I am here, yes.
Janet
From:
Janice Nichols [mailto:jan...@centurytel.net]
Sent: Thursday, May 2, 2013 3:47 PM
To: heyjude48...@aol.com; tmic-list@eskimo.com
Subject: Re:
I woke up one morning in late August 2004 and my right leg was
tingling and numb, like I had a muscle knot. I went to the
chiropractor, the massage therapist, and the rolfer - and none of
them could change the feeling. The numbness increased, as did the
banding (now I
42 BC Canada
Janet
attachment: j_dunn.vcf
Title: AOL Email
II was on Lyrica for many years - and
it works great. I cold turkey quit taking it in November. Since
then I have been getting by on Oxycontin, or Oxycodone, sometimes
both. However - when the burning pain and the numbness and
whatnot gets too
I haven't actually thought about the answer to this question -
because like many of you - it has the potential to make me angry,
depressed, frustrated, and the list goes on. I am one of the
walking wounded - I can and do work, some weeks 38 hours and others
20
Jude - I am truly sorry to learn about Dave.
Your question was on stress and TM and how it affects one.
I have found that any, repeat, any amount of stress sends me up and
over the edge, around the bend, bonkers, psycho, or whatever you
wish to call it.
Um, Jude . . .
May the God you worship lighten your load, that you may still
carry on, without being broken. For with His help - we can all
manage.
On 22/01/2013 11:19 PM, Janet Dunn wrote:
Jude - I am truly sorry to learn about
The last neuro that I went to told me
that when you are not living a good life, then God will afflict
you. When you straighten up your life and live the way you are
supposed to, a way that is pleasing to God, then He will stop the
affliction. He told me to go
I love this list, and although I am a
FB person, I agree with Dalton - who cares about Lisa's Comment on
Fred's Comment on Alice updating her profile pic.
I prefer the community on this list.
Thanks for hanging in, hanging around, and hanging on!
I agree with James - Susan you have a beautiful book there, and I
am glad I asked for one. Thank you.
Janet
On 21/08/2012 11:50 PM, James Berg wrote:
To those of you who did not take Susan up on her off, you
made a great
Hello All
Today I was speaking with a lady who has intense nerve pain from
some kind of knee or leg injury. She said she was getting cold
laser treatments and that the treatments really helped. She was
thinking that perhaps they would work for the
Hello Everyone - not sure who is on here
anymore.
I have written in before, several times in fact, bemoaning the
issues that I have with the cold cold winters that we get up here
in northeastern BC.
Now, it is the heat. My question is this:
Hello Carol
My neurologist told me that I had an attack of transverse myelitis
that damaged my spinal cord, and now I am dealing with the residual
damage. In that case, it is like polio. I think that when we have
flareups then we have "myelitis" which is an
Hello
Hey Jim
I want to know more about this Pharmacy.
Share your knowledge, PLEASE. My pins and needles and burning and neuropathy
has magnified 300 percent since I have this hemangioma growing from T4-T11.
Makes me go totally INSANE with pain. Lyrica does help a bit, or else it
Hi
I finally understand the increase in intenseness with the wrong material.
Since this hemangioma – man oh man. I wear sweatpants to work, heavy flannel
at home, and last night I put on a pair of light flannel. OMG – I just about
hit the roof!
Shoes – yes sirree. I am going to look
Constitutional Homeopathy will work - but it has to be constitutional. If
you can find a great constitutional homeopath then you are set. TM is way
too serious of a disease to try to cure it with homeopathy on its own.
For ex. The homeopathic preparation of St. Johns Wort - Hypericum - is for
...@chartermi.net]
Sent: December 16, 2011 8:25 PM
To: Janet Dunn
Cc: 'Janice Nichols'; 'TMIC'; tmic-l...@eskimo.net
Subject: RE: [TMIC] New MRI results
Janet,
Can the hemangioma be lazered or disolved in some way? we had a young lady in
TMIC about eight years ago who was diagnosed with TM and had all
A hemangioma is:
A.D.A.M. Medical Encyclopedia.
