Hi Jim,
Thanks for the update. I couldn't be happier for you. I see you sure enjoy
playing Mafia Wars, and it must be good for your hand.
Hugs to you, Barbara A
-Original Message-
From: Jim Lubin jlu...@eskimo.com
To: Laura Beaudin laura.beau...@gmail.com; tmic-list@eskimo.com
So, is there not a way to block these solicitations? I haven't received any
yet, but I have family members and friends that get them all the time. I
called the # and it supposedly added mine to some list, but now I wonder where
it went...
Barbara A in Auburn CA
-Original
Gilly, you are so funny. Where there are games, Gilly will follow...
(I'm kind of hooked on the hidden object ones a bit myself these days)
Hugs to you, Barbara A
-Original Message-
From: Gillian Clark mingalett...@activ8.net.au
To: TM list tmic-list@eskimo.com
Sent: Mon,
The spasms will make you toned, and the Zanaflex will?relax the muscles.?
The only way you would really know if the Neurontin is working or helping you
or not is if you didn't take it.? I am?not telling you to do that to find
out.??I personally wouldn't take anything that I didn't feel I
?
HAPPY BIRTHDAY TO ALL OCTOBER BIRTHDAY PEOPLE.? ENJOY!
Hugs, Barbara A in Auburn CA
No, he didn't at the time, just suggested that I eat some yogurt, which I did.?
The problem was that I was getting pneumonia several times a year for 2 years
in a row and he last time I was in Florida for my sons wedding and had to go to
an urgent care facility and they prescribed Amoxicillin
Mindy,
Sounds like a nice way to practice medicine.? To treat the whole person, good
medicine.? I really have what I'd call a good doctor now.? I have always
liked my doctor, but it really depends on what's going on at the time in your
life.? If they take the time to ask a few questions or
Hi Patti,
As far as I know, Lactobacillus GG and acidophilus are two different
probiotics.? Somebody who knows more than I do about this would be a better
person than I to answer this one.? All I know is that I took one capsule each
day that I was on the antibiotic and I do not have the
What's wrong with just eating the prunes?? I've used dried fruits, prunes,
apricots, etc. as well as food that has a lot of fiber like beans, depending on
what the situation is over the past year and have finally been able to regulate
myself.? After 9 years of bowel problems, this has been so
Promises, promises!
-Original Message-
From: kevin weilacher hwyfli...@yahoo.com
To: rj_ran...@yahoo.com; Jim Lubin jlu...@eskimo.com; TMIC-LIST@eskimo.com
Cc: bgunny7...@aol.com
Sent: Sat, Sep 19, 2009 8:34 am
Subject: Re: [TMIC] Stem Cell funding
LOL...Randyhow right you
Something I've been meaning to write in about, just haven't gotten around to
it.? I recently had surgery on a lypoma on my back and had a stitch that didn't
dissolve correctly.? It decided to work it's way back out and cause me an
infection instead.? I put off getting the antibiotic as long as
Hello Rose,
No need to feel so guilty for eating popcorn now is there, lol!? I am sure glad
you posted this Rose, it's a lot easier to add the grains and cereals to your
diet.??When I used to ask my old PCP about vitamins, he'd tell me that the best
way is not to take supplements but to get
?
?
?
In a message dated 9/7/2009 12:33:06 A.M. Pacific Daylight Time, Balmatmic
writes:
Hello Rose,
?
No need to feel so guilty for eating popcorn now is there, lol!? I am sure glad
you posted this Rose, it's a lot easier to add the grains and cereals to your
diet.??When I used to ask my
Janice,
I looked at the website earlier when somebody suggested it and they use it
personally.? What I read on the website is that they have a bottom of the jar
guarantee.? I was going to try myself as a local drug store carries it, but
haven't been there yet.
Hugs, Barbara A
Jim,
Tears came to my eyes as I read your message and then when I saw the video, it
was so awesome to see.? Move Jim, Move Jim, it was like Run Forest, Run!?
Over and over again, amazing, and so thrilling for you.? I couldn't be happier
for you.?
