Re: [TMIC] tmic-list group
Sounds good. Will the messages at this address be archived somewhere or would that cost something? Every now and then I still search the archives for a previous conversation. Barbara H. Sent from my iPad On Aug 9, 2015, at 2:57 PM, Jim Lubin jlu...@makoa.org wrote: I started a new email listgroup on googlegroups if anyone wants to continue the tmic-list. You can join at https://groups.google.com/d/forum/tmic-list I think I will discontinue the tmic-list@eskimo.com before the next renewal in 5 months.
Re: [TMIC] tmic-list group
That makes sense to use a free service, especially with this one not being terribly active. Barbara H. Sent from my iPad On Jul 5, 2015, at 2:48 AM, Jim Lubin jlu...@makoa.org wrote: wondering if it is worth continuing to pay for it. $42 every 6 months. everyone seems to have moved to other groups. I might be able to move all the subscribed email addresses to another, free system using google groups, but the address would change to tmic-l...@myelitis.org. On Sat, Jul 4, 2015 at 9:32 PM, Pat Voorheis pjv1...@chartermi.net wrote: Hi Jim, There was a little bit of activity a few months ago between a few of us. I am on Face Book also. It was good to see your name today, because I was thinking about you this morning. I'm glad TMIC was available 11 years ago when I was diagnosed with TM and thank you for its availability. Patti - Michigan On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote: is anyone still using the tmic-list@eskimo.com?
Re: [TMIC] tmic-list group
Every now and then there's a few emails here but it's mostly quiet. Barbara H. Sent from my iPad On Jul 4, 2015, at 1:02 PM, Jim Lubin jlu...@makoa.org wrote: is anyone still using the tmic-list@eskimo.com?
Re: [TMIC]
I did see that he had passed away mentioned on a Facebook page a while back. I was so sorry to hear of it. I do remember him participating here in the past. I can only imagine what you are going through - it was hard to lose my mother several years ago, but I think to lose a son or daughter would be that much harder because we expect that they'll outlive us. I pray for God's grace and comfort for you. Psalm 119:76: Let, I pray thee, thy merciful kindness be for my comfort, according to thy word unto thy servant. Barbara H. On Wed, Mar 12, 2014 at 4:57 PM, wrabal...@gt.rr.com wrote: I just realized I had not seen much activity. I am not sure this is going to the group, I hope so. Some of you were probably friends with Dennis Rabalais. He passed away on Jan. 29, 2014. He had been sick for so many years, I know he is in a better place. But as a mother I surely do miss him. Today for no reason I have cried all day. I feel like my heart is broken and it is painful. I thank all of you that talked to Dennis for being his friend. I will try to keep an eye out for any of your post. Bless all of you, Rebecca Rabalais
[TMIC] End of birthday lists
Hello all, Some of you may remember how the birthday lists started many years ago. Someone found an online site that would send e-cards to others as a support for a charity, so many of us sent in our names and birthdays so as to use the site to raise funds for the TMA. Not surprisingly, the site died after a while. A girl on the TMIC named Carrie and I had accumulated the birthday names and lists, and after she left the list, I continued to send them out once a month. I've decided to stop doing so, for a number of reasons. 1) Not many people are here any more. Many are on Facebook and it is easy to send birthday greetings there. 2) I don't think many (if any) people use the birthday list to send individual greetings to anyone on it. (A few of you have faithfully sent happy birthdays on TMIC to those celebrating each month as a whole, and I have appreciated that.) 3) Since all mail that goes through the TMIC is archived online, I have wondered if it is a problem to have lists of names and e-mails there, if that increases anyone's spam content. 4) I have been sending out individual birthday greetings to everyone on the list, and more and more of them are returned to me because the address is no longer active. 5) For those who are no longer on the TMIC, I don't know if they welcome the birthday greetings or if they don't want me to bug them any more. So for all of those reasons, plus the amount of time involved, I have decided to stop sending the birthday lists out each month. I've just finished updating it with the latest information I have - if anyone else wants to take it over, I'll be happy to send you the list. I'm still here on the TMIC and plan to continue to be. I wish all of you a very happy and healthy 2014. Love, Barbara H.
[TMIC] December Birthdays
Happy birthday to those celebrating in December! 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3 Janice (jannic...@gmail.com) 12-3 Wim from Holland (wim_from_holl...@hotmail.com) 12- 4 Jan Burgess (ja...@rogers.com) 12-7 Patti in Wisconsin (patticoole...@gmail.com) 12-8 Lori Malloy (jorlcummi...@earthlink.net) 12-15 Alton Ryder(a-ry...@comcast.net) 12-18 Rod Jenke (rktje...@chariot.com.au) 12/23 Roger Pratt (r.c.pr...@frontier.com) 12-25 Gilly (Also gillycl...@yahoo.com.au, and trinketgi...@gmail.com), ( mingalett...@activ8.net.au) 12-27 (subers...@msn.com) 12/31 Janet (j.d...@shaw.ca)
[TMIC] November Birthdays
Happy Birthday to those born in November! Please send any additions or corrections to tmic-list@eskimo.com 11-01 Ella (elbanks...@aol.com) 11-2 Jeff (jeffsmokeea...@yahoo.com) 11-03 Gina (gina1103c...@aol.com) 11-6 Margaret Monson (mag...@telus.net) 11-8 Diane (mon...@sympatico.ca) 11-12 Marie (chestnutr...@gtcom.net) 11/13 Kevin (wolft...@optonline.net) 11-17 Becky opi...@bellsouth.net 11/20 Cossy (cos...@yahoo.com) 11/22 Judy Hoops (heyjude48...@aol.com) 11-25 Gunny (bgunny7...@aol.com) 11-27 Jack McMillan at rebarj...@aol.com 11-30 Louise Flagg (fla...@webtv.net)
[TMIC] October Birthdays
Happy Birthday to those celebrating in October! Please send any additions or corrections to tmic-list@eskimo.com 10-3-97 Lauren Graham (grahamsn...@aol.com) 10/4 Neil McNeil (n...@hotmail.com) 10-7 Naomi (ladyno...@aol.com) 10/08 Rudy Aceves (race...@vengrp.com ) 10/9 Assunta Rene (robert...@hotmail.it) 10/11 Lori B. (lbieh...@earthlink.net) 10-11 Kate (nicwi...@cox.net) 10-12 Diana Gray (graymyfat...@aol.com) 10/14 Marieke Dufresne! (marieke...@hotmail.com) 10/14 Lanora (noni...@hotmail.com) 10/16 Sandy Parker (parkersw...@aol.com) 10/16 Linda Cherpeski (cherp...@msn.com) 10-21 Renee A. in CT (littlem...@aol.com) 10-21 Cody Kidwell (c...@austin.rr.com) 10/21 Candy K (cakal...@embarqmail.com) 10-23 Keith (leboo...@cfl.rr.com ) 10-25 Debby Jones (ladybutl...@comcast.net) 10-26 Jim Lubin (jlu...@eskimo.com) 10-26 Bernie Pelow ((bpe...@austin.rr.com) 10/27 Robin (moldr3...@aol.com) 10/27 Krissy (ladykri...@comcast.net) 10-28 Netta Ganor (net...@isdn.net.il)
[TMIC] September Birthdays
Happy Birthday to those born in September! Please send any additions or corrections to tmic.l...@eskimo.com. We also want to take a moment to remember Pam Montz, faithful list member who passed away a few years ago. Her birthday was 9/9. 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.com)* * 9/12 R. J. Rankin (rj_ran...@yahoo.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.net) 9-17 Bill Wimberly- (*bwimbe...@bellsouth.net*) 09/20 Rob Pall (robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.com)(*mushr...@hotmail.com*) 9-24 Suzi in Seattle *(ss1...@aol.com*) 9/26 Allen Rucker *a...@allenrucker.com* 9/30 Patti Enstrom (pge...@aol.com )
[TMIC] Testing
Just testing to see if the list is still working. I was looking up the TMIC site (http://myelitis.org/tmic/) in order to send the link to someone, and it says, File not found. I messaged Jim Lubin about it but he is on the West coast and may not see it for a while. Just thought I'd check to see if it was still working. Barbara http://barbarah.wordpress.com
Re: [TMIC] Testing
Thanks all. I know the list gets quiet some times, but I wanted to see if the web site's being down affected the list. I checked with Jim Lubin, and he said that they had changed servers and hadn't had a chance to change all the settings yet, but this link should work for the web site in the meantime: http://myelitis.org/tmic/index.html Barbara H. On Sat, Aug 17, 2013 at 4:13 PM, Cindy McLeroy cindymcle...@socal.rr.comwrote: ** I think it's the link that is not working, not the emails. I can't get it either. And I've poked around on the myelitis.org site and can't find it. - Original Message - *From:* margaret shearer margaretshea...@hotmail.com *To:* Janice Nichols jannic...@gmail.com *Cc:* Barbara H. barbara...@gmail.com ; tmic tmic-list@eskimo.com *Sent:* Saturday, August 17, 2013 12:23 PM *Subject:* Re: [TMIC] Testing Still working over the pond! Sent from Margaret's iPad On 17 Aug 2013, at 17:16, Janice Nichols jannic...@gmail.com wrote: Still working!Just really, really quiet right now. Janice *From:* Barbara H. barbara...@gmail.com *Sent:* Saturday, August 17, 2013 8:44 AM *To:* tmic tmic-list@eskimo.com *Subject:* [TMIC] Testing Just testing to see if the list is still working. I was looking up the TMIC site (http://myelitis.org/tmic/) in order to send the link to someone, and it says, File not found. I messaged Jim Lubin about it but he is on the West coast and may not see it for a while. Just thought I'd check to see if it was still working. Barbara http://barbarah.wordpress.com
[TMIC] August Birthdays!
Happy Birthday to the August kids! August is one of our biggest birthday months. Please send any additions or corrections to: 8/1 Peachi (pkeene2...@aol.com) 8/1 Cindy McLeroy (cindymcle...@socal.rr.com) 8-1 Stacy Firth (safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.com) 8-11 Raylene Gökeri (mrs_gok...@yahoo.com 8-11 Michelle Maricic (mmari...@aol.com) 8/11 Dalida S. Ortiz de Garcia (py...@yahoo.com) 08/17 Sandra (Harth) Brassil (sbras...@aol.com) 8-17 Kim (jnks...@huntel.net) 8-19 Saroj (sarojkumar...@gmail.com) 8-21 Barbara H. (barbara...@gmail.com) 8-23-00 Cole (neilandwe...@rogers.com) 8-29 Kathleen (kathleen.kar...@gmail.com) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )
Re: [TMIC] RE: Books Movies
If you look people up on Goodreads.com, you can peruse what they've been reading. One of my recent favorites is Unbroken by Lauren Hillenbrand. Also the Mitford series by Jan Karon (At Home in Mitford is the first). My kids are big into the Marvel comics films, so we've enjoyed the Iron Man films, The Avengers, Captain America, etc. They have a lot of classic English love stories on Netflix: Pride and Prejudice, Sense and Sensibility, Wives and Daughters, Emma, North and South (the British one based on the book by Elizabeth Gaskell, not the one based in America. The book was great as well). I don't watch or read many mysteries, but we have watched many TV shows that are based on Mysteries: Castle, Chuck, White Collar. They have those on Netflix as well, possibly on Hulu too. Barbara H. On Sat, Jun 29, 2013 at 11:29 AM, heyjude48...@aol.com wrote: ** Hi All, I hope that you are all having a really nice summer and that TM's ugly face is not showing itself too much to you. Just wondering if any of you could recommend something good to read this summer. I've run out of everything that I have and am too sick to get to the library, but if you give me some titles I can call and have them delivered. I like mysteries, English love stories, funny books and am pretty much game for anything that comes highly recommended. Also, if you have seen any good movies I'd be interested in hearing about them too. We haven't seen any of the new ones, in fact, we haven't been to a movie in 10 years. Thanks, I hope to hear from you soon. Love Hugs, Jude
[TMIC] July Birthdays
Happy Birthday to the July kids! Please send any additions or corrections to tmic-list@eskimo.com. 7-5 Sumer (fjs181...@aol.com) 7/5 Richard Ashford el...@att.net 7-14 Julie (chi...@cox.net) 7-24 Kevin Weilacher (hwyfli...@yahoo.com) 7-25 Peggy Wilson (pwi1991...@aol.com) 7-25 (jennapa...@aol.com) 7-27 Linda (lp...@aol.com) 7/30 Dex Packard (d...@centurytel.net)
Re: [TMIC]
Hi Janice, Mine did not start out with severe pain. It started with a hard to define, numb but not totally numb feeling in my left arm which then spread to my legs. It progressed to pretty painful banding around the affected arm, like a too-tight blood pressure cuff. That gradually went away. The only pain I have now is occasional muscle spasms in my back. Barbara H. http://barbarah.wordpress.com On Mon, Jun 24, 2013 at 10:38 AM, Janice Nichols jannic...@gmail.comwrote: Hello! When I have read the stories of how TM first attacked you all, some/many have said that you had a severe pain around the middle of your body – banding.And for some, it has stayed with you. I would like a response from all of you as to whether or not your TM started with the severe pain or not. Also, is it still with you today or did it get better with time/meds. I would like to be able to give my doc some kind of percentage of how TM has hit myself and others. Would really appreciate responses. Thanks, Janice
Re: [TMIC] are you still receiving me?
