Re: [TMIC] No e-mail
Something has been wrong for a few days -- when I tried sending the birthday list out, I got a weird bounceback, and when I tried to e-mail Jim to tell him about it, that bounced back, too. I checked the archives and there had been no new mail since Nov. 29th. But -- things seem to be working now, thankfully. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/)
[TMIC] November Birthdays
I can't believe it is November already! Happy Birthday to you all! (Please send any additons or corrections to tmic-list@eskimo.com). 11-01-59 Ella ([EMAIL PROTECTED]) 11-03-60 Gina ([EMAIL PROTECTED]) 11-8 Diane ([EMAIL PROTECTED]) 11-12 Marie ([EMAIL PROTECTED]) 11/13/51 Kevin ([EMAIL PROTECTED]) 11-13-66 Lauren Bresse ([EMAIL PROTECTED]) 11-16 Sandra ([EMAIL PROTECTED]) 11-17-58 Becky [EMAIL PROTECTED] 11/18/48 Drema ([EMAIL PROTECTED]) 11/20 Cossy ([EMAIL PROTECTED]) 11-21-29 Pearl Bernocchi ([EMAIL PROTECTED]) 11/22/51 Judy Hoops ([EMAIL PROTECTED]) 11/24/57 Cindy in Michigan ([EMAIL PROTECTED]) 11-25-44 Gunny ([EMAIL PROTECTED]) 11-27 Jack McMillan at [EMAIL PROTECTED] 11-30-46 Louise Flagg ([EMAIL PROTECTED])
Re: [TMIC] Be Careful When Exercising
Forgive me, I don't understand the connection -- is TM known to lead to osteoporosis? Or do some medications lead to that? Or is it that being non-weight-bearing makes one more prone to it? Barbara H. http://barbarah.wordpress.com/
Re: [TMIC] Be Careful When Exercising
No, I don't think you went overboard at all or sent it to the wrong place. As I said, I was just trying to understand the connection. It's important information for everyone, especially those who can't walk. I imagine those of us who aren't as physically active as others might be affected as well. Barbara H. http://barbarah.wordpress.com/ In a message dated 10/28/2006 7:24:57 PM Eastern Standard Time, [EMAIL PROTECTED] writes: In a message dated 10/28/2006 4:28:10 PM Central Standard Time, [EMAIL PROTECTED] writes: Forgive me, I don't understand the connection -- is TM known to lead to osteoporosis? Or do some medications lead to that? Or is it that being non-weight-bearing makes one more prone to it? Barbara H Ok, Barbara - It is my understanding that it is non-weight-bearing people who are prone to extreme osteoporosis because the main fundamental of building bone is weight bearing. In all of my life I had never heard that, but it's true and not simply for those of us with TM who cannot walk, but also for any "wheel-chair-bound" (for lack of better term) persons. I guess I went overboard by submitting such a long email, but also by sending it to the wrong place. It might have faired better sent to a support group for wheel chair users. Who knows, I've never gone to a site like that...maybe testing and treating for severe osteoporosis is common among those of us who wheel it all day. I guess that will be my next move because I don't feel as though I've gotten it out of my system. So far, in four years, I have yet to shed a tear for my losses from TM, and only now feel like I am going through the anger period. That's not normal, is it? Anyone know?
Re: [TMIC] MRI is good
Great news! Barbara H. http://barbarah.wordpress.com/ In a message dated 10/28/2006 7:00:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I want to thank everyone for their thoughts and prayers about the MRI yesterday. I couldn't wait til Monday and I found out the results today via my friend at work: 1) I have a brain 2) it has no lesions 3) it's unremarkable YAY!!! Now I can go to my halloween party and enjoy myself and have a cocktail to celebrate that at least. Jill in Chicago
Re: [TMIC] Greetings!
Welcome back! Sorry about your fall!! Hope you can find a good neuro soon. Barbara H. http://barbarah.wordpress.com/ In a message dated 10/25/2006 9:00:57 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Dear Friends, I have been off the list since August as we were doing quite a bit of traveling and it is so difficult to keep up when you don’t have access to a computer. I hope all is well with everyone! I am still trying to find a neurologist who actually cares about my condition. I went off Neurontin and on to lyrica. I have not had a good experience with the lyrica. Unfortunately, I fell and wound up in a wheelchair when I first decided to switch three months ago. Now that I’m up and around my legs are so numb that I’m completely off balance! So, back to Neurontin. So glad to be back on list! J Trudy……. in Virginia where we are having the most awesome autumn days!
Re: [TMIC] Happy news in NJ
Hello and welcome, and congratulation on the new little addition to your family! Barbara H. https://barbarah.wordpress.com/ In a message dated 10/12/2006 11:04:45 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Greetings,Just a quick note to Paula Lazzeri and everyone to let you know we are doing well- baby included. Encouragement is a good thing.Backround info; My wife, Jennifer, contracted TM out of the blue when she was a teenager which changed her life completely. (Her lesion being near T9.) She rose to her challenge and didn't give much thought to perhaps being married one day, nevermind becoming a Mom. Years later we met and fell in love. Married in 2002, we now have a son who I am glad to report is thriving and quite a handful.It's hard to believe that six months ago we were two worried parents trying to navigate the TM confusion regarding our pregnancy and delivery. Jenny recovered well from her caesarean and has returned to her career etc. She is back to walking with her crutches most of the time. I must say though, it was a blessing to have her chair during the last month of pregnancy and the recovery period afterward. I am adjusting to life as a stay-at-home dad and am thankful that we have that opportunity.Just wanted to say thank you again for your support! We'll keep in touch...--Jonathan (Jenny's husband) --Jon ([EMAIL PROTECTED])
Re: [TMIC] Neuro visit pain questions
I just wanted to thank you for that post, Rob. I appreciated everything you said there, and I agree. Barbara H. http://barbarah.wordpress.com/ In a message dated 10/10/2006 5:38:43 PM Eastern Standard Time, [EMAIL PROTECTED] writes: It is very difficult to truly talk about TM considering no twoof us are effected in the same way. We all have similar conditions butthe degree of the condition is never similar. Of course a large elementis where the lesion is on the spine and probably the size of the lesion.Many TM'rs talk of pain, and I do not. I have "discomfort" 24/7. Thenumbness, pins and needles and banding are always there. Some days arebetter than others but I have major discomfort always. I saw Dr. Kerrlast week for my annual evaluation (my seventh in a row)and I asked himif I was doing better than many others due to the extent TM hit me orbecause I have exercised and worked so hard to be as good as I can. Hisanswer was both. Exercise is very important if for no other reason thanto not go backwards and for our gereral good health. I also asked him ifpatients diagnosed with TM have a shorter life span (considering howhard we work to do the simplest tasks) and hios answer was no. I guess Iam one of the "lucky ones". I can walk without a cane, although not verylong or very far. I have been able to work fulltime the past 9 years.And I push myself to not let TM stop me from almost anything (with theexception of athletics). I try to never feel sorry for myself and Icontinue to exercise everyday almost to the point of exhaustion. I willnot give in to this condition. I am quite certain after seeing Dr. Kerrthat the cure is years not decades away. I hope the people who have themost severe cases especially the children will see a cure first. If Ihave to live with my problem longer or not be cured at all then so beit. To me life is still good anhd TM will not change that for me. When I read many of the e mails I can feel the frustration andbitterness. I believe many who write are not able to work and thereforehave to deal with the condition minute to minute.I who work, am able toforget it until I get home and then give in to the condition. I do notconsider unsubscribing due to anything anyone says. I glance quickly atevery e mail and if it is not pertinent I just delete...which reallytakes less than a second. If it is pertinent I reply directly to theperson and not the group. I reply only to the group when I think itpertains to most if not all. As always having grown up in Brooklyn NY I tend to ramble. But aday does not go by where I don't pray for all of us. Let's just all hangin there and help eachother and especially try to help the newcomer whomis normally so confused and afraid.Love to all!Rob in New Jersey
Re: [TMIC] Newbies, update, etc.
