[TMIC] hey birthday folks look at this website FREE FOOD! on your birthday! http://www.mrcheapstuff.com/deals/2006/10/huge-list-of-restaurants-that-give-you-free-birthday-meals/
http://www.mrcheapstuff.com/deals/2006/10/huge-list-of-restaurants-that-give-you-free-birthday-meals/ That is the first in the list of dozens - so take the time to google or bing it and get some nice meal, desert ect
Re: [TMIC] February Birthdays!
Happy Birthday everyone!!! Sent from my Verizon Wireless Phone Pat Cooley patticoole...@gmail.com wrote: HAPPY BIRTHDAY TO ALL YOU FEBRUARY BIRTHDAY BABIES. HAVE A GREAT DAY. PATTI IN WISCONSIN
[TMIC] is there a connection between low potassium and TM?
Mary is not talking or communicating and is able to get to the bathroom with assistance but that side of the family is still clueless. I talked to them about TM, MS, and mylopothy and I might as well been talking about a new island off the coast of Java --- They are mentally fixed on the low potassium situation and not the fact she can't talk and she can't walk. But I did promise that I would ask the group to see if any of you were aware of any connections between low K and the neurological conditions that impacted you - experiencially or diagnostically
[TMIC] we have a female child family member with TM symptoms
Mary woke up yesterday morning and could not raise up (sit up) or walk. She is at children's hospital. The onset sounds like TM. Mary is my mom's great niece and my 3rd cousin. I have not been able to talk with family members and found out through word of mouth. Mary's uncle, my 2nd cousin, was struck with similar event about the same time that I was hit with TM. But Adam was diagnosed with Gillian B. (can't spell that word and won't try). So we are concerned about the issue but I am concerned about the doctor's getting it right.
[TMIC] new member
Hello tmi group I was in the library working on my dissertation and overheard a lady discussing ordeals about her mother. The problems related to m.s. not t.m.; however, she mentioned her mom's doctor talk about mylopothy, multiple mylopothy, ect. but didn't understand the terminology or issues. Her mom is going through foot drop, pain, has lessions on brain and along spinal chord. I might have been a 'busy body' but I had to talk with her about the issues. I told her about this support group and how it could help her understand what is going on with her mom as well as help her get directions and assistance. I don't know what the lady does for a living, and I didn't get her name, but I see her assisting individuals with writing projects, school work, ect. I hope it is ok that I gave her our email address and maybe some of you can help her out. Randy
[TMIC] tornado concern
This isn't a TM item but I've gotten connected to many of you. LOT'S of people and communities where serious hurt, killed, and damaged. Many many people lost everything. In Alabama, we had more tornados that i can count. 3 where F4s at times, and one made it to F5. 1 mile from my brother's home near Hunstville, 6 where killed. In Rainsville close to 40 (39 I think) and people are still missing. Near my homeplace many lost everything. It was 1/2 to a mile wide and at times bigger. There is still no power or water in many areas. Entire forests are gone - it often took the trees. In some places it pulled the grass out of the ground and removed the top soil and left a wide long brown barren trail. The REASON for this email is twofold. My cousin Kathy Studdard would NOT leave her cats and go to the shelter. She lost most of her cats anyway. Her house was swept - and I DO mean swept away - like a big brown. The blocks on the foundation were gone and it even removed the porch entirely. She was taken to Atlanta with internal injuries and now we are getting news that is not good and we are afraid that we are going to loose her. I'm not going to say 'prayer' ect and have a few send me multiple emails about what site is for ect. Just send warm thoughts or whatever you feel like doing. Our family is just crushing under this situation. Even if she survives, this gorgeous lady with such awonderful husband and children and solid career is never going to be the same. The power of this torando was so great that it removed a large oak tree with a plus 3 foot wide base and dropped it in a nearby field. It didn't 'knock it over'. It took the ENTIRE tree and set it back down on the other side of the road - ROOTS and all. I got another family that is also in serious need and I will send that in the next email if you are gracious enough to read.
Re: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove
sorry but that story is only a myth - urban legion, its a big fat lie and very poorly constructed 'science' tell. The stuff would blow up long before anyone picked it up. The system does NOT depend on anyone touching it and it is NOT a bomb. Not to poke fun of anyone on here but the notion of disturbing it or moving it ... Oh and it takes 30 seconds! OMG for REAL Wow, like to see the statistical probability outcomes for that consistency. BIG F for paying attention in chemistry class!!! Few chemical reactions have ANYTHING to do with someone disturbing it. I've been a chemistry teacher for 15 years! We've done this kind of stuff all the time. It is NOT a bomb but a simple high school chemical experiment. Look, funny as they may be, whenever you get this spam junk, before passing it on, just type a few lines or copy/paste a few lines into google and you'll see that 100% of this junk is made up. I did and here, IN ORDER, is what you'll find on google - actually, go to scholar, better yet search REAL periodicals, books and peer reviewed journals on the subject. Then, you will see how that this information does NOT add up to reality. Pardon the pun, but 'it don't take no rocket scientists' to find out when something is spam. http://www.urbanmyths.com/index.php?/Technology/water-and-drano-bottle-bombs-alert.html the second link is this ass clowns warning - probably a teenager or college kid spun this one for people who believe everything and research nothing. Third link http://urbanlegends.about.com/od/crime/a/bottle_bombs.htm Next links are a repeat of the hoax - MORONS! Poor little fingers get blown off - GOOD GRIEF! You deserve to be made fun of if you believe that line! And these guys went all out to make a VIDEO. I broke into tears with humor seeing the cut footage of a firetruck and cops coming out to blow up the little bombs. Aluminum CAN be used to make deadly bombs. ACIDS are used. However, the ingredents and descriptions in these stories don't match up. Hey, I've DONE this enough times myself and have never see a violent explosion. You can get a LOT more damage by using acid and potassium or red phosphorous. Heck, you just need a little WATER with those two. From: john snodgrass jcs...@yahoo.com To: Mindy King we4king...@verizon.net Cc: transverse myelitis tmic-list@eskimo.com Sent: Tue, September 7, 2010 4:34:48 AM Subject: Re: [TMIC] be careful lol,,,I think what Dad used was Lie and aluminum foil for the baloons. From: Mindy King we4king...@verizon.net To: tmic-list@eskimo.com Cc: Mindy King we4king...@verizon.net Sent: Tue, September 7, 2010 2:44:10 AM Subject: Re: [TMIC] be careful Mentos in diet cola is much safer and you can still drink the soda after the eruption! Mindy King we4king...@verizon.net On Sep 6, 2010, at 11:59 PM, Dalton Garis wrote: Drain-O and aluminum foil! D. From: Janice Nichols jan...@centurytel.net Date: Mon, 6 Sep 2010 22:00:35 -0500 To: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] be careful Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 6 Sep 2010 20:00:30 -0700 John, what the heck did you put in those bottles!!! Janice From: john snodgrass jcs...@yahoo.com Sent: Monday, September 06, 2010 5:44 PM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] be careful this may not have anything to do with TM but has everything to do with everybody. when i was a kid,we used to take a coke bottle and put this stuff in it and put a baloon over it. the chemical reaction would blow up the baloon .we would then tie off the baloon and it would float up in the sky. didnt know what we were doing for fun could be used to make a bomb! the link to snopes is an actual link and not an advert.looked at it myself.this occured in April i think. John Subject: NOT A JOKE - VERY SERIOUS – KIDS NEED TO KNOW TOO. To: Date: Monday, September 6, 2010, 1:22 PM NOT A JOKE - VERY SERIOUS – GOOD FOR THE KIDS TO KNOW TOO. Pass this on to everybody you know. Anybody that sees a plastic bottle in their yard would think nothing of picking it up to throw it away. Looks like these things are starting to pop up around the U.S. Check the Snopes web site below, it's pretty scary. Important warning! NOT A JOKE! Pay attention to this. 1. A plastic bottle with a cap (Like a normal water bottle). 2. A little Drano. 3. A little water. 4. A small piece of foil. 5. Disturb it by moving it; and BOOM (Less than 30 seconds)!! 6. No fingers left and other serious effects to your face, eyes, etc. People are finding these bombs in mailboxes and in their yards, just waiting for someone to pick it up intending to put it in the trash. It takes about 30
Re: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove
