that may just happen,but after almost 3 years,doesn't look likely.
--- On *Wed, 11/10/10, Robert Pall rp...@neillsupply.com* wrote:
From: Robert Pall rp...@neillsupply.com
Subject: RE: [TMIC] {TMIC}sweating
To: Patricia Cooley patticoole...@gmail.com, Janice Nichols
jan...@centurytel.net, kevin weilacher hwyfli...@yahoo.com,
rn11...@yahoo.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 1:54 PM
After 13+ year the only thing that really increases my discomforts is
rain and or high humidity. Hot and cold have no more effect on me now than
before TM. It just continues to show that despite our similarities no two of
us are exactly the same.
Rob in New Jersey
--
*From:* Patricia Cooley [mailto:patticoole...@gmail.com]
*Sent:* Wednesday, November 10, 2010 1:32 PM
*To:* 'Janice Nichols'; 'kevin weilacher'; rn11...@yahoo.com;
tmic-list@eskimo.com
*Subject:* RE: [TMIC] {TMIC}sweating
I have been reading all your posts about sweating, and I guess I am an
odd case. I don’t have any problems with hot weather. I have always sweat
more in my hair than anywhere else, even before TM. My problem is the
cold. I am always cold so I guess that is why the hot weather doesn’t
affect me too much. I do like sleeping in a cool room and like lots of
blankets. I was told with TM your internal thermostat is not working
properly.
Patti - Wisconsin
*From:* Janice Nichols [mailto:jan...@centurytel.net]
*Sent:* Wednesday, November 10, 2010 12:09 PM
*To:* kevin weilacher; rn11...@yahoo.com; tmic-list@eskimo.com
*Subject:* Re: [TMIC] {TMIC}sweating
Ditto! Janice
*From:* kevin
weilacherhttp://us.mc658.mail.yahoo.com/mc/compose?to=hwyfli...@yahoo.com
*Sent:* Wednesday, November 10, 2010 11:42 AM
*To:*
rn11...@yahoo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com;
tmic-list@eskimo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com
*Subject:* Re: [TMIC] {TMIC}sweating
I have been totally confused about the sweating issue ever since TM hit
me
My lesions are L4, L5 and S1 and now since TM, the only place I sweat is my
head and when I sweat, I sweat profusely, I mean to the point that it drips
off my nose and down the sides of my head...
I sweat no other place on my body, even during the summer on hot days
outside. I get warm, but I do not sweat. No underarm sweat, nothing.
--
*From:* rn11...@yahoo.com rn11...@yahoo.com
*To:* tmic-list@eskimo.com
*Sent:* Wed, November 10, 2010 9:30:57 AM
*Subject:* [TMIC] {TMIC}sweating
Hi Everyone,
I got tm at the thoracic level (T4-5),but when I perspire on my
face,one side gets red and moist,the other stays pale and
Re: [TMIC] {TMIC}sweating
It's a newer form of aerobics that uses dance. These videos were made by my
cousin.
http://www.youtube.com/watch?v=mWMB0X2lhkU
http://www.youtube.com/watch?v=Q0OWcFFHYYk
Laura
www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org
On Wed, Nov 10, 2010 at 9:47 PM, Janice Nichols jan...@centurytel.netwrote:
Okay, what in the is the Zumba craze?
Janice
*From:* Laura Beaudin laura.beau...@gmail.com
*Sent:* Wednesday, November 10, 2010 10:42 PM
*To:* Janice Nichols jan...@centurytel.net
*Cc:* john snodgrass jcs...@yahoo.com ; transverse
myelitistmic-list@eskimo.com
*Subject:* Re: [TMIC] {TMIC}sweating
Wow, that is so much like me. When I was discharged from the hospital in
2009 after having been there 4 months, I was frantic. I had been discharged
with a rental chair and to a new apartment (previous residence was an
inaccessible townhouse) and newly single.
I remember the desperation of trying to navigate my carpeted new home and
thinking exactly like you: Is this what the rest of my life is going to be
like??? Thank God that feeling was short-lived and I started getting my sea
legs. I learned what worked for me and what didn't and try to look forward
and not back.
It still hurts though when I see something I'd like to try, but can't.
Right now, I'd LOVE to jump in on the Zumba craze and it would have really
helped me drop some weight, then I remember oh yeah, can't move. fml
Laura
www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org
On Wed, Nov 10, 2010 at 9:24 PM, Janice Nichols jan...@centurytel.netwrote:
I remember thinking this is for the rest of my life.I said this
over and over to myself, still in a kind of disbelief that this had
happened to me. It is a constant battle
with the body, new problems developing periodically, but I am still here
and I am the same person that I was before TM, maybe better.I am much
more
tolerant of people now and have more patience in daily life.I
understand things on a much deeper level than before and I feel more. I
am not saying that I don't
vent every once in a while, but I guess I am trying to make lemonade out
of lemons.I realize that I have only had TM for almost 4 years, and
that many of you
have had TM many more years and were left with many more problems than
me. It would be interesting to hear from others on how TM left you on a
mental
or emotional level on a day- to- day basis.What changes you have
noticed about yourself?
Janice
*From:* john snodgrass jcs...@yahoo.com
*Sent:* Wednesday, November 10, 2010 5:10 PM
*To:* transverse myelitis tmic-list@eskimo.com
*Subject:* RE: [TMIC] {TMIC}sweating
i have to watch my emotions when i see the dates many of you have
fought with this thing.
my mind keeps looking for some healing.
that may just happen,but after almost 3 years,doesn't look likely.
--- On *Wed, 11/10/10, Robert Pall rp...@neillsupply.com* wrote:
From: Robert Pall rp...@neillsupply.com
Subject: RE: [TMIC] {TMIC}sweating
To: Patricia Cooley patticoole...@gmail.com, Janice Nichols
jan...@centurytel.net, kevin weilacher hwyfli...@yahoo.com,
rn11...@yahoo.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 1:54 PM
After 13+ year the only thing that really increases my discomforts is
rain and or high humidity. Hot and cold have no more effect on me now than
before TM. It just continues to show that despite our similarities no two of
us are exactly the same.
Rob in New Jersey
--
*From:* Patricia Cooley [mailto:patticoole...@gmail.com]
*Sent:* Wednesday, November 10, 2010 1:32 PM
*To:* 'Janice Nichols'; 'kevin weilacher'; rn11...@yahoo.com;
tmic-list@eskimo.com
*Subject:* RE: [TMIC] {TMIC}sweating
I have been reading all your posts about sweating, and I guess I am an
odd case. I don’t have any problems with hot weather. I have always sweat
more in my hair than anywhere else, even before TM. My problem is the
cold. I am always cold so I guess that is why the hot weather doesn’t
affect me too much. I do like sleeping in a cool room and like lots of
blankets. I was told with TM your internal thermostat is not working
properly.
Patti - Wisconsin
*From:* Janice Nichols [mailto:jan...@centurytel.net]
*Sent:* Wednesday, November 10, 2010 12:09 PM
*To:* kevin weilacher; rn11...@yahoo.com; tmic-list@eskimo.com
*Subject:* Re: [TMIC] {TMIC}sweating
Ditto! Janice
*From:* kevin
weilacherhttp://us.mc658.mail.yahoo.com/mc/compose?to=hwyfli...@yahoo.com
*Sent:* Wednesday, November 10, 2010 11:42 AM
*To:*
rn11...@yahoo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=rn11...@yahoo.com;
tmic-list@eskimo.comhttp://us.mc658.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com
*Subject:* Re: [TMIC] {TMIC}sweating
I have been totally confused about the sweating issue ever since TM hit
me
My
Re: [TMIC] hello out there
At what level is your lesion? Could be that the rest of your body has trouble sweating, so the top of your body is working overtime tto cool you off. Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Tue, Nov 9, 2010 at 9:33 PM, Janice Nichols jan...@centurytel.netwrote: No, my hot flashes are not menapausal(sp).I had a complete hysterectomy 20 years ago. This just started as soon as TM did. From my neck up I get fiercely hot - not the rest of my body. Warm and humid really sets it off, but I can heat up with them too. But, the cooler I keep my body, the less chance I will get hot. Janice *From:* L T CHERPESKI cherp...@msn.com *Sent:* Tuesday, November 09, 2010 10:26 PM *To:* tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara Almabalmat...@aol.com; Janice Nichols jan...@centurytel.net *Subject:* Re: [TMIC] hello out there Welcome back, Janice! Sounds like you had a wonderful time. (Sorry fellas, you might want to zone out for a minute) I'm glad your hot spells are better in the cold weather. Mine stopped immediately and never came back when TM became my special friend. One nice perk ~ Linda - Original Message - *From:* Janice Nichols jan...@centurytel.net *To:* cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara Alma balmat...@aol.com *Sent:* Tuesday, November 09, 2010 6:43 PM *Subject:* Re: [TMIC] hello out there Actually, I love the winter weather.At least then I don't have many hot spells. I can control that better in cold weather. Anyone else like that? Janice *From:* Barbara Alma balmat...@aol.com *Sent:* Sunday, November 07, 2010 7:44 PM *To:* cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com *Subject:* Re: [TMIC] hello out there Hello all, Well, maybe I shouldn't have asked this question, but I'm glad I did. It looks like some support was needed for you guys and maybe for some just lurking and not feeling up to writing in. Believe me, I sympathize with you and your pain. This time of year, when it's cold in many parts of the country and world, my symptoms get worse also. It seems that some of us have symptoms that are exacerbated by the cold and some by heat. The barometric pressure can affect many. Mine are much worse in the cold, and especially if it's rainy. My skin can be warm to the touch, but I can feel cold to the bone (as I say). I actually think that it may be the nerves that are cold and it is so hard to warm up again. It can be really painful. I get under the blankets and also wrap my legs in blankets, sometimes a heated one, and pray it goes away soon, but I can only do that when I'm at home. I try not to go out of the house unless absolutely necessary during this time of year, and I am sure that this is why the winter blues set in. This is something we have to be very careful of, because it can cause a lot of depression. Please be aware of this. This is another reason why it's important to keep in touch. Hugs, Barbara A in Auburn CA -Original Message- From: L T CHERPESKI cherp...@msn.com To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton Garis malugss...@gmail.com Sent: Sun, Nov 7, 2010 4:43 pm Subject: Re: [TMIC] hello out there Hi Dalton Everyone ~~ You're right Dalton. Many of us seem to be having additional challenges right now. Could be why we've been so quiet on the list After I read your post about the horrific day you had, I did a little research, and I think I came back even more confused - sorry to say. I'm sure I've asked you this before, but I'll ask again. Have you been given any drugs specifically for seizures? If not, could your doctor put you on a seizure med for a trial period to see if it would indeed help?? I don't understand why they haven't tried this. How does anybody know if nothing has been tried??? Is Lyrica the only medication you take? Is there another neuro you could see or would your neuro consider consulting another neuro about your case? So many questions - so few answers. I don't know what to say. It's so frustrating to see you going through all of this. Hang in there and keep posting. Linda - Original Message - *From:* Dalton Garis malugss...@gmail.com *To:* L T CHERPESKI cherp...@msn.com ; tmic-list@eskimo.com ; Barbara Alma balmat...@aol.com *Sent:* Sunday, November 07, 2010 5:19 PM *Subject:* Re: [TMIC] hello out there Seems as if everyone went down at the same time. Is it possible that I might have recurrent TM? I wish I could get the neuro interested in my case. But he just keeps me in Lyrica and has no further interest. Dalton -- *From: *L T CHERPESKI cherp...@msn.com *Date: *Sun, 7 Nov 2010 16:33:40 -0700 *To: *tmic-list@eskimo.com, Barbara Alma balmat...@aol.com *Subject: *Re: [TMIC] hello out there