Still receiving your e-mails. I think I got something that was odd looking from your address but just deleted it. Barbara H. http://barbarah.wordpress.com On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall robthe...@aol.com wrote: I was hacked and had to change my password...sorry if I caused any of you problems. Rob in NJ
Re: [TMIC] are you still receiving me?
I was responding to Rob - he was asking whether we were receiving his emails. Barbara H. Sent from my iPhone On Jun 24, 2013, at 8:01 PM, Janice Nichols jannic...@gmail.com wrote: Barbara, just got this email and the email you sent about TM. You are loud and clear. Janice From: Barbara H. Sent: Monday, June 24, 2013 6:08 PM To: Robert Pall Cc: tmic-list@eskimo.com Subject: Re: [TMIC] are you still receiving me? Still receiving your e-mails. I think I got something that was odd looking from your address but just deleted it. Barbara H. http://barbarah.wordpress.com On Thu, Jun 20, 2013 at 8:24 AM, Robert Pall robthe...@aol.com wrote: I was hacked and had to change my password...sorry if I caused any of you problems. Rob in NJ
Re: [TMIC] RE: May Birthday List
I sent the May list out at the beginning of May. I'm planning to send the June list out tomorrow. Barbara H. Sent from my iPhone On May 31, 2013, at 11:49 AM, heyjude48...@aol.com wrote: Hi Everybody, Who has the May Birthday list? I haven't seen it yet and today is the last day in May. Thank you, Jude Michigan
[TMIC] June Birthdays
Happy Birthday to the first-of-summer kids! Hope you have a great day! Please send any additions or corrections to tmic-list@eskimo.com. We also remember those with birthdays from this month who have passed on Tom Carr (6/2) and Dennis Galvin (6/25). 6-1 Akua (a...@artfarm.com) 6-5 Tobe Kanon (spirita...@verizon.net) 6/11 Marabeth (mes...@earthlink.net) 6-11 Sharon Marsden (dorightra...@yahoo.com) 6-17 Cheryl (rn11...@yahoo.com) 6-19 Tom in Delaware (t-...@usa.com) 6-19 Debbie Capen (dnca...@gmail.com dca...@earthlink.net) 6-22 Ann Moran (annmo...@gofree.indigo.ie) 6-22 Gerry (suret...@sympatico.ca) 6-24 Lynne (lynnemye...@yahoo.com) 6-25 Errol White (eamjwh...@bigpond.com ) 6-28 Kim Harrison (kimharrison...@comcast.net) 6-29 Pauline (prha...@aol.com) 6/30 Bobby Jim (elbobber...@earthlink.net)
Re: [TMIC] Fwd: The Yellow Shirt (don't delete) From Jude TMIC
In the guidelines for the TMIC on the TMIC web site (posted here: http://myelitis.org/tmic/#guidelines) it specifically says Please *do not*forward or post long jokes or fictional stories. It would be better to forward this kind of thing just to people whose e-mail addresses you have whom you think might really want it. Plus you have to remember that everything that goes through the TMIC is archived online, so all those e-mail addresses you copied in your forward are now public. Barbara H. On Sun, May 19, 2013 at 10:56 PM, heyjude48...@aol.com wrote: ** This was sent to me by my very best friend, read and forward, for the chain hasn't been broken yet. I love you, Jude TIAD Michigan -- From: ccraterl...@aol.com To: angel_...@yahoo.com, dbparatroo...@aol.com, scottbingha...@hotmail.com, buford...@aol.com, gmrlsm...@yahoo.com, honda...@att.net, heyjude48...@aol.com, jackykalvai...@ymail.com, jeannie.d...@gm.com, jessicakalvai...@yahoo.com, jwally...@att.net, vickiekess...@aol.com, michelestja...@gmail.com, ppros...@med.umich.edu, s...@toast2.net, vsell...@bellsouth.net Sent: 5/19/2013 9:11:36 P.M. Eastern Daylight Time Subj: The Yellow Shirt (don't delete) A wonderful story! *Subject:* *Fwd: The Yellow Shirt (don't delete)* *Wonderful Story!* The yellow shirt had long sleeves, four extra-large pockets trimmed in black thread and snaps up the front. It was faded from years of wear, but still in decent shape. I found it in 1963 when I was home from college on Christmas break, rummaging through bags of clothes Mom intended to give away. 'You're not taking that old thing, are you?' Mom said when she saw me packing the yellow shirt. 'I wore that when I was pregnant with your brother in 1954!' 'It's just the thing to wear over my clothes during art class, Mom. Thanks!' I slipped it into my suitcase before she could object. The yellow shirt be came a part of my college wardrobe. I loved it. After graduation, I wore the shirt the day I moved into my new apartment and on Saturday mornings when I cleaned. The next year, I married. When I became pregnant, I wore the yellow shirt during big-belly days. I missed Mom and the rest of my family, since we were in Colorado and they were in Illinois .. But, that shirt helped. I smiled, remembering that Mother had worn it when she was pregnant, 25 years earlier. That Christmas, mindful of the warm feelings the shirt had given me, I patched one elbow, wrapped it in holiday paper and sent it to Mom. When Mom wrote to thank me for her 'real' gifts, she said the yellow shirt was lovely. She never mentioned it again.. The next year, my husband, daughter and I stopped at Mom and Dad's to pick up some furniture. Days later, when we uncrated the kitchen table, I noticed something yellow taped to its bottom. The shirt! And so the pattern was set. On our next visit home, I secretly placed the shirt under Mom and Dad's mattress I don't know how long it took for her to find it, but almost two years passed before I discovered it under the base of our living-room floor lamp. The yellow shirt was just what I needed now while refinishing furniture. The walnut stains added character. In 1975 my husband and I divorced. With my three children, I prepared to move back to Illinois ... As I packed, a deep depression overtook me. I wondered if I could make it on my own. I wondered if I would ind a job. I paged through the Bible, looking for comfort. In Ephesians, I read, 'So use every piece of God's armour to resist the enemy whenever he attacks, and when it is all over, you will be standing up.' I tried to picture myself wearing God's armour, but all I saw was the stained yellow shirt.. Slowly, it dawned on me.. Wasn't my mother's love a piece of God's armour? My courage was renewed. Unpacking in our new home, I knew I had to get the shirt back to Mother. The next time I visited her, I tucked it in her bottom dresser drawer Meanwhile, I found a good job at a radio station. A year later I discovered the yellow shirt hidden in a rag bag in my cleaning closet. Something new had been added. Embroidered in bright green across the breast pocket were the words 'I BELONG TO PAT.' Not to be outdone, I got out my own embroidery materials and added an apostrophe and seven more letters. Now the shirt proudly proclaimed, 'I BELONG TO PAT'S MOTHER.' But I didn't stop there. I zig-zagged all the frayed seams, then had a friend mail the shirt in a fancy box to Mom from Arlington , VA. We enclosed an official looking letter from 'The Institute for the Destitute,' announcing that she was the recipient of an award for good deeds.. I would have given anything to see Mom's face when she opened the box. But, of course, she never mentioned it.. Two years later, in 1978, I remarried. The day of our wedding, Harold and I put our
Re: [TMIC] whats going on?
** You're still coming through to the list. Did you have to resubscribe? I've been dropped various times over the years for unknown reasons and had to resubscribe, I assume just due to a glitch. One other idea is that perhaps your account has been hacked and someone has been sending out e-mails under your name - you might want to change your e-mail account password just in case. Barbara H. *From:* Robert Pall [mailto:robthe...@aol.com] *Sent:* Thursday, May 16, 2013 12:49 PM *To:* tmic-list@eskimo.com *Subject:* [TMIC] whats going on? ** ** I just received an email starting I was dropped from this list due to excessive bounced emails. I have no idea what this is about as I do not send that much in...and to the best of my knowledge I have never had an email bounced. Rob in New Jersey
Re: [TMIC] CONCUSSION
Ouch! Glad nothing was broken - hope you feel better soon! Barbara H. On Sat, May 11, 2013 at 9:55 AM, Gary Thomas gbthomas8...@sbcglobal.netwrote: ** I'm glad nothing was broken, Janice! I hope it doesn't happen again--can it, if you have vertigo? Gary in Michigan - Original Message - *From:* Janice Nichols jannic...@gmail.com *To:* tmic-list@eskimo.com *Sent:* Saturday, May 11, 2013 4:26 AM *Subject:* [TMIC] CONCUSSION Hey Guys! Well, now I know what a concussion feels like – it hurts! Monday evening I fell in the house on our ceramic tile (hard stuff).My husband called 911 and they transported us to the hospital.I had passed out before I fell, so had nothing to brace the fall. Eddy was just a few steps behind me but couldn’t get to me in time to stop the fall. Anyway, I fell right on my face – huge bump immediately.The ER gave me an IV to put in meds for pain (!!!) and nausea.That helped quite a bit. Then they did a cat scan and found I had no broken bones. Doc’s were shocked, but pleased. I really do have a hard head!They then sent us back home and I have been very quiet ever since. Doc’s think I may have had vertigo. I look a lot like a raccoon - eyes really black and purple and forehead and bridge of nose really swollen. I am a mess, but relatively little pain for having such a concussion. Each day we are checking out the changes in shape and color in my face. Just thought I would keep you guys up with my adventures. Janice
Re: [TMIC] SPAM
All of the mail that goes through TMIC is stored publicly on the archives online. Barbara H. On May 4, 2013, at 6:52 PM, Susan Kleinz skle...@cox.net wrote: I don't know what a spam folder is, but someone posted one of my comments to this group on the main Transverse Myelitis website. My whole name and everything. I never wanted this. I just got home from the hospital. Big setback. Is there any way to get my name off this website? Whoever did that to me is not nice. On May 3, 2013, at 12:11 PM, Janice Nichols jannic...@gmail.com wrote: Hi TM’ers! It seems several people are getting our website mail put in their spam folders.I guess we all better keep checking spam when looking for anything from this website. Hopefully, this can be fixed or will just die out. Janice
Re: [TMIC] Re: Attention -The TMIC List
Me too, Rob! I've been here since 1996, I believe. Barbara H. On Fri, May 3, 2013 at 9:37 AM, Robert Pall robthe...@aol.com wrote: I have never left! Rob in New Jersey -Original Message- From: Janice Nichols jan...@centurytel.net To: Heyjude48458 heyjude48...@aol.com; tmic-list tmic-list@eskimo.com Sent: Thu, May 2, 2013 4:46 pm Subject: Re: [TMIC] Re: Attention -The TMIC List Sorry I am late to respond.Maybe we could ask all who read/respond to our website to let us know by just stating a “yes” or “no” to whether or not they are still a part of us. We do need to have some idea who is still getting our emails. Would you all please do so? Janice *From:* heyjude48...@aol.com *Sent:* Tuesday, April 30, 2013 8:38 PM *To:* tmic-list@eskimo.com *Subject:* [TMIC] Re: Attention -The TMIC List Hi Everyone, How are you doing tonight? It's Jude Hoops and I am writing to let you know that eskimo.com may be having a problem with our emails. It seems that some of the people who don't want to receive mail are telling AOL that our mail is Spam instead of just unsubscribing to the list. It is because of their negligence that we may not get any more emails. This list has been around for at least 12 years and I don't know how long before I signed on that it had been up and running. I know the Quad list is going to another site, but I haven't heard anything about us. Does anyone else know anything about this? If you do will you please let me know. I'm very worried about it. I know that the list doesn't function the way that it used to but it is still important to me that we all stay in touch. Oh, do any of you have the list of May Birthdays? It usually comes around before the 1st and I haven't seen it yet for this month. What do you think we should do? (Again, I don't know if it applies to us too, or just the Quad list) And one other thing, do any of you mind if I use Pam's sign off of TIAD? I just can't seem to help myself, it just keeps her alive in my heart. TIAD, Jude Hoops Michigan
Re: [TMIC] Re: Attention -The TMIC List
Yes we understood, that was a way of saying yes, we're getting the emails. Obviously we wouldn't have answered if we hadn't gotten the e-mail. Barbara H. On Fri, May 3, 2013 at 11:41 AM, heyjude48...@aol.com wrote: ** The question wasn't if you were still here, but it was are you still getting our mail and also to alert you to the fact that a lot of the mail is going into our spam folders. I'll explain in another letter to the list. Jude H. In a message dated 5/3/2013 11:35:16 A.M. Eastern Daylight Time, barbara...@gmail.com writes: Me too, Rob! I've been here since 1996, I believe. Barbara H. On Fri, May 3, 2013 at 9:37 AM, Robert Pall robthe...@aol.com wrote: I have never left! Rob in New Jersey -Original Message- From: Janice Nichols jan...@centurytel.net To: Heyjude48458 heyjude48...@aol.com; tmic-list tmic-list@eskimo.com Sent: Thu, May 2, 2013 4:46 pm Subject: Re: [TMIC] Re: Attention -The TMIC List Sorry I am late to respond.Maybe we could ask all who read/respond to our website to let us know by just stating a “yes” or “no” to whether or not they are still a part of us. We do need to have some idea who is still getting our emails. Would you all please do so? Janice *From:* heyjude48...@aol.com *Sent:* Tuesday, April 30, 2013 8:38 PM *To:* tmic-list@eskimo.com *Subject:* [TMIC] Re: Attention -The TMIC List Hi Everyone, How are you doing tonight? It's Jude Hoops and I am writing to let you know that eskimo.com may be having a problem with our emails. It seems that some of the people who don't want to receive mail are telling AOL that our mail is Spam instead of just unsubscribing to the list. It is because of their negligence that we may not get any more emails. This list has been around for at least 12 years and I don't know how long before I signed on that it had been up and running. I know the Quad list is going to another site, but I haven't heard anything about us. Does anyone else know anything about this? If you do will you please let me know. I'm very worried about it. I know that the list doesn't function the way that it used to but it is still important to me that we all stay in touch. Oh, do any of you have the list of May Birthdays? It usually comes around before the 1st and I haven't seen it yet for this month. What do you think we should do? (Again, I don't know if it applies to us too, or just the Quad list) And one other thing, do any of you mind if I use Pam's sign off of TIAD? I just can't seem to help myself, it just keeps her alive in my heart. TIAD, Jude Hoops Michigan
Re: [TMIC]
Hope he's doing ok. My husband had one of those earlier this year -- they're pretty rough. Barbara H. On Thu, May 2, 2013 at 7:12 PM, Rebecca Rabalais wrabal...@gt.rr.comwrote: ** Yes. This is Dennis' mom. He is in the hospital as of now with an UTI.