no soapbox - just humor - besides, why is spam being pushed on here and your quick www reference has NO validity. It has to be something more than just going to the Internet. Go buy the supplies and try it yourself and you will SEE that it does not make a bottle bomb that will blow off your fingers. You might burn your eyes and skin but a bomb that goes off after you touch it? That's none sense. And you can cite a 1000 more snopes crime warnings and it STILL will NOT make it true. From: Laura Beaudin laura.beau...@gmail.com To: randy rankin rj_ran...@yahoo.com Cc: tmic-list@eskimo.com Sent: Tue, September 7, 2010 9:33:27 AM Subject: Re: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove Dude! Get off your soapbox! http://www.snopes.com/crime/warnings/bottlebomb.asp Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Tue, Sep 7, 2010 at 5:10 AM, randy rankin rj_ran...@yahoo.com wrote: sorry but that story is only a myth - urban legion, its a big fat lie and very poorly constructed 'science' tell. The stuff would blow up long before anyone picked it up. The system does NOT depend on anyone touching it and it is NOT a bomb. Not to poke fun of anyone on here but the notion of disturbing it or moving it ... Oh and it takes 30 seconds! OMG for REAL Wow, like to see the statistical probability outcomes for that consistency. BIG F for paying attention in chemistry class!!! Few chemical reactions have ANYTHING to do with someone disturbing it. I've been a chemistry teacher for 15 years! We've done this kind of stuff all the time. It is NOT a bomb but a simple high school chemical experiment. Look, funny as they may be, whenever you get this spam junk, before passing it on, just type a few lines or copy/paste a few lines into google and you'll see that 100% of this junk is made up. I did and here, IN ORDER, is what you'll find on google - actually, go to scholar, better yet search REAL periodicals, books and peer reviewed journals on the subject. Then, you will see how that this information does NOT add up to reality. Pardon the pun, but 'it don't take no rocket scientists' to find out when something is spam. http://www.urbanmyths.com/index.php?/Technology/water-and-drano-bottle-bombs-alert.html the second link is this ass clowns warning - probably a teenager or college kid spun this one for people who believe everything and research nothing. Third link http://urbanlegends.about.com/od/crime/a/bottle_bombs.htm Next links are a repeat of the hoax - MORONS! Poor little fingers get blown off - GOOD GRIEF! You deserve to be made fun of if you believe that line! And these guys went all out to make a VIDEO. I broke into tears with humor seeing the cut footage of a firetruck and cops coming out to blow up the little bombs. Aluminum CAN be used to make deadly bombs. ACIDS are used. However, the ingredents and descriptions in these stories don't match up. Hey, I've DONE this enough times myself and have never see a violent explosion. You can get a LOT more damage by using acid and potassium or red phosphorous. Heck, you just need a little WATER with those two. From: john snodgrass jcs...@yahoo.com To: Mindy King we4king...@verizon.net Cc: transverse myelitis tmic-list@eskimo.com Sent: Tue, September 7, 2010 4:34:48 AM Subject: Re: [TMIC] be careful lol,,,I think what Dad used was Lie and aluminum foil for the baloons. From: Mindy King we4king...@verizon.net To: tmic-list@eskimo.com Cc: Mindy King we4king...@verizon.net Sent: Tue, September 7, 2010 2:44:10 AM Subject: Re: [TMIC] be careful Mentos in diet cola is much safer and you can still drink the soda after the eruption! Mindy King we4king...@verizon.net On Sep 6, 2010, at 11:59 PM, Dalton Garis wrote: Drain-O and aluminum foil! D. From: Janice Nichols jan...@centurytel.net Date: Mon, 6 Sep 2010 22:00:35 -0500 To: john snodgrass jcs...@yahoo.com, transverse myelitis tmic-list@eskimo.com Subject: Re: [TMIC] be careful Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 6 Sep 2010 20:00:30 -0700 John, what the heck did you put in those bottles!!! Janice From: john snodgrass jcs...@yahoo.com Sent: Monday, September 06, 2010 5:44 PM To: transverse myelitis tmic-list@eskimo.com Subject: [TMIC] be careful this may not have anything to do with TM but has everything to do with everybody. when i was a kid,we used to take a coke bottle and put this stuff in it and put a baloon over it. the chemical reaction would blow up the baloon .we would then tie off the baloon and it would float up in the sky. didnt know what we were doing for fun could be used to make a bomb! the link to snopes is an actual link
Re: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove
There is a video in one of the links and it is really quite funny. If you don't know about the lab experiment then it probably doesn't mean much. However, if you've actually done the experiment and then watched the video it is quite ingeniously funny. Its worth the minute or so to watch it. Some college kids or maybe even some high school guys put this together. I mean, they have COPS walking around. They are all serious. Then the FIRE DEPARTMENT shows - now that is really quite funny. Then they have a BOMB squad. Seriously! - that's too funny. Then they actually detonate it. That's some crazy stuff. Not realistic but still funny. I had to watch it a couple of times. That's one for the Tosh 2.0 show for sure. From: j ra rumc...@hotmail.com To: rj_ran...@yahoo.com Sent: Tue, September 7, 2010 3:34:47 PM Subject: RE: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove I too was shocked by the simply ridiculous claims made in the email. Really? A bomb? A little rapid effervesence and perhaps an slightly audibly sizzle? I won't waste good drano on thatAnyway, people believe anything these days! Date: Tue, 7 Sep 2010 08:54:31 -0700 From: rj_ran...@yahoo.com Subject: Re: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove To: laura.beau...@gmail.com CC: tmic-list@eskimo.com no soapbox - just humor - besides, why is spam being pushed on here and your quick www reference has NO validity. It has to be something more than just going to the Internet. Go buy the supplies and try it yourself and you will SEE that it does not make a bottle bomb that will blow off your fingers. You might burn your eyes and skin but a bomb that goes off after you touch it? That's none sense. And you can cite a 1000 more snopes crime warnings and it STILL will NOT make it true. From: Laura Beaudin laura.beau...@gmail.com To: randy rankin rj_ran...@yahoo.com Cc: tmic-list@eskimo.com Sent: Tue, September 7, 2010 9:33:27 AM Subject: Re: [TMIC] be careful ABOUT STUPID SPAM! and not the stuff you cook on a stove Dude! Get off your soapbox! http://www.snopes.com/crime/warnings/bottlebomb.asp Laura www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org On Tue, Sep 7, 2010 at 5:10 AM, randy rankin rj_ran...@yahoo.com wrote: sorry but that story is only a myth - urban legion, its a big fat lie and very poorly constructed 'science' tell. The stuff would blow up long before anyone picked it up. The system does NOT depend on anyone touching it and it is NOT a bomb. Not to poke fun of anyone on here but the notion of disturbing it or moving it ... Oh and it takes 30 seconds! OMG for REAL Wow, like to see the statistical probability outcomes for that consistency. BIG F for paying attention in chemistry class!!! Few chemical reactions have ANYTHING to do with someone disturbing it. I've been a chemistry teacher for 15 years! We've done this kind of stuff all the time. It is NOT a bomb but a simple high school chemical experiment. Look, funny as they may be, whenever you get this spam junk, before passing it on, just type a few lines or copy/paste a few lines into google and you'll see that 100% of this junk is made up. I did and here, IN ORDER, is what you'll find on google - actually, go to scholar, better yet search REAL periodicals, books and peer reviewed journals on the subject. Then, you will see how that this information does NOT add up to reality. Pardon the pun, but 'it don't take no rocket scientists' to find out when something is spam. http://www.urbanmyths.com/index.php?/Technology/water-and-drano-bottle-bombs-alert.html the second link is this ass clowns warning - probably a teenager or college kid spun this one for people who believe everything and research nothing. Third link http://urbanlegends.about.com/od/crime/a/bottle_bombs.htm Next links are a repeat of the hoax - MORONS! Poor little fingers get blown off - GOOD GRIEF! You deserve to be made fun of if you believe that line! And these guys went all out to make a VIDEO. I broke into tears with humor seeing the cut footage of a firetruck and cops coming out to blow up the little bombs. Aluminum CAN be used to make deadly bombs. ACIDS are used. However, the ingredents and descriptions in these stories don't match up. Hey, I've DONE this enough times myself and have never see a violent explosion. You can get a LOT more damage by using acid and potassium or red phosphorous. Heck, you just need a little WATER with those two. From: john snodgrass jcs...@yahoo.com To: Mindy King we4king...@verizon.net Cc: transverse myelitis tmic-list@eskimo.com Sent: Tue, September 7, 2010 4:34:48 AM Subject: Re: [TMIC] be careful lol,,,I think what Dad used was Lie
Re: [TMIC] MS drugs for TM
