Re: Fw: [TMIC] question about post

2008-10-29 Thread Jenna
That is great...Mary Anne!  Have a great day!  Jenna From: Mary Anne Egan [EMAIL PROTECTED] To: Gillian Clark [EMAIL PROTECTED] Cc: TM list tmic-list@eskimo.com Sent: Wednesday, October 29, 2008 8:45:54 AM Subject: Re: Fw: [TMIC] question about post

Re: Fw: [TMIC] question about post

2008-10-29 Thread Gillian Clark
LOL, that is wonderful Mary Anne Gilly - Original Message - From: Mary Anne Egan To: Gillian Clark Cc: TM list Sent: Wednesday, October 29, 2008 11:15 PM Subject: Re: Fw: [TMIC] question about post as a newbie. I thought the OT in subject was occupational therapy!..LOL

Re: [TMIC] question about post

2008-10-28 Thread kevin weilacher
[EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED]; tmic tmic-list@eskimo.com Sent: Monday, October 27, 2008 7:30:13 PM Subject: Re: [TMIC] question about post I have a simple suggestion after all of the discussion on religion and politics...maybe too simple? What if we were to add 'Rel' or 'Poll

Fw: [TMIC] question about post

2008-10-28 Thread Gillian Clark
of information about drugs etc on here and it really takes very little effort to hit the delete button. Gilly - Original Message - From: jrushton To: Jenna ; tmic Sent: Tuesday, October 28, 2008 10:00 AM Subject: Re: [TMIC] question about post I have a simple suggestion after all

Re: [TMIC] question about post

2008-10-28 Thread jrushton
Hi, Gilly, I think I've been part of the TMIC and when I first came on, there was a spirited discussion of some kind then but because there was so much caring between those involved, I watched caring hearts work it out so it is like a family. Things come up?? We work it out!!! j

Re: [TMIC] question about post

2008-10-28 Thread Gillian Clark
: Re: [TMIC] question about post Hi, Gilly, I think I've been part of the TMIC and when I first came on, there was a spirited discussion of some kind then but because there was so much caring between those involved, I watched caring hearts work it out so it is like a family. Things come up

Re: [TMIC] question about post

2008-10-27 Thread jrushton
I have a simple suggestion after all of the discussion on religion and politics...maybe too simple? What if we were to add 'Rel' or 'Poll' to the Subject line whenever we want to add either and that way it will give the reader a chance to delete it without having to read it first?? I'm fine

[TMIC] question about post

2008-10-26 Thread Jenna
OK I have a question. Is it still OK to post information about people from the list that are to sick to post and/or are in the hospital? And some of them are asking for prayer and thoughts. I have updates from people on the list but now I am not sure if that bugs people too?? Just not

Re: [TMIC] question about post

2008-10-26 Thread jrushton
Jenna, as far as I'm concerned, how else are we going to know about some that are unable to let us know themselves? I'm thankful we have people like you that are willing to help each other. Isn't that what the TMIC site is all about?? Helping each other?? I thank you for being so kind as to

Re: [TMIC] question about post

2008-10-26 Thread CANDIS KALLEY
. Prayers and thoughts for you and yours, Candy K. - Original Message - From: Jenna [EMAIL PROTECTED] To: TMIC tmic-list@eskimo.com Sent: Sunday, October 26, 2008 1:48:10 PM (GMT-0500) America/Bogota Subject: [TMIC] question about post OK I have a question.  Is it still OK to post

Re: [TMIC] question about post

2008-10-26 Thread [EMAIL PROTECTED]
--- On Sun, 10/26/08, CANDIS KALLEY [EMAIL PROTECTED] wrote: From: CANDIS KALLEY [EMAIL PROTECTED] Subject: Re: [TMIC] question about post To: TMIC tmic-list@eskimo.com Cc: Jenna [EMAIL PROTECTED] Date: Sunday, October 26, 2008, 3:03 PM #yiv963255076 {font-family:'Times New Roman';font

Re: [TMIC] question about post

2008-10-26 Thread laura . eichler
please explain it for me? Thank,Cheryl --- On *Sun, 10/26/08, CANDIS KALLEY [EMAIL PROTECTED]* wrote: From: CANDIS KALLEY [EMAIL PROTECTED] Subject: Re: [TMIC] question about post To: TMIC tmic-list@eskimo.com Cc: Jenna [EMAIL PROTECTED] Date: Sunday, October 26, 2008, 3:03 PM I