Hemangioma
Cavernous hemangioma; Strawberry nevus
Last reviewed: October 10, 2010.
A hemangioma is an abnormal buildup of blood vessels in the skin or internal
organs.
Causes, incidence, and risk factors
About 30% of hemangiomas are
with a
vengeance – way worse than before and it feels like I am always stepping on a
sizzling cord.
The banding is back – and I am not happy about the hemangioma.
Janet
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: December 15, 2011 4:28 PM
To: Janet Dunn; 'TMIC'; tmic-l
or not, there is definitely a
physical significance, and I really don't care for it!
Thanks for listening - that is why I love this list, and the people on
it.
Janet Dunn
Fort St John BC
for sharing.
Janet
From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: December 14, 2011 5:26 AM
To: Janet Dunn; 'TMIC'; tmic-l...@eskimo.net
Subject: Re: [TMIC] New MRI results
I think there is something in common with my own situation;
In 1970 I fell while working as a lineman and broke
I agree with Todd. The fatigue - it is awful. One day at a time. Today
all I did was drive 2.5 hrs to a bigger city, and then turned around and
attempted to drive home. Fell asleep with my eyes wide open, so I pulled
into a Wal Mart parking lot, and slept. One day at a time. Stress = more
Hi to all
I am not a dr or a nurse. I am only operating on some common sense.
1.Vaccines are very useful in certain situations
2.Shingles are painful
3. Vaccines stimulate the immune system
4. TM is a result of many things, including the immune system going
Hi Candis
I would be interested to know how that works for you.
At the health food store where I work we have always sold it as an aphrodisiac
. Which, I guess if it worked like that, it would take care of depression,
blood sugar issues, and calm your nerves.
Damiana has plant
My feet burn too, in fact, lately I cannot dry the bottoms of them with a
towel as it causes a very uncomfortable feeling. I do know that since I
have been taking 150mg of Lyrica 2x a day, the burning is not so bad. They
are just cold all the time. Even when it is smokin hot outside, the feet,
Yes, I used to feel that way, I really did. However, I took about 3 years
of Rolfing and or Massage Therapy treatments - and some of them were very
painful. That really helped my legs feel and work better. In fact, I
attribute my current ability to walk very well most days to all of the
Hello to all
I find it very interesting the number of us that are on or have taken
hydrocodone, especially when it is said that opoids do not help with the
pain of TM
For me personally, I wouldn't make it if I didn't have a member or two of
the hydrocodone family in my drug repertoire. I
Hello to all;
I have listened in on the whole conversation about Mag Phos, as we call it
in the alternative medicine world.
There are several different strengths of Mag Phos, and then there is the
tissue salt.
Dalton: what strength were you taking? If you were taking 6x, then that
phos
did the right thing in the situation. The dosage is what I am curious about
- 30C 6x etc.
Thank you for sharing your experience with us. It does help me in my
professional life.
Janet
From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: September 3, 2010 4:06 AM
To: Janet Dunn
Hi Regina
6x is the tissue salt - if you choose to do that, follow the directions on the
bottle - which should say 4 pellets, 4 times a day, under the tongue. However,
if you dissolve them in a little hot water and sip it, the effect is faster.
Works great for leg cramps, menstrual cramps
Yes, I have chronic low hemoglobin counts - I was told that a chronic
illness like this will lead to anemia. That and the monthly period does me
in. I have to supplement with iron just to keep my hemoglobin in the low
normal range. It usually runs at 117 with gusts to 124. I can tell when my
Hey John, Randy,
I've been there too. Besides Percodan and Baclofen, I also use a good
healthy dose of Magnesium Citrate. About 400 - 500 mgs - it is a natural
muscle relaxant. And it helps with the sleep issue.
Gotta love TM. Gotta. NOT!
Janet
From: randy rankin
I know the heat is tough on us with TM, what weather isnt? But . . . I
much prefer the heat to the cold. Of course where I live it doesnt get
that hot, only around 29 Celcius, and I am sorry to my American friends but
I am not sure how much that is in Farenheit. Perhaps around 85? Heather
I too have a very caring boss. And I am in the same position: Worse days -
bed - maybe not in fetal position, but curled up somewhat. Bad days - off
to work, hoping I don't make a huge mistake that buggers the whole company.