Hi Kelley, I was hit with TM in 2005 and went through paralysis from the right leg down, horrific pain in gluts and around waist and had coordination issues. Less than a year later, just as the neuro predicted, I had bladder problems which put me in the hospital. That was no laughing matter. I too was treated as if it were early MS, even though it was not. I was but on beta but not copaxion. There was brief discussion of that possibility in the future but that never materialized. I am GLAD that the doc treated me so seriously because NOW I AM WALKING Walking is a BIG BIG DEAL! LISTEN to the doctor, don't listen to common folks. You can go for second opinions if you like. A bird in hand is better than two in flight, so the saying goes. I battled with this condition for years!!! My neuro did NOT recommend PT but I went for a second opinion, which was hard to find someone to give me one, and it was actually hard for me to find someone who was willing to send me to a good PT. Before the PT, I could NOT cross my legs. Actually, I could barely drag my foot over the other. The PT was one of the BEST events. I learned how to stretch my leg and other muscles on my own. Eventually, I was able to walk a tread mill without falling off (sideways lol). One good summer on the tread mill for about 2 hours a day got me to where I could jog again but not run. That was in 2007. Another doc, that I went to for a second opinion, gave me bachlofen (sp.) and it made a HUGE different in pain management, sleep, and recovery. Another doc put me on neurotin (gabepiten) and tegretal and both made the pain go away so I could at least sleep!! and have a life. Now, I am pain free, can RUN, and only occasionally have pain and tightness in specific spots in my right leg, right glut and lower back - usually about 5 am or so. I was persistent because I did NOT want to continue life that way. I chose to mentally reject the notion that I would never walk again although THREE different doctors from two facilities told me that the best shot I had was to save my left leg and my bladder before it was too late. Now, I don't believe that one can simply not believe something and that changes things. I do have faith, believe in prayer, believe that faith makes a difference, and also believe that our mind can impact our bodies. However, that doesn't just simply mean we can wish something away. i know this isn't a philosophy or religious site; however, many of us have experienced miracles and my not so religious neuro said that I was a walking miracle. Interestingly, aside from the TM, I had non TM related neurological issues. My fatigue level was through the roof, or rather, in the basement. For quite some time, I was not able to get myself up in the morning and within 15 minutes my energy level would crash. I felt like I was in constant jet lag. I also had memory problems, esp with names. Concentration was a huge issue and I grew heavily depressed. THEN the walking suddenly came to a stop and along came the TM related pain and funny feelings. During that time, I really felt ostracized by most of the doctors that I went to; however, I was relentless and determined to get a treament that worked for me. The doctors were a pain in the butt - I don't know if doctors realize just how they come across to us sometimes. Seeing different people allowed different ideas and perspectives and a piece of the puzzle to come together with each new practitioner. Hope this helps. From: Kelly Jean Craig n2resea...@yahoo.com To: tmic-list@eskimo.com Sent: Thu, August 19, 2010 1:37:29 PM Subject: [TMIC] MS drugs for TM Hi Everyone, I was Dx with TM in May and have recovered quite well after being temporarily paralyzed. However, I still suffer from the sensory, coordination, bladder and sexual problems. I have just been prescribed gabapentin for my neuropathy. After meeting with four different neurologists, one is of the opinion that I should take MS therapies to prevent future relapses. Even though he says I do not have MS, he calls it a clinically isolated syndrome. Since my brain MRI is abnormal, he suggests that my risk of really having MS is extremely high. I just wanted to ask if your neurologists recommended taking interferon beta or copaxone therapies? The side effects are pretty horrendous and I am really concerned about quality of life, but at the same time, I don't want to have another episode and be paralyzed permanently. I would greatly appreciate any feedback on experiences, side effects, etc. Thanks, Kelly Jean
Re: [TMIC] arghhh!!!!!!!
Baclofen was a big turning point for me - didn't know about MgCitrate - got to check that out From: Janet Dunn j.d...@shaw.ca To: randy rankin rj_ran...@yahoo.com; john snodgrass jcs...@yahoo.com; transverse myelitis tmic-list@eskimo.com Sent: Wed, August 11, 2010 2:44:06 AM Subject: RE: [TMIC] arghhh!!! Hey John, Randy, I’ve been there too. Besides Percodan and Baclofen, I also use a good healthy dose of Magnesium Citrate. About 400 – 500 mgs – it is a natural muscle relaxant. And it helps with the sleep issue. Gotta love TM. Gotta. NOT! Janet From:randy rankin [mailto:rj_ran...@yahoo.com] Sent: August 10, 2010 9:48 PM To: john snodgrass; transverse myelitis Subject: Re: [TMIC] arghhh!!! Hey John, been there - understand what you're going through. I'm not sure what will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. wouldn't do any good) made a big difference but it took several years of constant determination. From:john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Tue, August 10, 2010 11:13:59 PM Subject: [TMIC] arghhh!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good.
Re: [TMIC] arghhh!!!!!!!
Hey John, been there - understand what you're going through. I'm not sure what will work for you. mix of meds and p.t. (eventhough my first neuro said p.t. wouldn't do any good) made a big difference but it took several years of constant determination. From: john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Tue, August 10, 2010 11:13:59 PM Subject: [TMIC] arghhh!!! bed at 8 up at 10 spasm city! more pain meds. now just burning legs. gotta be up at 4. slept 2.5 hours last night. whats this? getting sleepy. good.
[TMIC] how many of you had a pathogen cause TM?
More specifically, have any of you been diagnosed with an aspirgillus fungus infection/attack in your history?
Re: [TMIC] sympom check question
I don't if this questions was directed at me or Barbara or both. I would be, interested barbara, in knowing your area of attack. As for me, Dr. H. was more concerned with getting me walking again than giving me answers to a lot of questions. He is a GOOD man. He stayed at the hosiptal throughout the night monitoring my progress (and others under his care of course). I do believe that I am walking because of him. Nevertheless, I have either never thought to ask or he hasn't told me. he said at first m.s. then said that the test ruled it out and said multiple myelopothy. Another doc said that multiple myelopothy and m.s. were the same thing - just the m.s. had legions and myelopothy didn't (that was my non-medical comprehension of all the jargon.) My neurologist finally concluded it was multiple myelopothy with transverse mylities because the symptoms and test results lead to that conclusion and also because he predicted that i would start having bladder problems with six to nine months. In Feb the next year I did indeed stop peeing and had problems. He speculated strong that it was TM. Last fall, I suddenly had vertigo, balance problems, heavy fatigue, tingling in face and pain in face. The MRI (2 separate ones from 2 places) showed increased signature (whatever that means) in two facial nerves coming from the brain stem. I was told it was trigeninal neurologia. Pain meds didn't touch it but neurotin and tegretal helped. I had wierdness from October 08 until about mid Feb 09 and then everything was gone. I grew better and like a brand new person until the first 3 days of June when the facial pain came back with an alarming strength and after taking the meds for 3 days it finally went away. I could not function mentally those 3 days - I stayed on the couch. NO one has really given me direct answers to anything except that I have textbook m.s. symptoms but no supporting test results except for the TM and the TN. As to YOUR QUESTION lol I do not know where the damaged area was at. I don't know if it was right on the spine or on the transverse nerves coming off the spine. I've read a lot in the literature on the subject and seem confussed with the definition of TM. Most conclude that TM HAS to be directly on the cord itself. Some suggest that the tranverse nerves coming off the spine can be damaged and TM can be diagnosed. I wonder if that is just for the anatomical terminology - transverse - for the direction and mylitise (myelopothy) for the action that happened. The doc says that my present symtoms are coming from my neck and even though he did acknowledge that a damaged disk could cause it, my examing primary care doc said 'no', he said that the fact that I am having this shocks without touching an item and then simply touching an item sounded troublesome. So far, the only symptom that I am having is that my right hand hurts deeply - it is not like extremly painful but there is a deep brusing feeling. There is also one around c6 and in my right shoulder blade - just one spot. I'm not in extreem pain at all. It only hurts when i bend my neck down and I get this funny bone feeling in my elbows and my right arm starts feeling like I've been working on - also my right shoulder and right flank beneath my arm - ONLY when I put my head to my chest. The main pain is in my right elbow and muscles in my arm. The only other thing is that 2 days before the shocks, all my muscles, except my left chest, back and gut, seemed to be tightening all at once. Even in my arms back, stomack and ESPECIALLY the back of my legs and even in my feet. I woke Thursday and all my muscles were pulled together. I was in such pain. I wanted to jump up like I had had a charlie horse and pull those d*() muscles back in shape! But i could NOT jump up. I had to roll off the bed. Then for a good while I could not get my arms to do what I wanted them to do and I was like frankenstein's monster - stiff as a plank in my legs and my arms seem to do the opposite to what I wanted them to do. Afterwards I was sore as if I'd been in the gym for the past three days. I'm trying to think that it is because I've been sitting way to much because all I ever do is work on this dissertation paper - write and research write and write - and sit sit sit. I am hoping that sitting too much is the cause because then I can just get off my fat butt and walk lol. --- On Sat, 1/9/10, Janice Nichols jan...