Yet another message that I had to read
Hello Debbie,
?? I got so excited to see your letter that I quickly called Pete into the room
and read your message outloud to him.? I was so thrilled to hear of all the
experiences that these kids were able to have, that otherwise wouldn't be
available to accessible to them.? Oh, I am so
Hi Janice,
So far, I've only had the steroid injections also.? It's my daughter in-law's
aunt who is getting the other injections.? I will get the name of the injection
in the next few days.? The aunt just had some surgery yesterday, so I need to
wait till she talks to her.
Hugs, Barbara
Akua,
I am so very happy for you.? It's about time that something nice has happened
to you.
Hugs, Barbara A
-Original Message-
From: Akua a...@artfarm.com
To: tmic-list@eskimo.com
Sent: Sat, Aug 22, 2009 4:35 pm
Subject: [TMIC] OT:My Pattern published!
This is off Topic, but I
Wow, I am so sorry to hear that you have had to have such HUGE amount of
surgeries on your knee.?
I may be wrong in what I called the injection, but my daughter in-law's aunt is
getting something every 3 months in her knee.? She will not have another
surgery.? This is for sure some sort of
Hi Cheryl,
Are you saying that you've never had to go through any trouble with your LTD
carrier this whole time?? That is awesome if so.? I've had TM for 10?yrs and
fortunatly have LTD for the extra salary.? However, I've had quite a ride with
it.? They were great to work with originally
I will look for this as well, as I have arthritis in my hands. I have used Icy
Hot on my back, knee and legs when things get bad, but wouldn't use on my hands
because I didn't ever want it close to my face in case while sleeping, and I
can't sleep in gloves.
I just looked at the website
Hi Janice,
Well, my doc told me that if the first shot that I got in April didn't work,
and if this one did, it's possible that my PCP missed and it landed in the
wrong spot.? If they both don't work, then we struck out.? Not likely both
missed, and the shots would not help me.? Personally,
Hi Linda,
Thanks for your email and encouragement.
Hugs, Barbara A
-Original Message-
From: L T CHERPESKI cherp...@msn.com
To: tmic-list@eskimo.com; balmat...@aol.com
Sent: Mon, Aug 17, 2009 9:03 pm
Subject: Re: [TMIC] my knee
Barbara,
?
Well it's no big deal about not
Wow Jeff,
I had heard that there are pockets in different parts of the country where
there are large numbers of MS and TMers.? I kind of remember that a while back
that Cleveland had a lot of TMer's.??Am I remembering this right?? Is this the
air, water,?pesticides??
Hugs, Barbara A?
I went to the orthopedist yesterday, and found out that I am indeed a candidate
for a knee replacement.??I am 58 yrs old and he said that typically they like
to wait till 60 or older because they do need replacing in 10-15 yrs on
average.? With as much as I'd walk on it, I'd probably get a
I did forget to add something.? Since I saw my PCP and he talked about the bone
on bone thing with my knee I added Glucosomin to my daily med routine and have
had less pain in my knees.? Don't know if this would work for everyone, but it
also makes my hip hurt less.? It takes a bit to get
Hi Kevin,
Just an fyi, not sure if you are getting any help from insurance, medicare,
etc. or not on this power chair.? If you are not, you may want to consider
purchasing one second hand.? I've bought 2 second hand, the second only because
the first one didn't have the power to pull the
Hi Linda,
I'm so sorry that your trip to the out of state surgeon proved to be a
disappointment.
Interesting you should ask about knee surgery and options.? I am possibly
looking at a knee replacement as well.? I see the orthopedist on Friday,
referred by my primary.? He said it was the
I am sorry to say that the more I read, the more confused I get.? Just for
kicks and giggles, and I really don't mean that, but I can't help but say it, I
am going to call me Social Security office and see what information I get about
the situation.? If needed, I will go there in person.? I
Aren't there social service offices that are supposed to be well versed on
these services available to help people make these serious decisions with
Medicare plans, etc?? It seems that each county office should have these
available to their population since it can be so complex.? Here in
Hi Mindy,
I am not sure if I did the same as you or not, but looking back I very
well?may have.? I know that I got TM when I was working, and I had a big
problem talking to people after that.? As much as many tried, both co-worker
friends and even some family members, I just couldn't
Jude,
The problem for me is that you appeared to realize that you were making a
mistake before you sent the message, yet you continued to send the message.?
