Hi all,
I haven't been online due to the severe spasms I've been in bed. If I don't
overdue than they seem to be some better. I get sick of bed tho. Anyways, I
was wondering if any of you have a urostomy put in? I have but as soon as I
put it in my pants, it leaks all over. It is
All
This is Natalies' husband writing for her. She is currently in the hospital
with severe pain in her right leg. She has been on I.V. pain killer since
Wednesday morning and it has not broken yet.
The question she wants me to ask is if anybody has heard of return of
Transverse
Trudy,
I was sent by my dr. to a neurologist, he was thinking he might have
different meds. for me. The dr. was nice but stated there to nothing else I
can do for you that your dr. is not doing. I thought why did I come here
for? wasted dr. trip againif I could count them in my
Kevin,
I couldn't take Cymbalta either due to headaches. I got a severe headach
that lasted for 3 days honestly. Drs. since have wanted to give it another try
but I say no thanks.
I do hope this new neurologist helps you. Some are so narrow minded. We
finally got a new one here
-
From: natalie mizenko
To: Transverse Myellitis
Sent: Saturday, September 22, 2007 2:41 PM
Subject: [TMIC] Itching
To everyone:
While I was in the hospital I got this terrible red rash it is still going
on. I have an appt. w/ my dermatologist the first week of Oct. I
Kevin,
I agree so much w/ you on friends who disappear from you when you get sick,
even my familly members did me back in the late 80's. Drs. had problems
diagnosing my condition back then, so my family (alot of them) treated me like
it was all in my head. I have a brother who works
To all:
I had Botox injections for my neck back in the late 80's - it was
experimental then. I had it done once and it did not work for my neck. Every
body is different tho. Natalie M.
[EMAIL PROTECTED] wrote: Bernie
The first thing I thought of when I read your post
To everyone:
While I was in the hospital I got this terrible red rash it is still going
on. I have an appt. w/ my dermatologist the first week of Oct. I itch all the
time everywhere and when I scatch whelps like come up. Also, even my watch
touching me, if it hits the bed too hard
Gunny,
I have told him IF he were in this position, I would not be cursing while
taking care of him. It's little things tho that he cusses about. Like when my
foot falls off my shower chair he'll say GD and things like that. I tell him
You are saying that to me. He disagreeshe
--
From: natalie mizenko
Rick,
Thanks for the get well wishes. Sometimes it is difficult like when my
husband says all these foul words while I'm transferring to my shower chair
or
I've had an accident in my pants. He gets ugly then and makes me feel so bad.
Oh well. He is so good in other
Pam,
Thanks for your nice email. I'm sorry for the embarrassment you had to go
thru on the handicap restroom. I get mad at that to see a healty looking 20
something getting into the car, time and time again, in the handicap parking
zone.I try to tell myself I don't know her; there
that awful pain you complained about
earlier. Take care.
R
natalie mizenko [EMAIL PROTECTED] wrote:
Hello to everyone...I've missed you all. My urostomy surgery was
much more than I had planned on it being. I also got a stah infection (my
first ever) very soon afterwards and he had
Grace,
Thanks for the well wishes. They are much appreciated. Natalie M.
Note: forwarded message attached.
-
Building a website is a piece of cake.
Yahoo! Small Business gives you all the tools to get online.---BeginMessage---
Hi
Pam,
You take care too. Sorry you were in the hospital too. I hate them so much.
Natalie M.
[EMAIL PROTECTED] wrote: GLAD YOUR HOME. SORRY ABOUT THE STAFF I HAD IT
ITS NO FUN. I JUST GOT OUT THE HOSPITAL MYSELF I WAS THERE FOR LABOR DAY MY
B/D. I SURVIVED AND AM
Linda,
Thanks so much. I've been in bed alot. Natalie M.
Note: forwarded message attached.
-
Luggage? GPS? Comic books?