[TMIC] Re: May Birthdays
So I realized after I went to bed that it wasn't May yet and I wasn't late after all - I don't usually send these out til the first of the month. Barbara H. Sent from my iPhone On Apr 30, 2013, at 11:06 PM, Barbara H. barbara...@gmail.com wrote: I apologize for being late with these - my husband had a detached retina yesterday, and we've been spending time at different doctors offices, then he had surgery today. It's been a whirlwind. It didn't even click that this was May 1 til I saw Jude's note. But thankfully we didn't miss anyone since no one's birthday was on the 1st. Happy Birthday to all the May kids! Please send any additions or corrections to tmic-list@eskimo.com. We also remember this month Jim Belz, May 11, who has passed away. 5/5 Linda Garrett (limoga43...@yahoo.com) 5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com) 5-11 Lynn (roseofr...@aol.com) 5- 19 Maureen Wroblewski Hallagan (walterhalla...@msn.com) 5/31 Wendy Wood (ww...@optonline.net)
[TMIC] May Birthdays
I apologize for being late with these - my husband had a detached retina yesterday, and we've been spending time at different doctors offices, then he had surgery today. It's been a whirlwind. It didn't even click that this was May 1 til I saw Jude's note. But thankfully we didn't miss anyone since no one's birthday was on the 1st. Happy Birthday to all the May kids! Please send any additions or corrections to tmic-list@eskimo.com. We also remember this month Jim Belz, May 11, who has passed away. 5/5 Linda Garrett (limoga43...@yahoo.com) 5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com) 5-11 Lynn (roseofr...@aol.com) 5- 19 Maureen Wroblewski Hallagan (walterhalla...@msn.com) 5/31 Wendy Wood (ww...@optonline.net)
[TMIC] April Birthdays
Happy Birthday to those born in April! Please send any additions or corrections to tmic-list@eskimo.com. We also remember three who had birthdays this month who have passed on: Ken (kenoliver...@hotmail.com) was on April 1, Jeron Rampersad ( rumc...@hotmail.com) on April 3, and Doc (doc...@insightbb.com) on April 24. 4/10 Marie Dipietro deer...@aol.com 4/18 Bernard Butcher (bernie.butc...@honeywell.com) 4/20 Dianna (carg...@cs.com) 04/20 Todd Tarno (toddtm2...@sbcglobal.net) 4/21 Robert Diehl (sawmil...@verizon.net) 4-25 Shelia (sc...@aol.com) 4-29 Dalton H. Garis (malugss...@gmail.com)
[TMIC] March Birthdays
Happy Birthday to the March kids! Please send any additions or corrections to tmic-list@eskimo.com. And please join me in remembering Mike Hammond, whose birthday was 3/8, who passed away a few years ago. 3-3 Marsha Scholes (marshab...@comcast.net) 03.05 Bettie Imus (bettie5...@aol.com) 3-7 Sue Mattis (bobsue6...@adelphia.net) 3-15 Sandra Melville (luth...@comcast.net) 3-17 Joy S. (joyst...@aol.com) 3-19 Betty Clark (beecl...@aol.com) 3/24 john h (JOHNLOVESKARAOKE) 3/26 Jane Elrod (celr...@aol.com) 3/30 Gary (gbthomas8...@sbcglobal.net) 3-31 Jan H (jmh1...@sbcglobal.net)
Re: [TMIC] Baclofen Pump
I'm so glad the trial went so well for you! I hope you have good results with the surgery. Barbara H. On Fri, Mar 1, 2013 at 11:24 AM, Robert Pall robthe...@aol.com wrote: I went for the trial for the Baclofen Pump a few weeks ago and I was amazed at the result. After injecting a small dosage of Baclofen directly into my spinal, with 1/2 hour the spasticity in my legs was greatly reducedand it continued to lessen over the next 2 hours. The entire trial lasted less than 4 hours and is a requirement prior to getting the pump. I have decided to go ahead with surgery for the pump. I will be in the hospital for 24 hours and then transported to a rehab center for approx. 2-3 days. The thought of having this device inserted into my body is not a pleasant one...although I have been assured I won't even know it is there. My decision is based solely on the fact that if I do not do it I will second guess myself the rest of my life. I am having the surgery done on June 27th. For the people in the NJ TM support group I hope to have the next meeting Mid April where I can discuss it in greater detail. In addition there will be a walk for TM on April 13th at Cooper Park in Pennsauken NJ. Anyone wishing to attend please let me know. Last year more than 200 people attended the walk and it raised over $10,000. All the best! Rob in New Jersey
Re: [TMIC] Hi group.
Hi, Dennis, and welcome. I'm so sorry you ended up paralyzed and in a nursing home. Depression is understandable. I hope we can be of help, either with answers to questions or just moral support. Barbara H. http://barbarah.wordpress.com On Thu, Feb 14, 2013 at 1:54 AM, dennis rabalais dennis_rabalais20...@yahoo.com wrote: Hi group. My name is Dennis Rabalais. I am 39 years old and I have TM. I was paralyzed at 29 years old. It started out with West Nile virus and inturn started the onset of TM. I 've lived in nursing homes since then. It's been very troubling, something I cannot understand why it happened, or even how. I've gone through major depression and still going through it. Well, that's my story. Nice to meet all y'all. God bless and have a great night! Sent from Yahoo! Mail on Android
Re: [TMIC] AGE AND STATE
I was 38 and near Atlanta, GA at the time TM struck. Barbara H. Sent from my iPhone On Feb 12, 2013, at 8:17 PM, Janice Nichols jan...@centurytel.net wrote: I am requesting a quick answer from all of you, whether you just read the posts or usually respond to comments, questions, etc. A long time ago, I asked TM’ers to give me the age at which TM struck you. Since then we have added a lot of people to the group and I would really like another tally.Also, would you mind giving the state you were living in when TM struck?I would add these up and figure out what the average age TM struck and what state seems to be most prominent. Thank you. Janice – age 60 – Missouri
Re: [TMIC] RE:Pam Kinkade
Do you mean Pam Montz? I don't have any letters but you can search the archives of the TMIC at http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html for her past emails here. Barbara H. Sent from my iPhone On Feb 11, 2013, at 6:57 PM, heyjude48...@aol.com wrote: Hello All, Does anyone have old letters from Pam Kinkade? I would like to write a book about her and her struggle with TM, her attitude, friends and her life. Mistakenly I erased all her letters from my computer. I had hundreds of them. We wrote several times a day. I really will appreciate your help on this. It means a great deal to me. If you could send them to me it would be wonderful. We are all great people but she and I shared something special. She was such a good person maybe all of you feel that way. Also I need Dan's email address if anyone still has it. For those of you that still keep those records if you have emails from me that I can read, please send them to me too. Of course, only the meaningful ones. Thank you for your help. Jude Michigan
[TMIC] February birthdays
Happy Birthday to those born in February! Please send any additions or corrections to tmic-list@eskimo.com. 2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com) 2/2 Ursula (uma...@t-online.de) 2/2 Lisa in TN (lsim...@aol.com) 2-5 Tita in Delaware (t-...@usa.com) 2-6 Barbara Alma (balmat...@aol.com) 2-7 Barbara in Texas (babbsie1...@yahoo.com) 2/11 Mary (mster...@yahoo.com ) 2-11 Deb Casey (casey...@myway.com) 2/15 Jill (jillybean60...@yahoo.com) 2-17 Joan Fink (2-17 mafi...@yahoo.com) 2/26 Patti - Michigan (pjv1...@chartermi.net) 2/27 Cindy (rdavi...@san.rr.com)
Re: [TMIC] neurologist
That is maddeningly ridiculous and sounds more like the idea of karma. Job was afflicted even though God Himself said he had done nothing wrong. In John 9:1-4 it says, As [Jesus] passed by, he saw a man blind from birth. And his disciples asked him, 'Rabbi, who sinned, this man or his parents, that he was born blind?' Jesus answered, 'It was not that this man sinned, or his parents, but that the works of God might be displayed in him.' I once wrote up an extensive list of reasons the Bible gives for suffering: http://barbarah.wordpress.com/2007/07/16/scriptural-reasons-for-suffering/ Barbara H. On Fri, Jan 18, 2013 at 11:03 AM, Janet Dunn j.d...@shaw.ca wrote: The last neuro that I went to told me that when you are not living a good life, then God will afflict you. When you straighten up your life and live the way you are supposed to, a way that is pleasing to God, then He will stop the affliction. He told me to go home and be grateful that my affliction has not caused more damage, and that God has allowed me to get to where I am. geesh, thanks buddy. Janet
Re: [TMIC] neurologist
I think we do so by praying as we read, for God to help us understand, then by reading verses in context rather than stringing isolated verses together. The church I went to as a teenager strongly advocated reading the Bible through, and that has been the biggest help to me. There are seeming opposites in the Bible that hold each other in balance, and a lot of error comes in when people tip one way or the other. Barbara H. On Fri, Jan 18, 2013 at 1:01 PM, heyjude48...@aol.com wrote: ** *Janet,* ** *I hope you ran out of that neurologists office really fast! And, I assume you never went back. * ** *Barbarah,* ** *You are right too. That's why I find the Bible so confusing. How is one supposed to figure out how to discover it without misconstruing the meaning?* ** *Jude in Michigan* ** In a message dated 1/18/2013 11:27:09 A.M. Eastern Standard Time, barbara...@gmail.com writes: That is maddeningly ridiculous and sounds more like the idea of karma. Job was afflicted even though God Himself said he had done nothing wrong. In John 9:1-4 it says, As [Jesus] passed by, he saw a man blind from birth. And his disciples asked him, 'Rabbi, who sinned, this man or his parents, that he was born blind?' Jesus answered, 'It was not that this man sinned, or his parents, but that the works of God might be displayed in him.' I once wrote up an extensive list of reasons the Bible gives for suffering: http://barbarah.wordpress.com/2007/07/16/scriptural-reasons-for-suffering/ Barbara H. On Fri, Jan 18, 2013 at 11:03 AM, Janet Dunn j.d...@shaw.ca wrote: The last neuro that I went to told me that when you are not living a good life, then God will afflict you. When you straighten up your life and live the way you are supposed to, a way that is pleasing to God, then He will stop the affliction. He told me to go home and be grateful that my affliction has not caused more damage, and that God has allowed me to get to where I am. geesh, thanks buddy. Janet
Re: [TMIC] Healing broken bones
Jude, have they said why your bones aren't healing? Do you have diabetes? Barbara H. From: heyjude48...@aol.com Date: Friday, 18 January 2013 5:10 PM To: tmic-list@eskimo.com Subject: [TMIC] Healing broken bones Resent-From: tmic-list@eskimo.com Resent-Date: Fri, 18 Jan 2013 14:10:24 -0800 *Do any of you remember anything about healing broken bones besides electrical stimulation and the oxygen chamber?* ** *I haven't googled it yet, but will do so now. If anyone comes up with something in the meantime, please let me know.* ** *Thanks,* *Jude in Michigan*
Re: [TMIC] neurologist
