[TMIC] Happy Birthday
HAPPY BIRTHDAY to all July TM youngsters! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] March Birthdays
Happy Birthday to all you March TMers! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara H. barbara...@gmail.com To: TMIC tmic-list@eskimo.com Sent: Tuesday, March 1, 2011 12:04:47 AM Subject: [TMIC] March Birthdays Happy Birthday to the March kids! And we remember long time TMIC member Mike Hammond, whose birthday was 3/8, who passed away not too long ago. 3-3 Marsha Scholes ( marshab...@comcast.net ) 03.05. Bettie Imus ( bettie5...@aol.com ) 3-7 Sue Mattis ( bobsue6...@adelphia.net ) 3-15 Sandra Melville ( luth...@comcast.net ) 3-17 Joy S. ( joyst...@aol.com ) 3/24 john h (JOHNLOVESKARAOKE) 3/26 Jane Elrod ( celr...@aol.com ) 3/30 Gary ( gbthomas8...@sbcglobal.net ) 3-31 Jan H ( jmh1...@sbcglobal.net )
Re: [TMIC] February Birthdays
HAPPY BIRTHDAY ALL YOU FEBRUARY TM brothers and sisters!Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile.Prayers and thoughts for you and yours,Candy K.- Original Message -From: "L T CHERPESKI" cherp...@msn.comTo: "transverse myelitis" tmic-list@eskimo.com, "john snodgrass" jcs...@yahoo.comSent: Tuesday, February 1, 2011 10:17:41 PMSubject: Re: [TMIC] February Birthdays HAPPY BIRTHDAY ALL! P.S. love the birthday quotes - Original Message - From: john snodgrass To: transverse myelitis Sent: Tuesday, February 01, 2011 5:44 PM Subject: RE: [TMIC] February Birthdays yeah happy brethday yall. that second one applies to me: Inside every older person is a younger person wondering what the hell happened ~ Cora Harvey Armstrong--- On Tue, 2/1/11, Carol E snow121...@hotmail.com wrote: From: Carol E snow121...@hotmail.comSubject: RE: [TMIC] February BirthdaysTo: barbara...@gmail.com, tmic-list@eskimo.com, jharpe...@aol.comDate: Tuesday, February 1, 2011, 7:38 PM Happy Birthday to all you February kids.My favorite birthday quotes:You know you are getting old when the candles cost more than the cake ~ Bob Hope Inside every older person is a younger person wondering what the hell happened ~ Cora Harvey Armstrong I moved on 1/1/11. A move date I am not likely to forget. Carol in Logansport, IN (formerly from Addison, IL) Date: Mon, 31 Jan 2011 23:52:25 -0500From: barbara...@gmail.comTo: tmic-list@eskimo.com; jharpe...@aol.comSubject: [TMIC] February BirthdaysHappy Birthday to the February kids!Please send any additions or corrections to:2-1 Jeanne Rushton (jrush...@columbiaenergyllc.com)2/2 Ursula (uma...@t-online.de)2/2 Lisa in TN (lsim...@aol.com)2-5 Tita in Delaware (te...@flash.net ) 2-6 Barbara Alma (balmat...@aol.com) 2-7 Barbara in Texas (babbsie1...@yahoo.com)2-9 Frank (ftrascr...@aol.com)2/11 Mary (mster...@yahoo.com )2-11 Deb Casey (casey...@myway.com)2/15 Jill (jillybean60...@yahoo.com)2-17 JOAN FINK (2-17 mafi...@yahoo.com)2-20 Norma (dgti...@aol.com)2/26 Patti - Michigan (pjv1...@chartermi.net)2/27 Cindy (rdavi...@san.rr.com)
[TMIC] Fwd: National Call-in Day for Complex Rehab Technology
Attached is an email I received regarding complex rehab and Congress that I'm sure would benefit many of us! Mark your calendars! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Forwarded Message - From: New Mobility i...@newmobility.com To: cakal...@embarqmail.com Sent: Tuesday, February 1, 2011 7:04:12 PM Subject: National Call-in Day for Complex Rehab Technology Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Forwarded Message - From: New Mobility i...@newmobility.com To: cakal...@embarqmail.com Sent: Tuesday, February 1, 2011 7:04:12 PM Subject: National Call-in Day for Complex Rehab Technology Do you want to make a difference? Join with thousands of other concerned citizens to help assure access for people with disabilities to the Complex Rehab Technology they require. Mark the date! * Tell your clients, patients, family, friends, colleagues, and workmates. * Tell anyone else you know who might feel that Americans with disabilities need access to the technology that improves their function, health and enhances the quality of their lives. * Tell them that, for this initiative to be successful, each of them needs to call their Members of Congress on February 16 . * Tell them to let their Members of Congress know they should support legislation to establish a Separate Benefit Category for Complex Rehab Technology under Medicare . We are asking Congress to create a separate CRT benefit category under the Medicare program. This would include the elimination of Medicare's In the Home restriction for CRT products as well as the requirements laid out by the disability community in the document below. Our objective is to improve access for people of all ages, whether covered by Medicare, Medicaid or private insurance. ___ Go to CELAadvocacy.org - Register to make a difference. For the hundreds of you who have alredy registered, thank you. You will receive your information packet within the next 2 weeks . Download an easier-to-read, printer friendly copy of this document Ensuring Consumer Access to Complex Rehab Technology Requirements for Maximizing Outcomes Complex Rehab Technology (CRT) products are defined as medically necessary, individually configured devices that require evaluation, configuration, fitting, adjustment or programming. Examples of CRT include individually configured manual wheelchair systems, power wheelchair systems, adaptive seating systems, alternative positioning systems and other mobility devices. These products and services are designed to meet the specific and unique medical, physical, and functional needs of an individual with a primary diagnosis resulting from a congenital disorder, progressive or degenerative neuromuscular disease, or from certain types of injury or trauma. CRT is essential for the health and well-being of people with disabilities who require the equipment and services and for their caregivers. The proper access to and provision of CRT products and services is critical for the independence, well-being, and ability of people with disabilities to live, attend school, work, worship and participate in their communities. To ensure there is appropriate access, the following requirements must be incorporated into all applicable policies and practices: • Consumers require a choice of appropriate quality equipment and services and the opportunity for input during the evaluation, selection, and procurement processes. • Consumers require access to a thorough evaluation by qualified clinicians and suppliers. • Consumers require transparency in the funding process and associated decisions, including an option for the consumer to provide supplementary funding above available allowable payment amounts. • Consumers require adequate customization, integration, fitting, adjustment, and training along with appropriate post-delivery maintenance and timely repair. • Consumers require that clinicians and suppliers be held accountable to appropriate quality and service standards. • Consumers require responsiveness from clinicians, suppliers, manufacturers, and payers along with timely complaint resolution and consumer recourse. • Consumers require that physicians, case managers, social workers, discharge planners, and other referral sources be provided a clear
Re: [TMIC] January Birthdays
HAPPY BIRTHDAY AND BEST WISHES TO ALL JANUARY TMers! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara H. barbara...@gmail.com To: TMIC tmic-list@eskimo.com, jharpe...@aol.com Sent: Saturday, January 1, 2011 1:41:18 AM Subject: [TMIC] January Birthdays Happy Birthday and Best wishes for the New Year! Please send any additions or corrections to tmic-list@eskimo.com . 1- 7 Lauren ( sugal...@adelphia.net ) 1/8 Nancy Williams ( willj...@aol.com ) 1-8 Sandi ( sam...@fidmail.com ) 1/9 Julienne ( julesin...@aol.com ) 1/13 Debi ( brade...@hotmail.com ) 1-17 Jenna Stentz ( jkste...@yahoo.com ) 1/20 Kay Cole ( k...@cole.gen.nz ) 1-21 Blaine Frye ( xring...@mwt.net ) 1/21 Carol Easterday snow121...@hotmail.com 1/23 Grace ( grace...@gmail.com ) 1-27 Pat S. ( w2sm...@aol.com ) 1-28 Holly ( r...@aol.com ) 1-28 Sally ( thenavigato...@aol.com )
Re: [TMIC] Remember Me? What's going on?
Happy New Year to you Jude and all fellow TMers! May the New Year bring blessings to all and especially you Jude! May we all have a pain-free year! And MY greatest hope of all is that this is the year of discovery that will wipe out the horrible disease! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Jude Hoops heyjude48...@aol.com To: tmic-list@eskimo.com Sent: Friday, December 31, 2010 8:33:39 AM Subject: [TMIC] Remember Me? What's going on? Hi All, Happiest New Year to everyone. Mine is starting out basically the same old thing...bed sores, and all that crap. I lost my address book when I changed computers, UGH, and must start over, so if anyone is interested in Emailing me, do so! That way I can save your addy, (I think) and we can Email back and forth. I would like to include special people, but am afraid of leaving someone out without my book, so those of you who are my special friends, consider yourselves “Happy New Year’d” and Email me please. My love to all on the List, Your good=est friend, Jude
[TMIC] Stem Cell Story Walking
Remarkable story regarding stem cells! http://napervillesun.suntimes.com/2859641-417/orr-grekos-progress-bill-doctor.html Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Walking assistance
Sorry guys gals - we've won one lottery and I'm afraid we are in that class of only one lottery per person and it had to be TM! Only 1 to 5 in a MILLION ever contract TM! Those are lottery odds! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: Akua a...@artfarm.com, tmic-list@eskimo.com Sent: Wednesday, December 15, 2010 10:18:21 AM Subject: RE: [TMIC] Walking assistance Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: Akua a...@artfarm.com, tmic-list@eskimo.com Sent: Wednesday, December 15, 2010 10:18:21 AM Subject: RE: [TMIC] Walking assistance You are so right, Akua. Winning the lottery would solve a lot of our problems. Financial ones at least. Patti - Wisconsin From: Akua [mailto:a...@artfarm.com] Sent: Tuesday, December 14, 2010 6:53 PM To: tmic-list@eskimo.com Subject: [TMIC] Walking assistance Honda's Asimo robot was taught how to walk like a human, and now its technology is returning the favor. The Japanese mega-corp has two walking exoskeletons based on Asimo research that assist humans in walking. The Bodyweight Support Assist exoskeleton is a set of thin legs attached to a seat. Users sit on the seat and slip their feet into shoes on the robotic legs. This system supports bodyweight to assist people in walking and moving up and down steps. The other, Stride Management Assist , is a brace worn around the hips and thighs that provides added strength when flexing that joint. It has been shown to increase efficiency in walking and other daily activities. It's currently under development and being tested by 130 patients in the field. Both devices may prove to be valuable tools in helping the elderly maintain their mobility, assisting the disabled, and easing the stress on physical laborers. Check out the Honda exoskeletons in the video clips below. Walking like a robot looks pretty natural. It's unclear how quickly Honda will be able to bring these exoskeletons to market. The http://singularityhub.com/2010/09/13/hondas-exoskeletons-help-you-walk-like-asimo-video/ So now there are 5! Walk aides. If you have $20,000 grand you're set. I however, need to win the lottery. --
Re: [TMIC] OT - Q A JOKES ONE LINERS.
Bernie Thanks I needed that! I'm still wiping my eyes! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Bernie bpe...@austin.rr.com To: Bernard Pelow bpe...@austin.rr.com Sent: Thursday, December 9, 2010 9:46:44 PM Subject: [TMIC] OT - Q A JOKES ONE LINERS. Q A JOKES ONE LINERS. Q: Why don't you let blondes take coffee breaks? A: Because it takes too long to retrain them. Q: Why is there no such organization as Chocoholics Anonymous? A: Because no one wants to quit. Q: What do you do if you see someone having a seizure in your bath tub? A: Throw in a load of laundry. Q: How do you kill a blonde? A: Put a 'scratch 'n sniff' sticker at the bottom of a pool. My ex-wife was a great housekeeper. She divorced me and kept the house... Q: Did you hear about the restaurant on the moon? A: The food is terrific, but there's no atmosphere. A husband explains to the guys at the bar. Do you know why I left her? She started to use four-letter words like, 'Find work!' Your mother is so fat she has to use a boomerang to put on a belt... Q: How do you get holy water? A: Boil the hell out of it. Q: What did the fish say when it hit a concrete wall? A: Dam! Q: What do Eskimos get from sitting on the ice too long? A: Polaroids. Q: What do you call a boomerang that doesn't work? A: A stick. Q: What do you call Santa's helpers? A: Subordinate Clauses. Q: What do you call four bullfighters in quicksand? A: Quatro sinko. Q: What do you get from a pampered cow? A: Spoiled milk. The best way to keep kids at home is to make the home a pleasant atmosphere... and let the air out of their tires. Q: What do you get when you cross a snowman with a vampire? A: Frostbite. Q: What lies at the bottom of the ocean and twitches? A: A nervous wreck. Q: Where do you find a dog with no legs? A: Right where you left him. Q: Why do gorillas have big nostrils? A: Because they have big fingers If a mute swears, does his mother wash his hands with soap? Q: Why don't blind people like to sky dive? A: Because it scares the hell out of the dog. Q: What is the difference between a Harley and a Hoover? A: The location of the dirt bag. Q: Why does a pilgrim's pants always fall down? A: Because they wear their belt buckle on their hat. Q: What's the difference between a bad golfer and a bad skydiver? A: A bad golfer goes, WHACK! Damn. A bad skydiver goes, Damn. WHACK! Q: What do you call a man with a car on his head? A: Jack Q: How do you catch a unique rabbit? A: Unique up on it! Q: How do you catch a tame rabbit? A: Tame way, unique up on it! Q: What do you call skydiving lawyers? A: Skeet. Q: What goes clop, clop, clop, bang, bang, clop, clop, clop? A: An Amish drive-by shooting. Real women don't have hot flashes, they have power surges... Get a new car for your wife. it'll be a great trade...
Re: [TMIC] Meds
I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
Fwd: [TMIC] LTD IME - HELP
I have a lawyer. I have been fighting the LTD insurance company for 31 months. They cut me off with just a Nurse examiner determining that I could work. Everyone, except those on life support, could be deemed able to “work”. On discovery health channel, there’s a woman wheelchair bound with only limited movement of her arms that has a reality series – she is a quad, paralyzed pregnant, gave birth, and then several years later divorced. The reality show is showing her life! That’s a job – she’s working! Allen Rucker is a writer – he’s working. Me – I don’t expect any offers for a reality show nor am I a writer. I’d make a great mattress tester or a recliner tester. I could also test anything that would help my hands not to cramp up, or my muscles spasm. However, I don’t know of any of these jobs. Yes I could answer phones but who would employ someone who needs to rest as much as they’d work, who they couldn’t depend on to come in on time or as scheduled due to complications of TM or even the TM fatigue, who’d have problems with bowel and bladder and who’d cause messes for others to clean up? These are just a few problems that would be faced by employing someone with moderate TM paralysis. I plan to ask the Dr. if he would employ someone like me with just the above problem and then pay me full pay for half or less than half expected work performance. If he won’t hire me, who would? Therefore, a sustainable life paying job is something I can’t work at nor maintain on any permanent basis! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: PAMELA S subers...@msn.com To: cakal...@embarqmail.com, TMC Group tmic-list@eskimo.com Sent: Monday, December 6, 2010 11:54:27 PM Subject: RE: [TMIC] LTD IME - HELP The majority of people I've known who see an IME receive a decision that they are perfectly capable of working full time unless they are obviously incapacitatedd in a wheel chair. They work for the insurance company. I'm a little cynical on the subject. Talk to an attorney. Date: Fri, 3 Dec 2010 20:20:14 -0500 From: cakal...@embarqmail.com To: tmic-list@eskimo.com Subject: Re: [TMIC] LTD IME - HELP An IME is an Independent Medical Exam carried out by a doctor paid by the insurance usually! Which makes Independent a REAL LAUGH! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Friday, December 3, 2010 8:05:32 PM Subject: Re: [TMIC] LTD IME - HELP I wish I knew what an IME was--surely not MRI? I really feel for the paper'legal problems you are having. sounds like the Neuro may not be a real Neuro at all! I managed to get thru SSDI and it only took six months. I know I am lucky because others have been fighting for a year or more and still waiting. And their condition is the same. I was prepared to get a lawyer and fight but it wasn't necessary. Wish I could help, we have enough problems without rip off insurance co.s and neuros. Where I live, I can't find a neuro who has ever had a TM patient. Stand Strong. On Thu, Dec 2, 2010 at 7:26 AM, CANDIS KALLEY cakal...@embarqmail.com wrote: After 31 months, I'm finally scheduled for an IME for my LTD on the 16th of this month! My question is for anyone who has gone through an IME. What can I expect? This NEURO assigned for the IME is board certified BUT he owns his own Neuro Center which does nothing but Workers Comp and other insurance Independent neuro exams - LOL! While he attended college in some neuro fields, I can't find where he received a degree in neurology! He did, however, attended several months of training for insurance medical examinations and receive creditials! This is a BIG case with almost $50,000 past due from Insurance and another $60,000 to the end of the end of LTD. Warning for all you newbies - if you have STD/LTD through your employers, after 2 years the insurance company will TRY to discontinue payments due to a law for mental cases! That law does not apply for physcial conditions EVEN though the insurance companies will do anything they can to NOT pay! At the beginning, I suggest that you look up a GOOD LTD lawyer and call to be prepared for problems especially after 2 years! Laws are changing all the time and the insurance Also, TELL your doctor not to send any papers to ANY ONE without telling you and letting you review BEFORE sending out the papers! Have a BIG note put on your case file to that effect! MY Neuro answered papers
Re: [TMIC] Meds
I tried the Amantadine 100 mgm AM PM with not affect. I've given up on trying to fight the fatigue! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Linda Egli le...@sbcglobal.net To: tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 10:19:41 AM Subject: Re: [TMIC] Meds Provigil was the first drug I was given for severe fatigue in 1994 (when I was first dx) it did nothing but keep me awake about 20 hours a day. I take Amantadine 100 mgm AM PM, it has been the only thing that helps. If I am having one of my not so good days nothing helps. Linda E. East Texas From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Tue, December 7, 2010 6:28:11 AM Subject: Re: [TMIC] Meds I have tried provigil with no affect! I have yet to find ANYTHING to help with the fatique! If anyone knows of anything to help with fatique I'd also like to know! I've tried the vitamins and suppliments that helped BEFORE TM with no help with the fatique! The TM fatique is horrible! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: jack...@att.blackberry.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 12:01:58 AM Subject: [TMIC] Meds Hello - I am taking baclofen and topamax from nero dr. Other dr suggested provigil. Ins does not cover very costly! Anyone on this - that could tell me if it helps with fatigue or your experience with it. Thanks. Sent via BlackBerry by ATT
Re: [TMIC] Fatigue
Regina, I think that each and everyone of us understands about the fatigue. As I've said, I've tried so many things - old remedies that I used before TM that would boast me up to do all my own house repairs, house cleaning, laundry, yard work while working 40 to 70 hours a week. New remedies as listed on here, what Dr.Oz says, anything reported to help boost energy! All to no avail in conquerng TM fatigue! I've come to the conclusion that fatigue is a TM complication just as are muscle spasms cramping up, memory loss, strength loss, mobilty loss and the depression that comes with the TM and the loss of a life as we have known it! As I've said, if anyone has a fool proof suggestion, please post. I'm sure we all would like to know! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Regina Rummel regina...@sbcglobal.net To: tmic-list@eskimo.com Sent: Tuesday, December 7, 2010 11:57:22 AM Subject: [TMIC] Fatigue Hi everybody, I just read the post I sent this morning and must apologize for it. It's more depressing than I meant it to be. Surely, there is lots we can do to help with fatigue. Seriously, I'm sorry. R
Fwd: [TMIC] Med Question
