http://www.geofranchising.it/com.php
http://www.montmorency-auto-ecole.com/com.php
http://progos.formation.erasme.org/com.php
My daughter informed me that she received an e-mail from me, which was actually
a pharmaceutical advertisement. She suggested that I change my e-mail password.
Have a Blessed Day, Naomi
-Original Message-
From: rn11974 rn11...@yahoo.com
To: tmic-list tmic-list@eskimo.com
Sent: Mon,
. So many changes
to the body, choices to choose from, and decisions to make
Have a Blessed Day, Naomi
-Original Message-
From: Cindy McLeroy cindymcle...@socal.rr.com
To: LadyNotes ladyno...@aol.com
Sent: Mon, Aug 30, 2010 4:17 pm
Subject: Re: [TMIC] Pain Pump
Hi, are you talking
Thank you Todd, for the information and the prayers
Have a Blessed Day, Naomi
-Original Message-
From: Todd Tarno toddtm2...@sbcglobal.net
To: LadyNotes ladyno...@aol.com
Sent: Mon, Aug 30, 2010 2:33 pm
Subject: Fw: [TMIC] Pain Pump
Hey Naomi,
They should be able to replace
I had a baclofen pump removed last September 11, due to complications with
it. At the time of removal, I was told that I could not have it put back
in. But what I did not know at the time, was that I could get pain medicine
put directly into the pump also. Now I'm considering having the pump
To: ladynotes ladyno...@aol.com
Sent: Sat, Jul 3, 2010 10:48 pm
Subject: RE: [TMIC] Anniversary
Hey, Naomi;
No matter what science has come up with over the decades, nothing beats having
a sheep fleece under you. nothing has been found to work as well. And they
can be bought in the auto section
Akua, I imagine your situation would be pretty frustrating. I have a power
chair, but unable to get out of the house, so I'm stuck like you. Our Township
has no public transportation, so I'm still stuck once I get out. I know you
feel my pain and frustration, because you're in the same
-
From: L T CHERPESKI cherp...@msn.com
To: tmic-list tmic-list@eskimo.com; ladynotes ladyno...@aol.com
Sent: Sat, Jul 3, 2010 10:13 pm
Subject: Re: [TMIC] Anniversary
Oh Naomi this truly saddens me that you have these pressure sores and all the
special stuff that goes along with them. Boy
Today, July 2, marks the five-year mark of being stricken with Transverse
Myelitis. I am celebrating it by being bedridden, nursing two pressure sores.
Have you ever tried lying on one side, for days at a time? It causes me to have
claustrophobic anxiety attack , but it is quite necessary to
I live in Michigan, but I was in Minnesota, attending a wedding, when my TM
struck
Have a Blessed Day, Naomi
-Original Message-
From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com
Sent: Tue, May 18, 2010 12:04 am
Subject: [TMIC] Where TM struck
I did not get many
I also take all three drugs. I've been taking the Cymbalta and Lyrica, for
nearly 5 years, and the Baclofen since last September, after I had my Baclofen
pump removed. They all serve different purposes for me. The Cymbalta is an
antidepressant (and also used for pain), the Lyrica is for neuro
I have TM and Crohn's disease. When I was younger I had rheumatic fever, and
also mononucleosis. None of my siblings have any of these. We didn't live
anywhere near a timeout a factory
Have a Blessed Day, Naomi
-Original Message-
From: Pieter and Heather pieterheat...@shaw.ca
To:
Dennis, I had a baclofen pump put in in July 2006, one year after I diagnosed
with TM. My PMR doctor, at the time, talked me into getting it. At the time I
was walking on a platform walker, over 500 feet at a time. This was good for
me, since my TM left me paralyzed on the right side and a
Carry your portable scooter with you
Have a Blessed Day, Naomi
Finally! The solution to my immobility! How long is the waiting list?? Stupid
thing will probably cost two or three hundred Gary your portable scooter with
you
Attached Message
From:
David Latham da...@lathamfamily.com
I am having a problem with the hot key on my Dragon NaturallySpeaking 10. I am
using Windows Vista and it has a voice recognition program for use, but I
prefer to use the Dragon. My problem , I believe, is the hot key for the coma
key must be used for the Windows Vista program, because when I
Before TM, I had quite a few friends and associates. After the dust
cleared, I only have three friends who are pre-TM, and I have made four good
friends who come once a month, to prepare dinner for me. I've also made one
very good friend who also has TM, lives in another state, whom I've
Linda, thank you for your prayers and I will definitely keep you updated.