I think it depends on one's needs. I've had TM for 17 years and haven't seen a neurologist in about 14 years. I got to an acceptable plateau (can walk and pretty well function as a homemaker and volunteer, have some issues with fatigue, balance, and muscle spasms. I don't think I could hold down a job for various reasons, but I've been able to raise my children, keep my home, and help out in various areas at church and my kids' schools). I am not on any TM-related medications, so when we moved to another state, I didn't seek out a new neuro. It helped that my PCP was knowledgeable about TM and willing to refer me to anyone I wanted to see -- it was through him I was referred to a urologist for problems in that realm. If I had problems that only a neuro could help with or was on certain medications that it would be best for him to monitor, I'd see one, and I'd encourage anyone with any of those needs to keep seeing one, but otherwise there is no need to see him every year just to hear that everything is the same, which is about where we were when I last saw him. Of course, if new problems or questions crop up, I wouldn't hesitate to seek one out. Barbara H. http://barbarah.wordpress.com On Thu, Jan 17, 2013 at 11:21 AM, Robert Pall robthe...@aol.com wrote: I disagree with all of you who are saying that you have either stopped going to a neurologist or see one very infrequently. I saw Dr Kerr at John Hopkins for the first 10 years after coming down with TM. I go to my neurologist at least once per year to insure that my meds are the best they can be. New Medications and procedures happen all of the timeby seeing a neuro I assure myself that I am getting the best treatment possible. Just last week I changed to a new neurologist, Douglas Holland in West Long Branch NJ. Not only did he prescribe medical marijuana for me he also set up a test to inject baclofin directly into my spine and see over a period of 4 hours if it makes a noticeable improvement. If it does we may consider the baclofin pumpif it does not we will explore other options to help me better cope with my pain and discomfort. I head up the New Jersey TM support group. The main benefit of a support group is comparing doctors and medicines that others are seeing or taking and perhaps get some new ideas regarding treatment. At our last 2 meetings we had as a guest speaker the head of physical therapy who gave us many ideas of simple things we could do in our own homes to exercise as well as hospital treatments that could prove beneficial. I have had TM for over 15 yearsand I have fought this condition every single day. I cannot walk very wellbut I have learned that I can swim pretty good. I now swim one mile a day..and even if this is doing nothing for my TM it is at least giving me a great cardio workout. Finally I purchased a Golden Retriever..this 60lb dog forces me to walk at lease 1 hour every day. Start living or start dying! All the best! Rob in NJ
[TMIC] January birthdays
Happy Birthday to those celebrating in January! And Happy New Year, too! Please send any additions or corrections to tmic-list@eskimo.com. 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1-17 Ginna Hamilton (ginnahamil...@yahoo.com) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday (snow121...@hotmail.com) 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
Re: [TMIC] December birthdays
My step-father's birthday is a few days after Christmas and he often gets two-for-one presents, too. Barbara H. On Sun, Dec 2, 2012 at 10:15 AM, a-ry...@comcast.net wrote: I used to think it a bummer that my birthday was ten days before Christmas, but now I see that Roger and Gilly have theirs much closer. Alton, who as a kid would get two-for-one presents
[TMIC] December birthdays
Happy Birthday to those born in December. May your days be merry and bright! Please send any additions or corrections to: tmic-list@eskimo.com 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3 Janice (jan...@centurytel.net) 12-3 Wim from Holland (wim_from_holl...@hotmail.com) 12- 4 Jan Burgess (ja...@rogers.com) 12-7 Patti in Wisconsin ((wpcoo...@gmail.com) 12-8 Lori Malloy (jorlcummi...@earthlink.net) 12-15 Alton Ryder(a-ry...@comcast.net) 12/23 Roger Pratt (r.c.pr...@frontier.com) 12-25 Gilly (gillyma...@aapt.net.au) 12/31 Janet (j.d...@shaw.ca)
[TMIC] October birthdays
Wow, I'm sorry I am so late with these! It's been busy and time got away from me. But I hope all of you born in October have a wonderful birthday. Please send any additions or corrections to tmic-list@eskimo.com. 10-3 Lauren Graham (grahamsn...@aol.com) 10/4 Neil McNeil (n...@hotmail.com) 10-7 Naomi (ladyno...@aol.com) 10/08 Rudy Aceves (race...@vengrp.com ) 10/9 Assunta Rene (robert...@hotmail.it) 10/11 Lori B. (lbieh...@earthlink.net) 10-11 Kate (nicwi...@cox.net) 10-12 Diana Gray (graymyfat...@aol.com) 10/14 Marieke Dufresne! (marieke...@hotmail.com) 10/14 Lanora (noni...@hotmail.com) 10/16 Sandy Parker (parkersw...@aol.com) 10/16 Linda Cherpeski (cherp...@msn.com) 10-21 Renee A. in CT (littlem...@aol.com) 10-21 Cody Kidwell (c...@austin.rr.com) 10/21 Candy K (cakal...@embarqmail.com) 10-23 Keith (leboo...@cfl.rr.com ) 10-25 Debby Jones (ladybutl...@comcast.net) 10-26 Jim Lubin jlu...@eskimo.com 10-26 Bernie Pelow ((bpe...@austin.rr.com) 10/27 Robin (moldr3...@aol.com) 10/27 Krissy (ladykri...@comcast.net) 10-28 Netta Ganor (net...@isdn.net.il)
Re: [TMIC] Looking for input.
My doctor encouraged something called double voiding - going to the bathroom, then coming back in a few minutes to go again. It's frustrating sometimes not to be able to get it all done at once, but it helps. Barbara H. Http:// barbarah.wordpress.com Sent from my iPhone On Sep 9, 2012, at 9:10 PM, Janice Nichols jan...@centurytel.net wrote: I did self cathing for about 2 years.I no longer have to do it.I can now clear my bladder on my own. Keep us posted. Janice From: Ibridgets Sent: Saturday, September 08, 2012 6:56 PM To: jan...@centurytel.net Cc: jcs...@yahoo.com ; xbeecla...@gmail.com ; j.d...@shaw.ca ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. I will be calling the TX urogynecology association on Monday to make an appt and see how quickly I can get in. Apparently she has some type of therapy she can do in her office and if that doesn't work it will be self cath. I will let u all know how it works as soon as I have my first appt and will let u know how this appt goes and I am praying for all of us. Sent via the Samsung Galaxy S™ II Skyrocket™, an ATT 4G LTE smartphone. Original message Subject: Re: [TMIC] Looking for input. From: Janice Nichols jan...@centurytel.net To: Bridget Skinner ibridg...@gmail.com CC: john snodgrass jcs...@yahoo.com,Elizabeth Clark xbeecla...@gmail.com,Janet Dunn j.d...@shaw.ca,tmic-list@eskimo.com Well at least you have found some answers. That is always a plus. Let me know how the bladder retention goes – I think most of us have a problem in some way with our bladders and it will be interesting to see what they find with you. Thank you for sharing – we appreciate it. Janice From: Bridget Skinner Sent: Saturday, September 08, 2012 5:49 PM To: Janice Nichols Cc: john snodgrass ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. I wanted to let you know as promised that i FINALLY got insurance in place and I saw my neurologist. I have something called myoclonus and am being treated for the jerking. The twitching in my fingers is because of my brain knowing how to type fast and my spine is keeping it to do so. I understand what he told me but it is difficult to explain. But, the jerking and the twitching are different. The inflammation from the TM did a number on my spine but at least the jerking isn't as scary knowing it can, and is, being treated. I feel relieved and hope the medication works. I have a referral to see someone about my bladder retention issues also.Thank you for your support. On Tue, Jun 26, 2012 at 7:46 AM, Janice Nichols jan...@centurytel.net wrote: Bridget, Are you sure you can’t get into the doc until August?Have you told them your symptoms and they stillrefuse until August? How about seeing your yearly doc you saw before TM? He/she could probably get you in way before August. I have taken both Neurontin and Lyrica.I am back on Neurontin after trying Lyrica.Lyrica caused a lot of swelling in feet and ankles.Some prefer it and have no problems. As far as the urinating problem - I think most of us have that problem.The important thing is that you are able to completely void your bladder. Do you have problemswetting during the night or are you able to feel enough to wake up to go to the bathroom? Again, the important part is voiding the bladder. I think it is important to get into the doc soon.You can call his office, ask to speak to his/her nurse and explain what is happening to you. Be adamant that you need to be seen quickly after having convulsions/seizures.I would think that would get their attention, if not, find a doc who will see you. Your first neurologist will send the info on you to the new one. Good luck and please keep in touch with us with your progress with these issues. Janice From: Bridget Skinner Sent: Monday, June 25, 2012 9:32 PM To: john snodgrass Cc: Janice Nichols ; Elizabeth Clark ; Janet Dunn ; tmic-list@eskimo.com Subject: Re: [TMIC] Looking for input. Thank you so much for replyingit's so nice to hear other experiences. I am so sorry what you are going through and I totally understand the million other symtoms that come along as soon as you lose one. I too am on 80 mg of baclofen (seems like the magic number) and have been for awhile. It is possible, I guess, that after awhile your body starts to tolerate the meds. They started me on baclofen when I was still in the hospital. I was just starting to feel parts of my legs and it was excruciating pain. (at least I could feel, I thought). and they gradually increased the baclofen to 80. like i said I am so scared and can't get in until August 1st to see my neurologist. I try to take as many precautions as possible not to hurt myself but when I
[TMIC] August Birthdays
August is one of the biggest birthday months for TMers! Happy Birthday to my fellow August birthday celebrants! Please send any additions or corrections to tmic-list@eskimo.com. 8/1 Peachi (pkeene2...@aol.com) 8/1 Cindy McLeroy (cindymcle...@socal.rr.com) 8- 1 Stacy Firth (safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.com) 8-11 Raylene Gökeri (mrs_gok...@yahoo.com) 8-11 Michelle Maricic (mmari...@aol.com) 8-11 Dalida S. Ortiz de Garcia (py...@yahoo.com) 08/17 Sandra (Harth) Brassil (sbras...@aol.com) 8-17 Kim (jnks...@huntel.net) 8-19 Saroj (sarojkumar...@gmail.com) 8-21 Barbara H. (barbara...@gmail.com) 8-23 Cole (neilandwe...@rogers.com) 8-29 Kathleen (kathleen.kar...@gmail.com) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )
[TMIC] July Birthdays
Happy Birthday to the July kids! Hope you enjoyed the fireworks! :-) Please send any additions or corrections to tmic-list@eskimo.com. 7-5 Sumer (fjs181...@aol.com) 7/5 Rick in tn (ashfo...@att.net) 7-14 Julie (chi...@cox.net) 7-15 Sandi Siegel (ssie...@myelitis.org) 7-24 Kevin Weilacher (hwyfli...@yahoo.com) 7-25 Peggy Wilson (pwi1991...@aol.com) 7-25 (jennapa...@aol.com) 7-25 Michelle Balliet (chelley...@aol.com) 7-27 Linda (lp...@aol.com) 7/29 Hildred (missprissgran...@aol.com) 7/30 Dex Packard (d...@centurytel.net)
Re: [TMIC] Looking for input.
I haven't really noticed if spasms are worse, but my main problem with the heart is that it just drains me of energy. I'm much more easily fatigued in the heat, but I am stiffer in the cold and am almost home-bound when it is icy due to balance and footing problems. Barbara H. http://barbarah.wordpress.com On Mon, Jun 25, 2012 at 1:29 AM, Janet Dunn j.d...@shaw.ca wrote: Hello Everyone - not sure who is on here anymore. I have written in before, several times in fact, bemoaning the issues that I have with the cold cold winters that we get up here in northeastern BC. Now, it is the heat. My question is this: does excessive heat cause issues like the cold does? I have never noticed it before, but this year I quit taking Lyrica, and I cannot get the spasming in my leg to stop, no matter what I try. I am wondering if stopping the lyrica has contributed to the increase in pain, or if it is heat related? Thanks for your input. Janet
[TMIC] June Birthdays
Happy Birthday to those born in June! We also remember two TMers who have passed on whose birthdays were this month: Tom Carr (halfj...@sbcglobal.net) on 6-2 and Dennis Galvan ( dennis_gal...@uccsn.nevada.edu) on 6-25. Please send any additions or corrections to tmic-list@eskimo.com 6-1 Akua (a...@artfarm.com) 6-5 Tobe Kanon (spirita...@verizon.net) 6/11 Marabeth (mes...@earthlink.net) 6-11 Sharon Marsden (dorightra...@yahoo.com) 6-17 Cheryl (rn11...@yahoo.com) 6-19 Tom in Delaware (t-...@usa.com) 6-19 Debbie Capen (dca...@earthlink.net) 6-22 Ann Moran (annmo...@gofree.indigo.ie) 6-22 Gerry (suret...@sympatico.ca) 6-24 Lynne (lynnemye...@yahoo.com) 6-25 Errol White (eamjwh...@bigpond.com ) 6-28 Kim Harrison (kimharrison...@comcast.net) 6-29 Pauline (prha...@aol.com) 6/30 Bobby Jim (elbobber...@earthlink.net)
Re: [TMIC] Is anyone here?