[TMIC] question

2008-10-18 Thread Patricia Cooley
Hello: I am looking for some information. I came down with TM in June. My doctors believe I have Sjogren's Syndrome which caused the TM. They put me on a drug to suppress my immune system. I am taking the meds but I am concerned with the cold and flu season starting and I have been advised

Re: [TMIC] question

2008-10-18 Thread Jan Hargrove
: Patricia Cooley [EMAIL PROTECTED] Subject: [TMIC] question To: tmic-list@eskimo.com Date: Saturday, October 18, 2008, 12:32 PM Hello:   I am looking for some information.  I came down with TM in June.  My doctors believe I have Sjogren’s Syndrome which caused the TM.  They put me on a drug

Re: [TMIC] Question - bum pain

2008-07-12 Thread Jim Lubin
Have you tried a mattress overlay? Do a search for Isotonic topper pad. I tried one and thought it felt great but I sunk into it so much that it was difficult for the nurse to turn me. I now use a Sierra Gel Mattress Overlay. very comfotable. The Sierra Gel Mattress Overlay

Re: [TMIC] Question - bum pain

2008-07-11 Thread Diane
5:33 PM Subject: [TMIC] Question - bum pain I'm wondering if any of you have the feeling as if your hip/pelvic bones are trying to come through your bum muscles or as if I fell on my bum and it is terribly bruised? This is the only feeling I have on my bum other than I know when my bum

Re: [TMIC] Question - bum pain

2008-07-11 Thread Alle111
Hi Candy, I don't have much of an answer as I am in a wheelchair, but if you hurt from sitting too long, why not try a gel cushion to use when sitting. You can get one online or anywhere that sells medical supplies/equipmentElla **Get the scoop on last night's hottest

Re: [TMIC] Question - bum pain

2008-07-11 Thread Diane
: [TMIC] Question - bum pain Candy, you're bound to get different replies on this but I have to tell you that I suffer from bum pain - and it does feel like bruising. In my case, it is the beginning of pressure sores. They start very deep will worsen if you don't take the pressure off in some

Re: [TMIC] QUESTION

2008-04-04 Thread LadyNotes
Ditto. I have not been physically ill, since my TM onset. I did not even get a flu shot this year, but I have not had a cold or flu, or any of these things since I've had TM (knock on wood). Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis

RE: [TMIC] QUESTION

2008-04-04 Thread wim from holland
can empty my bladder complete, normal I have to caterise. So when the immune system let me down at some points, parts will work. Wim from Holland Date: Wed, 2 Apr 2008 13:09:29 -0400From: [EMAIL PROTECTED]: [EMAIL PROTECTED]: [TMIC] QUESTION It is funny after having TM for more

[TMIC] QUESTION

2008-04-02 Thread Robert Pall
It is funny after having TM for more than 10 years I still don't truly understand it. Do we have weak immune systems or did we merely have an episode in which our immune system did not work properly...a one time (for many of us) thing? Rob in New Jersey

Re: [TMIC] QUESTION

2008-04-02 Thread jrushton
and feels like Spring!! ---Original Message--- From: Robert Pall Date: 4/2/2008 12:09:42 PM To: tmic-list@eskimo.com Subject: [TMIC] QUESTION It is funny after having TM for more than 10 years I still don't truly understand it. Do we have weak immune systems or did we merely have

RE: [TMIC] QUESTION

2008-04-02 Thread jrushton
to ponder! Jeanne ---Original Message--- From: Robert Pall Date: 4/2/2008 12:34:19 PM To: jrushton Subject: RE: [TMIC] QUESTION Jeanne: It is strange...at least for me it seems I have gotten ill less since TM ..go figure! Rob From: jrushton [mailto:[EMAIL PROTECTED] Sent

Re: [TMIC] QUESTION

2008-04-02 Thread Parkerswebe
Terry's immune system has improved over the past few years. Initially after TM, he would get a cold which would last several weeks, as well as bronchitis for 3 mos. We were very careful as to who he was exposed to. Now, I am catching everything that goes around, and his effects are