Re: [TMIC] hello out there
Dalton, Have you been properly screened for MS? Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis malugss...@gmail.com wrote: Actually; I had a day-long attack of spasms yesterday which left me unable to control either my hands and arms, legs, torso or speech. Every time I tried to talk I would cramp up. And Elvis was definitely being channeled in my body. Thank heavens I had the assistance of a very nice and strong maid who visits me once a week. It was her day to visit and she stayed with me and helped me to the bathroom and into and out of chairs. It was hard to sit down because I couldn’t make my body bend and I’d just slide off. But we got it under control. She had to help me drink and eat. I would grab the coffee cup handle and then could not make my hand let go. In the mean time I was so grateful for her assistance and that the Lord was taking care of me that I was also as high as a kite and proposing marriage to chairs and such. Today was the beginning of the work week here (Abu Dhabi) and I did alright. But the lecture kept going off on these tangents making it hard for my class to take useful notes. It was because my mental state was still flying around the cosmos. What is going on here? OK, I have TM in my upper spine; but what is this mental derangement stuff? I sure wish the drs could find out what is wrong with me. Dalton -- *From: *Barbara Alma balmat...@aol.com *Date: *Sun, 7 Nov 2010 00:48:22 -0400 (EDT) *To: *tmic-list@eskimo.com *Subject: *[TMIC] hello out there *Resent-From: *tmic-list@eskimo.com *Resent-Date: *Sat, 6 Nov 2010 21:48:30 -0700 Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
Re: [TMIC] Foley caths--Condom cath
Condom caths are great because your bladder can fill and void like normal...unfortunately, a women's plumbing isn't up to code enough to use one of those. ;) Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Mon, Oct 18, 2010 at 6:34 PM, bobby jim elbobber...@earthlink.netwrote: Would using what used to be called a 'jock strap' help you keep the cath in place. From me who knows nuthin about caths, BobbyJim *From:* James Berg molokai...@gmail.com *To:* Akua a...@artfarm.com *Cc:* tmic-list@eskimo.com *Sent:* Monday, October 18, 2010 15:54 *Subject:* Re: [TMIC] Foley caths--Condom cath When I was getting ready to leave the hospital the dr.s were telling me I had to cath every four hours after I left. Yet they were changing my cath in the hospital every three days? I argued that the more cathing that was done, the more the chance of infection increased. winning that battle I pushed for the condom catheter and that was used for the last week of my stay. I have been on the condom cath for 7 months now and even though it comes off now and then when I am transfering in or out of my chair, it still is way beter and cheaper than the internal cath. My wife and wonderful caretaker devised a method of taping the condom cath in place with two bands of narrow tape and it works prety well. I have had no bladder infections like I did when I was in the hospital with the internal cath. On Sun, Oct 17, 2010 at 1:12 PM, Akua a...@artfarm.com wrote: That's what i was told, too. The perils of relying on the Foley were frighteningly depicted. and it was given as the reason why, as i was still in the hospital, my foley was removed and i was told to self-cath. ( a fairly brutal process, no teaching, lots of yelling sigh, how TM has exposed me to some hideous people) A On Thu, Oct 14, 2010 at 11:16 AM, Laura Beaudin laura.beau...@gmail.com wrote: Apparently, from what I've been told, the filling and voiding of the bladder play a big role in kidney health. I'm going to be preparing an article shortly about bladder care where I'll also be formally interviewing my urologist (among others). I'll be sure to get a better explanation at the same time. Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org --
Re: [TMIC] Foley caths
On Thu, Oct 14, 2010 at 11:16 AM, Laura Beaudin laura.beau...@gmail.comwrote: Apparently, from what I've been told, the filling and voiding of the bladder play a big role in kidney health. I'm going to be preparing an article shortly about bladder care where I'll also be formally interviewing my urologist (among others). I'll be sure to get a better explanation at the same time. Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Thu, Oct 14, 2010 at 8:11 AM, rn11...@yahoo.com rn11...@yahoo.comwrote: Laura, I was an RN for 22 yrs before tm,but worked in a respiratory care unit the last 7 yrs. Took care of many urology patients over the years. I never knew long term Foley cath use put you at risk for kidney failure. Cheryl in Easthampton,MA --- On *Wed, 10/13/10, Laura Beaudin laura.beau...@gmail.com* wrote: From: Laura Beaudin laura.beau...@gmail.com Subject: Re: [TMIC] Foley caths To: Alton Ryder a-ry...@comcast.net, Transverse Mylitis Group tmic-list@eskimo.com Date: Wednesday, October 13, 2010, 7:11 PM You are definitely the exception rather than the rule...great for you if you've been able to avoid UTI's...don't forget though teat you don't have as much bacteria 'up there' as a woman who's parts are 'down there' where moisture is constantly a problem...not to mention menstruation. A woman should never be allowed to go too long with an indwelling...if it's going to be a long-term thing, it's usually switched to a suprapubic--which is what will happen to me if I can't relearn to dress and self-cath. I'm lucky in that my Urologist is widely renown for his work in the SCI field.He's a wealth of information and was one of the docs who has pionered urological care for women with SCIs. Also, with a foley, kidneys start shutting down after ten or so years, so when possible, it should be capped off to mimic the filling and emptying of the bladder. Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Wed, Oct 13, 2010 at 9:42 AM, Alton Ryder a-ry...@comcast.nethttp://us.mc581.mail.yahoo.com/mc/compose?to=a-ry...@comcast.net wrote: Keep things clean, and a Foley is the least apt to be involved in an UTI. I've been, I believe, on a Foley for seven years with only one UTI. Changes every other week. Alton On Apr 28, 2010, at 9:58 AM, Laura Beaudin wrote: Actually, an indwelling catheter should be a last resort. They create more infection since bacteria sets up a home on the catheter and they never fully drain the bladder (since the catheter opening sits over the balloon). Also, using an in-and-out catheter allows the bladder to expand and deflate naturally where with the foley, it doesn't do this, which can lead to further problems.
Re: [TMIC] Foley caths
You are definitely the exception rather than the rule...great for you if you've been able to avoid UTI's...don't forget though teat you don't have as much bacteria 'up there' as a woman who's parts are 'down there' where moisture is constantly a problem...not to mention menstruation. A woman should never be allowed to go too long with an indwelling...if it's going to be a long-term thing, it's usually switched to a suprapubic--which is what will happen to me if I can't relearn to dress and self-cath. I'm lucky in that my Urologist is widely renown for his work in the SCI field.He's a wealth of information and was one of the docs who has pionered urological care for women with SCIs. Also, with a foley, kidneys start shutting down after ten or so years, so when possible, it should be capped off to mimic the filling and emptying of the bladder. Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Wed, Oct 13, 2010 at 9:42 AM, Alton Ryder a-ry...@comcast.net wrote: Keep things clean, and a Foley is the least apt to be involved in an UTI. I've been, I believe, on a Foley for seven years with only one UTI. Changes every other week. Alton On Apr 28, 2010, at 9:58 AM, Laura Beaudin wrote: Actually, an indwelling catheter should be a last resort. They create more infection since bacteria sets up a home on the catheter and they never fully drain the bladder (since the catheter opening sits over the balloon). Also, using an in-and-out catheter allows the bladder to expand and deflate naturally where with the foley, it doesn't do this, which can lead to further problems.
Re: [TMIC] Dr. Visit Brings Hope
Wow! Sounds like you found a keeper! Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Wed, Oct 6, 2010 at 3:07 PM, Janice Nichols jan...@centurytel.netwrote: Akua, Finally you are getting the help you need and deserve. That is truly wonderful. I have a feeling your life is about to turn around and be much more pleasant for you. Wonderful! Janice -- From: Akua a...@artfarm.com Sent: Wednesday, October 06, 2010 2:17 PM To: tmic-list@eskimo.com Subject: [TMIC] Dr. Visit Brings Hope This is the first time in 4 years that I have spoken to a medical professional who understood everything, it seemed. Let's begin with access: his nursed pushed me along the carpet --- carpet is a shoulder buster and most folks just watch me ache and struggle. His office had a table that i could transfer to. First one I've seen in four years. He ordered tests no one had suggested: bone density pulmonary function ultrasound of kidneys because sitting in a char affects all of these He's WORKING ON GETTING ME AN IN HOME THERAPIST When i pulled out the STANDER literature he praised me-- yes that was something he envisioned me using to prevent osteo_ something. I told him about the Flexiciser, he waited for me to follow him (uber points for that, too, treating me like I am a grown up who can go from point a to b) and showed me something VERY similar, a leg moving machine. Then show me the heated hydro therapy pool that i could lowered into--- if i could get transport there, which i can't with regularity SO he said our goal is to get me driving and help me transfer into my car Why don't all doctors have dentist chair type tables? In that they go low enough for someone from a wheelchair could possibly get on. He said where we are is backwards and that he had brought that table with him. I think i love this guy-- who SHOOK MY HAND. which just reminded me how i have not been treated well at all, but maybe this time I can really be on the road to help and healing. He praised me and celebrated me saying he was delighted to have a patient who was motivated. He had read my file and knew i was a vegetarian and fodd conscious and so understood my desire to lose weight was about raising metabolism, not telling me about not eating stuff that hasn't touched my lips for 40 years. I left with 3 appointments already set up for me--- this has never happened before my last blood test was at my OWN insistence. I think I've found a REAL DOCTOR. My bus driver, who I like a lot (but hadn't been getting because his firm declined medical rides for a time) knew this doctor and also praised him. Akua --
Re: [TMIC] Fwd: Good Idea!
