[TMIC] Change of e-mail address
I'm changing the e-mail address I use on the list from _jharpe...@aol.com_ (mailto:jharpe...@aol.com) to _barbara...@gmail.com_ (mailto:barbara...@gmail.com) . I hope it doesn't cause any confusion -- I've used the same e-mail address for the 11 or so years I've been on the list. But there are a couple of reasons for doing so. First of all, for years people have been getting Jan H. and I confused, so this should help there. Secondly, the gmail one is one I use for Internet sites and that's the one I have on Facebook. With so many TMers now on Facebook, I keep getting invites to join when I'm already there. By having the same e-mail here and there it should cut down on confusion and make it easier for people to find me. I'll still have the aol address, so you can reach me at either one. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=115bcd =JulystepsfooterNO115)
Re: [TMIC] Update on Jim
Will be praying. I love what you said about there is still time for more. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 8/24/2009 8:09:17 A.M. Eastern Daylight Time, cjb...@aol.com writes: We are still in a holding pattern and has been getting harder for me to keep up my hopes. But have decided today I will BELIEVE. I will be heading down to Pontiac soon and will present my case, again, to both hospitals( the one he is in and the one I am hoping he will be in. He is getting very discouraged. I must find something in myself to encourage him. I want to grow old with him. I know some of my friends would say I already have, but there is still time for more. Please enjoy every minute you have. Keep the prayers coming. carol and jim **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=115bcd =JulystepsfooterNO115)
Re: [TMIC] able to move slightly
Oh Jim -- that brought tears to my eyes as well. How exciting! Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 8/24/2009 4:40:59 P.M. Eastern Daylight Time, jlu...@eskimo.com writes: The past two weeks I started feeling a tingling in my right lower back. When I feel this I am able to move my left thumb! It's been 20 yrs, 4 mos since I was paralyzed from the neck down due to TM. When I recline the tingling stops and I can not move my thumb no matter how much I try to. To show that I was actually moving and not just having involuntary twitching, I had my nurse tell me when to move and I moved it. Here is the video _http://www.youtube.com/watch?v=Tw__9ZDv_hU _ (http://www.youtube.com/watch?v=Tw__9ZDv_hU) Jim Lubin jlu...@eskimo.com _http://makoa.org/jim_ (http://makoa.org/jim) disAbility Resources: _http://www.makoa.org _ (http://www.makoa.org/)
Re: [TMIC] OT:My Pattern published!
Very cool! Congratulations on being published!! Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 8/22/2009 7:35:34 P.M. Eastern Daylight Time, a...@artfarm.com writes: This is off Topic, but I am so full of complaints and disappointments--- that i share and work on here-- that i wanted to share a ray of hope. I got a box the other day from Simon and Schuster... i had not clue what it was til i opened it... My 2010 Crochet A Day Calendar arrived and my Flower Link scarf patternis in it! This particularly sweet, not only because the pattern was rejected by Interweave ( so if at first you don't succeed try, try again) but because my model was my visually challenged neighbor from the complex I stayed in, in Rochester while learning to live my life anew as a paraplegic and awaiting my home's rehab. It was a hellishly hard and horrible time and I missed the art i used to make and crochet was both a salvation and communication. I offered weekly crochet lessons in that building. The picture was taken on a sunny but chilly day in the courtyard I used to love to roll to... the pattern was about turning poison into medicine. by hand from heart --
Re: [TMIC] Need some help please
I have a friend who had a very successful double knee replacement, but before they ever got to that point, they did cortisone injections and I think maybe physical therapy, so I think those would give some relief at least for a while. I would think losing weight could only help, and I would guess water therapy would be good. I would seek another opinion and ask straight up, If I can't do surgery, what are my other options; what can I do? Barbara H. http:barbarah.wordpress.com In a message dated 8/11/2009 11:41:20 P.M. Eastern Daylight Time, cherp...@msn.com writes: Hi everybody, I'm hoping you guys can help point me in the right direction. There are so many of us on the TM site there's just got to be someone who knows somebody with the same or similar dilemma. Most of you know that I've had Sjogrens for 20+ years (unfortunately, progressive and aggressive) and 7 yrs ago TM came into my life. I am on heavy chemo meds (Imuran and Rituxan infusions) to suppress my immune system to keep it from attacking my body. Last Sept I had a minor surgery to repair a torn meniscus in my knee, and my body went into the longest, hardest relapse I've ever had. I'm just now getting my arms and hands back - I think this is as much as I'll get this time. Almost everything else has gradually come back. My one huge problem is that my KNEES took the biggest hit - my doctors said it was because they were the weakest part of my body at the time. I have infected knees (right one to the bone) and am walking (trying) on bone on bone knees. They both need to be replaced. And, I have TM, so already my walking is not that pretty. I was sent out of state to a surgeon who does a special knee replacement surgery that is less invasive. Long trip, big disappointment. He will NOT do surgery on me either because of the aftermath - said it would be like doing brain surgery due to my autoimmune diseases. Well that's fine - I have always wanted to do anything but the surgery, but was given no OTHER choices. And, I am still being given NO options. So I've done some of my own research. What about physical therapy to get my thigh and quad muscles built up so they can take some of the load off my knee joints? (I'm a fairly small person so we're not talking about losing 50 lbs and that would make things all better) Water therapy? I'm not quite sure how to get these muscles built up when my knees hurt so bad I can hardly bend them, but there has to be a way. My doctors have kind of given up on me, which at first shocked me, now I'm just really mad. Any ideas would be much appreciated. Thanks guys, Linda
Re: [TMIC] Re: [QUAD-L] 35 year anniversary
Jude, looking back at the posts preceding your comments, none of them were on the TMIC. The address listed on them is _quad-l...@eskimo.com_ (mailto:quad-l...@eskimo.com) , not the TMIC address. Did you inadvertently subscribe to the Quad list and get it confused with the TMIC? And don't you even think about going anywhere. You are a vital part of the TMIC. You made a mistake, apologized, and asked forgiveness -- now just receive it, let's put all this behind us, and move on. There will likely be more comments as too often people will read the first note in a thread and respond before seeing that the issue has been resolved, but if they keep reading they'll see that it has. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 8/1/2009 1:06:37 A.M. Eastern Daylight Time, heyjude48...@aol.com writes: Will you people whom do not have TM along with being quads please create a site of your own and use it. You are breaking into a site for people who have a disease called Transverse Myelitis, and unless you have it, I feel you ought not be here because you will never understand the things we talk about. Some of the topics you will be able to relate to, simply because you are paralyzed or have a similar disability, but you ought to create a site for Quads all of your own. I am sorry for saying these things. I wish I didn't feel the way I do. Those of you with Transverse Myelitis, stay...the rest of you, please begin your own web site and do not clutter up the TM Site. It very well may confuse a person with new TM who needs a place to go to find solace, to vent their anger, to find the exact same people who have the same problems as they do. This a TRANSVERSE MYELITIS site...not simply for paraplegics, quadriplegics, or people with diseases similar to ours. Unless you have Transverse Myelitis, you do not belong here. I am sorry that I feel this way. I don't even know why I feel so strongly about this. It seems that I am the only person on our site who feels this way since no once has written in to back me up. Regardless, I feel that you ought to have your own site and that means that it is time for you to create your own site, and move on.; Please respect our site. Thank you quads, I love you, Jude...Wait a minute. I just went back to see where you had addressed your email and it is addressed to a site that is not this one. I wonder why all of your mail is being sent to out site.? Please accept my apology for all of the things I have said. I am so sorry. Why didn't one of you come on board to correct me? With my deepest regrets, Jude, (big mouth) In a message dated 7/28/2009 3:53:14 P.M. Eastern Daylight Time, lilroamin...@verizon.net writes: Hey Dana quadriplegics on 35 yrs. I'm only at 10yrs July 31. I, too, have been pretty healthy.( I'm a c6-7 quad. I can't stay still for long plus I do get in a manual as often as possible mainly for excercise and to keep my weight down. I went from 205 to 125 now holding at 130. I've broken my right leg 3 times ( shoot almost can't keep count) LOL Mainly from trying things, but if you don't try, how will you know if you can, right.) For those of you who don't know me. By the way I'm about to be a grandma, my daughter is 7 mos and its a girl (woohoo) I'm so excited. Oh Dana by the way What I'm worried the most about the medicare/medicaid is they (government)want to stop in-home care. One thing I have heard is The Governor of Texas is really looking into the healthcare, like he did the stimulus thing. He didn't take all the money only enough to help the unemployment and welfare n few other things. What I don't understand with the Healthcare is with its hard enough with getting things with medicare/ medicaid I hope and pray they don't screw it up worse. Regina Life's greatest accomplishments are those that at first seem impossible and No one can know what they can do until they try. --- On Mon, 7/27/09, dav...@aol.com dav...@aol.com wrote: From: dav...@aol.com dav...@aol.com Subject: Re: [QUAD-L] 35 year anniversary To: quad-l...@eskimo.com Date: Monday, July 27, 2009, 10:25 AM congrats on being a tuff ol' goat DAANO. I've had only one close call with a uti - I've been unusually healthy since 5-24-1967. yupper 42 years. (I had to think for a minute of the exact date - that's gotta tell you something ) looks like this sci stuff isn't nearly as deadly as one might think. azdave Young people talk of the future because they have no past, while old people talk of the past because they have no future. _Dave Patty's Grandkids_ (http://ocgrands.com/) In a message dated 7/27/2009 7:28:02 A.M. US Mountain Standard Time, daa...@aol.com writes: I can't believe I made it to my 35 th year anniversary. My parents were told after each
[TMIC] August Birthdays
Happy Birthday to the August birthday kids -- August has one of the longest lists! Please send any additions or corrections to _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) 8/1 Peachi (_pkeene2...@aol.com_ (mailto:pkeene2...@aol.com) ) 8/1 Cindy McLeroy (_cindymcle...@socal.rr.com_ (mailto:cindymcle...@socal.rr.com) ) 8-1 Stacy Firth (_safi...@dow.com_ (mailto:safi...@dow.com) ) 8-3 Larry Throne (_lbthr...@hotmail.com_ (mailto:lbthr...@hotmail.com) ) 8-10 Sean Indiveri (_sindiv...@hotmail.com_ (mailto:sindiv...@hotmail.com) ) 8-11 Raylene Gökeri (_mrs_gok...@yahoo.com_ (mailto:mrs_gok...@yahoo.com) ) 8-11 Michelle Maricic (_mmari...@aol.com_ (mailto:mmari...@aol.com) ) 8-11 Dalida S. Ortiz de Garcia (_py...@yahoo.com_ (mailto:py...@yahoo.com) ) 8-16 _phyllisj...@webtv.net_ (mailto:phyllisj...@webtv.net) 08/17 Sandra (Harth) Brassil (_sbras...@aol.com_ (mailto:sbras...@aol.com) ) 8-17 Kim (_jnks...@huntel.net_ (mailto:jnks...@huntel.net) ) 08/18 Corinne Cookie Knox (_horsecookies...@wmconnect.com_ (mailto:horsecookies...@wmconnect.com) ) 8-19 Saroj (_sarojkumar...@gmail.com_ (mailto:sarojkumar...@gmail.com) ) 8-21 Barbara H. (_jharpe...@aol.com_ (mailto:jharpe...@aol.com) ) 8/22 - Debi (_debdo...@aol.com_ (mailto:debdo...@aol.com) ) 8-23 Cole (_neilandwe...@rogers.com_ (mailto:neilandwe...@rogers.com) ) 8-29 Lisa Baker (Judy's daughter) (_judybak...@juno.com_ (mailto:judybak...@juno.com) 8-29 Kathleen (_kkar...@dacor.net_ (mailto:kkar...@dacor.net) ) 8/30 Lynn Pouliot (_lpoul...@cox.net_ (mailto:lpoul...@cox.net) ) 8-31 Robin in Ontario(Brampton)(_rjohnson1...@rogers.com_ (mailto:rjohnson1...@rogers.com) ) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=115bcd =JulystepsfooterNO115)
[TMIC] Quote re Victory Over Limitations (OT: Spiritual Content)
Many of us struggle against the limitations of TM and grieve over not being able to do what we used to or what we'd like to. This year I have been reading through a devotional book called Our Daily Walk by F. B. Meyer, and the reading for today was titled Victory Over Limitations. It blessed me and I thought it might be a blessing to others as well. The full text can be found at _http://www.preceptaustin.org/our_daily_walk_by_f_b_meyer_-_july.htm_ (http://www.preceptaustin.org/our_daily_walk_by_f_b_meyer_-_july.htm) under July 21, but the first part talks of the apostle Paul's limitations, first of being imprisoned, and then of failing eyesight, and then limitations we struggle with. Then Meyer writes: Let us accept our limitations as from the Will of God. There is no way to peace or power, save in accepting the Will of God, making no distinction between what He appoints or permits, but believing that in either we are in contact with the Eternal purpose for us. Paul never forgot that he was the prisoner of Jesus Christ. He believed that for every limitation on the earthward side there would be enlargement on the other and spiritual side. Weakness here, added strength there; the being hourly delivered unto the cross, and from the ground the blossoming of endless life. Let us do all the good we can in spite of fetters. St. Paul could not continue his travels over the world, but there were many avenues of service open to him. He could pray, and he did (_Col 1:3_ (http://bible.logos.com/passage/nasb/Col%201.3) ; _Col 2:1_ (http://bible.logos.com/passage/nasb/Col%202.1) ; _Col 4:12_ (http://bible.logos.com/passage/nasb/Col%204.12) ). He could influence others (Phi 1:11-14). He employed his leisure in writing the epistles that have been the perennial solace of sorrowful hearts. There is a door, nearer to you than you think, opening out of your prison, through which God will enable you to render helpful service for Him. PRAYER Our Father, we thank Thee Thou canst make no mistakes. We believe that all things are working together for our good, and we trust Thy guiding hand. AMEN. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1221823310x1201398722/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd= JulystepsfooterNO62)
[TMIC] Veins -- cause or effect of MS
My son sent me a link to this article about finding linking vein problems to MS. Too early yet to say if it is cause or effect or what it might all mean, but I am just passing it along for your interest. _http://www.metafilter.com/83205/The-wane-in-veins-draining-the-brain_ (http://www.metafilter.com/83205/The-wane-in-veins-draining-the-brain) Barbara H. **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1221323041x1201367261/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jul yExcfooterNO62)
Re: [TMIC] Please keep praying for Jim
I'm so sorry, Carol. I just prayed for you both and will continue to. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 7/14/2009 6:52:34 P.M. Eastern Daylight Time, cjb...@aol.com writes: Today is Tuesday July 14th. It has been 10 days since I posted. Unfortunately things are not as good today. They had to put him back on the vent because he was running a temp of 104, Sunday morning. They have switched antibiotics and are hopeful that it will start to work. The doctor said his bed sores are getting worse instead of better.He tried to pull out his trach last nite and they had to restrain his hand. He is still fighting hard to stay with us, but when he is extra tired and in pain he looks at me with an I don't know how much more I can take look. I am trying so hard to convince him that he has to get well. GOD BLESS, Carol It is hard to get the internet where we are but I will try What's for dinner tonight? Find _quick and easy dinner ideas_ (http://food.aol.com/dinner-tonight?ncid=emlcntusfood0007) for any occasion. **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1221323036x1201367247/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jul yExcfooterNO62)
Re: [TMIC] Class Reunions
I agree with what several others have said: I'd do ahead and RSVP so they can make adequate preparations and then see how you feel when the time comes. Sometimes I am fine answering questions and want to spread awareness about TM that way: sometimes I can kind of close in on myself and not really want to get into it. I'd prepare a short response for anyone who asks (I think I used to say something like I had an auto-immune attack on my spine) and then go further if they want to talk about it more and you feel like it, or change the subject if you don't. But would I let the fact of having TM keep me from such a gathering? No. As others have said, a lot of people in your class will have gone through any number of situations, too, in the mean time. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 7/1/2009 11:47:46 P.M. Eastern Daylight Time, jan...@centurytel.net writes: I have another question for you all that want to answer: I will be having another class reunion shortly and graduating from the hometown high school, I was usually one of about 15 that helped to plan it.We had around 500 in our graduating class. Anyway, I am debating whether or not to be a part of the planning or even attending the reunion.This is the first reunion since I got clobbered with TM. I still have to use a cane and would maybe need my wheelchair.I was fairly well known and I am afraid I would be answering questions all nite about TM. My question is: Would you let TM keep you from attending a reunion?Be honest. If you were faced with this decision this weekend, what would you do? Janice **Dell Summer Savings: Cool Deals on Popular Laptops – Shop Now! (http://pr.atwola.com/promoclk/100126575x1222696924x1201468348/aol?redir=http:%2F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629%2D1)