RE: [TMIC] QUESTION

2008-04-02 Thread bradebi
: [TMIC] QUESTION Me, too!! It seems my immune system is stronger and each time the flu or colds go around I might seem to 'start' it but my body seems to fight it off! I have been really healthy as far as flu and colds! I was just thinking of that very thing during the flu and cold season last

Re: [TMIC] QUESTION

2008-04-02 Thread LinLeftwi
I HAVEN'T BEEN SICK ALL THAT MUCH EITHER SINCE TM HIT. MY SYSTEM'S ONE WEAKNESS IS SINUS INFECTIONS. I BELIEVE THAT IS WHAT INITIALLY CAUSED ALL THE PROBLEMS. I THINK I TOLD YOU I HAD A ROUGH 2 MONTHS AND WHEN I HAD AN MRI DONE, SINUS INFECTION WAS BACK AFTER 5 YEARS. A WEEK AFTER

RE: [TMIC] QUESTION

2008-04-02 Thread srasbury
! Good point to ponder! Jeanne ---Original Message--- From: Robert Pall Date: 4/2/2008 12:34:19 PM To: jrushton Subject: RE: [TMIC] QUESTION Jeanne: It is strange...at least for me it seems I have gotten ill less since TM ..go figure

Re: [TMIC] QUESTION

2008-04-02 Thread jrushton
: [TMIC] QUESTION Hi: this is gerry; I believe recent conversation has helped me immemsly Inow have ITP on top tm.I am quite discouraged; I read your emails with great interest' you encourage me especially since on april 29th they will remove my spleen; in the meantime I have to go through iv

RE: [TMIC] QUESTION

2008-04-02 Thread Akua
I got sick while in the hospital and nursing home. I KNOW that in one case it was because the hordes of people and children visiting a matriarch ( up to 30 holding a prayer meeting) brought germs. In another case, it was sick aides. I told her/them that the clipboard that she sneezed on and laid

Re: [TMIC] Question regarding Botox

2008-03-04 Thread Alton Ryder
, 2008 4:45 PM Subject: Re: [TMIC] Question regarding Botox I have had Botox in my calf, several shots, twice, neither with any effect - I'm immune to food poisoning, I guess. That was in 1999, I think. I then had a Baclofen pump installed for the excess and asymmetrical tone. The Baclofen

Re: RE: [TMIC] question

2008-03-02 Thread [EMAIL PROTECTED]
..I am hoping to increase my mobility. Does anyone else with TM do regular exercises? Odile, I exercise every day!! If I didn't I'd totally fall apart. I have latent left foot drop, so I have to stretch my left Achilles tendon, strengthen and stretch leg muscles, arm and abdominal

Re: [TMIC] question

2008-03-02 Thread ACAROE
I stepped on a live wire Labor Day weekend (Sept. 05) or so it seemed. Didnt know what hit me. Couldnt move my legs at all. For the first 5 mos. I was in rehab 6 days a week, twice a day. After that I have been faithfully going to some sort of therapy and training 2 to 4 times a week

Re: [TMIC] question

2008-03-02 Thread Heather Pieter
at that time. Heather in Calgary - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] ; tmic-list@eskimo.com Sent: Sunday, March 02, 2008 1:18 PM Subject: Re: [TMIC] question I do aqua therapy for an hour and a half twice a week and also have a personal trainer

Re: [TMIC] Question regarding Botox

2008-03-02 Thread Heather Pieter
head around why it pulls one way when I'm 'at rest' and the other way when I am standing. Heather In Calgary - Original Message - From: Alton Ryder To: Heather Pieter Cc: TM Internet Chat ; Jim Lubin Sent: Saturday, March 01, 2008 4:45 PM Subject: Re: [TMIC] Question

Re: RE: [TMIC] question

2008-03-01 Thread [EMAIL PROTECTED]
And having TM does not reduce your life span. There are articles dealing with MS that show that the side effects can and do shorten the patients life. For instance, my TM, in and of itself, will not shorten my life, but the chronic pain will. Many people who have chronic pain commit

[TMIC] Question regarding Botox

2008-03-01 Thread Heather Pieter
Hi Has anyone had Botox injections in the calf to ease the muscle spasms? I know that Marieke in Montreal has had them. My Physiatrist has suggested it to me. I am one of the 1/3 who can walk in the house without aids unless tired, use a cane or walker or shopping cart outside the home and

Re: [TMIC] Question regarding Botox

2008-03-01 Thread Alton Ryder
I have had Botox in my calf, several shots, twice, neither with any effect - I'm immune to food poisoning, I guess. That was in 1999, I think. I then had a Baclofen pump installed for the excess and asymmetrical tone. The Baclofen significantly diminished my knee jerk spasms, but it did

Re: RE: [TMIC] question

2008-03-01 Thread odile connor
Frank, I really enjoyed your letter. Prior to TM i was a figure skater. hiker, mounain climber, coss county skier ,sailed, and on and on. Now I am a fat sedentary old woman. I had chronic back pain since I was a teen, so I am used to pain'; what I am not used to is dragging a dead leg around.