Still here! :-) It seems like the list here goes pretty quiet for several days in a row and then will have a flurry of mail for a few days. I'm about the same -- walking, but not always steady, balance issues, bathroom issues, fatigue and muscle spasms, but overall doing well. Barbara H. http://barbarah.wordpress.com On Thu, May 17, 2012 at 8:33 AM, Robert Pall robthe...@aol.com wrote: Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
Re: [TMIC] the list
Sorry, it's an automated process you have to do yourself. Here are the instructions from the TMIC web site at http://www.myelitis.org/tmic/: Unsubscribe from TMIC-LIST To unsubscribe from the list, send email to tmic-list-requ...@eskimo.comtmic-list-requ...@eskimo.com?Subject=unsubscribebody=unsubscribe, with the Subject *unsubscribe*. That's all that's needed. To unsubscribe from the digest, send email to tmic-digest-requ...@eskimo.comtmic-digest-requ...@eskimo.com?Subject=unsubscribebody=unsubscribe, with the Subject *unsubscribe*. That's all that's needed. Note: AOL users some other mailer may require something written in the message body before it will send. Note that the subscribe/unsubscribe address *is different from* the regular TMIC address. On Thu, May 17, 2012 at 1:18 PM, Leslie Ballard ljballard...@yahoo.comwrote: PLEASE REMOVE ME FROM EVERYONES LIST! I hav requested that in the past but keep getting e mails. Thank you in advance! -- On Thu, May 17, 2012 11:33 AM CDT Candy wrote: Hi. I am a new member and finding it very hard to find anyone using the actual website. I do not like Facebook. Was hoping the forum used on the site would stay current with folks given their experiences and treatment. I use to blond to a site for sarcoidosis called team inspire. they have a great set up for communicating and being able to talk with an individual off line. Having new health issues are scary and hope to find others who have similar problems. I am sitting at my infusion center getting my first rutaxin treatment. God bless all Candy Sent from my iPad On May 17, 2012, at 9:32 AM, rn11...@yahoo.com rn11...@yahoo.com wrote: Hi Rob, I'm still here,but seldom get posts from the tmic site. Sadly,it seems almost everyone has moved to facebook. I'm not a fan of that site,so I just don't post much anymore. If I post on tmic, I get few replies. I do wish facebook would go away (fat chance of that) so we could have our group back. I miss everyone! There was a nice feel to our tmic group. I hope you are doing okay. Cheryl From: Robert Pall robthe...@aol.com To: tmic-list@eskimo.com Sent: Thursday, May 17, 2012 8:33 AM Subject: [TMIC] Is anyone here? Hi...lately the only mail I receive is fromfriends living with TM I just left that facebook room because I was getting far to many chats. Is our network still active or has everyone joined another group. This is where I started and this is where I belong. I would love to hear back from all of the active members and see how they are doing! Rob in New Jersey
[TMIC] Exercising with limited mobility
I saw this link today and thought some of you might be interested. I've been reading SparkPeople.com for a while now and getting their daily e-mails, and one recent one had this link to exercises for those with limited mobility: http://www.sparkpeople.com/resource/lifestyle_center_detail.asp?id=19 I haven't looked into it much more than a quick perusal yet, but I was interested because when I've tried different workout DVDs or systems, I've haven't found any that I can do all of (I can walk but can't run, am wobbly, have balance problems, and my knees and ankles give out). I've found a couple of walking DVDs that are helpful (that show different stretches and steps to break up the monotony) and can do some of the exercises on the Biggest Loser Ultimate Workout for the Kinect game system, but at several points have to adapt somehow because I can't follow the routine at points. I was exercising regularly for the first time in ages last year but injured my back just before Thanksgiving, and haven't gotten back into a routine. That's one thing I discovered: exercising helped some muscles immensely but also seemed to set off muscle spasms in my back. It also helped increased stamina and energy levels, so I need to get back into it and find exercises I can do. Anyway -- I want to look into these more but thought I'd go ahead and pass them along. Barbara H. http://barbarah.wordpress.com
[TMIC] April Birthdays
Happy Birthday! May all your April showers bring May flowers! (Please send any additions or corrections to tmic-list@eskimo.com.) 04/03 Jeron Rampersad (rumc...@hotmail.com) 4/10 Marie Dipietro (deer...@aol.com) 4/18 Bernard Butcher (bernie.butc...@honeywell.com) 4/20 Dianna (carg...@cs.com) 04/20 Todd Tarno (toddtm2...@sbcglobal.net) 4/21 Robert Diehl (sawmil...@verizon.net) 4-25 Shelia (sc...@aol.com) 4-29 Dalton H. Garis (malugss...@gmail.com)
[TMIC] In Memorium
As I was preparing the birthday list for this month, I saw that April was the birthday month of two long-time TMIC members who have passed on: Ken Oliver (birthday: April 1) who just passed away this last year I think, and Doc (Roger: I am not sure of his last name) (birthday: April 24). I don't have the contact information for any of their family members, but if any of you do, they might appreciate hearing that we were thinking of their loved ones and their loss and ours. Barbara H. http://barbarah.wordpress.com
[TMIC] March Birthdays
Happy Birthday to those born in March! Please send any additions or corrections to tmic-list@eskimo.com. 3-3 Marsha Scholes (marshab...@comcast.net) 03.05 Bettie Imus (bettie5...@aol.com) 3-7 Sue Mattis (bobsue6...@adelphia.net) 3-15 Sandra Melville (luth...@comcast.net) 3-17 Joy S. (joyst...@aol.com) 3-19 Betty Clark (beecl...@aol.com) 3/24 john h (JOHNLOVESKARAOKE) 3/26 Jane Elrod (celr...@aol.com) 3/30 Gary (gbthomas8...@sbcglobal.net) 3-31 Jan H. (jmh1...@sbcglobal.net)
Re: [TMIC] Please help!
Hi Sally, I don't know if anyone has answered you privately. I haven't seen an answer come through the list, so here goes: To Unsubscribe, send an e-mail to tmic-list-requ...@eskimo.comtmic-list-requ...@eskimo.com?Subject=unsubscribebody=unsubscribewith Unsubscribe in the subject line. It's automated, so you don't need to write anything more unless your e-mail provider requires something in the body of the e-mail. Please note that this is different from the regular TMIC e-mail TMIC list email :tmic-list@eskimo.com Subscribe/Unsubscribe e-mail: tmic-list-requ...@eskimo.comtmic-list-requ...@eskimo.com?Subject=unsubscribebody=unsubscribe . I think that's where most people make a mistake. Barbara On Thu, Jan 26, 2012 at 9:01 AM, Sally Wilkinson sally.wilkin...@genesisdesign.uk.com wrote: This is Sally Wilkinson in the UK. I am not the brightest cookie in the jar, as I have been trying to unsubscribe since before Christmas! I am the wife of a TM'er, and can not spare the time to read the posts at work anymore for fear of my MD catching me. Plus my husband has his own TM people he talks to. ** ** All the very best to all of you,( and good-bye soon I hope.) Someone said Jim Lubin could help? As the only breadwinner in my house I really do need to escape please! ** ** Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 sally.wilkin...@genesisdesign.uk.com www.genesisdesign.uk.com ** ** [image: Description: Description: Twitter]http://www.twitter.com/genesis3ddesign ** ** Genesis Portfolio http://twitpic.com/photos/Genesis3DDesign ** ** image002.jpg
[TMIC] January Birthdays
Happy Birthday to the New Year's kids from January! Please send any additions or corrections to tmic-list@eskimo.com. 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1-17 Ginna Hamilton (ginnahamil...@yahoo.com) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
Re: [TMIC] Cody in icu
I'm so sorry he has been having problems, but I am glad to hear that he seems to be doing better. Hope the improvement continues and he's able to come home soon. Barbara H. http://barbarah.wordpress.com On Wed, Dec 7, 2011 at 4:50 PM, Cody c...@austin.rr.com wrote: Hi all, Just got in from the hospital. He is off the ventilator, still has feeding tube but they are going to do a swallow test and he may get off of it tonight or tomorrow. They have not found any sign that he is having any neurological problems and I felt like hugging the doctor. They still have some of the test that haven’t came in yet from the spinal tap, but he said he wasn’t expecting anything. He was doing well enough I came home to get some things done..Judy
[TMIC] November Birthdays
Happy Birthday to those celebrating in November! Please send any additions or corrections to tmic-list@eskimo.com. 11-01 Ella (elbanks...@aol.com) 11-2 Jeff (jeffsmokeea...@yahoo.com) 11-03 Gina (gina1103c...@aol.com) 11-6 Margaret Monson (mag...@telus.net) 11-8 Diane (mon...@sympatico.ca) 11-12 Marie (chestnutr...@gtcom.net) 11/13 Kevin (wolft...@optonline.net) 11-17 Becky opi...@bellsouth.net 11/18 Drema (dho.d...@comcast.net) 11/20 Cossy (cos...@yahoo.com) 11/22 Judy Hoops (heyjude48...@aol.com) 11-25 Gunny (bgunny7...@aol.com) 11-27 Jack McMillan at rebarj...@aol.com 11-30 Louise Flagg (fla...@webtv.net)
Re: [TMIC] No Messages
I don't know -- there have been several. Did you get accidentally unsubscribed and have to resubscribe? That has happened to me several times. You can check the messages that have come through TMIC at the archives here: http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html Barbara H. http://barbarah.wordpress.com On Sat, Oct 29, 2011 at 11:46 AM, Carol E snow121...@hotmail.com wrote: I have not received 1 message for a month. What happened? *Carol * Worrying does not empty tomorrow of its troubles; It empties today of its strengths.
Re: [TMIC] How can a spouse help?
On Mon, Oct 10, 2011 at 12:08 PM, Barbara H. barbara...@gmail.com wrote: Dear Andrea, I'm so sorry to hear that your family is going through this. It definitely takes a while to adjust. I would echo what others have said about seeing a neurologist to let him know whatever meds he is on aren't helping with the pain. It may lessen over time -- for me pain was only an occasional thing, not constant, but after 16+ years it's not a regular problem any more. Physical therapy helped me immensely with movement and balance -- I don't know if help in those areas would help with pain as well. I mainly just wanted to encourage you not to take his anger personally. Different people react differently to TM, and anger can be a stage of grief in adjusting to what he has lost. Should he take it out on you? No, and hopefully some day soon he will see that. But you are the closest person to him and the one with whom he can most easily let down his guard, so you tend to be the recipient. We're here for you -- whether you have questions or just need to vent. Barbara H. http://barbarah,wordpress.com On Mon, Oct 10, 2011 at 9:38 AM, Andrea and...@cleverendeavours.co.ukwrote: Dear TM support group, ** ** My husband became ill with TM in May 2011 and his symptoms have remained constant. He is in extreme pain from his chest down to his toes. The pain can be burning, tingling, icy, stabbing… He is now saying that he wants to end his life because he can no longer endure the suffering. He says that I am no help and do not understand what he is going through. This is correct. I do not understand. Because he looks normal, it is easy to forget that he is in constant pain. This is why I went online to see if I can find a group that does understand and can possibly provide hope for him. I realise there is no guarantee that the symptoms will go away, but after reading your online stories, it looks like it can be possible. ** ** Additionally, what can a spouse do to provide more support? He has had the symptoms for almost 6 months and every day plays like a broken record. I ask every day how he is and he unleashes a long list of painful symptoms. Besides taking his meds, is there any other therapy I can arrange for him that may provide relief? I feel useless. He is angry that I am not doing more, but I do not know what I can do besides taking care of the home and kids without burdening him with additional tasks. ** ** Any advice would be greatly appreciated. Warm regards, Andrea ** **
Re: [TMIC] My son Chris OFF TOPIC
Oh my Jane...I am so very, very sorry Barbara H. On Thu, Oct 6, 2011 at 6:10 PM, celr...@aol.com wrote: ** MY SON CHRIS DIED LAST NIGHT. HE WAS DIABETIC AND DID NOT TAKE CARE OF HIMSELF. HE WAS 36 YEARS OLD. I DON'T KNOW HOW I WILL BE ABLE TO BURY HIM. THE LORD WILL MAKE A WAY SOMEHOW. MY SECOND DAUGHTER PAM DIED LAST DEC 1, 2010. SORRY I JUST NEED TO EXPRESS MYSELF JANE/SPLENDORA TX
[TMIC] October Birthdays
Happy Birthday to the October kids! Please send any additions or corrections to tmic-list@eskimo.com. 10-3 Lauren Graham (grahamsn...@aol.com) 10/4 Neil McNeil (n...@hotmail.com) 10-7 Naomi (ladyno...@aol.com) 10/08/1974 Rudy Aceves (race...@vengrp.com ) 10/8 Tim Holder (thol...@fbclr.org) 10/9 Assunta Rene ( robert...@hotmail.it) 10/11/56 Lori B. (lbieh...@earthlink.net) 10-11 Kate (nicwi...@cox.net) 10-12 Diana Gray ( graymyfat...@aol.com) 10/14 Marieke Dufresne! (marieke...@hotmail.com) 10/14 Lanora (noni...@hotmail.com) 10/16 Sandy Parker ( parkersw...@aol.com) 10/16 Linda Cherpeski (cherp...@msn.com) 10-21 Renee A. in CT (littlem...@aol.com) 10-21 Cody Kidwell ( c...@austin.rr.com) 10/21 Candy K (cakal...@embarqmail.com) 10-23-60 Keith (leboo...@cfl.rr.com ) 10-25 Debby Jones ( ladybutl...@comcast.net) 10-26 Jim Lubin jlu...@eskimo.com 10/27 Robin (moldr3...@aol.com) 10/27 Krissy ( ladykri...@comcast.net) 10-28 Netta Ganor (net...@isdn.net.il) 10/31 Jennifer Spence (jenniferspe...@cogeco.ca)
Re: [TMIC] OFF TOPIC; my cancer marker results
So glad to hear that! Thanks for letting us know. Barbara H. http://barbarah.wordpress.com On Thu, Sep 22, 2011 at 4:15 PM, rn11...@yahoo.com rn11...@yahoo.comwrote: Hi Everyone, Got my blood work results today. My CA2729 (a cancer marker) has gone from 112 down to 53.8 . The letrozole seems to be working! Thank you for the prayers,I really appreciate it. Cheryl
[TMIC] Is Living With Illness Choosing to Give In?
