Re: [TMIC] HAPPY BIRTHDAY JIM!
Hi Jim, Thanks for the update. I couldn't be happier for you. I see you sure enjoy playing Mafia Wars, and it must be good for your hand. Hugs to you, Barbara A -Original Message- From: Jim Lubin jlu...@eskimo.com To: Laura Beaudin laura.beau...@gmail.com; tmic-list@eskimo.com Sent: Sat, Oct 31, 2009 7:13 pm Subject: Re: [TMIC] HAPPY BIRTHDAY JIM! Thanks everyone. Still able to move left hand at times. Not even having pain anymore. Only able to move it when I have been sitting upright in my chair after a few minutes. At 06:07 PM 10/27/2009, Laura Beaudin wrote: Jim's birthday? HAPPY BIRTHDAY! How goes the hand?? Laura Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org HAPPY BIRTHDAY! How goes the hand?? Laura Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [TMIC] Fwd: Fw: cell phone numbers go public this month
So, is there not a way to block these solicitations? I haven't received any yet, but I have family members and friends that get them all the time. I called the # and it supposedly added mine to some list, but now I wonder where it went... Barbara A in Auburn CA -Original Message- From: Laura Beaudin laura.beau...@gmail.com To: bgunny7...@aol.com Cc: Tmic-list@eskimo.com Sent: Wed, Oct 28, 2009 2:32 pm Subject: Re: [TMIC] Fwd: Fw: cell phone numbers go public this month False: http://www.snopes.com/politics/business/cell411.asp On Wed, Oct 28, 2009 at 3:30 PM, bgunny7...@aol.com wrote: -- Forwarded message -- From: CONNIE FISHER cfisher69...@roadrunner.com To: undisclosed cfisher69...@roadrunner.com Date: Wed, 28 Oct 2009 16:52:35 -0400 Subject: Fw: cell phone numbers go public this month - Original Message - - Original Message - REMEMBER: Cell Phone Numbers Go Public this month. REMINDER. all cell phone numbers are being released to telemarketing companies and you will start to receive sales calls. YOU WILL BE CHARGED FOR THESE CALLS To prevent this, call the following number from your cell phone: 888-382-1222. It is the National DO NOT CALL list. It will only take a minute of your time.. It blocks your number for five (5) years. You must call from the cell phone number you want to have blocked. You cannot call from a different phone number. HELP OTHERS BY PASSING THIS ON .. It takes about 20 seconds. THIS IS THE NUMBER THAT YOU CALL TO REGISTER YOUR LAND LINE NUMBER ALSO! -- Laura Them be Fightin' Words! Halloween Mini Unit-Study http://practical-homeschooling.org 15 Provocative Anti-Smoking Ads (warning: some are graphic) Today's feature: 8 Creative Cat Beds www.laurascoolstuff.com Personal Development for Lazy People: Physical Symptoms of Obesity: it CAN be inherited http://www.laurabeaudin.com
Re: [TMIC] Facebook Page
Gilly, you are so funny. Where there are games, Gilly will follow... (I'm kind of hooked on the hidden object ones a bit myself these days) Hugs to you, Barbara A -Original Message- From: Gillian Clark mingalett...@activ8.net.au To: TM list tmic-list@eskimo.com Sent: Mon, Oct 19, 2009 10:49 pm Subject: Re: Re: [TMIC] Facebook Page Games Janice?? Games you say!!! A never ending amount!! hugs Gilly - Original Message - From: Janice To: Krissy Z ; TM List Sent: Tuesday, October 20, 2009 1:18 PM Subject: Re: Re: [TMIC] Facebook Page I thought facebook for for contacting people.There are games too? Janice - Original Message - From: Krissy Z To: TM List Sent: Monday, October 19, 2009 11:12 AM Subject: Fw: Re: [TMIC] Facebook Page i have farm town, farmville, mafia wars, bewjeweld, tho that game stresses me!! LOL vampire wars,yoville (tho not on that alot),,I am addicted to ti all! I love it :) ~Krissy~ We are all in this together, by ourselves. - Lily Tomlin ~I'm In pretty Good Shape For the Shape I am in~ --- On Thu, 6/25/09, Grace M. grace...@gmail.com wrote: From: Grace M. grace...@gmail.com Subject: Re: [TMIC] Facebook Page To: Jim Lubin jlu...@eskimo.com Cc: Akua a...@artfarm.com, tmic-list@eskimo.com Date: Thursday, June 25, 2009, 10:53 PM Hi Jim, I'm afraid to even start Farm Town---I KNOW I'll get addicted...as it is, I already need to start attending Mahjong Addicts Anonymous meetings ;-) Gracie
Re: [TMIC] Neurontin
The spasms will make you toned, and the Zanaflex will?relax the muscles.? The only way you would really know if the Neurontin is working or helping you or not is if you didn't take it.? I am?not telling you to do that to find out.??I personally wouldn't take anything that I didn't feel I needed, as every medication has some side effects, whether we feel them or not. If you don't think it does anything for you, it may be something you would want to discuss with you doc.? Hugs, Barbara A in Auburn CA -Original Message- From: alle...@aol.com To: tmic-list@eskimo.com Sent: Fri, Oct 9, 2009 12:22 pm Subject: Re: [TMIC] Neurontin -Original Message- From: alle...@aol.com To: tmic-list@eskimo.com Sent: Fri, Oct 9, 2009 12:22 pm Subject: Re: [TMIC] Neurontin I looked up clonus and yes that is what my doctor calls toning but I also take a Zanaflex and it loosens my legs up. If I were to take more neurontin I could not get anything done but with the dosage I do take I?do not notice the pain or buzzing. I wonder if this is what french fries feel like when they cook. ?It was 9 years the other day?and I think I am handling this TM stuff pretty good, have a good day all..Ella
Re: [TMIC] October Birthdays
? HAPPY BIRTHDAY TO ALL OCTOBER BIRTHDAY PEOPLE.? ENJOY! Hugs, Barbara A in Auburn CA
Re: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS
No, he didn't at the time, just suggested that I eat some yogurt, which I did.? The problem was that I was getting pneumonia several times a year for 2 years in a row and he last time I was in Florida for my sons wedding and had to go to an urgent care facility and they prescribed Amoxicillin for me.? That did me in.? Plus I was away from home and it made it so much worse for me having diahhrea, trying to think of the fact that I should be on vacation enjoying myself and the family celebration going on and feeling?so poorly.? I can't tell how much money I spent on probiotics that I've purchased from the health food store over the years trying to get my gut back in shape.? But, after suffering from my gut issues caused by the antibiotics, which caused the C-diff, I'm happy to say that I'm feeling so much happier these days after taking the Culturelle.? I used to have several days per month that I couldn't leave the house, actually, could hardly leave my bedroom, as I had to be that close to my bathroom.? My PCP told me that after having the C-diff my gut may get somewhat improvement, but may never be completely healed.? Sound familiar? Happy trails to all, I can leave the house?with some confidence.? Hugs, Barbara A from Auburn, CA? -Original Message- From: roseofr...@aol.com To: balmat...@aol.com; tmic-l...@eskimo.net Sent: Mon, Sep 21, 2009 8:40 am Subject: Re: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS Regarding the problem you had with antibiotics. I don't understand why doctors don't prescribe probiotics along with their antibioticsor at least tell their patients to take themyou can buy them over the counter? It would solve the bad bug problem and eliminate the diarrhea (sp?). ?? Hugs,? Lynn ?? ? In a message dated 9/18/2009 11:37:26 P.M. Pacific Daylight Time, balmat...@aol.com writes: What's wrong with just eating the prunes?? I've used dried fruits, prunes, apricots, etc. as well as food that has a lot of fiber like beans, depending on what the situation is over the past year and have finally been able to regulate myself.? After 9 years of bowel problems, this has been so much help to me. ? I haven't had as much trouble with constipation as I have had with loose stools.? Frankly, for me, constipation has been much easier to deal with, but that's my body.? Now that I've said that, I hope things don't go back to having problems again.? There were many times, sometimes for months, that I was afraid to leave my home.? I suffered from C-diff, where the bad bugs?had overtaken my gut and there were hardly any good bugs left.? It has taken me a long time to balance that out again.? That's what antibiotics can do to you if you take a few.?? ? Hugs to all, Barbara A ? ? ? -Original Message- From: roseofr...@aol.com To: jan...@centurytel.net; cherp...@msn.com; tmic-l...@eskimo.net Sent: Thu, Sep 17, 2009 9:58 am Subject: Re: [TMIC] Prunes for those with a sweet tooth Okay girls.if you want to make this cake more healthy:-) do not use the corn syrupthat is the worse thing you can put in your bodyuse the honey. also.substitute olive oil for the veg. oil. ? I learned from a chef that you can substitute olive oil for any oil in your recipesand you can substitute butter in any recipe that calls for shortening or margarine. ? I've been a happy baker ever since.? :-) ?? ~ Lynn ?
Re: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS
Mindy, Sounds like a nice way to practice medicine.? To treat the whole person, good medicine.? I really have what I'd call a good doctor now.? I have always liked my doctor, but it really depends on what's going on at the time in your life.? If they take the time to ask a few questions or not, the answers may really help to make a different diagnosis.? They are generally in a hurry from what people tell me, but mine will give me as much time as I need, hence, I don't mind waiting a bit, as I know he's doing the same for another ahead of me. Hugs to you, Barbara A in Auburn CA -Original Message- From: Lawrence King we4king...@verizon.net To: tmic-list@eskimo.com Cc: Lawrence King we4king...@verizon.net Sent: Mon, Sep 21, 2009 11:18 am Subject: Re: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS Mine and a few other doctors are beginning to but she's a DO rather than an MD. ?Osteopathic doctors are fully certified by the American Medical ?Association but are supposed to consider body, mind and spirit as a whole when diagnosing a persons condition, ?My DO was happy to hear I was a member of my church choir and Liturgical art's guild and made note of it in my file. ?I live in a town with an Osteopathic med school at Ohio University... it's an interesting place to receive healthcare. ?I often get a chance to speak directly to future doctors and you can bet I have fun doing so! Mindy the Artisan On Sep 21, 2009, at 11:40 AM, roseofr...@aol.com wrote: Regarding the problem you had with antibiotics. I don't understand why doctors don't prescribe probiotics along with their antibioticsor at least tell their patients to take themyou can buy them over the counter? It would solve the bad bug problem and eliminate the diarrhea (sp?). ?? Hugs,? Lynn ?? ? In a message dated 9/18/2009 11:37:26 P.M. Pacific Daylight Time, balmat...@aol.com writes: What's wrong with just eating the prunes?? I've used dried fruits, prunes, apricots, etc. as well as food that has a lot of fiber like beans, depending on what the situation is over the past year and have finally been able to regulate myself.? After 9 years of bowel problems, this has been so much help to me. ? I haven't had as much trouble with constipation as I have had with loose stools.? Frankly, for me, constipation has been much easier to deal with, but that's my body.? Now that I've said that, I hope things don't go back to having problems again.? There were many times, sometimes for months, that I was afraid to leave my home.? I suffered from C-diff, where the bad bugs?had overtaken my gut and there were hardly any good bugs left.? It has taken me a long time to balance that out again.? That's what antibiotics can do to you if you take a few.?? ? Hugs to all, Barbara A ? ? ? -Original Message- From: roseofr...@aol.com To: jan...@centurytel.net; cherp...@msn.com; tmic-l...@eskimo.net Sent: Thu, Sep 17, 2009 9:58 am Subject: Re: [TMIC] Prunes for those with a sweet tooth Okay girls.if you want to make this cake more healthy:-) do not use the corn syrupthat is the worse thing you can put in your bodyuse the honey. also.substitute olive oil for the veg. oil. ? I learned from a chef that you can substitute olive oil for any oil in your recipesand you can substitute butter in any recipe that calls for shortening or margarine. ? I've been a happy baker ever since.? :-) ?? ~ Lynn ? =
Re: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS
Hi Patti, As far as I know, Lactobacillus GG and acidophilus are two different probiotics.? Somebody who knows more than I do about this would be a better person than I to answer this one.? All I know is that I took one capsule each day that I was on the antibiotic and I do not have the problem any longer.? None during the time I took it and none since.? That's why I am such a happy camper. We used to camp a lot and years ago, I am talking about 30 years ago, it was kind of our theme song.? For some reason, the words just came out, lol. Hugs, Barbara A from Auburn CA -Original Message- From: Patricia Cooley patticoo...@wi.rr.com To: balmat...@aol.com; roseofr...@aol.com; tmic-l...@eskimo.net Sent: Mon, Sep 21, 2009 4:21 pm Subject: RE: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS I agree.? My doctor never mentioned taking acidophilus capsules.? My daughter told me about it after I too had several bad experiences with diarrhea ?which I just as soon forget.? Now I take one each morning.? Is Culturelle the same as acidophilus?? There is also a product out there that is stronger than acidophilus called Flora Jen which is recommended for people on anti-biotic meds.? I have some of that too. ? Patti in Wisconsin ? From: balmat...@aol.com [mailto:balmat...@aol.com] Sent: Monday, September 21, 2009 2:34 PM To: roseofr...@aol.com; tmic-l...@eskimo.net Subject: Re: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS ? No, he didn't at the time, just suggested that I eat some yogurt, which I did.? The problem was that I was getting pneumonia several times a year for 2 years in a row and he last time I was in Florida for my sons wedding and had to go to an urgent care facility and they prescribed Amoxicillin for me.? That did me in.? Plus I was away from home and it made it so much worse for me having diahhrea, trying to think of the fact that I should be on vacation enjoying myself and the family celebration going on and feeling?so poorly.? ? I can't tell how much money I spent on probiotics that I've purchased from the health food store over the years trying to get my gut back in shape.? But, after suffering from my gut issues caused by the antibiotics, which caused the C-diff, I'm happy to say that I'm feeling so much happier these days after taking the Culturelle.? I used to have several days per month that I couldn't leave the house, actually, could hardly leave my bedroom, as I had to be that close to my bathroom.? My PCP told me that after having the C-diff my gut may get somewhat improvement, but may never be completely healed.? Sound familiar? ? Happy trails to all, I can leave the house?with some confidence.? Hugs, Barbara A from Auburn, CA? -Original Message- From: roseofr...@aol.com To: balmat...@aol.com; tmic-l...@eskimo.net Sent: Mon, Sep 21, 2009 8:40 am Subject: Re: [TMIC] Prunes for those with a sweet tooth ~ ANTIBIOTICS PROBIOTICS Regarding the problem you had with antibiotics. I don't understand why doctors don't prescribe probiotics along with their antibioticsor at least tell their patients to take themyou can buy them over the counter? It would solve the bad bug problem and eliminate the diarrhea (sp?). ?? Hugs,? Lynn ?? ? In a message dated 9/18/2009 11:37:26 P.M. Pacific Daylight Time, balmat...@aol.com writes: What's wrong with just eating the prunes?? I've used dried fruits, prunes, apricots, etc. as well as food that has a lot of fiber like beans, depending on what the situation is over the past year and have finally been able to regulate myself.? After 9 years of bowel problems, this has been so much help to me. ? I haven't had as much trouble with constipation as I have had with loose stools.? Frankly, for me, constipation has been much easier to deal with, but that's my body.? Now that I've said that, I hope things don't go back to having problems again.? There were many times, sometimes for months, that I was afraid to leave my home.? I suffered from C-diff, where the bad bugs?had overtaken my gut and there were hardly any good bugs left.? It has taken me a long time to balance that out again.? That's what antibiotics can do to you if you take a few.?? ? Hugs to all, Barbara A ? ? ? -Original Message- From: roseofr...@aol.com To: jan...@centurytel.net; cherp...@msn.com; tmic-l...@eskimo.net Sent: Thu, Sep 17, 2009 9:58 am Subject: Re: [TMIC] Prunes for those with a sweet tooth Okay girls.if you want to make this cake more healthy:-) do not use the corn syrupthat is the worse thing you can put in your bodyuse the honey. also.substitute olive oil for the veg. oil. ? I learned from a chef that you can substitute olive oil for any oil in your recipesand you can substitute butter in any recipe that
Re: [TMIC] Prunes for those with a sweet tooth
What's wrong with just eating the prunes?? I've used dried fruits, prunes, apricots, etc. as well as food that has a lot of fiber like beans, depending on what the situation is over the past year and have finally been able to regulate myself.? After 9 years of bowel problems, this has been so much help to me. I haven't had as much trouble with constipation as I have had with loose stools.? Frankly, for me, constipation has been much easier to deal with, but that's my body.? Now that I've said that, I hope things don't go back to having problems again.? There were many times, sometimes for months, that I was afraid to leave my home.? I suffered from C-diff, where the bad bugs?had overtaken my gut and there were hardly any good bugs left.? It has taken me a long time to balance that out again.? That's what antibiotics can do to you if you take a few.?? Hugs to all, Barbara A ? -Original Message- From: roseofr...@aol.com To: jan...@centurytel.net; cherp...@msn.com; tmic-l...@eskimo.net Sent: Thu, Sep 17, 2009 9:58 am Subject: Re: [TMIC] Prunes for those with a sweet tooth Okay girls.if you want to make this cake more healthy:-) do not use the corn syrupthat is the worse thing you can put in your bodyuse the honey. also.substitute olive oil for the veg. oil. ? I learned from a chef that you can substitute olive oil for any oil in your recipesand you can substitute butter in any recipe that calls for shortening or margarine. ? I've been a happy baker ever since.? :-) ?? ~ Lynn
Re: [TMIC] Stem Cell funding
Promises, promises! -Original Message- From: kevin weilacher hwyfli...@yahoo.com To: rj_ran...@yahoo.com; Jim Lubin jlu...@eskimo.com; TMIC-LIST@eskimo.com Cc: bgunny7...@aol.com Sent: Sat, Sep 19, 2009 8:34 am Subject: Re: [TMIC] Stem Cell funding LOL...Randyhow right you are From: rj_ran...@yahoo.com rj_ran...@yahoo.com To: kevin weilacher hwyfli...@yahoo.com; Jim Lubin jlu...@eskimo.com; TMIC-LIST@eskimo.com Cc: bgunny7...@aol.com Sent: Saturday, September 19, 2009 11:31:37 AM Subject: Re: [TMIC] Stem Cell funding Sounds like poltics at its finest moments. Sent from my Verizon Wireless BlackBerry From: kevin weilacher Date: Sat, 19 Sep 2009 07:14:56 -0700 (PDT) To: Jim Lubinjlu...@eskimo.com; TMIC-LIST@eskimo.com Subject: [TMIC] Stem Cell funding Yes...I do stand correctedI misspoke when I made the general statement on stem cell research. I guess my basic point is thisPresident Obama lifted the ban on funding on human embryonic stem cell research back in March I believe it was. From articles I've read, even though that ban was lifted, no federal funding has reached the researchers which has obviously slowed their progress. There was supposed to be 8.2 billion dollars made available for this. Now the researchers are having to rely on private funding and whatever grants they can find. Anything we can do as a nation of people, to help that situation out, certainly can't hurt. From: Jim Lubin jlu...@eskimo.com To: kevin weilacher hwyfli...@yahoo.com; TMIC-LIST@eskimo.com Sent: Friday, September 18, 2009 5:47:43 PM Subject: Re: [TMIC] Who else knew this about Gunny..? (Richard Boyle) At 09:30 AM 9/17/2009, kevin weilacher wrote: It seems that since President Obama lifted the ban on stem cell research nothing else has happened because there has been a total lack of funding for continued research. Currently, it seems that the only way anything is going to get done is if we, ourselves takes this bull by the horns and do something for ourselves. That's because there never has been a ban on stem cell research. He lifted the ban on federal funding of stem cells from human embryonic sources. Jim Lubin?? jlu...@eskimo.com http://makoa.org/jim disAbility Resources:http://www.makoa.org
[TMIC] antibiotics and Culturelle (probiotic)
Something I've been meaning to write in about, just haven't gotten around to it.? I recently had surgery on a lypoma on my back and had a stitch that didn't dissolve correctly.? It decided to work it's way back out and cause me an infection instead.? I put off getting the antibiotic as long as I could, then didn't have a choice.? When I got the antibiotic I also picked up a box of Culturelle. It costs $20, but there's 30 in the box and you only take one a day.? It has Lactobacillus GG, and safe and appropriate for kids too.? It's well worth the money, and has a long shelf life.? The box I bought in July is good until 01/11. I myself have had problems with antibiotics and diahhrea and remember my kids suffering with ear infections, etc and having the same symptoms.? It was a life saver, and believe me, my gut has been amazing since taking this stuff.? I have spent so much money on probiotics, and have not had any results like this.? As far as yogurt, I eat it all the time now, but it hasn't helped me like this has. Hugs to all, Barbara A in Auburn, CA
Re: [TMIC] TAMIFLU....and....ANTIOXIDANTS
Hello Rose, No need to feel so guilty for eating popcorn now is there, lol!? I am sure glad you posted this Rose, it's a lot easier to add the grains and cereals to your diet.??When I used to ask my old PCP about vitamins, he'd tell me that the best way is not to take supplements but to get a well balanced diet.? I think it's so much more important these days since so many are afraid of any type of reaction or having problems with drug therapy, as the flu shot.? And the good food?aids in the?digestive tract also, so maybe not as many BM issues. Hugs, Barbara A -Original Message- From: roseofr...@aol.com To: tmic-list@eskimo.com Cc: roseofr...@aol.com Sent: Sun, Sep 6, 2009 1:03 pm Subject: [TMIC] TAMIFLUandANTIOXIDANTS Tamiflu linked to bizarre reactions Dear Friend, It's yet another case of the cure being worse than the disease. In the UK, more than half of the kids who have taken Tamiflu -- the antibiotic weapon of choice to combat the H1N1 virus -- have experienced side effects. Although most of these side effects have been minor (such as stomach cramps and nausea), as many as one in five of these kid have had disturbing, neuropsychiatric reactions to the drug. Reports say that kids have had an inability to think clearly, have suffered from nightmares, and have behaved strangely. Unfortunately, these reactions are nothing new. The dangers of Tamiflu are well-documented. It's even been linked to the deaths of some children and teenagers. It's really no wonder. The drug is not just an antibiotic, like so many assume it is -- it's a neuraminidase inhibitor that blocks viral enzymes that can assist the flu virus in infecting the respiratory tract. In the U.S., the FDA has acknowledged that there have been as many as 1,800 reports of kids experiencing abnormal behavior when they're given Tamiful. In Japan, they've actually banned the use of Tamiflu by kids. But because the UK is in such a cold panic over swine flu, they're handing out Tamiflu like candy. Believe it or not, there's even a telephone hotline and website where people can order a prescription without having to consult a doctor. So far, as many as 150,000 people have been prescribed the drug in this manner. No wonder so many kids are having so many side effects. At the first sign of a runny nose or a headache, their parents are pumping them full of Tamiflu, thanks to Dr. Web. All of these risks in order to reduce the flu symptoms by less than two days. That's right: according to the makers of Tamiflu, clinical tests have shown that the drug only has the ability to reduce the duration of symptoms by about 36 hours. It just doesn't add up. Pop goes the antioxidants If you're looking for an antioxidant boost, you might want to head to the movies. After all, this is where you'd be likely to eat lots of popcorn, which, according to a new study, has a hefty dose of antioxidants. Who knew you could battle cancer while taking in a matinee? Researchers at the University of Scranton in Pennsylvania examined whole-grain snacks and cereals (not the sugary death bombs that I'm always warning you about) and found them to be just as rich in polyphenols as they are in fiber. Originally, it was thought that the high fiber content in these foods was what made them such effective weapons against cancer and heart disease. Turns out it's really a double-whammy of fiber and polyphenols. Raisin bran packed the biggest antioxidant punch, weighing in at a whopping 524 milligrams of antioxidants per serving. The surprise is that the antioxidant content is found in the grains that these foods are made from. Researchers found that popcorn is the king of antioxidant content when it comes to snack foods, so munch on... just go easy on that movie-theater liquid they call butter. Always giving your brain some healthy snacks to chew on, William Campbell Douglass II, M.D.
