from:"LadyNotes"


I live in Michigan, but I was in Minnesota, attending a wedding, when my TM 
struck

Have a Blessed Day, Naomi



-Original Message-
From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com
Sent: Tue, May 18, 2010 12:04 am
Subject: [TMIC] Where TM struck


I did not get many replies to my asking where people were living when TM struck 
them. Actually, it was really scattered. Sorry.
Janice

Re: [TMIC] Lyrica, Cymbalta AND Baclofen


I also take all three drugs. I've been taking the Cymbalta and Lyrica, for 
nearly 5 years, and the Baclofen since last September, after I had my Baclofen 
pump removed. They all serve different purposes for me. The Cymbalta is an 
antidepressant (and also used for pain), the Lyrica is for neuro pain and the 
Baclofen is for spasticity. They all work well for me. 
Naomi
C-4 quadriplegic
since July 2, 2005

-Original Message-
From: pjv1...@chartermi.net
To: tmic tmic-list@eskimo.com
Sent: Tue, May 18, 2010 9:15 am
Subject: [TMIC] Lyrica, Cymbalta AND Baclofen


Rob
 think I was typing my last post wile you were sending yours.
I take Lyrica and Cymbalta  and must also take Baclofen for the banding and 
uscle spasms.
yrica and Cymbalta decrease the neuro pain, but he Baclofen is the first thing 
 reach for when I've over exerted and my mucles are tightening so bad I can't 
ove.  Those were my first TM symptoms and the one that sent me to ER. 
Patti - Michigan

Re: [TMIC] Where TM struck

I have TM and Crohn's disease. When I was younger I had rheumatic fever, and 
also mononucleosis. None of my siblings have any of these. We didn't live 
anywhere near a timeout a factory


Have a Blessed Day, Naomi



-Original Message-
From: Pieter and Heather pieterheat...@shaw.ca
To: Janice Nichols jan...@centurytel.net; tmic-list@eskimo.com
Sent: Tue, May 18, 2010 12:56 pm
Subject: Re: [TMIC] Where TM struck


Living in Calgary. Age 58 when got TM.
Grew up from age 7 to 21 in Hamilton Ont.  Steel town.  Lived within 3 blocks 
of factories from 1952 until 1966.  Lots of smog and pollution. 
Father who worked at steel plant had Rheumatoid Arthritis.
I got TM at age 58.
My middle sister (3  yrs younger ) diagnosed with TM at age 43 in 1991.
My youngest sister (7 yrs younger) diagnosed with Ulcerative Colitis at age 19 
in 1972.  
All the above are autoimmune conditions.  
I have often wondered if it has anything to do with where we grew up.
Heather in Calgary 

- Original Message - 
From: Janice Nichols 
To: tmic-list@eskimo.com 
Sent: Monday, May 17, 2010 10:04 PM
Subject: [TMIC] Where TM struck


I did not get many replies to my asking where people were living when TM struck 
them. Actually, it was really scattered. Sorry.
Janice

=

Re: [TMIC] baclofen pump


Dennis, I had a baclofen pump put in in July 2006, one year after I diagnosed 
with TM. My PMR doctor, at the time, talked me into getting it. At the time I 
was walking on a platform walker, over 500 feet at a time. This was good for 
me, since my TM left me paralyzed on the right side and a quadriplegic. I say, 
she talked me into getting it, because I was not spastic at the time I had it 
put in. She told me I will be able to walk further and better. After having the 
baclofen pump put in, and having two weeks of therapy (which I was promised 
more therapy time), I was only able to walk 95 feet at most. Over the course of 
time, I became weaker, received subacute therapy and my Pop site costs need to 
be hospitalized three times for swelling and pain. My neurosurgeon's nurse, 
told me that the pump was a foreign object, and my body was constantly trying 
to reject it. With each hospitalization, they told me that it was not infected, 
but gave me intense, IV antibiotics, after which the pain and swelling would 
subside. This led me to believe that there was some infection involved. I was 
tired of the whole ordeal and opt to have the pump removed. 
Dennis, I had a baclofen pump put in in July 2006, one year after I diagnosed 
with TM. My PMR doctor, at the time, talked me into getting it. At the time I 
was walking on a platform walker, over 500 feet at a time. This was good for 
me, since my TM left me paralyzed on the right side and a quadriplegic. I say, 
she talked me into getting it, because I was not spastic at the time I had it 
put in. She told me I will be able to walk further and better. After having the 
baclofen pump put in, and having two weeks of therapy (which I was promised 
more therapy time), I was only able to walk 95 feet at most. Over the course of 
time, I became weaker, received subacute therapy and my Pop site costs need to 
be hospitalized three times for swelling and pain. My neurosurgeon's nurse, 
told me that the pump was a foreign object, and my body was constantly trying 
to reject it. With each hospitalization, they told me that it was not infected, 
but gave me intense, IV antibiotics, after which the pain and swelling would 
subside. This led me to believe that there was some infection involved. I was 
tired of the whole ordeal and opt to have the pump removed. 
Once I had my pump removed, the PMR doctor's attitude toward me changed. To 
make a long story short, she's no longer my doctor. I felt I was talked into 
getting the pump unnecessarily and when she was no longer servicing it, she had 
no use for me as a patient. My new PMR doctor said that I should have never 
gotten the baclofen pump, if I was planning on walking. I don't know if this is 
true, but I do know that with the pump. I was so flaccid, I could not even 
stand. The day after I had it removed, I have more tone and was able to stand 
on my own. I've lost so much doing that. I had the pump, but I don't think I'll 
ever be able to stand and walk again. I stayed in the hospital for six weeks, 
last October, to receive acute therapy, and I had so many minor issues that 
needed to be addressed, that made it impossible for me to walk. Because I 
wasn't walking and standing (due to no therapy, and no one to help me at home), 
I did not realize that my right heel would not even touch the floor, and I 
could not straighten the upper part of my body into an upright position. The 
doctor gave me Botox and then a phenol nerve block, in my leg to try and get my 
heel on the floor. After I managed to get my heel on the floor, I wasn't able 
to throw my hip forward, to move my right leg forward. I was doing all of these 
things before I got the baclofen pump. I'm not blaming it totally on the pump. 
It's also a lack of therapy and a lousy doctor.
Dennis, maybe you have a caring doctor who mean well and know what they are 
doing. Just because it didn't work out for me does not mean that it won't 
benefit you. I wish you well.

Dennis, maybe you have a caring doctor who mean well and know what they are 
doing. Just because it didn't work out for me does not mean that it won't 
benefit you. I wish you well.



Have a Blessed Day, Naomi



-Original Message-
From: dennis rabalais dennis_rabalais20...@yahoo.com
To: tmic-list@eskimo.com
Sent: Tue, May 18, 2010 3:57 pm
Subject: [TMIC] baclofen pump



hi my name is dennis. i have had tm since 2002. i am getting a baclofen pump 
put in. has anyone in this group have had one? if so, has it worked? i am a 
little bit nervous.
 
dennis,
texas

[TMIC] Honda Inovation

2010-04-26 Thread ladynotes

Carry your portable scooter with you


Have a Blessed Day, Naomi





Finally! The solution to my immobility!  How long is the waiting list?? Stupid 
thing will probably cost two or three hundred Gary your portable scooter with 
you



Attached Message


From:
David Latham da...@lathamfamily.com

To:
Undisclosed-Recipient da...@lathamfamily.com

Subject:
Honda Inovation

Date:
Mon, 26 Apr 2010 12:10:10 -0400



Check out this nifty gadget.
 
http://www.youtube.com/watch?v=cuIJRsAuCHQfeature=youtu.be

[TMIC] Dragon NaturallySpeaking (ot)

2010-02-13 Thread ladynotes


I am having a problem with the hot key on my Dragon NaturallySpeaking 10. I am 
using Windows Vista and it has a voice recognition program for use, but I 
prefer to use the Dragon. My problem , I believe, is the hot key for the coma 
key must be used for the Windows Vista program, because when I sign on to 
Dragon, I get an error message regarding the hot key and I am unable to use it 
when speaking in Dragon. Once before, someone made a statement stating that I 
can change the hot key if I wanted to. I cannot remember who it was, but I hope 
they will read this and be able to help me out. 