Just saw a really neat article on a friend's Facebook: Is Living With Illness Choosing to Give In? http://invisibleillnessweek.com/2011/09/06/is-living-with-illness-choosing-to-give-in/ It's not directly TM related but I would guess many can identify with it.. Barbara H. http://barbarah.wordpress.com
Re: [TMIC] September birthdays
If you (and anyone else) will let me know when your birthday is, I'd be glad to add it on. I don't know these things unless someone tells me. Every month I add to the birthday list Please send any *additions* or corrections to tmic-list@eskimo.com. (Or you can send it to me privately -- I just put the TMIC address so everyone will be aware of it. If you've sent it before and I missed it, my apologies. But I'd be happy to correct that now. Barbara H. On Thu, Sep 1, 2011 at 2:37 PM, randy rankin rj_ran...@yahoo.com wrote: thanks for birthday wish. as usually, my name gets left off the list lol - 4th year in a row lol but it just reminds how old that i'm getting *From:* Barbara H. barbara...@gmail.com *To:* tmic tmic-list@eskimo.com *Sent:* Wednesday, August 31, 2011 11:01 PM *Subject:* [TMIC] September birthdays Happy Birthday to the September kids -- hope you each have wonderful birthdays! Please send any additions or corrections to tmic-list@eskimo.com. Most of you remember Pam Montz -- her birthday was 9/9, but she passed away not too long ago. I don't know if her husband kept her e-mail open (it was montzma...@aol.com), but you might keep her family in your thoughts and prayers and maybe even send a note if you feel led to do so. 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.net) 9-17 Bill Wimberly- (bwimbe...@bellsouth.net) 09/20 Rob Pall (robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.com)(mushr...@hotmail.com) 9-24 Suzi in Seattle (ss1...@aol.com) 9/26 Allen Rucker a...@allenrucker.com 9/30 Patti Enstrom (pge...@aol.com )
[TMIC] September birthdays
Happy Birthday to the September kids -- hope you each have wonderful birthdays! Please send any additions or corrections to tmic-list@eskimo.com. Most of you remember Pam Montz -- her birthday was 9/9, but she passed away not too long ago. I don't know if her husband kept her e-mail open (it was montzma...@aol.com), but you might keep her family in your thoughts and prayers and maybe even send a note if you feel led to do so. 9/5 Mavis White (Errol's wife) (eamjwh...@bigpond.com ) 09-06 Jake DeGrand (judidegra...@yahoo.com) 9-8 Mary Davidson (keebe...@aol.com) 9/8 Terry Parker (parkersw...@aol.com) 9-16 Mary Eden Cochran (coch6...@bellsouth.net) 9-17 Bill Wimberly- (bwimbe...@bellsouth.net) 09/20 Rob Pall (robthe...@aol.com) 9-23 Karen (Mushroo) (mush...@juno.com)(mushr...@hotmail.com) 9-24 Suzi in Seattle (ss1...@aol.com) 9/26 Allen Rucker a...@allenrucker.com 9/30 Patti Enstrom (pge...@aol.com )
Re: [TMIC] gone to facebook
I'm still here, too. I don't comment as much -- if someone else has already said what I might have said, then I don't usually chime in. The TMIC as a whole is not nearly as active as it was when I first joined back some...oh, 14-15 years ago. I'm coming up on my 16th anniversary with TM on Sept. 1. I think one reason is that there is a lot of information available online now, and that's a good thing. When I first contracted TM, I didn't have a computer, and the local library had a two-page spread in one medical book, and that was it. TM was the first thing I searched for when we did get a computer, and this group was the first concrete link I found. It was a godsend, really, to have somewhere to post questions and compare notes. But now that so much more information is online, people may be getting their questions answered in their own research. And I think, too, for some of us who have been here a while, we've gotten our basic questions answered (even if the answer in some cases is that there is no known answer), so there's not as much to talk about. The main reason I stay on now is to be of help if anyone else has a question or just needs some empathy and support. Too, as Roger said, some have gone on to other means of communication now. I think the TM message board or bulletin board was pretty active for a while, and now Facebook is where many people go to interact online. I was in the group there for a while, but left -- the 50+ messages Bobby Jim referred to were just too much for me. When I first came online, TMIC was about the only thing I did online besides an occasional e-mail to family who had e-mail. But now nearly everybody has e-mail, many friends are on Facebook, I've found several blogs I read as well as news and entertainment -- now I have to be careful not to let computer time eat up too much of my day. And I don't know, but I think that may be the biggest reason some folks aren't as active. When I send out birthday greetings, if an e-mail bounces back to me, I'll make a note of it so I don't post that non-working e-mail again next time, but I don't delete the name in case they come back. It is sad every month to see that there are almost as many inactive names there as there are active now. I miss hearing from some of those folks and wonder how they are. But I truly think as long as there is a TMIC, there will be some of us here. We just need to wave every now and then. :-) Barbara H. http://barbarah.wordpress.com
Re: OT Re: [TMIC] Hope You're Safe
My oldest son is in RI. This is the first time he will have weathered something like this away from home. Praying for all in Irene's path. Barbara H. http://barbarah.wordpress.com On Sat, Aug 27, 2011 at 11:14 PM, Kevin Wolfthal wolft...@optonline.netwrote: Irene just starting to hit here in Connecticut. My town in direct path. Prayers to all. Kevin Akua wrote: I freaked out yesterday when i saw the map on TV. Called friends and family in my hometown, NYC. Hope you're safe Dalton! My family in Queens has a generator and has stocked up on food. My friend in lower manhattan has decided to stay, my friend uptown has stocked. I love my hometown and pray all goes well. There has never ever been an evacuation there before. That all be well. Akua
Re: [TMIC] Re: MOM
There is such a thing as recurrent transverse myelitis: the Johns Hopkins site describes it as the presence of more than one episode meeting the criteria for TM with intervening improvement and excluding the presence of multiple sclerosis. More than half of these recurrent cases have an unknown cause. ( http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/transverse_myelitis/about-tm/recurrent-tm.html). But that may not be what is going on here, either. I don't know if TM affects CO2 level -- unless it's affecting her diaphragm and therefore her breathing. Hopefully they'll be able to figure out what's wrong. BTW, Tracy, all you have to do to send a message to the group is to send it to tmic-list@eskimo.com. The tmic addresses with request in them are automated addresses where people join or leave the group. Barbara H. http://barbarah.wordpress.com On Tue, Aug 16, 2011 at 7:40 PM, Laura Beaudin laura.beau...@gmail.comwrote: Hi Tracy, TM is not a progressive condition beyond the initial acute attack. Afterward, either you recover, or you don't. Sounds like something else is attacking her...have they ruled out Guillain-Barree? Malignant MS? Tumors? So many things can cause this. Laura On Tue, Aug 16, 2011 at 1:52 PM, Todd Tarno toddtm2...@sbcglobal.netwrote: Hey Tracy, TM is usually is a ONE time hit. If it's TM again, there is a name for it, but sorry I don't remember the name before TM. When asking questions on the TM list, TMIC tmic-list@eskimo.com Where did her TM hit on her spinal cord? The higher it hits ( level C ), the more problems with breathing. I don't know anything about the CO 2 being high. Sorry :( Please share her systems with us, so that we may be able to tell if it might be or not TM. We all will be praying for her at this time, Todd in Corpus Christi, TX TM since April 1, 2002 @ T-4 to T-8 --- On *Tue, 8/16/11, Tracy Lea Bell tracyleab...@yahoo.com* wrote: From: Tracy Lea Bell tracyleab...@yahoo.com Subject: Re: [TMIC] Re: To: Blaine Frye blaine_f...@yahoo.com Cc: tmic-list-requ...@eskimo.com tmic-list-requ...@eskimo.com, tmic-list@eskimo.com tmic-list@eskimo.com, lettersfor1g...@rambler.ru lettersfor1g...@rambler.ru Date: Tuesday, August 16, 2011, 9:42 AM I have several things to ask and I hope anyone can help...my mom has been in the hospital for two weeks and now has been moved to ICU. Every day something new pops up. They have no idea what is wrong now her CO 2 is so high she can hardly breath... She has had TM for a year now and they keep saying it's not the TM and I just don't know how TM progresses...I don't know how to send this to the whole group Thank you Tracy
[TMIC] August Birthdays
Happy Birthday to the many celebrating this month! Please send any additions or corrections to tmic-list@eskimo.com. 8/1 Peachi (pkeene2...@aol.com) 8/1/ Cindy McLeroy (cindymcle...@socal.rr.com) 8-1 Stacy Firth (safi...@dow.com ) 8-3 Larry Throne (lbthr...@hotmail.com ) 8-10 Sean Indiveri (sindiv...@hotmail.com) 8-11-69 Raylene Gökeri (mrs_gok...@yahoo.com) 8-11 Michelle Maricic (mmari...@aol.com) 8-11 Dalida S. Ortiz de Garcia (py...@yahoo.com) 8/14/58 Paula (gle...@fcgnetworks.net )(returned) 8-16-44 phyllisj...@webtv.net 08/17 Sandra (Harth) Brassil (sbras...@aol.com) 8-17 Kim (jnks...@huntel.net) 8-19 Saroj (sarojkumar...@gmail.com) 8-21 Barbara H. (barbara...@gmail.com) 8-23 Cole (neilandwe...@rogers.com) 8-29 Kathleen (kathleen.kar...@gmail.com) 8- 31 Robin in Ontario(Brampton)(rjohnson1...@rogers.com )
Re: [TMIC] member of list passes away
I am so sorry to hear about Mary's passing. Thanks for letting us know. I know it is so hard to lose someone you care about. My thoughts and prayers are with you. Barbara H. On Fri, Jul 1, 2011 at 4:43 PM, gor...@earthlink.net wrote: ** Dear friends, I am Sarah Weil, Mary T Thompson's partner. Mary passed away on 6/14/11. I know she enjoyed getting these posts, she hadn't been well enough to use her computer for awhile, but she told me she tried to help other TM folks with a dose of info and reality checks when needed. Mary could be blunt at times, but her heart was always in the right place. She cared very much about others struggling with this disease. All the best to all of you. sincerely, Sarah
[TMIC] July Birthdays
Happy Birthday to the midsummer kids! Hope you have a great one! Please send any additions or corrections to tmic-list@eskimo.com 7-5- Sumer (fjs181...@aol.com) 7/5. Rick in tn (ashfo...@att.net) 7-14 Julie (chi...@cox.net) 7-15 Sandi S. (ssie...@myelitis.org) 7-24 Kevin Weilacher (hwyfli...@yahoo.com) 7-25 Peggy Wilson (pwi1991...@aol.com) 7-25 (jennapa...@aol.com) 7-25 Michelle Balliet (chelley...@aol.com) 7-27 Linda (lp...@aol.com) 7/29/49 Hildred (missprissgran...@aol.com) 7/30/30 Dex Packard (d...@centurytel.net)
Re: [TMIC] I need you guys....
I'm so sorry, Jeron. No offense to your wife -- I know it is hard to watch someone suffer, but I just can't understand leaving. I know it is not quite the same, but we're here for you. I'll be praying for you, I know others are as well. Barbara H. On Fri, Jun 17, 2011 at 4:24 PM, Jeron Rampersad rumc...@hotmail.comwrote: Hi guys, Sorry I have been away for so long. I've been through hell since January 1st this year with my complications with TM. I started having really bad spasms then and I just thought they were normal, but here was our little friend TM acting up again through an infection I managed to pick up in Brazil. I was treated and got better and my wife and I were relocated to the Caribbean, where we are from, by her company just after that. We moved and things settled nicely for a while, but with TM a while is all you have. I got another attack. I've been hospitalised on 7 separate occasions since then just to deal with pain, because sadly neurology is not a practised science in the caribbean. My wife endured all the while at my side. At least she did for a while. She finally got fed up of it all, seeing me spasm out of control in loads of pain must have been hard. She left me in mid April and I have been trying to cope since, but it's really hard. I love my wife and hate that I put her through so much, but I never thought she would have left. We haven't spoken in a month now and I have medical bills piling up and it's getting scary now. I just need to catch a break. It's more challenging now than when I was first hit by TM, because for the first time in my life I'm truly alone. I know my faith is being tested; I wish I knew what God wanted from me. I need you guys. Jeron
Re: [TMIC] Hello
Wow, Dalton. That's hard, but it sounds like from your other posts that things are working our for the best in the long run. Barbara H. On Thu, Jun 9, 2011 at 8:17 AM, Dalton Garis malugss...@gmail.com wrote: Hi Carol; This is Dalton. I just got terminated today. It seems I couldn't overcome the pull of TM, and my classroom work—that of which I was most proud—suffered. I have three months' notice. Last year they lightened the load and I did OK, but they said I worked too little. This year I taught three courses, teaching every day, and the pain, fatigue and med-head just made every day agony. It showed and the students complained. So, that's it. Up till now they have been very nice. But they don't keep persons around who can't pull the whole load. Not the way I wanted to go out. Thanks, Dalton From: Carol E snow121...@hotmail.com Date: Tue, 7 Jun 2011 09:43:34 -0500 To: tmic-list@eskimo.com Subject: [TMIC] Hello Resent-From: tmic-list@eskimo.com Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700 Just testing to see if I am still on the list. I'm not receiving messages. *Carol * Worrying does not empty tomorrow of its troubles; It empties today of its strengths.