Re: [TMIC] TAMIFLU....and....ANTIOXIDANTS
Hi Rose, Yes, I know that cereals aren't what they tell us they are, but by cooking fresh foods, dry beans, rice, etc., we can get a lot of nutrients that we would not get by eating the convenience foods that so many are eating in their diets.? That's what my doctor was referring to when he said that we shouldn't expect a vitamin to do it for us, that we have to use good food to nourish the body first.? But yes, I agree that supplements have their place.? But so many take it to the extreme.? And, companies are getting rich on supplements as well as drugs.? That?Tamiflu just scares the heck out of me!? I've never taken it, and am sure glad that I didn't.??I use sea salt, and?I don't have high BP, but would the no salt with potassium chloride?still be something that would?be a good thing to try? Hugs, Barbara A? -Original Message- From: roseofr...@aol.com To: balmat...@aol.com; tmic-list@eskimo.com Sent: Mon, Sep 7, 2009 8:48 am Subject: Re: [TMIC] TAMIFLUandANTIOXIDANTS -Original Message- From: roseofr...@aol.com To: balmat...@aol.com; tmic-list@eskimo.com Sent: Mon, Sep 7, 2009 8:48 am Subject: Re: [TMIC] TAMIFLUandANTIOXIDANTS Hi Barbara ~ ? ?? You picked up on the same thing I did when I first read this article I was thinking, CoolI can eat all of the popcorn I want since I can eat my weight in that stuff.? LOL..!? I do go easy on the butter...and use no salt with potassium chloride since I now have high B.P.? Can't tell the difference between that and regular sea salt. ? ?? On the supplements I have to disagree with your old PCP?we definitely need supplements, ?reason being, it's impossible to get all of?our vitamins/minerals from our foodespecially these days.? For example, these so-called vitamin enhanced cerealswhat a joke that is!? They spray a thin spray of vitamins over the cereal and then they can call it enhanced or whatever word they are using these days. There is no way a person can get , for example, the vitamin D3 they need from their foods no matter how well they eat.? There just isn't enough in our milk, cereal, and so on to give us the levels we need.? You would have to eat five bowls of cereal, a couple of gallons of milkwell, you get my drift.? I would have had fun with your old PCP girlfriend.? :-) ?? Love ya,? Lynn ? ? ? In a message dated 9/7/2009 12:33:06 A.M. Pacific Daylight Time, Balmatmic writes: Hello Rose, ? No need to feel so guilty for eating popcorn now is there, lol!? I am sure glad you posted this Rose, it's a lot easier to add the grains and cereals to your diet.??When I used to ask my old PCP about vitamins, he'd tell me that the best way is not to take supplements but to get a well balanced diet.? I think it's so much more important these days since so many are afraid of any type of reaction or having problems with drug therapy, as the flu shot.? And the good food?aids in the?digestive tract also, so maybe not as many BM issues. ? Hugs, Barbara A -Original Message- From: roseofr...@aol.com To: tmic-list@eskimo.com Cc: roseofr...@aol.com Sent: Sun, Sep 6, 2009 1:03 pm Subject: [TMIC] TAMIFLUandANTIOXIDANTS Tamiflu linked to bizarre reactions Dear Friend, It's yet another case of the cure being worse than the disease. In the UK, more than half of the kids who have taken Tamiflu -- the antibiotic weapon of choice to combat the H1N1 virus -- have experienced side effects. Although most of these side effects have been minor (such as stomach cramps and nausea), as many as one in five of these kid have had disturbing, neuropsychiatric reactions to the drug. Reports say that kids have had an inability to think clearly, have suffered from nightmares, and have behaved strangely. Unfortunately, these reactions are nothing new. The dangers of Tamiflu are well-documented. It's even been linked to the deaths of some children and teenagers. It's really no wonder. The drug is not just an antibiotic, like so many assume it is -- it's a neuraminidase inhibitor that blocks viral enzymes that can assist the flu virus in infecting the respiratory tract. In the U.S., the FDA has acknowledged that there have been as many as 1,800 reports of kids experiencing abnormal behavior when they're given Tamiful. In Japan, they've actually banned the use of Tamiflu by kids. But because the UK is in such a cold panic over swine flu, they're handing out Tamiflu like candy. Believe it or not, there's even a telephone hotline and website where people can order a prescription without having to consult a doctor. So far, as many as 150,000 people have been prescribed the drug in this manner. No wonder so many kids are having so many side effects. At the first sign of a runny nose or a headache, their parents are pumping them full of Tamiflu, thanks to Dr. Web. All of these risks in order to reduce the flu
Re: [TMIC] Arthritis
Janice, I looked at the website earlier when somebody suggested it and they use it personally.? What I read on the website is that they have a bottom of the jar guarantee.? I was going to try myself as a local drug store carries it, but haven't been there yet. Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com; tmic-l...@eskimo.net Sent: Mon, Aug 24, 2009 7:59 pm Subject: Re: [TMIC] Arthritis Obviously Kevin needs to get a life!!? Janice - Original Message - From: kevin weilacher To: Janice ; tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:23 PM Subject: Re: [TMIC] Arthritis Off topic here.but I read that first sentence.and saw Australian Dream and thought you were talking about our lovable Gilly..*hope she doesn't smack me for that...* Kevin From: Janice jan...@centurytel.net To: tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:54:45 PM Subject: [TMIC] Arthritis Has anyone tried the Australian Dream the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money,? $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. ? Thanks, Janice
[TMIC] able to move
Jim, Tears came to my eyes as I read your message and then when I saw the video, it was so awesome to see.? Move Jim, Move Jim, it was like Run Forest, Run!? Over and over again, amazing, and so thrilling for you.? I couldn't be happier for you.? Yet another message that I had to read outloud to my family!? And, I believe that I'll also be sharing with my friends and family. Oh Jim, I quickly forwarded your message to my son?Adam once I read it, so he could see the good news as well.? Just so this makes sense to those reading this, my son plays Mafia Wars with Jim. Especially BIG HUGS to you Jim, Barbara A
Re: [TMIC] Victory Junction
Hello Debbie, ?? I got so excited to see your letter that I quickly called Pete into the room and read your message outloud to him.? I was so thrilled to hear of all the experiences that these kids were able to have, that otherwise wouldn't be available to accessible to them.? Oh, I am so happy to hear that so many had such a wonderful time and if for just a week had the time of their lives that will not be forgotten in many years, if ever. ?? I had no idea that this camp was such a wonderful place.? And, it definately brought tears to my eyes to think of Michael baiting hooks for the kids and helping them to get them back in the water to hopefully live to be caught again by another child.? To think of you doing arts and crafts is good too, but Michael, so many kids never ever get a chance to go fishing! ?? Thanks also for the update on the kids that we haven't heard about in quite a while.? It's nice getting those updates, as I know?meant to much to you to see again.? Hard to think of Rachael's brother being teenagers, but it makes sense.? Time flies doesn't it?? I'm looking forward to seeing the pictures soon and hope that you're well rested now. Warm hugs, Barbara A ? -Original Message- From: Deborah Nord Capen dca...@earthlink.net To: tmic-list@eskimo.com Sent: Sun, Aug 23, 2009 12:37 pm Subject: [TMIC] Victory Junction Hi All, I have returned from Victory Junction Camp in Randleman, North Carolina.? I was one of the volunteer camp counselors for our Transverse Myelitis family week that the Nascar Petty family has promised to sponsor once every two years for our kids.? (I have been home and back to work for a week, but it took me this long to recover from jet lag.) ? What a wonderful camp experience for all the young kids with transverse myelitis, ADEM and NMO to meet other kids and form lifelong friendships!? We watched these quadriplegic and paraplegic kids experience horseback riding, archery, fishing, bowling, pampering themselves with pink/purple/green hair and fingernails in the Fab Shop, ride in hot air balloons! ? This camp was provided to the kids, siblings and parents totally free of charge!? They had cabins to sleep in, lots of good food (and NOT so nutritious food like Krispy Kreme donuts hand dunked, slurpies, ice cream, popcorn) to eat, they had a stage night where the kids made up their own little shows and performed for all of us on the big stage. ? There is a totally accessible water park for the kids to play in - the swimming pool has shoreline so the kids can be wheeled in onto special floating lounges - motorcycles that squirt water at each other, a cool waterslide - one night we had the Cucumber 500, where everybody sculpted a cucumber into a floating vessel, then we raced them in the river portion of the pool to see whose cucumber boats would cross the finish line first (or sink halfway through). ? My husband Michael got to go with me for his first time, and he was in charge of helping bait the hooks, take the fish off the hooks, holding the fishies so the kids could kiss them before throwing them back in the lake.? I was in charge of the arts and crafts with another member of our list, who I finally had the pleasure of meeting for the first time, after corresponding with her over the past few years (Sue, I will have pictures downloaded from my computer to send you hopefully this week).? We helped the kids do bead projects, plaster casts of their hands (not too successful), spin-art painting, scrapbooks).? They also had the opportunity to do wood-burning projects, paint wood crafts, etc.? Did I mention the maze that they got to get lost in, and every night the counselors would move the gates to change the maze, so they could get lost all over again the next day? ? What was so cool about the camp was that there were adults with TM there, who had come to volunteer their time with the kids.? I think that this was cool, because the parents (as well as the kids) could see that life does go on, and we can all lead productive lives, even though TM has come to live with us permanently. ? Did I mention the totally handicapped-accessible treehouse with an accessible bathroom at the top?? Also an indoor baseball diamond in the sports arena, and an indoor gym with basketball court, pool tables, video games.? Oh, and I also forgot to mention that we had a Nascar pit crew join us for dinner one evening, then show us with a real live race car how fast they could service the car when it screams into the pit for tire changes!? The two crews had contests to see which crew was fastest.? After the contests, they invited the kids to come up and change the tires, using the air wrenches to remove the nuts and replace them.? Also, in Adam's race shop, there are real race cars that the kids can slide into, then drive with computer-simulated racetracks.? There are more video games at this camp than you could
Re: [TMIC] my knee
Hi Janice, So far, I've only had the steroid injections also.? It's my daughter in-law's aunt who is getting the other injections.? I will get the name of the injection in the next few days.? The aunt just had some surgery yesterday, so I need to wait till she talks to her. Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: magiema...@hotmail.com; cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Sat, Aug 22, 2009 8:04 am Subject: Re: [TMIC] my knee If you don't mind, I would like the name of the stuff they are putting in her knee.??? So far, I think I have only had steroids put in my knee. Thanks Janice - Original Message - From: balmat...@aol.com To: magiema...@hotmail.com ; jan...@centurytel.net ; cherp...@msn.com ; tmic-list@eskimo.com Sent: Friday, August 21, 2009 12:41 AM Subject: Re: [TMIC] my knee Wow, I am so sorry to hear that you have had to have such HUGE amount of surgeries on your knee.? ? I may be wrong in what I called the injection, but my daughter in-law's aunt is getting something every 3 months in her knee.? She will not have another surgery.? This is for sure some sort of artificial cartilage, which I am sure I neglected to mention now that I think of it.? And it most likely has a steroid in it as well.? I can find out the name of it if you'd like. ? Hugs, Barbara A -Original Message- From: Maggie magiema...@hotmail.com To: jan...@centurytel.net; cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Thu, Aug 20, 2009 5:08 pm Subject: RE: [TMIC] my knee I had a partial knee replacement (Avon) on March 26, 2009.? I am 47 years old and yes, considered very young to have it done.? My recuperation?took much longer?than normal as?this was the 15th surgery on my knee and the amount of scar tissue was hindering the mobility. ? I am doing much better?now and am pain free.??Actually,?I didn't require any pain killers immediately after surgery. ? As for the cartilage injection, I have never heard of such a thing as cartilage? is not something that you can transplant back?to replace what has deteriorated or shredded.? Cartilage does not adhere to anything.? It just shreds off.? Trust me, if there was a way to put more cartilage into a knee, I would have been the guinea pig to try it. ? Margaret ? From: jan...@centurytel.net To: cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] my knee Date: Tue, 18 Aug 2009 20:50:50 -0500 I am very careful of my knee also. I am back into therapy now, again, and my PT is taking a really different direction with working on leg strength because of the knee.??? I don't really feel any pain any more, but I feel just enough to let me know to be careful. Janice - Original Message - From: balmat...@aol.com To: jan...@centurytel.net ; cherp...@msn.com ; tmic-list@eskimo.com Sent: Tuesday, August 18, 2009 5:56 PM Subject: Re: [TMIC] my knee Hi Janice, ? Well, my doc told me that if the first shot that I got in April didn't work, and if this one did, it's possible that my PCP missed and it landed in the wrong spot.? If they both don't work, then we struck out.? Not likely both missed, and the shots would not help me.? Personally, I would be scared of the Prednisone pills for 10 years, as we've seen here how they can mess with the bones.? I've rested it for a couple of days now as it was really irritated after the exam, and it seems ready for some exercise now.? I'll see how it responds with the same amount of exercise I was doing prior to the shot, and?then I'm back on target.? Then, I am hoping to be able to do more after the two weeks, but time will tell.? The key for me (as well as all of us) is to know when enough is enough.? I have had TM for 10 years, and I still don't always know until it's too late.? At least I'm mindful of my knee now.? Most of the time I overdo the spine, which if I do, I rest the knee as well, lol. ? Take care all, hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: L T CHERPESKI cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Tue, Aug 18, 2009 2:44 pm Subject: Re: [TMIC] my knee I have had the cortisone injections in the knee.??? The first one did not do much, so they got me on Prednisone pills for about? 10 days.??? Not much improvement.??? Then, later on, they gave me another shot in the knee and there was improvement and then over some weeks, it really was pretty good. I think the doc's always tell you the shot is not a cure, but it sure helps. Janice - Original Message - From: L T CHERPESKI To: tmic-list@eskimo.com ; balmat...@aol.com Sent: Monday, August 17, 2009 11:03 PM Subject: Re: [TMIC] my knee Barbara, ? Well it's no big deal about not asking about the injection of cartilage, but it IS a big deal what you're going through.? My
Re: [TMIC] OT:My Pattern published!
Akua, I am so very happy for you.? It's about time that something nice has happened to you. Hugs, Barbara A -Original Message- From: Akua a...@artfarm.com To: tmic-list@eskimo.com Sent: Sat, Aug 22, 2009 4:35 pm Subject: [TMIC] OT:My Pattern published! This is off Topic, but I am so full of complaints and disappointments--- that i share and work on here-- that i wanted to share a ray of hope.? ? I got a box the other day from Simon and Schuster... i had not clue what it was til i opened it...? ? My 2010 Crochet A Day Calendar arrived and my Flower Link scarf patternis in it!? ? This particularly sweet, not only because the pattern was rejected by Interweave ( so if at first you don't succeed try, try again)? ? but because my model was my visually challenged neighbor from the complex I stayed in, in Rochester while learning to live my life anew as a paraplegic and awaiting my home's rehab.? ? It was a hellishly hard and horrible time and I missed the art i used to make and crochet? was both a salvation and communication. I offered weekly crochet lessons in that building.? ? The picture was taken on a sunny but chilly day in the courtyard I used to love to roll to...? the pattern was about turning poison into medicine.? by hand? from heart? ? -- ?
Re: [TMIC] my knee
Wow, I am so sorry to hear that you have had to have such HUGE amount of surgeries on your knee.? I may be wrong in what I called the injection, but my daughter in-law's aunt is getting something every 3 months in her knee.? She will not have another surgery.? This is for sure some sort of artificial cartilage, which I am sure I neglected to mention now that I think of it.? And it most likely has a steroid in it as well.? I can find out the name of it if you'd like. Hugs, Barbara A -Original Message- From: Maggie magiema...@hotmail.com To: jan...@centurytel.net; cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Thu, Aug 20, 2009 5:08 pm Subject: RE: [TMIC] my knee I had a partial knee replacement (Avon) on March 26, 2009.? I am 47 years old and yes, considered very young to have it done.? My recuperation?took much longer?than normal as?this was the 15th surgery on my knee and the amount of scar tissue was hindering the mobility. ? I am doing much better?now and am pain free.??Actually,?I didn't require any pain killers immediately after surgery. ? As for the cartilage injection, I have never heard of such a thing as cartilage? is not something that you can transplant back?to replace what has deteriorated or shredded.? Cartilage does not adhere to anything.? It just shreds off.? Trust me, if there was a way to put more cartilage into a knee, I would have been the guinea pig to try it. ? Margaret ? From: jan...@centurytel.net To: cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] my knee Date: Tue, 18 Aug 2009 20:50:50 -0500 I am very careful of my knee also. I am back into therapy now, again, and my PT is taking a really different direction with working on leg strength because of the knee.??? I don't really feel any pain any more, but I feel just enough to let me know to be careful. Janice - Original Message - From: balmat...@aol.com To: jan...@centurytel.net ; cherp...@msn.com ; tmic-list@eskimo.com Sent: Tuesday, August 18, 2009 5:56 PM Subject: Re: [TMIC] my knee Hi Janice, ? Well, my doc told me that if the first shot that I got in April didn't work, and if this one did, it's possible that my PCP missed and it landed in the wrong spot.? If they both don't work, then we struck out.? Not likely both missed, and the shots would not help me.? Personally, I would be scared of the Prednisone pills for 10 years, as we've seen here how they can mess with the bones.? I've rested it for a couple of days now as it was really irritated after the exam, and it seems ready for some exercise now.? I'll see how it responds with the same amount of exercise I was doing prior to the shot, and?then I'm back on target.? Then, I am hoping to be able to do more after the two weeks, but time will tell.? The key for me (as well as all of us) is to know when enough is enough.? I have had TM for 10 years, and I still don't always know until it's too late.? At least I'm mindful of my knee now.? Most of the time I overdo the spine, which if I do, I rest the knee as well, lol. ? Take care all, hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: L T CHERPESKI cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Tue, Aug 18, 2009 2:44 pm Subject: Re: [TMIC] my knee I have had the cortisone injections in the knee.??? The first one did not do much, so they got me on Prednisone pills for about? 10 days.??? Not much improvement.??? Then, later on, they gave me another shot in the knee and there was improvement and then over some weeks, it really was pretty good. I think the doc's always tell you the shot is not a cure, but it sure helps. Janice - Original Message - From: L T CHERPESKI To: tmic-list@eskimo.com ; balmat...@aol.com Sent: Monday, August 17, 2009 11:03 PM Subject: Re: [TMIC] my knee Barbara, ? Well it's no big deal about not asking about the injection of cartilage, but it IS a big deal what you're going through.? My goodness.? Did you already have the Cortisone injection, if so please let us know if it helps.? I hope for your sake it does.??I'm impressed with your doctor for being totally honest with you by telling you not to expect this to be a magic pill.? Everybody has different issues, so the outcome is not necessarily the same for all. ? Hey,?congratulations on those pounds you already lost.? Getting started is the hardest part, and looks like you're on your way.??It is?a lot of hard work after the surgery, but you will feel sooo much better.? And better is good.??I know you can do it!??Just keep focused on being able to be more active. ? Please keep us posted. ? hugs, Linda - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Sunday, August 16, 2009 1:25 AM Subject: [TMIC] my knee I went to the orthopedist yesterday, and found out that I am
Re: [TMIC] OT? - Anyone who has employee STD/LTD benefits.
