Re: [TMIC] CBS
High top sneakers do the trick too. Rosalie In a message dated 10/31/2011 8:46:08 P.M. Eastern Daylight Time, jcs...@yahoo.com writes: and another benefit Dalton is that you can feel cool wearing them again,,(i like your trade mark sign for TM) ’¿¨ From: Dalton Garis malugss...@gmail.com To: Elizabeth Clark xbeecla...@gmail.com; 'Susan Kleinz' skle...@cox.net Cc: tmic-list@eskimo.com Sent: Monday, October 31, 2011 7:13 PM Subject: Re: [TMIC] CBS Hey friends; I am a big proponent of our checking out if wearing western or cowboy boots can handle drop foot. I have drop foot on the left foot. The decision was either to get a brace attached to a shoe that resembled a large slab of cement painted black, or, get cowboy boots. Well, which would you rather have? Boots, that you can change to match conditions and tastes, or a slab of black concrete that becomes your only choice of footwear? Mine are hand-made M.L. Leddy's of Fort Worth, Texas. I had a pair almost forty years ago; so when I got drop foot from ™ I thought this would be a nice solution to the problem. Now, I don't wear anything else. And they completely solve the problem. I recommend getting a good pair, the best you can afford. Well worth the money in comfort and convenience. Dalton From: Elizabeth Clark _xbeeclarkx@gmail.com_ (mailto:xbeecla...@gmail.com) Date: Mon, 31 Oct 2011 12:37:46 -0700 To: 'Susan Kleinz' _skleinz@cox.net_ (mailto:skle...@cox.net) Cc: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: RE: [TMIC] CBS Resent-From: _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Resent-Date: Mon, 31 Oct 2011 12:40:15 -0700 Hi Susan, Sorry we have to meet under these circumstances – I am 58, married with 2 children (20 22 who still live at home). I was dx’d with TM in April of 2006, spent a month in a re-hab facility, and ~two years in and out of physical occupational therapy. Then in 2008 2009, I had two surgeries on my right wrist/arm to improve my hand function. Early this year I started wearing a leg brace (when I’m out walking a lot – grocery or mall shopping, etc.). After seeing a podiatrist for an unrelated issue, he became interested in my ‘condition’ and other problems I have as a result of TM – weak left leg (especially the knee), pronated arch/ankle and drop-foot. He recommended a new, light-weight carbon-fibre brace (made by Trulife in the U.K. http://trulife.com/all-products/orthotics/ankle-foot-orthoses/carbon-fibre-afo/matrix ) for my leg that has worked very well. It gives me the stability I need without being too heavy. I don’t wear it around the house, but when I go out, it helps tremendously. I looked up Brown-Sequard Syndrome. The symptoms of it read very much like TM so I’m curious… you said you have probable MS, but were dx’d with TM this year. Is that a correction to the initial BSS diagnosis of 20 years ago or in addition to it? And the Cranial Sacral Therapy… I’m very interested in it. I had many years of chiropractic treatments during my teens 20’s due to severe headaches and backaches caused by my Scoliosis, but finally stopped going because I had my spine fused (and partially because of the cost). Since then, I’ve considered going back, but the thought of someone else touching and manipulating my body just creeps me out… I have extreme sensitivity to synthetic fabrics which make my skin feel like it’s crawling and being hugged by others can sometimes be painful. I tried acupuncture a couple years ago, but didn ’t see (or feel) any improvement in my condition. You mention Cranial Sacral Therapy helped you more than anything else. In what way – other than the obvious feeling of well-being – did it help you? With pain or with function? Also, do you use pain meds? If so, what do you use and in what dosage? Sorry if I sound nosy, but I’m always interested in alternative therapies. Since we all seem to react differently, you never know what might work for you. Betty (in Northern California ) From: Susan Kleinz [_mailto:skleinz@cox.net_ (mailto:skle...@cox.net) ] Sent: Monday, October 31, 2011 9:02 AM To: Elizabeth Clark Cc: _kimharrison325@comcast.net_ (mailto:kimharrison...@comcast.net) ; _tmic-list@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] CBS As newbe to this website, I'm Susan Kleinz 57, married, 3 children, diagnosed 20 years ago with Brown Sequard Syndrome, probable MS after becoming paralyzed on left side. diagnosed Feb. of this year with Transverse Myeliltis. - can walk with a brace on left leg. thank you for all these wonderful websites! my neurologist at Barrows Neurological Clinics in Phoenix AZ says - no flu or shingles shots. I've never had either.
Re: [TMIC] Does anyone know?
When I was in hospital with Tm 6 years ago the first question everyone asked was whether I had a flu shot. They thought that that may have been the cause of my TM. I did not have the shot however. I was in rehab for at least 6 mos. and every nurse I met said they would never take the shot regardless of what the doctors say. So, I have never had the shot and would never take one.Just something to think about. Rosalie In a message dated 10/18/2011 6:09:54 P.M. Eastern Daylight Time, molokai...@gmail.com writes: the neuro's who diagnosed my TM thought it may have been caused by a bout of Shingles I had. Two years have passed and my wife is worrying I might get another bout of shingles that would result in more TM damage. Should I get a Shingles vaccine shot or is that risking another attack of TM? The shot is $235.00 and we have been saing for it but now I am wondering what the risk is. Please contribute your knowledge. Jim
Re: [TMIC] handicapped placard
Parking is my biggest gripe. I use an accessible van and need to get out using the ramp on the passenger side. 3 times this month someone was parked on the stripes adjacent to the parking spot. One time I called the police and he didn't even know how to write a ticket and for what amount ( this is in New York). Ended up they got a tkt for $250. Once was at the library and we found the person. This week in the rain I was at the mall. I had to ask a stranger to pull my car out so I could get into my car. I didn't have time to wait for the police and security at the mall is never there when you need them. In Florida where I go for the winter there is always someone in the handicapped spot at the tennis complex and then they go to play tennis. I used to be a tennis player and am always at the courts watching or helping the captain on my former team and I dont have a spot to park in. Cant do anything about it because there is a placard. Usually I leave a note to say if you are playing tennis then you shouldn't be in this spot.I feel like the parking spot commando. Such is life,Rosalie In a message dated 10/8/2010 4:59:35 P.M. Eastern Daylight Time, rn11...@yahoo.com writes: Hi, I got my new placard in the mail today. They are reissued every 5 yrs. At one time,you had to sign a paper that you were still disabled and return it to the DMV,and a few weeks later you got the placard. Now they're just mailed,without knowing if you are even alive. Cheryl in Easthampton,MA
Re: [TMIC] Medications
My husband purchases drugs from Canada. He uses a company in Florida who orders them for him with a USA prescription. But , these drugs are also available here. You can also order from the internet. Take care, Rosalie In a message dated 9/14/2010 4:13:12 P.M. Eastern Daylight Time, fr...@franksheldon.com writes: Can a US doctor prescribe a drug only available in Canada and the UK? How does one buy it then (if not able to go to Canada to purchase it) Can it be obtained over the internet or some other way? I really don't know. My neurologist in Portland (Maine) says that he writes Rx to patients who then go to a pharmacy in Canada. My pain MD has no other US patients. Sorry F
[TMIC] anyone out there
Is it quiet or am I knocked off the list.
