Re: [TMIC] Hello

[Dalton Garis]

Agree, about the mystery part.

I get seizures similar to epileptic seizures although they start in the
brain stem (where the  activity was) and meds don't control them because
the meds are designed for epilepsy.  I have been experimenting with diet
with great improvement.  In future many of these conditions will be treated
with dietary means, the use of special foods and the elimination of many
common foods found in the industrial food chain.

Great discussion! And I pray for reduced discomfort for all of us.

Dalton

Dalton Garis
Flushing, Queens
New York, USA
Mobile: 718-838-0437

From:  Roger  Terese Pratt r.c.pr...@frontier.com
Reply-To:  Roger  Terese Pratt r.c.pr...@frontier.com
Date:  Thursday, 4  January 2013 11:40 PM
To:  Pat Voorheis pjv1...@chartermi.net
Cc:  Janice Nichols jan...@centurytel.net, dee jay dj88up...@yahoo.com,
tmic-list@eskimo.com tmic-list@eskimo.com
Subject:  Re: [TMIC] Hello
Resent-From:  tmic-list@eskimo.com
Resent-Date:  Thu, 4 Apr 2013 20:40:44 -0700

Pat,

My second attack was not called TM because it was not an attack on the
spinal chord, but rather an attack on the peripheral nerves.  Both are
assumed to be auto-immune caused.  In other words, the immune system
attacking the nerves, and both were treated with steroid IVs to stop the
attack.  So many illnesses are auto-immune caused: MS, diabetes, and the
list goes on.  Why this happens no one knows. It has been said that TM only
happens once, but what do they know?  It's all a mystery to me.  And how do
they find a cure, when they really don't understand the cause?  It's just my
hope that all my TM, MS, and other auto-immune diseases (syndromes?) friends
can find ways to cope and hopefully get better.

Roger in Kennewick, WA


  
 
 
  

  From: Pat Voorheis pjv1...@chartermi.net
 To: Roger  Terese Pratt r.c.pr...@frontier.com
Cc: Janice Nichols jan...@centurytel.net; dee jay dj88up...@yahoo.com;
tmic-list@eskimo.com tmic-list@eskimo.com
 Sent: Thursday, April 4, 2013 8:04 PM
 Subject: Re: [TMIC] Hello
  
 
Anne and Roger,

I am perplexed by both of your posts because of how long you have had TM and
that you have had further attacks after so many years.  Anne, you said you
are now confined to a bed or wheelchair, but didn't say if it was the result
of a new TM attack.  Did you have a second attack many years after the
first?  I also wonder if either of you have a clue as to what triggered your
attacks.  My TM was idiopathic and I truly believed after nine years of no
new symptoms (I have plenty old symptoms) that I wasn't going to have a
second attack.  Just one more reason to hope they find a cure.

Patti - Michigan


On Apr 3, 2013, at 9:10 PM, Roger  Terese Pratt r.c.pr...@frontier.com
wrote:

 Anne,
 
 I have had TM for over 19 years, with a secondary attack in 2010 that resulted
 in peripheral nerve damage.  I am on Lyrica, Cymbalta, Zanaflex, and Tylenol
 PM for the TM stuff, other meds for high cholesterol and acid reflux.  While
 the meds help some, I find that I just need to stay as positive as possible
 and grin and bear it.  Adverse reactions to meds and allergies are the pits,
 but I say that is just because I am such a complex person.  I hope you find
 some meds that help.
 
 Roger in Kennewick, WA
 
   
  
  
   
 
   From: Pat Voorheis pjv1...@chartermi.net
  To: Janice Nichols jan...@centurytel.net
 Cc: dee jay dj88up...@yahoo.com; tmic-list@eskimo.com
 tmic-list@eskimo.com
  Sent: Wednesday, April 3, 2013 5:34 PM
  Subject: Re: [TMIC] Hello
   
  
 Hi Anne,
 
 I'm sorry to learn that you are experiencing difficulties after so many years
 away from TM's clutches.  I take 10mg Baclofen every eight hours that almost
 stops the banding. The banding is around my mid-section - like a corset.  I
 also take Lyrica which has some muscle relaxing effects, but I really give
 credit to the Baclofen.
 
 I hope you can find a muscle relaxer that works for you.  Also, Baclofen is
 inexpensive and Lyrica expensive if you do not have full drug insurance
 coverage. 
 
 TM since 2003, age 53, lesion level was C4-C6.
 
 Patti -Michigan
 
 On Apr 1, 2013, at 12:10 PM, Janice Nichols jan...@centurytel.net wrote:
 
 Anne,
  
 Glad you found our group.It would help if we knew what meds you were on.
 Many of us are on different meds for the same problems.   Also, there are
 some meds that almost all of us take.
 Some have more painful banding than others too.I do not have ³painful²
 banding, just a pressure feeling.   But I am sure you will hear from others
 that have more of a problem with it.
  
 Come on TM¹ers.Anne needs help from all of you.
  
 Janice
  
  
 From: dee jay mailto:dj88up...@yahoo.com
 Sent: Sunday, March 31, 2013 9:05 PM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hello
  
 Hello everyone.  My name is Anne and I have just joined your group.  I was
 diagnosed with TM in 1975, completely recovered, and then 23 years later here
 I am confined to a wheelchair/hospital bed and will be for the rest

Re: [TMIC] Hello

[Pat Voorheis]

Anne and Roger,

I am perplexed by both of your posts because of how long you have had TM and 
that you have had further attacks after so many years.  Anne, you said you are 
now confined to a bed or wheelchair, but didn't say if it was the result of a 
new TM attack.  Did you have a second attack many years after the first?  I 
also wonder if either of you have a clue as to what triggered your attacks.  My 
TM was idiopathic and I truly believed after nine years of no new symptoms (I 
have plenty old symptoms) that I wasn't going to have a second attack.  Just 
one more reason to hope they find a cure. 

Patti - Michigan


On Apr 3, 2013, at 9:10 PM, Roger  Terese Pratt r.c.pr...@frontier.com wrote:

 Anne,
 
 I have had TM for over 19 years, with a secondary attack in 2010 that 
 resulted in peripheral nerve damage.  I am on Lyrica, Cymbalta, Zanaflex, and 
 Tylenol PM for the TM stuff, other meds for high cholesterol and acid reflux. 
  While the meds help some, I find that I just need to stay as positive as 
 possible and grin and bear it.  Adverse reactions to meds and allergies are 
 the pits, but I say that is just because I am such a complex  person.  I hope 
 you find some meds that help.
 
 Roger in Kennewick, WA 
 
 From: Pat Voorheis pjv1...@chartermi.net
 To: Janice Nichols jan...@centurytel.net 
 Cc: dee jay dj88up...@yahoo.com; tmic-list@eskimo.com 
 tmic-list@eskimo.com 
 Sent: Wednesday, April 3, 2013 5:34 PM
 Subject: Re: [TMIC] Hello
 
 Hi Anne,
 
 I'm sorry to learn that you are experiencing difficulties after so many years 
 away from TM's clutches.  I take 10mg Baclofen every eight hours that almost 
 stops the banding. The banding is around my mid-section - like a corset.  I 
 also take Lyrica which has some muscle relaxing effects, but I really give 
 credit to the Baclofen. 
 
 I hope you can find a muscle relaxer that works for you.  Also, Baclofen is 
 inexpensive and Lyrica expensive if you do not have full drug insurance 
 coverage. 
 
 TM since 2003, age 53, lesion level was C4-C6.
 
 Patti -Michigan
 
 On Apr 1, 2013, at 12:10 PM, Janice Nichols jan...@centurytel.net wrote:
 
 Anne,
  
 Glad you found our group.It would help if we knew what meds you were on. 
Many of us are on different meds for the same problems.   Also, there are 
 some meds that almost all of us take.
 Some have more painful banding than others too.I do not have “painful” 
 banding, just a pressure feeling.   But I am sure you will hear from others 
 that have more of a problem with it.
  
 Come on TM’ers.Anne needs help from all of you.
  
 Janice
  
  
 From: dee jay
 Sent: Sunday, March 31, 2013 9:05 PM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hello
  
 Hello everyone.  My name is Anne and I have just joined your group.  I was 
 diagnosed with TM in 1975, completely recovered, and then 23 years later 
 here I am confined to a wheelchair/hospital bed and will be for the rest of 
 my life.  I hae just started experiencing this banding and have so many 
 allergies to medications even the doctor does not know what to do.  Any help 
 would be appreciated.
 
 

Re: [TMIC] Hello

[Roger Terese Pratt]

Pat,

My second attack was not called TM because it was not an attack on the spinal 
chord, but rather an attack on the peripheral nerves.  Both are assumed to be 
auto-immune caused.  In other words, the immune system attacking the nerves, 
and both were treated with steroid IVs to stop the attack.  So many illnesses 
are auto-immune caused: MS, diabetes, and the list goes on.  Why this happens 
no one knows. It has been said that TM only happens once, but what do they 
know?  It's all a mystery to me.  And how do they find a cure, when they really 
don't understand the cause?  It's just my hope that all my TM, MS, and other 
auto-immune diseases (syndromes?) friends can find ways to cope and hopefully 
get better.

Roger in Kennewick, WA




 From: Pat Voorheis pjv1...@chartermi.net
To: Roger  Terese Pratt r.c.pr...@frontier.com 
Cc: Janice Nichols jan...@centurytel.net; dee jay dj88up...@yahoo.com; 
tmic-list@eskimo.com tmic-list@eskimo.com 
Sent: Thursday, April 4, 2013 8:04 PM
Subject: Re: [TMIC] Hello
 

Anne and Roger,

I am perplexed by both of your posts because of how long you have had TM and 
that you have had further attacks after so many years.  Anne, you said you are 
now confined to a bed or wheelchair, but didn't say if it was the result of a 
new TM attack.  Did you have a second attack many years after the first?  I 
also wonder if either of you have a clue as to what triggered your attacks.  My 
TM was idiopathic and I truly believed after nine years of no new symptoms (I 
have plenty old symptoms) that I wasn't going to have a second attack.  Just 
one more reason to hope they find a cure. 

Patti - Michigan


On Apr 3, 2013, at 9:10 PM, Roger  Terese Pratt r.c.pr...@frontier.com wrote:


Anne,


I have had TM for over 19 years, with a secondary attack in 2010 that resulted 
in peripheral nerve damage.  I am on Lyrica, Cymbalta, Zanaflex, and Tylenol 
PM for the TM stuff, other meds for high cholesterol and acid reflux.  While 
the meds help some, I find that I just need to stay as positive as possible 
and grin and bear it.  Adverse reactions to meds and allergies are the pits, 
but I say that is just because I am such a complex person.  I hope you find 
some meds that help.


Roger in Kennewick, WA 




 From: Pat Voorheis pjv1...@chartermi.net
To: Janice Nichols jan...@centurytel.net 
Cc: dee jay dj88up...@yahoo.com; tmic-list@eskimo.com 
tmic-list@eskimo.com 
Sent: Wednesday, April 3, 2013 5:34 PM
Subject: Re: [TMIC] Hello
 

Hi Anne,


I'm sorry to learn that you are experiencing difficulties after so many years 
away from TM's clutches.  I take 10mg Baclofen every eight hours that almost 
stops the banding. The banding is around my mid-section - like a corset.  I 
also take Lyrica which has some muscle relaxing effects, but I really give 
credit to the Baclofen. 


I hope you can find a muscle relaxer that works for you.  Also, Baclofen is 
inexpensive and Lyrica expensive if you do not have full drug insurance 
coverage. 


TM since 2003, age 53, lesion level was C4-C6.


Patti -Michigan

On Apr 1, 2013, at 12:10 PM, Janice Nichols jan...@centurytel.net wrote:


Anne,
 
Glad you found our group.    It would help if 
we knew what meds you were on.    Many of us are on different 
meds for the same problems.   Also, there are some meds that almost 
all of us take.
Some have more painful banding than others 
too.    I do not have “painful” banding, just a pressure 
feeling.   But I am sure you will hear from others that have more of a 
problem with it.
 
Come on TM’ers.    Anne needs help from all of 
you.
 
Janice
  
From: dee jay 
Sent: Sunday, March 31, 2013 9:05 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] Hello
  Hello everyone.  My name is Anne and I have just joined your 
group.  I was diagnosed with TM in 1975, completely recovered, and then 23 
years later here I am confined to a wheelchair/hospital bed and will be for the 
rest of my life.  I hae just started experiencing this banding and have 
so many allergies to medications even the doctor does not know what to do.  
Any help would be appreciated.

Re: [TMIC] Hello

[Pat Voorheis]

Hi Anne,

I'm sorry to learn that you are experiencing difficulties after so many years 
away from TM's clutches.  I take 10mg Baclofen every eight hours that almost 
stops the banding. The banding is around my mid-section - like a corset.  I 
also take Lyrica which has some muscle relaxing effects, but I really give 
credit to the Baclofen. 

I hope you can find a muscle relaxer that works for you.  Also, Baclofen is 
inexpensive and Lyrica expensive if you do not have full drug insurance 
coverage. 

TM since 2003, age 53, lesion level was C4-C6.

Patti -Michigan

On Apr 1, 2013, at 12:10 PM, Janice Nichols jan...@centurytel.net wrote:

 Anne,
  
 Glad you found our group.It would help if we knew what meds you were on.  
   Many of us are on different meds for the same problems.   Also, there are 
 some meds that almost all of us take.
 Some have more painful banding than others too.I do not have “painful” 
 banding, just a pressure feeling.   But I am sure you will hear from others 
 that have more of a problem with it.
  
 Come on TM’ers.Anne needs help from all of you.
  
 Janice
  
  
 From: dee jay
 Sent: Sunday, March 31, 2013 9:05 PM
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hello
  
 Hello everyone.  My name is Anne and I have just joined your group.  I was 
 diagnosed with TM in 1975, completely recovered, and then 23 years later here 
 I am confined to a wheelchair/hospital bed and will be for the  rest of my 
 life.  I hae just started experiencing this banding and have so many 
 allergies to medications even the doctor does not know what to do.  Any help 
 would be appreciated.

Re: [TMIC] Hello

[Roger Terese Pratt]

Anne,

I have had TM for over 19 years, with a secondary attack in 2010 that resulted 
in peripheral nerve damage.  I am on Lyrica, Cymbalta, Zanaflex, and Tylenol PM 
for the TM stuff, other meds for high cholesterol and acid reflux.  While the 
meds help some, I find that I just need to stay as positive as possible and 
grin and bear it.  Adverse reactions to meds and allergies are the pits, but 
I say that is just because I am such a complex person.  I hope you find some 
meds that help.

Roger in Kennewick, WA 



 From: Pat Voorheis pjv1...@chartermi.net
To: Janice Nichols jan...@centurytel.net 
Cc: dee jay dj88up...@yahoo.com; tmic-list@eskimo.com 
tmic-list@eskimo.com 
Sent: Wednesday, April 3, 2013 5:34 PM
Subject: Re: [TMIC] Hello
 

Hi Anne,

I'm sorry to learn that you are experiencing difficulties after so many years 
away from TM's clutches.  I take 10mg Baclofen every eight hours that almost 
stops the banding. The banding is around my mid-section - like a corset.  I 
also take Lyrica which has some muscle relaxing effects, but I really give 
credit to the Baclofen. 

I hope you can find a muscle relaxer that works for you.  Also, Baclofen is 
inexpensive and Lyrica expensive if you do not have full drug insurance 
coverage. 

TM since 2003, age 53, lesion level was C4-C6.

Patti -Michigan

On Apr 1, 2013, at 12:10 PM, Janice Nichols jan...@centurytel.net wrote:


Anne,
 
Glad you found our group.    It would help if 
we knew what meds you were on.    Many of us are on different 
meds for the same problems.   Also, there are some meds that almost 
all of us take.
Some have more painful banding than others 
too.    I do not have “painful” banding, just a pressure 
feeling.   But I am sure you will hear from others that have more of a 
problem with it.
 
Come on TM’ers.    Anne needs help from all of 
you.
 
Janice
  
From: dee jay 
Sent: Sunday, March 31, 2013 9:05 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] Hello
  Hello everyone.  My name is Anne and I have just joined your 
group.  I was diagnosed with TM in 1975, completely recovered, and then 23 
years later here I am confined to a wheelchair/hospital bed and will be for the 
rest of my life.  I hae just started experiencing this banding and have 
so many allergies to medications even the doctor does not know what to do.  
Any help would be appreciated.

Re: [TMIC] Hello

[Pat Cooley]

Welcome Dee Jay.  I am sorry to hear about your being hit again with
another attack.  I pray that improvement will come to you soon.

Patti in Wiscconsin


On Sun, Mar 31, 2013 at 9:05 PM, dee jay dj88up...@yahoo.com wrote:

 Hello everyone.  My name is Anne and I have just joined your group.  I was
 diagnosed with TM in 1975, completely recovered, and then 23 years later
 here I am confined to a wheelchair/hospital bed and will be for the rest of
 my life.  I hae just started experiencing this banding and have so many
 allergies to medications even the doctor does not know what to do.  Any
 help would be appreciated.

Re: [TMIC] Hello

[Janice Nichols]

Anne,

Glad you found our group.It would help if we knew what meds you were on.
Many of us are on different meds for the same problems.   Also, there are some 
meds that almost all of us take.
Some have more painful banding than others too.I do not have “painful” 
banding, just a pressure feeling.   But I am sure you will hear from others 
that have more of a problem with it.

Come on TM’ers.Anne needs help from all of you.

Janice


From: dee jay 
Sent: Sunday, March 31, 2013 9:05 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] Hello

Hello everyone.  My name is Anne and I have just joined your group.  I was 
diagnosed with TM in 1975, completely recovered, and then 23 years later here I 
am confined to a wheelchair/hospital bed and will be for the rest of my life.  
I hae just started experiencing this banding and have so many allergies to 
medications even the doctor does not know what to do.  Any help would be 
appreciated.

RE: [TMIC] Hello

[Jeron Rampersad]

Hello! I get really worried when it's quiet here, but even I am guilty of not 
posting often enough. I have been dealing with some pain in my right leg this 
week and I am still trying to get settle back in the Caribbean. Don't know 
what's next for me... That's me in a nutshell.
What's going on with everyone else?
Jeron

From: celr...@aol.com
Date: Thu, 8 Sep 2011 23:26:05 -0400
To: TMIC-LIST@eskimo.com
Subject: [TMIC] Hello




I haven't seen very many post lately.   Hope everyone is doing 
fine. 

RE: [TMIC] Hello

[john snodgrass]

same ole,,,good days bad days ugly days

--- On Fri, 9/9/11, Jeron Rampersad rumc...@hotmail.com wrote:


From: Jeron Rampersad rumc...@hotmail.com
Subject: RE: [TMIC] Hello
To: celr...@aol.com, tmic-list@eskimo.com
Date: Friday, September 9, 2011, 6:53 AM





Hello! I get really worried when it's quiet here, but even I am guilty of not 
posting often enough. I have been dealing with some pain in my right leg this 
week and I am still trying to get settle back in the Caribbean. Don't know 
what's next for me... That's me in a nutshell.
What's going on with everyone else?
Jeron



From: celr...@aol.com
Date: Thu, 8 Sep 2011 23:26:05 -0400
To: TMIC-LIST@eskimo.com
Subject: [TMIC] Hello


I haven't seen very many post lately.   Hope everyone is doing fine.

Re: [TMIC] Hello

[Janice Nichols]

Jeron,

Could the pain in your right leg be your hamstring?That is where I feel 
pain and weakness.Stretching it out on a regular basis will help.
What do you do in the Carribbean? Are you retired?If so, how do you 
spend your time? Any family around you?
Janice

From: Jeron Rampersad 
Sent: Friday, September 09, 2011 5:53 AM
To: celr...@aol.com ; tmic-list@eskimo.com 
Subject: RE: [TMIC] Hello

Hello! I get really worried when it's quiet here, but even I am guilty of not 
posting often enough. I have been dealing with some pain in my right leg this 
week and I am still trying to get settle back in the Caribbean. Don't know 
what's next for me... That's me in a nutshell.
What's going on with everyone else?
Jeron



From: celr...@aol.com
Date: Thu, 8 Sep 2011 23:26:05 -0400
To: TMIC-LIST@eskimo.com
Subject: [TMIC] Hello


I haven't seen very many post lately.   Hope everyone is doing fine.

Re: [TMIC] Hello

[Janice Nichols]

You know, I think we all pretty much feel that we know each other and unless a 
new topic or question comes up, things do seem quiet. But, I also think 
that as soon as a topic/question/concern
pops up, we are all glad to participate.When I first started on this 
website, I was so excited and was constantly asking questions of all of the 
TM’ers, therefore creating a lot of conversations
or replies.It was so wonderful to finally be able to talk to others with TM 
and to be able to have someone really understand what I was going through, 
which I think all of us feel when we first
started here.Don’t worry, we are still here – just maybe not participating 
as much.

Janice

From: celr...@aol.com 
Sent: Thursday, September 08, 2011 10:26 PM
To: TMIC-LIST@eskimo.com 
Subject: [TMIC] Hello

I haven't seen very many post lately.   Hope everyone is doing fine.

Re: [TMIC] Hello

[Barbara H.]

Wow, Dalton. That's hard, but it sounds like from your other posts that
things are working our for the best in the long run.

Barbara H.

On Thu, Jun 9, 2011 at 8:17 AM, Dalton Garis malugss...@gmail.com wrote:

 Hi Carol;

 This is Dalton.  I just got terminated today.  It seems I couldn't overcome
 the pull of TM, and my classroom work—that of which I was most
 proud—suffered.  I have three months' notice.  Last year they lightened the
 load and I did OK, but they said I worked too little.  This year I taught
 three courses, teaching every day, and the pain, fatigue and med-head just
 made every day agony.  It showed and the students complained.  So, that's
 it.

 Up till now they have been very nice.  But they don't keep persons around
 who can't pull the whole load.

 Not the way I wanted to go out.

 Thanks,

 Dalton



 From: Carol E snow121...@hotmail.com
 Date: Tue, 7 Jun 2011 09:43:34 -0500
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hello
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700

 Just testing to see if I am still on the list.  I'm not receiving messages.



 *Carol *
 Worrying does not empty
 tomorrow of its troubles;
 It empties today of its strengths.

Re: [TMIC] Hello

[L T CHERPESKI]

Hi Dalton,
  I had very mixed feelings when I read your first post. Sad in the beginning 
and then so happy for you ~ Maybe take some time to relax for a while and then 
enjoy that writing.
  Safe flight back to the states.  Don't be a stranger now ~ we want to hear 
how you're doing ~ and I'm very excited about your book.
  hugs,
Linda (Eagle, ID)

  - Original Message - 
  From: Dalton Garismailto:malugss...@gmail.com 
  To: Janice Nicholsmailto:jan...@centurytel.net ; Patricia 
Cooleymailto:patticoole...@gmail.com ; Akuamailto:a...@artfarm.com 
  Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com 
  Sent: Saturday, June 11, 2011 7:33 AM
  Subject: Re: [TMIC] Hello


  I fly back day-after-tomorrow @ 5:00 AM.


  OF COURSE I WON'T FORGET YOU ALL!


  Love,


  Dalton


  From: Janice Nichols jan...@centurytel.netmailto:jan...@centurytel.net
  Date: Fri, 10 Jun 2011 22:13:36 -0500
  To: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com, 
Patricia Cooley patticoole...@gmail.commailto:patticoole...@gmail.com, Akua 
a...@artfarm.commailto:a...@artfarm.com
  Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
  Subject: Re: [TMIC] Hello



Dalton, when will you be back to the states?   You won't forget us, 
will you?
Janice

From: Dalton Garismailto:malugss...@gmail.com 
Sent: Friday, June 10, 2011 1:39 PM
To: Patricia Cooleymailto:patticoole...@gmail.com ; 
'Akua'mailto:a...@artfarm.com 
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com 
Subject: Re: [TMIC] Hello

You know;

I go from wanting to cry to wanting to laugh in the same moment.  I am so 
relieved not to have to prepare for those classes anymore-I was associate 
professor of economics and commodity price behavior-the lectures, but mostly 
that awful bureaucratic stuff-the accreditation material, reports, the grading 
and grade submissions, my annual objectives . . . So many forms to goof up and 
be asked to do over.  This disease has made filling out any kind of form an 
arduous task, because I always lose my way and have to start from the 
beginning.  They took so long.

And now the only big form I have to face each year is that mother of all 
forms, the tax form.

I am looking forward very much to writing and researching.  My published 
book is Manna from Heaven: From Divine Speech to Economic Science.  it is an 
analysis of economic content within the best known divinely revealed books of 
God.  Now I am writing another one, which is almost ready, that will target 
Sunni Muslims with an analysis of the economics of the Divine Qur'an.  (I am 
not Muslim; I am a Baha'i).  I want to start a discussion of these things among 
ordinary people of all Faiths-because the way the economy is going now, it is 
not serving the best interests or needs of the majority of peoples in the 
world, and I can't imagine that God would leave us in the dark on this subject. 
 And, what I found is that there is a tremendous amount of economic content in 
the divinely revealed Words of God.  They haven't been economically analyzed 
because economics is only about 100 years old as a formalized academic 
discipline.

Anyway, I am packing now and pretty happy.  I am over the sting of being 
pushed out, and that quiet but palpable air of dismissiveness from bosses and 
some colleagues alike.  Suddenly you are like a dead man walking, and they 
don't want to be around you. They look the other way, as if being dismissed 
were a contagion they must avoid.  You know what I mean.  As disabled persons 
we encounter it every day on the street, in the check-out line, and the 
restroom.  

The staff-secretaries, cleaners, janitors-are different.  They come up to 
you and ask how you are, and say that they will miss you and are sad to see you 
go.  I think that if when I die, such persons show up to my funeral, I will 
have perhaps not been too bad.  Our colleagues and relatives, these must show 
up, so it doesn't mean much.  But if ordinary workers who don't owe you 
anything, if they show up, then you have been not too bad as a person.

So back to packing-and ice cream with almonds, walnuts, fudge sauce.

Thanks everyone, you mean a lot to me. How could I have gotten along so 
long alone over here without your help and friendship?!

Dalton

From: Patricia Cooley 
patticoole...@gmail.commailto:patticoole...@gmail.com
Date: Fri, 10 Jun 2011 09:52:32 -0500
To: Dalton Garis malugss...@gmail.commailto:malugss...@gmail.com, 
'Akua' a...@artfarm.commailto:a...@artfarm.com
Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Subject: RE: [TMIC] Hello


It sounds as though you have come to terms with your loss.  I wish you all 
the luck in the world with your manuscripts.  Maybe one day when you are a 
famous author, we can say we know him he is a friend.  Keep our spirits up 
and good luck with your upcoming move back to the States.  Keep in touch.