[TMIC] June birthdays
Happy birthday to the June kids! Please send any additions or corrections to tmic-list@eskimo.com. We also remember deceased members Tom Carr, whose birthday was June 2, and Dennis Galvin, whose birthday was June 25. 6-1 Akua (a...@artfarm.com) 6-5 Tobe Kanon (spirita...@verizon.net) 6/5 Mindy King (we4king...@verizon.net) 6/11 Marabeth (mes...@earthlink.net) 6-11 Sharon Marsden (dorightra...@yahoo.com) 6-17 Cheryl (rn11...@yahoo.com) 6-19 Tom in Delaware (t-...@usa.com) 6-19 Debbie Capen (dca...@earthlink.net) 6-22 Ann Moran (annmo...@gofree.indigo.ie) 6-22 Gerry (suret...@sympatico.ca) 6-24 Lynne (lynnemye...@yahoo.com) 6-25 Errol White (eamjwh...@bigpond.com ) 6-28 Kim Harrison (kimharrison...@comcast.net) 6-29 Pauline (prha...@aol.com) 6/30 Bobby Jim (elbobber...@earthlink.net)
Re: [TMIC] OT - Asking for prayers
I'm sorry to hear this, Bernie. I have been and will be praying. Barbara H. http://barbarah.wordpress.com On Thu, May 26, 2011 at 6:56 PM, Bernie bpe...@austin.rr.com wrote: *To All TMIC family; I need all the prayers for my childrens mother, my ex-wife Sally. We are very good friends and have a better relationship than when we were married. Here is a short version she wrote explaining what has been happening to her. many of you know she was diagnosed with Stage IV breast cancer years ago: here is her latest condition. She needs all our prayers to survive this for any length of time. Thank you and Sincerely, Bernie* *Have been on a couple of different oral chemotherapies since first discovering the cancer in 2005 - Arimidex for a long time, 'til it apparently stopped working (when I had the double mastectomy in late 2008), and Xeloda, which also did not work. This week I'll have my second round of Taxotere. Couple of weeks after the first round, my hair started falling out, so now I'm shaved bald! I've lost about 80 pounds, which is skinniest Ive been in about 30 years! I look normal to myself because spent greater portion of my life closer to this weight, but my appearance is apparently shocking to those who haven't seen me in awhile. I get short of breath easily and my voice is hoarse most of the time. I've already outlived the median life expectancy of 3 years for my diagnosis (stage 4 breast cancer), so plan to keep it up as long as I can! Chemo makes me tired, so I sleep a lot. It's a funny kind of limbo... Now I see why didn't want to write this - it's depressing! How does one write about cancer in an upbeat way? Anyway, I don't spend time wringing my hands moaning. Enjoy myself doing what I want each day and I get lots of rest! That's all for now.. Pray for me and keep my in your happy thoughts. *
Re: [TMIC] tornado concern
I just cannot imagine what that kind of devastation is like. In our house in eastern TN it was very tense listening to the storm and waiting through the hours of the tornado warnings and watches. The power wobbled a couple of times but thankfully never went out. But I can only imagine whatever feeling we had were multiplied exponentially by those who were actually hit by the tornadoes. My heart goes out to them, and I'll be praying, Randy. Barbara H. http://barbarah.wordpress.com On Tue, May 3, 2011 at 11:05 AM, randy rankin rj_ran...@yahoo.com wrote: This isn't a TM item but I've gotten connected to many of you. LOT'S of people and communities where serious hurt, killed, and damaged. Many many people lost everything. In Alabama, we had more tornados that i can count. 3 where F4s at times, and one made it to F5. 1 mile from my brother's home near Hunstville, 6 where killed. In Rainsville close to 40 (39 I think) and people are still missing. Near my homeplace many lost everything. It was 1/2 to a mile wide and at times bigger. There is still no power or water in many areas. Entire forests are gone - it often took the trees. In some places it pulled the grass out of the ground and removed the top soil and left a wide long brown barren trail. The REASON for this email is twofold. My cousin Kathy Studdard would NOT leave her cats and go to the shelter. She lost most of her cats anyway. Her house was swept - and I DO mean swept away - like a big brown. The blocks on the foundation were gone and it even removed the porch entirely. She was taken to Atlanta with internal injuries and now we are getting news that is not good and we are afraid that we are going to loose her. I'm not going to say 'prayer' ect and have a few send me multiple emails about what site is for ect. Just send warm thoughts or whatever you feel like doing. Our family is just crushing under this situation. Even if she survives, this gorgeous lady with such awonderful husband and children and solid career is never going to be the same. The power of this torando was so great that it removed a large oak tree with a plus 3 foot wide base and dropped it in a nearby field. It didn't 'knock it over'. It took the ENTIRE tree and set it back down on the other side of the road - ROOTS and all. I got another family that is also in serious need and I will send that in the next email if you are gracious enough to read.
[TMIC] May Birthdays
Happy Birthday to all those celebrating in May! And we remember Jim Belz, who passed away a couple of years ago, I think, whose birthday was May 11. Please send any additions or corrections to 5/5 Linda Garrett (limoga43...@yahoo.com) 5/7 Dennis Rabalais (dennis_rabalais20...@yahoo.com) 5-11 Lynn (roseofr...@aol.com) 5-12 mother...@msn.com 5-19 Maureen Wroblewski Hallagan (walterhalla...@msn.com) 5/31 Wendy Wood (ww...@optonline.net)
[TMIC] Responding to e-mails
I don't want to ruffle anyone's feathers, but it would be really helpful if people would read through the responses to a post before responding. A case in point is the one from Bee Clark -- almost as soon as the first e-mail came through (at least in my inbox), it proved to be a scam and Bee responded herself that her account was hacked and the e-mail was not from her. But now as people log into their accounts they are responding to the first e-mail and telling the rest of the list it is a scam when we know that already and it has been resolved. When you see something like that, go ahead and read the first responses to see if it has been taken care of so the list isn't flooded with many people saying the same thing. I know some people think the list has been too quiet, but I don't think any of us wants to read multiple people saying the same thing over and over for hours or days. Just sharing my two cents. :-) Barbara H. http:barbarah.wordpress.com
[TMIC] April Birthdays
A short birthday list this month! That just means more cake for all of you. :-) Please send any additions or corrections to tmic-list@eskimo.com. ***Also, this month held the birthdays of two former TMIC members who have passed on: Ken Oliver (4/1), who just passed away a short time ago, and Doc (4/24). If any of you know their loved ones, I'm sure they'd appreciate thoughts, prayers, and maybe even a little note on this day when remembering the loss of their loved ones is particularly hard.*** 04/03 Jeron Rampersad (rumc...@hotmail.com) 4/10 Marie Dipietro deer...@aol.com 4/18 Bernard Butcher (bernie.butc...@honeywell.com) 4/20 Dianna (carg...@cs.com) 04/20 Todd Tarno (toddtm2...@sbcglobal.net) 4/21 Robert Diehl (sawmil...@verizon.net) 4-25 Shelia (sc...@aol.com)
[TMIC] March Birthdays
Happy Birthday to the March kids! And we remember long time TMIC member Mike Hammond, whose birthday was 3/8, who passed away not too long ago. 3-3 Marsha Scholes (marshab...@comcast.net) 03.05. Bettie Imus (bettie5...@aol.com) 3-7 Sue Mattis (bobsue6...@adelphia.net) 3-15 Sandra Melville (luth...@comcast.net) 3-17 Joy S. (joyst...@aol.com) 3/24 john h (JOHNLOVESKARAOKE) 3/26 Jane Elrod (celr...@aol.com) 3/30 Gary (gbthomas8...@sbcglobal.net) 3-31 Jan H (jmh1...@sbcglobal.net)
Re: [TMIC] antibiotics
I'm so sorry about that! Do you have diabetes? I know that can cause slowness in healing, but I am sure there are other things as well that can affect it. I was on at least a couple of rounds of antibiotics, maybe more, I can't remember, with a stubborn bout of cellulitis a couple of years ago with no problems. Sometimes antibiotics can cause stomach issues - destroying the good bacteria and causing diarrhea, and they advise eating yogurt to combat that, but I did fine without it. But I don't think they affect TM. Barbara H. http://barbarah.wordpress.com On Thu, Feb 10, 2011 at 4:14 AM, Gillian Clark mingalett...@activ8.net.auwrote: G'day all, I'm looking for some advice. Almost 8 weeks ago, I had a nasty fall, gashed my leg and spent a night in hospital getting almost every test known to man or beast. The gash has still not healed, getting there, and I'm about to be put on yet another course of antibiotics. It has not taken me long has it for this to suddenly spark a little something in my poor old brain. I'm thinking that being on continuous antibiotics for 8 weeks is not what a tm patient should be doing. I look forward to any and all suggestions. Many thanks in advance Hugs Gilly.
[TMIC] February Birthdays
Happy Birthday to the February kids! Please send any additions or corrections to: 2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com) 2/2 Ursula (uma...@t-online.de) 2/2 Lisa in TN (lsim...@aol.com) 2-5 Tita in Delaware (te...@flash.net ) 2-6 Barbara Alma (balmat...@aol.com) 2-7 Barbara in Texas (babbsie1...@yahoo.com) 2-9 Frank (ftrascr...@aol.com) 2/11 Mary (mster...@yahoo.com ) 2-11 Deb Casey (casey...@myway.com) 2/15 Jill (jillybean60...@yahoo.com) 2-17 JOAN FINK (2-17 mafi...@yahoo.com) 2-20 Norma (dgti...@aol.com) 2/26 Patti - Michigan (pjv1...@chartermi.net) 2/27 Cindy (rdavi...@san.rr.com)
[TMIC] Ken Oliver
Those of you on Facebook may already know, but Ken Oliver passed away yesterday evening. He was a long-time TMIC member and I think the oldest of us. He will be missed. Barbara H.
Re: [TMIC] I need help with member contacts. Will anybody help me?
She must have some kind of automated response system set up without realizing it. If someone who knows her could call her and help her figure out how to turn that off, that would help immensely, I'm sure she's frustrated thinking nobody is responding when it's just not getting through. Barbara H. http://barbara.wordpress.com On Sat, Jan 8, 2011 at 4:31 PM, Janice Nichols jan...@centurytel.netwrote: That is the response I always get too.She just isn't getting anything from us. Janice -Original Message- From: Lori Biehler Sent: Saturday, January 08, 2011 7:49 AM To: TMIC Subject: Fw: [TMIC] I need help with member contacts. Will anybody help me? This is the response I get when I email Jude, does anyone know why? -Original Message- From: heyjude48...@aol.com Sent: Saturday, January 08, 2011 8:47 AM To: lbieh...@earthlink.net Subject: Re: [TMIC] I need help with member contacts. Will anybody help me? Hello, I am unavailable to read your message at this time.
[TMIC] Re: January Birthdays (1/9)
On Fri, Jan 7, 2011 at 12:14 AM, Barbara H. barbara...@gmail.com wrote: 1/9 Julienne (julesin...@aol.com) 1/13 Debi (brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
Re: [TMIC] REHAB
It sounds like I had a different experience from the rest of you with rehab. After my initial 8-day stay in the hospital while they ran tests and diagnosed TM, my neurologist wanted me to go into a 10-day stay in the rehab unit of the hospital. My insurance wouldn't cover that. I couldn't drive myself to outpatient rehab and my husband had to go back to work, so I had no transportation or help to get there, so they paid for a physical therapist to come to my home 2 or 3 times a week for about three months. It seems to me like that would have cost them more, but I don't know -- probably not as hospital stays are expensive. The girl who came was sweet -- she didn't mind if my kids came in and watched or tried to do the same exercises. She was short and petite and I am tall and...not petite...and I did wonder if she could handle it if I fell. Thankfully we didn't have to find out. She was great -- answered questions and gave me specific exercises for my concerns. I liked being at home because I didn't want to be in the hospital away from the family, and because I felt my adjustments could be tailored to the obstacles I would face in my own home rather than just general instruction in the hospital. I did wonder occasionally if I missed something by not being in rehab at the hospital, but it was out of my hands anyway. My only quibble was that it only lasted until I was able to walk in a stable fashion with a walker. I was thrilled with that, but felt I could have used some more fine-tuning. It never occurred to us at the time that we could try to push for that with the insurance company. But I do believe that physical therapy was the best thing for my recovery, next to prayer and God's grace. Barbara H. http://barbarah.wordpress.com
Re: [TMIC] Careful OT
Wow -- that's scary. I am glad they were able to help you before it got worse. Good advice!! Take care. Barbara H. http://barbarah.wordpress.com On Thu, Jan 6, 2011 at 4:09 PM, bgunny7...@aol.com wrote: Monday night around 11:30 I had a horrendous Heart attack. Went to North Side Hospital by ambulance where they put a stent in on a 95% clogged artery. Gotta go back on the 28th for them to do an 80% clogged one. So, if you smoke, STOP. If you eat fatty foods, STOP. If your messin up your life, STOP. This ain't no game. Felt like mule kicked me in the chest.