@centurytel.net wrote: From: Janice Nichols jan...@centurytel.net Subject: Re: [TMIC] sympom check question To: Barbara H. barbara...@gmail.com, randy rankin rj_ran...@yahoo.com Cc: tmic-list@eskimo.com Date: Saturday, January 9, 2010, 11:31 AM How high up did you all get hit by TM? Give me the part of the body, not the #. Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com
Re: [TMIC] sympom check question
ok - reread the question - 2005 I lost the use of my right leg. The right toe went first, then foot (couldn't put socks on), then couldn't cross leg, then could not sit or stand, then could not walk. My butt hurt like I had slipt on ice. My leg hurt like I'd been ice skating for 3 days. --- On Sat, 1/9/10, pjv1...@chartermi.net pjv1...@chartermi.net wrote: From: pjv1...@chartermi.net pjv1...@chartermi.net Subject: Re: [TMIC] sympom check question To: randy rankin rj_ran...@yahoo.com, Barbara H. barbara...@gmail.com, Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Date: Saturday, January 9, 2010, 12:20 PM Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #. Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
[TMIC] sympom check question
I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
[TMIC] odd question about twitching
About two months ago my left pinky started twitching about every minute and a half to 15 seconds. It did for about 2 weeks and quick. It drove me crazy but it went away. A week or so later it came back. Somethings I'd wake up in the night but I don't know if the thumping finger woke me or I just noticed it when I woke up. It stayed for a week or so and quite. Last week, my left eye lid or eye or something started twitching for a short time and would stop. For the past day or so it twitches nonstop rapidly. I don't know if it is just stress, tiredness or what but it's bugging me and I wondered if any one else in the list has had the experience. I really don't think it has anything to do with MS or TM but I thought I might ask if anyone had had similiar experiences. --- On Mon, 5/4/09, Janice jan...@centurytel.net wrote: From: Janice jan...@centurytel.net Subject: Re: [TMIC] RE: wow, you work too hard Trudy To: Patricia Cooley patticoo...@wi.rr.com, 'Akua' a...@artfarm.com, tmic-list@eskimo.com Date: Monday, May 4, 2009, 10:47 PM I hate going to something like Depends when most nites I only need an incontinent pad, but may have to. I am so good during the day. Doc's say it isn't unusual for all people to make more urine during the nite. If you can't feel the little tickle, you wet. I bet the guys are really appreciating these conversations!! Janice - Original Message - From: Patricia Cooley patticoo...@wi.rr.com To: 'Janice' jan...@centurytel.net; 'Akua' a...@artfarm.com; tmic-list@eskimo.com Sent: Monday, May 04, 2009 12:29 PM Subject: RE: [TMIC] RE: wow, you work too hard Trudy UNFORTUNATELY, I USE PADS 24/7. I GUESS THAT IS WHAT HAS BEEN SO DIFFICULT TO ACCEPT WITH TM. I HAVE HOPE THAT THERE IS A FUTURE WHEN I WON'T NEED THEM, BUT WHO KNOWS. PATTI - WISCONSIN -Original Message- From: Janice [mailto:jan...@centurytel.net] Sent: Monday, May 04, 2009 12:11 PM To: Patricia Cooley; 'Akua'; tmic-list@eskimo.com Subject: Re: [TMIC] RE: wow, you work too hard Trudy Are you all using the incontinent pads?They help me a lot. I only need them at nite - use a smaller pad during the day. Janice - Original Message - From: Patricia Cooley patticoo...@wi.rr.com To: 'Akua' a...@artfarm.com; tmic-list@eskimo.com Sent: Saturday, May 02, 2009 3:15 PM Subject: RE: [TMIC] RE: wow, you work too hard Trudy I WAS ON OXYBUTININ FOR SOME MONTHS AND IT DID ABSOLUTELY NOTHING FOR ME. SINCE I HAVE NO FEELING THAT I HAVE TO GO MY UROLUGIST SAID I COULD STOP AND I DON'T NOTICE ANY CHANGE EXCEPT THAT THE HORRIBLE TASTE IN MY MOUTH HAS GONE AWAY. PATTI - WI -Original Message- From: Akua [mailto:a...@artfarm.com] Sent: Saturday, May 02, 2009 1:59 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] RE: wow, you work too hard Trudy Tho I think there was article that some incontinence drugs cause memory loss. Yes! I stopped taking oxybutinin and do more laundry g. I now save the oxyb for special events, or visits, when i know i won't get to cath as frequently and don't want to be a wet mess. --
RE: [TMIC] UNSUBSCRIBE
Sorry to see you leave
--- On Fri, 1/9/09, wim from holland wim_from_holl...@hotmail.com wrote:
From: wim from holland wim_from_holl...@hotmail.com
Subject: RE: [TMIC] UNSUBSCRIBE
To: david-gib...@uiowa.edu, TMIC tmic-list@eskimo.com
Date: Friday, January 9, 2009, 5:42 PM
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Date: Fri, 9 Jan 2009 16:20:33 -0500
To: tmic-list@eskimo.com
From: david-gib...@uiowa.edu
Subject: [TMIC] UNSUBSCRIBE
Twee keer zo leuk. Deel foto's terwijl je chat met de nieuwe Messenger
RE: [TMIC] UNSUBSCRIBE
David, What can be done about some of the unnecessary discussions that have been occurring on this site in the past 8 or so months. They have been many people who have left this group and I believe it might be because of the bantering back and forth. Is it possibly that the ones doing the bantering can be removed off the list or blocked instead? The type of discussions in the past weeks have bothered me just a touch. I joined the group because I lost the use of my leg, followed by my bladder and recently had an attack on my brain stem that resulted in trigeminal neuralgia. I joined the group for help and because I was out there in the world without answers and in fear and desperation. I can handle a lot of the stuff that is said but I have noticed that when I read this bantering back and forth that it creates a negative focus in my mind and clogs up my email. I have thought that I might just get a new email account just for this TM group or just talk to friendly members using another Internet service so that I don't have to read the drama. I get enough of the drama from high school students where I work.
[TMIC] neuro report - went to my primary neuro - back in hospital - questions
Hormes says that my brain stem was demylenating and I'm back in the hospital. Tomorrow they will do a lumbar puncture and several specific test and start me on steriods and other stuf. Hormes is the guy that got me back on my feet when I lost my right leg in 2006 so he believes that he can stop this problem and get it all fixed. If it keeps going, I 'm at great risk of loosing more than hearing in my right ear and terrible facial pain - there are already electric shocks going down my leg and making my feet feel like i'm standing on an electric grid but those are rare. The gabapentin really made a BIG difference with the pain but i still keep getting facial funny feelings and in my hands ect - and the vertigo is still horrible enough to cause me to loose my balance. I think after the hospital I should be ok --- surely surely this will be fixed and go away and I can get back to life ??? what do you all think?/??
[TMIC] thanks for your input - tell me more about meiners
tx - i'm kinda wondering what exactly is going on. someone told me that they had a relative with meniers and that my symptoms were similiar. - first was a pain in my ear like a piece of glass and someone pushing on the glass - next dizziness followed by vertigo which has persisted - this is the one symptom that has NEVER left - next pain in front of the ear on the face on the C5 nerve - next numbness across the face and upper lips which still comes and goes often - next pain in the next followed by along the jaw line - next pain in cheeks and next to nose soon followed by above the eye - i went to ER they gave me gabepentin which solved the pain - but i still get a different pain - my face and neck feels like i had been stung by bees - burning sensations in my head - numbness in my hands - pain in my right hand like i wasp sting - and since yesterday, pain in my lower back/gluts but i have those a lot anyway
[TMIC] i think i'm starting to get answers to the TM and the present problem ... stress/virus ... feedback???