Thank you, Dalton! Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Mon, Oct 4, 2010 at 10:42 PM, Dalton Garis malugss...@gmail.com wrote: Let’s be clear: Those persons who destroyed the Twin Towers in my City while I watched, were *NOT MUSLIMS.* They had twisted things like a New York Pretzel to have it do what they wanted of it—taking things out of context and making a god out of an evil and corrupt leader who signed off on killing the innocent. Their motto was “Kill them all and let the Lord sort them out.” Shall we ban Christian churches all over Europe because the Germans were Christian? Shall we ban temples in the Far East because the Japanese were Shinto Buddhists? There have been 13 years of war for every year of Peace since the Advent of His Holiness Jesus. Shall we ban Christian worship? Let’s sort it out in our minds! Forever man has committed the most atrocious of acts in the name of their religion. But we see that it is because *there is too little true religion today, not too much, which is the root cause of so many of our problems, in our streets and in our skies *. No: It is because those murderers knew too little of the Qur’an that they committed such evil, not too much. They knew nothing of the Qur’an or Islam in the Name of which they killed so many. *I say, if people want to sincerely worship God, let them. There is too little of this, not too much. * Dalton -- *From: *bgunny7...@aol.com *Date: *Mon, 4 Oct 2010 16:04:09 EDT *To: *Tmic-list@eskimo.com *Subject: *[TMIC] Fwd: Good Idea! *Resent-From: *tmic-list@eskimo.com *Resent-Date: *Mon, 4 Oct 2010 13:04:45 -0700
[TMIC] New Squidoo page on TM
I was writing up some Squidoo lenses when I discovered (of all horrors) that of the hundreds of thousands of lenses, no one ever wrote one up specifically about Transverse Myelitis. Well this has now changed and I published a lens yesterday titled What Is Transverse Myelitis? here: http://www.squidoo.com/what-is-transverse-myelitis http://www.squidoo.com/what-is-transverse-myelitisI'd love to get your input on it, as well as your stories, if you'd like to share them in the comments section. Are there any links or pieces of info you think I should add? Please share this site with your friends and family. If you have a blog, please share the link in order to help spread awareness about TM! Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org
Re: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove
Dude! Get off your soapbox! http://www.snopes.com/crime/warnings/bottlebomb.asp http://www.snopes.com/crime/warnings/bottlebomb.asp Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Tue, Sep 7, 2010 at 5:10 AM, randy rankin rj_ran...@yahoo.com wrote: sorry but that story is only a myth - urban legion, its a big fat lie and very poorly constructed 'science' tell. The stuff would blow up long before anyone picked it up. The system does NOT depend on anyone touching it and it is NOT a bomb. Not to poke fun of anyone on here but the notion of disturbing it or moving it ... Oh and it takes 30 seconds! OMG for REAL Wow, like to see the statistical probability outcomes for that consistency. BIG F for paying attention in chemistry class!!! Few chemical reactions have ANYTHING to do with someone disturbing it. I've been a chemistry teacher for 15 years! We've done this kind of stuff all the time. It is NOT a bomb but a simple high school chemical experiment. Look, funny as they may be, whenever you get this spam junk, before passing it on, just type a few lines or copy/paste a few lines into google and you'll see that 100% of this junk is made up. I did and here, IN ORDER, is what you'll find on google - actually, go to scholar, better yet search REAL periodicals, books and peer reviewed journals on the subject. Then, you will see how that this information does NOT add up to reality. Pardon the pun, but 'it don't take no rocket scientists' to find out when something is spam. http://www.urbanmyths.com/index.php?/Technology/water-and-drano-bottle-bombs-alert.html the second link is this ass clowns warning - probably a teenager or college kid spun this one for people who believe everything and research nothing. Third link http://urbanlegends.about.com/od/crime/a/bottle_bombs.htm Next links are a repeat of the hoax - MORONS! Poor little fingers get blown off - GOOD GRIEF! You deserve to be made fun of if you believe that line! And these guys went all out to make a VIDEO. I broke into tears with humor seeing the cut footage of a firetruck and cops coming out to blow up the little bombs. Aluminum CAN be used to make deadly bombs. ACIDS are used. However, the ingredents and descriptions in these stories don't match up. Hey, I've DONE this enough times myself and have never see a violent explosion. You can get a LOT more damage by using acid and potassium or red phosphorous. Heck, you just need a little WATER with those two. -- *From:* john snodgrass jcs...@yahoo.com *To:* Mindy King we4king...@verizon.net *Cc:* transverse myelitis tmic-list@eskimo.com *Sent:* Tue, September 7, 2010 4:34:48 AM *Subject:* Re: [TMIC] be careful lol,,,I think what Dad used was Lie and aluminum foil for the baloons. -- *From:* Mindy King we4king...@verizon.net *To:* tmic-list@eskimo.com *Cc:* Mindy King we4king...@verizon.net *Sent:* Tue, September 7, 2010 2:44:10 AM *Subject:* Re: [TMIC] be careful Mentos in diet cola is much safer and you can still drink the soda after the eruption! Mindy King we4king...@verizon.net On Sep 6, 2010, at 11:59 PM, Dalton Garis wrote: Drain-O and aluminum foil! D. -- *From: *Janice Nichols jan...@centurytel.net *Date: *Mon, 6 Sep 2010 22:00:35 -0500 *To: *john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com *Subject: *Re: [TMIC] be careful *Resent-From: *tmic-list@eskimo.com *Resent-Date: *Mon, 6 Sep 2010 20:00:30 -0700 John, what the heck did you put in those bottles!!! Janice From: john snodgrass jcs...@yahoo.com Sent: Monday, September 06, 2010 5:44 PM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] be careful this may not have anything to do with TM but has everything to do with everybody. when i was a kid,we used to take a coke bottle and put this stuff in it and put a baloon over it. the chemical reaction would blow up the baloon .we would then tie off the baloon and it would float up in the sky. didnt know what we were doing for fun could be used to make a bomb! the link to snopes is an actual link and not an advert.looked at it myself.this occured in April i think. John Subject: NOT A JOKE - VERY SERIOUS – KIDS NEED TO KNOW TOO. To: Date: Monday, September 6, 2010, 1:22 PM NOT A JOKE - VERY SERIOUS – GOOD FOR THE KIDS TO KNOW TOO. Pass this on to everybody you know. Anybody that sees a plastic bottle in their yard would think nothing of picking it up to throw it away. Looks like these things are starting to pop up around the U.S. Check the Snopes web site below, it's pretty scary. Important warning! NOT A JOKE! Pay attention to this. 1. A plastic bottle with
Re: [TMIC] Memory Loss
Kinda literally! LOL...which leads to another problem. if i don't see something (such as my meds...oops!), I forget! Laura...off to take her lunch meds 3 hours late... http://practical-homeschooling.org www.laurascoolstuff.com On Sun, Aug 29, 2010 at 3:30 PM, bobby jim elbobber...@earthlink.netwrote: Yep, the ole sayin' 'outt'a sight, outt'a mind'..., rats. BobbyJim *From:* Laura Beaudin laura.beau...@gmail.com *To:* fr...@franksheldon.com *Cc:* bobby jim elbobber...@earthlink.net ; kimr1999kimr1...@bellsouth.net; Rev. Craig Crossman revcross...@gmail.com ; tmic-list@eskimo.com *Sent:* Sunday, August 29, 2010 11:05 *Subject:* Re: [TMIC] Memory Loss With my last relapse, i've developed the same problem, but in my hands...makes them useless for many things including dressing. if i can't see then, i can't use them. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Sun, Aug 29, 2010 at 8:41 AM, fr...@franksheldon.com wrote: Yes, The memory problem is caused by many things, but mainly for me because I'm aways in pain so my mind attends to the pain first and forgets the rest. i also have loss of proprioception so my mind is constantly wondering where the parts of my body are. I hope this muddies the water. F
Re: [TMIC] Fact Sheet on TM
For those with a Medic Alert bracelet, you automatically receive a list of conditions and meds on a sheet of paper that you can carry in your walled. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Sat, Aug 7, 2010 at 3:32 PM, Jan Hargrove jmh1...@sbcglobal.net wrote: My husband and I carry updated meds list with us at all times, for each of us, plus a copy to hand to the doctor. I also wear two medalert bracelets with diabetis and tm on both plus meds I'm allergic toneed to wear two cause I'm allergic to antibiotics Thank goodness they mow make medalert bracelets that look like jewelry as well as serve a purpose! also, somewhere I read that the medalert must be on your left wrist as that is where medics are trained to check. janh Stillwater, OK -- *From:* Rev. Craig Crossman revcross...@gmail.com *To:* tmic-list@eskimo.com *Sent:* Sat, August 7, 2010 2:15:28 PM *Subject:* RE: [TMIC] Fact Sheet on TM *Great idea for everyone, TM or not. When we do Medicare benefit counseling that is one thing we ask people to bring. Of course there are some who still bring in the shopping bag full of pill bottles!* * * *From:* CANDIS KALLEY [mailto:cakal...@embarqmail.com] *Sent:* Saturday, August 07, 2010 10:41 AM *To:* tmic-list *Subject:* Re: [TMIC] Fact Sheet on TM Patti, you may also want to make a sheet on all the meds you are on. Also, the vitamins and supplements that you may be taking. I keep an Excel spreadsheet so that I can change dosages and add or delete meds as needed. I also list the dates of start/end, plus the Dr. info. This is much easier as I have found that on every visit, the questionaire asks for current meds. This way, I print the list before the visit and just say See attached. Much Much easier! Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: Rev. Craig Crossman revcross...@gmail.com, tmic-list@eskimo.com Sent: Saturday, August 7, 2010 11:22:15 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Fact Sheet on TM THANKS SO MUCH FOR THIS INFO. SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON. SINCE THIS IS A SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM. I PRINTED IT OFF AND WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT. THANKS AGAIN. PATTI - WISCONSIN *From:* Rev. Craig Crossman [mailto:revcross...@gmail.com] *Sent:* Friday, August 06, 2010 3:08 PM *To:* tmic-list@eskimo.com *Subject:* [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don’t want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she’ll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
[TMIC] paralysis resources
Hi everyone, I hope that everyone is having a nice summer and not over-baking! I'm working on an article and want to ask all of you what you consider to be your favorite online resources for Spinal Cord Injuries...either in terms of information or support. Seems like it's hard finding quality sites out there and I want to compile a list of the best ones. Thanks for your time. Laura http://practical-homeschooling.org
Re: [TMIC] What's in a name (Diagnosis)
I was treated like an SCI patient the whole way through and never had a problem. The irony is that when this happened, they stopped my MS meds since they obviously weren't helping any. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Sat, Jun 19, 2010 at 9:39 PM, Akua a...@artfarm.com wrote: That's the rub-- insurance would have paid for it--- if the physician(s) prescribed it-- if there were a history/protocol for a course of treatment. EG Stroke patients got more therapy than i did-- I had the equivalent of a spinal stroke. IF; You could pay for it all! *Dalton Garis* *Office: +971-2-607-5070/-5297* *Fax: +971-2-607-2500* *Mobile: +971-50-668-5760* *In New York: 718-271-2738* -- *From:* Akua [mailto:a...@artfarm.com] *Sent:* Saturday, June 19, 2010 9:06 PM *To:* tmic-list@eskimo.com *Subject:* [TMIC] What's in a name (Diagnosis) Here in the U.S., if I had MS, i would have had REAL help: therapy, infrastructure, assistance, a drug course, transportation, LOTS AND LOTS of things that I did not get and do not have. As soon as they deteremined that what I had was NOT MS -- this was at Strong Hospital-- A whole level of attention and assistance was dropped like a hot potato. They didn't know about TM but they knew about MS. So basically nothing happened for me. I was warehoused for months and fought for every little bit that was done, which in retrospect was shockingly little eg. no water therapy, very little exercise, my leg machines discontinued So diagnosis is critical to treatment in my experience. Akua Hi Dalton, I don't disagree with what you are saying, however it depends upon how far down the line you are. I think we all need that diagnosis, we need to know what has gone wrong, we need a label. It takes a long time to accept what's done is done···when we have got there you're right, the label/diagnosis becomes irrelevant. Until we get there , well there's some comfort in a label . After all, without that label /diagnosis none of us would be here sharing our experiences on the web. Steve (one of 300 of the population of the uk diagnosed in a year, we are a rare breed my gp has never seen a tm before) --
[TMIC] Wheels in Motion pictures.