Naomi

Re: [TMIC] Friendships

2009-07-23 Thread LadyNotes

Before TM, I had quite a few friends and associates.   After the dust 
cleared, I only have three friends who are pre-TM, and I have  made four good 
friends who come once a month, to prepare dinner for me.   I've also made one 
very good friend who also has TM, lives in another state,  whom I've never 
met.  The people who I thought were dear friends, were the  first ones to 
desert me.  You would have thought I had something was  contagious.
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Medications

2009-07-20 Thread LadyNotes

Linda, thank you for your prayers and I will definitely keep  you updated.
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Medications

2009-07-17 Thread LadyNotes

As you all are contemplating your Baclofen doses or trial, I am waiting
for the neurosurgeon to remove my Baclofen pump.

I had my pump put in July 2006. Initially the pump worked well for
preventing spasms, but I did not know that it would prevent me from standing
or
walking, because I wasn't getting any physical therapy for a very long time.
Once I got the chance to get physical therapy, I wasn't able to stand at
all. I was like a limp noodle. No matter how hard they tried, I wasn't able to
stand, not in the standing frame nor with a walker. I had the doctor
reduce the Baclofen dose in my pump, in small increments. No matter how much
he
reduced, there was still no change.

About six months ago, my pump began to give me problems such as swelling
and tenderness to the touch. I spent two visits in the hospital within three
months, for the same problem. I was told they couldn't find anything wrong
with the pump, but each time they put me on intravenous antibiotics and
the swelling went down and tenderness diminished. This led me to believe that
there was an infection somewhere. After my pump kept swelling and the
neurosurgeon's nurse told me that the pump is a foreign object in your body,
and the body is constantly trying to reject it, and some patients pumps were
rejected totally outside of the body, I decided to have my pump removed. My
oral Baclofen was started up again, and I was weaned off the pump. I then
began to have more tone, and am able to stand better. I'm not able to walk
yet, but I have some inpatient physical therapy coming up once I get this
pump removed.

I tried once to have the pump removed but was unsuccessful. They could not
get an IV in. They tried from my feet to my exterior Jugular. Once I get
over this bladder infection, they will try again. Wish me luck.

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis
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Re: [TMIC] Medications

2009-07-17 Thread LadyNotes

Everyone I tell about them not being able to get an IV in,  just cannot 
believe it. My sister, who is a nurse, said I need to go to a  different 
hospital. I am in the process of having my primary care physician set  me up 
with 
a neurosurgeon at University of Michigan Hospital. I sure hope so,  because 
I am actually afraid to go back there. It t00k three nurses and an  
anesthesiologists, using ultrasound, and poking me all over, to tell me that  
they 
could not get the IV in.
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Blurred vision

2009-07-10 Thread LadyNotes

Thank you to all those who responded to my question or blurred  vision. I 
remember someone telling me that you do not go to an eye doctor for  blurred 
vision. It is not a problem that can be remedied by wearing glasses. You  
need to see an ophthalmologist. I do take Lyrica, and I am suspecting this may 
 be the culprit. I don't know how I will manage without my pain medicine. 
Do I  have to choose between being in less pain and not able to see, or 
improved  vision and in excruciating pain? What a choice to make.
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Blured vision

2009-07-08 Thread LadyNotes

Cindy, I am so glad to hear that. I was afraid that if I  stopped taking 
the medicine, my eyesight may remain the same. Now I know there  is hope. I 
just have to narrow it down as to which medicine is causing the  blurred 
vision. Thanks for responding.
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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[TMIC] Blured vision

2009-07-07 Thread LadyNotes

During the course of my medication regimen, I had taken  medication that 
has caused me to have blurred vision. I know there has been  others who have 
complained about having their vision impaired due to medication.  My question 
is this: has anyone stopped taking the medication and have their  vision 
improve or return to normal?
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
**Looking for love this summer? Find it now on AOL Personals. 
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[TMIC] Re: [QUAD-L] financial help

2009-06-17 Thread ladynotes

Yes, I would like to know this as well.  My insurance only cover so much, and 
then im SOL.

-Original Message-
From: Hosni Al-khatib hosnialkha...@hotmail.com
To: quad-list quad-l...@eskimo.com
Sent: Tue, Jun 16, 2009 11:00 pm
Subject: [QUAD-L] financial help

Hi

 I am a C 4/5 quadriplegic since 2001, and I am hoping that someone in this 
list can help me.

I want to ask if anyone here take financial help for his rehabilitation, 
because I know that it costs a lot in USA, so I don’t think anyone can afford 
it in his own.

So where and how can anyone get financial help or any kind of assistant to his 
rehabilitation.

Thank you

God bless you

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Re: [TMIC] Transverse Myelitis Network

2009-06-17 Thread ladynotes


Jude,

It's not that I think any one site is better than the other, and is not so much 
about interaction, as information It's just that quadriplegics have more and 
different issues to deal with. There is also a site for TM quads who are vent 
dependent, because they have more and different issues than quads who are not 
vent dependence. Jim Lubin started all of the sites, I'm sure out of necessity. 
We're just trying to find as much information to help us as possible. Every 
little bit helps.

Naomi

C-4 Quadriplegic, since July 2 2005

Due to Transverse Myelitis



-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:24 am
Subject: Re: [TMIC] Transverse Myelitis Network









Naomi,

?

Why do you think that you get more out of one group than the other?? Is there 
more interaction?? More topics of interest?? 

?

I still am loyal to the TM site because it is the original site that Jim 
started and put so much work into.? But, I am hungering for a site that has 
more interaction between members regarding TM. 

?

We don't seem to be getting new members like we used to so there isn't much 
talk about different medications, symptoms and general TM questions.

?

I know a lot about TM but don't think I will ever know everything.? So, I like 
to help those I can and be helped by those who know the answers to my questions.

?

Confused,

Jude

?


In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time, 
ladyno...@aol.com writes:


I am also a member of the paraplegic/quadriplegic website that Jim has started. 
Although I have TM, which left me a quadriplegic, I identify more with the 
members of the paraplegic quadriplegic site then with the members of the TM 
site.

?

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis


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Re: [TMIC] Transverse Myelitis Network

2009-06-17 Thread ladynotes


Jude,

First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I 
IDENTIFY more. I feel as though I offended you by saying this. There are issues 
and concerns of being a quad they are not addressed in the TM site and I would 
imagine it's because most people on this site are not quadriplegics. I go where 
I can find the information that helps me. If I did not want to be on this site, 
I could simply delete it from my contacts. There is nothing holding me back. I 
have asked questions on here regarding autonomic dysflexia, only to have no one 
respond. Because I later found out that it's a medical condition for 
quadriplegics, so I went to the paraplegic/quadriplegic site to get the answers 
I needed. I'm sure Jim uses these sites, HE CREATED THEM! Where is his 
hostility?? He knew that there would be a need for additional information, and 
that's all it is, is additional information.

I have been a member of this site, since I came home from the hospital in 2006, 
but I am always looking for any and all information that could be of help to me 
(as I'm sure all of us would be). There are people that use this site that are 
also members on the Yahoo Transverse Myelitis site. Should they just pick one 
or the other.