Hi Cheryl, Are you saying that you've never had to go through any trouble with your LTD carrier this whole time?? That is awesome if so.? I've had TM for 10?yrs and fortunatly have LTD for the extra salary.? However, I've had quite a ride with it.? They were great to work with originally during the STD and first couple of years of LTD phase.? They even totally handled my SSDI paperwork, and quickly requested payback of their share of my retro payment once I was approved first time around.? They have since denied me several times, and I have had gruelling appeals.? There is a great deal of abuse in the disability insurance industry, many people fake it, and that makes it so hard for those of us who are seriously disabled and entitled to the insurance payment.? They also take advantage of people not having the strength to fight back and just giving up and not appealing the denial. For me, this last appeal was brutal.? I had to appeal 2 times on my own.? If I needed a third appeal, it then would be with an attorney.? That is what the Plan called for.? It was very hard to get together a worthy appeal against the insurance company while taking a good deal of medication.? I requested a copy of the medical records they had on file and were using to deny my claim.? I needed to go through my?records, and they weren't that easy to read.? There were 2 reams of paper, and so many sheets were duplicates.? It took so long, but I finally got it done the second time around.? It was about 3 years ago, and they haven't bothered me since.? I'm 58 and I hope they don't bother me again, but I wouldn't count on it. I am so much better prepared to?fight now than I was then though.? I'll give them HELL this next time. If faced with this, get support from any direction you can.? You'll?need it! Hugs, Barbara A? -Original Message- From: rn11...@yahoo.com rn11...@yahoo.com To: CANDIS KALLEY cakal...@embarqmail.com Cc: tmic-list@eskimo.com Sent: Wed, Aug 19, 2009 1:37 pm Subject: Re: [TMIC] OT? - Anyone who has employee STD/LTD benefits. Hi, ?? Wow! So many people on the list have insurance horror stories.?I am really lucky.I got my LTD less than 1 year before getting tm on 8/13/95. The physiatrist in rehab filed the LTD paperwork promptly. Also,I was told years later that using the right words in the filing was crucial. ?? Keep EVERY bit of paper sent by the company. If you speak to someone on the phone,tell them you want the discussion and resolution backed up by a letter. Give them 10 days,and follow up with them if you don't get a letter. DON'T GIVE UP! Some companies try to wear youi down. ?? I applied for SSD on the phone while still in rehab,and was approved right away. I started getting benefits 5 months from onset of tm.? ?? ?LTD got screwed up by the benefits manager at the hospital I worked at. She told me everything was all set,and I would get a check in December retroactive to August. She then left to have surgery. Apparently her mind wasn't on my claim;when I hadn't heard anything from my LTD carrier,I called and was told they would not send anything yet. I cried because I had a mortgage and overdue?bills to pay. I got a certified check in the mail overnight! ?? When I got the SSD retroactive payment in January,I had to give back all of it to LTD,since they had been giving me the total amount. ?My policy coverage was for a total of 60% from SSD and LTD combined. ?? I was very fortunate. At the beginning I had to keep proving disability every 6 months,then every year,then every 18 months. I also had a thorough exam by their neurologist a few years ago.Last year they offered me a lump sum that I turned down;it would have?meant losing thousands of dollars.?My LTD ends 6/17/2011 on my 65th birthday. Then I start my pension from work.? ?? My LTD insurer The Hartford has been very good. Still,whenever I get something in the mail,I worry. I know?a friend at work (a unit secretary) had Uno LTD insurance and she's had problems since day 1. She had loads of paperwork,and she said at the time they're trying to wear me down so I'll give up,and it's not going to happen. It's been years and they still give her a hard time. ?? Cheryl in Easthampton,MA.?? --- On Wed, 8/19/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] OT? - Anyone who has employee STD/LTD benefits. To: tmic-list tmic-list@eskimo.com Date: Wednesday, August 19, 2009, 12:55 PM First to all newbies - WELCOME Anyone with TM who has been employed and has as a benefit Short/Long Term Disability (STD/LTD) PLEASE beware of these companies - you are not safe with/from them.? They will do anything to get you off your deserved payments.? You need to contact a good ERISA lawyer ASAP! Here is a question from disinssues and a reply from a former insurance representative: I may be able to shed some light on this,
Re: [TMIC] Linda Needs Some Help
I will look for this as well, as I have arthritis in my hands. I have used Icy Hot on my back, knee and legs when things get bad, but wouldn't use on my hands because I didn't ever want it close to my face in case while sleeping, and I can't sleep in gloves. I just looked at the website and it looks like they have at Walgreens, which is the only store listed in my area. They have a Empty Jar Guarantee, so have nothing to lose, you can get a refund. Sounds like it's worth a try to me. Thanks for the info. Hugs to all, Barbara A -Original Message- From: lynne myers lynnemye...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Tue, Aug 18, 2009 5:28 am Subject: Re: [TMIC] Linda Needs Some Help I get mine at our local drug store, but they also have a website. www.australiandream.com/ --- On Tue, 8/18/09, L T CHERPESKI cherp...@msn.com wrote: From: L T CHERPESKI cherp...@msn.com Subject: Re: [TMIC] Linda Needs Some Help To: tmic tmic-list@eskimo.com, lynne myers lynnemye...@yahoo.com Date: Tuesday, August 18, 2009, 12:06 AM Lynne, is this something we could find at a local drug store, or did you have to special order it? I'm really glad to hear you've found something that works. Linda - Original Message - From: lynne myers To: tmic Sent: Sunday, August 16, 2009 7:17 AM Subject: Re: [TMIC] Linda Needs Some Help The gluco samine never did much for me either, but my husband swears by it. A few years ago I found a cream called Australian Dream. Its made out of emu oil and it really helps with the arthritis in my hands. I use it a couple of times a day. Lynne --- On Sun, 8/16/09, L T CHERPESKI cherp...@msn.com wrote: From: L T CHERPESKI cherp...@msn.com Subject: Re: [TMIC] Linda Needs Some Help To: 'Deborah Nord Capen' dca...@earthlink.net, tmic-list@eskimo.com, Patricia Cooley patticoo...@wi.rr.com Date: Sunday, August 16, 2009, 12:08 AM Deborah, I didn't know this came in a gel either. I could sure use some of that on my hands and other achy areas too. Do you just buy it at the drug store? A few months ago I bought a tube of some kind of cream for arthritis and it really does nothing. I don't even want to think about how much money I've spent over the years on products that claim to help with joint pain. It would really be nice to find something that gives some relief. Linda
Re: [TMIC] my knee
Hi Janice, Well, my doc told me that if the first shot that I got in April didn't work, and if this one did, it's possible that my PCP missed and it landed in the wrong spot.? If they both don't work, then we struck out.? Not likely both missed, and the shots would not help me.? Personally, I would be scared of the Prednisone pills for 10 years, as we've seen here how they can mess with the bones.? I've rested it for a couple of days now as it was really irritated after the exam, and it seems ready for some exercise now.? I'll see how it responds with the same amount of exercise I was doing prior to the shot, and?then I'm back on target.? Then, I am hoping to be able to do more after the two weeks, but time will tell.? The key for me (as well as all of us) is to know when enough is enough.? I have had TM for 10 years, and I still don't always know until it's too late.? At least I'm mindful of my knee now.? Most of the time I overdo the spine, which if I do, I rest the knee as well, lol. Take care all, hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: L T CHERPESKI cherp...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Tue, Aug 18, 2009 2:44 pm Subject: Re: [TMIC] my knee I have had the cortisone injections in the knee.??? The first one did not do much, so they got me on Prednisone pills for about? 10 days.??? Not much improvement.??? Then, later on, they gave me another shot in the knee and there was improvement and then over some weeks, it really was pretty good. I think the doc's always tell you the shot is not a cure, but it sure helps. Janice - Original Message - From: L T CHERPESKI To: tmic-list@eskimo.com ; balmat...@aol.com Sent: Monday, August 17, 2009 11:03 PM Subject: Re: [TMIC] my knee Barbara, ? Well it's no big deal about not asking about the injection of cartilage, but it IS a big deal what you're going through.? My goodness.? Did you already have the Cortisone injection, if so please let us know if it helps.? I hope for your sake it does.??I'm impressed with your doctor for being totally honest with you by telling you not to expect this to be a magic pill.? Everybody has different issues, so the outcome is not necessarily the same for all. ? Hey,?congratulations on those pounds you already lost.? Getting started is the hardest part, and looks like you're on your way.??It is?a lot of hard work after the surgery, but you will feel sooo much better.? And better is good.??I know you can do it!??Just keep focused on being able to be more active. ? Please keep us posted. ? hugs, Linda - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Sunday, August 16, 2009 1:25 AM Subject: [TMIC] my knee I went to the orthopedist yesterday, and found out that I am indeed a candidate for a knee replacement.??I am 58 yrs old and he said that typically they like to wait till 60 or older because they do need replacing in 10-15 yrs on average.? With as much as I'd walk on it, I'd probably get a longer life though, as he said what happens is the screws get loose and they need to go in and re-do them. ? He also schedules about 2 months out, and it takes most people about 4-6 months of rehab to be back to 100%.? I really didn't want to be recouperating over Christmas, so I opted to try a Cortisone injection to see if it would get me through a bit until I could get at least past the holidays.? I don't know if it'll work or not, but it's worth a try.? I should know soon if the shot is successful or not.?? My nephew gets married the 28th of August,?and I am hoping to go to the wedding without knee pain. ? I loved him.? I've had 2 DVT's in this leg and have torn muscles also in the past few years.? He told me that this is not going to fix all the problems that I am having with my leg.? It may help them since the knee will be stronger, won't buckle?on me,?and the muscles?won't have to be compensating as much, but I shouldn't go into the replacement and expect it to be the magic pill.? But, I have serious circulation problems that will not be helped, so my feeling is I have to try to help as much as I can to get back to being able to walk more again and become more active, if possible.? I walked more and better up until a few years ago. ? I was so surprised that he didn't talk at all about my weight.? I could stand to lose a good bit of weight, and am going to be making a valiant effort at that.? I've already started and have lost the few pounds that I have gained back over the past few months.? The yo-yo thing, not good.? It will make it much easier on my knees now and in the future, as well as the rehab when the day comes to try to get back up on the new knee.? Yikes, that's going to take some work!? Hope I'm up to it.? ? Linda, I'm very sorry, but I forgot to ask about the injection of cartilage.? There was so much going on
Re: [TMIC] my knee
Hi Linda, Thanks for your email and encouragement. Hugs, Barbara A -Original Message- From: L T CHERPESKI cherp...@msn.com To: tmic-list@eskimo.com; balmat...@aol.com Sent: Mon, Aug 17, 2009 9:03 pm Subject: Re: [TMIC] my knee Barbara, ? Well it's no big deal about not asking about the injection of cartilage, but it IS a big deal what you're going through.? My goodness.? Did you already have the Cortisone injection, if so please let us know if it helps.? I hope for your sake it does.??I'm impressed with your doctor for being totally honest with you by telling you not to expect this to be a magic pill.? Everybody has different issues, so the outcome is not necessarily the same for all. ? Hey,?congratulations on those pounds you already lost.? Getting started is the hardest part, and looks like you're on your way.??It is?a lot of hard work after the surgery, but you will feel sooo much better.? And better is good.??I know you can do it!??Just keep focused on being able to be more active. ? Please keep us posted. ? hugs, Linda - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Sunday, August 16, 2009 1:25 AM Subject: [TMIC] my knee I went to the orthopedist yesterday, and found out that I am indeed a candidate for a knee replacement.??I am 58 yrs old and he said that typically they like to wait till 60 or older because they do need replacing in 10-15 yrs on average.? With as much as I'd walk on it, I'd probably get a longer life though, as he said what happens is the screws get loose and they need to go in and re-do them. ? He also schedules about 2 months out, and it takes most people about 4-6 months of rehab to be back to 100%.? I really didn't want to be recouperating over Christmas, so I opted to try a Cortisone injection to see if it would get me through a bit until I could get at least past the holidays.? I don't know if it'll work or not, but it's worth a try.? I should know soon if the shot is successful or not.?? My nephew gets married the 28th of August,?and I am hoping to go to the wedding without knee pain. ? I loved him.? I've had 2 DVT's in this leg and have torn muscles also in the past few years.? He told me that this is not going to fix all the problems that I am having with my leg.? It may help them since the knee will be stronger, won't buckle?on me,?and the muscles?won't have to be compensating as much, but I shouldn't go into the replacement and expect it to be the magic pill.? But, I have serious circulation problems that will not be helped, so my feeling is I have to try to help as much as I can to get back to being able to walk more again and become more active, if possible.? I walked more and better up until a few years ago. ? I was so surprised that he didn't talk at all about my weight.? I could stand to lose a good bit of weight, and am going to be making a valiant effort at that.? I've already started and have lost the few pounds that I have gained back over the past few months.? The yo-yo thing, not good.? It will make it much easier on my knees now and in the future, as well as the rehab when the day comes to try to get back up on the new knee.? Yikes, that's going to take some work!? Hope I'm up to it.? ? Linda, I'm very sorry, but I forgot to ask about the injection of cartilage.? There was so much going on between my husband asking about healthcare and the knee that we were in his office for almost an hour. ? Hugs to all, Barbara A ? ? ? ? ?
Re: [TMIC] an interesting note
Wow Jeff, I had heard that there are pockets in different parts of the country where there are large numbers of MS and TMers.? I kind of remember that a while back that Cleveland had a lot of TMer's.??Am I remembering this right?? Is this the air, water,?pesticides?? Hugs, Barbara A? -Original Message- From: jeff bernier jeffsmokeea...@yahoo.com To: msersl...@yahoogroups.com; tmic-list@eskimo.com Sent: Tue, Aug 18, 2009 11:04 am Subject: [TMIC] an interesting note well the other day i sat down with my father for coffee and we were just?talking about the past and various things when he told me somthing that almost knocked me out of my chair. my stepmother who is 48yo has been dx with full blow ms and is in a nursing home,well i sat back for a minute and got a flashback of the early days of not knowing,lack of knowledge and uncertianty,which weve all been through,man was that a shock. i need to know how many of the members on the list are from the upstate ny area?and just a location,i read some info on studies on ms and found out my area of ny,im only 10 miles from cooperstown,has the highest rate of ms and cancer in the country and the overall consenses is that,all the industry from the midwest and canada put polution in the air and it all setteled here,ill give more info in a little bit. ? DIPLOMACY DOES NOT WORK WHEN DEALING WITH NUT'S HELL BENT ON DESTROYING US.
[TMIC] my knee
I went to the orthopedist yesterday, and found out that I am indeed a candidate for a knee replacement.??I am 58 yrs old and he said that typically they like to wait till 60 or older because they do need replacing in 10-15 yrs on average.? With as much as I'd walk on it, I'd probably get a longer life though, as he said what happens is the screws get loose and they need to go in and re-do them. He also schedules about 2 months out, and it takes most people about 4-6 months of rehab to be back to 100%.? I really didn't want to be recouperating over Christmas, so I opted to try a Cortisone injection to see if it would get me through a bit until I could get at least past the holidays.? I don't know if it'll work or not, but it's worth a try.? I should know soon if the shot is successful or not.?? My nephew gets married the 28th of August,?and I am hoping to go to the wedding without knee pain. I loved him.? I've had 2 DVT's in this leg and have torn muscles also in the past few years.? He told me that this is not going to fix all the problems that I am having with my leg.? It may help them since the knee will be stronger, won't buckle?on me,?and the muscles?won't have to be compensating as much, but I shouldn't go into the replacement and expect it to be the magic pill.? But, I have serious circulation problems that will not be helped, so my feeling is I have to try to help as much as I can to get back to being able to walk more again and become more active, if possible.? I walked more and better up until a few years ago. I was so surprised that he didn't talk at all about my weight.? I could stand to lose a good bit of weight, and am going to be making a valiant effort at that.? I've already started and have lost the few pounds that I have gained back over the past few months.? The yo-yo thing, not good.? It will make it much easier on my knees now and in the future, as well as the rehab when the day comes to try to get back up on the new knee.? Yikes, that's going to take some work!? Hope I'm up to it.? Linda, I'm very sorry, but I forgot to ask about the injection of cartilage.? There was so much going on between my husband asking about healthcare and the knee that we were in his office for almost an hour. Hugs to all, Barbara A
Re: [TMIC] Need some help please
I did forget to add something.? Since I saw my PCP and he talked about the bone on bone thing with my knee I added Glucosomin to my daily med routine and have had less pain in my knees.? Don't know if this would work for everyone, but it also makes my hip hurt less.? It takes a bit to get working, so give it a chance if you go for it. I am also working on losing some weight, hopefully, a good amount of weight, as I know this will be easier on me now and in the future.? It's something that I've needed to do, tried off and on, but now it's going to be a necessity.? I can't wait for the doc to tell me tomorrow how I need to do it!? Duh!? Yikes!!! Hugs, Barbara A -Original Message- From: L T CHERPESKI cherp...@msn.com To: tmic-list@eskimo.com; jharpe...@aol.com Sent: Thu, Aug 13, 2009 12:48 pm Subject: Re: [TMIC] Need some help please Hi Barbara, I know a lot of people who have had very successful knee replacement, and regret going through all that pain and waiting so long to have?it done.? I am going to look into having the injections and definitely aqua therapy.? I've heard nothing but good things about aqua therapy - even for knees that are bone on bone, building up certain muscles to help relieve some of the weight bearing on the knees.? And definitely I am going for a second opinion, armed with all my research data. ? Thanks for the help, Linda - Original Message - From: jharpe...@aol.com To: cherp...@msn.com ; tmic-list@eskimo.com Sent: Wednesday, August 12, 2009 12:03 AM Subject: Re: [TMIC] Need some help please I have a friend who had a very successful double knee replacement, but before they ever got to that point, they did cortisone injections and I think maybe physical therapy, so I think those would give some relief at least for a while. I would think losing weight could only help, and I would guess water therapy would be good.? ? I would seek another opinion and ask straight up, If I can't do surgery, what are my other options; what can I do? ? Barbara H. http:barbarah.wordpress.com ? In a message dated 8/11/2009 11:41:20 P.M. Eastern Daylight Time, cherp...@msn.com writes: Hi everybody, ? I'm hoping you guys can help point me in the right direction.? There are so many of us on the TM site there's just got to be someone who knows somebody with the same or similar dilemma. ? Most of you know that I've had Sjogrens for 20+ years (unfortunately, progressive and aggressive) and 7 yrs ago TM came into my life.? I am on heavy chemo meds (Imuran and Rituxan infusions) to suppress my immune system to keep it from attacking my body.? Last Sept I had a minor surgery to repair a torn meniscus in my knee, and my body went into the longest, hardest relapse I've ever had.? I'm just now getting my arms and hands back - I think this is as much as I'll get this time.? Almost everything else has gradually come back.? My one huge problem is that my KNEES took the biggest hit - my doctors said it was because they were the weakest part of my body at the time.? I have infected knees (right one to the bone) and am walking (trying) on bone on bone knees.? They both need to be replaced.? And, I have TM, so already my walking is not that pretty. ? I was sent out of state to a surgeon who does a special knee replacement surgery that is less invasive.? Long trip, big disappointment.? He will NOT do surgery on me either because of the aftermath? - said it would be like doing brain surgery?due to my autoimmune diseases.? Well that's fine - I have always wanted to do anything but the surgery, but was given no OTHER choices. ? And, I am still being given NO options.? So I've done some of my own research.? What about physical therapy to get my thigh and quad muscles built up so they can take some of the load off my knee joints??(I'm?a fairly small person so we're not talking about losing 50 lbs and that would make things all better) ?Water therapy?? I'm not quite sure how to get these muscles built up when my knees hurt so bad I can hardly bend them, but there has to be a way.? My doctors have kind of given up on me, which at first shocked me, now I'm just really mad. ? Any ideas would be much appreciated. ? Thanks guys, ? Linda ? ?
Re: [TMIC] Wheelchair questions
Hi Kevin, Just an fyi, not sure if you are getting any help from insurance, medicare, etc. or not on this power chair.? If you are not, you may want to consider purchasing one second hand.? I've bought 2 second hand, the second only because the first one didn't have the power to pull the hills at our fairgrounds, and there are many fun events at our local fairgrounds.? You can get some really good deals on a second hand scooter.? We bought mine through private parties, but when going to a local mobility store for some new crutches he had some great used scooters, and for not any more money than I paid.? His looked newer and I was surprised.? There are so many people who get them and only use for a very short time, and some never even go out of the house.? Unless I can get insurance to pay for me, which is highly unlikely with my current?HMO,?I'll never buy new. Hugs to all, Barbara A -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Tue, Aug 11, 2009 6:55 pm Subject: [TMIC] Wheelchair questions ? I am wondering who uses Power Wheelchairs on the TMIC?? I cannot use a manual wheelchair because my hands are bad.? ? Would you mind posting which chair you use, what you like or? don't like about it, is it good for indoor or outdoor use or both?? ? I am considering a Pride Go-Chair mainly because it is small? and comes apart for travel. (note: this is not the same as a Go-Go Scooter)? ? Also, is anyone familiar with the wheelchair provider Maxim Mobility in? New Haven, CT? Good or bad?? ? Thanks!? Kevin? ?
Re: [TMIC] Need some help please
Hi Linda, I'm so sorry that your trip to the out of state surgeon proved to be a disappointment. Interesting you should ask about knee surgery and options.? I am possibly looking at a knee replacement as well.? I see the orthopedist on Friday, referred by my primary.? He said it was the end option, but to not miss the appointment as it was bone on bone as well.? I had a torn meniscus years ago, and they say that's very typical to need more surgery later on down the road. Anyway, my son and daughter in-law just got back from a trip to visit her aunt.? Her aunt had a knee replacement done a while back, and said it wasn't pleasant, to say the least.? She still suffers to this day and needs one in the other knee?and won't do it.? Her doctor injects her knee every 3 months with cartilage I believe.? Now, I don't know anything else about it, just that she'd rather do this.? I don't know if this is an option for you, but you can inquire about it.? Hugs, Barbara A -Original Message- From: L T CHERPESKI cherp...@msn.com To: TM List tmic-list@eskimo.com Sent: Tue, Aug 11, 2009 8:38 pm Subject: [TMIC] Need some help please Hi everybody, ? I'm hoping you guys can help point me in the right direction.? There are so many of us on the TM site there's just got to be someone who knows somebody with the same or similar dilemma. ? Most of you know that I've had Sjogrens for 20+ years (unfortunately, progressive and aggressive) and 7 yrs ago TM came into my life.? I am on heavy chemo meds (Imuran and Rituxan infusions) to suppress my immune system to keep it from attacking my body.? Last Sept I had a minor surgery to repair a torn meniscus in my knee, and my body went into the longest, hardest relapse I've ever had.? I'm just now getting my arms and hands back - I think this is as much as I'll get this time.? Almost everything else has gradually come back.? My one huge problem is that my KNEES took the biggest hit - my doctors said it was because they were the weakest part of my body at the time.? I have infected knees (right one to the bone) and am walking (trying) on bone on bone knees.? They both need to be replaced.? And, I have TM, so already my walking is not that pretty. ? I was sent out of state to a surgeon who does a special knee replacement surgery that is less invasive.? Long trip, big disappointment.? He will NOT do surgery on me either because of the aftermath? - said it would be like doing brain surgery?due to my autoimmune diseases.? Well that's fine - I have always wanted to do anything but the surgery, but was given no OTHER choices. ? And, I am still being given NO options.? So I've done some of my own research.? What about physical therapy to get my thigh and quad muscles built up so they can take some of the load off my knee joints??(I'm?a fairly small person so we're not talking about losing 50 lbs and that would make things all better) ?Water therapy?? I'm not quite sure how to get these muscles built up when my knees hurt so bad I can hardly bend them, but there has to be a way.? My doctors have kind of given up on me, which at first shocked me, now I'm just really mad. ? Any ideas would be much appreciated. ? Thanks guys, ? Linda ? ?
Re: [TMIC] healthcare/Medicare
I am sorry to say that the more I read, the more confused I get.? Just for kicks and giggles, and I really don't mean that, but I can't help but say it, I am going to call me Social Security office and see what information I get about the situation.? If needed, I will go there in person.? I live in a small-ish town and it's not too busy generally.? If needed, I can make an appointment.? I am really amazed at the different stories floating around.? This is serious business for all of us, as for those of us who aren't affected now it may not be, but it will be down the road. And how will all of this change if the government takes over with their plan?? Will we no longer have to pay for all of these plans and pay on a sliding scale or what?? I don't understand how that's work Hugs, Barbara A -Original Message- From: Cindy McLeroy cindymcle...@socal.rr.com To: bobby jim elbobber...@earthlink.net; lynnemye...@yahoo.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Fri, Aug 7, 2009 10:20 pm Subject: Re: [TMIC] healthcare I?was on LTD from my company and covered by the company insurance.? After 2 years on LTD SSDI I became eligible for Medicare part B.? I received the letters from SSDI to complete for part B.? Since I already had coverage, I declined the medicare.? About 3 years later my company was challenged by Medicare on who was the primary provider and who was secondary.? The end result was Medicare was primary.? All of those folks, including me, from my company that had declined the medicare now have to pay a 10% per year penalty because we did not take medicare when it was first available to us.? For me, that is $130 a month instead of the $98 that others pay.? Every year there is an additional 10% penalty. ? What is intersting here is that almost everyone of us has a different story of when and how medicare begins and what type of coverage we get.? What really is the straight skinny I'm beginning to wonder who will really tell us the truth. ? Cindy McLeroy - Original Message - From: bobby jim To: lynnemye...@yahoo.com ; tmic-list@ESKIMO.COM ; balmat...@aol.com Sent: Friday, August 07, 2009 7:47 PM Subject: Re: [TMIC] healthcare Me as well.?? When I applied for social security I waived the Medicare part as I was-is covered by my own HMO plan.??? The woman taking in my claim said 'no prob'. ? BobbyJim?? From: balmat...@aol.com? To: lynnemye...@yahoo.com ; tmic-l...@eskimo.com??? Sent: Friday, August 07, 2009 6:30 PM Subject: Re: [TMIC] healthcare Lynne, Can I clarify?? You are?on Medicare part A and aren't paying for it?? But, when you become 65 and you will then start paying what you would have when you were originally eligible?? I declined since I had insurance, but didn't realize this was an option to do.? Thanks, Barbara A -Original Message- From: lynne myers lynnemye...@yahoo.com To: tmic tmic-list@eskimo.com Sent: Fri, Aug 7, 2009 6:21 am Subject: RE: Fwd: [TMIC] healthcare I have been on Medicare for about 6 years now and it is also my secondary.? Because my husband still works and we have insurance through there that is considered our primary.? At this point I only have part A coverage which has paid for nothing.? Part B would not be paying anything now if I did have it so it was recommended that I wait until I turn 65 to subscribe.? At that time I will start paying at the rate it was when I first became eligible because of the fact that I have private insurance now. Lynne --- On Thu, 8/6/09, Lori Biehler lbieh...@earthlink.net wrote: From: Lori Biehler lbieh...@earthlink.net Subject: RE: Fwd: [TMIC] healthcare To: 'Todd Tarno' toddtm2...@sbcglobal.net, tmic-list@eskimo.com, 'Laurie Zissimos' lziss...@aol.com Date: Thursday, August 6, 2009, 3:23 PM Sorry Todd, I have been on Medicare for 10 years and it is my secondary. Not sure of your circumstance, but it is not ALWAYS primary. I am on SSDI and am not over 65. Lori ? From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Thursday, August 06, 2009 3:12 PM To: tmic-list@eskimo.com; Laurie Zissimos Subject: Re: Fwd: [TMIC] healthcare ?