Re: [TMIC] anyone out there
Hi Bernie, I am back in Woodbury. Hi to everyone also. I Dont write too often but missed all the emails. This weekend in NY on Long Island there is going to be an independence expo sponsered by United Spinal. It is very informative and shows all the new innovations in wheelchairs, minivans, etc. Last year I saw motorcycles for the disabled. There are classes on various topics given and advice on insurance, travel, parking, etc. Bernie, if you get Newsday there is going to be an article on me in the July 3 edition Act 11 section (unless I get bumped). Take care, Rosalie In a message dated 6/23/2010 8:42:04 A.M. Eastern Daylight Time, bernie.butc...@honeywell.com writes: Got you in Melville, NY BERNARD BUTCHER Honeywell Engineering 516-577-5868 From: aca...@aol.com [mailto:aca...@aol.com] Sent: Wednesday, June 23, 2010 8:33 AM To: tmic-list@eskimo.com Subject: [TMIC] anyone out there Is it quiet or am I knocked off the list.
[TMIC] testing
testing
Re: [TMIC] OT: sorry...
I have had good success with Activia yogurt. I also take acidopholus tablets. It might help. Godd luck and Happy Holidays. Rosalie
Re: [TMIC] Age
I guess I am the oldest. Age 67 in 2005
Re: [TMIC] Feet to Hands problems/solutions?
Candy, I am going to be at the Marriott on Marco Island the last weekend in Oct. (31-3). Celebrating my 50th Anniv with friends. Come on by and I'll cut your steak. Never been to Naples but will probably do some sightseeing there too. What is a good restaurant there? I live for most of the year in Delray Beach on the east coast. Do you ever get there? If you do, let me know. Take care, Rosalie In a message dated 9/30/2009 10:23:00 P.M. Eastern Daylight Time, cakal...@embarqmail.com writes: - Forwarded Message - From: CANDIS KALLEY cakal...@embarqmail.com To: Todd Tarno toddtm2...@sbcglobal.net Sent: Wednesday, September 30, 2009 10:20:13 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Well any time you're in SW FL, Ft. Myers/Naples, let me know. Can you cut-up my steak for me? That's the one I've had the most trouble with. The only other problem I've had when me hands cramp up, is I've thrown or dropped my silverware. And, Ive screamed several times - sure as heck scares my dog and parrot! Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Todd Tarno toddtm2...@sbcglobal.net To: TMIC-LIST TMIC-LIST@eskimo.com, CANDIS KALLEY cakal...@embarqmail.com Sent: Wednesday, September 30, 2009 5:19:44 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Feet to Hands problems/solutions? Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. I will go out in public with you anytime. We can do fried chicken, ribs, corn on the cob or even a nice juicy steak. Get out when you can, Todd in CC, TX --- On Wed, 9/30/09, CANDIS KALLEY cakal...@embarqmail.com wrote: From: CANDIS KALLEY cakal...@embarqmail.com Subject: [TMIC] Feet to Hands problems/solutions? To: TMIC-LIST TMIC-LIST@eskimo.com Date: Wednesday, September 30, 2009, 11:10 AM OK, we've explored the different problems of TM with the feet/legs/toes. Now, how many of you have your hands cramp up into weird positions or lock around something or lock into a clintch and not be able to get your hands to relax into normal positions. When I'm eating, my hands will clintch around the silverware. There have been times where I'm trying to cut something on my plate and BOTH hands clintch around the silverware; the only thing I can do is try to pull the silverware pieces out by my mouth then try to unclintch my hands with my mouth, or sit on my hands or try yoga breathing techniques to relax. This seems to happen if I'm tired or too hot/cold. Now when those conditions occurs, if anything on my plate needs cutting I pick it up and eat it with my hands. Sure cuts down on going out to eat in public. Has anyone bought the special silverware where the handles are bigger? Did it help? To me, the pain from hands cramping/spasming is MUCH worse than my feet/toes or legs, at least I have my hands to unclutch toes, or grab my feet or leg and talk to the offending part (which seems to help). Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K.