The Rick Hansen Wheels in Motion is a Canadian fund-raiser to help people with spinal cord injuries and related research. Rick Hansen lost his ability to walk after a spinal cord injury, and later went on to circle the globe in his wheelchair to raise SCI awareness. I was in charge of the photography for the Edmonton walk yesterday, and wanted to share the pictures. http://www.flickr.com/photos/khaleeka/sets/72157624145599459/ Cheers! Laura http://practical-homeschooling.org www.laurascoolstuff.com
Re: [TMIC]
That's what I was saying...TM can manifest either as a medical condition within itself, or a symptom. Slowly not being able to walk (over weeks or months) when you have MS is not TMsuddenly not being able to walk (like in the span of hours or days), and with that symptom being unique (not coinciding with other MS symptoms) is TM as caused by MS...sounds weird, but that's how it was explained to me by my doc. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 9:45 PM, Janice Nichols jan...@centurytel.netwrote: Is it possible that with both brain and spine lesions that you have MS rather than TM?Janice *From:* Dalton Garis malugss...@gmail.com *Sent:* Thursday, June 10, 2010 10:34 PM *To:* Janice Nichols jan...@centurytel.net ; Laura Beaudinlaura.beau...@gmail.com; tmic-l...@eskimo.net *Subject:* Re: [TMIC] Janice; I can function normally for spurts of time, but no stamina in the muscles at all. My lower legs and lower arms are hit with constant aching and feel as if they were filled with hot lead. My spine is very sore now with many different pains. My diaphragm and upper stomach area is burning and squeezing all the time. I cant get comfortable anymore, no matter how I sit, recline or lie down. The biggest problem is with the attacks of spasticity. They are overall convulsions affecting all my muscles and causing me to arch my back and legs backwards, then forwards, pinning my head aagainst my chest and leaving me with no control over arms, legs and speech. They ate almost epileptic fits, and likely caused by brain and spine lesions. I take Epanutin for this, which is an anti-convulsive medication given to epileptics. It works a little but the spastic qattacks can come at any time. I will feel it in my voice as I try to talk and become halting in speech. Then the back arches and the arms go flying upwarrds. This can last for 20 minutes or 6 hours, one convulsion after another. When it is finished with me all my muscles and backbones ache and giv e me a lot of pain. But I manage somehow and I am happy. Life is all about solving complications and problems, so, we get good at it. I must stop now, as both my eye focusing and my fingers are quitting on me. Kind regards, Dalton Garis Abu Dhabi/New York On 11/6/10 2:22 AM, Janice Nichols jan...@centurytel.net wrote: Do you mind my asking what are you able to do? Were your arms affected and how did it leave you with walking/not walking? Janice *From:* Laura Beaudin mailto:laura.beau...@gmail.comlaura.beau...@gmail.com *Sent:* Thursday, June 10, 2010 11:43 AM *To:* Janice Nichols mailto:jan...@centurytel.net jan...@centurytel.net ; tmic-l...@eskimo.net *Subject:* Re: [TMIC] All my docs and therapists are on the Spinal Cord Injury Unit of our rehab hospital...definitely qualified. It sucks, but sometimes the best efforts don't work. I was on this unit as an inpatient for 6 weeks last summer, they were not able to get much back so the time ended up being spent on how to adjust to changes and become independent in spite of it. Transverse Myelitis IS a Spinal Cord Injury...just not a traumatic one (ie, not caused by an accident). Laura http://practical-homeschooling.org www.laurascoolstuff.com http://www.laurascoolstuff.com On Thu, Jun 10, 2010 at 10:34 AM, Janice Nichols jan...@centurytel.net wrote: I am getting definite improvement with PT. My pain management doc recommended a PT guy that specializes with damaged spines (like us). He knows what he is doing.We are taking it very slow because of the severe back arthritis I have and the myelitis. I also do my exercises at home in between sessions. Can you get a PT especially recommended by your doc because of our special problem? The hamstring problem is definitely from myelitis. Janice *From:* Laura Beaudin mailto:laura.beau...@gmail.comlaura.beau...@gmail.com *Sent:* Thursday, June 10, 2010 11:14 AM *To:* Janice Nichols mailto:jan...@centurytel.net jan...@centurytel.net *Subject:* Re: [TMIC] Ditto...more bruising would be normal (and often is) if you have decreased sensation. As for hamstrings, mine are shortening and despite PT, I can't get them flexible again. Laura http://practical-homeschooling.org www.laurascoolstuff.com http://www.laurascoolstuff.com On Thu, Jun 10, 2010 at 9:04 AM, Janice Nichols jan...@centurytel.net wrote: Also the baclofen! Good luck and keep in touch in New York. Are you going to live there now? Janice *From:* Dalton Garis mailto:malugss...@gmail.com malugss...@gmail.com *Sent:* Wednesday, June 09, 2010 11:44 PM *To:* Janice Nichols mailto:jan...@centurytel.net jan...@centurytel.net ; tmic-list@eskimo.com ; Leslie Garis mailto:lga...@mindspring.comlga...@mindspring.com ; Garis, Brooks (Darien, CT
Re: [TMIC]
I'm unable to walk or use any function below T10. On occasion, I can move my legs a tiny bit, but not enough to support myself. For a period, I was actually able to stand, but that's now gone. My arms (especially my left) are affected by a cerical lesion, not much, thank God), but that's from MS and has nothing to do with my TM. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 4:22 PM, Janice Nichols jan...@centurytel.netwrote: Do you mind my asking what are you able to do? Were your arms affected and how did it leave you with walking/not walking? Janice *From:* Laura Beaudin laura.beau...@gmail.com *Sent:* Thursday, June 10, 2010 11:43 AM *To:* Janice Nichols jan...@centurytel.net ; tmic-l...@eskimo.net *Subject:* Re: [TMIC] All my docs and therapists are on the Spinal Cord Injury Unit of our rehab hospital...definitely qualified. It sucks, but sometimes the best efforts don't work. I was on this unit as an inpatient for 6 weeks last summer, they were not able to get much back so the time ended up being spent on how to adjust to changes and become independent in spite of it. Transverse Myelitis IS a Spinal Cord Injury...just not a traumatic one (ie, not caused by an accident). Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 10:34 AM, Janice Nichols jan...@centurytel.netwrote: I am getting definite improvement with PT. My pain management doc recommended a PT guy that specializes with damaged spines (like us). He knows what he is doing.We are taking it very slow because of the severe back arthritis I have and the myelitis. I also do my exercises at home in between sessions. Can you get a PT especially recommended by your doc because of our special problem? The hamstring problem is definitely from myelitis. Janice *From:* Laura Beaudin laura.beau...@gmail.com *Sent:* Thursday, June 10, 2010 11:14 AM *To:* Janice Nichols jan...@centurytel.net *Subject:* Re: [TMIC] Ditto...more bruising would be normal (and often is) if you have decreased sensation. As for hamstrings, mine are shortening and despite PT, I can't get them flexible again. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 9:04 AM, Janice Nichols jan...@centurytel.netwrote: Also the baclofen!Good luck and keep in touch in New York. Are you going to live there now? Janice *From:* Dalton Garis malugss...@gmail.com *Sent:* Wednesday, June 09, 2010 11:44 PM *To:* Janice Nichols jan...@centurytel.net ; tmic-list@eskimo.com ; Leslie Garis lga...@mindspring.com ; Garis, Brooks (Darien, CT)brooks_ga...@ml.com *Subject:* Re: [TMIC] I haven’t; But I was in very heavy labor employment before returning to get a PhD at aged 35, with lots of broken bones, back fusions, hardware, the works. So, I wouldn’t notice anyway. As to the hamstring, also, no. For me the spasticity and convulsive attacks when I try to speak during stressful situations is absolutely the biggest problem. And no one’s heard of that. But I read about this being a well documented effect of TM, that is, spasticity in some form, on the Johns Hopkins website. I also have uncooperative legs and hands a lot of the time. But I can’t keep my left foot up while walking now, so I wear western boots with big heels. They allow me to walk without the need for a foot brace. Here’s hoping I don’t get spastic in the airport or on the plane so it doesn’t get me grounded or thrown off the plane today on my flight back to NYC!!! Hey, just increase the Lyrica, right? Dalton Abu Dhabi/New York On 10/6/10 8:23 AM, Janice Nichols jan...@centurytel.net wrote: Got a couple of questions: 1.Have you noticed more bruising on affected areas of TM than you had before TM? 2.Have any of you had problems with your hamstring since TM? Janice
Re: [TMIC]
All my docs and therapists are on the Spinal Cord Injury Unit of our rehab hospital...definitely qualified. It sucks, but sometimes the best efforts don't work. I was on this unit as an inpatient for 6 weeks last summer, they were not able to get much back so the time ended up being spent on how to adjust to changes and become independent in spite of it. Transverse Myelitis IS a Spinal Cord Injury...just not a traumatic one (ie, not caused by an accident). Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 10:34 AM, Janice Nichols jan...@centurytel.netwrote: I am getting definite improvement with PT. My pain management doc recommended a PT guy that specializes with damaged spines (like us). He knows what he is doing.We are taking it very slow because of the severe back arthritis I have and the myelitis. I also do my exercises at home in between sessions. Can you get a PT especially recommended by your doc because of our special problem? The hamstring problem is definitely from myelitis. Janice *From:* Laura Beaudin laura.beau...@gmail.com *Sent:* Thursday, June 10, 2010 11:14 AM *To:* Janice Nichols jan...@centurytel.net *Subject:* Re: [TMIC] Ditto...more bruising would be normal (and often is) if you have decreased sensation. As for hamstrings, mine are shortening and despite PT, I can't get them flexible again. Laura http://practical-homeschooling.org www.laurascoolstuff.com On Thu, Jun 10, 2010 at 9:04 AM, Janice Nichols jan...@centurytel.netwrote: Also the baclofen!Good luck and keep in touch in New York. Are you going to live there now? Janice *From:* Dalton Garis malugss...@gmail.com *Sent:* Wednesday, June 09, 2010 11:44 PM *To:* Janice Nichols jan...@centurytel.net ; tmic-list@eskimo.com ; Leslie Garis lga...@mindspring.com ; Garis, Brooks (Darien, CT)brooks_ga...@ml.com *Subject:* Re: [TMIC] I haven’t; But I was in very heavy labor employment before returning to get a PhD at aged 35, with lots of broken bones, back fusions, hardware, the works. So, I wouldn’t notice anyway. As to the hamstring, also, no. For me the spasticity and convulsive attacks when I try to speak during stressful situations is absolutely the biggest problem. And no one’s heard of that. But I read about this being a well documented effect of TM, that is, spasticity in some form, on the Johns Hopkins website. I also have uncooperative legs and hands a lot of the time. But I can’t keep my left foot up while walking now, so I wear western boots with big heels. They allow me to walk without the need for a foot brace. Here’s hoping I don’t get spastic in the airport or on the plane so it doesn’t get me grounded or thrown off the plane today on my flight back to NYC!!! Hey, just increase the Lyrica, right? Dalton Abu Dhabi/New York On 10/6/10 8:23 AM, Janice Nichols jan...@centurytel.net wrote: Got a couple of questions: 1.Have you noticed more bruising on affected areas of TM than you had before TM? 2.Have any of you had problems with your hamstring since TM? Janice
Re: [TMIC] Anyone Remember Jude?
Janice, TM can either be a condition OR a symptom. I've had MS for years, but the TM popped up as a symptom of my MS...one day I was walking, the next I wasn't...it's now been over a year. None of my other MS symptoms have ever been this stubborn--nor this severe --well except the ones that came along with the TM. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 30/05/2010 10:48 AM, Janice Nichols wrote: Dalton, Welcome to the club. I have never heard of anyone getting MS first and then TM second. Usually it is the other way around. Doc told me that TM is sort of a cousin to MS. It is all autoimmune. Tell us more about yourself - your family, age, support group, how TM left you in terms of damage, etc. Sure glad to have you with us (except for the reason, of course). Janice *From:* Dalton Garis mailto:malugss...@gmail.com *Sent:* Saturday, May 29, 2010 5:45 AM *To:* Jude Hoops mailto:heyjude48...@aol.com ; tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Subject:* Re: [TMIC] Anyone Remember Jude? Jude; I am meeting you for the first time. I live in Abu Dhabi, United Arab Emirates. Diagnosed with ‘demyelinating disease’ in early January, had second attack 6 weeks later, confirming that it was MS. Then in April I got TM and have been dealing with that ever since. I read your emails with empathy. I pray for you all and hope things become more positive in your lives, especially in your financial lives. Contact me directly any time at this email, or on Facebook Best regards, Dalton Garis On 26/5/10 3:05 PM, Jude Hoops heyjude48...@aol.com wrote: Hello Friends-Old and New, I have missed you all so much! As like most of you, I have been battling TM and other illnesses like MS, with all of the problems that go with it. It is no fun...and that's not what kind of email this is intended to be. Sorry I still have no picture to post, but promise to look for a decent one tomorrow. I know I have one or two decent ones laying around.
Re: [TMIC] Anyone Remember Jude?
Nope...I was able to stand and take a few steps, then relapsed again. I could technically stand, but promised on my soul to the PT I wouldn'tthe connection it soo unpredictable and my legs give way without warning. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 30/05/2010 9:33 PM, Janice Nichols wrote: I did not realize TM could be that way. Thanks.Are you walking at all now? Janice -- From: Laura Beaudin laura.beau...@gmail.com Sent: Sunday, May 30, 2010 12:06 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Anyone Remember Jude? Janice, TM can either be a condition OR a symptom. I've had MS for years, but the TM popped up as a symptom of my MS...one day I was walking, the next I wasn't...it's now been over a year. None of my other MS symptoms have ever been this stubborn--nor this severe --well except the ones that came along with the TM. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 30/05/2010 10:48 AM, Janice Nichols wrote: Dalton, Welcome to the club. I have never heard of anyone getting MS first and then TM second. Usually it is the other way around. Doc told me that TM is sort of a cousin to MS. It is all autoimmune. Tell us more about yourself - your family, age, support group, how TM left you in terms of damage, etc. Sure glad to have you with us (except for the reason, of course). Janice *From:* Dalton Garis mailto:malugss...@gmail.com *Sent:* Saturday, May 29, 2010 5:45 AM *To:* Jude Hoops mailto:heyjude48...@aol.com ; tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Subject:* Re: [TMIC] Anyone Remember Jude? Jude; I am meeting you for the first time. I live in Abu Dhabi, United Arab Emirates. Diagnosed with ‘demyelinating disease’ in early January, had second attack 6 weeks later, confirming that it was MS. Then in April I got TM and have been dealing with that ever since. I read your emails with empathy. I pray for you all and hope things become more positive in your lives, especially in your financial lives. Contact me directly any time at this email, or on Facebook Best regards, Dalton Garis On 26/5/10 3:05 PM, Jude Hoops heyjude48...@aol.com wrote: Hello Friends-Old and New, I have missed you all so much! As like most of you, I have been battling TM and other illnesses like MS, with all of the problems that go with it. It is no fun...and that's not what kind of email this is intended to be. Sorry I still have no picture to post, but promise to look for a decent one tomorrow. I know I have one or two decent ones laying around.