Re: [TMIC] healthcare
Aren't there social service offices that are supposed to be well versed on these services available to help people make these serious decisions with Medicare plans, etc?? It seems that each county office should have these available to their population since it can be so complex.? Here in California, different private plans are available depending on the?county you?live in, as well as the fees for them.? It seems that my mother in-law changes plans every few years.? She's learned to be pretty savvy about it, but it takes time to learn. Hugs, Barbara A -Original Message- From: Lori Biehler lbieh...@earthlink.net To: 'Todd Tarno' toddtm2...@sbcglobal.net; tmic-list@eskimo.com; 'Laurie Zissimos' lziss...@aol.com Sent: Thu, Aug 6, 2009 12:23 pm Subject: RE: Fwd: [TMIC] healthcare Sorry Todd, I have been on Medicare for 10 years and it is my secondary. Not sure of your circumstance, but it is not ALWAYS primary. I am on SSDI and am not over 65. Lori ? From: Todd Tarno [mailto:toddtm2...@sbcglobal.net] Sent: Thursday, August 06, 2009 3:12 PM To: tmic-list@eskimo.com; Laurie Zissimos Subject: Re: Fwd: [TMIC] healthcare ? Hi Laurie, I found out the hard way that Medicare is ALWAYS primary. I too, tried to keep my COBRA Medicare, but when I went to get a MRI, they told me that Medicare was primary.? When I tried to get back my COBRA payments, they wouldn't return the payments and didn't want to pay for my medications for that month.? So, I had to tell them either return my?COBRA payments or pay for my medications, which are over $3,000 a month.? They paid for the medications.? Thanks goodness. I don't remember what Part B is. I do think you will need Part D for medications.? Since you already using Blue Cross and you like them.? I would stay with them with Part D.? I would talk to Blue Cross to see they can help you find a plan that works for you. Hope this helps a little, Todd in CC, TX --- On Tue, 8/4/09, Laurie Zissimos lziss...@aol.com wrote: From: Laurie Zissimos lziss...@aol.com Subject: Fwd: [TMIC] healthcare To: tmic-list@eskimo.com Date: Tuesday, August 4, 2009, 5:46 PM see below ? ? -Original Message- From: Laurie Zissimos lziss...@aol.com To: rn11...@yahoo.com Sent: Tue, Aug 4, 2009 6:31 pm Subject: Re: [TMIC] healthcare Maybe you can help me.? I was diagnosed with TM in Dec 2005 and went on SSDI? a year and a half later.? This September I have to enroll in Medicare and I don't know whether or not to get Part B/D at this time.? I am on my husband's COBRA until January unless I file for an extension which I may do since I have that option being disabled.? It's pretty expensive, but Its Blue Cross and they have covered almost all of my medical exp since the diagnosis.? Our Blue Cross plan is a PPO so we don't need precerts/pre auths.? It makes it much easier seeing specialists.? He also has another plan through a part time employer but I don't think the benies are that great.? My first question is whether or not I should sign up for Part B, Part B Advantaged, or Part B and D.? I am trying not to lose the BlueCross, but I also don't know which of the new health coverages would be primary, secondary! or other.? Is Medicare always considered primary or is it secondary??? Laurie ? ? -Original Message- From: rn11...@yahoo.com rn11...@yahoo.com To: tmic-list@eskimo.com Sent: Tue, Aug 4, 2009 6:14 pm Subject: [TMIC] healthcare Hi, ?? I have been on social security disability since 1996,5 months after getting tm.I was 49 (now I'm 63).I have a medicare hmo health plan.I have had this since cobra ran out.I pay $173 a month.My dr visits are $10,a specialist $20.I have a deductable of $100 per day if hospitalized (for the 1st 8 days).It also?includes the part d to help pay for meds,but I get many of my meds at walmart for $10 for a 90 day supply.The others I get for 90 days through express scripts.I'm sure that on Jan 1st the cost will go up and the benefits will change. ?? I pay out of pocket over $4000 a year for insurance and meds.Thank God I had long term disability insurance when tm hit me.I get a total of 60% of?what I was earning in 1995. ? I live in Mass.,where you must have some type of medical insurance,or you pay a penalty when you file taxes.My ex husband paid $600 this year for not having health insurance last year. I finally got him to get medicare when he turned 65 in March.Now if I could convince him to insure his house! ?? Well,I don't post often,but I'm sure wordy when I do! ?? My best wishes to everyone, Cheryl in HOT Easthampton,MA. ?? ?? ?
Re: [TMIC] friendships new topic
Hi Mindy, I am not sure if I did the same as you or not, but looking back I very well?may have.? I know that I got TM when I was working, and I had a big problem talking to people after that.? As much as many tried, both co-worker friends and even some family members, I just couldn't discuss my condition.? When people would call, I'd say that I was doing fine.? When they'd want to visit, I was always too tired from my therapy.? It was only a select few that I really let in and then it was only slightly.? Looking back I can see that it was probably because I was having trouble myself with it all and my own self-image, but didn't realize, so couldn't discuss it.? It took 18 months before I?could accept?that I needed some mental health help, even though when I was in rehab they tried to talk to me.? I wouldn't even do a group session as the others were all stroke victims, and heck, I couldn't relate to any of their concerns. I may have very well turned people off at trying to lend an ear or shoulder.? I don't know, and maybe never will.? You have a chance to find out.? I would certainly get together with her right away, if possible, and let her know how terrible you feel.? Call her or write her, whatever is most comfortable for you.? Explain it out, all of your feelings and?that you regret losing her friendship so very much.? I hope that she'll accept your apology and you'll have that friend back.? She is probably missing you as well. Warm hugs to you, Barbara A -Original Message- From: Lawrence King we4king...@verizon.net To: tmic-list@eskimo.com Cc: Lawrence King we4king...@verizon.net Sent: Mon, Aug 3, 2009 5:12 pm Subject: [TMIC] friendships new topic We've been talking how this disease has affected our friendships but only how others have treated us because of this disease.? I need to make apologies to a lovely person who extended the hand of friendship (during that early period of the disease) to me and in my pain, anger and confusion I just trashed the whole relationship, taking advantage of her in the process. I know for a fact she is very angry and hurt and if I don't make amends for the damage I did, her opinion of me would be correct. It has been painful for me to look back with unclouded eyes at my behavior ?but if I want to recover and grow in my soul and spirit just as my body has recently experienced I need to do this. Encouragement and similar experiences would be greatly appreciated. Mindy the Artisan =
Re: [TMIC] Re: Quadpost/Nitpicking.
Jude, The problem for me is that you appeared to realize that you were making a mistake before you sent the message, yet you continued to send the message.? Proofreading messages and really thinking before sending them out really helps.? I don't believe that we should scold anyone when they write in.? I have written so many messages that I never got around to sending, but just writing them have made me feel like I was venting.? Sometimes I?sleep on it, or get another opinion if you have something to say that may be out of the ordinary.? Pain takes over our reasoning sometimes or most of the time, so I try to take time to process my ideas and make sure that I really want to express them.? Nobody is perfect, but we need to try to remember why this site was created, and for me it is to offer a place for people to come who need to talk, need information, and feel comfortable doing so.? They'll drop off themselves if they find they are in the wrong place. On another note, I was glad to see your name pop up again since I have been looking to see if you had responded to my email. Hugs, Barbara A -Original Message- From: Grace M. grace...@gmail.com To: heyjude48...@aol.com Cc: tmic-list@eskimo.com Sent: Fri, Jul 31, 2009 11:21 pm Subject: Re: [TMIC] Re: Quadpost/Nitpicking. Hi Jude,? ? Your apology is most appreciated.? Jude, all of the?little nasties that apply to anyone paralyzed as a result of TM, still apply to others who have suffered spinal cord insult as the result?of another disease process.??Take me for example.? I am not diagnosed with TM, yet I have still experienced several serious bouts of LETM, or Longitudinal Extensive Transverse Myelitis---in other words massive lesions, one of which encompassed almost the entirety of my thoracic cord. It doesn't matter what disease process caused it, as my symptoms are like those of anyone else who has experienced a cord attack---whether from disease or trauma.?? ? Jude, above all, we must be compassionate towards others who are suffering just like we are.??The state of illness and disability?is not an exclusive club.? Pain is pain.? Suffering is suffering.? Believe me, our Good?Lord does not differentiate.? ? Love, ? Gracie
Re: [TMIC] Class Reunions
HiJanice, That depends on how badly I would want to see the people that would attend.? First, not that many people generally continue to attend reunions, unless your class is special.? Then, you'd be surprised at how many other people these days have some kind of disability as well.? I have an idea, and this is something that may help.? You could just put together a little page that answers some of the usual questions that people have about TM, and tell anyone who wants information, tell them that you'll give it to them at the end of the evening.? Tell them that it hasn't changed who you are, just how you get around. That tonight you are just here to catch up and have a good time with old friends.?? Hugs, Barbara A? -Original Message- From: Janice jan...@centurytel.net To: transverse myelitis tmic-list@eskimo.com Sent: Wed, Jul 1, 2009 8:47 pm Subject: [TMIC] Class Reunions I have another question for you all that want to answer: ? I will be having another class reunion shortly and graduating from the hometown high school,?I was?usually one of about 15 that helped to?plan it.??? We had around 500 in our graduating class.??? Anyway, I am debating whether or not to be a part of the planning or even attending the reunion.??? This is the first?reunion since I got clobbered with TM.? I still have to use a cane and would maybe need my wheelchair.I was fairly well known and I am afraid I would be answering questions all nite about TM.? ?? My question is: Would?you let TM keep you from attending a reunion?Be honest.?? If you were faced with this decision this weekend, what would you do? ? ??? Janice
Re: [TMIC] Class Reunions (way too honest)
SPARKER, For anyone who has not had the extreme pleasure of meeting Sandy, she is a very cute and looks very good in her jeans. But then that's only my opinion, but I'll bet that Terry agrees with me. She is also just a sweetheart, but you can tell that from her email. Hugs, Barbara A -Original Message- From: parkersw...@aol.com To: k...@frontiernet.net; tmic-list@eskimo.com Sent: Thu, Jul 2, 2009 8:59 am Subject: Re: [TMIC] Class Reunions (way too honest) WELL HELL FRIENDS!!! I am up to 145lbs (I gained 10lbs). I wear size 10 jeans and really don’t feel comfortable with my NEW body. I don’t like the way I look or feel. I do not like having a belly or the feel of my thighs rubbing together. You asked for honest and here it is. Aging is HELL THAT'S ME IN A NUTSHELL AND I DON'T HAVE TM! Yes, I will count my blessings! SPARKER :) Dell Summer Savings: Cool Deals on Popular Laptops - Shop Now!
Re: [TMIC] Class Reunions
Janice, We went to our 25th high school reunion, we were also in the same class, and this was pre-TM. The class SLUT, was still a SLUT!? Some things never change, but a lot of things do.? You'd be so surprised at how many people will be there that have changed, but it would be interesting if anyone had a way of tracking how many people wouldn't go for the reason of health and vanity or others seeing them in this kind of reality?? If you are healthy enough to go, go ahead and enjoy!? There have been a few very special occasions that I have missed in the past because I have just not been up to it.? I so regret those days.? My nephew got married a couple of years ago, and it was a great wedding.? They took a family photo, and I am not in it.? Then there was a baby shower the year later, again, no?Auntie Barbara.? My hubby says that I miss mostly occasions in his?family, which I do not pick and choose, but it did look?that way.? It's very often after a couple of really bad night's sleep, or overdoing it, so I now take it really easy prior to something special.? I also take extra meds to try to ensure better rest.? When I vacation I also try to take extra meds to try and enjoy it.? Janice, do what you have to do to try and make sure that you are in good condition for the reunion.? It'll make it more enjoyable for you. Hugs, Barbara A
Re: [TMIC] Re: WHAT DID YOU DO???
Cindy, That sounds amazing.? You really struggle with issues with your docs.? I'm so sorry that you wasted that trip.? Hang in there girl.? You really are an inspiration.? Oh, has mom found out about you yet?? lol Hugs to you, Barbara -Original Message- From: Todd Tarno toddtm2...@sbcglobal.net To: Cindy McLeroy cindymcle...@socal.rr.com Cc: TMIC tmic-list@eskimo.com Sent: Thu, Jul 2, 2009 12:52 pm Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Hey Cindy, This center is WONDERFUL.? I would go every day or as many as I could handle.? lol Thank you so much for sharing this site. Be safe keep working out, Todd in CC, TX --- On Wed, 7/1/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: From: Cindy McLeroy cindymcle...@socal.rr.com Subject: Re: [TMIC] Re: WHAT DID YOU DO??? To: Todd Tarno toddtm2...@sbcglobal.net Date: Wednesday, July 1, 2009, 3:00 PM Todd, as you know taking care of our health issues sometimes is really the pits.? I am currently using a leg brace that has hinges at the knee so I can bend my leg when I am in the wheelchair - which is always!? Only problem is ...? it's from a break in? 2001.? Trying to get hold of the doctor has been crazy.? Turns out their phone system was out for 2 days.? Yesterday, I went over to the offices, only to find out the doc wasn't in for the day.? Looks like it will take till about Oct before I can get out of the brace.? Thank goodness it really doesn't change anything too much about my busy life style. Thanks for asking. ? I was reading your note about getting PT.? I live in So. Cal and have a Goodwill Fitness Center nearby.? It is completely set up for folks with all kinds of disabilities.? Everything is wheelchair accessible.? Para's and quads both can use just about everything.? All the trainers are great at evaluating each persons needs.? If you are interested in looking at it here is the website.? Maybe you can get something going in your area. ?? http://www.ocgoodwill-fitnesscenter.org/ Cindy - Original Message - From: Todd Tarno To: Cindy McLeroy Sent: Tuesday, June 30, 2009 1:52 PM Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Apparently I pushed my wheelchair out from under me and slid to the floor with my right foot twisted almost the way around.? ? That happened to me too.? I have chair with wheels in my bathroom and I too reached down to pick something up off the floor and the chair went flying.? I was the only one home, my caregiver was in the hospital.? But I need find a way to get up and know that I can. I'm so sorry to hear about your broken leg. What is the update on your broken leg? Hope Today is better, Todd in CC, TX --- On Tue, 6/16/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: From: Cindy McLeroy cindymcle...@socal.rr.com Subject: [TMIC] Re: WHAT DID YOU DO??? To: tmic-list@eskimo.com, jmh1...@sbcglobal.net Date: Tuesday, June 16, 2009, 6:09 PM You'll be sorry you asked, it's kind of a long story. ? I?had time to kill on Sat before I went to a party, all dressed and ready to go.? I notice that the cleaning lady didn't clean as well as I thought around the bottom of the toilet so I bent over forward on my wheelchair bracing myself with one hand on the toilet. cleaning with the other.? Apparently I pushed my wheelchair out from under me and slid to the floor with my right foot twisted almost the way around.? When I went to bed that night my leg was doing a snap, crackle and pop noise.? Went to the ER the next day and the doctor said, Oh, your leg is broken.? Duh. ? Anyhow, my frustration is dealing with the ER folks, my doctor and an Ortho.? Seems all the Ortho's are booked.? I can't wait because I have (lucky for me) no sensation and the splint that is on my leg is moving around and I'm sure digging.? I want to avoid pressure sores.? Always something interesting with TM.? I think this is the fourth or fifth time I have broken one or the other of my legs.? Once I simply rolled over in bed and heard the crunch. ?? Cindy - Original Message - From: Jan Hargrove To: Cindy McLeroy ; Sent: Tuesday, June 16, 2009 11:51 AM Subject: Re: WHAT DID YOU DO??? Cindy, What in the world did you do to break your leg??? jan --- On Tue, 6/16/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts?? Supposedly they are meant for the blind so that their sticks feel the different surface.? I haven't talked to a blind person, a w/c user, or a fellow pushing grocery carts that like the danged things.? Caster wheels get caught in between the bumps. This change was a lawsuit that back fired. ? Version Amphitheater in Irvine ?has done an amazing job of raising a portion of the seating above the?orchestra?section so folks in wheelchairs can see the stage when the rest of the people below are standing.? Love it there. ? One
Re: [TMIC] Every now and then!
Todd, A wheeled walker is a wonder for unloading/loading a dishwasher. Heck, I use mine for laundry, setting and clearing the table, all kinds of stuff. If you can use one, it's an awesome tool. Hugs, Barbara A -Original Message- From: Todd Tarno toddtm2...@sbcglobal.net To: Robert Pall rp...@neillsupply.com Cc: Tmic-list@eskimo.com Sent: Tue, Jun 30, 2009 1:34 pm Subject: Re: [TMIC] Every now and then! Hey Rob, Remember that you're working too. Include the time you're at work walking, standing, etc... I do PT twice a week with a trainer at home and now able to stand long enough to take the dishes from the sink to fill the dishwasher. I still can't carry dishes into the kitchen, but now at least I can help fill the dishwasher. lol I have found that sometime I need a new PT for new exercises and new ideals. Keep up the exercises, Todd in CC, TX --- On Mon, 6/29/09, Robert Pall rp...@neillsupply.com wrote: From: Robert Pall rp...@neillsupply.com Subject: [TMIC] Every now and then! To: Tmic-list@eskimo.com Date: Monday, June 29, 2009, 8:26 AM I refuse to even discuss the petty arguments and disagreements that seem to happens several times a year. To discuss them actually provides legitimacy to the discussion. Stop being so quick to argue and remember the purpose of the list. No one needs to take sides….if what is written does not apply or offers words you do not care for…just delete it! Do you ever think of how a new visitor to the site reacts to bickering….my guess is it turns them off…and that is a tragedy! If one member has a problem with what someone else says. why not try to just contact that person directly and not to the group as a whole. Remember we are all in this together and inevitably when these things occur the next thing that happens is we see the word unsubscribe. When one is in 24/7 pain and discomfort it is easy to pick a fight or disagreement…anything at all to avoid what is really the problem. TM New topic: Exercise Exercise….when is enough enough? I tend to exercise in spurts….I am either following a regular routine or giving into my pain and discomfort and doing nothing at all! I am not very good at knowing when I am overdoing it and therefore make the same mistakes over and over. After pretty much doing nothing for the past 6 months I am now back to swimming 3-4 times per week and I have never felt worse. My legs feel weighed down and I am walking far worse than normal. The level of discomfort and Pain are also off my charts. So what do I do….probably stop exercising and see if my legs feel better….that being said we have had horribly huimid,wet weather in the New York area the entire month of June…so I am not certain if the over exercising or the weather is making the TM flare up. Even after 12 years I have not really learned to listen to my body….part of this is due to the fact that I am not in discomfort while exercising….but hours later it is as if my body is just realizing I over did it and I have to pay the price. My main exercise is swimming (and a little treadmill)….for the first 10 years of TM I had far fewer breaks from the exercise routine …and then all of a sudden when I hit 60 I kinda gave up and threw in the towel….I kinda just quit. I felt hopeless and helpless…therefore I just started back on my routine…and so far the pain far outweighs the gain. I will attempt to introduce moderation to my exercise and try to remember I am closing in on 62 so I would guess non related TM problems are beginning to surface such as arthritis. I still have a lot on my plate…I drive 80 miles a day to work and sometimes I am just so exhausted that the thought of a workout is something I cannot handle. That being said I do find that when I let myself get out of shape and gain addl. Weight I always feel worse…and I can assure you that this is not a vanity issue. I would appreciate hearing from the group as to what exercises works for them…how do you know when you are over doing it? I am seeing Dr. Kerr on20Weds and will pose the question to him…I have a feeling he will stress moderation and developing a routine that will keep my muscles from atrophying while a t the same time not exhausting me to the point of pain. OK…enough for now…let's get back on topic! Rob in New Jersey
Re: [TMIC] Every now and then!
Rob, I can relate totally to what you said about exercise, pain and overdoing it. How do we find a happy medium, keep it up, and keep our bodies happy with the level and intensity? Yeah right! Moderation, sure! But, as I am doing the exercise most of the time I feel great and don't feel that I am overdoing it at all. I also have a very poor habit of giving up on it from time to time due to pain issues and thinking it may be better not to exercise which I've found is also a bad idea. The worse thing I can do is to stop making it a part of my routine, it's too easy to let it go and not get it done. Once I do that, I'm done. I cannot find a happy medium for my body. I was in the pool the other night with my grandsons and didn't realize how much time had passed. That night I couldn't sleep due to the pain and spasms, and the next two days were pretty bad. I was actually worse than I'd been in a long time. After 10 yrs you'd think the mind/body connection would be made but it hasn't in my case. My mind forgets to engage and think about my limits. Hugs to all, Barbara A -Original Message- From: Janice jan...@centurytel.net To: Robert Pall rp...@neillsupply.com; Tmic-list@eskimo.com Sent: Mon, Jun 29, 2009 8:49 pm Subject: Re: [TMIC] Every now and then! Robert, I did water aerobics for about 5 years before TM hit. I started it because of arthritis in my20back. Exercise done in water should not make you sore unless you are over doing it. You really need to think hard about moderation when you first begin and add more slowly. Sure hope it helps you. I would give my eye teeth to get back in the water, but am not ready yet. Someday soon I hope. Good luck. - Original Message - From: Robert Pall To: Tmic-list@eskimo.com Sent: Monday, June 29, 2009 8:26 AM Subject: [TMIC] Every now and then! I refuse to even discuss the petty arguments and disagreements that seem to happens several times a year. To discuss them actually provides legitimacy to the discussion. Stop being so quick to argue and remember the purpose of the list. No one needs to take sides….if what is written does not apply or offers words you do not care for…just delete it! Do you ever think of how a new visitor to the site reacts to bickering….my guess is it turns them off…and that is a tragedy! If one member has a problem with what someone else says. why not try to just contact that person directly and not to the group as a whole. Remember we are all in this together and inevitably when these things occur the next thing that happens is we see the word unsubscribe. When one is in 24/7 pain and discomfort it is easy to pick a fight or disagreement…anyth ing at all to avoid what is really the problem. TM New topic: Exercise Exercise….when is enough enough? I tend to exercise in spurts….I am either following a regular routine or giving into my pain and discomfort and doing nothing at all! I am not very good at knowing when I am overdoing it and therefore make the same mistakes over and over. After pretty much doing nothing for the past 6 months I am now back to swimming 3-4 times per week and I have never felt worse. My legs feel weighed down and I am walking far worse than normal. The level of discomfort and Pain are also off my charts. So what do I do….probably stop exercising and see if my legs feel better….that being said we have had horribly huimid,wet weather in the New York area the entire month of June…so I am not certain if the over exercising or the weather is making the TM flare up. Even after 12 years I have not really learned to listen to my body….part of this is due to the fact that I am not in discomfort while exercising….but hours later it is as if my body is just realizing I over did it and I have to pay the price. My main exercise is swimming (and a little treadmill)….for the first 10 years of TM I had far fewer breaks from the exercise routine …and then all of a sudden when I hit 60 I kinda gave up and threw in the to wel….I kinda just quit. I felt hopeless and helpless…therefore I just started back on my routine…and so far the pain far outweighs the gain. I will attempt to introduce moderation to my exercise and try to remember I am closing in on 62 so I would guess non related TM problems are beginning to surface such as arthritis. I still have a lot on my plate…I drive 80 miles a day to work and sometimes I am just so exhausted that the thought of a workout is something I cannot handle. That being said I do find that when I let myself get out of shape and gain addl. Weight I always feel worse…and I can assure you that this is not a vanity issue. I would appreciate hearing from the group as to what exercises works for them…how do you know when you are over doing it? I am seeing Dr. Kerr on Weds and will pose the question to him…I have a feeling he will stress
Re: [TMIC] Sheesh! Stop it Guys!