Re: [TMIC] Deb - Long Island, NY
Deb, where do you live in Suffolk county. I live in Woodbury but am leaving for Florida in 2 weeks. Did you or your husband work at Stony Brook Hospital - I seem to recall I once spoke to someone out east in Suffolk. Let me know. Rosalie In a message dated 9/19/2009 7:38:31 P.M. Eastern Daylight Time, aiki...@optonline.net writes: Deb - Long Island, NY (suffolk county)
Re: [TMIC] Looking for TMr's for support groups
Rosalie Green Delray Beach, Fla. from Oct. to May. In a message dated 9/14/2009 6:49:16 P.M. Eastern Daylight Time, cakal...@embarqmail.com writes: Candy K. - SW FL - Naples, FL Prayers and thoughts for you and yours, Candy K. - Original Message - From: Debi brad...@gmail.com To: tmic-list@eskimo.com, Barbara H. barbara...@gmail.com Sent: Monday, September 14, 2009 3:11:43 PM GMT -05:00 US/Canada Eastern Subject: Re: [TMIC] Looking for TMr's for support groups Debi Wall--South Lake Tahoe California ---Original Message--- From: _Barbara H._ (mailto:barbara...@gmail.com) Date: 9/13/2009 8:05:25 PM To: _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Subject: Re: [TMIC] Looking for TMr's for support groups There is a list of established support groups for various states and countries here: _http://www.myelitis.org/support.htm#3_ (http://www.myelitis.org/support.htm#3) Barbara H. _http://barbarah.wordpress_ (http://barbarah.wordpress/) ,com On Sun, Sep 13, 2009 at 9:25 PM, Catherine _camoa...@yahoo.com_ (mailto:camoa...@yahoo.com) wrote: Kevin, That is a wonderful idea. Why don't we all just say where we are from .. as I have seen here. Several support groups may start. Thank you for a great idea So I will start... Catherine, caretaker Central Mass. From: kevin weilacher _hwyfli...@yahoo.com_ (mailto:hwyfli...@yahoo.com) To: _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Saturday, September 12, 2009 4:59:53 PM Subject: [TMIC] Looking for TMr's from N.E. Ohio area Who here on the list is from what is classified as the N.E. Ohio area. I have the 2007-2008 TMA directory and I'm sure that there have been some changes or updates. I'm looking at trying to start a NE Ohio TMA support group. I know there is an Ohio support group but I believe the closest area is Columbus. Honestly, that is a bit too far for me to drive for support meeting get togethers. I know Gunny is on here and I know about Ella in Elyriacan anyone help me out..? I think we could benefit from something like thisespecially in light of the recent posting from Gilly...where she said that she just recently met another TM'r. How many others are out there that would like to meet another TM'r and you might have someone in your back yard so to speak that you don't know about. Thanks, Kevin
[TMIC] Fwd: You can help find the cure for paralysis
check out the video from Scott Chesney. From: peter.wilderot...@christopherreeve.org To: aca...@aol.com Sent: 6/29/2009 7:16:09 P.M. Eastern Daylight Time Subj: You can help find the cure for paralysis _Click to view as a web page._ (http://www.kintera.org/TR.asp?a=9oLCLONtHcLHJ0Js=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) (http://www.kintera.org/TR.asp?a=8nJALLMpFcJLI2Ks=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) (http://www.kintera.org/TR.asp?a=bgLGIUNBLfISKcJs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) Watch Scott Chesney’s video. Dear Rosalie, I am going to live my life to the fullest. This is the mantra of Scott Chesney. Scott woke up one morning at the age of 15, paralyzed from a sudden spinal stroke. Today he is a successful business owner, husband, father, and, I am proud to say, a Reeve Foundation Ambassador. _Take a moment to watch the video he made for you about who he wants you to see when you look at him in his wheelchair._ (http://www.kintera.org/TR.asp?a=gvKQK9PVJlIULiKs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) I've been waking up for the last 24 years, everyday, to a waiting wheelchair, he told me. And I have the power to choose. I choose to transfer into that wheelchair and begin my day. Courageous people living with paralysis, like Scott, are why we launched the _Campaign to Cure Paralysis_ (http://www.kintera.org/TR.asp?a=9eLCLONtHeLHJYJs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) . Our goal is to bring people like you together with the unified purpose of finding cures for the 5.6 million people living with paralysis. I believe cures are within our reach. There have been many promising developments in just the last 6 months. The Foundation and our cause have been in the forefront of the news: * Recalling the contributions of both Christopher and Dana, President Obama lifted restrictions on federal funding of human embryonic stem cell research. * Matthew Reeve was in the room at the White House as the President quoted his father at the signing of the Christopher and Dana Reeve Paralysis Act -- promoting collaborative research, rehabilitation and quality of life initiatives for millions of Americans living with paralysis and spinal cord injuries. * The release of the results from our paralysis population survey show nearly 1 in 50 people in the U.S. are living with paralysis – nearly 33% more people than previously reported -- with over 1.2 million people living with a spinal cord injury. And the Reeve Foundation is just starting its first clinical trial for a drug called riluzole -- a neuroprotective agent that may limit the damage in the early hours after a spinal cord injury. _Please help us have the resources to keep the momentum going by making your tax-deductible gift today._ (http://www.kintera.org/TR.asp?a=chJILXOFJhKOL8Is=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) If you ask Scott if he wants to walk again, he'll say, Absolutely! If you ask him if he has to walk again he'll say, No. I know my life is far greater than the use of my legs. For people living with paralysis it is their quality of life that is so important. Being able to be the best fathers and mothers they can be ... being the best husbands and wives ... being the best provider ... the best friend. All of these titles we hold in life still apply to someone living with paralysis. The Foundation is dedicated to helping people live their lives to the fullest. And really, this is what the Reeve Foundation is all about -- Today's Care. Tomorrow's Cure. Finding treatments and cures that allow people like Scott to