Re: [TMIC] question about sexual function

2013-01-25 Thread Heyjude48458
This one is for the guys... In a message dated 1/25/2013 5:59:56 P.M. Eastern Standard Time, jeffsmokeea...@yahoo.com writes: serious question here, is it possible for a paraplegic to engage in sex and achieve ejaculation after 13 years without having done it,has anyone on here had this

Re: [TMIC] question about sexual function

2013-01-25 Thread Roger Terese Pratt
Jeff, I have had TM for 18+ years and yes I have this problem (and I am not paraplegic, just have nerve damage).  When I have asked doctors about it they look give me a blank look, suggest Viagra and then talk about something else.   I have never heard of something that will resolve it.  Maybe

RE: [TMIC] question - knee replacement

2011-01-10 Thread Maggie
...@neillsupply.com; tmic-list@eskimo.com Subject: Re: [TMIC] question - knee replacement From: balmat...@aol.com Date: Wed, 8 Dec 2010 18:16:19 -0500 Hi Patti, I'm not sure if he is right or wrong, but my physical therapist told me that I probably have hypersensitivity. I am not sure

RE: [TMIC] question - knee replacement

2011-01-10 Thread Patricia Cooley
: Maggie [mailto:magiema...@hotmail.com] Sent: Monday, January 10, 2011 2:00 PM To: balmat...@aol.com; patticoole...@gmail.com; rp...@neillsupply.com; tmic-list@eskimo.com Subject: RE: [TMIC] question - knee replacement I know this is a very late reply, but for what it is worth . . . I had

Re: [TMIC] question

2010-12-13 Thread Alton Ryder
I had a total left hip replaced in 1993. The butt was sore from all that cutting, etc, but the joint inside did and does function smoothly. It was during the rehab period when I popped my Achille's tendon, but that's another story. Alton On Dec 7, 2010, at 11:43 AM, Robert Pall wrote:

Re: [TMIC] question

2010-12-11 Thread Janice Nichols
Re: [TMIC] questionDalton, you said you are going to see your neuro, but have you seen a pain management doc?He has done far more for me than my neuro. Good luck, Janice From: Dalton Garis Sent: Wednesday, December 08, 2010 9:58 AM To: Bernie ; TMIC Subject: Re: [TMIC] question Well

Re: [TMIC] question

2010-12-11 Thread Dalton Garis
bpe...@austin.rr.com, TMIC tmic-list@eskimo.com Subject: Re: [TMIC] question Dalton, you said you are going to see your neuro, but have you seen a pain management doc?He has done far more for me than my neuro. Good luck, Janice From: Dalton Garis mailto:malugss...@gmail.com Sent: Wednesday

Re: [TMIC] question

2010-12-10 Thread Alton Ryder
I had a total hip seventeen years ago - beyond my memory of details, Alton On Dec 7, 2010, at 11:43 AM, Robert Pall wrote: Have any of you gotten replacement hips or knees…..I think I may need a new knee and I was wondering….. if you have no feeling (other than pain) how do you

Re: [TMIC] question

2010-12-09 Thread Kevin Wolfthal
I'm still having contracture in both legs. It is painful when I try to straighten my legs more than about 60 degrees, my knees just won't allow them to straighten any further I recently completed about 3 months of painful physical therapy at home, and now I am in the process of trying to

Re: [TMIC] question

2010-12-09 Thread john snodgrass
in WV --- On Thu, 12/9/10, Kevin Wolfthal wolft...@optonline.net wrote: From: Kevin Wolfthal wolft...@optonline.net Subject: Re: [TMIC] question To: tmic-list@eskimo.com Date: Thursday, December 9, 2010, 4:21 AM I'm still having contracture in both legs. It is painful when I try

Re: [TMIC] question

2010-12-08 Thread Barbara Alma
Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so figure if I can put it off for awhile, I will. As

Re: [TMIC] question

2010-12-08 Thread Dalton Garis
May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis, which is too much muscle tone and willingness to contract, and the feedback loop to the brain that would tell the muscle not to contract being damaged by

Re: [TMIC] question

2010-12-08 Thread Bernie
*Hey Dalton, Shot in the dark, but my doctors put me on Tegratol. Now it's original use is for seizures, but one of the side effects is it does sometimes stop the electrical, lightning bolt sensations. I was on it for a while, but started having seizures; my body couldn't metabolize the