I went to my chiro doc today and he has hired a lady who works on trigger points and muscles. She found that my neck(front/back) muscles were very tight and worked on them. she found trigger points all over the place and after she finished working on them i was so much better - the face was soft and I could open/close my mouth without problem; therefore, it CAN'T be a TMJ problem. BUT the pain in/near my ear never stopped. I am under the gabapentin so it keeps it all calm; however, when I got home, the electric shock feeling back (in/near) my ear but this time it also shot down my face/neck and into my shoulder. She thinks, and I do too, that this is the shingle virus attack my nerves. Dr.Hormes, the first neuro that I ever worked with, said that he felt that my TM was caused by a virus. I mentioned this to the new neuro and he also agreed. I see/hear/read that the shingles virus is often associated with TM. THe fact that shingles can also attack the inner ear and the fact that the neuro SAW somethings in my ear very clearly makes me believe that the cause of all my problems is the virus that causes shingles. Each time that i have a MAJOR stress in my life, I get hit with something big like this. 1993 - I graduated from school and was jobless -I was having to work crazy jobs with convicts and rough type people - it was a scary experience and I was just a kid. 2005 - I worked for a bitch from hell who makes the devil look like a good guy. she treated me like fill in the blank and i got hit with TM the same year that i worked for here 2006 - my house was demolished by a tornado - less than a week later my bladder stopped working and the dr. said it was TM related Recently, I got audited by the IRS and had to pay 4500. I'm working on my doctorate and i have one class with another bitch from hell as an instructor. during our Saturday classes she sits up behind her desk and asks us condescending questions. as soon as we try to answer, she cuts us off and embarrasses us in front of the class (except for her favorite students) - she obviously doesn't like me. others in the class notice the same thing. i have had to restart my stupid project times because she didn't like it - the class cost 2500 and you have to have a 85 to pass the class. not long after i started this class my first recent symptoms appeared. So i am now more than ever thinking that this might by a virus that's being triggered by stress. what do you all think??
[TMIC] tnx jeanne
im really starting to believe the viral theory more and more - not for everyone of course - but for a lot of us. yea i stay away from the crazies as much as possible but this past month i've seen an ENT 4 times, three PC docs, two ER docs, a neuro doc and now i'm going to see another neuro monday, a jaw doc tuesday, back to the ENT doc wed and there is still one other that i've been ask to go see. after ALL These people, i stayed in PAIN PAIN PAIN - and only had drugs that wierded me out! and usually didn't help. BUT this crazy woman worked on trigger points for 2 hours and this is the FIRST time since sept 28 that i feel wonderful sure, she knows that it doesn't FIX the problem but hell never do the damn meds BUT whatever she did got rid of the pain. and i didn't have to pay her a co-pay and got 2 hours of work without charge because i prepaid for a year of chiro work and these folks had enough compassion to actually do something besides watch me suffer and ask a bunch of dumb questions. but you are right about staying away from the crazies - i know that there are a lot of them with a lot of wierd ideas. thanks for your concern - nice to be thought of
[TMIC] neuro report
I wasn't fond of the neuro. I should have tried to get back into with Hormez. I don't think I'll ever go back to Piedmont for anything. I was an awefull, awefull expereince. The good news was that the MRI showed nothing wrong with my brain. The not good news was that my trigimnal nerve was inflamed but i couldn't understand if the neuro was saying that this WAS trigiminal neurolgia or not??? - He said both?? - what does that mean? It either is or it isn't. He said that trigeminal neurolgia was a symptom of a problem and that it could not be treated but only the pain could be managed. He said that the gabapentin would help but in time, it will not work and I willl just have to increase the dosage. He said that I had to find the CAUSE of the problem. He believed that the cause had something to do with my ear but that he was not an ear specialist. But the ear specialist SENT me. He also said that it could be TMJ but I don't know what that has to do with an inflamed nerve in my brain and face. So, here I am, still in pain with no answers. The vertigo is still there - worse than ever. He said that that had to be an inner ear problem. So now, I am trying to find a denist/oral surgeon/TMJ specialist AND back to my ear doctor?? I feel so lost.
[TMIC] face/hand numbness if you know or have experience - I need some feedback
This is new. It started yesterday and I have it now. My face, starting around the temporal region extending to around the zygomatic area on both sides,followed by my forehead and lips, then down to my chin down the front neck, followed by the pariatal region of my head started feeling numb superficially. I could touch any part with my fingers and felt everything but I still had this strange numb like feeling. I could actually feel and follow the numbing pattern moving from one area to the next. I was in school, doctorate class as this began happening and I commented to three of my class mates. They just looked at me funny and went back to their school work and never mentioned it again. Next my fingers started feeling numb. But they were still working and I could touch them and feel both my touching and being touch but this odd numbing feeling was there. Then my forearm started doing the same thing and that was it. Nothing else anywhere. This last for hours and then just went away. My vertigo was back and more apparent than ever. This time, if I sat down, even slowly, I got incredibly wozzy or a hard rush. As I walked, I felt like I was walking across one of those bouncy bridges at an amusement part. I just could figure out what to do to make it just disappear. I also, for the first time started moving towards the right and crashing into things and people. It was if a pull was taking off to the right when I tried to walk. It is kinda like being tippsy without the benifits. The vergito isn't as bad as a few weeks ago and so far, until yesterday, I was attributing the oddness to an ear infection because I could not find any information anywhere that related it to a neurological problem and I really only got responses from a few people and only one really seem to maybe suggest that this is neurological so I thought probably this is just my imagination. I've already been told that I demonstrate hypodchodria by my psyc specialist. This was DIFFERENT from like when your feet go to sleep. It didn't hurt and it was not painful. It FELT LIKE I had taken a bunch of Niacin but I had taken nothing or that I had been to the denist and the shot was just starting to take effect. This morning, it was back. My forehead, lips and cheeks have a numbing and an odd COLD/HOT sensation. I preceive a warmingness but at the same time it feels like a cold. It is like holding a ice cube to my cheeks and forehead for too long. I am going to the neuro for sure this week. I would have gone sooner but my insurance company sent a letter saying that my insurance was cancil but in fact, they just switch providers. I went out and bought my own insurance - now I have two insurance companies. Those crazy people could have messed me up! I need some feed back. This is totally freaking me out. I need to know if others have experience anything like this before. I have heard about numb butts and a few other things but I don't recall anyone having these kinds of symptoms so I am wondering what is causing it and why it came for a long time, went away and now it is back again. If it is a neurological problem, shouldn't it just stay rather than go away and come back?
[TMIC] is this an M.S. problem?
I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem .
[TMIC] Re: River raft trip
I'm sorry that your feet burn - that's gotta be aweful. This is very sudden and new! I've not had this problem before - ever -- this does NOT feel the same as if you were on your feet all day - it really felt like a hot cigar being stuck to my foot - but I couldn't take it off. It is gone now. hope it doesn't come back. --- On Tue, 8/26/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: River raft trip To: Jenna Stentz [EMAIL PROTECTED], Martha Fleming [EMAIL PROTECTED], Susan [EMAIL PROTECTED], Betty-TM [EMAIL PROTECTED], [EMAIL PROTECTED] Date: Tuesday, August 26, 2008, 8:04 PM Hey all see Randy's email below.. my two cents... Randy, I can tell you my feet burn all the time feel like there on fire, as for the spasams, I have never had them but maybe one of the girls can assist -- Original message from [EMAIL PROTECTED]: -- Wow really kewl! Hey I have a ? For the group but I'm on blackberry and can't. Can u forward this to TM group? I started having amuscle spasm in my rght leg above my knee yestrday. I'm not doing any out of the ordiany. Did not think of any thing until today it continues but now it is also in my left calf thigh back left. And in my rght forarm. What the heck!? This has never happened like this that I remeber. Is this a normal thing or something not good. I am also having burning in feet like hott coals. Frst was rght now both. Really feels like a hot pocker. It hurts - not like when u stood a long time - something different Sent from my Verizon Wireless BlackBerry -Original Message- From: [EMAIL PROTECTED] Date: Sun, 24 Aug 2008 23:39:57 Subject: River raft trip Well as you can see had a GREAT time white water rafting with the folks from Shepherd Center this weekend. We were on the Nanathala River near Bryson City, North Carolina. This picture was taken at the end of the 8 mile trip. It’s a †œclass 3 rapid” and as you can see we were ready for some fun. They let us get out about half way down and swim if we wanted to so I did, (with a little push from Brian) let me tell you nothing will make you move fast than 50 degree water!!! Was exhausted the next day but would do it again in a heartbeat! I was the only female from Shepherd Center that was on the trip and have a lot of respect for the folks that had to drag our wheel chairs thru gravel, dirt and water to get us in and out of the river.! So waiting to see where these pictures end up next year! He he! Can wait to do this Kim
[TMIC] TIMS
TINS, TEMS, whatever you call it, really did wonders for me after an auto accident in 01 but when I tried it with the TM I was in intense pain for 2 or 3 days afterwards. I tried it one more time and it was just so painful afterwards that I didn't want to do it again. I tried it near the TM area and also on my legs. It felt good on my legs but it never made any improvements. I just spent a lot of money. I'd try it again if I thought that it might make a difference. I'm glad that it worked/works for some.