Re: [TMIC] May Long Weekend
AS I'm sure Dalton can attest, the Middle East gets dang cold in winter...difference is that there, most homes are NOT heated...so when it drops to 6 degrees Celcius, you're piling on the clothes and blankets. I spent 6 years in Saudi...and beware Dalton, I've had my share of Indian doctors down there that had no clue as to what they were doing. The one that took the cake was the Internist who told me to decide how much insulin to take according to how much sugar was in my urine...err... Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 21/05/2010 7:32 PM, Janet Dunn wrote: Hi Again Jeron, I am really jealous now. You are in the Caribbean, and you, Dalton, appear to be in Abu Dhabi, both places are warm. Here it is 0 degrees Celsius, and it is snowing, and it is supposed to snow all night up to 10 cms. That sucks. Big time. So, continue to share those stories, because I am going to be sitting in front of a warm fire, inside, watching it snow on the green lawns, the flowers, and all over the trees that are in blossom. How dreary And you all know what cold does to the legs and banding with TM. Janet
Re: [TMIC] Where TM struck
I'm not sure if the TM struck before or after I got to the hospital. I was home in Edmonton, AB and my back went into spasms. My neuro suggested I go to the ER for pain treatment and steroids. I got off the bus a stop early to get some Tim Hortons (canadians know what I mean)...hot chocolate and a sandwhick since it was already night and I expected a long wait in the ER...by the time I got there, I could barely stand...was the last time I ever walked. This is just over a year ago. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org -Original Message- From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Tue, May 18, 2010 12:04 am Subject: [TMIC] Where TM struck I did not get many replies to my asking where people were living when TM struck them. Actually, it was really scattered. Sorry. Janice
Re: [TMIC] OT Bed sores
Hi Kevin, I'm sure the pain of a lost one never goes away, but it's also a part of life (sadly)...with time, other things start taking precedent, but the wonderful memory of your mother will always be there. How good is your insurance? I know that there are mattresses that are made almost entirely out of gel to avoid this problem...they are costly though, around $4000, but wonderful for those with bedsore problems.You could argue the point that you want to maintain your independence and this can help you. Talk to your doctor, or even better, an OT about this and first step, try to get a prescription. Im sorry, I can't remember the name of it now. ...just found it, it's called intellibed: http://www.intellibed.com/ Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 29/04/2010 2:49 PM, Kevin Wolfthal wrote: Hi All, Still coping with the loss of my Mom..but I don't expect that will ever stop. Thank you all again for the kindness you gave me.. I am wondering if anyone has any advice regarding avoiding bed sores. I am in bed a lot and am comcerned about this. I turn often, but still get some redness in spots. I have a nurse who uses Neosporin on them and will be seeing a doctor soon. I'm wondering if a mattress pad would help? Thanks, Kevin
Re: [TMIC] Amitriptyline
Actually, an indwelling catheter should be a last resort. They create more infection since bacteria sets up a home on the catheter and they never fully drain the bladder (since the catheter opening sits over the balloon). Also, using an in-and-out catheter allows the bladder to expand and deflate naturally where with the foley, it doesn't do this, which can lead to further problems. Maybe a different polity, but the neuro-urologists here are hightly against it if it can be avoided in any way. Believe me, when it started, it was the first thing I asked...but they prefer the botox route in my case. I see the neuro-urologist at the end of May and we'll probably be setting up the appointment for the procedure then. I know he's all for it since he's the one who interpreted my urodynamics study and suggested it in the first place (on the report). Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 28/04/2010 6:12 AM, Alton Ryder wrote: If you don't wear a skirt, have you considered an indwelling catheter, a Foley? If you decide to try a Foley, have the first one inserted by a nurse and get beck to me for more advice. The advantages of a Foley are: convenience (empty a small bag once or twice a day), far fewer UTI's, empty at home or office, not where you happen to be when demand insists, insert every two weeks. Alton On Apr 27, 2010, at 1:34 AM, Laura Beaudin wrote: I cath 5 times a day. every 4 hours during the day, and I can stretch it to 6 at night. I'm still constantly incontinent, but going more often has become a quality of life issue. My bladder constantly over-reacts no matter what I do..I'd have to do it every 2 hours to stay dry. The botox will take care of that...I hope Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org Laura, do you worry about the bladder stretching or would you set an alarm to get up during the nite to cath?I am assuming that you don't have enough feeling in the bladder to know when to go or to wake you up from sleep. Janice -- From: Laura Beaudin laura.beau...@gmail.com mailto:laura.beau...@gmail.com Sent: Monday, April 26, 2010 9:36 PM To: Alton Ryder a-ry...@comcast.net mailto:a-ry...@comcast.net Cc: tmic list tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] Amitriptyline Botox is a paralytic,,will literally paralyze the bladder muscle..means I won't be able to pee without a catheter...but it's not like that's any different than now...just won't be incontinent all the time. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 7:19 PM, Alton Ryder wrote: Do you personally know that Botox is useful this way? I would expect Botox to weaken bladder spasms but not make them less frequent. Alton On Apr 26, 2010, at 1:00 PM, Laura Beaudin wrote: botox on my bladder to calm it down
Re: [TMIC] Honda Inovation
I wouldnb't be so sure. I have very sucky balance, yet this device is made specifically to counter balance..so that if you fall to one side, it would fall that way, therefor keeping you up...sort if like balancing a broom on your hand. Having said that, I'd personally have a major issue with the lack or arm or back support. As it is, I require a hard back and it doesn't take much 'free sitting' for me to be in considerable pain. BTW heather...are you ever up in the Edmonton area? Can't say I've had the pleasure of meeting anyone else with TM...would have to do coffee if you ever happen by here. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org With my balance. I'd fall off this one. But it does look interesting. Heather in Calgary - Original Message - *From:* ladyno...@aol.com mailto:ladyno...@aol.com *To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Monday, April 26, 2010 11:13 PM *Subject:* [TMIC] Honda Inovation Carry your portable scooter with you Have a Blessed Day, Naomi Finally! The solution to my immobility! How long is the waiting list?? Stupid thing will probably cost two or three hundred Gary your portable scooter with you Attached Message From: David Latham da...@lathamfamily.com mailto:da...@lathamfamily.com To: Undisclosed-Recipient da...@lathamfamily.com mailto:da...@lathamfamily.com Subject:Honda Inovation Date: Mon, 26 Apr 2010 12:10:10 -0400 Check out this nifty gadget. http://www.youtube.com/watch?v=cuIJRsAuCHQfeature=youtu.be http://www.youtube.com/watch?v=cuIJRsAuCHQfeature=youtu.be
Re: [TMIC] Mike
OMG..I'm so sorry to hear that. You have my sympathies. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 8:20 AM, bgunny7...@aol.com wrote: My younger brother Mike passed away at 12:40 AM this morning from brain cancer. He was 58.
Re: [TMIC] Amytretaline (sp)
I take a very small dose of Amytriptiline for my bladder. It's way overactive, so I take 4 mg. Detrol LA at night, and 25 mg of the other in the morning... They are planning on doing botox on my bladder to calm it down. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 10:34 AM, Regina Rummel wrote: Hi Jill, I took it years ago for depression and OMG, it was awful! The best way I can describe it is that I felt stoned. It was called Elavil then. In those days, they gave it to people in nursing homes to keep them quiet. But everyone reacts differently, so try it and let us know what happens, something good I hope. I take Neurontin but decided on my own to gradually decrease the dose, and eventually stop taking a medication that I believe bogus. So far, I see no difference in the pain and the darned TM symptoms. Good luck with the Elavil. R
Re: [TMIC] Amytretaline (sp)
Tried Ditropan and failed miserably with it...it works well, but boy, talk about a dry mouth!! Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 11:40 AM, Laurie Zissimos wrote: I take Elavil 25 mgs each night and I take Lyrica 150mgs 3x daily. The Elavil was prescribed for me for bladder control. I also take Ditropan XL 20mgs at night. The Ditropan and the Elavil keep me dry all night. Laurie in Baltimore -Original Message- From: Pieter and Heather pieterheat...@shaw.ca To: Regina Rummel regina...@sbcglobal.net; tmic-list@eskimo.com Sent: Mon, Apr 26, 2010 1:35 pm Subject: Re: [TMIC] Amytretaline (sp) Regina, OMG.I didn't realize that Amytriptilene was actually Elavil. I too was put on that for a short while back in the 70's for depression. I too felt 'right out of it' or 'stoned'. I couldn't take it then and guess I will just stick with the Neurontin. Heather in Calgary - Original Message - *From:* Regina Rummel mailto:regina...@sbcglobal.net *To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Monday, April 26, 2010 10:34 AM *Subject:* [TMIC] Amytretaline (sp) Hi Jill, I took it years ago for depression and OMG, it was awful! The best way I can describe it is that I felt stoned. It was called Elavil then. In those days, they gave it to people in nursing homes to keep them quiet. But everyone reacts differently, so try it and let us know what happens, something good I hope. I take Neurontin but decided on my own to gradually decrease the dose, and eventually stop taking a medication that I believe bogus. So far, I see no difference in the pain and the darned TM symptoms. Good luck with the Elavil. R
Re: [TMIC] Amytretaline (sp)
Nope, the candy didn't work either...the water makes you pee more..but as someone dealing with paralysis..that's probably a good thing. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 11:47 AM, Laurie Zissimos wrote: you have to suck on some hard candy for the dry mouth, drinking water or other liquid only makes you have to pee more -Original Message- From: Laura Beaudin laura.beau...@gmail.com To: Laurie Zissimos lziss...@aol.com Cc: pieterheat...@shaw.ca; regina...@sbcglobal.net; tmic-list@eskimo.com Sent: Mon, Apr 26, 2010 1:45 pm Subject: Re: [TMIC] Amytretaline (sp) Tried Ditropan and failed miserably with it...it works well, but boy, talk about a dry mouth!! Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com http://www.bananga.com/ ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org http://www.practical-homeschooling.org/ On 26/04/2010 11:40 AM, Laurie Zissimos wrote: I take Elavil 25 mgs each night and I take Lyrica 150mgs 3x daily. The Elavil was prescribed for me for bladder control. I also take Ditropan XL 20mgs at night. The Ditropan and the Elavil keep me dry all night. Laurie in Baltimore -Original Message- From: Pieter and Heather pieterheat...@shaw.ca mailto:pieterheat...@shaw.ca To: Regina Rummel regina...@sbcglobal.net mailto:regina...@sbcglobal.net; tmic-list@eskimo.com mailto:tmic-list@eskimo.com Sent: Mon, Apr 26, 2010 1:35 pm Subject: Re: [TMIC] Amytretaline (sp) Regina, OMG.I didn't realize that Amytriptilene was actually Elavil. I too was put on that for a short while back in the 70's for depression. I too felt 'right out of it' or 'stoned'. I couldn't take it then and guess I will just stick with the Neurontin. Heather in Calgary - Original Message - *From:* Regina Rummel mailto:regina...@sbcglobal.net mailto:regina...@sbcglobal.net? *To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com mailto:tmic-list@eskimo.com mailto:tmic-l...@eskimo.com? *Sent:* Monday, April 26, 2010 10:34 AM *Subject:* [TMIC] Amytretaline (sp) Hi Jill, I took it years ago for depression and OMG, it was awful! The best way I can describe it is that I felt stoned. It was called Elavil then. In those days, they gave it to people in nursing homes to keep them quiet. But everyone reacts differently, so try it and let us know what happens, something good I hope. I take Neurontin but decided on my own to gradually decrease the dose, and eventually stop taking a medication that I believe bogus. So far, I see no difference in the pain and the darned TM symptoms. Good luck with the Elavil. R
Re: [TMIC] Amitriptyline
Botox is a paralytic,,will literally paralyze the bladder muscle..means I won't be able to pee without a catheter...but it's not like that's any different than now...just won't be incontinent all the time. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 7:19 PM, Alton Ryder wrote: Do you personally know that Botox is useful this way? I would expect Botox to weaken bladder spasms but not make them less frequent. Alton On Apr 26, 2010, at 1:00 PM, Laura Beaudin wrote: botox on my bladder to calm it down
Re: [TMIC] Honda Inovation
2-300? I doubt it...2-3000 would be more like it. Having said that, it would be awesome for people with mobitilty problems, but I also see it as another reason for people (without issues) to not walk and loose another form of exercise. I'm always asked why I don't use a power chair...umm...cuz my arms are fine and a power chair would be another reason not to get that vital exercise I'm getting now by pushing myself around. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org Carry your portable scooter with you Have a Blessed Day, Naomi Finally! The solution to my immobility! How long is the waiting list?? Stupid thing will probably cost two or three hundred Gary your portable scooter with you Attached Message From: David Latham da...@lathamfamily.com mailto:da...@lathamfamily.com To: Undisclosed-Recipient da...@lathamfamily.com mailto:da...@lathamfamily.com Subject:Honda Inovation Date: Mon, 26 Apr 2010 12:10:10 -0400 Check out this nifty gadget. http://www.youtube.com/watch?v=cuIJRsAuCHQfeature=youtu.be http://www.youtube.com/watch?v=cuIJRsAuCHQfeature=youtu.be