Re: [TMIC] question

2010-12-08 Thread lynne myers
I also take Tegretol, it helps me the most with my banding.  Was suprised with the amount of relief I got within a short time after starting it. Lynne --- On Wed, 12/8/10, Bernie bpe...@austin.rr.com wrote: From: Bernie bpe...@austin.rr.com Subject: Re: [TMIC] question To: Dalton Garis malugss

RE: [TMIC] question

2010-12-08 Thread Patricia Cooley
-list@eskimo.com Subject: Re: [TMIC] question Hi Rob, After having trouble with what I thought was my leg due to 2 DVT's and poor circulation, I found out that I am not totally bone on bone yet, but there is a lot of arthritis, which means I could get the replacement. I'm only 59, so

Re: [TMIC] question

2010-12-08 Thread Dalton Garis
-list@eskimo.com Subject: Re: [TMIC] question Hey Dalton,     Shot in the dark, but my doctors put me on Tegratol.  Now it's original use is for seizures, but one of the side effects is it does sometimes stop the electrical, lightning bolt sensations.  I was on it for a while, but started having

Re: [TMIC] question

2010-12-08 Thread Akua
Not an answer but a suggestion. If your lesion is in your brainstem perhaps some of the the medications and approaches used for MS might be helpful. Akua May I break in with a question of my own? I am having a great deal of trouble with cramping and what I just learned is called hypertonis,

Re: [TMIC] question - knee replacement

2010-12-08 Thread Barbara Alma
, Barbara A in Auburn CA -Original Message- From: Patricia Cooley patticoole...@gmail.com To: 'Barbara Alma' balmat...@aol.com; RPall rp...@neillsupply.com; tmic-list tmic-list@eskimo.com Sent: Wed, Dec 8, 2010 7:04 am Subject: RE: [TMIC] question Barbara my husband had double knee

Re: [TMIC] question

2010-12-08 Thread bobby jim
Subject: Re: [TMIC] question Not an answer but a suggestion. If your lesion is in your brainstem perhaps some of the the medications and approaches used for MS might be helpful. Akua May I break in with a question of my own? I am having a great deal of trouble

Re: [TMIC] question

2010-12-08 Thread Dalton Garis
says I would become too fatigued. But I think it¹s time because with this pain it¹s game-over, anyway. Dalton From: bobby jim elbobber...@earthlink.net Date: Wed, 8 Dec 2010 18:27:55 -0600 To: tmic-list@eskimo.com, Akua a...@artfarm.com Subject: Re: [TMIC] question Resent-From: tmic-list@eskimo.com

RE: [TMIC] Question

2010-09-20 Thread Robert Pall
I took Marinol for a couple of yearsit just made me hungry! Rob in New Jersey From: Regina Rummel [mailto:regina...@sbcglobal.net] Sent: Monday, September 20, 2010 11:36 AM To: tmic-list@eskimo.com Subject: [TMIC] Question Does anyone take Marinol for

Re: [TMIC] question

2010-09-16 Thread rn11...@yahoo.com
Hi, I was on it yrs ago (have had tm since 8/13/95) , then went off it due to the cost. When it went generic,I tried it again,and it didn't work anymore. So,maybe it's possible that it loses effectiveness for some people. Cheryl in Easthampton,MA. --- On Thu, 9/16/10, Chantal Lamontagne

Re: [TMIC] question

2010-09-16 Thread Janice Nichols
NatureI have not had TM as long as you have, and I only take 1800mg a day. I have a good friend that has MS and our symptoms are very much alike.Some of the meds are the same too.Why would it take so long to get the MRI results? Janice From: Chantal Lamontagne Sent: Thursday,

Re: [TMIC] question

2010-09-16 Thread frank
Chantal, Where in Canada do you live? I live part time in Montreal, and go to McGill University, Montreal General Hospital, Pain Clinic. Dr. MarkWare started me on Sativex which is used for pain, spasm, and alot of the other problems of TM. Take Care Frank attachment:

RE: [TMIC] Question

2010-09-16 Thread Emily
Idiopathic means they don't know what caused the TM. -Original Message- From: jack...@att.blackberry.net [mailto:jack...@att.blackberry.net] Sent: Thursday, September 16, 2010 11:57 PM To: TMIC Subject: [TMIC] Question What's the difference between idopathic tm and just tm ? Diagnosed