Emails are often misunderstood. It's just not as easy to get the point that was trying to get across sometimes. Even someone with really good reading or writing skills gets misunderstood sometimes by someone with the same. Then there are some, like me, who really don't read all of the words sometimes, and need to go over the message a time or two or three. And, I still screw things up. It would be great if we could just communicate in person, or on the phone and know what everyone else is thinking like we do on the TMIC, but it's not possible, so here we are. We just do what we can to get through it. We should have figured out by now that life is not perfect, so don't expect perfection from each other. Especially when there is pain and medication involved. Hugs, Barbara A -Original Message- From: jrushton jrush...@columbiaenergyllc.com To: Grace M. grace...@gmail.com Sent: Sun, Jun 28, 2009 5:19 pm Subject: Re: [TMIC] Sheesh! Stop it Guys! F7EE749F-4977-491B-98D6-7F464181D5FA 4.00 Letter Letter\Delicate_Etchings.imf Papers Stationery Delicate Etchings © CatWoman VHJhZGVNYXJrTGluaywyOCxtYWlsdG86Q2F0LVdvbWVuQHByb2RpZ3kubmV0LElNQkwxLDQ2LIFJgUk4nSwsnYnFOE2JxZ2dTYnFhTBNxcEomU2dOImZiYXBhSiNOCRJgUmBSYEsSU1CTDIsMCwsSU1CTDMsMCws cid:6C32BEC9-49D3-4A14-911A-B4ADB33C1F1B repeat #fff7f7 left top X-ASN,X-ASH,X-AN,X-AP,X-AD ; Gosh, and it's not even a full moon!!! OK.. I always tell my kids that you cannot change one second of what has already happened...just learn fr om it, go forward and try to be a better person than you were the day before. Some of you have heard me say this soHOW ABOUT STARTING OVER FROM THIS MOMENT ON We're only human. We have each other in this TM thing and that is a very special thing to have. Jeanne ---Original Message--- From: Grace M. Date: 06/28/09 21:04:19 To: tmic-list@eskimo.com Subject: [TMIC] Sheesh! Stop it Guys! Todd did not intentionally do anything wrong. He wrote an extremely supportive post to Naomi. He in no way disparaged this list, or anyone on it. I've known Todd since I first became ill and he has never been ANYTHING but good to me, and I have never seen him post anything negative to anyone on this list site. I also know that he would help anyone here that he could, if he had the means to do so. Sadly, not all of us have the means to do so, myself included. For the life of me I do not understand what has been going on here lately. Grace
Re: [TMIC] long story
Hi Janice, The thing about physical disabilities are that you don't know what you are going to face until it is upon you.? It's not always apparent that certain things will come about, and some you'd never even think of.? Well, I know that is the case for me anyway.? I was surprised so many times of things that I never ever thought would be an issue.??It's also amazing that when confronted with a problem that would need solving, I learned how to break it down and figure out how to make my body work it out, if at all possible.? It could be as simple as getting in and out of a different car, or moving about a different bathroom.? Believe me, it also got more complex, but when somebody would offer to help me I often would have to tell them thanks, but that I knew my body's strengths and how it could figure out movements to handle a situation in the easiest manner.? Sometimes it was a quite a challenge, and the sense of satisfaction was awesome. You also have to celebrate your conquests? Much more fun!!! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: jrush...@columbiaenergyllc.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Fri, 29 May 2009 8:41 pm Subject: Re: [TMIC] long story I think Jeanne hit it when she said the frustration level with this disease was so high it could cause depression.? ?Even if you find a doctor that knows something about TM, there isn't that much they can do for us.?? They try to give us the right meds for our problems, either physical or mental, but that can be trial and error too.?? I can not tell you how many of our questions to doc's have not been answered.?? They just say it is different with each patient.?? I get a lot more talking with you guys than the doctors.?? Toward the end of my 9 weeks in the hospital, they put me on Zoloft.?? I was finally realizing that this was a life-long disease and all I could do was learn how to deal with all the parts of my body that no longer worked.?? Now I just take it one day at a time and as something else goes wrong, I have a pity party for a day or two, then go back to fighting whatever the current problem is.? When I left the hospital I?didn't think about any future problems, I thought, okay, this is it and we can deal with it.?? How could anything else go wrong? -? so naive! I don't have nearly the problems some of you have and I feel I need? help with Zoloft.??? I think this is a problem for us that needs to be talked about and brought out into the open.?? I take aspirin for a headache and Zoloft for depression. Janice ?? ? - Original Message - From: balmat...@aol.com To: jrush...@columbiaenergyllc.com ; tmic-list@eskimo.com Sent: Friday, May 29, 2009 1:00 AM Subject: Re: [TMIC] long story Thank you Jeanne, Your message was great.? I have told people so many times.? Now, they have so many different anti depressants and if one does not work for you, talk to your doctor and get another one? Do not suffer one more minute! But people still in this day and age continue to just give up after one failed attempt at a doctor or medication.? They'd get second opinions on so many other things, but not their mental health.??Heck, when looking for a new car, don't you test drive until you a satisfied with the one that works for you?? We have to take charge of our health, both mental and physical. It's also commonplace to?change from one?medication to another when one doesn't seem to match your symptoms any longer.? I started on one (I can't remember the name now) and was on it for about a year, then was switched to the Wellbutrin, which I've been on for many years.? ? Thanks again Jeanne for your pearls of wisdom.?? Hugs,? Barbara A? -Original Message- From: jrushton jrush...@columbiaenergyllc.com To: balmat...@aol.com; tmic tmic-list@eskimo.com Sent: Thu, 28 May 2009 5:26 am Subject: Re: [TMIC] long story 0EC31D6F-6E0F-43AF-AFED-D30128DB4C61 cid:66552075-E1C0-45D9-9459-4ADBC40F0DC6 repeat #ff left top X-ASN,X-ASH,X-AN,X-AP,X-AD ; From the time I can remember and that's a pretty long time, 'being depressed' was almost an embarrassment and something to be shameful for.? So many, many people just lived with it and the big 'thing' was Valium.? While I was nursing, there was Prozac and as most of us know it either works or it doesn't and when it doesn't it makes you feel like you are one crazy loco.? Then one day I read an article in the 'Dear Abby' section which was strange because I usually didn't read it at all.? It was all about a 'career woman', who had suffered with depression for years and had a very hard time covering it up at times.? She would get thru her day and crash. She went from doctor to?doctor and finally found one that gave her 'the talk' she needed.? That doctor told her that depression was just exactly like other diseases and he used diabetes as
Re: [TMIC] long story
Thank you Jeanne, Your message was great.? I have told people so many times.? Now, they have so many different anti depressants and if one does not work for you, talk to your doctor and get another one? Do not suffer one more minute! But people still in this day and age continue to just give up after one failed attempt at a doctor or medication.? They'd get second opinions on so many other things, but not their mental health.??Heck, when looking for a new car, don't you test drive until you a satisfied with the one that works for you?? We have to take charge of our health, both mental and physical. It's also commonplace to?change from one?medication to another when one doesn't seem to match your symptoms any longer.? I started on one (I can't remember the name now) and was on it for about a year, then was switched to the Wellbutrin, which I've been on for many years.? ? Thanks again Jeanne for your pearls of wisdom.?? Hugs,? Barbara A? -Original Message- From: jrushton jrush...@columbiaenergyllc.com To: balmat...@aol.com; tmic tmic-list@eskimo.com Sent: Thu, 28 May 2009 5:26 am Subject: Re: [TMIC] long story 0EC31D6F-6E0F-43AF-AFED-D30128DB4C61 cid:66552075-E1C0-45D9-9459-4ADBC40F0DC6 repeat #ff left top X-ASN,X-ASH,X-AN,X-AP,X-AD ; From the time I can remember and that's a pretty long time, 'being depressed' was almost an embarrassment and something to be shameful for.? So many, many people just lived with it and the big 'thing' was Valium.? While I was nursing, there was Prozac and as most of us know it either works or it doesn't and when it doesn't it makes you feel like you are one crazy loco.? Then one day I read an article in the 'Dear Abby' section which was strange because I usually didn't read it at all.? It was all about a 'career woman', who had suffered with depression for years and had a very hard time covering it up at times.? She would get thru her day and crash. She went from doctor to?doctor and finally found one that gave her 'the talk' she needed.? That doctor told her that depression was just exactly like other diseases and he used diabetes as an?example.? He said that it would not embarrass her to take meds for that nor any other illness so why should she for depression when it was ! caused by something in her body that was not working correctly and was a physical ailment just like the others. By the time he got thru with her, she was on top of the world, no longer shamed by something she had no control over and the good thing was that she could now talk about it and share what she finally discovered?and it made perfect sense.? She wrote this letter that I cut out, made many copies and handed out to every patient that came in feeling embarrassed because they, too,?were depressed and feeling bad about it which only aggravated the?problem.? Now, they have so many different anti depressants and if one does not work for you, talk to your doctor and get another one? Do not suffer one more minute!? You don't have to!? If they won't listen to you, then go to someone who will care and help you!? Dealing with TM is bad enough as it is and is known to have a very high depression rate probably due to the frustration of no one knowing what to do with us! :)? Ex! cept us, of course!? We just take care of each other!? Whew!? ! How is t hat for a mouthful from old Rushton?? ? I am also taking advantage of this site by sending a priceless little short video of my 2 year old.? It will come separately because I can't figure out how to move it over to here! It's amazing!? Love to all...Jeanne in Dayton ? ? ? ---Original Message--- ? From: balmat...@aol.com Date: 5/28/2009 2:08:05 AM To: jeffsmokeea...@yahoo.com; ?tmic-l...@eskimo.com Subject: [TMIC] long story ? Hi Jeff, You have been through it, but have managed to make it.? You are an inspiration that you have managed to make it back from depression without any help from anti-depressants or a psychologist, but there is no shame in using either or both.? Many of us have found the help and comfort from one or both of these and whatever helps us is what is important to not suffer from depression and be able to continue on with our lives. Hugs, Barbara A Wanna slim down for summer? Go to America Takes it Off to learn how. ?
[TMIC] long story
Hi Jeff, You have been through it, but have managed to make it.? You are an inspiration that you have managed to make it back from depression without any help from anti-depressants or a psychologist, but there is no shame in using either or both.? Many of us have found the help and comfort from one or both of these and whatever helps us is what is important to not suffer from depression and be able to continue on with our lives. Hugs, Barbara A
[TMIC] Zanaflex
Tried the Zanaflex and didn't work well for me.? It relaxed me too much, and when I finally got to the bathroom, I generally fell asleep on the commode.? I do that a lot when I take something to help me sleep in addition to my regular meds, so the Zanaflex relaxed me way too much.? I would fall asleep while I was walking to the bathroom, I can't tell you how, but I did.? One night I found myself standing in front of the stove.? I didn't turn anything on, but it wasn't good.? Another night I was standing in the middle of the family room, when I know I was on my way to the bathroom before going to bed, but just never made it.? So, I stopped taking it.? I could tell enough stories about me moving around the house and falling asleep standing up, it's amazing.? These meds are crazy!? I hope I gave everyone a good laugh!!!? Most people think it strange falling asleep on the toilet.? My husband Pete yells from bed to me, Barbara, are you awake, and then I get startled, and I say, oh yes, I am just getting up now, or darn, I fell asleep again.? Sometimes he just comes into the bathroom when he hears me snoring and opens the door and says, would you come back to bed and sleep.? That's generally when I didn't respond to him, lol.? I then look at my watch and sometimes notice an hour or more has passed since I got out of bed.? It's not so bad unless I fall off, that has happened several times, but I think my percentages are really good for not falling off.? More information than asked for, right? I know we all have great TM Memories.? We could write books about our experiences.? Hugs, Barbara A -Original Message- From: Pieter and Heather pieterheat...@shaw.ca To: balmat...@aol.com; mother...@msn.com; tmic-list@eskimo.com Sent: Thu, 30 Apr 2009 10:49 pm Subject: Re: [TMIC] wow, you work too hard Trudy Barbara, ? Has your doctor ever suggested or have you ever tried Zanaflex?? It is also a muscle relaxant.? I take 40 mg of Baclofen in 4 divided doses throughout the day and one of the doses is at bedtime.? However, I also take a 4mg tablet of Zanaflex right before bed.? I find that I do not have to get up to the bathroom every 2 hours during the night. Now I am able to go 4 or and sometimes 5 hours at a time during the? night.? That happened when I started the Zanaflex.? Makes a big difference when we get a pretty good night sleep.? I know that some other people on the list take more Zanaflex than that but for me it works. ? Heather in Calgary - Original Message - From: balmat...@aol.com To: mother...@msn.com ; tmic-list@eskimo.com Sent: Thursday, April 30, 2009 3:00 PM Subject: [TMIC] wow, you work too hard Trudy Hi Trudy, You work too hard, I could not clean all day, whether I wanted to or not.? If not for a automatic washer/dryer, the wash would not get done.? And, if it goes for floors, I can do a small amount but not a lot.? It kills my back, and I'm in bed for days.? So, it's someone else's job.? I do clean the spots on the kitchen floor iwth paper towels though from time to time, since hubby or daughter in-law aren't really responsive on the job, lol.? It doesn't seem to be as important to them that it is and looks clean as it is to me.? My speed is dusting and cleaning kitchen/bathrooms and laundry.? I can do most things that are off the floor and I cannot do too much in a day and still manage to cook dinner.? I don't cook dinner everyday, but try to do it most days.? Pete (hubby) usually handles breakfast most days and it's a nice trade off as he loves breakfast.? That's one of the good parts of his retirement.? He also makes my coffee in the morning and then again at night.? And, he is sure a handy guy to have around I know that I don't think that I could have gotten through this whole TM thing without him, he's been so good at accepting the changes that it has made in our lives.? I say accepting, and I am not sure it is the right word, as it is a hard thing to say.? We do have to accept it, don't have to like it as none of us do, but we just roll with it.? It just is what it is.? Can't change it, and cannot deny it anymore, although I tried that for about! 18 months.? Now, it's been almost 10 years. I use 40 mg Baclofen at night for spasms, and generally it works pretty well, although there are those nights when it doesn't seem to work.? Maybe it is and if I hadn't taken it, they would be a whole lot worse, but they definately keep me from sleeping.? That is usually on a day that I've done too much.? I've had 2 DVT's in my left leg, and sometimes I think that the problems and pain in that leg are worse than the complications that TM has caused in my life.? Although, I didn't get the DVT's until I was in the hospital paralyzed from TM.? Darned leg! But I have slept 3 nights straight and am a happy camper today.? Yippee!? I hope you all can take something positive from me and do something positive for
Re: [TMIC] I've had 3 nights sleep in a row
Hi BobbyJim, Do you just take the normal dosages of both of these?? And, how close to you turning in for the evening? Hugs, Barbara -Original Message- From: bobby jim elbobber...@earthlink.net To: jharpe...@aol.com; balmat...@aol.com; tmic-list@eskimo.com Sent: Thu, 30 Apr 2009 7:07 pm Subject: Re: [TMIC] I've had 3 nights sleep in a row Well, am known to toss and turn and hit the pottie as well thruout the night. ? To help me avoid this I alternate between Valerian Root and Melatonin Plus. Not bad.? Even my ghoulish dreams have decreased.?? Check them out. ? BobbyJim in Elvisland?? From: jharpe...@aol.com To: balmat...@aol.com ; tmic-l...@eskimo.com??? Sent: Thursday, April 30, 2009 8:50 PM Subject: Re: [TMIC] I've had 3 nights sleep in a row I'm so glad, Barbara. I guess sleep has probably always been a factor, but I seem to feel it (or the lack of it) a lot more since TM. A good night's rest does wonders. ? Barbara H. http://barbarah.wordpress.com/ ? In a message dated 4/30/2009 4:25:43 P.M. Eastern Daylight Time, balmat...@aol.com writes: I just wanted to write in and let everyone know that I have now had 3 straight nights of pretty good sleep.? I had some pain in my left leg that woke me up and kept me up for about 45 minutes, but then after?exercising it some, I was able to go back to sleep and sleep until I had to go to the bathroom.? I woke up feeling soo much better, and so rested.? It was glorious to think and feel 3?nights straight of?decent sleep.? That is what we all need and sure does a lot for one's mental attitude.? I generally have a pretty good and positive attitude about things, but I know it goes down when I am overly tired. So, I guess my pity party was a success after all as it got me back on track, and for that, I can thank the great TMIC network of support.? I could not have done it as easily without all of your support.? Thank you so much.? ? Warm hugs to all,? Barbara A???
Re: [TMIC] wow, you work too hard Trudy
Janice, DVT's are Deep Venous Thrombosis, or blood clots.? These?have reduced?the bloodflow going back up my leg to the heart, and the leg swells and aches.? I get spasms in that leg, which is my left leg, and?sometimes in my right leg and my back.? I take 2 Baclofen in the early evening when I am experiencing spasms, and then 2 later on, but only then as my legs are at their worst between 2-4 am generally.? So, I want the most meds working for me at that time. Hugs to you, Barbara A -Original Message- From: Janice jan...@centurytel.net To: mother...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Thu, 30 Apr 2009 7:07 pm Subject: Re: [TMIC] wow, you work too hard Trudy Barbara, Your situation seems to be the closest to my situation that I have read yet.? I am referring to your paragraph 2.??? Also, use baclofen (2 at dinner, 1 at 8:00pm) and have no problem sleeping too.?? What would we do without really good husbands!?!. ? You mentioned DVT's in your legs.?? What are those??? Are they painful?? I have never heard of that.??? Janice - Original Message - From: balmat...@aol.com To: mother...@msn.com ; tmic-list@eskimo.com Sent: Thursday, April 30, 2009 4:00 PM Subject: [TMIC] wow, you work too hard Trudy Hi Trudy, You work too hard, I could not clean all day, whether I wanted to or not.? If not for a automatic washer/dryer, the wash would not get done.? And, if it goes for floors, I can do a small amount but not a lot.? It kills my back, and I'm in bed for days.? So, it's someone else's job.? I do clean the spots on the kitchen floor iwth paper towels though from time to time, since hubby or daughter in-law aren't really responsive on the job, lol.? It doesn't seem to be as important to them that it is and looks clean as it is to me.? My speed is dusting and cleaning kitchen/bathrooms and laundry.? I can do most things that are off the floor and I cannot do too much in a day and still manage to cook dinner.? I don't cook dinner everyday, but try to do it most days.? Pete (hubby) usually handles breakfast most days and it's a nice trade off as he loves breakfast.? That's one of the good parts of his retirement.? He also makes my coffee in the morning and then again at night.? And, he is sure a handy guy to have around I know that I don't think that I could have gotten through this whole TM thing without him, he's been so good at accepting the changes that it has made in our lives.? I say accepting, and I am not sure it is the right word, as it is a hard thing to say.? We do have to accept it, don't have to like it as none of us do, but we just roll with it.? It just is what it is.? Can't change it, and cannot deny it anymore, although I tried that for about! 18 months.? Now, it's been almost 10 years. I use 40 mg Baclofen at night for spasms, and generally it works pretty well, although there are those nights when it doesn't seem to work.? Maybe it is and if I hadn't taken it, they would be a whole lot worse, but they definately keep me from sleeping.? That is usually on a day that I've done too much.? I've had 2 DVT's in my left leg, and sometimes I think that the problems and pain in that leg are worse than the complications that TM has caused in my life.? Although, I didn't get the DVT's until I was in the hospital paralyzed from TM.? Darned leg! But I have slept 3 nights straight and am a happy camper today.? Yippee!? I hope you all can take something positive from me and do something positive for yourself to get on the right track if you've slipped off as well. Hugs to all, Barbara A Can't afford a new spring wardrobe? Go shopping in your closet instead!