Re: [TMIC] Amitriptyline
I cath 5 times a day. every 4 hours during the day, and I can stretch it to 6 at night. I'm still constantly incontinent, but going more often has become a quality of life issue. My bladder constantly over-reacts no matter what I do..I'd have to do it every 2 hours to stay dry. The botox will take care of that...I hope Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org Laura, do you worry about the bladder stretching or would you set an alarm to get up during the nite to cath?I am assuming that you don't have enough feeling in the bladder to know when to go or to wake you up from sleep. Janice -- From: Laura Beaudin laura.beau...@gmail.com Sent: Monday, April 26, 2010 9:36 PM To: Alton Ryder a-ry...@comcast.net Cc: tmic list tmic-list@eskimo.com Subject: Re: [TMIC] Amitriptyline Botox is a paralytic,,will literally paralyze the bladder muscle..means I won't be able to pee without a catheter...but it's not like that's any different than now...just won't be incontinent all the time. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! Buying a used wheelchair? BUYER BEWARE!!! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 26/04/2010 7:19 PM, Alton Ryder wrote: Do you personally know that Botox is useful this way? I would expect Botox to weaken bladder spasms but not make them less frequent. Alton On Apr 26, 2010, at 1:00 PM, Laura Beaudin wrote: botox on my bladder to calm it down
Re: [TMIC] QUESTION ON LARNETON
Not necessarily. While I do believe that 99.8% of all cures out there are pure bunk, Big Pharma has a lot fo pull and they go out of their way to discredit anything natural. Do you know that there's an actual treatment that can almost cure CP if the chold is young enough? Pure oxygen in a hyperbaric chamber. There was a big study done in Quebec, but because no meds were needed, just oxygen, they pulled the plug on it. While it was a double-blind study, it wasn't hard to figure out who was getting O2 vs. air...kids who were completely immobile were walking and talking. My roomate was a student shadow and her student was in this trial, but on the placebo. Parents had to pay through the nose to go have it done in another province privately. So yes, there are sometimes cures that people don't know about because the pharma companies go out of their way to discredit and bash them so that people mistrust. My first question to myself is usually, can it hurt to try? If there's riskm, then yes, I'd be weary, but if it's something that wouldn't harm me regardless, bring it on. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 17/04/2010 11:53 AM, Grace M. wrote: Hello Sue, I've looked at the website and it appears to be just another snake oil cure. If there were a drug or herb that was guaranteed to treat myelitis and resolve symptoms, the medical community would have jumped on it. Respectfully, Grace
Re: [TMIC] shingles
How would your system over react? I'm usually the first to say no to vaccines, but where shingles are concerned, doesn't this become a quality of life issue? I'd probably risk another relapse over the idea of getting shingles. Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 14/03/2010 5:54 AM, lynne myers wrote: I have had Shingles twice since TM onset. Mine were only slightly painful and very itchy. My physicians will not give me the shingles vaccine, or any other vaccine for that matter. They fear it may make my immune system over react again. Lynne --- On *Sat, 3/13/10, bobby jim /elbobber...@earthlink.net/* wrote: From: bobby jim elbobber...@earthlink.net Subject: Re: [TMIC] shingles To: Jan Hargrove jmh1...@sbcglobal.net, Betty Shaffer vasso...@gmail.com, tmic-list@eskimo.com Date: Saturday, March 13, 2010, 7:51 PM They now have shingles vaccines. I've had one already. BobbyJim - Original Message - *From:* Jan Hargrove http://us.mc534.mail.yahoo.com/mc/compose?to=jmh1...@sbcglobal.net *To:* Betty Shaffer http://us.mc534.mail.yahoo.com/mc/compose?to=vasso...@gmail.com ; tmic-list@eskimo.com http://us.mc534.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com *Sent:* Saturday, March 13, 2010 13:20 *Subject:* Re: [TMIC] shingles I had shingles soon after the onset of tmnot uncommonluckily for me, the shingles were on my upper legs and bottom which were still totally numb!! janh *From:* Betty Shaffer vasso...@gmail.com http://us.mc534.mail.yahoo.com/mc/compose?to=vasso...@gmail.com *To:* tmic-list@eskimo.com http://us.mc534.mail.yahoo.com/mc/compose?to=tmic-l...@eskimo.com *Sent:* Sat, March 13, 2010 11:45:05 AM *Subject:* [TMIC] shingles Has anybody out there had shingles? If so, how did it affect you? The doctor was puzzled, saying my rash looked like shingles, but the pain description didn't sound typical. I have jolts of pain rather thanm deep, constant pain. The rash is on my waist. I wonder if T.M. makes things different. My face is quite flushed. After consulting another doctor who confirmed shingles, the first one prescribed medication. Betty in Oregon
Re: [TMIC] Re: Hope
But doesn't recurrent TM usually categorize someone as having MS or Devic's? I have lesions on my spine that caused the TM...but those lesions are there more than likely because of my MS...if I get new lesions (already have 2 on the spine..C6-7 and T10), then it is MS related in my case. Spasms can be nasty, but surgery is usually last resort (to clip tendons)has botox been tried? Laura You can easily judge the character of a man by how he treats those who can do nothing for him. -James D. Miles- http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: 10 Free or Inexpensive Homeschool Options http://www.practical-homeschooling.org On 14/03/2010 10:48 AM, Grace M. wrote: /It is very possible that she is suffering from recurrent TM, which is rare, but does happen especially in the context of diseases like NMO, Sjogren's, SLE. We don't have quite enough of her history to make any assumptions. As for her spasms, they appear to be tonic Not your usual run of the mill spasms. I have them and they are totally debilitating, and for me require huge doses of an anticonvulsant. (Tegretol 1500 mgs per day.) Before treatment with Tegretol, I couldn't be left alone. My heart goes out to her and I hope that she gets the needed funds, and finds relief./ // /Grace/
Re: [TMIC] MS
How can someone even claim this if they still aren't even sure what causes MS? A little putting the cart before the horse, no? What studies and clinical trials have been done? And what's the name of this pill? Laura http://www.bananga.com ...empowering ourselves! On Practical-Homeschooling: Resourcefulness http://www.practical-homeschooling.org View my photo albums: http://www.flickr.com/photos/khaleeka/ On 21/01/2010 2:21 PM, bgunny7...@aol.com wrote: Did anyone see Fox News today with a Dr. Steven Garner from New York Methodist Hospital. Apparently he has discover a new pill for treating MS that destroys the the cells that cause MS before they can do damage. That's all I got from the show, but you can find it on Fox News Network under health topics.
Re: [TMIC] sympom check question
TM is essentially a spinal cord injury, except it didn't result from an accident. When you have a car crash and you inju a small part of the spical cord...everything below tends to be affected...TM is no different. A lesion means that the electric signals are cut off (to varying degrees) at that point. I know that in our rehab hospital, we are looked at, and treated no differently than the SCI patients, except that we have a greater chance of recovery. Laura On Practical-Homeschooling: Free Unit Studies About Canada and China. http://www.practical-homeschooling.org On 09/01/2010 8:54 PM, L T CHERPESKI wrote: Janice, The spine map is great. But there is one thing to remember. My doctors explained this to me and I have seen it here in the literature that the TMA provides - anything from your lesion and BELOW is/can be affected. For instance, my lesions are up high in the cervical area, near my neck. Anything below my neck is affected - arms, hands, bladder (neurogenic bladder), spasms, balance, one leg can be worse than the other - true of so many of us TMers here on the site. You might ask those who were hit in the T-spine if this is true with their challenges. For the most part, are they ok ABOVE the T area? Good topic. Hopefully some will drop in and share their experiences. Linda - Original Message - *From:* Janice Nichols mailto:jan...@centurytel.net *To:* Gary Thomas mailto:gbthomas8...@sbcglobal.net ; pjv1...@chartermi.net mailto:pjv1...@chartermi.net ; randy rankin mailto:rj_ran...@yahoo.com ; Barbara H. mailto:barbara...@gmail.com *Cc:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Saturday, January 09, 2010 8:21 PM *Subject:* Re: [TMIC] sympom check question Gary, Thanks, but now I know, thanks to Gracie, about the spine map and I can refer to it any time you guys talk about your pain sites. Feels so good to be so smart! Janice -- From: Gary Thomas gbthomas8...@sbcglobal.net mailto:gbthomas8...@sbcglobal.net Sent: Saturday, January 09, 2010 7:43 PM To: pjv1...@chartermi.net mailto:pjv1...@chartermi.net; randy rankin rj_ran...@yahoo.com mailto:rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com mailto:barbara...@gmail.com; Janice Nichols jan...@centurytel.net mailto:jan...@centurytel.net Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question My MRI report says the lesion, if I understand it, is at C 5,6. Janice, you said not the # but that is what the report says and according to the map that looks to be about where I had the excruciating pain on 4/28/2004--a pain in the neck, literally! Gary in snowy, cold Michigan - Original Message - From: pjv1...@chartermi.net mailto:pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.com mailto:rj_ran...@yahoo.com; Barbara H. barbara...@gmail.com mailto:barbara...@gmail.com; Janice Nichols jan...@centurytel.net mailto:jan...@centurytel.net Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Sent: Saturday, January 09, 2010 1:20 PM Subject: Re: [TMIC] sympom check question Janice Nichols jan...@centurytel.net mailto:jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com mailto:tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com mailto:rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell
Re: [TMIC] Linda's recurrent TM
Hi Regina, There is also something called Devic's which is essentially MS, but only in the spine. Laura On Practical-Homeschooling: Free Unit Studies About Canada and China. http://www.practical-homeschooling.org On 07/01/2010 11:22 AM, Regina Rummel wrote: Linda, I don't like the sound of recurrent TM. Frank explained some time ago that one ocurrence is TM, the second one indicates MS. Perhaps I misunderstood. Did your doctor tell you that you had recurrent TM? How can we tell that we have it without an MRI? Caring for you, Linda and always hoping for good news. R
Re: [TMIC] nerve pain
9 months Laura On Practical-Homeschooling: Quick n’ Crafty Ornaments! http://www.practical-homeschooling.org On 26/12/2009 12:16 AM, Jim Lubin wrote: 20 years as of May 2009. At 06:22 PM 12/25/2009, Janice Nichols wrote: And how long have you had TM? Janice *From:* Jim Lubin mailto:jlu...@makoa.org *Sent:* Friday, December 25, 2009 1:10 AM *To:* Janice Nichols mailto:jan...@centurytel.net ; Laura Beaudin mailto:laura.beau...@gmail.com ; tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Subject:* Re: [TMIC] nerve pain I can not move, well except for my left hand now on occasion. I can feel touch everywhere, more on the left side of my body less on the right side, but not completely normal like on my face. I have notice I have started getting more normal feeling in my left hand the past few weeks. I am feeling the texture of the bed sheet now. I can not feel temperate. I have occasional nerve pain but not too often any more. Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org http://www.makoa.org/
Re: [TMIC] nerve pain
It's actually very rare for someone who deals with paralysis to have no pain. Pain and spasms are often the order of the day. Someone correct me if I'm wrong...There two types of nervous systems, the central nervous system and the peripheral nervous system. There are also four different types of sensation: light touch, hot, cold and acute sensations. While the connection might be broken to the brain, the peripheral system can still fire off signals...they just don't want to connect together. Most will actually have exaggerated reflexes. I'm a rare one...no reflexes, but still get spasms..I like to keep the doc on their feet :D You could stab me and I wouldn't react, but stroke me softly on the right foot and I'll go into spasms and I'll feel it without problem. Just the way it works sadly and pain will be an issue for many. Hope this answers at least part of your question. Laura On Practical-Homeschooling: Quick n’ Crafty Ornaments! http://www.practical-homeschooling.org On 24/12/2009 8:38 PM, Janice Nichols wrote: I am just curious, but when a person is paralyzed, where does the pain show up? Or does paralyzation only go so deep, not touching the nerves? I hate to sound so dumb, but just can't help it. Also, would neurontin be similar to Naltrexone? Janice -- From: Akua a...@artfarm.com Sent: Thursday, December 24, 2009 4:43 PM To: tmic-list@eskimo.com Subject: [TMIC] nerve pain at the risk of sounding like a broken record (gosh, only people of a certain age will get that metaphor) Naltrexone moved my daily dose of hell from a 9 out of 10 to a 1 to 3. I was down to to meds, now three: low dose naltrexone, nadolol ( blood pressure) and aspirin -- all TM related as TM left me paralyzed and in a wheelchair. Previously I had not a single health concern. --
Re: [TMIC] OT: sorry...