Re: [TMIC] Question

2010-09-16 Thread Dalton Garis
It means; ³Cause unknown.² That is distinct from those cases where the cause is discovered, such as from a known viral infection opening the door for TM, or something else. Dalton Abu Dhabi, United Arab Emirates From: jack...@att.blackberry.net Reply-To: jack...@att.blackberry.net Date:

Re: [TMIC] Question

2010-06-13 Thread Janice Nichols
Ruben, My advice to anyone that develops something new like that is to see your neurologist as soon as possible. Good luck, Janice -- From: Towery, Ruben Dale rdtow...@southernco.com Sent: Sunday, June 13, 2010 8:14 AM To: tmic-list@eskimo.com

RE: [TMIC] QUESTION ON LARNETON

2010-04-17 Thread Grace M.
Hello Sue, I've looked at the website and it appears to be just another snake oil cure. If there were a drug or herb that was guaranteed to treat myelitis and resolve symptoms, the medical community would have jumped on it. Respectfully, Grace

Re: [TMIC] QUESTION ON LARNETON

2010-04-17 Thread Laura Beaudin
Not necessarily. While I do believe that 99.8% of all cures out there are pure bunk, Big Pharma has a lot fo pull and they go out of their way to discredit anything natural. Do you know that there's an actual treatment that can almost cure CP if the chold is young enough? Pure oxygen in a

RE: [TMIC] QUESTION ON LARNETON

2010-04-17 Thread Patricia Cooley
spent on the drug. Be wise and be careful. Patti - Wisconsin -Original Message- From: Laura Beaudin [mailto:laura.beau...@gmail.com] Sent: Saturday, April 17, 2010 1:02 PM To: Grace M. Cc: tmic-list@eskimo.com Subject: Re: [TMIC] QUESTION ON LARNETON Not necessarily. While I do believe

Re: [TMIC] QUESTION ON LARNETON

2010-04-17 Thread kevin weilacher
Beaudin laura.beau...@gmail.com To: Grace M. grace...@gmail.com Cc: tmic-list@eskimo.com Sent: Sat, April 17, 2010 2:01:50 PM Subject: Re: [TMIC] QUESTION ON LARNETON Not necessarily. While I do believe that 99.8% of all cures out there are pure bunk, Big Pharma has a lot fo pull and they go out

Re: [TMIC] QUESTION ON LARNETON

2010-04-17 Thread Akua
My first question to myself is usually, can it hurt to try? If there's risk, then yes, I'd be wary, but if it's something that wouldn't harm me regardless, bring it on. What's most interesting about this is that every pharma I've been prescribed has risks () The last one i got rid of,

Re: [TMIC] Question on meds

2010-02-01 Thread Janice Nichols
Have never taken it. Janice From: Patricia Cooley Sent: Monday, February 01, 2010 2:13 PM To: tmic-list@eskimo.com Subject: [TMIC] Question on meds I have a good friend that has severe neuropathy in her feet, which I also suffer from. Mine is no where as bad. Her doctor put her

Re: [TMIC] Question

2009-11-30 Thread Janice Nichols
Really, Jeanne? What did you have to promise to be offered such things!?!?!?! Janice From: jrushton Sent: Sunday, November 29, 2009 10:09 AM To: Kevin Wolfthal ; tmic Subject: Re: [TMIC] Question Hey, but I've been offered all sorts of things from the UK as in all sorts of big money

RE: [TMIC] Question

2009-11-29 Thread Patricia Cooley
...@aol.com] Sent: Saturday, November 28, 2009 7:58 PM To: tmic-list@eskimo.com Subject: Re: [TMIC] Question In a message dated 11/28/2009 7:04:39 P.M. Eastern Standard Time, wolft...@optonline.net writes: I'm mainly wondering about the APLS/APS as I've never heard of them

Re: [TMIC] Question

2009-11-29 Thread Laura Beaudin
TO NORMAL. FORTUNATELY, THEY REFUNDED ALL MY MONEY BACK. PATTI - WISCONSIN *From:* alle...@aol.com [mailto:alle...@aol.com] *Sent:* Saturday, November 28, 2009 7:58 PM *To:* tmic-list@eskimo.com *Subject:* Re: [TMIC] Question In a message dated 11/28/2009 7:04:39 P.M. Eastern Standard Time, wolft