I have met many people through this site, one who has become my best friend who 
has TM. I would not trade that for anything, but your e-mail makes me feel as 
though I am unwelcomed or a traitor of sorts. This brings me to tears. As I 
have poured my heart out on this site (reluctant to make my personal problems 
public), but felt comfortable enough to share with others who are, also 
suffering with relationship problems, pain and depression. That won't happen 
again.



-Original Message-
From: heyjude48...@aol.com
To: ladyno...@aol.com
Sent: Wed, Jun 17, 2009 4:26 am
Subject: Re: [TMIC] Transverse Myelitis Network









Then what is holding you back?? Why don't you simply quit this site and use the 
other one that you say you prefer?? What's the big deal?

?

Jude

?


In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time, 
ladyno...@aol.com writes:


I am also a member of the paraplegic/quadriplegic website that Jim has started. 
Although I have TM, which left me a quadriplegic, I identify more with the 
members of the paraplegic quadriplegic site then with the members of the TM 
site.

?

Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse Myelitis


An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps!










Download the AOL Classifieds Toolbar for local deals at your fingertips.

Re: [TMIC] Relationships

2009-06-15 Thread LadyNotes

Kevin,
 
I also believe in Karma and also tried to live my life  according to the 
golden rule.  Which makes me wonder, if I did something so  bad to someone, 
that I would end up in this situation.  If I made any  mistakes that warrant 
this, I would remember.  It's hard to say that people  reap what they sow 
when I'm in the condition I'm in. 
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Transverse Myelitis Network

2009-06-15 Thread LadyNotes

I am also a member of the paraplegic/quadriplegic website that  Jim has 
started. Although I have TM, which left me a quadriplegic, I identify  more 
with the members of the paraplegic quadriplegic site then with the members  of 
the TM site.
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC]

2009-06-13 Thread LadyNotes

 
Dan,
 
I thank you so much for being encouraging to me.  It is  exactly what Pam 
would have done.  She always had an encouraging word for  me.  We would talk 
on the phone, and she would uplift my spirits.  It  means so much to me to 
have you do the same thing while still mourning her. 

 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Naomi

2009-06-09 Thread LadyNotes

Priscilla,
 
I'm sorry it took me so long to respond to your e-mail.   I have been 
having a pretty tough time.  I did not have my surgery, because  they were 
unable 
to get an IV in.  The anesthesiologists tried from 8:30 AM  until 11:00 AM, 
without any success.  They poked me from my feet to my  external jugular in 
my neck.  They thought the one in my neck was OK, but,  as soon as I got on 
the operating table, it blew.  I was in excruciating  pain that set off my 
autonomic dysreflexia.  After all of that pain, they  told me they couldn't 
continue.  I would have to reschedule.  I have  not rescheduled yet.
 
Isn't that just terrible about Pam.  I called her house  Sunday night, And 
Dan answered the phone.  He told me she had passed the  night before, and 
that he was tired, and hung the phone up.  My heart goes  out to Dan and his 
family.  Pam will be missed greatly.
 
How have you been?


Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Drug addiction

2009-05-18 Thread LadyNotes

Jude,
 
Thank you so much for the information you gave  me regarding my question on 
drug addiction.  It's good to get advice from  someone who has experienced 
such things themselves.  I did not know, that  the spasms from not taking 
the Baclofen, could be very painful or cause  death.  That is very useful 
information.  I will consult my physician,  when I decide to wean off the 
Baclofen.
 
I am just concerned, about the effect all of  these drugs, are taking on my 
body.  I do have regular blood work for liver  screening.  Fortunately, I 
haven't had any problems.  I'm just hoping  it stays that way.
 
Jude, you have certainly been through way too  much pain and suffering, for 
any one person.  I send you blessings for  continued recovery.
 
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
**A Good Credit Score is 700 or Above. See Yours in Just 2 Easy 
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[TMIC] Drug addiction

2009-05-12 Thread LadyNotes

How do you know if you  are addicted to pain meds?  I have taken so many 
different pain  medications, over the past nearly four years, I don't think 
they work for me  anymore  I am currently taking, Percocet 5/375mg  or Vicodin 
7.5/750mg  4 X daily, Lyrica 800mg, Fentanyl patch 125mcg every three days. 
 After  taking all this pain medicine, I still have excruciating pain in my 
hands, legs  and feet.  As long as I've been taking these drugs, I have 
never had the  feeling of euphoria or being high. My pain just increase, if I 
don't take my  medicine on time.  I experience blurred vision, sleepiness, 
lack of  concentration and memory; and the fact that I have recently had my 
Baclofen pump  turned off, and now take oral Baclofen four times a day, does 
not help the  situation any.  I have never tried to wane myself off the 
medicine, in fear  of the pain I may experience from not taking it.
 
I hear of people being  addicted to painkillers, does that mean that they 
are getting a high from taking  it, or that they can't stop taking it because 
of their pain?
 
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Amanda needs our support!!

2009-04-23 Thread LadyNotes

Is Amanda's e-mail address:  _adi...@yahoo.com_ (mailto:adi...@yahoo.com) 
 
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] quadraplegia

2009-04-20 Thread LadyNotes

I'm a C 4 quadriplegic who have the same issues  and would definitely like 
to hear from someone who is living  independently.  I would even like to 
hear from someone who's living in a  facility that supplies their needs.  I 
seem to have a problem finding a  place that can supply my needs and that's 
affordable.
 
Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
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Re: [TMIC] Testing

2009-03-23 Thread LadyNotes

I was kicked off the list up and had to re subscribe. 
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
**Feeling the pinch at the grocery store?  Make dinner for $10 or 
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[TMIC] Testing

2009-03-22 Thread LadyNotes

Testing
 
Naomi
C-4  Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
**Feeling the pinch at the grocery store?  Make dinner for $10 or 
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[TMIC] Windows Vista and Voice Recognition System

2009-03-22 Thread LadyNotes

My computer crashed and I had to get a new one.  The computer came with 
Windows Vista and a voice recognition program already  loaded onto it. Has 
anyone 
had any luck with this voice recognition system? It  doesn't type into sites 
that I visit regularly. The only site I've had luck in  is Windows Live 
Messenger and Facebook. It does not type in instant message on  AOL, and I'm 
still 
finding other areas where it will not type. Making  corrections are a pain in 
the 
ass! Dragon Naturally Speaking was MUCH easier to  use.  I thought it was me 
so I went back and read the instructions over and  over again.  Now I have to 
get use to putting in punctuations. I just HATE  it!!  And it has the nerve to 
not let you install Dragon  Naturally  Speaking!.
 
The Windows Vista I am learning to use it.   It is different, but I am 
learning.  I had my files saved from my old  computer and put on this one when 
I 
purchased it, though finding them is no easy  task..  Has anyone else been 
using 
Windows Vista and this voice recognition  program?  What do you think of it?  
Do you have any  recommendations?