 

From: Dalton Garis

Re: [TMIC] Hello

[lynne myers]

Dalton,
Very sorry to hear about your loss.  It makes this disease even harder to deal 
with when it takes something away from you that you love.  It has been almost 8 
years for me since I had to quit nursing, and I still miss it every day.  I 
hope you are able to find comfort in your writtings and that you find other 
ways to fulfill yourself.
Lynne

--- On Thu, 6/9/11, Dalton Garis malugss...@gmail.com wrote:


From: Dalton Garis malugss...@gmail.com
Subject: Re: [TMIC] Hello
To: Carol E snow121...@hotmail.com, tmic-list@eskimo.com
Date: Thursday, June 9, 2011, 8:17 AM



Hi Carol;


This is Dalton.  I just got terminated today.  It seems I couldn't overcome the 
pull of TM, and my classroom work—that of which I was most proud—suffered.  I 
have three months' notice.  Last year they lightened the load and I did OK, but 
they said I worked too little.  This year I taught three courses, teaching 
every day, and the pain, fatigue and med-head just made every day agony.  It 
showed and the students complained.  So, that's it.


Up till now they have been very nice.  But they don't keep persons around who 
can't pull the whole load.


Not the way I wanted to go out.


Thanks, 


Dalton






From: Carol E snow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: tmic-list@eskimo.com
Subject: [TMIC] Hello
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700






Just testing to see if I am still on the list.  I'm not receiving messages.


 


Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 

Re: [TMIC] Hello

[Dalton Garis]

I fly back day-after-tomorrow @ 5:00 AM.

OF COURSE I WON'T FORGET YOU ALL!

Love,

Dalton

From:  Janice Nichols jan...@centurytel.net
Date:  Fri, 10 Jun 2011 22:13:36 -0500
To:  Dalton Garis malugss...@gmail.com, Patricia Cooley
patticoole...@gmail.com, Akua a...@artfarm.com
Cc:  tmic-list@eskimo.com
Subject:  Re: [TMIC] Hello

 Dalton, when will you be back to the states?   You won¹t forget us, will
 you?
 Janice
  
 From: Dalton Garis mailto:malugss...@gmail.com
 Sent: Friday, June 10, 2011 1:39 PM
 To: Patricia Cooley mailto:patticoole...@gmail.com  ; 'Akua'
 mailto:a...@artfarm.com
 Cc: tmic-list@eskimo.com
 Subject: Re: [TMIC] Hello
  
 You know;
  
 I go from wanting to cry to wanting to laugh in the same moment.  I am so
 relieved not to have to prepare for those classes anymore‹I was associate
 professor of economics and commodity price behavior‹the lectures, but mostly
 that awful bureaucratic stuff‹the accreditation material, reports, the grading
 and grade submissions, my annual objectives . . . So many forms to goof up and
 be asked to do over.  This disease has made filling out any kind of form an
 arduous task, because I always lose my way and have to start from the
 beginning.  They took so long.
  
 And now the only big form I have to face each year is that mother of all
 forms, the tax form.
  
 I am looking forward very much to writing and researching.  My published book
 is Manna from Heaven: From Divine Speech to Economic Science.  it is an
 analysis of economic content within the best known divinely revealed books of
 God.  Now I am writing another one, which is almost ready, that will target
 Sunni Muslims with an analysis of the economics of the Divine Qur'an.  (I am
 not Muslim; I am a Baha'i).  I want to start a discussion of these things
 among ordinary people of all Faiths‹because the way the economy is going now,
 it is not serving the best interests or needs of the majority of peoples in
 the world, and I can't imagine that God would leave us in the dark on this
 subject.  And, what I found is that there is a tremendous amount of economic
 content in the divinely revealed Words of God.  They haven't been economically
 analyzed because economics is only about 100 years old as a formalized
 academic discipline.
  
 Anyway, I am packing now and pretty happy.  I am over the sting of being
 pushed out, and that quiet but palpable air of dismissiveness from bosses and
 some colleagues alike.  Suddenly you are like a dead man walking, and they
 don't want to be around you. They look the other way, as if being dismissed
 were a contagion they must avoid.  You know what I mean.  As disabled persons
 we encounter it every day on the street, in the check-out line, and the
 restroom.  
  
 The staff‹secretaries, cleaners, janitors‹are different.  They come up to you
 and ask how you are, and say that they will miss you and are sad to see you
 go.  I think that if when I die, such persons show up to my funeral, I will
 have perhaps not been too bad.  Our colleagues and relatives, these must show
 up, so it doesn't mean much.  But if ordinary workers who don't owe you
 anything, if they show up, then you have been not too bad as a person.
  
 So back to packing‹and ice cream with almonds, walnuts, fudge sauce.
  
 Thanks everyone, you mean a lot to me. How could I have gotten along so long
 alone over here without your help and friendship?!
  
 Dalton
  
 From: Patricia Cooley patticoole...@gmail.com
 Date: Fri, 10 Jun 2011 09:52:32 -0500
 To: Dalton Garis malugss...@gmail.com, 'Akua' a...@artfarm.com
 Cc: tmic-list@eskimo.com
 Subject: RE: [TMIC] Hello
  
 It sounds as though you have come to terms with your loss.  I wish you all the
 luck in the world with your manuscripts.  Maybe one day when you are a famous
 author, we can say ³we know him he is a friend².  Keep our spirits up and good
 luck with your upcoming move back to the States.  Keep in touch.
  
 
 From: Dalton Garis [mailto:malugss...@gmail.com]
 Sent: Thursday, June 09, 2011 10:57 PM
 To: Akua
 Cc: tmic-list@eskimo.com
 Subject: Re: [TMIC] Hello
  
 YOU ARE ALL SO KIND;
 
  
 
 actually, my wife is very happy i will be coming home. says i have been away
 too long.  and now, with not having to pepare for class every day, i can go
 back to writing.  i have one book out there, and i almost have a finished
 manuscript for another..
 
  
 
 gotta go right now though, miuscle cramps-spasms coming on.  will write later.
 
  
 
 love,
 
  
 
 dalton
 
 On 10 Jun 2011, at 2:37 AM, Akua wrote:
 
 
 Sorry to read this, Dalton!
 
  
 
  
  
 Hi  Carol;
  
  
  
 This is  Dalton.  I just got terminated today.  It seems I couldn't overcome
 the pull of TM, and my classroom work-that of which I was most
 proud-suffered.  I have three months' notice.  Last year they  lightened the
 load and I did OK, but they said I worked too little.  This  year I taught
 three courses, teaching every day, and the pain, fatigue and  med-head just

Re: [TMIC] Hello

[john snodgrass]

well,

that puts somewhat of a happy spin on all of this.
good.
now i envy you.

which is also good.

--- On Thu, 6/9/11, Dalton Garis malugss...@gmail.com wrote:

From: Dalton Garis malugss...@gmail.com
Subject: Re: [TMIC] Hello
To: Akua a...@artfarm.com
Cc: tmic-list@eskimo.com
Date: Thursday, June 9, 2011, 11:56 PM

YOU ARE ALL SO KIND;
actually, my wife is very happy i will be coming home. says i have been away 
too long.  and now, with not having to pepare for class every day, i can go 
back to writing.  i have one book out there, and i almost have a finished 
manuscript for another.. 
gotta go right now though, miuscle cramps-spasms coming on.  will write later.
love,
dalton
On 10 Jun 2011, at 2:37 AM, Akua wrote:
Sorry to read this, Dalton!

Hi Carol;
This is Dalton.  I just got terminated today.  It seems I couldn't overcome the 
pull of TM, and my classroom work-that of which I was most proud-suffered.  I 
have three months' notice.  Last year they lightened the load and I did OK, but 
they said I worked too little.  This year I taught three courses, teaching 
every day, and the pain, fatigue and med-head just made every day agony.  It 
showed and the students complained.  So, that's it.
Up till now they have been very nice.  But they don't keep persons around who 
can't pull the whole load.
Not the way I wanted to go out.
Thanks,
Dalton


From: Carol E snow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: tmic-list@eskimo.com
Subject: [TMIC] Hello
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700

Just testing to see if I am still on the list.  I'm not receiving messages.


 
CarolWorrying does not empty
tomorrow of its troubles;
It empties today of its strengths.
 

        

-- 

RE: [TMIC] Hello

[Patricia Cooley]

It sounds as though you have come to terms with your loss.  I wish you all
the luck in the world with your manuscripts.  Maybe one day when you are a
famous author, we can say we know him he is a friend.  Keep our spirits up
and good luck with your upcoming move back to the States.  Keep in touch.

 

From: Dalton Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, June 09, 2011 10:57 PM
To: Akua
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Hello

 

YOU ARE ALL SO KIND;

 

actually, my wife is very happy i will be coming home. says i have been away
too long.  and now, with not having to pepare for class every day, i can go
back to writing.  i have one book out there, and i almost have a finished
manuscript for another.. 

 

gotta go right now though, miuscle cramps-spasms coming on.  will write
later.

 

love,

 

dalton

On 10 Jun 2011, at 2:37 AM, Akua wrote:





Sorry to read this, Dalton!

 

 

Hi Carol;

 

This is Dalton.  I just got terminated today.  It seems I couldn't overcome
the pull of TM, and my classroom work-that of which I was most
proud-suffered.  I have three months' notice.  Last year they lightened the
load and I did OK, but they said I worked too little.  This year I taught
three courses, teaching every day, and the pain, fatigue and med-head just
made every day agony.  It showed and the students complained.  So, that's
it.

 

Up till now they have been very nice.  But they don't keep persons around
who can't pull the whole load.

 

Not the way I wanted to go out.

 

Thanks,

 

Dalton

 

 

 

From: Carol E snow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: tmic-list@eskimo.com
Subject: [TMIC] Hello
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700

 

Just testing to see if I am still on the list.  I'm not receiving messages.


 

Carol

Worrying does not empty
tomorrow of its troubles;
It empties today of its strengths.

 



   

 

 

-- 

 

Re: [TMIC] Hello

[Janice Nichols]

RIght on, Kevin!!!  Dalton, I know you will do well in whatever you choose 
with your new life. You are just that kinda guy
Janice
PS You don’t have to rush into anything. Take some time (when you get 
back to the States), to relax and gain back some strength.I know teaching 
was really
hard on you.



From: kevin weilacher 
Sent: Thursday, June 09, 2011 9:57 AM
To: Dalton Garis ; Carol E ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Hello

Dalton,

I'm sure that I can't totally understand how you must feel about this..I know 
it has to be devastating though...I know you loved teaching and that it was a 
large part of your life.
If I can relate a little story about myselfI was in the Air Force for 20 
yearsand it was my life. I lived and breathed it on a day to day basis
I was somebody because I had a whole group of people I was responsible for 
and also responsible for getting things done
and then I retiredand I was now nobody
Basically starting out fresh in the civilian world.an environment that I 
had to adjust to and become accustomed to.
After a couple of years I found my way into an excellent new career and had 
that old feeling back of being somebody again
and then TM hit and I couldn't go back to work.
That was a huge blow and even now after three years it still bothers me a 
bit
But, my life was in my own hands...there wasn't anyone that was going to do 
anything about it except me...
So, I taught myself a hobby...something that I would have never even delved 
into if it weren't for the fact that TM hit.
I've been doing my wood carving now for about two years and it makes me happier 
than anything ever hasEven though I'm not running a shop or an office and 
I'm not in charge of a group of people anymore...I am in charge of myself and 
have learned that I must continue on regardless of my situation
With my carvings, I now get the pleasure that people enjoy the things that I've 
made with my own two hands.
SoI guess my point is this
This is a tough setback for youthat much I understandbut, this is also 
a new door opening for you to pursue something maybe totally different and 
unique that you might have never thought you would try.

My thoughts and prayers go out to you.and I wish you the very, very best...
Something good will come to you...

Take care,
Kevin
N.E. Ohio (Canton)





From: Dalton Garis malugss...@gmail.com
To: Carol E snow121...@hotmail.com; tmic-list@eskimo.com
Sent: Thu, June 9, 2011 8:17:56 AM
Subject: Re: [TMIC] Hello


Hi Carol;

This is Dalton.  I just got terminated today.  It seems I couldn't overcome the 
pull of TM, and my classroom work—that of which I was most proud—suffered.  I 
have three months' notice.  Last year they lightened the load and I did OK, but 
they said I worked too little.  This year I taught three courses, teaching 
every day, and the pain, fatigue and med-head just made every day agony.  It 
showed and the students complained.  So, that's it.

Up till now they have been very nice.  But they don't keep persons around who 
can't pull the whole load.

Not the way I wanted to go out.

Thanks, 

Dalton



From: Carol E snow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: tmic-list@eskimo.com
Subject: [TMIC] Hello
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700


Just testing to see if I am still on the list.  I'm not receiving messages.


 

Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

Re: [TMIC] Hello

[Dalton Garis]

You know;

I go from wanting to cry to wanting to laugh in the same moment.  I am so
relieved not to have to prepare for those classes anymore‹I was associate
professor of economics and commodity price behavior‹the lectures, but mostly
that awful bureaucratic stuff‹the accreditation material, reports, the
grading and grade submissions, my annual objectives . . . So many forms to
goof up and be asked to do over.  This disease has made filling out any kind
of form an arduous task, because I always lose my way and have to start from
the beginning.  They took so long.

And now the only big form I have to face each year is that mother of all
forms, the tax form.

I am looking forward very much to writing and researching.  My published
book is Manna from Heaven: From Divine Speech to Economic Science.  it is
an analysis of economic content within the best known divinely revealed
books of God.  Now I am writing another one, which is almost ready, that
will target Sunni Muslims with an analysis of the economics of the Divine
Qur'an.  (I am not Muslim; I am a Baha'i).  I want to start a discussion of
these things among ordinary people of all Faiths‹because the way the economy
is going now, it is not serving the best interests or needs of the majority
of peoples in the world, and I can't imagine that God would leave us in the
dark on this subject.  And, what I found is that there is a tremendous
amount of economic content in the divinely revealed Words of God.  They
haven't been economically analyzed because economics is only about 100 years
old as a formalized academic discipline.

Anyway, I am packing now and pretty happy.  I am over the sting of being
pushed out, and that quiet but palpable air of dismissiveness from bosses
and some colleagues alike.  Suddenly you are like a dead man walking, and
they don't want to be around you. They look the other way, as if being
dismissed were a contagion they must avoid.  You know what I mean.  As
disabled persons we encounter it every day on the street, in the check-out
line, and the restroom.

The staff‹secretaries, cleaners, janitors‹are different.  They come up to
you and ask how you are, and say that they will miss you and are sad to see
you go.  I think that if when I die, such persons show up to my funeral, I
will have perhaps not been too bad.  Our colleagues and relatives, these
must show up, so it doesn't mean much.  But if ordinary workers who don't
owe you anything, if they show up, then you have been not too bad as a
person.

So back to packing‹and ice cream with almonds, walnuts, fudge sauce.

Thanks everyone, you mean a lot to me. How could I have gotten along so long
alone over here without your help and friendship?!

Dalton

From:  Patricia Cooley patticoole...@gmail.com
Date:  Fri, 10 Jun 2011 09:52:32 -0500
To:  Dalton Garis malugss...@gmail.com, 'Akua' a...@artfarm.com
Cc:  tmic-list@eskimo.com
Subject:  RE: [TMIC] Hello

It sounds as though you have come to terms with your loss.  I wish you all
the luck in the world with your manuscripts.  Maybe one day when you are a
famous author, we can say ³we know him he is a friend².  Keep our spirits up
and good luck with your upcoming move back to the States.  Keep in touch.
 

From: Dalton Garis [mailto:malugss...@gmail.com]
Sent: Thursday, June 09, 2011 10:57 PM
To: Akua
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Hello
 
YOU ARE ALL SO KIND;

 

actually, my wife is very happy i will be coming home. says i have been away
too long.  and now, with not having to pepare for class every day, i can go
back to writing.  i have one book out there, and i almost have a finished
manuscript for another..

 

gotta go right now though, miuscle cramps-spasms coming on.  will write
later.

 

love,

 

dalton

On 10 Jun 2011, at 2:37 AM, Akua wrote:


Sorry to read this, Dalton!

 

 
 Hi Carol;
  
 This is Dalton.  I just got terminated today.  It seems I couldn't overcome
 the pull of TM, and my classroom work-that of which I was most proud-suffered.
 I have three months' notice.  Last year they lightened the load and I did OK,
 but they said I worked too little.  This year I taught three courses, teaching
 every day, and the pain, fatigue and med-head just made every day agony.  It
 showed and the students complained.  So, that's it.
  
 Up till now they have been very nice.  But they don't keep persons around who
 can't pull the whole load.
  
 Not the way I wanted to go out.
  
 Thanks,
  
 Dalton
  
  
  
 From: Carol E snow121...@hotmail.com
 Date: Tue, 7 Jun 2011 09:43:34 -0500
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hello
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700
  
 Just testing to see if I am still on the list.  I'm not receiving messages.
 
 
  
 Carol
 Worrying does not empty
 tomorrow of its troubles;
 It empties today of its strengths.
  
 
 
  

 

 
-- 
 

RE: [TMIC] Hello

[john snodgrass]

I look forward to the movie

--- On Fri, 6/10/11, Patricia Cooley patticoole...@gmail.com wrote:

From: Patricia Cooley patticoole...@gmail.com
Subject: RE: [TMIC] Hello
To: 'Dalton Garis' malugss...@gmail.com, 'Akua' a...@artfarm.com
Cc: tmic-list@eskimo.com
Date: Friday, June 10, 2011, 10:52 AM

It sounds as though you have come to terms with your loss.  I wish you all the 
luck in the world with your manuscripts.  Maybe one day when you are a famous 
author, we can say “we know him he is a friend”.  Keep our spirits up and good 
luck with your upcoming move back to the States.  Keep in touch.  From: Dalton 
Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, June 09, 2011 10:57 PM
To: Akua
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Hello  YOU ARE ALL SO KIND;  actually, my wife is very 
happy i will be coming home. says i have been away too long.  and now, with not 
having to pepare for class every day, i can go back to writing.  i have one 
book out there, and i almost have a finished manuscript for another..   gotta 
go right now though, miuscle cramps-spasms coming on.  will write later.  love, 
 daltonOn 10 Jun 2011, at 2:37 AM, Akua wrote:

Sorry to read this, Dalton!    Hi Carol;  This is Dalton.  I just got 
terminated today.  It seems I couldn't overcome the pull of TM, and my 
classroom work-that of which I was most proud-suffered.  I have three months' 
notice.  Last year they lightened the load and I did OK, but they said I worked 
too little.  This year I taught three courses, teaching every day, and the 
pain, fatigue and med-head just made every day agony.  It showed and the 
students complained.  So, that's it.  Up till now they have been very nice.  
But they don't keep persons around who can't pull the whole load.  Not the way 
I wanted to go out.  Thanks,  Dalton      From: Carol E snow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: tmic-list@eskimo.com
Subject: [TMIC] Hello
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700  Just testing to see if I am still 
on the list.  I'm not receiving messages.


 CarolWorrying does not empty
tomorrow of its troubles;
It empties today of its strengths. 

       --   

Re: [TMIC] Hello

[Janice Nichols]

Dalton, when will you be back to the states?   You won’t forget us, will 
you?
Janice

From: Dalton Garis 
Sent: Friday, June 10, 2011 1:39 PM
To: Patricia Cooley ; 'Akua' 
Cc: tmic-list@eskimo.com 
Subject: Re: [TMIC] Hello

You know;

I go from wanting to cry to wanting to laugh in the same moment.  I am so 
relieved not to have to prepare for those classes anymore—I was associate 
professor of economics and commodity price behavior—the lectures, but mostly 
that awful bureaucratic stuff—the accreditation material, reports, the grading 
and grade submissions, my annual objectives . . . So many forms to goof up and 
be asked to do over.  This disease has made filling out any kind of form an 
arduous task, because I always lose my way and have to start from the 
beginning.  They took so long.

And now the only big form I have to face each year is that mother of all 
forms, the tax form.

I am looking forward very much to writing and researching.  My published book 
is Manna from Heaven: From Divine Speech to Economic Science.  it is an 
analysis of economic content within the best known divinely revealed books of 
God.  Now I am writing another one, which is almost ready, that will target 
Sunni Muslims with an analysis of the economics of the Divine Qur'an.  (I am 
not Muslim; I am a Baha'i).  I want to start a discussion of these things among 
ordinary people of all Faiths—because the way the economy is going now, it is 
not serving the best interests or needs of the majority of peoples in the 
world, and I can't imagine that God would leave us in the dark on this subject. 
 And, what I found is that there is a tremendous amount of economic content in 
the divinely revealed Words of God.  They haven't been economically analyzed 
because economics is only about 100 years old as a formalized academic 
discipline.

Anyway, I am packing now and pretty happy.  I am over the sting of being pushed 
out, and that quiet but palpable air of dismissiveness from bosses and some 
colleagues alike.  Suddenly you are like a dead man walking, and they don't 
want to be around you. They look the other way, as if being dismissed were a 
contagion they must avoid.  You know what I mean.  As disabled persons we 
encounter it every day on the street, in the check-out line, and the restroom.  

The staff—secretaries, cleaners, janitors—are different.  They come up to you 
and ask how you are, and say that they will miss you and are sad to see you go. 
 I think that if when I die, such persons show up to my funeral, I will have 
perhaps not been too bad.  Our colleagues and relatives, these must show up, so 
it doesn't mean much.  But if ordinary workers who don't owe you anything, if 
they show up, then you have been not too bad as a person.

So back to packing—and ice cream with almonds, walnuts, fudge sauce.

Thanks everyone, you mean a lot to me. How could I have gotten along so long 
alone over here without your help and friendship?!

Dalton

From: Patricia Cooley patticoole...@gmail.com
Date: Fri, 10 Jun 2011 09:52:32 -0500
To: Dalton Garis malugss...@gmail.com, 'Akua' a...@artfarm.com
Cc: tmic-list@eskimo.com
Subject: RE: [TMIC] Hello


It sounds as though you have come to terms with your loss.  I wish you all the 
luck in the world with your manuscripts.  Maybe one day when you are a famous 
author, we can say “we know him he is a friend”.  Keep our spirits up and good 
luck with your upcoming move back to the States.  Keep in touch.

 

From: Dalton Garis [mailto:malugss...@gmail.com] 
Sent: Thursday, June 09, 2011 10:57 PM
To: Akua
Cc: tmic-list@eskimo.com
Subject: Re: [TMIC] Hello

 

YOU ARE ALL SO KIND;

 

actually, my wife is very happy i will be coming home. says i have been away 
too long.  and now, with not having to pepare for class every day, i can go 
back to writing.  i have one book out there, and i almost have a finished 
manuscript for another.. 

 

gotta go right now though, miuscle cramps-spasms coming on.  will write later.

 

love,

 

dalton

On 10 Jun 2011, at 2:37 AM, Akua wrote:





Sorry to read this, Dalton!

 

 

  Hi Carol;

   

  This is Dalton.  I just got terminated today.  It seems I couldn't overcome 
the pull of TM, and my classroom work-that of which I was most proud-suffered.  
I have three months' notice.  Last year they lightened the load and I did OK, 
but they said I worked too little.  This year I taught three courses, teaching 
every day, and the pain, fatigue and med-head just made every day agony.  It 
showed and the students complained.  So, that's it.

   

  Up till now they have been very nice.  But they don't keep persons around who 
can't pull the whole load.

   

  Not the way I wanted to go out.

   

  Thanks,

   

  Dalton

   

   

   

  From: Carol E snow121...@hotmail.com
  Date: Tue, 7 Jun 2011 09:43:34 -0500
  To: tmic-list@eskimo.com
  Subject: [TMIC] Hello
  Resent-From: tmic-list@eskimo.com
  Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700

Re: [TMIC] Hello

[Dalton Garis]

Hi Carol;

This is Dalton.  I just got terminated today.  It seems I couldn't overcome
the pull of TM, and my classroom work‹that of which I was most
proud‹suffered.  I have three months' notice.  Last year they lightened the
load and I did OK, but they said I worked too little.  This year I taught
three courses, teaching every day, and the pain, fatigue and med-head just
made every day agony.  It showed and the students complained.  So, that's
it.

Up till now they have been very nice.  But they don't keep persons around
who can't pull the whole load.

Not the way I wanted to go out.

Thanks, 

Dalton



From:  Carol E snow121...@hotmail.com
Date:  Tue, 7 Jun 2011 09:43:34 -0500
To:  tmic-list@eskimo.com
Subject:  [TMIC] Hello
Resent-From:  tmic-list@eskimo.com
Resent-Date:  Tue, 7 Jun 2011 07:44:27 -0700

Just testing to see if I am still on the list.  I'm not receiving messages.


 
Carol 
Worrying does not empty
tomorrow of its troubles;
It empties today of its strengths.
 


   

Re: [TMIC] Hello

[Janice Nichols]

Dalton,

I am so sorry. I know you loved your work.You just had too much 
working against you.
Hang in there and who knows what will pop up in your life.Things happen for 
a reason and we never know what is ahead of us.

Janice


From: Dalton Garis 
Sent: Thursday, June 09, 2011 7:17 AM
To: Carol E ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Hello

Hi Carol;

This is Dalton.  I just got terminated today.  It seems I couldn't overcome the 
pull of TM, and my classroom work—that of which I was most proud—suffered.  I 
have three months' notice.  Last year they lightened the load and I did OK, but 
they said I worked too little.  This year I taught three courses, teaching 
every day, and the pain, fatigue and med-head just made every day agony.  It 
showed and the students complained.  So, that's it.

Up till now they have been very nice.  But they don't keep persons around who 
can't pull the whole load.

Not the way I wanted to go out.

Thanks, 

Dalton



From: Carol E snow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: tmic-list@eskimo.com
Subject: [TMIC] Hello
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700


Just testing to see if I am still on the list.  I'm not receiving messages.