I have noticed though, that my ability to drive long distances (
One of the very important things to take note of is that often - for
disinfecting purposes - it is not the 3 percent off the shelf H202 that is
being used. It is the 35 percent food grade that is used for hot tubs,
cutting boards etc. You dilute it down, but not to 3%. 35% burns burns
burns!
Welcome to our group, sorry you had to find us! Heat will affect some of
us, won't affect others. Cold affects some, not others. TM should stand
for Totally Miscellaneous because all symptoms vary, except for usually the
banding and the pain.
Janet Injured at T4 - T5
From: Rev. Craig
Hello Rebecca.
I am taking 10mg of Baclofen. Only on an as needed basis - when I feel my
legs stiffen and want to cramp or jerk. So I sometimes take it 3 times a
day ( I was told that was the max I could take ) and sometimes I take it
once a day, and sometimes I don't take it. My son,
wouldn't be repaired and after 14½ years
I'm a believer!!
I was warned not to stay out in heat for long periods as heat stroke is
possible when your whole body can't sweator as a lady, perspire!!
janh
From: Janet Dunn j.d...@shaw.ca
To: Janice Nichols jan
Hi Janice
About the sweats: I had them so bad that they would make me sick to my
stomach, ready to pass out. I found that the heat could not go down, it
could only go up - I mean from the waist up. I thought it was medication
reactions, I thought maybe my kidneys were acting up. Then I
Try www.emofree.com
From: Amanda Diskey [mailto:adis...@yahoo.com]
Sent: June 5, 2010 8:30 AM
To: Janet Dunn; tmic-list@eskimo.com
Subject: Re: [TMIC] EFT
what is EFT, and what does it do?
_
From: Janet Dunn j.d...@shaw.ca
To: Akua a...@artfarm.com; tmic-list@eskimo.com
: Amanda Diskey [mailto:adis...@yahoo.com]
Sent: June 5, 2010 8:30 AM
To: Janet Dunn; tmic-list@eskimo.com
Subject: Re: [TMIC] EFT
what is EFT, and what does it do?
_
From: Janet Dunn j.d...@shaw.ca
To: Akua a...@artfarm.com; tmic-list@eskimo.com; tmic-l...@eskimo.net
Sent: Fri, June
Ah, yes sir. When I am in an emotionally charged situation, that is the
first sign. And if it happens to be when I am in a vehicle, it gets worse.
Interesting. The other time the banding is really bad is after I eat.
Should be a good way to diet, but unfortunately it isn't!!!
Janet
Yes, I have used / tried EFT. It is a very interesting concept. I believe
it works,
Janet
-Original Message-
From: Akua [mailto:a...@artfarm.com]
Sent: June 4, 2010 9:30 PM
To: tmic-list@eskimo.com
Subject: [TMIC] EFT
Has anyone used or tried EFT?
--
What I am really wondering is if one ever really gets to the point of
accepting this thing? It has almost been six years (August) and daily I
have to decide whether to get up and work with it, fight it, or give into
it.
Most of the time I fight it. Working with it would make my life easier
Hi Again
Jeron, I am really jealous now. You are in the Caribbean, and you, Dalton,
appear to be in Abu Dhabi, both places are warm. Here it is 0 degrees
Celsius, and it is snowing, and it is supposed to snow all night up to 10
cms. That sucks. Big time.
So, continue to share those
From: Pieter and Heather [mailto:pieterheat...@shaw.ca]
Sent: May 18, 2010 10:09 AM
To: Janet Dunn; 'Robert Pall'; tmic-l...@eskimo.net
Subject: Re: [TMIC] Neurontin
Janet,
How did your son make out at the doctors? Are they going to be putting him
on some meds to help with his pain
Hi Rob.
I couldn't take neurontin. I am on Lyrica, have been for four years now.