Re: RE: [TMIC] question

2008-03-01 Thread Gerry Surette
. I am only telling you what has kept me going for the last 40 years. From: odile connor [EMAIL PROTECTED] To: [EMAIL PROTECTED] CC: TMIC-list@eskimo.com Subject: Re: RE: [TMIC] question Date: Sat, 1 Mar 2008 16:45:11 -0700 Frank, I really enjoyed your letter. Prior to TM i was a figure skater

RE: [TMIC] question

2008-02-29 Thread Tracey L. Black
Ok, now I have a question. In the link that Gerry provided us (Thanks Gerry) I found the following: It is also suggested in the medical literature that patients with complete transverse myelitis (which means severe leg paralysis and sensory loss) are less likely to develop MS than those who had a

RE: [TMIC] question

2008-02-29 Thread Gerry Surette
this group the subject of life span has come up. TM does not reduce life span so I saith; so it is written soo it shall be From: Tracey L. Black [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: RE: [TMIC] question Date: Fri, 29 Feb 2008 09:24:13 -0500 Ok, now I have a question

RE: [TMIC] question

2008-02-29 Thread Gerry Surette
this group the subject of life span has come up. TM does not reduce life span so I saith; so it is written soo it shall be From: Tracey L. Black [EMAIL PROTECTED] To: tmic-list@eskimo.com Subject: RE: [TMIC] question Date: Fri, 29 Feb 2008 09:24:13 -0500 Ok, now I have a question

RE: [TMIC] question

2008-02-29 Thread Tim Holder (Work)
] Subject: RE: [TMIC] question Hi Tracy it is I Gerry I have had tm since I was 21 had two relapses and since 2001 have had it back with a vengence; now to answer your question. just because your daughter{god blees her} has tm does not necessaryily mean that she will get ms. The numerous articles I

Re: [TMIC] question

2008-02-21 Thread JHarper33
That happens to me occasionally. I'm just assuming it is an occasional glitch in the system. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 2/21/2008 4:11:54 PM Eastern Standard Time, [EMAIL PROTECTED] writes: Don't know why but I was

[TMIC] question

2008-02-21 Thread Robert Pall
Don't know why but I was required to subscribe even though I have never unsubscribed...why did this happen? Rob in New Jersey

Re: [TMIC] Question - possible relasp?

2008-02-09 Thread boots ocampo
) America/Chicago Subject: Re: [TMIC] Question - possible relasp? Candi, Don't wait call your neuro. Did you get a flu shot. I did and I almost died from it with pain and memories of the first time I was hit. Please let us know what he says. Reacurrant TM is rare ,they say but I think my flu shot

Re: [TMIC] Question - possible relasp?

2008-02-08 Thread CANDIS KALLEY
- From: [EMAIL PROTECTED] To: CANDIS KALLEY [EMAIL PROTECTED], transversemyelitissupport [EMAIL PROTECTED], tmic-list tmic-list@eskimo.com Sent: Wednesday, February 6, 2008 11:18:11 AM (GMT-0600) America/Chicago Subject: Re: [TMIC] Question - possible relasp? Candi, Don't wait call your neuro. Did you

Re: [TMIC] Question - possible relasp?

2008-02-08 Thread L T CHERPESKI
] To: CANDIS KALLEYmailto:[EMAIL PROTECTED] ; transversemyelitissupportmailto:[EMAIL PROTECTED] ; tmic-listmailto:tmic-list@eskimo.com Sent: Friday, February 08, 2008 3:56 PM Subject: Re: [TMIC] Question - possible relasp? Candy, I'm so glad to hear that you neuro saw you and scheduled the MRI

Re: [TMIC] Question - possible relasp?