Patti I also have the pads that fit completely over the bed, the rubber pants and all the others. I also have an ileostomy - I had to have my colon removed over 35 years ago - so I have to wear a bag on my lower abdomen that drains constantly. I have few problems with the ileostomy it's the appliances - some don't even last a day before they fall apart! The ileostomy is good in some ways because I don't have the usual BM problems of other TMers. I started using the bed pads 4 years before the TM because of the ileostomy applance problems. I can't wear the rubber pants except to go out in because I develop bad cases of yeast infections nor the pads all the time due to yeast! I have about 4 pads for the bed and about 10 for chairs and such! A mop is always around also! TM has really cut into my social life - not only getting out and around but because of the bladder problems and the yeast infections! OH FYI - old fashioned yeast infection fighter - use non-flavored original yogurt on an inserted tampon! SORRY GUYS! The GREEK yogurt seems to work the best! That has been a salvation for me! It works within a day or 2! The trouble is I never feel the burning or pain, I have to judge by a rash! I always keep the yogurt on hand just in case! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Saturday, December 4, 2010 11:24:31 AM Subject: RE: [TMIC] Med Question Candis thanks for responding so quickly. Right now I am only taking 300mg at night. My doctor said he may have to increase it sometime in the future. I did notice I slept very well last night. I did have to get up at one point to go potty but went right back to sleep. The nighttime bladder can be a real problem. I found a waterproof pad that fits across my whole bed so if an accident happens I don’t have to change the whole bed, just throw the pad in the washing machine and dryer. Also, at another web site I found they have a rubber pants that is completely waterproof. I wear that over my overnight pad and in the morning there is no mess. Also, I purchased regular underpants that have just a rubber crotch that I can wear during the day and if I don’t get to the bathroom soon enough, at least I don’t have to change clothes. I agree that TM is horrible in so many ways. I can handle the pain, etc., it is the bladder problems that really gets me down. I guess you come into the world wearing diapers, and we go out the same. Have a Merry Christmas Candis. Patti - Wisconsin From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Saturday, December 04, 2010 9:56 AM To: tmic-list Subject: Re: [TMIC] Med Question Patti, I've been on gabapentin for awhile now. It does seem to help with the cold/burning in the feet along with several other things. It doesn't however take everything completely away all the time or even sometimes! There doesn't seem to be anything that does that! TM is worst than the weather in that if you don't like it stick around it can get worse! The gabapentin does seem to make me more drowsy no matter when or how I take it! I take 300 mg 3X daily! To prevent even worse afternoons, I take 300 mg in a.m. and 600 mg at bedtime! I must admit that the night sleep seems to be better! Within 30 minutes, I'm fast asleep and usually sleep 7 hrs straight thru! Sometimes this is bad because the bladder relaxes too much and in the morning I have to change the bed! TM in a way takes us all back to a 2nd childhood - learning to walk, toddling and falling, wearing diapers, changing clothes 2 or 3X daily, and changing beding in the morning! If it wasn't for all the pain, I'd feel like a 1 year old! Always wanted to do it over again but I had imagined starting back in the teens - I'd give TM up in heartbeat for a REAL BAD case of acne anyday! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: TMIC-LIST@eskimo.com Sent: Saturday, December 4, 2010 10:39:58 AM Subject: [TMIC] Med Question On Thursday I saw a new doctor, a physiatrist (sp), that my neuro recommended. I am very impressed with him and his care which was very thorough. When I mentioned my freezing/burning and pain n my feet, he gave me a script for gabapentin. My previous neuro always said there was nothing I could take. I know many of who have mentioned it previously. I took my first capsule last night when I went to bed. This morning I feel so groggy
Re: [TMIC] LTD IME - HELP
An IME is an Independent Medical Exam carried out by a doctor paid by the insurance usually! Which makes Independent a REAL LAUGH! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Friday, December 3, 2010 8:05:32 PM Subject: Re: [TMIC] LTD IME - HELP I wish I knew what an IME was--surely not MRI? I really feel for the paper'legal problems you are having. sounds like the Neuro may not be a real Neuro at all! I managed to get thru SSDI and it only took six months. I know I am lucky because others have been fighting for a year or more and still waiting. And their condition is the same. I was prepared to get a lawyer and fight but it wasn't necessary. Wish I could help, we have enough problems without rip off insurance co.s and neuros. Where I live, I can't find a neuro who has ever had a TM patient. Stand Strong. On Thu, Dec 2, 2010 at 7:26 AM, CANDIS KALLEY cakal...@embarqmail.com wrote: After 31 months, I'm finally scheduled for an IME for my LTD on the 16th of this month! My question is for anyone who has gone through an IME. What can I expect? This NEURO assigned for the IME is board certified BUT he owns his own Neuro Center which does nothing but Workers Comp and other insurance Independent neuro exams - LOL! While he attended college in some neuro fields, I can't find where he received a degree in neurology! He did, however, attended several months of training for insurance medical examinations and receive creditials! This is a BIG case with almost $50,000 past due from Insurance and another $60,000 to the end of the end of LTD. Warning for all you newbies - if you have STD/LTD through your employers, after 2 years the insurance company will TRY to discontinue payments due to a law for mental cases! That law does not apply for physcial conditions EVEN though the insurance companies will do anything they can to NOT pay! At the beginning, I suggest that you look up a GOOD LTD lawyer and call to be prepared for problems especially after 2 years! Laws are changing all the time and the insurance Also, TELL your doctor not to send any papers to ANY ONE without telling you and letting you review BEFORE sending out the papers! Have a BIG note put on your case file to that effect! MY Neuro answered papers that allowed only YES/NO answers at the height of Season here in SW FL! Since this is mainly a retirement town, and most of his patients are on Medicare Already, he answered the YES/NO WITHOUT further explanation and sent back to insurance without my knowledge! ALWAYS before, the insurance company sent forms to me for me and the doctor to fill out. I would always have to drop off the papers and pick them up to send back. BUT to get rid of me, the insurance company sent papers directly to my doctor and none to me - not even a notice! The last set of papers was just 6 weeks after the quarterly review papers! LIKE a MIRACLE would occur after 2 1/2 years of severe TM in just 6 weeks - 2 attacks of TM affecting C4 - T1 and T10 - T12! Just a word of warning to all newer TMers! SSDI is bad enough but the LTD insurance companies are the WORST !%!$#$!#@ OF ALL! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] Happy Birthday December Babies
Happy Birthday all you December Babies! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] LTD IME - HELP
After 31 months, I'm finally scheduled for an IME for my LTD on the 16th of this month! My question is for anyone who has gone through an IME. What can I expect? This NEURO assigned for the IME is board certified BUT he owns his own Neuro Center which does nothing but Workers Comp and other insurance Independent neuro exams - LOL! While he attended college in some neuro fields, I can't find where he received a degree in neurology! He did, however, attended several months of training for insurance medical examinations and receive creditials! This is a BIG case with almost $50,000 past due from Insurance and another $60,000 to the end of the end of LTD. Warning for all you newbies - if you have STD/LTD through your employers, after 2 years the insurance company will TRY to discontinue payments due to a law for mental cases! That law does not apply for physcial conditions EVEN though the insurance companies will do anything they can to NOT pay! At the beginning, I suggest that you look up a GOOD LTD lawyer and call to be prepared for problems especially after 2 years ! Laws are changing all the time and the insurance Also, TELL your doctor not to send any papers to ANY ONE without telling you and letting you review BEFORE sending out the papers! Have a BIG note put on your case file to that effect! MY Neuro answered papers that allowed only YES/NO answers at the height of Season here in SW FL! Since this is mainly a retirement town, and most of his patients are on Medicare Already, he answered the YES/NO WITHOUT further explanation and sent back to insurance without my knowledge! ALWAYS before, the insurance company sent forms to me for me and the doctor to fill out. I would always have to drop off the papers and pick them up to send back. BUT to get rid of me, the insurance company sent papers directly to my doctor and none to me - not even a notice! The last set of papers was just 6 weeks after the quarterly review papers! LIKE a MIRACLE would occur after 2 1/2 years of severe TM in just 6 weeks - 2 attacks of TM affecting C4 - T1 and T10 - T12! Just a word of warning to all newer TMers! SSDI is bad enough but the LTD insurance companies are the WORST !%!$#$!#@ OF ALL! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] off topic
Jane, my deepest sympathy for you and your family. My prayers and thoughts for you and your family will be included in my daily list. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: celr...@aol.com To: TMIC-LIST@eskimo.com Sent: Thursday, December 2, 2010 12:11:06 PM Subject: [TMIC] off topic Since you are all part of my cyber family I wanted to ask for prayer for my family and me. My daughter died yesterday. She was 41 and diabetic, on dialysis, poor health. Her daughter was with her and it was sudden. She didn't say anything just collapsed and that was it. She had been through s much all her life and now she is at rest with the Lord. Her name is Pamela Caldwell. No more needles and hospitals. Please forgive me if I offend anyone but I needed to talk. Jane/Splendora Tx
Re: [TMIC] Peddle Machine
When I was in PT they had me on a peddle machine. I never got pass half resistance. And never that fast! They would put me on for approx 15 min. I had PT 3 times a week! Keep up the good work! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: transverse myelitis tmic-list@eskimo.com Sent: Monday, November 15, 2010 5:22:53 PM Subject: [TMIC] Peddle Machine Has anyone used a peddle machine to work their legs? I am using one now with the idea of keeping my legs from atrophy. My questions are how long should I run my legs at one session and is it adviseable to do more than one session a day. I am currently doing 20 minutes and one session a day at full speed--about 1350 revolutions in 20 minutes. Any thoughts on this?
Re: [TMIC] Peddle Machine
Any time I move, my back pain becomes worse. In PT they would allow me to rest 5 to 10 minutes between each different activity. Sometimes I would require heat to the back to help relieve pain. I would also have episodes of the banding around the middle - I called it the corset effect - which made breathing very difficult! This maybe from back spasms? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Monday, November 15, 2010 5:33:23 PM Subject: Re: [TMIC] Peddle Machine I am at no resistance--the machine does all the work for me. Did you have any spasm/pain reactions? On Mon, Nov 15, 2010 at 12:28 PM, CANDIS KALLEY cakal...@embarqmail.com wrote: When I was in PT they had me on a peddle machine. I never got pass half resistance. And never that fast! They would put me on for approx 15 min. I had PT 3 times a week! Keep up the good work! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: transverse myelitis tmic-list@eskimo.com Sent: Monday, November 15, 2010 5:22:53 PM Subject: [TMIC] Peddle Machine Has anyone used a peddle machine to work their legs? I am using one now with the idea of keeping my legs from atrophy. My questions are how long should I run my legs at one session and is it adviseable to do more than one session a day. I am currently doing 20 minutes and one session a day at full speed--about 1350 revolutions in 20 minutes. Any thoughts on this?
Re: [TMIC] Peddle Machine
James, I had 2 TM attacks within 30 days back in '06! The first was T10 - T12 which left me paralyzed from waist down! Before I could go to outpatient PT, I had my 2nd attack C4 - T1 leaving me paralyzed from neck down. I had Plasm Excange (PLEX) treatments 7 in hospital and 7 as outpatient along with inhospital/outpatient PT. I do walk dragging my R leg/foot which causes me to stumble quite often. I do have spotty feeling in leg/foot. My L leg/foot is stronger but no feeling at all! I can only be on my legs/feet for 15 to 20 minutes at a time. My L arm/hand is the worst and only at 1/4 strength with little or no feeling! My R arm/hand is at approx. 50% with feeling! Considering all and all, I feel VERY LUCKY! I take Tramadol, Cymbalta, Zanaflex, Protonix, and Gabapentin. Plus 10,000 IU Vit. D, Cranberry capsule, B Complex, Calcium, Cq10, Omega 3, and multi vitamin for women. If you were given steroids at the beginning, do get a bone scan. My scan showed severe loss in spine and hip area. So I take a Forteo self shot daily! Also, Vit. D has been shown to help the immune system! My blood level 19 months ago was at 13. Normal should be 37+. I'm up to 30! I also wear a TENS. Which helps somewhat in walking! The Vit. D has seemed to help somewhat in the pain levels but when the level is19 or 20 (forget the 10 scale), every degree is a help! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Monday, November 15, 2010 6:23:27 PM Subject: Re: [TMIC] Peddle Machine My injury is at T-10-12--no legs at all, constant severe pins and needles sensation with waves of increased shocking sensation from my feet to my knees. Swollen feet. Strong leg spasms. Banding around my middle from the navel down. It seems that the banding has gotten stronger (thicker?) with the peddling. Also the shockwaves and spasms seem stronger after a peddling session. I get back pain from being in the chair too long or from the bed when I try to be in a sitting up position. Banding does make it hard to take a deep breath. Occasionally I stop breathing altogether and wake up gasping for air. Scares the hell out of my wife. Eight months of caring for me has worn her out. No improvement in all that time. The only medications I take are vitamins-multi vitamin, fish oil, b-complex with C and L-Arginine for blood circulation. On Mon, Nov 15, 2010 at 12:41 PM, CANDIS KALLEY cakal...@embarqmail.com wrote: Any time I move, my back pain becomes worse. In PT they would allow me to rest 5 to 10 minutes between each different activity. Sometimes I would require heat to the back to help relieve pain. I would also have episodes of the banding around the middle - I called it the corset effect - which made breathing very difficult! This maybe from back spasms? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Monday, November 15, 2010 5:33:23 PM Subject: Re: [TMIC] Peddle Machine I am at no resistance--the machine does all the work for me. Did you have any spasm/pain reactions? On Mon, Nov 15, 2010 at 12:28 PM, CANDIS KALLEY cakal...@embarqmail.com wrote: When I was in PT they had me on a peddle machine. I never got pass half resistance. And never that fast! They would put me on for approx 15 min. I had PT 3 times a week! Keep up the good work! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: James Berg molokai...@gmail.com To: transverse myelitis tmic-list@eskimo.com Sent: Monday, November 15, 2010 5:22:53 PM Subject: [TMIC] Peddle Machine Has anyone used a peddle machine to work their legs? I am using one now with the idea of keeping my legs from atrophy. My questions are how long should I run my legs at one session and is it adviseable to do more than one session a day. I am currently doing 20 minutes and one session a day at full speed--about 1350 revolutions in 20 minutes. Any thoughts on this?
Re: [TMIC] Shingles Vaccine
Carol, Shingles is one of the viruses listed as possible causes for TM. I refuse any vaccines only because so many may cause a flair up. That's just my 2 cents. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Carol E snow121...@hotmail.com To: tmic-list@eskimo.com Sent: Thursday, November 11, 2010 6:29:00 PM Subject: [TMIC] Shingles Vaccine What every ones opinion on getting the vaccine for shingles? I'm 60 and last week for my annual physical, my doctor recommended that I get the shingles vaccine. I didn't get, because I wanted to ask the TM group and the medical people on the list. Carol in Addison, IL
Fwd: [TMIC] Shingles Vaccine
Carol, John Hopkins hospital use to have a whole list but they have changed their website. They had a list of 13 or so viruses and shinles was one of them. Through out my lifetime, I had had 10 of the 13. I had shingles about a year before TM. I did find this list: http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm#135453234 Also: http://www.wrongdiagnosis.com/t/transverse_myelitis/book-diseases-12a.htm http://www.mayoclinic.com/health/transverse-myelitis/DS00854/DSECTION=causes I hope this helps. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Carol E snow121...@hotmail.com To: cakal...@embarqmail.com Sent: Thursday, November 11, 2010 6:36:15 PM Subject: RE: [TMIC] Shingles Vaccine Thank you Candy. Where can I find that list? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Carol E snow121...@hotmail.com To: cakal...@embarqmail.com Sent: Thursday, November 11, 2010 6:36:15 PM Subject: RE: [TMIC] Shingles Vaccine Thank you Candy. Where can I find that list? Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. Worrying does not empty tomorrow of its troubles; It empties today of its strengths. Date: Thu, 11 Nov 2010 18:32:44 -0500 From: cakal...@embarqmail.com To: tmic-list@eskimo.com Subject: Re: [TMIC] Shingles Vaccine Carol, Shingles is one of the viruses listed as possible causes for TM. I refuse any vaccines only because so many may cause a flair up. That's just my 2 cents. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Carol E snow121...@hotmail.com To: tmic-list@eskimo.com Sent: Thursday, November 11, 2010 6:29:00 PM Subject: [TMIC] Shingles Vaccine What every ones opinion on getting the vaccine for shingles? I'm 60 and last week for my annual physical, my doctor recommended that I get the shingles vaccine. I didn't get, because I wanted to ask the TM group and the medical people on the list. Carol in Addison, IL
Re: [TMIC] Shingles Vaccine
AMEN Betty! Why risk a flare! I do carry around the hand santitizer and use it while I'm out! During a flu outbreak, I wear a mask if I have to go out! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Beeclark beecl...@aol.com To: tmic-list tmic-list@eskimo.com Sent: Thursday, November 11, 2010 7:08:56 PM Subject: Re: [TMIC] Shingles Vaccine I'm with you, Candy... I've been told as long as I don't get any live virus, it should be okay. That's not good enough for me to risk. I refuse to get any now. Betty (in Northern California) In a message dated 11/11/10 15:33:04 Pacific Standard Time, cakal...@embarqmail.com writes: Carol, Shingles is one of the viruses listed as possible causes for TM. I refuse any vaccines only because so many may cause a flair up. That's just my 2 cents. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Carol E snow121...@hotmail.com To: tmic-list@eskimo.com Sent: Thursday, November 11, 2010 6:29:00 PM Subject: [TMIC] Shingles Vaccine What every ones opinion on getting the vaccine for shingles? I'm 60 and last week for my annual physical, my doctor recommended that I get the shingles vaccine. I didn't get, because I wanted to ask the TM group and the medical people on the list. Carol in Addison, IL
Re: [TMIC] hello out there
I also have the problem for voiding. I have learned something that helps most of the time - bending over like touching you feet. This seems to put pressure on the bladder forcing voiding! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Wednesday, November 10, 2010 11:15:06 AM Subject: RE: [TMIC] hello out there Carol E, your sunday to present condition sounds almost exactly like mine. heavy sigh. --- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote: From: Carol E snow121...@hotmail.com Subject: RE: [TMIC] hello out there To: malugss...@gmail.com, tmic-list@eskimo.com Date: Wednesday, November 10, 2010, 11:06 AM I also have the residuals as Linda mentioned...burning, banding, weakness, bladder control. Sometimes I can void normally (pre TM) and other times I have to sit on the pot for 5 minutes to void. I feel like I am about to burst, but nothing comes out. I wiggle and wiggle and finally a slow trickle that takes maybe another 3 minutes. I would say about half the time I void normally and half of the time, I don't. This week, my back is killing me. It started Saturday with a burning itching sensation and then Sunday immense pain began about 3 inches lower, about waist level and lower. My hips hurt and painful when I stand and bear weight. I was taking Aleve for my discomfort and this week I graduated to Vicodin and Flexeril. I'm not sure, but I think my pain is from spinal stenosis and bulging disks instead of the TM. I have scheduled my 2nd Lumbar Epidural for next week, if I still need it. Would have gone this week, but I have to discontinue Plavix, aspirin and Aleve before I can get the epidural. What a zoo! Carol Worrying does not empty tomorrow of its troubles; It empties today of its strengths. Worrying does not empty tomorrow of its troubles; It empties today of its strengths. From: cherp...@msn.com To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com Subject: Re: [TMIC] hello out there Date: Tue, 9 Nov 2010 21:16:00 -0700 This is what I have been told also. My lesions can still be seen but they are inactive (C4,5,6). I was told they are like a scar. However, I've seen posts where others have been told something different. Dalton, I still have all the residuals - burning, banding, weakness - it's just that some days are better than others. It's going on 9 years for me. Hope you get to feeling better! Linda in Eagle, ID - Original Message - From: Carol E To: malugss...@gmail.com ; tmic-list@eskimo.com Sent: Tuesday, November 09, 2010 9:04 PM Subject: RE: [TMIC] hello out there Hi Dalton and all, I was 1st diagnosed with TM June 2005. I had lesions from T7-T10. Every time I have new MRI's, I am always told that I have no new lesions, but they can still see the old ones which are inactive. So I would say the lesions do not go away, they are there like a scar. Carol in Addison, IL Date: Wed, 10 Nov 2010 07:50:59 +0400 Subject: Re: [TMIC] hello out there From: malugss...@gmail.com To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com Hey, Janice! We missed you. And I missed you. Glad to have you back with us. I have a question for everyone. A recent set of MRIs showed that my spine in the thoracic was clear with no lesions or swellings. It has been one year since the diagnosis for TM. Do these lesions clear up later on, or did somebody make a mistake somewhere? Because my everyday symptoms are still weakness and pain from fingers to just above the elbow, and from toes to above the knees with banding and burning in the torso and back. And if I exercise at all, the next day I am in for day-long spasms that leave me housebound and often unable to get around without assistance of my dear part-time maid and helper. Could someone get back to me on this? Thanks a lot. Dalton From: Janice Nichols jan...@centurytel.net Date: Tue, 9 Nov 2010 19:28:29 -0600 To: Dalton Garis malugss...@gmail.com , Barbara Alma balmat...@aol.com , tmic-list@eskimo.com Subject: Re: [TMIC] hello out there I do too, Dalton. You have a different set of problems that I have not heard in other TM'ers. Sure wish you would get you act together - scares me!!! Seriously, I hope that is the last day you will have like that. Janice From: Dalton Garis mailto:malugss...@gmail.com Sent: Sunday, November 07, 2010 10:23 AM To: Barbara Alma mailto:balmat...@aol.com ; tmic-list@eskimo.com Subject: Re: [TMIC] hello out there Actually; I had a day-long attack of spasms yesterday which left me unable to control either my hands and arms, legs,