 

Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

Re: [TMIC] Hello

[kevin weilacher]

Dalton,

I'm sure that I can't totally understand how you must feel about this..I know 
it 
has to be devastating though...I know you loved teaching and that it was a 
large 
part of your life.
If I can relate a little story about myselfI was in the Air Force for 20 
yearsand it was my life. I lived and breathed it on a day to day basis
I was somebody because I had a whole group of people I was responsible for 
and 
also responsible for getting things done
and then I retiredand I was now nobody
Basically starting out fresh in the civilian world.an environment that I 
had 
to adjust to and become accustomed to.
After a couple of years I found my way into an excellent new career and had 
that 
old feeling back of being somebody again
and then TM hit and I couldn't go back to work.
That was a huge blow and even now after three years it still bothers me a 
bit
But, my life was in my own hands...there wasn't anyone that was going to do 
anything about it except me...
So, I taught myself a hobby...something that I would have never even delved 
into 
if it weren't for the fact that TM hit.
I've been doing my wood carving now for about two years and it makes me happier 
than anything ever hasEven though I'm not running a shop or an office and 
I'm not in charge of a group of people anymore...I am in charge of myself and 
have learned that I must continue on regardless of my situation
With my carvings, I now get the pleasure that people enjoy the things that I've 
made with my own two hands.
SoI guess my point is this
This is a tough setback for youthat much I understandbut, this is also 
a 
new door opening for you to pursue something maybe totally different and unique 
that you might have never thought you would try.

My thoughts and prayers go out to you.and I wish you the very, very best...
Something good will come to you...

Take care,
Kevin
N.E. Ohio (Canton)






From: Dalton Garis malugss...@gmail.com
To: Carol E snow121...@hotmail.com; tmic-list@eskimo.com
Sent: Thu, June 9, 2011 8:17:56 AM
Subject: Re: [TMIC] Hello


Hi Carol;

This is Dalton.  I just got terminated today.  It seems I couldn't overcome the 
pull of TM, and my classroom work—that of which I was most proud—suffered.  I 
have three months' notice.  Last year they lightened the load and I did OK, but 
they said I worked too little.  This year I taught three courses, teaching 
every 
day, and the pain, fatigue and med-head just made every day agony.  It showed 
and the students complained.  So, that's it.

Up till now they have been very nice.  But they don't keep persons around who 
can't pull the whole load.

Not the way I wanted to go out.

Thanks, 

Dalton


From:  Carol E snow121...@hotmail.com
Date:  Tue, 7 Jun 2011 09:43:34 -0500
To:  tmic-list@eskimo.com
Subject:  [TMIC] Hello
Resent-From:  tmic-list@eskimo.com
Resent-Date:  Tue, 7 Jun 2011 07:44:27 -0700


Just testing to see if I am still on the list.  I'm not receiving messages.


 

Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

RE: [TMIC] Hello

[Tracey L. Black]

I know I don’t post on here very often at all, but felt that I needed to take a 
moment today.

Kevin:

 

That is a great story and I hope that Dalton will take it to heart. 

As I was reading Kevin’s story to Dalton, the first thing that popped into my 
head for Dalton was “Dalton, you should be a tutor or a home school teacher”. 
You have the god given gift of being a teacher. It takes a special person to be 
able to teach a bunch of kids. Just because they complained about you doesn’t 
mean that you can’t be an excellent tutor, mentor or even go to a facility 
something like “Sylvan Learning Center” and continue to do what you love to do. 
Don’t let this setback turn you against teaching. I am sure you would be a 
great asset for anyone that is willing to give you a chance to do what you do 
best.

 

 

Tracey L. Black

Certified Insurance Service Representative

Hockley  O'Donnell Insurance Agency

PO Box 3039, 132 Buford Avenue

Gettysburg, PA 17325

Phone: 717-334-6741, x 29

Fax:   717-334-3414

Office hours:   8:00 a.m. - 5:00 p.m. 

My hours:   9:00 a.m. - 5:00 p.m.

  

  

 

Insurance coverage cannot be bound or altered without confirmation from a 
licensed agent. If you do not hear from us within 1 business day, please 
re-contact us in case your information has not be retained. This message 
contains confidential information for use only by its intended recipients and 
may contain information that is proprietary, privileged, and protected under 
the law (including Gramm-Leach-Bliley and HIPAA/HITECH). If you are not the 
named addressee, you are hereby notified that any use of, distribution of, 
copying, or reliance upon the contents of this e-mail is strictly prohibited 
and may result in criminal or civil penalties. Please notify the sender 
immediately by e-mail if you have received this by mistake and delete this 
e-mail from your system. Thank you.

 

From: kevin weilacher [mailto:hwyfli...@yahoo.com] 
Sent: Thursday, June 09, 2011 10:58 AM
To: Dalton Garis; Carol E; tmic-list@eskimo.com
Subject: Re: [TMIC] Hello

 

Dalton,

I'm sure that I can't totally understand how you must feel about this..I know 
it has to be devastating though...I know you loved teaching and that it was a 
large part of your life.
If I can relate a little story about myselfI was in the Air Force for 20 
yearsand it was my life. I lived and breathed it on a day to day basis
I was somebody because I had a whole group of people I was responsible for 
and also responsible for getting things done
and then I retiredand I was now nobody
Basically starting out fresh in the civilian world.an environment that I 
had to adjust to and become accustomed to.
After a couple of years I found my way into an excellent new career and had 
that old feeling back of being somebody again
and then TM hit and I couldn't go back to work.
That was a huge blow and even now after three years it still bothers me a 
bit
But, my life was in my own hands...there wasn't anyone that was going to do 
anything about it except me...
So, I taught myself a hobby...something that I would have never even delved 
into if it weren't for the fact that TM hit.
I've been doing my wood carving now for about two years and it makes me happier 
than anything ever hasEven though I'm not running a shop or an office and 
I'm not in charge of a group of people anymore...I am in charge of myself and 
have learned that I must continue on regardless of my situation
With my carvings, I now get the pleasure that people enjoy the things that I've 
made with my own two hands.
SoI guess my point is this
This is a tough setback for youthat much I understandbut, this is also 
a new door opening for you to pursue something maybe totally different and 
unique that you might have never thought you would try.

My thoughts and prayers go out to you.and I wish you the very, very best...
Something good will come to you...

Take care,
Kevin
N.E. Ohio (Canton)

 

 



From: Dalton Garis malugss...@gmail.com
To: Carol E snow121...@hotmail.com; tmic-list@eskimo.com
Sent: Thu, June 9, 2011 8:17:56 AM
Subject: Re: [TMIC] Hello




Hi Carol;

 

This is Dalton.  I just got terminated today.  It seems I couldn't overcome the 
pull of TM, and my classroom work—that of which I was most proud—suffered.  I 
have three months' notice.  Last year they lightened the load and I did OK, but 
they said I worked too little.  This year I taught three courses, teaching 
every day, and the pain, fatigue and med-head just made every day agony.  It 
showed and the students complained.  So, that's it.

 

Up till now they have been very nice.  But they don't keep persons around who 
can't pull the whole load.

 

Not the way I wanted to go out.

 

Thanks, 

 

Dalton

 

 

 

From: Carol E snow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: tmic-list@eskimo.com
Subject

Re: [TMIC] Hello

[Susan Ebling]

Dalton,

Hang in there and believe me when I tell you I understand your pain.  Please
try to enjoy the summer weather while you weigh out your future plans.

Susan

On Thu, Jun 9, 2011 at 10:20 AM, Tracey L. Black tracey.bl...@hnoins.comwrote:

 *I know I don’t post on here very often at all, but felt that I needed to
 take a moment today.*

 *Kevin:*

 * *

 *That is a great story and I hope that Dalton will take it to heart. *

 *As I was reading Kevin’s story to Dalton, the first thing that popped
 into my head for Dalton was “Dalton, you should be a tutor or a home school
 teacher”. You have the god given gift of being a teacher. It takes a special
 person to be able to teach a bunch of kids. Just because they complained
 about you doesn’t mean that you can’t be an excellent tutor, mentor or even
 go to a facility something like “Sylvan Learning Center” and continue to do
 what you love to do. Don’t let this setback turn you against teaching. I am
 sure you would be a great asset for anyone that is willing to give you a
 chance to do what you do best.*

 * *

 * *

 *Tracey L. Black*

 *Certified Insurance Service Representative*

 *Hockley  O'Donnell Insurance Agency***

 *PO Box 3039, 132 Buford Avenue*

 *Gettysburg, PA 17325*

 *Phone: 717-334-6741, x 29***

 *Fax:   717-334-3414*

 *Office hours:   8:00 a.m. - 5:00 p.m. *

 *My hours:   9:00 a.m. - 5:00 p.m.*

 *   [image: http://www.scic.com/files/CISRlogo_LoRes.jpg] *[image:
 cid:467173015@08122010-0A21]

   **

 * *

 *Insurance coverage cannot be bound or altered without confirmation from a
 licensed agent. If you do not hear from us within 1 business day, please
 re-contact us in case your information has not be retained. This message
 contains confidential information for use only by its intended recipients
 and may contain information that is proprietary, privileged, and protected
 under the law (including Gramm-Leach-Bliley and HIPAA/HITECH). If you are
 not the named addressee, you are hereby notified that any use of,
 distribution of, copying, or reliance upon the contents of this e-mail is
 strictly prohibited and may result in criminal or civil penalties. Please
 notify the sender immediately by e-mail if you have received this by mistake
 and delete this e-mail from your system. Thank you.***

 * *

 *From:* kevin weilacher [mailto:hwyfli...@yahoo.com]
 *Sent:* Thursday, June 09, 2011 10:58 AM
 *To:* Dalton Garis; Carol E; tmic-list@eskimo.com
 *Subject:* Re: [TMIC] Hello



 Dalton,

 I'm sure that I can't totally understand how you must feel about this..I
 know it has to be devastating though...I know you loved teaching and that it
 was a large part of your life.
 If I can relate a little story about myselfI was in the Air Force for
 20 yearsand it was my life. I lived and breathed it on a day to day
 basis
 I was somebody because I had a whole group of people I was responsible
 for and also responsible for getting things done
 and then I retiredand I was now nobody
 Basically starting out fresh in the civilian world.an environment that
 I had to adjust to and become accustomed to.
 After a couple of years I found my way into an excellent new career and had
 that old feeling back of being somebody again
 and then TM hit and I couldn't go back to work.
 That was a huge blow and even now after three years it still bothers me a
 bit
 But, my life was in my own hands...there wasn't anyone that was going to do
 anything about it except me...
 So, I taught myself a hobby...something that I would have never even delved
 into if it weren't for the fact that TM hit.
 I've been doing my wood carving now for about two years and it makes me
 happier than anything ever hasEven though I'm not running a shop or an
 office and I'm not in charge of a group of people anymore...I am in charge
 of myself and have learned that I must continue on regardless of my
 situation
 With my carvings, I now get the pleasure that people enjoy the things that
 I've made with my own two hands.
 SoI guess my point is this
 This is a tough setback for youthat much I understandbut, this is
 also a new door opening for you to pursue something maybe totally different
 and unique that you might have never thought you would try.

 My thoughts and prayers go out to you.and I wish you the very, very
 best...
 Something good will come to you...

 Take care,
 Kevin
 N.E. Ohio (Canton)




 --

 *From:* Dalton Garis malugss...@gmail.com
 *To:* Carol E snow121...@hotmail.com; tmic-list@eskimo.com
 *Sent:* Thu, June 9, 2011 8:17:56 AM
 *Subject:* Re: [TMIC] Hello


 Hi Carol;



 This is Dalton.  I just got terminated today.  It seems I couldn't overcome
 the pull of TM, and my classroom work—that of which I was most
 proud—suffered.  I have three months' notice.  Last year they lightened the
 load and I did OK, but they said I worked too little.  This year I taught

Re: [TMIC] Hello

[Akua]

Sorry to read this, Dalton!



Hi Carol;

This is Dalton.  I just got terminated today.  It seems I couldn't 
overcome the pull of TM, and my classroom work-that of which I was 
most proud-suffered.  I have three months' notice.  Last year they 
lightened the load and I did OK, but they said I worked too little. 
This year I taught three courses, teaching every day, and the pain, 
fatigue and med-head just made every day agony.  It showed and the 
students complained.  So, that's it.


Up till now they have been very nice.  But they don't keep persons 
around who can't pull the whole load.


Not the way I wanted to go out.

Thanks,

Dalton



From: Carol E mailto:snow121...@hotmail.comsnow121...@hotmail.com
Date: Tue, 7 Jun 2011 09:43:34 -0500
To: mailto:tmic-list@eskimo.comtmic-list@eskimo.com
Subject: [TMIC] Hello
Resent-From: mailto:tmic-list@eskimo.comtmic-list@eskimo.com
Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700


Just testing to see if I am still on the list.  I'm not receiving messages.




Carol
Worrying does not empty
tomorrow of its troubles;
It empties today of its strengths.








--

RE: [TMIC] Hello

[Akua]

Dear Dalton,

Given your wide experience in a part of the world unfamiliar to most 
Americans, I think you should write a book. You should use these last 
90 days to find a agent and maybe get a book deal before you leave. 
Since you'll be back in the U.S. in 90 days, you could consider 
rebranding as an expert --- there's a number of PR firms that 
specialize in this,  -- you'll be the person called on when they need 
a quote on a situation or development.


The book connects to book tours, but then there's always the lecture 
circuit. You can help us understand that Arab and Muslim aren't the 
same thing and that each of those words are nearly useless 
descriptors as they encompass a wide range of cultures, countries, 
traditions and peoples.


As a teacher of economics, you can decode for the public, what this 
or that international policy  means, what the ramifications are


There's media training available... I've forwarded you info from on 
of the small firms involved in grooming experts and getting 
placements.


Further, if you return to NYC --- there are tons of possibilities of 
places to teach and a great infrastructure for getting you whereever 
you need to go --- and that might make the endeavor

easier.

That all be well,
Akua
--

Re: [TMIC] Hello

[Dalton Garis]

YOU ARE ALL SO KIND;

actually, my wife is very happy i will be coming home. says i have been away 
too long.  and now, with not having to pepare for class every day, i can go 
back to writing.  i have one book out there, and i almost have a finished 
manuscript for another.. 

gotta go right now though, miuscle cramps-spasms coming on.  will write later.

love,

dalton
On 10 Jun 2011, at 2:37 AM, Akua wrote:

 Sorry to read this, Dalton!
 
 
 Hi Carol;
 
 This is Dalton.  I just got terminated today.  It seems I couldn't overcome 
 the pull of TM, and my classroom work-that of which I was most 
 proud-suffered.  I have three months' notice.  Last year they lightened the 
 load and I did OK, but they said I worked too little.  This year I taught 
 three courses, teaching every day, and the pain, fatigue and med-head just 
 made every day agony.  It showed and the students complained.  So, that's it.
 
 Up till now they have been very nice.  But they don't keep persons around 
 who can't pull the whole load.
 
 Not the way I wanted to go out.
 
 Thanks,
 
 Dalton
 
 
 
 From: Carol E snow121...@hotmail.com
 Date: Tue, 7 Jun 2011 09:43:34 -0500
 To: tmic-list@eskimo.com
 Subject: [TMIC] Hello
 Resent-From: tmic-list@eskimo.com
 Resent-Date: Tue, 7 Jun 2011 07:44:27 -0700
 
 Just testing to see if I am still on the list.  I'm not receiving messages.
 
 
  
 Carol
 Worrying does not empty
 tomorrow of its troubles;
 It empties today of its strengths.
  
 
 

 
 
 -- 

Re: [TMIC] Hello

[Janice Nichols]

Things are really quiet right now  -  don’t know why, but it will pick up 
eventually.Hope you are doing well.
Janice


From: Carol E 
Sent: Tuesday, June 07, 2011 9:43 AM
To: tmic-list@eskimo.com 
Subject: [TMIC] Hello

Just testing to see if I am still on the list.  I'm not receiving messages.


 

Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

Re: [TMIC] Hello, from Jude

[Alton Ryder]

The news that you are feeling well is pleasing to all of us.  Go Jude!


Alton



On Apr 4, 2011, at 4:26 AM, Jude Hoops wrote:

 Hey friends,
  
 Home from the hospital again, treated for another bad UTI and blood 
 infection.  I am feeling well tonight and cannot sleep, so here I am saying 
 “Hi” to everyone out there who is checking in to see what’s going on.  I hope 
 all has been well with everyone and hope to hear from some of you soon.
  
 Love ya,
 Jude

Re: [TMIC] Hello, from Jude

[john snodgrass]

all is well that ends well and because of this day,Easter,for me, all is well.
wishing all is well to all and glad you are feeling better,
John in WV

--- On Sun, 4/24/11, Alton Ryder a-ry...@comcast.net wrote:

From: Alton Ryder a-ry...@comcast.net
Subject: Re: [TMIC] Hello, from Jude
To: Jude Hoops heyjude48...@aol.com
Cc: tmic-list@eskimo.com
Date: Sunday, April 24, 2011, 8:04 AM

The news that you are feeling well is pleasing to all of us.  Go Jude!


Alton




On Apr 4, 2011, at 4:26 AM, Jude Hoops wrote:



Hey friends,
 
Home from the hospital again, treated for 
another bad UTI and blood infection.  I am feeling well tonight and cannot 
sleep, so here I am saying “Hi” to everyone out there who is checking in to see 
what’s going on.  I hope all has been well with everyone and hope to hear 
from some of you soon.
 
Love ya,
Jude

Re: [TMIC] Hello, from Jude

[Dalton Garis]

Nice to meet you, Jude;

I am going through my own dificulties with a TM-MS flair-up, so haven't been
very communicative.  Shopping for neuros right now.  I live in Abu Dhabi,
UAE, and neurological care is a joke, except for the patients, for whom it
is a tragedy.

I am so sore al over from being in convulsions all yesterday, and am getting
nauseated just walking‹with the crutches, of course.  Yesterday, I got no
sleep, between emergency rooms and back home again.  i'll catch up today,
starting this afternoon, if I am lucky.

Do you think I could get a simple intravenus drip of steroids to take care
of the flair-up?  Forgedaboudit!  How much better I would be today if I
could only have had that steroid drip.  I am afraid that real damage has
been done to the CNS without getting the steroids to calm things down.  I
will see.  Hopefully, I will be better in about a week.

Regards,

Dalton Garis
Abu Dhabi, UAE
Mobile: +971-50-668-5760


From:  heyjude48...@aol.com heyjude48...@aol.com
Date:  Mon, 4 Apr 2011 04:26:18 -0400
To:  tmic-list@eskimo.com
Subject:  [TMIC] Hello, from Jude
Resent-From:  tmic-list@eskimo.com
Resent-Date:  Mon, 4 Apr 2011 01:37:57 -0700

 Hey friends,
  
 Home from the hospital again, treated for another bad UTI and blood infection.
 I am feeling well tonight and cannot sleep, so here I am saying ³Hi² to
 everyone out there who is checking in to see what¹s going on.  I hope all has
 been well with everyone and hope to hear from some of you soon.
  
 Love ya,
 Jude

Re: [TMIC] Hello, from Jude

[Janice Nichols]

Dalton, don’t know what to say except you get my prayers and advice to retire 
and get your butt back to the US and much better doctors. Easy to say, I 
know, but we are talking about
your health and it needs to last you the rest of your life – such as it is 
right now, it isn’t so great. Think about it.
Janice

From: Dalton Garis 
Sent: Tuesday, April 05, 2011 3:38 AM
To: Jude Hoops ; tmic-list@eskimo.com 
Subject: Re: [TMIC] Hello, from Jude

Nice to meet you, Jude;

I am going through my own dificulties with a TM-MS flair-up, so haven't been 
very communicative.  Shopping for neuros right now.  I live in Abu Dhabi, UAE, 
and neurological care is a joke, except for the patients, for whom it is a 
tragedy.

I am so sore al over from being in convulsions all yesterday, and am getting 
nauseated just walking—with the crutches, of course.  Yesterday, I got no 
sleep, between emergency rooms and back home again.  i'll catch up today, 
starting this afternoon, if I am lucky.  

Do you think I could get a simple intravenus drip of steroids to take care of 
the flair-up?  Forgedaboudit!  How much better I would be today if I could only 
have had that steroid drip.  I am afraid that real damage has been done to the 
CNS without getting the steroids to calm things down.  I will see.  Hopefully, 
I will be better in about a week.

Regards,

Dalton Garis
Abu Dhabi, UAE
Mobile: +971-50-668-5760


From: heyjude48...@aol.com heyjude48...@aol.com
Date: Mon, 4 Apr 2011 04:26:18 -0400
To: tmic-list@eskimo.com
Subject: [TMIC] Hello, from Jude
Resent-From: tmic-list@eskimo.com
Resent-Date: Mon, 4 Apr 2011 01:37:57 -0700


  Hey friends,

  Home from the hospital again, treated for another bad UTI and blood 
infection.  I am feeling well tonight and cannot sleep, so here I am saying 
“Hi” to everyone out there who is checking in to see what’s going on.  I hope 
all has been well with everyone and hope to hear from some of you soon.

  Love ya,
  Jude

Re: [TMIC] Hello, from Jude

[john snodgrass]

sorry to hear of the trouble Jude but glad your all fixed up again.same ole 
same ole here in this body.

--- On Mon, 4/4/11, Jude Hoops heyjude48...@aol.com wrote:

From: Jude Hoops heyjude48...@aol.com
Subject: [TMIC] Hello, from Jude
To: tmic-list@eskimo.com
Date: Monday, April 4, 2011, 4:26 AM


 


Hey friends,
 
Home from the hospital again, treated for 
another bad UTI and blood infection.  I am feeling well tonight and cannot 
sleep, so here I am saying “Hi” to everyone out there who is checking in to see 
what’s going on.  I hope all has been well with everyone and hope to hear 
from some of you soon.
 
Love ya,
Jude 



  

RE: [TMIC] Hello, from Jude

[Patricia Cooley]

Jude I am sorry you had been in the hospital with another UTI infection, but it 
is so good to hear from you.  I hope all is well now for a long, long time.  In 
early February, I too was in the hospital.  It started with a BAD ear infection 
and went into a bad UTI.  In fact, my doctor said she had never seen such a 
severe UTI.  I understand that when you are older they can be very, very 
serious.  I lost all the strength and mobility I had achieved after getting TM, 
so I spent another week in rehab and then 5 weeks with PT at home.  You take 
care and I hope to see more posts from you in the future, even just to say “III”

 

Patti - Wisconsin

 

From: Jude Hoops [mailto:heyjude48...@aol.com] 
Sent: Monday, April 04, 2011 3:26 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Hello, from Jude

 

Hey friends,

 

Home from the hospital again, treated for another bad UTI and blood infection.  
I am feeling well tonight and cannot sleep, so here I am saying “Hi” to 
everyone out there who is checking in to see what’s going on.  I hope all has 
been well with everyone and hope to hear from some of you soon.

 

Love ya,

Jude

Re: [TMIC] Hello, from Jude

[kevin weilacher]

Hi Jude,

It sure is good to hear from you again...   Sorry to hear about the health 
issues though. 


Stay well and keep yourself out of that blasted hospital...

I know you're not on Facebook very much but we have a wonderful group on there 
that I started a couple of months back...called TM Folk. I have you added on 
there as a member...you should stop by and check us out...Gracie and pretty 
much 
the rest of the gang is on there too...I think you would enjoy it...
Take care of yourself.My thoughts and prayers are always with you...
Kevin Weilacher
N.E. Ohio (Canton)


From:Jude Hoops [mailto:heyjude48...@aol.com] 
Sent: Monday, April 04, 2011 3:26 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Hello, from Jude
 
Hey friends,
 
Home from the hospital again, treated for another bad UTI and blood infection.  
I am feeling well tonight and cannot sleep, so here I am saying “Hi” to 
everyone 
out there who is checking in to see what’s going on.  I hope all has been well 
with everyone and hope to hear from some of you soon.
 
Love ya,
Jude


  

Re: [TMIC] Hello, from Jude

[Roger Terese Pratt]

Jude, I too am sorry that you've been back in the hospital, but it is good to 
see your post on the list.  I too have had a difficult year. After 16 years 
with Transverse Myelitis I developed a new autoimmune disease, Mononeuritis 
Multiplex that attacks peripheral blood vessels and nerves. I've had about six 
months of IV steroids once a week and am taking an immune suppressant, 
Azathioprine.  My wife was also diagnosed with Parkinsons in December.  What 
doesn't kill us just makes us stronger (I guess).  Hope things go well for you 
now.

- Roger Pratt in Kennewick, WA

- Original Message -
From: Patricia Cooley patticoole...@gmail.com
To: Jude Hoops heyjude48...@aol.com, tmic-list@eskimo.com
Sent: Monday, April 4, 2011 7:14:48 AM
Subject: RE: [TMIC] Hello, from Jude




Jude I am sorry you had been in the hospital with another UTI infection, but it 
is so good to hear from you.  I hope all is well now for a long, long time.  In 
early February, I too was in the hospital.  It started with a BAD ear infection 
and went into a bad UTI.  In fact, my doctor said she had never seen such a 
severe UTI.  I understand that when you are older they can be very, very 
serious.  I lost all the strength and mobility I had achieved after getting TM, 
so I spent another week in rehab and then 5 weeks with PT at home.  You take 
care and I hope to see more posts from you in the future, even just to say 
“III” 

  

Patti - Wisconsin 

  



From: Jude Hoops [mailto:heyjude48...@aol.com] 
Sent: Monday, April 04, 2011 3:26 AM 
To: tmic-list@eskimo.com 
Subject: [TMIC] Hello, from Jude 

  




Hey friends, 


  


Home from the hospital again, treated for another bad UTI and blood infection.  
I am feeling well tonight and cannot sleep, so here I am saying “Hi” to 
everyone out there who is checking in to see what’s going on.  I hope all has 
been well with everyone and hope to hear from some of you soon. 


  


Love ya, 


Jude

Re: [TMIC] Hello, from Jude

[Janice Nichols]

Jude,
It is really good to hear from you again.Maybe this will be the last of the 
infections! You must be a pretty tough lady to have gone through all you
have been through and end up feeling much better again.Keep reading our 
posts and chime in – we miss you.
Janice

From: Patricia Cooley 
Sent: Monday, April 04, 2011 9:14 AM
To: 'Jude Hoops' ; tmic-list@eskimo.com 
Subject: RE: [TMIC] Hello, from Jude

Jude I am sorry you had been in the hospital with another UTI infection, but it 
is so good to hear from you.  I hope all is well now for a long, long time.  In 
early February, I too was in the hospital.  It started with a BAD ear infection 
and went into a bad UTI.  In fact, my doctor said she had never seen such a 
severe UTI.  I understand that when you are older they can be very, very 
serious.  I lost all the strength and mobility I had achieved after getting TM, 
so I spent another week in rehab and then 5 weeks with PT at home.  You take 
care and I hope to see more posts from you in the future, even just to say “III”

 

Patti - Wisconsin

 

From: Jude Hoops [mailto:heyjude48...@aol.com] 
Sent: Monday, April 04, 2011 3:26 AM
To: tmic-list@eskimo.com
Subject: [TMIC] Hello, from Jude

 

Hey friends,

 

Home from the hospital again, treated for another bad UTI and blood infection.  
I am feeling well tonight and cannot sleep, so here I am saying “Hi” to 
everyone out there who is checking in to see what’s going on.  I hope all has 
been well with everyone and hope to hear from some of you soon.