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis
**What's for dinner tonight? Find quick and easy dinner ideas
for any occasion.
As you all are contemplating your Baclofen doses or trial, I am waiting
for the neurosurgeon to remove my Baclofen pump.
I had my pump put in July 2006. Initially the pump worked well for
preventing spasms, but I did not know that it would prevent me from standing
or
walking, because I
Everyone I tell about them not being able to get an IV in, just cannot
believe it. My sister, who is a nurse, said I need to go to a different
hospital. I am in the process of having my primary care physician set me up
with
a neurosurgeon at University of Michigan Hospital. I sure hope so,
Thank you to all those who responded to my question or blurred vision. I
remember someone telling me that you do not go to an eye doctor for blurred
vision. It is not a problem that can be remedied by wearing glasses. You
need to see an ophthalmologist. I do take Lyrica, and I am suspecting
Cindy, I am so glad to hear that. I was afraid that if I stopped taking
the medicine, my eyesight may remain the same. Now I know there is hope. I
just have to narrow it down as to which medicine is causing the blurred
vision. Thanks for responding.
Naomi
C-4 Quadriplegic, since July 2,
During the course of my medication regimen, I had taken medication that
has caused me to have blurred vision. I know there has been others who have
complained about having their vision impaired due to medication. My question
is this: has anyone stopped taking the medication and have their
Yes, I would like to know this as well. My insurance only cover so much, and
then im SOL.
-Original Message-
From: Hosni Al-khatib hosnialkha...@hotmail.com
To: quad-list quad-l...@eskimo.com
Sent: Tue, Jun 16, 2009 11:00 pm
Subject: [QUAD-L] financial help
Hi
I am a C 4/5
Jude,
It's not that I think any one site is better than the other, and is not so much
about interaction, as information It's just that quadriplegics have more and
different issues to deal with. There is also a site for TM quads who are vent
dependent, because they have more and different
Jude,
First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I
IDENTIFY more. I feel as though I offended you by saying this. There are issues
and concerns of being a quad they are not addressed in the TM site and I would
imagine it's because most people on this site are
Kevin,
I also believe in Karma and also tried to live my life according to the
golden rule. Which makes me wonder, if I did something so bad to someone,
that I would end up in this situation. If I made any mistakes that warrant
this, I would remember. It's hard to say that people reap
I am also a member of the paraplegic/quadriplegic website that Jim has
started. Although I have TM, which left me a quadriplegic, I identify more
with the members of the paraplegic quadriplegic site then with the members of
the TM site.
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to
Dan,
I thank you so much for being encouraging to me. It is exactly what Pam
would have done. She always had an encouraging word for me. We would talk
on the phone, and she would uplift my spirits. It means so much to me to
have you do the same thing while still mourning her.
Priscilla,
I'm sorry it took me so long to respond to your e-mail. I have been
having a pretty tough time. I did not have my surgery, because they were
unable
to get an IV in. The anesthesiologists tried from 8:30 AM until 11:00 AM,
without any success. They poked me from my feet to
Jude,
Thank you so much for the information you gave me regarding my question on
drug addiction. It's good to get advice from someone who has experienced
such things themselves. I did not know, that the spasms from not taking
the Baclofen, could be very painful or cause death. That is
How do you know if you are addicted to pain meds? I have taken so many
different pain medications, over the past nearly four years, I don't think
they work for me anymore I am currently taking, Percocet 5/375mg or Vicodin
7.5/750mg 4 X daily, Lyrica 800mg, Fentanyl patch 125mcg every
Is Amanda's e-mail address: _adi...@yahoo.com_ (mailto:adi...@yahoo.com)
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis
**Big savings on Dell XPS Laptops and Desktops!
I'm a C 4 quadriplegic who have the same issues and would definitely like
to hear from someone who is living independently. I would even like to
hear from someone who's living in a facility that supplies their needs. I
seem to have a problem finding a place that can supply my needs and
I was kicked off the list up and had to re subscribe.
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis
**Feeling the pinch at the grocery store? Make dinner for $10 or
less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
Testing
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis
**Feeling the pinch at the grocery store? Make dinner for $10 or
less. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001)
My computer crashed and I had to get a new one. The computer came with
Windows Vista and a voice recognition program already loaded onto it. Has
anyone
had any luck with this voice recognition system? It doesn't type into sites
that I visit regularly. The only site I've had luck in is
Kim, I am so happy to hear that your paralysis is not due to your TM. And
that it can be repaired. I have had the steroid injections and the disc of my
C4, C5 and C6 vertebrae. It did help me for a good while. I'm hoping that
if that's the option you choose, that it will help you also.