regain function and pursue their dreams. I hope I can count on you to do all you can to help find cures and fulfill the goal Christopher Reeve set for the Foundation. _Please make your gift of any size today._ (http://www.kintera.org/TR.asp?a=fkLOI6PRIkJVJiLs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) _Forward to a friend._ (http://www.kintera.org/TR.asp?a=gvKQK9PVJkIULjKs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) Yours truly, Peter T. Wilderotter President and CEO PS: _Take a moment to watch Reeve Foundation Ambassador Scott Chesney's video._ (http://www.kintera.org/TR.asp?a=9oICJOMtGeIKL1Js=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) You can't help but be inspired by his courage and spirit. _Then help us find cures and treatments for the 5.6 million people living with paralysis by making your tax-deductible gift today._ (http://www.kintera.org/TR.asp?a=crKIJXOFIhLRIbIs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) (http://www.kintera.org/TR.asp?a=fkIOK6PRLkKYKlLs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) _Remove yourself from this mailing_ (http://www.kintera.org/TR.asp?a=8dJALLMpFgJLIYKs=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) . _Remove yourself from all mailings from Christopher Dana Reeve Foundation_ (http://www.kintera.org/TR.asp?a=bqLGIUNBLjISK8Js=ilLYJ9MTJiKRK7NTJuGm=koIMJPMwFlLYH) . **It's raining cats and dogs -- Come to PawNation, a place
[TMIC] hi
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[TMIC] (no subject)
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Re: [TMIC] another story
I have hand controls in my van although I do not use them. Tobe, I live in Woodbury , Long Island and use a company called Accessible Vans and Mobility in Bethpage (J. bussani, Inc.) tel # 516-938-5207. They would be able to tell you where to go in Brooklyn. I think the cost was about $850. When I purchased the van which is wheelchair accessible Chyrsler gave me a rebate of $1000. Take care, Rosalie In a message dated 11/22/2008 12:45:01 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Tobe, Did you know that you can have hand controls put on your car? It would definitely be a wild ride if I ever tried itI also can't feel my feet nor do I know where they are unless I'm looking right at them. One of the reasons that I now hate the dark. I certainly feel lots of pain but that's about it. I had hand controls put on my car and it sure made my life so much better. In some states you can get some help paying for it. Tho I was not able to get it here in Virginia. Please let me know if there is anything I can do to help you with this? I think if you type in hand controls for the handicapped you might find a list in New York. If you're interested let me know and I'll help you find some info on it. Have a great Thanksgiving Trudy On Fri, Nov 21, 2008 at 9:30 AM, T Kanon [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) wrote: Hi Everyone, I have another story about how a friend interpreted our illness. Unfortunately I can no longer drive due to TM. I can't feel my feet. So I applied for and received a special permit that allows me to put up to ten license numbers on it. I listed several friends who take me places and they can park at meters without paying or on alternate side days. One friend asked me if she could borrow it and not knowing how to say no I lent it to her. She continued to ask me for it and I said I can't. I could lose the priviledge and it is not meant to lend out. She asked me whom did I know to get a permit like that and passed the word around that I was selfish. Lately I find people very annoying Tobe Brooklyn NY:O) **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] Re: tmic-digest Digest V2008 #431
Hi Bernie, Rosalie here, now in sunny Florida. Just went for an evaluation with the bioness system (walk aid). It is used for drop foot and helps to lift your ankle up so you dont drag on the floor. Didn't work for me. However my foot doesnt really drag so much. I thought it might help with the walking but it is only for your ankle. I spend most of my time in the power chair anyhow because if I walk with the walker I cant stand on my own when I get to where I am going, like the kitchen. Hope you are as well as can be and not feeling too much of the cold on Long Island. Take care, Rosalie In a message dated 11/21/2008 8:22:48 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Hi Jeanne - congrats on your progress! - it is also my goal to walk without walker. I hope I can but I was diagnosed with MS after TM. My neuro wants me to go for an evaluation for walk aide - a gadget you strap to your calf to jolt you when you are trying to take a step, and also a new med coming out next year - we'll see. First I have to get off my butt exercise more but in the evening I am too pooped from working all day can't do it in the morning because then I'll be too pooped at work! Barney From: jrushton [mailto:[EMAIL PROTECTED] Sent: Thursday, November 20, 2008 7:32 PM To: [EMAIL PROTECTED]; tmic Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 Amanda, you couldn't have come to a better group. We go clear across the chart in where we are in our post TM onset so you will have a lot of support. I don't think anyone really knows where each person will be with their TM. Some do improve right away, some improve partially from the onset, others take longer and then sadly, a few where there aren't many changes from the onset. I was totally paralyzed from the chest down and after the first week was able to move my left toe. After three weeks, I was able to sit up and move my legs but still could not walk but was determined to get better. With prayer and PT I progressed from a wheelchair full time, to a walker and wheelchair, to a wheelchair with shopping and traveling, and now can walk, drive, and get around pretty darn well from where I started. I walk like a drunk and always take a cane if I'm going anywhere but by gosh, I can do it!!! I still don't have the feeling back from the chest down even tho I have sensation here and there. There are others who have come a whole lot further than I have. Each case is different. Please take care and although I wish this hadn't happened to you, you are welcome as sunshine to this new family of supporters! Jeanne in Dayton, WA **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] is this an M.S. problem?