Hope Terry's surgery goes well with a full and uneventful recovery. Enjoy your trip -- it sounds lovely! Barbara H. http://barbarah.wordpress.com/
[TMIC] October birthdays
Is it almost October already??!! Happy birthday to you all! (Please send any additions or corrections to tmic-list@eskimo.com) 10-3-97 Lauren Graham ([EMAIL PROTECTED]) 10/4 Neil McNeil ([EMAIL PROTECTED]) 10-06-64 Jackie ([EMAIL PROTECTED]) 10/08/1974 Rudy Aceves ([EMAIL PROTECTED] ) 10/11/56 Lori B. ([EMAIL PROTECTED]) (returned -- don't know current e-mail) 10-11 Kate ([EMAIL PROTECTED]) 10-12 Kim ([EMAIL PROTECTED]) (returned) 10-12 Diana Gray ([EMAIL PROTECTED]) 10/14/84 Miranda ([EMAIL PROTECTED])([EMAIL PROTECTED]) 10/14 Lanora ([EMAIL PROTECTED]) 10/16/53 Sandy Parker ([EMAIL PROTECTED]) 10/16/50 Linda Cherpeski ([EMAIL PROTECTED]) 10 - 21 - 54 Renee A. in CT ([EMAIL PROTECTED]) 10-21-48 Cody Kidwell ([EMAIL PROTECTED]) 10-22-93 Matthew ([EMAIL PROTECTED]) (Rachel's brother) 10-23-60 Keith ([EMAIL PROTECTED] ) 10-25 Debby Jones ([EMAIL PROTECTED]) 10-26-1967 Jim Lubin [EMAIL PROTECTED] 10-26-52 Anne Shreve ([EMAIL PROTECTED]) 10-26-1955 Bernie Pelow ([EMAIL PROTECTED]) 10/27/63 Robin ([EMAIL PROTECTED]) 10/27 Krissy ([EMAIL PROTECTED]) 10-28 Netta Ganor ([EMAIL PROTECTED]) 10/29 Joellen Finkelstein (don't know current address) 10/31/72 Jennifer Spence ([EMAIL PROTECTED]) 10-31 Donna (don't know current address)
Re: [TMIC] today's feat
Congratulations, Krissy! I remember wondering when and whether I'd be able to drive again and contemplating the impact that would have on my family. It is so nice to be able to -- gives a great measure of independence. Hopefully it will get easier and better for you along the way! Barbara H. http://barbarah.wordpress.com/ In a message dated 9/28/2006 3:38:35 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I drove today! first time in over a year...was hard and used every muscle in my thigh and my foot slipped sometimes but I DID it ~Brightest of Blessings~ ~Krissy~
[TMIC] Dry mouth
A couple of people have mentioned dry mouth (sorry -- I forget who). I just wanted to mention that some medications will contribute to that. Ditropan is one -- I would imagine anything else for bladder issues might also. Barbara H. http://barbarah.wordpress.com/
Re: [TMIC] Re: (OT) Re: tmic-digest Digest V2006 #185
I don't know who in the Internet world decided using all caps was yelling -- but it's not, in and of itself. If it is being done for emphasis it's obvious. My mom had arthritis and the skipping that extra step of hitting the shift key to capitalize made it a little easier for her to type (though after getting scolded about it from other people she switched to writing in all lower case). I'm sure that's the case with many on the TM list, though as Pam said, some felt all caps were easier to read. Using a bigger font helps with that. I don't see why it can't be one of those "live and let live" things. (Shrug.) Barbara H. http://barbarah.wordpress.com/
Re: [TMIC] am i getting worse?
Yesterday I wanted to scan a picture that was in a collage-type frame on the wall, so I took the frame down and left it on the table while I took the picture out and scanned it. I got to doing other things and didn't get the picture back in and frame up. Later in the day I came downstairs and noticed the blank space on the wall, and thought, "What? What is supposed to be there? What's missing?" I felt so silly for not remembering I had taken the frame down earlier in the day. Brain foghappens. I don't know why. I agree with whoever said it gets worse if you fret about it. I've had days when my balance is worse, too, to the point where I am not too sure about doing what I normally do. I hope there is some encouragement in knowing that many of us experience the same things, even if we don't know why. :-) Barbara H. http://barbarah.wordpress.com/ In a message dated 9/6/2006 9:24:59 PM Eastern Standard Time, [EMAIL PROTECTED] writes: well, I notice my balance is a little more off balance lately..more so than usual..I know I could get *tipsy* now and again, but especially in the mornings now I am way off balance and sometimes after a longer day I find myself falling into things more...also, my memory is really geting bad now..mostly my short term and its really starting to bother me. I cannot always recall the names of simple things ..like when I was in the cellar asking the boys to help me clean I was pointing to the sleeping bag , snapping my fingers calling it a blue thingthen the other night, my daughter and I did her bedtime prayer and I walked into the other room o get her something and walked back in and said 'lets do prayer" and she said but mama we already did it, and I had NO recollection of doing it I felt like an idiot...I feel like saying wtf is happening to me? Is it early Alzheimer's sheesh, it brings me to tearsis it because I am not getting to the gym to exercise, or on here too much? not outside as much, I don't know...but it seriously is bothering me...Krissy ZoddaTri State Support Group Leader(603)589-1894http://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~
Re: [TMIC] am i getting worse?
In a message dated 9/7/2006 3:07:43 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Hello everybody --- I have been reading your stories. Don't you think that it is the various drugs you are taking that might be causing the balance and especially thememory problems? I'm not on any drugs for TM. Synthroid for partial thyroid removal due to a benign lump about 17 tears ago, and Toprol for a heart rhythm problem -- I don't know ifeither of those are supposed to affect balance or memory. At 49, I know some of it is due to getting older. :) But you're right, there are some drugs that would affect balance and memory. Barbara H. http://barbarah.wordpress.com/
[TMIC] September Birthdays
Happy Birthday! Hope you are enjoying some cooler temperatures!! Please send any additions or corrections to tmic-list@eskimo.com. 9/3/42 Buddy Cohen ([EMAIL PROTECTED]) 9/5 Mavis White (Errol's wife) ([EMAIL PROTECTED] ) 09-06-83 Jake DeGrand ([EMAIL PROTECTED]) 9-8 Mary Davidson ([EMAIL PROTECTED]) 9/8/45 Terry Parker ([EMAIL PROTECTED]) 9/9 Pam ([EMAIL PROTECTED]) 9-16 Mary Eden Cochran ([EMAIL PROTECTED]) 9-17-74 Michael ([EMAIL PROTECTED]) 9-17-57 Bill Wimberly- ([EMAIL PROTECTED]) 09/20/47 Rob Pall ([EMAIL PROTECTED]) 9/23/58 Cathy (Rachel's mom) ([EMAIL PROTECTED]) 9-23-55 Karen (Mushroo) ([EMAIL PROTECTED]) 9-24 Suzi in Seattle ([EMAIL PROTECTED]) 9-26 Faye Mansfield ([EMAIL PROTECTED]) 9-27-58 Dale R. Callaghan ([EMAIL PROTECTED]) 9/30/53 Patti Enstrom [EMAIL PROTECTED]
Re: [TMIC] Message from Larry Bert Throne
Larry answered this and apologized for it a few days ago. It was accidentally sent, not meant for the TMIC. Barbara H. http://barbarah.wordpress.com/ In a message dated 8/27/2006 9:40:04 AM Eastern Standard Time, [EMAIL PROTECTED] writes: I'm wondering too. What's the deal with this? I'm not clicking anything unless I know what it is. Sharon --from Arizona TM 1997 to MS 1998 It's not easy taking my problems one at a time when they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: Krissy Z [EMAIL PROTECTED]To: [EMAIL PROTECTED]; tmic-list@eskimo.comSent: Thursday, August 24, 2006 7:01:47 AMSubject: Re: [TMIC] Message from Larry Bert Thronebefore I click on a strange lin k..wha is this? I dont want a virus :pLarry Bert Throne [EMAIL PROTECTED] wrote: Larry Bert Throne just sent you this link: https://namesdatabase.com/1l.pl?c1=39113998911 Instructions 1. Click on your link above to activate it. 2. Complete your info to enter the Web site. Larry selected you for this on 08-23-2006 22:52 ET. [EMAIL PROTECTED] (Larry Bert Throne) initiated this to tmic-list@eskimo.com at 08-23-2006 22:52 Eastern TIme on namesdatabase.com from the IP address 209.30.228.40. If you do not know a Larry Bert Throne, use this link to halt reminders about the above link. For reference, the address of The Names Database is PO Box 550175, Waltham, MA 02455.
Re: [TMIC] neuro appt.-vent
"Common sense is not as common as it really ought to be." That is so true! Thanks for a new favorite saying. I didn't know they threw out MRIs after 7 years. That means mine is gone, too. :-( That's a good reminder to get copies of all pertinent medical records. Barbara H. http://barbarah.wordpress.com/ In a message dated 8/23/2006 9:52:13 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Krissy, I think you and I are seeing the same guy! I thought I had mine figured out but just this week I got a call from him that made me furious. I had another MRI on 7/31. I called 4 times for results and no one would call me back. Then on Monday he finally calls and is very abrupt. He announces that I have my first brain lesion and that confirms the diagnosis of MS. He then says that it "doesn't change what we are doing" and tries to end the conversation. Drop bomb get off the phone quick does not work for me. So I say geez since the symptoms during my July attack were the same as my TM symptoms how did the lesion at the C1 look this time? No answer...his pager goes off and he says"I have to answer this page." No mention of I will check and call you back. In talking to the nurse yesterday I find that the report did notmention the cord lesions and also did not compare this MRI toprevious. Soshe asked to get thecomparison done this week.I now know that I must ask for this every time I have an MRI. This is one of those things that my common sense says should be routine. But alas...like I always say, "Common sense is not as common as it really ought to be." I also found out thatafter 7 years the hospital throws out an MRI!!! So my first MRI that showed TM in 1998 isgone! The 2001is still there for a while but then it too is gone. I cant believethey do this whenits a chronic condition. Mynurse saidshe has tried to change the policy but theywill not. I am getting the CD this go round so I can hang on to them myself fromnow on. Evidently even the CDs get tossed after 7 years! The other thing I wanted to tell you is that I try to direct the conversation when I am at the neuro's office by taking in notes. Sometimes two or three pages. I describe everything in detail and ask that they be put into my file. This gives us some topics to focus on and keeps me from forgetting to mention stuff. Plus I think my notes are more complete than his...in fact I know they are. I learned this from someone on the list a few years back and it has made a huge difference in how my appts go. Take care, Sandy in Wisconsin
[TMIC] Karyne Jenke
Today was long-time TMIC member Karyne Jenke's birthday, and after I sent her a brirthday greeting, I was stunned to receive a reply from her husband, Rod, that she had passed away last April. I am copying Rod's comments below as they contain a message for you all. Karyne was always a sweet, bright presence on the list, and she will be greatly, greatly missed. Barbara H. In a message dated 8/19/2006 3:10:17 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Hi, I am Karyne’s husband, Rod. I know I should have let every one on the TM list know earlier but Karyne passed away on the 23rd April unexpectedly whilst in hospital having a blood transfusion. At this stage the official cause of death is still unknown but we have been told it was a hemorrhage to her brain stalk. Please pass on to all on the list that everyone over the years, whether they emailed Karyne personally or not, were a great inspiration to her and gave her the courage to realize that having TM (in it’s various forms) was not the end of life but just another hurdle to overcome, which she did on many occasions. My comfort is that she no longer has these hurdles. Best wishes and thanks to everyone. Love Rod Tyler Jenke Gawler South Australia.