Proofreading messages and really thinking before sending them out really
helps.? I don't believe that we should scold anyone when they
HiJanice,
That depends on how badly I would want to see the people that would attend.?
First, not that many people generally continue to attend reunions, unless your
class is special.? Then, you'd be surprised at how many other people these days
have some kind of disability as well.? I have an
SPARKER,
For anyone who has not had the extreme pleasure of meeting Sandy, she is a very
cute and looks very good in her jeans. But then that's only my opinion, but
I'll bet that Terry agrees with me. She is also just a sweetheart, but you can
tell that from her email.
Hugs, Barbara A
Janice,
We went to our 25th high school reunion, we were also in the same class, and
this was pre-TM. The class SLUT, was still a SLUT!? Some things never change,
but a lot of things do.? You'd be so surprised at how many people will be there
that have changed, but it would be interesting if
Cindy,
That sounds amazing.? You really struggle with issues with your docs.? I'm so
sorry that you wasted that trip.? Hang in there girl.? You really are an
inspiration.? Oh, has mom found out about you yet?? lol
Hugs to you, Barbara
-Original Message-
From: Todd Tarno
Todd,
A wheeled walker is a wonder for unloading/loading a dishwasher. Heck, I use
mine for laundry, setting and clearing the table, all kinds of stuff. If you
can use one, it's an awesome tool.
Hugs, Barbara A
-Original Message-
From: Todd Tarno toddtm2...@sbcglobal.net
To: Robert
Rob, I can relate totally to what you said about exercise, pain and overdoing
it. How do we find a happy medium, keep it up, and keep our bodies happy with
the level and intensity? Yeah right!
Moderation, sure! But, as I am doing the exercise most of the time I feel
great and don't feel
Emails are often misunderstood. It's just not as easy to get the point that
was trying to get across sometimes. Even someone with really good reading or
writing skills gets misunderstood sometimes by someone with the same. Then
there are some, like me, who really don't read all of the words
Hi Janice,
The thing about physical disabilities are that you don't know what you are
going to face until it is upon you.? It's not always apparent that certain
things will come about, and some you'd never even think of.? Well, I know that
is the case for me anyway.? I was surprised so many
Thank you Jeanne,
Your message was great.? I have told people so many times.? Now, they have so
many different anti depressants and if one does not work for you, talk to your
doctor and get another one? Do not suffer one more minute! But people still
in this day and age continue to just
Hi Jeff,
You have been through it, but have managed to make it.? You are an inspiration
that you have managed to make it back from depression without any help from
anti-depressants or a psychologist, but there is no shame in using either or
both.? Many of us have found the help and comfort
Tried the Zanaflex and didn't work well for me.? It relaxed me too much, and
when I finally got to the bathroom, I generally fell asleep on the commode.? I
do that a lot when I take something to help me sleep in addition to my regular
meds, so the Zanaflex relaxed me way too much.? I would fall
Hi BobbyJim,
Do you just take the normal dosages of both of these?? And, how close to you
turning in for the evening?
Hugs, Barbara
-Original Message-
From: bobby jim elbobber...@earthlink.net
To: jharpe...@aol.com; balmat...@aol.com; tmic-list@eskimo.com
Sent: Thu, 30 Apr 2009 7:07
Janice,
DVT's are Deep Venous Thrombosis, or blood clots.? These?have reduced?the
bloodflow going back up my leg to the heart, and the leg swells and aches.? I
get spasms in that leg, which is my left leg, and?sometimes in my right leg and
my back.? I take 2 Baclofen in the early evening when
In my case, I got the first one in rehab when my Heparin dosage wasn't strong
enough and I wasn't moving at all.? Other than my PT, or if I moved my legs by
picking them up and putting them where I wanted them, or if?the nurses did
it?to do a cath.? I kept telling the doctor/Physiatrist and
Hi Jude,
I guess that this is just one of my experiences that could be considered one of
The Good, Bad and Ugly of experiences of TM.? Some of these experiences are
not very funny when they happen to you.? They can be very embarrassing too, but
then when you look back, they aren't so
I just wanted to write in and let everyone know that I have now had 3 straight
nights of pretty good sleep.? I had some pain in my left leg that woke me up
and kept me up for about 45 minutes, but then after?exercising it some, I was
able to go back to sleep and sleep until I had to go to the
Hi Trudy,
You work too hard, I could not clean all day, whether I wanted to or not.? If
not for a automatic washer/dryer, the wash would not get done.? And, if it goes
for floors, I can do a small amount but not a lot.? It kills my back, and I'm
in bed for days.? So, it's someone else's job.?