 

Love ya,

Jude

Re: [TMIC] Hello, from Jude

[Akua]

Hi Jude!
Wish you  the best.
Akua

--

Re: [TMIC] hello

[Celrods]

JUDE I AM SO HAPPY TO FINALLY HEAR FROM YOU! YOU HAVE BEEN IN MY  THOUGHTS.
 
JANE/SPLENDORA TX
 
 
 
 
In a message dated 11/30/2010 2:11:18 A.M. Central Standard Time,  
heyjude48...@aol.com writes:

 
Hello Group,
 
This is Judy Hoops (Jude) and it has been quite a  while since I have 
written to the site.  No reason why, except that maybe  I needed a break from 
all 
of the talk of the “blusey” side of the  disease.  I try to maintain a 
positive attitude, but since the death of  my best TM friend, Pam Montz, I 
needed a long break before I could once more  become an active participant of 
the group like I used to be.
 
For new members, I have had TM for somewhat more  than eight years, can’t 
recall due to memory dysfunction, and other related  symptoms of TM, for one 
being a difficulty in typing, where I used to be a  whiz...maybe just a 
matter of continuing to do it on a regular basis.  I  am paralyzed from T3 
(breast level with the use of my arms, Thank God.)   I have horrible continuous 
pain from T3 on the Spinal Column to the tips of my  toes.  I am not able to 
walk, use a wheelchair to get around and spend a  lot of time in bed just 
because of laziness.
 
We have no children and do not have a large  social group and no family to 
speak of.  My husband wanted property so we  moved out of our living area 
where we had resided forever, to a small, and I  mean “small” village where 
we have 5 acres and a nice two story home, which we  bought before I became 
ill.  Now, the house makes no sense whatsoever and  I am able to use only a 
small portion of it; my bedroom, which used to be the  den, the 
kitchen/dining area and living room.  I have spent so long in my  bedroom that 
I have 
forgotten what the rest of the house looks like.   It’s either that or the 
memory difficulties which I just two days ago began  taking meds to, hopefully, 
reverse the dysfunction.
 
OK, that’s all I can muster for my first time  back.  What’s going on with 
all of my old friends?  Let me  know.
I love you all,
Jude
 
Anyway, I make use of the three rooms, but my  husband does all of the 
cooking and eats in my room with me, and he takes care  of all of the remaining 
household chores that I cannot do because of the  constant intense pain I 
experience 24/7.  I have pain meds, but hate to  take them because they turn 
me into a “zombie” and it affects most of my  “normal” human existence, as 
it is.  Most of you know what I mean, the  rest of you will catch on the 
longer you have TM and continue to read these  excerpts.  
 

Re: [TMIC] hello out there

[john snodgrass]

i have asked my Dr a couple of times why i have the symptoms with no lesions 
and he said it was because of the nerves damaged from the TM
 

--- On Tue, 11/9/10, Dalton Garis malugss...@gmail.com wrote:


From: Dalton Garis malugss...@gmail.com
Subject: Re: [TMIC] hello out there
To: L T CHERPESKI cherp...@msn.com, tmic-list@eskimo.com, Carol E 
snow121...@hotmail.com
Date: Tuesday, November 9, 2010, 11:19 PM


So, I have all the symptoms;

But no lesions.  OK, I’m stumped, except that the brainstem lesions are still 
there.

Dalton



From: L T CHERPESKI cherp...@msn.com
Date: Tue, 9 Nov 2010 21:16:00 -0700
To: Dalton Garis malugss...@gmail.com, tmic-list@eskimo.com, Carol E 
snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800

This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!
 
Linda  in Eagle, ID


- Original Message - 
 
From: Carol  E mailto:snow121...@hotmail.com  
 
To: malugss...@gmail.com ; tmic-list@eskimo.com 
 
Sent: Tuesday, November 09, 2010 9:04  PM
 
Subject: RE: [TMIC] hello out there
 

Hi Dalton and all,
I was 1st diagnosed with TM June  2005.  I had lesions from T7-T10.  Every time 
I have new MRI's,  I am always told that I have no new lesions, but they can 
still see the old  ones which are inactive.  So I would say the lesions do not 
go away, they  are there like a scar.  


 

Carol  in  Addison, IL

 



   
 


Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out  there
From: malugss...@gmail.com
To: jan...@centurytel.net;  balmat...@aol.com; tmic-list@eskimo.com

 Hey, Janice!

We  missed you.  And I missed you.  Glad to have you back with  us.

I have a question for everyone.  A recent set of MRIs showed  that my spine in 
the thoracic was clear with no lesions or swellings.  It  has been one year 
since the diagnosis for TM.

Do these lesions clear up  later on, or did somebody make a mistake somewhere?  
Because my everyday  symptoms are still weakness and pain from fingers to just 
above the elbow, and  from toes to above the knees with banding and burning in 
the torso and back.   And if I exercise at all, the next day I am in for 
day-long spasms that  leave me housebound and often unable to get around 
without assistance of my  dear part-time maid and helper.

Could someone get back to me on  this?

Thanks a lot.

Dalton

 


From: Janice Nichols jan...@centurytel.net http://jan...@centurytel.net 
Date: Tue, 9 Nov 2010  19:28:29 -0600
To: Dalton Garis malugss...@gmail.com http://malugss...@gmail.com ,  
Barbara Alma balmat...@aol.com http://balmat...@aol.com , 
tmic-list@eskimo.com http://tmic-list@eskimo.com 
Subject: Re: [TMIC] hello  out there

I do too, Dalton. You have a different set of problems that I have not 
heard  in other TM'ers. Sure wish you would get you act  together - scares 
me!!!
Seriously, I hope that is the last day you will  have like that.
Janice

From:  Dalton Garis mailto:malugss...@gmail.com   
Sent: Sunday, November 07, 2010 10:23 AM
To:  Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
http://tmic-list@eskimo.com   
Subject: Re: [TMIC] hello out there

Actually;

I had a  day-long attack of spasms yesterday which left me unable to control 
either my  hands and arms, legs, torso or speech.  Every time I tried to talk I 
 would cramp up. And Elvis was definitely being channeled in my body.   Thank 
heavens I had the assistance of a very nice and strong maid who  visits me once 
a week.  It was her day to visit and she stayed with me  and helped me to the 
bathroom and into and out of chairs.  It was hard to  sit down because I 
couldn’t make my body bend and I’d just slide off.   But we got it under 
control.  She had to help me drink and eat.   I would grab the coffee cup 
handle and then could not make my hand let  go.

In the mean time I was so grateful for her assistance and that the  Lord was 
taking care of me that I was also as high as a kite and proposing  marriage to 
chairs and such.  

Today was the beginning of the work  week here (Abu Dhabi) and I did alright.  
But the lecture kept going off  on these tangents making it hard for my class 
to take useful notes.  It  was because my mental state was still flying around 
the cosmos.

What is  going on here?  OK, I have TM in my upper spine; but what is this 
mental  derangement stuff?  I sure wish the drs could find out what is wrong 
with  me.

Dalton

 


From: Barbara Alma balmat...@aol.com http://balmat...@aol.com 
Date: Sun, 7 Nov 2010  00:48:22 -0400 (EDT)
To: tmic-list@eskimo.com http://tmic-list@eskimo.com

RE: [TMIC] hello out there

[john snodgrass]

yeah my DR explained it like a road patch.
 
you know,,if theres a hole in the pavement and the road crew puts a patch of 
asphalt in it instead of replacing the whole road, you can plainly see that 
there was a hole there because of the patch.
 
he said thats what the myelin looks like in the affected areas after the 
proteen is replaced at the lesions.

--- On Tue, 11/9/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Tuesday, November 9, 2010, 11:04 PM




Hi Dalton and all,
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every time 
I have new MRI's, I am always told that I have no new lesions, but they can 
still see the old ones which are inactive.  So I would say the lesions do not 
go away, they are there like a scar.  




Carol  in Addison, IL
 


  


Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

Hey, Janice!

We missed you.  And I missed you.  Glad to have you back with us.

I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

Do these lesions clear up later on, or did somebody make a mistake somewhere?  
Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

Could someone get back to me on this?

Thanks a lot.

Dalton



From: Janice Nichols jan...@centurytel.net
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com, 
tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

I do too, Dalton.    You have a different set of problems that I have not heard 
in other TM'ers. Sure wish you would get you act together - scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice

From: Dalton Garis mailto:malugss...@gmail.com  
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there

Actually;

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me.

Dalton



From: Barbara Alma balmat...@aol.com
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message or two.
 
Hugs, Barbara A in Auburn CA





  

RE: [TMIC] hello out there

[john snodgrass]

Carol E,
 
your sunday to present condition sounds almost exactly like mine.
 
heavy sigh.

--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM




I also have the residuals as Linda mentioned...burning, banding, weakness, 
bladder control.  Sometimes I can void normally (pre TM) and other times I have 
to sit on the pot for 5 minutes to void.  I feel like I am about to burst, but 
nothing comes out.  I wiggle and wiggle and finally a slow trickle that takes 
maybe another 3 minutes.  I would say about half the time I void normally and 
half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  itching 
sensation and then Sunday immense pain began about 3 inches lower, about waist 
level and lower.  My hips hurt and painful when I stand and bear weight.  I was 
taking Aleve for my discomfort and this week I graduated to Vicodin and 
Flexeril.  I'm not sure, but I think my pain is from spinal stenosis and 
bulging disks instead of the TM.  I have scheduled my 2nd Lumbar Epidural for 
next week, if I still need it.  Would have gone this week, but I have to 
discontinue Plavix, aspirin and Aleve before I can get the epidural.  What a 
zoo!




Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 


  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700



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This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!
 
Linda  in Eagle, ID

- Original Message - 
From: Carol E 
To: malugss...@gmail.com ; tmic-list@eskimo.com 
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out there

Hi Dalton and all,
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every time 
I have new MRI's, I am always told that I have no new lesions, but they can 
still see the old ones which are inactive.  So I would say the lesions do not 
go away, they are there like a scar.  




Carol  in Addison, IL
 


  


Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

Hey, Janice!

We missed you.  And I missed you.  Glad to have you back with us.

I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

Do these lesions clear up later on, or did somebody make a mistake somewhere?  
Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

Could someone get back to me on this?

Thanks a lot.

Dalton



From: Janice Nichols jan...@centurytel.net
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com, 
tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

I do too, Dalton.    You have a different set of problems that I have not heard 
in other TM'ers. Sure wish you would get you act together - scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice

From: Dalton Garis mailto:malugss...@gmail.com  
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there

Actually;

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would

Re: [TMIC] hello out there

[CANDIS KALLEY]

I also have the problem for voiding.  I have learned something that helps most 
of the time - bending over like touching you feet.  This seems to put pressure 
on the bladder forcing voiding! 

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile. 


Prayers and thoughts for you and yours, 

Candy K. 

- Original Message - 
From: john snodgrass jcs...@yahoo.com 
To: transverse myelitis tmic-list@eskimo.com 
Sent: Wednesday, November 10, 2010 11:15:06 AM 
Subject: RE: [TMIC] hello out there 


Carol E, 

your sunday to present condition sounds almost exactly like mine. 

heavy sigh. 

--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote: 



From: Carol E snow121...@hotmail.com 
Subject: RE: [TMIC] hello out there 
To: malugss...@gmail.com, tmic-list@eskimo.com 
Date: Wednesday, November 10, 2010, 11:06 AM 


I also have the residuals as Linda mentioned...burning, banding, weakness, 
bladder control.  Sometimes I can void normally (pre TM) and other times I have 
to sit on the pot for 5 minutes to void.  I feel like I am about to burst, but 
nothing comes out.  I wiggle and wiggle and finally a slow trickle that takes 
maybe another 3 minutes.  I would say about half the time I void normally and 
half of the time, I don't.  
  
This week, my back is killing me.  It started Saturday with a burning  itching 
sensation and then Sunday immense pain began about 3 inches lower, about waist 
level and lower.  My hips hurt and painful when I stand and bear weight.  I was 
taking Aleve for my discomfort and this week I graduated to Vicodin and 
Flexeril.  I'm not sure, but I think my pain is from spinal stenosis and 
bulging disks instead of the TM.  I have scheduled my 2nd Lumbar Epidural for 
next week, if I still need it.  Would have gone this week, but I have to 
discontinue Plavix, aspirin and Aleve before I can get the epidural.  What a 
zoo! 




Carol 
Worrying does not empty 
tomorrow of its troubles; 
It empties today of its strengths. 
Worrying does not empty 
tomorrow of its troubles; 
It empties today of its strengths. 




  

From: cherp...@msn.com 
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com 
Subject: Re: [TMIC] hello out there 
Date: Tue, 9 Nov 2010 21:16:00 -0700 



This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different. 
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better! 

Linda  in Eagle, ID 


- Original Message - 
From: Carol E 
To: malugss...@gmail.com ; tmic-list@eskimo.com 
Sent: Tuesday, November 09, 2010 9:04 PM 
Subject: RE: [TMIC] hello out there 

Hi Dalton and all, 
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every time 
I have new MRI's, I am always told that I have no new lesions, but they can 
still see the old ones which are inactive.  So I would say the lesions do not 
go away, they are there like a scar.  




Carol  in Addison, IL 



  

Date: Wed, 10 Nov 2010 07:50:59 +0400 
Subject: Re: [TMIC] hello out there 
From: malugss...@gmail.com 
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com 

Hey, Janice! 

We missed you.  And I missed you.  Glad to have you back with us. 

I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM. 

Do these lesions clear up later on, or did somebody make a mistake somewhere?  
Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper. 

Could someone get back to me on this? 

Thanks a lot. 

Dalton 


From: Janice Nichols  jan...@centurytel.net  
Date: Tue, 9 Nov 2010 19:28:29 -0600 
To: Dalton Garis  malugss...@gmail.com , Barbara Alma  balmat...@aol.com , 
 tmic-list@eskimo.com  
Subject: Re: [TMIC] hello out there 

I do too, Dalton.    You have a different set of problems that I have not heard 
in other TM'ers. Sure wish you would get you act together - scares me!!! 
Seriously, I hope that is the last day you will have like that. 
Janice 

From: Dalton Garis  mailto:malugss...@gmail.com    
Sent: Sunday, November 07, 2010 10:23 AM 
To: Barbara Alma  mailto:balmat...@aol.com   ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there 

Actually; 

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs

Re: [TMIC] hello out there

[Janice Nichols]

Okay, guys, I think that we are all getting a little different answers to our 
questions when talking to the doc's.I wonder if some of the answers aren't 
just
spur of the moment replies, because they aren't sure and want to give an 
answer.  Remember how rare TM is.
Maybe Dr. Frank should get in on this. I would trust his answers.
Janice



From: john snodgrass 
Sent: Wednesday, November 10, 2010 4:02 AM
To: transverse myelitis 
Subject: Re: [TMIC] hello out there


  i have asked my Dr a couple of times why i have the symptoms with no 
lesions and he said it was because of the nerves damaged from the TM


  --- On Tue, 11/9/10, Dalton Garis malugss...@gmail.com wrote:


From: Dalton Garis malugss...@gmail.com
Subject: Re: [TMIC] hello out there
To: L T CHERPESKI cherp...@msn.com, tmic-list@eskimo.com, Carol E 
snow121...@hotmail.com
Date: Tuesday, November 9, 2010, 11:19 PM


So, I have all the symptoms;

But no lesions.  OK, I’m stumped, except that the brainstem lesions are 
still there.

Dalton



From: L T CHERPESKI cherp...@msn.com
Date: Tue, 9 Nov 2010 21:16:00 -0700
To: Dalton Garis malugss...@gmail.com, tmic-list@eskimo.com, Carol 
E snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800

This is what I have been told also.  My lesions can still be seen but 
they are inactive (C4,5,6). I was told they are like a scar.  However, I've 
seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - 
it's just that some days are better than others.  It's going on 9 years for me. 
 Hope you get to feeling better!
 
Linda  in Eagle, ID


  - Original Message - 
   
  From: Carol  E mailto:snow121...@hotmail.com  
   
  To: malugss...@gmail.com ; tmic-list@eskimo.com 
   
  Sent: Tuesday, November 09, 2010 9:04  PM
   
  Subject: RE: [TMIC] hello out there
   

  Hi Dalton and all,
  I was 1st diagnosed with TM June  2005.  I had lesions from T7-T10.  
Every time I have new MRI's,  I am always told that I have no new lesions, but 
they can still see the old  ones which are inactive.  So I would say the 
lesions do not go away, they  are there like a scar.  


   

  Carol  in  Addison, IL

   



 
   

--
  Date: Wed, 10 Nov 2010 07:50:59 +0400
  Subject: Re: [TMIC] hello out  there
  From: malugss...@gmail.com
  To: jan...@centurytel.net;  balmat...@aol.com; tmic-list@eskimo.com

   Hey, Janice!

  We  missed you.  And I missed you.  Glad to have you back with  us.

  I have a question for everyone.  A recent set of MRIs showed  that my 
spine in the thoracic was clear with no lesions or swellings.  It  has been one 
year since the diagnosis for TM.

  Do these lesions clear up  later on, or did somebody make a mistake 
somewhere?  Because my everyday  symptoms are still weakness and pain from 
fingers to just above the elbow, and  from toes to above the knees with banding 
and burning in the torso and back.   And if I exercise at all, the next day I 
am in for day-long spasms that  leave me housebound and often unable to get 
around without assistance of my  dear part-time maid and helper.

  Could someone get back to me on  this?

  Thanks a lot.

  Dalton

   

--
  From: Janice Nichols jan...@centurytel.net 
http://jan...@centurytel.net 
  Date: Tue, 9 Nov 2010  19:28:29 -0600
  To: Dalton Garis malugss...@gmail.com http://malugss...@gmail.com 
,  Barbara Alma balmat...@aol.com http://balmat...@aol.com , 
tmic-list@eskimo.com http://tmic-list@eskimo.com 
  Subject: Re: [TMIC] hello  out there

  I do too, Dalton. You have a different set of problems that I 
have not heard  in other TM'ers. Sure wish you would get you act  together 
- scares me!!!
  Seriously, I hope that is the last day you will  have like that.
  Janice

  From:  Dalton Garis mailto:malugss...@gmail.com   
  Sent: Sunday, November 07, 2010 10:23 AM
  To:  Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
http://tmic-list@eskimo.com   
  Subject: Re: [TMIC] hello out there

  Actually;

  I had a  day-long attack of spasms yesterday which left me unable to 
control either my  hands and arms, legs, torso or speech.  Every time I tried 
to talk I  would cramp up

Re: [TMIC] hello out there

[Janice Nichols]

I have painful arthritis in my lower back and my pain management doc says that 
the TM aggravates the arthritis and the arthritis aggravates the TM.I bet 
it is
the same way with you.I also get injections in my back for pain.How 
often do you get an injection?
Janice


From: Carol E 
Sent: Wednesday, November 10, 2010 10:06 AM
To: malugss...@gmail.com ; tmic-list@eskimo.com 
Subject: RE: [TMIC] hello out there


I also have the residuals as Linda mentioned...burning, banding, weakness, 
bladder control.  Sometimes I can void normally (pre TM) and other times I have 
to sit on the pot for 5 minutes to void.  I feel like I am about to burst, but 
nothing comes out.  I wiggle and wiggle and finally a slow trickle that takes 
maybe another 3 minutes.  I would say about half the time I void normally and 
half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  itching 
sensation and then Sunday immense pain began about 3 inches lower, about waist 
level and lower.  My hips hurt and painful when I stand and bear weight.  I was 
taking Aleve for my discomfort and this week I graduated to Vicodin and 
Flexeril.  I'm not sure, but I think my pain is from spinal stenosis and 
bulging disks instead of the TM.  I have scheduled my 2nd Lumbar Epidural for 
next week, if I still need it.  Would have gone this week, but I have to 
discontinue Plavix, aspirin and Aleve before I can get the epidural.  What a 
zoo!



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 





  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700


This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!

Linda  in Eagle, ID
  - Original Message - 
  From: Carol E 
  To: malugss...@gmail.com ; tmic-list@eskimo.com 
  Sent: Tuesday, November 09, 2010 9:04 PM
  Subject: RE: [TMIC] hello out there


  Hi Dalton and all,
  I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every 
time I have new MRI's, I am always told that I have no new lesions, but they 
can still see the old ones which are inactive.  So I would say the lesions do 
not go away, they are there like a scar.  



  Carol  in Addison, IL






--
  Date: Wed, 10 Nov 2010 07:50:59 +0400
  Subject: Re: [TMIC] hello out there
  From: malugss...@gmail.com
  To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

  Hey, Janice!

  We missed you.  And I missed you.  Glad to have you back with us.

  I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

  Do these lesions clear up later on, or did somebody make a mistake somewhere? 
 Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

  Could someone get back to me on this?

  Thanks a lot.

  Dalton


--
  From: Janice Nichols jan...@centurytel.net
  Date: Tue, 9 Nov 2010 19:28:29 -0600
  To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com, 
tmic-list@eskimo.com
  Subject: Re: [TMIC] hello out there

  I do too, Dalton.You have a different set of problems that I have not 
heard in other TM'ers. Sure wish you would get you act together - scares 
me!!!
  Seriously, I hope that is the last day you will have like that.
  Janice

  From: Dalton Garis mailto:malugss...@gmail.com  
  Sent: Sunday, November 07, 2010 10:23 AM
  To: Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
  Subject: Re: [TMIC] hello out there

  Actually;

  I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard

RE: [TMIC] hello out there

[Carol E]

I also have the residuals as Linda mentioned...burning, banding, weakness, 
bladder control.  Sometimes I can void normally (pre TM) and other times I have 
to sit on the pot for 5 minutes to void.  I feel like I am about to burst, but 
nothing comes out.  I wiggle and wiggle and finally a slow trickle that takes 
maybe another 3 minutes.  I would say about half the time I void normally and 
half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  itching 
sensation and then Sunday immense pain began about 3 inches lower, about waist 
level and lower.  My hips hurt and painful when I stand and bear weight.  I was 
taking Aleve for my discomfort and this week I graduated to Vicodin and 
Flexeril.  I'm not sure, but I think my pain is from spinal stenosis and 
bulging disks instead of the TM.  I have scheduled my 2nd Lumbar Epidural for 
next week, if I still need it.  Would have gone this week, but I have to 
discontinue Plavix, aspirin and Aleve before I can get the epidural.  What a 
zoo!



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 


 



From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700






This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!
 
Linda  in Eagle, ID

- Original Message - 
From: Carol E 
To: malugss...@gmail.com ; tmic-list@eskimo.com 
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out there

Hi Dalton and all,
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every time 
I have new MRI's, I am always told that I have no new lesions, but they can 
still see the old ones which are inactive.  So I would say the lesions do not 
go away, they are there like a scar.  




Carol  in Addison, IL
 


  


Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

Hey, Janice!

We missed you.  And I missed you.  Glad to have you back with us.

I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

Do these lesions clear up later on, or did somebody make a mistake somewhere?  
Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

Could someone get back to me on this?

Thanks a lot.

Dalton



From: Janice Nichols jan...@centurytel.net
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com, 
tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

I do too, Dalton.You have a different set of problems that I have not heard 
in other TM'ers. Sure wish you would get you act together - scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice

From: Dalton Garis mailto:malugss...@gmail.com  
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there

Actually;

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

What is going on here?  OK, I have TM in my upper spine; but what

Re: [TMIC] hello out there

[Janice Nichols]

Carol, how are you at staying dry during the nite? I have a real problem 
with that and always have to wear protection and sometimes that doesn't always 
work.   Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a 
real wetting problem and then I can go for a couple of weeks and stay fairly 
dry.   We can't
seem to pin down the reason for this. I am beginning to think on the days 
that I don't take a nap (45min to hour) that I sleep too hard and don't feel 
the urge until it
is too late.Time will tell. It is the pits!
Janice



From: john snodgrass 
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis 
Subject: RE: [TMIC] hello out there


  Carol E,

  your sunday to present condition sounds almost exactly like mine.

  heavy sigh.

  --- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM


I also have the residuals as Linda mentioned...burning, banding, 
weakness, bladder control.  Sometimes I can void normally (pre TM) and other 
times I have to sit on the pot for 5 minutes to void.  I feel like I am about 
to burst, but nothing comes out.  I wiggle and wiggle and finally a slow 
trickle that takes maybe another 3 minutes.  I would say about half the time I 
void normally and half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  
itching sensation and then Sunday immense pain began about 3 inches lower, 
about waist level and lower.  My hips hurt and painful when I stand and bear 
weight.  I was taking Aleve for my discomfort and this week I graduated to 
Vicodin and Flexeril.  I'm not sure, but I think my pain is from spinal 
stenosis and bulging disks instead of the TM.  I have scheduled my 2nd Lumbar 
Epidural for next week, if I still need it.  Would have gone this week, but I 
have to discontinue Plavix, aspirin and Aleve before I can get the epidural.  
What a zoo!



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 





  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700


This is what I have been told also.  My lesions can still be seen but 
they are inactive (C4,5,6). I was told they are like a scar.  However, I've 
seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - 
it's just that some days are better than others.  It's going on 9 years for me. 
 Hope you get to feeling better!

Linda  in Eagle, ID
  - Original Message - 
  From: Carol E 
  To: malugss...@gmail.com ; tmic-list@eskimo.com 
  Sent: Tuesday, November 09, 2010 9:04 PM
  Subject: RE: [TMIC] hello out there


  Hi Dalton and all,
  I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  
Every time I have new MRI's, I am always told that I have no new lesions, but 
they can still see the old ones which are inactive.  So I would say the lesions 
do not go away, they are there like a scar.  



  Carol  in Addison, IL






--
  Date: Wed, 10 Nov 2010 07:50:59 +0400
  Subject: Re: [TMIC] hello out there
  From: malugss...@gmail.com
  To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

  Hey, Janice!