Re: [TMIC] TM Questions for new TM Patient
Hello, and welcome to the TMIC! I am sorry your mom has had to deal with TM -- but glad you were able to find us. I had some swelling, but not 40 lbs. worth. I was only on prednisone for 3 days. I still get a little bit of swelling in my left hand and ankles. I did have a heavy feeling in my legs for a long time, but I don't know if it had anything to do with fluid or if it was just a weird feeling. I live with my family (husband and sons), but as far as ability goes, I could live alone if needed. I couldn't have the first few months after TM, though. Some dear folks from our church installed hand rails on the stairway and in the bathroom. I couldn't have functioned, at least not very well, without those at first. I have had jerky movements with one hand (my left hand was affected by TM but the right wasn't) and in other muscles. Since it is not frequent or too bothersome I don't take anything for it. I don't remember how long it took me to go from a walker to a cane -- I wish I had kept a journal then. I think it was just 2-3 months or so. I do drive but didn't at first. I could always move my legs, but the feeling was inaccurate and the movement hard to control at first, so I didn't drive for a while. I don't remember when I started driving again, but it was well within the first year, maybe within 6 months. Hope others chime in with their answers. Hope this is some help. :-) Barbara H. http://barbarah.wordpress.com/ In a message dated 8/19/2006 10:03:14 AM Eastern Standard Time, [EMAIL PROTECTED] writes: HI everyone,This is my first time posting to this group, although I have been a member for a couple of months now. I have a couple of questions I hope some of you can help me with. My mom was newly afflicted with TM 3 1/2 months ago on May 3, 2006. She was originally paralyzed from the waist down. We are told she is improving rapidly, so we hope it continues. We had a setback. A month ago she blew up with 40 lbs of fluid, which was attributed mostly to the predisone, so she's not walking as good as she was. Luckily now thats starting to go down, and she's been weened off from 40 mg of predisone to now 10 and they want to completley ween her down. She has just now after 3 1/3 months went home from the inpatient rehab. But she's continuing her PT/OT through home care. We have a couple of questions that the doctors aren't answering, but we are hoping others with the same disease can. They are:1. How many of you also have fluid problems? Do your legs feel heavy due to extra fluid? I'm on Bumex (duratic) to ge the fluid out. This is what makes her urinate a lot. Does anybody ahve any suggestions in what kind of sheets or other things to use to help this? She does have a vinyl sheet. She has some control, but not completely. 2. How many of you live by yourself without any type of assistant living? If so, what assistant tools do you use (ex. cane, walkers, nothing, etc). 3. What medications do you take to help with the spasticity/pins needle feelings? 4. Do any of you have jerking movements with your hands?5. Those of you who are walking with canes, how long did it take you to get there from using a walker? 6. Do any of you drive? If so, do you have driving restrictions?Thank you very much! We appreciate any feedback/help with these questions.
Re: [TMIC] Crazy Question
Yes, it's very normal to have little flare-ups. I would often fear another attack was coming on during the first year or two, but in my case, it never got quite to the extent the first attack reached. I was seeing my neuro often the first several months and he would assure me that it was just a flare-up. He said that the TM affects the nervous system in such a way that it's like it is oversensitive to stimuli, so even things like not getting enough sleep or having a cold or having stress (even "good" stress, like getting ready for company to come) could make symptoms flare up a bit. But some times there was no reason that I knew of -- things would just get worse for a while. Even now, almost 11 years later, though I've kind of reached a plateau, there will be some days when I'll wonder what in the world is going on with me. I kind of think of it as riding the waves (though I'm not surfer and can't even swim :-) ) -- but I try to tell myself, "This is just a flare-up -- just ride it out for a while and things will be normal again." Of course, after TM hits, "normal" is different from what it was before anyway. :-) That said, though, don't hesitate to call your dr. if things are flaring up to the point where it is scaring you. And ask about different medications -- Kathryn mentioned Baclofen. That didn't do much for me, but it helps a lot of people. I was on Tegretol for a while -- my neuro said it was used for epilepsy patients but had a "quieting effect" on the nervous system in general, so was sometimes used for TM patients. It really did help, but they have to check your liver functions often when you're on it. I decided to get off of it because I was afraid of long-tern liver damage (though that may be unfounded, I don't know). But I wouldn't hesitate to try it again if I felt I needed it. We all have different body chemistries and different things, or different combinations of things, will be helpful to different people. Barbara H. http://barbarah.wordpress.com/ In a message dated 8/7/2006 11:16:36 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Although I feel I'm VERY fortunate to be able to walk unassisted, I feel like I have "little flare-ups" from time to time with my left leg and right foot going numb and even feeling like a raw/burning feeling. Is that normal? I also feel like a tingly feeling in my head sometimes? I don't know if it's just driving me crazy and I need an ativan or is it just the TM reminding me that it's there lurking and ready to come back or even turn into MS. This has been for about a week or two now. I was diagnosed in Dec. 2005 and have made great strides since then thank God. Jill 36, Chicago T10-11
[TMIC] August Birthdays
August is one of our busiest birthday months! Happy birthday to all the end-of-summer babies. (Please send any addtitons or corrections to tmic-list@eskimo.com.) 8/1 Peachi ([EMAIL PROTECTED]) 8/1/45 Cindy McLeroy ([EMAIL PROTECTED]) 8- 1-74 Stacy Firth ([EMAIL PROTECTED] ) 8-3-56, Larry Throne ([EMAIL PROTECTED] ) 8-10 Sean Indiveri ([EMAIL PROTECTED]) 8-11-69 Raylene Gökeri ([EMAIL PROTECTED] 8-11-70 Carrie ([EMAIL PROTECTED]) (user unknown) 8-11-59 Michelle Maricic ([EMAIL PROTECTED]) 8/12/95 Kevin ([EMAIL PROTECTED]) (Rachel's brother) 8/14/58 Paula ([EMAIL PROTECTED] ) 8-16-44 [EMAIL PROTECTED] 08/17/68 Sandra (Harth) Brassil ([EMAIL PROTECTED]) 8-17 Kim ([EMAIL PROTECTED]) 08/18/64 Corinne "Cookie" Knox ([EMAIL PROTECTED]) 8-19-41 Saroj ([EMAIL PROTECTED]) 8-19-66 Karyne Jenke ([EMAIL PROTECTED] ) 8-21-57 Barbara H. ([EMAIL PROTECTED]) 8/22/60 - Debi ([EMAIL PROTECTED]) 8-23-00 Cole ([EMAIL PROTECTED]) 8-23-48 Sharon Knie ([EMAIL PROTECTED]) 8-29 Lisa Baker (Judy's daughter) ([EMAIL PROTECTED] 8-29-76 Kathleen ([EMAIL PROTECTED] ) 8- 31-62 Robin in Ontario(Brampton)([EMAIL PROTECTED] )
Re: [TMIC] RE
In a message dated 7/25/2006 3:52:32 PM Eastern Standard Time, [EMAIL PROTECTED] writes: hello gang--remember me? vicki Yes!! Good to see you again! Barbara H.
Re: [TMIC] TM and exercise
I found it here: http://protect.bju.edu/cstore/index.php?cPath=50_68sort=2aproducts_id=6585osCsid=8e7cc5d9859b8d997b3f9f4520f08140 It's at the bottom of that page. The lady who put it together is Linda Haught, and she's done a number of exercise videos to jazz and classical music. This one isn't as professionally done as the others, but it does what it bis supposed to. Barbara H. In a message dated 7/24/2006 3:39:19 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I agree, doing some exercise does help in the long run. I couldn't find "Wimp aerobics" via internet search. What is it? BERNARD BUTCHER From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Monday, July 24, 2006 8:52 AMTo: tmic-list@eskimo.comSubject: [TMIC] TM and exercise I have started occasionally exercising with a video called "Wimp Aerobics." :-) I can't keep up with all the steps, but I can do more of it than I can with a video made for normal people. I feel generally better overall and more energetic when I use it, but afterward my back spasms more and my legs feel weaker. I haven't made the exercise a regular thing yet, more just hit and miss, but I need to do something both for general health and to try to lose weight. For those who have incorporated regular exercise into their schedule, do the "negative" effects lessen over time? I know anyone who has been sedentary who tries to exercise will feel sore and maybe even feel worse for a time before they start feeling better. Barbara H.
[TMIC] TM and exercise
I have started occasionally exercising with a video called "Wimp Aerobics." :-) I can't keep up with all the steps, but I can do more of it than I can with a video made for normal people. I feel generally better overall and more energetic when I use it, but afterward my back spasms more and my legs feel weaker. I haven't made the exercise a regular thing yet, more just hit and miss, but I need to do something both for general health and to try to lose weight. For those who have incorporated regular exercise into their schedule, do the "negative" effects lessen over time? I know anyone who has been sedentary who tries to exercise will feel sore and maybe even feel worse for a time before they start feeling better. Barbara H.
