Something has been wrong for a few days -- when I tried sending the birthday
list out, I got a weird bounceback, and when I tried to e-mail Jim to tell
him about it, that bounced back, too. I checked the archives and there had
been no new mail since Nov. 29th.
But -- things seem to be
I can't believe it is November already! Happy Birthday to you all!
(Please send any additons or corrections to tmic-list@eskimo.com).
11-01-59 Ella ([EMAIL PROTECTED])
11-03-60 Gina ([EMAIL PROTECTED])
11-8 Diane ([EMAIL PROTECTED])
11-12 Marie ([EMAIL PROTECTED])
11/13/51 Kevin ([EMAIL
Forgive me, I don't understand the connection -- is TM known
to lead to osteoporosis? Or do some medications lead to that? Or is it that
being non-weight-bearing makes one more prone to it?
Barbara H.
http://barbarah.wordpress.com/
No, I don't think you went overboard at all or sent it to the
wrong place. As I said, I was just trying to understand the connection. It's
important information for everyone, especially those who can't walk. I imagine
those of us who aren't as physically active as others might be affected
Great news!
Barbara H.
http://barbarah.wordpress.com/
In a message dated 10/28/2006 7:00:02 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I want to thank everyone for
their thoughts and prayers about the MRI yesterday. I couldn't wait til
Monday and I found out the results
Welcome back! Sorry about your fall!! Hope you can find a good
neuro soon.
Barbara H.
http://barbarah.wordpress.com/
In a message dated 10/25/2006 9:00:57 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Dear
Friends,
I have been off
the list since August as we were doing
Hello and welcome, and congratulation on the new little
addition to your family!
Barbara H.
https://barbarah.wordpress.com/
In a message dated 10/12/2006 11:04:45 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Greetings,Just a quick note to Paula Lazzeri and everyone to
let you
I just wanted to thank you for that post, Rob. I appreciated
everything you said there, and I agree.
Barbara H.
http://barbarah.wordpress.com/
In a message dated 10/10/2006 5:38:43 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
It is very difficult to truly talk about TM
Hope Terry's surgery goes well with a full and uneventful
recovery.
Enjoy your trip -- it sounds lovely!
Barbara H.
http://barbarah.wordpress.com/
Is it almost October already??!!
Happy birthday to you all!
(Please send any additions or corrections to tmic-list@eskimo.com)
10-3-97 Lauren Graham ([EMAIL PROTECTED])
10/4 Neil McNeil ([EMAIL PROTECTED])
10-06-64 Jackie ([EMAIL PROTECTED])
10/08/1974 Rudy Aceves ([EMAIL PROTECTED] )
Congratulations, Krissy! I remember wondering when and whether
I'd be able to drive again and contemplating the impact that would have on my
family. It is so nice to be able to -- gives a great measure of independence.
Hopefully it will get easier and better for you along the way!
Barbara
A couple of people have mentioned dry mouth (sorry -- I forget
who). I just wanted to mention that some medications will contribute to that.
Ditropan is one -- I would imagine anything else for bladder issues might
also.
Barbara H.
http://barbarah.wordpress.com/
I don't know who in the Internet world decided using all caps
was yelling -- but it's not, in and of itself. If it is being done for emphasis
it's obvious.
My mom had arthritis and the skipping that extra step of
hitting the shift key to capitalize made it a little easier for her to type
Yesterday I wanted to scan a picture that was in a
collage-type frame on the wall, so I took the frame down and left it on the
table while I took the picture out and scanned it. I got to doing other things
and didn't get the picture back in and frame up. Later in the day I came
downstairs
In a message dated 9/7/2006 3:07:43 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Hello everybody --- I have been reading your
stories. Don't you think that it is the various drugs you are taking
that might be causing the balance and especially thememory
problems?
I'm not on
Happy Birthday! Hope you are enjoying some cooler temperatures!!
Please send any additions or corrections to tmic-list@eskimo.com.
9/3/42 Buddy Cohen ([EMAIL PROTECTED])
9/5 Mavis White (Errol's wife) ([EMAIL PROTECTED] )
09-06-83 Jake DeGrand ([EMAIL PROTECTED])
9-8 Mary Davidson ([EMAIL
Larry answered this and apologized for it a few days ago. It
was accidentally sent, not meant for the TMIC.