Re: [TMIC] Question

2009-11-29 Thread jrushton
Hey, but I've been offered all sorts of things from the UK as in all sorts of big money and a girlfriend or boyfriend... Yikes j ---Original Message--- From: Kevin Wolfthal Date: 11/28/2009 10:35:25 PM To: alle...@aol.com; tmic-list@eskimo.com Subject: Re: [TMIC] Question

Re: [TMIC] Question

2009-11-28 Thread Alle111
In a message dated 11/28/2009 7:04:39 P.M. Eastern Standard Time, wolft...@optonline.net writes: I'm mainly wondering about the APLS/APS as I've never heard of them, and the Tramadol. Make sense to anyone? I don't know Kevin but before you do anything, I would ask my doctor and I

Re: [TMIC] Question

2009-11-28 Thread Kevin Wolfthal
Thanks all. I would never order drugs overseas. The whole thing sounds like an oddball scheme. Kevin

Re: [TMIC] Question

2009-11-28 Thread anndillon
Have been using tramadol for years. It does not take away the pain but does dull it some. Have no trouble getting tramadol in the states. Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sat, Nov 28, 2009 7:04 pm Subject:

Re: [TMIC] question

2009-08-11 Thread fr...@franksheldon.com
It is something we all have to live with; something we al l have to work out with pain and suffering. Lol. When my bowel is full, I can't empty my bladder either! Learned a long time ago what Dr. Kerr meant by digital disimpaction! I find mineral oil, one Tbs., taken orally along with

Re: [TMIC] question

2009-08-11 Thread Todd Tarno
Hey Kevin, Just think about the extra weight you're caring around when you're constipated.  LOL Also, remember that it's help to drink a lot of water and to be able to do standing exercises.  I understand this is harder for most of us, but any exercises is better than none.  I have found that

RE: [TMIC] question

2009-08-10 Thread wim from holland
I had trouble with the bowl, after 6 month TM. Went in the hospital for a week, I was complete filled up, and to less came out. After It was done, I was put on Lactulose, every day use. The spasme went much better. I still am on use of Lactolose, it has been 12 years now. Wim Date: Sun,

Re: [TMIC] question

2009-08-10 Thread anndillon
Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original Message- From: Kevin Wolfthal wolft...@optonline.net To: tmic-list@eskimo.com Sent: Sun, Aug 9, 2009 5:16 pm Subject: [TMIC]

Re: [TMIC] question

2009-08-10 Thread bradebi
; 'Kevin Wolfthal'; tmic-list@eskimo.com Subject: Re: [TMIC] question Janet, Do you also have problems with just sitting in your air-conditioned room, doing nothing, and all of a sudden you can feel yourself getting uncomfortably warm? Or with some activity - like making a bed - and you start

Re: [TMIC] question

2009-08-10 Thread jrushton
--- From: anndil...@aol.com Date: 8/10/2009 4:48:59 PM To: wolft...@optonline.net; tmic-list@eskimo.com Subject: Re: [TMIC] question Have a pain all the time on my right side. When I become constipated the pain becomes much worse and goes all the way up to my shoulder Ann in Virginia -Original

Re: [TMIC] question

2009-08-10 Thread rj_rankin
I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right

Re: [TMIC] question

2009-08-10 Thread Trudy Ogilvie
my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil...@aol.com To: wolft...@optonline.net To: tmic-list@eskimo.com Subject: Re: [TMIC] question Sent: Aug 10, 2009 5:48 PM Have a pain all the time on my right side. When I become constipated

Re: [TMIC] question

2009-08-10 Thread jrushton
: Re: [TMIC] question I am right there with you! I am amazed how everything effects everything... I get terrible shooting pains down my legs when I am constipated!! Prunes, prunes and more prunes. :) Blessings! Trudy On Mon, Aug 10, 2009 at 6:14 PM, rj_ran...@yahoo.com wrote: I teach

Re: [TMIC] question

2009-08-10 Thread cle5964
-Original Message- From: jrushton jrush...@columbiaenergyllc.com Date: Tue, 11 Aug 2009 07:30:04 To: Trudy Ogilviemother...@gmail.com; tmictmic-list@eskimo.com Subject: Re: [TMIC] question Funny how when you are a nurse you can talk about things like this as if you are talking about the weather

Re: [TMIC] question

2009-08-10 Thread Janice
help me, but jeepers I hate that pain. Janice - Original Message - From: Janet Dunn To: 'jrushton' ; 'tmic' Sent: Monday, August 10, 2009 12:13 AM Subject: RE: [TMIC] question Hey Jeanne When you say that the pain starts worsening at T4 (which is where mine is) and you