[TMIC] July birthdays
Happy birthday to the July kids!! Please send any additions or corrections to _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) . 7-5 Sumer (_fjs181...@aol.com_ (mailto:fjs181...@aol.com) ) 7/5 Rick in TN (_ashfordrich...@bellsouth.net_ (mailto:ashfordrich...@bellsouth.net) ) 7-9 Vicki Frohna (_to...@bright.net_ (mailto:to...@bright.net) ) 7-14 Julie (_chi...@cox.net_ (mailto:chi...@cox.net) ) 7-15 Sandi Siegel (_ssie...@myelitis.org_ (mailto:ssie...@myelitis.org) ) 7-25 (_jennapa...@aol.com_ (mailto:jennapa...@aol.com) ) 7-25 Michelle Balliet (_chelley...@aol.com_ (mailto:chelley...@aol.com) ) 7-27 Linda (_lp...@aol.com_ (mailto:lp...@aol.com) ) 7/29 Hildred (_missprissgran...@aol.com_ (mailto:missprissgran...@aol.com) ) 7/30 Dex Packard (_d...@centurytel.net_ (mailto:d...@centurytel.net) ) **Dell Laptops: Huge Savings on Popular Laptops – Deals starting at $399(http://pr.atwola.com/promoclk/100126575x1222883570x1201497211/aol?redir=http:%2F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629%2D0)
Re: [TMIC] Transverse Myelitis Network
Good grief, Rick. Todd was not at all griping or insinuating anything. He wrote a very gracious response to the previous e-mails in this thread. Barbara H. In a message dated 6/28/2009 9:19:53 P.M. Eastern Daylight Time, ashfo...@att.net writes: Todd' one of the reasons I reclused from this web site is because I had three members of my immediately family die and I needed to deal with funeral homes and I actually had to ask this list for donations and the people that I thought would help, did just did and I don't remember seeing Todd Tarno's name even as much as a salutation. I'm not picking on you but I know this, If you send a e-mail to Jim or anyone else on this list your email will eventually be answered. This is an amazing web site and if you are not satisfied with your business here, you can always go some where else and I guarentee you'll not find as many people who for you, I'm sorry your a quad, and is every one else is too. So please stop gripping because you feel your 2 cents are not heard, because it is heard. and we all love you and your e-mail gets heard. This was Jim dream and he could not be able to manage it on his on. We all keep it working. So be carefull when you insinuate. Your friend Rick Ashford. From: Todd Tarno toddtm2...@sbcglobal.net To: ladyno...@aol.com Cc: TMIC tmic-list@eskimo.com Sent: Sunday, June 28, 2009 5:25:50 PM Subject: Re: [TMIC] Transverse Myelitis Network That won't happen again. We do enjoy reading ALL of your e-mails. I'm sadden that I'm unable to answer a few of your e-mails because of how TM has hit you. But, you are right that this site doesn't have many quads, like you Jim. I'm amazed at ALL of your's e-mails. What it must take just to write an e-mails. Both of you DO write wonderful long e-mails. I do treasure each everyone of your e-mails. I have trouble keeping up with this site, more power to you to do more than one sit. Just know ya'll do have a FAN, Todd in Corpus Christi, TX --- On Wed, 6/17/09, ladyno...@aol.com ladyno...@aol.com wrote: From: ladyno...@aol.com ladyno...@aol.com Subject: Re: [TMIC] Transverse Myelitis Network To: heyjude48...@aol.com, tmic-list@eskimo.com Date: Wednesday, June 17, 2009, 12:03 PM Jude, First of all, I never said I PREFER the paraplegic/quadriplegic site. I said I IDENTIFY more. I feel as though I offended you by saying this. There are issues and concerns of being a quad they are not addressed in the TM site and I would imagine it's because most people on this site are not quadriplegics. I go where I can find the information that helps me. If I did not want to be on this site, I could simply delete it from my contacts. There is nothing holding me back. I have asked questions on here regarding autonomic dysflexia, only to have no one respond. Because I later found out that it's a medical condition for quadriplegics, so I went to the paraplegic/quadriplegic site to get the answers I needed. I'm sure Jim uses these sites, HE CREATED THEM! Where is his hostility?? He knew that there would be a need for additional information, and that's all it is, is additional information. I have been a member of this site, since I came home from the hospital in 2006, but I am always looking for any and all information that could be of help to me (as I'm sure all of us would be). There are people that use this site that are also members on the Yahoo Transverse Myelitis site. Should they just pick one or the other. I have met many people through this site, one who has become my best friend who has TM. I would not trade that for anything, but your e-mail makes me feel as though I am unwelcomed or a traitor of sorts. This brings me to tears. As I have poured my heart out on this site (reluctant to make my personal problems public), but felt comfortable enough to share with others who are, also suffering with relationship problems, pain and depression. That won't happen again. -Original Message- From: heyjude48...@aol.com To: ladyno...@aol.com Sent: Wed, Jun 17, 2009 4:26 am Subject: Re: [TMIC] Transverse Myelitis Network Then what is holding you back? Why don't you simply quit this site and use the other one that you say you prefer? What's the big deal? Jude In a message dated 6/15/2009 2:11:29 P.M. Eastern Daylight Time, _ladyno...@aol.com_ (http://us.mc822.mail.yahoo.com/mc/compose?to=ladyno...@aol.com) writes: I am also a member of the paraplegic/quadriplegic website that Jim has started. Although I have TM, which left me a quadriplegic, I identify more with the members of the paraplegic quadriplegic site then with the members of the TM site. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis An Excellent Credit Score is 750. _See Yours in Just 2 Easy
Re: [TMIC] I'm on you tube
I just watched the first bit, but very cool! We could have used this years ago -- we had a Bentwood rocker with a cane seat that kept needing to be replaced every few years, so we finally got rid of it. But I rocked all of my babies in it -- pleasant memories! It was neat to see you. It's great that you put this online for others to benefit from. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/27/2009 12:41:44 A.M. Eastern Daylight Time, we4king...@verizon.net writes: My husband and I made a you tube video, Mainly for chair caners and it's long (10 min) but if any of you know anyone who wants to restore one of those oak and cane WW1 wheelchairs send them to my video site as they are done the same way as the chair I'm working on. Mindy the Artist _http://www.youtube.com/watch?v=dr75Po5pinM_ (http://www.youtube.com/watch?v=dr75Po5pinM) = **An Excellent Credit Score is 750. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1221323006x1201367222/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Jun eExcfooterNO62)
Re: [TMIC] Facebook Page
I looked up Tracey Black but there were over four pages of them!! Which one are you? I'm on FB but not Farm Town. Barbara Harper In a message dated 6/26/2009 9:18:39 A.M. Eastern Daylight Time, tracey.bl...@hnoins.com writes: I am addicted to Farm Town. So is Ashlee and her brother and sister. I am up to level 26 and have over $435,000. Great way to talk to people from all over the world!! If you have a facebook, can you give me your info so that I can add you to mine??? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone- 717-334-6741, x 29 Fax-717-334-3414 My hours: 9:00 a.m. - 5:00 p.m. Thank you for providing information to us. Please be aware that no coverage is bound and no change to your insurance program is confirmed until verified by a licensed agent during regular business hours. If you do not hear from us within 1 business day, please re-contact us in case your information has not been retained From: Grace M. [mailto:grace...@gmail.com] Sent: Thursday, June 25, 2009 10:54 PM To: Jim Lubin Cc: Akua; tmic-list@eskimo.com Subject: Re: [TMIC] Facebook Page Hi Jim, I'm afraid to even start Farm Town---I KNOW I'll get addicted...as it is, I already need to start attending Mahjong Addicts Anonymous meetings ;-) Gracie **Stay connected and tighten your budget with a great mobile device for under $20. Take a Peek! (http://pr.atwola.com/promoclk/100122638x1222405996x1201457362/aol?redir=http://www.getpeek.com/aol)
Re: [TMIC] Sex
Just to hopefully offer encouragement to some, for me sensation did come back -- better than ever. I was really surprised the first time we tried after TM, and I can't remember how long that was, that my sensation then was not normal. It wasn't that I had no sensation, but it was a little off. For instance, at first when I used the bathroom I had to make sure the seat was up because it felt like I was sitting on the closed lid even though I wasn't. I hadn't even thought about that in relation to sex until that first time we tried, and I was surprised and dismayed. But my husband encouraged me to just keep trying and called it our therapy. :-) In addition to TM, though, age and being out of shape are other factors. Some of you may remember a long time ago an Ann Landers poll that showed many women enjoyed the cuddling and closeness as much or more than the act. There are times that we just enjoy that, too. I would encourage anyone not to give up on that part even if you can't go all the way. There are times I've avoided that physicality because I really didn't feel like sex, but I think that is a mistake. Sandy Siegel wrote a great article on this in one of the TMA newsletters -- let me see if I can find it...here it is: _http://www.myelitis.org/newsletters/v3n2/newsletter3-2-01.htm_ (http://www.myelitis.org/newsletters/v3n2/newsletter3-2-01.htm) BTW, past newsletters are all available at _http://www.myelitis.org/newsletters/index.html_ (http://www.myelitis.org/newsletters/index.html) I saw some about caregivers while searching for this one -- I know we discussed that recently, too. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) **Shop Popular Dell Laptops now starting at $349! (http://pr.atwola.com/promoclk/100126575x1222031056x1201446063/aol?redir=http:%2F%2Fad.dou bleclick.net%2Fclk%3B215910283%3B38350812%3Ba)
Re: [TMIC] Need your prayers
Is it possible to talk to the daughter privately about how much this means to her father -- or would that not go over well? I can see how it might make things worse with the mother. Barbara H. In a message dated 6/22/2009 8:05:47 P.M. Eastern Daylight Time, camoa...@yahoo.com writes: Family reasons. Blended family. Mother did her best to poison both children. The mother divorced my husband, she wanted her cake and eat it too. My husband was very good to both her and his children. He even asked her to remarry him ... answer was a distinct no! She promised him on our wedding day she would poison his children against him. She told them over and over that Daddy chose a new little boy to live with and be his Daddy. My husband had many talks with his children, took them out alone. But no matter how much , we gave, their mother made more than both of us together. Money speaks louder than words. I hope this does not send my husband into a TM event. He has looked forward to walking his only daughter down the aisle always. Thank you for your kindness. From: kimr1...@bellsouth.net kimr1...@bellsouth.net To: Catherine camoa...@yahoo.com Sent: Monday, June 22, 2009 7:27:27 PM Subject: Re: [TMIC] Need your prayers Catherne, is it because of his TM or family reasons? -- Original message from Catherine camoa...@yahoo.com: -- To My TM Family, I need your support today. Right now I am trying to help my husband deal with his daughter not wanting him to walk her down the aisle. He is devastated! My heart bleeds for him. I will have to continue to pray for the situation. Please pray for our family ... it is on the verge of never being the same again. Catherine **Make your summer sizzle with fast and easy recipes for the grill. (http://food.aol.com/grilling?ncid=emlcntusfood0004) inline: stat2061.jpg
Re: [TMIC] Checking In
Always good to hear from you, Larry! Hope you're doing well. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/21/2009 8:19:23 P.M. Eastern Daylight Time, okielar...@yahoo.com writes: This is Larry from Oklahoma checking in for the first time in a while. First off, happy fathers day all of you dads out there, bio dads, step dads, foster dads or just stand in dads. There is not enough dads in this world so keep up the good work! Second, I've been checking the archives almost daily since my last post (which was another email address) and I'm never surprised at the love, support and concern this group has for each other. It's so good to see how this has group concerns for those going through so much like when Jude was having so much trouble with her health or helping another go through the grief of losing a family member, or losing one of our own such as Pam or Doc or Dennis. That's why I love you so much. Last but not least Thanks for being here, each and everyone of you! Talk with you soon. P.S. Happy Summer Solstice Phanque! **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] Transverse Myelitis Network
I was wondering this, too. I got an invite but no information and anything I clicked on just took me back to the same invitation. The TMIC is plenty for me and the forum (_http://www.myelitis.org/forum/_ (http://www.myelitis.org/forum/) ) is there for people who want more. The forum is kind of overwhelming to me. If some want another network, that's fine, but please don't be offended if some of us have enough on our plates and don't join in. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/15/2009 9:14:50 A.M. Eastern Daylight Time, rp...@neillsupply.com writes: Jim: Do you have any feedback on the new Transverse Myelitis Network many of us have been invited to join. What is the difference between our present network :the Transverse Myelitis Internet Club and this one…and why was it needed….the only explanation is it can do things our present network cannot! I presently get enough info. On our site and was wondering if this is simply overkill. Thx Rob in New Jersey **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] Transverse Myelitis Network
I agree, Debbie, the more support groups that help more people, the more the word gets out, the better. No quibbling here at all. I just didn't want the people who start new support groups to get offended if they invite people from the TMIC and we decline. It's nothing personal, it's just that, for me, between TMIC, blogging, and Facebook I have more than I can keep up with already. But for those who want/need another support group, more power to ya. :-) Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/15/2009 12:23:38 P.M. Eastern Daylight Time, dca...@earthlink.net writes: I have to respectfully add to Grace's comment below. She is absolutely correct when she states that the groups are formed to spread awareness of TM, ADEM, NMO and the other neuroimmunologic disorders. The TMA was not formed to hold a monopoly on support groups. It was formed as a non-profit organization to enable us to raise funding for research into causes and cures, form a Medical Advisory Board of excellent physicians who support our cause, raise awareness around the world, and help facilitate emotional support for those who have these disorders. Without the ability to raise money which is tax deductible for our contributors, none of this would have happened. Without the non-profit status, we can not request grants or funding from the NIH, NINDS or other groups for research support. We applaud all those individuals who start the support groups both online and in their geographic areas, as without their help, transverse myelitis does not have a face. Pretty much all of these groups have been started by TMA members. Jim Lubin was our pioneer into this medium. He started the first Internet support group when he became a vent-dependent quadriplegic from TM. He also started many other support groups, such as the vent-dependent quad list. We will never have enough support groups. I myself have joined several of these groups just to see the sharing and emotional support that goes on. It is very heart-warming to see this happening. I think that having all of the support groups makes us more noticeable to the news media and the talk shows. I don't think that any of these shows ever mentioned TM prior to 1997. This awareness has happened because those of us with TM are not just sitting quietly and let it consume our lives. We are doing something about it! Also, in my opinion, I don't think that there is any bickering going on about this topic; I think it is just productive conversation and helps to make all the newer subscribers aware that these lists are all out there for their information, and let's not forget our caregivers. They need support groups too! Take care, Debbie Capen Secretary The Transverse Myelitis Association - Original Message - From: _Grace M._ (mailto:grace...@gmail.com) To: _jharpe...@aol.com_ (mailto:jharpe...@aol.com) Cc: _rp...@neillsupply.com_ (mailto:rp...@neillsupply.com) ; _jlu...@makoa.org_ (mailto:jlu...@makoa.org) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Monday, June 15, 2009 9:00 AM Subject: Re: [TMIC] Transverse Myelitis Network The Transverse Myelitis Network is another great way for patients to communicate and compare notes. Many of the TMIC members participate there. Our own Marieke is one of the administrators. I advocate for NMO, and work with Sandy Siegel and the TMA crew, and I also have my own site, of which Mr. Siegel is extremely supportive. It's all about spreading awareness of issues like TM, and other causes of non traumatic SCI. There is enough room for everyone an no need to quibble. Respectfully, Grace **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] read receipts?