I forgot to include the TMIC when I answered these nice messages of advice so I
am forwarding to the group.? Thanks again ladies and Rob.
Hugs, Barbara A
-Original Message-
From: balmat...@aol.com
To: marieke...@hotmail.com; pieterheat...@shaw.ca; jan...@centurytel.net
Sent: Tue, 28 Apr
Hi Rob,
Thanks for your message, and I'm so glad I could improve your day with mine to
you.??I am sending this message to the whole group, so they can see what's up
with me as well.
I really am not feeling sorry for myself.? I am not sleeping well, I wake up so
many times at night with my
Hello Rob and all,
I am so glad that you sent in this email today.? I think it just may be
the kick in the butt that I need to get out of my bedroom and on with my
life.? I am still kind of in a funk, not as bad as the usual winter funk, but
still haven't been able to totally bring
Absolutely Janice,
I was like a Raggedy Ann doll. Totally floppy from the waist down, couldn't
sit without being propped up, and no matter what position my legs were put in,
they flopped. It is painful to look back and see what I was like when TM
happened, but good to see how far I've come.
Gilly, I know what you mean about the wrinkles in the bed.? It actually causes
pain with the wrinkles, like something is stabbing you.? Using the knit sheets
makes them?warmer, and it's so hard for me to imagine you with the pillow
on?your feet.? I?cannot stand?much weight on me at
I think that this is something that most of us suffer from at some point during
our TM lives, skin sensitivity against fabric, and it's the worst when we are
trying to get some much needed sleep.
I have purchased so many sets of sheets and blankets over my TM years (T 8-10,
6/1/99), and I have
Hello Amanda.
It has been almost?10 years with TM for me, and I guess I'm practically over
the embarrassment, most of the time.?? When I was in rehab, one of the things
that we had to do before we could be released is to go on an outing into
a?public situation and we were really close to a
It seems to me that ALL bills should be read prior to signing, but that's
just me. I was always told not to sign anything that I haven't read. I will
admit to not signing all documents in total, but I have skimmed over them.
Just my 2 cents worth.
Barbara A
In a message dated
This is a very personal decision and we all have to make it for ourselves
when and if the time comes. It's good to have a discussion about this as
different views are expressed and information is dispensed that others may not
be
aware of.
I also know that there are many children in the
Thank you all for the recommendations of the rehab centers.? My god-daughter
will be picking up the emails off the list, if she hasn't already done so.? If
anyone has anything in addition to add, please do so.? I think she is going to
see the patient again today that is looking for this
Hi Janice,
I agree with Heather.? I am always careful checking the water temp with my
hands before getting into the shower.? I cannot handle a hot tub or cold
swimming pool as it makes me spasm.? Water must be at least 80-82 degrees in
the pool, and nothing over 100 degrees is comfortable in
Hey Frank,
When you mess yourself up, you don't fool around.? I hope you still have that
girlfriend to help you with those martini's.? We know you are an independent
type, but at least for a little while, you may need a bit of help.? I hope you
it's not too painful now, the worst should be
Hello all,?
Our god-daughter, Monica,?works as an aide at Craig Hospital, which?exclusively
treats?spinal cord and brain injuries?in the Denver, Co. area.?
She called last night and told me about?one of her patients who is a paraplegic
with no movement?in legs or toes, but has sensation.?
Hello Candy,
I watch Oprah today as well, and it was a really good show.? I highly recommend
all of us watch it, whether MS or TM.? There is a good deal of information that
we can all get out of it.? It reminded me of?the level of depression that goes
hand in hand for all of us.? I didn't
Hello All,
It seems that I've been bumped off list for a while. I know that this
happens now and then, and it seemed like the list was very quiet again, so I
decided to take a look at the archives. Well, to my surprise there was a lot
of
activity that I missed.
I'd like to say
Errol,
Please check in if you can, we are thinking are worrying about you.
In a message dated 2/14/2009 8:32:50 P.M. Pacific Standard Time,
pieterheat...@shaw.ca writes:
Gilly is fine and so is Shirley.