Re: [TMIC] question

2009-08-10 Thread Janice
Sent: Sunday, August 09, 2009 11:47 PM Subject: Re: [TMIC] question Janet, Thank you and everyone who answered this. TM has to be one of the oddest afflictions there is. I also can't take extremes of heat or cold. I even have to turn on my AC in the winter if it's too hot in my room. Wierd

Re: [TMIC] question

2009-08-10 Thread Janice
the T4 level where the TM got me!!! What a study we could be!! Jeanne ---Original Message--- From: Kevin Wolfthal Date: 8/9/2009 11:47:41 PM To: Janet Dunn; tmic-list@eskimo.com Subject: Re: [TMIC] question

Re: [TMIC] question

2009-08-10 Thread Janice
of a fan with it! Love it.It really does help me. Janice - Original Message - From: bradebi To: Janet Dunn ; 'Kevin Wolfthal' ; tmic-list@eskimo.com ; Janice Sent: Monday, August 10, 2009 4:58 PM Subject: Re: [TMIC] question Janice I eat ice...when I am having

Re: [TMIC] question

2009-08-10 Thread Janice
...@yahoo.com To: anndil...@aol.com; wolft...@optonline.net; tmic-list@eskimo.com Sent: Monday, August 10, 2009 5:14 PM Subject: Re: [TMIC] question I teach high school and have pains n my side and other places - do those count? Pardon the humor. --Original Message-- From: anndil

Re: [TMIC] question

2009-08-10 Thread Janice
Sent: Tuesday, August 11, 2009 7:30 AM Subject: Re: [TMIC] question Funny how when you are a nurse you can talk about things like this as if you are talking about the weather! ::)) ---Original Message--- From: Trudy Ogilvie

Re: [TMIC] question

2009-08-09 Thread Louise Croyden
Hi Kevin, The short answer is yes. For me, any kind of pressure inside the colon, e.g., being empty, having gas, constipation, etc., flares up all my neuropathic problems from that area down into the legs and feet. It's difficult to keep everything stable. Regards. Louise -

Re: [TMIC] question

2009-08-09 Thread Kevin Wolfthal
Janet, Thank you and everyone who answered this. TM has to be one of the oddest afflictions there is. I also can't take extremes of heat or cold. I even have to turn on my AC in the winter if it's too hot in my room. Wierd. Kevin Janet Dunn wrote: Yes, I have noticed that. It also

RE: [TMIC] question

2009-08-09 Thread Janet Dunn
Hey Jeanne When you say that the pain starts worsening at T4 (which is where mine is) and you know the rest is coming, what do you mean by that? I am finding lately that the fatigue is awful. I spent yesterday morning garage saleing, and then the afternoon was naptime. Today, I could hardly

RE: [TMIC] question

2009-08-09 Thread jrushton
, isn't it??!! :) ---Original Message--- From: Janet Dunn Date: 8/10/2009 12:13:11 AM To: 'jrushton'; 'tmic' Subject: RE: [TMIC] question Hey Jeanne When you say that the pain starts worsening at T4 (which is where mine is) and you know the rest is coming, what do you mean by that? I

Re: [TMIC] question

2009-08-09 Thread jrushton
!!! What a study we could be!! Jeanne ---Original Message--- From: Kevin Wolfthal Date: 8/9/2009 11:47:41 PM To: Janet Dunn; tmic-list@eskimo.com Subject: Re: [TMIC] question Janet, Thank you and everyone who answered this. TM has to be one of the oddest afflictions there is. I also

Re: [TMIC] Question for people on Lyrica?

2009-06-19 Thread LadyOwl1961
Okay it looks like I got some answers to my question. It now seems that I need to drink alcohol with my lyrica to get rid of my anger. It also looks like I have to time my beer, wine or scotch as well as my lyrica. Well doing this I will have to avoid walls, floors and toilet rings. It will

Re: [TMIC] Question for people on Lyrica?

2009-06-19 Thread jrushton
it is supposed to and there are so many out there that you sometimes have to find one that works just for you. Dang, once I start yakking, I just can't seem to quit Hugs, Jeanne ---Original Message--- From: LadyOwl1961 Date: 6/19/2009 9:16:35 AM To: tmic-list@eskimo.com Subject: Re: [TMIC

RE: [TMIC] Question for people on Lyrica?