My TM was diagnosed at University of Michigan Hospital in 2005. I was
hospitalized for a week prior in Minnesota, while the doctors bickered over a
diagnosis. It is a darn good hospital, and I met a lot of nice people, whom I
still keep in touch with. I believe Jude would get top-notch
Yes, I can relate also. I have Crohn's disease, and this is a regular
routine for me. I thought Crohn's was terrible, until I got TM. Fortunately,
I
haven't had many problems with my Crohn's disease since TM reared its ugly
head. I guess the good Lord know, I cannot deal with both of
Mindy,
I agree with you totally. It angers me to take the time to read my e-mail
that I am expecting to be about TM, only to find it's more political rhetoric.
I know exactly where to go if that is what I want to hear and it is not on
this list. Other peoples bantering and spouting off
Jude,
How are you? I mistakenly addressed my e-mail to Pam instead of you. I am
thinking about and praying for both of you. I hope you feel better at your
antibiotics are working for you. Keep the faith.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse
Pam,
I'm so glad to hear from you. Thank you for the update on Pam. I tried to
call her a couple of times, but I could not get the number to work. I will
try again. If you talk to her again, tell her I send my love and prayers. I
am also praying for you.
I will be going home on
Jude,
Yes, I was told my TM was caused by a virus, but I have never had a cold
sore in my life. I have had Mono and Rheumatic Fever. The only thing I know
that the three of these have in common is the Epstein-Barr virus._Epstein-Barr
Virus_ (http://www.cdc.gov/ncidod/diseases/ebv.htm)
Happy Birthday all my fellow October babies! Best wishes and be blessed.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
**Looking for simple solutions to your real-life financial
challenges? Check out WalletPop for the latest news and
Yes, I did lose the use of my arms and hands. I have partial use of my left
arm. I cannot lift it up any higher than my bust line, and I also have
partial use of my fingers. It has been three years, and I am just able to
hold a
fork to feed myself. It gets very messy, but is more
The pump is not for those who need a higher dose of Baclofen than the pill
can allow. I have a pump, and I went from 30 mg a day to 52 mcg per day. The
side effect from the Baclofen is what was wrecking me. Because the medicine
goes directly into my spine, I do not get the side effects,
Hello my friend,
Just a short note to let you know that I am currently in the hospital. I am
having a problem with swelling to my Baclofen pump area.
So far I have here to CAT scans and ultrasound and scheduled for an MRI.
They still don't know what's causing the swelling. The one
I e-mailed Pam to ask her if it was okay to share what has been going on
with her and she asked me to relay this message:
I WOULD HAVE TO SUBSCRIBE TO GET IT TO THE LIST THEN UNSUBSCRIBE AGAIN.
YOU CAN TELL THEM DAN HAS A PRE CANCEROUS NODE ON HIS VOCAL CORD PLUS ACID
REFLUX DISEASE AND
Jeanne,
What was the date of your onset? Yes, it is nice to know that you are all
alone with whatever ails you.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
**Need a new ride? Check out the largest site for U.S. used car
listings at AOL
Jeanne,
The way you describe your body's sensations, I thought you were talking
about me. That is exactly the way my body feels, minus the butt thing
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
**Need a new ride? Check out the largest
I was given Neurontin in the early days of my illness. It made me very
lethargic, and I was unable to tolerate it. My doctor then prescribed Lyrica.
I
take 400 mg twice a day. I also take 60 mg of Cymbalta, Vicodin three
times a day, and also use a 50 mg Fentanyl patch. I still have
Jeanne,
Yes, I had the chickenpox as a child, but has never had shingles.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
**Need a new ride? Check out the largest site for U.S. used car
listings at AOL Autos.
I had a consultation with Dr. Hinderer in January 2007. My intentions were
to become an inpatient at the rehabilitation Institute of Michigan. Dr.
Hinderer's final analysis, was that I become an inpatient, and it would take
me
at least six months to regain what I had lost while in a
That was absolutely hilarious!
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
**It's Tax Time! Get tips, forms and advice on AOL Money
Finance. (http://money.aol.com/tax?NCID=aolcmp0030002850)
Jeanne in Dayton,
Congratulations on filling warmth on your butt! We'll take progress
whereever we can find it.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
**Planning your summer road trip? Check out AOL Travel Guides.
Ditto. I have not been physically ill, since my TM onset. I did not even
get a flu shot this year, but I have not had a cold or flu, or any of these
things since I've had TM (knock on wood).