Naomi
C-4 Quadriplegic, since July 2, 2005
Due to Transverse  Myelitis
**Feeling the pinch at the grocery store?  Make dinner for $10 or 
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Re: [TMIC] Update on Kim

2009-01-24 Thread LadyNotes

Kim, I am so happy to hear that your paralysis is not due to your TM.   And 
that it can be repaired.  I have had the steroid injections and the  disc of my 
C4, C5 and C6 vertebrae.  It did help me for a good while.   I'm hoping that 
if that's the option you choose, that it will help you  also.  I know what you 
mean about sleep deprivation from steroids.   They affect me the same way.  
Good luck with whatever option you  choose.  I will pray for your recovery
 
Naomi
C4 quadriplegicdue to Transverse Myelitis
since July 2,  2005  

 
In a message dated 1/23/2009 10:37:02 P.M. Eastern Standard Time,  
kimr1...@bellsouth.net writes:




First I would like to thank Jenna  for coming to the hospital to help me 
today (and the visit was great)   
Nero  left and good news the paralysis and  stinging in my arms and hands has 
nothing to do with my TM. The MRI’s they did  last night found 3 herniated 
discs on my neck that is causing spinal cord  depression causing my arms and 
hands to go numb. He called neurosurgeon to  come see me tomorrow and let me 
know 
what my options will be. So far a friend  that had the same this said the 
least evasive is to inject steroids directly  into the disc to stop the bone on 
bone rub and release the compression on the  spinal cord this is good news!!! 
So this explains why after receiving the  first dose of IV steroids my arms and 
hand improved 90% within 5 hours.   
If it were TM related the damage  can not be reversed!  But the  herniated 
disc can be repaired! So YIPPIE!!! 
Down side right now is with all  the steroids I have not slept at ALL since I 
go up Wed at 6:30 am, serious  best I have done is a 20 minute nap today! 
They gave me morphine and Ambian  sleep pills tonight so hoping I get some 
sleep 
tonight! I am starting to feel  like a zombie going thru the motions, getting 
harder to focus with sleep  deprivation. 
Will post what Nero-surgeon says  once I hear from them tomorrow 
Again thanks for the one on one  email I have gotten the concern and advice 
mean a lot to  me 
What a great second family we all  have in each other! Note   J 
Note: to the Atlanta TM suport group if I get out of the hospital  by Sunday 
in time for our meeting I will be there!! 




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Re: [TMIC] JUDE!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

2009-01-22 Thread LadyNotes

My TM was diagnosed at University of Michigan Hospital in 2005. I was
hospitalized for a week prior in Minnesota, while the doctors bickered over a
diagnosis. It is a darn good hospital, and I met a lot of nice people, whom I
still keep in touch with. I believe Jude would get top-notch medical care at
the U.

Naomi
C4 quadriplegicdue to Transverse Myelitis
since July 2, 2005

In a message dated 1/22/2009 1:32:28 P.M. Eastern Standard Time,
laura.eich...@gmail.com writes:

I wish they would just take her over to University of Michigan Hospital in
Ann Arbor. It is about an hour and a half from McLaren's and is an excellent
hospital. Cutting edge technology and the top notch doctors. I wouldn't be
wasting my time at McLaren's in Flint. Gosh. So frustrating. Poor, poor Jude.
I
feel so helpless reading all of this.
Laura

On Thu, Jan 22, 2009 at 1:25 PM, _montzma...@aol.com_
(mailto:montzma...@aol.com) wrote:

TO MY DISBELIEF THEY ARE SENDING HER HOME TODAY. THEY ARE GOING TO WAIT THE
24 MORE HOURS FOR THE BIOPSIES. THEY THEN WILL DECIDE WHICH ONE THEY ARE
GOING TO PUT HER ON.THE ANTIBIOTIC.
THEY SHOULD KEEP HER AND SEE HOW SHE REACTS TO A STRONGER ONE
THE LAST ONE MADE HER SO SICK, THATS WHY SHE WENT INTO THE HOSPITAL HER
PRESSURE WAS SO LOW.
I JUST CANNOT UNDERSTAND HER DOCTORS AT ALL.SHE WILL HAVE THE NURSE COME TO
HER HOME LIKE BEFORE.
I AM CALLING THE ADMINISTRATOR AND TELL THEM THEY COULD DO MORE HARM THAN
GOOD BY SENDING HER HOME.
THIS IS JUST SO UPSETTING TO ME.IF I HERE ANYMORE I WILL POST
IT!!!
FURIOUS LADY IN NEW ORLEANS TIAD
PAM

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Re: [TMIC] Wednesday funny

2008-11-28 Thread LadyNotes

Yes, I can relate also.  I have Crohn's disease, and this  is a regular 
routine for me.  I thought Crohn's was terrible, until I got  TM.  Fortunately, 
I 
haven't had many problems with my Crohn's disease since  TM reared its ugly 
head.  I guess the good Lord know, I cannot deal with  both of these at the 
same 
time.
 
 
Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis
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Re: [TMIC] Guidelines

2008-10-26 Thread LadyNotes

Mindy,
 
I agree with you totally.  It angers me to take the time  to read my e-mail 
that I am expecting to be about TM, only to find it's more  political rhetoric. 
 I know exactly where to go if that is what I want to  hear and it is not on 
this list.  Other peoples bantering and spouting off  their political views 
does not shape or change mine.  I have too many  problems related to Transverse 
Myelitis to waste my time reading something that  has nothing to do with my 
concerns.  I will really appreciate it if people  keep this list to address the 
concerns of TM.
 
There may be new TMer's who are looking for a place for  help.  And when they 
log onto this site, will find more political rhetoric  and become turned off 
to something that could offer a great deal of help for  them.  I would hate 
very much for that to happen.
 
Pray for a Cure
God Bless you,  Naomi
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Re: [TMIC] About Pam

2008-10-23 Thread LadyNotes

 
Jude,
 
How are you?  I mistakenly addressed my e-mail to Pam  instead of you.  I am 
thinking about and praying for both of you.  I  hope you feel better at your 
antibiotics are working for you.  Keep the  faith.
 
 
Naomi



C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis

Pray for a Cure
God Bless you,  Naomi
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Re: [TMIC] About Pam

2008-10-22 Thread LadyNotes

Pam,
 
I'm so glad to hear from you.  Thank you for the update  on Pam.  I tried to 
call her a couple of times, but I could not get the  number to work.  I will 
try again.  If you talk to her again, tell her  I send my love and prayers.  I 
am also praying for you.
 
I will be going home on Friday, and I am certainly looking  forward to it.  I 
have been in this facility for 3 months receiving  therapy.  I have made a 
little progress.  I am now able to feed myself  most meals.  I'm still unable 
to 
eat soup alone, LOL.
 
I hope your IV antibiotics do the trick.  I was given IV  Vancomycin when I 
was last in the hospital.  That's when I found out I was  allergic to it.  It 
made me break out in hives, and itch something  terrible.
 
Keep the faith, and know that we all are praying for you and  Pam.
 
Pray for a Cure
God Bless you  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis
**Play online games for FREE at Games.com! All of your favorites, 
no registration required and great graphics – check it out! 
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Re: [TMIC] Questions

2008-10-05 Thread LadyNotes

Jude,
 
Yes, I was told my TM was caused by a virus, but I have never  had a cold 
sore in my life.  I have had Mono and Rheumatic Fever.  The  only thing I know 
that the three of these have in common is the Epstein-Barr  virus._Epstein-Barr 
 
Virus_ (http://www.cdc.gov/ncidod/diseases/ebv.htm)  
 
I had flulike symptoms, three days prior to the onset of my  TM, and was 
paralyzed from the neck down in a matter of 20 minutes.  My  condition has not 
improved a whole lot since that day.
 
I'm glad to see that you are at home and doing better.  I  wish you well.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [TMIC] October Birthdays

2008-10-01 Thread LadyNotes

Happy Birthday all my fellow October babies!  Best wishes  and be blessed.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [TMIC] Re: tmic-digest Digest V2008 #332

2008-09-13 Thread LadyNotes

Yes, I did lose the use of my arms and hands.  I have  partial use of my left 
arm.  I cannot lift it up any higher than my bust  line, and I also have 
partial use of my fingers.  It has been three years,  and I am just able to 
hold a 
fork to feed myself.  It gets very messy, but  is more satisfying than having 
someone else feed me.  I still have no use  of the right side of my body.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Pt...Have you heard the news? There's a new fashion blog, 
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Re: [TMIC]

2008-09-04 Thread LadyNotes

The pump is not for those who need a higher dose of Baclofen  than the pill 
can allow.  I have a pump, and I went from 30 mg a day to 52  mcg per day.  The 
side effect from the Baclofen is what was wrecking  me.  Because the medicine 
goes directly into my spine, I do not get the  side effects, just the benefit 
of the medicine, and at a much lower dose.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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[TMIC] Health Update

2008-07-13 Thread LadyNotes

 
Hello my friend,
 
Just a short note to let you know that I am currently in the  hospital.  I am 
having a problem with swelling to my Baclofen pump  area.
 