[TMIC] facebook - and TM MS adv.
I just started a facebook - it is cool - i like this one . If anyone wants to join it or learn about how to make one please feel free - also - if you have facebook and no how to add an ad I want to put one up for the Cure and some other stuff if you would like to help me : Dhttp://www.facebook.com/profile.php?id=1314342486
[TMIC] med question - meloxicam and baclofen
Ok - what's the scoop on these drugs. Have any of you all taken them? Did they help? Where there any significant side effects? I was sent to a bone doc. to have a look. He wants me to try baclofen for spasms, (i didn't know that I was having them - everyone else says that I'm not have spasms - I'm so confussed on the term spasms. - first neuro talked about my legs being spastic because they wouldn't move - he pick them up and the right leg would stick in mid area lol - he'd have to push it back down. When I mentioned spasm later, everyone would look at me oddly and say that I wasn't having spasms. Now this guy is giving me meds for spasms and says that my right leg shows signs of spasticity) He said my vert was great - mild degeneration in mid T and at L-5 S-1 - which I already knew about. The 'arthritis' is genetic/ getting older he said - but it is unusual for my age. He said my 2001 car accident didn't have anything to do with it - but my chiro told me in 01 that it would come in time because it almost always shows up in a few years after a major collision. Anyway - what's the scoop on all these meds. before I decide to go ahead and take them I just wanted find out if it is worth the time. - You rock. That's why Blockbuster's offering you one month of Blockbuster Total Access, No Cost.
[TMIC] A month before TM -
I have asked this question myself but not as well-worded. I have often asked myself this question. I had been in an auto accident 3-4 years prior that caused damage to my C-6 and C-7 and mid t range. However, the accident has been ruled out as a significant factor. I am going to bone doctor next week because I have now developed athritis throughout my spine. My x-rays and MRI's after the accident showed NO bone problems other than two broken bones in the neck and a lot of tissue damage. Three weeks before the TM - i was in the National Forest and got eaten up by mosqitoes. I counted about 19 bites on my right pinky alone. Three days later, I got a flu-like illness and put me in bed for three days. I basically SLEPT three days of my life away and woke only briefly during that time to a volume of sweat. I had a fever, cold chills, and no energy. I was also in such a fog that I bearly remember those days. I was so sick at school that i could not see to walk and I had horrible blurred vision. My first neurologist believes my TM was caused from a virus that attacked at the lowest areas of my spine. Later, the damage showed up on future MRI proving him right about the damaged area. My first neuro believed that I had/have early MS and that the lumbar puncture didn't reveal this factor because it was taken at a higher area than were the problem might be. He also suggested that the three lesions in the left side of my brain were indicators to early MS and he believed that I was experiencing multiple mylopothy / demylination but that it didn't show on the MRI film and that the treatments stopped it from continuing. The MS dianosis was dropped after future MRI's showed that the lesions were gone and had not left scar tissue in my brain but the TM stuck because the increased signals and evidence of nervous tissue imflamation was still appareant along with the symptoms- eventhough I am improving. Other than this, I had foot drop in 1993, 12 years prior to my presenation of TM. This was A BRIGHT idea!! THis is how we should be using this email communication. Good research. - Looking for last minute shopping deals? Find them fast with Yahoo! Search.
[TMIC] I forgot to mention the STRESS!!!
I had the GReATEST stress of my life!! before TM. My boss was persecuting the hell out of me and making my life incredibly misserable!! I ACTUALLY WAS WRITTEN UP for failure to follow the proceedures when I left the school to get checked out. The neuro. said one more hour and you'd never used either leg or your bladder again. So that bitch (sorry for those of you that don't like bad words) that bitch put me through hell and then punished me even after I lost my ability to walk!!! She said that I had to be able to perform my duties and responsibilities as a teacher - which included - WALKING and PEEING! What a bitch. I'll say again - - Never miss a thing. Make Yahoo your homepage.
[TMIC] Now this is truly funny! If you need a good chuckle then take a look.
A teacher from school sent this to me. This is one of the funniest things I've seen. I've watched several times and still get a great laugh! Regardless of where you stand on the politics of the day, I think that you'll find this incredibly funny! http://jokelibrary.net/yyPictures/m/2008b.html - Never miss a thing. Make Yahoo your homepage.
[TMIC] Rita - Another unidentified becomes identified!
Welcome to the group. I have often wanted to ask everyone in here how they got TM - kind of a survey. My first neuro also believes that I had a virus infection because I had gotten suddenly sick about 3 weeks prior and the clinic said I had a mild virus. Whatever happened, my vision was so doubled I had a hard time turning the curves on roads. I also struggled to walk down the hallway and had to lean against the walls. 2.5 weeks later pain and discomfort started in my low back. I couldn't sit, stand up, sit down, or find any comfortable position to lay, stand or sit. then i lost the use of my toes, foot, knee to my feet, leg, thigh and then it move into my other side. I don't get tired as easily as I used to and the fatigue isn't a problem any more. I STILL get stiff legged sometimes -- don't understand why. But phy. thearpy got me walking without problems - sometimes, i have trouble crossing my legs. [EMAIL PROTECTED] wrote: My name is Rita. I am in snowy Cleveland, OH. I was diagnosed with TM Memorial Day weekend 2007 at the C-4/C-5 region, apparently from a virus I had 3 weeks prior. With some people introducing themselves I thought it was time I did to. I have read your emails and received a lot of helpful information. So, hello to all of you, some I feel as if I know, and Thank You for the help you have given me over the past 10 months. My onset of TM seemed sudden. The Friday of Memorial Day weekend I was cutting a friends hair. I began having a sharp pain in my upper back. Thought it was just a kink and tried to work it out. I them began to have numbness in my left arm and them into my right. After dropping my comb a couple time and when I could barely open and close the scissors I told my friend something was wrong. Thank goodness I got the last snip in on her hair. She took me to the hospital and by the that time I was having a hard time opening my hands and was getting leg weakness. After 2 days in the hospital and several x-rays and cat scans a neurologist order a MRI. By Sunday he had diagnosed me with TM, checked my spinal fluids, which were fine and I was sent home on Monday Memorial Day. Not quite sure what the heck TM was and feeling week, I thought I would be better by weeks end and out shopping for flowers for the yard. Needless to say but my yard did not get any new plants last summer. On Tuesday the kids got picked up for school as I could not drive. My symptoms began to worsen. I began to feel that sharp pain in my neck and back. As I tried to reach in a cupboard for a cup my right arm fell and hit me in the face and the pain worsened. I started to panic when I tried to call my sister and my fingers couldn't push the buttons. after numerous tries I got a hold of her. She came and called the neurologist and he ordered steroids. I was very week. I remained out of work until mid August. My symptoms have improved greatly since and I am thankful for that. However, my body just doesn't feel right. I still do have numbness on the right side of abdomen, My right arm tricep still isn't doing good and I have a stim unit here to help it from deteriorating any further. I still get pain in my neck and back and in October I began experiencing Lhermittes sign, and I do get so tired still. I get a cold burning feeling in my arms and hands and they aren't cold to the touch. If something cold touches my fore arms it feels like it burns. Has anyone onset been from a virus? Another thing I experience that my neurologist thinks is something other than TM is if I am out in and it is windy or cold and tense up almost as if to shiver, my legs stiffen up and I have a hard time walking. Has anyone experienced that? There, I did it, I am now identified! Rita (Snowing BIG TIME in Cleveland) - Never miss a thing. Make Yahoo your homepage.