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
Candy,
Thanks for the website. After reading it, I think that most of us with TM
would also suffer from Central Neuropathy Syndrome, I know I do. The only
thing the website omitted was my name, LOL.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
Mindy,
I can certainly consider my sensation Central Neuropathy Syndrome. I am
sensitive to hot and cold, and also to touch. The weather and my stress level
plays a huge part in my pain management. I understand what you mean about
throwing yourself off a cliff. I also take Lyrica and
I have been kicked off the list, and I judging from the archives, it has
been a great while. I hope this message makes it through.
Naomi
C4-incomplete, quadriplegic since July 2005
due to Transverse Myelitis
**Create a Home Theater Like the Pros. Watch the video on AOL
Mindy,
Happy one year anniversary! I've never heard of Central Neuropathy
Syndrome. Electrocution is something I've always tried to steer clear of. I
worked
for my local electric company, installing electrical equipment for 25 years.
I did not like getting those little zap then and I
Gary,
I have never been on Valium for spasms. My doctor put me on Neurotin, but
the dose that I needed to control the spasms was so high, I wasn't able to
function in therapy. The doctor took me off the Neurotin and put me on
Baclofen. I eventually got a baclofen pump, and that has been
Grace,
I am so sorry to hear about your daughter and her friend. I prayed for them
both immediately after reading your e-mail. I will continue to keep them in
prayer, and you as well. Let us know how they're doing.
Naomi
C-4 quad, incomplete
since July 2, 2005
Natalie,
I am so sorry to hear about you having to go back into the hospital. I will
pray that your surgery will be a success and will allow you a better quality
of life.
I had to have a pic line put in when I was in the hospital and the doctor
did it. What should have been a 10 minute
I hope you receive this.
Naomi
C-4 quad, incomplete
since July 2, 2005
** Get a sneak peek of the all-new AOL at
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Trudy,
Thank you so much for your prayers. Yes, Christ is real, and I will be a
witness, no matter where I am or who I am with. Thank you for being my sister
in Christ.
Naomi
C-4 quad, incomplete
since July 2, 2005
** Get a sneak peek of the
Ann,
It is good to know that you are still improving after a number of years. It
gives me hope. I hope you will continue to improve.
I still have not seen a neurologist and don't plan to. I don't think one
could help me at this point. I am still fighting to get more therapy. Pray
** Get a sneak peek of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
---BeginMessage---
-Original Message-
From: Juanita McReynolds [EMAIL PROTECTED]
To: Daredb97 [EMAIL PROTECTED]; Sthenry7 [EMAIL PROTECTED]; [EMAIL
PROTECTED];
This has been around before but it is one of the best that I have seen
in awhile. Reality check.** *
*There was a blind girl who hated herself because she was blind.*
*She hated everyone, except her loving boyfriend. He was always there
for her.*
*She told her boyfriend, If I could
Jude,
Apparently, I must have missed something. I don't remember seeing the post
by Regina. I am interested in your testimony. We all have testimonies! I
will tell mine to anyone who will listen from the grocery store cashier, to
the girl who's doing my pedicure. I leave them
Thank God for the support group!
Naomi
C-4 quad, incomplete
since July 2, 2005
** Get a sneak peak of the all-new AOL at
http://discover.aol.com/memed/aolcom30tour
Tim,
Thank you for your thoughtful words of encouragement. It is people like you
who make belonging to this group, such a blessing. It always helps to have
others who care and understand and who will listen with a genuine, loving
heart.
I would just like to say thank you to all of
Grace,
Thank you so very much for your words of encouragement. This is why I am so
glad to be a part of this group. It is very comforting to know that you can
talk with someone who knows exactly what you're going through. Love you
all!
Naomi
C-4 quad, incomplete
since July 2, 2005
Quadius,
Today marks my two year anniversary for my Transverse Myelitis. It's really
depressing because I thought, by the two-year period, I would have gained
more movement and made more progress. To be perfectly honest, I'm worse off
than I am when I left the hospital. I am still
Pam,
Thanks for straightening that out for me. I had a neurosurgeon put my
baclofen pump in. My Physical Medicine and Rehab doctor and one that
suggested
and prescribed the pump. I go back to her, when I need my pump filled, or
adjusted. I go to my primary care physician, when I need
Natalie M.,
I am so sorry to hear that you got bedsores while in the hospital. They
should have been turning you on a regular basis. I think I was little
overzealous about getting bedsores, when I was in the hospital.