[TMIC] DVT's
In my case, I got the first one in rehab when my Heparin dosage wasn't strong enough and I wasn't moving at all.? Other than my PT, or if I moved my legs by picking them up and putting them where I wanted them, or if?the nurses did it?to do a cath.? I kept telling the doctor/Physiatrist and nurses that my leg was swelling and they didn't worry about it since I had no pain.? Well, I had no feeling either, duh!? I would bring it to their attention for 3 days straight and ask for help with it, and it took till the 3rd day that they finally took it serious and decided to have an ultrasound, based on measurements they took.? The results were a clot from behind knee up to the groin.? I had to go on Coumadin (blood?thinner)?then and remained on Coumadin for 6 months.? They said that the Coumadin does not dissolve the clot, it only thins the blood to make it less sticky, which keeps it from getting larger, and then also allows the blood to flow through the compromised vein.? After a little more than a?year from the first one I was doing pretty well, so we decided to take a vacation to Hawaii, and during that trip I got the second one.? I wasn't told to move my leg around a lot, but I sure learned the hard way.? We were on a sardine special and I got up and tried to walk around a little, but it was so closed in and hard to move just to get to the bathroom that it was all I could do, and that was almost impossible.? From California it's a 5 hr flight.? I moved my legs a bit, but no where near as much as I would have if I'd have known and I am so careful now.? I don't sleep and I am constantly moving my legs, standing when and where I can, walking to the furthest bathroom, etc. when we fly.? I also book connecting flights instead of non-stops, although, since we've moved,?from Sacramento you cannot get a non-stop to very many places.? It takes longer, but safer. I am now on Coumadin for lifetime to avoid any further clots.? There is a filter you can have placed in the groin, but there are side effects to that, one being further clots.? So, my doctor didn't advise it.? Now I have to be careful not to fall and have to monitor my blood all the time, and watch my diet to keep my blood thinned to a specific range.? It's a real hassle, but don't have a choice.? At this point the docs say that I am now prone to clots, fun eh? -Original Message- From: marieke dufresne marieke...@hotmail.com To: tmic-list@eskimo.com Sent: Fri, 1 May 2009 6:37 am Subject: [TMIC] RE: tmic-digest Digest V2009 #373 RE: DVT, are Deep Vein Thrombosis. Basically, CLOTS in the vein that block it and can also break away and travel up in your blood stream. Very dangerous as it can go to your lungs or heart or brain and this can kill you. When you get DVT they put you on blood thinners to get rid of them and then usually you have to take another type to decrease the chance of getting more. People who do not move around much/are paralyzed tend to get them. It is important to try to move around as much as possible. If you can flex your ankle do it every hour to keep the blood moving so that it is not in stasis. You can also wear TED stockings during the day, these help as well. Keeping your feet elevated too. You'll know if you have one, there will be pain, redness, swelling in the area it is situated in. You may also see a large bruise. People who fly long distances and don't get up to walk around are also prone to getting one. Marieke RN TM @T1 since March 2004 --Forwarded Message Attachment-- Date: Thu, 30 Apr 2009 21:07:25 -0500 From: jan...@centurytel.net To: mother...@msn.com; tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] wow, you work too hard Trudy Barbara, Your situation seems to be the closest to my situation that I have read yet.? I am referring to your paragraph 2.??? Also, use baclofen (2 at dinner, 1 at 8:00pm) and have no problem sleeping too.?? What would we do without really good husbands!?!. ? You mentioned DVT's in your legs.?? What are those??? Are they painful?? I have never heard of that.??? Janice Help keep personal info safe. Get Internet Explorer 8 today! =
[TMIC] the good, bad and ugly of TM
Hi Jude, I guess that this is just one of my experiences that could be considered one of The Good, Bad and Ugly of experiences of TM.? Some of these experiences are not very funny when they happen to you.? They can be very embarrassing too, but then when you look back, they aren't so bad.??Wow, I know that?most of us have had some doozies?to look back on.?? I had forgotten that Jude was going to try to write a book on TM experiences.? So, please see her message in red below. Hugs to all, Barbara A? -Original Message- From: heyjude48...@aol.com To: balmat...@aol.com Sent: Fri, 1 May 2009 7:12 pm Subject: Re: [TMIC] Zanaflex This is exactly the kind of material I want for my book.? Everyone telling me their humorous? stories and others regarding TM.? I want a mix of serious/humorous stories.? Keep writing you all.? Please, Jude ? In a message dated 5/1/2009 2:23:20 A.M. Eastern Daylight Time, balmat...@aol.com writes: Hi Jude, Tried the Zanaflex and didn't work well for me.? It relaxed me too much, and when I finally got to the bathroom, I generally fell asleep on the commode.? I do that a lot when I take something to help me sleep in addition to my regular meds, so the Zanaflex relaxed me way too much.? I would fall asleep while I was walking to the bathroom, I can't tell you how, but I did.? One night I found myself standing in front of the stove.? I didn't turn anything on, but it wasn't good.? Another night I was standing in the middle of the family room, when I know I was on my way to the bathroom before going to bed, but just never made it.? So, I stopped taking it.? I could tell enough stories about me moving around the house and falling asleep standing up, it's amazing.? These meds are crazy!? I hope I gave everyone a good laugh!!!? Most people think it strange falling asleep on the toilet.? My husband Pete yells from bed to me, Barbara, are you awake, and then I get startled, and I say, oh yes, I am just getting up now, or darn, I fell asleep again.? Sometimes he just comes into the bathroom when he hears me snoring and opens the door and says, would you come back to bed and sleep.? That's generally when I didn't respond to him, lol.? I then look at my watch and sometimes notice an hour or more has passed since I got out of bed.? It's not so bad unless I fall off, that has happened several times, but I think my percentages are really good for not falling off.? More information than asked for, right? I know we all have great TM Memories.? We could write books about our experiences.? Hugs, Barbara A -Original Message- From: Pieter and Heather pieterheat...@shaw.ca To: balmat...@aol.com; mother...@msn.com; tmic-list@eskimo.com Sent: Thu, 30 Apr 2009 10:49 pm Subject: Re: [TMIC] wow, you work too hard Trudy Barbara, ? Has your doctor ever suggested or have you ever tried Zanaflex?? It is also a muscle relaxant.? I take 40 mg of Baclofen in 4 divided doses throughout the day and one of the doses is at bedtime.? However, I also take a 4mg tablet of Zanaflex right before bed.? I find that I do not have to get up to the bathroom every 2 hours during the night. Now I am able to go 4 or and sometimes 5 hours at a time during the? night.? That happened when I started the Zanaflex.? Makes a big difference when we get a pretty good night sleep.? I know that some other people on the list take more Zanaflex than that but for me it works. ? Heather in Calgary ? Barbara, ? Has your doctor ever suggested or have you ever tried Zanaflex?? It is also a muscle relaxant.? I take 40 mg of Baclofen in 4 divided doses throughout the day and one of the doses is at bedtime.? However, I also take a 4mg tablet of Zanaflex right before bed.? I find that I do not have to get up to the bathroom every 2 hours during the night. Now I am able to go 4 or and sometimes 5 hours at a time during the? night.? That happened when I started the Zanaflex.? Makes a big difference when we get a pretty good night sleep.? I know that some other people on the list take more Zanaflex than that but for me it works. ? Heather in Calgary ?
[TMIC] I've had 3 nights sleep in a row
I just wanted to write in and let everyone know that I have now had 3 straight nights of pretty good sleep.? I had some pain in my left leg that woke me up and kept me up for about 45 minutes, but then after?exercising it some, I was able to go back to sleep and sleep until I had to go to the bathroom.? I woke up feeling soo much better, and so rested.? It was glorious to think and feel 3?nights straight of?decent sleep.? That is what we all need and sure does a lot for one's mental attitude.? I generally have a pretty good and positive attitude about things, but I know it goes down when I am overly tired. So, I guess my pity party was a success after all as it got me back on track, and for that, I can thank the great TMIC network of support.? I could not have done it as easily without all of your support.? Thank you so much.? ? Warm hugs to all,? Barbara A?
[TMIC] wow, you work too hard Trudy
Hi Trudy, You work too hard, I could not clean all day, whether I wanted to or not.? If not for a automatic washer/dryer, the wash would not get done.? And, if it goes for floors, I can do a small amount but not a lot.? It kills my back, and I'm in bed for days.? So, it's someone else's job.? I do clean the spots on the kitchen floor iwth paper towels though from time to time, since hubby or daughter in-law aren't really responsive on the job, lol.? It doesn't seem to be as important to them that it is and looks clean as it is to me.? My speed is dusting and cleaning kitchen/bathrooms and laundry.? I can do most things that are off the floor and I cannot do too much in a day and still manage to cook dinner.? I don't cook dinner everyday, but try to do it most days.? Pete (hubby) usually handles breakfast most days and it's a nice trade off as he loves breakfast.? That's one of the good parts of his retirement.? He also makes my coffee in the morning and then again at night.? And, he is sure a handy guy to have around I know that I don't think that I could have gotten through this whole TM thing without him, he's been so good at accepting the changes that it has made in our lives.? I say accepting, and I am not sure it is the right word, as it is a hard thing to say.? We do have to accept it, don't have to like it as none of us do, but we just roll with it.? It just is what it is.? Can't change it, and cannot deny it anymore, although I tried that for about 18 months.? Now, it's been almost 10 years. I use 40 mg Baclofen at night for spasms, and generally it works pretty well, although there are those nights when it doesn't seem to work.? Maybe it is and if I hadn't taken it, they would be a whole lot worse, but they definately keep me from sleeping.? That is usually on a day that I've done too much.? I've had 2 DVT's in my left leg, and sometimes I think that the problems and pain in that leg are worse than the complications that TM has caused in my life.? Although, I didn't get the DVT's until I was in the hospital paralyzed from TM.? Darned leg! But I have slept 3 nights straight and am a happy camper today.? Yippee!? I hope you all can take something positive from me and do something positive for yourself to get on the right track if you've slipped off as well. Hugs to all, Barbara A
[TMIC] copy of my response
I forgot to include the TMIC when I answered these nice messages of advice so I am forwarding to the group.? Thanks again ladies and Rob. Hugs, Barbara A -Original Message- From: balmat...@aol.com To: marieke...@hotmail.com; pieterheat...@shaw.ca; jan...@centurytel.net Sent: Tue, 28 Apr 2009 8:56 pm Subject: Re: [TMIC] RE: tmic-digest Digest V2009 #361 Hello Ladies, I already have another TV, actually, we have 5 TV's in the house and I have my own laptop, with WIFI.? I didn't ever think of taking it outside though, that's something interesting to try and see if it'll work.? That's one of the reasons that I've been in the bedroom so much though, lol!!!? It's been too easy to do. It's ok if I spend most of the day when I need to recuperate after a day of overdoing it, but I just don't want it to be too big in my life, and that is what had occured.? I am working on that not happening too often now, and so far, so good. Thanks for all the support!? I appreciate it!!! Hugs, Barbara A Can't afford a new spring wardrobe? Go shopping in your closet instead!
Re: [TMIC] misc
Hi Rob, Thanks for your message, and I'm so glad I could improve your day with mine to you.??I am sending this message to the whole group, so they can see what's up with me as well. I really am not feeling sorry for myself.? I am not sleeping well, I wake up so many times at night with my legs in pain, once I finally get to sleep.? It is at least 3am before my legs settle down enough to get to sleep for a bit, unless I take a Vicodin.? I usally sleep for anything between 15 minutes and an hour on many nights, and this goes on until anytime between 10am and noon, when I finally drag my butt out of bed.? I am exhausted.? I take a Vicodin usually 3 days a week, just to catch up on some sleep.??I need to use some of my?marijuana tincture at night or a brownie on more?nights, but that doesn't?always work.? Between the two, if one of these methods is used almost every night, I should be better off in the sleep category.? I lowered my daily dosage of Neurontin over the past year and my pain level has increased.? My Neurontin dosage?was up pretty high at 5200/day, and I really wanted it lowered, so I was able to lower 3600/day now, but?I am paying the price dur! ing the night.??I also went on Lyrica at 50/mg 3x/day. My husband retired last year and became interested in politics for the first time in his life, so he watches the news a lot.? It's on so much of the day, and then he watches the History Channel, Military Channel?and CARTOONS!!? He's always watched some cartoons, but it's just too much, so after I do what I need to and sit out in the family room for a bit, I leave the area.? I just can't stand it.? He?also uses the computer, but while on the TV.? If?I ask to change the channel, it usually annoys him, so it's often easier to just let it go.? I know that we all have our own living situations, and he's really a great guy. ?He just has his own things that annoy me, and I have mine that do the same to him.? And, I really try to live by the rule now that I need to pick my battles.? I stand up for?my place in the family room periodically and take control of the TV and enjoy something together or alone.? Then, once he goes to bed and I cannot sleep, I watch TV in there while I am waiting to be able to sleep. Over the winter hits we don't get out much, although we did take a Panama Canal Cruise for his retirement, but it was during October, so he was pre-occupied with election stuff.? He scoped out a TV in one of the lounges that usually had the news on during the day, and we had a TV in our room.? We enjoyed ourselves though, and it was a good trip.? In February we went to So. California (we live in No. California) to get out of the cold and enjoyed the warmer weather for a week.? I just need to get away a bit if I can, winter really gives me problems, both physically and then mentally since I ache so much more.? I just don't know how you people who live in the REAL cold climates do it. Since I wrote you, I have been out of my room a lot more, and have gotten outside, picked lemons off my lemon tree and have prepared a?many more?meals than usual, and even done some visiting as well.? I am moving around the house?more again, and on Saturday I am meeting my sisters for a day of lunch, massages, and then tea.? So, I've gotten back to a start in the right track, but I appreciate the boost (Kick in the Butt) from you Rob!!!? Take care all, and warm hugs to everyone as well. Barbara A in Auburn, CA? -Original Message- From: Robert Pall rp...@neillsupply.com To: balmat...@aol.com Sent: Mon, 27 Apr 2009 5:01 am Subject: RE: [TMIC] misc Barbara...your response just made a lousy Monday morning at work a little nicer ...thank you ...now get busy living your life and stop feeling sorry for yourself. ? All the best! Rob From: balmat...@aol.com [mailto:balmat...@aol.com] Sent: Saturday, April 25, 2009 9:33 PM To: Robert Pall; tmic-list@eskimo.com Subject: Re: [TMIC] misc Hello Rob and all, I am so glad that you sent in this email today.? I think it just may be the kick in the butt that I need to get out of my bedroom and on with my life.? I am still kind of in a funk, not as bad as the usual winter funk, but still haven't been able to totally bring myself out of?it either.??I know that the state of the economy and politics have been consuming too much of my life recently, and with my hubby retiring last year, as the saying goes, twice as much hubby and half as much money.? Could not be truer than these days, as if we could have known, he'd still be working and we'd still be preparing for his retirement. I have been reading most of the postings on TMIC, but not responding to some that I know that I should have.??For this, I am apologizing to the newbies and to those that I could have possibly given some support. Rob, I will try, no, I WILL,?to take your words to heart and start LIVING my life the way I used to, and used
Re: [TMIC] misc
Hello Rob and all, I am so glad that you sent in this email today.? I think it just may be the kick in the butt that I need to get out of my bedroom and on with my life.? I am still kind of in a funk, not as bad as the usual winter funk, but still haven't been able to totally bring myself out of?it either.??I know that the state of the economy and politics have been consuming too much of my life recently, and with my hubby retiring last year, as the saying goes, twice as much hubby and half as much money.? Could not be truer than these days, as if we could have known, he'd still be working and we'd still be preparing for his retirement. I have been reading most of the postings on TMIC, but not responding to some that I know that I should have.??For this, I am apologizing to the newbies and to those that I could have possibly given some support. Rob, I will try, no, I WILL,?to take your words to heart and start LIVING my life the way I used to, and used to tell others to as well, and that is to the fullest extent as possible.? TM should not define us.? Hugs to all, Barbara A in Auburn,?CA, where the sun is shining and there is a nest of baby birds outside of my bedroom window.? The sounds are so sweet.
Re: [TMIC] leg and foot comfort in bed
Absolutely Janice, I was like a Raggedy Ann doll. Totally floppy from the waist down, couldn't sit without being propped up, and no matter what position my legs were put in, they flopped. It is painful to look back and see what I was like when TM happened, but good to see how far I've come. I often forget about all that has happened to me, all the strange little occurances as well. I could write a book, but then, I really wouldn't want to write it all down, and surely, I doubt anyone would want to read as much of it as there is. We've come a long way baby! Hugs to all! Barbara A -Original Message- From: Janice jan...@centurytel.net To: Patricia Cooley patticoo...@wi.rr.com; tmic-list@eskimo.com; balmat...@aol.com Sent: Sun, 19 Apr 2009 8:34 pm Subject: Re: [TMIC] leg and foot comfort in bed You reminded me of my old hospital days where I could not turn over without help, or slide up in the bed. When you can look back and see where your body has actually gotten stronger - even with the problems TM has left us - you realize how fortunate we are. I am comparing us to 2 people I know that are dying of cancer. Parts of our lives are the pits, but we know we have our lives to live and in most cases, improvement to look forward to. Jance - Original Message - From: Patricia Cooley To: 'Janice' ; tmic-list @eskimo.com ; balmat...@aol.com Sent: Sunday, April 19, 2009 10:47 AM Subject: RE: [TMIC] leg and foot comfort in bed I, TOO, AM FORTUNATE THAT I DON’T HAVE ANY SKIN SENSITIVITY. I ALSO DON’T HAVE THE PAIN SO MANY OF US HAVE. I DO HAVE A SPASMS IN MY LEFT LEG ONCE IN A WHILE. IN FACT, I CAN CAUSE A SPASM BY TURNING MY LEFT FOOT TO THE LEFT AND ALL OF A SUDDEN I CAN FEEL A SPASM. WHEN I GOT TM AND WAS IN THE HOSPITAL I WAS UNABLE TO TURN OVER AND HAD TO SLEEP ON MY BACK WHICH WAS ALSO SO UNCOMFORTABLE BEFORE. I FOUND THE HOSPITAL BED PROVIDED SOME RELIEF AS I COULD RAISE THE HEAD OF THE BED SO I WASN’T SO FLAT ON MY BACK. I WAS EVEN NOT ABLE TO LIFT MY LEGS UP IF THEY SLID OFF THE SIDE OF THE BAD AND HAD TO RING FOR A NURSE. I HAVE A STRONG RAILING ON THE SIDE OF MY BED WHICH MADE IT POSSIBLE FOR ME TO FINALLY TURN OVER. I HAVE IMPROVED TREMDOUSLY AND AM ABLE TO TURN OVER WITHOUT MUCH ASSISTANCE. ONE OF MY PROBLEMS THIS PAST WINTER WAS I WAS ALWAYS SO COLD??? I SLEPT IN FLANNEL NIGHTGOWNS AND AT LEAST 3-4 BLANKETS. IT WAS THE ONLY PLACE I COULD GET WARM. WITH WARMER TEMPS I AM NOW ABLE TO SWITCH TO SUMMER SLEEPWEAR. AS MUCH AS I FEEL SORRY FOR MYSELF AT TIMES, I KNOW HOW VERY LUCKY I AM THAT I DON’T SUFFER MANY OF THE PROBLEMS A LOT OF TM’ERS DO. MY MENTAL OUTLOOK HAS IMPROVED TREMDOUSLY, WHICH I THINK IS BECAUSE=2 0OF ALL THE SUPPORT FROM ALL OF YOU ON THIS WEB SITE. PATTI IN WISCONSIN From: Janice [mailto:jan...@centurytel.net] Sent: Saturday, April 18, 2009 11:34 PM To: tmic-list@eskimo.com; balmat...@aol.com Subject: Re: [TMIC] leg and foot comfort in bed I am s fortunate that I don't have the skin sensitivity that so many of you talk about. If I pull up something really soft, like my gown or robe, I will spasm for a minute, but I don't really have pain, just discomfort and only for a minute. I would think that the cotton knit would be a blessing. I like 100% cotton to sleep in for summer - it helps keep me cool. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 12:20 AM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit. Such a miraculous fiber. Isn't it great when we find something that works for us, most of the time It's just amazing! It's definately a game of trial and error, that's for sure. Life is so much fun when you have TM. The majority of my sensitivity is in the evening and during the night. There are times when I cannot even stand skin to skin contact. That's why I sleep on my back with my knees bent many nights. Take care everyone! Hugs, Barbara A 0A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too. But, I have no problem with sheets and blankets on me at nite. I sleep with a pillow between my knees and that takes care of any problems I guess. I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying
Re: [TMIC] leg and foot comfort in bed
Gilly, I know what you mean about the wrinkles in the bed.? It actually causes pain with the wrinkles, like something is stabbing you.? Using the knit sheets makes them?warmer, and it's so hard for me to imagine you with the pillow on?your feet.? I?cannot stand?much weight on me at all,?especially my feet.??I love my down blanket, nice and lightweight, yet warm. The warmer weather brings less clothes, no blankets, and?a?happier me!? Come on summer! Warm hugs?you Gilly, and all, Barbara A? -Original Message- From: Gillian Clark mingalett...@activ8.net.au To: TM list tmic-list@eskimo.com Sent: Thu, 16 Apr 2009 8:04 pm Subject: Re: [TMIC] leg and foot comfort in bed It has only just occurred to me that sleeping on my back is the only way I have slept now for years. Since the day of the attack I haven't been able to sleep any other way, in the beginning, I couldn't move at all from that position, I can now at least move my legs into a more comfy position.? I can't sleep with them bent up though Barb, that causes huge spasms. ? Everything hurts, no matter what but it's trying to minimize the pain is the answer isn't it?? I know that when you are new to this crap it's so hard to realise the things that you suddenly have to pay attention to.? Not only what you wear but where you are walking, avoiding anything that will brush on you.? Shopping is a nightmare when someone brushes past etc. ? Since I was born being unconventional a lot of things came easily for me.? If you were not? born that way, it's time to change and not give an obese rodent's derriere what anyone else thinks. Find what works for you and don't worry about what the normal people are doing. ? I think I've just about got my life into a reasonable degree of comfort but sometimes it just changes again. ? hugs all Gilly ? - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Thursday, April 16, 2009 2:50 PM Subject: Re: [TMIC] leg and foot comfort in bed I am such a happy camper with my cotton knit.? Such a miraculous fiber.? Isn't it great when we find something that works for us, most of the time? It's just amazing!? It's definately a game of trial and error, that's for sure.??Life is so much fun when you have TM.? The majority of my sensitivity is in the evening and during the night.? There are times when I cannot even?stand skin to skin contact.? That's why I sleep on my back with my knees bent many nights.? Take care everyone! Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: tmic-list@eskimo.com; balmat...@aol.com Sent: Wed, 15 Apr 2009 8:30 pm Subject: Re: [TMIC] leg and foot comfort in bed I have the sensitivity of cloth rubbing (or barely touching) my legs too.?? But, I have no problem with sheets and blankets on me at nite.?? I sleep with a pillow between my knees and that takes care of any problems I guess.? I have slept with a summer gown all winter, otherwise I get too hot. Janice - Original Message - From: balmat...@aol.com To: tmic-list@eskimo.com Sent: Wednesday, April 15, 2009 12:23 AM Subject: [TMIC] leg and foot comfort in bed I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time.? It started as sensitivity and is so often PAIN.? I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton.? In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey.? I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs.? Blankets are much worse, so you need to get the most comfortable sheet you can near your skin.? If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones.? I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them.? I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA Great deals on Dell s most popular laptops Starting at $479 Why pay full price? Check out this month's deals on the new AOL Shopping.