Check out fitting gifts for grads at Yahoo! Search.---BeginMessage---
Hi Natalie,
I'm so glad the surgery is done
--
From: natalie mizenko [EMAIL PROTECTED]
Rick,
Thanks for all the well wishes. It is so thoughtful of you. My family is
downshairs (down one complete step) but I can't get down there. My
son-in-law
lives in that room when he is here and usually my husband
Hello to everyone...I've missed you all. My urostomy surgery was much
more than I had planned on it being. I also got a stah infection (my first
ever) very soon afterwards and he had to open up my womb. A womb vac (which is
used alot anymore) was connected to the tubing, etc. and other
Hello to all:
I went yesterday to the hospital to get a picc line put in me again as I have
no veins left in my arms and hands at all. I wish they would use my legs, but
they seem to not want to. A trained nurse who resently started last week doing
these, took her over an hour to
Thanks Grace, I appreciate it. Natalie M.
Grace M. [EMAIL PROTECTED] wrote: Hi Natalie,
I'm so sorry to hear that it involves another surgery, but am convinced that
it will indeed improve your life. I've heard some very positive things about
this procedure. Try not
Thanks Barbara for the well wishes and I will need your prayers. I'm
some concerned if I have pain that is unusal happening further out into
recovery, due to my paralysis I will not feel it and it worries me some. Also,
I'm well, well, noted for blood clots. I had to stop my Coumadin 7
or 10 with movement, barametric changes, or the cold
weather. Then I would take all kinds of pain meds and sleep most of the time.
I hope that I have answered your questions.
Prayer and thoughts for you and yours,
Candy K.
-Original Message-
From: natalie mizenko
Sent: Aug 11, 2007 6:24 PM
the day after I've done too much the previous day or its
going to rain - waiting to see about the cold weather!
Hope info helps.
Prays and thoughts for each and everyone,
Candy K.
-Original Message-
From: natalie mizenko
Sent: Aug 11, 2007 10:55 AM
To: cakalley
Subject: RE: [TMIC] Anyone else
To the group:
Has anyone ever experienced a very dry mouth, especially through the night
and in the morning. Also, last night my arms were hurting me so badly, and I
have not been anywhere but hom. Especially from my elbow to my wrist. I have
a knot under the skin on both arms in
Grace,
I know. That's why it is so strange within a few months another person in my
internist office got it. I couldn't hardly believe it. I was truly suprized.
Natalie M.
Grace M. [EMAIL PROTECTED] wrote: Immediately following my NMO
diagnosis, my PCP totally
-
From: natalie mizenko [EMAIL PROTECTED]
To: Transverse Myellitis tmic-list@eskimo.com
Subject: Re: [TMIC] Wheelchairs
Date: Fri, 3 Aug 2007 16:43:52 -0700 (PDT)
Pam,
When u get paralyzed, how do you get back to walking?? I cud
wheels. It that is
not possible I go backwards with help. Unless I know this is an
ADA ramp then I can do it my self.
Larry in Oklahoma
From: /natalie mizenko /
To: /Transverse Myellitis /
Subject: /Re: [TMIC
.
Your 90% weightless in a pool, and you'll be able to move freely. That's how I
did it.
Gunny
-Original Message-
From: natalie mizenko
Sent: Aug 3, 2007 7:43 PM
To: Transverse Myellitis
Subject: Re: [TMIC] Wheelchairs
Pam,
When u get paralyzed, how do you get back
in the field of problems.
My GP is better at looking things up than my Neuro BUT both are males and you
know males are least likely to ask for directions.
Well this is my novel - Sorry.
Candy K.
-Original Message-
From: natalie mizenko
Sent: Aug 3, 2007 7:29 PM
To: Transverse Myellitis
Grace,
Yes, that is what I meant. That you had the TMIC address in your address
book. Other than that, I have no idea why you are not receiving all the
emails. I know that has to be frustrating. Natalie M.
[EMAIL PROTECTED] wrote: Yes, I have everybody in my
Regina,
You have every right to vent. We all have to vent every now and then. I
went to my back surgeon who had done 3 surgeries on L5-Sl the last 2 years,
finally the last surgery he fused it. I had Cauda Equina Syndrome. I had
heard that it could paralyze you, very rare tho.
, but the neurologist said that isn't causing the numbness in
my hands.
*shrug*
Wish you the best,
Kevin
natalie mizenko wrote:
Kevin,
Can I ask why your hands are going numb? I just got my first manual w/c.
I've been user the store's loaner - it was shipped new to be at Baylor in
Feb
for three years and worked with several Natalya's (Natasha for short).