Re: [TMIC] continue acceptance is tough
Galyon - I understand the frustration. I've been through this too. People look at you and just expect you to just - stop doing something - as if it is a behavioral issue. You should try to be a teacher and have rediculous county officials (most are not that intelligent or have a strong educational background - you should see what types of degrees many of them have - P.E. and health ect) chalk you up as defiant or violate rules and proceedures and conduct codes because you pee too much at the wrong - unscheduled times - that you walk with a limp or you don't jump up and run to the door when the bell rings because you CAN'T and then they document you as insubordinate. I understand what you mean when someone invites you to church and you sit in the back because you know that you'll have to go to the bathroom 5 times during service - and when you legs twitches people stare at you for inturpting their little spiritual moments. Trust me - it gets frustrating. I hate, after all that, to go to a doctor because you are in pain - and they say 'well, that's just part of the problem or you spine MRI shows normal range readings - except for a few minor signals in your spinal nerves ect. Well those minor readings hurt like hell, keep you up at night, make you drive to work scary, and never let you rest for a few moments. Always feel free to share your feelings. It helps get stuff out but it also helps others as well. [EMAIL PROTECTED] wrote: Now I have always been the type person that won't go to the doctor when I should and still had the same attitude even at this time, cause the pain would change from un bearable to just as soon as the pain would start to let up, I would think alright, I'm gonna be ok. Finally my wife convinced me to go to the mountain hospital to let them look at me own our way back home. If any of you have ever been to a small town hospital you can imagine how different the experience can be. The doctor had them to do a cat scan on me and she thought I was in pain from my spinal stenosis that she diagnosed me with. Of course now I'm riding back home with my leg jumping around and would not stop moving and my wife was thinking can't you stop that? I said no my legs are jumping all on their own. After 1 hour 45 min. we arrived at our main home (where all the flat landers live). That night I was hit again with the same symptoms as before. And went to a more modern day hospital. I had to use a wheelchair and was in tears from the pain. Now with more doctors looking at me they decided to take me to have an MRI cause at this point they thought I had something wrong with my spine and was gonna need immediate surgery for what ever they find. I was put on IV steroids and glad of it and of course pain meds to try and calm me down. Then the doctors came in and said, ( will continue later) - It's Tax Time! Get tips, forms and advice on AOL Money Finance. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.
Re: [TMIC] Unidentified subject! for all
I also have this electric pain and I have had it long before my dx of TM. I tell doctors about this and they just look at me like I am an idiot. I've not hear of other TM'rs talk about this type of pain before. It is my single most disturbing aspect of the condition. This week, while I was working with students (I teach) I had an intense shock hit me in my lower back and across my gluts left and right from my spine - it hit so hard that I yelled out - which shocked everyone - I was about to explain when it hit again - and again and agian - all i could do was sit down and griemence. I usually get these in my chest and I've had them since about 19years of age. my neuro psyc says that I am a hypercondriac. - well, call me whatever - just get rid of the d*( pain! Have you learned WHY the electric pain - obviously no one has told you how to get rid of it - but i sure would like to find that out too thanks for sharing Lawrence King [EMAIL PROTECTED] wrote: Hi Steven, It's the one year anniversary of my TM attack and I was affected at C4-C5. I guess it would qualify as a semi acute attack as my symptoms developed slowly and I never lost mobility or even urinary/bowel control though it does take more effort these days, what I did develop was neuropathic pain from the chest down: feels like I'm being electrocuted 24/7. My pain has never improved and is not likely to and my balance is poor. To avoid burning sensation I have given up all soda and limit juice to a small cup a day. I find I can handle coffee if I drink a lot of water. I also take vitamin C at night to acidify the urine and reduce my chances of developing an infection. Hope this helps.. Mindy the Artist On Mar 2, 2008, at 9:31 PM, Larry Throne wrote: Welcome to the family Steven! You'll find a lot of love and understanding here. Where are you from? Maryland? From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Date: Mon, 3 Mar 2008 00:06:18 + Subject: [TMIC] Unidentified subject! My name is Steven Jabs I am 34 years old. I have TM since 2003 I was affected from the chest down and lost my breathing. I was treated at John Hopkins by Dr. Kerr. I currently walk with a cane. I have bladder problems and allot of burning. I would like to talk to people who also have TM.[EMAIL PROTECTED] Mindy King www.chairweaver.com (740) 662-2001 - Never miss a thing. Make Yahoo your homepage.
[TMIC] How to call the cops ... short, funny, and true
HOW TO CALL THE POLICE HOW TO CALL THE POLICE WHEN YOU'RE OLD AND DON'T MOVE FAST ANYMORE. George Phillips of Gold Coast, Australia was going up to bed when his wife told him that he'd left the light on in the garden shed, which she could see from the bedroom window. ( Boy does this sound familiar! ) George opened the back door to go turn off the light but saw that there were people in the shed stealing things. He phoned the police, who asked Is someone in your house? and he said no. Then they said that all patrols were busy, and that he should simply lock his door and an officer would be along when available. George said, Okay, hung up, counted to 30, and phoned the police again. Hello, I just called you a few seconds ago because there were people stealing things from my shed. Well, you don't have to worry about them now because I've just shot them. Then he hung up. Within five minutes three police cars, an Armed Response Unit, and an ambulance showed up at the Phillips' residence and caught the burglars red-handed. One of the Policemen said to George: I thought you said that you'd shot them! George said, I thought you said there was nobody available! (True Story) I LOVE IT - Don't mess with old people!! Note: forwarded message attached. - Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.---BeginMessage--- HOW TO CALL THE POLICE HOW TO CALL THE POLICE WHEN YOU'RE OLD AND DON'T MOVE FAST ANYMORE. George Phillips of Gold Coast, Australia was going up to bed when his wife told him that he'd left the light on in the garden shed, which she could see from the bedroom window. ( Boy does this sound familiar! ) George opened the back door to go turn off the light but saw that there were people in the shed stealing things. He phoned the police, who asked Is someone in your house? and he said no. Then they said that all patrols were busy, and that he should simply lock his door and an officer would be along when available. George said, Okay, hung up, counted to 30, and phoned the police again. Hello, I just called you a few seconds ago because there were people stealing things from my shed. Well, you don't have to worry about them now because I've just shot them. Then he hung up. Within five minutes three police cars, an Armed Response Unit, and an ambulance showed up at the Phillips' residence and caught the burglars red-handed. One of the Policemen said to George: I thought you said that you'd shot them! George said, I thought you said there was nobody available! (True Story) I LOVE IT - Don't mess with old people!! ---End Message---
[TMIC] This is got to be the coolest story!!!