I have had strange sensations with my sense of smell. Sometimes I smell things similar to the smell of smoke. First I thought it was coming from my air conditioner in Florida but when I got to NY it was the same. Neuro sent me for brain eeg and mri. Both showed nothing. I guess I still have a brain but the sensations are still there but not as much. In a message dated 10/14/2008 9:29:46 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I have had some ear problems for the past few weeks. I went from hearing well to sudden hearing problems, vertigo and blurriness with my vision. When I talk, I hear the sounds of my voice muffled up inside of my head and not like the usually normal hearing. The ear doctor cleaned up my ear and it took 3 trips. My hearing seemed improved but a lot of the wierdness kept going on - and I am hoping that it will just clear up. But the reason that I am writing is because the ear doctor said that a lot of my problems seemed to have a neurological basis. I have had vertigo, dizziness and things just seem wierd. My vision has been off in a very odd way especially when I either try to focus or if I move my head or something moves by me. He brought this up without prior knowledge of my history with TM and the other oddities that I had had and wanted me to have an MRI to check to see if my odd auditory and vision issues were being caused from something in my brain. He asked me specifically if I had ever had problems with tingling, numbness or other M.S. type symptoms and thinks that my neuro should check it out. I'm very skeptical about his ideas yet also a little nervous about doubting his speculations. Those of you who have MS, have you ever heard/experienced odd things like sudden vertigo, dizziness, vision and auditory changes ect.? I'm very nervous about this. I have already gone through two foot drops, loss of my right leg, loss of bladder function and the pain and miserable mobility issues that come with TM, the physical thearpy and finally I am for the first time walking and getting around without spasms or pain. I am not ready for a new bout with a new problem . **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
Re: [TMIC] Questions
Its funny you should talk about cold sores and herpes virus. I never had a problem with that in the past and that was the first thing I was asked when I got sick (Sept. 05). Right now I have sores on my tongue which is probably some sort of herpes. Very annoying. I am taking an antibiotic but I know that does not kill a virus. 2 of my daughters (grown) also had mild cases of shingles this past year. Maybe we all have the chicken pox virus in our systems. Feel good, Rosalie In a message dated 10/3/2008 2:58:56 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I always hate when my email is filled with forwarded messages. I usually just delete then and very rarely pass them on. I feel exactly the same way. I delete more email, even from my very best friend, who sends me every darn joke out there on the Internet. Every once in a while there are photographs that are too cute and I appreciate those. The political messages I can live without hearing. I know how I feel; I know who I am going to vote for, and I can decide for myself when there are issues on the table to be discussed. What I'm trying to say is this forum is for Transverse Myelitis and I'd like to read email having to do with this disease and how each of us is coping with it on a daily basis. Maybe there are new members wanting to ask questions about TM... Heck~I have a question. Has anyone ever been told that their TM is related to the Herpes virus? When I get sick, I always get a cold sore on the corner of my mouth...never anywhere else. But the doctors say that my herpes viral titers are sky high and can find no reason for them to be like that. Has anyone else been told that TM is caused by a virus? Love, Hugs Prayers. Jude New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. _Try it out_ (http://local.mapquest.com/?ncid=emlcntnew0001) ! **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out! (http://local.mapquest.com/?ncid=emlcntnew0001)
Re: [TMIC] dr. kerr
Hi Tobe in Brooklyn (where I was born and grew up and went to Brooklyn college), Too bad the discussion is in Feb. I will be in Fla. at that time or I would have tried to make it. Sounds like it would be interesting. I hope you go and report back to us about it. Take care, Rosalie (from Woodbury, Long Island, NY and Florida) In a message dated 8/10/2008 5:31:44 A.M. Pacific Daylight Time, [EMAIL PROTECTED] writes: Hello Everyone, New York has a famous Y in Manhattan appropriately called the 92nd Street Y. I get the catalogue and was perusing it the other day, and lo and behold what do I see On Sunday February 8, 2009 there will be a discussion on the autoimmune epidemic. One of the guest speakers our own Dr. Kerr. The other speaker is Donna Jackson Nakazawa, an author of books on the subject. It is a long way off however these fill up fast. I hope to attend. Stay well. Tobe Brooklyn NY **Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut000517 )
[TMIC] hi
Hi all, Just met someone through a third party who came down with TM . She doesn't live too far from me and would like to be added to the list. Dont know if I gave her the correct way of doing it. Would someone email her and let her know how to subscribe. Her email is [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) . (name is Debbie) Thanks, Rosalie (from Long Island, NY - summer only) **Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! (http://www.tourtracker.com?NCID=aolmus0005000112)
[TMIC] just a test
where is all the mail **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [TMIC] how to travel?
Hi, I occassionally travel by air with my manual wheelchair. I ride it up to the gate. However I can use a walker to get to my seat. If you cannot do that the flight personnel are usually wonderful. They have a special aisle wheelchair and will transfer you themselves into your seat (2 strong men). I usually get the front row and if you ask for it before hand the airlines will give it to you. they check my chair in at the gate. Getting to the bathroom on the plane is another story. I am going from Fla. to NY in a few weeks and have asked to keep my walker on the plane. I still dont know if I would be able to get to the bathroom but this will be an experiment. There are handicapped bathrooms usually whereever you go and you would transfer much the same as you do at home. If you call hotels in advance you can reserve an accessible room. I have been to a few motels and hotels in the past 2 years and some are better than others. Some showers are accessible and some are not. But there are usually grab bars for the toilet. I have never seen beds that move. Hope this helps, Rosalie **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] how to travel?
Akua, I cant tell if you are a girl or a guy by your name. Anyhow, we once ordered a van to take us to the airport with my wheelchair. Well, a van came but it had 2 huge steps to go up. Fortunately the driver was a big burly guy and he lifted me up. (I am only about 120lbs.) My husband couldnt do it but we managed. Iknow you are going through a hard time but there are some chuckles out there. Good luck, Rosalie **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
Re: [TMIC] question
I stepped on a live wire Labor Day weekend (Sept. 05) or so it seemed. Didnt know what hit me. Couldnt move my legs at all. For the first 5 mos. I was in rehab 6 days a week, twice a day. After that I have been faithfully going to some sort of therapy and training 2 to 4 times a week for 2 years now. Doctors still havent firmly labeled it TM. Some think I had a stroke of the spinal cord. However, the results are the same and my symptoms echo most of the people on the list. I am lucky in that I do not suffer pain anymore - just a great deal of discomfort, fatigue, etc. Take care, Rosalie **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
[TMIC] ER Story