Hi Kevin, You are certainly not a bother! I do believe that this is why this list exists! To answer these types of questions and be a support to one another. I highly suggest you ask you doctor write a script to see a rehab nurse who can help you develop a bowel management routine. Not very pleasant I'm afraid, but it's guaranteed to work. Laura On Practical-Homeschooling: Girls will be Girls! http://www.practical-homeschooling.org On 23/12/2009 5:15 AM, Kevin Wolfthal wrote: Forgive me for bothering the board again. I have nowhere else to turn right now, and I know you have all experienced most everything. Along with my recent anxiety has come digestive problems. Getting to the bathroom has also become harder because my mobility is worse. I am getting a new wheelchair for that reason. Constipation and terrible gas. Of course, this makes my tm symptoms and anxiety worse. I tried prune juice which has helped before, not this time. Gas-X helps a little. I welcome all thoughts. Kevin
Re: [TMIC] OT Good news!
I find that in the city I live, a lot of people complain about the caregivers hired by the government for the homecare programs. I've had nothing but pleasant encounters with them...ok, except for the first team which I complained about and they are no longer dispatched here. I think a large problem is that people don't speak up when something is not up to par. They can't read our minds and new PCA's often need guidance to help them get their job to the way we like it. Good communication right from the beginning avoids trouble later on. Laura On 05/12/2009 2:04 PM, Kevin Wolfthal wrote: Well, I think the powers that be finally gave my Mom and me a break. I hired someone from Companions and Homemakers, and she just finished. She is WONDERFUL! Efficient, friendly, kind, and just a lovely person. She's coming back tomorrow and I hope this isn't too good to be true. Just when you give up hope in humanity.. Kevin
Re: [TMIC] OT: Companions and Homemakers
I'd start by checking with the BBB and local nursing homes to see what people have to say about them. Google them and the word review as well to see what is online about them. If they are local, be sure to enter your city and state into that search. Laura On 02/12/2009 2:38 PM, Kevin Wolfthal wrote: I am looking for a replacement for the couple who are supposed to be helping my Mother and me. I've been checking a business called 'Companions and Homemakers'. Is anyone familiat with them? Thanks, Kevin
Re: [TMIC] Question
Patti, I've ordered drugs before from overseas...heck, I lived overseas for 6 years and they have better drugs than here. Anyhow, I'm sure that if you had tried the US version of the same drug, you would have has the same effect. The problem isn't ordering drugs from overseas, it's from ordering drugs that your doctor hasn't prescribed for you. I'm on an anti-depressant not available here (available in the rest of the world). My doctor supports my taking it because that's the one my psychiatrist in the Middle East...who is Canadian, put me on and it worked better than anything they trialed me with here...so I order it in with their full support. Laura On 29/11/2009 9:20 AM, Patricia Cooley wrote: KEVIN BE CAREFUL. I ORDERED A DRUG FROM OVERSEAS WHEN I WAS DIAGNOISED WITH TM. IT DID A NUMBER ON MY LIVER. AS SOON AS I DISCONTINUED IT MY LIVER ENZYMES WENT BACK TO NORMAL. FORTUNATELY, THEY REFUNDED ALL MY MONEY BACK. PATTI - WISCONSIN *From:* alle...@aol.com [mailto:alle...@aol.com] *Sent:* Saturday, November 28, 2009 7:58 PM *To:* tmic-list@eskimo.com *Subject:* Re: [TMIC] Question In a message dated 11/28/2009 7:04:39 P.M. Eastern Standard Time, wolft...@optonline.net writes: I'm mainly wondering about the APLS/APS as I've never heard of them, and the Tramadol. Make sense to anyone? I don't know Kevin but before you do anything, I would ask my doctor and I would not order the drugs from overseas..Ella
Re: [TMIC]
I'm from Montreal and I haven't been there since 2001..I miss it so much! I wish I could go back, but now that I'm in the system in Alberta, changing provinces is next to impossible. Would mean waiting three months before I can access any medicare there, would have to give up my wheelchair (though I doubt they'd squeak too much about that one), I'd have to wait 3 months to apply for disability...too much of a pain. :( Frank, I used to study at Dawson...an excellent institution...too bad I can't say the same about the students. I know of students in chairs who'd literally have to roll over the toes of teens hanging out on the ramps. Laura...born in Howick...somewhere along the US border near Montreal. On 25/11/2009 8:12 PM, bobby jim wrote: And just where is that...??? My Montréal map isn't handy right now. Yep, we visited that city in March 1999 and stayed in a bb in the old part of town.Great city. That one and Vancouver... both great places. BobbyJim *From:* fr...@franksheldon.com mailto:fr...@franksheldon.com* **To:* Alton Ryder mailto:a-ry...@comcast.net ; TMIC mailto:tmic-list@eskimo.com *Sent:* Wednesday, November 25, 2009 11:14 *Subject:* Re: [TMIC] I am here in Montreal watching humanity stroll and drive by. My apartment looks on to Boulevard de Maisonnueve West, between Concordia University and Dawson College. Masses of college students are always strolling by, iPod buds plugged in their ears. What is weird is the couple holding hands but each person is listening to their own iPod. Take Care F
[TMIC] news of possible MS treatment
I'm sure that most of you have heard of the latest theory about MS and how it might be resolved by simply enlarging some other-wise narrow blood vessels. Do you think this has potential as far as TM is concerned? Laura
[TMIC] Interview about viruses and vaccinations
I highly recommend a look at these interviews with Dr. Rauni Leena Luukanen regarding viruses in the modern day. It's certainly an eye opener. Before writing her off as a quack-doctor, remember that she's Finland's highest medical officer, has three specialties, and has served as our equivalent of National Health Minister. In a way, it echoes a lot of what I've felt regarding some of these vaccines, but she takes it a step further. http://www.youtube.com/watch?v=1wgJTds1QUIfeature=related http://www.youtube.com/watch?v=1wgJTds1QUIfeature=related
Re: [TMIC] Topamax
I don't understand how most hospitals do their MRIs in 2 hours (give or take), but the most time I've ever spent in one is 30 minutes..and that's when I did it with and without contrast...? Laura On 12/11/2009 7:35 PM, Laurie Zissimos wrote: Had my annual evaluation with Dr Kerr yesterday after a 2+ hour MRI. The MRI preliminary report says there is no evidence for abnormal cord signal to suggest transverse myelitis. I was blown away to learn that the myelin had all regrown after 4 years. Of course, I still can't walk without a walker and that is only for ten minutes. Then I revert to the wheel chair. I assume now all I need if for the nerves to reconnect, lol. I would be happy to receive comments on this report as I am still baffled about the myelin. I thought the loss of myelin was the cause of the paralysis. Dr Kerr also recommended that I start taking Topamax because I complained about the weight gain associated with the Lyrica. The side effects are kind of scarey. I wondered who was taking it and what their experience had been. Looking forward to all responses. Laurie in Baltimore -Original Message- From: Amanda Diskey adis...@yahoo.com To: tmic-list@eskimo.com Sent: Thu, Nov 12, 2009 3:14 pm Subject: [TMIC] Fw: chiropractor - Forwarded Message *From:* Amanda Diskey adis...@yahoo.com mailto:adis...@yahoo.com *To:* tmic-list@eskimo.com mailto:tmic-list@eskimo.com *Sent:* Thu, November 12, 2009 3:14:13 PM *Subject:* chiropractor Does anyone here use a chiropractor or know if it is safe? My shoulders and neck hurt so bad, and I was wondering if it might help me. the lady i talked to also does massage which i will definitely do, but i was wondering about the getting adjusted part. it seems a little scary to me though. any advice or thoughts? thanks amanda
Re: [TMIC] speech recognition software
Hi Amanda, Do you have much background noise when you're using the software? Laura On Fri, Oct 30, 2009 at 12:03 PM, Amanda Diskey adis...@yahoo.com wrote: hey everyone! anyone use the speech recognition on vista? it has been a real pain from what i can tell, cuz i am ready to throw my laptop in the floor! i been going through the training sessions on here but the piece of crap doesn't want to act right! maybe my microphone isn't good enough, or i am speaking wrong, or maybe just maybe vista sucks! anyway, if anyone could offer any advice i am all ears thanks amanda -- Laura Them be Fightin' Words! Halloween Mini Unit-Study http://practical-homeschooling.org 15 Provocative Anti-Smoking Ads (warning: some are graphic) Today's feature: 8 Creative Cat Beds www.laurascoolstuff.com Personal Development for Lazy People: Physical Symptoms of Obesity: it CAN be inherited http://www.laurabeaudin.com
Re: [TMIC] Fwd: Fw: cell phone numbers go public this month
There's been a problem in Canada...it seems those that put themselves on the canadian list ended up getting MORE calls...from telemarketers in the states! (there's some kind of legalloophole). Laura On Wed, Oct 28, 2009 at 8:50 PM, Krissy tmla...@yahoo.com wrote: i have been on the do not call list for years with my home and cell phonesnever had issues with telemarketers.. -- Laura Them be Fightin' Words! Halloween Mini Unit-Study http://practical-homeschooling.org 15 Provocative Anti-Smoking Ads (warning: some are graphic) Today's feature: 8 Creative Cat Beds www.laurascoolstuff.com Personal Development for Lazy People: Physical Symptoms of Obesity: it CAN be inherited http://www.laurabeaudin.com
Re: [TMIC] HAPPY BIRTHDAY JIM!