I had a friend was very dear to me, who died a couple months before
Jude,
You must have misunderstood my e-mail. I cannot walk, due to deterioration
of my body, for lack of therapy. I am consider a quad, because my TM affects
all four limbs. I do not have any use of my right hand or leg. My left leg
works okay, but my left arm has limited use and so
Gary,
I am pretty much in the same boat as you. I was diagnosed with TM July
2005. At that time, I had spinal taps and plasmapheresis. I stayed in the
hospital for four months for rehabilitation. Since I've left the hospital, I
have
not seen a neurologist. I do not have a regular
Larry in Oklahoma, you are one crazy guy.
Naomi
C-4 quad, incomplete since July 2, 2005
** See what's free at http://www.aol.com.
Rosalie,
I was diagnosed with TM fourth of July weekend, 2005. As I said in my
e-mail, I saw the neurologist while I was in the hospital. I think I hit one
visit, while I was in the nursing facility, and like you said, he checked the
strength in my arms and legs, and told me the same
Pam,
What is the difference between a neuro, and a neurologist? I thought neuro
was short for neurologist. The only issues that I have had that need
attending to, are a lingering side affects of TM. Either my primary care
physician
or my physical medicine and rehab doctor takes care
Sally,
You are so, so right. I did not get my plasma exchange until arriving at a
second hospital, eight days later. I think that time difference makes the
difference between walking and paralyze. Not until I received the exchange,
that I get any movement back. I am still classified
Jude,
Medical information that was given to me, states that plasma exchange should
be done within the first 48 hours. The sooner, the better. Although some
information states, it can be done as late as 20 days later. So in your case,
I wouldn't expect a great improvement, but with this
I love this story.
The only survivor of a shipwreck was washed up on a small, uninhabited
island. He prayed feverishly for God to rescue him. Every day he scanned
the horizon for help, but none seemed forthcoming.
Exhausted, he eventually managed to build a little hut out of driftwood
to
Tracy,
Yes, I know the feeling of having raised wonderful children. It is one that
you never forget. Congratulations to your son! Kudos to him for wanting to
spend this special time in his life, with his family and neighbors. Stay
the loving mother that you are and revel in your
The only problem, so far that I've noticed, is that I sunburn easily. This
may be due to some of the medications I take.
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
Natalie,
Yes, I have been on a preventative medication, Cipro, and I still managed to
get UTIs on a regular. Since I was still getting the infections while
taking the medicine, the doctor just took me off of it.
Naomi
C-4 quad since July 2, 2005
Natalie,
I understand that very well. My husband tends very good care of my every
need. It is necessary for him to have some downtime for himself in order to
care for me properly and not lose his mind. He is an avid golfer, and we
arranged for other family members to be with me for two
Cody,
Yes, I have been a low dose preventative medication as well. It worked for
a short while, but then the UTIs return. I guess once my system built a
tolerance for it, it no longer worked. The doctors just had me to stop taking
it.
Naomi
C-4 quad since July 2, 2005
Jude,
I wasn't sure if you were directing your questions to Natalie or me, but I
can add my two cents.
The finger thing that you speak of is the digital stimulation. It is done
by inserting one or two fingers in the rectum, to stimulate the anus which
causes the bowels to move. As I
Cheryl,
Yes, I cannot take Bactrim. It makes me violently ill. And yes, my doctor
takes a sterile culture. She will prescribe me something before I leave the
office, and when my culture comes back, she will call in a script to my
pharmacist. I've had a couple of different doctors
We are receiving your e-mail.
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
We are receiving your e-mail.
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
Happy Birthday Natalie! I wish you happiness today and all the days
following.
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
Natalie,
It's funny how our birthday presents changed after having TM. I'm glad your
husband made dinner for you. Sounds like you had a pretty good birthday
after all
I wish I was able to self cath. I have a Foley catheter and I have more
UTIs than ever. We take all the necessary
Priscilla,
Are you still having those bouts of diarrhea? How long ago was it that your
doctor said you have Crohn's disease? I had the same problem for about two
years before I finally went to the doctor. After many tests, I was diagnosed
with Crohn's disease. It is under control now,
Jude,
I used to have to do the digital stimulation and my early months of TM. Yes
it is very unnatural feeling to lay in the bed on your side, waiting to use
the bathroom. Sometimes I would have to get the Enemee suppository. Thanks
to gravity and my diet, I am able to use the bedside
Sally,
I have not heard of the spoon theory. Could you please post it here?
Thanks
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
Jude,
Thank you so very much for that heart warming poem. It is very fitting for
this group.
Naomi
C-4 quad since July 2, 2005
** See what's free at http://www.aol.com.
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