I hope some of the information is helpful to you especially on the transfers
because you can be so much more independent if you can transfer by
yourself.Cody in Austin
- Original Message -
From: natalie
Kevin,
Can I ask why your hands are going numb? I just got my first manual w/c.
I've been user the store's loaner - it was shipped new to be at Baylor in Feb.
or March. I have not had anymore places on me going numb yet. I hope my hands
don't give way, as I only have this manual.
Barbara A.,
Thanks for the info. I've used a loaner since March, but this is my own.
It's an ultra-lite, but not a ridged back, has like a ridged front is -
metallic blue in front. Nice looking w/ tube arms. I really was not going to
have the folding back but I think it is easier
Grace,
This might sound dumb, but when you happen to take a spill, how would
Life-Alert get in your door? I've wondered, because of I were to happen to
ever need it, I wouldn't know how they would get in you know. Thanks, Natalie
M.
Grace M. [EMAIL PROTECTED] wrote:
in my hands.
*shrug*
Wish you the best,
Kevin
natalie mizenko wrote:
Kevin,
Can I ask why your hands are going numb? I just got my first manual
w/c. I've been user the store's loaner - it was shipped new to be at
Baylor in Feb. or March. I have not had anymore places on me going
Pam,
I really don't know why. Usually they (whoever puts it in), I think doesn't
like to be responsible for having a patient walking around w/ it. I had one in
the whole time I was at Baylor, but Little Rock, AR, put it in (a hosp. there).
Then, I went to a small rehab, was unhappy
Grace,
Are you in a w/c too? I just got my own w/c this month. I've been in it
only 3 times cuz my pain has caused me to be in bed. I'm not sure I like it.
Someone I've known a long time has been in a w/c and she said when you get it
give it time to adjust to it.
Nat M.
Don't worry about it I have a serious question to ask the group and I
think I was one of the ones who got started by calling Jude a man, not woman.
Serious question: At Baylor my Physical Therapist mentioned for me to get a
rigid chair because there were so many that had them,
] wrote: Oh Natalie, you are so funny...Gunny?
A girl? I thought that Semper fi probably gave him away. ;-)
GraceP.S.How is Gunny anyways? it's been ages since I've heard from
him. I hope that all is well.
On 7/9/07, natalie mizenko [EMAIL PROTECTED] wrote: Geez
Geez, Now I'm really messed-up here. I thought Gunny was a girl. Don't
know why, but just thought that. Perhaps we should have gender added to our
invitation upon joining the group. Like our 1st emails! HA! Only joking you
all know it. Nat, alias at times Gnat (I am not a bug),
Natalie,
I couldn't take Cymbalta either for the terrible headaches it gave me. It
took like 3 or 4 days for the med. to get out of my system before the headache
even stopped. I've never heard of the other drug. I'll ask my dr. about it,
esp. if it helps on pain spasms. I'm on
Hello to Everyone:
Hope all of you have a wonderful weekend. Mine last week was lost as I had
severe pain I dealt w/ day and night. I pray that yours is good for you!
Natalie M.
-
Be a better Globetrotter. Get better travel
Naomi,
I wish for you better health soon. I will pray for you. You care for others
so well and you deserve to have the blessings and improved health come back to
you as well. I've been down for 3 days. I hated it cause it was the weekend.
I wanted to enjoy it so bad w/ my husband
Hi there,
Well, I had to go back to the hospital after only 1 day at home. Once again
for excruiating pain from my feet to my hips. This has been some of the worse
pain I've ever had. Then, after staying there 2 weeks, I got 2 bedsores and
I've never, never had any. I was at
Hello to All,
I was taken by ambulance to the hospital out-of-head in excruiating pain. I
could barely talk. It began early in the morn. my husband had just went on
active duty orders, but is staying here. I didn't want to mess things up for
him, so I suffered the pain increase
Sally,
I was wondering what type of affect you have on your body in T6-T8?
Numbness, pain? Are you able to walk. I've always wondered when folks get TM
in 2 or 3 levels of the spine how it is. If you don't mind, I'm just trying to
educate myself on TM. I have it from T12 down and
Dear Barbara,
How thoughtful of you! I live in Arkansas and I'm totally paralyzed from T12
down. My orthopedic dr. I feel waited to long to have a Medtronics Spinal Cord
Stimulator for my neck to be removed by a neurosurgeon so I could have an MRI.