* Labor Day Weekend 2005( Saturday) on the way home with a brand new car and felt tingling in my legs. Stopped at my daughters house where the tingling felt like I had stepped on a live wire. Went to ER. Was told it was sciatica and given a pain pill and sent home. Next day (Sunday) - on the golf course and this time it really felt like two live wires that I had stepped on. Couldnt walk to my car. My husband took me to a different ER and they had no idea what it could be. They had no MRI machine. Sent me to a different hospital where they called in a technician to do an MRI. By this time I was paralyzed from the waist down so was admitted to hosp. Two weeks later a team of neurologists finally came up with a diagnosis - either Transverse myelitis or a spinal cord stroke. After 5 mos. of rehab I was finally able to walk haltingly with a walker and now I am independent, have a power chair and can drive my own van. Rosalie Green (now in sunny Florida but live in New York too) [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) cell - 516-972-4338 **Start the year off right. Easy ways to stay in shape. http://body.aol.com/fitness/winter-exercise?NCID=aolcmp0030002489
Re: [TMIC] DR. ANDREW WEIL ON TRANSVERSE MYELITIS
Funny. Everyone has a different opinion. Dr. Weil says to cut down on proteins in the diet. But, I have had several doctors who told me to increase the protein to help build up muscle. What to do?? Rosalie **Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop000301)
[TMIC] the weather
Hi All, Glad to see people are back emailing. I thought Iwas off the list for a while. Well I am back to Florida from New York. I need the warm weather as Iam sure alot of you guys do.Problem is when it is warm, most places are highly air conditioned. The top half of me is warm but my feet are always cold, especially when air conditioning hits any part of my body. It is a strange sensation to feel really warm and your feet feel like they are in a bucket of ice. Well, stay warm or cool everyone, whatever suits you. Rosalie ** See what's new at http://www.aol.com
[TMIC] Oprah
I too, wrote and received emails from Cody and her mother and from Allen Rucker. Will someone please send me the email address for Oprah I will write to her also. By the way, this past week, on one of the news programs (in the New York area) there was a quick report on an unusual illness. A young boy, I think he was around 10, camd down with Guilliane Barre Syndrome which has alot of the symptons of TM. It showed how he overcame this disease and is back to almost normal. I wonder how they picked up on this and not anyone with TM. On reflection I should have written to the station but now I cant remember which news program it was on. Take care, Rosalie ** See what's new at http://www.aol.com
Re: [TMIC] L'Shona Tova
Trudy, Thank you too.I am sorry you are with pain all the time. My biggest problem is my rear end. I have a constant burning sensation , no matter what I sit on. Go explain that to people. Anyhow, no use in complaining. It wont change things.Just put a smile on your face and have a big glass of wine and I find that helps alot. Take care, Rosalie ** See what's new at http://www.aol.com
[TMIC] L'Shona Tova
For all of you that are Jewish and everyone else, have a Happy and Healthy New Year. May the coming year bring us all peace and a feeling of well being and perhaps a little more medical insight into our problems. I, for one, have not felt normal since Labor Day weekend 2005. If one more person tells me what a great attitude I have I am going to bop them one. I never let my feelings show on the outside so they never know what it is like to live with TM. Thank goodness for this list of understanding people. I may not write to often but I empathize with all of you. By the way, had drinks with a TMer who lives near me. We met without the spouses and had a wonderful talking session. Finally put a face to someone on the list. Stay well, Rosalie PS Lets try to get all of those non-handicapped people out of our parking spaces. That is one of my biggest pet peeves. ** See what's new at http://www.aol.com
[TMIC] hello?
Anyone out there? Havent seen any email in a few days. ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Wheelchairs
Hi, I have a Jazzy wheelchair and it is a life saver. I also have a manual chair which my therapists really wanted me to use to keep upper body strength and perhaps I would walk with my walker more. However, at this point in my life I have to make things easier for me and my husband. I use the power chair to get me in my van so that I can drive myself anywhere I want to go. The arms go up and the chair also lifts up so that I can reach more things. It allows me to use both arms to do things because when I have a walker I still have to hold on with one hand. I cannot stand alone without holding on to something. Also, with the manual chair you have to use 2 arms to get around. With the power chair only one hand is used so that you can hold onto something in your other hand and move about from one room to another (like the glass of wine I have everyday). I had to have something repaired on the chair the other day and I went to the showroom. You cannot imagine all the varieties of chairs that are out there. You really need someone like a therapist to tell you which is the best one for you. HOpe this helps, Rosalie ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] Wheelchairs
Hi Kevin, I am kind of light weight and flexible so I bend down and can lift up the foot rest which is pretty heavy. Someone I know uses a pole with a hook on the end (actually I got one in rehab which is used for a dressing aid). He is able to lift it up with that. the foot rest is on a heavy hinge. My model also has the ability to swivel the seat around ( it has a release rod) to the left and right but I find that hard to do. I had it adjusted but I cannot do that myself. If someone is behind me they can turn the chair but I find it easier just to lift the leg rest. Actually you can raise the arm and turn your body to the side and get out that way without having to raise the leg rest. Another good feature I have is that the joy stick mechanism can swing out of the way and my arm rests can go up. With the joy stick out of the way it is easier to get near a table. The chair is pretty heavy so unless you have some sort of a lift you could not get it into a car. Some people have a lift on the back of their car which holds the chair outside the car. I have a ramp into my accessible minivan. Hope this helps.Rosalie (in very rainy New York) ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
[TMIC] no mail??
Havent received mail in 3 days. Whats up?? ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] osteoporosis
Yes, I was once told to stand at least an hour a day. Dr. said when I watch tv to try to stand up during the commercials and it would probably add up to an hour by the end of the day.Rosalie ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
Re: [TMIC] from Gary
Ann, Naomi, Gary, etc. My story is pretty much the same too.Was thunderstruck Sept. 05. Still havent been 100% diagnosed but I am pretty sure its TM. Have gone to numerous neurologists - I dont know why. They dont really do anything. I just figure there may be something new out there but I will probably know about it on my own. Also am mostly in a wheelchair but can drag myself around with a walker. Fortunately I am in no pain but of course alot of discomfort - burning, cold sensations, etc. Thanks to one therapist and her urging and a good reality check I have a power chair and do drive a van using my leg so I am pretty mobile. Of course I do miss my tennis and golf but what can you do. Was told today that I have worsening osteoporosis of my hips and I should do more weight bearing exercise. Thats a joke. If I cant stand how can I bear weight on my legs. (I have been doing extensive therapy for the past almost 2 years which got me where I am today but I guess my bones dont recognize that.) Take care all, Rosalie ** Get a sneak peek of the all-new AOL at http://discover.aol.com/memed/aolcom30tour
[TMIC] transverse myelitis
Hi, When I first went into the hospital 9/05 the doctors didnt know what the heck I had. So they started me on IVIG. They thought I might have Guilliame Barre Syndrome. I was on it for 5 days - 3 bottles a day. Very fine hospital (teaching hospital) on Long Island in New York. The entire neurological staff could not give a diagnosis - They thought this would help if I had GBS - I was on high dose steroids too. I was fully covered for this, havent paid one medical bill in the nearly 2 years but of course I am on Medicare and AARP as supplementary insurance. No one has since suggested that I go on this treatment again and I have seen many other neurologist since then, including going to the Cleveland clinic. Conclusion by most of them is either a spinal cord stroke or TM. It all ends up as spinal cord damage anyway. HOpe this helps. Stay well, Rosalie ** See what's free at http://www.aol.com.