2009-06-19 Thread Trudy OGILVIE
: [TMIC] Question for people on Lyrica? Date: Fri, 19 Jun 2009 09:16:33 -0500 Okay it looks like I got some answers to my question. It now seems that I need to drink alcohol with my lyrica to get rid of my anger. It also looks like I have to time my beer, wine or scotch as well as my

Re: [TMIC] Question for people on Lyrica?

2009-06-18 Thread fr...@franksheldon.com
Cody, Alcohol may cause amnesia- not remembering events after consuming the alcohol. Good Luck F

Re: [TMIC] Question for people on Lyrica?

2009-06-18 Thread rj_rankin
-- From: fr...@franksheldon.com To: Cody To: TMIC To: Robert Pall Subject: Re: [TMIC] Question for people on Lyrica? Sent: Jun 18, 2009 8:33 AM Cody, Alcohol may cause amnesia- not remembering events after consuming the alcohol. Good Luck F Sent from my Verizon Wireless BlackBerry

Re: [TMIC] Question for people on Lyrica?

2009-06-18 Thread fr...@franksheldon.com
It can also prevent u from being able to tell the difference between the wall and the floor! (don't ask). That is also very true. A lot depends on how much you drink and if the walls are made of floor boards. pH

Re: [TMIC] Question for people on Lyrica?

2009-06-18 Thread jrushton
H...it also can make one become very up close and personal with the toilet ring(don't ask on that one, either) Jeanne ---Original Message--- From: rj_ran...@yahoo.com Date: 6/18/2009 9:13:15 AM To: fr...@franksheldon.com; Cody; TMIC; Robert Pall Subject: Re: [TMIC] Question

RE: [TMIC] Question for people on Lyrica?

2009-06-18 Thread jrushton
To: 'Cody'; 'TMIC' Subject: RE: [TMIC] Question for people on Lyrica? OH Cody How you have made my day. And all this time I have denied myself the pleasure of a tall cold one. God Bless Ya, I am a happy camper to hear this news. Janet TIAD but I’ve got today to get through. From

Re: [TMIC] Question for people on Lyrica?

2009-06-18 Thread Janice
That is the way I am about taking Baclofen.Having a drink on top of that can put you in la la land!! janice - Original Message - From: jrushton To: Janet Dunn ; tmic Sent: Thursday, June 18, 2009 6:22 PM Subject: RE: [TMIC] Question for people

Re: [TMIC] Question for people on Lyrica?

2009-06-18 Thread Janice
Oh My!! I am learning all kinds of tidbits on my TM friends!! Janice - Original Message - From: jrushton To: rj_ran...@yahoo.com ; tmic Sent: Thursday, June 18, 2009 5:53 PM Subject: Re: [TMIC] Question for people on Lyrica? H...it also can make

RE: [TMIC] Question for people on Lyrica?

2009-06-17 Thread Robert Pall
I have been on Lyrica for at least 3 years...I started with 2 pills a day (150mg each) and 2 years ago I increased it to 3 pills or 450 mg per day. I have had TM for 12 years and have found Lyrica to be the best drug as for helping the banding,numbness and pins and needles. The only side

Re: [TMIC] Question for people on Lyrica?

2009-06-17 Thread Cody
, June 17, 2009 12:58 PM Subject: RE: [TMIC] Question for people on Lyrica? I have been on Lyrica for at least 3 years...I started with 2 pills a day (150mg each) and 2 years ago I increased it to 3 pills or 450 mg per day. I have had TM for 12 years and have found Lyrica to be the best drug

RE: [TMIC] Question for people on Lyrica?

2009-06-17 Thread Janet Dunn
PM To: TMIC; Robert Pall Subject: Re: [TMIC] Question for people on Lyrica? RobertI specifically ask my new pain management doctor about this subject. I ask because my wife always gets after me when I want a scotch and reminds me of the Lyrica warning label. I am on the same dosge as you

Re: [TMIC] Question?

2008-12-29 Thread westgold
yes, you need serious antibiotics immediately. this is much more serious than a bladder infection, and if you don't bomb it immediately your kidneys can be damaged. I know. Go right now to the dr. today. Quoting CANDIS KALLEY cakal...@embarqmail.com: Never have had a kidney infection,

Re: [TMIC] Question?