Pastor's Challenge Shocks Congregation By HELEN O'NEILL, AP Posted: 2007-12-22 07:00:06 CHAGRIN FALLS, Ohio (Dec. 20) - The Rev. Hamilton Coe Throckmorton shivered with anticipation as he gazed at the loot - wads of $50 bills piled high beside boxes of crayons in a Sunday school classroom. Cautiously, he locked the door. Then he started counting. Photo Gallery: What Happened to the Money? Amy Sancetta, AP Reverend Hamilton Throckmorton, right, surprised his congregation in Chagrin Falls, Ohio, when he followed up a sermon by handing out $40,000 in cash. 1 of 9 It was a balmy Friday evening in September. From several floors below faint melodies drifted up - the choir practicing for Sunday service. Throckmorton was oblivious. For hours, perched awkwardly on child-sized wooden stools surrounded by biblical murals and children's drawings, the pastor and a handful of coconspirators concentrated on the count. Forty-thousand dollars. Throckmorton smiled in satisfaction as he stashed the money in a safe. That Sunday, the 52-year-old minister donned his creamy white robes, swept to the pulpit and delivered one of the most extraordinary sermons of his life. First he read from the Gospel of Matthew. And unto one he gave five talents, to another two, and to another one; to every man according to his ability. Then he explained the parable of the talents, which tells of the rich master who entrusts three servants with a sum of money - talents - and instructs them to go forth and do good. The master lavishes praise on the two servants who double their money. But he casts into the wilderness the one so afraid to take a risk that he buries his share. Throckmorton spends up to 20 hours working on his weekly homily, and his clear diction, contemplative message and ringing voice command the church. Gazing down from the pulpit that Sunday, Throckmorton dropped his bombshell. Like the master, he would entrust each adult with a sum of money - in this case, $50. Church members had seven weeks to find ways to double their money, the proceeds to go toward church missions. Live the parable of the talents! Throckmorton exhorted, as assistants handed out hundreds of red envelops stuffed with crisp $50 bills and stunned church members did quick mental calculations, wondering where all the money had come from. There are about 1,700 in the congregation, though not everyone attends each week. The cash, Throckmorton explained, was loaned by several anonymous donors. In her regular pew at the back of the church, where she has listened to sermons for 40 years, 73-year-old Barbara Gates gasped. What kind of kooky nonsense is this, she thought. Sheer madness, sniffed retired accountant Wayne Albers, 85, to his wife, Marnie, who hushed him as he whispered loudly. Why can't the church just collect money the old-fashioned way? In a center pew, Ann Nagy's eyes moistened as she considered her ailing, beloved father, his suffering, and the song she had written to comfort him near death. She nudged her husband Scott. Give me your $50, she whispered. Nagy knew exactly what she would do. Throckmorton wrapped up his two morning services by saying that children would get $10. And he assured the congregation that anyone who didn't feel comfortable could simply return the money. No consignment to outer darkness for those who didn't participate. Throckmorton is warm and engaging and approachable, as comfortable talking about the Cleveland Indians baseball team as he is discussing scripture. At the Federated Church, he is known simply as Hamilton. But as church members spilled into the late summer sunshine that morning to ponder their skills and their souls, there were many who thought: Hamilton is really pushing us this time. There was definitely this tension, this pressure to live up to something, said Hal Maskiell, a 62-year-old retired Navy pilot who spent days trying to figure out how to meet the challenge. Maskiell's passion is flying a four-seater Cessna 172 Skyhawk over the Cuyahoga County hills. He decided to use his $50 to rent air time from Portage County airport and charge $30 for half-hour rides. Church members eagerly signed up. Maskiell was thrilled to get hours of flying time, and he raised $700. His girlfriend, Kathy Marous, 55, was far less confident. What talents do I have, she thought dejectedly. She was tempted to give the money back. And then Marous found an old family recipe for tomato soup, one she hadn't made in 19 years. She remembered how much she had enjoyed the chopping and the cooking and the canning and the smells. With Hal's encouragement Marous dug out her pots. She bought three pecks of tomatoes. Suddenly she was chopping and cooking and canning again. At $5 a jar, she made $180. I just never imagined people would pay money for the things I made, Marous exclaimed. Others felt the same way. Barbara Gates raised $450 crafting pendants from beads
[TMIC] stem cell breakthrough
I got this email from a friend of mine back in Moscow. Galina was a colleague of mine when I taught school. - Forwarded Message From: ?? ?? [EMAIL PROTECTED] To: randy rankin [EMAIL PROTECTED] Sent: Sunday, December 16, 2007 8:14:40 AM Subject: Re: Hello Randy, our holidays start in January. It is chilly and sleety here - the weather is most unhealthy. I wish you could send us some of your sunshine. I have some good news for you. There's a man here - a coworker of a student of mine - who has recently been cured of MS. As far as I know the doctors who treated him used the so-called stem cells. The results are amazing, but the fees are outrageous! All the best, Galina Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
[TMIC] thanks for your thoughts
Like the lady in Wisconsin said, I've been 'chill'n' down here in Ga this past week or so - Of course, I'm sure that I'm not chill'n nearly as much as folk in Wisconsin are right now - i'm sure it very cold up there brrr - btw Wisconsin is one of my fav states - there is just something really tranq. about Eau Claire, and riding a canoe down the Flambau or whatever the heck that river is called. Two of my best friends live up there. Anyway ... Thank you all for you comments, advice, and personal experiences. I've calmed down now and just started focusing on daily life. I don't remember wish one of you pointed out that I now have a few doctors who are trying to do the right thing and helping me. I suppose all of us get frustrated, angry and depressed. I had a touch of depression but got over it quickly. I think sometimes that I hope too much and expect too much from that hope. I've made a lot of improvements and keep making improvements but sometimes I wish I could rush it along because some aspects have never gotten better while others have. But thanks again for your thoughtful words and acts of kindness. In response also to that last email, I've often wondered why that the doctors haven't used more than one type of MRI. They keep using the same kinds of MRI's and it was only recently that I even got a lumbar MRI where most of pain and problems seem to come - even though they found problems in other places. I still have lots of questions - many have been answered. I think I've realized that I'm not going to get many answers in the doctor's offices - only hypothesis and shrugs. If anyone knows how one might be able to get a insurance plan in Maryland (Isn't that where John Hopkin's is at) I would try to take a stab at finding a way to do it - maybe I should get a job up there lol Be a better sports nut! Let your teams follow you with Yahoo Mobile. Try it now. http://mobile.yahoo.com/sports;_ylt=At9_qDKvtAbMuh1G1SQtBI7ntAcJ
[TMIC] my first time to vent!
I guess the old saying is true, There is a first time for everyting. I've been reading emails and rarely do I write much. So many people on this list seem to have much more on their plate to deal with than myself. This past week, I started getting results back from test. I still understand just about as little as I did a few years ago and I have yet to find a doctor to pull everything together and explain to me just what the hell is going on or was going on or will be going on. It seems that you are damned for trying to learn or find out information and you are damned for doing nothing. I went back to my primary care phy in August because for almost a year and a half I had missed my scheduled doctor appointments. I was sent to the hospital in 05 because I could not walk and I was hurting in my ass, back and legs so terribly badly. I was sent to the hospital 6 months later because I stopped peeing and it made me really sick with a high fever. In both situations, the doctors could not find an exact cause to the aliments and I was officially diagnosed in May 06 with transverse myelitis. In 05 I had been diagnosed with multiple myelopothy and my neurologist believed for a short time that it had the early stages of M.S. but he either forgot to tell me that he changed his opinion or I just forgot. So from April 2005 til May 06 I thought that I had or was developing MS and it scarred the hell out of me. In 06 when they explained that it was NOT MS but TM I felt like an idiot and decided not to go back to any more doctors. No one sent me to a physical therapist although I BEGGED to be sent to one. I also knew and had been told that I was having some serious memory, concentration, retention ect problems and it was significantly impacting my job at work at three different schools over a period of several years and it seemed to be getting worse. I also had this INCREDIBLE FATIGUE that I could not figure out what was causing it and I experienced NON STOP depression that lasted for THREE YEARS OF MY LIFE! and NOTHING I could DO, THINK, MOTIVATE myself do about it would change it. I told NO ONE about this. I just LIVED WITH IT. I only started telling doctors about it when it suddenly just WENT AWAY! without any explanation about 3 weeks after treatment for my partial paralysis experience in 05. So I wanted to know WHY it was there in the first place and WHY it disappeared and will it come back and can I do something to keep it from coming back. But when I asked my neurologist about it he said that it was the medication during the hospital that caused the depression, anxiety, ect and he wrote that information down. But he didn't LISTEN to the comments - I decided just to go on with life and forget these intelligent people. Meanwhile I suffered day after day night after night with pain in my back, ass and legs and sometimes my feet. I can't explain what kind of pain it is! It never stays the same! Sometimes it feels like electricity and most of the time it just feels uncomfortable. It feels like when you are standing on ice and you loose your balance and you try not to fall but you are going to fall anyway and the longer that you stand the more those muscles inside your legs and butt ect start hurting - that's what it feels like all the time - and it also feels like when you finally do fall and land on your tail bone and your butt and spine ache - but it doesn't feel like that specific moment when you actually fall, it feels like the pain one feels in their butt about 3 days later after they fell - if that makes any sense. I also suffered with mobility problems. I could walk! YIPPEE!!! I wasn't in a wheelchair or using a cane. So my neurologist told me that I was a lucky lad and a walking miracle. Because I COULD walk, I didn't feel that I should yack about my problems because so many people cannot walk at all. I was getting better. Nevertheless, I could not run or even jog. I could not work out in the gym without experience incredible pain and significant flexibility and mobility problems for the next three days after wards. People at work noticed that I was slow, that I dragged my right side when I walked, that I had to pee about every 15-30 minutes on some days. And of course many of them asked questions. I of course didn't really want to talk about it so I'd just say - well, they think that I might have had MS or might be getting it but I'm getting better but it takes time. It made me uncomfortable. People would say, You need to go get that checked out! And I would say, I already have. If I go back, they'll just say that they've already diagnosed me and that there isn't anything that can be done and if I ask questions, they'll just look at me like I'm crazy again and I'll feel like a fool. People also didn't like the fact that I was going to the bathroom all the time. The neuro tried to make me wear a
[TMIC] Unidentified subject!
I go for several tests on monday - CT/MRi of lumbar, brain check, lumbar pucture - always hate going through all these things but my neuro things i need to do it - so keep me in your thoughts/prayers __ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