Re: [TMIC] hello out there
John, I find that any time the barometric pressure changes, I can feel it. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: john snodgrass jcs...@yahoo.com To: transverse myelitis tmic-list@eskimo.com Sent: Monday, November 8, 2010 7:55:37 AM Subject: Re: [TMIC] hello out there i have been attempting to journalize the weather and my pain on a 1-10 scale. and it seams as if when the barametric pressure is up I hurt more. --- On Sun, 11/7/10, Barbara Alma balmat...@aol.com wrote: From: Barbara Alma balmat...@aol.com Subject: Re: [TMIC] hello out there To: cherp...@msn.com, tmic-list@eskimo.com, malugss...@gmail.com Date: Sunday, November 7, 2010, 8:44 PM Hello all, Well, maybe I shouldn't have asked this question, but I'm glad I did. It looks like some support was needed for you guys and maybe for some just lurking and not feeling up to writing in. Believe me, I sympathize with you and your pain. This time of year, when it's cold in many parts of the country and world, my symptoms get worse also. It seems that some of us have symptoms that are exacerbated by the cold and some by heat. The barometric pressure can affect many. Mine are much worse in the cold, and especially if it's rainy. My skin can be warm to the touch, but I can feel cold to the bone (as I say). I actually think that it may be the nerves that are cold and it is so hard to warm up again. It can be really painful. I get under the blankets and also wrap my legs in blankets, sometimes a heated one, and pray it goes away soon, but I can only do that when I'm at home. I try not to go out of the house unless absolutely necessary during this time of year, and I am sure that this is why the winter blues set in. This is something we have to be very careful of, because it can cause a lot of depression. Please be aware of this. This is another reason why it's important to keep in touch. Hugs, Barbara A in Auburn CA -Original Message- From: L T CHERPESKI cherp...@msn.com To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton Garis malugss...@gmail.com Sent: Sun, Nov 7, 2010 4:43 pm Subject: Re: [TMIC] hello out there Hi Dalton Everyone ~~ You're right Dalton. Many of us seem to be having additional challenges right now. Could be why we've been so quiet on the list After I read your post about the horrific day you had, I did a little research, and I think I came back even more confused - sorry to say. I'm sure I've asked you this before, but I'll ask again. Have you been given any drugs specifically for seizures? If not, could your doctor put you on a seizure med for a trial period to see if it would indeed help?? I don't understand why they haven't tried this. How does anybody know if nothing has been tried??? Is Lyrica the only medication you take? Is there another neuro you could see or would your neuro consider consulting another neuro about your case? So many questions - so few answers. I don't know what to say. It's so frustrating to see you going through all of this. Hang in there and keep posting. Linda - Original Message - From: Dalton Garis To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma Sent: Sunday, November 07, 2010 5:19 PM Subject: Re: [TMIC] hello out there Seems as if everyone went down at the same time. Is it possible that I might have recurrent TM? I wish I could get the neuro interested in my case. But he just keeps me in Lyrica and has no further interest. Dalton From: L T CHERPESKI cherp...@msn.com Date: Sun, 7 Nov 2010 16:33:40 -0700 To: tmic-list@eskimo.com , Barbara Alma balmat...@aol.com Subject: Re: [TMIC] hello out there Resent-From: tmic-list@eskimo.com Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800 Have been trying to keep myself calm and quiet as I am in a full blown flare. I'm 2 months past my Rituxan infusions, which obviously is not good. Hoping they were approved last Friday and will be scheduled this week. I have Recurring TM and Rituxan has kept me attack free the last 2 years - I guess that teaches me a lesson - the hard way. Get infusions every 6 months on schedule. A real bummer~ Linda in Eagle, ID
[TMIC] Vit. D article
This is an interesting article on Vit. D that I believe we all should we and even pass on to family and friends. http://www.oprah.com/health/Why-Knowing-Your-Vitamin-D-Levels-Might-Save-Your-Life Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] hello out there
Dalton, So sorry that you had another bad day. With the onset of cold wether, I've been having a bad time myself. Somehow, I got a briuse on my big toe but the pain wasn't/isn't in my toe. I could hardly move for 2 days ago. I wore protection and would just sit wet myself because it hurt so bad to move IF I could move - my R leg would give out on me. My back felt as if someone was inside trying to tear everything from the inside out! If I didn't move, I had the normal back pain. I fell one other time and my L foot was bruised. For the next 5 days if I put any weight on theL foot, I would fall and the pain was horriable! Has anyone experienced pain, or the results of pain, but not in the area of the injury? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Dalton Garis malugss...@gmail.com To: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com Sent: Sunday, November 7, 2010 11:23:44 AM Subject: Re: [TMIC] hello out there Actually; I had a day-long attack of spasms yesterday which left me unable to control either my hands and arms, legs, torso or speech. Every time I tried to talk I would cramp up. And Elvis was definitely being channeled in my body. Thank heavens I had the assistance of a very nice and strong maid who visits me once a week. It was her day to visit and she stayed with me and helped me to the bathroom and into and out of chairs. It was hard to sit down because I couldn’t make my body bend and I’d just slide off. But we got it under control. She had to help me drink and eat. I would grab the coffee cup handle and then could not make my hand let go. In the mean time I was so grateful for her assistance and that the Lord was taking care of me that I was also as high as a kite and proposing marriage to chairs and such. Today was the beginning of the work week here (Abu Dhabi) and I did alright. But the lecture kept going off on these tangents making it hard for my class to take useful notes. It was because my mental state was still flying around the cosmos. What is going on here? OK, I have TM in my upper spine; but what is this mental derangement stuff? I sure wish the drs could find out what is wrong with me. Dalton From: Barbara Alma balmat...@aol.com Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT) To: tmic-list@eskimo.com Subject: [TMIC] hello out there Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700 Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA From: Barbara Alma balmat...@aol.com Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT) To: tmic-list@eskimo.com Subject: [TMIC] hello out there Resent-From: tmic-list@eskimo.com Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700 Well, I guess since nobody has written in that all must be going well for everyone. It's very good to hear this. I do think that it is a good idea to keep this list going though in case there are any newbies who may need us and don't think there is anyone here to listen to them. If a couple of days pass without any messages, let's send in a message or two. Hugs, Barbara A in Auburn CA
[TMIC] Happy Birthday
Happy Birthday to all November TM'ers. Candy K.
[TMIC] OT - Question SSD to retirement payments
Question for anyone who collected SS Disability payments and then reached retirement age; did you payments change and how much? Also was the retirement age 62 or full retirement age? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Fwd: Good Idea!
I now know WHOSE EMAILS I will DELETE IMMEDIATELY ! I FOR ONE WILL NOT BE ASSOCIATED WITH ANYONE WHO PUTS DOWN ANYONE OR ANYTHING BECAUSE OF BIGOTRY! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice Nichols jan...@centurytel.net To: Patricia Cooley patticoole...@gmail.com, em...@telephonelady.com, Tmic-list@eskimo.com Sent: Tuesday, October 5, 2010 6:46:58 PM Subject: Re: [TMIC] Fwd: Good Idea! With my curiosity, I will always open it! Janice From: Patricia Cooley Sent: Tuesday, October 05, 2010 9:28 AM To: 'Janice Nichols' ; em...@telephonelady.com ; Tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Good Idea! ONE OTHER THOUGHT. I REMEMBER THAT IN THE PAST, IT WAS DECIDED THAT IF YOU WERE GOING TO SEND A POST OFF TOPIC THAT YOU PUT IN THE SUBJECT “O.T.” TO INDICATE THAT IT WAS NOT ABOUT TM. I THINK THAT IS STILL A GOOD IDEA. THAT WAY YOU CAN DECIDE TO EITHER OPEN IT OR DELETE IT. PATTI - WISCONSIN From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Tuesday, October 05, 2010 8:34 AM To: em...@telephonelady.com ; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! It is about TM - 95% of the time. But, as we get to know each other, these discussions, I feel, add to the interest of the website. Many with TM are closed in much of the time and would like to be able to discuss different topics as an outlet. We are all friends here, and friends do not always talk about 1 topic, they vary the topics. If you wish to, you can just delete these few discussions. But, remember, it is also an emotional/mental outlet for us all and that is also why the website is here. It is good for us to have other things on our minds besides TM, although that is the main topic here. We hope you will contribute to all discussions. Janice From: Emily Sent: Tuesday, October 05, 2010 2:50 AM To: Tmic-list@eskimo.com Subject: RE: [TMIC] Fwd: Good Idea! Is this the right forum for this discussion? If it is, how do I remove myself from the TMIC list? I get enough of this kind of email from other sources and really don’t want to see it here when this is a Transverse Myletis discussion list. I’m new here and I’m sorry for feeling this way but I thought it was going to be about TM. From: Dalton Garis [mailto:malugss...@gmail.com] Sent: Tuesday, October 05, 2010 12:42 AM To: bgunny7...@aol.com; Tmic-list@eskimo.com Subject: Re: [TMIC] Fwd: Good Idea! Let’s be clear: Those persons who destroyed the Twin Towers in my City while I watched, were NOT MUSLIMS. They had twisted things like a New York Pretzel to have it do what they wanted of it—taking things out of context and making a god out of an evil and corrupt leader who signed off on killing the innocent. Their motto was “Kill them all and let the Lord sort them out.” Shall we ban Christian churches all over Europe because the Germans were Christian? Shall we ban temples in the Far East because the Japanese were Shinto Buddhists? There have been 13 years of war for every year of Peace since the Advent of His Holiness Jesus. Shall we ban Christian worship? Let’s sort it out in our minds! Forever man has committed the most atrocious of acts in the name of their religion. But we see that it is because there is too little true religion today, not too much, which is the root cause of so many of our problems, in our streets and in our skies . No: It is because those murderers knew too little of the Qur’an that they committed such evil, not too much. They knew nothing of the Qur’an or Islam in the Name of which they killed so many. I say, if people want to sincerely worship God, let them. There is too little of this, not too much. Dalton From: bgunny7...@aol.com Date: Mon, 4 Oct 2010 16:04:09 EDT To: Tmic-list@eskimo.com Subject: [TMIC] Fwd: Good Idea! Resent-From: tmic-list@eskimo.com Resent-Date: Mon, 4 Oct 2010 13:04:45 -0700
Re: [TMIC] AOL........
Jan, GET WELL SOON! We're here for you and will pray for you. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Jan Hargrove jmh1...@sbcglobal.net To: tmic-list tmic-list@eskimo.com Sent: Sunday, October 3, 2010 5:31:01 PM Subject: [TMIC] AOL Dear tmfamily, I have deleted every piece of mail since 9/16, as I have spent the last 2 weeks in the hospital..I fell the night of 9/16, went to hospital 9/17 had surgery 9/18 and went to rehab 9/19. The surgery placed pins in my rigtht ankle which I broke on both sides. Am home as of Sat 10/2 and most happy to be hereI'm tired and only moving by wheelchair which will be replaced by scooter next week. I deleted more than 1700 emails, which included all from youall...I'll catch up with what's going on as I gain strength. This is not all bad news. I've not shared what's been happening to me since Feb...at that time I had an illness, not flu,but flu-like. My doc said it most likely was a virus that would wear out in time. I was down long enough that I began to lose some of my mobility. On the other hand I began to regain feelings that hadn't been there since tm came to stay (19996). I wondered if the pains I began to have were there all along, but I couldn't feel them. As I lost more mobility, I came to depend more and more on my 4 prong and my walker. My walker was part of reason I broke my anklethat and my clumsiness!! With rehab I have begun to regain the strength I'll need to become a member of walking wounded again. Home Care, esp.p.t., will continue for at least next 60 days. This is all for now, it's taken two sessions to get this written..later... janh
[TMIC] OT - DAMIANA
Has any one tried DAMIANA? it is suppose to: • reduce spasms • relieve depression • reduce blood sugar • calm nerves I've got some I'll let you know how it works. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] Back Pain
It's not our imagination that when the weather changes, our back pain changes also. Here's an article that may be of interest. http://www.ehow.com/facts_5840955_barometric-pressure-back-pain.html Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Back Pain
John, I agree. I can tell changes 50 miles away and the weatherman is saying slight chance of! Maybe we all could get a job as a weather person. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: john snodgrass jcs...@yahoo.com To: CANDIS KALLEY cakal...@embarqmail.com Cc: transverse myelitis tmic-list@eskimo.com Sent: Friday, September 17, 2010 5:12:38 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Back Pain lol,,,i believe that we can tell better than the weather man when the weather is changing! From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Fri, September 17, 2010 11:23:21 AM Subject: [TMIC] Back Pain It's not our imagination that when the weather changes, our back pain changes also. Here's an article that may be of interest. http://www.ehow.com/facts_5840955_barometric-pressure-back-pain.html Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] permission needed for listserv
I agree with Janice. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice Nichols jan...@centurytel.net To: Lauri Cervantes lcervan...@kumc.edu, tmic-list@eskimo.com Sent: Friday, August 27, 2010 11:26:48 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] permission needed for listserv As far as I am concerned, it is okay to do this. I hope you realize that we talk about medications, TM symptoms, medicare, etc. Also, it is very much a support group, so the topics vary. Janice, in Missouri From: Lauri Cervantes Sent: Friday, August 27, 2010 1:12 PM To: tmic-list@eskimo.com Subject: [TMIC] permission needed for listserv I am a student of occupational therapy at the university of Kansas medical center and one of my assignments this semester is to subscribe to a listserv and prepare a paper over some of the topics I read over the course of the semester. I would like your permission to be a member of your listserv. You have my word that I will treat all members and their posts with the utmost respect. Thanks very much! Lauri Cervantes, OTS
[TMIC] Vit. D article
I just received this and I think it is worth reading. http://www.lifescript.com/Health/News/Reuters/2010/08/24/Vitamin_D_tied_to_cancer_autoimmune_disease_genes.aspx?utm_campaign=2010-08-25-58859utm_source=healthy-advantageutm_medium=emailutm_content=healthy-news-bites_Vitamin%20D%20tied%20to%20canFromNL=1sc_date=20100825T00 Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Fact Sheet on TM
Todd, I have my info on an Excel spreadsheet. I then did a sort on med column then dr. column which then put all the med names in alpha order by the doctor. Then each dr. can see at a glance who is prescribing what. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: CANDIS KALLEY cakal...@embarqmail.com Sent: Monday, August 9, 2010 4:04:08 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Fact Sheet on TM Thanks Candy, This is a wonderful ideal, since I do have more than one doctor. You just had to ADD another column to my medication list. LOL Thanks for the info. Todd --- On Sat, 8/7/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: Re: [TMIC] Fact Sheet on TM To: Todd Tarno toddtm2...@sbcglobal.net Date: Saturday, August 7, 2010, 4:08 PM I also have a column of which dr. prescribed the med. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Saturday, August 7, 2010 2:50:05 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Fact Sheet on TM My medication speadsheet has the following: Medication, Date Started, Dose, Times of Day w/time of the day M, D, N ( Morning, Dinner Night), Type of Med. I believe this will cover everthing. lol Todd in CC, TX --- On Sat, 8/7/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: Re: [TMIC] Fact Sheet on TM To: tmic-list tmic-list@eskimo.com Date: Saturday, August 7, 2010, 10:40 AM Patti, you may also want to make a sheet on all the meds you are on. Also, the vitamins and supplements that you may be taking. I keep an Excel spreadsheet so that I can change dosages and add or delete meds as needed. I also list the dates of start/end, plus the Dr. info. This is much easier as I have found that on every visit, the questionaire asks for current meds. This way, I print the list before the visit and just say See attached. Much Much easier! Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: Rev. Craig Crossman revcross...@gmail.com, tmic-list@eskimo.com Sent: Saturday, August 7, 2010 11:22:15 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Fact Sheet on TM THANKS SO MUCH FOR THIS INFO. SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON. SINCE THIS IS A SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM. I PRINTED IT OFF AND WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT. THANKS AGAIN. PATTI - WISCONSIN From: Rev. Craig Crossman [mailto:revcross...@gmail.com] Sent: Friday, August 06, 2010 3:08 PM To: tmic-list@eskimo.com Subject: [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don’t want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she’ll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Fact Sheet on TM
Patti, you may also want to make a sheet on all the meds you are on. Also, the vitamins and supplements that you may be taking. I keep an Excel spreadsheet so that I can change dosages and add or delete meds as needed. I also list the dates of start/end, plus the Dr. info. This is much easier as I have found that on every visit, the questionaire asks for current meds. This way, I print the list before the visit and just say See attached. Much Much easier! Candy K. - Original Message - From: Patricia Cooley patticoole...@gmail.com To: Rev. Craig Crossman revcross...@gmail.com, tmic-list@eskimo.com Sent: Saturday, August 7, 2010 11:22:15 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Fact Sheet on TM THANKS SO MUCH FOR THIS INFO. SINCE I MOVED SEVERAL MONTHS AGO, I WILL NEED TO CONNECT WITH A NEW PCP, NEUROLOGIST, AND UROLOGIST VERY SOON. SINCE THIS IS A SMALL TOWN, I WAS AFRAID THEY WOULD NOT BE AWARE OF TM. I PRINTED IT OFF AND WILL BE SURE TO TAKE WITH ME AT MY FIRST APPOINTMENT. THANKS AGAIN. PATTI - WISCONSIN From: Rev. Craig Crossman [mailto:revcross...@gmail.com] Sent: Friday, August 06, 2010 3:08 PM To: tmic-list@eskimo.com Subject: [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don’t want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she’ll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] Fact Sheet on TM
Craig, I'm not surprised that your neuro doesn't know anything about TM - most don't have the opportunity to be blessed with a TM patient. My neuro had heard of TM and he also had a friend at John Hopkins, so I'm lucker than most. You will also find that we TMers teach our neuros about TM. It is good that you intend to give the info to your neuro. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Rev. Craig Crossman revcross...@gmail.com To: tmic-list@eskimo.com Sent: Friday, August 6, 2010 4:08:05 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] Fact Sheet on TM Many of you have probably already read this Fact Sheet. I find it helpful to give any physician or PA or NP that is my primary care provider since 90% of them have no idea what TM is, and it seems many don’t want to take the time to find out about it as well. What is even more aggravating is that my new neurologist (the only one within three hours travel) has no experience with it either. So she’ll get a copy as well. http://www.ninds.nih.gov/disorders/transversemyelitis Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
[TMIC] August Birthdays
Happy Birthday to all you Aug. Babies. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara H. barbara...@gmail.com To: TMIC tmic-list@eskimo.com Sent: Sunday, August 1, 2010 12:22:17 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] August Birthdays Happy Birthday to the August kids! Please send any additions or corrections to tmic-list@eskimo.com . 8/1 Peachi ( pkeene2...@aol.com ) 8/1 Cindy McLeroy ( cindymcle...@socal.rr.com ) 8- 1 Stacy Firth ( safi...@dow.com ) 8-3 Larry Throne ( lbthr...@hotmail.com ) 8-10 Sean Indiveri ( sindiv...@hotmail.com ) 8-11 Raylene Gökeri ( mrs_gok...@yahoo.com 8-11 Michelle Maricic ( mmari...@aol.com ) 11th August 1950 Dalida S. Ortiz de Garcia ( py...@yahoo.com ) 8-16- phyllisj...@webtv.net 08/17 Sandra (Harth) Brassil ( sbras...@aol.com ) 8-17 Kim ( jnks...@huntel.net ) 08/18 Corinne Cookie Knox ( horsecookies...@wmconnect.com ) 8-19 Saroj ( sarojkumar...@gmail.com ) 8-21 Barbara H. ( jbarbara...@gmail.com ) 8/22 - Debi ( debdo...@aol.com ) 8-23 Cole ( neilandwe...@rogers.com ) 8-29 Lisa Baker (Judy's daughter) ( judybak...@juno.com 8-29 Kathleen ( kkar...@dacor.net ) 8/30 Lynn Pouliot ( lpoul...@cox.net ) 8- 31 Robin in Ontario(Brampton)( rjohnson1...@rogers.com )
Re: [TMIC] Fwd: Do I like getting old?
Gunny, Thank you for sharing. It's Wonderful and so true. Prayers and thoughts for you and yours, Candy K. - Original Message - From: bgunny7...@aol.com To: Tmic-list@eskimo.com Sent: Wednesday, July 28, 2010 12:02:20 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] Fwd: Do I like getting old?