Barbara H.
http://barbarah.wordpress.com/
In a message dated 8/27/2006 9:40:04 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I'm wondering too. What's the deal with this?
"Common sense is not as common as it
really ought to be."
That is so true! Thanks for a new favorite
saying.
I didn't know they threw out MRIs after 7 years. That means
mine is gone, too. :-( That's a good reminder to get copies of all pertinent
medical records.
Barbara H.
Today was long-time TMIC member Karyne Jenke's birthday, and
after I sent her a brirthday greeting, I was stunned to receive a reply from her
husband, Rod, that she had passed away last April. I am copying Rod's comments
below as they contain a message for you all.
Karyne was always a
Hello, and welcome to the TMIC! I am sorry your mom has had to
deal with TM -- but glad you were able to find us.
I had some swelling, but not 40 lbs. worth. I was only on
prednisone for 3 days. I still get a little bit of swelling in my left hand and
ankles. I did have a heavy feeling in
Yes, it's very normal to have little flare-ups. I would often
fear another attack was coming on during the first year or two, but in my case,
it never got quite to the extent the first attack reached. I was seeing my neuro
often the first several months and he would assure me that it was
August is one of our busiest birthday months!
Happy birthday to all the end-of-summer babies.
(Please send any addtitons or corrections to tmic-list@eskimo.com.)
8/1 Peachi ([EMAIL PROTECTED])
8/1/45 Cindy McLeroy ([EMAIL PROTECTED])
8- 1-74 Stacy Firth ([EMAIL PROTECTED]
)
8-3-56, Larry
In a message dated 7/25/2006 3:52:32 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
hello gang--remember me?
vicki
Yes!! Good to see you again!
Barbara H.
I found it here: http://protect.bju.edu/cstore/index.php?cPath=50_68sort=2aproducts_id=6585osCsid=8e7cc5d9859b8d997b3f9f4520f08140
It's at the bottom of that page. The lady who put it together
is Linda Haught, and she's done a number of exercise videos to jazz and
classical music. This one
I have started occasionally exercising with a video called
"Wimp Aerobics." :-) I can't keep up with all the steps, but I can do more of it
than I can with a video made for normal people. I feel generally better overall
and more energetic when I use it, but afterward my back spasms more and
I thought the dye, or "contrast material," was something that
dissipated over time and vacated the body through urine (I remember wondering if
that was why my urine seemed to have an odd smell for the first several days
after TM struck). Once they put it in, I don't see how they could draw
I have trouble with both the heat and the cold. I was one who
was usually hotter than most people anyway, but TM accentuated that. I can
hardly go to Wal-Mart or the mall without getting hot and sweaty, and then my
energy is just zapped. I usually have to have one or both feet sticking
In a message dated 7/21/2006 11:14:52 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Agreed. I do want to clear up that I am not for embryonic stem cell
research. My main complaint has always been to not hold up the good
research or deny funds because of this one part of stem
Thanks so much for this, Jim, both for what you said and how you said it. I
agree on every point you made (and I'm an independent Baptist :-))except that I
haven't studied what you mentioned in the last paragraph, so i'm not sure what
my opinion is on that yet.I was never so proud of Bush
We'll be more than glad to see your name pop up!! I'm so glad
you're able to be back and that you're doing better.
My mom passed away a few months ago, too. It's...tough. My
kids are are the verge of leaving the nest, and I'm
just-trying-not-to-think-about-it just now! :-)
Good to hear
Happy Birthday!!
(Please send any additions or corrections to tmic-list@eskimo.com.)
7-5-83 Sumer ([EMAIL PROTECTED])
7- 9-5l Vicki Frohna ([EMAIL PROTECTED] )
7-14 Julie ([EMAIL PROTECTED])
7-15-51 Sandi S. ([EMAIL PROTECTED])
7/ 18/ 51 John ([EMAIL PROTECTED])
7-25-62 ([EMAIL
In a message dated 6/27/2006 11:40:44 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I do/did
wonder why some doctors have their patients have yearly mri's orwonder
maybe why some patients are able to have access to yearly
mri's.
I think a lot has to do with the way
individual
I don't think it's too unusual for a new
neurologist to want to ask for another MRI to see what, if anything has been
happening since your onset. I saw my neuro regularly for maybe a year or so
after initial onset, but he never did a follow-up MRI. When we moved away, I
didn't get a new
I can second what Gilly said. I had some
pain in one area at TM onset (10+ years ago). That went away. Over the years I
developed some pain in my back that wasn't there originally, and they think it
is TM related. But mine is intermittent -- some days it is hardly bearable, but
other days
Happy Birthday to those celebrating in June!