75 mg a.m. and 150 mg p.m. It has virtually stopped the banding, and the
burning in the feet. I am actually going to lower the dosage to 75 twice a
day. However, that has been delayed because of my inability
Hi All
I am not sure about the States, but here in BC the Medical Marijuana that I
was on was in pill form. Did nothing. Cranked up the dose, did nothing.
Cost me a darn pretty penny too - $700.00 for a one month supply. I would
have been better off to talk to my son's friends, paid my
I was on cesamet.
Janet
From: fr...@franksheldon.com [mailto:fr...@franksheldon.com]
Sent: May 17, 2010 1:07 PM
To: Janet Dunn; 'Janice Nichols'; 'Robert Pall'; tmic-l...@eskimo.net
Subject: Re: [TMIC]I tried Marinol too
Marinol didn't work,
Then I travelled to Montreal
Cesamet was the medical marijuana that I was on - and it did nothing.
Except cost me money.
Janet
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: May 17, 2010 8:55 PM
To: Janet Dunn; fr...@franksheldon.com; 'Robert Pall'; tmic-l...@eskimo.net
Subject: Re: [TMIC]I tried Marinol
has some experience with TM.
I am hanging in, and he, of course, is being tough.
Thanks for the email.
Janet
From: rn11...@yahoo.com [mailto:rn11...@yahoo.com]
Sent: May 6, 2010 4:25 PM
To: Janet Dunn
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] My Son
Janet,
I'm so
Different for everyone I see. Neurontin made me swell up. I am on Lyrica.
75mg a.m. 150 mg p.m. Sure has helped the banding and burning.
Janet
From: Janice Nichols [mailto:jan...@centurytel.net]
Sent: April 17, 2010 8:25 PM
To: Jill Posner; Neil McNeil; we4king...@verizon.net;
Janice, I am not sure that he helps so much with the disease itself, but if the
rest of your body is in alignment it helps you move better, properly, and takes
a lot of pressure and pain away that otherwise would be there. I actually see
my chiropractor very rarely, because for me, I find that
OK, then, all you “sweat ers” out there. Especially you women – how do you
handle the hot flashes with menopause and peri menopause. I find that they are
not flashes, but freakin tropical heat waves. I cannot sweat below the waist,
so the heat does not go throughout the body, but is trapped
Hi Rob, and TM Family
Oh, yes, the weather gets me every time. I live in northeaster BC. Our
elevation is 2274 feet. I can tell the weather is changing 3 days before
hand! The actual day of the weather change is the worst for me. Banding,
pain, pins and needles, and it usually lasts
Hey Frank
Are you reading the book on HAARP – that’ll give you what you need to change
the weather. The government does it all the time. J
J
From: fr...@franksheldon.com [mailto:fr...@franksheldon.com]
Sent: March 30, 2010 7:56 AM
To: kevin weilacher; Robert Pall; Transverse
Ok, Janice, first day of spring or not, it is freakin cold here this
morning. Minus eleven, with the wind-chill bringing it to -23C. And it is
windy! An inside day for me for sure, I had planned on going fishing -
yesterday it was beautiful and warm. So today with the cold, my legs are
It is very difficult to work and cope with the ongoing symptoms of the
original attack. I am lucky in that I have an employer who makes generous
allowances for me. Like today - I actually came home early for a nap. I am
very lucky, and very thankful.
Janet
I am trained as a Nutritional Consultant, and I work at the local Healthfood
store. I am a licensed practitioner. However, since the TM attack, I have
a very difficult time being on the floor, consulting with customers so I
have moved to the office, where I do the invoices, and special orders.
I think that the improvement happens. For everybody? Depends. I have
found a few improvements in areas, and some worsening in other areas. I
take it one day at a time, because as we all know, anything can and usually
does happen. But I drag my leg less now, and the intense banding eases up
YES
The pain has been intolerable. I am so discouraged by the constant dull
ache, the burning and stabbing torso band, and the weakness in my legs.
And the cold (-20 C / -30C) is way overboard. I'm heading to Hawaii, or
Puerto Rico like BobbyJim suggested! Enough of cold northern
OMG Nerve Pain.