Re: [TMIC] TM Info request
Craig, Welcome to the group. Like many here, we are glad you found us but wish it was under different circumstances. I have a list of websites dealing with TM, Spinal locations and info, medications, insurance and insurace problems, SSDI, etc. If you like, email me and I will send you the list. Some of the info may be helpful to share with your doctor and neuro. Each of TMers are similiar but different. I think we all experience terrible pain, mine is in my lower back, spasms, and other issues. Again WELCOME to our elite group. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Rev. Craig Crossman revcross...@gmail.com To: tmic-list@eskimo.com Sent: Sunday, July 25, 2010 1:25:39 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] TM Info request Hello, I was very glad to find this e-list. I am “new” to TM having been diagnosed one year ago. We moved from PA to Kansas in April. This has been a hot summer with 20+ days straight of temps in upper 90’s to low 100’s, and I find I am having a greater number of symptoms than normal. Does anyone know if TM patients are adversely affected by heat? My doctor is not very familiar with TM and I won’t see a neurosurgeon until September. Thanks, and God bless. Rev. Craig Crossman First Baptist Church 615 W. Webster St. Colby, KS 67701 W - (785)462-2867/ Cell - (785)443-5154 revcross...@gmail.com www.firstbaptistcolby.org
Re: [TMIC] short story
I was thinking the same thing - and we all need to look at our accomplishments, big or small, and rejoice for those we have. Prayers and thoughts for you and yours, Candy K. - Original Message - From: pjv1...@chartermi.net To: bgunny7...@aol.com, Tmic-list@eskimo.com Sent: Saturday, July 24, 2010 6:36:42 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] short story Ok Gunny, now I have goose bumps from reading your story. Thank you for your service to our country. Your DI gave you a great piece of advice. We should dwell on our abilities an use them for the good of others. Thanks for sharing. Patti - Michigan bgunny7...@aol.com wrote: I was just sttin here the other day lookin at something I got from another Marine. I had a though about lookin up my old DI's. I typed in thier names in my search engine, and came up with only one, Sgt. Levesque. It was a story about what happened to him in Viet Nam. I called John Brown who is the commander of the VA, who also worked with me at the Sheriff's dept. yes, he's from Youngstown. It seems Sgt. Levesque works with the blind veterans, as he lost his eye sight in Viet Nam. John told me how to get in touch with him, so I called. He answered, Don Levesque, how can I help you? Here's a man I haven't seen or talked to in forty eight years, and I got the feeling of needing to snap to, but I didn't . I said, Platton 289, F Co. Parris Island. He said, yeah, my platoon. I said Pvt. Boyle, Platoon Guide. He said, son of a bitch, how the hell are ya. I said, the question is, how are you, I read a story about you and losing your eye sight. He said, ya know Boyle, I remember you, you had your head and ass wired together..After exchanging pleasantries, we discussed disabilities, and I told him my story. He said, remember one thing Boyle, it's ability, not disability, if I taught you anything, remember that. We talked a couple more minutes then agreed to stay in contact. It got to me people, ability not disablilty. I had to hear that from an old DI of mine, so, I'm just passin it on. Semper Fi.
[TMIC] OT - Happy Safe 4th of July
Wishing everyone a Safe and Happy 4th of July. May we all take a moment and say THANK YOU to all that have helped us to enjoy our freedoms. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] OT - Happy Safe 4th of July
Dalton, Only gone fishin' about 4 times in my life - no my cup of tea! We are in our rainy season now and its beginning to look like a normal one. The first 2 years with TM we were in a draught and I didn't have too much trouble. Now, its constant pain. Last season, I slept through practically the whole season. How are you doing? Are you in NY now? If I remember right, the last question you asked me was if TM is reoccurring - yes a small percentage will have reoccurring TM. Currently we are trying to figure out why I'm having more spasms which are more severe plus fatigue is MUCH worse. I'm also having both legs/ankles/feet to swell AND I've lost complete control of bladder. I use to have the urge and then a few seconds, up to a minute, before flow. Now is urge and flow all together. With my tottering walk and wearing of diapers, all I'm missing is the energy of a tottler. My MRIs didn't show any difference - no infection just the same spinal scars at C4-T1 and T10-T12. I had a deep vein ultra sound - no blood clots. I go for Spinal Tap and blood work on the 8th. I've done some searching and will talk to doctor about possible thyroid problems which would cause it to function poorly, or several other things. I'm having trouble keeping my vitamine D levels up - if I go below 10,000 IU daily then my blood levels really dip. Are you back in the states for good or just a break? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Dalton Garis malugss...@gmail.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Sunday, July 4, 2010 3:30:40 PM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] OT - Happy Safe 4th of July Thanks, Candy; You goin' fishing?? Mobile: +971-50-668-5760 In New York: 718-271-2738 -Original Message- From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Sunday, July 04, 2010 7:51 AM To: TMIC-LIST Subject: [TMIC] OT - Happy Safe 4th of July Wishing everyone a Safe and Happy 4th of July. May we all take a moment and say THANK YOU to all that have helped us to enjoy our freedoms. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] July Birthdays
Happy Birthday HOT July babies. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara H. barbara...@gmail.com To: TMIC tmic-list@eskimo.com Sent: Thursday, July 1, 2010 12:43:56 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] July Birthdays Happy Birthday to the middle of summer kids! Please send any additions or corrections to tmic-list@eskimo.com . I'm not sure about a few of these addresses. 7-5 Sumer ( fjs181...@aol.com ) 7/5. Rick in tn ( ashfo...@att.net ) 7- 9 Vicki Frohna ( to...@bright.net ) 7-14 Julie ( chi...@cox.net ) 7-15 Sandi S. ( ssie...@myelitis.org )(Fearless leader of the TMA!) 7-24 Kevin Weilacher ( hwyfli...@yahoo.com ) 7-25 Peggy Wilson ( pwi1991...@aol.com ) 7-25 ( jennapa...@aol.com ) 7-25 Michelle Balliet ( chelley...@aol.com ) 7-27 Linda ( lp...@aol.com ) 7/29 Hildred ( missprissgran...@aol.com ) 7/30 Dex Packard ( d...@centurytel.net )
[TMIC] OT - Stop Social Security Cuts petition
Fellow TM Disabled, Did you know that Washington is considering unfairly targeting Social Security benefits for cuts? Social Security didn't cause the budget deficit, so our retirement shouldn't be put at risk to fix it! I just signed AARP's petition to protect Social Security and keep it strong for generations to come. Please click on the link below to join me – it will only take a minute. http://action.aarp.org/site/Advocacy?pagename=homepageid=779 Thanks for standing with me to keep Social Security strong. Sincerely, Candy K
Re: [TMIC]
Bernie, Have you looked into Devic's or NMO? Please see website http://www.myelitis.org/devics_disease.htm Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Bernie Butcher (SFS) bernie.butc...@honeywell.com To: Janice Nichols jan...@centurytel.net, Dalton Garis malugss...@gmail.com, Laura Beaudin laura.beau...@gmail.com, tmic-l...@eskimo.net Sent: Friday, June 11, 2010 10:36:38 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] That’s what my neuro said. I was diagnosed with TM until I had a leasion in my optic nerve (causing double vision) in 2007 then the diagnosis became MS BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: Janice Nichols [mailto:jan...@centurytel.net] Sent: Thursday, June 10, 2010 11:46 PM To: Dalton Garis; Laura Beaudin; tmic-l...@eskimo.net Subject: Re: [TMIC] Is it possible that with both brain and spine lesions that you have MS rather than TM? Janice From: Dalton Garis Sent: Thursday, June 10, 2010 10:34 PM To: Janice Nichols ; Laura Beaudin ; tmic-l...@eskimo.net Subject: Re: [TMIC] Janice; I can function normally for spurts of time, but no stamina in the muscles at all. My lower legs and lower arms are hit with constant aching and feel as if they were filled with hot lead. My spine is very sore now with many different pains. My diaphragm and upper stomach area is burning and squeezing all the time. I cant get comfortable anymore, no matter how I sit, recline or lie down. The biggest problem is with the attacks of spasticity. They are overall convulsions affecting all my muscles and causing me to arch my back and legs backwards, then forwards, pinning my head aagainst my chest and leaving me with no control over arms, legs and speech. They ate almost epileptic fits, and likely caused by brain and spine lesions. I take Epanutin for this, which is an anti-convulsive medication given to epileptics. It works a little but the spastic qattacks can come at any time. I will feel it in my voice as I try to talk and become halting in speech. Then the back arches and the arms go flying upwarrds. This can last for 20 minutes or 6 hours, one convulsion after another. When it is finished with me all my muscles and backbones ache and giv e me a lot of pain. But I manage somehow and I am happy. Life is all about solving complications and problems, so, we get good at it. I must stop now, as both my eye focusing and my fingers are quitting on me. Kind regards, Dalton Garis Abu Dhabi/New York On 11/6/10 2:22 AM, Janice Nichols jan...@centurytel.net wrote: Do you mind my asking what are you able to do? Were your arms affected and how did it leave you with walking/not walking? Janice From: Laura Beaudin mailto:laura.beau...@gmail.com Sent: Thursday, June 10, 2010 11:43 AM To: Janice Nichols mailto:jan...@centurytel.net ; tmic-l...@eskimo.net Subject: Re: [TMIC] All my docs and therapists are on the Spinal Cord Injury Unit of our rehab hospital...definitely qualified. It sucks, but sometimes the best efforts don't work. I was on this unit as an inpatient for 6 weeks last summer, they were not able to get much back so the time ended up being spent on how to adjust to changes and become independent in spite of it. Transverse Myelitis IS a Spinal Cord Injury...just not a traumatic one (ie, not caused by an accident). Laura http://practical-homeschooling.org www.laurascoolstuff.com http://www.laurascoolstuff.com On Thu, Jun 10, 2010 at 10:34 AM, Janice Nichols jan...@centurytel.net wrote: I am getting definite improvement with PT. My pain management doc recommended a PT guy that specializes with damaged spines (like us). He knows what he is doing. We are taking it very slow because of the severe back arthritis I have and the myelitis. I also do my exercises at home in between sessions. Can you get a PT especially recommended by your doc because of our special problem? The hamstring problem is definitely from myelitis. Janice From: Laura Beaudin mailto:laura.beau...@gmail.com Sent: Thursday, June 10, 2010 11:14 AM To: Janice Nichols mailto:jan...@centurytel.net Subject: Re: [TMIC] Ditto...more bruising would be normal (and often is) if you have decreased sensation. As for hamstrings, mine are shortening and despite PT, I can't get them flexible again. Laura http://practical-homeschooling.org www.laurascoolstuff.com http://www.laurascoolstuff.com On Thu, Jun 10, 2010 at 9:04 AM, Janice Nichols jan...@centurytel.net wrote: Also the baclofen! Good luck and keep in touch in New York. Are you going to live
[TMIC] Neuro appt. and Medicare question
I saw my neuro yesterday and he finally got to see that things are not maintaining but actually are getting worse. I've tried to tell him in my last 2 visits but he didn't get to see any physical difference but yesterday my body finally gave him a full display. He got to see my L hand give him a Vulcan salute,a good 30 seconds of an Elvis demos with my R leg spasming, and my walk being more unsteady! He ordered MRIs of the C, T, and L regions of the spine. However, when his staff was scheduling the MRIs, they told me it was Medicare's requirements to have the only 1 set of MRIs section a day. Has anyone had any MRIs since being on Medicare? Is this true - only 1 section at a time? Seems unbenefical in time and money! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Neuro appt. and Medicare question - FYI
Todd, thank you for the link but I couldn't find the answer. I just got off the phone with my Medicare provider, Amy. Amy said that IF the first test is inconclusive then another test needs to be done. It maybe that if nothing is found on the C section, with the second MRI I could possibly get the T and L sections. I just hate going 3 times because the MRIs are to be done without and with dye. That much dye in so short of a time just doesn't seem as it would be good for me. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, June 8, 2010 3:07:11 PM GMT -05:00 US/Canada Eastern Subject: Fw: [TMIC] Neuro appt. and Medicare question I haven't hear of this before. This is from the medicare handbook page 15. Hope this helps, Todd in CC, TX http://www.medicare.gov/Publications/Pubs/pdf/10116.pdf Page 15 Diagnostic Tests, X-rays, and Clinical Laboratory Services Medicare Part B covers diagnostic tests like CT scans, MRIs , EKGs, and X-rays when your doctor or health care provider orders them as part of treating a medical problem. Medicare also covers clinical diagnostic laboratory services provided by certifi ed laboratories enrolled in Medicare. Diagnostic tests and lab services are done to help your doctor diagnose or rule out a suspected illness or condition. Medicare doesn’t cover most routine screening tests, like checking your hearing. Medicare covers some preventive tests and screenings to help prevent, fi nd, or manage a medical problem. For more information, see Preventive Services on page 33. In 2010, YOU pay 20% of the Medicare-approved amount for covered diagnostic tests and X-rays done in a doctor’s offi ce or independent testing facility. You pay a copayment for diagnostic tests and X-rays in the hospital outpatient setting. You pay $0 for Medicare-covered lab services. In 2010, YOU pay 20% of the Medicare-approved amount for covered diagnostic tests and X-rays done in a doctor’s offi ce or independent testing facility. You pay a copayment for diagnostic tests and X-rays in the hospital outpatient setting. You pay $0 for Medicare-covered lab services. --- On Tue, 6/8/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Neuro appt. and Medicare question To: TMIC-LIST TMIC-LIST@eskimo.com Date: Tuesday, June 8, 2010, 8:08 AM I saw my neuro yesterday and he finally got to see that things are not maintaining but actually are getting worse. I've tried to tell him in my last 2 visits but he didn't get to see any physical difference but yesterday my body finally gave him a full display. He got to see my L hand give him a Vulcan salute,a good 30 seconds of an Elvis demos with my R leg spasming, and my walk being more unsteady! He ordered MRIs of the C, T, and L regions of the spine. However, when his staff was scheduling the MRIs, they told me it was Medicare's requirements to have the only 1 set of MRIs section a day. Has anyone had any MRIs since being on Medicare? Is this true - only 1 section at a time? Seems unbenefical in time and money! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Neuro appt. and Medicare question - FYI
Regina, I didn't know about the dye until this morning when the neuro's office called and told me because they needed more than 24 hrs to process. So, I had to reschedule the last MRI for a week from tomorrow. I was so surprised about the dye for contrast, I didn't even think to ask about that. I was surprised about the Medicare rules and plan to write my Congress people regarding this rule - especially with something like MRIs of the spine and the need for the dye for contrast views. This to me is a waste of time and money NOT to mention the possible health concerns! Sounds like BIG CORP at work again just to gain a good bottom line! What bothers me is that the dye has been linked to renal problems. According to an article on the web The most serious of the complications or side effects of gadolinium is with the development of Nephrogenic Systemic Fibrosis (NSF) or Nephrogenic Fibrosing Dermopathy (NFD). Both of these diseases can be very serious and life changing. Just what I need, another life changing event! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Regina Rummel regina...@sbcglobal.net To: CANDIS KALLEY cakal...@embarqmail.com Sent: Tuesday, June 8, 2010 9:30:09 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Neuro appt. and Medicare question - FYI Candy, Did you mention this to your neuro? What did he/she say about this? This is news to me. R --- On Tue, 6/8/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: Re: [TMIC] Neuro appt. and Medicare question - FYI To: TMIC-LIST TMIC-LIST@eskimo.com Date: Tuesday, June 8, 2010, 1:36 PM Todd, thank you for the link but I couldn't find the answer. I just got off the phone with my Medicare provider, Amy. Amy said that IF the first test is inconclusive then another test needs to be done. It maybe that if nothing is found on the C section, with the second MRI I could possibly get the T and L sections. I just hate going 3 times because the MRIs are to be done without and with dye. That much dye in so short of a time just doesn't seem as it would be good for me. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC tmic-list@eskimo.com Sent: Tuesday, June 8, 2010 3:07:11 PM GMT -05:00 US/Canada Eastern Subject: Fw: [TMIC] Neuro appt. and Medicare question I haven't hear of this before. This is from the medicare handbook page 15. Hope this helps, Todd in CC, TX http://www.medicare.gov/Publications/Pubs/pdf/10116.pdf Page 15 Diagnostic Tests, X-rays, and Clinical Laboratory Services Medicare Part B covers diagnostic tests like CT scans, MRIs , EKGs, and X-rays when your doctor or health care provider orders them as part of treating a medical problem. Medicare also covers clinical diagnostic laboratory services provided by certifi ed laboratories enrolled in Medicare. Diagnostic tests and lab services are done to help your doctor diagnose or rule out a suspected illness or condition. Medicare doesn’t cover most routine screening tests, like checking your hearing. Medicare covers some preventive tests and screenings to help prevent, fi nd, or manage a medical problem. For more information, see Preventive Services on page 33. In 2010, YOU pay 20% of the Medicare-approved amount for covered diagnostic tests and X-rays done in a doctor’s offi ce or independent testing facility. You pay a copayment for diagnostic tests and X-rays in the hospital outpatient setting. You pay $0 for Medicare-covered lab services. In 2010, YOU pay 20% of the Medicare-approved amount for covered diagnostic tests and X-rays done in a doctor’s offi ce or independent testing facility. You pay a copayment for diagnostic tests and X-rays in the hospital outpatient setting. You pay $0 for Medicare-covered lab services. --- On Tue, 6/8/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Neuro appt. and Medicare question To: TMIC-LIST TMIC-LIST@eskimo.com Date: Tuesday, June 8, 2010, 8:08 AM I saw my neuro yesterday and he finally got to see that things are not maintaining but actually are getting worse. I've tried to tell him in my last 2 visits but he didn't get to see any physical difference but yesterday my body finally gave him a full display. He got to see my L hand give him a Vulcan salute,a good 30 seconds of an Elvis demos with my R leg spasming, and my walk being more unsteady! He ordered MRIs of the C, T, and L regions of the spine. However
[TMIC] Additional Websites of interest
I have posted several sites to newbies, but I have a couples more for any that would be interested. http://newmobility.com/ http://www.spinalcord.org/ Plus if you use Igive.com for searches you can contribute money to TMA. http://www.igive.com/ Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Omega 3 and muscle convulsions
Dalton, May I ask why fish oil? Is it due to vit. D or something else? I had a blood test for vit. D and had about 1/3 of recommended levels. The pain levels decease some as the levels of vit. D increase. However, I have to take 20,000 IU daily of vit. D this is in addition to the vit. D in my women's daily vit. and the products and foods I consume that have vit. D naturally and infused. At this level of consumption, I keep the vit. D level at the low end of the recommended scale. TM is an autoimmune disease and vit. D is very important to the immune system. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Dalton Garis malugss...@gmail.com To: Ruben Dale Towery rdtow...@southernco.com, tmic-list@eskimo.com Sent: Friday, June 4, 2010 10:03:11 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Omega 3 and muscle convulsions My brother just informed me that there is a link between fish oil and nerve inflammations. I have a bad back even before TM mow it is a neon sign inviting any biologically active agent inside. I was without the fish oil for about 5 days because I had run out. No spells for 8 days. I got back on the omega 3—which I take for depression—and within a couple of days I got a convulsive spell lasting for 6 hours, the worst one yet. Then I awoke this morning and spent another two hours being alternatively as stiff as an oak plank to collapsing in a chair. Has anyone else heard of their being some kind of link between using high dosed of fish oil and exacerbating inflamations? Dalton Garis Abu Dhabi/New York On 4/6/10 5:28 PM, Towery, Ruben Dale rdtow...@southernco.com wrote: I just wanted to thank everyone for their responses to my questions. I am so happy that I found this email list. I wanted to elaborate on myself and how TM has affected my life with you guy/gals. As I mentioned before I have been dealing with chronic back pain since about February of 2009. I saw multiple doctors for this and and a bunch of MRI's, other scans, and tons of blood work done and none of them could figure out what was going on. Finally back in November my rheumatologist and my physical medicine doctor decided, very reluctantly I must say, that I had Fibromyalgia. So myself and my wife along with my doctors started treating my symptoms as this. Although going through this process of treatments, nothing was getting better and my upper back was seeming to get worse at times. I just started to learn how to deal with the pain and mental aspects associated with the Fibromyalgia. During all of this time, I went into a deep depression and started having major anxiety and panic attacks and this really started affecting my relationships with my wife and kids, and also started causing major issues at my work to the point where I was almost terminated from my job. Luckily I have a great boss who went to bat for me knowing that I had something medical going on that the doctors had just not been able to determine yet. Then on April 22 of this year, I woke up with numbness, pain, and tinkling in my upper legs and buttocks area. I dismissed this as the Fibro had just moved to a different location. I drove myself to work and after parking my truck in our deck I started walking towards our crosswalk and got to where I could no longer control my legs and basically felt paralyzed. Two gentleman where nice enough to get my truck for me and I was able to drive myself to the emergency room. When I arrive there I was having a full blown panic attack and was scared to death. The doctors there calmed me down and sent me home and dismissed it as being fibro pain. I called my rheumatologist and he told me to see my physical medicine doctor. I got in to see him the next day and after an MRI they saw the inflamation in my spine and it was located on the conus area of my spinal cord. They immediately admitted me into the hospital and started me on steroids and did multiple MRI's, a spinal tap, and tons of blood work. I spent 4 days there before they sent me home under the care of my neurologist. After spending time recovering at home and also seeing a nuerology specialist at UAB, I was seeming to be getting better. I was able to start getting around with the assistance of a cane. After 3 weeks my neurologist decided that it would be appropriate for me to drive again and go back to work. After a week of this, I was starting to get worse. Also during the time I was off work I saw a neuro psychologist to try and determine what was going on with me having the memory loss and other cognitive issues. After his testing it was determines that I am suffering from major