Re: [TMIC] ACCEPTANCE/MAYBE EVEN GIVING UP
I thought the dye, or "contrast material," was something that dissipated over time and vacated the body through urine (I remember wondering if that was why my urine seemed to have an odd smell for the first several days after TM struck). Once they put it in, I don't see how they could draw it back out, because it would be mixed with spinal fluid. Anne, I would suspect MS in your case since you recovered well and then experienced more problems later on. That's just a guess, of course, but it sounds more like MS. Are you still on a pain manangement regimen? Do you still se a neurologist? Barbara H. In a message dated 7/24/2006 1:45:03 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Hi everyone, I've never said the word "give up" or even thought about writing it. But what do you do when you had tm in 75 at the age of 21, was in the hospital for a little over 3 months where the neuro performed a mylogram (I hope I spelled that right) did not draw all the dye out of my spinal column, but went on to completely recover over a period of about a year. I had no residual effects other than a little problem with urination. Now if you look at a MRI or X-Ray of my spine all you can see are black dots, large and small, that have attached themselves over the years to my spine. My neuro said that over the years they had hardened just like "cement". I have no myelin to speak of at all. No surgeon will touch me. The doctor at the first pain management center was going to give me some sort of pain blocking agent that would have been injected into the spinal area, but, you guessed it, his words were, "I would not even think of attempting this procedure because it could easily paralyze you from the neck down". I was diagnosed with MS and sent to another pain management center where I underwent cruelling tests for 3 days. I was then put on a pain medication regement and made comfortable. I'm not paralyzed, however, I cannot walk one step or stand any longer than it takes me to get out of this hospital bed and get into the power chair. After the tm in 75, I worked again, sometimes 3 jobs at a time, because I was lead singer in a country rock band, remarried in 85 and had another child in 87. But near the end of 94, November to be exact, I felt such pain and then extreme weakness in my legs. By 96 I was using a walker and then the next year I remember getting up to walk to the mailbox with the walker. I opened the door and for the first time I looked at the mailbox and was afraid. My legs were already trembling with weakness standing there at the front door. I don't think I have MS, I just think the doc had no other answers. I'm not in my "pity pool" tonight. I'm just telling it like it happened. I love and appreciate each and every one of you, but maybe now you can understand why I don't get it when you all say "had TM since ..". Thanks for letting me share with you all. God Bless, Anne Shreve, North Carolina
Re: [TMIC] Hot Weather TM
I have trouble with both the heat and the cold. I was one who was usually hotter than most people anyway, but TM accentuated that. I can hardly go to Wal-Mart or the mall without getting hot and sweaty, and then my energy is just zapped. I usually have to have one or both feet sticking out from under the covers at night. But in the cold, I do get stiffer. So I try to stay inbetween. Oddly enough, my left arm, which is where the TM symptoms first began, will get uncomfortably cold when the rest of me is fine. Sometimes when I watch TV I have to have a pillow or throw blanket on that arm. Barbara H.
Re: [TMIC] Also....
In a message dated 7/21/2006 11:14:52 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Agreed. I do want to clear up that I am not for embryonic stem cell research. My main complaint has always been to not hold up the good research or deny funds because of this one part of stem cell research as a whole. The WHOLE issue needs to be addressed and not just one aspect of it. In other words, don't poop on the rest of the research because you disagree with one part. Cut that part out and APPROVE the other research monies. OK, now I get it. Somehow I wasn't comprehending that that's what you were saying (I apologize). Yes,I agree, funding should go to the other areas of stem cell research that don't involve embryos. As far as ATF and the clueless idot part. My apologies to anyone it offended, but like I said before, you have to factor in the emotional side of it. I was clearly upset about it because I have strong emotions about the subject. Can we call a truce? Maybe it will spread throughout the worldya never know. Alan Sure. :-) Barbara H.
Re: [TMIC] Study shows spinal cord regeneration
Thanks so much for this, Jim, both for what you said and how you said it. I agree on every point you made (and I'm an independent Baptist :-))except that I haven't studied what you mentioned in the last paragraph, so i'm not sure what my opinion is on that yet.I was never so proud of Bush as when he had those children from frozen embryos around him and said, "These are not spare body parts." I do wish those who disagree on this issue wouldn't resort to name calling and questioning the motives of those who do believe life begins at conception. From what I have read the research on adult stem cells is much more promising than the media conveys. Barbara H. In a message dated 7/20/2006 8:00:01 PM Eastern Standard Time, [EMAIL PROTECTED] writes: (I'm copying this from my replies on another list, so forgive me if it sounds like I'm rambling on)I've never thought of myself as part of the "Moral Majority" as you say (I am a Roman Catholic) but agree with president Bush on this and I will explain way.I do believe that a human egg and human sperm make a human being from the time they are joined, from that point the zygote contains all the 46 chromosomes need to be human. It's called an embryo after about 10 days. Being a human, it is entitled to protection to life from the Government. Therefore, the Government should not be funding the destruction of life for the purpose of research.Now your opinion of when a human is a human and entitled to protection obviously differs from mine and president Bush. You can decide for yourself when a human becomes a human that is entitled to protection. Some people thing after birth and not before. I'm against IVF treatments as well because it creates extra embryos in the process, but since they exist then keep them on life support (i.e. frozen) indefinitely. They are not something that should be killed (i.e. by removing stem cells) to possibly make another persons life better. I have a moral problem with taking one life to improve another persons life.As for using those extra embryos in research for the possible benefit of others, just because they are going to be destroyed anyway, following that reasoning, here's my problem with that. A person with a traumatic brain injury or in a coma being kept alive on ventilator will never be completely healed and will die without the life-support, so why not harvest their body parts to improve someone else's life? I see both equally wrong. The Nazi's conducted medical research on the people they were going to kill anyway. I see it as the same.Embryos left over from IVF are not the only source for stem cells. (2006.06.27: Research on Alternative Sources of Pluripotent Stem Cells, http://www.hhs.gov/asl/testify/t060627.html )So I feel those sources should pursued since there would be no moral or ethical concerns. I'm all for scientific advancement that does not conflict with my morals and ethics. Now, if scientist want to use stem cells derived from a human egg and another cell, somatic cell nuclear transfer (SCNT), I don't consider that a human and have no problem with research on those stem cells. At 12:34 PM 7/20/2006, Alan Junghans wrote: I was a little vague in the "Kill stem cell research", but he sure is holding back progress. If he had TM or Parkinsons OR ANYTHING that could benefit, he might tell all of the "Moral Majority" to piss off and do the right thing. I didn't want to admit it before, but he is truly a friggin idiot who is clueless. - Original Message - From: Krissy Z To: Alan Junghans ; TM List ; TMA-New-England Sent: Thursday, July 20, 2006 11:42 AM Subject: Re: [TMIC] Study shows spinal cord regeneration i never voted for him...he repulses me...and to veto this stem cell reseach. something so important to folks like all of us,his brain is not just wired to what priorities should be. what goes around Jim Lubin [EMAIL PROTECTED]http://makoa.org/jim disAbility Resources: http://www.makoa.orgPlease Help: Inkjet Toner Cartridge Recycling
Re: [TMIC] home after being lost for a while
We'll be more than glad to see your name pop up!! I'm so glad you're able to be back and that you're doing better. My mom passed away a few months ago, too. It's...tough. My kids are are the verge of leaving the nest, and I'm just-trying-not-to-think-about-it just now! :-) Good to hear from you, Barbara H. In a message dated 7/12/2006 4:13:45 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Hello All, I've been out of touch for quite a while. Lots of reasons that I won't get into too much detail on, most of which have beensome new serious illnesses that are mostly resolved for now and depression. I have missed all of you. I have sort of tried to keep up with the goings on here, but I'm very sure have missed out on quite a bit. It's been probably about a year since I've been activly participating in this list, and as I look back so much has happened in my life. Our children have moved away, along with grandsons. And, now another grandson was born in Florida in April, when we live in California. That's been a big part of the depression, as well as the loss of my mother and otherfamily members, one of which a 20 yr old, Iam finding myself evolving out of the depression though, as my family has visited and the older grandchildren have stayed behind with us. I am also feeling somewhat better physically, which is another boom for my mental attitude. I know that the two go hand in hand to some extent, but not entirely in my case. I am hoping to continue my positive rebound, as I totally hated the alternative. I know it wasn'tfun for me or the people around me! Anyway, I hope to be a contributing member of the group again. So, don't be surprised if you see my name pop up now and then, lol. Warm hugs to all, Barbara A in Auburn, CA
[TMIC] July Birthdays
Happy Birthday!! (Please send any additions or corrections to tmic-list@eskimo.com.) 7-5-83 Sumer ([EMAIL PROTECTED]) 7- 9-5l Vicki Frohna ([EMAIL PROTECTED] ) 7-14 Julie ([EMAIL PROTECTED]) 7-15-51 Sandi S. ([EMAIL PROTECTED]) 7/ 18/ 51 John ([EMAIL PROTECTED]) 7-25-62 ([EMAIL PROTECTED]) 7-25-69 Michelle Balliet ([EMAIL PROTECTED]) 7-27-60 Linda ([EMAIL PROTECTED]) 7/29/49 Hildred ([EMAIL PROTECTED]) 7/30/30 Dex Packard ([EMAIL PROTECTED])
Re: [TMIC] New Neurologist
In a message dated 6/27/2006 11:40:44 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I do/did wonder why some doctors have their patients have yearly mri's orwonder maybe why some patients are able to have access to yearly mri's. I think a lot has to do with the way individual neuros think. When I was first diagnosed with TM, either the Avonex type drugs weren't being used for MS yet or at least not widely. When I asked about having a follow-up MRI done, my neuro said it wouldn't really be needed since my symptoms weren't worsening and any results from the MRI wouldn't change how we were treating it (which, again, wouldn't be the case these days, because they could start the Avonex drugs to try to prevent another attack). He had had a patient who felt she had MS and kept pushing for that diagnosis, and he did a follow-up MRI which showed that she did indeed have MS. But when she changed her diagnosis, her insurance dropped her. She called him again begging for him to change the diagnosis back, but of course he couldn't do that. So with that background experience, he was reluctant to give patients an MS diagnosis unless it was just unavoidable, and that rendered follow-up MRIs as unnecessary in his mind unless the patient was having worsening symptoms. We've moved, so I don't see him any more, but he might have changed his stance since there are drugs to help with MS. And I don't know if insurance companies would still do that. Barbara H.