I've never noticed that, Kathy. Maybe it's just one of those automatic things from some e-mail servers? I think if anything it's just a way of making sure you got and saw it and that it didn't get lost in cyberspace. Does it appear along the bottom of e-mails? That's where ads usually are from the e-mail provider, and I don't usually pay attention to that area, but I'll have to keep an eye out to see if it's there. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/15/2009 1:11:29 P.M. Eastern Daylight Time, k...@frontiernet.net writes: I have a question for you all and I would really appreciate an answer. I would like to know why people send an email into the list with a “Read Receipt” attached. For some reason I cannot explain, this really bothers me and makes me feel Violated. I would really like to know what they do with this receipt or why they need it. To me sending the receipt makes me feel as if I am being monitored for how much I read the emails on the list. I thought this list was supposed to be there to be another support and we can read and write as we please to the list. I am not trying to center one person out here as I get it from quite a few on the list. Are the people asking for the read receipt monitors of this list or not? I don’t mean to offend anyone just checking. Kathy (whom has now checked off “Never send a read receipt” in tools, options, and receipts ) **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
[TMIC] Depends and Poise
My mother-in-law in an assisted living facility nearby uses Depends briefs and Poise pads. They do add up even at the discount store. Does anyone buy them in bulk somewhere or know of a place to get a good price on them? Thanks, Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
[TMIC] Managing in winter
This may seem like an odd question here at the beginning of the summer, but my husband and I were talking about job situations and long-term possibilities and the like, and he made the comment that he never considered moving up North where there was a lot of snow because of my situation. It's true that when we do have snow and ice, which isn't too often here in SC, I pretty much am confined inside. I walk without a cane or walker, but my balance and footing aren't sure enough that I could walk where it is slippery. Though I love him for taking that into account, I hate that he is limited in that way. How DO some of you manage in wintry weather? Does just sprinkling rock salt on your driveway or front step help, or are there other things you do to cope, or do you just stay inside when it's slippery out? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] I am not receiving mail
It's not unusual for a really busy time on the list such as we have just had to be followed by a quieter time. Whenever I haven't heard anything from the list in a while I always check the archives (_http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html_ (http://www.mail-archive.com/tmic-list@eskimo.com/maillist.html) ) to see if anything came through but for whatever reason I haven't received it -- occasionally I have been inadvertently kicked off, as have others. But this is just a quiet time. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/10/2009 11:13:18 P.M. Eastern Daylight Time, camoa...@yahoo.com writes: Can anyone tell me what might be going on? Catherine **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004) inline: stat9691.jpg
Re: [TMIC] Honoring Pam
Oh, I didn't set up anything -- Jim did all that. I was just sharing my agreement. :-) Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/9/2009 11:17:29 A.M. Eastern Daylight Time, jmh1...@sbcglobal.net writes: Thanks Barbara, I should have known that you and Jim would set this up for us!! jan --- On Mon, 6/8/09, jharpe...@aol.com jharpe...@aol.com wrote: From: jharpe...@aol.com jharpe...@aol.com Subject: Re: [TMIC] Honoring Pam To: jlu...@eskimo.com, jmh1...@sbcglobal.net, tmic-list@eskimo.com Date: Monday, June 8, 2009, 9:09 PM I think that's a great idea. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/8/2009 8:43:42 P.M. Eastern Daylight Time, jlu...@eskimo.com writes: I setup this link you can use that goes through PayPal. TMA Donation In Memory of Pam Montz _http://www.myelitis.org/PamMontz _ (http://www.myelitis.org/PamMontz) Jim Lubin jlu...@eskimo.com _http://makoa.org/jim_ (http://makoa.org/jim) _ disAbility Resources: _ (http://www.myelitis.org/PamMontz) _http://www.makoa.org _ (http://www.makoa.org/) (http://www.myelitis.org/PamMontz) In a message dated 6/8/2009 5:21:55 P.M. Eastern Daylight Time, jmh1...@sbcglobal.net writes: Dear group, I'm sorry that my thinking is off right now, but this morning someone suggested we send money for reseatch in honor of Pam.my thought was that some yars ago we lost a very active helpful member named Roger.sorry I can't bring his last name up, but he was the one who did the info for our membership who needed Social Security Disability on the TMA site.anyway, I get off track, what I was going to suggest that any honoraium could be sent to the TMA in memory of Pam. That is our homebase for things tm and they know where the needs areit's self supporting organization headed by Sandy Siegel and would be a great place to honor Pam's memory!! Donations can be sent to:Paula Lazzeri, Treasurer At 02:29 PM 6/8/2009, jmh1...@sbcglobal.net wrote: Well, I hit the wrong button and sent what I hadn't finished, but knowing me helps you understand!! Paula Lazzeri, Treasurer 10105 167th Place NE Redmond, WA 98054-3125 I just read what I sent earlier and it sounds like I'd been imbibing for hours Point about Roger, was the TMA accepted my check in his memory, so I'm certain that they would gladly accept money in Pam's memory... I'd better quit while I seem to be making sense!! !!TIAD!! janh Stillwater, OK (http://www.makoa.org/) Download the _AOL Classifieds Toolbar_ (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004) for local deals at your fingertips. **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] I looked up Pam's obit for us
Thanks so much for finding it for us. I tried to find it a day or two ago but wasn't sure exactly where she was. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/9/2009 7:43:18 P.M. Eastern Daylight Time, alle...@aol.com writes: _E-mail_ (http://obits.nola.com/obituaries/nola/obituary-email.aspx?n=pamela-montzpid=128218443) _Pamela Montz_ (http://obits.nola.com/obituaries/nola/obituary.aspx?n=pamela-montzpid=128218443) MONTZ Pamela Montz at New Orleans, LA on Saturday, June 6, 2009. Beloved wife of Daniel P. Montz, Jr. Mother of Sean P. Montz. Mother-in-law of Bonnie Meyers Montz. Daughter of Richard W. Rholdon, Sr. and the late Janis Rholdon. Also survived by seven brothers and sisters, 4 grandchildren, 5 nieces and nephews and 1 great niece. Relatives and friends of the family are invited to attend the Funeral Service at Tharp-Sontheimer-Tharp, 1600 N. Causeway Blvd. at 43rd St., on Wednesday, June 10, 2009 at 12:00 noon. Interment in Greenwood Cemetery. Visitation on Wednesday, June 10, 2009 from 9:00 a.m. until 12:00 noon. For information, call 835-2341. Published in The Times-Picayune on 6/9/2009_Continue to death notice_ (http://obits.nola.com/obituaries/nola/obituary.aspx?n=pamela-montzpid=128218443 ) Ways to help * _View/Sign Guest Book_ (http://www.legacy.com/gb2/default.aspx?bookid=8718153035cid=full) * _Create Memorial Website_ (https://memorialwebsites.legacy.com/creatememorial.aspx?referrer=2linktype=8cid=no) * _Send Flowers_ (http://obits.nola.com/nola/deathnotices.asp?page=flowersandgiftspersonid=128218443) * _Donate to Charity_ (http://obits.nola.com/nola/deathnotices.asp?page=charitiespersonid=128218443) * _Funeral Home Details_ (http://obits.nola.com/obituaries/nola/obituary-funeralhome.aspx?fh=tharpsontheimertharp-funeral-homefhid=2616pid=1282 18443) hosted by Legacy.com A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/100126575x1221322977x1201367197/aol?redir=http:/ /www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Junestepsf ooterNO62) **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] PAM MY VERY LOVING WIFE
Dan, thanks so much for writing. As others have said so much more eloquently, as much as we feel the loss to the TMIC, we know your loss is even greater. Pam was a genuinely caring person and the TMIC was one of her passions. She will be greatly missed. Jude, I wouldn't wear the earrings either all the time or none of the time -- just as often as you feel like it, in special memory of Pam and her friendship. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/8/2009 7:56:37 A.M. Eastern Daylight Time, montzma...@aol.com writes: Thank you all so very, very, very much for writing back to _montzma...@aol.com_ (mailto:montzma...@aol.com) . I am sitting down reading all the wonderful mail about my wife Pam. I can,t stop crying!!! This has met so much to me. I do not think the friends of Pam Montz will ever know how much. I am a very simple man who never asked for much. My whole life has been Pam. I waited on her as much as i could and now this is gone,taken from me. Pam do you need a bottle water or some crushed ice and coke. You want me to brink you your pill box. What lean cuzine do you want for me to warn for you. I want to walmart and found this great buy on a nightgown . The dollar store guess what i found for you. Some nice coke glasses to enjoy your beverage of the day.It's Saturday Pam you want your shrimp and lobster sauce from the local Chinese restaurant? PAM YOU MUST READ YOUR FORTUNE COOKIE. .i feel so bad i let her down. She did not get the help she needed at the hospital as usual.We all thought Pam going into the hospital was a routine, she lose the strength in her legs and within 2 weeks be back up walking ok and doing home therapy.Yes she always lived in pain some days better than others. She was smart and knew her meds well. The wrong doctors were on call not her usual. I think, HELL I do not know what to think anymore I hashed it out over and over. Thank all of you!! Pam said if things get real bad on the bank account and we have tough times, One thing you will never take away from me is my computer She loved her TM friends writing.to her and writing back to them. I would come home from work sometimes and the door was locked having a arm full of stuff to bring in. The lights were off in the front room which i hated. I yell are you on the puter again? That was Pam. I do not know anyone on here but I PRAISE GOD YOU WERE THERE FOR HER!!! GOD BLESS ALL OF YOU! I KNOW PAM WOULD WANT ME TO SAY TIAD I LOVE YOU PAM , I LOVE YOU BABY WILL ALL MY HEART IT WILL BE IMPOSSIBLE WITHOUT YOU--DAN A Good Credit Score is 700 or Above. _See yours in just 2 easy steps!_ (http://pr.atwola.com/promoclk/100126575x1222585043x1201462775/aol?redir=http:/ /www.freecreditreport.com/pm/default.aspx?sc=668072hmpgID=62bcd=Junestepsf ooterNO62) **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] Honoring Pam
I think that's a great idea. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/8/2009 8:43:42 P.M. Eastern Daylight Time, jlu...@eskimo.com writes: I setup this link you can use that goes through PayPal. TMA Donation In Memory of Pam Montz _http://www.myelitis.org/PamMontz _ (http://www.myelitis.org/PamMontz) Jim Lubin jlu...@eskimo.com _http://makoa.org/jim_ (http://makoa.org/jim) _ disAbility Resources: _ (http://www.myelitis.org/PamMontz) _http://www.makoa.org _ (http://www.makoa.org/) (http://www.myelitis.org/PamMontz) In a message dated 6/8/2009 5:21:55 P.M. Eastern Daylight Time, jmh1...@sbcglobal.net writes: Dear group, I'm sorry that my thinking is off right now, but this morning someone suggested we send money for reseatch in honor of Pam.my thought was that some yars ago we lost a very active helpful member named Roger.sorry I can't bring his last name up, but he was the one who did the info for our membership who needed Social Security Disability on the TMA site.anyway, I get off track, what I was going to suggest that any honoraium could be sent to the TMA in memory of Pam. That is our homebase for things tm and they know where the needs areit's self supporting organization headed by Sandy Siegel and would be a great place to honor Pam's memory!! Donations can be sent to:Paula Lazzeri, Treasurer At 02:29 PM 6/8/2009, jmh1...@sbcglobal.net wrote: Well, I hit the wrong button and sent what I hadn't finished, but knowing me helps you understand!! Paula Lazzeri, Treasurer 10105 167th Place NE Redmond, WA 98054-3125 I just read what I sent earlier and it sounds like I'd been imbibing for hours Point about Roger, was the TMA accepted my check in his memory, so I'm certain that they would gladly accept money in Pam's memory... I'd better quit while I seem to be making sense!! !!TIAD!! janh Stillwater, OK (http://www.makoa.org/) **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] Pam
There is one on the TMA Member Photo Gallery here: _http://www.myelitis.org/gallery/displayimage.php?album=searchcat=0pos=0_ (http://www.myelitis.org/gallery/displayimage.php?album=searchcat=0pos=0) Another here: _http://www.myelitis.org/gallery/displayimage.php?pos=-609_ (http://www.myelitis.org/gallery/displayimage.php?pos=-609) This would be a good time to remind or tell new folks that there is such an album to look through and see fellow members' pictures and encourage people to submit theirs. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 6/8/2009 10:25:30 P.M. Eastern Daylight Time, jan...@centurytel.net writes: I received a picture of Pam on May 27. For those of you who are interested, you can go into the sent files. I do not know how to do that, but I bet most of you do. If someone does know how, how about putting her picture out so everyone can see her. She was lovely. Janice **Download the AOL Classifieds Toolbar for local deals at your fingertips. (http://toolbar.aol.com/aolclassifieds/download.html?ncid=emlcntusdown0004)
Re: [TMIC] Wii Fit
Hi Jan, I'm glad I inspired you! :-) I was afraid at first maybe it would be a waste of money because there are many of the exercises I can't do -- like anything involving standing on one foot.But there are plenty of things I can do with it that challenge me, and there are plenty of things my kids can do that challenge them even though they're younger and more fit and able than I am. The first time I used it I could barely do ten minutes. Then one day last week I had worked up to almost half an hour. The more you do with it, the more it unlocks new exercises, so it doesn't become old hat and boring. I'm enjoying it! I hope you are, too. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 5/27/2009 5:38:19 P.M. Eastern Daylight Time, jmh1...@sbcglobal.net writes: Barbara, You were my inspiration, or maybe you just 'pushed' me to get the Fit for our Wii... Thank you, though my first time on it wasn't pretty!! We'd talked about, but after they were out the first time Frank went to get one we just forgot and then your message.I'll need practice alot to get the balance test to say I'm doing OK!! jan --- On Tue, 5/26/09, jharpe...@aol.com jharpe...@aol.com wrote: I'm wondering if any other of the walking wounded have tried a Wii Fit? I just got one for Mother's Day (it's something I asked for).They place a lot of emphasis on balance, which I have trouble with. Hopefully there will be some improvement on that front! It has one exercise where you step on and off the board. Some years back I had tried low-impact step aerobics, but my knees couldn't handle the step. But the Wii board is low enough that it is no problem. So far it's pretty fun, though I am not placing well as far as scores go. But at this point I'm just trying to get some kind of movement and activity in, whether I make big scores or not. But even my younger and more active sons enjoy it. I didn't think it would be challenging enough for them, but it is. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) We found the real 'Hotel California' and the 'Seinfeld' diner. What will you find? _Explore WhereItsAt.com_ (http://www.whereitsat.com/?ncid=emlwenew0004) . **We found the real ‘Hotel California’ and the ‘Seinfeld’ diner. What will you find? Explore WhereItsAt.com. (http://www.whereitsat.com/#/music/all-spots/355/47.796964/-66.374711/2/Youve-Found-Where-Its-At?ncid=eml cntnew0007)
[TMIC] Wii Fit