(Please send any additions or corrections to tmic-list@eskimo.com.
6-5 Tobe Kanon ([EMAIL PROTECTED])
6-11-42 Irene ([EMAIL PROTECTED])
6/11/50 Marabeth ([EMAIL PROTECTED])
6-11-51 Sharon Marsden ([EMAIL PROTECTED])
6-15 Sheila ([EMAIL
You know, I'd forgotten about this until it happened
yesterday, but I have had other eye involvement beside the drooping eyelid at
onset. Whenever I sneeze, sometimes it sets off "showers" of twitches in my
eyelids.
Barbara H.
In a message dated 5/17/2006 4:53:03 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
My
husband and I are both 49
Aack!! We're still both 48. I don't turn 49 til
August. I don't want to rush it!!! :-)
Barbara H.
When TM first came to take up residence, most of my symptoms
were in my left arm and lower trunk and legs. But there was one very very
sensitive spot right on top of my head (made getting haircuts interesting -- I
felt like I was going to jump out of my skin) and one of my eyelids was at
In a message dated 5/17/2006 2:55:48 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Your developments almost sound like little strokes. Maybe
they are spasms. What do you take for them? Baclofen?
Lyrica? ??
That's actually one of the things I'm most afraid of. I don't
know if
In a message dated 5/8/2006 6:06:23 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
yes
there are certain foods now that do make me gas up more than they used
to
That's true for me, as well, and I also get gassy when I get
stressed or nervous. :-(
I think I read that the way
Hi, Kate,
I took Tegretol (Carbamazepine) for a while and it was
helpful. Pain wasn't my primary complaint, though -- I had more pain then than
now, and it's intermittent. But it did help with general symptoms. My neuro said
it helps "quiet down" the nervous system. I stopped taking it
Got it, Anne.
In a message dated 5/4/2006 10:54:44 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Hi, My name is Anne Shreve. I live in North Carolina. I had tm
in 1975 when I was 22. I was hospitalized for 4 months and gradually over the
next year or so made a full recovery.
I have problems with that, too. I take Gas-X (or the store
brand) when I need to be out and about, and it helps, but it's still a problem.
Especially when trying to teach three boys not to do it in public.
:-)
Barbara H.
In a message dated 5/5/2006 1:42:35 PM Eastern Standard Time,
It's another short birthday list this month. Happy Birthday to the May
babies!
Please send any additions or corrections to tmic-list@eskimo.com.
5/7 Dennis Rabalais ([EMAIL PROTECTED])
5-9-53 Lynn - Rhode Island ([EMAIL PROTECTED])
5-11 -46 Lynn (Rose of Reno @aol.com)
5- 19 Maureen
In a message dated 4/24/06 3:23:48 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:
Hey all..what is ADEM?
From the TMA website:
Acute Disseminated Encephalomyelitis (ADEM)
What is Acute Disseminated Encephalomyelitis?
Acute disseminated encephalomyelitis (ADE) is a neurological disorder
In a message dated 4/24/06 4:00:15 PM Eastern Daylight Time, [EMAIL PROTECTED] writes:
remember back a few years ago,there used to be a book that came out about 2 times a year,,from the tma with the listing of all the members names and emails in it.what ever happened to that?i havnt gotten one
I know of the Gilmurs, but did not know them personally. I am
so sorry for what the family is going through at this time. I'll be praying for
them. Thanks for letting us know, Debbie, and thanks Alton for looking up and
posting the picture.
Barbara H.
Sometimes the volume of mail from the list runs a little slow,
but it slowly began to dawn on me the last few days that I hadn't had
any TMIC mail for a while. I checked the archives, and lo and behold,
there were several days worth of messages I hadn't received. Somehow I must've
gotten
A lot of times, even just watching TV on the couch, I'll take
a throw blanket to cover my arms, which are cold, but have to leave it off my
feet, which get too hot. Unless its' really, really cold, I start off at bed at
night with just a sheet over me and my lower legs sticking out, then
That's why I haven't said anything about some of the New Age
type things you've sent to the list even though I don't agree with a lot of it.