Re: [TMIC] New Neurologist
I don't think it's too unusual for a new neurologist to want to ask for another MRI to see what, if anything has been happening since your onset. I saw my neuro regularly for maybe a year or so after initial onset, but he never did a follow-up MRI. When we moved away, I didn't get a new neuro since I was pretty much on a plateau as far as recovery goes (still some minor improvements 10+ year later, but not as big as the first few months). My GP is knowledgeable about TM, so that helps, too. But I do know some people whose doctors follow up with MRIs from time to time just to check on what's going on. I've been curious, myself, but not enough to ask for one. My GP told me he'd refer me for one if I ever wanted it. Barbara H. In a message dated 6/25/2006 10:09:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I was just wondering about your thoughts Two years ago I was "hit" with TM (C-3), spent a couple days in the hospital, refused steroids, left with a cane and went back to work a month later, just living with the stiffness, numbness, burning, fatigue, etc. The two neuorologists who saw me anddiagnosed menever mentioned a follow-up so I just went to my GP. Upon recommendation by some on this list to keep in touch with a newologoist, and wishing for something for the fatigue, I went to a neurologist who said I should have had follow-ups by a neuro and we shouldn't just assume my TM is idiopathic but could be a result of MS ( my initial MRI showed no brain lesions). He said I could have gotten more "small" lesions with no further symptoms. If so, these small lesions could some day come together and, his quote, "all hell break loose". He wouldn't prescribe anything long term for fatigue because he wanted more MRIs. So, tomorrow I will have them. I almost wish I hadn't gone to him as I don't think I have gotten "worse" but learned to live with the symptoms. Just not sure I agree with his reasoning; haven't really seen this view from this list. Any thoughts? Gary in Michigan
Re: [TMIC] Pain
I can second what Gilly said. I had some pain in one area at TM onset (10+ years ago). That went away. Over the years I developed some pain in my back that wasn't there originally, and they think it is TM related. But mine is intermittent -- some days it is hardly bearable, but other days it is not a problem at all. My heart goes out to those in constant pain. But I agree with Gilly, too, that it's best not to worry about it. I know you're not asking out of worry right now but just wanting information. But we each have plenty on our plates to deal with each day as it is without thinking about what might happen. I have to just take each day as it comes and trust God for grace for that day, sometimes just for that moment, and trust that that same grace will be there for each day in the future. Sometimes I liken it to riding the waves, an analogy I heard once in reference to labor -- someone had said that if, during labor, they began thinking, "What if I have to do this for 24 hours or more?" it became more difficult and they became more tense and upset. But if they hung onto the thought that "I only have to get through this contraction for right now" they could give all their concentration to it and could get through it better. They likened it to riding that one wave at a time and not worrying about all the rest that might come. I thought that was a great analogy for life in general and TM in particular. Wishing you all the best, Carol. Barbara H. In a message dated 6/9/2006 1:27:16 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Many of us have had an increase in pain and many have not, so, best not to worry about it until it happens. hugs Gilly On 09/06/06, Carol E [EMAIL PROTECTED] wrote: I was diagnosed with TM 1 year ago, June 16th. So far, I have only some discomfort in my body and no real pain to complain of. My question isis that the way everyone starts out and then the pain comes later? Does it make a difference where your lesions are? Mine is at T8-T10. Should I be expecting the hammer to fall any day? Your input would be appreciated. Carol in Culver, IN
[TMIC] June birthdays
Happy Birthday to those celebrating in June! (Please send any additions or corrections to tmic-list@eskimo.com. 6-5 Tobe Kanon ([EMAIL PROTECTED]) 6-11-42 Irene ([EMAIL PROTECTED]) 6/11/50 Marabeth ([EMAIL PROTECTED]) 6-11-51 Sharon Marsden ([EMAIL PROTECTED]) 6-15 Sheila ([EMAIL PROTECTED]) 6-17-46Cheryl ([EMAIL PROTECTED]) 6-19 Tom in Delaware ([EMAIL PROTECTED] ) 6-19 Debbie Capen ([EMAIL PROTECTED]) 6-22 Ann Moran ([EMAIL PROTECTED]) 6-25-43 Errol White ([EMAIL PROTECTED] ) 6-25-61 Dennis Galvin ([EMAIL PROTECTED]) 6-29-59 Pauline ([EMAIL PROTECTED]) 6/30/40 Bobby Jim ([EMAIL PROTECTED])
Re: [TMIC] Weird feelings around eyes
You know, I'd forgotten about this until it happened yesterday, but I have had other eye involvement beside the drooping eyelid at onset. Whenever I sneeze, sometimes it sets off "showers" of twitches in my eyelids. Barbara H.
Re: [TMIC] Weird feelings around eyes/correction
In a message dated 5/17/2006 4:53:03 PM Eastern Standard Time, [EMAIL PROTECTED] writes: My husband and I are both 49 Aack!! We're still both 48. I don't turn 49 til August. I don't want to rush it!!! :-) Barbara H.
[TMIC] Weird feelings around eyes
When TM first came to take up residence, most of my symptoms were in my left arm and lower trunk and legs. But there was one very very sensitive spot right on top of my head (made getting haircuts interesting -- I felt like I was going to jump out of my skin) and one of my eyelids was at half-mast. The neurologist I saw the first couple of days was puzzled over the eyelid, saying that that was "a brain thing." The MRI and CAT scan showed everything was ok with my brain, though. But when I had PT, the therapist said her chart listed TM and encephalitis -- but nothing had ever been said to me about the latter. I never really went back to question it, though, because I was out of the hospital then and on the road to improvement (and it may be that in my lists of questions I'd take when I saw the neuro, I just didn't think to ask about it). Eventually my eyelid righted itself, although the sensitive spot in my head remained. It seems like I remember reading here that TM usually doesn't affect the head. Is that right? Would symptoms in your face or head indicate brain involvement? Over the past few months I've had these weird feelings around my eyes. I'll look in the mirror, squint, wink, etc., and everything seems to function -- just feels weird. It isn't constant, but off and on. Then last week during one of those weird feelings, one eyelid was a little lower, and the other was open way wider than usual (looked very strange). It righted itself within a few minutes. I asked my dr. about it, and it said it must be related to the TM. I do have weird little muscle spasm or twitchy things going on in other muscle groups. Do you think this is just one of those TM things or does it warrant further investigation? Anyone else experience this? Barbara H.
Re: [TMIC] Weird feelings around eyes
In a message dated 5/17/2006 2:55:48 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Your developments almost sound like little strokes. Maybe they are spasms. What do you take for them? Baclofen? Lyrica? ?? That's actually one of the things I'm most afraid of. I don't know if this falls within the parameters of little strokes or not. I haven't been taking anything for these or muscle spasms of any kind -- I'd rather not deal with any side effects. If I know that's all this is, I'm fine and would rather get by without medication (unless it gets too bad and impedes everyday life). It's the concern that there might be something else going on in my brain that bothers me. I've got a doctor's appt. at the end of the month and am trying to decide if I need to try to get in before that. Someone else mentioned the possibility of aging. My husband and I are both 49 and are experiencing the effects of gravity on our faces as well as everything else. :-) But that's more of a gradual thing, not episodes lasting a couple of minutes. Someone else mentioned GN and myasthenia gravis. Both of those were ruled out when TM first hit 10 years ago, but I suppose it's possible that they could develop in the mean time. Barbara H.
Re: [TMIC] OK, another *graphic * question/foods (Quite graphic, but not lewd)
In a message dated 5/8/2006 6:06:23 PM Eastern Standard Time, [EMAIL PROTECTED] writes: yes there are certain foods now that do make me gas up more than they used to That's true for me, as well, and I also get gassy when I get stressed or nervous. :-( I think I read that the way Gas-X works is it somehow works on the surface tension of the gas bubble so itdissolves the bubbleinside. I would guess it would work on any kind of bubble -- whether just air or gas. It's worth a try. It's supposed to be one of the safest things to take in the world, according to my son's gastroenterologist. You can't take it within 4 hours of taking thyroid meds, but I don't know if there are any other contraindications. Barbara H.