He sent me to Rehab and left on
, the pain isn't as bad. That brings to mind the12 pressure
sores.but that's another show.
Pain changes who we are, I think. I too get depressed sometimes but it
doesn't last very long. I can just imagine 20 + years of it. Whew.
Take care,
Diane in Canada (TM 1999)
From: natalie
Jude,
I usually try to sign my name with Natalie M. to tell the difference of us,
but sorry I forget the M. this time. It is easy to forget. If you look back
over some of my emails I have often used the M. at the end to tell the dif.
I am in a wheelchair 24/7 or whenever I decide
Todd Tarno [EMAIL PROTECTED] wrote: Happy Belated Birthday,
Best wishes on that wonderful day,
Todd in CC, TX
natalie mizenko [EMAIL PROTECTED] wrote: My b-day is June 5 ([EMAIL
PROTECTED]). Thanks, Natalie M.
-
Got
Wayne,
I would see if your state has a Spinal Cord Commission. Mine does and I've
heard they are helpful in alot of ways. Also, I would address this w/ your
Attorney General and tell him the issue. I was told w/ Medicare, you are
allowed one every 5 years. That is what my w/c
Jude,
I am so sorry you are treated like that. I am short somehow on my patches
this month and I think it is because my husband I were changing them on the
3rd day, instead of the 4th day. I don't know if my doc. will renew or not.
They are so picky about you being on the exact
Naomi,
I will certainly pray for you. I'm so glad you have someone else to assist
you when necessary. I've so afraid my husband is going to get burned out,
because he treats me so, so good, but I just have to hope he doesn't. Natalie
M.
[EMAIL PROTECTED] wrote:
My b-day is June 5 ([EMAIL PROTECTED]). Thanks, Natalie M.
-
Got a little couch potato?
Check out fun summer activities for kids.
Naomi,
Thanks alot for the good wishes. My husband didn't say anything this morn.
about my b-day. But he came in first thing and gave me my favorite iced breva
(like a cappucino only stronger coffee). I think I spelled it wrong. He said
Happy Birthday and further stated he had
Mark, I don't know what it is either? Something about your veins
perhaps???Natalie M.
-
8:00? 8:25? 8:40? Find a flick in no time
with theYahoo! Search
Jude,
I just joined this group about a month or two ago and I already am extremely
pleased I finally found someone to talk w/ about TM. I use to go to a Cauda
Equina Site, but TM is much worse, especially what it has physically done to
me. I never thought in all the world my legs
Jude,
I have been sick of wearing a Depend every since I came home. They are often
soaked ever before I cath and I cath every 4 hours. My husband took me to the
urologist in Little Rock (1 hour away), but before that appt. I had an
internist appt. in L.R. It had been right at 4
program, but perhaps one of
these will work for you better.
Natalie Mizenko
[EMAIL PROTECTED] wrote:
When I asked about renal failure Gunny informed me that renal failure is
actually a kidney problem. So my medical Ignorance showed up again. I was
refering to having problems
Thanks Janh for the birthday wishes as well as the others. This year was my
big 50 and my daughter and son-in-law was down. My daughter in one day
here planned a suprise 50 b-day w/ my family and friends. Some I had not seen
since TM hit me and paralyzed me (T12 down). It was
Hi Jude,
That is really cute the b-day card. Thanks, Natalie
[EMAIL PROTECTED] [EMAIL PROTECTED] wrote: To view your
e-card, please click on the following link:
http://greetings.aol.com/view.pd?i=89671268m=7494rr=ysource=aold999
Or, if your e-mail
Jude,
for some reason my cursor is down at the bottom of the box, it started about
2 weeks ago and sometimes I forget it bring my cursor up. Scroll further down
and see if you don't see my message, Thanks, Natalie
[EMAIL PROTECTED] wrote: Nothing came through on the
Hi Barbara all,
It is so varying what we all go thru w/ TM. Life can completely change and
I've actually talked to a man who fully recovered from TM when mine hit. He
was kin to my son-in-law he gave me hope. Needless to say by the time they
removed my spinal cord stimulator from
and no more leakage all the
time getting me wet. No cathing after that; but that never has bothered me
much.