I'm wondering if any other of the walking wounded have tried a Wii Fit? I just got one for Mother's Day (it's something I asked for).They place a lot of emphasis on balance, which I have trouble with. Hopefully there will be some improvement on that front! It has one exercise where you step on and off the board. Some years back I had tried low-impact step aerobics, but my knees couldn't handle the step. But the Wii board is low enough that it is no problem. So far it's pretty fun, though I am not placing well as far as scores go. But at this point I'm just trying to get some kind of movement and activity in, whether I make big scores or not. But even my younger and more active sons enjoy it. I didn't think it would be challenging enough for them, but it is. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **We found the real ‘Hotel California’ and the ‘Seinfeld’ diner. What will you find? Explore WhereItsAt.com. (http://www.whereitsat.com/?ncid=emlwenew0004)
Re: [TMIC] test
Whenever I think I imght have missed some messages, I check out the archives at _http://www.mail-archive.com/tmic-list%40eskimo.com/maillist.html_ (http://www.mail-archive.com/tmic-list@eskimo.com/maillist.html) Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/16/2009 11:10:26 P.M. Eastern Daylight Time, jan...@centurytel.net writes: How do we know if we miss several of them?I would just think people were not being very active on the web.Silly me. Janice **Recession-proof vacation ideas. Find free things to do in the U.S. (http://travel.aol.com/travel-ideas/domestic/national-tourism-week?ncid=emlcntustrav0002)
[TMIC] May Birthdays
Happy birthday to all the May kids, and may you have a great day! Please send any additions or corrections to _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) . 5/5/47 Linda Garrett (_limoga43...@yahoo.com_ (mailto:limoga43...@yahoo.com) ) 5-9-53 Lynn - Rhode Island (_lrm...@cox.net_ (mailto:lrm...@cox.net) ) 5-11-46 Lynn (_roseofr...@aol.com_ (mailto:roseofr...@aol.com) ) May 11,1939 Jim Belz (_cjb...@aol.com_ (mailto:cjb...@aol.com) ) 5-12-46 _mother...@msn.com_ (mailto:mother...@msn.com) 5-12-43 Mary Woods (_misssy...@webtv.net_ (mailto:misssy...@webtv.net) ) 5- 19 Maureen Wroblewski Hallagan (_walterhalla...@msn.com_ (mailto:walterhalla...@msn.com) ) 5- 26-62 Maria in Tonawanda (_mtripim...@aol.com_ (mailto:mtripim...@aol.com) ) 5/27/51 Jim (_wv...@aol.com_ (mailto:wv...@aol.com) ) 5/31/66 Wendy Wood (_ww...@optonline.net_ (mailto:ww...@optonline.net) ) **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
[TMIC] Spironolactone -- diuretics
My doctor put me on Spironolactone as a diuretic -- I'd had some swelling in my lower legs and other diuretics contain sulfa, which I am allergic to. At first I thought, Oh, great...I go to the bathroom so often as it is, I'll just live in there now. But it actually seemed to help. I still go pretty often but I go more when I do. I think I must have been retaining urine without realizing it. I knew I was right after TM, but it seemed like it had gotten significantly better over the years -- but I think I still must have been retaining a little. So I was surprised that the Spironolactone helped. Has anyone else had that experience with diuretics? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] Spironolactone -- diuretics
No, I don't cath. I haven't really needed to since the first few days of TM. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/1/2009 11:42:41 P.M. Eastern Daylight Time, jan...@centurytel.net writes: Barbara, Haven't tried a diuretic, but I still cath twice a day so I know I am not retaining any urine.Do you cath? Janice - Original Message - From: _jharpe...@aol.com_ (mailto:jharpe...@aol.com) To: _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Friday, May 01, 2009 7:48 PM Subject: [TMIC] Spironolactone -- diuretics My doctor put me on Spironolactone as a diuretic -- I'd had some swelling in my lower legs and other diuretics contain sulfa, which I am allergic to. At first I thought, Oh, great...I go to the bathroom so often as it is, I'll just live in there now. But it actually seemed to help. I still go pretty often but I go more when I do. I think I must have been retaining urine without realizing it. I knew I was right after TM, but it seemed like it had gotten significantly better over the years -- but I think I still must have been retaining a little. So I was surprised that the Spironolactone helped. Has anyone else had that experience with diuretics? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) Access 350+ FREE radio stations anytime from anywhere on the web. _Get the Radio Toolbar_ (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003) ! **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] transverse myelitis
Ouch, Heather!! I'm glad it wasn't any worse, but I imagine you'll feel pretty sore. It's strange how parts of our bodies don't turn or move how we're expecting them to sometimes. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 4/19/2009 11:21:18 P.M. Eastern Daylight Time, pieterheat...@shaw.ca writes: Well, talking about feet. I guess I should say that I don't always watch my feet. Tonight would have been a good time to watch my feet but don't think it would have helped my situation. We drove into our driveway after being at the grandsons first birthday party. Husband lets me out on the driveway as we park two cars in the garage. I got out. My right foot (which is my weak foot) goes out first, followed by me turning my body, putting my left foot out and hoisting myself with my cane etc. I stood up (or tried to, like I usually do). Howevermy right foot remained firmly (and I mean firmly) planted. I moved. My right foot didn't. I was enough out of the car that I shut the car door. Then BAM...down I went. Onto my right hip, side etc. Hubby (thank goodness) couldn't figure out where I moved to so fast. (do any TMer's move fast?) Fortunately he realized that I 'moved too fast'. He got out of the car and there I was. Flat on my side. On the driveway. with my cane and purse with me. Glad he didn't try and drive into the garage. Not sure how much of me was near the car. So..not too sure if looking at my feet would have helped. Haven't had that happen for a while, that my right foot doesn't want to go when I want to. It used to happen quite often. So Pieter had to help me stand up. That is my story and I'm sticking to it. Now I just have to wait and see if I end up with a big bruise on my right hip and see if my right foot will be swollen tomorrow. Hope everyone else had a good weekend. The wee grandson had a good birthday and ate his first taste of chocolate cake. Too cute. Heather in Calgary - Original Message - From: pjv1...@chartermi.net To: tmic-list@eskimo.com; Betty Shaffer vasso...@gmail.com Sent: Sunday, April 19, 2009 6:33 PM Subject: Re: [TMIC] transverse myelitis Hi Betty Welcome to our on-line TM family. I was diagnosed in 2003 at age 53 at C4-C6. I also have balance problems and just gave in to using a walker during a short vacation. I was surprised that I was able to walk and enjoy looking at something besides my feet. I hadn't thought about the seat problem, however, your right - I look and touch before I sit. I think we TMers have trust issues. We just don't trust much of anything that has to do with where we are or where we're going to be in the next few seconds! Patti - Michigan Betty Shaffer vasso...@gmail.com wrote: I'm a new subscriber to the TM internet club and find the messages interesting. I was diagnosed with T.M. ( Cl and C 2 level) in 2004 at the age of 77. Numb from my toes up to and inclucing my neck, I rar3ly feel pain but have much discomfort from the banding, especially in my torso and neck. I walk well with a walker, but need my eyes to tell me where my feet ( and seat) are. Without the walker , balance is a problem. Anybody have problems similiar to those ? I live in a retirement home where I'm able to walk and to exercise 5 days a week, and I know this helps. There is no support group in the area Betty in Oregon **Access 350+ FREE radio stations anytime from anywhere on the web. Get the Radio Toolbar! (http://toolbar.aol.com/aolradio/download.html?ncid=emlcntusdown0003)
Re: [TMIC] Balance
Yes, that's one of my continuing problems. My balance is worse when standing still (even with eyes open) than walking, though I sometimes lose balance while walking, too. When I was taking physical therapy, my PT had a name for that, but I don't remember what it was. She had me stand on a pillow with my eyes closed and lean as far as I could in one direction and then another while she stood by to catch me if I fell (don't try this at home alone!!!) It's improved, but it is still a factor. Sometimes at church a larger group will be singing across on stage just holding their music, and I think, I could never do that! I ended up leaving choir because I felt like I couldn't keep my balance. Having some reference point helps -- the back of my legs touching a chair or just touching a table or the wall. I don't need to hold on to or lean on something, usually -- just have something to touch. Barbara H. _http://barbarah.wordpress.com_ (http://barbarah.wordpress.com) In a message dated 4/14/2009 9:25:04 A.M. Eastern Daylight Time, mother...@gmail.com writes: P. S. I cannot close my eyes and balance myself. I get dizzy.. anyone else??? **The Average US Credit Score is 692. See Yours in Just 2 Easy Steps! (http://pr.atwola.com/promoclk/100126575x1221421325x1201417411/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26h mpgID%3D62%26bcd%3DAprilAvgfooterNO62)
[TMIC] April Birthdays
There is a short list for April! But that just means more cake for all of you! Happy Birthday! Please send any additions or corrections to _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) . 4-1 Ken (_kenoliver...@hotmail.com_ (mailto:kenoliver...@hotmail.com) ) 4-14 Kris (_rizahdo...@aol.com_ (mailto:rizahdo...@aol.com) ) 4/18 Bernard Butcher (_bernie.butc...@honeywell.com_ (mailto:bernie.butc...@honeywell.com) ) 4/20 Dianna (_carg...@cs.com_ (mailto:carg...@cs.com) ) 04/20 Todd Tarno (_toddtm2...@sbcglobal.net_ (mailto:toddtm2...@sbcglobal.net) ) 4/21 Robert Diehl (_sawmil...@verizon.net_ (mailto:sawmil...@verizon.net) ) 4-25 Shelia (_sc...@aol.com_ (mailto:sc...@aol.com) ) **New Low Prices on Dell Laptops – Starting at $399 (http://pr.atwola.com/promoclk/100126575x1220631247x1201390185/aol?redir=http:%2F%2Fad.doubl eclick.net%2Fclk%3B213540506%3B35046329%3Bx)
Re: [TMIC] Embrionic Stem Cell Discussion
Jim, I am with you completely in this and the other posts you have written on this issue, and I believe your words carry much weight precisely because of the position you are in physically. Terri Schiavo's case horrified me, that people could not discern the difference between turning off the life support of someone who is brain dead vs. actively starving someone who had a loving family who wanted to care for her. And, by the way, you're one of the most productive members of society that I know. :-) Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/26/2009 8:08:24 P.M. Eastern Daylight Time, jlu...@eskimo.com writes: They are just going to throw those unused blastocysts away only because someone is making the choice to do so. After they are created they remain frozen indefinitely until a decision is made by someone to remove them from their frozen state. I've seen the argument be made that they are going to die anyway so why not use them to help others, such as organ donation. I started thing about that reasoning a few years ago. As someone who is only being kept alive by a ventilator breathing for me I began thinking that someone could decide that if I was taken off the ventilator I would die anyway so why not use my organs to better someone else's life. Someone might decide that my heart, my liver, my lungs would be better used by someone else who might be more important or more productive, less of a burden cost wise, to society. I am not an organ donor. Remember the Terri Schiavo case in 2005? It was a big topic on the vent-users list. Her husband claimed she was in a Persistent vegetative state, her family said she was not. The media kept saying they want to remove her from life support. She was not on life support, she had a feeding tube. Big difference. A ventilator is life support. Her feeding tube was removed and she was starved to death because nutrition was withheld. It was very scary to everyone who is on life support they way people were fighting to get her feeding tube removed. If people felt so strongly about her being removed what about us? I believe that human life begins at conception and that those blastocytes should be protected until natural death. Use them what they were created for or keep them frozen (i.e. on life support). I don't think these blastocytes should have been created in the first place, if a couple can't have a baby without intervention then it's not meant to be. That's just what I believe. Obviously it's legal so the world doesn't operate the way I believe. Jim At 10:24 AM 3/26/2009, Westgold wrote: They just throw those unused blastocytes in the garbage, they end up in some medical waste dump somewhere. Would you rather than that, than see those cells being used to help cure a lot of horrible diseases? You say that you support organ donation -- isn't giving these blastocytes a chance to help save somoene's life similar to organ donation? Don't you think they would rather do some good with whatever life they have, rather than just be thrown in a dump? Jim Lubin jlu...@eskimo.com _http://makoa.org/jim_ (http://makoa.org/jim) disAbility Resources: _http://www.makoa.org _ (http://www.makoa.org/) **Free Credit Report and Score Tracking! Get it Now for $0 at CreditReport.com. (http://pr.atwola.com/promoclk/100126575x1220474599x1201401934/aol?redir=http:%2F%2Fwww.creditreport.com%3Fsrc%3Daolemail%26kwd%3Dmlftrtextlin k)
Re: [TMIC] stem cell (OT?)
Mindy, by that logic, a baby who needed life support at birth would not be entitled to it. I've known many families of children born prematurely who needed a great deal of help at first, but who grew and thrived with help, including ventilators. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/25/2009 8:27:24 P.M. Eastern Daylight Time, we4king...@verizon.net writes: My experience also led me to the conclusion that a life that cannot survive outside the mother is not entitled to citizenship rights equal to that of the mother until it is mature enough to survive once the umbilical cord is cut (or has turned 18, which ever comes first). Mindy the Artist **Free Credit Report and Score Tracking! Get it Now for $0 at CreditReport.com. (http://pr.atwola.com/promoclk/100126575x1220474599x1201401934/aol?redir=http:%2F%2Fwww.creditreport.com%3Fsrc%3Daolemail%26kwd%3Dmlftrtextlin k)
Re: [TMIC] stem cell (OT?)
Thanks for the clarification. Just taking the statement at face value it sounded different. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/27/2009 12:58:11 P.M. Eastern Daylight Time, we4king...@verizon.net writes: I'm not implying that at all. I just didn't go into that definition for the sake of brevity. The light hearted comment about turning 18 meant that every child takes a tremendous amount of life support to raise. but if you insist on a definition: I believe that any infant who is alive at the time of onset of labor (whether natural or surgical) is entitled to what ever life support we have to offer. In some cases like ancephaly there are hard choices for parents to make. But I am sharing my views and not writing a policy that will be used to make life and death decisions beyond my own family. Mindy the Artist On Mar 27, 2009, at 9:03 AM, _jharpe...@aol.com_ (mailto:jharpe...@aol.com) wrote: Mindy, by that logic, a baby who needed life support at birth would not be entitled to it. I've known many families of children born prematurely who needed a great deal of help at first, but who grew and thrived with help, including ventilators. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/25/2009 8:27:24 P.M. Eastern Daylight Time, _we4king...@verizon.net_ (mailto:we4king...@verizon.net) writes: My experience also led me to the conclusion that a life that cannot survive outside the mother is not entitled to citizenship rights equal to that of the mother until it is mature enough to survive once the umbilical cord is cut (or has turned 18, which ever comes first). Mindy the Artist Free Credit Report and Score Tracking! Get it Now for $0 at _CreditReport.com_ (http://pr.atwola.com/promoclk/100126575x1220474599x1201401934/aol?redir=http://www.creditreport.com?src=aolemailkwd=mlftrtextlink) . = **Check all of your email inboxes from anywhere on the web. Try the new Email Toolbar now! (http://toolbar.aol.com/mail/download.html?ncid=txtlnkusdown0027)
Re: [TMIC] stem cell (OT?)