Yikes. I get it in the banding around my torso. Down my right leg, on the
outside, from the top of the hip to the bottom of the foot, and some on the
left foot too, but not nearly as bad.
It gets bad enough that I want to check out some times. I have found that
lyrica
Hey Janice
I was 41
Janet
- Original Message -
From: Janice Nichols mailto:jan...@centurytel.net
To: tmic-list@eskimo.com
Sent: Thursday, December 10, 2009 10:35 PM
Subject: [TMIC] Age
Hey!
I have a request. I was talking to my neuro and he was curious to know
Hello
I have always used a chiropractor. I used to take my kids to the
chiropractor when they had ear infections and he would adjust their necks,
and the ear infection would clear up.
The chiropractor was my first appointment after my legs went numb. I
totally trust my chiropractor.
This is a very powerful antioxidant.
From: Regina Rummel [mailto:regina...@sbcglobal.net]
Sent: October 24, 2009 9:00 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Alpha Lipoic Acid
My doctor suggested I take alpha lipoic acid.
Anyone in the group taking it?
I had never heard of it and
I'm Janet
Fort St John BC
Canada
-Original Message-
From: Laura Beaudin [mailto:laura.beau...@gmail.com]
Sent: September 13, 2009 6:30 PM
To: Catherine
Cc: kevin weilacher; Transverse Mylitis Group
Subject: Re: [TMIC] Looking for TMr's for support groups
...and I'm Laura from
Do you mean, with the BM'ers Club, that there are no embar ass ing
questions? Very tongue in cheek.
Janet
From: Patricia Cooley [mailto:patticoo...@wi.rr.com]
Sent: September 8, 2009 6:53 AM
To: 'Janice'; fr...@franksheldon.com
Cc: tmic-l...@eskimo.net
Subject: RE: [TMIC] BM'ers Club
Hi
I just have TM. Ha, just have. What a thing to say. I have TM. And I
have no evidence of MS or anything else. And the banding has been helped by
lyrica. But the burning/razor blade feeling has not been helped. And my
legs ache. Like chewing on a piece of tinfoil ache. All the time.
Hey Jeanne
When you say that the pain starts worsening at T4 (which is where mine is)
and you know the rest is coming, what do you mean by that? I am finding
lately that the fatigue is awful. I spent yesterday morning garage saleing,
and then the afternoon was naptime. Today, I could hardly
OH Cody
How you have made my day. And all this time I have denied myself the
pleasure of a tall cold one.
God Bless Ya, I am a happy camper to hear this news.
Janet
TIAD but I've got today to get through.
From: Cody [mailto:c...@austin.rr.com]
Sent: June 17, 2009 4:41
Hi
TM @ T4-5
I have the banding, at the bra line, 3-4 thick and on the right side of my
torso. I sometimes get the banding in my legs, and like others, my feet,
especially the right one have an elastic around them.
Lyrica, 150 mg 3x a day has helped with the banding. Over exertion,
, the
depression, the suicidal thoughts.
Although I do not contribute very often, I want you all to know that I truly
appreciate everything that is said on here. And thank you to all of you for
sharing.
Janet Dunn
Hi
I work in a health food store, and have tried them all. There are a couple
that MAY help somewhat, but emphasis is on the MAY.
The company AOR - and I believe there is a branch in the States, and Europe,
has a product made from the myelin sheath from certified disease free
animals,
Hello all.
I wear a Dictus Splint. It is a cuff that fits around my ankle, fastened
by Velcro straps. It has a D ring and an elastic. The elastic hooks on
two hooks that are inserted into the lace holes on my shoes. It is great.
I sure notice when I don't wear it. It makes a huge
Although it is never “nice” to hear about someone’s suicide, it is, in a small
way, reassuring to know that the feelings that I am struggling with are valid,
and that others have them. And yes, you are right, some days I just want to
curl up in bed and hope it all goes away. Some days it is
Hi to all
I was 42 when my legs went numb. Thought I had a pinched nerve. Hah.