2008-02-06 Thread ashfordrichard
Candi, Don't wait call your neuro. Did you get a flu shot. I did and I almost died from it with pain and memories of the first time I was hit. Please let us know what he says. Reacurrant TM is rare ,they say but I think my flu shot gave me mine back. I feel all the old tingling and pain. And I

[TMIC] Question - possible relasp?

2008-02-05 Thread CANDIS KALLEY
I'm not sure what is going on but for the past 3 days the pain in my back has been horrible - no matter what I do.  The usual doesn't seem to be helping. I've also noticed more tingling in my left hand/arm than usual.  I've also been terribly tired - sleeping 13+ hours at night plus falling

Re: [TMIC] Question - possible relasp?

2008-02-05 Thread Jenna
Hi Candy, Yes call the neuro!!! Keep us updated. Jenna - Original Message From: CANDIS KALLEY [EMAIL PROTECTED] To: transversemyelitissupport [EMAIL PROTECTED]; tmic-list tmic-list@eskimo.com Sent: Tuesday, February 5, 2008 3:00:25 PM Subject: [TMIC] Question - possible relasp

Re: [TMIC] Question - possible relasp?

2008-02-05 Thread Grace M.
*Hi Candis,* *Please phone your neuro. It's possible that you are among the small number of recurrent TM patients.* ** *Grace* **

RE: [TMIC] Question - possible relasp?

2008-02-05 Thread wim from holland
. Sometimes it took me a week. Keep the legs warm and hope for the best, when it stays you can discus it with the neuro. Wim from Holland Date: Tue, 5 Feb 2008 15:00:25 -0500From: [EMAIL PROTECTED]: [EMAIL PROTECTED]; [EMAIL PROTECTED]: [TMIC] Question - possible relasp? I'm not sure what

Fw: [TMIC]Question Regarding Coumadin

2008-01-06 Thread Jenna
Hi everyone! This was sent to me and he aked if I could post it to the group. I looked in up online and found that the Cranberry Extract Pills call also call blood thinning. Does anyone who takes it or has knowledge of it have any more information. Thanks Jenna - Forwarded Message

RE: [TMIC] Question

2007-11-28 Thread wim from holland
PROTECTED]: [EMAIL PROTECTED]: [TMIC] Question Good Morning, Trudy! I'm actually testing something... I've had this site for a few months now and have e-mailed to several different people, often asking questions but seem to not be getting any response. I'm wondering

[TMIC] Question

2007-11-26 Thread jrushton
Good Morning, Trudy! I'm actually testing something... I've had this site for a few months now and have e-mailed to several different people, often asking questions but seem to not be getting any response. I'm wondering if there is a problem with my e-mail or if I'm not signed' up correctly.

RE: [TMIC] Question

2007-11-26 Thread Trudy OGILVIE
does not empty tomorrow of its troubles; It empties today of its strengths. From: [EMAIL PROTECTED] Date: Mon, 26 Nov 2007 12:18:51 -0500 Subject: Re: [TMIC] Question To: [EMAIL PROTECTED]; tmic-list@eskimo.com You're coming through fine to me, Jeanne. Barbara H. http

RE: [TMIC] Question - Spinal Stimulator

2007-09-15 Thread cakalley
PROTECTED], transversemyelitissupport [EMAIL PROTECTED], tmic-list tmic-list@eskimo.com Subject: RE: [TMIC] Question - Spinal Stimulator Hi Candy Yes, I tried Provigil and it seemed to work great sometimes other times, nothing (although my insurance paid zero for it - I got some samples from my MD

RE: [TMIC] Question

2007-09-11 Thread Bob and Sue Mattis
, September 10, 2007 5:53 PM To: tmic-list@eskimo.com Subject: [TMIC] Question Has everybody gone to find Frank? Ann in Virginia _ See what's new at AOL.com http://www.aol.com?NCID=AOLCMP0030001170 and Make AOL Your http://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169 Homepage.

Re: [TMIC] Question

2007-09-11 Thread Grace M.
@eskimo.com *Subject:* [TMIC] Question Has everybody gone to find Frank? Ann in Virginia -- See what's new at AOL.com http://www.aol.com/?NCID=AOLCMP0030001170and Make AOL Your Homepagehttp://www.aol.com/mksplash.adp?NCID=AOLCMP0030001169 .