Gary, thanks so much for this. I cringed, too, when I saw the former president characterized this way. I don't mind civil discussions of differences of opinions, but name-calling of anyone should not be a part of the process. There are many things I disagree with the current president about, but I would never call him names out of respect for his position. I appreciated Deb's clarifications. Nevertheless, there has been great, promising research using adult stem cells. One article is here: _http://www.sciencedaily.com/releases/2008/06/080606102603.htm_ (http://www.sciencedaily.com/releases/2008/06/080606102603.htm) And another article about the man who began stem cell research (and who did use an embryo then) is here: _http://www.nytimes.com/2007/11/22/science/22stem.html?_r=1_ (http://www.nytimes.com/2007/11/22/science/22stem.html?_r=1) Even he says in the article, 'If human embryonic stem cell research does not make you at least a little bit uncomfortable, you have not thought about it enough,” he said, and he has found ways to do it now without embryos. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/25/2009 12:12:01 P.M. Eastern Daylight Time, dca...@earthlink.net writes: I will make just a short statement regarding this, as I do not wish to become involved in a debate. Dr. Kerr has stated in all of his talks that the BIGGEST mistake in the very beginning was to even give it the name embryonic stem cells. They are NOT embryos. They are NOT aborted fetuses. They are blastocysts - only two cells that could not ever survive outside of a petri dish on their own. Because the scientists made this mistake in the beginning of giving it the name embryonic stem cell, all of the right-to-life people came out and attacked this research from the git-go. If you view the talks from all of our symposia at _http://www.myelitis.org/events.htm_ (http://www.myelitis.org/events.htm) and listen carefully to Dr. Kerr's talks on stem cell research, you will have better knowledge of this. Regarding the idea of going out of the country to receive treatments, Dr. Kerr has also discussed this. The research is there, but the follow-up on the patients is lacking, so they have no record of how the patients did AFTER they left the country to go back home. Take care, Debbie - Original Message - From: _gbthomas8...@sbcglobal.net_ (mailto:gbthomas8...@sbcglobal.net) To: _Westgold_ (mailto:westg...@interlog.com) ; _Amanda Diskey_ (mailto:adis...@yahoo.com) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Wednesday, March 25, 2009 8:05 AM Subject: Re: [TMIC] stem cell (OT?) Our former president, George W. Bush, so disrespectfully referred to on this list as dumdum, was simply against the use of our tax money for embryonic stem cell research in consideration for those opposed, on moral grounds, to the use of aborted fetuses. Stem cell research was not stopped. It has widely been proclaimed (even on this list) that adult stem cell research has actually been more successful than embryonic cell research. _http://www.stemcellresearchfacts.com/_ (http://www.stemcellresearchfacts.com/) What should be of concern is the attitude, manifest in the new presidential administration, of disregard for sanctity of life. Surely such thinking in our governmental leadership would tend to provoke questioning as to compassion for TM'ers, especially those in adult years. Rather an irony-- a claim to compassion to help the suffering yet being quick to reinstate tax money for research which gives a boost to the abortion industry! I am not, by far, as learned as I would like to be on this subject, but just wish to include the opposite side to those who seem to hear that fetal embryonic research is the only answer to finding relief for those suffering from conditions such as ours (and, of course, worse). Gary in Michigan - Original Message - From: _Westgold_ (mailto:westg...@interlog.com) To: _Amanda Diskey_ (mailto:adis...@yahoo.com) ; _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, March 24, 2009 2:25 PM Subject: Re: [TMIC] stem cell Hi -- there have been many success stories all over the world with stem cells, I am so glad our new president decided to let the researchers get back to it in a big way. You can google stem calls + various diseases, or stem cells + success, etc, and you'll get a lot of stuff. There were twin girls who went to China for stem cells a couple years ago, and they were helped tremendously. You used to be able to find their stories by googling stem cells + twins + Toronto -- try that. I personally believe that now that the research is back under way full steam, we will be seeing amazing things happening in just a year or two. Too bad those 8 years of
Re: [TMIC] Testing
That has happened to me a number of times. I don't know why it happens. Welcome back! Barbara H. In a message dated 3/23/2009 11:42:53 A.M. Eastern Daylight Time, ladyno...@aol.com writes: I was kicked off the list up and had to re subscribe. Naomi C-4 Quadriplegic, since July 2, 2005 Due to Transverse Myelitis Feeling the pinch at the grocery store? _Make dinner for $10 or less_ (http://food.aol.com/frugal-feasts?ncid=emlcntusfood0001) . **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1219858252x1201366219/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DMarchfooterNO62)
Re: [TMIC]
Jeanne is right. There is so much going on when someone has surgery, and I'm sure Jude is in no condition to write just now and needs her husband there with her. I'm sure someone will let us know something as soon as possible. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/21/2009 12:46:47 P.M. Eastern Daylight Time, jrush...@columbiaenergyllc.com writes: I think someone will let us know as soon as they find out themselves, Janice. We're all anxiously awaiting! Hugs..Jeanne ---Original Message--- From: _Janice_ (mailto:jan...@centurytel.net) Date: 3/21/2009 11:30:23 AM To: _transverse myelitis_ (mailto:tmic-list@eskimo.com) Subject: [TMIC] Why haven't I heard about Jude? How did she do with the surgery? JANICE **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220863691x1201421954/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DMarchfooterNO62)
Re: [TMIC] Levothyroxine Sodium 50mg
I would get a second opinion on the Levothyroxine Sodium. I take it (125 mcg), but that's because I had half my thyroid removed about 19 years ago due to a benign nodule on it. Incidentally, I had a horrible digestive reaction to the generic, which I think this is, vs. the name brand Synthroid. One astute doctor asked me if I had any changes in prescriptions when I was having these symptoms, and I almost said no, when I realized I had started this new generic. I had been taking Synthroid for years with no problems, even the generic kind, but when I compared the dates, my digestive symptoms started when I started this version, We switched to the name brand, and then I was fine. Lots of people use it with no problems, but my body chemistry just didn't mesh with it. I think what he prescribed is a low dosage (Frank, correct me if I am wrong on that), so you could try it and see what happens. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1219850974x1201371016/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62)
[TMIC] Mottos
Trudy said in the How to Dance in the Rain thread, When I was first injured someone I had never met sent me a book called You Gotta Keep Dancin by Tim Hansel That's my motto! I fall down, I get up and I keep on dancing!!! For some reason that brought to mind something that's often said at our house. I still have balance issues, so sometimes I'll be swaying almost too far over, and my oldest son will say, Stay upright! And I'll say, That's one of my goals in life! I thought it would be fun to share -- anyone else have any mottos or regular sayings around your house? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1220439616x1201372437/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62)
[TMIC] Missing
Evidently I was somehow inadvertently unsubscribedagain. I know sometimes the list is quiet, but it hit me it had been several days since anything had come through from TMIC. I can't get in the archives to see what I've missed -- I keep getting a Problem loading page message. I'll try it again later. If anyone has sent me an update for the birthday list since Friday, please send it again. Thanks! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1219671244x1201345076/aol?redir=http:%2F%2Fwww.freecreditreport.com%2Fpm%2Fdefault.aspx%3Fsc%3D668072%26hmpgID %3D62%26bcd%3DfebemailfooterNO62)
Re: [TMIC] For you MSr's
I think that's excellent. The only word I have a little trouble with is imposing -- Individuals who insist on imposing their own beliefs on discussions risk alienating others whose beliefs differ. I agree completely with that statement, but I have experienced sometimes people thinking I am imposing my beliefs when I am just sharing them. But I don't know if there is a better way to word it. I think readers just have to take things in that vein-- that anything shared is the individual's own perspective and what each individual believes is his or her own choice. Barbara H. in SC where we have 5 inches of snow (a big deal for us :-) ) _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/1/2009 11:24:26 P.M. Eastern Standard Time, we4king...@verizon.net writes: Hi all, if it were up to me (and I know that it's not!) this is how I would write such a policy: Transverse Myelitis is a disease, which strikes without mercy or regard to sex, race, nationality, religious belief and political affiliation. It’s impact reaches into every area of our lives, from our relationships with family and friends, to our physical, mental, and emotional well being, and to our spiritual lives in ways few of us could have ever imagined. For some of us Tm brings about a renewal of faith and for others a crisis, still others find no connection between this disease and spiritual matters. A great many of us discover that a re-examination of our beliefs is part of our journey. For those of us who do have faith, its aspects: readings, meditations, prayers, rituals and communities are as fundamental to our recovery and survival as our medications and therapies. If we are to fully help each other in coping with this disease and it’s aftermath, spiritual discussions are at times unavoidable. But for our group’s purpose, there is no affiliation with any one religion or doctrine. Individuals who insist on imposing their own beliefs on discussions risk alienating others whose beliefs differ and this diminishes our service to each other. In the same way that each one of us takes away suggestions of products, medications and therapies that we think may be helpful and disregards the rest, so should it be with spiritual discussions. As for politics: there is no place for such discussions here as our members come from many nations. However, notices of pending legislation(s), which directly impacts this disease and its sufferers, may be posted. Our sole purpose is to help each other and there is no support when tempers flare and condemnations rather than sympathies are expressed. copywrite 2009 Mindy King Mindy the Artist On Mar 1, 2009, at 9:09 AM, _heyjude48...@aol.com_ (mailto:heyjude48...@aol.com) wrote: Trudy and Mindy, I believe that what you are suggesting regarding a way to share religious discussions in a manner that would respect each of us and our individual and shared beliefs is just a wonderful idea. I have long wanted to express the way I feel about Prayer and the Father, Son and Holy Ghost. Prayer works, regardless of who or what we Pray to as long as it is done in a pleasing manner to Our Father. There would probably have to be some ground rules. Maybe a small committee could be formed to address the issues that may come up, as they do in any large group. We always need organization, blah, blah, blah. It is a good thing. It's time for me to get off of the computer. I love and Pray for you all. Jude In a message dated 2/28/2009 3:48:14 P.M. Eastern Standard Time, _mother...@msn.com_ (mailto:mother...@msn.com) writes: Mindy So much of what you shared is exactly where I am at. I cannot organize my thoughts. It's awful, and my memory is totally gone! I take a drug called sanctura for incontinence and I'm not sure it's worth it. Also I hear that copaxone is another drug that causes memory loss. It's been 7 yrs now and my friends and family have finally begun to understand how fatigue is such an incredible factor in this disease. My husband is awesome but it all takes awhile. I also agree with you on the religion. I wonder if we just make sure we put OT-Religious Content in our Subject area, those of us who wish to share our spiritual side can do so. I think that would be great. I wouldn't mind asking Jim Lubin if that's acceptable to him??? I agree, I think we are missing out on a very crucial part of who we are! Our spiritual side And we would be adamant that all religions are welcome as long as we respect each other and no evangelizing. Just my thoughts, meanwhile know you are in my prayers. Hang tough!! Trudy Worrying does not empty tomorrow of its troubles; It empties today of its strengths. Date: Sat, 28 Feb 2009 11:42:01 -0800 From: _jmh1...@sbcglobal.net_ (mailto:jmh1...@sbcglobal.net) Subject: Re: [TMIC]
[TMIC] February birthdays
Happy Birthday to the February kids! Hope it's a great one! Please send any additions or corrections to _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) . 2-1 Jeanne Rushton (_jrush...@columbiaenergyllc.com_ (mailto:jrush...@columbiaenergyllc.com) ) 2/2 Ursula (_uma...@t-online.de_ (mailto:uma...@t-online.de) ) 2/2 Lisa in TN (_lsim...@aol.com_ (mailto:lsim...@aol.com) ) 2-5 Tita in Delaware (_te...@flash.net_ (mailto:te...@flash.net) ) 2-6 Barbara Alma (_balmat...@aol.com_ (mailto:balmat...@aol.com) ) 2-7 Barbara in Texas (_babbsie1...@yahoo.com_ (mailto:babbsie1...@yahoo.com) ) 2-9 Frank (_ftrascr...@aol.com_ (mailto:ftrascr...@aol.com) ) 2/11 Mary (_mster...@yahoo.com_ (mailto:mster...@yahoo.com) ) 2-11 Deb Casey (_casey...@myway.com_ (mailto:casey...@myway.com) ) 2/15 Jill (_jillybean60...@yahoo.com_ (mailto:jillybean60...@yahoo.com) ) 02/16 David T. Gibson (_david-gib...@uiowa.edu_ (mailto:david-gib...@uiowa.edu) ) 2/16 Diane Aja (_diane...@comcast.net)(returned_ (mailto:diane...@comcast.net)(returned) ) 2-17 JOAN FINK (_mafi...@yahoo.com_ (mailto:mafi...@yahoo.com) ) 2-20 Norma (_dgti...@aol.com_ (mailto:dgti...@aol.com) ) 21/02 Phyllis Pollock (_pjpoll...@rogers.com_ (mailto:pjpoll...@rogers.com) ) 2/26 Patti - Michigan (_pjv1...@chartermi.net_ (mailto:pjv1...@chartermi.net) ) 2/27 Cindy (_rdavi...@san.rr.com_ (mailto:rdavi...@san.rr.com) ) **Great Deals on Dell Laptops. Starting at $499. (http://pr.atwola.com/promoclk/10075x1217883258x1201191827/aol?redir=http://www.dell.com/co ntent/products/features.aspx/laptops_great_deals#63;c=us%26cs=19%26l=en%26s=d hs%26#126;ck=anavml)
Re: [TMIC] Bladder control
Bladder problems are very much a part of TM, but that sounds like symptoms of prostrate problems as well. Definitely should get it checked out. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 1/29/2009 9:40:39 A.M. Eastern Standard Time, sally.wilkin...@genesisdesign.uk.com writes: Hi Guys Am I right in thinking that bladder control can be an issue with TM? My TM husband thinks its not, and that his visits to the loo 7-10 times a night and needing to suddenly pee urgently at any time have nothing to do with his TM! Kind regards Sally in the UK Sally Wilkinson Business Development Manager Genesis Design The Barn Ipsden Oxfordshire OX10 6AS +44(0)1491 682277 _sally.wilkin...@genesisdesign.uk.com_ (mailto:sally.wilkin...@genesisdesign.uk.com) **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] Surgery Update on Kim
Thanks so much for the update, Jenna!! Barbara H. In a message dated 1/26/2009 4:45:12 P.M. Eastern Standard Time, jkste...@yahoo.com writes: Kim is out of surgery. Everything went really well. Her strength is really good in her arms again. Since she is in a wheel chair and uses a walker that is very important. Depending on how she is feeling she might be able to go home tomorrow afternoon, or the day after for sure. Thanks for all the wonderful thoughts and prayers. If you have any questions let me know I don't she will be online tonight. Jenna **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] Re: Jude in hospital
I am so sorry to hear about this. I have been and will be praying for her. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 1/20/2009 11:24:54 P.M. Eastern Standard Time, cherp...@msn.com writes: Hello everyone, it's Linda. I received a call tonight from Pam. Jude's husband called Pam to let her know that Jude's blood pressure went very low, she is very weak and with her infection she was admitted to the hospital. Her husband was very tired and on his way to bed so this is all the information that was given. He did want to make sure that this was posted to the list. He is going back to the hospital early in the morning. You are in our thoughts and prayers, dear Jude. **A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/10075x1215855013x1201028747/aol?redir=http://www.freecreditreport.com/pm/default.aspx?sc=668072%26hmpgID=62%26bcd=De cemailfooterNO62)
Re: [TMIC] Re: tmic-digest Digest V2009 #3
I am so very sorry to hear about Rick's son, Patti's nephew, and Mindy's father-in-law. This is a rough time of year to lose anyone -- though it is never a good time to lose someone. My thoughts and prayers are with you. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom0026)
[TMIC] January birthdays
Happy Birthday to the January kids! Happy Birthday and Happy New Year! Please send any additions or corrections to _tmic-l...@eskimo.com_ (mailto:tmic-list@eskimo.com) . 1- 7 Lauren (_sugal...@adelphia.net_ (mailto:sugal...@adelphia.net) ) 1/8 Nancy Williams (_willj...@aol.com_ (mailto:willj...@aol.com) ) 1-8 Sandi (_sam...@fidmail.com_ (mailto:sam...@fidmail.com) ) 1/9 Julienne (_julesin...@aol.com_ (mailto:julesin...@aol.com) ) 1/13 Debi (_brade...@hotmail.com_ (mailto:brade...@hotmail.com) ) 1-17 Jenna Stentz (_jkste...@yahoo.com_ (mailto:jkste...@yahoo.com) ) 1/20 Kay Cole (_...@cole.gen.nz_ (mailto:k...@cole.gen.nz) ) 1-21 Blaine Frye (_xring...@mwt.net_ (mailto:xring...@mwt.net) ) 1/21 Carol Easterday _snow121...@hotmail.com_ (mailto:snow121...@hotmail.com) 1/23 Patti Dotson (_ll...@aol.com_ (mailto:ll...@aol.com) ) 1-27 Pat S. (_w2sm...@aol.com_ (mailto:w2sm...@aol.com) ) 1-28 Holly (_r...@aol.com_ (mailto:r...@aol.com) ) 1-28 Sally (_thenavigato...@aol.com_ (mailto:thenavigato...@aol.com) ) 1/30 Cora (_ceckenb...@wildblue.net_ (mailto:ceckenb...@wildblue.net) ) **New year...new news. Be the first to know what is making headlines. (http://www.aol.com/?ncid=emlcntaolcom0026)
Re: [TMIC] NEW YEAR!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Happy New Year to you all, too! Someone sent me this a few years ago I thought I'd share with you -- the author is unknown: New Year’s Greetings! May you get a clean bill of health from your dentist, our cardiologist, your gastro-endocrinologist, your urologist, your proctologist, your podiatrist, your psychiatrist, your gynecologist, your plumber and the IRS. May your hair, your teeth, your face-lift, your abs and your stocks not fall; and may your blood pressure, your triglycerides, your cholesterol, your white blood count and your mortgage interest not rise. May you find a way to travel from anywhere to anywhere in the rush hour in less than an hour, and when you get there may you find a parking space. May Sunday evening, December 31, find you seated around the dinner table, together with your beloved family and cherished friends, ushering in the new year ahead. You will find the food better, the environment quieter, the cost much cheaper, and the pleasure much more fulfilling than anything else you might ordinarily do that night. May you wake up on January 1st, finding that the world has not come to an end, the lights work, the water faucets flow, and the sky has not fallen. May you ponder how did this ultramodern civilization of ours manage to get itself traumatized by a possible slip of a blip on a chip made out of sand. May what you see in the mirror delight you, and what others see in you delight them. May someone love you enough to forgive your faults, be blind to your blemishes, and tell the world about your virtues. May the telemarketers wait to make their sales calls until you finish dinner, and may your check book and your budget balance and may they include generous amounts for charity. May you remember to say “I love you” at least once a day to your spouse, your child, your parents, your friends; but not to your secretary, your nurse, your masseuse, your hairdresser or your tennis instructor. May we live as God intended, in a world at peace and the awareness of His love in every sunset, every flower’s unfolding petals, every baby’s smile, every lover’s kiss, and every wonderful, astonishing, miraculous beat of our heart. A Very Happy New Year to All! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 12/31/2008 8:42:13 A.M. Eastern Standard Time, montzma...@aol.com writes: ANOTHER YEAR IS HERE MY OH MY! 2008 JUST FLEW BYE WE ALL HAVE HAD PROBLEMS IT DOES NOT SEEM FAIR WHO EVER SAID LIFE WAS FAIR! ITS HARDER ON MANY OF US OTHERS NOT SO MUCH I TAKE IT DAY BY DAY THATS WHAT I HAVE LEARNED!!! WE CANNOT LIVE IN THE PAST BUT THE FUTURE IS IN OUR CONTROL WE HAVE OUR FAMILY AND FRIENDS SOME JUST HAVE THE LIST!!! THIS LIST IS PRECIOUS REALLY ITS A GOD GIVEN GIFT HELPED BY MR. LUBIN THERE WOULD NOT BE ANY LIST!! I THANK GOD EVERYDAY FOR HAVING THIS WONDERFUL LIST ITS SO INFORMATIVE TO EVERYONE ON IT I DO NOT KNOW WHAT I WOULD DO IF THERE WAS NO LIST!!! OUR TM FAMILY IS SUCH A HELP WE KNOW WHAT WE GO THRU WE SHARE THINGS PERSONAL OUTSIDE THE LIST WE CANNOT DO EVERYONE DOES NOT UNDERSTAND BUT WE DO!! SO LETS BE GREATFUL! WE HAVE THIS SPECIAL BOND 2009 IS TOMORROW LIFE WILL GO ON!! I WISH YOU ALL THE BEST! I THINK OF YOU ALL WE ALL WILL BE BLESSED LETS NOT FORGET GOD IS WATCHING OVER US ALL! HAPPY NEW YEAR EVERYONE TIAD PAM! HAPPY NEW YEAR EVERYONE!!! TIAD PAM! One site keeps you connected to all your email:
[TMIC] Merry Christmas!!