Janet in BC
image001.gif
From: jrushton [mailto:[EMAIL PROTECTED]
Sent: April 19, 2008 10:31 AM
To: tmic
Subject: [TMIC] Questions
Hi, everyone (again!)
I have three questions for those who would be willing to respond:
1) Did you ever have chicken pox?yes
2) Did you ever suffer from shingles?
Hello
After listening to the conversations on lidocaine infusions, I decided to
have one.
So, my doctor had me meet him at the ER last night and away we went. Didn't
really notice anything. He wants to do this every week. Ok, whatever.
Now, today, after one whole day, yup, one whole
I have found that Lyrica works very well for that, at 75mg b.i.d. I am up
to 150 twice a day now, and that is even better.
Janet t4-t5
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED]
Sent: March 9, 2008 5:58 PM
To: TM
Subject: [TMIC] Unidentified subject!
Just seeing if
Hi Wim
I used to use an infra red sauna at the gym I was going to. At first it
seemed to be just fine, but then after a few visits, it definitely made my
legs worse. As in, the banding increased and they were not wanting to walk
well. But as for the sweat - I was surprised that even my
Good Morning
I just got home from a 5 day hospital stay. I initially went in to the
emergency dept with heart palpitations. Fortunately the ticker is fine.
However my muscle enzymes were elevated, so I was kept in for awhile. Lucky
me, I received 3 doses of Prednisone, then they switched
Hello to All
Like most of you I have the burning, pins and needles, electric shock,
tingling feeling in my feet and legs. I am on Gabapentin and Perocodan. I
just want to mention a lovely lovely cream that my Dr. has given me by
prescription. I have it made at a compounding pharmacy - and
Hi All
I have the constant burning pain in my feet. I have just recently (past 10
days) come off of Lyrica and back on to gabapentin. A few of reasons: 1)
lyrica is so expensive, 2) I felt like I was needing the narcotics more,
3) I was wondering if my body was used to the lyrica and
I am on Lyrica, 75mg 2 x a day. I am not so sure it helps, but I am not
yet willing to do without it!
Janet
-Original Message-
From: Trudy [mailto:[EMAIL PROTECTED]
Sent: April 22, 2007 6:44 AM
To: Tmic-list@eskimo.com
Subject: RE: [TMIC] Meds
Just wondering, for those of you who
Hello
One of my biggest symptoms is the banding. Right under my right ribs, and
often down my legs. I have been told it is part of the TM. There are days
though when I wonder. The banding is sometimes so intense it takes my
breath away. It also is quite bad around my knee, and my foot.
Title: AOL Email
Hi to all out there.
I was in the valley of Ive
had it (where I am sure most if not all of you have been once in awhile)
when I turned on our local radio station and low and behold there is a benefit
dance tonight for a man in my town (Fort St. John, BC) who has TM and
I am not sure about cymbalta, but I do know that small amounts of
antidepressants work very well for pain management.
No, it is not all in our heads.
One thing that I have found helpful for the pain/burning/tingling in my
feet, (which I am glad others understand) is magnesium - whether in the
Hello
I am just
wondering if anyone has had another episode of TM after the original one?
Mine has remained relatively stable for a year now, and I am just wondering if
this will be the way it is now, or if it can flare up and be debilitating
again.
Being fairly
new to the list, I
I had a neurologist tell me that I was leading everyone down the garden
path, that I was blaming my car accident when really, there was nothing
wrong. Finally after 2 years, he is recanting that as the spinal tap showed
that there is an issue. I think, whether Frank was tongue in cheek or
not,
I am so glad to hear of these accounts of
banding. Mine is intense, and I often feel like I am so alone in this. You
all have been aptly describing the feeling. At first I thought it was strained
muscles, and have spent a fortune on Rolfing treatments to ease it off. (They
didnt work)
Hello
My name is Janet, and I have just recently
received the dx of TM. I have had TM for 2 years, but no one up here knew what
it was.
This reply is for Neda who is on 900mg of
Gabapentin.
I suffered greatly from the tingling and
pain, and fortunately the Dr. who did the spinal
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