[TMIC] leg and foot comfort in bed
I think that this is something that most of us suffer from at some point during our TM lives, skin sensitivity against fabric, and it's the worst when we are trying to get some much needed sleep. I have purchased so many sets of sheets and blankets over my TM years (T 8-10, 6/1/99), and I have had this sensitivity for most of that time.? It started as sensitivity and is so often PAIN.? I've gone from egyptian cotton, very good quality flannel, jersey (like T-shirt material) and all sorts of thread counts of cotton.? In sheets, I think that most of the time, my most comfortable sheet happens to be the jersey.? I'm not saying that I can always have my legs against them, because I cannot, I lay on my back many nights with my knees bent so nothing touches my legs.? Blankets are much worse, so you need to get the most comfortable sheet you can near your skin.? If you have any old pajama bottoms, those are also some of the most comfortable, or I wear the short ones.? I've bought some microfiber plush pants this year from OldNavy.com and they have been warm on my legs and haven't irritated them.? I am very much looking forward to warmer weather when I can wear short pants all the time and not being uncomfortable. Hugs to all, Barbara A in CA
Re: [TMIC] Thank you
Hello Amanda. It has been almost?10 years with TM for me, and I guess I'm practically over the embarrassment, most of the time.?? When I was in rehab, one of the things that we had to do before we could be released is to go on an outing into a?public situation and we were really close to a shopping center, so that's where we went.? Very Public!? It left many impressions, but also, my husband isn't the kind who likes to stay home all the time and would just want to go out for the sake of leaving the house.? I guess if he didn't feel any embarrassment being with me, I shouldn't have either, but that didn't make me not feel it. One of the first things to come to my mind when I found myself paralyzed was that?our kids were grown, ages 20 and 26, and I had a pretty good marriage and good insurance.? We had a 2 yr old grandson that I wished to play with on the floor though, and that was my biggest goal.? I finally made it and still do, but it's very hard to get back up, but I do it with 3 little boys now.? We play many games, read books and watch movies though in my bed, which is a very special place for all. I don't think I'll ever walk again the way I used to, but I am able to walk a bit with my walker, crutches, and on a really?good day, my cane.?? Please keep up the physical therapy, exercise program, or whatever you do to keep your body strong.? I was so good at it for a long time, then?didn't do too much for a long time.? I am now working on my body again and gaining a bit of strength back.?? And, about the bladder thing, it's something?that so many of us deal with.? I've actually got the bowel and bladder thing, luckily they function, but with urgency, meaning I don't get the signal till it's time to go.? Doesn't matter where I am, last night we were shopping at Safeway and I had to find the restroom NOW!? But, I made it, barely.? We could tell you so many stories, some would leave you laughing so hard, and others so touching you may cry. Pity parties can be shared here, and happen off and on, so don't feel badly if you need one.? We are here for you as we've all been there. Big hugs, Barbara A ?? -Original Message- From: Amanda Diskey adis...@yahoo.com To: tmic-list@eskimo.com Sent: Sat, 28 Mar 2009 12:46 pm Subject: [TMIC] Thank you I just want to say that I am amazed at the amount of information I have gotten from you all about stem cell research and use! I never expected such a response, but I didn't know who else to ask. Of course my family and friends just want me to get better,?and I want to be normal again so bad I would do anything to be that way. I miss playing with my kids, and cleaning my house, and driving, and going to work, using my hands, not wearing depends, and not being embarassed to go in public because of all of the above. I just want to be me again! I was looking for an easy fix, even if it cost 30,000, but thanks to this list I can make a more informed decision. This list is a wonderful place to go for information or support. I don't post a lot, but I always read the posts. Thank you all so much for understanding when no one else does! AMANDA From: tmic-digest-requ...@eskimo.com tmic-digest-requ...@eskimo.com To: tmic-dig...@eskimo.com Sent: Thursday, March 26, 2009 10:03:50 PM Subject: tmic-digest Digest V2009 #200 -Inline Message Follows- tmic-digest Digest??? ??? ??? ??? Volume 2009 : Issue 200 Today's Topics: ? Re: [TMIC] going to DC? ? ? ? ? ? ? ? [ Lawrence King we4king...@verizon.n ] ? Re: [TMIC] Embrionic Stem Cell Discu? [ Lawrence King we4king...@verizon.n ] -Inline Message Follows- Try to find the Albert Einstein memorial near the?Vietnam?Vets Memorial Constitution Ave. ?we wanted to get there but the bone chilling cold 9F. ?got the better of us and we gave up on both. ?It's a site most tourists miss and don't know about. ?and the museum of natural history is renovated and wonderful... you can see the hope diamond. I want to hear about it when you get back! On Mar 26, 2009, at 9:09 PM, ptpatti200...@aol.com wrote: Mindy the Artist Thanks Mindy I found the info on the tourmobile before we decided that I needed some sort of transport and I forgot about the wheelchair storage on the bus so that link was helpful. .? It will be perfect.??I found that it was the only bus through the cemetary - one of our desired stops.? ?I know we are going to use their two-day pass and see all of those sights.? Did you have a special spot that I might miis if I wasn't aware of it in advance?? I'm taking all the advice I can get.?? Thanks Patti - Michigan? -Original Message- From: Lawrence King we4king...@verizon.net To: tmic-list@eskimo.com Cc: Lawrence King we4king...@verizon.net Sent: Wed, 25 Mar 2009 2:38 pm Subject: Re: [TMIC] going to DC Hi Patti, We went to DC in Jan for my father-in-laws funeral at Arlington Natnl. ?Cemetery and decided it was now or never to
Re: [TMIC] stem cell (OT?), and signing
It seems to me that ALL bills should be read prior to signing, but that's just me. I was always told not to sign anything that I haven't read. I will admit to not signing all documents in total, but I have skimmed over them. Just my 2 cents worth. Barbara A In a message dated 3/25/2009 7:28:40 P.M. Pacific Daylight Time, jlu...@eskimo.com writes: I know I am in the minority in my believes, but I do not believe in IVF that creates embryos to begin with. If these embryos were not being created to then there would be no so called leftover embryos. Are you aware that President Obama signed H.R. 1105, the “Omnibus Appropriations Act, 2009,” on March 11th (2 days after signing the executive order to lift the ban on federal funding of embryonic stem cells) that contained the following: The text of Section 509 of the Omnibus Appropriations Act, 2009, reads as follows: SEC. 509. (a) None of the funds made available in this Act may be used forshy;(1) the creation of a human embryo or embryos for research purposes; or (2) research in which a human embryo or embryos are destroyed, discarded, or knowingly subjected to risk of injury or death greater than that allowed for research on fetuses in utero under 45 CFR 46.204(b) and section 498(b) of the Public Health Service Act (42 U.S.C. 289g(b)). (b) For purposes of this section, the term ‘‘human embryo or embryos’’ includes any organism, not protected as a human subject under 45 CFR 46 as of the date of the enactment of this Act, that is derived by fertilization, parthenogenesis, cloning, or any other means from one or more human gametes or human diploid cells. Guess he should have READ the “Omnibus Appropriations Act, 2009 before signing it into law... I followed the link on _http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPu blicReview/_ (http://www.whitehouse.gov/the_press_office/FY2009OmnibusAppropriationsActPublicReview/) to see if it was true, sure enough, it's in there _http://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdf_ (http://appropriations.house.gov/pdf/2009_Con_Bill_DivF.pdf) If you want to read it yourself, pg 128, lines 9 - 24. there are 2 pages inserted so it is page 130 of the pdf. At 05:25 PM 3/25/2009, Lawrence King wrote: whether you consider them blastocysts or babies, the couples who conceived them have already made the decision that they will never be born and have a meaningful purpose outside the petri dish. I truly believe the parents should have the right to decide the fate regarding the use of their unused fertilized egg's stem cells as well. Jim Lubin jlu...@eskimo.com _http://makoa.org/jim_ (http://makoa.org/jim) disAbility Resources: _http://www.makoa.org _ (http://www.makoa.org/) **Great Deals on Dell 15 Laptops - Starting at $479 (http://pr.atwola.com/promoclk/100126575x1219799606x1201361003/aol?redir=http:%2F%2Fad.doub leclick.net%2Fclk%3B213153745%3B34689725%3Bo)
Re: [TMIC] stem cell (OT?)
This is a very personal decision and we all have to make it for ourselves when and if the time comes. It's good to have a discussion about this as different views are expressed and information is dispensed that others may not be aware of. I also know that there are many children in the foster care system and orphanages and are available for adoption if people would consider them if they really wanted a child, and not only a baby. Babies are harder to adopt, but so many children would love to have a stable home with loving parents. I'd love to be able to walk the way I did prior to TM. I know that if I could get back what I lost, I'd be a real happy camper. Hugs, Barbara A **Great Deals on Dell 15 Laptops - Starting at $479 (http://pr.atwola.com/promoclk/100126575x1219799606x1201361003/aol?redir=http:%2F%2Fad.doub leclick.net%2Fclk%3B213153745%3B34689725%3Bo)
[TMIC] thanks for recommendations of rehabs
Thank you all for the recommendations of the rehab centers.? My god-daughter will be picking up the emails off the list, if she hasn't already done so.? If anyone has anything in addition to add, please do so.? I think she is going to see the patient again today that is looking for this information. Isn't it great how we always come through for each other? Hugs, Barbara A
[TMIC] Re: [TMIC
Hi Janice, I agree with Heather.? I am always careful checking the water temp with my hands before getting into the shower.? I cannot handle a hot tub or cold swimming pool as it makes me spasm.? Water must be at least 80-82 degrees in the pool, and nothing over 100 degrees is comfortable in the tub.? Once I started getting feeling back (T8-10, June 1, 1999), I have had the pins and needles and burning/freezing pain.? I take Neurontin and Lyrica for it and it helps take the edge off.? It's kind of like having a horrible sunburn while sitting in a tub full of ice, NOT FUN!!!? It has progressed as the feeling increased over the past 9 years. Take care Janice, Hugs, Barbara A -Original Message- From: Pieter and Heather pieterheat...@shaw.ca To: Janice jan...@centurytel.net; transverse myelitis tmic-list@eskimo.com Sent: Sat, 21 Mar 2009 10:29 pm Subject: Re: [TMIC] Janice, ? I have the temperature problem as well.? I cannot tell hot or cold water on my left leg.? My right leg has some sensation regarding the water temps but I still do not trust that feeling when it comes to the hot or cold water.? I always have to start my shower get the temperature regulated priot to stepping into the shower.? Since I am not affected by TM in my arms I always test the water temps with my hands and arms.? I? have had this since day one back in year 2003. ? Not quite sure what it is you mean by 'buzzing' in your legs.? My buzzing would refer to the constant pins and needles pain I feel in my legs.? And no that has not gone away either.? I did not have it the first little while but once I was able to start learning to walk again etc then this pain started and has been my constant companion.? Using Gabpentin/Neurontin is the only thing that tempers the pain so it is tolerable. ? Heather in Calgary - Original Message - From: Janice To: transverse myelitis Sent: Saturday, March 21, 2009 3:15 PM Subject: [TMIC] This is Janice - yet again with another question.?? ? It has been 2 years since the onset of TM.?? From the top of my ribs to my toes I can not tell water temperature on my skin.? I have to be very careful with taking my showers.?? ?Do any of you have that??? I am wondering if it is something that will eventually go away or if it is something I will live with. ? Also, one improvement I have just noticed lately is the constant buzzing that I had in my legs as soon as feeling started coming back.?? Did you all have that and have any of you also lost it? ? Thanks again, Janice
Re: [TMIC] Re: How goes it??
Hey Frank, When you mess yourself up, you don't fool around.? I hope you still have that girlfriend to help you with those martini's.? We know you are an independent type, but at least for a little while, you may need a bit of help.? I hope you it's not too painful now, the worst should be over with. Hang in there, and a big hug, Barbara -Original Message- From: fr...@franksheldon.com fr...@franksheldon.com To: mother...@gmail.com Cc: tmic tmic-list@eskimo.com Sent: Fri, 20 Mar 2009 1:16 pm Subject: [TMIC] Re: How goes it?? Just wondering how things are going... Trudy, I thought I wrote an email before going to the hospital, so many days ago. I just was released, am home, and recouping from all the surgeries to my left hand, wrist, radius ulna (bones in forearm) and Elbow. Typing is very difficult so will write more tomorrow F
[TMIC] need help with rehab center recommendations in US
Hello all,? Our god-daughter, Monica,?works as an aide at Craig Hospital, which?exclusively treats?spinal cord and brain injuries?in the Denver, Co. area.? She called last night and told me about?one of her patients who is a paraplegic with no movement?in legs or toes, but has sensation.? She does not have a diagnosis.? She didn't say how strong the sensation was.? This occured from a flu that she couldn't shake.? Needless to say,??this lady?is very anxious since the doctors are telling her the same thing that we've all heard - that they can't tell her what her outcome will be, just do her therapy and see what comes.?? Monica didn't have too much information for me when she called, but will look at her chart tomorrow when she goes back to work.? She thinks this all started about 4 months ago, but doesn't know the progression from the flu to symptoms, etc.?? Why am I telling you all of this I hate saying this lady, but that's all?I know at this point.? Anyway,?her husband is in the military and got orders to transfer to Germany right before this occured.? He was able to?delay his deployment?for a short time, but will need to leave soon.? She doesn't know if she will be able to get good therapy once she leaves the country as a dependent, and of course, wants the best for herself.? I know as a military person it would be great, but possibly not as a dependent.?? She wants to know if anyone can recommend any rehab centers around the country.? Any area at this time will be considered, but she'll need to look into what her insurance will pay, if anything, and evaluate what she can do.? Please let me know if you have?any information about a center you've either been to or heard of and I'll pass it on.? From looking at the Craig Hospital website, it looks like a very good center.? I just know that they will be releasing her eventually and we all are scared when that happens. Thank you, and as always, big hugs, Barbara A in sunny CA (at least the sun is shining today and in mid 60's)?
Re: [TMIC] OPRAH - Montel with MS
Hello Candy, I watch Oprah today as well, and it was a really good show.? I highly recommend all of us watch it, whether MS or TM.? There is a good deal of information that we can all get out of it.? It reminded me of?the level of depression that goes hand in hand for all of us.? I didn't know though that lots of the medication had depression as a side effect, so I learned a little today. Hugs to all, Barbara A? -Original Message- From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, 17 Mar 2009 1:39 pm Subject: [TMIC] OPRAH - Montel with MS I'm watching Oprah and she has Montel on telling about MS. While some of don't have MS, so many of the symptoms of MS are the same as TM - the pain, depression, feelings, etc. While I'm not recording it today, I will tomorrow morning on another station. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] hello to all
Hello All, It seems that I've been bumped off list for a while. I know that this happens now and then, and it seemed like the list was very quiet again, so I decided to take a look at the archives. Well, to my surprise there was a lot of activity that I missed. I'd like to say WELCOME to our new family members - I hope that you feel the love that is on this site. You will soon know that we talk to each other about EVERYTHING here, even things that most of us don't even tell our own close friends or family members. They really wouldn't understand, although many try, they just don't since it isn't something that they are going through personally. Most of us lurked in the background for a bit before we introduced ourselves to the group. There are times when it is really busy and then it quiets down for a while. Like all other families we don't always agree, but we are very quick to come to the aid of each other, and share all that we have experienced with TM. To all others, please know that you are all in my thoughts daily. I don't send many messages, but think of you all each day and hope that those who are having difficulty are doing better. Has Jude had her surgery? I haven't seen anything about her, and think it would have been listed if she had it. Looks like my you are now subscribed message has arrived, so I'm alive on the TMIC once again, YEAH!!! Hugs to all, Barbara A **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1219957551x1201325337/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62)
Re: [TMIC] Aussie Members
Errol, Please check in if you can, we are thinking are worrying about you. In a message dated 2/14/2009 8:32:50 P.M. Pacific Standard Time, pieterheat...@shaw.ca writes: Gilly is fine and so is Shirley. Heather in Calgary - Original Message - From: _Jan Hargrove_ (mailto:jmh1...@sbcglobal.net) To: _tmic-list_ (mailto:tmic-list@eskimo.com) Sent: Saturday, February 14, 2009 4:21 PM Subject: [TMIC] Aussie Members Has anyone heard from our Aussie members since the fires hit Australia? My geography IQ of Australia is at least -100, thus I don't know if any of our membership lives in or near the areas of the fires. If any one hears, please pass the word on to the list. Thanks, janh **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=fe bemailfooterNO62)
Re: [TMIC] February birthdays
H A P P Y B I R T H D A Y T O A L L F E B R U A R Y B A B I E S!! Hugs to all, Barbara A Happy Birthday to you February babies!! janh Happy Birthday to the February kids! Hope it's a great one! Please send any additions or corrections to _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) . 2-1 Jeanne Rushton (_jrush...@columbiaenergyllc.com_ (mailto:jrush...@columbiaenergyllc.com) ) 2/2 Ursula (_uma...@t-online.de_ (mailto:uma...@t-online.de) ) 2/2 Lisa in TN (_lsim...@aol.com_ (mailto:lsim...@aol.com) ) 2-5 Tita in Delaware (_te...@flash.net_ (mailto:te...@flash.net) ) 2-6 Barbara Alma (_balmat...@aol.com_ (mailto:balmat...@aol.com) ) 2-7 Barbara in Texas (_babbsie1...@yahoo.com_ (mailto:babbsie1...@yahoo.com) ) 2-9 Frank (_ftrascr...@aol.com_ (mailto:ftrascr...@aol.com) ) 2/11 Mary (_mster...@yahoo.com_ (mailto:mster...@yahoo.com) ) 2-11 Deb Casey (_casey...@myway.com_ (mailto:casey...@myway.com) ) 2/15 Jill (_jillybean60...@yahoo.com_ (mailto:jillybean60...@yahoo.com) ) 02/16 David T. Gibson (_david-gib...@uiowa.edu_ (mailto:david-gib...@uiowa.edu) ) 2/16 Diane Aja (_diane...@comcast.net)(returned_ (mailto:diane...@comcast.net)(returned) ) 2-17 JOAN FINK (_mafi...@yahoo.com_ (mailto:mafi...@yahoo.com) ) 2-20 Norma (_dgti...@aol.com_ (mailto:dgti...@aol.com) ) 21/02 Phyllis Pollock (_pjpoll...@rogers.com_ (mailto:pjpoll...@rogers.com) ) 2/26 Patti - Michigan (_pjv1...@chartermi.net_ (mailto:pjv1...@chartermi.net) ) 2/27 Cindy (_rdavi...@san.rr.com_ (mailto:rdavi...@san.rr.com) ) **Great Deals on Dell Laptops. Starting at $499. (http://pr.atwola.com/promoclk/10075x1217883258x1201191827/aol?redir=http://www.dell.com/co ntent/products/features.aspx/laptops_great_deals#63;c=us%26cs=19%26l=en%26s=d hs%26#126;ck=anavml)
Re: [TMIC] OT Get Back Up
Todd, That was so inspirational and beautiful. He is so amazing and makes me feel like I better do something positive for myself and someone else today. He truly has taken a disability and created an ability to touch other people's lives in so many ways. It's great that he takes to the schools, as that is where he can make such a difference since kids seem to look at differences as being something to criticize and not embrace. Anyone wonder where they learn that from? Hugs to all, Barbara **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] OT Get Back Up
Yes Jeanne, I think kids do pay if are different, but so do adults. Heaven help the person, be it a child or adult that happens to be different if the child has never either been taught or exposed to anyone who is different. I remember as a child shopping with my mother and seeing a child who appeared to be what in those days we would call mentally retarded and asking my mother what happened to that child. My mother simply explained to me that God made all of us a little different, that none of us is exactly the same. That this child's brain works differently than mine, but that he still likes to play and do the same things I do, and we should treat him the same way as any other child. Then there are parents that tell the mother that it is ok for their child to ask any questions they may have and they'll be happy to try to answer. Those were powerful people. Then another time there had to be something that happened to me regarding somebody with a physical disability or I had a bad dream because I was scared to death of anyone with a wheelchair, or used a cane or crutches, etc. Go figure, looked what happened to me? Yikes, TM!!! I used to avoid like the plague anyone with those, I'd cross the street so I didn't get near them, and my poor great grandfather who ended up in a wheelchair, I thought he'd run me over for some odd reason. I wouldn't get into an elevator if anyone was in there with any of these. My mother couldn't get that idea out of my mind. I got over it way before I got TM though. Hugs, Barbara In a message dated 1/19/2009 3:29:34 P.M. Pacific Standard Time, jrush...@columbiaenergyllc.com writes: Good message Barbara. When kids veer off of to be a little bit different, they sure seem to pay for it, don't they? This man is such an inspiration that he just makes me cry for happy..hugs to you, too, and especially you, Todd, for sharing this with us all. Jeanne in Dayton ---Original Message--- From: _balmat...@aol.com_ (mailto:balmat...@aol.com) Date: 1/19/2009 4:31:59 PM To: _toddtm2...@sbcglobal.net_ (mailto:toddtm2...@sbcglobal.net) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] OT Get Back Up Todd, That was so inspirational and beautiful. He is so amazing and makes me feel like I better do something positive for myself and someone else today. He truly has taken a disability and created an ability to touch other people's lives in so many ways. It's great that he takes to the schools, as that is where he can make such a difference since kids seem to look at differences as being something to criticize and not embrace. Anyone wonder where they learn that from? Hugs to all, Barbara **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] OT- The Numbers-OT
Frank, Life has a way of changing, whether we want it to or like it, or not. Hugs, Barbara A In a message dated 1/15/2009 6:28:52 A.M. Pacific Standard Time, fr...@franksheldon.com writes: Brrr, It's 1 degree here in Freeport, ME I'm not going unless they get a lot more portapotties. Actually, I've given up my tickets, so will be home, 20 feet from my own toilet. To get philosophical... in the preceding chapters of my life I never worried how far the next potty was from me. I never wrote Have BM on my daily agenda. I never proclaimed, with Triumph, I just had a normal BM !! I wonder what the next chapter in my life holds??? take care, or prune juice F **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] OT- The Numbers-OT
Crowds.. I'm sorry, but for anyone with a mobility issue, being in a crowd can be a nightmare. Even if you are in a chair! If you walk, you get bumped around, and then you have to worry about balance issues. Sorry, but falling into somebody I don't know, and then landing on the dirty ground doesn't seem like fun. If in a chair, you see way too many butts, don't want to even think about how many butts you'd be looking at. So, if you really want to see the Inauguration, it will be on TV, where you can be nice and warm, have your snacks and drinks at your side, and your very own clean bathroom. If you want a crowd, you can have a party or go to one! That's my take! The only crowd that I purposely get involved in is when I decide to go to Disneyland or DisneyWorld. Otherwise, I avoid them like the plague. Take care and stay warm. Hugs to all, Barbara A In a message dated 1/14/2009 1:55:06 P.M. Pacific Standard Time, fr...@franksheldon.com writes: Dear Gang, Well, As you know, I received my invitation from the Inaugural Committee a while ago, then I learned about the numbers: Approx.. 2,000,000 people Approx.. 5,000 porta potties Therefore: 400 people to one potty The average visitation to a potty takes 4 minutes Therefore: 1600 minutes for everyone to go once So 1600 minutes divided by 60 minutes in an hour: 26.6 hours for everyone to visit once. I don't think I'm going Frank **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
[TMIC] OT: NO SISSY Friend
I really liked the sentiment of this message. If you don't like it, just delete it. Hugs to all, Barbara None of that Sissy Crap Are you tired of those sissy 'friendship' poems that always sound good, but never actually come close to reality? Well, here is a series of promises that actually speak of true friendship. You will see no cutesy little smiley faces on this card - Just the stone cold truth of our great friendship. 1. When you are sad --I will jump on the person who made you sad like a spider monkey jacked up on Mountain Dew!! 2. When you are blue -- I will try to dislodge whatever is choking you. 3. When you smile -- I will know you are plotting something that I must be involved in. 4. When you're scared -- we will high tail it out of here. 5. When you are worried -- I will tell you horrible stories about how much worse it could be until you quit whining, ya big baby 6. When you are confused -- I will use little words. 7. When you are sick --Stay away from me until you are well again. I don't want whatever you have. 8. When you fall -- I'll pick you up and dust you off-- After I laugh my butt off!! 9. This is my oath...I pledge it to the end. 'Why?' you may ask -- because you are my FRIEND! Friendship is like peeing in your pants Everyone can see it, But only you can feel the true warmth. Send this to 10 of your closest friends, Then get depressed because you can only think Of 4. Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. No virus found in this incoming message. Checked by AVG. Version: 7.5.524 / Virus Database: 270.6.0/1601 - Release Date: 8/8/2008 9:02 AM A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://ww w.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=DecemailfooterN O62) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62) FwNOSISSYSTUFF.dat Description: Binary data
[TMIC] about Rick
Group, Enough of this, this was Rick's son. And please remember that at the time that he needed to make the decision about his funeral, he did what he felt was appropriate for the occasion. The information that is coming out is helpful for the future, but doesn't help right now when feelings are pretty raw. Can we table this discussion for a little later, like, a month or longer... If you don't agree with me, I'm sorry, but let me know directly to my email so it doesn't clog up the board. Take care everyone and try to stay warm. Hugs to all, Barbara A In a message dated 1/8/2009 9:52:46 A.M. Pacific Standard Time, fr...@franksheldon.com writes: The death of one's grandchildren is an intense situation. Don't criticize, emphasize. Alton, Many people are talked into too much expenses, then have to beg borrow or steal in order to pay. The insurance tends to be a rip-off. Intense situations give the mortuary a lever to Up- grade the costs. People need to realize that they are being ripped off- most towns and cities have the ability to take care of the dead without any cost. hope that helps F **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215047751x1200957972/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] Check out YouTube - Il Divo - Amazing Grace
Hi Kim, Thank you for sharing, I just love this group. I remember when Simon Cowell first formed and they were on a TV show and was amazed by the harmony. They sound so beautiful and are very relaxing as well. I could listen to them for hours on end. Hugs to all, Barbara A In a message dated 12/28/2008 1:42:30 P.M. Pacific Standard Time, kimr1...@bellsouth.net writes: Wow is all I can say about this one, I pray it blesses you like it did me. Subject: Fw: Check out YouTube - Il Divo - Amazing Grace 4-1/2 minutes. The last 2-1/2 are awesome. _Click here: YouTube - Il Divo - Amazing Grace_ (http://www.youtube.com/watch?v=YtrnB4FZ-yc) **One site keeps you connected to all your email: AOL Mail, Gmail, and Yahoo Mail. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0025)
Re: [TMIC] Merry Christmas
M E R R Y C H R I S T M A S T O A L L A N D H A P P Y N E W Y E A R Hugs to all, Barbara A **One site keeps you connected to all your email: AOL Mail, Gmail, and Yahoo Mail. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0025)
Re: [TMIC] your thoughts?