Re: [TMIC] Question

2007-09-11 Thread L T CHERPESKI
PROTECTED] Sent: Tuesday, September 11, 2007 7:21 AM Subject: Re: [TMIC] Question no, Frank scares me I scare myself. pH

[TMIC] Question

2007-09-10 Thread AnnDillon
Has everybody gone to find Frank? Ann in Virginia ** See what's new at http://www.aol.com

Re: [TMIC] Question

2007-09-10 Thread Grace M.
I think that they must have Ann. I already found him...;-) Grace

Re: [TMIC] Question

2007-09-10 Thread Heather Pieter
Message - From: [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Monday, September 10, 2007 3:53 PM Subject: [TMIC] Question Has everybody gone to find Frank? Ann in Virginia -- See what's new

Re: [TMIC] Question

2007-09-10 Thread L T CHERPESKI
no, Frank scares me - Original Message - From: [EMAIL PROTECTED]mailto:[EMAIL PROTECTED] To: tmic-list@eskimo.commailto:tmic-list@eskimo.com Sent: Monday, September 10, 2007 3:53 PM Subject: [TMIC] Question Has everybody gone to find Frank? Ann in Virginia

Re: [TMIC] Question for The Mob

2007-08-13 Thread [EMAIL PROTECTED]
I have noticed that my legs are bothering me more. Have any of you had this problem and if so what did you do? Yes. I do physical therapy to stretch and strengthen my leg muscles. If you don't you may wind up with a foot drop. I tried it My way for several months with little relief,

Re: [TMIC] Question for The Mob

2007-08-13 Thread Grace M.
The bands are great. I've got them in all different colors and strengths. If you use them faithfully, they do help with strength. Grace

[TMIC] Question for The Mob

2007-08-12 Thread AnnDillon
Have been too busy helping husband who had stroke to be in contact with you.. He is much better so now have a question for The MobDon't you all like your new name. Anyway my massage therapist allowed as to how the muscles in my legs were getting hard. I have noticed that my legs are

[TMIC] Question

2007-03-26 Thread Candis Kalley
is the tmic-list the same as the yahoo transversemyelitissupport? Candis Kalley [EMAIL PROTECTED] EarthLink Revolves Around You.

Re: [TMIC] Question

2007-03-26 Thread Jim Lubin
no. the tmic-list (stands for Transverse Myelitis Internet Club) was started in 1996 by me. transversemyelitissupport on yahoo groups was started in 1999. At 01:34 PM 3/26/2007, Candis Kalley wrote: is the tmic-list the same as the yahoo transversemyelitissupport? Candis Kalley

[TMIC] Question two

2006-11-28 Thread HeyJude48506
LDN (Low Dose Naltrexone) ? What is it? I see that several of you are having good results, less pain and less banding, but why am I hearing of it all of a sudden, and why, Natialie, was your doctor so reluctant in prescribing it to you? Is this drug something one can get over

Re: [TMIC] Question two

2006-11-28 Thread Natalie Boyles
Hi, I sent the link to the pharmacy, because that is the pharmacy I used to get LDN, well actually 50mg tabs of Naltrexone. I have been trying to get a prescription for it from a doctor since August, but I have not had success. My family doctor is still reading up on it, the neuro I saw this

Re: [TMIC] Question two

2006-11-28 Thread Sharon Marsden
they refuse to get in line. ~Ashleigh Brilliant http://health.groups.yahoo.com/group/MSersLife/ - Original Message From: Natalie Boyles [EMAIL PROTECTED] To: [EMAIL PROTECTED] [EMAIL PROTECTED] Cc: TMIC-LIST@eskimo.com Sent: Tuesday, November 28, 2006 9:14:43 PM Subject: Re: [TMIC

[TMIC] question you probably already heard

2006-09-27 Thread Grace M.
Hi Ami, Re: Betaseron. I have NMO, which presents as recurring transverse myelitis (Though our lesions are much longer and often necrotic.) and optic neuritis. Most of the research literature shows, that with TM, immunosuppressive drugs are the first course of action, and in MS, immunomodulatory

Re: [TMIC] question you probably already heard

2006-09-26 Thread ROGER C PRATT
September 26, 2006 7:17 PM Subject: [TMIC] question you probably already heard Hey everyone! It's been awhile since I last emailed.Mikehasn't hadmuch to any improvement since I last posted, but one good thing is he has recentlygained the use of hisright thumb and limit