Heather in Calgary
- Original Message -
From: _Jan Hargrove_
H A P P Y B I R T H D A Y T O A L L
F E B R U A R Y B A B I E S!!
Hugs to all, Barbara A
Happy Birthday to you February babies!! janh
Happy Birthday to the February kids! Hope it's a great one!
Please send any additions or corrections to
Todd,
That was so inspirational and beautiful. He is so amazing and makes me feel
like I better do something positive for myself and someone else today. He
truly has taken a disability and created an ability to touch other people's
lives in so many ways. It's great that he takes to
Yes Jeanne, I think kids do pay if are different, but so do adults. Heaven
help the person, be it a child or adult that happens to be different if the
child has never either been taught or exposed to anyone who is different. I
remember as a child shopping with my mother and seeing a child
Frank,
Life has a way of changing, whether we want it to or like it, or not.
Hugs, Barbara A
In a message dated 1/15/2009 6:28:52 A.M. Pacific Standard Time,
fr...@franksheldon.com writes:
Brrr,
It's 1 degree here in Freeport, ME
I'm not going unless they get a lot more
Crowds..
I'm sorry, but for anyone with a mobility issue, being in a crowd can be a
nightmare. Even if you are in a chair! If you walk, you get bumped around,
and then you have to worry about balance issues. Sorry, but falling into
somebody I don't know, and then landing on
I really liked the sentiment of this message. If you don't like it, just
delete it. Hugs to all, Barbara
None of that Sissy Crap
Are you tired of those sissy 'friendship' poems that always sound good, but
never actually come close to reality?
Well, here is a series of promises that
Group,
Enough of this, this was Rick's son. And please remember that at the time
that he needed to make the decision about his funeral, he did what he felt was
appropriate for the occasion.
The information that is coming out is helpful for the future, but doesn't
help right now when
Hi Kim,
Thank you for sharing, I just love this group. I remember when
Simon Cowell first formed and they were on a TV show and was amazed by the
harmony. They sound so beautiful and are very relaxing as well. I could
listen to them for hours on end.
Hugs to all, Barbara A
In a
M E R R Y C H R I S T M A S T O A L L
A N D
H A P P Y N E W Y E A R
Hugs to all, Barbara A
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Gmail, and Yahoo Mail. Try it now.
Hi Candi,
I wish you the best of luck with your LTD hearing. You have a right to
all the paperwork out of your file at the insurance co. and should order it
if you do not already have it. The insurance companies have no conscience at
all. Their job is to get people off the disability
From: Barbaraalma1
To: Barbaraalma1
BCC: Balmatmic
Sent: 11/20/2008 8:59:26 P.M. Pacific Standard Time
Subj: OT: Fwd: Holiday Gift Cards Warning
=Subject: Holiday Gift Cards: BE CAREFUL
A Special Note Regarding Holiday Gift Cards
I totally agree with all the comments. I also know that if we didn't have
this list to be able to communicate with about our feelings and vent
occasionally, we would be a lot harder to live with, and not as well off
mentally.
Then again, my anti-depressants help a lot too, lol.
Once
I'm in No. CA, so very safe here. Very glad to hear that all who have
checked in are doing well. We had our share of fires up here, but not too
close
to our home. Earlier in the year and I had some breathing problems and it's
very scary.The winds are the worst as they take control of
Thank you all for your responses to my message, and yes, I heard from Neil
as well. I agree with what many said about the fact that it must have been
destiny for the two of us to meet. She felt that she really needed some
contact at that time and in some way, that her dad had sent me to
Hello list,
We have just finished a 16 night Panama Canal Cruise, and I must say, that
it is sure the easiest way for us to travel these days. We had a wonderful
time, and the service that was given to me was just incredible. I felt like a
pampered soul the entire time, and it sure is a
Although I am not sure if your doctor has more in mind or not, the Neti Pot is
great. I have allergy induced asthma, and hate to take meds year around when I
already take so much with my meds for my TM, so I only take my asthma stuff
when needed. I am a proud Neti Pot user, and actually have
For a while I have been using Happy Brownies made with marijuana to help me
sleep at night when I get the heebie jeebies, fuzzy feelings, burning/freezing
pain, spasms, or whatever seems to be keeping me awake. I get by pretty well
during the day with my meds, but they don't seem to help as
Anyone who is unable to find the show on their cable should just call their
cable company and ask if they carry the channel and if they do, which # it is.