Re: [TMIC] new member
Kelly, I've had TM since Jan. 5, 2006. Here's some websites that might help with TM and related. Help for meds can usually be done with/through the manufactures patient assistance departments. For general info with help try these website http://www.disabilityhelpsite.com/ http://www.christopherreeve.org/site/c.ddJFKRNoFiG/b.4048063/k.BDDB/Home.htm For Depression and help with nerve pain, I take Cymbalta. Try these websites: http://www.cymbalta.com/index.jsp Lilly is good about help with meds so try - http://www.lilly.com/responsibility/servingpatients/programs/ Another website for help with meds - http://www.pparx.org/ Some other meds are: Tizanidine (Zanaflex) for muscle spasms; Hydroco/APAP 7.5-500 Tab for break-thru pain; Tramadol HCL 50mg for pain, it is a narcotic; Gabapentin is a genetic for Lyrica - Try http://www.lyrica.com/index.aspx?source=yahooHBX_PK=s_lyricaHBX_OU=51o=44962814|221361396|0 and Voltaren Gel for pain in shoulder, arms, elbows, hands and legs. I also use an Electric Muscle Stimulator (EMS) for pain especially in my lower back and left neck/shoulder. I did use a TENS which is constant muscle stimulation but I've found that they EMS is better because I can program off/on periods of muscle stimulation. The muscles/nerves seem to like several seconds between the electrical pulsing. The EMS also delivers the stimul I've found that heat helps so I have multiple heating devices - heating pads, seat back covers with massage heat (Homedic), back braces with removable gel pads that can be heated in the micro wave or chilled in refrig/freezer (which I never do because cold is torture to me). I also have back packs that are heated in the micro wave (I believe they are called Bed Buddy). For good info on TM try: http://www.hopkinsmedicine.org/neurology_neurosurgery/specialty_areas/transverse_myelitis/conditions/ http://www.mayoclinic.com/health/transverse-myelitis/DS00854 http://www.answers.com/topic/transverse-myelitis http://www.ninds.nih.gov/disorders/transversemyelitis/detail_transversemyelitis.htm For info on SSD and SSDI help and info: http://www.disabilitysecrets.com/ http://www.disabilityclaimssolutions.com/newsletters.html http://groups.yahoo.com/group/Disinissues/ http://en.wikipedia.org/wiki/Employee_Retirement_Income_Security_Act http://www.ddbchicago.com/Quick%20links/federal-disability-laws.html http://www.lectlaw.com/tgvb.htm http://erisa.petti-legal.com/ http://www.lectlaw.com/files/gvb07.htm http://www.govbenefits.gov/ TM is a cousin of MS so much of the info regarding MS will apply to TM http://www.medhelp.org/health_pages/Multiple-Sclerosis/General-Principles-of-Treating-Neuropathic-Nerve-Pain/show/452?cid=36 I'm not sure if you were working or if so, if you had LTD through your employer. If you do, be prepared to fight them. Most employer based LTD insurance companies will try to quit paying after 2 years. I recommend that you join http://groups.yahoo.com/group/Disinissues/ This website has many great links and recommendations for fight the LTD companies. I hope some of the info I've covered will help you. To help explain to your family and friends how TM affects you, read and explain by the Spoon Theory - http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice Nichols jan...@centurytel.net To: Kelly Jean Craig n2resea...@yahoo.com, tmic-list@eskimo.com Sent: Friday, June 4, 2010 11:57:45 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] new member Kelly Jean, I have had TM since January of 2007. I just turned 60 the month before. I was paralyzed from the shoulder blades on down, but with proper meds, much physical therapy, and no one telling me that I would never do whatever again, I can walk on my own, sometimes with my cane. The banding is not that much of a bother now either. I was lucky to be living in a medical center with excellent doctors. By the 3rd day, they knew it was TM and had me on steroids immediately and for quite a while. It seems to have taken quite a while to get your diagnosis and start on the proper meds, but don't give up. My husband never told me the doctors didn't think I would ever walk again - it would have ruined my fighting spirit. If you feel you are not being treated properly, there are those that have gone to specialized places that have done research on the treatment of TM's damage to the body. Please keep emailing in to us. There is a lot of information that I
Re: [TMIC] Newly Diagnosed and Need GuidanceHydrc
Ruben - sorry to welcome you to our elite club. I reluctly joined the TM club on 1/5/2006 (T10 - T12) and then decided to become a fully fledged member by having a second attack by awakening on the 3 day home from the hospital, 1/30/206, which left me totally paralyzed from the neck down. With the 2nd attack, I had Plasma Exchange treatments - 7 in the hospital over 15 days and 7 as outpatient over 3 months. I can now walk and drive but most things that I do is limited to 15 minutes or so - therefore alot of things have to be planned such a laundry, dish washing and I try to do some house work but never can get a clean house. I live alone and collect a good SSD benefit but in doing so I am a couple of hundred dollars over the limit for additional help from the state and other benefits by making too much - between a rock and a hard place. I do however, realize that I'm much better off financially than a lot of others. I walk (like a drunken sailor) in the house by using furniture, walls, doors, counters, etc. I use a cane outside for no more than 20 - 30 feet, a rollator (4 wheels with a seat - HUGO brand) for longer distances up to 50+ feet or so otherwise, I need an electric scooter or wheelchair. I have lost about 50% of strengthen in my R arm/hand and left leg. I only have 30% of strength in L arm/hand and R leg. I lost most of my upper strength with the 2nd attack. Since then I have been dx'd with Sjogrens and SLE lupus - in other words, I have a lousy autoimmune system. I recommend that you see a rheumatologist. Most of us have found that our vit. D levels are low. Mine was less than 1/3 of the recommended levels. I now take 15,000+ units per day to keep my levels on the lower end of normal. Also, a lot of us have low vit. B12 levels. Also, because of the steriods that have been used to reduce the lesions, we have issues with bone density. I can't stand or walk at max for no more than 30 minutes or so and then I'm sweating, breathing heavy, and about to collapse. Most of my time is spent in my recliner or anti-gravity chair, or in bed. I never seem to be able to do everything physically that my minds thinks I can do. Life has made a 180 degree turn around. I use to do all my own yard work, even spreading 50lbs of fertilizer, top soil, decorative rocks, mulch, etc. Now lifting a gallon of milk seems heavier than any of those. After my first attack, I was like a 500 race driver in a manual wheelchair, whirling here there and everywhere - the PT therapist threatened to take my wheelchair away several times - it felt so good to be able to run after 2 weeks of being bed ridden. But after the 2nd attack, I could barely move the wheel chair before becoming exhausted. Fatigue is always there - some days just fixing a sandwich (2 slices of bread and a couple of pieces of meat - no condiments just throw some meat on the bread and put everything away) is exhausting - I've fallen asleep trying to eat. Even though I'm single (for 25+ years), a microwaved meal, fast food, etc. was only if I had worked a 14-16 hour day. Now, going to the Dr. or grocery shopping always requires 2 or 3 days to recover. Most of the problems you are experiencing are normal for TM'ers. I'm not sure what kind of help you need, please write and tell us more of your story or ways that you need help. That way we will know more of how to hwlp. Help for meds can usually be done with/through the manufactures patient assistance departments. For general info with help try these website http://www.disabilityhelpsite.com/ http://www.christopherreeve.org/site/c.ddJFKRNoFiG/b.4048063/k.BDDB/Home.htm For Depression and help with nerve pain, I take Cymbalta. Try these websites: http://www.cymbalta.com/index.jsp Lilly is good about help with meds so try - http://www.lilly.com/responsibility/servingpatients/programs/ Another website for help with meds- http://www.pparx.org/ Some other meds are: Tizanidine (Zanaflex) for muscle spasms; Hydroco/APAP 7.5-500 Tab for break-thru pain; Tramadol HCL 50mg for pain, it is a narcotic; Gabapentin is a genetic for Lyrica - Try http://www.lyrica.com/index.aspx?source=yahooHBX_PK=s_lyricaHBX_OU=51o=44962814|221361396|0 and Voltaren Gel for pain in shoulder, arms, elbows, hands and legs. I also use an Electric Muscle Stimulator (EMS) for pain especially in my lower back and left neck/shoulder. I did use a TENS which is constant muscle stimulation but I've found that they EMS is better because I can program off/on periods of muscle stimulation. The muscles/nerves seem to like several seconds between the electrical pulsing. The EMS also delivers the stimul I've found that heat helps so I have multiple heating devices - heating pads, seat back covers with massage heat (Homedic), back braces with removable gel pads that can be heated in the micro wave or
Re: [TMIC] alive
Jeron, I couldn't agree more with everything that Barbara said. You shouldn't shut those out who love and care about you. I think you should get in touch with Dr. ASAP. It sounds as if you are going through withdrawal with the added depression. There is so much that you can do - write congress with the problems that we face not only with our TM problems, BUT now is a great time to hammer away at Congress for the oil spill, the Financial Reform, or whatever you feel strongly about; the up coming mid term elections will allow us to donate time in calling or sending info out, etc. These are things that I know that I can do when and if I feel like it from one day to another. I crochet - it takes me a month or so to finish one afghan because of my hands cramping up so some days I can only work on it for 15 min. or less. I donate the afghans to a group here that hands them out to people in the homeless, hospitals and nursing homes. Perhaps you could do some kind of wood working such as bird houses or such and then donate them or just hang them for your own enjoyment. Do you have a pet? I would be lost without my little boy, Zeus. He's a mighty 7 lbs. of joy and love. He really is the only reason that I get up some days. I have been divorced for 25 years and live by myself. It is really difficult sometimes especially when I don't have the money to have someone come in and help. I went shopping yesterday and this is my chill day because I am so exhausted. I can get most of the groceries in, especially those that need the fridge or freezer but I still have a couple of bags out in my van which I'll bring in in the next 2 or 3 days. I always said that if I became ill with a terminal or devastating disease, I'd drive myself off a cliff. But, now with TM, I've rethought that. There are things that I can do. Some days, I have to force myself to get up to feed my Zeus and myself, I hurt so bad that all I want to do is just knock myself out and sleep just to keep from having to deal with the pain. Days like that, I am glad that I am alone because I don't have to worry or answer to anyone. Please don't give up - you can't let TM win. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara H. barbara...@gmail.com To: j ra rumc...@hotmail.com Cc: Transverse Myelytis tmic-list@eskimo.com Sent: Thursday, May 20, 2010 11:31:16 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] alive I am thinking of someone I knew with cancer who felt that only someone else with cancer could truly understand what he was going through. While that is true on one level, on another it wounded his wife that he seemed to be shutting her out. I would urge you not to shut others out of your life. If my husband was the one with TM and he shut me out, even in an effort to spare me pain, it would be devastating to me.That's what for better or for worse, in sickness and in health is all about -- pulling together, supporting each other through the hard times as well as enjoying the good times. It bothers me when any of my loved ones considers themselves a burden. It's usually not good to quit some of these medications suddenly. I would see your doctor and see about trying different kinds or combinations to see if you can't get better relief. Barbara H. On Thu, May 20, 2010 at 4:10 AM, j ra rumc...@hotmail.com wrote: Have anyone of you ever wondered what it would be like without this? I've put so much pressure on my family that I now know what loneliness feels like. I haven't seen my wife for months and I prefer it this way. I have so much pain and it's mine and mine alone to bear. I have fibromyalgia, vasculitis and TM.and I just quit pain meds one week agojust to see what it all feels like again. I'm suffering from withdrawal symtoms of valium, nuerontin, cymbalta and seroquel all at the same time. I'm just about given up hope.what's the use...I can't even feel the earth underneath my feet anyway, with or without them. I've decided to live until death with the pain and the agonybe it alone or with my shadow. I love my wife too much to see her cry again for me in a hospital bed...so I've decided to go it aloneno cure...no questions...no more burden to my loved ones. I now live alone and try to get by each dayone day at a time, until the end.I give up! Sorry to all of you who have been there before for me. Jeron Hotmail: Trusted email with powerful SPAM protection. Sign up now.
Re: [TMIC] TM
I don't think that where we lived when TM struck is the only underlying factor. I was watching CNN and the doctor, Dr. Grupa?, said that they have studied the cord blood of newborns and they have found that the cord blood contained over 200 chemicals, not body chemials but harmful chemicals - contaminated newborns is what they called the newborns . The Dr. also said that there are thousands of chemicals that are in our food, air, clothing, cleaning supplies, etc. that have NOT been studied to make sure that they are not harmful. A Congressman has submitted a bill that will not allow any chemical to be used until the chemical is proven not harmful - as it stands now, a chemical is put into use and used until it is proven to be harmful! So we are all guinea pigs for the industries. For myself I believe that I had the bad genes for my auoimmune sstem but also just 75 days before TM struc me, I had a botched surgery then a follow-up successful surgery 30 days later. I n between the surgeries, I had an allergy reaction to the meds that they gave me. After the successful sugery, I went back to work early - due to deadlines which resulted in stress! Added to that were the holidays stress - Thanksgiving and Christmas. I think another factor was that the hospital where I had the botched successful surgery was under major remodeling - the surgery rooms where right next to a major area being remodeled. I grew up in Indianapolis, IN. I can rememer the different smells in the air - just to name a couple, a creasol pole coating factory, a couple of slaughter houses, meat processing, medical processing, bakeries (Wonder bread and others). I lived there for over 20 years. My daughter was born there and as a baby she had so many attacks of broncitis (sp?) BUT as soon as we moved here in SW FL when she was 2, the attacks stopped. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Thursday, May 6, 2010 10:55:00 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] TM After the awful news Janet Dunn has given us, I am wondering if where we live in the US has any relevance. I realize that there are those in our group that are from other countries and I am asking them along with our US citizens to just send me your name and the city and state you were living in when TM attacked you. I hope you don't mind my asking you to do this, but I think it would be very interesting if we found a certain area that was heavy with TM or very light with TM. Thank you, Janice
Re: [TMIC] Children
I'm going to chime in here even though I'm not a medical professional. TM is probably not directly hereditary but whatever genes predict the autoimmune system will be passed on - just like the genes for cancer, poor eye sight, etc. My paternal grandmother had digestive problems, I too have had these, the only one of 4 kids to have these. My maternal great-grandfather and my paternal grandfather had mental problems, which what would probably be called Schizophrenia which my sister was dx'd with. My brother died of cancer, my maternal granfather died of cancer. Just as any thing in life, our ancestry and enviroment can't be predicted. That's why the study and research in genetics is so important along with cleaning up our enviroment. Just my thoughts. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janet Dunn j.d...@shaw.ca To: tmic-list@eskimo.com Sent: Sunday, March 21, 2010 10:09:39 AM GMT -05:00 US/Canada Eastern Subject: FW: [TMIC] Children Ok, Janice, first day of spring or not, it is freakin cold here this morning. Minus eleven, with the wind-chill bringing it to -23C. And it is windy! An inside day for me for sure, I had planned on going fishing – yesterday it was beautiful and warm. So today with the cold, my legs are yelling at me. As for the familial thing: I was told no, it is not familial. However, my 15 year old son has extreme difficulties with his legs, the pain, etc. They have ruled out everything – the good and the bad – but he still has the same kind of pain that I do. He has a small spot on his spine at T2, but of course: “there is no way that can be giving him the symptoms he describes” I am hoping that it is not hereditary, as I have four children. Interestingly enough, when I was diagnosed, the afflicted son was the only one to ask that question! Have a great day. Janet From: Janice Nichols [mailto:jan...@centurytel.net] Sent: March 21, 2010 5:29 AM To: tmic-list@eskimo.com Subject: [TMIC] Children Good Morning. It is the first day of SPRING! I have a question for you smarter than me TM'ers. In the future, do we have any information on chances for our children ending up with TM also? Janice
[TMIC] Senate Bill Extension
Here's some news for Medicare/Medicaid extension on PT/OT http://www.spinalcordadvocates.org/temporary-reprieve-for-medicare-recipients-in-need-of-critical-therapies/ Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Canadian Pharmacies Notice Fwd