2008-12-29 Thread Mary Anne Egan
My daughter gets urinary overflow incontinence when she has a UTI, to date she has not had a bladder infection but if I am not mistaken it depends how long the infections sit there On Mon, Dec 29, 2008 at 12:43 PM, CANDIS KALLEY cakal...@embarqmail.comwrote: Never have had a kidney

RE: [TMIC] Question?

2008-12-29 Thread Patricia Cooley
...@interlog.com] Sent: Monday, December 29, 2008 11:52 AM To: CANDIS KALLEY; tmic-list@eskimo.com Subject: Re: [TMIC] Question? yes, you need serious antibiotics immediately. this is much more serious than a bladder infection, and if you don't bomb it immediately your kidneys can be damaged. I

Re: [TMIC] Question from Randy

2008-11-14 Thread Heyjude48458
-Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 1:55 PM To: Butcher; Butcher, Bernard G (NY80); Jenna; TMIC Subject: Re: RE: [TMIC] Question from Randy Yes, I get this infusion every 3 months, 1G/day for 3 days. It's prednisone

Re: [TMIC] Question from Randy-Solu-Medrol

2008-11-14 Thread Jenna
effects. It is something you really need to talk about with your Dr. Jenna From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; TMIC-LIST@eskimo.com Sent: Friday, November 14, 2008 3:39:05 AM Subject: Re: [TMIC] Question from Randy AOL Email Hello

RE: [TMIC] Question from Randy

2008-11-14 Thread Butcher, Bernard G (NY80)
-LIST@eskimo.com Subject: Re: [TMIC] Question from Randy Hello Bernie It has been ages since we have heard from you. What has been going on in your life? You always have such interesting stories to tell and new ideas you say we ought to try. What is the big idea about Solu-Medrol? What

RE: [TMIC] Question from Randy-Solu-Medrol

2008-11-14 Thread Butcher, Bernard G (NY80)
@eskimo.com Subject: Re: [TMIC] Question from Randy-Solu-Medrol Jude, Most of the time when they give you Solu-Medrol for MS or TM you get 1000mgs a day. The dose pac's are much lower dose of steroids. I have such bad reactions to it that I had to be put in the hospital each time I needed

RE: [TMIC] Question from Randy

2008-11-12 Thread Butcher, Bernard G (NY80)
Yes, I get this infusion every 3 months, 1G/day for 3 days. It's prednisone. For me, I get a bit sick after the fourth day, but my neuro says that that is not the norm - just me. After that I feel pretty good, stronger. Bernie From: Jenna [mailto:[EMAIL

Re: RE: [TMIC] Question from Randy

2008-11-12 Thread [EMAIL PROTECTED]
Yes, I get this infusion every 3 months, 1G/day for 3 days. It's prednisone. For me, I get a bit sick after the fourth day, but my neuro says that that is not the norm - just me. After that I feel pretty good, stronger. Bernie, That'sa lot of medication!! For what disease do you get that

RE: RE: [TMIC] Question from Randy

2008-11-12 Thread Butcher, Bernard G (NY80)
cord and nerve myelin, and therefore prevent damage. Bernie -Original Message- From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] Sent: Wednesday, November 12, 2008 1:55 PM To: Butcher; Butcher, Bernard G (NY80); Jenna; TMIC Subject: Re: RE: [TMIC] Question from Randy Yes, I get

Re: [TMIC] question about post

2008-10-28 Thread kevin weilacher
[EMAIL PROTECTED] To: Jenna [EMAIL PROTECTED]; tmic tmic-list@eskimo.com Sent: Monday, October 27, 2008 7:30:13 PM Subject: Re: [TMIC] question about post I have a simple suggestion after all of the discussion on religion and politics...maybe too simple? What if we were to add 'Rel' or 'Poll

Re: [TMIC] question about post

2008-10-28 Thread jrushton
Hi, Gilly, I think I've been part of the TMIC and when I first came on, there was a spirited discussion of some kind then but because there was so much caring between those involved, I watched caring hearts work it out so it is like a family. Things come up?? We work it out!!! j

Re: [TMIC] question about post

2008-10-28 Thread Gillian Clark
: Re: [TMIC] question about post Hi, Gilly, I think I've been part of the TMIC and when I first came on, there was a spirited discussion of some kind then but because there was so much caring between those involved, I watched caring hearts work it out so it is like a family. Things come up