  We missed you.  And I missed you.  Glad to have you back with us.

  I have a question for everyone.  A recent set of MRIs showed that my 
spine in the thoracic was clear with no lesions or swellings.  It has been one 
year since the diagnosis for TM.

  Do these lesions clear up later on, or did somebody make a mistake 
somewhere?  Because my everyday symptoms are still weakness and pain from 
fingers to just above the elbow, and from toes to above the knees with banding 
and burning in the torso and back.  And if I exercise at all, the next day I am 
in for day-long spasms that leave me housebound and often unable to get around 
without assistance of my dear part-time maid and helper.

  Could someone get back to me on this?

  Thanks a lot.

  Dalton


--
  From: Janice Nichols jan...@centurytel.net
  Date: Tue, 9 Nov 2010 19:28:29 -0600
  To: Dalton Garis malugss...@gmail.com, Barbara Alma 
balmat...@aol.com, tmic-list

Re: [TMIC] hello out there

[Janice Nichols]

You are right, that helps.Also, blowing your nose does too! I void 
completely when I go, but apparently make a lot of urine late at nite.
Janice


From: CANDIS KALLEY 
Sent: Wednesday, November 10, 2010 10:28 AM
To: tmic-list 
Subject: Re: [TMIC] hello out there


I also have the problem for voiding.  I have learned something that helps most 
of the time - bending over like touching you feet.  This seems to put pressure 
on the bladder forcing voiding!

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: john snodgrass jcs...@yahoo.com
To: transverse myelitis tmic-list@eskimo.com
Sent: Wednesday, November 10, 2010 11:15:06 AM
Subject: RE: [TMIC] hello out there

  Carol E,

  your sunday to present condition sounds almost exactly like mine.

  heavy sigh.

  --- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM


I also have the residuals as Linda mentioned...burning, banding, 
weakness, bladder control.  Sometimes I can void normally (pre TM) and other 
times I have to sit on the pot for 5 minutes to void.  I feel like I am about 
to burst, but nothing comes out.  I wiggle and wiggle and finally a slow 
trickle that takes maybe another 3 minutes.  I would say about half the time I 
void normally and half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  
itching sensation and then Sunday immense pain began about 3 inches lower, 
about waist level and lower.  My hips hurt and painful when I stand and bear 
weight.  I was taking Aleve for my discomfort and this week I graduated to 
Vicodin and Flexeril.  I'm not sure, but I think my pain is from spinal 
stenosis and bulging disks instead of the TM.  I have scheduled my 2nd Lumbar 
Epidural for next week, if I still need it.  Would have gone this week, but I 
have to discontinue Plavix, aspirin and Aleve before I can get the epidural.  
What a zoo!



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 





  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700


This is what I have been told also.  My lesions can still be seen but 
they are inactive (C4,5,6). I was told they are like a scar.  However, I've 
seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - 
it's just that some days are better than others.  It's going on 9 years for me. 
 Hope you get to feeling better!

Linda  in Eagle, ID
  - Original Message - 
  From: Carol E 
  To: malugss...@gmail.com ; tmic-list@eskimo.com 
  Sent: Tuesday, November 09, 2010 9:04 PM
  Subject: RE: [TMIC] hello out there


  Hi Dalton and all,
  I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  
Every time I have new MRI's, I am always told that I have no new lesions, but 
they can still see the old ones which are inactive.  So I would say the lesions 
do not go away, they are there like a scar.  



  Carol  in Addison, IL






--
  Date: Wed, 10 Nov 2010 07:50:59 +0400
  Subject: Re: [TMIC] hello out there
  From: malugss...@gmail.com
  To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

  Hey, Janice!

  We missed you.  And I missed you.  Glad to have you back with us.

  I have a question for everyone.  A recent set of MRIs showed that my 
spine in the thoracic was clear with no lesions or swellings.  It has been one 
year since the diagnosis for TM.

  Do these lesions clear up later on, or did somebody make a mistake 
somewhere?  Because my everyday symptoms are still weakness and pain from 
fingers to just above the elbow, and from toes to above the knees with banding 
and burning in the torso and back.  And if I exercise at all, the next day I am 
in for day-long spasms that leave me housebound and often unable to get around 
without assistance of my dear part-time maid and helper.

  Could someone get back to me on this?

  Thanks a lot.

  Dalton


--
  From: Janice Nichols jan

RE: [TMIC] hello out there

[Patricia Cooley]

I also have a big problem staying dry during the night.  Even though I do wake 
at least once during the night, and sometimes twice to go potty.  I am on 
oxybutynin and it works pretty well during the day, but night is another story. 
 I thought it was just me, but I guess it is a problem with TM.  I don’t nap 
during the day, but always seem to doze off after supper while watching TV for 
maybe a half an hour or so.  I wear heavy duty overnite pads that seem to work 
most of the time.  I agree that it is the PITS!!!

 

Patti - Wisconsin

 

From: Janice Nichols [mailto:jan...@centurytel.net] 
Sent: Wednesday, November 10, 2010 10:43 AM
To: john snodgrass; transverse myelitis
Subject: Re: [TMIC] hello out there

 

Carol, how are you at staying dry during the nite? I have a real problem 
with that and always have to wear protection and sometimes that doesn't always 
work.   Can't

seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a 
real wetting problem and then I can go for a couple of weeks and stay fairly 
dry.   We can't

seem to pin down the reason for this. I am beginning to think on the days 
that I don't take a nap (45min to hour) that I sleep too hard and don't feel 
the urge until it

is too late.Time will tell. It is the pits!

Janice

 

 

From: john snodgrass mailto:jcs...@yahoo.com  

Sent: Wednesday, November 10, 2010 10:15 AM

To: transverse myelitis mailto:tmic-list@eskimo.com  

Subject: RE: [TMIC] hello out there

 


Carol E,

 

your sunday to present condition sounds almost exactly like mine.

 

heavy sigh.

--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM

I also have the residuals as Linda mentioned...burning, banding, weakness, 
bladder control.  Sometimes I can void normally (pre TM) and other times I have 
to sit on the pot for 5 minutes to void.  I feel like I am about to burst, but 
nothing comes out.  I wiggle and wiggle and finally a slow trickle that takes 
maybe another 3 minutes.  I would say about half the time I void normally and 
half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  itching 
sensation and then Sunday immense pain began about 3 inches lower, about waist 
level and lower.  My hips hurt and painful when I stand and bear weight.  I was 
taking Aleve for my discomfort and this week I graduated to Vicodin and 
Flexeril.  I'm not sure, but I think my pain is from spinal stenosis and 
bulging disks instead of the TM.  I have scheduled my 2nd Lumbar Epidural for 
next week, if I still need it.  Would have gone this week, but I have to 
discontinue Plavix, aspirin and Aleve before I can get the epidural.  What a 
zoo!



Carol 

Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 




  

  _  

From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700

This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.

Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!

 

Linda  in Eagle, ID

- Original Message - 

From: Carol E 

To: malugss...@gmail.com ; tmic-list@eskimo.com 

Sent: Tuesday, November 09, 2010 9:04 PM

Subject: RE: [TMIC] hello out there

 

Hi Dalton and all,
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every time 
I have new MRI's, I am always told that I have no new lesions, but they can 
still see the old ones which are inactive.  So I would say the lesions do not 
go away, they are there like a scar.  



Carol  in Addison, IL

 




  

  _  

Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

Hey, Janice!

We missed you.  And I missed you.  Glad to have you back with us.

I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

Do these lesions clear up later on, or did somebody make a mistake somewhere?  
Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

Could someone

RE: [TMIC] hello out there

[Carol E]

With the exception of my face, I don't have any problems staying dry at night.  
I very seldom get up during the night to go to the bathroom...maybe once a 
month I have to get up.  When I get up in the morning, I don't usually have the 
urge and can't go even if I try.  Then after 2 cups of coffee, my mind decides 
it's time.  Sometimes it's a quick process and other times it takes forever, 
even though I feel like I am bursting.



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 


 



From: jan...@centurytel.net
To: jcs...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
Date: Wed, 10 Nov 2010 10:42:55 -0600



Carol, how are you at staying dry during the nite? I have a real problem 
with that and always have to wear protection and sometimes that doesn't always 
work.   Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a 
real wetting problem and then I can go for a couple of weeks and stay fairly 
dry.   We can't
seem to pin down the reason for this. I am beginning to think on the days 
that I don't take a nap (45min to hour) that I sleep too hard and don't feel 
the urge until it
is too late.Time will tell. It is the pits!
Janice
 




From: john snodgrass 
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis 
Subject: RE: [TMIC] hello out there






Carol E,
 
your sunday to present condition sounds almost exactly like mine.
 
heavy sigh.

--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM




I also have the residuals as Linda mentioned...burning, banding, weakness, 
bladder control.  Sometimes I can void normally (pre TM) and other times I have 
to sit on the pot for 5 minutes to void.  I feel like I am about to burst, but 
nothing comes out.  I wiggle and wiggle and finally a slow trickle that takes 
maybe another 3 minutes.  I would say about half the time I void normally and 
half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  itching 
sensation and then Sunday immense pain began about 3 inches lower, about waist 
level and lower.  My hips hurt and painful when I stand and bear weight.  I was 
taking Aleve for my discomfort and this week I graduated to Vicodin and 
Flexeril.  I'm not sure, but I think my pain is from spinal stenosis and 
bulging disks instead of the TM.  I have scheduled my 2nd Lumbar Epidural for 
next week, if I still need it.  Would have gone this week, but I have to 
discontinue Plavix, aspirin and Aleve before I can get the epidural.  What a 
zoo!




Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 


  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700





This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!
 
Linda  in Eagle, ID

- Original Message - 
From: Carol E 
To: malugss...@gmail.com ; tmic-list@eskimo.com 
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out there

Hi Dalton and all,
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every time 
I have new MRI's, I am always told that I have no new lesions, but they can 
still see the old ones which are inactive.  So I would say the lesions do not 
go away, they are there like a scar.  




Carol  in Addison, IL
 


  


Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

Hey, Janice!

We missed you.  And I missed you.  Glad to have you back with us.

I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

Do these lesions clear up later on, or did somebody make a mistake somewhere?  
Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

Could someone get back to me on this?

Thanks a lot.

Dalton



From: Janice Nichols jan...@centurytel.net
Date: Tue, 9 Nov 2010 19:28:29 -0600

Re: [TMIC] hello out there

[Janice Nichols]

This is a really nasty part of TM.   Hate it!  Janice


From: Carol E 
Sent: Wednesday, November 10, 2010 11:45 AM
To: jan...@centurytel.net ; tmic-list@eskimo.com 
Subject: RE: [TMIC] hello out there


With the exception of my face, I don't have any problems staying dry at night.  
I very seldom get up during the night to go to the bathroom...maybe once a 
month I have to get up.  When I get up in the morning, I don't usually have the 
urge and can't go even if I try.  Then after 2 cups of coffee, my mind decides 
it's time.  Sometimes it's a quick process and other times it takes forever, 
even though I feel like I am bursting.


Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 





  





From: jan...@centurytel.net
To: jcs...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
Date: Wed, 10 Nov 2010 10:42:55 -0600


Carol, how are you at staying dry during the nite? I have a real problem 
with that and always have to wear protection and sometimes that doesn't always 
work.   Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a 
real wetting problem and then I can go for a couple of weeks and stay fairly 
dry.   We can't
seem to pin down the reason for this. I am beginning to think on the days 
that I don't take a nap (45min to hour) that I sleep too hard and don't feel 
the urge until it
is too late.Time will tell. It is the pits!
Janice



From: john snodgrass 
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis 
Subject: RE: [TMIC] hello out there


  Carol E,

  your sunday to present condition sounds almost exactly like mine.

  heavy sigh.

  --- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM


I also have the residuals as Linda mentioned...burning, banding, 
weakness, bladder control.  Sometimes I can void normally (pre TM) and other 
times I have to sit on the pot for 5 minutes to void.  I feel like I am about 
to burst, but nothing comes out.  I wiggle and wiggle and finally a slow 
trickle that takes maybe another 3 minutes.  I would say about half the time I 
void normally and half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  
itching sensation and then Sunday immense pain began about 3 inches lower, 
about waist level and lower.  My hips hurt and painful when I stand and bear 
weight.  I was taking Aleve for my discomfort and this week I graduated to 
Vicodin and Flexeril.  I'm not sure, but I think my pain is from spinal 
stenosis and bulging disks instead of the TM.  I have scheduled my 2nd Lumbar 
Epidural for next week, if I still need it.  Would have gone this week, but I 
have to discontinue Plavix, aspirin and Aleve before I can get the epidural.  
What a zoo!



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 





  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700


This is what I have been told also.  My lesions can still be seen but 
they are inactive (C4,5,6). I was told they are like a scar.  However, I've 
seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - 
it's just that some days are better than others.  It's going on 9 years for me. 
 Hope you get to feeling better!

Linda  in Eagle, ID
  - Original Message - 
  From: Carol E 
  To: malugss...@gmail.com ; tmic-list@eskimo.com 
  Sent: Tuesday, November 09, 2010 9:04 PM
  Subject: RE: [TMIC] hello out there


  Hi Dalton and all,
  I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  
Every time I have new MRI's, I am always told that I have no new lesions, but 
they can still see the old ones which are inactive.  So I would say the lesions 
do not go away, they are there like a scar.  



  Carol  in Addison, IL






--
  Date: Wed, 10 Nov 2010 07:50:59 +0400
  Subject: Re: [TMIC] hello out there
  From: malugss...@gmail.com
  To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

  Hey, Janice!

  We missed you.  And I missed you.  Glad to have you back with us.

  I have a question

RE: [TMIC] hello out there

[john snodgrass]

another strange thing i have experienced is i would feel something wet like on 
my leg or somewhere and think ,,what the heck,,then i would do what comes 
naturally,put my hand there, and it would be dry where it felt wet.
even felt sweat going down my side when nothing would be there.
 
good ole nerves.
 
gotta love em.

--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: jan...@centurytel.net, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 12:45 PM




With the exception of my face, I don't have any problems staying dry at night.  
I very seldom get up during the night to go to the bathroom...maybe once a 
month I have to get up.  When I get up in the morning, I don't usually have the 
urge and can't go even if I try.  Then after 2 cups of coffee, my mind decides 
it's time.  Sometimes it's a quick process and other times it takes forever, 
even though I feel like I am bursting.



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 


  



From: jan...@centurytel.net
To: jcs...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
Date: Wed, 10 Nov 2010 10:42:55 -0600


Carol, how are you at staying dry during the nite? I have a real problem 
with that and always have to wear protection and sometimes that doesn't always 
work.   Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and have a 
real wetting problem and then I can go for a couple of weeks and stay fairly 
dry.   We can't
seem to pin down the reason for this. I am beginning to think on the days 
that I don't take a nap (45min to hour) that I sleep too hard and don't feel 
the urge until it
is too late.    Time will tell. It is the pits!
Janice
 




From: john snodgrass 
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis 
Subject: RE: [TMIC] hello out there






Carol E,
 
your sunday to present condition sounds almost exactly like mine.
 
heavy sigh.

--- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM




#yiv989670764 .yiv989670764ExternalClass #yiv989670764ecxyiv629318572 
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.yiv989670764ecxyiv629318572hmmessage
{font-size:10pt;font-family:Tahoma;}


I also have the residuals as Linda mentioned...burning, banding, weakness, 
bladder control.  Sometimes I can void normally (pre TM) and other times I have 
to sit on the pot for 5 minutes to void.  I feel like I am about to burst, but 
nothing comes out.  I wiggle and wiggle and finally a slow trickle that takes 
maybe another 3 minutes.  I would say about half the time I void normally and 
half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a burning  itching 
sensation and then Sunday immense pain began about 3 inches lower, about waist 
level and lower.  My hips hurt and painful when I stand and bear weight.  I was 
taking Aleve for my discomfort and this week I graduated to Vicodin and 
Flexeril.  I'm not sure, but I think my pain is from spinal stenosis and 
bulging disks instead of the TM.  I have scheduled my 2nd Lumbar Epidural for 
next week, if I still need it.  Would have gone this week, but I have to 
discontinue Plavix, aspirin and Aleve before I can get the epidural.  What a 
zoo!




Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 

 


  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700



#yiv989670764 .yiv989670764ExternalClass #yiv989670764ecxyiv629318572 
.yiv989670764ecxyiv629318572ExternalClass 
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BODY.yiv989670764ecxyiv629318572ecxhmmessage
{font-family:Tahoma;font-size:10pt;}



This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!
 
Linda  in Eagle, ID

- Original Message - 
From: Carol E 
To: malugss...@gmail.com ; tmic-list@eskimo.com 
Sent: Tuesday, November 09, 2010 9:04 PM
Subject: RE: [TMIC] hello out there

Hi Dalton and all,
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every

Re: [TMIC] hello out there

[Janice Nichols]

That happens to me also.Janice


From: john snodgrass 
Sent: Wednesday, November 10, 2010 12:17 PM
To: transverse myelitis 
Subject: RE: [TMIC] hello out there


  another strange thing i have experienced is i would feel something wet 
like on my leg or somewhere and think ,,what the heck,,then i would do what 
comes naturally,put my hand there, and it would be dry where it felt wet.
  even felt sweat going down my side when nothing would be there.

  good ole nerves.

  gotta love em.

  --- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: jan...@centurytel.net, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 12:45 PM


With the exception of my face, I don't have any problems staying dry at 
night.  I very seldom get up during the night to go to the bathroom...maybe 
once a month I have to get up.  When I get up in the morning, I don't usually 
have the urge and can't go even if I try.  Then after 2 cups of coffee, my mind 
decides it's time.  Sometimes it's a quick process and other times it takes 
forever, even though I feel like I am bursting.


Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 





  



From: jan...@centurytel.net
To: jcs...@yahoo.com; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there
Date: Wed, 10 Nov 2010 10:42:55 -0600


Carol, how are you at staying dry during the nite? I have a real 
problem with that and always have to wear protection and sometimes that doesn't 
always work.   Can't
seem to feel enough yet to wake up in time. I can go 2-3 weeks and 
have a real wetting problem and then I can go for a couple of weeks and stay 
fairly dry.   We can't
seem to pin down the reason for this. I am beginning to think on 
the days that I don't take a nap (45min to hour) that I sleep too hard and 
don't feel the urge until it
is too late.Time will tell. It is the pits!
Janice



From: john snodgrass 
Sent: Wednesday, November 10, 2010 10:15 AM
To: transverse myelitis 
Subject: RE: [TMIC] hello out there


  Carol E,

  your sunday to present condition sounds almost exactly like mine.

  heavy sigh.

  --- On Wed, 11/10/10, Carol E snow121...@hotmail.com wrote:


From: Carol E snow121...@hotmail.com
Subject: RE: [TMIC] hello out there
To: malugss...@gmail.com, tmic-list@eskimo.com
Date: Wednesday, November 10, 2010, 11:06 AM


I also have the residuals as Linda mentioned...burning, 
banding, weakness, bladder control.  Sometimes I can void normally (pre TM) and 
other times I have to sit on the pot for 5 minutes to void.  I feel like I am 
about to burst, but nothing comes out.  I wiggle and wiggle and finally a slow 
trickle that takes maybe another 3 minutes.  I would say about half the time I 
void normally and half of the time, I don't.  
 
This week, my back is killing me.  It started Saturday with a 
burning  itching sensation and then Sunday immense pain began about 3 inches 
lower, about waist level and lower.  My hips hurt and painful when I stand and 
bear weight.  I was taking Aleve for my discomfort and this week I graduated to 
Vicodin and Flexeril.  I'm not sure, but I think my pain is from spinal 
stenosis and bulging disks instead of the TM.  I have scheduled my 2nd Lumbar 
Epidural for next week, if I still need it.  Would have gone this week, but I 
have to discontinue Plavix, aspirin and Aleve before I can get the epidural.  
What a zoo!



Carol 
Worrying does not empty 
tomorrow of its troubles;
It empties today of its strengths. 





  


From: cherp...@msn.com
To: malugss...@gmail.com; tmic-list@eskimo.com; 
snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Date: Tue, 9 Nov 2010 21:16:00 -0700


This is what I have been told also.  My lesions can still be 
seen but they are inactive (C4,5,6). I was told they are like a scar.  However, 
I've seen posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, 
weakness - it's just that some days are better than others.  It's going on 9 
years for me.  Hope you get to feeling better!

Linda  in Eagle, ID
  - Original Message - 
  From: Carol E 
  To: malugss

Re: [TMIC] hello out there

[Janice Nichols]

Good idea.   Janice



From: Barbara Alma 
Sent: Saturday, November 06, 2010 10:48 PM
To: tmic-list@eskimo.com 
Subject: [TMIC] hello out there


Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message or two.

Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Janice Nichols]

John
Have you retired yet? If so, can you tell a difference in how you feel?
Janice



From: john snodgrass 
Sent: Sunday, November 07, 2010 3:59 AM
To: transverse myelitis 
Subject: Re: [TMIC] hello out there


  I would say the pain is not as intense as it has been but am afraid i 
will jinx myself!

  --- On Sun, 11/7/10, Barbara Alma balmat...@aol.com wrote:


From: Barbara Alma balmat...@aol.com
Subject: [TMIC] hello out there
To: tmic-list@eskimo.com
Date: Sunday, November 7, 2010, 12:48 AM


Well, I guess since nobody has written in that all must be going well 
for everyone.  It's very good to hear this.  I do think that it is a good idea 
to keep this list going though in case there are any newbies who may need us 
and don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message 
or two.

Hugs, Barbara A in Auburn CA 

Re: [TMIC] hello out there

[Janice Nichols]

Re: [TMIC] hello out thereI do too, Dalton.You have a different set of 
problems that I have not heard in other TM'ers. Sure wish you would get you 
act together - scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice


From: Dalton Garis 
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there


Actually;

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn't make my body bend and I'd just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me.

Dalton



From: Barbara Alma balmat...@aol.com
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message or two.
 
Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Janice Nichols]

No, I haven't noticed that, but I have noticed strange bruising with no pain.   
 I prefer my situation to yours.
Janice


From: CANDIS KALLEY 
Sent: Sunday, November 07, 2010 10:55 AM
To: tmic-list 
Subject: Re: [TMIC] hello out there


Dalton, 

So sorry that you had another bad day.



With the onset of cold wether, I've been having a bad time myself.  

Somehow, I got a briuse on my big toe but the pain wasn't/isn't in my toe.  I 
could hardly move for 2 days ago.  



I wore protection and would just sit  wet myself because it hurt so bad to 
move IF I could move - my R leg would give out on me.  My back felt as if 
someone was inside trying to tear everything from the inside out!  If I didn't 
move, I had the normal back pain.



I fell one other time and my L foot was bruised.  For the next 5 days if I put 
any weight on theL foot, I would fall and the pain was horriable!

Has anyone experienced pain, or the results of pain, but not in the area of the 
injury?



Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile.


Prayers and thoughts for you and yours,

Candy K.

- Original Message -
From: Dalton Garis malugss...@gmail.com
To: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com
Sent: Sunday, November 7, 2010 11:23:44 AM
Subject: Re: [TMIC] hello out there

Actually;

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me.

Dalton








From: Barbara Alma balmat...@aol.com
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message or two.
 
Hugs, Barbara A in Auburn CA


Emoticon10.gif

Re: [TMIC] hello out there

[Janice Nichols]

Re: [TMIC] hello out thereDalton, maybe you should start bugging your doctors 
again and see what else they could come up with.   How can you have TM with no 
demyelination?
Janice



From: Dalton Garis 
Sent: Sunday, November 07, 2010 10:56 AM
To: Laura Beaudin 
Cc: Barbara Alma ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there


Well;

I was MRI-d this summer and they found no evidence of demyelination (but 
couldn't rule out inflammation, of course).  I have also been tested for 
epilepsy and they didn't find any, but found pseudo-epilepsy-whatever that is.  
They did find brainstem anomalies in the MRI and the brainstem is the 
switching authority for the brain-body coordination.

Then everyone lost interest.  And that is as far as it has gone.  I have a dr 
who keeps me in Lyrica prescriptions; but has no further interest in the case.

Dalton



From: Laura Beaudin laura.beau...@gmail.com
Date: Sun, 7 Nov 2010 09:47:05 -0700
To: Dalton Garis malugss...@gmail.com
Cc: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

Dalton,

Have you been properly screened for MS? 
Laura

www.laurabeaudin.com http://www.laurabeaudin.com  --NOT just another blog!
http://practical-homeschooling.org



On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis malugss...@gmail.com wrote:

  Actually;

  I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn't make my body bend and I'd just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

  In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

  Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

  What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me.

  Dalton


--
  From: Barbara Alma balmat...@aol.com http://balmat...@aol.com 
  Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)

  To: tmic-list@eskimo.com http://tmic-list@eskimo.com 
  Subject: [TMIC] hello out there
  Resent-From: tmic-list@eskimo.com http://tmic-list@eskimo.com 
  Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

  Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

  If a couple of days pass without any messages, let's send in a message or two.
   
  Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Janice Nichols]

We live and learn!Put those 6-month infusions on the calendar.Hope you 
are comfortable now.
Janice


From: L T CHERPESKI 
Sent: Sunday, November 07, 2010 5:33 PM
To: tmic-list@eskimo.com ; Barbara Alma 
Subject: Re: [TMIC] hello out there


Have been trying to keep myself calm and quiet as I am in a full blown flare.  
I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

Linda in Eagle, ID
  - Original Message - 
  From: Barbara Alma 
  To: tmic-list@eskimo.com 
  Sent: Saturday, November 06, 2010 9:48 PM
  Subject: [TMIC] hello out there


  Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

  If a couple of days pass without any messages, let's send in a message or two.

  Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Janice Nichols]

Re: [TMIC] hello out thereI agree with you Linda.He needs help.
Janice


From: L T CHERPESKI 
Sent: Sunday, November 07, 2010 6:43 PM
To: tmic-list@eskimo.com ; Barbara Alma ; Dalton Garis 
Subject: Re: [TMIC] hello out there


Hi Dalton  Everyone ~~

You're right Dalton.  Many of us seem to be having additional challenges right 
now.  Could be why we've been so quiet on the list

After I read your post about the horrific day you had, I did a little research, 
and I think I came back even more confused - sorry to say.  I'm sure I've asked 
you this before, but I'll ask again.
Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???

Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?