I hope you all have a wonderful Christmas with those you love remembering the birth of our Savior and Lord, who came from everything familiar, comfortable, right, and glorious to live among sinful people who would misunderstand and reject Him, in order to provide salvation for us. Barbara H. **One site keeps you connected to all your email: AOL Mail, Gmail, and Yahoo Mail. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0025) inline: Untitled.jpg
Re: [TMIC] Re: tmic-digest Digest V2008 #478
Doc's info. about SS is here: _http://www.myelitis.org/tmic/resources/ssd-tm.htm_ (http://www.myelitis.org/tmic/resources/ssd-tm.htm) Barbara H. In a message dated 12/5/2008 7:04:48 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: In response to: Jeanne, When I went on SS Disability, I got my full benefits and then the next year Medicare kicked in...The month before I was hit wih tm...,my disability was for another health problem.so when I reached 65, nothing changed. I would assume that's true for all.if it isn't, someone will speak up and tell it like they see it! As to whether you would get your hubby's SS, I would assume that would follow same rules for all folks, you get whichever is higher. There again, I'm no authority!! I think you can work and still receive SS, but there are limits. This question would have been answered correctly and quickly had we not lost our SS genius a few tears back! Doc could talk SS backwards and forwards, and helped many of our members get their SS Disability. He is missed!!! janh I'm sorry I missed Doc. Some people have such a hard time getting the disability even started, don't they?? I really tried to find and understand what it says on-line but couldn't find anything close to what I needed. I know you can do into their office and talk to someone but that's not always a good idea, I'm thinking, because sometimes that puts a hick-up by your name! j **Make your life easier with all your friends, email, and favorite sites in one place. Try it now. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0010)
Re: [TMIC] Happy Thanksgiving to all my TM'rs
Amen! Happy Thanksgiving, Everyone! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 11/27/2008 9:24:34 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: My heart is filled with love and great joy as I reflect and give thanks for each and every one of you whom the Lord has given me to share a part of my life with. You have all had such an impact on my life and are a part of the love that I express today. Have a wonderful day. Kim dg 10/04 T-10 **Life should be easier. So should your homepage. Try the NEW AOL.com. (http://www.aol.com/?optin=new-dpicid=aolcom40vanityncid=emlcntaolcom0002)
Re: [TMIC] Re: BONE-ROTTING DRUGS....
I get SVTs -- supraventricular tachycardia -- and my dr. has talked about an ablation as well, but I haven't done it yet. I am warming up to the idea, though. But I have never been on Fasomax. I thought for sure this was related to TM -- the stray nerve signals sure seemed related to others in the rest of my body. But my drs. say it is not, and I've known several people now who have them without having TM, so I guess it's just one of those things. If I remember correctly I think Bob Cook (RCookHook) had them as well (are you still here on the list, Bob?) Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 11/24/2008 6:16:37 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: This question from Regina was meant for the list and only came to me so I am sending it on in case anyone can help her. ~ Lynn I took Fasomax for years, and about 3 years ago, began complaining of irregular heart action, tachycardia. At first the doctor dismissed it, but after a year or so, she advised me to go the the ER as soon as my heart started jumping again. Which it did. To make a story short, after many tests, the cardiologist advised me to has a procedure called ablation, which I did. I'm wondering whether the risk of atrial fibrillation the following article refers to is similar to tachycardia. I am also wondering whether I would not have had the problem had I not been prescribed Fasomax. Any comments anyone? Thanks. R From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: tmic-list@eskimo.com Sent: Friday, November 21, 2008 12:59:51 PM Subject: [TMIC] BONE- ROTTING DRUGS Bone-rotting drugs are targeting your ticker Add another brick to the wall you should keep between you and bisphosphonates, the popular (and dangerous) class of bone-building drugs. You've heard me say before that bisphosphonates, often used to treat osteoporosis and people who have suffered hip fractures, can actually result in bone destruction — often rotting away your jaw – and unusual fractures that hit out of the blue. Turns out these dangerous drugs are targeting your ticker, too. Researchers have discovered that bisphosphonates, such as Fosamax, Boniva, Actonel, and Reclast, increase the odds that you will develop atrial fibrillation — an erratic heart rhythm that sometimes results in blood clots. A year ago, the FDA announced it was looking into the risk of atrial fibrillation from those taking bisphosphonates, and the agency set up a mechanism for gathering complaints from patients and doctors about side effects of these drugs. But the faint-of-heart FDA stopped short of advising docs to change their prescribing practices for bisphosphonates. One thing to keep in mind is to not overestimate the risks of bone loss. Bone density only predicts a small fraction (15 percent) of your risk of fracture. A little bit of bone loss is natural as you move past 40 years of age. Osteoporosis results mainly from lower estrogen levels after menopause in women and from reduced absorption of calcium with aging in both sexes. An underutilized key to preserving your bones is vitamin D. It helps your body absorb calcium. Over 50% of the population is deficient which means you need to know your vitamin D status. Ask your doctor about a blood test that measures your 25 hydroxy vitamin D level. Other vitamins and minerals found in fresh vegetables –especially magnesium -- also can keep your bones strong. Dr. Alan Inglis One site has it all. Your email accounts, your social networks, and the things you love. Try the new _AOL.com_ (http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dpicid=aolcom40va nityncid=emlcntaolcom0001) today! **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] Re: tmic-digest Digest V2008 #431
Yes, that's right, but some people have no lesions at all show up on the MRI on spine or brain. I was one. Perhaps they are too small to show up? I don't know Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 11/24/2008 2:07:13 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Hello All, It has been my understanding that with TM one must have lesions on the spine but not on the brain. If one has lesions on the brain it is indicative of MS. Am I misinformed regarding this information? God Bless You, Jude In a message dated 11/24/2008 8:34:00 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Frank, They were never able to locate a lesion on my spine and from what I have read on the message forums this is true for alot of people. I had mutiple MRIs done both with and without contrast. Lynne --- On Sun, 11/23/08, [EMAIL PROTECTED] [EMAIL PROTECTED] wrote: From: [EMAIL PROTECTED] [EMAIL PROTECTED] Subject: Re: [TMIC] Re: tmic-digest Digest V2008 #431 To: jrushton [EMAIL PROTECTED], [EMAIL PROTECTED], TMIC tmic-list@eskimo.com Date: Sunday, November 23, 2008, 4:30 PM i have a question, has anyone else been told that they don't have lesions on their spine? my neuro says mine is just swelling from c6-t3 and t9-t10., so what does that mean? What does swelling from c6-t3 and t9-t10 mean?? Did you have an MRI with and with out gadolium (enhansement)? F **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] Caregivers
Oh Gunny --- I am so very sorry. I just can't imagine. Barbara H. _http://www.barbarah.wordpress.com_ (http://www.barbarah.wordpress.com) In a message dated 11/21/2008 10:38:06 A.M. Eastern Standard Time, [EMAIL PROTECTED] writes: I've been keeping quiet about this situation, but, I've been reading a lot on the list about caregivers so I thought I would spout off. August 8th, my caregiver apparently decided she had enough. I came home from a meeting around 10:30 PM, this was on a Friday, and no one was home. I valled my wife's cell phone as she is usually home by this time, and it went directly to voice mail. I looked in her room, and saw that her Computer was gone, so, I immediately thought someone had broken in. I called the Police to file a report, but then I noticed her pet bird was gone. After reading all the signs that were right in front of me, I came to the conclusion that she had left. I called my Granddaughter to see what she knew, and she confirmed, the wife was gone. So, I walk into an empty house, no warning, no note, just gone. Now, a month after this, she sends $500 to my Granddaughter for bus fare, so her and my Grandson can come to California. Well, they left about a week later with the intention of coming back in a months time. Needless to say, they're still there after three months. My birthday is the 25th of this month, and it'll be the first time in three years that my Grandson wont be with me. It's not so much that the wife deserted me, but she enticed my Grandkids to go to California with her, so, here I am, back where I started. That little boy and I had a bond, no one could break, so I thought. Little did I know. Those of you that have caregivers staying at your side through good and bad times, relish them. Let them know every day how you appreciate what sacrifice thay're making. Oh yeah, the wifw calles a couple weeks ago wanting me to send her $100 to get her air conditioner fixed in her car. After I threw up, I told her what I thought about the way she left, and thanked her for being so considerate. I guess i'll never see any of them again. I don't want to be vindictive, but, what goes around, comes around. As for her, I couldn't care less, but I'm sure gonna miss that little boy. Enough sad stories, let's get back to normal. One site has it all. Your email accounts, your social networks, and the things you love. Try the new _AOL.com_ (http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dpicid=aolcom40va nityncid=emlcntaolcom0001) today! **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] Re: tmic-digest Digest V2008 #431
Amanda, I also don't have lesions on my spine but was told I had swelling. You'd think that when the swelling went down. everything would go back to normal, but, though I did gain back a great deal, I didn't have full recovery. In an informal survey several years ago that the TMA did, about a third of the respondents had no lesions. Don't believe in deadlines!! Many have experienced improvement even years after TM. For me the most improvement came within the first several months, but more did come. And it does come verrry slowly. I can remember each week thinking not much was happening, but then when I would look back over several weeks or months I could see significant gains. Are you having physical therapy? That (next to prayer) was the biggest help to me. It is hard to balance pushing yourself yet not overdoing it. Is Calhoun anywhere near Douglasville? I lived in Douglasville when I first encountered TM, diagnosed By Dr. Richard Bashuk at what was then Cobb Hospital. There is a support group that meets regularly in Douglasville now -- unfortunately I didn't know anyone else there with TM when I was there, but they send notices here when they meet. Best wishes for as much recover as possible, Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 11/20/2008 2:19:47 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: i have a question, has anyone else been told that they don't have lesions on their spine? my neuro says mine is just swelling from c6-t3 and t9-t10., so what does that mean? will the swelling go down? will i be able to recover? i am a single mother of two and i really want to be able to take care of myself and my babies. i keep thinking i am not trying hard enough. i am wheelchair bound, and it seems recovery is happening but very slow. got diagnosed aug. 11th of this year and was told i would see most of recovery from 3-6 months. i feel like i am on some deadline and my time to get better will be up soon. i am scared and i am not sure what to do. any advice? thanks amanda in calhoun, ga **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] Anybody else been there?
Oh, Gilly, I don't think you upset anyone -- I think we've all been having a great conversation seeing things from both sides. We have a relative like that, too -- it IS always about her (in her mind), no matter what else is going on with anyone else. When someone in her family had a serious illness, all she could say was maybe now he understood how she felt -- seemingly no sympathy or concern for him, just her wanting more sympathy for herself. I think that is all we've all been saying, that sometimes people don't understand what we deal with (and I think you're right, it's because we look healthy -- or else as Todd said, they don't understand the long-term nature of it and think we should be well again -- but that their aches and pains are valid, too. As Jan said, no apologies needed. That's one thing this list is for, venting with people who understand. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 11/20/2008 5:21:47 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: Dear Jude, As usual, beautifully said and of course so right. I'm afraid I had a bit of a rant which was not aimed at our list and certainly not of the many wonderful caregivers, who I acknowledge suffer as much as we do in a different way. I also acknowledge that we certainly don't suffer from the worst afflictions. My rant was very personal and comes from recent events which affected me fairly deeply and Rob was the catalyst for me to have a bit of a lash about them. One of my children's in laws has health problems and she seems to think I'm her personal support group and when we are all together as a family, it's always all about her and I'm expected to be very sympathetic and when I'm not I'm the wicked witch of the west! Happened again on Wednesday. I do try to be supportive but there are days when it's just too hard for me and I know you all understand that. I do think it's because mostly we look so damned healthy that it's hard for others to comprehend the pain and difficulties we endure. Sorry to ramble so much but I've been feeling very badly about upsetting people. Especially our truly wonderful caregivers without whom we could not exist I'm sure. much love to you all Gilly **One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today!(http://pr.atwola.com/promoclk/10075x1212962939x1200825291/aol?redir=http://www.aol.com/?optin=new-dp %26icid=aolcom40vanity%26ncid=emlcntaolcom0001)
Re: [TMIC] GOOD NEWS!