Barbara, I'm going to use the Canadian pharmacy for that dougnut hole time - which usually occurs about June/July for me. I looked and compared against the Walmart price and found that I will be paying the same as I am now - approx. $300 per month vs the $850+ in the dougnut hole costs. If I use a couple of generic brands there's also additional savings but I'm not sure about using those. I use WalMart for my prescriptions. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara Alma balmat...@aol.com To: cakal...@embarqmail.com, tmic-list@eskimo.com Sent: Friday, March 19, 2010 12:06:52 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Canadian Pharmacies Notice Fwd Has anyone compared the cost of the canadian pharmacy to the prices at Costco? From what I understand, Costco has got the best prices around. I don't know about mailing though. I have an awesome co-pay situation right now so haven't done any cmparing on my own behalf, just wondering about the rest of the group. Hugs, Barbara A in Auburn CA -Original Message- From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Wed, Mar 17, 2010 12:44 am Subject: [TMIC] Canadian Pharmacies Notice Fwd I received the attached. Looks as if the American pharmacies are getting their way one way or another! Just throw Americans under the bus AGAIN and AGAIN! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Forwarded Message - From: customerserv...@northwestpharmacy.com To: cakal...@embarqmail.com Sent: Wednesday, March 17, 2010 2:24:34 AM GMT -05:00 US/Canada Eastern Subject: NorthWestPharmacy.com - Zero Cost Shipping till April 14th - See Details Inside You're receiving this newsletter because you created an account with NorthWestPharmacy.com. Not interested anymore? Unsubscribe NorthwestPharmacy.com In this issue • Free Shipping • Google, MSN Bing Block American's Access • NorthWestPharmacy.com Does NOT Participate in Spam In other news NorthWestPharmacy.com Does NOT Participate in Spam NorthWestPharmacy.com strictly guards your privacy and does not engage in any spam email campaigns whatsoever. We will never provide your information to any third party unless it is absolutely necessary to fill your order. For example, we will provide your shipping information to the licensed pharmacy that will ship your order but not to any third parties who are not part of the order filling process. All our vendors are subject to strict confidentiality agreements to safeguard your data and they have all been vetted by our in-house New York State lawyer. Unsubscribe Not interested in receiving our newsletters and special offers? Unsubscribe. GET FREE SHIPPING !!! Header Get Free Shipping on All Orders over $200 with NorthWestPharmacy.com – Offer valid now until April 14, 2010 but only when entering promo/coupon code NWP98989 during checkout. (Cannot be combined with other special offers.) Google, MSN Bing Block America's Access to Licensed Canadian Pharmacies Header Google has recently announced that they will no longer display advertisements in the sponsored listings from legitimate Canadian pharmacies on Google.com in the USA while MSN and Bing have begun de-listing licensed Canadian international pharmacy websites from their search pages altogether. This means that NorthWestPharmacy.com will not display on the Google sponsored listings as we have done so prominently and successfully for years along with many other Canadian pharmacies. Only American pharmacies with VIPPS certification will display in these listings. Of course, VIPPS pharmacies often charge exorbitant amounts of money for their products while NorthWestPharmacy.com believes in fair pricing for pharmaceuticals. It appears that the Big Pharma machine has co-opted Google into only allowing their preferred and more expensive pharmacies to advertise. Even worse is that Bing and MSN are now de-listing licensed Canadian international pharmacy websites from their search pages altogether. That’s right! As of today , Bing and MSN have censored their search results to remove several reputable licensed and legitimate Canadian international pharmacy websites which gives us reason to believe that all such companies will soon be removed and America will not be able to find any relevant legitimate Canadian international pharmacies on MSN or Bing at all. Isn’t it curious that only international pharmacy websites which ship to Americans are the ones that seem to be getting de-listed? How does this affect you and your
Re: [TMIC] March Birthdays
Happy Birthday March babies! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara H. barbara...@gmail.com To: TMIC tmic-list@eskimo.com Sent: Sunday, February 28, 2010 11:50:38 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] March Birthdays It's a short list this month! Happy birthday to the March kids! Please send any additions or corrections to tmic-list@eskimo.com . 3-3 Marsha Scholes ( marshab...@aol.com ) 03.05 Bettie Imus ( bettie5...@aol.com ) 3-7 Sue Mattis ( bobsue6...@adelphia.net ) 3-8 Mike Hammond ( 3jmhamm...@clearwire.net ) 3-15 Sandra Melville ( luth...@comcast.net ) 3-17 Joy S. ( joyst...@aol.com ) 3/24/99 Rachel ( dmdoro...@wideopenwest.com ) 3/24 john h (JOHNLOVESKARAOKE) 3/26 Jane Elrod ( celr...@aol.com ) 3/30 Gary ( gbthomas8...@sbcglobal.net ) 3-31 Jan H ( jmh1...@sbcglobal.net )
Re: [TMIC] Vitamin D advice sought
Akua, I was dx'd with osteoporosis, SLE (Lupus), Sjogrens besides the TM and I have an ileostomy (my colon, large intestine, removed) which means that I don't absorb many of the nutrients from food, meds, etc. I'm also milk intolorant due to the ileostomy . If I'm out in the sun for any length of time, I develop rashes that are very hard to get rid of and itch like crazy (Lupus). So my intake of vit. D is very limited. My rheumatologist did a blood test for Vit. D. I had a reading of less than 10 . He prescribed the 50,000 IU 1X a week along with 8,000IU daily for 10 weeks. I had 3 rounds of the prescriptions of the 50,000IU but had to increase the daily intake to 16,000IU before I got a reading of 30. Here's a website that may help understand the importance of vit. D: http://www.webmd.com/diet/vitamin-d-deficiency also: http://en.wikipedia.org/wiki/Vitamin_D#Overdose Notice that vitamin D could play a role in the prevention and treatment of . . . MS which is a cousin to TM. Vit. D is very important to the immune system AND helps in prevention of many diseases including cancer. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Akua a...@artfarm.com To: lbieh...@earthlink.net, tmic-list@eskimo.com Sent: Thursday, February 25, 2010 10:56:00 PM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Vitamin D advice sought Dear Lori, This Helps A LOT!!! sigh. We were educated by ourselves (old Richie Haven song) I'm trying hard to be my own best physician. That D prescription sounded high. I've got to read more. Akua 50,000 UI?? I have low D and I take 2,000 UI a day for 2 months and then am to reduce to 1,. I never heard of taking that much and have no clue what the consequences are. My cholesterol is low, total of 119. My hdl is in the 80's. I raised it with fish oil, seemed to help me a ton. I also am lactose intolerant and I use lactose free skim milk with added calcium. I am really used to it now and have been drinking that for over 18 years. Sounds like your sugar is low if you ate an apple and then had a reading of 93, which is normal if you are fasting and have eaten nothing. An apple would raise your sugar quite a bit. Hope this helps. Lori From: Akua [mailto:a...@artfarm.com] Sent: Thursday, February 25, 2010 8:23 PM To: tmic-list@eskimo.com Subject: [TMIC] Vitamin D advice sought I need Vitamin D -- there's no sun I'm anemic low red blood cell count my cholestrol is 163 (118-200) my hdl is 36 (40-69) my ldl is 113 (88-160) she , the nurse practitioner , wrote: eat salmon olive oil almonds and walnuts-- all of which i do!!! And she suggested red wine to increase my hdl which i have no way to get since there is no paratransit here, I'm unable to shop for myself ... and she said to watch my intake of trans fats.I'm really PROUD of these results. though skewed they are a testament to my efforts to monitor and control my consumption though this is year 5 in the wheelchair TM smashed me into and proud of myself for INSISTING that I get a blood then and there. She told me it would be skewed because I hadn't fasted. I didn't think that eating an apple and having some plain tea would mess it up and it doesn't look like it did. i only use olive oil in cooking and since i'm lactose intolerant what other fats these used to be via cheese, whipped cream, ice cream are decades in the past. my blood sugar--- whatever that is, is 93 and deemed normal. The almond breeze was making me sick. i LOVEd it but now that i've stopped drinking it my discomfiture has ceased. thing is there is NOTHING for me to drink anymore. It's too cold for grape juice and Silk's soy milk made me sick too. I miss coffee but had to give it up 18 months ago because it gave me palpitations. I drink hot water flavored with cinnamon\ and cloves and some hibiscus or honey bush tea (related to rooiboos), but it's BORING i miss milky substitutes. I was chewing calcium and D but ran out of it and it took 3 weeks to get some more. I also take folic and B 12 and have taken D since i was paralyzed-- but i guess it's not enough. She's ordered prescription levels of D--- I have to do more reading---I'm afraid to take prescription doses of anything. Are there downside to prescription levels of D (50,000)? --
Re: [TMIC] Gov. Disability Info
Thank you all for lettig me know that this website was beneficial. There's so much info out there and I, for one, can't afford the physcial and time limits to find it all. I figure that we need to let each other know when we find something that maybe useful. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: CANDIS KALLEY cakal...@embarqmail.com Sent: Tuesday, February 23, 2010 2:31:54 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Gov. Disability Info Thank you so much for this wonderful website. Todd in Corpus Christi, TX --- On Mon, 2/22/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Gov. Disability Info To: tmic-list tmic-list@eskimo.com Date: Monday, February 22, 2010, 8:16 AM I'm not sure if any of you need this info but just in case: http://www.govbenefits.gov/govbenefits_en.portal?_nfpb=true_pageLabel=gbcc_page_category_nfls=falsebid=635mode=report You can get info for each state and learn where and what type of help is available to/for you. We do have a spinal cord injury resulting from TM. I would recommend that, if you haven't, that you signup for u0pdates in the laws. I hope all is well weith each and everyon. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] Gov. Disability Info
I'm not sure if any of you need this info but just in case: http://www.govbenefits.gov/govbenefits_en.portal?_nfpb=true_pageLabel=gbcc_page_category_nfls=falsebid=635mode=report You can get info for each state and learn where and what type of help is available to/for you. We do have a spinal cord injury resulting from TM. I would recommend that, if you haven't, that you signup for u0pdates in the laws. I hope all is well weith each and everyon. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] OT Cell Phone
AARP has a cell phone discount site. I'm currently paying $49.00 a month for my cell phone. I just signed with consumer Cellular - with a base price of $20.00 per month for 250 minutes per month This is $19 less per month with what I'm getting at Verizon. You do not need to be an AARP member but you do get a discount if you are. If you are interested, h ere's the website: http://www.consumercellular.com/947 Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] Stem cells injected into spinal cord
I just saw First stem cells injected into spinal cord roll by on CNN - has anyone seen any news on this? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] Gabapentin ??
I started a week ago on Gabapentin 300 mg 1X daily but I take approx. 1/2 in the am mixed with my yogart and the other half in applesauce at night. The Gabapentin does help with some of the nerve pain - when I'm awake meaning that it does make me sleep much more - 4 to 12 hours at a time. I was just getting to the point of only sleeping 8 to 10 hours at night with a 2 to 4 hour nap. I also find that I'm dreaming as I'm waking up - something that I haven't done in the last 4 years since TM hit. My neuro told me to take 1 capsule the first week, 2 the next week, then 3 from there on. I called today and told the nurse that because it was making me so tired that I was going to stay on the 1 capsule per day until my body adjusts because I was sleeping way too much and not getting anything else done. I know this will happen because each time I've added a med that has a sleepiness, fatigue effect, within a month or so my body adjusts and I go back to my normal sleep pattern. I believe that I have seen others here thattake Gabapenin and wonder if they have had the same effects? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Gabapentin ??
Yes, I open the capsule - sometimes it takes awhile but I finally get it. I've found that if I twist the capsule it is easier BUT I have to have the capsule over whatever I'm putting it in. I have to cut or open all of my meds because I have an ileostomy ( I had to have all my colon removed due to ulcerated colitist over 35 years ago) and due to that pills and capsules don't desolve but go through me within an hour or so therefore doing nothing. I did read in the phamplet that openin and mixing with soft foods was acceptable but I also remember my mother doing that for my step-father after his stroke because he couldn't swallow anything except soft foods. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: rn11...@yahoo.com To: CANDIS KALLEY cakal...@embarqmail.com Sent: Thursday, January 14, 2010 2:11:25 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Gabapentin ?? Hi, Am I understanding that you are opening a capsule and splitting the contents in half? Cheryl in Easthampton,Mass. --- On Thu, 1/14/10, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Gabapentin ?? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Thursday, January 14, 2010, 1:01 PM I started a week ago on Gabapentin 300 mg 1X daily but I take approx. 1/2 in the am mixed with my yogart and the other half in applesauce at night. The Gabapentin does help with some of the nerve pain - when I'm awake meaning that it does make me sleep much more - 4 to 12 hours at a time. I was just getting to the point of only sleeping 8 to 10 hours at night with a 2 to 4 hour nap. I also find that I'm dreaming as I'm waking up - something that I haven't done in the last 4 years since TM hit. My neuro told me to take 1 capsule the first week, 2 the next week, then 3 from there on. I called today and told the nurse that because it was making me so tired that I was going to stay on the 1 capsule per day until my body adjusts because I was sleeping way too much and not getting anything else done. I know this will happen because each time I've added a med that has a sleepiness, fatigue effect, within a month or so my body adjusts and I go back to my normal sleep pattern. I believe that I have seen others here thattake Gabapenin and wonder if they have had the same effects? Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] sympom check question
I get those electrical shock feelings. My first attack in Jan. 2006 was T10 - T12 and the second attack really got me at C4 - T1. If I reach for something either up or down, I experience shocks and drawing up of muscles in legs and arms. I also gets shocks just sitting in my recliner usually in my L leg which is my better leg. I also have shocks if I'm holding utinsels and trying to cut something or if I concentrate on doing something with my hands. My hands cramp up while the shocking feelng runs up from my hands thru my arms and back again. I've actually pulled forks and knives out of my hands with my mouth because I can't release whatever I've been holding and then I sit on my hands to warm them along with the pressure, my hands will start to relax and uncurl - all this within a couple of minutes but while its going on, it feels like hours. Right now its very cold and humid here in FL and all my symptoms are worse - so much worse. I can hardly move. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: pjv1...@chartermi.net To: randy rankin rj_ran...@yahoo.com, Barbara H. barbara...@gmail.com, Janice Nichols jan...@centurytel.net Cc: tmic-list@eskimo.com Sent: Saturday, January 9, 2010 1:28:12 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] sympom check question Hi Janice I was hit at C4-C6 - just above the bend when I tilt my head backwards. Grace sent a good spine map that I'll try to forward Patti - Michigan Janice Nichols jan...@centurytel.net wrote: How high up did you all get hit by TM? Give me the part of the body, not the #.Thanks, Janice From: Barbara H. Sent: Saturday, January 09, 2010 10:40 AM To: randy rankin Cc: tmic-list@eskimo.com Subject: Re: [TMIC] sympom check question Yes, I have experienced electric shock symptoms in different places. It was most disturbing on the back of my head -- I really thought something was going wrong inside. But it was just a nerve in the muscles misfiring and setting off that jolt. Barbara H. http://barbarah.wordpress.com On Fri, Jan 8, 2010 at 3:39 PM, randy rankin rj_ran...@yahoo.com wrote: I would like to know if any of you have had the following symptom(s) I try to read everything people write and this might have already been addressed Yesterday, I had a power electric shock to my entire right arm to the tip of my fingers. It wasn't a moving sensation. The entire arm just felt like I just grabed an electric wire. The only motion that I made before it happened was to raise my RIGHT arm up to write on a board. I think I raised my head upwards to look at the board. less than two hours later the same even happened to my RIGHT arm except I looked down, from a seated position, and reach to get my cell phone. The second that I touched the phone and just started to curl my fingers around it a more powerful electrical shock hit my entire right arm. It hurt and frightened me. Has anyone exprienced this? The back of my neck has been hurting. It does NOT hurt to move my neck except to look down. I can't stand that.
Re: [TMIC] wireless connect
Maybe what I should have said is a 3G or 4G internet connection card such as advertised on TV by ATT. I have a cell phone with a different company than my land line and if I get a different carrier such as ATT for internet connect then I think I won't have the periods of being cut off from the world. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Alton Ryder a-ry...@comcast.net To: CANDIS KALLEY cakal...@embarqmail.com Sent: Wednesday, January 6, 2010 8:06:18 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Such a device will enable you to connect from anywhere in your house, wirelessly for a laptop, but it has no bearing on how your household connects to the world unless your community has area wireless. Alton, using such stuff for a decade On Jan 6, 2010, at 7:35 AM, CANDIS KALLEY wrote: going to get a wireless connection.
Re: [TMIC] Cymbalta generic Duloxetine
Cymbalta is good for depression AND nerve pain associated with TM. I've been on it for almost 2 years and recommend it. I've found that nothing stops the nerve pain but anything to help bring it down is helpful or at least for me. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice Nichols jan...@centurytel.net To: Patricia Cooley patticoo...@wi.rr.com, CANDIS KALLEY cakal...@embarqmail.com, tmic-list tmic-list@eskimo.com Sent: Saturday, December 19, 2009 4:58:41 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Cymbalta generic Duloxetine I am not at all familiar with Cymbalta, or generic. What all does it do to all of you that you want it so much. What are the main complaints that you need it for? Maybe I should ask my doc about using it. Janice From: Patricia Cooley Sent: Saturday, December 19, 2009 9:42 AM To: 'CANDIS KALLEY' ; 'tmic-list' Subject: RE: [TMIC] Cymbalta generic Duloxetine I believe you still can order from Canada. We have local place that you can go, sign up, and get your meds from Canada. You can also do it on line and they mail your meds to you. You do need to fill out a questionnaire and submit it before you can order the drugs. Check on line by goggling Canada drugs. Patti - Wisconsin From: CANDIS KALLEY [mailto:cakal...@embarqmail.com] Sent: Friday, December 18, 2009 10:44 PM To: tmic-list Subject: Re: [TMIC] Cymbalta generic Duloxetine I don't think that they sell duloxetine here in the US. I found this Canadian website: http://www.northwestpharmacy.com/ProductSearch.aspx?s=cymbalta I can't remember if we can or can not buy prescription drugs from Canada - thanks to BIG PHARMA! If you go this website notice the prices on the generic duloxetine and Cymbalta. Cymbalta for one month is $9 more than I have to pay on Medicare Part D! Also, look at this website - http://www.answers.com/topic/duloxetine It explains why duloxetine isn't sold here in the US - thanks BIG PHARMA FDA - they do (not) work for the people - only the few! The doughnut hole is that point in Medicare Part D where drugs are NOT paid for, in part, by insurance. I also thnk that it is being raised from the $2500 to $3200 threshold for 2010. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Priscilla Keene pkeen...@yahoo.com To: CANDIS KALLEY cakal...@embarqmail.com, tmic-list@eskimo.com Sent: Friday, December 18, 2009 10:00:57 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Cymbalta generic Duloxetine I have the same donut and cymbalta problem. I've never heard of the generic--is it available here? Priscilla (snowed in in TN) From: CANDIS KALLEY cakal...@embarqmail.com To: TMIC-LIST TMIC-LIST@eskimo.com Sent: Fri, December 18, 2009 7:35:57 PM Subject: [TMIC] Cymbalta generic Duloxetine Has anyone used the generic Duloxetine? Canada lists this as a generic and at half the price. Wondering if I should try this during the doughnut hole problems - almost $1100 for all meds during this period. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Cymbalta generic Duloxetine
I don't think that they sell duloxetine here in the US. I found this Canadian website: http://www.northwestpharmacy.com/ProductSearch.aspx?s=cymbalta I can't remember if we can or can not buy prescription drugs from Canada - thanks to BIG PHARMA! If you go this website notice the prices on the generic duloxetine and Cymbalta. Cymbalta for one month is $9 more than I have to pay on Medicare Part D! Also, look at this website - http://www.answers.com/topic/duloxetine It explains why duloxetine isn't sold here in the US - thanks BIG PHARMA FDA - they do (not) work for the people - only the few! The doughnut hole is that point in Medicare Part D where drugs are NOT paid for, in part, by insurance. I also thnk that it is being raised from the $2500 to $3200 threshold for 2010. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Priscilla Keene pkeen...@yahoo.com To: CANDIS KALLEY cakal...@embarqmail.com, tmic-list@eskimo.com Sent: Friday, December 18, 2009 10:00:57 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Cymbalta generic Duloxetine I have the same donut and cymbalta problem. I've never heard of the generic--is it available here? Priscilla (snowed in in TN) From: CANDIS KALLEY cakal...@embarqmail.com To: TMIC-LIST TMIC-LIST@eskimo.com Sent: Fri, December 18, 2009 7:35:57 PM Subject: [TMIC] Cymbalta generic Duloxetine Has anyone used the generic Duloxetine? Canada lists this as a generic and at half the price. Wondering if I should try this during the doughnut hole problems - almost $1100 for all meds during this period. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Age
I was 57 on Jan. 5, 2006 with an additional attack on Jan.30, 2006. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice Nichols jan...@centurytel.net To: tmic-list@eskimo.com Sent: Friday, December 11, 2009 12:35:27 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] Age Hey! I have a request. I was talking to my neuro and he was curious to know the ages that my website friends were when they were hit with TM. Do you all mind sending me that info - even if you only read messages and don't usually respond? I would like to get as many ages to him as possible. I told him you all were a pretty cooperative group! Thanks guys Janice, Missouri
Re: [TMIC] Back on!!!