So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  

Linda
  - Original Message - 
  From: Dalton Garis 
  To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma 
  Sent: Sunday, November 07, 2010 5:19 PM
  Subject: Re: [TMIC] hello out there


  Seems as if everyone went down at the same time.  Is it possible that I might 
have recurrent TM?  I wish I could get the neuro interested in my case.  But he 
just keeps me in Lyrica and has no further interest.

  Dalton


--
  From: L T CHERPESKI cherp...@msn.com
  Date: Sun, 7 Nov 2010 16:33:40 -0700
  To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
  Subject: Re: [TMIC] hello out there
  Resent-From: tmic-list@eskimo.com
  Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

  Have been trying to keep myself calm and quiet as I am in a full blown flare. 
 I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

  Linda in Eagle, ID


- Original Message - 
 
From: Barbara Alma mailto:balmat...@aol.com  
 
To: tmic-list@eskimo.com 
 
Sent: Saturday, November 06, 2010 9:48  PM
 
Subject: [TMIC] hello out there
 


Well, I guess since nobody has written in that all must be going well for  
everyone.  It's very good to hear this.  I do think that it is  a good idea to 
keep this list going though in case there are any newbies  who may need us and 
don't think there is anyone here to listen to them.

 
 
If a couple of days pass without any messages, let's send in a message or  
two.
 
 
 
Hugs, Barbara A in Auburn  CA

Re: [TMIC] hello out there

[Janice Nichols]

Actually, I love the winter weather.At least then I don't have many hot 
spells.   I can control that better in cold weather.  Anyone else like that?
Janice


From: Barbara Alma 
Sent: Sunday, November 07, 2010 7:44 PM
To: cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com 
Subject: Re: [TMIC] hello out there


Hello all,

Well, maybe I shouldn't have asked this question, but I'm glad I did.  It looks 
like some support was needed for you guys and maybe for some just lurking and 
not feeling up to writing in.  Believe me, I sympathize with you and your pain. 
 

This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many.

Mine are much worse in the cold, and especially if it's rainy.  My skin can be 
warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I can 
only do that when I'm at home. 

I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch.

Hugs, Barbara A in Auburn CA



-Original Message-
From: L T CHERPESKI cherp...@msn.com
To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton 
Garis malugss...@gmail.com
Sent: Sun, Nov 7, 2010 4:43 pm
Subject: Re: [TMIC] hello out there


Hi Dalton  Everyone ~~

You're right Dalton.  Many of us seem to be having additional challenges right 
now.  Could be why we've been so quiet on the list

After I read your post about the horrific day you had, I did a little research, 
and I think I came back even more confused - sorry to say.  I'm sure I've asked 
you this before, but I'll ask again.
Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???

Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?

So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  

Linda
  - Original Message - 
  From: Dalton Garis 
  To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma 
  Sent: Sunday, November 07, 2010 5:19 PM
  Subject: Re: [TMIC] hello out there


  Seems as if everyone went down at the same time.  Is it possible that I might 
have recurrent TM?  I wish I could get the neuro interested in my case.  But he 
just keeps me in Lyrica and has no further interest.

  Dalton


--
  From: L T CHERPESKI cherp...@msn.com
  Date: Sun, 7 Nov 2010 16:33:40 -0700
  To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
  Subject: Re: [TMIC] hello out there
  Resent-From: tmic-list@eskimo.com
  Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

  Have been trying to keep myself calm and quiet as I am in a full blown flare. 
 I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

  Linda in Eagle, ID


 
 

Re: [TMIC] hello out there

[john snodgrass]

from what I understand,TM is when you actually have the inflamatin of the 
myelin.
 
so we dont actually have TM now but suffering from the damage that TM has done.
it is just easier to say when talking to someone when they ask whats wrong,i 
have TM.
 
some suffer reoccurance but it is not likely.
 
my last MRI showed that the myelin that had demyelinated had healed. no 
swelling,no missing myelin.
 
like insulation around a damaged wires.
 
I asked a Dr why I jerked sometimes and sometimes rather violently and she said 
all the activity with the brain attempting to send signals that was 
mistranslated,so much energy was built up like static and it would release in 
the jerk.
 
i reckon that means i am a jerk?
 
I have read other definitions but that sounded more apealing and easy to 
explaine to those that might feel uneasy about my jerking.
 
just tell em it's the Elvis complex.

--- On Tue, 11/9/10, Janice Nichols jan...@centurytel.net wrote:


From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] hello out there
To: Dalton Garis malugss...@gmail.com, Laura Beaudin 
laura.beau...@gmail.com
Cc: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com
Date: Tuesday, November 9, 2010, 8:34 PM



Dalton, maybe you should start bugging your doctors again and see what else 
they could come up with.   How can you have TM with no demyelination?
Janice
 




From: Dalton Garis 
Sent: Sunday, November 07, 2010 10:56 AM
To: Laura Beaudin 
Cc: Barbara Alma ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there

Well;

I was MRI-d this summer and they found no evidence of demyelination (but 
couldn’t rule out inflammation, of course).  I have also been tested for 
epilepsy and they didn’t find any, but found pseudo-epilepsy—whatever that is.  
They did find “brainstem anomalies” in the MRI and the brainstem is the 
switching authority for the brain-body coordination.

Then everyone lost interest.  And that is as far as it has gone.  I have a dr 
who keeps me in Lyrica prescriptions; but has no further interest in the case.

Dalton



From: Laura Beaudin laura.beau...@gmail.com
Date: Sun, 7 Nov 2010 09:47:05 -0700
To: Dalton Garis malugss...@gmail.com
Cc: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

Dalton,

Have you been properly screened for MS? 
Laura

www.laurabeaudin.com http://www.laurabeaudin.com  --NOT just another blog!
http://practical-homeschooling.org



On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis malugss...@gmail.com wrote:

Actually;

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me.

Dalton



From: Barbara Alma balmat...@aol.com http://balmat...@aol.com 
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)

To: tmic-list@eskimo.com http://tmic-list@eskimo.com 
Subject: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com http://tmic-list@eskimo.com 
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message or two.
 
Hugs, Barbara A in Auburn CA






  

Re: [TMIC] hello out there

[john snodgrass]

that has got to b a woman thing   
 
I thank God everyday that I am not a woman!
 
;)

--- On Tue, 11/9/10, Janice Nichols jan...@centurytel.net wrote:


From: Janice Nichols jan...@centurytel.net
Subject: Re: [TMIC] hello out there
To: cherp...@msn.com, tmic-list@eskimo.com, malugss...@gmail.com, Barbara 
Alma balmat...@aol.com
Date: Tuesday, November 9, 2010, 8:43 PM



Actually, I love the winter weather.    At least then I don't have many hot 
spells.   I can control that better in cold weather.  Anyone else like that?
Janice




From: Barbara Alma 
Sent: Sunday, November 07, 2010 7:44 PM
To: cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com 
Subject: Re: [TMIC] hello out there


Hello all,
 
Well, maybe I shouldn't have asked this question, but I'm glad I did.  It looks 
like some support was needed for you guys and maybe for some just lurking and 
not feeling up to writing in.  Believe me, I sympathize with you and your 
pain.  
 
This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many.
 
Mine are much worse in the cold, and especially if it's rainy.  My skin can be 
warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I 
can only do that when I'm at home. 
 
I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch.

Hugs, Barbara A in Auburn CA


-Original Message-
From: L T CHERPESKI cherp...@msn.com
To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton 
Garis malugss...@gmail.com
Sent: Sun, Nov 7, 2010 4:43 pm
Subject: Re: [TMIC] hello out there




Hi Dalton  Everyone ~~
 
You're right Dalton.  Many of us seem to be having additional challenges right 
now.  Could be why we've been so quiet on the list
 
After I read your post about the horrific day you had, I did a little research, 
and I think I came back even more confused - sorry to say.  I'm sure I've asked 
you this before, but I'll ask again.
Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???
 
Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?
 
So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  
 
Linda

- Original Message - 
From: Dalton Garis 
To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma 
Sent: Sunday, November 07, 2010 5:19 PM
Subject: Re: [TMIC] hello out there

Seems as if everyone went down at the same time.  Is it possible that I might 
have recurrent TM?  I wish I could get the neuro interested in my case.  But he 
just keeps me in Lyrica and has no further interest.

Dalton



From: L T CHERPESKI cherp...@msn.com
Date: Sun, 7 Nov 2010 16:33:40 -0700
To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

Have been trying to keep myself calm and quiet as I am in a full blown flare.  
I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

Linda in Eagle, ID


 
 




  

Re: [TMIC] hello out there

[Dalton Garis]

Hey, Janice!

We missed you.  And I missed you.  Glad to have you back with us.

I have a question for everyone.  A recent set of MRIs showed that my spine
in the thoracic was clear with no lesions or swellings.  It has been one
year since the diagnosis for TM.

Do these lesions clear up later on, or did somebody make a mistake
somewhere?  Because my everyday symptoms are still weakness and pain from
fingers to just above the elbow, and from toes to above the knees with
banding and burning in the torso and back.  And if I exercise at all, the
next day I am in for day-long spasms that leave me housebound and often
unable to get around without assistance of my dear part-time maid and
helper.

Could someone get back to me on this?

Thanks a lot.

Dalton


From: Janice Nichols jan...@centurytel.net
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com,
tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

I do too, Dalton.You have a different set of problems that I have not
heard in other TM'ers. Sure wish you would get you act together - scares
me!!!
Seriously, I hope that is the last day you will have like that.
Janice

From: Dalton Garis mailto:malugss...@gmail.com
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

Actually;

I had a day-long attack of spasms yesterday which left me unable to control
either my hands and arms, legs, torso or speech.  Every time I tried to talk
I would cramp up. And Elvis was definitely being channeled in my body.
Thank heavens I had the assistance of a very nice and strong maid who visits
me once a week.  It was her day to visit and she stayed with me and helped
me to the bathroom and into and out of chairs.  It was hard to sit down
because I couldn¹t make my body bend and I¹d just slide off.  But we got it
under control.  She had to help me drink and eat.  I would grab the coffee
cup handle and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was
taking care of me that I was also as high as a kite and proposing marriage
to chairs and such.

Today was the beginning of the work week here (Abu Dhabi) and I did alright.
But the lecture kept going off on these tangents making it hard for my class
to take useful notes.  It was because my mental state was still flying
around the cosmos.

What is going on here?  OK, I have TM in my upper spine; but what is this
mental derangement stuff?  I sure wish the drs could find out what is wrong
with me.

Dalton


From: Barbara Alma balmat...@aol.com
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

Well, I guess since nobody has written in that all must be going well for
everyone.  It's very good to hear this.  I do think that it is a good idea
to keep this list going though in case there are any newbies who may need us
and don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message or
two.
 
Hugs, Barbara A in Auburn CA

RE: [TMIC] hello out there

[Carol E]

Hi Dalton and all,
I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every time 
I have new MRI's, I am always told that I have no new lesions, but they can 
still see the old ones which are inactive.  So I would say the lesions do not 
go away, they are there like a scar.  



Carol  in Addison, IL
 


 



Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out there
From: malugss...@gmail.com
To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com


Hey, Janice!

We missed you.  And I missed you.  Glad to have you back with us.

I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

Do these lesions clear up later on, or did somebody make a mistake somewhere?  
Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

Could someone get back to me on this?

Thanks a lot.

Dalton



From: Janice Nichols jan...@centurytel.net
Date: Tue, 9 Nov 2010 19:28:29 -0600
To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com, 
tmic-list@eskimo.com
Subject: Re: [TMIC] hello out there

I do too, Dalton.You have a different set of problems that I have not heard 
in other TM'ers. Sure wish you would get you act together - scares me!!!
Seriously, I hope that is the last day you will have like that.
Janice

From: Dalton Garis mailto:malugss...@gmail.com  
Sent: Sunday, November 07, 2010 10:23 AM
To: Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
Subject: Re: [TMIC] hello out there

Actually;

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me.

Dalton



From: Barbara Alma balmat...@aol.com
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

If a couple of days pass without any messages, let's send in a message or two.
 
Hugs, Barbara A in Auburn CA


  

Re: [TMIC] hello out there

[L T CHERPESKI]

This is what I have been told also.  My lesions can still be seen but they are 
inactive (C4,5,6). I was told they are like a scar.  However, I've seen posts 
where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's just 
that some days are better than others.  It's going on 9 years for me.  Hope you 
get to feeling better!

Linda  in Eagle, ID
  - Original Message - 
  From: Carol E 
  To: malugss...@gmail.com ; tmic-list@eskimo.com 
  Sent: Tuesday, November 09, 2010 9:04 PM
  Subject: RE: [TMIC] hello out there


  Hi Dalton and all,
  I was 1st diagnosed with TM June 2005.  I had lesions from T7-T10.  Every 
time I have new MRI's, I am always told that I have no new lesions, but they 
can still see the old ones which are inactive.  So I would say the lesions do 
not go away, they are there like a scar.  



  Carol  in Addison, IL






--
  Date: Wed, 10 Nov 2010 07:50:59 +0400
  Subject: Re: [TMIC] hello out there
  From: malugss...@gmail.com
  To: jan...@centurytel.net; balmat...@aol.com; tmic-list@eskimo.com

  Hey, Janice!

  We missed you.  And I missed you.  Glad to have you back with us.

  I have a question for everyone.  A recent set of MRIs showed that my spine in 
the thoracic was clear with no lesions or swellings.  It has been one year 
since the diagnosis for TM.

  Do these lesions clear up later on, or did somebody make a mistake somewhere? 
 Because my everyday symptoms are still weakness and pain from fingers to just 
above the elbow, and from toes to above the knees with banding and burning in 
the torso and back.  And if I exercise at all, the next day I am in for 
day-long spasms that leave me housebound and often unable to get around without 
assistance of my dear part-time maid and helper.

  Could someone get back to me on this?

  Thanks a lot.

  Dalton


--
  From: Janice Nichols jan...@centurytel.net
  Date: Tue, 9 Nov 2010 19:28:29 -0600
  To: Dalton Garis malugss...@gmail.com, Barbara Alma balmat...@aol.com, 
tmic-list@eskimo.com
  Subject: Re: [TMIC] hello out there

  I do too, Dalton.You have a different set of problems that I have not 
heard in other TM'ers. Sure wish you would get you act together - scares 
me!!!
  Seriously, I hope that is the last day you will have like that.
  Janice

  From: Dalton Garis mailto:malugss...@gmail.com  
  Sent: Sunday, November 07, 2010 10:23 AM
  To: Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
  Subject: Re: [TMIC] hello out there

  Actually;

  I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go.

  In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.  

  Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos.

  What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me.

  Dalton


--
  From: Barbara Alma balmat...@aol.com
  Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
  To: tmic-list@eskimo.com
  Subject: [TMIC] hello out there
  Resent-From: tmic-list@eskimo.com
  Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

  Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

  If a couple of days pass without any messages, let's send in a message or two.
   
  Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Dalton Garis]

So, I have all the symptoms;

But no lesions.  OK, I¹m stumped, except that the brainstem lesions are
still there.

Dalton


From: L T CHERPESKI cherp...@msn.com
Date: Tue, 9 Nov 2010 21:16:00 -0700
To: Dalton Garis malugss...@gmail.com, tmic-list@eskimo.com, Carol E
snow121...@hotmail.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800

This is what I have been told also.  My lesions can still be seen but they
are inactive (C4,5,6). I was told they are like a scar.  However, I've seen
posts where others have been told something different.
Dalton, I still have all the residuals - burning, banding, weakness - it's
just that some days are better than others.  It's going on 9 years for me.
Hope you get to feeling better!
 
Linda  in Eagle, ID
  
 - Original Message -
  
 From: Carol  E mailto:snow121...@hotmail.com
  
 To: malugss...@gmail.com ; tmic-list@eskimo.com
  
 Sent: Tuesday, November 09, 2010 9:04  PM
  
 Subject: RE: [TMIC] hello out there
  
 
 Hi Dalton and all,
 I was 1st diagnosed with TM June  2005.  I had lesions from T7-T10.  Every
 time I have new MRI's,  I am always told that I have no new lesions, but they
 can still see the old  ones which are inactive.  So I would say the lesions do
 not go away, they  are there like a scar.
 
 
  
  
 Carol  in  Addison, IL
  
  
 
 
 

  
 
  Date: Wed, 10 Nov 2010 07:50:59 +0400
 Subject: Re: [TMIC] hello out  there
 From: malugss...@gmail.com
 To: jan...@centurytel.net;  balmat...@aol.com; tmic-list@eskimo.com
 
  Hey, Janice!
 
 We  missed you.  And I missed you.  Glad to have you back with  us.
 
 I have a question for everyone.  A recent set of MRIs showed  that my spine in
 the thoracic was clear with no lesions or swellings.  It  has been one year
 since the diagnosis for TM.
 
 Do these lesions clear up  later on, or did somebody make a mistake somewhere?
 Because my everyday  symptoms are still weakness and pain from fingers to just
 above the elbow, and  from toes to above the knees with banding and burning in
 the torso and back.   And if I exercise at all, the next day I am in for
 day-long spasms that  leave me housebound and often unable to get around
 without assistance of my  dear part-time maid and helper.
 
 Could someone get back to me on  this?
 
 Thanks a lot.
 
 Dalton
 
  
 
  From: Janice Nichols jan...@centurytel.net http://jan...@centurytel.net 
 Date: Tue, 9 Nov 2010  19:28:29 -0600
 To: Dalton Garis malugss...@gmail.com http://malugss...@gmail.com ,
 Barbara Alma balmat...@aol.com http://balmat...@aol.com ,
 tmic-list@eskimo.com http://tmic-list@eskimo.com 
 Subject: Re: [TMIC] hello  out there
 
 I do too, Dalton. You have a different set of problems that I have not
 heard  in other TM'ers. Sure wish you would get you act  together - scares
 me!!!
 Seriously, I hope that is the last day you will  have like that.
 Janice
 
 From:  Dalton Garis mailto:malugss...@gmail.com
 Sent: Sunday, November 07, 2010 10:23 AM
 To:  Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com
 http://tmic-list@eskimo.com
 Subject: Re: [TMIC] hello out there
 
 Actually;
 
 I had a  day-long attack of spasms yesterday which left me unable to control
 either my  hands and arms, legs, torso or speech.  Every time I tried to talk
 I  would cramp up. And Elvis was definitely being channeled in my body.
 Thank heavens I had the assistance of a very nice and strong maid who  visits
 me once a week.  It was her day to visit and she stayed with me  and helped me
 to the bathroom and into and out of chairs.  It was hard to  sit down because
 I couldn¹t make my body bend and I¹d just slide off.   But we got it under
 control.  She had to help me drink and eat.   I would grab the coffee cup
 handle and then could not make my hand let  go.
 
 In the mean time I was so grateful for her assistance and that the  Lord was
 taking care of me that I was also as high as a kite and proposing  marriage to
 chairs and such. 
 
 Today was the beginning of the work  week here (Abu Dhabi) and I did alright.
 But the lecture kept going off  on these tangents making it hard for my class
 to take useful notes.  It  was because my mental state was still flying around
 the cosmos.
 
 What is  going on here?  OK, I have TM in my upper spine; but what is this
 mental  derangement stuff?  I sure wish the drs could find out what is wrong
 with  me.
 
 Dalton
 
  
 
  From: Barbara Alma balmat...@aol.com http://balmat...@aol.com 
 Date: Sun, 7 Nov 2010  00:48:22 -0400 (EDT)
 To: tmic-list@eskimo.com http://tmic-list@eskimo.com 
 Subject: [TMIC] hello out  there
 Resent-From: tmic-list@eskimo.com http://tmic-list@eskimo.com 
 Resent-Date: Sat, 6 Nov  2010 21:48:30 -0700
 
 Well, I guess  since nobody has written in that all must be going well for
 everyone.   It's very good to hear this.  I do think that it is a good idea to
 keep this list going though in case there are any newbies who

Re: [TMIC] hello out there

[L T CHERPESKI]

Welcome back, Janice!  Sounds like you had a wonderful time.  (Sorry fellas, 
you might want to zone out for a minute)  I'm glad your hot spells are 
better in the cold weather.  Mine stopped immediately and never came back when 
TM became my special friend.  One nice perk ~

Linda
  - Original Message - 
  From: Janice Nicholsmailto:jan...@centurytel.net 
  To: cherp...@msn.commailto:cherp...@msn.com ; 
tmic-list@eskimo.commailto:tmic-list@eskimo.com ; 
malugss...@gmail.commailto:malugss...@gmail.com ; Barbara 
Almamailto:balmat...@aol.com 
  Sent: Tuesday, November 09, 2010 6:43 PM
  Subject: Re: [TMIC] hello out there


  Actually, I love the winter weather.At least then I don't have many hot 
spells.   I can control that better in cold weather.  Anyone else like that?
  Janice


  From: Barbara Almamailto:balmat...@aol.com 
  Sent: Sunday, November 07, 2010 7:44 PM
  To: cherp...@msn.commailto:cherp...@msn.com ; 
tmic-list@eskimo.commailto:tmic-list@eskimo.com ; 
malugss...@gmail.commailto:malugss...@gmail.com 
  Subject: Re: [TMIC] hello out there


  Hello all,

  Well, maybe I shouldn't have asked this question, but I'm glad I did.  It 
looks like some support was needed for you guys and maybe for some just lurking 
and not feeling up to writing in.  Believe me, I sympathize with you and your 
pain.  

  This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many.

  Mine are much worse in the cold, and especially if it's rainy.  My skin can 
be warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I can 
only do that when I'm at home. 

  I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch.

  Hugs, Barbara A in Auburn CA



  -Original Message-
  From: L T CHERPESKI cherp...@msn.com
  To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; 
Dalton Garis malugss...@gmail.com
  Sent: Sun, Nov 7, 2010 4:43 pm
  Subject: Re: [TMIC] hello out there


  Hi Dalton  Everyone ~~

  You're right Dalton.  Many of us seem to be having additional challenges 
right now.  Could be why we've been so quiet on the list

  After I read your post about the horrific day you had, I did a little 
research, and I think I came back even more confused - sorry to say.  I'm sure 
I've asked you this before, but I'll ask again.
  Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???

  Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?

  So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  

  Linda
- Original Message - 
From: Dalton Garismailto:malugss...@gmail.com 
To: L T CHERPESKImailto:cherp...@msn.com ; 
tmic-list@eskimo.commailto:tmic-list@eskimo.com ; Barbara 
Almamailto:balmat...@aol.com 
Sent: Sunday, November 07, 2010 5:19 PM
Subject: Re: [TMIC] hello out there


Seems as if everyone went down at the same time.  Is it possible that I 
might have recurrent TM?  I wish I could get the neuro interested in my case.  
But he just keeps me in Lyrica and has no further interest.

Dalton



From: L T CHERPESKI cherp...@msn.commailto:cherp...@msn.com
Date: Sun, 7 Nov 2010 16:33:40 -0700
To: tmic-list@eskimo.commailto:tmic-list@eskimo.com, Barbara Alma 
balmat...@aol.commailto:balmat...@aol.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.commailto:tmic-list@eskimo.com
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

Have been trying to keep myself calm and quiet as I am in a full blown 
flare.  I'm 2 months past my Rituxan infusions, which obviously is not good.  
Hoping they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer

Re: [TMIC] hello out there

[Janice Nichols]

No, my hot flashes are not menapausal(sp).I had a complete hysterectomy 20 
years ago. This just started as soon as TM did.   From my neck up I get 
fiercely hot - not the rest of my body.
Warm and humid really sets it off, but I can heat up with them too.   But, the 
cooler I keep my body, the less chance I will get hot.
Janice


From: L T CHERPESKI 
Sent: Tuesday, November 09, 2010 10:26 PM
To: tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara Alma ; Janice Nichols 
Subject: Re: [TMIC] hello out there


Welcome back, Janice!  Sounds like you had a wonderful time.  (Sorry fellas, 
you might want to zone out for a minute)  I'm glad your hot spells are 
better in the cold weather.  Mine stopped immediately and never came back when 
TM became my special friend.  One nice perk ~

Linda
  - Original Message - 
  From: Janice Nichols 
  To: cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara 
Alma 
  Sent: Tuesday, November 09, 2010 6:43 PM
  Subject: Re: [TMIC] hello out there


  Actually, I love the winter weather.At least then I don't have many hot 
spells.   I can control that better in cold weather.  Anyone else like that?
  Janice


  From: Barbara Alma 
  Sent: Sunday, November 07, 2010 7:44 PM
  To: cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com 
  Subject: Re: [TMIC] hello out there


  Hello all,

  Well, maybe I shouldn't have asked this question, but I'm glad I did.  It 
looks like some support was needed for you guys and maybe for some just lurking 
and not feeling up to writing in.  Believe me, I sympathize with you and your 
pain.  

  This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many.

  Mine are much worse in the cold, and especially if it's rainy.  My skin can 
be warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I can 
only do that when I'm at home. 

  I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch.

  Hugs, Barbara A in Auburn CA



  -Original Message-
  From: L T CHERPESKI cherp...@msn.com
  To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; 
Dalton Garis malugss...@gmail.com
  Sent: Sun, Nov 7, 2010 4:43 pm
  Subject: Re: [TMIC] hello out there


  Hi Dalton  Everyone ~~

  You're right Dalton.  Many of us seem to be having additional challenges 
right now.  Could be why we've been so quiet on the list

  After I read your post about the horrific day you had, I did a little 
research, and I think I came back even more confused - sorry to say.  I'm sure 
I've asked you this before, but I'll ask again.
  Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???

  Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?

  So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  

  Linda
- Original Message - 
From: Dalton Garis 
To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma 
Sent: Sunday, November 07, 2010 5:19 PM
Subject: Re: [TMIC] hello out there


Seems as if everyone went down at the same time.  Is it possible that I 
might have recurrent TM?  I wish I could get the neuro interested in my case.  
But he just keeps me in Lyrica and has no further interest.

Dalton



From: L T CHERPESKI cherp...@msn.com
Date: Sun, 7 Nov 2010 16:33:40 -0700
To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

Have been trying to keep myself calm and quiet as I am in a full blown 
flare.  I'm 2 months past my Rituxan infusions, which obviously is not good.  
Hoping they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson

Re: [TMIC] hello out there

[L T CHERPESKI]

Re: [TMIC] hello out thereDalton, yes you still have all the symptoms.  When I 
told you I did some research after you had such a horrible day, I was trying to 
find more information on brainstem lesions.  Well I found a bunch of 
information, but I walked away with even more questions.  Could you ask your 
doctor questions specifically about the brainstem lesions?  Possibly these are 
causing most of your bad times?