Natalie Mizenko
[EMAIL PROTECTED] wrote: Dear list, Over these past 9 years of incontinence I
have began to put alot of concern in the fact that I see so many people die
Does anyone know why the little File icon keeps appearing to the side of
my name everytime I email a message? It has been there every since I joined
and I don't know how to get rid of it. It bothers me. Thanks, Natalie Mizenko
-
Ready
not say such as to an aide. That is one reason I decided to even leave my
state for help and go elsewhere to Baylor. I was
treated completely different there - it was certainly worth going there. By
the time I returned home I had been gone for 3 months!!! Natalie Mizenko
but the MS is affecting
her vision and she's had two wrecks already driving to work. Yikes.
Bobberino
From: Louise Croyden To: natalie mizenko ; Transverse Myellitis
Sent: Wednesday, May 16, 2007 2:24 PM Subject: Re: [TMIC] Re: Who's got
what?
Hi Natalie,
I
; instead we have to
take what happens to us and make life better whatever it takes.
Sorry for the novel! Natalie Mizenko
Hi Natalie,
I hope that, in my e-mail, you didn't think I was saying we would all get MS.
As I mentioned, MS is only one of the underlying diseases
When I was at Baylor they first gave me an MRI which indicated the
Transverse Myelitis (I had already been diagnosed in Arkansas); anyway while I
was sent over to the Baylor Rehab; right before I left my pain was so severe;
she said most people w/ TM don't have that degree of pain, so
up! At some point, I was able to look behind me and say, hey,
I survived!
Larry in Oklahoma where it is absolutely beautiful today!
Larry Throne, MSW
-
From: natalie mizenko [EMAIL PROTECTED]
To: Transverse Myellitis tmic-list@eskimo.com
Subject
I have moderate to severe pain in my feet 24 hours a day. They tried tons of
drugs while I was at Baylor Rehab. to get it under control. Many nights I
couldn't even sleep still up at 8:00 to 4:00 to do all the exercise groups
and training they had. Exhausted I was indeed then...but they
Yes, a neurologist saw me in the hospital and he said that I didn't have
spasticity because he moved my foot and it was floppy like ever. He said see
you have no spasticity. Natalie
[EMAIL PROTECTED] wrote:I believe spasticity involves rigidity rather
than flopping or jerking
Tonya,
Thanks for the info. Fort Smith is like 3 hrs. from us. Perhaps my back
surgeon I am soon going to will help me find a good neurologist or other pain
dr. I think I need a pain dr. because I am on fentanyl patches and I don't
think neuros. can prescribe them regularly; but not for
Akua,
I was taught at Baylor to us barbells alot. My O.T. I have uses them alot
with me. She had me do biceps, tricepts. take my arms out straight from my
wheelchair lift my arm staright out from the bottom to where my arm was
straight with one exercise w/ them; I have a sheet she gave me.
Hi to all,
Does anyone in the group live in Arkansas and go to a pain dr. in North
Little Rock, or Little Rock? I am on the search of a pain dr. for my pain
meds. I don't have much luck w/ them in my experience they are becoming here
more more like Gods. My pcp dr. faxed info about me
I just replied to Gunny a message about 2 hours ago on Lyrica and it still
hasn't posted. Would there be a reason it hasn't?? Thanks, Natalie
-
Ahhh...imagining that irresistible new car smell?
Check outnew cars at Yahoo! Autos.
Did anyone in the group have Cauda Equina before they had TM? I use to belong
to a support group for that and it reminds me of this one in a way? Thanks,
Natalie
-
Ahhh...imagining that irresistible new car smell?
Check outnew cars at Yahoo! Autos.
Hello to all,
I just joined the group this week. I got early signs of TM around the 2nd
week of Dec. 06 and by Christmas I was completely paralyzed from TM. My dr.
tried using steriods by it didn't reverse my TM at all. I went to a couple
small rehab. centers nearby, but by the 2nd one, I
Candis asked for my story so here goes Around the 2nd wk. of Dec. 06 I was
walking back to bed from the restroom and collapsed in the floor. I stood up
only to find I could walk on one leg only. On Dec. 13th my husband took me to
Little Rock, Arkansas, to a hospital there where my back
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