Jim's birthday? *HAPPY BIRTHDAY!* How goes the hand?? Laura On Tue, Oct 27, 2009 at 6:43 PM, L T CHERPESKI cherp...@msn.com wrote: HOPE YOU HAD A GREAT BIRTHDAY, JIM!!! - Original Message - *From:* Akua a...@artfarm.com *To:* tmic-list@eskimo.com *Sent:* Tuesday, October 27, 2009 6:01 PM *Subject:* [TMIC] HAPPY BIRTHDAY JIM! HAPPY BIRTHDAY JIM! -- -- Laura Them be Fightin' Words! Halloween Mini Unit-Study http://practical-homeschooling.org 15 Provocative Anti-Smoking Ads (warning: some are graphic) Today's feature: 8 Creative Cat Beds www.laurascoolstuff.com Personal Development for Lazy People: Physical Symptoms of Obesity: it CAN be inherited http://www.laurabeaudin.com
[TMIC] Invitation to connect on LinkedIn
LinkedIn Laura Beaudin requested to add you as a connection on LinkedIn: -- Kevin, I'd like to add you to my professional network on LinkedIn. - Laura Accept invitation from Laura Beaudin http://www.linkedin.com/e/3Hy25JT5fhtKUL-WKbDw5pS3xV-xiC4_/blk/I396053746_3/6lColZJrmZznQNdhjRQnOpBtn9QfmhBt71BoSd1p65Lr6lOfPdvdzgTcPkMdzAPiiZMmzxNj497riYOe34MdzgVcjwLrCBxbOYWrSlI/EML_comm_afe/ View invitation from Laura Beaudin http://www.linkedin.com/e/3Hy25JT5fhtKUL-WKbDw5pS3xV-xiC4_/blk/I396053746_3/0PnPoQdPcRc3oVcQALqnpPbOYWrSlI/svi/ -- DID YOU KNOW LinkedIn can help you find the right service providers using recommendations from your trusted network? Using LinkedIn Services, you can take the risky guesswork out of selecting service providers by reading the recommendations of credible, trustworthy members of your network. http://www.linkedin.com/e/svp/inv-25/ -- (c) 2009, LinkedIn Corporation
Re: [TMIC] Invitation to connect on LinkedIn
Sorry guys, this went out by accident. On Sun, Oct 25, 2009 at 6:56 PM, Laura Beaudin laura.beau...@gmail.comwrote: LinkedIn Laura Beaudin requested to add you as a connection on LinkedIn: Kevin, -- Laura Them be Fightin' Words! Halloween Mini Unit-Study http://practical-homeschooling.org 15 Provocative Anti-Smoking Ads (warning: some are graphic) Today's feature: 8 Creative Cat Beds www.laurascoolstuff.com Personal Development for Lazy People: Physical Symptoms of Obesity: it CAN be inherited http://www.laurabeaudin.com
[TMIC] request to post a people-needed request
I am recruiting people to get involved at administering my new webpage for people with disabilities or chronic medical conditions. WOuld the admins mind if I posted it here? Thanks -- Laura 40 Free Field Trip Ideas! http://practical-homeschooling.org Like cool stuff??? Today's feature: Bullet-proof school gear. www.laurascoolstuff.com
[TMIC] Looking for some motivated peeps!
Might help if I attached the message *blush* Join BANANGA! Do you have a chronic medical condition or a disability? Would you like to be part of a dynamic team to help people empower themselves? If so, consider applying for a position to join Bananga. We are a brand new site getting ready for our January launch and need you to help us prepare and start off with a bang! We are working as a team on a volunteer basis at first, and as moneys come in, it will be divided among those who are helping to run the site. That means that the more we work as a team and accomplish our tasks, the more income we bring in for all of us. All positions are telecommuting (work-at-home) positions. You will need a computer, reliable Internet connection and a PayPal account. You must speak fluent English and be willing to learn on the job. This is not a full time job, expected participation is about 10-15 hours/week until we launch, then it will probably either stay around there or go down a bit. Those of you who join in now will make part of our managing and administrative team of what promises to be a great success. So far, people who have reviewed the project plan believe that the idea is truly innovative and has the potential to become a great success! Positions available: · Team Leaders · Medical experts · Web Designers (well-versed in Joomla) · SEO specialist · Social Networking Specialist · Advertising director · Blogger liaison · Section Publishers · Content writers · Regional Guides · Social media specialist · Site promotions director · Psychologist or psychology student Initial participation is on a volunteer basis with all involved getting compensation as income becomes available. Please send resume to laura.beau...@gmail.com with ‘Bananga’ in the subject line. -- Laura 23 Homeschool Must-Haves! http://practical-homeschooling.org Like cool stuff??? Today's feature: Origami Shoes www.laurascoolstuff.com
[TMIC] OT any geeks out there?
Need math/physics geek. I know this is off topic, but I'm hoping that SOMEONE out there can help me. I'm putting up a website for people with disabilities and the template I have requires me to calculate the arc of the images (they have been cropped along an arc) so that I can paste new ones in without ruining the flash animation. Alternatively, anyone familiar enough with flash? -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka
Re: [TMIC] Looking for TMr's for support groups
...and I'm Laura from Edmonton, Alberta. :) On Sun, Sep 13, 2009 at 7:25 PM, Catherine camoa...@yahoo.com wrote: Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass.
Re: [TMIC] Fwd: Bowel Question
Thanks Catherine, I've decided to try the raw vegan diet for 30 days to see if I can manage it. If so, I hope to try coming off many of my meds, or at least cutting back. This will naturally push me to intake much more fiber, which will get things moving...now if I can sprout a longer arm, I can ditch the nurse... Laura On Tue, Sep 1, 2009 at 12:29 PM, Catherinecamoa...@yahoo.com wrote: Laura, I too find that the flaxseed capsules work, I take 3 daily and things seem to flow. Flaxseed is good for you. http://www.webmd.com/diet/features/benefits-of-flaxseed Catherine From: Patricia Cooley patticoo...@wi.rr.com To: Laura Beaudin laura.beau...@gmail.com; Laurie Zissimos lziss...@aol.com Cc: tmic-list@eskimo.com Sent: Monday, August 31, 2009 10:42:51 AM Subject: RE: [TMIC] Fwd: Bowel Question I ALSO HAVE BLADDER AND BOWEL ISSUES. THINGS MOVE DOWN ON THEIR OWN, BUT THEN AFTER THAT I HAVE NO CONTROL. I HAVE BEEN USING DIGITAL REMOVAL AND IT SEEMS TO WORK FINE. I ALMOST ALWAYS HAVE A MOVEMENT WHEN I SIT DOWN TO URNINATE. I WAS TAKING STOOL SOFTENERS FOR SEVERAL DAYS AND THEN GIVE MY BODY A REST. LATELY I HAVE BEEN TAKING 3 CAPSULES OF FLAXSEED OIL WITH OMEGA 3 AND ONE ACIDOPHILUS TABLETS. SINCE TAKING THE ACIDOFLUS EACH MORNING, I NO LONGER NEED THE STOOL SOFTTENERS AND HAVE A MOVEMENT EACH DAY, AND SOMETIMES MORE. I KNOW WE ARE ALL DIFFERENT AND THINGS DON'T WORK THE SAME FOR EACH OF US, BUT IT IS WORTH A TRY. GOOD LUCK PATTI IN WISCONSIN -Original Message- From: Laura Beaudin [mailto:laura.beau...@gmail.com] Sent: Sunday, August 30, 2009 7:16 PM To: Laurie Zissimos Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Bowel Question Laurie... How have things gone since stopping those meds? I'm on a bowel routine...I don't have much control. Without a suppository, things don't move when I need them to...which is when the nurse shows up to help me. WIthout it, I'd go..but it would be incontinence...not where it needs to go. BTW..this replying automatically to sender instead of the list is very frustrating! Frank...your reply went to me instead of the list. Laura On Sun, Aug 30, 2009 at 3:08 PM, Laurie Zissimoslziss...@aol.com wrote: I'm 52 and I have had TM for 3.5 years. I'm a T-10 (originally a T-7) and with intense PT, I have been able to regain 70% functionality. I get around with a walker in the house and for short jaunts like a doctors appt or a restaurant. For longer journey's I have to use the wheel chair. I am on Lyrica for the pain and Ditropan XL for bladder control. I have tried stool softeners, laxatives, fiber, Miralax and Calm Cure. Last week I stopped all of it because I felt I was taking too much medicine and wasn't getting the right results. Hope that helps. Laurie in Baltimore -Original Message- From: fr...@franksheldon.com fr...@franksheldon.com To: Laurie Zissimos lziss...@aol.com; tmic-list@eskimo.com Sent: Sun, Aug 30, 2009 4:55 pm Subject: Re: [TMIC] Fwd: Bowel Question I feel the need to have a bowel movement each time I stand up. Verry Interesting !! I usually get that feeling when I sit down. Are you regular? What meds are you using for your intestines and bowels now? How old are you? Do you enjoy italian food? Excuse Me, I know better, but get asking questions and have trouble stopping whether I'm sitting or standing. Maybe you should see your local medical doctor, and have a rectal exam and stool examination for blood. TTFN pHranq3ue -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka
Re: [TMIC] Swine flu vaccine
...But TM and MS are not because of an immunodeficiency..the problem is that the immune system is TOO strong and attacking itself. I rarely get sick and even after 5 months of full-time cathing, I've yet to get a UTI-though I use the clean method, not sterile. Laura Sent on the TELUS Mobility network with BlackBerry -Original Message- From: Janice jan...@centurytel.net Date: Tue, 1 Sep 2009 21:43:46 To: Regina Rummelregina...@sbcglobal.net; tmic-list@eskimo.com Subject: Re: [TMIC] Swine flu vaccine I thought that they were encouraging those with autoimmune deficiencies to get the shot.I was not in on the discussions a few years ago.My doc made sure that I had my flu shots the last couple of years - he believes in them for TM. Janice - Original Message - From: Regina Rummel To: tmic-list@eskimo.com Sent: Tuesday, September 01, 2009 9:30 AM Subject: [TMIC] Swine flu vaccine Good morning everybody, There was a lot of discussion in our group regarding vaccines a couple of years ago. It had been suggested that among other things, TM could be caused by the flu, a virus, whatever. Some of us were convinced of that and refused to take the vaccine. I haven't had one in four years. Others felt having checked with their doctors that we should have it and continued to get it. Question: What's going to happen now with the flu vaccine? Will some of us still be ambivalent? R
Re: [TMIC] Fwd: Bowel Question
Laurie... How have things gone since stopping those meds? I'm on a bowel routine...I don't have much control. Without a suppository, things don't move when I need them to...which is when the nurse shows up to help me. WIthout it, I'd go..but it would be incontinence...not where it needs to go. BTW..this replying automatically to sender instead of the list is very frustrating! Frank...your reply went to me instead of the list. Laura On Sun, Aug 30, 2009 at 3:08 PM, Laurie Zissimoslziss...@aol.com wrote: I'm 52 and I have had TM for 3.5 years. I'm a T-10 (originally a T-7) and with intense PT, I have been able to regain 70% functionality. I get around with a walker in the house and for short jaunts like a doctors appt or a restaurant. For longer journey's I have to use the wheel chair. I am on Lyrica for the pain and Ditropan XL for bladder control. I have tried stool softeners, laxatives, fiber, Miralax and Calm Cure. Last week I stopped all of it because I felt I was taking too much medicine and wasn't getting the right results. Hope that helps. Laurie in Baltimore -Original Message- From: fr...@franksheldon.com fr...@franksheldon.com To: Laurie Zissimos lziss...@aol.com; tmic-list@eskimo.com Sent: Sun, Aug 30, 2009 4:55 pm Subject: Re: [TMIC] Fwd: Bowel Question I feel the need to have a bowel movement each time I stand up. Verry Interesting !! I usually get that feeling when I sit down. Are you regular? What meds are you using for your intestines and bowels now? How old are you? Do you enjoy italian food? Excuse Me, I know better, but get asking questions and have trouble stopping whether I'm sitting or standing. Maybe you should see your local medical doctor, and have a rectal exam and stool examination for blood. TTFN pHranq3ue -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka
[TMIC] TM and MS + carecure.org problem
Hi, I recently joined this list and am happy to have found it. I've had MS symptoms since I was 17 and was diagnosed with MS several years ago (I'm 31). I started getting severe back spasms in March, along with other relapse symptoms, so after emailing my neuro for his input, decided to go to the ER for pain management and steroids. I walked in and never walked since. TM is the cause and I'm wondering if many of you have MS and what kind of recovery you have had? I've had total paraparesis since with no recovery and am pass the three month mark, which kinda depresses me. I was discharged a month ago and am frustrated with life in a wheelchair, especially as a newly-single mother with two preschoolers. I also wanted to ask if someone has a connection with carecure.org (which is where I found out about this list, I believe). I've been trying to register and there's a problem with their captcha software...so I can't even contact them via email about it, since their contact form uses the same software. Could someone kindly contact an admin and ask them to contact me at my email? (laura.beau...@gmail.com). It looks like an awesome site, but I'd rather get the chance to participate. Cheers! Laura -- Laura http://practical-homeschooling.org http://www.flickr.com/photos/khaleeka