So far I have here to CAT scans and ultrasound and scheduled  for an MRI.  
They still don't know what's causing the swelling.  The  one good thing that I 
am getting out of this, is that I am scheduled for some  more physical and 
occupational therapy.
 
Because I haven't been on the computer since Wednesday, the  day I was 
admitted to the hospital, I have a ton of e-mail to read.  I  probably won't 
send 
much e-mail, but I will try to keep up with what's going  on.
 
Keep me in your prayers,
 

Naomi

C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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[TMIC] Pam's Response

2008-06-05 Thread LadyNotes

I e-mailed Pam to ask her if it was okay to share what has  been going on 
with her and she asked me to relay this message:
 
   
I WOULD HAVE TO SUBSCRIBE TO GET IT TO THE LIST THEN UNSUBSCRIBE  AGAIN.
YOU CAN TELL THEM DAN HAS A PRE CANCEROUS NODE ON HIS VOCAL CORD PLUS ACID  
REFLUX DISEASE AND HIGH BLOOD PRESSURE HE IS ON MEDICINE FOR ALL. 
HE CAN BARELY TALK.HE IS LUCKY THEY CAUGHT IT IN TIME. HE STOPPED SMOKING  
COLD TURKEY.HE WILL HAVE THE NODE REMOVED AFTER FATHERS DAY. HE HAS TO TALK 
VERY 
 SOFTLY. HE WRITES TO ME ON A ETCH O SKETCH WHEN HIS THROAT REALLY HURTS.
HE WILL NOT DIE FROM CANCER.ALL HIS LABS WHERE PERFECT HIS STRESS TEST AND  
HIS CHEST XRAY.THEY MIGHT DO RADIATION JUST FOR ANOTHER SAFETY MEASURE.
I WANT TO THANK YOU ALL FOR CARING AND THE FEW WHO NEW GAVE DAN AND I THEIR  
SUPPORT.THIS IS A WONDERFUL GROUP OF PEOPLE..
I WILL NOT BE BACK ON THE LIST UNTIL DAN IS COMPLETELY WELL. I HOPE  SOMETIME 
IN JULY.
TAKE CARE OF YOURSELVES AND GOD BLESS US ALL TIAD PAM



Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [TMIC] WalkAid - Foot drop

2008-04-25 Thread LadyNotes

Jeanne,
 
What was the date of your onset?  Yes, it is nice to know  that you are all 
alone with whatever ails you.
 
Naomi

C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Need a new ride? Check out the largest site for U.S. used car 
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Re: [TMIC] WalkAid - Foot drop

2008-04-24 Thread LadyNotes

Jeanne,
 
The way you describe your body's sensations, I thought you  were talking 
about me.  That is exactly the way my body feels, minus the  butt thing  



Naomi



C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Need a new ride? Check out the largest site for U.S. used car 
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Re: [TMIC] Re: tmic-digest Digest V2008 #178

2008-04-22 Thread LadyNotes

I was given Neurontin in the early days of my illness.   It made me very 
lethargic, and I was unable to tolerate it.  My doctor then  prescribed Lyrica. 
 I 
take 400 mg twice a day.  I also  take 60  mg of Cymbalta, Vicodin three 
times a day, and also use a 50 mg Fentanyl  patch.  I still have pain, but I 
cannot imagine what it would be like if I  were not taking these medications.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Need a new ride? Check out the largest site for U.S. used car 
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Re: [TMIC] Questions

2008-04-19 Thread LadyNotes

Jeanne,
 
Yes, I had the chickenpox as a child, but has never had  shingles.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Need a new ride? Check out the largest site for U.S. used car 
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Re: [TMIC] Dr. Steven hinderer

2008-04-13 Thread LadyNotes

I had a consultation with Dr. Hinderer in January 2007.   My intentions were 
to become an inpatient at the rehabilitation Institute of  Michigan.  Dr. 
Hinderer's final analysis, was that I become an inpatient,  and it would take 
me 
at least six months to regain what I had lost while in a  nursing facility.  My 
insurance did not want to pay for me to be an  inpatient, and the rehab 
center suggested that I become an outpatient, three  days a week.  Because I 
live 
one hour away from the rehab center and had no  transportation, being an 
outpatient, three days a week was impossible for  me.  That's all I know about 
Dr. 
Hinderer.
 
 
 
Naomi

C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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[TMIC] Re: [Transverse Myelitis Support] Ginger..you just got me started..

2008-04-13 Thread LadyNotes

That was absolutely hilarious!  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [TMIC] queston

2008-04-04 Thread LadyNotes

Jeanne in Dayton,
 
Congratulations on filling warmth on your butt!  We'll  take progress 
whereever we can find it.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [TMIC] QUESTION

2008-04-04 Thread LadyNotes

Ditto.  I have not been physically ill, since my TM  onset.  I did not even 
get a flu shot this year, but I have not had a cold  or flu, or any of these 
things since I've had TM (knock on wood).  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [TMIC] This Is a Test (for all)

2008-04-01 Thread LadyNotes

Candy,
 
Thanks for the website.  After reading it, I think that  most of us with TM 
would also suffer from Central Neuropathy Syndrome, I know I  do.  The only 
thing the website omitted was my name, LOL.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



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Re: [TMIC] This Is a Test (for all)

2008-04-01 Thread LadyNotes

Mindy,
 
I can certainly consider my sensation Central Neuropathy  Syndrome.  I am 
sensitive to hot and cold, and also to touch.  The  weather and my stress level 
plays a huge part in my pain management.  I  understand what you mean about 
throwing yourself off a cliff.  I also take  Lyrica and Cymbalta, along with 
Fentanal patch and Vicodin and most times the  pain is still intolerable.
 
Yes, although I am a C4 incomplete, I do have a little  movement on my left 
side.  My left leg is pretty strong, but has  compromised sensation.  I can 
move my left arm a little, but it's still  difficult to impossible to do my 
ADLs, 
feed myself, or do the things that are  necessary for daily living.   

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Create a Home Theater Like the Pros. Watch the video on AOL 
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[TMIC] This Is a Test

2008-03-31 Thread LadyNotes

I have been kicked off the list, and I judging from the  archives, it has 
been a great while.  I hope this message makes it through.   

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Create a Home Theater Like the Pros. Watch the video on AOL 
Home.  
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Re: [TMIC] This Is a Test (for all)

2008-03-31 Thread LadyNotes

Mindy,
 
Happy one year anniversary!  I've never heard of Central  Neuropathy 
Syndrome.  Electrocution is something I've always tried to steer  clear of.  I 
worked 
for my local electric company, installing electrical  equipment for 25 years.  
I did not like getting those little zap then and I  sure wouldn't like 
getting them now.  

Naomi


C4-incomplete, quadriplegic since July 2005
due to Transverse  Myelitis



**Create a Home Theater Like the Pros. Watch the video on AOL 
Home.  
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Re: [TMIC] hello?

2007-08-28 Thread LadyNotes

Gary,
 
I have never been on Valium for spasms.  My doctor put me on Neurotin,  but 
the dose that I needed to control the spasms was so high, I wasn't able to  
function in therapy.  The doctor took me off the Neurotin and put me on  
Baclofen.  I eventually got a baclofen pump, and that has been working very  
well for 
me.  What part of Michigan are you in?  I'm in Ypsilanti/Ann  Arbor.  