Linda
  - Original Message - 
  From: Dalton Garis 
  To: L T CHERPESKI ; tmic-list@eskimo.com ; Carol E 
  Sent: Tuesday, November 09, 2010 9:19 PM
  Subject: Re: [TMIC] hello out there


  So, I have all the symptoms;

  But no lesions.  OK, I'm stumped, except that the brainstem lesions are still 
there.

  Dalton


--
  From: L T CHERPESKI cherp...@msn.com
  Date: Tue, 9 Nov 2010 21:16:00 -0700
  To: Dalton Garis malugss...@gmail.com, tmic-list@eskimo.com, Carol E 
snow121...@hotmail.com
  Subject: Re: [TMIC] hello out there
  Resent-From: tmic-list@eskimo.com
  Resent-Date: Tue, 9 Nov 2010 20:17:15 -0800

  This is what I have been told also.  My lesions can still be seen but they 
are inactive (C4,5,6). I was told they are like a scar.  However, I've seen 
posts where others have been told something different.
  Dalton, I still have all the residuals - burning, banding, weakness - it's 
just that some days are better than others.  It's going on 9 years for me.  
Hope you get to feeling better!
   
  Linda  in Eagle, ID


- Original Message - 
 
From: Carol  E mailto:snow121...@hotmail.com  
 
To: malugss...@gmail.com ; tmic-list@eskimo.com 
 
Sent: Tuesday, November 09, 2010 9:04  PM
 
Subject: RE: [TMIC] hello out there
 

Hi Dalton and all,
I was 1st diagnosed with TM June  2005.  I had lesions from T7-T10.  Every 
time I have new MRI's,  I am always told that I have no new lesions, but they 
can still see the old  ones which are inactive.  So I would say the lesions do 
not go away, they  are there like a scar.  


 

Carol  in  Addison, IL

 



   
 


Date: Wed, 10 Nov 2010 07:50:59 +0400
Subject: Re: [TMIC] hello out  there
From: malugss...@gmail.com
To: jan...@centurytel.net;  balmat...@aol.com; tmic-list@eskimo.com

 Hey, Janice!

We  missed you.  And I missed you.  Glad to have you back with  us.

I have a question for everyone.  A recent set of MRIs showed  that my spine 
in the thoracic was clear with no lesions or swellings.  It  has been one year 
since the diagnosis for TM.

Do these lesions clear up  later on, or did somebody make a mistake 
somewhere?  Because my everyday  symptoms are still weakness and pain from 
fingers to just above the elbow, and  from toes to above the knees with banding 
and burning in the torso and back.   And if I exercise at all, the next day I 
am in for day-long spasms that  leave me housebound and often unable to get 
around without assistance of my  dear part-time maid and helper.

Could someone get back to me on  this?

Thanks a lot.

Dalton

 


From: Janice Nichols jan...@centurytel.net http://jan...@centurytel.net 
Date: Tue, 9 Nov 2010  19:28:29 -0600
To: Dalton Garis malugss...@gmail.com http://malugss...@gmail.com ,  
Barbara Alma balmat...@aol.com http://balmat...@aol.com , 
tmic-list@eskimo.com http://tmic-list@eskimo.com 
Subject: Re: [TMIC] hello  out there

I do too, Dalton. You have a different set of problems that I have not 
heard  in other TM'ers. Sure wish you would get you act  together - scares 
me!!!
Seriously, I hope that is the last day you will  have like that.
Janice

From:  Dalton Garis mailto:malugss...@gmail.com   
Sent: Sunday, November 07, 2010 10:23 AM
To:  Barbara Alma mailto:balmat...@aol.com  ; tmic-list@eskimo.com 
http://tmic-list@eskimo.com   
Subject: Re: [TMIC] hello out there

Actually;

I had a  day-long attack of spasms yesterday which left me unable to 
control either my  hands and arms, legs, torso or speech.  Every time I tried 
to talk I  would cramp up. And Elvis was definitely being channeled in my body. 
  Thank heavens I had the assistance of a very nice and strong maid who  visits 
me once a week.  It was her day to visit and she stayed with me  and helped me 
to the bathroom and into and out of chairs.  It was hard to  sit down because I 
couldn't make my body bend and I'd just slide off.   But we got it under 
control.  She had to help me drink and eat.   I would grab the coffee cup 
handle and then could not make my hand let  go.

In the mean time I was so grateful for her assistance and that the  Lord 
was taking care of me that I was also as high as a kite

Re: [TMIC] hello out there

[Laura Beaudin]

At what level is your lesion? Could be that the rest of your body has
trouble sweating, so the top of your body is working overtime tto cool you
off.
Laura

www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org



On Tue, Nov 9, 2010 at 9:33 PM, Janice Nichols jan...@centurytel.netwrote:

  No, my hot flashes are not menapausal(sp).I had a complete
 hysterectomy 20 years ago. This just started as soon as TM did.   From
 my neck up I get fiercely hot - not the rest of my body.
 Warm and humid really sets it off, but I can heat up with them too.   But,
 the cooler I keep my body, the less chance I will get hot.
 Janice

  *From:* L T CHERPESKI cherp...@msn.com
 *Sent:* Tuesday, November 09, 2010 10:26 PM
 *To:* tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara 
 Almabalmat...@aol.com; Janice
 Nichols jan...@centurytel.net
 *Subject:* Re: [TMIC] hello out there

  Welcome back, Janice!  Sounds like you had a wonderful time.  (Sorry
 fellas, you might want to zone out for a minute)  I'm glad your hot
 spells are better in the cold weather.  Mine stopped immediately and never
 came back when TM became my special friend.  One nice perk ~

 Linda

 - Original Message -
 *From:* Janice Nichols jan...@centurytel.net
 *To:* cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com ; Barbara
 Alma balmat...@aol.com
 *Sent:* Tuesday, November 09, 2010 6:43 PM
 *Subject:* Re: [TMIC] hello out there

 Actually, I love the winter weather.At least then I don't have many
 hot spells.   I can control that better in cold weather.  Anyone else like
 that?
 Janice

  *From:* Barbara Alma balmat...@aol.com
 *Sent:* Sunday, November 07, 2010 7:44 PM
 *To:* cherp...@msn.com ; tmic-list@eskimo.com ; malugss...@gmail.com
 *Subject:* Re: [TMIC] hello out there

 Hello all,

 Well, maybe I shouldn't have asked this question, but I'm glad I did.  It
 looks like some support was needed for you guys and maybe for some just
 lurking and not feeling up to writing in.  Believe me, I sympathize with you
 and your pain.

 This time of year, when it's cold in many parts of the country and world,
 my symptoms get worse also.  It seems that some of us have symptoms that are
 exacerbated by the cold and some by heat.  The barometric pressure can
 affect many.

 Mine are much worse in the cold, and especially if it's rainy.  My skin can
 be warm to the touch, but I can feel cold to the bone (as I say).  I
 actually think that it may be the nerves that are cold and it is so hard to
 warm up again.  It can be really painful.  I get under the blankets and also
 wrap my legs in blankets, sometimes a heated one, and pray it goes away
 soon, but I can only do that when I'm at home.

 I try not to go out of the house unless absolutely necessary during this
 time of year, and I am sure that this is why the winter blues set in.  This
 is something we  have to be very careful of, because it can cause a lot of
 depression.  Please be aware of this.  This is another reason why it's
 important to keep in touch.

 Hugs, Barbara A in Auburn CA


 -Original Message-
 From: L T CHERPESKI cherp...@msn.com
 To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com;
 Dalton Garis malugss...@gmail.com
 Sent: Sun, Nov 7, 2010 4:43 pm
 Subject: Re: [TMIC] hello out there

  Hi Dalton  Everyone ~~

 You're right Dalton.  Many of us seem to be having additional challenges
 right now.  Could be why we've been so quiet on the list

 After I read your post about the horrific day you had, I did a little
 research, and I think I came back even more confused - sorry to say.  I'm
 sure I've asked you this before, but I'll ask again.
 Have you been given any drugs specifically for seizures?  If not, could
 your doctor put you on a seizure med for a trial period to see if it would
 indeed help??  I don't understand why they haven't tried this.  How does
 anybody know if nothing has been tried???

 Is Lyrica the only medication you take?  Is there another neuro you could
 see or would your neuro consider consulting another neuro about your case?

 So many questions - so few answers.  I don't know what to say.  It's so
 frustrating to see you going through all of this.  Hang in there and keep
 posting.

 Linda

 - Original Message -
 *From:* Dalton Garis malugss...@gmail.com
 *To:* L T CHERPESKI cherp...@msn.com ; tmic-list@eskimo.com ; Barbara
 Alma balmat...@aol.com
 *Sent:* Sunday, November 07, 2010 5:19 PM
 *Subject:* Re: [TMIC] hello out there

 Seems as if everyone went down at the same time.  Is it possible that I
 might have recurrent TM?  I wish I could get the neuro interested in my
 case.  But he just keeps me in Lyrica and has no further interest.

 Dalton

 --
 *From: *L T CHERPESKI cherp...@msn.com
 *Date: *Sun, 7 Nov 2010 16:33:40 -0700
 *To: *tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
 *Subject: *Re: [TMIC] hello out there
 *Resent-From

Re: [TMIC] hello out there

[Gillian Clark]

OK, Barb,

I don't have anything new to report.  Into my tenth year! Who would have 
thought?
I always read the list but feel fairly far removed from the newly diagnosed 
now. Still, I'm always more than willing to help.
hugs
Gilly
From Kanmantoo
South Australia
  - Original Message - 
  From: Barbara Alma 
  To: tmic-list@eskimo.com 
  Sent: Sunday, November 07, 2010 3:18 PM
  Subject: [TMIC] hello out there


  Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

  If a couple of days pass without any messages, let's send in a message or two.

  Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[john snodgrass]

i have been attempting to journalize the weather and my pain on a 1-10 scale. 
and it seams as if when the barametric pressure is up I hurt more.
 
 
--- On Sun, 11/7/10, Barbara Alma balmat...@aol.com wrote:


From: Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
To: cherp...@msn.com, tmic-list@eskimo.com, malugss...@gmail.com
Date: Sunday, November 7, 2010, 8:44 PM



Hello all,
 
Well, maybe I shouldn't have asked this question, but I'm glad I did.  It looks 
like some support was needed for you guys and maybe for some just lurking and 
not feeling up to writing in.  Believe me, I sympathize with you and your 
pain.  
 
This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many.
 
Mine are much worse in the cold, and especially if it's rainy.  My skin can be 
warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I 
can only do that when I'm at home. 
 
I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch.

Hugs, Barbara A in Auburn CA


-Original Message-
From: L T CHERPESKI cherp...@msn.com
To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton 
Garis malugss...@gmail.com
Sent: Sun, Nov 7, 2010 4:43 pm
Subject: Re: [TMIC] hello out there




Hi Dalton  Everyone ~~
 
You're right Dalton.  Many of us seem to be having additional challenges right 
now.  Could be why we've been so quiet on the list
 
After I read your post about the horrific day you had, I did a little research, 
and I think I came back even more confused - sorry to say.  I'm sure I've asked 
you this before, but I'll ask again.
Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???
 
Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?
 
So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  
 
Linda

- Original Message - 
From: Dalton Garis 
To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma 
Sent: Sunday, November 07, 2010 5:19 PM
Subject: Re: [TMIC] hello out there

Seems as if everyone went down at the same time.  Is it possible that I might 
have recurrent TM?  I wish I could get the neuro interested in my case.  But he 
just keeps me in Lyrica and has no further interest.

Dalton



From: L T CHERPESKI cherp...@msn.com
Date: Sun, 7 Nov 2010 16:33:40 -0700
To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

Have been trying to keep myself calm and quiet as I am in a full blown flare.  
I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

Linda in Eagle, ID


 
 




  

Re: [TMIC] hello out there

[CANDIS KALLEY]

John, I find that any time the barometric pressure changes, I can feel it.  

Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile. 


Prayers and thoughts for you and yours, 

Candy K. 

- Original Message - 
From: john snodgrass jcs...@yahoo.com 
To: transverse myelitis tmic-list@eskimo.com 
Sent: Monday, November 8, 2010 7:55:37 AM 
Subject: Re: [TMIC] hello out there 


i have been attempting to journalize the weather and my pain on a 1-10 scale. 
and it seams as if when the barametric pressure is up I hurt more. 


--- On Sun, 11/7/10, Barbara Alma balmat...@aol.com wrote: 



From: Barbara Alma balmat...@aol.com 
Subject: Re: [TMIC] hello out there 
To: cherp...@msn.com, tmic-list@eskimo.com, malugss...@gmail.com 
Date: Sunday, November 7, 2010, 8:44 PM 



Hello all, 

Well, maybe I shouldn't have asked this question, but I'm glad I did.  It looks 
like some support was needed for you guys and maybe for some just lurking and 
not feeling up to writing in.  Believe me, I sympathize with you and your 
pain.  

This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many. 

Mine are much worse in the cold, and especially if it's rainy.  My skin can be 
warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I 
can only do that when I'm at home.  

I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch. 

Hugs, Barbara A in Auburn CA 


-Original Message- 
From: L T CHERPESKI cherp...@msn.com 
To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton 
Garis malugss...@gmail.com 
Sent: Sun, Nov 7, 2010 4:43 pm 
Subject: Re: [TMIC] hello out there 




Hi Dalton  Everyone ~~ 

You're right Dalton.  Many of us seem to be having additional challenges right 
now.  Could be why we've been so quiet on the list 

After I read your post about the horrific day you had, I did a little research, 
and I think I came back even more confused - sorry to say.  I'm sure I've asked 
you this before, but I'll ask again. 
Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried??? 

Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case? 

So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  

Linda 


- Original Message - 
From: Dalton Garis 
To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma 
Sent: Sunday, November 07, 2010 5:19 PM 
Subject: Re: [TMIC] hello out there 

Seems as if everyone went down at the same time.  Is it possible that I might 
have recurrent TM?  I wish I could get the neuro interested in my case.  But he 
just keeps me in Lyrica and has no further interest. 

Dalton 


From: L T CHERPESKI  cherp...@msn.com  
Date: Sun, 7 Nov 2010 16:33:40 -0700 
To:  tmic-list@eskimo.com , Barbara Alma  balmat...@aol.com  
Subject: Re: [TMIC] hello out there 
Resent-From:  tmic-list@eskimo.com  
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800 

Have been trying to keep myself calm and quiet as I am in a full blown flare.  
I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~ 

Linda in Eagle, ID 



  
  

Re: [TMIC] hello out there

[john snodgrass]

I would say the pain is not as intense as it has been but am afraid i will jinx 
myself!

--- On Sun, 11/7/10, Barbara Alma balmat...@aol.com wrote:


From: Barbara Alma balmat...@aol.com
Subject: [TMIC] hello out there
To: tmic-list@eskimo.com
Date: Sunday, November 7, 2010, 12:48 AM



Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea 
to keep this list going though in case there are any newbies who may need us 
and don't think there is anyone here to listen to them.
 
If a couple of days pass without any messages, let's send in a message or two.
 
Hugs, Barbara A in Auburn CA


  

RE: [TMIC] hello out there

[Patricia Cooley]

Barb I guess everyone is busy with the weekend.  No news is good news.
Hopefully, everyone is doing as well as can be expected with TM.  I know I
always look forward to all the posts.

 

Take care all.

 

Patti - Wisconsin

 

From: Barbara Alma [mailto:balmat...@aol.com] 
Sent: Saturday, November 06, 2010 11:48 PM
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there

 

Well, I guess since nobody has written in that all must be going well for
everyone.  It's very good to hear this.  I do think that it is a good idea
to keep this list going though in case there are any newbies who may need us
and don't think there is anyone here to listen to them.

 

If a couple of days pass without any messages, let's send in a message or
two.

 

Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Dalton Garis]

Actually;

I had a day-long attack of spasms yesterday which left me unable to control
either my hands and arms, legs, torso or speech.  Every time I tried to talk
I would cramp up. And Elvis was definitely being channeled in my body.
Thank heavens I had the assistance of a very nice and strong maid who visits
me once a week.  It was her day to visit and she stayed with me and helped
me to the bathroom and into and out of chairs.  It was hard to sit down
because I couldn¹t make my body bend and I¹d just slide off.  But we got it
under control.  She had to help me drink and eat.  I would grab the coffee
cup handle and then could not make my hand let go.

In the mean time I was so grateful for her assistance and that the Lord was
taking care of me that I was also as high as a kite and proposing marriage
to chairs and such.

Today was the beginning of the work week here (Abu Dhabi) and I did alright.
But the lecture kept going off on these tangents making it hard for my class
to take useful notes.  It was because my mental state was still flying
around the cosmos.

What is going on here?  OK, I have TM in my upper spine; but what is this
mental derangement stuff?  I sure wish the drs could find out what is wrong
with me.

Dalton


From: Barbara Alma balmat...@aol.com
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT)
To: tmic-list@eskimo.com
Subject: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700

Well, I guess since nobody has written in that all must be going well for
everyone.  It's very good to hear this.  I do think that it is a good idea
to keep this list going though in case there are any newbies who may need us
and don't think there is anyone here to listen to them.
 
If a couple of days pass without any messages, let's send in a message or
two.
 
Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Laura Beaudin]

Dalton,

Have you been properly screened for MS?
Laura

www.laurabeaudin.com --NOT just another blog!
http://practical-homeschooling.org



On Sun, Nov 7, 2010 at 9:23 AM, Dalton Garis malugss...@gmail.com wrote:

  Actually;

 I had a day-long attack of spasms yesterday which left me unable to control
 either my hands and arms, legs, torso or speech.  Every time I tried to talk
 I would cramp up. And Elvis was definitely being channeled in my body.
  Thank heavens I had the assistance of a very nice and strong maid who
 visits me once a week.  It was her day to visit and she stayed with me and
 helped me to the bathroom and into and out of chairs.  It was hard to sit
 down because I couldn’t make my body bend and I’d just slide off.  But we
 got it under control.  She had to help me drink and eat.  I would grab the
 coffee cup handle and then could not make my hand let go.

 In the mean time I was so grateful for her assistance and that the Lord was
 taking care of me that I was also as high as a kite and proposing marriage
 to chairs and such.

 Today was the beginning of the work week here (Abu Dhabi) and I did
 alright.  But the lecture kept going off on these tangents making it hard
 for my class to take useful notes.  It was because my mental state was still
 flying around the cosmos.

 What is going on here?  OK, I have TM in my upper spine; but what is this
 mental derangement stuff?  I sure wish the drs could find out what is wrong
 with me.

 Dalton

 --
 *From: *Barbara Alma balmat...@aol.com
 *Date: *Sun, 7 Nov 2010 00:48:22 -0400 (EDT)

 *To: *tmic-list@eskimo.com
 *Subject: *[TMIC] hello out there
 *Resent-From: *tmic-list@eskimo.com
 *Resent-Date: *Sat, 6 Nov 2010 21:48:30 -0700

 Well, I guess since nobody has written in that all must be going well for
 everyone.  It's very good to hear this.  I do think that it is a good idea
 to keep this list going though in case there are any newbies who may need us
 and don't think there is anyone here to listen to them.

 If a couple of days pass without any messages, let's send in a message or
 two.

 Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[CANDIS KALLEY]

Dalton, 

So sorry that you had another bad day. 



With the onset of cold wether, I've been having a bad time myself.  

Somehow, I got a briuse on my big toe but the pain wasn't/isn't in my toe.  I 
could hardly move for 2 days ago.  



I wore protection and would just sit  wet myself because it hurt so bad to 
move IF I could move - my R leg would give out on me.  My back felt as if 
someone was inside trying to tear everything from the inside out!  If I didn't 
move, I had the normal back pain. 



I fell one other time and my L foot was bruised.  For the next 5 days if I put 
any weight on theL foot, I would fall and the pain was horriable! 

Has anyone experienced pain, or the results of pain, but not in the area of the 
injury? 



Life is short! Break the rules! Forgive quickly! Kiss slowly! 
Love truly, Laugh uncontrollably . 
And never regret anything that made you smile. 


Prayers and thoughts for you and yours, 

Candy K. 

- Original Message - 
From: Dalton Garis malugss...@gmail.com 
To: Barbara Alma balmat...@aol.com, tmic-list@eskimo.com 
Sent: Sunday, November 7, 2010 11:23:44 AM 
Subject: Re: [TMIC] hello out there 

Actually; 

I had a day-long attack of spasms yesterday which left me unable to control 
either my hands and arms, legs, torso or speech.  Every time I tried to talk I 
would cramp up. And Elvis was definitely being channeled in my body.  Thank 
heavens I had the assistance of a very nice and strong maid who visits me once 
a week.  It was her day to visit and she stayed with me and helped me to the 
bathroom and into and out of chairs.  It was hard to sit down because I 
couldn’t make my body bend and I’d just slide off.  But we got it under 
control.  She had to help me drink and eat.  I would grab the coffee cup handle 
and then could not make my hand let go. 

In the mean time I was so grateful for her assistance and that the Lord was 
taking care of me that I was also as high as a kite and proposing marriage to 
chairs and such.   

Today was the beginning of the work week here (Abu Dhabi) and I did alright.  
But the lecture kept going off on these tangents making it hard for my class to 
take useful notes.  It was because my mental state was still flying around the 
cosmos. 

What is going on here?  OK, I have TM in my upper spine; but what is this 
mental derangement stuff?  I sure wish the drs could find out what is wrong 
with me. 

Dalton 






From: Barbara Alma  balmat...@aol.com  
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT) 
To:  tmic-list@eskimo.com  
Subject: [TMIC] hello out there 
Resent-From:  tmic-list@eskimo.com  
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700 

Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them. 

If a couple of days pass without any messages, let's send in a message or two. 
  
Hugs, Barbara A in Auburn CA 






From: Barbara Alma  balmat...@aol.com  
Date: Sun, 7 Nov 2010 00:48:22 -0400 (EDT) 
To:  tmic-list@eskimo.com  
Subject: [TMIC] hello out there 
Resent-From:  tmic-list@eskimo.com  
Resent-Date: Sat, 6 Nov 2010 21:48:30 -0700 

Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them. 

If a couple of days pass without any messages, let's send in a message or two. 
  
Hugs, Barbara A in Auburn CA 

Re: [TMIC] hello out there

[kimharrison325]

was doing good until yesterday, went on a 3 mile ALS walk (ok I rolled while 
someone pushed) well except for down hill then gravity took over.) The extreme 
cold has me hurting today but once i rest and and warm back up all should be 
good 





Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them. 

If a couple of days pass without any messages, let's send in a message or two. 
  
Hugs, Barbara A in Auburn CA 







Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them. 

If a couple of days pass without any messages, let's send in a message or two. 
  
Hugs, Barbara A in Auburn CA 


Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them. 

If a couple of days pass without any messages, let's send in a message or two. 
  
Hugs, Barbara A in Auburn CA 

Re: [TMIC] hello out there

[L T CHERPESKI]

Have been trying to keep myself calm and quiet as I am in a full blown flare.  
I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

Linda in Eagle, ID
  - Original Message - 
  From: Barbara Almamailto:balmat...@aol.com 
  To: tmic-list@eskimo.commailto:tmic-list@eskimo.com 
  Sent: Saturday, November 06, 2010 9:48 PM
  Subject: [TMIC] hello out there


  Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

  If a couple of days pass without any messages, let's send in a message or two.

  Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Dalton Garis]

Seems as if everyone went down at the same time.  Is it possible that I
might have recurrent TM?  I wish I could get the neuro interested in my
case.  But he just keeps me in Lyrica and has no further interest.

Dalton


From: L T CHERPESKI cherp...@msn.com
Date: Sun, 7 Nov 2010 16:33:40 -0700
To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

Have been trying to keep myself calm and quiet as I am in a full blown
flare.  I'm 2 months past my Rituxan infusions, which obviously is not good.
Hoping they were approved last Friday and will be scheduled this week.  I
have Recurring TM and Rituxan has kept me attack free the last 2 years - I
guess that teaches me a lesson - the hard way.  Get infusions every 6 months
on schedule.  A real bummer~
 
Linda in Eagle, ID
  
 - Original Message -
  
 From: Barbara Alma mailto:balmat...@aol.com
  
 To: tmic-list@eskimo.com
  
 Sent: Saturday, November 06, 2010 9:48  PM
  
 Subject: [TMIC] hello out there
  
 
  
 Well, I guess since nobody has written in that all must be going well for
 everyone.  It's very good to hear this.  I do think that it is  a good idea to
 keep this list going though in case there are any newbies  who may need us and
 don't think there is anyone here to listen to them.
  
  
  
 If a couple of days pass without any messages, let's send in a message or
 two.
  
  
  
 Hugs, Barbara A in Auburn  CA

Re: [TMIC] hello out there

[L T CHERPESKI]

Re: [TMIC] hello out thereHi Dalton  Everyone ~~

You're right Dalton.  Many of us seem to be having additional challenges right 
now.  Could be why we've been so quiet on the list

After I read your post about the horrific day you had, I did a little research, 
and I think I came back even more confused - sorry to say.  I'm sure I've asked 
you this before, but I'll ask again.
Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???

Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?

So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  

Linda
  - Original Message - 
  From: Dalton Garismailto:malugss...@gmail.com 
  To: L T CHERPESKImailto:cherp...@msn.com ; 
tmic-list@eskimo.commailto:tmic-list@eskimo.com ; Barbara 
Almamailto:balmat...@aol.com 
  Sent: Sunday, November 07, 2010 5:19 PM
  Subject: Re: [TMIC] hello out there


  Seems as if everyone went down at the same time.  Is it possible that I might 
have recurrent TM?  I wish I could get the neuro interested in my case.  But he 
just keeps me in Lyrica and has no further interest.

  Dalton


--
  From: L T CHERPESKI cherp...@msn.commailto:cherp...@msn.com
  Date: Sun, 7 Nov 2010 16:33:40 -0700
  To: tmic-list@eskimo.commailto:tmic-list@eskimo.com, Barbara Alma 
balmat...@aol.commailto:balmat...@aol.com
  Subject: Re: [TMIC] hello out there
  Resent-From: tmic-list@eskimo.commailto:tmic-list@eskimo.com
  Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

  Have been trying to keep myself calm and quiet as I am in a full blown flare. 
 I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

  Linda in Eagle, ID


- Original Message - 
 
From: Barbara Alma mailto:balmat...@aol.commailto:balmat...@aol.com  
 
To: tmic-list@eskimo.comabout:tmic-list@eskimo.com 
 
Sent: Saturday, November 06, 2010 9:48  PM
 
Subject: [TMIC] hello out there
 


Well, I guess since nobody has written in that all must be going well for  
everyone.  It's very good to hear this.  I do think that it is  a good idea to 
keep this list going though in case there are any newbies  who may need us and 
don't think there is anyone here to listen to them.