Re: [TMIC] puttering in the kitchen
Alton, I do have a power chair which makes it easier to get around. I used to putter with clay as a hobby and work on the potters wheel but you need to put your whole body into kneading the clay. I cant imagine doing it in a sitting position. Maybe if I sat on a high stool. As far as the kitchen is concerned I am great at heating up frozen food and left overs from restaurants. Does that count?? Rosalie ** See what's free at http://www.aol.com.
Re: [TMIC] from Gary
I dont think coincidences really happen. There is something more to it. My next door neighbor in a condo (we shared a party wall) was diagnosed with TM about 12 years ago. He was around the same age that I am now (a little bit old). Same symtoms that I had and spent the rest of his life in a wheelchair. I think that is rather odd. I had never heard of TM at that time and now here I am with the same thing. It is very strange. Rosalie ** See what's free at http://www.aol.com.
Re: [TMIC]
HI, I had been seing a neurologist - in New York- about every 3-6 mos. since I was hit with TM (Labor Day Weekend 2005) - still a question of my diagnosis. I have no idea why I go because he looks at me and says what's doing. Tests the strength of my legs, watch me try to walk with a walker and thats it. I like to keep in touch with him just in case something new comes up that he feels might help me. Other than that, I really dont need to see him. Went to Cleveland Clinic in Fla. this winter and the neuro wanted to know what I was doing there. He had no answers for me as did another neuro that I saw. All they agreed on was Therapy, Therapy, Therapy. Sincerely, Rosalie ** See what's free at http://www.aol.com.
Re: [TMIC]
Naomi, I was told by one neurologist that it takes a year to to see where you are at and that is probably where you will stay. I am in a wheel chair although I can drag myself around with a walker. I can walk with it but cannot stand on my own so that when I get anywhere in my house I have to sit down. I never was a cook but I do miss puttering in the kitchen. I still cant get used to doing things from a sitting position. Rosalie ** See what's free at http://www.aol.com.
Re: [TMIC] Itchy, burning scalp
Hi, cant believe you are talking about an itchy, burning scalp and forehead. Before I was hit with TM (Sept. 05) I was getting itching and burning down my back and then on my scalp. I also dismissed it as dry skin. But now I get really itchy scalp and little itching bumps on my forehead. This winter I even had some swollen glands in the back of my neck. Didnt see a Dr. because what would they tell me?? I figure it may be some sort of virus but there are times when I am under alot of stress that it gets worse. Go figure. Rosalie ** See what's free at http://www.aol.com.
[TMIC] China
Does anyone know anybody who actually went to China for stem cell therapy. If so, do you know the results. Thanks, Rosalie ** See what's free at http://www.aol.com.
Re: [TMIC] Cold Spots
Hi, This does seem the norm for those of us with TM. I find that it is very difficult for me to be in an air conditioned room. If any cold air hits my upper body my legs seem to be in a bucket of ice. I live in Fla. and my house is always kepton the warm side as I cannot take any cold air blowing on me. I like the room to be cool but if I pass the vent I cant stand the cold air. If I touch my skin it feels normal to the touch but as far as Iam concerned i am cold.You are not alone in this. Our nerves are all screwed up. Stay well, Rosalie ** See what's free at http://www.aol.com.
Re: Fw: [TMIC] Re: You may get worse
Dear Susan, Wow, its been a long time. I have been in Fla. for the winter. My core muscles couldnt get any stronger. I have a personal trainer twice a week in my fitness center and I go to aquatic therapy twice a week too. Being in the water is the absolute best. I walk backand forth holding on to a floatationdevice that looks like a barbell. And do other various execises. The water is very easy on your joints. I walk as much as I can with the walker but still cannot stand on my own. But still I am getting stronger and can stand if I lean one leg against something. My core is OK its my glutes and hamstrings that are almost gone except for my right glute which seems to be firing a bit. I have a power chair now and an accessible van and I get around on my own. I can drive with my leg so that is great because even though I learned to use hand controls I hate them and find it unnecessary. I now have a new shoe wardrobe. You cannot believe how many fancy type sneakers there are out there. I particularly like the skechers which have one strap going across (like Mary Janes). My old shoes with high heels are long gone. Have seen 2 more neuros in Fla. Same conclusion. Probably TM or maybe a spinal cord stroke. Doesnt matter what the dx is, same results - injury to the spinal cord. Hope you are doing well and are getting around. Keep in touch andlet me know whats going on with you. Stay well, Rosalie - now in Fla. but soon going up to NY for Passover - then back to Fla and up to NY in May for the summer. ** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
Re: [TMIC] Diabetes Statin Drug Questionnaire
I too had a fairly quick onset of TM (still not fully diagnosed) Labor Day weekend 2005. Felt like i was standing on a live wire down both legs and became paralyzed from the waist down. Now can move my legs and even drive but cannot stand alone or walk without a walker. My primary neuro still thinks it was an infarction of the spinal cord but several others including a doctor at the Cleveland clinic believe it is TM. Perhaps it is one and the same. Also, I had been fighting taking Zocor for my high cholestoral for years and just that summer decided to take it (40mgs) I had been taking it for about 6 weeks when this struck. I also thought that the statin drug had something to do with this but all the drs. pooh poohed it. Even now, a year and one half later one dr. talked me into to taking Lipitor (20mgs) He says that the statin drugs could not cause TM. I hope he is right. Anyone else on drugs for cholestoral. Any other thoughts?? Thanks,Rosalie from sunny Fla. but now in freezing NY for a week. BRBRBR**BR AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com.