Naomi
C-4 quad,  incomplete
since July 2, 2005





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Re: [TMIC] OT/Daughter hurt in serious accident.

2007-08-22 Thread LadyNotes

Grace,
 
I am so sorry to hear about your daughter and her friend.  I prayed  for them 
both immediately after reading your e-mail.  I will continue to  keep them in 
prayer, and you as well.  Let us know how they're doing.  

Naomi
C-4 quad,  incomplete
since July 2, 2005





** Get a sneak peek of the all-new AOL at 
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Re: [TMIC] Surgery on Monday

2007-08-19 Thread LadyNotes

Natalie,
 
I am so sorry to hear about you having to go back into the hospital.   I will 
pray that your surgery will be a success and will allow you a better  quality 
of life.
 
I had to have a pic line put in when I was in the hospital and the doctor  
did it.  What should have been a 10 minute procedure, turned into a two  hour 
ordeal!  I was in so much pain, the only thing I could do was call on  the name 
of Jesus.  After all this time of trying to get the line in, he  was 
unsuccessful.  He then decided to try the other arm.  After all  the pain I had 
gone 
through, I told him just forget it.  I do not want him  to try the other arm.  
He told me if he did not get it on the second try,  he would just leave it 
alone.  He finally got it on the second try.   My left arm, where he had tried 
so 
many times to put the line in, became very  hard.  I had the doctor look at it 
and found out that I had a blood clot in  my arm from the doctor's handiwork. 
 It doesn't matter whether it's a nurse  or specialists, if they don't know 
what they're doing its still just as  bad.
 
I am not familiar with the procedure you are having done, but I wish you  
well and we will miss you.  

Naomi
C-4 quad,  incomplete
since July 2, 2005





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Re: [TMIC] no mail??

2007-07-24 Thread LadyNotes

I hope you receive this.  

Naomi
C-4 quad,  incomplete
since July 2, 2005





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Re: [TMIC] Prescribed by the Great Physician O T

2007-07-20 Thread LadyNotes

Trudy,
 
Thank you so much for your prayers.  Yes, Christ is real,  and I will be a 
witness, no matter where I am or who I am with.  Thank you  for being my sister 
in Christ.  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] from Gary

2007-07-18 Thread LadyNotes

Ann,
 
It is good to know that you are still improving after a number  of years.  It 
gives me hope.  I hope you will continue to  improve.
 
I still have not seen a neurologist and don't plan to.  I  don't think one 
could help me at this point.  I am still fighting to get  more therapy.  Pray 
for me.  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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[TMIC] Prescribed by the Great Physician O T

2007-07-18 Thread LadyNotes





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---BeginMessage---



-Original Message-
From: Juanita McReynolds [EMAIL PROTECTED]
To: Daredb97 [EMAIL PROTECTED]; Sthenry7 [EMAIL PROTECTED]; [EMAIL 
PROTECTED]; Gerald Braswell [EMAIL PROTECTED]; cliffbraswell [EMAIL 
PROTECTED]; gus jones [EMAIL PROTECTED]; dmhendrix [EMAIL PROTECTED]; 
akoban [EMAIL PROTECTED]; smaso7 [EMAIL PROTECTED]; l.e.edwards [EMAIL 
PROTECTED]; BAQJ [EMAIL PROTECTED]
Sent: Wed, 18 Jul 2007 11:08 am
Subject: Prescribed by the Great Physician 


Subject: Prescribed by the Great Physician 









?
















Prescribed by the Great Physician 

* 


The next time you feel like GOD can't use you, just remember... 
Noah was a drunk 
Abraham was too old 
Isaac was a daydreamer 
Jacob was a liar 
Leah was ugly 
Joseph was abused 
Moses had a stuttering problem 
Gideon was afraid 
Samson had long hair and was a womanizer 
Rahab was a prostitute 
Jeremiah and Timothy were too young 
David had an affair and was a murderer 
Elijah was suicidal 
Isaiah preached naked 
Jonah ran from God 
Naomi was a widow 
Job went bankrupt 
Peter denied Christ 
The Disciples fell asleep while praying 
Martha worried about everything 
The Samaritan woman was divorced, more than once 
Zaccheus was too small 
Paul was too religious 
Timothy had an ulcer..AND 
Lazarus was dead! 

Now! No more excuses! 
God can use you to your full potential. 
Besides you aren't the message, you are just the 
Messenger. 
And one more thing...Share this with a friend or 
Two... 
In the Circle of God's love, God's waiting to use your 
Full potential. 
























I have a faith in God that makes my day and paves my way.? Have a wonderful, 
blessed day!!! 


?

Juanita



AOL now offers free email to everyone.  Find out more about what's free from 
AOL at AOL.com.
---End Message---

[TMIC] Life Is a Gift O T

2007-07-16 Thread LadyNotes

This has been around before but it is one of the best that I  have seen 
in awhile.  Reality check.** *

*There was a blind  girl who hated herself because she was blind.*

*She hated everyone,  except her loving boyfriend. He was always there 
for her.*

*She told  her boyfriend, If I could only see the world, I will 
marry you.

One  day, someone donated a pair of eyes to her. When the bandages came 
off, she  was able to see everything, including her boyfriend.

He asked her,'Now  that you can see the world,** **will you marry me?'*

*The girl looked at  her boyfriend and saw that he was blind. The sight 
of his closed eyelids  shocked her. She hadn't expected that. The thought 
of looking at them the  rest of her life led her to refuse to marry him.

Her boyfriend left her  in tears and days later wrote a note to her 
saying: 'Take good care of your  eyes, my dear,** **for before they were 
yours, they were mine.'

This  is how the human brain often works when our status changes.**
**Only a very  few remember what life was like before, and who was always 
by their side in  the most painful situations.

**Life Is a Gift**

**Today before you  say an unkind word -**
**Think of someone who can't speak.

Before you  complain about the taste of your food - Think of someone who 
has nothing to  eat.

Before you complain about your husband or wife - Think of someone  who's 
crying out to GOD for a companion.

Today before you complain  about life -**
**Think of someone who went too early to heaven.

Before  you complain about your children -**
**Think of someone who desires children  but they're barren.

Before you argue about your dirty house someone  didn't clean or sweep -**
**Think of the people who are living in the  streets.

Before whining about the distance you drive -**
**Think of  someone who walks the same distance with their feet.

And when you are  tired and complain about your job -**
**Think of the unemployed, the  disabled, and those who wish they had 
your job.

But before you think  of pointing the finger or condemning another -
Remember that not one of us is  without sin and we all answer to one MAKER.

And when depressing thoughts  seem to get you down - **Put a smile on 
your face** **and thank GOD you're  alive and still around.*

Author unknown* 

Naomi
C-4 quad,  incomplete
since July 2,  2005





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[TMIC] O T

2007-07-15 Thread LadyNotes

Jude,
 
Apparently, I must have missed something.  I don't  remember seeing the post 
by Regina.  I am interested in your  testimony.  We all have testimonies!  I 
will tell mine to anyone who  will listen from the grocery store cashier, to 
the girl who's doing my  pedicure.  I leave them inspired, and they feel 
blessed 
for the opportunity  to meet me.
 
Yes Jude, I'm sure we all have questioned God as to why we are  the ones to 
get Transverse Myelitis.  Asking Him as to why I had to end a  quadriplegic.  
Those were in the early months of my illness.  After  having a pity party, I 
put my Big Girl Panties on and got busy being a witness  for Christ, telling of 
his goodness and mercy.
 