Re: [TMIC] back pain, physiotherapy, medications
Hi, Kate, I took Tegretol (Carbamazepine) for a while and it was helpful. Pain wasn't my primary complaint, though -- I had more pain then than now, and it's intermittent. But it did help with general symptoms. My neuro said it helps "quiet down" the nervous system. I stopped taking it because they have to keep a watch on your liver functions with it. I don't mean to scare anyone -- I don't know what the parameters are for safety and long-tern usage. I know it's used by epileptics, so some degree of long-term usage must be ok (best to consult with a dr.). But I felt I would rather see if I could get by without it. It's hard to balance when and how far to push the body. There's no improvement without some push beyond what feels comfortable. But exercise and moving in certain ways can cause some muscles to spasm or stiffen or just not feel right. Sometimes -- most often -- that's just a temporary thing that settles down after exercise. My PT wanted me to ride an exercise bike, but it was extremely uncomfortable. In the beginning, I could hardly use my left hand to even to wash my hair. Any exercise I tried with it seemed to send it into convulsions of sorts. So it was kind of a back-and-forth thing -- working with it a little bit, then backing off, then trying again another time. I was hoping someone might have something more scientific to point to. :-) There might be links to some studies about this at the TMA and TMIC web sites -- there are tons of resources and articles behind some of the links there (www.myelitis.org and www.myelitis.org/tmic respectively). I need to dash off this morning or I'd take a few minutes and look around, but maybe someone else knows of articles about this issue. Barbara H.
Re: [TMIC] Is Anyone Getting My E-Mails???
Got it, Anne. In a message dated 5/4/2006 10:54:44 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Hi, My name is Anne Shreve. I live in North Carolina. I had tm in 1975 when I was 22. I was hospitalized for 4 months and gradually over the next year or so made a full recovery. There's alot I would like to share with you. If anyone gets this message I would truly appreciate it if someone would reply just to let me know they received it. Take Care and God Bless you all. Anne My e-mail is [EMAIL PROTECTED]. Thanks again.
Re: [TMIC] OK, another *graphic * question
I have problems with that, too. I take Gas-X (or the store brand) when I need to be out and about, and it helps, but it's still a problem. Especially when trying to teach three boys not to do it in public. :-) Barbara H. In a message dated 5/5/2006 1:42:35 PM Eastern Standard Time, [EMAIL PROTECTED] writes: OK, maybe not so graphic and I am sure will make ya giggle or smile BUT I have this issue. I know we all have poop and pee issues and I have learned to deal with them. But I am also farting alot! I bend over, I fart. I lean , I fart. It's not the gassy smelly ones, but just noise, but it still can be loud sometimes and its damn embarrassing! So my question is, is there anything I can do? I am going away in June with friends and would rather not be farting around them...I'd be mortified!Krissy ZoddaTri State Support Group Leaderhttp://www.geocities.com/tmladyk/home.html~I'm In pretty Good Shape For the Shape I am in~
[TMIC] May Birthdays
It's another short birthday list this month. Happy Birthday to the May babies! Please send any additions or corrections to tmic-list@eskimo.com. 5/7 Dennis Rabalais ([EMAIL PROTECTED]) 5-9-53 Lynn - Rhode Island ([EMAIL PROTECTED]) 5-11 -46 Lynn (Rose of Reno @aol.com) 5- 19 Maureen Wroblewski Hallagan ([EMAIL PROTECTED]) 5- 26-62 Maria in Tonawanda ([EMAIL PROTECTED]) 5/27/51 Jim ([EMAIL PROTECTED])
Re: [TMIC] TM Journal
In a message dated 4/24/06 3:23:48 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Hey all..what is ADEM? From the TMA website: Acute Disseminated Encephalomyelitis (ADEM) What is Acute Disseminated Encephalomyelitis? Acute disseminated encephalomyelitis (ADE) is a neurological disorder characterized by inflammation of the brain and spinal cord caused by damage to the myelin sheath. The myelin sheath is the fatty covering, which acts as an insulator, on nerve fibers in the brain. ADE may occur in association with a viral or bacterial infection, as a complication of inoculation or vaccination, or without a preceding cause. Onset of the disorder is sudden. Symptoms, which vary among individuals, may include headache, delirium, lethargy, coma, seizures, stiff neck, fever, ataxia, optic neuritis, transverse myelitis, vomiting, and weight loss. Other symptoms may include monoparesis (paralysis of a single limb) or hemiplegia (paralysis on one side of the body). The disorder occurs in children more often than in adults. Links to more info. are at http://www.myelitis.org/adem.htm Barbara H.
Re: [TMIC] DOES ANYONE REMEMBER
In a message dated 4/24/06 4:00:15 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: remember back a few years ago,there used to be a book that came out about 2 times a year,,from the tma with the listing of all the members names and emails in it.what ever happened to that?i havnt gotten one in years.does the association still do it? jeff Yes, they do -- one just came in my mail today, and the directory came out a few months ago, I think. I just checked the web site, and there is a form to fill out on the web site at http://www.myelitis.org/memberform.htm. Barbara H. (P.S. Sandy, if you're reading -- thanks again so much for all that you do in putting these together and sending them out!!)
Re: [TMIC] Loss of a Friend
I know of the Gilmurs, but did not know them personally. I am so sorry for what the family is going through at this time. I'll be praying for them. Thanks for letting us know, Debbie, and thanks Alton for looking up and posting the picture. Barbara H.
[TMIC] I'm back -- didja miss me? :-)
Sometimes the volume of mail from the list runs a little slow, but it slowly began to dawn on me the last few days that I hadn't had any TMIC mail for a while. I checked the archives, and lo and behold, there were several days worth of messages I hadn't received. Somehow I must've gotten kicked off the list -- that's happened occasionally -- so I resubscribed and am sending this test message to see if it goes through. Good to hear our Aussie friends are ok. Alton -- so sorry to hear about your shoulder. Barbara H. Back in the sandbox :-)
Re: [TMIC] weather and TM
A lot of times, even just watching TV on the couch, I'll take a throw blanket to cover my arms, which are cold, but have to leave it off my feet, which get too hot. Unless its' really, really cold, I start off at bed at night with just a sheet over me and my lower legs sticking out, then some time during the night pull the bedspread on and bring my feet in. My thermostat is all messed up! Both the heat and the cold affect me -- the cold makes my muscles stiffen up, and heat just drains energy from me. Barbara H.
Re: [TMIC] Re: Fwd: Fw: save our school children
That's why I haven't said anything about some of the New Age type things you've sent to the list even though I don't agree with a lot of it. Whether I agree with it or not, you have a right to say it. I just don't see why the Christian God is not welcome and everything else is, why the same consideration can't be given. Barbara H. In a message dated 3/16/2006 6:46:53 PM Eastern Standard Time, [EMAIL PROTECTED] writes: well, problem is, not everyone is christian...not everyone celebrates GOD, some see allah, buddha, the goddess, the universeetc...so, god may help you make it thru the day, but general faith in oneself may make someone elses. JMHO K[EMAIL PROTECTED] wrote: In a message dated 3/16/2006 5:02:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Dear God,It has come to my attention that you have been sending religious matterial to the TMIC.Several years ago the members agreed that you were not welcome here, either. Wow.That's pretty sad. Actually it was my understanding that talk about God in a natural sense as in relying on God's help to make it through the day was all right, because we all talk about what helps us, but general religious e-mails weren't welcome. Barbara H.
Re: [TMIC] Re: Fwd: Fw: save our school children
In a separate e-mail, Jude pointed out that she had not sent the original e-mail in questionto the list, but to a few whom she thought might be interested. I don't know why Frank chose to bring it onto the list instead of telling her privately that he didn't want to receive it. Jude didn't intend to stir up anything on the list or send anything to anyonewho didn't want to receive it. I do think the point stands that has been made since, though, that no one person is the "police" of anything on the list (the only person who has that right, IMHO, is Jim Lubin since he created and maintains this site, or the TMA officers since I think the TMIC is under the auspices of the TMA, but I'm not sure about that), and if we're going to allow for mention of New Age or Eastern beliefs in the course of conversation about what helps one with dealing with TM, then we ought to allow mention of God. That has traditionally been the case in the almost8 or 9years I've been on the TMIC. I think by and large most people don't send the "religious e-mails" that go around the net except privately though one or two slip in here and there. Barbara H. In a message dated 3/16/2006 5:02:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Dear God,It has come to my attention that you have been sending religious matterial to the TMIC.Several years ago the members agreed that you were not welcome here, either.I have designated myself the religion police ever since the past officer passed on[ He has since moved on into heaven: the condo on the corner of Passion and Rosebud streets]Please, realize that religion has killed more people than cigarettes, and only stirs up people's anger.please stop,Yours in HIS memory,frank
Re: [TMIC] Re: Fwd: Fw: save our school children
In a message dated 3/16/2006 5:02:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Dear God,It has come to my attention that you have been sending religious matterial to the TMIC.Several years ago the members agreed that you were not welcome here, either. Wow.That's pretty sad. Actually it was my understanding that talk about God in a natural sense as in relying on God's help to make it through the day was all right, because we all talk about what helps us, but general religious e-mails weren't welcome. Barbara H.
Re: [TMIC] Fwd: not recieving digest
In a message dated 3/16/2006 6:10:48 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I HAVE NOT BEEN RECEIVING ANY MAIL FROM THE DIGEST. I HOPE I AM STILL ON YOUR LIST. I HAVE TM AND, AM INTERESTED IN READING EVERYONE'S LETTERS. MARIE DIPIETRO Marie, Several people have had trouble with the digest -- I think there is some kind of kink in the system. In the mean time you can subscribe to the regular TMIC and receive messages every day as they come in. If you haven't done that already, you can do so by sending an e-mail to [EMAIL PROTECTED]with "Subscribe" in the subject line. It's automated and will automatically subscribe you (notice it is different from the regular TMIC address that you send mail to.) Barbara H.