[TMIC] trip to Fla.
Leaving for Fla.from NYOct. 14 in the new minivan - my husband will do most of the driving. I dont know how I will sit so long but we will see. My biggest problem is my rear end. Because I lost alot of muscle tone in my glutes I am sitting on bone - no matter what I sit on. Any suggestions from anyone? Of course the bathroom issues are problematic but I know McDonalds has good handicapp bathroom facilities. I will have to look for the golden arches and try not to eat too many French fries. Glad to hear (well not so glad but you know what I mean)that there are others with dx of infarction. I thought I was the only one whose dr. insists on that diagnosis. He says it is not tm but is not 100% sure of course. I too thought I was being electrocuted down my legs and could not move from my tush down. Now, one year later I still cant stand without holding on but I can walk with the walker but am leaning on both hands.I do have enough use of my right leg to drive and it feels great to be behind the wheel again but of course I dont go too far alone. Will let you know how the long trip went. Take care all, Rosalie
[TMIC] thanks
Thanks for the advice on sitting for my trip. Will let you know how it works out. Rosalie
Re: [TMIC] today's feat
Hi Deb and everyone else on the list. I too, stay in the background. I just recently got a new minivan. I get in with a power chair but I can get into the front seat on my own. I took hand control lessons but hated it. I can, however, drive with my right leg but put the hand controls in just in case. What is a chair topper? I get in the van on a ramp. I do not have a real diagnosis. My neuro thinks I had a spinal cord infarction(stroke) but all my symptoms sound similar to TM - that is why all your input is interesting to me. I can do just about anything but walk on my own. I use a walker at times but I am actually walking with my hands. Cant stand on my own. I know someone who trades his minivan in when he wants another one but I dont know anything about re-sale value.I imagine that most of the cost is lost in the trade. I would be uncomfortable buying a van from a private p arty. Would rather go thru a dealer. Anyhow good luck with driving. Rosalie from New York (on the way to Fla. soon in my new minivan)
Re: [TMIC] today's feat
Hi Krissy, I dont usually write but I can relate to your driving. I drove last week for the first time in a year also. I learned hand controls but hate them so I do drive with my foot. Dont you just feel great. Rosalie
Re: [TMIC] RE: tmic-digest Digest V2006 #80
Hi Bernie, I live in Woodbury and am seeing a neuro from North Shore Manhasset Hosp. I was taken ill this past Sept. As of yet not really diagnosed. First thought it was GM, then TM or a spinal cord stroke. This Neuro (Jeffrey Nelson) took on my case after all the neuros in the hosp. threw up there hands. His greatest advice to me was get off your butt and do therapy. There is no cure for any of this, so get out there and work your butt off at therapy. 8 mos. later I am able to get around with a walker but not well. Just now considering a power chair and getting a special minivan. After reading all the back and forth e mails from everyone on this list, I have come to the realization that the drs. really do not know what to do with this. Most people have gone to too many drs. with no real results as far as I am concerned. Be interested in hearing your take on this. Take care, Rosalie
Re: [TMIC] RE: tmic-digest Digest V2006 #80
Hi Heather, Thanks for the input. Fortunately, I do not have alot of nerve pain now but do have crazy feelings of heat and cold. I too am just coming to an acceptance. Can't believe it because for the past 30 years I was an A tennis player and then a fairly decent golfer (thats where I was hit with this, on the golf course). In fact, today I looked into hand controled driving and getting a minivan so I can get around by myself. Sometimes I, who was never a sleeper, like staying in bed a little later and lounging around a bit. After so long being an athlete it feels almost good not to have to get up real early to get on the tennis court or on the golf course. I guess we can rationalize anything, right? Take care, Rosalie
[TMIC] Fwd: drinking
---BeginMessage--- General info Subcription/unsubscription/info requests should always be sent to the -request address of a mailinglist. If a mailinglist for example is called tmic-list@eskimo.com, then the -request address can be inferred from this to be: [EMAIL PROTECTED]. To subscribe to a mailinglist, simply send a message with the word subscribe in the Subject: field to the -request address of that list. To unsubscribe from a mailinglist, simply send a message with the word (you guessed it :-) unsubscribe in the Subject: field to the -request address of that list. In the event of an address change, it would probably be the wisest to first send an unsubscribe for the old address (this can be done from the new address), and then a new subscribe to the new address (the order is important). Most (un)subscription requests are processed automatically without human intervention. Do not send multiple (un)subscription or info requests in one mail. Only one will be processed per mail. NOTE: The -request server usually does quite a good job in discriminating between (un)subscribe requests and messages intended for the maintainer. If you'd like to make sure a human reads your message, make it look like a reply (i.e. the first word in the Subject: field should be Re:, without the quotes of course); the -request server does not react to replies. -- An archive of old messages and additional resources can be browsed at: http://www.myelitis.org/tmic/ -- ---End Message---
[TMIC] question
Hi, Anyone out there knows who I can contact to redesign a home office for special needs. I live in New York. Thanks, Rosalie
[TMIC] Mr. Graves info?
Can anyone give me an address to contact this Mr. Graves that you are all talking about. I would like to know what the Miami project is. I stay in southern Florida for the winter and am thinking of going to the Cleveland Clinic which is near Miami. Maybe they can tell me what I have. Of course so far I have no diagnosis. First thought it was Guilliane-Barre Syndrome, then TM, but my neurologist says it was a spinal cord stroke and is quite sure about it. In any case I have most of the symptons that most of you have but fortunately not alot of pain. Some nerve pain that is like sciatic pain but only in the evening. Also, the more I lie around the worse I feel. If I spend more time walking (with a walker of course and using mostly hands) then I dont get as stiff and ill feeling. I cant stand on my own yet but am working on it and thats because the muscles in my butt and my hamstrings are not working, Thanks, Rosalie