Whether I agree with it or not, you have a right to say it. I just don't see why
the Christian God is not welcome and everything else is, why the same
In a separate e-mail, Jude pointed out that she had not sent
the original e-mail in questionto the list, but to a few whom she thought
might be interested. I don't know why Frank chose to bring it onto the list
instead of telling her privately that he didn't want to receive it. Jude didn't
In a message dated 3/16/2006 5:02:02 PM Eastern Standard Time, [EMAIL PROTECTED] writes:
Dear God,It has come to my attention that you have been sending religious matterial to the TMIC.Several years ago the members agreed that you were not welcome here, either.
Wow.That's pretty sad.
Actually
In a message dated 3/16/2006 6:10:48 PM Eastern Standard Time, [EMAIL PROTECTED] writes:
I HAVE NOT BEEN RECEIVING ANY MAIL FROM THE DIGEST. I HOPE I AM STILL ON YOUR LIST. I HAVE TM AND, AM INTERESTED IN READING EVERYONE'S LETTERS.
MARIE DIPIETRO
Marie,
Several people have had trouble with
A few years ago there was a long and heated debate on the list
about stem cells, and I certainly don't want to start that up again, but I feel
I need to defend against charges of "ignorance" and not caring about people in
pain and looking down on the disabled.My objection with stem cell
Any possible negative effects from fish
oil?
Happy Birthday to the March babies!!!
Please send any additions or corrections to tmic-list@eskimo.com.
3-3 Marsha Scholes ([EMAIL PROTECTED])
03.05.42. Bettie Imus ([EMAIL PROTECTED])
3-7-51 Sue Mattis ([EMAIL PROTECTED])
3-15-1952 Sandra Melville ([EMAIL PROTECTED])
3-17-50 Joy S.
Sure -- send an email to [EMAIL PROTECTED],
with the Subject subscribe. When you write notes to the list, the regular
address is tmic-list@eskimo.combut you have to
send an e-mail to that first address first to get subscribed.
In a message dated 2/23/2006 12:54:22 PM Eastern Standard Time,
I've not seen anything like that, but I wonder if you
could get the type of chair designed for people to use in the shower and have
someone put wheels on it for you. That would also have the advantage of being a
little on the wider side and sturdy (I don't know about anyone else, but
I've had dizziness since TM. It never occurred to me to ask
whether it was part of TM or not -- I just assumed it was since it came with TM
onset, and, like most of my other symptoms, has gotten better but still flares
up from time to time. I've had balance problems since TM onset, so I just
Those are the archives from whenthe list started til
July 1999. As I said previously, it is the archives from July 99- Oct. 2, 2005
which are missing. Not just the archives are missing, but escribe, the company
that was holding the archives for those years, is missing. As Jim Lubin wrote
In a message dated 2/9/2006 1:00:05 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
THE THING I CANT DO IS GET IN TO MY INTRO STORY,IT ONLY COMES BACK TO E
SCRIBE?
CAN ANYONE ENLIGHTEN ME ON HOW TO GET INTO THE INTRO STORIES,MY # WAS
590.
THANKS
JEFF
All the intro
In a message dated 2/10/2006 8:35:13 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html
Those are the archives of posts since Oct.
2, 2005. The archives from Aug. 1996 through July 8, 1999 are available on the
TMIC web
I knew some of the e-scribe archives were lost, but was looking today and
it looks like they're all gone. So we have no archives from July 1999 until
October of 2005? That's sad. :-(
When things in cyberspace go "poof" they really do disappear...
Barbara H.
Happy Birthday!!!
(Please send any additions or corrections to tmic-list@eskimo.com.)
2/2/63 Ursula ([EMAIL PROTECTED])
2/2 Lisa in TN ([EMAIL PROTECTED])
2/4/94 Isaac Sargent ([EMAIL PROTECTED])
(returned)
2-5 Tita in Delaware ([EMAIL PROTECTED]
)
2-6-51 Barbara Alma ([EMAIL
In a message dated 1/30/2006 5:31:49 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
The neuro did say the stiffness and the
bowel/urine controls are all assoc. with the nerves and that's fine, I can
deal with that. I do see smaller improvements in other areas. But does this
In a message dated 1/31/2006 9:57:39 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Clonus
!!