   

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] Why this Support Group?

2007-07-14 Thread LadyNotes

Thank God for the support group!  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] Dear Group

2007-07-14 Thread LadyNotes

Tim,
 
Thank you for your thoughtful words of encouragement.  It  is people like you 
who make belonging to this group, such a blessing.  It  always helps to have 
others who care and understand and who will listen with a  genuine, loving 
heart.
 
I would just like to say thank you to all of those who  responded to my 
e-mail be it in writing, prayers or in heartfelt thoughts.   Thanks again  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] Having a purpose after TM

2007-07-13 Thread LadyNotes

 
Grace,
 
Thank you so very much for your words of encouragement.   This is why I am so 
glad to be a part of this group.  It is very comforting  to know that you can 
talk with someone who knows exactly what you're going  through.  Love you 
all!  

Naomi
C-4 quad, incomplete
since July 2,  2005






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[TMIC] Re: [QUAD-L] 9 YEARS

2007-07-02 Thread LadyNotes

Quadius,
 
Today marks my two year anniversary for my Transverse  Myelitis.  It's really 
depressing because I thought, by the two-year  period, I would have gained 
more movement and made more progress.  To be  perfectly honest, I'm worse off 
than I am when I left the hospital.  I am  still struggling with my insurance 
company to provide more therapy.  I know  it is stated that you're pretty much 
where you're going to be at the two-year  mark.  I certainly hope this isn't 
true.  That would remove all  hope.  I've read of people progressing beyond 
this 
point.  I pray for  more recovery.  



Naomi
C-4 quad, incomplete since July  2, 2005
Transverse Myelitis



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Re: [TMIC] Re: tmic-digest Digest V2007 #210

2007-06-28 Thread LadyNotes

Pam,
 
Thanks for straightening that out for me.  I had a  neurosurgeon put my 
baclofen pump in.  My Physical Medicine and Rehab  doctor and one that 
suggested 
and prescribed the pump.  I go back to her,  when I need my pump filled, or 
adjusted.  I go to my primary care  physician, when I need medicines changed or 
prescribed.
 
Yes, I know all about what the orthopedists does.  I have  a sister who is an 
orthopedic surgeon.  I managed to get this far (two  years on July 2) without 
the aid of a neurologist.  Continue to work out in  the pool.  I hear that it 
is very good therapy.  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] Hello to all

2007-06-28 Thread LadyNotes

Natalie M.,
 
I am so sorry to hear that you got bedsores while in the  hospital.  They 
should have been turning you on a regular basis.  I  think I was little 
overzealous about getting bedsores, when I was in the  hospital.
 
I had a friend was very dear to me, who died a couple months  before I went 
into the hospital.  She died from a very bad bed sore.   I was horrified to 
hear she had died from something that could have been  prevented.  The father 
of 
another good friend of mine, died from a bed sore  while in the hospital.  She 
was devastated!
 
I was in three different hospitals and a nursing facility,  before I came 
home (over a year).  I was very adamant about them turning  me.  Sometimes I 
couldn't even sleep, for watching the clock.  July 2  will  be two years since 
I 
went into the hospital, and I'm happy to say  that I have not had a bed sore 
yet.
 
Natalie, I hope they are able to find the cause of your pain  and alleviate 
it.  Wishing you good health.  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] from Gary

2007-06-27 Thread LadyNotes

Jude,
 
You must have misunderstood my e-mail.  I cannot walk,  due to deterioration 
of my body, for lack of therapy.  I am consider a  quad, because my TM affects 
all four limbs.  I do not have any use of my  right hand or leg.  My left leg 
works okay, but my left arm has limited use  and so does my left hand.  I am 
an able to feed myself.  I can't hold  a book, nor turn the pages.  I can't 
write, scratch where it itches, blow  my own nose, wash myself or dress myself. 
 
I have to have someone with me  24 hours a day.  I go from the bed, to the 
wheelchair, and back to the  bed.  I spent all of my day on the computer and 
watching TV.  I wish I  could walk.  I would start walking, and never stop!  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] from Gary

Gary,
 
I am pretty much in the same boat as you.  I was  diagnosed with TM July 
2005.  At that time, I had spinal taps and  plasmapheresis.  I stayed in the 
hospital for four months for  rehabilitation.  Since I've left the hospital, I 
have 
not seen a  neurologist.  I do not have a regular neurologist to go to.  When 
I go  to my primary care physician, I will ask her to refer me to one, 
although I  don't know what good he'll be at this point.  July 2 is my two year 
 
anniversary.
 
The only doctors I see on a regular basis is, my primary care  physician and 
my Physical Medicine and Rehabilitation doctor.  I have a  Baclofen pump and 
my rehab doctor maintains that.  Any other complaints, I  see my primary care 
physician.
 
I had a post on this message board not to long ago about the  need for a 
neurologist.  I read that a lot of people go to them, but I  haven't seen one 
in 
the past two years.  I don't know if it's necessary or  not.  

Naomi
C-4 quad,  incomplete,
 since July 2,  2005





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Re: [TMIC] from Gary

Larry in Oklahoma, you are one crazy guy.   

Naomi
C-4 quad, incomplete since  July 2, 2005





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Re: [TMIC]

Rosalie,
 
I was diagnosed with TM fourth of July weekend, 2005.  As  I said in my 
e-mail, I saw the neurologist while I was in the hospital.  I  think I hit one 
visit, while I was in the nursing facility, and like you said,  he checked the 
strength in my arms and legs, and told me the same thing, I need  therapy, 
therapy, therapy!
 
I get kind of confused sometimes reading the messages on the  board, when 
members say they keep going to their neurologists and getting MRIs  and spinal 
taps.  Maybe because I am already a quad, there's not too much  more that can 
will change for me.  Yeah, maybe that's it.  


Naomi
C-4 quad,  incomplete
since July 2, 2005




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Re: [TMIC] from Gary

Pam,
 
What is the difference between a neuro, and a  neurologist?  I thought neuro 
was short for neurologist.  The only  issues that I have had that need 
attending to, are a lingering side affects of  TM.  Either my primary care 
physician 
or my physical medicine and rehab  doctor takes care of these issues.  My 
physical condition, basically,  hasn't changed much since the onset.  After my 
plasmapheresis, I gained a  little movement in my left leg and arm.  The right 
side is still totally  paralyzed.  In the earlier stage of my illness while in 
rehab, I was up on  a platform walker, walking nearly 400 feet.  Since being in 
the nursing  facility and in another hospital to have my baclofen pump put 
in, my condition  has deteriorated.  I am barely able to stand and pivot to get 
in my  wheelchair.  Even after all of this, I still haven't seen the need for 
a  neurologist, unless he's going to give me some much-needed physical  
therapy.  
 
 
Naomi
C-4 quad,  incomplete
since July 2, 2005




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Re: [TMIC] from Gary

Sally,
 
You are so, so right.  I did not get my plasma exchange  until arriving at a 
second hospital, eight days later.  I think that time  difference makes the 
difference between walking and paralyze.  Not until I  received the exchange, 
that I get any movement back.  I am still classified  as a C4 quad, because all 
four limbs are affected.  I honestly believe that  if I had gotten that 
exchange earlier, I would have more movement.  So, at  this point, I don't need 
a 
neurologist, I need a physical therapist.  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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Re: [TMIC] from Gary

Jude,
 
Medical information that was given to me, states that plasma  exchange should 
be done within the first 48 hours.  The sooner, the  better.  Although some 
information states, it can be done as late as 20  days later.  So in your case, 
I wouldn't expect a great improvement, but  with this quirky syndrome known 
as TM, who knows.  

Naomi
C-4 quad,  incomplete
since July 2,  2005





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[TMIC] I Love This Story

2007-06-11 Thread LadyNotes

I love this story.