If you cannot get it in your area, many TV Networks allow you to download and
watch some of their shows. This may be a possibility.
Hugs
I agree about age category, I turned 57 in February, and just had my 9 yr TM
anniversary on June 1. No, I didn't celebrate.
But, funny thing bout June 1. It was my mom's birthday, I got engaged on
June 1, and then TM. And, I missed the celebration for my mom's 70th bithday
party. Not
Hi Jim,
I have to say that I don't do the poor me thing. I do, once in a great
while, wish that I was in a body that didn't ache so much and have a little
pity
party. However, I've never wished my TM on another person and I know that
there are always others out there that are in worse
Hi Heather,
I really hadn't ever been able to put the buzzy word to those feelings
before, but it fits so well. I would use irritable, cranky, very touchy, and
angry, but never buzzy! Sometimes it does feel like electrical shocks are
happening, so buzzy is perfect. It's nice to be able
, or is that just too much to ask. I
thought that was what shows like ER did. Then again, I don't watch ER, only
have heard of it.
Hugs to all, Barbara A
Bgunny7682 writes:
Your not missing anything kiddo. There are no antibiotic treatments for TM.
Balmatmic writes:
When I watched, I wondered also
Sal,
I think you are trying to find a solution across the board for pain,
mobility, etc. that you think may have worked for you and have it work for
everyone. Because the doc told you you'd never move doesn't mean that anyone
that
the doc told wouldn't walk will walk if they just will
Don't get me wrong, my husband Pete is supportive and very helpful. Heck,
I've kind of got it made these days. He just retired, and makes my coffee and
breakfast, and at night, brings me my capucchino at night. Not too shabby.
However, I feel that all of us can benefit from some therapy
My Dear Friend Sandy,
I think that you are a wonderful partner for Terry. One of the things that
makes you this great partner is that you have gotten involved in being a part
this group to learn about all the aspects that we TM'ers deal with on a
daily basis. That has given you a great
Hi Heather,
I absolutely agree. I give the airline all the information I can that will
help me, from the time that I will get to the airport until the time that I
will get off of the plane. I travel with my own manual wheelchair, as I
generally cannot walk more than a block with my
Yikes Cindy, You certainly wouldn't want to crawl on the airlines floor!
You've got very good suggestions for people! Sorry to copy what you had
written, I hadn't realized that so much had been added in the short time I had
been
off the list tonight. Wow. This list has been jumping.
There are so many people who have written in about the possibility of stress
being a cause of their TM, and I can add my own case to that list as well.
I had been in the process of changing positions and locations at work, same
boss, although she got a very large promotion. Things were
Patti and Pam,
Thank you so much for keeping us up to date on our Jude. After reading what
you have both written, it seems that there may still be some hope for Jude
to make it through this. I know I'll keep her in my thoughts and prayers.
It still amazes me how people who are there to
Hi Frank,
Can you tell us why you made the switch from the Marinol to the Sativex,
considering the cost? Are either covered by your insurance?
Thanks for your info.
Hugs, Barbara A
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Has anyone ever ordered this or something similiar?? I'd be interested in
your comments.
Thanks, Barbara A
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Thanks for all of your responses. There were too many to answer separately,
so am sending one mass email, and hope nobody is offended by not getting a
personal one. I think there may be some others who may be interested in this
info as well.
I am sorry but I should have said that I
Hi Rick,
Is it possible that you mean C-Diff? A gut issue where the bad bacteria is
dominant over the good?? That's the analogy that I use anyway. I had it 2
years ago, and per my MD, may never quite get rid of it so need to make sure
I continue to use probiotics. It takes a good
Will those of you who live in the tornado affected areas please check in. I
was staying up late watching the election news and saw that there has been
so much damage, bodily injury and fatalities in areas where I know we have
people in our group.
Thank you.
Warm hugs, Barbara A in
I want to thank Cindy and Debbie for all of your efforts with the So Cal
Symposium. You ladies ROCK!!! I am really looking forward to it, as well as
seeing both of you again.
Hugs, Barbara A
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