Mary, Welcome back! You and Jan have 10 years on me - my anniversary is coming up 1/5/06 for the first attack and 1/30/06 for the second attack. I'm in SW FL and can relate to being too hot - Mid June to Mid Sept here is REALLY bad - then we get a week or 10 days in Dec. or Jan. that's too cold for me. I'd prefer to be somewhere where its 75 - 78 degrees with 50% or less, humitidy year round BUT don't know of any such place. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Jan Hargrove jmh1...@sbcglobal.net To: Mary mew1...@gmail.com, tmic-list tmic-list@eskimo.com Sent: Saturday, December 5, 2009 1:17:14 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Back on!!! WELCOME BACK!! You and I were both gifted with tm in '96.. janh Stillwater, OK From: Mary mew1...@gmail.com To: tmic-list@eskimo.com Sent: Fri, December 4, 2009 8:13:18 PM Subject: [TMIC] Back on!!! Hello to all of you. I have been off and on here since 1997mostly off I guess! Just got a new computer. Mine has been down for about a year or more. My name is Mary Woods and I've had TM since 12/2/96.T-6. I am mobile but with a limp, incontinence, memory and cognitive problems. I formerly lived in Auburn Ca, (too hot) but moved to the coast of No. Calif and it's about 30 degrees cooler here. I've been reading your e-mails for about 2 weeks and decided to join in. Lots of the same people and many new ones. Welcome!! More later Mary
[TMIC] OT - ? - LTD GMA
ABC's Good Morning America is interested in unfair disability insurance termination stories. Doctor Says Insurer's Video of Disabled Man Eating Taco Chip 'Means Nothing' The Hartford Reinstated Disabled Man's Benefits After Being Contacted by 'GMA' Clicking on this: http://tinyurl.com/y9ptbp8 will take you to this long URL that gets broken in transmission: http://abcnews.go.com/GMA/YourMoney/disabled-man-hartford-stopped-insurance-benefits-surveillance/story?id=9054265 or you can cut paste the above. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] OT - LTD Lawyer
I am feeling so much more relieved - I just got off the phone with my LTD lawyer. She said that I should have a very GOOD christmas gift. Please any and everyone who is on LTD, tell your neuro to NEVER send anything to the LTD insurance company with just YES/NO answers. And, if they get anything from the LTD insurance company, to contact you. My LTD company, to get me off their rolls, sent my neuro a questionaire with just YES/NO answers. In the past, I had gotten a package with questions for me and my neuro. I would then have to take the dr forms to my neuro and pick them up and send/fax all info. But in March, 2008, the LTD insurance company bypassed me and sent the form to my neuro - TRICKY LITTLE @#...@#@ BATURDS. Then in June, 2008 a check for 4 days - no letter, nothing to explain why. From there it's been hell trying to pay bills and get things done. I need weekly help with clearning and laundry, yard work, maintenance etc. I do the basics for me and my pets and that takes all of my time and energy. Anyway, please say a prayer for me that I do get that very GOOD christmas gift. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] OT - Please Read Health Reform
What really gets me with Congress is that we, American Citizens, pay their salary and their benefits - they pay nothing into Medicare. Congress gets a list of Insurance Companies to pick and chose and they own their own insurance policy! Before I becames disabled, I worked and had to take anything that my employer chose PLUS pay 1/2 for a crappy policy. I couldn't even take the insurance company to court if any of the ERSIA rules weren't followed BECAUSE I didn't own the insurance policy - the company did! ONCE again, Congress screwed every American citizen that works for a company with the ERSIA laws! I'd like to have Congress pass a law that puts the laws into PLAIN English and then we, the American Citizens, go and VOTE on laws directly - no middle blundering, lobby paid for Congressman! When Congress was set-up, there was no internet - we all could VOTE at anytime! Skip the voting in Congress - just have them there for bills and admendments that are submitted by American Citizens! Then, we the people actually vote for what we want or don't want! No more pay raises for Congress and limited benefits - just like a common American Citizen! I do hope you write your Congress persons - Representative and Senators - for Health Reform - REAL Health Reform for each and every American Citizen! Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: CANDIS KALLEY cakal...@embarqmail.com Sent: Friday, October 2, 2009 5:20:18 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] OT - Please Read Health Reform We need TRUE Health Reform across the board for EACH and EVERY American Citizen - NOT JUST THE CONGRESS! Benefits for EVERY and ALL American Citizens - NOT JUST THE CONGRESS! This is so true. I want the SAME health care as CONGRESS. Todd in CC, TX --- On Fri, 10/2/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] OT - Please Read Health Reform To: tmic-list tmic-list@eskimo.com Date: Friday, October 2, 2009, 2:58 PM I don't know if any of you are following the Senate Finance Committee Health Reform Bill - which is said to be the bill that the Senate is going to build and vote on. I wrote the following to the Editor of my newspaper and I am sending letters to ALL members of the Senate Finance Committee (each and everyone of them should be strunk up by an antomy between the waist and knees)! I beg you all for the sake of you and your families do PLEASE WRITE YOUR EDITORS AND SENATORS AND THE FINANCE COMMITTE! I wrote: The Senate Finance Committee just finished their mark up with NO Public Option NOR a FEDERAL INSURANCE EXCHANGE choice! Either or BOTH would hold Insurance companies Accountable for coverage and hold down cost! The Finance Committee is going to penalize each and every American citizen if they don't buy coverage! BUT WE THE PEOPLE WILL HAVE NO CHOICE, NO SAY - all WE HAVE TO DO IS PAY financially and with our bodies and soles! THE AMERICAN CITIZEN IS BEING HELT HOSTAGE BY CONGRESS AND THE INSURANCE COMPANIES! The Finance Committee just put each and every common American Citizen in shackles and handed the keys over to the Insurance Companies! I thought Health Reform was to help ALL American Citizens. Health Reform, per the Finance Committee Bill, only pushes the American Citizen further down and gives FREE money and MORE control to the Insurance Companies! We need TRUE Health Reform - Choice across the nation, price controls, no preexisting conditions, no dropping or weaken coverage when you get sick, No caps on the amount of coverage received in any year or lifetime. If penalties are enforced ,then we, the common AMERICAN citizen, should have the right for choice! We need TRUE Health Reform across the board for EACH and EVERY American Citizen - NOT JUST THE CONGRESS! Benefits for EVERY and ALL American Citizens - NOT JUST THE CONGRESS! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] October Birthdays
Happy Birthday to all my fellow Libras. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Barbara H. barbara...@gmail.com To: TMIC tmic-list@eskimo.com Sent: Thursday, October 1, 2009 12:03:45 AM GMT -05:00 US/Canada Eastern Subject: [TMIC] October Birthdays October is a busy birthday month! Hope you all have a special day on your day! Please send any additions or corrections to tmic-list@eskimo.com . There are a few here I am not sure of. 10-3 Lauren Graham ( grahamsn...@aol.com ) 10/4 Neil McNeil ( n...@hotmail.com ) 10-7 Naomi ( ladyno...@aol.com ) 10/08/ Rudy Aceves ( race...@vengrp.com ) 10/8 Tim Holder ( thol...@fbclr.org ) 10/9 Assunta Rene ( robert...@hotmail.it ) 10/11 Lori B. ( lbieh...@earthlink.net ) 10-11 Kate ( nicwi...@cox.net ) 10-12 Kim ( lkree...@cameron.net ) (returned) 10-12 Diana Gray ( graymyfat...@aol.com ) 10/14 Marieke Dufresne! ( marieke...@hotmail.com ) 10/14 Lanora ( noni...@hotmail.com ) 10/16 Sandy Parker ( parkersw...@aol.com ) 10/16 Linda Cherpeski ( cherp...@msn.com ) 10/21 Renee A. in CT ( littlem...@aol.com ) 10/21 Cody Kidwell ( c...@austin.rr.com ) 10/21 Candy K ( cakal...@embarqmail.com ) 10/23 Keith ( leboo...@cfl.rr.com ) 10-25 Debby Jones ( ladybutl...@comcast.net ) 10-26 Jim Lubin jlu...@eskimo.com 10-26 Bernie Pelow ( bpe...@yahoo.com ) 10/27 Robin ( moldr3...@aol.com ) 10/27 Krissy ( ladykri...@comcast.net ) 10-28 Netta Ganor ( net...@isdn.net.il ) 10/31 Jennifer Spence ( jenniferspe...@cogeco.ca )
Re: [TMIC] Feet
Yeah - LIFE with TM is never the same from one day to another let alone hour or minute. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice jan...@centurytel.net To: CANDIS KALLEY cakal...@embarqmail.com, TMIC-LIST@eskimo.com Sent: Tuesday, September 29, 2009 11:47:29 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet I drive my husband nuts when he asks me what is hurting or feeling weak and I tell him. Then 20 minutes later, I nearly fall because something else is a problem. He can't keep up with the different feelings/pain I have in any given hour! Ain't life great! Janice/Missouri - Original Message - From: CANDIS KALLEY To: TMIC-LIST@eskimo.com Sent: Tuesday, September 29, 2009 10:15 PM Subject: Re: [TMIC] Feet My R foot turns in - my bad leg/foot. When I sleep on my back, getting out of bed the next morning my R leg draws up to my chest and it takes both my hands to push it down. If I sleep on my side, the next morning my R toes turn under and will do so several times aday if I don't wear my shoes. Both of my feet always feel cold to the touch and they always feel as though they are in a bucket of ice - the colder my legs/feet feel the more I sweat from the shoulders up! Somedays I feel so confused - hot/cold or is it cold/hot? Guess it depends on which end is up! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: celr...@aol.com To: rp...@neillsupply.com, TMIC-LIST@eskimo.com Sent: Tuesday, September 29, 2009 10:37:48 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet WHEN I AM TIRIED I WALK WITH MY FEET OUT LIKE A DUCK. EVER SINCE THE PARALYSIS THE TOES MY LEFT FOOT TRY TO OVERLAP THE OTHER AND I HAVE A CALLUS ON TOP OF MY BIG TOE. WEIRD. JANE-SPLENDORA TX
[TMIC] Feet to Hands problems/solutions?
OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Fwd: [TMIC] Feet to Hands problems/solutions?
- Forwarded Message - From: CANDIS KALLEY cakal...@embarqmail.com To: Todd Tarno toddtm2...@sbcglobal.net Sent: Wednesday, September 30, 2009 10:20:13 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Well any time you're in SW FL, Ft. Myers/Naples, let me know. Can you cut-up my steak for me? That's the one I've had the most trouble with. The only other problem I've had when me hands cramp up, is I've thrown or dropped my silverware. And, Ive screamed several times - sure as heck scares my dog and parrot! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC-LIST TMIC-LIST@eskimo.com, CANDIS KALLEY cakal...@embarqmail.com Sent: Wednesday, September 30, 2009 5:19:44 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. I will go out in public with you anytime. We can do fried chicken, ribs, corn on the cob or even a nice juicy steak. Get out when you can, Todd in CC, TX --- On Wed, 9/30/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Feet to Hands problems/solutions? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Wednesday, September 30, 2009, 11:10 AM OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Feet
My R foot turns in - my bad leg/foot. When I sleep on my back, getting out of bed the next morning my R leg draws up to my chest and it takes both my hands to push it down. If I sleep on my side, the next morning my R toes turn under and will do so several times aday if I don't wear my shoes. Both of my feet always feel cold to the touch and they always feel as though they are in a bucket of ice - the colder my legs/feet feel the more I sweat from the shoulders up! Somedays I feel so confused - hot/cold or is it cold/hot? Guess it depends on which end is up! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: celr...@aol.com To: rp...@neillsupply.com, TMIC-LIST@eskimo.com Sent: Tuesday, September 29, 2009 10:37:48 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet WHEN I AM TIRIED I WALK WITH MY FEET OUT LIKE A DUCK. EVER SINCE THE PARALYSIS THE TOES MY LEFT FOOT TRY TO OVERLAP THE OTHER AND I HAVE A CALLUS ON TOP OF MY BIG TOE. WEIRD. JANE-SPLENDORA TX
Re: [TMIC] Looking for TMr's for support groups
Candy K. - SW FL - Naples, FLPrayers and thoughts for you and yours,Candy K.- Original Message -From: "Debi" brad...@gmail.comTo: tmic-list@eskimo.com, "Barbara H." barbara...@gmail.comSent: Monday, September 14, 2009 3:11:43 PM GMT -05:00 US/Canada EasternSubject: Re: [TMIC] Looking for TMr's for support groups Debi Wall--South Lake Tahoe California ---Original Message--- From: Barbara H. Date: 9/13/2009 8:05:25 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Looking for TMr's for support groups There is a list of established support groups for various states and countries here:http://www.myelitis.org/support.htm#3Barbara H.http://barbarah.wordpress,com On Sun, Sep 13, 2009 at 9:25 PM, Catherine camoa...@yahoo.com wrote: Kevin,That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great ideaSo I will start...Catherine, caretaker Central Mass. From: kevin weilacher hwyfli...@yahoo.comTo: tmic-list@eskimo.comSent: Saturday, September 12, 2009 4:59:53 PMSubject: [TMIC] Looking for TMr's from N.E. Ohio area Who here on the list is from what is classified as the N.E. Ohio area.I have the 2007-2008 TMA directory and I'm sure that there have been some changes or updates.I'm looking at trying to start a NE Ohio TMA support group. I know there is an Ohio support group but I believe the closest area is Columbus. Honestly, that is a bit too far for me to drive for support meeting get togethers.I know Gunny is on here and I know about Ella in Elyriacan anyone help me out..?I think we could benefit from something like thisespecially in light of the recent posting from Gilly...where she said that she just recently met another TM'r. How many others are out there that would like to meet another TM'r and you might have someone in your "back yard" so to speak that you don't know about.Thanks,Kevin attachment: Spiral_notebook.jpg
Re: [TMIC] Swine flu vaccine
I'm in line with you Laura Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: laura eichler laura.eich...@gmail.com To: Regina Rummel regina...@sbcglobal.net, tmic-list@eskimo.com Sent: Tuesday, September 1, 2009 11:33:21 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Swine flu vaccine Personally I wouldn't touch the swine flu vaccine with a ten foot pole. To each his own though. :-) On Tue, Sep 1, 2009 at 10:30 AM, Regina Rummel regina...@sbcglobal.net wrote: Good morning everybody, There was a lot of discussion in our group regarding vaccines a couple of years ago. It had been suggested that among other things, TM could be caused by the flu, a virus, whatever. Some of us were convinced of that and refused to take the vaccine. I haven't had one in four years. Others felt having checked with their doctors that we should have it and continued to get it. Question: What's going to happen now with the flu vaccine? Will some of us still be ambivalent? R -- Laura www.photographybylauraann.com
Re: [TMIC] Swine flu vaccine
Lynn, you are so right on the Vit. D. I also take doses of Vit. D and calcium. I take unusually high doses of Vit. D daily and weekly because I only have 1/2 of the min. Vit. D in my blood test. But, since taking the high doses of Vit. D, my Lupus and Sjogren's hasn't acted up and the added bonus has been only 1 or 2 colds in the 3 years. I use to have at least 1 cold every 2 or 3 months - which Dr. said was allergies but now I wonder. I never once had the doctors request blood test for vit. levels. It is VERY important to also have bone scans done - both women and men. In 3 years with TM, I went from a low normal bone mass reading to a severe bone loss reading especially of the spine. Now I'm taking daily shots of Forteo to hopefully build the bones back up. During the whole time I was taking Boniva but still experienced the bone mass loss. Most of my problems stem from an ileostomy (complete removal of large intestine and rectum) and I don't absorb alot of the vit. and minerals from foods nor vitamins so I have to take high doses internally. Most vitamins are made to take internally and not by injection, I do wish there were more. I do have bladder issues but because of the ileostomy, no BM problems. I also don't have weight problems and eat just about anything in any quantities that I like. I can also lose 3 to 5 lbs. within a couple of days. However, I have to watch for diarrhea and becoming dehydrated. So in some ways the ileostomy is a blessing but in the vast majority it isn't. Oh well, you win some and lose some! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: roseofr...@aol.com To: cakal...@embarqmail.com, tmic-list@eskimo.com Sent: Tuesday, September 1, 2009 12:40:17 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Swine flu vaccine I'm with Laura and Candy. I wound up paralyzed from the flu shot I received 12 years ago so I won't be getting the swine flu vaccine either...! By the way, I haven't had the flu or a cold for 12 years. I take supplements and really keep up my levels of Vitamin D3that stuff is a gold mine and it's not expensive. The reason people get the flu in the winter is not because of the cold weatherit's because they don't get enough sunshinethat's what it takes for our bodies to make vitamin D3. Hugs, Lynn
Re: [TMIC] Digital Removal
Frank - I LOVE that come back! I'll have to remember it! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: fr...@franksheldon.com To: Grace M. grace...@gmail.com, Laurie Zissimos lziss...@aol.com Cc: tmic-list@eskimo.com Sent: Tuesday, September 1, 2009 11:50:16 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Digital Removal *Guys, I was just so happy to see that others have to use the digi-stim method. It gets real lonely out here. We gotta start a club! ;-)* You are never alone. Let's call it the TMIC- BM We'd all be Bowel members or BM. A long time ago. Some person on the playground called me a piece of sh*t, an Ass H*le. I retorted, At least I have a function, a purpose- You're just a swollen Hemorrhoid !! F
Re: [TMIC] Arthritis
Australian Dream is also available online at Walgreens. There are several Walgreens here in Naples, FL that carry it. I haven't tried it as my Dr. gave a prescription of Voltaren Gel (Voltaren Emulgel) which runs approx. the same. The Voltaren Gel does work on joint pain. I have also used it on my hands when they are cramping and drawing up and it helps! But, like anythig with TM, what works one time doesn't alway work but the Voltaren Gel does MOST of the time. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Janice jan...@centurytel.net To: tmic-list@eskimo.com, balmat...@aol.com Sent: Tuesday, August 25, 2009 9:58:22 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Arthritis So far, with all my phone calls to pharmacies, Walgreen is the main carrier, at least in Missouri. Janice - Original Message - From: balmat...@aol.com To: jan...@centurytel.net ; tmic-list@eskimo.com Sent: Tuesday, August 25, 2009 1:58 AM Subject: Re: [TMIC] Arthritis Janice, I looked at the website earlier when somebody suggested it and they use it personally. What I read on the website is that they have a bottom of the jar guarantee. I was going to try myself as a local drug store carries it, but haven't been there yet. Hugs, Barbara A -Original Message- From: Janice jan...@centurytel.net To: kevin weilacher hwyfli...@yahoo.com ; tmic-l...@eskimo.net Sent: Mon, Aug 24, 2009 7:59 pm Subject: Re: [TMIC] Arthritis Obviously Kevin needs to get a life!! Janice - Original Message - From: kevin weilacher To: Janice ; tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:23 PM Subject: Re: [TMIC] Arthritis Off topic here.but I read that first sentence.and saw Australian Dream and thought you were talking about our lovable Gilly..*hope she doesn't smack me for that...* Kevin From: Janice jan...@centurytel.net To: tmic-l...@eskimo.net Sent: Monday, August 24, 2009 3:54:45 PM Subject: [TMIC] Arthritis Has anyone tried the Australian Dream the has emu oil in it? I don't know if it is a cream or pill - I think cream. One of our pharmacies carries it, but don't want to put the money, $30.00, in it if it is just a pipe dream. Have tried several arthritis creams and not satisfied yet. Thanks, Janice
[TMIC] OT? - Anyone who has employee STD/LTD benefits.
First to all newbies - WELCOME Anyone with TM who has been employed and has as a benefit Short/Long Term Disability (STD/LTD) PLEASE beware of these companies - you are not safe with/from them. They will do anything to get you off your deserved payments. You need to contact a good ERISA lawyer ASAP! Here is a question from disinssues and a reply from a former insurance representative: I may be able to shed some light on this, because, I hate to admit, I used to be one of those vocational experts who evaluated LTD and workers' comp claimants to determine their employability. Typically, when a LTD policy is getting ready to move from the own-occupation phase to the any-occupation phase, a vocational expert is called in to evaluate these cases and identify jobs. It was not unusual for the LTD claims person to refer the claimant for IMEs, which, of course, greatly underestimated the impact of the person's disability on potential work. Anything vocational that is offered to a claimant by an LTD carrier would almost have to be bad news. Their entire focus is to get that person off of benefits and reduce the exposure (claim reserves). People who manage LTD claims are given hefty incentives to get claims resolved; in other words, stop or deny payment of benefits to claimants. If you request rehab services, and then do not cooperate, that alone could be grounds for termination of benefits. First and foremost, get a copy of your Summary Plan Description and read it. Go through it with a fine tooth comb. There are numerous pitfalls to LTD, and you should familiarize yourself with the terms of the policy before you begin. Case in point: I recently was contacted by a frantic woman who said she had received notification that her LTD benefits were being terminated. She had been receiving LTD benefits for five years. Three years ago, she filed a Social Security disability claim at the request of the LTD. Her claim was denied and she did not appeal. She thought that she fulfilled her responsibility and continued receiving LTD. Recently, someone at the LTD wised up and checked to see the status of her Social Security claim and found that she had never appealed the denial three years earlier. Now she is told she has been overpaid LTD in the amount of $30,000 and they are withholding benefits until the overpayment is paid back. Simply put, they got her on a technicality. Suddenly, she has no LTD and no SSD. No income at all. And since she has not worked in five years, her Date Last Insured for Social Security disability is very soon. She will reapply asap, but the wait for approval, as we know, can be years. The LTD claims people won't tell you a thing and it is your responsibility to stay one step ahead of them. Question everything to reveal the hidden meanings in the claim language. What may seem to be straightforward English probably isn't! Find someone who understands the lingo and can explain things in layman's terms. Consider consulting a lawyer with experience representing claimants, particularly one who is experienced with ERISA if your policy is through your employer. I don't want to scare anyone but I'm now in my 2nd year fighting my LTD company and informed it could take years! When the LTD company dropped me (and the COBRA company doubled my insurance premiums), which cut my income in half! The LTD lawyer filed SSDI for me and I did get SSDI within 6 weeks of filing with the lawyer sending the paperwork in. ALWAYS HAVE THE LTD company hire a lawyer for you and have them file the SSDI because there is a Supreme Court case that rule in favor of the insured against the insurance company BUT there will be a fight in lower courts by the insurance companies to not pay which takes years! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
[TMIC] OT - The facts on Medicare benefits -- Would you gain or lose from health reform?