Re: [TMIC] Question re: Lyrica

2006-06-23 Thread pjv1234
to the head of the line. Here I thought I was doing pretty well, ggg. Natalie - Original Message - From: [EMAIL PROTECTED] To: [EMAIL PROTECTED] Cc: TMIC-LIST@eskimo.com Sent: Thursday, June 22, 2006 11:53 AM Subject: Re: [TMIC] Question re: Lyrica

RE: [TMIC] Question re: Lyrica

2006-06-23 Thread Butcher, Bernie [SFS]
Engineering 180 Michael Drive Syosset, New York 11791 516-921-6704 ext:1143 [EMAIL PROTECTED] -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Friday, June 23, 2006 8:54 AM To: Natalie Boyles; [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Subject: Re: [TMIC] Question re

Re: [TMIC] Question re: Lyrica

2006-06-22 Thread Natalie Boyles
AM Subject: Re: [TMIC] Question re: Lyrica In a message dated 6/21/2006 2:45:05 PM Central Standard Time, [EMAIL PROTECTED] writes: days like that. Dear Natalie, I'm sorry that you had such a bad day

Re: [TMIC] Question re: Lyrica

2006-06-21 Thread Natalie Boyles
I just figured Lyrica was another drug similar to neurontin. But, from what I have been reading it appears this drug is better tolerated. So, for those taking it, could you let me know if it makes you feel like your drugged and spacey or not? I hate my spasms, but cannot find anything, that I can

Re: [TMIC] Question re: Lyrica

2006-06-11 Thread AnnDillon
Just got back in town and have been reading the postings. Am glad I found someone else as strange as I am. I too could not use the Lyrica. Really did something to my muscles in my legs. Ann in Virginia

Re: [TMIC] Question re: Lyrica

2006-06-06 Thread Heather Pieter
Frank - a question, Do you or Did you take Neurontin? Heather in sunny, warm and beautiful Calgary - Original Message - From: [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Tuesday, June 06, 2006 7:39 AM Subject: Re: [TMIC] Question re: Lyrica

Re: [TMIC] Question re: Lyrica

2006-06-06 Thread [EMAIL PROTECTED]
Frank - a question, Do you or Did you take Neurontin? Yes, many years ago for about 10 days. I turned into a ZOMBIE, almost hospitalized... But that was befor discovering Dr. Kerr. F

Re: [TMIC] Question re: Lyrica

2006-06-06 Thread Heather Pieter
Just wondered. Thanks. Heather - Original Message - From: [EMAIL PROTECTED] To: Heather Pieter [EMAIL PROTECTED]; Stacy Harim [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Tuesday, June 06, 2006 2:53 PM Subject: Re: [TMIC] Question re: Lyrica Frank - a question, Do you

Re: [TMIC] Question re: Lyrica

2006-06-05 Thread Stacy Harim
Message - From: Trudy To: [EMAIL PROTECTED] Cc: tmic-list@eskimo.com Sent: Monday, June 05, 2006 2:33 PM Subject: RE: [TMIC] Question re: Lyrica I started Lyrica a few weeks ago. I have had at times broken out into asweat.. Especially my forehead but I thought

Re: [TMIC] Question re: Lyrica

2006-06-05 Thread Stacy Harim
To: 'Stacy Harim' Cc: tmic-list@eskimo.com Sent: Monday, June 05, 2006 8:41 PM Subject: RE: [TMIC] Question re: Lyrica Stacy How much Lyrica do you take? It has helped with the pain but my legs seem to feel almost “wooden” like. My TM left me using a walker to get

Re: [TMIC] Question re: Lyrica

2006-06-04 Thread HeyJude48506
Title: AOL Email Hi Michelle, I began taking Lyrica and within a very short period of time, like an hour or so, I began getting so hot I thought I would burn up! I wasn't sure what the cause of it was, and it took a good hour to go

RE: [TMIC] question

2006-05-30 Thread Trudy
From: Natalie Boyles [mailto:[EMAIL PROTECTED] Sent: Monday, May 29, 2006 8:06 PM To: Jennifer Mercer; tmic-list@eskimo.com Subject: Re: [TMIC] question Natalie, Thank you so much for this information! This white matter seems to be why my definitive diagnosis is so