Hi Candi, I wish you the best of luck with your LTD hearing. You have a right to all the paperwork out of your file at the insurance co. and should order it if you do not already have it. The insurance companies have no conscience at all. Their job is to get people off the disability roles, and I understand that they need to get the ones off that aren't really disabled, but not the ones that are. My LTD provider (Prudential) did the same as yours regarding sending a letter to my doctor requesting that he complete a form about my condition and what my capabilities were. They also stated on the letter to him that I had been working on a part-time basis and requested the stand, sit, walk, etc. questions. Now, my policy states that I am entitled to benefits if I am able to work on a full-time basis based on my training or what I can be trained to do, something like that, and on and on. I haven't worked at all since Dec. 2000, and they know it or they would not have been paying me. This was sent to my Neuro, and all previous correspondence was sent to PCP. The Neuro hadn't even asked me to come into his office for a visit before sending back the form to the insurance company stating that since I had been working part-time that I could work full-time now, after listing capabilities that don't match me at all. In the meantime, I had gone to a Physiatrist that the insurance co. set up for a review of my condition. This doc stated that I was not able to work. Then, since the insurance co. got the form back from my Neuro stating I could work full-time, they contacted their doc and asked him to reverse his decision and state that I could work, telling him that my doc must know my condition better than he does, and he did it. I was denied my coverage at that point. It took a couple of visits to the Neuro to get everything squared away with his paperwork and re-submitted. It also took me requesting copies of all my paperwork from the insurance co. in order to have ammunition for my appeal. There were about 3 reams of paper worth of copies they sent me, and most were triplicates of my early TM years, including hospital info. That was very depressing looking back at that stuff. I had to submit 2 appeals. They were tough, but I'm glad that I stuck with it and finally noticed what they did with the doc they hired. That was very underhanded and let them know it was wrong and not proper business practice. When I later told my husband he was really angry and felt we could have sued them for what they did, but I don't know. Especially since I may not have caught what they did, and could have possibly lost again and had the expense of a lawyer. If it went to a lawyer and I would win, they pay the lawyer. If I lose, I pay the lawyer. This was about 3 years ago, and I just got another letter with a form for a doctor's statement. I now have a new PCP and Neuro, so I hope all goes well. I have a HMO and the process is that I drop off the forms to the medical secretaries and they go back and forth to docs to be filled out, transcribed, approved, distributed and filed. I sent emails to them letting them know I am available for questions and the trouble that I had last time. I hope this works out without any snags. If we don't fight for our rights, who will do it for us?? Hugs to all, Barbara A **Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0010)
[TMIC] Fwd: OT: Fwd: Holiday Gift Cards Warning
From: Barbaraalma1 To: Barbaraalma1 BCC: Balmatmic Sent: 11/20/2008 8:59:26 P.M. Pacific Standard Time Subj: OT: Fwd: Holiday Gift Cards Warning =Subject: Holiday Gift Cards: BE CAREFUL A Special Note Regarding Holiday Gift Cards: BE CAREFUL This note was forwarded to us and we wanted to share the information with our members: I wanted to give everyone a heads up that if you tend to give gift cards around the holidays, you need to be careful that the cards will be honored after the holidays. Stores that are planning to close after Christmas are still selling t he cards through the holidays even though the cards will be worthless January 1. There is no law preventing them from doing this. On the contrary, it is referred to as 'Bankrupcy Planning.' Below is a partial list of stores that you need to be cautious about. Circuit City (filed Chapter 11) Ann Taylor - 117 stores nationwide closing Lane Bryant, Fashion Bug and Catherine's to close 150 stores nationwide Eddie Bauer to close 27 stores and more after January Cache will close all stores Talbots closing down specialty stores J. Jill closing all stores (owned by Talbots) Pacific Sunwear (also owned by Talbots) GAP closing 85 stores Footlocker closing 140 stores; more to close after January Wickes Furniture closing down Levitz closing down remaining stores Bombay closing remaining stores Zales closing down 82 stores and 105 afte r January Whitehall closing all stores Piercing Pagoda closing all stores Disney closing 98 stores and will close more after January Home Depot closing 15 stores Macys to close 9 stores after January Linens and Things closing all stores Movie Galley closing all stores Pep Boys closing 33 stores Sprint/Nextel closing 133 stores JC Penney closing a number of stores after January Ethan Allen closing down 12 stores Wilson Leather closing down all stores Sharper Image closing down all stores KB Toys closing 356 stores Lowes to close down some stores Dillard's to close some stores One site has it all. Your email accounts, your social networks, and the things you love. Try the new _AOL.com_ (http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dpicid=aolcom40va nityncid=emlcntaolcom0001) today! Color coding for safety: Windows Live Hotmail alerts you to suspicious email. _Sign up today._ (http://windowslive.com/Explore/Hotmail?ocid=TXT_TAGLM_WL_hotmail_acq_safety_112008) = One site has it all. Your email accounts, your social networks, and the things you love. Try the new _AOL.com_ (http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dpicid=aolcom40va nityncid=emlcntaolcom0001) today! **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.a twola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] Anybody else been there?
I totally agree with all the comments. I also know that if we didn't have this list to be able to communicate with about our feelings and vent occasionally, we would be a lot harder to live with, and not as well off mentally. Then again, my anti-depressants help a lot too, lol. Once in awhile I retreat into my shell and hibernate, usually in the winter when the pain levels increase, and the family isn't really happy that I don't care to do much outside of the house. It's just not fun going shopping or visiting if you aren't comfortable or good company, and easier to be inside my warm cocoon. Take care all, and keep warm. Hugs, Barbara A **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] California Fires
I'm in No. CA, so very safe here. Very glad to hear that all who have checked in are doing well. We had our share of fires up here, but not too close to our home. Earlier in the year and I had some breathing problems and it's very scary.The winds are the worst as they take control of the fire and man can only do so much to fight them. I will keep all of our So. Cal members and all the firefighters close in my thoughts. Hugs, Barbara A In a message dated 11/16/2008 12:55:16 P.M. Pacific Standard Time, [EMAIL PROTECTED] writes: I don't remember who all is in CA besides Barbara Alma and Deb Capen, but how is everyone doing out there? Anyone in danger of the fires there? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) _Get the Moviefone Toolbar_ (http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=http://toolbar.aol.com/moviefone/download.html?ncid=e mlcntusdown0001) . Showtimes, theaters, movie news more! **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x 1200812037/aol?redir=http://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
[TMIC] the smallest world
Thank you all for your responses to my message, and yes, I heard from Neil as well. I agree with what many said about the fact that it must have been destiny for the two of us to meet. She felt that she really needed some contact at that time and in some way, that her dad had sent me to her. It is sad that possibly, just possibly, had Erica or her dad contacted us that we may have been able to help them, but who knows. Sometimes no matter what others try to do to help, the end result doesn't change much. Very sad indeed. But, we made a contact and that is what is important. She is also trying to spread the word about TM. Take care all, Hugs, Barbara A (soon to be home in Auburn, CA where I'll try to reply to each of you) **AOL Search: Your one stop for directions, recipes and all other Holiday needs. Search Now. (http://pr.atwola.com/promoclk/10075x1212792382x1200798498/aol?redir=http://searchblog.aol.com/2008/11/04/happy-holidays-from -aol-search/?ncid=emlcntussear0001)
[TMIC] it's the smallest world
Hello list, We have just finished a 16 night Panama Canal Cruise, and I must say, that it is sure the easiest way for us to travel these days. We had a wonderful time, and the service that was given to me was just incredible. I felt like a pampered soul the entire time, and it sure is a wonderful feeling. Although I don't ask or require anywhere near the amount of help that was extended to me, it made me feel good to know that if I did need it, I would not need to worry that I would be able to still have a good time. We are now spending a few days in Orlando before returning to our home in No. CA. Today we met a lady named Erica, and when we were talking she asked if I had an accident since I was using the wheelchair. I have had a lot of spasms the past few days and not walking very well, even with my crutches. Anyway, when my husband told her that I hadn't had an accident but that it was caused by a virus, she immediately asked if I had Transverse Myelitis. When I said YES, her eyes welled up with tears. It was a real intense moment. Her father had gotten TM and it was a slowly progressing onset for him, and he had a very hard time getting a diagnosis. They thought he had Guillian-Barre (sp?). It took one and a half years to get the TM diagnosis, and he was in excruciating pain. Unfortunately, he just couldn't deal with it, the pain made him crazy. He didn't want to get involved with any support groups either and wouldn't go onto anti-depressants. He was one of the unlucky ones who didn't get any improvement. He ended up committing suicide to end his pain. This was a real bonding moment for the 3 of us. I can't tell you how much pain this woman and her family had gone through due to this. She's better now, but she says that her brother is still really a mess. I say this only because I want people to know how much TM affects us and those around us. We know how hard it is to try to be in a positive mood most of the time. When my pain gets unbearable to deal with in front of people, it's usually when my spasms are pretty bad, I excuse myself and go into another room and spend some time alone until it passes. I don't want anyone to have to see me like that anymore than necessary, and my medication usually makes it easier to deal with once it kicks in. It's generally when I've overdone it or have taken it off schedule (my fault), but still definitely not any fun. Erica has made a friendship with another TMer, and his name is Neil McNeil. I may not have spelled it correctly, but the name sounded familiar to me. Neil, if you are out there in TMIC land, please send me an email and let me know. Hugs to all, Barbara A from Auburn, CA **Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/10075x1212416248x1200771803/aol?redir=http://travel.aol.com/discount-travel?ncid=emlcntustrav0001)
Re: [TMIC] (no subject)
Although I am not sure if your doctor has more in mind or not, the Neti Pot is great. I have allergy induced asthma, and hate to take meds year around when I already take so much with my meds for my TM, so I only take my asthma stuff when needed. I am a proud Neti Pot user, and actually have gotten many to use it as well. We get a lot of pollen from our oak tree, and it seems to sit in my nose and throat and work it's way up into my sinuses. The Neti works so well, and you get some immediate relief. Even with a sinus infection, you get some relief right away. I don't know of any medication that will give you that. I highly recommend it, and hope it'll help you. GL and Hugs, Barbara A In a message dated 09/15/08 08:42:56 Pacific Daylight Time, LinLeftwi writes: In February I had my yearly MRI and it showed severe sinus problems. Everything is blocked. The ENT put me on Prednisone and an antibiotic. It cleared up, but this summer I am having a lot of problems again. I am back on the same regimen again. My family Doc said something about getting the sinuses irrigated. I had some tests done last week and am waiting to hear from him. I get worried because I was having a lot of sinus problems when I first got hit with TM 6 years ago. Over 5 years my sinuses were fine, now all of a sudden here I go again. I need to find out why. Just a little frustrated. Linda in Pa Pt...Have you heard the news? There's a new fashion blog, plus the latest fall trends and hair styles at StyleList.com.
[TMIC] HAPPY BROWNIES (mj)
For a while I have been using Happy Brownies made with marijuana to help me sleep at night when I get the heebie jeebies, fuzzy feelings, burning/freezing pain, spasms, or whatever seems to be keeping me awake. I get by pretty well during the day with my meds, but they don't seem to help as much at night. We just hadn't gotten a very good tasting brownie, however, I was getting kind of used to it. I needed a little something to eat afterwards and plenty to swallow it down. We have experimented with several different brands of mixes, but yesterday tried a recipe from one of my cookbooks. We were so surprised, as the butter came out tasting terrible, but the brownies were really good. I didn't even need anything afterwards. If anyone is interested in trying to make there own happy brownies, I'll be happy to forward the recipe to you. Hugs to all, Barbara A
[TMIC] Grace's Mystery ER show
Anyone who is unable to find the show on their cable should just call their cable company and ask if they carry the channel and if they do, which # it is. If you cannot get it in your area, many TV Networks allow you to download and watch some of their shows. This may be a possibility. Hugs to all, Barbara A
Re: [TMIC] Cataracts and STeroids
I agree about age category, I turned 57 in February, and just had my 9 yr TM anniversary on June 1. No, I didn't celebrate. But, funny thing bout June 1. It was my mom's birthday, I got engaged on June 1, and then TM. And, I missed the celebration for my mom's 70th bithday party. Not fair really since I had done almost all the planning. I could have done without the TM, but then I would not have met all of you wonderful folks. Have a good day and hugs to all. Barbara A in Auburn, CA **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] 19 year TM Anniversary
Hi Jim, I have to say that I don't do the poor me thing. I do, once in a great while, wish that I was in a body that didn't ache so much and have a little pity party. However, I've never wished my TM on another person and I know that there are always others out there that are in worse shape than myself. When I am having a pity party, I generally come onto TMIC and read some emails and get over it pretty quickly. I have to say that if I had to get something - that at least it was something where the people are so easy to get along with and the information that we are able to access from the TMIC is so valuable to all of us. It's like saying that we are sorry that somebody had to get TM but glad that they found TMIC. All thanks to you Jim. Big warm hugs to you, Barbara A **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [TMIC] Neurontin Pain-Buzzy
Hi Heather, I really hadn't ever been able to put the buzzy word to those feelings before, but it fits so well. I would use irritable, cranky, very touchy, and angry, but never buzzy! Sometimes it does feel like electrical shocks are happening, so buzzy is perfect. It's nice to be able to have another word to explain how my legs feel to somebody when they ask. Hugs to all, Barbara A **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Fwd: [TMIC] did you all see House? Gunny's response forwarded
OK Gunny, We finally get some show even mentioning TM and then they go about mentioning WRONG, BAD, LOUSY, etc. information. Now you tell me, which is better, no press or bad press?? One would think that on a show such as HOUSE, the info given would be researched and correct, or is that just too much to ask. I thought that was what shows like ER did. Then again, I don't watch ER, only have heard of it. Hugs to all, Barbara A Bgunny7682 writes: Your not missing anything kiddo. There are no antibiotic treatments for TM. Balmatmic writes: When I watched, I wondered also about the antibiotic treatment they were giving the patient when they suspected TM, as I have never heard of this treatment on the TMIC. Has anyone had antibiotics as a first course of treatment? **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [TMIC] Neurontin Pain
Sal, I think you are trying to find a solution across the board for pain, mobility, etc. that you think may have worked for you and have it work for everyone. Because the doc told you you'd never move doesn't mean that anyone that the doc told wouldn't walk will walk if they just will themselves to do so. That just isn't an answer that makes sense since we are all different with a different body chemistry, pain levels, injury levels, etc. Sadly, not all of us heal, even a little bit. Unfortunately, I am on a high dosage of Neurontin, and have tried to lower it a whole lot. I am determined to get it down by quite a bit, but I struggle and have struggled for about six months already to do so. My body goes through so much pain just trying to drop by 200 mg/day that I couldn't do it after trying the same level for 2 weeks. I suffered so much, my body couldn't handle it. I am now working at rate of 100mg/day lower, and that is for 4 weeks at a time. I am under a good deal of pain almost around the clock, but have lowered it by 400mg/day now. I only do this because I am determined to lower my dosage if I can. I don't like the level of pain that I am in, as it was where I had the edge off most of the time previously. I never took enough so I wouldn't have any pain, just to take the edge off. I now am having a rough time sleeping many nights as it's always worse in the middle of the night. Again, I'm happy that you have found something that has worked for you. We are all finding our way through this illness the best way we can, and trying to manage our pain in whatever works for us. We learn from each other, but have to be careful and just share what works for us, but not make judgement about what others do. Hugs to all, Barbara A **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [TMIC] Thanks to the list/understanding TM
Don't get me wrong, my husband Pete is supportive and very helpful. Heck, I've kind of got it made these days. He just retired, and makes my coffee and breakfast, and at night, brings me my capucchino at night. Not too shabby. However, I feel that all of us can benefit from some therapy dealing with something like this. That's not something he feels is necessary. He rarely vents, but it's very apparent, especially now that he's retired, that our lives are not what we expected and planned what they would have been like when retirement came around. I hibernate in the winter, and I live in California where it doesn't usually get below 50 degrees during the day. The cold feels like it goes to my bones, which I know isn't the way it is, it's the nerves that are reacting to it. They get that way even though it's not cold in the house. I think it's the barometric pressure that actually affects them. He hates that I hardly will go out of the house, so he gets cranky sometimes. That is all he usually does. He probably mutters other things that I don't hear too. I hope he does, he has to get it out sometime. I just wish that he'd talk to somebody about his feelings. It's just not something he was exposed to growing up, so he's not comfortable doing it with other people. Hugs, Barbara A **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [TMIC] Thanks to the list/understanding TM
My Dear Friend Sandy, I think that you are a wonderful partner for Terry. One of the things that makes you this great partner is that you have gotten involved in being a part this group to learn about all the aspects that we TM'ers deal with on a daily basis. That has given you a great deal of insight and I would think has made it easier for you to relate to his issues as a normal part of this. Even though we are all different, in so many ways, we have so many common complaints/problems/residuals, etc. This doesn't in any way mean that you weren't committed to your marriage and wouldn't have done the same thing that you are already doing to make your lives as good as you can now. I think it just means that you have more understanding of what kind of things are going on and that you can also give him feedback from the group. I certainly wish I could get my husband Pete to read some of the messages. He won't, so I stopped pushing. I think it's like therapy, it is for me anyway. I think there is a lot of good information on this site for caretakers. Hugs to you and Terry, Barbara **It's Tax Time! Get tips, forms and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolcmp0030002850)
Re: [TMIC] Traveling with TM
Hi Heather, I absolutely agree. I give the airline all the information I can that will help me, from the time that I will get to the airport until the time that I will get off of the plane. I travel with my own manual wheelchair, as I generally cannot walk more than a block with my crutches. If we have a connection, I also ask for my chair to be brought up to the gate in between each flight. I have had my chair go to other destinations or not get off the first plane two times, and it's not fun working out the details of getting a temporary chair at your destination, especially if you arrive late at night. The last time they had to break one of the airlines chairs to be able to get it in my rental car because it had a pole on it, and extremely uncomfortable. Hugs to all, Barbara A **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
Re: [TMIC] Traveling with TM
Yikes Cindy, You certainly wouldn't want to crawl on the airlines floor! You've got very good suggestions for people! Sorry to copy what you had written, I hadn't realized that so much had been added in the short time I had been off the list tonight. Wow. This list has been jumping. Traveling is a great topic to discuss, as so many TM'ers have just stopped doing any of it - thinking it would be impossible. It's not for most of us, but it does really take a lot of extra planning and research to make it a successful adventure. I say adventure, as it really is an adventure. Things are not the same as it once was, but it is doable. Heck, life is to be lived as best as we can. If it means going to visit relatives or going to someplace you have wanted to go to for a vacation, whatever it may be. If at all possible, JUST GO! It may be a short drive out to dinner. You owe it to yourself to give yourself permission to have as full of a life as you can. Hugs, Barbara A **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
[TMIC] stress and the effects on our bodies with TM!!
There are so many people who have written in about the possibility of stress being a cause of their TM, and I can add my own case to that list as well. I had been in the process of changing positions and locations at work, same boss, although she got a very large promotion. Things were very stressful. There was a lot that I needed to learn and I also had to help her with so much more of her duties that were changing. It was very exciting, yet grueling. Actually, after the first day of the new job I went home, later went to bed, rolled over to kiss my husband good-night, and the pain in my back started. Within 15 minutes, I couldn't stand. Paralyzed from the waist down at that time, yet walking wounded today. However, we must keep in mind that it is as important, if not more important, to remember how our bodies react to stress once we have TM. From reading emails for 8 years now, I don't ever remember reading one message stating that they are not affected at all by stress. It can really make big problems for us. It certainly weakens me. Hugs to all, Barbara A **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!1
Patti and Pam, Thank you so much for keeping us up to date on our Jude. After reading what you have both written, it seems that there may still be some hope for Jude to make it through this. I know I'll keep her in my thoughts and prayers. It still amazes me how people who are there to care for those in need DO NOT DO THEIR JOBS!! Or, do not do them properly. You hear about it all the time on the news or in magazines. Boy, this really hits home for us though. We now know first hand why so many that go into the skilled nursing facilities do not ever make it back home again. Lack of proper care runs rampant. This is really a wake-up call for all of us. We have got to really keep the eyes open if any of us, or anyone that we care about is ever put into the situation of needing some care like this. Be well everyone, and hugs to all, Barbara A in Auburn, CA **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] marinol use
Hi Frank, Can you tell us why you made the switch from the Marinol to the Sativex, considering the cost? Are either covered by your insurance? Thanks for your info. Hugs, Barbara A **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301)
[TMIC] gel cushion
Has anyone ever ordered this or something similiar?? I'd be interested in your comments. Thanks, Barbara A _Click here: Orthopedic Cushion and pillows from Dr. Leonard's Healthcare_ (http://support-mobility.drleonards.com/Support-Mobility/Cushions-Pillows/Ortho pedic-Gel-Cushion/17989.cfm) **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
Re: [TMIC] gel cushion
Thanks for all of your responses. There were too many to answer separately, so am sending one mass email, and hope nobody is offended by not getting a personal one. I think there may be some others who may be interested in this info as well. I am sorry but I should have said that I needed the cushion not for wheelchair sitting, but for computer or other chair sitting. When I sit for any length of time, my back and buttocks become very sore. Although I don't see how it should bother my buttocks as I have plenty of padding there :( , it does! I have a foam cushion for my wheelchair that I use for distance or if my body is very tired and it doesn't seem to give me the pain issues. I also had a foam cushion like the one that I showed the link to, which was fine while it lasted, but kind of broke up fairly quickly. One of those TV purchases, it had a handle on it and it was on a slant, but the same configuration as this. I saw this and figured this may be a good solution for others as well. This cushion can be useful for anyone who does a lot of sitting. As always, this group is a great resource of information and it's great that we can bounce things off each other like this. Hugs to all, Barbara A **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
Re: [TMIC] Pray for Jude
Hi Rick, Is it possible that you mean C-Diff? A gut issue where the bad bacteria is dominant over the good?? That's the analogy that I use anyway. I had it 2 years ago, and per my MD, may never quite get rid of it so need to make sure I continue to use probiotics. It takes a good while before you have any relief at all from it, and it is generally caused by too many antibiotics which kill off the good, bad and the ugly. Keep praying all! Hugs to all, Barbara A **The year's hottest artists on the red carpet at the Grammy Awards. Go to AOL Music. (http://music.aol.com/grammys?NCID=aolcmp0030002565)
[TMIC] tornado affected areas-ck in please
Will those of you who live in the tornado affected areas please check in. I was staying up late watching the election news and saw that there has been so much damage, bodily injury and fatalities in areas where I know we have people in our group. Thank you. Warm hugs, Barbara A in Auburn, CA where we are fortunate that it is only cold **Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300025 48)
Re: [TMIC] TMA So. California Symposium
I want to thank Cindy and Debbie for all of your efforts with the So Cal Symposium. You ladies ROCK!!! I am really looking forward to it, as well as seeing both of you again. Hugs, Barbara A **Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489