Wow, what great news, Sandy!! How exciting! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 11/17/2008 1:40:47 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: 8 1/2 years + with TM for Terry and he just spontaneously walked at our friends house the other last night. (Our friend being follow TM-er Rick Steele). He stands up from his wheelchair all the time and cooks, gardens, etc. He sometimes walks up stairs with the support of the banisters and has taken a few steps unassisted before. But, last night he just got up and walked without any support or assistance for a total of perhaps 40 steps! He was quite well balanced, all things considered. My suggestion to him was to get out the walker and the arm crutches and clean off the cobwebs and start practicing more at home. It's just amazing how much progress Terry has made. He's so determined and has such a good attitude through all his pain. For those of you that went from a wheelchair to walking or walking with assistance, what helped you? Any advise is greatly appreciated! Sandy Parker _Get the Moviefone Toolbar_ (http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=http://toolbar.aol.com/moviefone/download.html?ncid=e mlcntusdown0001) . Showtimes, theaters, movie news more! **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
[TMIC] California Fires
I don't remember who all is in CA besides Barbara Alma and Deb Capen, but how is everyone doing out there? Anyone in danger of the fires there? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
Re: [TMIC] OT - Facebook
I have gotten a few notices about people adding me as a friend on Facebook, but when I try to confirm them, it is not working. According to Facebook that may happen if a different e-mail is used other than what I am registered with. Over there and for a lot in Internet things I use [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) . If you've tried adding me as a friend and haven't received confirmation yet, would you try again using that e-mail? Thanks! BTW there are a few TM groups there. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) - Original Message - From: _CANDIS KALLEY_ (mailto:[EMAIL PROTECTED]) To: _tmic-list_ (mailto:tmic-list@eskimo.com) Sent: Tuesday, November 11, 2008 3:15 PM Subject: [TMIC] OT - Facebook I would like any and all of you to join facebook. I said I wouldn't use this site for political notes but I do listen to alot of TV, especially CNN and MSNBC (occasionally FOXNEWS). Please join facebook and see my note on TORT. Life is short! Break the rules! Forgive quickly! Kiss slowly! Love truly, Laugh uncontrollably . And never regret anything that made you smile. Prayers and thoughts for you and yours, Candy K. **Get the Moviefone Toolbar. Showtimes, theaters, movie news more!(http://pr.atwola.com/promoclk/10075x1212774565x1200812037/aol?redir=htt p://toolbar.aol.com/moviefone/download.html?ncid=emlcntusdown0001)
Re: [TMIC] Normal
I agree with Jeanne. Rob -- this would make a great article (Reader's Digest, maybe?) I do remember having to adjust my thinking from getting back to normal to getting used to a new 'normal.' I would encourage any TMer here to try to get their spouses here also. My husband told me that he understood a lot more of what I was going through both from what other people said but also from what I said here. I wasn't trying to keep anything from him -- we talked a lot and he was very open to trying to understand. But I guess maybe I expressed myself differently or asked questions here because of the possibility of finding others with like symptoms that revealed to him more of what I was feeling than I thought to say to him. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 11/6/2008 12:41:52 P.M. Eastern Standard Time, [EMAIL PROTECTED] writes: I tried sending this as an attachment ..but I just found out you can not do attachment on the list…anyway I am going to try and cut and paste a small essay I tried to write about TM me…as always I am open to comments. NORMAL Normal….what a simple word! This is a word I took for granted until one week past my 50th birthday. What did normal mean to me? Normal meant being like everyone else….it was being able to run, walk, exercise, climb up stairs, play sports…basically being able to do everything that “normal” people do without giving it a thought. I guess I figured as I got older I would slow down a little…maybe replace basketball with golf. Perhaps I would have to exercise a little longer to stay in shape…no big deal…this was “normal”. Sure like all normal people I would get sick from time to time and maybe break a bone or two….but I always knew that I would get better…and until one week after my 50th birthday that was just how life was…normal. Now let us go back 11 or so years where in a period of several hours I went from “normal” to cripple. In a few hours I had zero feeling from my waist down….that can’t be possible…I had played ball all weekend…there had to be a simple answer. Maybe a pinched nerve or something like that…..the idea that I would never be normal again never crossed my mind…I was sure it would be just a matter of time until I was all better…and “normal again “. Even after 3 MRI’s and 2 Lumbar Punctures I was certain that Dr. House would figure out the problem, give me some medicine and I would be all better…I would be normal again…just like everybody else I knew. Three weeks after being crippled from the waist down I was told what I have… ..Transverse Myelitis….what the heck is that…I never heard the words before and had no idea of their meaning. The Neurologist at the top New York City hospital explained it to me…he said he was sure I would eventually walk again… but he could not say for sure what assistance I would need. Perhaps a walker (how embarrassing), maybe a quad cane (better but not great) and if I was lucky perhaps I could graduate to a straight cane (better but not normal) After spending 3 weeks in the hospital I was transferred to the Kessler Rehabilitation facility in West Orange, New Jersey (same place Christopher Reeves rehabbed in). Slowly over a period of 3 months I started getting a little better…I went from a walker to a quad cane to upon leaving the rehab center a straight cane….I was surely getting better. I would prove all of the doctors wrong…..oh just one little side note…while it was true that I was learning to walk better there also came some small side effects. When I first came down with TM I had no feeling and therefore I had no pain or discomfort….but…as some feeling came back these feelings were so so bad. Where previously I felt nothing…now one of my legs was pins and needles and numb (how is that possible?)…whereas my other leg was numb with excessive banding (tightness) which caused me to walk with a “stiff leg”. But at least I was walking and it seemed that I was getting better everyday…soon I would be all better…I would be normal. The improvement was constant for the first 6 months…then it continued to a lesser extent over the next 6 months….then I just stopped improving. How can this be? I know…I just have to work harder at getting better…just keep exercising harder and longer…I was so determined to prove the medical profession wrong! But it turned out that they were right and I was wrong…I hit a plateau where all I could accomplish was abnormal fatigue…I was not getting better and worse yet I probably never would! However I would keep all of the pain and discomforts probably for the rest of my life! Now for most people walking with a limp, and being in weird discomfort 24/7 would be bad enough…but not for me, for me not being “normal” was the worst part of the condition. I did not want people to see me as crippled and feel
[TMIC] November Birthdays
Happy Birthday to the November kids! Please send any additions or corrections to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) 11-01 Ella ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-2 Jeff ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-03 Gina ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-6 Margaret Monson ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-8 Diane ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-12 Marie ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11/13 Kevin ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-13 Lauren Bresse ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-17 Becky [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) 11/18 Drema ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11/20 Cossy ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-21 Pearl Bernocchi ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11/22 Judy Hoops ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) (mailto:[EMAIL PROTECTED]) ) 11-25 Gunny ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 11-27 Jack McMillan at [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) 11-30 Louise Flagg ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) **Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! (http://pr.atwola.com/promoclk/10075x1212416248x1200771803/aol?redir=http://travel.aol.com/discount-travel?ncid=emlcntustrav0001)
Re: [TMIC] Re: humble pie
I heard from him back in June when I sent him a birthday greeting. His oldest son had had a heart attack but had a stent put in and was due to go back to work soon. His little grandson, Dane, whom some of you will remember praying for when he had heart surgery at five weeks of age, is now two, was scheduled for a second aortic heart valve operation in July (it just occurred to me that I never followed up to see how that went.) Errol seemed to be doing well. His address is [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) . Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 10/27/2008 7:50:46 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: It is great to hear from both of you. Has anyone had any word from Errol in Australia??? Sue **Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame0001)
Re: [TMIC] Re: humble pie
Gilly and Saroj, it is so good to hear from both of you!! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 10/26/2008 7:15:55 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: SAROJ!! It's so very very good to hear from you. I've been so terribly worried about you as have many of your old friends on the list. The last time we heard from you, you were going to New Zealand and you were stopping by to see me on the way. You were also having a lot of difficulties with your property and many legal matters. I do hope those are all behind you. I'm so sorry about your depression but it's also very understandable, having TM makes you depressed without all of the other issues you had to deal with. Please write to me and tell me in detail what's been happening to you. My email address is [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) Gilly Whose is confirming she is Gillian from Australia and who survives only by having a sense of humour and tolerance. - Original Message - From: _Saroj Kumari_ (mailto:[EMAIL PROTECTED]) To: _Gillian Clark_ (mailto:[EMAIL PROTECTED]) Sent: Monday, October 27, 2008 8:39 AM Subject: Re: [TMIC] Re: humble pie Hello Gilly, I am as if waking up from a long sleep after four years . I was very depressed but have started making slow recovery . So resubscribed to the list. There seem to be lots of changes in the membership list. Pam and Heyjude seem to be passing through some difficult times. believe , I am writing to Gillian in Australia with a sense of humour. Please confirm. Saroj On 10/27/08, Gillian Clark [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) wrote: Having TM (or any disability) definitely changes values. I'm sure that you were always capable of being humble though Phran3quee, you probably just didn't need to be. Gilly Who always approves of Phran3ques posts. **Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame0001)
Re: [TMIC] Fwd: New Company Policy
Just a reminder of the TMIC Guidelines on the TMIC site at _http://www.myelitis.org/tmic/#guidelines_ (http://www.myelitis.org/tmic/#guidelines) : Please keep messages plain text. Do not post personal information that you don't want the world knowing. The message archive is searchable by anyone with Internet access. Please do not use excessive quoting when replying to a message. Please do not use graphics in messages. Please do not forward or post long jokes or fictional stories. Please do not forward virus warning unless you have verified it to be true and not a hoax. Check these sites: In a message dated 10/24/2008 7:59:38 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Subject: Fw: New Company Policy Notice to All Employees As of November 5, 2008, when President Obama is officially elected into office, our company will instill a few new policies which are in keeping with his new, inspiring issues of change and fairness: 1. All salespeople will be pooling their sales and bonuses into a common pool that will be divided equally between all of you. This will serve to give those of you who are underachieving a fair shake. 2. All low level workers will be pooling their wages, including overtime, into a common pool, dividing it equally amongst yourselves. This will help those who are too busy for overtime to reap the rewards from those who have more spare time and can work extra hours. 3. All top management will now be referred to as the government. We will not participate in this pool ing experience because the law doesn't apply to us. 4. The government will give eloquent speeches to all employees every week, encouraging it's workers to continue to work hard for the good of all.=E 2 5. The employees will be thrilled with these new policies because it's good to spread the wealth. Those of you who have underachieved will finally get an opportunity; those of you who have worked hard and had success will feel more patriotic. 6. The last few people who were hired should clean out their desks. Don't feel bad, though, because President Obama will give you free healthcare, free handouts, free oil for heating your home, free food stamps, and he'll let you stay in your home for as long as you want even if you can't pay your mortgage. If you appeal directly to our democratic congress, you might even get a free flat screen TV and a coupon for free haircuts (shouldn't all Americans be entitled to nice looking hair?) !!! If for any reason you are not happy with the new policies, you may want to rethink your vote on November 4th. Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – _check it out!_ (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir=http://www.games.com?ncid=emlcnt usgame0001) **Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame0001)
Re: [TMIC] Guidelines
Amen to that!! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 10/24/2008 11:16:29 A.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: The guidelines need to include political messages We are one group united by our common factor TM. but when a member spouts political rhetoric we are divided into the right and the left. There are tons of groups devoted to this type of political banter but only one for TM sufferers! I happen to be very politically active (even volunteering for my party) but I respect the rights of my fellow TM family members to have their Own Opinion politically, I respect that they were not born yesterday, have a lifetime of experiences shaping their views and have a sovereign right to their opinions! keep politics out of this one please! Mindy the Artist On Oct 24, 2008, at 8:51 AM, [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) wrote: Just a reminder of the TMIC Guidelines on the TMIC site at _http://www.myelitis.org/tmic/#guidelines_ (http://www.myelitis.org/tmic/#guidelines) : Please keep messages plain text. Do not post personal information that you don't want the world knowing. The message archive is searchable by anyone with Internet access. Please do not use excessive quoting when replying to a message. Please do not use graphics in messages. Please do not forward or post long jokes or fictional stories. Please do not forward virus warning unless you have verified it to be true and not a hoax. Check these sites: **Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame0001)
Re: [TMIC] re:guidelines
It's been generally agreed on in the past that speaking naturally of religion in terms of what helps you in dealing with TM is ok, but inspirational forwards or Bible-thumping is over the line. For many of us we could not make it without spiritual undergirding. To me a request for prayer is a far different thing than slamming someone's political views. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 10/24/2008 2:37:27 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: I am going to agree with the addition of religion. I have been silent on the chronic requests for prayers and thanks to god and such...but if we are going to eliminate politics lets get rid of religion as well. I delete more messages now than I read so I can just continue to do that. But if we are going to respect each others politics then lets respect each others religion as well and stop with all those messages too. Sandy **Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/10075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame0001)
Re: [TMIC] The Web
When mine does that it usually means I need to either reset the router or clean out my cache or empty my recycle bin. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 10/19/2008 6:00:32 P.M. Eastern Daylight Time, [EMAIL PROTECTED] writes: Is anyone else having difficulty getting on the Web? I have tried five sites and keep getting the same message, Sorry, cannot find server. Am I doing something wrong? I need to do some research on blood diseases and cannot get access...Help! Peace, Jude **New MapQuest Local shows what's happening at your destination. Dining, Movies, Events, News more. Try it out (http://local.mapquest.com/?ncid=emlcntnew0002)
Re: [TMIC] Pam called about Jude
Thanks, Ella. Poor Jude! Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 8/21/2008 11:57:22 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I received a call from Pam about 15 mins ago and she asked that I write as her computer line is messing up. Last night, Jude took a turn for the worse and has been rushed back to Hurley. She has yet another UTI and is now in C.C.U. If she calls back I will let you knowElla **It's only a deal if it's where you want to go. Find your travel deal here. (http://information.travel.aol.com/deals?ncid=aoltrv000547)
Re: [TMIC] Re: tmic-digest Digest V2008 #228
Thanks, Patti! In a message dated 6/3/2008 11:16:44 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I'm not sure if you have mine Patti 9/30 **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] birthdays
I didn't omit it -- I never received it, but I have now, so I will add it in. :-) To any others, if you would like your birthday included for any month, not just this one, just let me know and I will add it on the master list. If you are not sure if you ever sent it in but you'd like to be included on the monthly birthday list, go ahead and send it. The only way I have it is if you send it in. The only ones I omit are those whose birthday greetings I send are returned to me with user unknown. Barbara H. In a message dated 6/1/2008 6:13:09 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: mine was omitted gerry 06 22 [EMAIL PROTECTED] **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
[TMIC] June Birthdays
Is it June already? Where did May go? Hope all of you first-of-summer kids have a great birthday! As always, please send any additions or corrections to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) 6-1 Akua ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-2 Crystal ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-5 Tobe Kanon ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-11-42 Irene ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6/11/50 Marabeth ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-11-51 Sharon Marsden ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-17-46 Cheryl ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-19 Tom in Delaware ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-19 Debbie Capen ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-22 Ann Moran ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-25 1943 Errol White ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6-29-59 Pauline ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 6/30/40 Bobby Jim ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) For those who remember them, there are two birthdays this month of fellow TMers who have passed on. Tom Carr's is June 2 and Dennis Galvin's is June 25. I don't know their family members or how to reach them, but if you do, it might be nice to send them a little note that we're remembering them and thinking of them. **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] [How to] unsubscribe!!!!!!!!!!!!!!!!!!!!!!!!!
According to _http://www.myelitis.org/tmic/_ (http://www.myelitis.org/tmic/) : To unsubscribe from the list, send email to [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]body=unsubscribe) , with the Subject unsubscribe. That's all that's needed. To unsubscribe from the digest, send email to [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]body=unsubscribe) , with the Subject unsubscribe. That's all that's needed. Note: AOL users some other mailer may require something written in the message body before it will send. What you sent before was to the regular tmic address at [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) . To unsubscribe you have to send the request to [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]body=unsubscribe) and for the digest [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED],When) ,When you sent the unsubscribe request before, you those addresses in the e-mail itself but not in the To: section, so the e-mail didn't go to those automated addresses to unsubscribe you. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/26/2008 9:59:43 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I WAS TOLD I UNSUBSCRIBED WRONG. I DID WHAT THE HOME PAGE. SAID ALSO A FRIEND TOLD ME DIFFERENT. I TRIED BOTH WAYS AND NEITHER WORKS. IF SOMEONE KNOWS ANOTHER WAY LET ME KNOW TIAD PAM **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] relapse?
I have had episodes of numbness getting worse to wear I thought I was about to have a relapse, but it never got as bad as the original onset.It just flared up from time to time. Often being tired or not getting enough sleep had a lot to do with it, but sometimes it just happened for a while and then went back down after a few hours or days. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/22/2008 11:17:47 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I swear it feels like I am getting worse..my right leg the past 2 or 3 days has been numb and feeling *asleep* , just like the very first day 3 years ago. My *anniversary* of getting this autoimmune disorder was yesterday.3 years nowmy leg started to feel *numb* at the foot and has progressed to right below my knee. My other foot also feels a little numb, but not too bad. I am scared. I know if I call the neuro, he will order mri's. (of which I cannot afford right nowour insurance has a huge deductible and we would almost end up paying the whole thingwhich would be $3000-$4000! )...I know sometimes you can have recurrences with TM...I guess I just didnt expert it. I'm afraid to call neuro. I'm afraid of results. I HOPE its just the weather...but I somehow I dont think so. It's not affecting my walking it just feels asleep and sorta numb. **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
Re: [TMIC] 19 year TM Anniversary
I just wanted to add my thank yous. When I first encountered TM 12 1/2 years ago, I had never heard of it and thought perhaps the doctors might be mistaken. At my first opportunity I went to the library to find out what I could, but there was nothing about TM except for a two page spread in a medical book. So I began to read about some of the other diseases I had been tested for. When we got our computer over a year later, the very first thing I searched for was TM, and found one of the original posts. I found the place to register and shared a condensed version of my story and my many questions, and I was amazed at the warmth, generosity, and knowledge of the folks who responded. Though I have a loving family who tries their best to understand, it helps to communicate with someone who has experienced some of the same weird symptoms, who knows what I am talking about -- I guess it reassured me that it was real and I wasn't crazy after all. :-) So thanks so much, Jim, for creating this place for us and amassing all the links and other information. My first several months here I read a lot of the resources on the TMIC and TMA pages. Thank you for using your time and energy to help others, and for your positive outlook. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 5/17/2008 5:21:08 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: On May 17, 1989, I became paralyzed from the neck down and dependent on a ventilator to breathe due to Transverse Myelitis. I was 21. I woke up with a pain in my shoulder. Went to work and about 30 mins later the pain got very intense. I suddenly could not stand then stopped breathing. I later found out that my heart stopped and it took awhile for them to stabilize me to even transport me to the hospital a few blocks away. The doctors had no idea what had happened to me. initial thought were possibly a stroke, lyme disease, or Guillain-Barre Syndrome. I was in and out during that time, could not talk, only remember bits. After about 2 weeks I had a MRI and was given the diagnoses of Acute Transverse Myelitis. I was in ICU until July 31 then transfered to rehab. In rehab I was treated as a person with a spinal cord injury. I had physical therapy which consisted of giving me range of motion and practice driving my sip and puff operated wheelchair. In speech therapy and occupational therapy I learned morse code to access the computer. I practiced typing and played tetris and chess. In October, I was able to leave the hospital for the first time and went to see the Batman movie. I started going to movies about once a week. The nurses always tried to get the other patients to go out when I went because I was the only vent dependent high level quadriplegic and enjoyed going out. Others were paraplegics, having problems dealing with their condition. I was in rehab until January 31st. I've been paralyzed most of my life. Wow how time flies. Jim Lubin [EMAIL PROTECTED] _http://makoa.org/jim_ (http://makoa.org/jim) disAbility Resources: _http://www.makoa.org _ (http://www.makoa.org/) **Get trade secrets for amazing burgers. Watch Cooking with Tyler Florence on AOL Food. (http://food.aol.com/tyler-florence?video=4?NCID=aolfod000302)
[TMIC] May Birthdays
Happy Birthday to the May babies! Please send any additions or corrections to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) . 5/5/ Linda Garrett ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 5-9- Lynn - Rhode Island ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 5-11- Lynn ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 5-12- [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) 5-12- Mary Woods ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 5- 19 Maureen Wroblewski Hallagan ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 5- 26- Maria in Tonawanda ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 5/27/ Jim ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 5/31/ Wendy Wood ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) **Wondering what's for Dinner Tonight? Get new twists on family favorites at AOL Food. (http://food.aol.com/dinner-tonight?NCID=aolfod000301)
Re: [TMIC] Misunderstood
In a message dated 4/24/2008 4:16:22 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: DOES ANYONE ELSE HAVE TROUBLE RECEIVING JRUSHTON'S EMAIL Nope, I receive it fine Barbara H. http://barbarah.wordpress.com/ **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [TMIC] WalkAid - Foot drop
In a message dated 4/23/2008 4:51:00 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Thanks, Rob...prayer is the only reason I am upright!!! Jeanne That just reminded me.. often when I lose my balance and begin to tip one way or another, my oldest son will say, Stay upright! and I'll say, That's one of my goals in life! Doesn't have anything to do with the topic at hand, but thought I'd share it. :-) Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [TMIC] again Lyrica
The archives are just previous messages that have come through the TMIC. If it is in the archives that just means it has been discussed before, but that doesn't mean it can't be discussed again for those who weren't here then. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 4/22/2008 8:56:34 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Wim, (and all of you who have been with TMIC longer) please forgive my ignorance but why do we have both this site plus the archives? I just went into the archives (thank you!) and notice the same 'type' of conversations but they are divided into 'subject' and it is helpful to see that some are pretty current. I tried to find the answer before even sending this message. Thank you ALL for all of your input. I do so appreciate it! Jeanne in Dayton **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [TMIC] Questions
1. Yes, as a child. 2. No 3. No Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 4/19/2008 3:31:52 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Hi, everyone (again!) I have three questions for those who would be willing to respond: 1) Did you ever have chicken pox? 2) Did you ever suffer from shingles? 3) Did you have a flare-up of shingles prior to your being stricken with TM? These are a few of the theories with TM and I'm just curious to see if any of 'us' have experienced any or all of these. Jeanne in Dayton **Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos. (http://autos.aol.com/used?NCID=aolcmp0030002851)
Re: [TMIC] Prayer Request
Oh, I am sorry Candy. I'll be praying. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 4/10/2008 1:57:53 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I just learned that my baby sister, Deb St. John, was taken to the hospital yesterday. She has a brain tumor, doesn't reconize anyone, is having seizures. Trying to find out more info but at this time it doesn't look good. Please pray for her. Prayers and thoughts for you and yours, Candy K. **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] When do you know if it is time to quit!