I searched for that online and found a definition in http://www.mult-sclerosis.org/clonus.htmlwhich
says:
"Clonus is repetitive, rhythmic contractions of a muscle when attempting to
hold
In a message dated 1/31/2006 11:50:04 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I DO KNOW ONE MORE THING I
EXPERIENCE, AND THAT IS IF I GET AN ITCH ON MY SKIN, IT WILL CAUSE A
CLONUS-MYO- OR NOT, EXPECIALLY IF ON THE BOTTOM OF MY FOOT
!!!
I get something like that, too -- in
For the last few days I've been experiencing what feels like a sort of
vibration or trembling feeling in some of my muscles. It seems to travel around
between my chest, left forearm and thighs. I've experienced it to a smaller
degree before, but never this much area at one time or for this
My husband, who doesn't have TM, is affected when he eats shrimp. It makes
him jittery and makes his heart pound. Sometimes it sends him to the bathroom
with urgency. But he still eats them because he likes them.
I was hit with TM more than 10 years ago and haven't noitced any affect. It
It has been pretty quiet. I guess we're all recovering from
the holidays. :-)
Barbara H.
In a message dated 1/5/2006 1:37:26 AM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I haven't
received any email since Jan 2. Is everyone asleep or is there just no
activity.
Cindy
Thanks for letting us know, Bobby Jim. She was a sweetheart.
She'll be missed.
Barbara H.
In a message dated 12/28/2005 9:13:02 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Emogene Edwards passed away early 24
December.
We will miss her much.
Bobberino
Thanks so much for letting us know. We hadn't heard from her in a long
while, and I had wondered about her many times. She was a sweet, caring soul,
and I was so sorry that she was hit so hard with TM.
My mom passed away on the exact same day. Maybe they are getting to know
each other
We just found out this evening that my mom
passed away this afternoon. She had had heart and other problems for years. It
seems to have been a massive heart attack, though we haven't received final word
yet. There was no warning, no shortness of breath, etc. -- just suddenly she was
Happy Birthday to all the December babies!!
(Please send any additions or corrections to [EMAIL PROTECTED])
12-2-74 Meghan ([EMAIL PROTECTED])
12-3 53 WIM FROM HOLLAND ([EMAIL PROTECTED])
12- 4-34 Jan Burgess ([EMAIL PROTECTED])
12-8-62 Lori Malloy ([EMAIL PROTECTED])
12-10-59 Shirley
I've been off and on today with no problems that I know of -- I've
received8 TMIC e-mails with today's date.
Barbara H.
In a message dated 11/19/2005 4:33:05 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
Hi All,
Is anyone besides me having trouble using AOL today? I
had
I have the Transerve Myelitis Association listed there as my charity of
choice. I don't know if I've ever heard of the International Disability
Association -- It sounds a little like Gunny's orgnaization, but I can't
remember for sure.
Barbara H.
In a message dated 11/19/2005 4:54:03 PM
In a message dated 11/19/2005 5:03:05 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I have the Transerve Myelitis Association listed there as my charity of
choice. I don't know if I've ever heard of the International Disability
Association -- It sounds a little like Gunny's
Someone mentioned being told they
wouldn't have major improvements after a couple of years. I "met" TM personally
10 years ago, and since that time have not been able to feel cold or pain in my
right foot (there are myriad other residual symptoms, just mentioning this one
right now). I can
Just send it to the regular list address at tmic-list@eskimo.com. and I'll put
it on my "master list" from there. We don't have them on the TMIC web site so
hackers and spammers can't get to them.
Have a good day!
Barbara H.
Oops! Didn't mean for that note to go to the list. Sorry!
Barbara H.
In a message dated 10/25/2005 11:32:22 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
(Last week I lost weight, so this week I thought maybe I should add some
*vitamins* to my diet: MM's
best vitamins made!)
Hope your husband feels better!
Take care
Linda in Bothell, WA
When my kids were babies, the dr. had us use a saline
solution spray when they had colds. I don't know why it never occurred to me
that it would be good for adults, too.
Barbara H.
In a message dated 10/18/2005 8:33:18 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
I heard a
I'm not sure why the list address would
work as forwards and CCs but not as regular e-mailing? But then I'm not very
technically literate. Hope somebody with more expertise can
help.
Barbara H.
In a message dated 10/12/2005 2:26:47 PM Eastern Standard Time,
[EMAIL PROTECTED] writes:
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