Re: [TMIC] RE:THE STEM CELL POST FROM LAST WEEK
A few years ago there was a long and heated debate on the list about stem cells, and I certainly don't want to start that up again, but I feel I need to defend against charges of "ignorance" and not caring about people in pain and looking down on the disabled.My objection with stem cell research is the objection to using embryos, and I think that's the case with mostpeople whohave trouble with stem cell research. Believing that an embryo is a human life and not just a mass of cells, no matter how much pain I am in or how disabled I am, I couldn't think of ending that life to better my own any more than I could do my neighbor in to harvest his kidney. I think most peoplecan understand the logic of that, even if they disagree with it. I saw a headline the other day about someone trying to pass a law to protect unborn babies, to prosecute someone who harms a woman in a way to endanger her unborn child. I thought, how sad it is that whether an unborn child is protected or not depends on whether it's wanted. That said, though, I've seen some very promising studies about adult stem cells and stem cells in umbilical cord blood and that kind of thing. So, it's not the issue of stem cells themselves that there are problems with -- just the use of embryos for it. Barbara H. In a message dated 3/4/2006 8:04:54 PM Eastern Standard Time, [EMAIL PROTECTED] writes: our best hope of beating this thing just may possibly be stem cells,but remember as long as the govt and the bleeding heart ignorant people who are able to go on with their everyday lives and look down on us and do not have to worry about the problems we face everyday have their hands in it,i dont think youll see the therapy in our country for along time.or at least untill an election year when promises are made but not kept. jeff
Re: [TMIC] Fw: I've lost all of my prednisone weight.....
Any possible negative effects from fish oil?
[TMIC] March Birthdays
Happy Birthday to the March babies!!! Please send any additions or corrections to tmic-list@eskimo.com. 3-3 Marsha Scholes ([EMAIL PROTECTED]) 03.05.42. Bettie Imus ([EMAIL PROTECTED]) 3-7-51 Sue Mattis ([EMAIL PROTECTED]) 3-15-1952 Sandra Melville ([EMAIL PROTECTED]) 3-17-50 Joy S. ([EMAIL PROTECTED]) 3/24/99 Rachel ([EMAIL PROTECTED]) 3/30/52 Gary ([EMAIL PROTECTED]) 3-31-39 Jan H ([EMAIL PROTECTED])
[TMIC] Re: Happy Birthday, Phyllis!
Sure -- send an email to [EMAIL PROTECTED], with the Subject subscribe. When you write notes to the list, the regular address is tmic-list@eskimo.combut you have to send an e-mail to that first address first to get subscribed. In a message dated 2/23/2006 12:54:22 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Thank you for the birthday greeting. Can you tell me how to get back on the TMIC list. I have misplaced the email address. Thanks.[EMAIL PROTECTED] wrote: Hope you have a great birthday! Barbara H. from TMIC The best giftever: The gift of God is eternal life through Jesus Christ our Lord. Romans 6:23b
Re: [TMIC] Bathroom chair w/wheels
I've not seen anything like that, but I wonder if you could get the type of chair designed for people to use in the shower and have someone put wheels on it for you. That would also have the advantage of being a little on the wider side and sturdy (I don't know about anyone else, but stool-type chairs of any height make me feel like I'm going to fall off). Or, you could find a chair designed for a vanity at some place like Home Depot or Lowe's and maybe do the same thing -- have someone put wheels on it -- though I think those usually have backs on them. Barbara H. In a message dated 2/14/2006 4:00:51 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I walk with a walker around the house. I'm able to stand to brush my teeth in the morning and at night time. But there are times that I'm too tried to stand. So, I'm looking for a small chair without a back on it that I can pull out from under the counter and it push up to a wall and set and can put it back under the counter when I'm not useing it. Does anyone know where I can find a bathroom chair with wheels like that? Thanks for your time help, Todd-41 Corpus Christi, TX TM HIV meds April 2002 HIV+ HBV September 1989 Herpes Shingles 1988
Re: [TMIC] dizziness
I've had dizziness since TM. It never occurred to me to ask whether it was part of TM or not -- I just assumed it was since it came with TM onset, and, like most of my other symptoms, has gotten better but still flares up from time to time. I've had balance problems since TM onset, so I just connected the dizzniess to that -- but that's just guessing on my part. (Got a chuckle when I made a typo and put "fizziness" at first instead of dizziness. :-) ) Barbara H.
Re: [TMIC] I HAVE THESE MESSAGES
Those are the archives from whenthe list started til July 1999. As I said previously, it is the archives from July 99- Oct. 2, 2005 which are missing. Not just the archives are missing, but escribe, the company that was holding the archives for those years, is missing. As Jim Lubin wrote the other day, the whole company just disappeared from the Internet. The newer archives from Oct. 2, 2005 are stored in a different place, but the link is on the TMIC site. Barbara H. In a message dated 2/12/2006 3:13:47 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Is this what we were looking for? Ella Elyria, Ohio
Re: [TMIC] RE:TM INTERNET CLUB ARCHIVE
In a message dated 2/9/2006 1:00:05 AM Eastern Standard Time, [EMAIL PROTECTED] writes: THE THING I CANT DO IS GET IN TO MY INTRO STORY,IT ONLY COMES BACK TO E SCRIBE? CAN ANYONE ENLIGHTEN ME ON HOW TO GET INTO THE INTRO STORIES,MY # WAS 590. THANKS JEFF All the intro stories that had been posting during the time the archives were kept on escribe are lost. :-(
Re: [TMIC] are these the archives?
In a message dated 2/10/2006 8:35:13 AM Eastern Standard Time, [EMAIL PROTECTED] writes: http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html Those are the archives of posts since Oct. 2, 2005. The archives from Aug. 1996 through July 8, 1999 are available on the TMIC web site. The archives from between those -- from July 8, 1999 -- Oct. 2, 2005 were stored on something called "escribe" which has disappeared. Barbara H.
[TMIC] Archives
I knew some of the e-scribe archives were lost, but was looking today and it looks like they're all gone. So we have no archives from July 1999 until October of 2005? That's sad. :-( When things in cyberspace go "poof" they really do disappear... Barbara H.
[TMIC] February Birthdays
Happy Birthday!!! (Please send any additions or corrections to tmic-list@eskimo.com.) 2/2/63 Ursula ([EMAIL PROTECTED]) 2/2 Lisa in TN ([EMAIL PROTECTED]) 2/4/94 Isaac Sargent ([EMAIL PROTECTED]) (returned) 2-5 Tita in Delaware ([EMAIL PROTECTED] ) 2-6-51 Barbara Alma ([EMAIL PROTECTED]) 2-7-82 Barbara in Texas ([EMAIL PROTECTED]) 2-9-41 Frank Trascritt ([EMAIL PROTECTED]) 2-10-55 Sue ([EMAIL PROTECTED]) 2/11/55 Mary ([EMAIL PROTECTED] ) 02/16/38 David T. Gibson ([EMAIL PROTECTED] ) 2/16/62 Diane Aja ([EMAIL PROTECTED]) 2-17-40 JOAN FINK ([EMAIL PROTECTED] 2-20 Norma ([EMAIL PROTECTED]) 21/02/47 Phyllis Pollock ([EMAIL PROTECTED]) 2/23 Erin ([EMAIL PROTECTED]) 2/27/53 Cindy ([EMAIL PROTECTED])
Re: [TMIC] stiffness and regression?
In a message dated 1/30/2006 5:31:49 PM Eastern Standard Time, [EMAIL PROTECTED] writes: The neuro did say the stiffness and the bowel/urine controls are all assoc. with the nerves and that's fine, I can deal with that. I do see smaller improvements in other areas. But does this regress or seemingly get worse a times? Krissy Yes, it can be worse at times. There were times in the first few years of TM that I'd almost think I was having another attack. It can be made worse by stress, lack of sleep, illness, and sometimes for no obvious reason at all. Barbara H.
Re: [TMIC] RE:THE MUSCLE TREMORS QUESTION
In a message dated 1/31/2006 9:57:39 AM Eastern Standard Time, [EMAIL PROTECTED] writes: Clonus !! I searched for that online and found a definition in http://www.mult-sclerosis.org/clonus.htmlwhich says: "Clonus is repetitive, rhythmic contractions of a muscle when attempting to hold it in a stretched state. It is a strong, deep tendon reflex that occurs when the central nervous system fails to inhibit it. Clonus is not the same thing as myoclonus, which is irregular and uncontrollable jerks of a muscle or group of muscles. " I looked up myoclonus as well, which is defined as: "Myoclonus describes sudden and uncontrollable jerks of a muscle or a group of muscles. The word, "myoclonus", comes from "myo" meaning muscle and "clonus" meaning twitch. It can happen at rest (negative myoclonus) or with movement (positive myoclonus). Myoclonus can occur infrequently or every few seconds and can range in severity from a minor irritation to a disabling symptom that can make walking or other activities very difficult. Some myoclonic jerks are quite normal - hiccoughs (hippcups) and the twitches as you fall asleep are both examples of myoclonus. However, myoclonus is often associated with neurological or biochemical conditions including multiple sclerosis, Parkinson's disease, stroke, spinal cord injury, kidney or liver failure and lipid storage disease. Other forms occur in the absence of any other disease. Myoclonus in one or both legs during the night is known as Noctural Myoclonus or Restless Leg Syndrome (RLS) and can also occur in the absence of any other disease. Myoclonic jerks are often seen during epileptic siezures. Although it can be caused by damage to peripheral nerves, most forms of myoclonus are caused by problems in the central nervous system. The precise mechanisms unlying it are not fully understood and it is possible that the different forms may have different causes. Some people speculate that it results from a chemical imbalance in neurotransmitters causing nerves to become over-excitable. Another theory is that nerve signals from the brain, that would normally suppress these primitive reflexes, may be prevented from getting through by nerve damage. Clonazepam, Piracetam, Sodium valproate, Phenytoin and Primidone and several other tranquilising or anti-epilepsy drugs are often used to treat myoclonus. " Myoclonus sounds like what I am experiencing. Also found an interesting web site at http://www.wemove.org/-- a lot of info. on movement-related disorders. Barbara H.