Re: [TMIC] question

2006-05-29 Thread [EMAIL PROTECTED]
recently he has also been diagnosed with white matter disease in his brain. are any of you familiar with this? May mean Multiple sclerosis, or I.D.E.M. Good Luck F

Re: [TMIC] question

2006-05-29 Thread Natalie Boyles
ctor give you a good and reasonable explanation. Ask to see reports and have them explained. Ignorance is not bliss; don't let anyone tell you differently. Natalie - Original Message - From: Jennifer Mercer To: tmic-list@eskimo.com Sent: Monday, May 29, 2006 12:15 AM

[TMIC] question

2006-05-28 Thread Jennifer Mercer
Hi, all... my dh was diagnosed with TM a little over a year ago... recently he has also been diagnosed with "white matter disease" in his brain. are any of you familiar with this? is it common in TM? I have been researching online, but cannot get any clear answers.thank you for any info you can

[TMIC] question

2006-05-17 Thread ACAROE
Hi, Anyone out there knows who I can contact to redesign a home office for special needs. I live in New York. Thanks, Rosalie

[TMIC] question OT

2006-04-03 Thread Ann Moran
Hi Everybody I haven't posted for a while, but I do read mail as often as I can, to keep up to date on all that is happening My Question is, I have contracted dermatitis all on the palm of my hands especially between my thumb and finger, I have it for three months now and it did heal for about a

[TMIC] Question Re: Joint pain.

2006-02-01 Thread Grace
Has anyone had any problems with joint pain after doing the IV Solumedrol? There probably isn't any connection, but this is something entirely new for me. My knees and hips hurt so bad that rising from a sitting position is extremely difficult. This evening, I actually managed to get down

Re: [TMIC] QUESTION FOR THE LADIES

2005-12-05 Thread mmsnovotny
Never happened to me.  I'm so small I have hardly anything to get smooshed into the machine.  I'd call the doc. Margie On Sun, 4 Dec 2005 15:38:50 EST, Elbanks111 wrote Hello ladies, I'm a bit heavy breasted and this morning I noticed a small rash (no bumps, more like a bruise),

RE: [TMIC] QUESTION FOR THE LADIES

2005-12-05 Thread Deb Casey
used to just shake the powder on, I didn't know to smooth it.:)good luck with it,Deb C. in Mi.--- On Sun 12/04, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote:From: [EMAIL PROTECTED] [mailto: [EMAIL PROTECTED]To: tmic-list@eskimo.comDate: Sun, 4 Dec 2005 15:38:50 ESTSubject: [TMIC] QUESTION

Re: [TMIC] Question re Imuran/Prednisone etc

2005-11-21 Thread Krissy
your resistance to colds.still not sure about the flu shot yet..I got one yes and one no from my docs... - Original Message - From: [EMAIL PROTECTED] To: TMIC-list@eskimo.com Sent: Sunday, November 20, 2005 11:11 PM Subject: [TMIC] Question re Imuran/Prednisone

Re: [TMIC] Question re: Infection/Imuran/prednisone.

2005-11-20 Thread [EMAIL PROTECTED]
Grace, It's time to call your PCP. You need at least a CXR, Chest X-Ray, CBC, UA and directed physical examination. Imuran and Prednisone are a potent combination that leaves you open to any number of infections. Call Now Frank

[TMIC] Question re Imuran/Prednisone etc

2005-11-20 Thread cherpent
Grace, Frank is right! Please contact your doctor NOW. You should not mess around with a "cold" for 3 weeks! I am on Imuran as well (and a myriad of other drugs) and my doctor has told me to call him if I get I fever, cold, UTI - anything - CALL NOW. PLEASE. Love you Linda in Bothell, WA

[TMIC] Question re: Infection/Imuran/prednisone.

2005-11-19 Thread Grace
Hi all, I've been fighting a cold for almost three weeks now---coughing, headache etc.. During the last three days, it's put me to bed. I'm very congested, in the upper chest but don't have a fever. My Imuran is up to 150 mgs now, and prednisone is at 20mgs, so is this something that I

[TMIC] TMIC - Question re relapse

2005-10-28 Thread cherpent
Hi Mary, How are you feeling? Have you gone to your doctor yet or called him? We are all concerned about you, so when you are feeling better please send us a little note. Hugs and Blessings Linda in Bothell, WA

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