[TMIC] Re: January Birthdays (1/8)
On Sat, Jan 1, 2011 at 1:41 AM, Barbara H. barbara...@gmail.com wrote: 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1/9 Julienne (julesin...@aol.com) 1/13 Debi (brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
[TMIC] January Birthdays
Happy Birthday and Best wishes for the New Year! Please send any additions or corrections to tmic-l...@eskimo.com. 1- 7 Lauren (sugal...@adelphia.net) 1/8 Nancy Williams (willj...@aol.com) 1-8 Sandi (sam...@fidmail.com) 1/9 Julienne (julesin...@aol.com) 1/13 Debi (brade...@hotmail.com) 1-17 Jenna Stentz (jkste...@yahoo.com ) 1/20 Kay Cole (k...@cole.gen.nz) 1-21 Blaine Frye (xring...@mwt.net) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace (grace...@gmail.com) 1-27 Pat S. (w2sm...@aol.com) 1-28 Holly (r...@aol.com) 1-28 Sally (thenavigato...@aol.com)
[TMIC] Ken Oliver
Many of you who are on Facebook know this already, but long-time TMIC member Ken Oliver has been in the hospital since early December with what seemed to be a kidney infection which then moved into his bloodstream. He was doing better but needed rehab to build up his strength. His son posted this update last night and gave permission to send it to the TMIC: Here is an update on his condition. Rehab didn't work out and Dad took a turn for the worse. We talked to the Dr. on Saturday and he told us that since Dad is taking in little food and refusing most treatment, hospice is the best option. He was moved to hospice this evening at the same facility where he was to do rehab.I'm sure the family would appreciate your prayers during this difficult time. I think Ken is 85, and by my reckoning I think he has been the oldest TMIC member for a long time, or at least one of the oldest. His e-mail address is kenoliver...@hotmail.com -- I don't know if perhaps his son could receive e-mails for him and share them with him, but I know they're able to receive updates on Ken's Facebook page. Barbara H.
[TMIC] December Birthdays
Happy Birthday to the December kids! Please send any additions or corrections to tmic-list@eskimo.com 12-2 Meghan (bluemeg...@hotmail.com) 12/2 Ashlee Black (tracey.bl...@hnoins.com) 12/3 Janice (jan...@centurytel.net) 12-3 Wim from Holland (wim_from_holl...@hotmail.com) 12- 4 Jan Burgess (ja...@rogers.com) 12-7 Patti in Wisconsin (patticoole...@gmail.com) 12-8 Lori Malloy (jorlcummi...@earthlink.net) 12-10 Shirley from UK (shirley.up...@dsl.pipex.com) 12-15 Alton Ryder(a-ry...@comcast.net) 12-15 CarolAnn B.L. from South Carolina, USA (ladycame...@aol.com) 12-18 Rod Jenke (rktje...@chariot.com.au) 12/23 Roger Pratt (r.c.pr...@verizon.net ) 12-25 Gilly (gilly...@y7mail.com) 12/31 Janet (j.d...@shaw.ca)
Re: [TMIC] off topic
Oh Jane -- I am so, so sorry. I cannot imagine -- both of my parents have passed on, and as hard as that is, I don't think it can compare with losing a child. My heart, thoughts, and prayers are with you and your family. Barbara H. http://barbarah.wordpress.com On Thu, Dec 2, 2010 at 12:11 PM, celr...@aol.com wrote: Since you are all part of my cyber family I wanted to ask for prayer for my family and me. My daughter died yesterday. She was 41 and diabetic, on dialysis, poor health. Her daughter was with her and it was sudden. She didn't say anything just collapsed and that was it. She had been through s much all her life and now she is at rest with the Lord. Her name is Pamela Caldwell. No more needles and hospitals. Please forgive me if I offend anyone but I needed to talk. Jane/Splendora Tx
Re: [TMIC] Anybody heard from Jude
I wouldn't think so, Alton. I just saw that she clicked Like on a bunch of things on Facebook just recently -- unless someone else was using her account. She has a bunch of birthday wishes there but no response yet. I got the same automated response to my birthday e-mail to her. Barbara H. http://barbarah.wordpress.com On Mon, Nov 22, 2010 at 8:49 AM, Alton Ryder a-ry...@comcast.net wrote: I sent a note to Dave, her husband, at her adders and got no reply. Sadly, I conclude my little sister has perished. Alton On Nov 21, 2010, at 5:39 PM, L T CHERPESKI wrote: Has anybody heard from Jude recently? I send her emails occasionally, but she has not responded in quite a while. I sent her a quick email today and wished her Happy Birthday as her Bday is Monday the 22nd. I sure hope she is well and enjoys her special day. Linda C
Re: [TMIC] brain storm (on topic)
A few times in the very early days of TM I would experience what felt like a jolt in the back of my head. One time it even made me stumble. I was worried it was something in my brain. But over time I figured it was a muscle spasm. My neck and shoulder muscles have been very tight since TM and it is only natural that tightness and tension would extend to the muscles around my head and that those muscles could spasm like any others. I don't know if that is the same thing you are experiencing or not, but thought I'd share it. Barbara H. http://barbarah.wordpress.com -Original Message- From: john snodgrass [mailto:jcs...@yahoo.com] Sent: November 14, 2010 7:52 AM To: transverse myelitis Subject: [TMIC] brain storm (on topic) has anyone while enduring a spasm felt like their very brain was experiencing a spasm, fighting for consciousness? perhaps it was the combo of spasm and meds and who knows what but it was kinda scary. John from the deep hollows of the undiscovered land of West Virginia
[TMIC] OT: Video of ballet with one-legged man and one-armed woman
http://www.youtube.com/watch?v=LnLVRQCjh8cfeature=player_embedded I saw this on a friend's blog and thought I'd share it here. It's amazing what they have both accomplished. Barbara H. http://barbarah.wordpress.com
[TMIC] November Birthdays
Happy Birthday to the November kids! Please send any additions or corrections to tmic-l...@eskimo.com. 11-01 Ella (elbanks...@aol.com) 11-2 Jeff (jeffsmokeea...@yahoo.com) 11-03 Gina (gina1103c...@aol.com) 11-6 Margaret Monson (mag...@telus.net) 11-8 Diane (mon...@sympatico.ca) 11-12 Marie (chestnutr...@gtcom.net) 11/13 Kevin (wolft...@optonline.net) 11-17 Becky opi...@bellsouth.net 11/18 Drema (dho.d...@comcast.net) 11/20 Cossy (cos...@yahoo.com) 11-21 Pearl Bernocchi (bernoc...@aol.com) 11/22 Judy Hoops (heyjude48...@aol.com) 11-25 Gunny (bgunny7...@aol.com) 11-27 Jack McMillan at rebarj...@aol.com 11-30 Louise Flagg (fla...@webtv.net)
Re: [TMIC]
For those on AOL whose e-mail accounts have been spoofed, there is an AOL address you can forward them to. I can't remember what it is right now -- you'll have to look around at the AOL Help area. But I received some spam e-mail addressed to me from my own AOL account that I did not send, and after I forwarded it to them, it stopped. Barbara H. http://barbarah.wordpress.com On Wed, Oct 13, 2010 at 1:10 PM, Deborah Nord Capen dca...@earthlink.netwrote: Folks, You need to understand that the email address in the “from” line is NOT the actual sender of the email! Their computer has been hacked, or you can say that their address book has been hijacked by a “spoofer” who then sends out mass emails to everybody in their address book with these links. If you click on “reply”, the email that you send will NOT go to the person who you believe to be the sender, but it will just go out to an empty (not legitimate) email address. The safest thing to do is to delete the email without clicking on the link. If you know the person and you know it is not their character to send an email with just an unfamiliar link without an explanation, you need to “assume” that this person did NOT actually send the email to you. These people (celrods, ladynotes and whoever the other one was) are only victims, they did NOT send these emails to you. Hope this helps. Take care, Debbie
Re: [TMIC] personal problem
Amanda, I have problems along those lines sometimes, too. The thing that helps me most is eating fresh fruits and vegetables -- it has gotten to the point that if I have a day or so that I don't eat them, I can almost count on having trouble. Canned fruits used to help, but they don't any more. I keep grapes and baby carrots on hand as they're the easiest to just rinse and eat, but I also try to eat salads regularly, too.. Also, exercise really helps immensely, but this is a problem for many TMers, especially those who can't walk. Is there someone who can exercise your legs, range of motion exercises and that kind of thing? Hope you get some relief soon. Barbara H. http://barbarah.wordpress.com - Original Message - *From:* Amanda Diskey adis...@yahoo.com *To:* tmic-list@eskimo.com *Sent:* Wednesday, October 13, 2010 6:32 *Subject:* [TMIC] personal problem I don't write very often, and I normally wouldn't talk to people about something so personal, but I don't know who else to ask. I have been having problems with constipation for a long time -- and it is only getting worse. As of right now I have been unable to go to the bathroom for five days. I have been taking Senokot and Miralax, plus I have been prescribed Lactulose by my neurologist. I take magnesium citrate pretty often, but it really makes me miserable when I take it. My legs get really tight and shake uncontrollably from being dehydrated. My stomach actually hurts today and I'm normally don't feel pain there. I have been to doctors and they were no help. It seems like they just take my money and run because they don't have the answer. When I went to the gynecologist she actually asked me why I thought I needed to have a Pap smear even though I told her I hadn't had one in over two years. She just didn't want to deal with me because I cannot stand up. I get this from a lot of doctors -- it seems like nobody wants to deal with me. I couldn't even find a regular family doctor-- a receptionist at one of the doctors offices I called actually told me that she didn't think the doctors there would be able to handle my case. She said that if I was a regular person that was just dealing with colds and other normal illnesses, that would be fine, but she didn't think they would know what to do to help me. Does anyone have any suggestions on what I could take to help me with this situation? I am getting very desperate for some relief! Thank you, Amanda Diskey
Re: [TMIC] Re: spam
No, Cheryl, I am sorry, it wasn't you. I didn't look carfeully enough at which name went with with e-mail in the replies. I've been getting a lot of spam from Jane's address at celr...@aol.comhttp://us.mc581.mail.yahoo.com/mc/compose?to=celr...@aol.com-- no message, just a url, a different one with each e-mail. I'm so sorry to have given you the wrong impression. Barbara H. http://barbarah.wordpress.com On Mon, Oct 11, 2010 at 3:53 PM, rn11...@yahoo.com rn11...@yahoo.comwrote: What spam did you get from me? Please let me know. I haven't heard this from anyone else either on or off the list. I think the next computer I buy will be a mac;they don't get spam. Cheryl --- On *Sun, 10/10/10, Barbara H. barbara...@gmail.com* wrote: From: Barbara H. barbara...@gmail.com Subject: Re: [TMIC] Re: spam To: celr...@aol.com, TMIC tmic-list@eskimo.com Cc: rn11...@yahoo.com Date: Sunday, October 10, 2010, 10:36 PM Cheryl, I wonder if someone has hacked into your account. I have been getting spam e-mails from you both personally and through TMIC. Barbara H. http://barbara.wordpress.com On Sun, Oct 10, 2010 at 3:46 PM, celr...@aol.comhttp://us.mc581.mail.yahoo.com/mc/compose?to=celr...@aol.com wrote: Cheryl, I am celr...@aol.comhttp://us.mc581.mail.yahoo.com/mc/compose?to=celr...@aol.comand I am legit. I will try to always remember to put a subject line in. Jane/Splendora Tx In a message dated 10/10/2010 11:36:31 A.M. Central Daylight Time, rn11...@yahoo.comhttp://us.mc581.mail.yahoo.com/mc/compose?to=rn11...@yahoo.comwrites: Hi, Does anyone know who pkeene2...@aol.comhttp://us.mc581.mail.yahoo.com/mc/compose?to=wpkeene2...@aol.comand celr...@aol.comhttp://us.mc581.mail.yahoo.com/mc/compose?to=celr...@aol.comare? Are they legit? I've been getting emails from both of them that have addresses in the body of the letter,but no explanation of what they're about. I have never opened one. I just delete them. In the subject line it says either no subject or [TMIC]. If you look at who else gets it,there are insurance companies,pet care ,etc. Must be one of those that sends to everyone in their address book. Cheryl in Easthampton,MA