The attached may help clarify some questions on Healthcare/Medicare Reform. I hope those of you that are eligable for AARP sign-up for their newsletters and benefits. Prayers and thoughts for you and yours, Candy K. - Forwarded Message - From: FLAARP fla...@aarp.org To: cakal...@embarqmail.com Sent: Thursday, August 6, 2009 5:14:22 PM GMT -05:00 US/Canada Eastern Subject: The facts on Medicare benefits -- Would you gain or lose from health reform? Whopper of the Week: AARP lays out the myths and facts about health reform There's a maze of misinformation out there on health reform. Because the stakes are high, you need the facts. AARP Florida's Whopper of the Week details the latest myth on health reforms, gives you the facts and helps you be heard on this important issue. To share your thoughts on health reform, pro or con, please call 1-866-AARP-449. To learn more about the issue, please go to www.aarp.org/fl . To share your story of how our health system is affecting you, please go to www.healthactionnow.org . Now for this week's Whopper: Health reform means seniors' benefits will be cut under Medicare. Actually, health reform is critical to ensuring that the Medicare program will be able to provide you benefits when you need them. Also, it's important to realize that current proposals in Congress would increase important benefits under Medicare. First, your choice of doctor and hospital is protected under all three major bills under discussion. (See what the Pulitzer-Prize-winning Politifact.com has to say about opponents' claims that you'd lose your ability to choose your health care .) Second, the White House and major U.S. drug manufacturers have agreed that if health reform is adopted, drugmakers will voluntarily cut in half the cost of name-brand drugs provided for those who fall into the Medicare Part D doughnut hole or coverage gap. Over time, the bills before Congress would close the doughnut hole entirely. Read more from the nonpartisan National Committee To Preserve Social Security and Medicare , or go to AARP's Doughnut Hole Calculator to figure out when you might fall into the doughnut hole and how you can choose less expensive generic drugs to lower your costs. Third, both the Senate Finance Committee and House Tri-Committee plans eliminate Medicare copayments and deductibles you currently pay for preventive care services, such as cancer screenings. (See the respected Kaiser Foundation's side-by-side analysis of all health-reform plans.) Fourth, current versions of health reform legislation require your health insurer to pay you back if they spend less than 85 percent of premium dollars on the care of patients -- in other words, if their overhead and profit costs exceed 15 percent. When opponents of health reform talk about Medicare cuts, here's what they point to: Provisions now before Congress currently would reduce taxpayer-financed subsidies paid to some private insurance companies to provide care under the Medicare name. (Here's a Families USA study on these plans.) These plans currently get paid extra to provide the same care as traditional Medicare provides. That's a fact that health-reform opponents never mention. Other legislative proposals target one of the areas of Medicare most prone to abuse -- payments for medical equipment. Recently, an enterprising TV journalist found that one of these companies had charged Medicare $1,200 for a wheelchair -- but managed to buy the same kind of wheelchair from the same company for $349. The bills also allow Medicare to negotiate for lower prescription-drug prices, like the Veterans' Administration does now. Targeted savings like these are very important. They make it possible to protect Medicare's solvency over the long term. We all realize that Medicare urgently needs help to remain strong. Suppose you're 65 today -- do you want Medicare to be stable and capable of providing for your care when you are 75? At AARP, we want to ensure Medicare remains strong for you and for future generations. As the health reform debate progresses, AARP Florida will do everything it can to help you stay informed. Please visit our website, www.aarp.org/fl , often for updates or call 1-866-AARP-449 to share your thoughts on health care. This email was sent to you by AARP. To ensure delivery to your inbox (not bulk or junk folders), please add fla...@aarp.org to your address book. This e-mail is being sent by the AARP Florida State Office, 400 Carillon Pkwy #100, Saint Petersburg, FL 33716. Visit us at http://www.aarp.org/fl . AARP is a nonprofit, nonpartisan membership organization for people 50 and over ~ http://www.aarp.org/mission . Join or renew your membership at http://www.aarp.org/join/ . AARP Privacy Policy | (c)1995-2009 , AARP. All rights reserved. Click here to unsubscribe. Or visit the email preferences page to manage the
[TMIC] Health Care Reform
For anyone who wants to help get health care reform here is a website: http://www.healthcare-now.org/hr-676/ it will also summerize the House bill and the Senate bill(s) Prayers and thoughts for you and yours, Candy K.
Re: [TMIC]
In looking up articles by David Sirota, I found the following informative and totally agree with the article. http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2009/05/15/EDMF17KIVP.DTL Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Regina Rummel regina...@sbcglobal.net To: CANDIS KALLEY cakal...@embarqmail.com Sent: Monday, August 3, 2009 2:26:10 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Candy, I want you to google the July 31, 2009 opinion section of the San Francisco Chronicle, then click of David Sirota. You will find it very enlightening. It will re enforce your views at the risk of making you sick. R From: CANDIS KALLEY cakal...@embarqmail.com To: tmic-list tmic-list@eskimo.com Sent: Monday, August 3, 2009 10:56:37 AM Subject: Re: [TMIC] Gerry, thank you for informing us below the 60. If you would and can, would you please answer a question I have. Given the case of my brother who was deemed pre-existing condition for cancer eventhou employed in the oil industry for almost 2 years, would a Canadian have to fight to get treatment given that 2 doctors deemed it necessary and ASAP? Would a cancer patient and/or their family have to fight to get treatment and on a list for what is our medicaid (public insurance as deemed by state) and then die before getting on that list? I will admit that my brother gave up physcially and mentally after 3 months but it took that long for all the red tape necessary to even get to the point of trying to get approved for medicaid. I also admit that I am extremely against insurance companies, which I call GIANT MADOFF companies only due to my experiences with insurance companies - not only health insurance companies but ALL insurance companies - they will take your money but if they have to pay out it is a battle royale and then they drop you whether they pay or not just for filing a claim! Schemes? - they have the hold on all of us right in the crouch and there is no way for any of us to win not even if you hold stock in the company because those at the top of the company get their fair share before anyone else! Candy K. - Original Message - From: Gerry Surette suret...@sympatico.ca To: tmic-list@eskimo.com Sent: Monday, August 3, 2009 1:26:44 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] there is a recent question regarding health care in Canada. although I can not speak for other provinces I believe the the following is a standard practice among all Canadians. When One fills out their income tax one is charged $518.00 for medical prescriptions. when one fills out their income tax if one is a low income earner the amount is adjusted downwards. I guess the best example I can use is my own experience. I am allowed a maximun of $77.20 per month in prescription. anything over and above that is free or a a minimun cost for example the following is my own order place on July 31st . I must note here that I also have ITP metaformin amount 13.59 due 13.59 znaflex $145.10 due 47.36 baclofen 28.04 due $ 8.97 gabapentine $95.37 due $9.61 azayhioprine $33.60 due $00.00 total due 79.53 total amount charged without insurance $302.11 My wife's prescriptions are also included. and that is only one of bymonthly orders of meds. regarding health care as seen as various american tv infocommercials Canadians do not not go without necesary care . If per chance a needed operation cannot be performed in a province one is referred to another. if the operation cannot be performed in Canada but is available in the USA then the patient is referred to the medical center closest to the patient. all the costs are borne by our healthcare system. it is true that certain operations albiet necessaRY BUT NOT URGENT ARE POSTPONE UNTIL FACILITIES ARE AVAILABle. yes our waiting lists are long and for some of us we must wait. no one is denied hospital care no one regardless of their financial circumstances . everyone is treated equally. that is our healthcare system as a quebecer I also have access to the clsc a provincail body dedicated to the wellbeing of those of us who have disabilities. they came in accessed my situatioon and provided me WITHOUT ANY OUT OF POCKET EXPENSE. the following adjusted our bedroom to make it easier to climb in and out. they adjusted our bathroom to accomodate my entering and getting out including a special shower accessable in a sitting position. handle bars a raised toilet seat to make it easier to get up and down the list goes on a walker retail $549.00 with a seat as I get spasms every few steps. the list goes on. including a Physitherapist who comes in on a regular bases to do exercises with me. a clsc nurse who comes here to my apartment to take my
Re: [TMIC] - OT/Health Reform
What we all need to do is write our Congress people AND urge family friends to write to get Health Care Refom, especially a Public Option, done now and not wait another 60 years plus several wars that kill instead of saving people not only physcially but also mentally and financially! FDR tried to get a national health care but couldn't and settled for SS. Johnson tried but we did get Medicare. Clinton tried but we got Medicare Part D (drug bill). Now let's have Obama finally get a public health care for all! Here's where to find your House of Rep. http://www.house.gov/house/MemberWWW_by_State.shtml for the Senate http://www.senate.gov/ Prayers and thoughts for you and yours, Candy K. - Original Message - From: Akua a...@artfarm.com To: tmic-list@eskimo.com Sent: Monday, August 3, 2009 5:34:03 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] but ALL insurance companies - they will take your money but if they have to pay out it is a battle royale and then they drop you whether they pay or not just for filing a claim! While in rehab for TM the pipes burst in my home. Insurance fought me-- saying I was non resident. Fortunately the outrageous heating bill proved that the house was maintained. Anyway, the insurer dropped me though it was my first and only claim in 14 years! So I agree. Akua --
Re: [TMIC] sounds crazy but you never know....
I heard about this on CNN - it is the same dye they use in the blue MM's. BUT, the dye must be injected within 15 minutes of a probable spinal injury. That means the EMS should/must start carring this about all ambulances and must start the injections. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Akua a...@artfarm.com To: tmic-list@eskimo.com Sent: Tuesday, July 28, 2009 2:36:17 PM GMT -05:00 US/Canada Eastern Subject: [TMIC] sounds crazy but you never know http://www.telegraph.co.uk/science/science-news/5921266/Blue-MandMs- mend-spinal-injuries.html --
Fwd: [TMIC] Medications
I sent the attached to Robert but FYI - - Forwarded Message - From: CANDIS KALLEY cakal...@embarqmail.com To: Robert Pall rp...@neillsupply.com Sent: Friday, July 17, 2009 7:58:36 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Medications I have tried the Provigil with little or no difference in the level of fatigue. I also tried Amantadine with the same results. Provigil is very expensive so try to get a sample before buying. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Robert Pall rp...@neillsupply.com To: Janice jan...@centurytel.net , Tmic-list@eskimo.com Sent: Friday , July 17, 2009 7:38:57 AM GMT -05:00 US/Canada Eastern Subject: RE: [TMIC] Medications Janice...I believe my body has gotten so used to these meds..that Dr. Kerr felt it would be good to try a change.The new drugs he may try after I have weaned myself off the Lyrica are Lamictal or Tegretol (for the banding) and Provigil (for fatigue)I would love to hear from other members who currently take these drugs as to how beneficial they are. As far as the meds I am weaning off I really had no bad reactions...it just feels like they are no longer helping. All the best! Rob in New Jersey From: Janice [ mailto:jan...@centurytel.net ] Sent: Thursday , July 16, 2009 11:40 PM To: Catherine; Robert Pall; Transverse Mylitis Group Subject: Re: [TMIC] Medications Rob, why are you getting off the meds? For the usual taking too many drugs thing or are you having adverse reactions? Janice - Original Message - From: Catherine To: Robert Pall ; Transverse Mylitis Group Sent: Thursday , July 16, 2009 2:47 PM Subject: Re: [TMIC] Medications Good Luck Rob I wish you the best!! From: Robert Pall rp...@neillsupply.com To: Tmic-list@eskimo.com Sent: Thursday , July 16, 2009 2:40:07 PM Subject: [TMIC] Medications Medications I mentioned previously that I visited Dr. Kerr on 7/1/09 and we decided to adjust my meds. Presently for the most part I take 2 meds for the banding, pins needles and numbness. They are 4-Aminopyridine and Lyrica. I was taking the 4-aminopyridine (a Potassium channel blocker) twice a day (20 mgs each)…I have been taking this medicine for approx. 8 years…..2 weeks ago I cut my dosage in half and starting tomorrow I will cease taking this med…so far I have not noticed any changes resulting in the lower dose and I will keep you informed as to any changes I experience going off this med completely. I also take 150 mg of Lyrica 3x per day. Starting today I will cut this down to twice a day for 2 weeks and then once a day for 2 weeks before stopping it altogether. Hopefully I will notice little or no change getting off this medication which I have been on for more than 4 years. Assuming no problems getting off the Lyrica..Dr. Kerr will prescribe a new med for the banding (don't ask me the name…I promise to let you know)…he also said he could prescribe a new med to help with my constant fatigue (again don't ask me the name). As per his advice I am now swimming for an hour at least 3 times a week..it is not doing much for the TM but it is getting my body in better shape. Having had TM for almost 12 years my dreams of a cure seem more and more distant..so I therefore vow to try and keep my body as healthy as possible and deal with the pain and discomfort as much as medicine can help me. I will keep the group informed as to the weaning off of my current meds and any new meds I begin to take! All the best! Rob in New Jersey
[TMIC] ABC - Health Care
I hope everyone is watching ABC - Pres Obama/ABC discussion on health care now and at 11:30 nightline. Prayers and thoughts for you and yours, Candy K.
[TMIC] AARP Drug Card
Gunny, today I did look into the AARP drug card for $19.95 a year and subscribed to it. THANK YOU for the info. The FL Drug card is zero help in tier 3 meds and Forteo was going to cost me $749.00 a month - I'm already in the doughnut gap. I spent yesterday in tears. I had a glass of wine last night and woke up today and remembered you saying AARP drug card, so I signed on - I've been an AARP member for several years. I found out what you were talking about that the AARP drug card is seperate from Medicare supplement/Part D. So, I signed up after seeing that the Forteo is only $111.91 per month - about the same as I was paying for Boniva a month! I can afford that. THANK YOU again! Maybe next time I will wake up a little sooner or give me a shout back to WAKE UP! Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] AARP Drug Card
Jeanne, You are so right about the insurance companies andMedicare. The insurance with my employer started at $300+ per month then when Iwent on COBRA it jumped to $610 a month for 12 months. But with the extension, until Medicare kicked in,the insurance jumped to$980+ a month. What gets me is that the American taxpayer can pay for helping the world, whether they want it or not, pay for wars AND YET so many of us are dieing financially, and physically,due to health care and the cost of health care! The health care has been put off for more than 50 years and yet the USA has financed the Korean war, the Viet Nam war, Dessert Storm, Iraq and Afghanistan wars! Let alone the billions paid to countries to "help" stamp out terror! BUT after 50 years still no good, affordable, health care/plan forALL Americans! Something is wrong if you ask me! That's another problem for me wth TM, I have too much time to watch the bullsh_t that is going on in Congress - even with the Dems - the lobbist are winning again! Maybe we all need to get on our scooters, wheelchairs, walkers, etc. and start protesting! Maybe then the world would/could help us if not financiallythen by shaming the law makers!Althou, some are above shame and that doesn't work either! Prayers and thoughts for you and yours,Candy K.- Original Message -From: "jrushton" jrush...@columbiaenergyllc.comTo: "CANDIS KALLEY" cakal...@embarqmail.comSent: Friday, June 19, 2009 10:55:39 AM GMT -05:00 US/Canada EasternSubject: Re: [TMIC] AARP Drug Card Hi Gunny and Candy! There are so many of us on medicare than can use some help! They have made it so complicated that we really don't know where to turn. We had two great insurances when Jack and I were working then after TM we went to one and then when Jack took his early retirement we had to pay and pay we did! It started out $800 plus then was lowered finally to $500 plus and then back up to $610 and then I ended up still having to pay! We checked into different ones and ended up with AARP and just had to use it so we'll find out how it works. We chose the 'L' where we have a deductible of $250. I was interested in the AARP drug card?? I am going to look into that right away! Thanks for passing that bit of news on!! Hugs for you all..Jeanne ---Original Message--- From: CANDIS KALLEY Date: 6/19/2009 10:57:30 AM To: Richard J Boyle; tmic-list Subject: [TMIC] AARP Drug Card Gunny,today I did look into the AARP drug card for $19.95 a year and subscribed to it.THANK YOU for the info.The FL Drug card is zero help in tier 3 meds and Forteo was going to cost me $749.00 a month - I'm already in the doughnut gap. I spent yesterday in tears.I had a glass of wine last night and woke up today and remembered you saying AARP drug card, so I signed on - I've been an AARP member for several years. I found out what you were talking about that the AARP drug card is seperate from Medicare supplement/Part D.So, I signed up after seeing that the Forteo is only $111.91 per month - about the same as I was paying for Boniva a month!I can afford that. THANK YOU again!Maybe next time I will "wake up" a little sooner or give me a shout back to "WAKE UP!" Prayers and thoughts for you and yours, Candy K. attachment: ele.jpg
Re: [TMIC] Re: WHAT DID YOU DO???
I have just been dx'd with severe Osteoporis especially of the spine. I have been on Boniva for 6+ years only because I have an ileostomy and could not tolerate the daily or weekly meds which caused constant diarrhea. The ileostomy also means that I do not absorb meds, vitamins and food normally. The severe Osteoporis has appearred since TM - I was on the verge of osteoprini (?) just a year before TM. My dr. has ordered Forteo for me but I am having problems getting my insurance to approve this. Forteo costs about $600 a month with insurance $200. I can't say enough about having your vitamin D levels checked. Vitamin D is VERY important for the immune system. I only have about 1/4 of the required levels although I'm taking 6,000 IU daily and 50,000 weekly let alone the daily 3 of milk (which just goes completely trough my system in less than 10 minutes even with lactose enzyme), yogart, cheese, etc. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Cindy McLeroy cindymcle...@socal.rr.com To: Janice jan...@centurytel.net, tmic-list@eskimo.com, jmh1...@sbcglobal.net Sent: Wednesday, June 17, 2009 1:37:26 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Prayers and thoughts for you and yours, Candy K. - Original Message - From: Cindy McLeroy cindymcle...@socal.rr.com To: Janice jan...@centurytel.net, tmic-list@eskimo.com, jmh1...@sbcglobal.net Sent: Wednesday, June 17, 2009 1:37:26 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Janice, Before I had TM (age 47 in 1992) I had severe Osteoporis so I already had thin bones. Not being weight bearing for all these years doesn't help which is why I have to be (no should be) so careful. I take all the appropriate meds, but when I do something stupid, I go all the way. Cindy - Original Message - From: Janice To: Cindy McLeroy ; tmic-list@eskimo.com ; jmh1...@sbcglobal.net Sent: Tuesday, June 16, 2009 8:56 PM Subject: Re: [TMIC] Re: WHAT DID YOU DO??? Cindy, Did you break your legs that many times since TM or during your lifetime? Sure sorry it happened and hope it heals quickly. Word of advice - Leave The Cleaning To The Cleaning Ladies Although I admit I would have tried to clean it too. Heal quickly, Janice - Original Message - From: Cindy McLeroy To: tmic-list@eskimo.com ; jmh1...@sbcglobal.net Sent: Tuesday, June 16, 2009 6:09 PM Subject: [TMIC] Re: WHAT DID YOU DO??? You'll be sorry you asked, it's kind of a long story. I had time to kill on Sat before I went to a party, all dressed and ready to go. I notice that the cleaning lady didn't clean as well as I thought around the bottom of the toilet so I bent over forward on my wheelchair bracing myself with one hand on the toilet. cleaning with the other. Apparently I pushed my wheelchair out from under me and slid to the floor with my right foot twisted almost the way around. When I went to bed that night my leg was doing a snap, crackle and pop noise. Went to the ER the next day and the doctor said, Oh, your leg is broken. Duh. Anyhow, my frustration is dealing with the ER folks, my doctor and an Ortho. Seems all the Ortho's are booked. I can't wait because I have (lucky for me) no sensation and the splint that is on my leg is moving around and I'm sure digging. I want to avoid pressure sores. Always something interesting with TM. I think this is the fourth or fifth time I have broken one or the other of my legs. Once I simply rolled over in bed and heard the crunch. Cindy - Original Message - From: Jan Hargrove To: Cindy McLeroy ; Sent: Tuesday, June 16, 2009 11:51 AM Subject: Re: WHAT DID YOU DO??? Cindy, What in the world did you do to break your leg??? jan --- On Tue, 6/16/09, Cindy McLeroy cindymcle...@socal.rr.com wrote: And Sandy, how do you like the yellow medal plates that are being installed at the curb cutouts? Supposedly they are meant for the blind so that their sticks feel the different surface. I haven't talked to a blind person, a w/c user, or a fellow pushing grocery carts that like the danged things. Caster wheels get caught in between the bumps. This change was a lawsuit that back fired. Version Amphitheater in Irvine has done an amazing job of raising a portion of the seating above the orchestra section so folks in wheelchairs can see the stage when the rest of the people below are standing. Love it there. One of the ADA limits has to do with cost. If the modification is too costly and the building can show that, then they don't have to modify. Also, if the building is historic, they don't have to modify. Cindy (sitting home waiting for an otho doctor to get me in with a very severe broken leg...been to emergency already and had a splint) - Original Message - From:
Re: [TMIC] Re: WHAT DID YOU DO???
I am on SSDI and Medicare. I have United Health Care through an AARP plan. However, due to all of my medical problems, most of the meds that I take are tier 2 and tier 3. I do use the generic meds when ever possible BUT tier 2 and tier 3 drugs usually do not have generics and cost so very much more and therefore I hit the doughnut hole and have to pay 100% ! Luckily, here in FL we also have a state drug plan which I will be using after the I hit the doughnut hole. Still the meds I already take, costs $100 to $200 per month. I just got a call from United Health care through their mail-order pharmacy after just 1 month on Forteo for $186, I've hit the the doughnut hole. They are checking to see if they subscribe to the FL drug card program, and if so then a 3 month supply will be $210 including the needles and pens required for the shots. So, there are states that do help with the drugs. I'm not sure if all states do that. I did a search and found out about the FL drug program - there are no requirements for income or age. Prayers and thoughts for you and yours, Candy K. - Original Message - From: bgunny7...@aol.com To: cakal...@embarqmail.com Sent: Wednesday, June 17, 2009 10:02:06 AM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Re: WHAT DID YOU DO??? I don't know how old you are, but, if your 50 or older with a disability, you can qualify for Social Security benefits that include a prescription drug plan. If your 60 or more, you can join AARP, and get drugs for $2.80 generic, $6.00 name brands. Download the AOL Classifieds Toolbar for local deals at your fingertips.