Re: [TMIC] question about post

2008-10-27 Thread jrushton
I have a simple suggestion after all of the discussion on religion and politics...maybe too simple? What if we were to add 'Rel' or 'Poll' to the Subject line whenever we want to add either and that way it will give the reader a chance to delete it without having to read it first?? I'm fine

Re: [TMIC] question about post

2008-10-26 Thread jrushton
Jenna, as far as I'm concerned, how else are we going to know about some that are unable to let us know themselves? I'm thankful we have people like you that are willing to help each other. Isn't that what the TMIC site is all about?? Helping each other?? I thank you for being so kind as to

Re: [TMIC] question about post

2008-10-26 Thread CANDIS KALLEY
I personally believe in prayer and its healing and comforting abilities.  Requesting prayers and praying for one another is the humanly response.  We all may not believe in the name of who/what we call our higher power, but I do believe in a higher power which I call GOD. I vote for anyone

Re: [TMIC] question about post

2008-10-26 Thread [EMAIL PROTECTED]
--- On Sun, 10/26/08, CANDIS KALLEY [EMAIL PROTECTED] wrote: From: CANDIS KALLEY [EMAIL PROTECTED] Subject: Re: [TMIC] question about post To: TMIC tmic-list@eskimo.com Cc: Jenna [EMAIL PROTECTED] Date: Sunday, October 26, 2008, 3:03 PM #yiv963255076 {font-family:'Times New Roman';font

Re: [TMIC] question about post

2008-10-26 Thread laura . eichler
please explain it for me? Thank,Cheryl --- On *Sun, 10/26/08, CANDIS KALLEY [EMAIL PROTECTED]* wrote: From: CANDIS KALLEY [EMAIL PROTECTED] Subject: Re: [TMIC] question about post To: TMIC tmic-list@eskimo.com Cc: Jenna [EMAIL PROTECTED] Date: Sunday, October 26, 2008, 3:03 PM I

Re: [TMIC] question

2008-10-18 Thread Jan Hargrove
Hi Pat,   Sorry you've had to become a member of this family, but you've come to the right place for help (and love)!    I'm aware of Sjogrern's as a good friend of mine also has it. As you know, Sjogren's (like tm) is an immune system problem which is frequently the case, you have one

Re: [TMIC] Question - bum pain

2008-07-12 Thread Jim Lubin
Have you tried a mattress overlay? Do a search for Isotonic topper pad. I tried one and thought it felt great but I sunk into it so much that it was difficult for the nurse to turn me. I now use a Sierra Gel Mattress Overlay. very comfotable. The Sierra Gel Mattress Overlay

Re: [TMIC] Question - bum pain

2008-07-11 Thread Diane
Candy, you're bound to get different replies on this but I have to tell you that I suffer from bum pain - and it does feel like bruising. In my case, it is the beginning of pressure sores. They start very deep will worsen if you don't take the pressure off in some way. I bought some of the

Re: [TMIC] Question - bum pain

2008-07-11 Thread Alle111
Hi Candy, I don't have much of an answer as I am in a wheelchair, but if you hurt from sitting too long, why not try a gel cushion to use when sitting. You can get one online or anywhere that sells medical supplies/equipmentElla **Get the scoop on last night's hottest

Re: [TMIC] Question - bum pain

2008-07-11 Thread Diane
: [TMIC] Question - bum pain Candy, you're bound to get different replies on this but I have to tell you that I suffer from bum pain - and it does feel like bruising. In my case, it is the beginning of pressure sores. They start very deep will worsen if you don't take the pressure off in some

Re: [TMIC] QUESTION

2008-04-04 Thread LadyNotes
Ditto. I have not been physically ill, since my TM onset. I did not even get a flu shot this year, but I have not had a cold or flu, or any of these things since I've had TM (knock on wood). Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis

RE: [TMIC] QUESTION

2008-04-04 Thread wim from holland
The TM made that some tissue around the spine is damaged. This damaged tissue is seen by the body as wrong element. The immune system attacs this tissue. The fact that some parts are not working or bad working is proof that the immune system is working. Thats why some people get treatments

Re: [TMIC] QUESTION

2008-04-02 Thread jrushton
Rob, we get so many different theories from so many doctors and neurologists The answer I've gotten more than any is that it is a one time episode(in most cases) BUT we each have to relearn so much because the lesion in our spinal cord blocks what used to run freely from our brain. We have to

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