The only survivor of a shipwreck was  washed up on a small, uninhabited
island. He prayed feverishly for God to  rescue him. Every day he scanned
the horizon for help, but none seemed  forthcoming.

Exhausted, he eventually managed to build a little hut out  of driftwood
to protect him from the elements, and to store his few  possessions. One
day,after scavenging for food, he arrived home to find his  little hut in
flames, with smoke rolling up to the sky. He felt the worst  had
happened, and everything was lost.

He was stunned with disbelief,  grief, and anger.

He cried out, God! How could you do this to  me?

Early the next day, he was awakened by the sound of a ship  approaching
the island, it had come to rescue him. How did you know I was  here?
asked the weary man of his rescuers. We saw your smoke signal,  they
replied.

The Moral of This Story
It's easy to get  discouraged when things are going bad. But we shouldn't
lose heart, because  God is at work in our lives... Even in the midst of
our pain and suffering.  Remember that the next time your little hut
seems to be burning to the  ground. It just may be a smoke signal that
summons the grace of  God.

P.S.
You may want to pass this on, you never  know who feels as if their hut
is on fire today.


Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] Rectal problems

2007-06-08 Thread LadyNotes

Tracy,
 
Yes, I know the feeling of having raised wonderful  children.  It is one that 
you never forget.  Congratulations to your  son!  Kudos to him for wanting to 
spend this special time in his life, with  his family and neighbors.  Stay 
the loving mother that you are and revel in  your children's success.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] ot

2007-06-08 Thread LadyNotes

The only problem, so far that I've noticed, is that I sunburn  easily.  This 
may be due to some of the medications I take.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] preventative medication

Natalie,
 
Yes, I have been on a preventative medication, Cipro, and I  still managed to 
get UTIs on a regular.  Since I was still getting the  infections while 
taking the medicine, the doctor just took me off of it.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] Husband Burn- Out

Natalie,
 
I understand that very well.  My husband tends very good  care of my every 
need.  It is necessary for him to have some downtime for  himself in order to 
care for me properly and not lose his mind.  He is an  avid golfer, and we 
arranged for other family members to be with me for two or  three days in order 
for 
him to go on his golf outings.
 
I talked with caregivers as well as the ones that needing  taking care of.  I 
know my husband doesn't complain to me about my still  know what they go 
through by talking with the other caregivers.  When they  are constantly there, 
they need time for themselves as well.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] UTIs

Cody,
 
Yes, I have been a low dose preventative medication as  well.  It worked for 
a short while, but then the UTIs return.  I guess  once my system built a 
tolerance for it, it no longer worked.  The doctors  just had me to stop taking 
it.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] Rectal problems

Jude,
 
I wasn't sure if you were directing your questions to Natalie  or me, but I 
can add my two cents.
 
The finger thing that you speak of is the digital  stimulation.  It is done 
by inserting one or two fingers in the rectum, to  stimulate the anus which 
causes the bowels to move.  As I said before, this  was something that my 
husband had to do for me in the early stages of  TM.
 
To assume, that I feel worse than you, because I am a quad is  very a 
sumptuous on your part.  Apparently that isn't true, because I don't  feel like 
ending it all.
 
To be fair to you, I understand that feeling, because I've  been through the 
'why me and what did I do to deserve this and this is the  end of life as 
I know it.  Well, that was the end of life as I knew  it.  Now I have a 
brand-new life, in which I have to do things differently  than the last life.
 
While I was struggling to live in the early days of TM, I ask  the good Lord 
to spare my life, to let me live it to see one more day.  He  saw fit to 
answer my prayers.  When I was conscious enough to realize that  I could move 
nothing but my head, I felt like I would have been better off not  seeing 
another 
day.  I was deeply depressed.  
 
My family was very supportive.  My husband was by my  side, day and night for 
two straight months.  My daughter and son was  begging me to hang on.  My 
mother was there for me to cry on her  shoulder.  I felt if I gave up on life, 
I 
would have let all their prayers  and care be in vain.  That would be so 
selfish of me.
 
I worked very hard to put the life that the Lord granted me,  to good use.  I 
worked hard in rehabilitation to gain some strength and  movement.  Just the 
tiniest of task completed was cause for  celebration.  Besides, I had my 49th 
birthday party in the hospital.   In attendance were a host of friends, 
family, nurses, doctors, therapists and  other patients who I had met along the 
way. 
 I was only 48 years old!   I still have a life to live.  I still have 
something to give back to this  world.  I thank the Lord for sparing me my 
mind.  I 
can still think on  my own!  I could still talk (once my throat healed from 
the  ventilator).  Oh yes!  I was still alive and have something to  offer.
 
I think now about how much I would have missed if I had not  lived.  My 
daughter, Danielle and her husband Damon, has a two-year-old,  Kayla, who light 
up 
the room as soon as she hit the door.  She likes  playing choo-choo train, 
while standing on my foot rest of my wheelchair, and us  riding around the 
island 
in the kitchen.  She loves playing elevator, while  standing on my foot rest 
while I tilt the cheer up and down.  She loves  playing in my hospital bed and 
pushing the buttons to make it go up and  down.  She thinks coming to Mam 
Ma's house is like being in an amusement  park.  I think about how my daughter 
would have felt when she found out  last week she was expecting again, and not 
be able to share that with  me.
 
My son, Dante, has a six year old son, who used to be my  running buddy.  We 
used to hit the science centers, children's museums,  video game stores, 
McDonald's and anyplace else, we thought would be  interesting.  He is old 
enough 
to remember me when I wasn't confined to a  wheelchair so it took him a little 
while to adjust to me being different than  before.  He is so smart and mature 
for his age.  I think about how I  would have missed him losing his first 
teeth.  We took pictures of him  without his front teeth.
 
Jude, just think about those who you would leave behind that  love you so 
much and would never recover from their loss.  Yes, your life  may be a little 
different now, but you are still you!
 
Having Transverse Myelitis, changes all of our lives in  different ways.  
Through all the bowel programs, self cathing, neuropathy,  blurred vision, 
bladder problems, paralysis and all other things that come with  TM, never lose 
sight that each day is a gift from God.  I wake up every  day, and thank the 
Lord 
that he let me see one more day.  I can spend the  day with my husband, 
children, grandchildren or friends.  It's up to me to  decide what I want to do 
with 
it.
 
I spend a lot of my time on the computer.  This is no big  different from 
what I used to do before I had TM.  I love the computer! I  use Dragon 
NaturallySpeaking, voice recognition program to type what I  say.  The computer 
is my 
connection to the outside world.  I do some  online work for my nephew, who 
runs 
his own business.
 
Natalie, there are people on this message board who you can  always 
communicate with when you're feeling down and consider us family members  and 
we are 
always concerned about your health and welfare.  You can e-mail  me directly at 
[EMAIL PROTECTED]  _ (mailto:[EMAIL PROTECTED]  ) 
 
Ask your primary care physician to refer you to a psychologist  or 
psychiatrist, and you may also want to check out some antidepressants.   Do 
what ever it

Re: [TMIC] preventative medication

Cheryl,
 
Yes, I cannot take Bactrim.  It makes me violently  ill.  And yes, my doctor 
takes a sterile culture.  She will prescribe  me something before I leave the 
office, and when my culture comes back, she will  call in a script to my 
pharmacist.  I've had a couple of different doctors  
prescribe Cipro as a preventative drug.
Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] ot

We are receiving your e-mail.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] ot

We are receiving your e-mail.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] b-day

Happy Birthday Natalie!  I wish you happiness today and  all the days 
following.  

Naomi
C-4 quad since July 2,  2005





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Re: [TMIC] b-day