That's a hard one, Rob. Do you have any other job options? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 4/3/2008 9:32:45 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I am obviously on a letter writing campaign…this is due to what I perceive as a worsening of my condition…ok here is my question….I have been working full time for the past 10 years after contacting TM (obviously this was after the hospital and rehab)…I drive more than 2 hours a day (welcome to New York City) and for the first time I am really wondering how much longer I will be able to keep this up…it just keeps getting harder. On the one hand if I stop working I will have all the time in the world to think of my condition (bad!), on the other hand work just keeps getting harder and harder both physically and mentally(bad too!). Please don't tell me to just cut down..that cannot work…..therefore what I have done mentally is say to myself that if I can just work 2 more years then I can retire…only problem is that 2 years seems like a very very long time! I am going for a spinal MRI next week and Dr Kerr hooked me up with an excellent Dr. in New Jersey whom I will be seeing in a couple of weeks…so I am trying to be proactive…just not sure how much longer my positive attitude will be enough to get me by! Sorry about this I truly hate complaining when I know so many of you are so much worse than I am! Thanks for everything! Rob in New Jersey **Planning your summer road trip? Check out AOL Travel Guides. (http://travel.aol.com/travel-guide/united-states?ncid=aoltrv000316)
Re: [TMIC] queston
In a message dated 3/31/2008 9:13:03 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: I know all of us do not have one day that is exactly the same as the previous one…but have any of you experienced new feelings (good or bad) that was not a result of a relapse? Yes, Rob, I have experienced strange sensations and feelings and feared a relapse or second episode, but it ended up just being some weird thing. Sometimes it would just be for a day, sometimes it would last for months and then fade away. You're doing well to get it checked out, and I hope that's all it will be for you, just some strange nerve signal that will resolve in time. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
Re: [TMIC] This Is a Test
That has happened to me and others a few times -- just a technical glitch, I think. You're coming through fine now. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/31/2008 10:12:38 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: I have been kicked off the list, and I judging from the archives, it has been a great while. I hope this message makes it through. Naomi C4-incomplete, quadriplegic since July 2005 due to Transverse Myelitis **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
[TMIC] April Birthdays
The list for April is short!! Hope you al have very special days to celebrate your lives! As always, send any additions or corrections to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) . 4-1-25 Ken ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 4-14 Kris ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 4/18 Bernard Butcher ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 4/20 Dianna ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 04/20 Todd Tarno ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 4-25 Shelia ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) For those who rememeber Doc, a former active list member who passed away a few years ago, his birthday was 4/24. **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
Re: [TMIC] A month before TM -
I am one of those weird ones who doesn't really seem to have a cause for my TM. I wasn't under any undue stress. We had moved out of state the year before but were well-settled by then. We were in the first week of our second year of home schooling, and though there is some pressure getting ready for the school year and switching over from a summer schedule, it wasn't what I'd call major stress. No colds, flu, viruses, or immunizations. I had had a biopsy of my cervix in the weeks before, so there is some possibility that something got into my system then. The night before, I had opened a jar of nacho cheese sauce that was covered in mold -- it was new from the store and I had noticed that the little indention on the top of the lid that's supposed to pop up when it is opened was already popped up, and I took the lid off and sniffed to see if it smelled spoiled before realizing there was mold. We mentioned that to the doctors and they thought it laughable that mold caused it, but we held on to that theory for a long time. There was a former TMIC member whose every post had to do with mold in her building causing TM -- I don't know if that's the same type of mold as in food, but I think it certainly might be a contributing factor. I was sent for a second opinion to Emery University, and the doctor there said that even if they could have analyzed everything I had been in contact with the day I contracted TM, they wouldn't be able to pin down which thing set it off. To me what's more interesting and perplexing than the specific factor that causes TM is wondering what makes exposure to one thing set off another reaction for some people but not for others or at one time but not another. For example, people get flu and viruses every day, but it doesn't always go into a more serious illness. Some who got TM after having the flu probably had the flu before with no further problems -- what triggered the switch this time? Thousands of people get vaccines every day, but only a few go on to develop TM and other problems: what made the difference? I do believe stress and general health are two contributing factors, but I don't think they're the only ones and the whole story. I hope someone somewhere is doing a study on this kind of thing Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] Fluid retention
Hi Jan, I am allergic to sulfa and many diuretics apparently contain sulfa (Thankfully I caught that while reading the prescription information that came with the prescription before I took any!!) I am supposed to be on something now called something like spironolactone. I took it one day and had some bowel trouble, but I don't know if it was related to that or not. I need to try it again before I go back to see the doctor. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/26/2008 10:10:09 AM Eastern Daylight Time, [EMAIL PROTECTED] writes: Do you take Lasix or any other diuretic? I take generic Lasix, and have since I was diagnosed.That keeps the retention problem in check with exceptions like having to stand a long time.as to your cellulitis, I'm not much help except to say that you should be sure to take the total bottle of pills, i.e., don't stop when you feel betterand I think your dr.'s suggestion to put your feet up is im- portant...it'll also help with retention problemNow, you have an excuse to let the housework go and get a good book! what a stroke of luck!!! Hope this clears up quickly! hugs, janh **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15ncid=aolhom000301)
[TMIC] Fluid retention
Does anyone else tend to retain fluid in their lower limbs? I seem to -- but it may be due to age/excess weight/lack of exercise. No doctor has been concerned about it til the one I just started seeing this past year (my previous doc left his practice). She wanted me to wear an ace bandage or support stockings, but my lower legs get so hot as it is I can't stand it. When I walk around the mall or Wal-Mart in the summer they get insufferably hot. Many people on the list have said they don't sweat below the area that was affected by TM, so I always attributed the legs getting overheated to that. I had a bout of cellulitis on one shin in Jan. after accidentally banging it on a shelf. I was put on Clindamycin and told to keep my leg elevated. I was also told to use the ace bandage, but after trying it the first time it seemed to make the redness worse. I thought it had mostly cleared up, but it came back at the end of last week. I am on Clindamycin again as well as Doxycyclin (sp?) and supposed to keep my leg up at least 20 minutes out of every hour. I am concerned because it seemed to cover more area and take a little longer to fade out than last time, but it is fading. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] Fluid retention
Hi Linda, Cellulitis is a skin infection. The swollen ankles aren't a symptom of it but from what I understand it makes the skin there more susceptible to it. The Mayo Clinic site says: Introduction: Cellulitis (sel-u-LI-tis) is a common, potentially serious bacterial skin infection. Cellulitis appears as a swollen, red area of skin that feels hot and tender, and it may spread rapidly. Skin on lower legs is most commonly affected, though cellulitis can occur anywhere on your body or face. Infections on the face are more common in children and older adults. Cellulitis may affect only your skin's surface — or, cellulitis may also affect tissues underlying your skin and can spread to your lymph nodes and bloodstream. Left untreated, the spreading infection may rapidly turn life-threatening. That's why it's important to seek immediate medical attention if cellulitis symptoms occur. More information can be found here: _http://www.mayoclinic.com/health/cellulitis/DS00450_ (http://www.mayoclinic.com/health/cellulitis/DS00450) Barbara H. from TMIC _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/26/2008 6:40:00 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Hi, What is cellulitis? I also start the day out with thin ankles and end up with fat ones. I find not eating any salty junk food and cutting way back on sodium helps. I also find if I can lay down for about an hour a day, seems to help. Linda in Pa **Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom000301)
Re: [TMIC] Hello from Germany
So good to see you pop up here again! I am so glad you were able to start a TM support group in Germany. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 3/10/2008 7:00:33 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Dear TMIC-members, some of you may remember me, I´m Ursula from Germany. This list has been a big help for me at my onset of TM in 2001. I got to know many wonderful people here from all over the world and with some of them I´m connected in a deep friendship. And as I see the list still is helpful and busy and I was especially touched about all the support Jude got from you. I hope things will develop well for her, she´s in my thoughts. The list (Thank you, Jim!) and getting in contact with Sandy Siegel motivated me to build up a TM-support group in Germany, which meanwhile is a formal society with a great bunch of people. A few weeks ago I subscribed again, actually with the hope being able to participate active. But I had to realize that my time and strength is too limited and I even get overwhelmed with the many emails to read. So I´ll unsubscribe again soon, but before I want to greet especially these people who I know from the past, for example Janh, Wim, Tobe, Kevin, Sam, Gunny, Barbara and many more - you know who is meant! You all have a good time, be well and take good care about you! Love Ursula Ursula Mauro Transverse Myelitis Association 1. Vorsitzende Myelitis e.V. Neugasse 32 77743 Neuried Telefon: 07807-3154 mailto:[EMAIL PROTECTED] http://www.myelitis.de **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301)
[TMIC] Listening, attention, and solitude
I think we have talked before here about having shortened attention spans that what we used to. I am wondering if anyone else has trouble listening to anything for very long? Conversations, speeches, sermons? I get lost after a while and have to struggle to maintain attention. And along with listening, sometimes I get impatient when someone takes way too long to say something simple or continues explaining a point they have already made and I already understood. I just want to take them by the shoulders and say, I got it already!! LOL! I guess I am wondering if I van blame it on TM or if I am becoming grouchy and impatient in my old age! Even if it is somehow an aftereffect of TM, of course, it's not an excuse -- I still need to strive to be attentive as much as possible. I can't impose a time limit on everyone's conversations. I also find that I really need a certain amount of solitude to stay sane. I think that's my personality in some respects -- I've always been better with one or two friends than a crowd and I have always enjoyed time alone. But sometimes now I just have to slip off by myself where it is quiet and nothing is demanding my attention. I don't want to be a hermit or live alone -- but I do need some solitude. Anyone else? Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) **It's Tax Time! Get tips, forms, and advice on AOL Money Finance. (http://money.aol.com/tax?NCID=aolprf000301)
[TMIC] March Birthdays
Happy Birthday to the March babies! I love that spring comes this month! And an early Easter this year, too. Hope you all have a great birthday. As always, send any corrections or additions to [EMAIL PROTECTED] (mailto:tmic-list@eskimo.com) . 3-3 Marsha Scholes ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 03.05 Bettie Imus ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-6 Robert Lovette [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) 3-7 Sue Mattis ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-15 Sandra Melville ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-17 Joy S. ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3/24 Rachel ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3/24 john h (JOHNLOVESKARAOKE) 3/30 Gary ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) 3-31 Jan H ([EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) ) **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
Re: [TMIC] Hello from Jude
Hi, Jude, It's so good to hear from you! I think everything here as settled down, as it usually does within a few days. Praying for your continued healing, Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 2/22/2008 4:58:15 PM Eastern Standard Time, [EMAIL PROTECTED] writes: It seems as though my faculties have been stretched to the limit and what I want to say doesn't come out the way I intend it to. Life has become a lonely place away from my home, Dave and Sadie Dee-Dee. And, of course, each and every one of you. Thank you so much for the cards and flowers. They are colorful and lovely and go a long way to get me through the days and nights. It hurts my soul to read about all of the strife and disrespectful attitude between my good friends. This support group has always been a place of refuge for me. And, it has been a place to share information regarding TM and the other disorders that tag along with this dread disease. It is a place for me to exchange ideas, a few laughs, talents, and even a place to vent. This group has been always tolerant of my way out emails and tangled thoughts. I beg of you all...we are so fortunate to live in a free society. Look up freedom in the dictionary and then say Thanks and Praise to whomever it is that you pray to. I love you all, Jude Practice Random Acts of Kindness **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
Re: [TMIC] OT Politics
I do agree, Tracey, with freedom of speech as a country. But there are some instances of agreeing to disagree in certain places on certain topics and going on. I don't mind a discussion of politics or what's going on in the media when people stick to the issues: it's when people make snarky, condescending, cutting comments about the other side that it bothers me. Years ago the consensus on the TMIC in regard to religion was that it was ok to write in the sense of what I had felt God had done for me, how I relied in Him personally to cope, etc., but that getting preachy, writing to try to convert others, and sending loads of religious forwards was crossing the line here though it was fine on other contexts. I don't personally have a problem with discussing religion or politics, even when there is disagreement: I think it can be enlightening -- if it can be done in a civil manner. My plea to cut the politics was based on other people's frequent pleas along the same lines. But if it is ok with Jim, the creator and maintainer of our list, and ok with the group in general, I am fine with it. I'd just ask for civility and respect and grace. We can discuss the issues without putting down anyone's choice for president disrespecting another's viewpoint opposite our own. Attack the problem, not the person is a good general maxim. Barbara H. _http://barbarah.wordpress.com/_ (http://barbarah.wordpress.com/) In a message dated 2/21/2008 10:17:14 AM Eastern Standard Time, [EMAIL PROTECTED] writes: I agree completely with how the subject line should read. As much as this world should be made up of freedom of speech, it does tend to hit a nerve when certain subjects are discussed and not agreed upon by everyone. It does seem strange to me that we can praise God on here for the miracles that he has given and thank God for the prayers that have been answered and everyone seems ok with that(regardless of their religious background) but the minute that politics are discussed (even though it is all a repeat of something being told in the media) feelings get hurt and people get offended. I am not saying that it is right or wrong, I am just stating a fact. Our world is a melting pot of so many different religious and political backgrounds and we should all be able to value the opinion of someone else, even if we don't agree with it. Everyone should have their right to their own opinion. No one should have to apologize for making a statement on what they believe. Everyone should stand up for what they believe in. Isn't that what we all try to teach our children and their children? Tracey L. Black Certified Insurance Service Representative Hockley O'Donnell Insurance Agency Phone - 717-334-6741, x 29 Fax - 717-334-3414 **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