 
 
If a couple of days pass without any messages, let's send in a message or  
two.
 
 
 
Hugs, Barbara A in Auburn  CA

Re: [TMIC] hello out there

[L T CHERPESKI]

John - glad to hear your pain level is a little better.  I had to chuckle - I'm 
just going to think positive and say no jinxing (is that even a word?)  Be well

Linda
  - Original Message - 
  From: john snodgrassmailto:jcs...@yahoo.com 
  To: transverse myelitismailto:tmic-list@eskimo.com 
  Sent: Sunday, November 07, 2010 2:59 AM
  Subject: Re: [TMIC] hello out there


I would say the pain is not as intense as it has been but am afraid i 
will jinx myself!

--- On Sun, 11/7/10, Barbara Alma 
balmat...@aol.commailto:balmat...@aol.com wrote:


  From: Barbara Alma balmat...@aol.commailto:balmat...@aol.com
  Subject: [TMIC] hello out there
  To: tmic-list@eskimo.commailto:tmic-list@eskimo.com
  Date: Sunday, November 7, 2010, 12:48 AM


  Well, I guess since nobody has written in that all must be going well 
for everyone.  It's very good to hear this.  I do think that it is a good idea 
to keep this list going though in case there are any newbies who may need us 
and don't think there is anyone here to listen to them.

  If a couple of days pass without any messages, let's send in a 
message or two.

  Hugs, Barbara A in Auburn CA 

Re: [TMIC] hello out there

[L T CHERPESKI]

Our bodies really don't care for that cold weather.  I hope when you warm up 
and are rested you'll 
feel much better.  We haven't had any cold weather yet - and am Not looking 
forward to it.  Take care of yourself

Linda
  Original Message - 
  From: kimharrison...@comcast.netmailto:kimharrison...@comcast.net 
  To: tmic-list@eskimo.commailto:tmic-list@eskimo.com 
  Cc: tmic-list@eskimo.commailto:tmic-list@eskimo.com 
  Sent: Sunday, November 07, 2010 1:09 PM
  Subject: Re: [TMIC] hello out there




was doing good until yesterday, went on a 3 mile ALS walk (ok I rolled 
while someone pushed) well except for down hill then gravity took over.) The 
extreme cold has me hurting today but once i rest and and warm back up all 
should be good



  Well, I guess since nobody has written in that all must be going well for 
everyone.  It's very good to hear this.  I do think that it is a good idea to 
keep this list going though in case there are any newbies who may need us and 
don't think there is anyone here to listen to them.

  If a couple of days pass without any messages, let's send in a message or 
two.
   
  Hugs, Barbara A in Auburn CA

Re: [TMIC] hello out there

[Barbara Alma]

Hello all,

Well, maybe I shouldn't have asked this question, but I'm glad I did.  It looks 
like some support was needed for you guys and maybe for some just lurking and 
not feeling up to writing in.  Believe me, I sympathize with you and your pain. 
 

This time of year, when it's cold in many parts of the country and world, my 
symptoms get worse also.  It seems that some of us have symptoms that are 
exacerbated by the cold and some by heat.  The barometric pressure can affect 
many.

Mine are much worse in the cold, and especially if it's rainy.  My skin can be 
warm to the touch, but I can feel cold to the bone (as I say).  I actually 
think that it may be the nerves that are cold and it is so hard to warm up 
again.  It can be really painful.  I get under the blankets and also wrap my 
legs in blankets, sometimes a heated one, and pray it goes away soon, but I can 
only do that when I'm at home. 

I try not to go out of the house unless absolutely necessary during this time 
of year, and I am sure that this is why the winter blues set in.  This is 
something we  have to be very careful of, because it can cause a lot of 
depression.  Please be aware of this.  This is another reason why it's 
important to keep in touch.

Hugs, Barbara A in Auburn CA



-Original Message-
From: L T CHERPESKI cherp...@msn.com
To: tmic-list tmic-list@eskimo.com; Barbara Alma balmat...@aol.com; Dalton 
Garis malugss...@gmail.com
Sent: Sun, Nov 7, 2010 4:43 pm
Subject: Re: [TMIC] hello out there



Hi Dalton  Everyone ~~
 
You're right Dalton.  Many of us seem to be having additional challenges right 
now.  Could be why we've been so quiet on the list
 
After I read your post about the horrific day you had, I did a little research, 
and I think I came back even more confused - sorry to say.  I'm sure I've asked 
you this before, but I'll ask again.
Have you been given any drugs specifically for seizures?  If not, could your 
doctor put you on a seizure med for a trial period to see if it would indeed 
help??  I don't understand why they haven't tried this.  How does anybody know 
if nothing has been tried???
 
Is Lyrica the only medication you take?  Is there another neuro you could see 
or would your neuro consider consulting another neuro about your case?
 
So many questions - so few answers.  I don't know what to say.  It's so 
frustrating to see you going through all of this.  Hang in there and keep 
posting.  
 
Linda

- Original Message - 
From: Dalton Garis 
To: L T CHERPESKI ; tmic-list@eskimo.com ; Barbara Alma 
Sent: Sunday, November 07, 2010 5:19 PM
Subject: Re: [TMIC] hello out there


Seems as if everyone went down at the same time.  Is it possible that I might 
have recurrent TM?  I wish I could get the neuro interested in my case.  But he 
just keeps me in Lyrica and has no further interest.

Dalton

From: L T CHERPESKI cherp...@msn.com
Date: Sun, 7 Nov 2010 16:33:40 -0700
To: tmic-list@eskimo.com, Barbara Alma balmat...@aol.com
Subject: Re: [TMIC] hello out there
Resent-From: tmic-list@eskimo.com
Resent-Date: Sun, 7 Nov 2010 15:33:39 -0800

Have been trying to keep myself calm and quiet as I am in a full blown flare.  
I'm 2 months past my Rituxan infusions, which obviously is not good.  Hoping 
they were approved last Friday and will be scheduled this week.  I have 
Recurring TM and Rituxan has kept me attack free the last 2 years - I guess 
that teaches me a lesson - the hard way.  Get infusions every 6 months on 
schedule.  A real bummer~

Linda in Eagle, ID


 
 

Re: [TMIC] Hello all, about me

[jannic]

Hi, Pamela, and welcome to the group. Sorry about the
circumstances, but we are herefor
you. I have never heard of
Latent TM. Also can't believe that the doc's
can'tcome up with something to strengthen you. I can't
imagine working as a nurse and dealingwith TM - you must be stronger than
you think. I wish you thebest and keep
postingin.JaniceQuoting PAMELA S
:Hello John; In answer
to your question, I was diagnosed in 1992 with pretty good recovery except a
straight catheter and extreme fatigue with any viral infection. A few
years ago I started getting weaker. In 2000 I had trouble with BIH from
the high protein in my spinal fluid. Now all of the sudden I'm weak as a
kitten and can hardly get around. The initial hit was between my shoulder
blades. My arms weren't effected at first, but they now are. I've
continued to work with intermittant leave until last August. This they
call Latent TM. I was told in the beginning, once I got well, it would
probably stay away. I still have the feeling that there is a fist gripping
between my shoulder blades frequently, but the weakness is worse than it's ever
been. I'm barely walking, but I am walking. I fall alot. Since
1992 some doctors have learned about tm but many I've used have no idea. I
was actually laughed at once for the burning sensation. I said give me a
felt marker. I'll mark where it burns, and you will find a dermatone
diagram standing in front of you. My biggest issue now is how to adjust to
disability. I still have a mortgage over my head. I am a nurse who
was working 12 hour shifts on her feet. My only problem was young nurses
making fun when a foot dragged or I seemed to be tiring out. Today, I
barely make it to 2 in the afternoon before it hurts to hold my head up.
PT kills me. The tiniest exercizes and I can't do anything for 2 days
without pain. Somehow this doesn't feel latent to me. I need all the
advice I can get, especially on disability issues and lifestyle transitions. 

Re: [TMIC] Hello all, about me

[john snodgrass]

I hate that part about the mortgage. im in the same boat. the most i can draw 
from disability is @ 1400. thats before the medicaid insurance is taken out. i 
understand thats @ 100 per month.
i signed that paper for disability but it will be 5b months before i get 
anything from it.
 
trying to work a little meanwhile.
 
totally understand you not being able to stay on your feet.
 
my boss asks me a lot John when did you quit drinking?
 
my answer is always am i supposed to?
 
of course we are both joking.
 
others have watched me and asked someone later was I drunk or what?
 
if i get a small accomplishment done i feel like i have really done something.
my sis-n-law is a nurse and i have several friends who are nurses and they seam 
to understand somewhat of what i am going through,they work on a neurological 
floor at the hospital.
 
My Family Dr told me TM was somethng you see in medical school but never really 
expect to actually deal with it so it is overlooked.
 She told me since i seam to have more information on it than she did that if i 
wanted to do any treatment other than what we were doing to just name it and we 
would try it.
 
nice of her but being the redneck that i am thought it was rather lame.
 
you should get some good feedback in this list.
 
just be patient and dont read any negative emmotion into 
anything,,rememberwe are all or most all on some pretty good medication.
 
did i have the microphone turned on when i said that!
 
OMG!
 
welcome
 
John from WV
 
--- On Mon, 11/1/10, PAMELA S subers...@msn.com wrote:


From: PAMELA S subers...@msn.com
Subject: [TMIC] Hello all, about me
To: TMC Group tmic-list@eskimo.com
Date: Monday, November 1, 2010, 2:50 PM




Hello John;  In answer to your question, I was diagnosed in 1992 with pretty 
good recovery except a straight catheter and extreme fatigue with any viral 
infection.  A few years ago I started getting weaker.  In 2000 I had trouble 
with BIH from the high protein in my spinal fluid.  Now all of the sudden I'm 
weak as a kitten and can hardly get around.  The initial hit was between my 
shoulder blades.  My arms weren't effected at first, but they now are.  I've 
continued to work with intermittant leave until last August.  This they call 
Latent TM.  I was told in the beginning, once I got well, it would probably 
stay away.  I still have the feeling that there is a fist gripping between my 
shoulder blades frequently, but the weakness is worse than it's ever been.  I'm 
barely walking, but I am walking.  I fall alot.  Since 1992 some doctors have 
learned about tm but many I've used have no idea.  I was actually laughed at 
once for the burning
 sensation.  I said give me a felt marker.  I'll mark where it burns, and you 
will find a dermatone diagram standing in front of you.  My biggest issue now 
is how to adjust to disability.  I still have a mortgage over my head.  I am a 
nurse who was working 12 hour shifts on her feet.  My only problem was young 
nurses making fun when a foot dragged or I seemed to be tiring out.  Today, I 
barely make it to 2 in the afternoon before it hurts to hold my head up.  PT 
kills me.  The tiniest exercizes and I can't do anything for 2 days without 
pain.  Somehow this doesn't feel latent to me.  I need all the advice I can 
get, especially on disability issues and lifestyle transitions. 



  

RE: [TMIC] hello

[Patricia Cooley]

YOU CAME THROUGH WITHOUT A PROBLEM.

 

PATTI - WISCONSIN

 

From: celr...@aol.com [mailto:celr...@aol.com] 
Sent: Monday, September 06, 2010 6:40 PM
To: tmic-l...@eskimo.net
Subject: [TMIC] hello

 

Please let me know if this comes through.  Some how I was kicked off the
tmic website.

 

Re: [TMIC] hello

[Barbara H.]

Yes, it came through. That happens to me sometimes -- don't know why.

Barbara H.
http://barbarah.wordpress.com

On Mon, Sep 6, 2010 at 7:40 PM, celr...@aol.com wrote:

  Please let me know if this comes through.  Some how I was kicked off the
 tmic website.

Re: [TMIC] Hello

[Gary Thomas]

Tammy,
It works!  We hope to hear more from you and about your experience with TM.  
Where are you from, geographically?

Gary in Michigan
  - Original Message - 
  From: tammy Wilber 
  To: tmic-list@eskimo.com 
  Sent: Tuesday, November 17, 2009 2:01 PM
  Subject: [TMIC] Hello


I just signed up and wanted to say hello and see if this works. A test 
email


Thank you,

Tammy 

   

  __
  Do You Yahoo!?
  Tired of spam? Yahoo! Mail has the best spam protection around 
  http://mail.yahoo.com 

Re: [TMIC] Hello

[L T CHERPESKI]

Hi Tammy and Welcome aboard.  I hope you will share your TM story with us 
sometime soon.  We all try to be helpful when we can, and we are all very 
supportive.

Looking forward to hearing from you.

Linda (Eagle, ID)
  - Original Message - 
  From: tammy Wilbermailto:tammywhe...@yahoo.com 
  To: tmic-list@eskimo.commailto:tmic-list@eskimo.com 
  Sent: Tuesday, November 17, 2009 12:01 PM
  Subject: [TMIC] Hello


I just signed up and wanted to say hello and see if this works. A test 
email


Thank you,

Tammy 

http://www.rocklynmedical.com/ 

  __
  Do You Yahoo!?
  Tired of spam? Yahoo! Mail has the best spam protection around 
  http://mail.yahoo.comhttp://mail.yahoo.com/ 

RE: [TMIC] Hello Jude!

[Patricia Cooley]

MARGARET:

 

I WISH YOU A SPEEDY RECOVERY FROM YOUR KNEE REPLACEMENT.  MY HUSBAND HAD
BOTH KNEES REPLACED ABOUT 3 YEARS AGO.  HIS RECOVERY WAS TERRIFIC.  OF
COURSE, THERE IS A LOT OF PAIN WITH P.T., BUT IT IS TO YOUR BEST INTEREST TO
TRY AS HARD AS YOU CAN.  HE WAS VERY FAITHFULL DOING HIS PRE-SURGERY
EXERCISES WHICH I THINK HELPED HIM RECOVER SO FAST.  YOU WOULD NEVER KNOW
THAT HE HAS NEW KNEEWS.  HE CAN DO EVERYTHING, EVEN KNEEL IN HIS GARDEN.
THE ONE PLUS SIDE IS HE IS NO LONGER BOWLEGGED.  WE USE TO TEASE HIM THAT A
CAR COULD DRIVE THROUGH AND HE WOULDN'T KNOW IT.  NOW HE WISHES HE HAD DONE
IT YEARS AGO.

 

GOOD LUCK IN YOUR RECOVERY.

 

PATTI - WISCONSIN

 

 

 

From: Margaret Monson [mailto:mag...@telus.net] 
Sent: Thursday, April 02, 2009 1:31 PM
To: heyjude48...@aol.com
Cc: tmic-list@eskimo.com; tmic-digest-requ...@eskimo.com
Subject: [TMIC] Hello Jude!

 

I am glad to hear that you are home and healing.  I hope that all is going
well.  You were and are in my thoughts.

 

Although we have never personally met or talked with each other, I welcome
your emails to the list.  You always seem to have such a positive outlook on
things no matter what is thrown at you.  You always have a kind word and
offer advice based on your experience.  Jude, you are a gem.

 

I am at home recuperating from a partial knee replacement done on March 26.
I am healing well but know this will be a slow recovery.  I was amazed at
the number of doctors and people who actually think you can fully recover
from TM.  One doctor was surprised when I told him that you never fully
recover and will always have TM.  You only recover to the best that your
body can.

 

Do take care Jude and I hope you are able to post soon!  I miss your emails!

 

Margaret

Edmonton AB

Canada

RE: [TMIC] Hello Jude!

[Margaret Monson]

Thank you for your note, Patti.

 

The recover is moving along slowly.  Part of my problem is that I have so
much scar tissue from 14 previous surgeries that it is limiting my movement
quite a bit.  I am working hard on it every day and I am sure that once the
zipper (staples) are removed, it will be much easier.

 

Margaret

 

From: Patricia Cooley [mailto:patticoo...@wi.rr.com] 
Sent: April-03-09 8:39 AM
To: 'Margaret Monson'; tmic-list@eskimo.com
Subject: RE: [TMIC] Hello Jude!

 

MARGARET:

 

I WISH YOU A SPEEDY RECOVERY FROM YOUR KNEE REPLACEMENT.  MY HUSBAND HAD
BOTH KNEES REPLACED ABOUT 3 YEARS AGO.  HIS RECOVERY WAS TERRIFIC.  OF
COURSE, THERE IS A LOT OF PAIN WITH P.T., BUT IT IS TO YOUR BEST INTEREST TO
TRY AS HARD AS YOU CAN.  HE WAS VERY FAITHFULL DOING HIS PRE-SURGERY
EXERCISES WHICH I THINK HELPED HIM RECOVER SO FAST.  YOU WOULD NEVER KNOW
THAT HE HAS NEW KNEEWS.  HE CAN DO EVERYTHING, EVEN KNEEL IN HIS GARDEN.
THE ONE PLUS SIDE IS HE IS NO LONGER BOWLEGGED.  WE USE TO TEASE HIM THAT A
CAR COULD DRIVE THROUGH AND HE WOULDN'T KNOW IT.  NOW HE WISHES HE HAD DONE
IT YEARS AGO.

 

GOOD LUCK IN YOUR RECOVERY.

 

PATTI - WISCONSIN

 

 

 

From: Margaret Monson [mailto:mag...@telus.net] 
Sent: Thursday, April 02, 2009 1:31 PM
To: heyjude48...@aol.com
Cc: tmic-list@eskimo.com; tmic-digest-requ...@eskimo.com
Subject: [TMIC] Hello Jude!

 

I am glad to hear that you are home and healing.  I hope that all is going
well.  You were and are in my thoughts.

 

Although we have never personally met or talked with each other, I welcome
your emails to the list.  You always seem to have such a positive outlook on
things no matter what is thrown at you.  You always have a kind word and
offer advice based on your experience.  Jude, you are a gem.

 

I am at home recuperating from a partial knee replacement done on March 26.
I am healing well but know this will be a slow recovery.  I was amazed at
the number of doctors and people who actually think you can fully recover
from TM.  One doctor was surprised when I told him that you never fully
recover and will always have TM.  You only recover to the best that your
body can.

 

Do take care Jude and I hope you are able to post soon!  I miss your emails!

 

Margaret

Edmonton AB

Canada

RE: [TMIC] Hello Jude!

[Jan Hargrove]

We had a great friend who had terrible knees, had to quit playing tennis and 
golf.  
Finally he decided to suck it up and have them 'fixed'his recovery was rapid
and he said he had no idea how much pain he'd been in before he had no pain!!
I say, get it fixrd so we can go on down the road!! and that's how Ive treated 
tm,
I refuse to let it keep me from living!!!
janh

--- On Fri, 4/3/09, Patricia Cooley patticoo...@wi.rr.com wrote:

From: Patricia Cooley patticoo...@wi.rr.com
Subject: RE: [TMIC] Hello Jude!
To: 'Margaret Monson' mag...@telus.net, tmic-list@eskimo.com
Date: Friday, April 3, 2009, 9:38 AM








MARGARET:
 
I WISH YOU A SPEEDY RECOVERY FROM YOUR KNEE REPLACEMENT.  MY HUSBAND HAD BOTH 
KNEES REPLACED ABOUT 3 YEARS AGO.  HIS RECOVERY WAS TERRIFIC.  OF COURSE, THERE 
IS A LOT OF PAIN WITH P.T., BUT IT IS TO YOUR BEST INTEREST TO TRY AS HARD AS 
YOU CAN.  HE WAS VERY FAITHFULL DOING HIS PRE-SURGERY EXERCISES WHICH I THINK 
HELPED HIM RECOVER SO FAST.  YOU WOULD NEVER KNOW THAT HE HAS NEW KNEEWS.  HE 
CAN DO EVERYTHING, EVEN KNEEL IN HIS GARDEN.  THE ONE PLUS SIDE IS HE IS NO 
LONGER BOWLEGGED.  WE USE TO TEASE HIM THAT A CAR COULD DRIVE THROUGH AND HE 
WOULDN’T KNOW IT.  NOW HE WISHES HE HAD DONE IT YEARS AGO.
 
GOOD LUCK IN YOUR RECOVERY.
 
PATTI - WISCONSIN
 
 
 


From: Margaret Monson [mailto:mag...@telus.net] 
Sent: Thursday, April 02, 2009 1:31 PM
To: heyjude48...@aol.com
Cc: tmic-list@eskimo.com; tmic-digest-requ...@eskimo.com
Subject: [TMIC] Hello Jude!
 
I am glad to hear that you are home and healing.  I hope that all is going 
well.  You were and are in my thoughts.
 
Although we have never personally met or talked with each other, I welcome your 
emails to the list.  You always seem to have such a positive outlook on things 
no matter what is thrown at you.  You always have a kind word and offer advice 
based on your experience.  Jude, you are a gem.
 
I am at home recuperating from a partial knee replacement done on March 26.  I 
am healing well but know this will be a slow recovery.  I was amazed at the 
number of doctors and people who actually think you can fully recover from TM.  
One doctor was surprised when I told him that you never fully recover and will 
always have TM.  You only recover to the best that your body can.
 
Do take care Jude and I hope you are able to post soon!  I miss your emails!
 
Margaret
Edmonton AB
Canada

Re: [TMIC] hello to all

[jrushton]

 What a nice note, Barbara...thank you,  Jeanne in Dayton
 
---Original Message---
 
From: balmat...@aol.com
Date: 3/8/2009 11:15:09 PM
To: tmic-list@eskimo.com
Subject: [TMIC] hello to all
 
Hello All,
 
It seems that I've been bumped off list for a while.  I know that this
happens now and then, and it seemed like the list was very quiet again, so I
decided to take a look at the archives.  Well, to my surprise there was a
lot of activity that I missed.
 
I'd like to say WELCOME to our new family members - I hope that you feel
the love that is on this site.  You will soon know that we talk to each
other about EVERYTHING here, even things that most of us don't even tell our
own close friends or family members.  They really wouldn't understand,
although many try, they just don't since it isn't something that they are
going through personally.
 
Most of us lurked in the background for a bit before we introduced
ourselves to the group.  There are times when it is really busy and then it
quiets down for a while.  Like all other families we don't always agree, but
we are very quick to come to the aid of each other, and share all that we
have experienced with TM.
 
To all others, please know that you are all in my thoughts daily.  I don't
send many messages, but think of you all each day and hope that those who
are having difficulty are doing better.  
 
Has Jude had her surgery?  I haven't seen anything about her, and think it
would have been listed if she had it.
 
Looks like my you are now subscribed message has arrived, so I'm alive on
the TMIC once again, YEAH!!!
 
Hugs to all, Barbara A 



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RE: [TMIC] Hello i need your urgent assistance..

[Patricia Cooley]

That was my first thought.  I would need more information from a reliable
source before I would do something so stupid.  If it is a scam, the person
is a low down crumb to pray on a group of people who are very carrying and
always willing to help a fellow TMer

 

From: Westgold [mailto:[EMAIL PROTECTED] 
Sent: Friday, December 05, 2008 2:44 PM
To: tmic-list@eskimo.com
Subject: Re: [TMIC] Hello i need your urgent assistance..

 

This is a scam, I have received these before.  DO NOT SEND HIM ANY MONEY.  

- Original Message - 

From: robert hennessy mailto:[EMAIL PROTECTED]  

To: tmic-list@eskimo.com 

Sent: Friday, December 05, 2008 3:18 PM

Subject: [TMIC] Hello i need your urgent assistance..

 

Hello,
Sorry I didn't inform you about my traveling to UK for a program, am
presently in London and i am stranded here because i misplaced my wallet on
my way to the hotel where my money and other valuable things were kept.I
will like
you to assist me with a soft loan urgently with the sum of 1,850 GB Pounds
to sort-out my hotel bills and get myself back home. I will appreciate
whatever you can afford, i will pay back as soon as i return.So please use
the details below to transfer the money to me through Western Union money
transfer because i was told that is the only way i could be able to get it
fast and leave. This is the detail below
 
 
Name : Robert Hennessy
Address:Kenilworth Road,
Hampton-in-Arden Solihull,
West Midlands
B92 0LW
Country :England
Test Question :Year of birth?
Answer : 1981
Amount Sent: ?
 
 
kindly help me to make the transfer as soon as you receive this email and
once you have it sent, send me the money transfer control number with
details used in sending it. Also i have my passport to prove my identity at
Western union here when receiving the money.
 
 
Hope to hear from you soon.


  _  


Suspicious message? There's an alert for that. Get your Hotmail
http://windowslive.com/Explore/hotmail?ocid=TXT_TAGLM_WL_hotmail_acq_broad2
_122008 R account now. 


  _  



No virus found in this incoming message.
Checked by AVG - http://www.avg.com 
Version: 8.0.176 / Virus Database: 270.9.14/1832 - Release Date: 12/5/2008
9:57 AM

Re: [TMIC] Hello i need your urgent assistance..

[Westgold]

This is a scam, I have received these before.  DO NOT SEND HIM ANY MONEY.  
  - Original Message - 
  From: robert hennessy 
  To: tmic-list@eskimo.com 
  Sent: Friday, December 05, 2008 3:18 PM
  Subject: [TMIC] Hello i need your urgent assistance..


  Hello,
  Sorry I didn't inform you about my traveling to UK for a program, am 
presently in London and i am stranded here because i misplaced my wallet on my 
way to the hotel where my money and other valuable things were kept.I will like
  you to assist me with a soft loan urgently with the sum of 1,850 GB Pounds to 
sort-out my hotel bills and get myself back home. I will appreciate whatever 
you can afford, i will pay back as soon as i return.So please use the details 
below to transfer the money to me through Western Union money transfer because 
i was told that is the only way i could be able to get it fast and leave. This 
is the detail below
   
   
  Name : Robert Hennessy
  Address:Kenilworth Road,
  Hampton-in-Arden Solihull,
  West Midlands
  B92 0LW
  Country :England
  Test Question :Year of birth?
  Answer : 1981
  Amount Sent: ?
   
   
  kindly help me to make the transfer as soon as you receive this email and 
once you have it sent, send me the money transfer control number with details 
used in sending it. Also i have my passport to prove my identity at Western 
union here when receiving the money.
   
   
  Hope to hear from you soon.

--
  Suspicious message? There’s an alert for that. Get your Hotmail® account now. 


--



  No virus found in this incoming message.
  Checked by AVG - http://www.avg.com 
  Version: 8.0.176 / Virus Database: 270.9.14/1832 - Release Date: 12/5/2008 
9:57 AM