Re: [TMIC] RE:THE MUSCLE TREMORS QUESTION
In a message dated 1/31/2006 11:50:04 AM Eastern Standard Time, [EMAIL PROTECTED] writes: I DO KNOW ONE MORE THING I EXPERIENCE, AND THAT IS IF I GET AN ITCH ON MY SKIN, IT WILL CAUSE A CLONUS-MYO- OR NOT, EXPECIALLY IF ON THE BOTTOM OF MY FOOT !!! I get something like that, too -- in the bend between my leg and torso I'll get a little twitch that will a second or two later cause myleg to jerk a few times. If I rub the area just a little it will prevent it, but if I am out in public it is a little awkward to rub that area... Barbara H.
[TMIC] Muscle vibrations or tremors
For the last few days I've been experiencing what feels like a sort of vibration or trembling feeling in some of my muscles. It seems to travel around between my chest, left forearm and thighs. I've experienced it to a smaller degree before, but never this much area at one time or for this length of time. It isn't painful or uncomfortable, and I'm not worried about it per se. It's just disconcerting. Ten years post-TM, I know that these kinds of things come and go. Anyone else experience this? Barbara H.
Re: [TMIC] Shellfish vs TM
My husband, who doesn't have TM, is affected when he eats shrimp. It makes him jittery and makes his heart pound. Sometimes it sends him to the bathroom with urgency. But he still eats them because he likes them. I was hit with TM more than 10 years ago and haven't noitced any affect. It may be that this man just has a sensitivity to shellfish that wasso slight before he didn't notice it but now with TM it affects him more. My neurologist told me my system was more sensitive to stimuli in general, so even things like not getting enough sleep or having a slight cold affected me in ways it hadn't before TM. Barbara H.
Re: [TMIC] test
It has been pretty quiet. I guess we're all recovering from the holidays. :-) Barbara H. In a message dated 1/5/2006 1:37:26 AM Eastern Standard Time, [EMAIL PROTECTED] writes: I haven't received any email since Jan 2. Is everyone asleep or is there just no activity. Cindy
Re: [TMIC] Da list just lost a nuther member
Thanks for letting us know, Bobby Jim. She was a sweetheart. She'll be missed. Barbara H. In a message dated 12/28/2005 9:13:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Emogene Edwards passed away early 24 December. We will miss her much. Bobberino
Re: [TMIC] MYKELLA
Thanks so much for letting us know. We hadn't heard from her in a long while, and I had wondered about her many times. She was a sweet, caring soul, and I was so sorry that she was hit so hard with TM. My mom passed away on the exact same day. Maybe they are getting to know each other even now. Barbara H. In a message dated 12/17/2005 10:40:56 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Dear All, If any of you remember Mykella Ribble I am writing this to let you know that she passed away peacefully on December 10th. I wanted to thank you for the support she received from the club, I know how much she appreciated it. My best wishes and thanks to all, Mykella's Mom.
[TMIC] OT: My mom passed away today
We just found out this evening that my mom passed away this afternoon. She had had heart and other problems for years. It seems to have been a massive heart attack, though we haven't received final word yet. There was no warning, no shortness of breath, etc. -- just suddenly she was gone.We're in the midst of figuring out travel plans to and from Texas -- it looks now like we'll be leaving Mon. afternoon and coming back Thursday or Saturday. At this point it looks like the funeral will be Wed. At this point, also, it looks like my older two sons won't be coming with us, but my youngest will be.For those who pray, I have some specific prayer requests for the next few days. If you wouldn't mind praying, e-mail me off-list and I will send themLove,Barbara
[TMIC] December birthdays
Happy Birthday to all the December babies!! (Please send any additions or corrections to [EMAIL PROTECTED]) 12-2-74 Meghan ([EMAIL PROTECTED]) 12-3 53 WIM FROM HOLLAND ([EMAIL PROTECTED]) 12- 4-34 Jan Burgess ([EMAIL PROTECTED]) 12-8-62 Lori Malloy ([EMAIL PROTECTED]) 12-10-59 Shirley from UK ([EMAIL PROTECTED]) 12-10-77 Lauren in MO ([EMAIL PROTECTED]) 12-11-47 Donna Hodson ([EMAIL PROTECTED] ) 12-15-34 [EMAIL PROTECTED] 12-15-70 CarolAnn B.L. from South Carolina, USA ([EMAIL PROTECTED]) 12-16-60 Rachael ([EMAIL PROTECTED]) 12-18-57 Rod Jenke ([EMAIL PROTECTED]) 12/23/49 Roger Pratt ([EMAIL PROTECTED] ) 12-25 Gilly ([EMAIL PROTECTED])
Re: [TMIC] Working Properly???
I've been off and on today with no problems that I know of -- I've received8 TMIC e-mails with today's date. Barbara H. In a message dated 11/19/2005 4:33:05 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Hi All, Is anyone besides me having trouble using AOL today? I had enormous problems signing on, am registering no email, and am having trouble when clicking on "Settings", for instance. I am right here, waiting to hear from someone. If you send email and I have not responded within, say...10 minutes, please use IM to get me. Thanks so much for your help. Jude
Re: [TMIC] Help TMA
I have the Transerve Myelitis Association listed there as my charity of choice. I don't know if I've ever heard of the International Disability Association -- It sounds a little like Gunny's orgnaization, but I can't remember for sure. Barbara H. In a message dated 11/19/2005 4:54:03 PM Eastern Standard Time, [EMAIL PROTECTED] writes: If any of our folks are thinking about shopping on line for Christmas presents, I would like to suggest finding a place to shop that supports our own organization. That would be the iGive mall where they have everything from cloths toxylophones to well...what ever you can think of. If you go to the site here and sign in, http://www.iGive.com/html/refer.cfm?causeid=19323 and please designate the International Disability Coalition as the placeyou choose to have your bonusdollars sent. This amount is based on what you buy and later on they will send you a notice of how much you have had them donate to this IDC. This is the organization that Jim Lubin started and that helps us TMers raise funds to support the organization so they don't have to take as much money out of their own pockets to keep it going. It won't cost you a penny to do this and it sure will help. Thanks, Mary Eden
Re: [TMIC] Help TMA
In a message dated 11/19/2005 5:03:05 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I have the Transerve Myelitis Association listed there as my charity of choice. I don't know if I've ever heard of the International Disability Association -- It sounds a little like Gunny's orgnaization, but I can't remember for sure. Barbara H. Oops -- that was International Disability Coalition, as Mary Eden said, not Association. I just googled it, and I think that is Gunny's organization -- another worthy charity. Barbara H.
[TMIC] Improvements
Someone mentioned being told they wouldn't have major improvements after a couple of years. I "met" TM personally 10 years ago, and since that time have not been able to feel cold or pain in my right foot (there are myriad other residual symptoms, just mentioning this one right now). I can feel touch, pressure, tingling there. But the other day I accidentally stepped on a small piece of ice and it registered as COLD! I actually had to look at my feet and think, "Wait a minuteis it this foot or the other one?" LOL! Barbara H.
Re: [TMIC] November Birthdays
Just send it to the regular list address at tmic-list@eskimo.com. and I'll put it on my "master list" from there. We don't have them on the TMIC web site so hackers and spammers can't get to them. Have a good day! Barbara H.
Re: [TMIC] November Birthdays
Oops! Didn't mean for that note to go to the list. Sorry! Barbara H.
Re: [TMIC]MMs
In a message dated 10/25/2005 11:32:22 PM Eastern Standard Time, [EMAIL PROTECTED] writes: (Last week I lost weight, so this week I thought maybe I should add some *vitamins* to my diet: MM's best vitamins made!) Hope your husband feels better! Take care Linda in Bothell, WA A few minutes after I read the above, I read this in another e-mail: "According to a recent article I just read on nutrition, they said eating right doesn't have to be complicated. Nutritionists say there is a simple way to tell if you're eating right. Colors. Fill your plates with bright colors. Greens, reds, yellows. In fact, I did that this morning. I had an entire bowl of MM's. It was delicious! I never knew eating right could be so easy." LOL!! I wish! Barbara H.
Re: [TMIC] Regarding colds and such
When my kids were babies, the dr. had us use a saline solution spray when they had colds. I don't know why it never occurred to me that it would be good for adults, too. Barbara H. In a message dated 10/18/2005 8:33:18 PM Eastern Standard Time, [EMAIL PROTECTED] writes: I heard a report on NPR about nasal irrigation, where a saline solution is sprayed into the nostrils, and said solution tends to minimize the impact of colds, stuffy noses, sore sinuses and the like. Am gonna google a thing or two and report on my findings later. Bobberino
Re: [TMIC] List email problems.
I'm not sure why the list address would work as forwards and CCs but not as regular e-mailing? But then I'm not very technically literate. Hope somebody with more expertise can help. Barbara H. In a message dated 10/12/2005 2:26:47 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Gina is having a lot of difficulty posting to the list. Her emails are coming back as undeliverable. I too have a lot of problems sending, which is often why I send my posts as forwards.Is there anything that we can do to get her emails through. She could really use all of our support. Thanks, Grace
